Comments on: Tea-tree objects identified

By: Smileykins

Smileykins — Tue, 31 Jul 2007 01:55:47 +0000

I see, Ppy. And I know it’s all right for you to call other people names, as well as telling us to stop acting simple. It hasn’t been fun watching you tap dance around my very specific questions, and I didn’t state anything about wanting to save you from your delusions. Can you tell me what the things that look like “curly q’s” are in your photo album? Are they homemade tatoos, and wire?

By: ppy

ppy — Mon, 30 Jul 2007 23:55:02 +0000

q tip,
please stop trying to act simple like sara beyond-dumb. i found out about my lyme because it was listed as a possability for those who have morgellons. now i know you seem to have a problem understanding this part so i’m gonna go real slow for you ok. i visited my primary care doctor and several derms here in atlanta to discover what was causing lesions to appear over various parts of my body. no physical trauma or injury was causing them and no matter what i treated them with they would not go away. i was put on several different antibiotics and was instructed to treat topically with rx steroid creams and such. i was advised to change my soap, laundry detergent, lotion etc. also advised to keep a diary of my meals to see if a source could be identified. lets be clear here…..I did all those things and they didn’t work! i was not diagnosed as dop, nor were my lesions deemed self inflicted. in fact the derms remarked at the characteristics of the lesions as they were unusual. now see here’s the thing tip, the doctors were as confused as i was about this stuff. i did not have the luxury of giving up however. another point of note, i noticed the fibers before i learned about morgellons also. the thing is, i didn’t associate them with my illness. i have many fibers in my environment that are very motile and have many strange behaviors not normally associated with a hair or fiber. not going into all that cause you already know what i am saying. but i assumed that my condo must have some sort of mite or insect problem. i had just moved in when i began noticing them so assumed that it was a pre existing situation . i don’t know why i am bothering…..you know the truth already and i am simply irritating myself because of my poor typing skills. but to continue, the lesions and fibers started within 2 weeks of each other i believe. but i may have missed the earl clues due to lack of attention and being extremly busy with moving and the holiday season being in full swing. so you follow so far. my symptoms sent me to the to help, followed by my searching for on the net. actually i never used the computer before this. my roommate is the one who found the MRF online. she was trying to help me because i was so distraught. i did not know anything about using a computer till she found that site. so again, my symptoms were used to search for a potential dx. morgellons matched the symptoms i was having. on their advice i was tested for lyme and bloodwok confirmed a lyme infection. this is more than enough reason for me to say that i have morgellons. lets add them up strange and unfamiliar symptoms dr could not identify, a disease that list many of my symptoms and provides information that suggest i may have a co infection of lyme which proved to be true and no explanation for the fibers in my skin and my environment. hmmmm, i think i’ll stick with morgellons till they prove me wrong. and really thats all they have to do. tell me what i do have instead of referring me to specialist after specialist that have no answers but still bill ya that 200 per office visit. but why do you care q tip? do you feel the need to save me from my delusions? how bout this, you save yourself first. from where i’m standing you are the one who needs it

By: Smileykins

Smileykins — Mon, 30 Jul 2007 21:29:39 +0000

Ppy, am I “q tip”? Well, at any rate, although you didn’t answer just four simple little things I’d asked in comment #34, I appreciate your own way of explaining your reasons for adopting “morgellons disease”, and I’m very sorry that you’re ill, and that you’re not being treated. Where you said:

imagine typing the words non healing lesions, fibers hairs and fatigue into a search engine as you frantically search for information as to what is happening to your body.

I don’t need to imagine that, because I did my own searching, once upon a time, when I was way too sick to think clearly, and I vaguely recalled this illness called “morgellons disease” being discussed on a message board. I’d read a few comments, determined that I had clicked onto an online sci-fi game, and left. That was even during a time of being so ill that I was having hallucinations, and, in my opinion, delusions are far more dangerous. When something like that has a sudden onset, there’s some underlying health reason that’s causing it, of which there are many.

Good luck.

By: sarahbionedunn

sarahbionedunn — Mon, 30 Jul 2007 13:59:01 +0000

Ppy says: sara beyond- dumb, are you familiar with the term google it? you see i don’t have the patience to post information that you are fully aware of and have been for some time.

