Comments on: The Trouble with Thrips http://morgellonswatch.com/2006/06/27/the-trouble-with-thrips/ Resources for Morgellons investigators. Skeptical analysis and discussion. Sat, 21 Feb 2009 17:10:26 -0800 http://wordpress.org/?v=2.8.5 hourly 1 By: orion http://morgellonswatch.com/2006/06/27/the-trouble-with-thrips/comment-page-2/#comment-19244 orion Tue, 19 Feb 2008 20:55:04 +0000 http://208.109.216.142/2006/06/27/the-trouble-with-thrips/#comment-19244 I find this article fascinating. I was just inspecting some bugs on my houseplants under a microscope and found out that they were thirps. There was another leaf with some curious fibers that reminded me of what i had read of morgellon's disease - curled white fibers combined with some red ones that looked maybe like fibers from the carpet. And then I go online and discover that thirps and morgellon's could be related. i suggest if you have houseplants with thirps to look for these morgellon's bundles on the bottom of leaves. I find this article fascinating.

I was just inspecting some bugs on my houseplants under a microscope and found out that they were thirps. There was another leaf with some curious fibers that reminded me of what i had read of morgellon’s disease – curled white fibers combined with some red ones that looked maybe like fibers from the carpet.

And then I go online and discover that thirps and morgellon’s could be related. i suggest if you have houseplants with thirps to look for these morgellon’s bundles on the bottom of leaves.

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By: smileykins2 http://morgellonswatch.com/2006/06/27/the-trouble-with-thrips/comment-page-2/#comment-2273 smileykins2 Wed, 24 Jan 2007 23:17:00 +0000 http://208.109.216.142/2006/06/27/the-trouble-with-thrips/#comment-2273 Gosh, Jeff, I'm so sorry about your past records! I suppose you've already asked your parents if they remember any doctors' names from way back then? If you feel your medical history's tarnished with a mentioning of "morgellons disease", and it's created a roadblock (but if you can talk with ease to your doctor, it shouldn't be the case), I'd consider resorting to enlisting a parent in this pursuit, to go to a doctor appointment to back up what occurred in 1987. You know, lots of conditions aren't easy to detect right away, and it requires remaining with one doctor and developing a good doctor/patient relationship. If sarcoidosis involves the wrist, cystic changes and lytic lesions may be present. Of course, I don't know the details surrounding your wrist, but if it's relevant, I'd remember the approximate dates of any procedures involving it, and gather copies of all those reports and x-rays. You probably know all of this, already, but it may interest someone else: <blockquote>Skin Symptoms of Sarcoidosis * Various types of bumps, ulcers, or, rarely, flat areas of discolored skin, that appear mostly near your nose, eyes, back, arms, legs, and scalp. They usually itch but aren't painful. They usually last a long time. * Painful bumps that usually appear on your ankles and shins and can be warm, tender, red or purple-to-red in color, and slightly raised. This is called erythema nodosum. You may have fever and swollen ankles and joint pain along with the bumps. The bumps often are an early sign of sarcoidosis, but they occur in other diseases too. The bumps usually go away in weeks to months, even without treatment. * Disfiguring skin sores that may affect your nose, nasal passages, cheeks, ears, eyelids, and fingers. This is called lupus pernio. The sores tend to be ongoing and can return after treatment is over. What Are the Signs and Symptoms of Sarcoidosis? Many people who have sarcoidosis have no symptoms. Some people have very few symptoms, but others have many. Symptoms usually depend on which organs the disease affects.</blockquote> http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_signsandsymptoms.html <blockquote>If your doctor cannot help you, you can contact the nearest university hospital or academic health center and ask for the department that cares for patients with sarcoidosis. Some hospitals have a separate sarcoidosis center. In others, the department will vary. For example, in some cases, the department of pulmonary and critical care medicine treats patients with sarcoidosis. In other medical centers, the appropriate department may be internal medicine or rheumatology. The Agency for Healthcare Research and Quality, (AHCPR) part of the US Department of Health and Human Services provides helpful information on choosing a doctor. For more information visit the Links section of this site under 'Finding a Doctor'.</blockquote> http://www.stopsarcoidosis.org/patientresources/findspecialist.htm Gosh, Jeff, I’m so sorry about your past records! I suppose you’ve already asked your parents if they remember any doctors’ names from way back then? If you feel your medical history’s tarnished with a mentioning of “morgellons disease”, and it’s created a roadblock (but if you can talk with ease to your doctor, it shouldn’t be the case), I’d consider resorting to enlisting a parent in this pursuit, to go to a doctor appointment to back up what occurred in 1987. You know, lots of conditions aren’t easy to detect right away, and it requires remaining with one doctor and developing a good doctor/patient relationship. If sarcoidosis involves the wrist, cystic changes and lytic lesions may be present. Of course, I don’t know the details surrounding your wrist, but if it’s relevant, I’d remember the approximate dates of any procedures involving it, and gather copies of all those reports and x-rays.

