Apr 08 2007
Brandi Koch
To: Smileykins… & any other doubter who spends half their life on “MORG WATCH”
Hello… this is Brandi Koch. I have resisted the urge to read over comments on this site for too long… my curiosity finally got the best of me.
I noticed that someone calling themselves “Robert” threw a challenge out there for anyone to “go stay with the Koch’s for a couple of weeks”… you claimed to be un-phased by the idea/challenge, claiming that you would be more than happy to do so & wondered if he could “arrange a visit”.
Well, he can’t… but, I can. I would be more than happy to welcome you into my home for a week or two… if you think that this is a joke–think again.
I can assure you that if you were to spend so much as 2 days within my home you would not just see the amount of “normalcy” that I have strived to maintain for the sake of my children & their birthright to a blissful, carefree childhood… but, you would also get a chance to see firsthand this matter that emerges from my pores usually after a hot shower, workout, or any other activity which would trigger my pores to “open”.
You would also see that not only do I not pick my skin, but that I have very few lesions. Believe it or not, this “matter” comes out of unbroken skin. Now, I suppose that may sound hard to believe to some… but, if you really think about it–there are many different types of matter which is excreted from the skin from sweat to the bacteria which causes acne (whiteheads, blackheads).
Admittedly, these symptoms sound completely insane and downright unfathomable. You are right-seeing IS believing. I have had at least 10 close family and friends witness this horrific phenomenon for themselves. They too, were understandably skeptical before seeing it with their own eyes. They are now terrified and extremely involved in helping myself and my family figure out how and why this is happening.
To have people devote such a great amount of time and effort trying to debunk an illness that they really know nothing about is the epitome of insult to injury. I am weak, tired, & plain old SICK. I do not have the time or the desire to defend my sanity. I know what I know, & I have thankfully received validity from the people that matter most to me in my life. I do however, realize that I have an obligation to prove this exist to anyone adamantly doubting it’s existence for the sake of research and help for all of those suffering.
Now, I do believe that SOME of the people claiming to have “this”, probably do not. Of course there will be the few that will jump on the already existing, so called “crazy train”. It’s inevitable. Just as it’s inevitable that there will be good and bad persons within any race or religion that exists. The point is… this is real. I wish it weren’t. I wish that I were simply “nuts”, but I’m not.
I have also had the chance to show my symptoms to doctors. Just because you are not hearing about it, doesn’t mean it’s not happening. SOME doctors are finally actually LOOKING & listening.
Anyway, if you choose… you may pay me a visit. Of course, due to the fact that I do not know you, I would have security measures taken to ensure the safety of myself and my family & would welcome you to do the same.
Now, what will you do if you are disproved? Would you turn your time and efforts into helping those suffering VS mocking and scoffing? I really cannot understand why you waste so much of your time trying to convince everyone that this is not real. are you trying to convince others, or maybe yourself? It seems like there are just 3 or 4 of you that devote hours to debating an issue that shouldn’t really even concern you if you are healthy and believe this illness is one of a delusional nature. Why the concern, or is it really a “LACK of concern” & just an entertaining pastime of yours to try and discredit sick people.
The truth is the truth is the truth. It WILL come out. I know that you will opt not to listen to me… but, I can assure you–this IS real. I wish it weren’t.
So, take it for what it’s worth. You want proof? I have it. Come on down. I’ll even pay for your airline ticket & pick you up at the airport. I can promise you that you will be treated with 10 times the respect that you have given those of us who are suffering in such a horrible manner. Hey, bring your 2-3 friends… like I said-I will have a body/security guard here to make sure it’s a peaceful visit. I don’t have the energy to fight/argue with anyone. I just want help before this gets “up close and personal” with those of you who aren’t suffering & before my kids become even more ill. I wouldn’t wish “this” on my worst enemy.
Lastly, if you would like, you may post my email as long as you leave my email address out and print IN FULL the ENTIRE letter. I’m sure this would cause quite a “stir” within the “MORG WATCH” community. I don’t want or need the attention-I need a cure.
Warm Regards,
Brandi Koch
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Brandi, you addressed the above to Smileykins, but I would like respond to it, as you raise good points.
I’m not arguing that you are not ill. I have no idea what is wrong with you. If you have symptoms, then there are obviously causes of those symptoms.
What I am arguing is simply that there is no evidence that Morgellons exists as a distinct disease. There is no evidence that you have the same “thing” as the other people who believe in Morgellons. I started this site a year ago, just as a way to recording my thoughts about the claims that the MRF were promoting. From the very start I’ve had a little box in the top left corner which says:
That’s all I’m saying. This does not imply that any one individual is not ill, nor does it imply that physical illness is not a component of the condition that they personally have chosen to call Morgellons.
The intent of your letter is to have someone come and visit you, so they can see for themselves that “Morgellons is real”. This (and variants) is a common suggestion from Morgellons believers, so common I added it to the FAQ:
That’s basically the answer I’d give you. I (Michael) would not visit you because it would prove nothing. At best it would prove you have a fatiguing sickness, and have some skin condition. That we already know. I’m not a medical expert, why would I be able to see “it is real” when showing your condition to several doctors has not accomplished this? Why would seeing your specific condition mean that the MRF’s position is correct? What do dermatologists say about your skin problems?
I’m sorry you are ill, and I wish you all the best. I don’t think that there is a common condition called Morgellons, and I think it’s more likely you have a set of conditions that are unique to you, which symptomatically fall under the broad case definition of “Morgellons”. I understand it must be frustrating to have something that your doctors seem unable to effectively treat. But I feel your best route is to work with appropriate medical professionals on symptomatic relief and a search for the cause of your symptom. At least do not cut out the mainstream medical professionals. There have been, through all of recorded history, doctors who exploit their patients fears for their own personal gain by diagnosing on insufficient evidence, and charging heavily for unproven treatments that may do more harm than good. The doctors who “listen to you” may not have your best interests at heart. You can afford to seek a range of highly qualified opinions, and opinions upon those opinions.
Good luck.
Brandi,
While I recognize and sympathize that you are suffering, you still provide no proof for from what you are suffering.
I’ve suggested this on so many occasions before, when people describe tar or bugs coming out of their skin: get a video camera. If you own a digital camera, it probably does short videos. I know my cheap one does.
Dear Brandi,
Thank you for your in-depth, honest reply to the Smileykin regarding the horrific truth of the wierd symptoms of Morgellons disease.
I have been suffering with chronic Morgellons symptoms for the past 10 months. I have lesions that suddenly appear with white thread-like fibers sticking out of them. The lesions take a long time to heal and they leave ugly scars. I have white thread-like fibers growing out of my face, cheeks, jawline, forehead and scalp. Majority of my hair on my head has broken off, I have big bald spots near both my ears. I don’t look like the woman I was a year ago before this all started. I feel crawling and moving sensation on my scalp every night. It’s horrific. I just started using Demodex Solutions soaps and lotions - I’m hoping it helps.
Unfortunately, thru all of this. My two sisters and brother refuse to acknowledge that what I am dealing with is serious and real. I have had to defend myself to them about my being sick with these symptoms. They will not respect what I’m saying and they told me to please stay on anti-anxiety medication. I am of sound mind. I have worked in the title insurance field for 20 years and most recently I was employed as a Legal Assistant at an international mortgage company. I am a single mom and I have been supporting myself on my own since my divorce in 2001. How dare my family write me off as “crazy” and refuse to believe what I’m dealing with. My symptoms scare them immensly so they have made a self-centered decision to be angry with me and not acknowledge that what I am experiencing is real. It saddens me very much to be treated this way when I expected to receive compassion and understanding from the family I thought loved me.