Excellent name. Quite clever.

I have googled Morgellons. No peer-reviewed literature on research on the topic. I must be missing something. Help me out. Just reply with in the authors and the year, I can work from there.

By: ppy

ppy — Mon, 30 Jul 2007 08:59:28 +0000

sorry for the typos. what can i say? i’m a sick puppy

By: ppy

ppy — Mon, 30 Jul 2007 08:56:16 +0000

q tip,
lets make this short ok. i have lyme disease. i have lesions on my brain. i have morgellons disease. i have been diagnosed with mild to moderate impairment of all memory function. more cognative impairement but can’t remember the specifics. maybe because my brain is turning to oatmeal. fun to feel like an alzheimers patient while still in your 30s. as far as how i found out about morgellons and your other ridiculous questions pleasr refer to my previous post. but don’t ask me to explain myself to you q tip if you refuse to logically consider the answers. and we both know you can’t do that cause it proves you wrong.

By: ppy

ppy — Mon, 30 Jul 2007 08:45:55 +0000

q tip,
i had morgellons before i knew its name. i didn’t find out till months into this nightmare that others suffered with it too. imagine typing the words non healing lesions, fibers hairs and fatigue into a search engine as you frantically search for information as to what is happening to your body. i read about morgellons and i learned some helpful hints. one of those tips suggested getting tested for lyme . understand that i was very unfamiliar with lyme disease at the time and had no reason to suspect i might be infected . imagine my surprise when my western blot came back positive by cdc reporting standards. wow lyme disease, maybe i should learn more about it. after doing a little research i found that i have exhabited signs of lyme since i was a toddeler. i was diagnosed with juvenile RA at 3 years old. my parents were told that i would not walk again.i was seen by specialist in that field from all over the world. the childrens hospital i was in happened to be hosting some event to teach new treatment methods to dr from around the world and asked my parents if they could have these drs examine me. they all agreed on my diagnosis . guess what? it went away. i walked, i ran, i kicked ass in any sport i played cause i was a damn good athlete. i suffered from grand mal seizures at times but drs could not find any reason for them so they wrote it off to stress. how can a 5 year old be stressed? seizures are a symptom of lyme. and more recently, about 7 months before i began getting the lesions, i lost a drastic amount of weight in a short period of time, had chest pains, shortness of breath and felt light headed after light activity. again, major lyme symptoms. however i would have never suspected this if not for the MRF. what a coincidence. the delusional disease i found on the internet knew that i likely had lyme disease. ironic ain’t it Q Tip. thank god for my delusions or i would have never realized that i was sick. by the dip stick, i already read all the info available on elliots disease, dr amir has an interesting theory regarding the fillings in our teeth but i don’t think it causes morgellons. it probably doesn’t help though. and i didn’t play right into marys hands cause i didn’t know of mary till months after i became ill with morgellons. next………..

By: Smileykins

Smileykins — Mon, 30 Jul 2007 08:44:12 +0000

Ppy, how many doctors have you been to, and what have you been diagnosed with? When did you first hear about “morgellons disease”, and why do you think that you have it?

By: ppy

ppy — Mon, 30 Jul 2007 08:11:41 +0000

sara beyond- dumb,
are you familiar with the term google it? you see i don’t have the patience to post information that you are fully aware of and have been for some time. i provided you with the key words if you really must “refresh” your memory but we both know it’s not hard to find if you really want to know the truth. it’s been fun watching you tap dance around my very specific questions though sarah.i am not so easily distracted as to notice that you have nothing to offer in your defence. as i said the burden of proof is no longer on us. you have no valid or rational way to explain your position. its kind of a let down actually. like a magic show using smoke and mirrors to decieve the audience, its all too obvious once the lights come on.

By: sarahbionedunn

sarahbionedunn — Mon, 30 Jul 2007 04:44:41 +0000

PPy says: the burden of proof is no longer on us. we have research to support our claims.

Please give me the references of the peer-reviewed publications of the research you have to support your claims. I clearly have missed these, and apologize in advance.