You probably know all of this, already, but it may interest someone else:

Skin Symptoms of Sarcoidosis

* Various types of bumps, ulcers, or, rarely, flat areas of discolored skin, that appear mostly near your nose, eyes, back, arms, legs, and scalp. They usually itch but aren’t painful. They usually last a long time.

* Painful bumps that usually appear on your ankles and shins and can be warm, tender, red or purple-to-red in color, and slightly raised. This is called erythema nodosum. You may have fever and swollen ankles and joint pain along with the bumps. The bumps often are an early sign of sarcoidosis, but they occur in other diseases too. The
bumps usually go away in weeks to months, even without treatment.

* Disfiguring skin sores that may affect your nose, nasal passages, cheeks, ears, eyelids, and fingers. This is called lupus pernio. The sores tend to be ongoing and can return after treatment is over.

What Are the Signs and Symptoms of Sarcoidosis?

Many people who have sarcoidosis have no symptoms.

Some people have very few symptoms, but others have many.

Symptoms usually depend on which organs the disease affects.

http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_signsandsymptoms.html

If your doctor cannot help you, you can contact the nearest university hospital or academic health center and ask for the department that cares for patients with sarcoidosis. Some hospitals have a separate sarcoidosis center. In others, the department will vary. For example, in some cases, the department of pulmonary and critical care medicine treats patients with sarcoidosis. In other medical centers, the appropriate department may be internal medicine or rheumatology.

The Agency for Healthcare Research and Quality, (AHCPR) part of the US Department of Health and Human Services provides helpful information on choosing a doctor. For more information visit the Links section of this site under ‘Finding a Doctor’.

http://www.stopsarcoidosis.org/patientresources/findspecialist.htm

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By: jeff http://morgellonswatch.com/2006/06/27/the-trouble-with-thrips/comment-page-2/#comment-2272 jeff Wed, 24 Jan 2007 16:08:16 +0000 http://208.109.216.142/2006/06/27/the-trouble-with-thrips/#comment-2272 unfountunatly my entire sarc expiernce was capsulated into a one time 11 days hospitilization...I called the hospital they send all records over 10 years to a place called iron mountain...Iron mountain said they destroy all records over 15 years and do not have my file. I was a 19 year old surfer/motocrosser as soon as I got better I was all fine and dandy with that and never even went for a follow up visit..just lived my happy marry life until 15 years later with morgs hit..come to think of though there has always been something wrong in the background...(tiredness ect,) once I went 2 nights in a row without adequate sleep the next day my hair started falling out in clumps...even since then its been 8 hours every night....15 years worth..healty diet and I was ok...But thanks anyways but no records..I have been thinking lately I need a plan of action..maybe I will seek a sarc doctor outside my insurance..to try for a DX unfountunatly my entire sarc expiernce was capsulated into a one time 11 days hospitilization…I called the hospital they send all records over 10 years to a place called iron mountain…Iron mountain said they destroy all records over 15 years and do not have my file. I was a 19 year old surfer/motocrosser as soon as I got better I was all fine and dandy with that and never even went for a follow up visit..just lived my happy marry life until 15 years later with morgs hit..come to think of though there has always been something wrong in the background…(tiredness ect,) once I went 2 nights in a row without adequate sleep the next day my hair started falling out in clumps…even since then its been 8 hours every night….15 years worth..healty diet and I was ok…But thanks anyways but no records..I have been thinking lately I need a plan of action..maybe I will seek a sarc doctor outside my insurance..to try for a DX