I just wanted to say thank you for taking the time to write such a thorough and direct letter to Smileykin. I heard this saying: “Evil prevails when good people do nothing.” Thank goodness there are people like you who speak out.
Sincerely,
Elena Bianco
Warminster, PA
e-mail: eandjarbianco@aol.com
Hello, Michael… thanks for taking the time to reply. I opted to go ahead and post this particular email because I didn’t want anyone getting the wrong impression & thinking that my offer to see for one’s self was the typical, “come on down and get sick—then laugh” comment. I would NEVER want anyone to become ill no matter how wrong or annoying they had been :).
Look, you are wrong about my doctors not seeing this… they have. When I did the KTVU (San Fran) interview they were extremely deceptive with their editing. They said that we had been to many doctors and been called delusional. Not only is that not true-we never said that to anyone.
Dr. Neelum Uppal was the doctor in the interview who claimed that we had seen “other docs and been told that we were delusional”. She then stated that she had “seen it” & “sent it off to the labs”… not so. I have never been diagnosed with DOP. She could have been talking about another patient or family… creative editing is OH SO deceptive. NOW, Dr Uppal HAS witnessed this matter, but we have not seen a lot of doctors who previously diagnosed us as being delusional.
Also, I hope that you know that MY OFFER is not a bitter dare to come over and sleep in bed with me, or let me go out of my way to spread my germs with the angry intention of WANTING to infect someone. My offer was to make a point.
The point is, you could witness this with your own two eyes as MANY doctors of mine HAVE. Then, perhaps you would reconsider spending so much time trying to convince people that this is NOT real.
I know you say that maybe I have something… but, not Morgellons. I have to admit, I hate the name “Morgellons”. It now has such a horrific stigma attached to it. The only thing that makes one think that “Morgellons” could be the only possible explanation is the disgusting “funk” that surfaces from one’s pores. I mean, it’s quite unique. BELIEVE me, I have searched high and low for any other possible explanation. The matter that is excreted is definitely the common denominator in this affliction. it’s just so bizarre and unmistakable.
I have opted not to refer to this as hairs, fibers, etc. I will let the doctors figure out just what this is. When people say “fibers” it screams SYNTHETIC. I simply refer to it as “matter”, afterall–no one knows what the heck it is. However, I will say that I understand why people do refer to it as looking like fibers.
WHO KNOWS! This could be so many different things. After all, we are living in a world of toxins which we not only breathe in-but we also consume. look at hydroginated oil… what is it? ONE molecule away from being plastic & an ingredient which is in almost everything we eat. We have also been the “lucky” guinea pig generations… we have been fed preservatives since birth. Who knows? Just trying to come up with SOME sort of rational explanation to a seemingly irrational sounding affliction.
“M”, I wish that you would reconsider. You just don’t know until you have the chance to see it and THEN “see nothing”. Until then, how can you be so adamant that you are right. I do believe that you read a lot of nutty sounding comments from people calling themselves “morgies”. SO many of them do sound insane… & unfortunately, so many of them probably have gone insane due to the horrific and debilitating nature of this “syndrome”.
Again, my offer was not in the hopes of merely making some BS point that screams, “please, come on over and let me get you sick”. I told you that I would never wish this on anyone. You seem highly educated and intelligent judging by your writings and grammar… what else do you think could make me have some sort of matter surfacing time and time again?
I have had doctors witness this… I told you that in my last email. I just thought that you all wanted to settle this once and for all. I was only offering a chance for you to see it with your own eyes so that you might have a different take on it.
Also, I would love to tell you my story of how I heard about this kooky sounding illness… you would be surprised. You know how you all seem to think that the Internet is fueling this fire? Well, I believe that the Internet has actually hurt our credibility. I believe that if we DID NOT have the Internet and there were so many people reporting such bizarre symptoms to their docs without having access to computers, surely it would be taking more seriously.
I mean, eventually doctors would meet up with one another at conferences and other “meeting of the minds”… if they began to compare notes… notes from different patients all over the country that who had symptoms as similar as the ones we are all describing, the doctors would be dumfounded. If that were the case, they wouldn’t be able to explain it as some mere “Internet crazy train”–right? think about it.
I will email you my personal story on how I stumbled on to “MORGELLONS” at a later date. It definitely discredits the Internet theory.
You know, “M”… I don’t want to argue or be bashed and more humiliated than I already am. Believe me, if I didn’t think that coming forward to speak my TRUTH and to be a voice for those who are sadly suffering in silence was my only choice, I would have gladly kept my mouth shut and ignored it all. I mean really–it’s not exactly the type of thing you want to go around bragging about. I’m disgusted with myself. It is beyond humiliating. I knew it was the hardest & most embarrassing thing I have ever had to do-but, the RIGHT thing to do.
I don’t know… I’m really scared. I just wish you would not make it so hard for us. Imagine… it’s so grossly horrific and unbelievable that you can’t even believe it exist. Imagine having it and KNOWING it exist. I’m so scared. Sane, but scared.
I will email you more later. Please, don’t go out of your way to humiliate me. One day you’ll understand. I promise you… one day you will feel terrible if you continue to be so ruthless in your dealings with these people who ARE sick. You don’t seem like a horrible person, so why? Why is this so important to you? You should know all the facts if you are going to be an “activist” of sorts.
Again–I have to reiterate one last time that my offer was NOT one of malicious intent. I just want you all to know the truth.
I will email you later. I’m exhausted and have to get some sleep. Thanks again for emailing me back so promptly. I don’t get it. You seem like an okay guy. Again-if you want to post this–go for it. Just know that you are not dealing with some wacky chic that thinks she has “bugs crawling on her”. I have never even had that sensation-ever. Try and be compassionate. To me and every other person who is so scared and so sick. Take care, “M”.
Warmest Regards,
Brandi
Sarah… I actually have video taped this. I had my girlfriend film while I showered in a bikini and got out to dry off a little and film this insane sounding “freak show”.
Actually, my one friend film while her sister pointed out the different fibers emerging from my skin. YES… I did just call them fibers. Sometimes, that’s what they look like. I can understand why it would be so hard to believe because such different types of matter are often talked about. I have different looking sorts of matter that surface just from ME… so, I get how completely INSANE this all sounds!!
This friend of mine is… well-famous. She is going to be helping me make a documentary to show the world what I have to deal with. Then of course, if I opt to put myself and family name on the line, I would do it in a business like manner so that I could turn around and make money to help fund research and raise awareness.
I have to be smart in how I go about making this film and who I let see it for many reasons. I have had business meetings with lawyers and others who will be a part of making this happen.
You see, I KNOW this is real… I don’t have to prove it. I want to take part of this film for all the right reasons. We need funding & almost equally important-we need validity.
Actually, you’d be surprised how many doctors have already begun to study this & take it VERY seriously.
SO, Sarah! Give it a few more months. Dare I say,”great minds think alike”! HEHE…
OH!! Sarah… ONE more thing. I do NOT have tar or bugs coming out of my skin. I do not think that this suff “is alive”! I believe that some of the suffering lose it because of fear and begin to give themselves the “hebie jeebies”.
Kind of like when you watch “Arachnophobia” and you get the “creepy crawly” feeling… perhaps that’s not the best analogy… but, I beleive that because of the REAL symptoms-people get freaked out and start to think it’s “moving” or “crawling out of their eyes”!
Also, certain types of systemic disorders can cause the creepy crawly type sensations. Hence, all the “restless leg syndrome” commercials that have recently come out. You know, there could be some sort of rational explanation for all of this.
I’m sure all of you frequently visiting this site have already talked about the fact that fiberglass curtains were causing people to have similar symptoms back when they first came out and the people who were exhibiting the symptoms similar to the ones I have were written off as nut jobs. They figuredit out in time, but for awhile they were told they were kooky as well.
