I know that I am very sick and getting sicker. I am a 40 year old married female with an 8 year old daughter and a 10 year old dog. Doctors have tested me upside down and inside out. They found a normal amount of oral yeast, so I got Diflucan for 14 days, and an elevated Rhuematoid Factor to which the follow up said I had an irregular possitive test result and that my autoimmune system was maybe responding to something slight at the time.

With Kaiser, I was feeling ‘put off’ after having 50+ plus, 5 minute bullshit appointments in which the Dr. then shuffles me to another department. Derm., Internal Adult Med., Immune, Infectious Disease Dept., OBGYN for ‘my’ change of life at 40 (?) disease, yet I am still having regular periods and I have always been a bitch. That was 2 years ago, and the appointment circle started again. Back to Derm and main Doctor or ‘Care Provider’ (?) ok, to start all over with the shuffle.

My sickness was and still is up to me, all I can say is that when I type in my symptoms, I get a thousand million diseases.. . . . BUT. . . . .when I type in my symptoms, one by one, adding each one after each search on Google’s Search within results, it comes up with Morgellons.

With that information and the new article about the CDC giving Kaiser $$$$ I asked every Doctor, 8 total, from Feb. 08 on, “Is this it?” NONE, NOT ONE of the Doctors even heard of Morgellons as of May 2008 at Kaiser in Martinez, CO CO County, where Kaiser is heading up the research for Morgellons paid for by the CDC.

Then I began going to the Admin. office after every visit asking, “If they, the Dr.’s don’t know or have answers can you please direct me to someone that does?” So, I just walk in circles around the parking lot because I get better answers and it’s less frustrating.

In June, Kaiser sent me a packet by mail responding to my letters and request to go to UCSF for answers. Kaiser’s packet explained QUOTE, “That the Chair of Chiefs reviewed your medical care related to your condition and she indicates that you have been diagnosed with Morgellon’s disease, which has symptomology identical to delusions of parasistosis.” Bla, bla,bla. . . Request denied, if you choose to seek medical attention or advise from UCSF you do so at your own cost.

The next day, I get another packet. Only this time it had signatures that I could read and names for the Chiefs and the Chairs and the tables too. It was a very nicely written kiss ass letter that included a purchase order for me to go to UCSF and have a private Doctor paid for by Kaiser.

Yeah, if you got excited you must not know Kaiser. I knew it was a jerk job and that they are stalling me. This letter came 4 weeks ago. I faxed everything they requested the same day. Called to confirm they had it. Still no appointment as of yet, July 13th.

KAISER Doctor’s are following someone’s proto-call-memo, because they all say exactly the same thing, nothing and “I don’t know that isn’t really my department.”

CO CO COUNTY is the hot spot for Morgellons. We are not all tweeks and the ones that are have been for a lot longer then they have had this disease.

Is it that someone is trying to avoid a wide spread panic via the internet. People must be aware that one third of Co Co County’s tax payers have Morgellons and they all aren’t kissing cousins.

* It has to be spreading via: air, food, or water. *

Oh, and I am delusional. I sometimes look like Pam Anderson and dance around naked in The San Jose Shark’s locker room. So fine, I am crazy, but I don’t do bugs and pain in my delusions. Well, not my pain.

If I am delusional, psychotic, mental, skitz-so then I am sick, so please help me before I go postal and take out several of the mean judgemental types.

http://patients.uptodate.com/topic.asp?file=psychiat/12488&title=Hyperthyroidism

This movement has blown a wind of change. Now, what I wanted to post about the latest on CFS.

I’d missed this, a couple of weeks ago.

Press Release

For Immediate Release:
November 3, 2006

CDC Launches “Get Informed. Get Diagnosed. Get Help.” Campaign

Campaign promotes greater awareness of Chronic Fatigue Syndrome

http://www.cdc.gov/od/oc/media/pressrel/r061103.htm

Here is the telebriefing transcript…

THE CHRONIC FATIGUE AND IMMUNE DYSFUNCTION SYNDROME ASSOCIATION OF AMERICA AND THE CENTERS FOR DISEASE CONTROL AND PREVENTION PRESS CONFERENCE AT THE NATIONAL PRESS CLUB TO LAUNCH A CHRONIC FATIGUE SYNDROME AWARENESS CAMPAIGN

http://www.cdc.gov/od/oc/media/transcripts/t061103.htm?id=36410

More than 1 million Americans suffer from Chronic Fatigue Syndrome (CFS). Information is available to help identify treatment strategies.

http://www.cdc.gov/cfs/

Would I be wrong in saying that there is a certain “stigma” attached to DOP amongst the medical profession??

And that this stigma of DOP is that it is purely delusional thinking and nothing more?? (ie. no underlying physical disease).

And/Or there are a lot of doctors that really don’t fully understand DOP?

After my experience I will answer “Yes” to the above 3 questions, but let me know if I am incorrect please.

You will remember I have told you many times before (but I like to repeat myself also!), my psychiatrist kept saying “you have something physically wrong with you” – but I was piggy in the middle and the other doctors wouldn’t listen to him (sorry correction: they wouldn’t communicate with him on my behalf), what is he meant to do, hit them over the head?! (don’t worry he doesn’t carry a handbag!).