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By: tallcotton http://morgellonswatch.com/2006/06/27/the-trouble-with-thrips/comment-page-2/#comment-2271 tallcotton Wed, 24 Jan 2007 02:55:30 +0000 http://208.109.216.142/2006/06/27/the-trouble-with-thrips/#comment-2271 Hello Jeff, Those places where you have had doctors appointments and where you were hospitalized still have copies of your records. You can get a copy of all of them by writing each facility. Be sure and sign your name on the letter, giving them permission to release them to you. The worse scenario would be having to go there is person. If you do, then go to the records department and tell them you want them. They may charge a fee for their trouble, but it's very important that you get copies. In the future, you should obtain the new pages on each visit, and always keep your copies up to date. You may be right about fibers causing the creepy-crawlies and the itching, but on the other hand, they may be caused by amplified nerve signals associated with the sarcoidosis. Be very careful what kind of chemicals you put into your body. The body's systems can be affected by our genetic makeup, but they can also suffer great damage from chemicals we take in. Jeff, get those records, so you can prove to your doctors that you were diagnosed with sarcoidosis. With that, they might change their opinion on the action that needs to be taken. Good luck. Tall Cotton Hello Jeff,

Those places where you have had doctors appointments and where you were hospitalized still have copies of your records. You can get a copy of all of them by writing each facility. Be sure and sign your name on the letter, giving them permission to release them to you. The worse scenario would be having to go there is person. If you do, then go to the records department and tell them you want them. They may charge a fee for their trouble, but it’s very important that you get copies. In the future, you should obtain the new pages on each visit, and always keep your copies up to date.

You may be right about fibers causing the creepy-crawlies and the itching, but on the other hand, they may be caused by amplified nerve signals associated with the sarcoidosis. Be very careful what kind of chemicals you put into your body. The body’s systems can be affected by our genetic makeup, but they can also suffer great damage from chemicals we take in.

Jeff, get those records, so you can prove to your doctors that you were diagnosed with sarcoidosis. With that, they might change their opinion on the action that needs to be taken. Good luck.

Tall Cotton

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By: Smileykins http://morgellonswatch.com/2006/06/27/the-trouble-with-thrips/comment-page-2/#comment-2269 Smileykins Wed, 24 Jan 2007 00:37:09 +0000 http://208.109.216.142/2006/06/27/the-trouble-with-thrips/#comment-2269 Hello, Jeff! I'd often tried to tell you, on LB, that what you were experiencing was sarcoidosis. How are you, and how is your wrist? I'd seen, how, when you'd tried to logically discuss sarcoidosis, one time, last year, they'd have nothing of it, on LB, and pulled you back into their belief system. Have you gone to the hospital's records' department, where you'd been, back in '87, to pursue obtaining your old records? If not, I would, if I were in your position. Hello, Jeff! I’d often tried to tell you, on LB, that what you were experiencing was sarcoidosis. How are you, and how is your wrist? I’d seen, how, when you’d tried to logically discuss sarcoidosis, one time, last year, they’d have nothing of it, on LB, and pulled you back into their belief system. Have you gone to the hospital’s records’ department, where you’d been, back in ‘87, to pursue obtaining your old records? If not, I would, if I were in your position.

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By: JEFF http://morgellonswatch.com/2006/06/27/the-trouble-with-thrips/comment-page-2/#comment-2270 JEFF Wed, 24 Jan 2007 00:02:54 +0000 http://208.109.216.142/2006/06/27/the-trouble-with-thrips/#comment-2270 after 5 years of this I got this crawling thing figured..Believe me or not..it is a fiber touching a nerve or a lesion reaching the point of complete fester..Kinda like when you have to throw-up..It takes a while to figure this..THe crawling is really just a extension of the itch..the itch is just really a extension of very localized pain.it is the fibers festering just like a sliver or a piece of glass would do...There are no bugs.no parasites...and they poeple that persue this and bring samples in a baggy to the doctor..have screwed the rest of us from a real diagnosis..i curse the very name morgellons.now its on my medical records. They wont even believe me that I was hospitalzed in 1987 for 11 days and received a diagnosis of sarcoidosis..after 100K in testing. I was a kid and didnt keep the records. and they did a few tests last year negative for sarc..end of story..no more tests.Well news folks sarc doesnt go away..there is no cure. .. after 5 years of this I got this crawling thing figured..Believe me or not..it is a fiber touching a nerve or a lesion reaching the point of complete fester..Kinda like when you have to throw-up..It takes a while to figure this..THe crawling is really just a extension of the itch..the itch is just really a extension of very localized pain.it is the fibers festering just like a sliver or a piece of glass would do…There are no bugs.no parasites…and they poeple that persue this and bring samples in a baggy to the doctor..have screwed the rest of us from a real diagnosis..i curse the very name morgellons.now its on my medical records. They wont even believe me that I was hospitalzed in 1987 for 11 days and received a diagnosis of sarcoidosis..after 100K in testing. I was a kid and didnt keep the records. and they did a few tests last year negative for sarc..end of story..no more tests.Well news folks sarc doesnt go away..there is no cure. ..