Well, I will be leaving replies from time to time-so I will talk to you later!! I hope that you all treat those who seem to have lost it with a lot of compassion. These poor people are just so damn scared. Some have lost it. I’m sure that I will catch a lot of crap for saying that-but, it’s true. This disease can MAKE you insane—IF you let it.
I just refuse to obssess over it… you can’t. You have to step back and realize that it could always be worse. I mean there are many disease out there that are untreatable and way more debilitating than “this”. I think we should all be grateful that we can walk, talk, & have not been told that we’re terminal. I figure, I MIGHT have to learn to live with this… so, I am not going to sit around feeling sorry for myself. I WILL try to get the much needed help… but, while doing so–I’m going to live. For my kid’s sake and my own. It’s out of my hands to a certain degree.
Love & Peace to all,
Brandi
Dear Brandy:
I’m real sorry you’re ill, and that the things you’ve spoken of are such are a bother to you. Also, aside from that, I’ve reiterated, many times, that viewing this blog is not good for patients who are unyielding in their belief that they have something they refer to as “morgellons disease”.
You’ve misunderstood what I’d said, last summer, in the topic entitled, “Morgellons On Television”.
Comment #8 Robert said, in closing:
July 29th, 2006 at 3:48 pm
And, I had responded…
Comment# 22 Smileykins Says:
July 29th, 2006 at 7:40 pm
Practice “peace and love”, Brandy, and the AMA.
SORRY!!!! Last post… this questions is for Sarah. I read the wacked out story that has been written about you on the NMO site. They get a little “fired up” if you don’t agree with them on EVERYTHING.
I wanted to ask you what you meant in one of your letters to Greg Smith about having a herniated navel or lupus. Do you feel that these symptoms mock that of the above mentioned afflictions? Just wondering.
I have often thought that I might have Lupus… mostly due to doctors mentioning that it might be a possibility. Nothing was ever diagnosed, but… it made me wonder.
My mind is wide open here. I know there has to be some sort of rational explanation for all of this. I would appreciate anyone and everyone’s comments and advice. I am not so arrogant that I don’t want to listen to any educated person who could help me out here. I AM sick… I need help figuring out why. PLEASE-ANYONE… thanks!
I’m sorry, I didn’t mean to ignore you, Ellen. I’m sorry you’re ill, too. I don’t know you, either. Can you identify what you think that I’ve done to you? Thank you.
Smiley… say what you mean and mean what you say… interesting. So? You were delusional at one point in your life? What did you see? I find that extremely interesting.
I also find it interesting that you feel the need to be snide inspite of my un-offensive intentions.
SO… if this site is not “good for those who believe Morgellons exist”-who are you REALLY TRYING TO HELP? You claim you care and wish to “help people”…
I think that you were called out and don’t want to know the truth… it’s a flight away. You want proof? OR, DO YOU?
Also-my name is with and “I” not a “Y”… so, how were you once delusional again?
This isn’t a “morgellons disease” support forum, and patients who believe they have “morgellons disease” are not my intended audience. If you want to know my opinions, and the state of my health, you may satisfy your curiosity by clicking onto the name, “Smileykins”, or “Tall Cotton”, and feel free to visit the comments’ section, as well.
Brandi,
If you would read this blog you would know that it is not for the Morgellons believer. Our purpose is to keep new people from being suck in to the insane world of Morgellons. You may be married to a baseball player but your opinions are no better than those of any other Morgie. I don’t know why you you would know if you had mental problems. You are such a bag of wind I couldn’t near finish reading your posts. No one said that you weren’t physically sick and we all know that it would be stupid to visit someone that could have anything wrong with them from AIDS to Syphillis. Smilykins , and the rest of us know that you don’t have Morgellons. We don’t fear Morgellons. But like I said you could have something else. HAHAHAHHA
Tall Cotton
Smileykins–
I am not asking for your support in any way shape or form… so, who IS your “intended audience”?
Are you really that caught up in this disease that you opt to try and “draw an AUDIENCE”? HHHMMMM… I suppose you could do that with your past. I mean, I would LOVE to hear about your delusions. Wow! That’s got to be a humbling experience! Seeing things that aren’t really there. WEIRD-but, INTERESTING!
I bet that was scary. I wouldn’t know… so,I was just curious as to what it must have been like to “see things” that weren’t really there. I’m guessing… drugs, stress, a genetic component..? DO tell.
SO, the audience you speak of? What exactly do you look for in an audience ms. “smiley/sad” face. Isn’t that a tad bit childish?
Then again, some people can express themselves with their writings and linguistic capabilities… & then there are those “former nut jobs” that probably SHOULD use “smiley face icons” to express emotion. No offense. I suppose we should all just be thrilled that you are able to type at all. You never know when the keys might start turning into little smiley icons!!
Although, perhaps that would help you out a little. Now I see why you spend so much time with all 2-3 of your friends trying to convince people that everyone else is just as nutty as you were/are. Does misery love company?
Oh… I’m so sorry. I am being SO insensitive. You know-you aren’t the audience I was “looking for” either. I prefer sane people that have lives beyond a keyboard.
You see, I was trying to find out if any of you “so called intelligent” debunkers had any insight into what else this COULD be. I have an open thirsty mind & you… well, I guess I can’t hold it against you that you haven’t quite flown out of the cuckoo’s nest just yet.
Perhaps this is your “therapy”? Try to prove that your sane and everyone else-is not? Well, as someone who does care… I should let you know-it’s just not working there, “smiley”.
But hey! Keep on smiling… you’ll get there sooner or later. Hopefully, sooner rather than later.
LOVE, PEACE, AND OF COURSE—LOTS & LOTS OF SMILEY FACES, “SMILEYKINS”! Such a clever name!!! Keep on smiling!!!!!!!!!!!!!!! XOXO!
Crap is supposed to come out of people’s skin. That’s what bathing is for. There won’t be as much if people will bathe regularly. They aren’t supposed to be obsessing about it.
TC
Tall cotton–
I’m so sorry if I can type faster than you think, type, or read… yes, I have LOTS to say.
SO, considering that I didn’t even BRING UP the fact that I was married to a BB player… was that YOUR little insecurities coming to light?
I actually welcomed you all into my home, so you have some nerve claiming that I think I am better than anyone else. If you are half as educated as you pretend to be… you would know that even if I DID have Syphillis or “AIDS”, it’s not something that is transmitted through casual contact therefore you would not be putting yourself at any risk whatsoever. Unless… well, unless you are into the girl on girl thing? Wait, are you a boy?
Anyway, I do believe that you seem a tad bit threatened by my “long winded” posts. I mean, they DID make a lot of sense, & you wouldn’t want anyone to find out how REAL this really is. Threatened? You sound VERY threatened.
You all need to get a life–& quickly. You sound ridiculous and you consistently contradict yourselves. I could prove it if you’d like? I read & re-read many of YOUR LONG winded posts. I am beginning to think that YOU and “smiley-whatever” have some serious issues.
You still haven’t mentioned WHY you spend SO much time on this. I mean, the one thing that we all need more of, is time. Why not just go on your merry little way and pray that you don’t fall back into your once upon a time delusional state? You don’t get time back.
Again-the truth is the truth is the thruth… it always does prevail.
SO! WIth all I just said about time… I’m out! Your site is a waste of mine! You definitely are anything but threatening. You have all of 3-5 regulars? Go get em!!! You are definitely making the world a better place- I can see that. SARCASIM FLAG!
Oh-for the record. I AM better than you. NOT because of who or what I have… but, because I actually care about people. I am definitely not the type of person to comment about someone having AIDS & then laugh. Careful-I might own the McDonalds you work at one day.