I do know there are a lot of people out there (including other doctors of medicine) that don’t have a good word to say about Psychiatrists,(personally I think they are either threatened or jealous). Well I guess I was lucky, I’ve got one of the best Psychiatrists (or had). I haven’t seen him for a while, and given the amount of crap and abuse I have thrown at him, I don’t blame him if he doesn’t speak to me again. Look I’m sure he will (I hope) – I am just so embarrased and ashamed, after all he is the only doctor who really stuck his neck out for me and my family. Also it is not his fault if the psychiatric medication doesn’t work for me, all we could do was try, which we did. Anyway I do feel so much better off the psych. meds.

If you were to ask my parents about my situation they would tell you I went down hill about 9 years ago after being put on antidepressants by a general practitioner. I had been tried on several different antidepressants due to severe side effects every time.

Personally I feel antidepressants should only be prescribed by a psychiatrist, but I know this is not a perfect world.

If a general practitioner/family doctor etc. is going to continue prescribing psychiatric medication to patients things need to change.

By that I mean – don’t hand them out like lollies, especially if no routine tests or physical examination have been done to establish whether there is a physical cause/illness that has brought about the onset of depression.

I realise I am a little “fish” in this big wide world of medicine, just another “patient” having a whinge, but without the patient where would you doctors be??

I know very little about DOP, but have had a crash course in the past two months.

A clear cut DOP is delusional, they are also people who can not be trusted, because they do not trust either.

Hey, now. People with DOP are delusional, but they are NOT all like that, because it manifests in people for a variety of different reasons!!!

*With Primary DOP, it’s the sole psychological disturbance in a person who otherwise behaves normally and can reason in a rational manner. Based on what people say, on line, and in media reports, that would probably exclude quite a few “morgellons disease” believers, aside for the fact that they’re not rational in thinking that they have “morgellons disease”, because there is no such thing, and they’ve preferred to swap DOP out in favor of it.

*Then, there is Secondary DOP, which could cover your opinion concerning people not being able to trust, or to be trusted, because this form of DOP is due to an underlying psychiatric illness, such as schizophrenia, paranoia, depression, anxiety disorders, and obsessional states. This seems to prevail, on line, in many morgie people. Look at all the displays of anger, fear, and beliefs in conspiracies.
______________________________________

So now, please refer to the MRF case defintion for “morgellons disease”.

Under the first section:

5. Behavioral effects are common in many patients. Many have been or will be diagnosed as Attention Deficit Disorder, Attention Deficit Hyperactivity Disorder, Bipolar Disorder, or Obsessive-Compulsive Disorder. A minority do not show this pattern. Almost all, if previously seen by well-read physicians without prolonged observation, will have been labeled as “Delusional Parasitosis”. Temporal relationship to skin lesion onset is not known.

Under the second section:

4. Neuropsychiatric symptoms and signs, ranging from mood or personality changes to diagnosed disorders including Attention Deficit Disorder, Bipolar Disorder, Obsessive Compulsive Disorder and occasionally frank psychosis. Temporal relationship to skin lesion onset is not known.

____________________

And last, there is Secondary Organic Delusional Parasitosis, resulting from an underlying physical illness, of which there can be many That includes certain nutritional deficiencies, prescription drug side effects, illicit drugs and/or alcohol abuse, and quite a lot of ill states of physical health. Now, consider all the “previously diagnosed by a physician conditions” that people report as part of the registration process for “morgellons disease”.

The case defintion for “morgellons disease” covers all the reasons for DOP. When I’d first heard of it and couldn’t get through to anyone how I’d gotten over their “morgellons disease” (of course, I couldn’t mention it was DOP, after I’d learned what it was), little did I know, at the time, that it isn’t that simply solved for many people. If it is due to mental dysfunctionings, mental health treatment is necessary. But, if people are not taking care of their underlying physical health problems, they will not get over it, either. When people need to obsess so much over getting other people to believe them, that it wrecks their relationships with their loved ones, hell-bells, that is some serious shit!!! That, to me, is a mental-related condition of the worst type, and sad as hell to read about.

A clear cut DOP is delusional, they are also people who can not be trusted, because they do not trust either.

I found the Neurocutaneous Syndrome Article during my research of Morgellons. It didn’t help me to get the doctor to listen though. He just asked me how to spell collembola and springtail and then punched it into his computer. End of consultation. Obviously he decided across the desk that I was DOP, since I had been diagnosed with BDD and was on Lexapro at the time. Maybe if he had of taken a look hey. But he just told me that the stuff coming out of the soles of my feet and hands was dirt. Funny that I never noticed this ‘dirt’ before.

My friend who I live with phoned that Dr Amin in the USA and emailed him also, asking for his advise and help with my current situation. Yet again we are still waiting and this was 2 years ago. Even I phoned his number, but was too afraid to leave a message.

Once again NCS was another distraction to discredit the existence of Morgellons Disease. Besides – antibiotic therapy does not cure Morgellons Disease.