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By: Smileykins http://morgellonswatch.com/2006/06/27/the-trouble-with-thrips/comment-page-2/#comment-2268 Smileykins Fri, 07 Jul 2006 21:33:16 +0000 http://208.109.216.142/2006/06/27/the-trouble-with-thrips/#comment-2268 Let's talk about bugs & morgellons disease. http://tinyurl.com/nbdq8 Let’s talk about bugs & morgellons disease.

http://tinyurl.com/nbdq8

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By: Smileykins http://morgellonswatch.com/2006/06/27/the-trouble-with-thrips/comment-page-2/#comment-2267 Smileykins Tue, 04 Jul 2006 17:46:50 +0000 http://208.109.216.142/2006/06/27/the-trouble-with-thrips/#comment-2267 This has nothing to do with "morgellons disease", but it's just a little tale I feel compelled to recount... I used to work with a woman, who ran to her doctor anytime anyone else had symptoms. Everyone had to mask illness from her, whether we had a headache, stomachache, you name it. She would leave work, to do this. Although she had no symtoms, she thought her doctor was supposed to run every test in existence, to rule out everything. She was either to receive a clean bill of health, or the truth that she knew, which was that she had some mysterious disease. All I know, is that she hated her doctor and switched a lot. I told her that I would be thrilled if, upon going to my doctor he said that I was okay. I stopped short of telling her that I only go to one when I have symptoms beyond anything I can handle. She was unrealistic, and her expectations from doctors had nothing to do with the practice of medicine. This has nothing to do with “morgellons disease”, but it’s just a little tale I feel compelled to recount…

I used to work with a woman, who ran to her doctor anytime anyone else had symptoms. Everyone had to mask illness from her, whether we had a headache, stomachache, you name it. She would leave work, to do this.

Although she had no symtoms, she thought her doctor was supposed to run every test in existence, to rule out everything. She was either to receive a clean bill of health, or the truth that she knew, which was that she had some mysterious disease.

All I know, is that she hated her doctor and switched a lot. I told her that I would be thrilled if, upon going to my doctor he said that I was okay. I stopped short of telling her that I only go to one when I have symptoms beyond anything I can handle.

She was unrealistic, and her expectations from doctors had nothing to do with the practice of medicine.

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By: Michael http://morgellonswatch.com/2006/06/27/the-trouble-with-thrips/comment-page-2/#comment-2266 Michael Tue, 04 Jul 2006 14:58:40 +0000 http://208.109.216.142/2006/06/27/the-trouble-with-thrips/#comment-2266 Aherah, I don't think it is a hoax - I think Mary Leitao really believes in it. I just think she was mistaken (which should be clear from looking at her photographic "evidence"). I think Morgellons then took on something of a life of its own. People joined the MRF, eventually Ken Cowles joined with his media expertise, and things spread from there. They believe it. They just base their beliefs in short circuited logic, and sometimes delusions. Lots of people are really sick, with real diseases, with real skin problems. They need individualized appropriate treatment. For whatever reason the medical establishment has failed them, so they seek comfort elsewhere. As for what individual people have, I've no idea. All I'm claiming is that there is no evidence that there is a new disease that all these people have, and there is no evidence (available) that the fibers are anything unusual. Aherah, I don’t think it is a hoax – I think Mary Leitao really believes in it. I just think she was mistaken (which should be clear from looking at her photographic “evidence”). I think Morgellons then took on something of a life of its own. People joined the MRF, eventually Ken Cowles joined with his media expertise, and things spread from there. They believe it. They just base their beliefs in short circuited logic, and sometimes delusions.

Lots of people are really sick, with real diseases, with real skin problems. They need individualized appropriate treatment. For whatever reason the medical establishment has failed them, so they seek comfort elsewhere.

As for what individual people have, I’ve no idea. All I’m claiming is that there is no evidence that there is a new disease that all these people have, and there is no evidence (available) that the fibers are anything unusual.

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By: London http://morgellonswatch.com/2006/06/27/the-trouble-with-thrips/comment-page-2/#comment-2265 London Tue, 04 Jul 2006 14:23:39 +0000 http://208.109.216.142/2006/06/27/the-trouble-with-thrips/#comment-2265 can anyone tell me if this is a real word....deroll? If so, I'd like to deroll from the MRF? I'm going to be a unitarian with smileykins. can anyone tell me if this is a real word….deroll? If so, I’d like to deroll
from the MRF? I’m going to be a unitarian with smileykins.

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