“TC”
“crap” is to be flushed… someone should have flushed you months ago.
What an embarrassment.
I wasn’t laughing at AIDS, or people with it. I was laughing at you, Brandi. You’re a nutcase.
Tall Cotton
Well Brandi, I too have offered to have Dan Rutz and any other loud mouth derm doc to stay at my house. I even offered to make them a nice meal…. I wouldnt be able to pay for the airfare now that my husband has died from this and we no longer have the good income that we WORKED hard for. It wouldnt matter how many videos or photos you show these insensitive people they will never understand all that we have been thru. I also strive to keep laughter part of our daily lives and do as many “normal” things as long as we have the energy to do so. There are many days when they dont so we just deal with that as it comes.
My kids are not covered in sores, the skin happened to be the last common denomanator. One could be covered with hives and the other will have red lines appear out of nowhere. We Laugh. They all have thinning hair and scratch their heads but I pretend not to see. This stuff is to scarey to see. Just like the comments that are usually written on here.
You ROCK Brandi,
Anne
And the fact that you are a nutcase is the best reason of all for not wanting to come into your home.
TC
Please try to be civil folks, harping is not helping.
And no “she’s crazy” is not a fact - it’s an assumptions and a simplification based on scant evidence, much like “Morgellons”. What are the facts here? And by facts, I mean things like numbers.
Anne Dill,
If someone were invited into your home and caught whatever you have, as a result, it wouldn’t prove anything. It might mean that you have “Something” that is contagious, then again, it might not. But there’s still no reason to believe that you, or anyone else, has Morgellons.
We know that your husband died of ALS. Isn’t that what’s on his death certificate? I wouldn’t mention it, but you brought it up, and like all Morgies, you blame everything on Morgellons. That’s pretty silly, despite the fact that Morgellons doesn’t exist.
This is about what you all may or may not have gone through. It’s about Morgie mothers and fathers abusing their children. It’s also about spousal abuse, and the abuse of the people that morgies recuit into its crazy cult. People need to quit accusing us of not having compassion. We aren’t the ones that are destroying people’s lives. Morgies and quack doctors are.
Tall Cotton
Michael,
I think that she’s shown us plenty of evidence that she isn’t playing with a full deck.
Tall Cotton
Who here claims to have a full deck?
Sure it’s easy to characterize people, slot them away. And it may well be that your impressions are somewhat reasonable. But it’s not helpful to insult or demean people.
I set this blog up initially for some skeptical notes of my own, and then kept it for catalyzing rational discussion, and as a resource for other people looking at similar things. Of course, people being people, things get nasty in the comments sections. I would prefer it otherwise, but my options are limited. Hence I simply ask you kindly to be polite, which I feel is more productive for everyone concerned, on all sides of the discussion.
With all due respect, I think Mrs. Koch has shown a very good description of what “morgellons disease” is. For her, it’s internal and external wastes that come out of, and off of, her skin. This happens when she perspires, and when she bathes. She also feels ill, and has been told by her family that she is.
Concerning the wastes coming from her skin, she remarked, “Admittedly, these symptoms sound completely insane and downright unfathomable. You are right-seeing IS believing.”
Like others who believe they have “morgellons disease” she is failing to grasp, through no fault of her own, that the delusion is the incorrect thought about what they’re seeing, and feeling — it is not that there isn’t anything there. They misinterpret sensations, and debris, and have been encouraged to continue along their paths. The belief in “morgellons disease” appears to have dissuaded her from pursuing investigation into lupus, upon the suspicions of several doctors.
Without question, “morgellons disease” is bad for the people who believe they have it.
Isn’t it amazing how Liz made a new thread to tell her fellow Morgies what was being said about about them on this blog, then she, and others, proceeded to talk about us. The difference is that everything we said about them is true, and most of what they said about us is lies.
We’re accused of reading their forum as if we are spies, yet they read this blog, and to them, that’s okay. Most Morgies are hypocrites. And most of them are liars.
I won’t say that they aren’t compassionate toward “some people”, but it’s only toward their own. They’re mean as hell to people that dont believe their bullshit.
Some of them even abuse their spouses and children. And anytime they welcome a new member it is abuse. They even brag about it on their forums. When they teach their children that their sufferings are because of Morgellons and instill fear in their hearts over something that does not exist, it’s child abuse, whether or not they’re too ignorant to realize it.
I’ve told them the truth, up front and bold. I’ve also snuck up on them with the truth. I’ve spoon fed it to them, and I’ve slapped them in the face with it. Ive tried to humiliate them by showing them their insanity, but they’re unshakable in their error.
One time I thought I had Morgellons, but you can’t say I havn’t until you change that ridiculous case definition, everybody has Morgellons, everybody in the whole world, even though Morgellons is a lie.
I’m telling the world the truth of Morgellons. Newbies don’t go near their cults. It will suck you in and destroy you. Now those are the facts. Like it or not.
Tall Cotton
[Edit by Michael, fixed formatting problem]
They’re ill in a way nobody can do anything about.
Smileykins… I know it’s so sad… all these mentally ill people coming out of the woodworks from everywhere. If only we could all be as sane as you.
“TC”–CAREFUL, I kmow how slow you read,so this might be a tough one for you… it’s pretty LONG!! Remember your “sight words”!
I told you that I have received validity from many doctors, family, & friends who have WITNESSED this matter coming out of my skin. DEBRIS? I also told you that I have had it video taped & am working with someone who is very well known to produce a documentary which will give everyone a hell of a “show”.
My question to SARAH-NOT smiley or TC… was if she has ever heard of anyone with lupus having black specs, fiberous looking matter, or anything of the sorts reported in case definitions as one of the symptoms of Lupus. You see, I am open minded and looking for a rational explanation as to why this is happening.
I find it amusing how angry you get when people who believe something is going on-the “something” which is being called Morgellons… well, whenever they make decent points you try so desperately to put them down and discredit them, but it really just makes you all seem less credible.
Here I come on this site with an open mind, wondering if you all have any explanations as to what this COULD be (BEYOND DOP). Instead, of acting like grown adults, you began ranting and raving about things that weren’t even said. For example-saying that I’m not listening to my doctors when they suggested Lupus? NOT TRUE. I would be thrilled to find out that I had Lupus so that I would have a diagnosis and would then be able to plan (WITH MY DOC) a “course of action” in which to take. You are only making yourself look bad TC by twisting and turning my words. You are “making fun of me” you said? WELL, you know what they say, “guilty dogs bark”! You sure do alot of barking!
Smiley,I think you are all scared. You still haven’t bothered to explain just what the purpose of you spending SO much time on this site is. You claimed that I was “not the audience you were looking for”. AUDIENCE? Are you sure your no longer delusional? Last time I checked, this wasn’t a play. If it were… there would have been a casting call & I am almost positive that Michael would not have even called you back in for a second audition. I mean really, your credentials consist of being a former nut job. I am still not convinced that “former” should be in front of the nut jub in your case. Do we make you so sad that your little smiley icon looks as though she’s going to cry all the time? Let me guess-it smiles when you get to put someone down, or think that you have a halfway decent comment to make for once. MAYBE-you should let all the other poeple posting judge whether your comment deserves a “frown up” or a “frown down”. So, an embarrassment? Yes, you should be embarrased. It’s a tad bit immature.
You know… you all should really get a life! You don’t know me. Tc bust out with, “just because your married to a BB player doesn’t make your opinions more valuable”. Yeah, well… it doesn’t make them any LESS valuable either. You wanted proof? I offered it up. You don’t want proof. What would you and your little smiley friend do then? I was serious about you coming here to see the fibers emerge from my skin with your own 2 eyes. You don’t even have to stay with me. Want a hotel? You see, I think that it would be more likely that this is infectious vs contagious. I beleive it’s probably environmental. When I put that offer up, I meant it & I will tell you that you would have all been treated with the utmost respect from very nice lodging to delicious breakfast lunch and dinners– OUT. Instead, you chose to eat your words. You had to get all frazzled and start throwing low blows and little verbal digs.
My docs are on my side and trying to figure out what’s going on. They know that I am not delusional. Mny docs are figuring it out which is why I guess it made theMorgellons Disease - Yahoo Live Science #10 In Hits
http://www.livescience.com/humanbiology/top_10_diseases-10.html. Feel free to check it out. I was only going to let you see what my docs have so that you would know WHY this is finally being taken seriously. I had a derm find them on ME while I just laid there. She was AMAZED.
You all try to act as though I’m hanging out in my house diagnosing myself and settling for some creepy diagnosis that so far-has no ryhme or reason. I am working with the SAME doctors who are all writing papers to be published in medical journals on what they KNOW to be true. At this point and time-you have lost your “audience”… the race will now consist of top doctors from around the world trying to figure out what is causing all of this. SO, my advice to you? Hang your running shoes up-you already lost your ill intended “race”.
Oh-Michael… thanks for defending my sanity-sort of. Again-thanks.
TC, still thinks I’m not “playing with a full deck of cards”,BUT- reading over the post from last night I’d have to say he got “TRUMPED”, or in simple terms-linguistically slaughtered!
“M”, I do appreciate the classy way you think before you type & although you disagree-you are not ruthless in how you express yourself. I know I became a tad ruthless last night-but, hey… I’m only human. I’ll work on that.
Warm Regards to “M”,
Brandi
When something unintentional accidentally triggers a person into thinking there has been a personal violation against them committed, I don’t know what to do. It might help you, Brandi, if you calm down and list what you believe I, as well as TC, have done to you.
I’m getting tired of using the words,”I’m sorry”, but you had previously said:
Brandi, I think it would be a good thing for you to print this entire topic, and comments, and go talk to a therapist. Print out TC’s & my blog, too, so they can help you understand your comments here, toward permanently disabled persons.
Good luck, too. You seem to have a lot of issues.
I shouldn’t have even made that distinction about our disabilities, but you did. It’s never okay to talk to anyone like you are.
I really dont know why I am even replying but the comment “we all know your husband had ALS” triggered the need to inform you that you all dont know what your talking about. On the death certificate it said respitory arrest. He had full lung function. He had a alergic reaction to the antiobiotics for the MRSA infection he got in the hospital.
Tom was diagnosed in the beginning of his illness with ALS. He began with vomiting, extreme fatigue, personality change, Thick rash on his trunk, arms, and head. Severe itching, sweating with a strange oder. His arm tingled and became weak and hot. He did have the twitching that is seen in ALS.
He later was hospitalized for sudden weakness and severe headache, and confusion. Tests were run and he did test positive for a toxocara antibodies, and was treated with albendazole for 5 days- in rehab for 3 weeks- He regained strength in his arms and was able to feed himself and dress (he couldnt when he went in) His cognitive significantly improved (neuro-Psych testing to prove this too) he was walking and regaining strength every day. Then he developed kidney stones and another emergency surgery. Our infectious disease doctor had moved away at this point and once again lost any support system we had in the medical community. She did however report this to the Health Department and CDC with no reply on assistance.
I have never told any physician that I think I have “bugs” in my skin, in fact I have never said the word “bugs” YET the media seems to add that every time.I also have never said Morgellons to a doctor. Since Toms death my dad has been diagnosed with ALS/multiple neuropathies- and has lesions on his head? I too have multiple neuro and my youngest has a slight drop foot now. We do see physicians who think that the CDC is actually looking into this.
I could go on and on but have better things to do than this. I dont know what it is that you are trying to acomplish here because you keep saying the “facts” are and you are so wrong. It seems to me that you are just trying to be mean.
Anne, I’m sorry about your health, your father’s, your childrens’, and I’m very sorry that you lost your husband, and that it was misrepresented on television. We have The American Medical Association for a good reason, and nobody is trying to be mean to you.
If anyone can, since we have some “morgellons disease” patients here, now, what is it that you’re trying to accomplish, that you couldn’t already do, before going public about what you think you have wrong with you?
Brandi Koch, thinks that taking antidepressants for about five years, while I was trying to adjust to my physical disablement, qualifies me as being a “former nut job”. Considering things from the “morgellons disease” patients’ perspective, especially that of those who’ve been involuntarily committed, this woman is not a good spokesperson for your illness. From my perspective, she’s representing the disease beautifully.
Brandi Asks: I wanted to ask you what you meant in one of your letters to Greg Smith about having a herniated navel or lupus. Do you feel that these symptoms mock that of the above mentioned afflictions? Just wondering.
I do not think that herniated navels nor lupus mock symptoms of “Morgellons.” I think many people delude themselves into thinking they have “Morgellons” and consequently attribute all physical sensations and conditions to “Morgellons.”
From Brandi: “My question to SARAH-NOT smiley or TC… was if she has ever heard of anyone with lupus having black specs, fiberous looking matter, or anything of the sorts reported in case definitions as one of the symptoms of Lupus. You see, I am open minded and looking for a rational explanation as to why this is happening.”
I have heard of people with lupus having black specks and fibers. I’ve heard of people with a yeast infection having black specks and fibers. I’ve heard of people with an ear infection having black specks and fibers. That’s because black specks and fibers are everywhere.
“I find it amusing how angry you get when people who believe something is going on-the “something” which is being called Morgellons… well, whenever they make decent points you try so desperately to put them down and discredit them, but it really just makes you all seem less credible.”
Angry, like, making silly, nonsensical fairy-tale stories, and writing intimidating emails?
Decent points? Like what? Name one decent point. That’s what I’m so keen to see.
Seem less credible? Like making little cartoon animations of people’s faces?
Oh, Brandi, you’re too much!
Sarah…let me tell you something VERY important. I have NO affiliation with the “NMO”. I think that they are a bunch of wackos.
Actually, you could ask Michael what I had to say about the freakish “fairytale” they wrote about you. I didn’t even know that it existed until one of your friends here enlightened me and told me to go check it out.
You know what I said? I said that it was the most ridiculous thing that I had ever read & no wonder people think that they are quacks. I also commented that you were a beautiful girl.
Sarah, again- I do not have ANY affiliation with the NMO. They are ridiculous. The name they chose is absolutely insane & almost every other part of their site as well. I mean for goodness sake-they have their pets “communicating” about how “they have Morgellons”. I think it’s pathetic.
Whoever wrote that story about you is clearly NOT playing with a full deck.
I was so disgusted by their site that I wrote them an email demanding that they “cease & desist” from using my picture on that site before my lawyers get involved. Which, BTW, they never asked to use my pic in the first place.
I was communicating with them, until I saw how kooky they were. I NEVER even knew they had a story up about you until yesterday (or the day before). Ask Michael.
So, please do not lump me in with “them”. Just as on THIS site, some of you seem credible while others clearly do not… well, the same is true for ANY group of any kind.
I am not a part of the MRF either. I was at one point, but now I am not-by choice.
Brandi,
I apologize for sounding like I was lumping you with those folks. I should have taken more care. I will still take issue with your comment, that you seem to be under the impression that skeptics of “Morgellons” are desperately trying to discredit decent points.
As of yet, I haven’t seen any decent points in peer-reviewed, published literature. The less-than-decent points, which permeate the “proof” of “Morgellons” don’t take much effort to discredit, much less any desperation.
“Smiley”… you are just grasping at anything now. You are disabled? HHMMMM… maybe it’s all in your head? You sure you aren’t imagining it?
Because, I happen to have a bit of inside info on almost all of you & your little story you just told… well, I don’t buy it. Maybe you are delusional & just faking it to get attention? Yeah, I’m sure that’s it.
How does that feel, Smiley? Pretty crappy-right?
However, you have said that you were delusional at one point and time and now you change your story? Interesting. Perhaps that is your lame attempt at gaining sympathy since you can’t seem to make any decent replies in regards to the points that I have made.
You seem to think that I am the one who is making the cruel remarks? Wow… don’t dish it if you can’t take it.
“NO ONE SHOULD TALK TO ANYONE THE WAY YOU DO”. WAH!
You have been mocking and treating people like crap for what looks like months. What? You have a disability and you think that gives you the right to be a bitter b—-?
We ALL have problems. OH, & remember–this IS NOT a support group for being physically disabled. You have no compassion for myself and those that are suffering with this very real affliction, & you think I should have compassion for you and your “disabilities”?
GO out and make a life for yourself-disabled or not. There is no need to sit around feeling sorry for yourself. Do something good VS trying to bash other people who are sick.
Yes… I have many things to say when someone talks out of their a– claiming that your here to help, but all you do is continue to talk out your a–. I have reiterated my points/questions/concerns per request, but you STILL don’t have anything useful and/or meaningful to say.
You also now are claiming that you were never delusional-but, I have it in writing-YOUR writing. I will post it if that’s okay with you?
Lastly, I speak for myself. I am done. You all are about to look extremely foolish soon. There is no point talking to any of you. I made my points. Apparently, a little too well. Enough to make you feel the need to use your “disabled card”.
Good Luck, I’ll pray for you.
Brandi,
There isn’t anything wrong with my reading abilities, or my reading comprehension. I choose what I read, and the things your write, bore me. You aren’t saying anything we havn’t heard a thousand times. You are just as delusional as the rest of the Morgies, and you are no more sane than the members of the NMO. You are all nuts. We have told you Morgies over and over, on this blog, why we are here. It’s not our fault if you don’t know how to read, or can’t comprehend what you read. You have clearly demonstrated your insanity.
Tall Cotton
Brandi,
No one said that you aren’t sick, or that your experiences are all in your head. What makes you delusional is your beliefs. Morgies can’t seem to understand, it isn’t about what they experience. It’s about what they believe about what they experience.
If you believe yuo have Morgellons disease, that’s a real good indication that you’re delusional. There is no Morgellons Disease, and there is no good reason to believe there is. You have no worthy evidence….none of you.
You Morgies have a variety of physical disorders. But the one thing you all have in common is DOP. By the way, Smileykins knows more about medical science than you have the ability to learn. She doesn’t lie, either! And she isn’t a bitch. Too bad that can’t be said about you.
You Morgies argue with people that know what they are talking about. It’s not that we think there isn’t a Morgellons Disease. We know for a fact that there isn’t. If anyone is talking out their ass, it’s you.
You Morgies are hurting a lot of innocent people with the lie of Morgellons. You talk about compassion. You’re a hypocrite. Where is your compassion for the Morgie chidren that are abused by their parents? Where’s your compassion for the spouses that have to put up with your delusions, until your fantasies finally become real to them? Where’s your compassion for the pets that the Morgies have neglected until they died?
You can keep running your mouth, buy you’re your ass.
Tall Cotton
Annie Dill,
If your husband didn’t die of ALS, then I apologize. The main point is, he didn’t die of Morgellons. No one has EVER died of Morgellons. If you’re confused, it should say on the death certificate. There’s no need to blame it on something that isn’t even real.
Tall Cotton
* Brandi, you addressed your letter to me.
* I explained you had misunderstood.
* You said you thought I was snide, inspite of your un-offensive intentions.
* In comment #9 you asked if anyone could help you.
* You asked about my health.
* I said this isn’t a “morgellons disease” support forum.
* I said you could satisfy your curiosity about my health on TC’s & my blog:
http://of-morgellons.blogspot.com/
* In comment # 14, you said to me, “I suppose we should all just be thrilled that you are able to type at all.”
* In comment # 16, you said to TC, “I’m so sorry if I can type faster than you think, type, or read.”
* You said, “You seem to think that I am the one who is making the cruel remarks? Wow… don’t dish it if you can’t take it.”
I’ve asked what you believe I have done to you. I explained that you’d misunderstood my comment to a stranger inviting everyone to your home last July. Either tell me, or shut up.
Print whatever it is that you have on me, first, if that will make you feel better. I don’t hide behind lies.
hey small, keep running your mouth dumbass
Oh, Norman!!! I have missed you so much. How have you been, and how is your mom doing?
Okay, it’s a new day, and I’ve tried to review this weird topic thread. From what I can make of it, and correct me if I’ve misinterpreted it:
* You think that we (especially, I suppose, “I”) have had you on our/my mind(s), Brandi.
* I know TC & I haven’t, and you feel that we all need to.
* You want me to believe that you think I’m on this blog looking for sympathy for myself by pretending to be here wanting to help people like you.
For whatever reason you have for caring about what you think others think about you; for whatever reason you’ve directed your focus on me; if you need to, read this blog’s comments’ section in the April 2006 archives and work your way up to the present. Normally, I recommend reading topics, and skipping comments.
I said a long time ago that I’m not equipped to deal with people like you. Based on my experience in having given it my best shot, in the past, there is no point in anyone (other than a paid professional) wasting time trying to find any way of attempting to get “morgellons disease” patients to understand anything. I think the only help any of you can find is through medication and therapy. If you could only get honest with yourself, first and foremost, you might be able to realize that if people in your life go along with you, it’s because you make them, or else.
I’ll be frank, now. By taking your illness mainstream and demanding the government to step in, I think it looks like this movement is wanting to set mental health reform back in time.
I’m truly sorry for being that honest about my interpretation, but I am hoping to clear up something for you, however futile it is, about my opinions on this situation. That was why I’d asked, what do you hope to accomplish with this, that you couldn’t have already done, before going public with what’s wrong with you? I’m not trying to be uncivil, I am trying to rationalize this. If quacks to treat you is all that you want, they were always there to begin with. Right? You could have done that without the government.
Smiley, Tc-.
My compassion for the animals and children that are NOT being abused?
You don’t KNOW that this illness does not exist-you ASSUME it does not. How could you possibly KNOW this does not exist?
I happen to KNOW that is exist-I have the proof.
You both make yourselves look ignorant. You can’t come up with any decent rebuttal beyond insults. It’s ammusing, really.
TC-if my post “bore you”-don’t read them & don’t respond. I highly doubt they bore you considering you spend half your life on this site just waiting for a chance to insult someone.
You are both scrambling now because the truth is about to be revealed. I will be interested to see how you maintan your composure after the truth is revealed.
In regards to my “snide commnets”… I shall re-phrase. I respect everyone who is worthy of respect. You insulted me, as did “TC”. You bite-I bite back. Believe me, I didn’t say half the things I wanted or could have said.
You are talking out of your … you don’t KNOW anything. Where is YOUR proof? Really? I offered you proof of what I have to say. Where is YOUR proof. Up in your twisted little mind? Disabled? Mentally disabled, at best.If you are mentally disabled let me know & I will definitely treat you with respect and understanding.Otherwise, I owe you no compassion or respect. You are not kind and have hurt too many people for me to respect you enough to sugar coat what I think of you.
You all got angry because all that I have said makes sense. All you have to say in return is, “your DOP, your DOP, your DOP”… Come on. Give me something I can use? You say that all I have said has been said a million times? HA! Read through your pathetically spent time posting the same things & the same insults-over and over and over and over. What will you do when your disturbed brain runs out of insults? Move on to torturing people with Parkinsons? You just make no sense & quite frankly, you truly seem to be the one who is mentally ill.
“TC”-you must be bored to spend half your life trying to convince others about something you truly know nothing about. YOU don’t KNOW either. You all are very strange. BTW-you don’t know if Smiley has more medical training than me. You don’t know-you assume. You make assumptions & never state facts.
So, your motive… is to “save people” from Morgellons–oh wait… believing that Morgellons exist? You don’t even know if it exist or not yourself so what good are your opinions? You don’t have it. You are GUESSING that it doesn’t exist.
Smiley asked what I think she did to me. Well, Smiley… I think that you are a coward. I feel that if you devote so much energy on your “cause”-you should KNOW what you’re talking about. At the very least, you should take an oppurtunity to find out. I have no respect for you-that’s all. You have spent so much time doing “this” when you could/should have found a worthy cause where you actually helped people VS wanting to hurt them.
You claim to be altruistic worrying about kids and pets being abused. If children were being abused the dept for “Child & Family Services” would have intervened by now. Yes, I know that there are a FEW cases where they have-but, perhaps those children WERE being abused.
You know what I think? I think you are abusing the children who have been unfairly dealt a disease such as this… you are abusing them by TRYING to make it harder for them to get the treatment they deserve & NEED simply because YOU don’t beleive it. You are also abusing them by not validating their fears & concerns. If a child (mostly, older children) SEE matter coming out of their skin, don’t you think they know it’s not supposed to be happening & that it would be terrifying for them? How about if the people they are supposed to trust (beyond their parents) to help them feel better and get well (doctors, & other people within the medical community) were to completely ignore it because it seemed “hard to believe” & was not in the medical journals-YET. I think you and TC need to take a good look at who you are and work on improving yourselves before you go around pointing fingers. You want to make the world a better place? START THERE.
If animals were being abused… why hasen’t PETA stepped in? The animals are not being abused. Also, my point about the pet page on the NMO? Right now, we are working on gaining validity so that our children and we ourselves can get help-any website that makes us look foolish by people “talking for their pets” is actually going to DELAY the process of getting them help. It just makes us all look bad. Simple, really. You seem to be lacking commen sense as well as the compassion you claim to have. Talk is cheap, smiley/TC. Some more than others.
You all don’t stand a chance at winning any debate with me. The reason is very simple. You can’t argue with the truth & again-it WILL be revealed. I’ll try desperately not to say, “I told you so”… & if you ever are unfortunate enough to get this horrific disease-I’d be the first to lend you a ear, hand, anything I could possibly do to help. Hopefully, this will be figured out and wrapped up before you ever have to share the same fate as me. You know one way to know you’re not a very good person? When hundreds of sick people secretly wish you’d fall ill in the same manner they have… you might want to think about that. Again-I wouldn’t wish this on my worst enemy.
SMILEY SAID——* You think that we (especially, I suppose, “I”) have had you on our/my mind(s), Brandi.
* I know TC & I haven’t, and you feel that we all need to.
* You want me to believe that you think I’m on this blog looking for sympathy for myself by pretending to be here wanting to help people like you——I SAY, THEN WHY THE HELL ARE YOU ADDRESSING ME?
SMILEY… people go along with me-or else? LOL! That could be ONE of the dumbest things you have ever said… & believe me, you say a lot of DUMB things.
As far as caring what people think of me? Well, let’s work on that common sense once again… I wouldn’t have gone public if I really cared. I went public to help people.
OH… “quacks”… once again-you are making assumptions. You don’t know my doctors.
SMILEY SAID—— I said a long time ago that I’m not equipped to deal with people like you. Based on my experience in having given it my best shot, in the past, there is no point in anyone (other than a paid professional) wasting time trying to find any way of attempting to get “morgellons disease” patients to understand anything. I think the only help any of you can find is through medication and therapy.
I SAY——— of course you can’t help anyone else! You can’t even help yourself, let alone anyone else. Get over yourself. You are pathetic. If you say I’m not on your mind. Stop posting. I am posting to make valid points on behalf of anyone & everyone suffering with Morgellons, as well as to give anyone on the “fence” about whether or not it exist–the real story.
YOU are of no help to any of us and I am not asking for your help. That’d be like asking a dog to teach me to speak English. Keep on barking, Smiley!!!
Dictionary OF “SMILEY SYMBOLS”
* = your about to read something really dumb
Brandi,
I appreciate your candid, truthful and valuable information regarding Morgellons. I know it all to be true. I have Morgellons as well. I also have a master’s degree, have run many marathons and know better than to listen to the narrow-mindedness of some of the bloggin’ fools. I know I recently had to leave my profession of 23 years, can not endure the physical challenges that I used to, and need to save my children from this horrific illness. Shame on any of the people who live in a box unable to realize that life is bigger than them. Ignore their insecurities and ignorance, Brandi. We need you!
Thanks to you, and to others that help educate the less fortunate people living in a medical world of the dark ages, we will get the people to listen. It is all about openness, not agression. The “agression” is triggered by those who just don’t know how to grow. You go, Brandi!
It´s a funny thing that one of the Morgellons.org founders apparently has Munchausen by Proxy…
I don´t live in the US,but in a small northern European country.For some time my sister in law(referred to here as “D”) has been suffering from a skin condition no PhD seem to be able to identify.They call her nervous and dismiss her with a prescription for anti-anxiety drugs.
I´m not a Morgellon believer myself since many sites seem to be too far out in the conspiracy/UFO-sphere to be taken seriously,I´m sorry but that´s how I feel.
I´m anxiously waiting for SERIOUS reports,not coming from UFO-sites and conspiracy theoretics.
Whether Morgellon´s exist or not,it´s a hell for the family when a family member is so totally into Morgellon´s that she is beyond reasoning about possible other causes.My other sister in law,the one that´s not sick(referred to as “C” here),is very intelligent,well-read and most of the time reasonable.Now “C” talks about genetically manipulated virus sprays,”authorities” such as Hildegard Staininger(with whom she has spoken to on the phone),chem trails and that the only possible cure for her sick sister is “living food”.”D” has become even more depressed from this-of course she has Googled on Morgellon´s herself.
“C” also made life hell for all of us with her talk about Morgellon´s,including her sister who herself is convinced she has some kind of scabies or Lyme disease.
I´m not saying people aren´t sick.My sister in law is definitely.But being sucked into some internet diagnosing loop is harmful for someone already in a vulnerable position.
Morgellon´s is an open field for anyone looking for some internet fame,paying the price are the people who are sick in one way or the other,AND their families who don´t know what to believe anymore.
I´m not criticizing anyone but those who seem to find excitement in publishing different kinds of unconfirmed crap on the internet.
Cecilia,
You almost sound like you are a mature, open adult-minded woman. I agree with not jumping on a band wagon of illnesses, and I also agree that the internet lends itself to just that. That is why, other than today really, I do not post info. on these sites. I was looking for something, know of the Koch story and then became irritated at how Brandi was being judged, then I chose to remark.
I do hope your family members find health. Whether this is from chemtrails, a nano-machine loose in our world or from a nemotode of cotton, People need to look, listen and learn. Oh btw- I do have chronic Lyme as well.
I want ALL of you to know that I am not responding to set up a comment for debate.
Seems like ALL of you have enough fuel for the fire already. Rip each other apart for sport!
This is a statement for all those out there who have family members who are sick, and are freaking out just not knowing for sure ( is it real? If so, Is it contagious, etc.), because the medical community is not ready to spill on what they actually know yet. I felt the need to give comment.
First of all, to all of you who suspect that you have “Morgellons” God bless and be with you. For all the debunkers, or people in denial, Bless you too. I understand your points and how you feel also.
I will not get into the mud fest that has been going on over the past while.
I say Stop It!
You are all surely bigger people. This blog honestly sounds like a domestic dispute gone bad.
That is why I just want to make a statement here.
I am a complete cynic.
I see the angles of what you are saying with the mental illness, and parasitosis, etc. I researched it for 2 years. ( however since it has not been classified as a “REAL” disease what can you really find? I deviated to auto immune diseases.
I questioned it all myself for quite a while.
I was ready to get the net for those who were making these claims too.
I have to be upfront and tell everyone that I have Lupus. (It is a rare form so I am told. They call it Verucous Lupus. Took 12 years to diagnose it. Thank you University of Michigan and Dr. Anna Taylor).
With that being said, I’m going to weigh in here.
I want to tell you that I took the time to read back before I wrote this.
And now I say to all of you with too much time on your hands,,,
STOP IT, STOP IT, STOP IT! You are all so focused on BEING RIGHT that you have lost the true bane of your legitimate arguments.
You have all turned to dissin each other,instead of sticking with the known facts.
Stop it and re-focus here. Enough Yaddah Ya.
Take time to read what is written NOW,(by qualified med people), and regroup your thoughts, BEFORE YOU SPEAK. That’s how reasonable intelligent people do it. Right?
I have a family member who claims they are sick.
I am with the debunkers.
I was told that she was a nut. ( drug addict)
I believed it. FOR 2 YEARs.
I had not talked to this person for 8 years.
She was outside the family.
After I kept hearing the scary stories, I actually contacted her.
I just had to see for myself. ‘
“Was she a nut? Was she making the kids think they were infected too? That wouldn’t be right, would it?
I am sick. I mostly keep to myself. ( anyone who is chronic understands. You don’t have energy to fight battles that aren’t yours. You let things go).
However, being sick( documented.) I just had to know.
Any woman that reads this knows how hard it was for me to call an ex-sister after 8 years.
It was about me and my family. It was ODD.
So I tell all of you who click in now… “Morgellons” I hate the name too,
makes everyone sound like a nut, due to the beginning of it all…
To take a moment and think.
Final comment: Healthy people don’t really give a SHITE. The world is a rosy place when you have it all! No one cares until they,or their kid gets sick. Thats a FACT JACK!
If you folks aren’t sick, and you aren’t physically sick, why do ya get your willies of on writing all this sick stuff?
Love & Light to everyone.
Brandi, I have only addressed you because of:
Brandi Koch
Posted by Michael on April 8th, 2007
To: Smileykins…
That’s all.
When I had said, in comment #37:
When I reiterated that, in comment #54, it was preceded by my explaining what I feel about your movement forcing the government’s hand, and that I have no desire to try reasoning with anyone who thinks they have “morgellons disease”. I added to that, a generalized question, again, about “the morgellons disease movement”, not aimed at you (unless you chose to answer it), when I’d said, “If quacks to treat you is all that you want, they were always there to begin with. Right? You could have done that without the government.”
I wasn’t addressing you, and calling your doctors quacks. I don’t care if they are, I don’t care if they aren’t. Brandi, I do not care.
Why do you need me to? Who AM I, to you?
Since my opinion matters to you though, if they are accredited AMA members (like, perhaps, the reported 10-40 doctors, on the average, that diagnosed the group of patients with whatever they vehemently disagreed with), then, that’s not the type of doctors I was referring to.
You’re an excellent poster-child for “the movement”, Brandi, a real hell-cat, and you even helped sum up a lot of what “morgellons disease” is, all about, without realizing it, right here:
I don’t gauge my character on what “morgies” think about me. You’ve told me to stop posting. Who are YOU, to me? Answer: Nobody
I’m gonna hang back, now, and let em go, MG. Don’t worry about me. I learned with Aherah.
Well, I will exit today by complying with something to make someone happy.
Brandi, you make wonderfully educated, intelligent, and very valid points. I believe that you’re a victim of a new plague called “morgellons disease” and I hope the government can do what is needed to help you.
I apologize for that, MG, but surely you have to see that she needs my validation.
You know, Smiley… that’s exactly the problem. YOU can’t stand that I DID indeed make intelligent, valid points… do you really think by your “snide patronizing” you PROVED something? Comical. It’s only a “compliment” & “way fo making someone happy” IF you don’t feel the need to post a “prelude to an insult” as well as a “closing cut down”.
YOU-are NO ONE to me either. Well, I take that back. EVERY person is SOMEONE to me. I value people’s opinions & people in general. I like people. It’s just who I am.
Now, You keep asking, “why me, why me?”… well, I offered you a chance to come and see for yourself MY proof. If YOU had proof that it did not exist and made the same offer to me, I’d would have taken you up on it.
YOU, don’t REALLY care about anyone but yourself. You don’t care to know the truth…
You try to act so innocent as to why I am addressing you. HELLO… you have had plenty to say to me. I answer and address you because you and your buddy “TC” are the only staples here. You TWO are the ones running your mouth,CONSTANTLY.
Practice what you preach!!!! If you can’t take it—–DON’T serve it…or”dish it” as you prefer to say! YOU leave yourself WIDE open… who ELSE shall I address? You are the only person ranting and raving 24/7.
I would also like to say that it was so amusing what you said about “one’s spouse buying into their FANTASIES”… WTH? I don’t know about you, but I sure as hell have NEVER had a fantasy which includes weird matter coming out of my skin. YEAH… just what I’ve always dreamed of!!!
If you feel threatened by my opinions and feel the only way you can get out of looking like a fool is to make it very clear that you are PRETENDING to compliment me… so be it. I should warn you–it’s still VERY obvious that you were cornered by your own ignorance & hung yourself.
Hey. I accomplished EXACTLY what I wanted to…
Brandi,
You are most sadly mistaken. I do know for a fact that Morgellons is DOP. If you would study how this lie began, and how it evolved, you might understand. The Morgellons community is also filled with a lot of other mental disorder. You could learn a lot by reading this blog, instead of running your mouth. I know for a fact that Morgie children are being abused. You wouldn’t know the truth if it jumped out of a bush and bit you on the ass. You havn’t offered any evidence that Morgellons is a disease, or even that it exists. You may have some physical disorder in addition to your mental problems, but you not have Morgellons. I don’t care if you believe it or not. Read the blog. Why should we repeat everything that’s been said, just for your education. And yes I do know you aren’t very smart on medical matters. The fact that you believe in Morgellons is proof of that. Can you slow down a get a grip on yourself. You’re coming apart. Oh, you’re mistaken again. I don’t read half of the nonsense you write. You need to go back to your trailer.
Tall Cotton
One morgie thinks that I’ve been in her home, already, Brandi, and that we’ve worked together on church projects. She also thinks she has pictures of TC & me, and that we live right down the road from her. She really has “morgellons disease”, too. I think all of you do.
I beg to differ! She could not learn anything by reading this blog.
Don’t read this blog. Look what confusion it causes to morgies. Just tell them you believe them, and make them content.
“TC”- your write like a 4th grader. Read your post.
Smiley-STOP addressing me, you freak… we go to church together? WTH? you are SSSOOOOO out there. Someone ought to Baker act you. Oh wait-you alraedy have been.
Oh… excuse me, Smiley. You were talking about someone else (another Morgie). I know who. Let’s just say her name begins with a k…
I don’t have to “think” anything… yeah, “TC”, I’ll go back to my “trailer”. HA! My pinky ring cost more than you will ever make in a lifetime.
My IQ is also higher than what you weigh in at… & that’s assuming that you are a large “bitter Bob/Barbara”.
TC SAYS——————The Morgellons community is also filled with a lot of other mental disorder.
I say———————– and the world of “tall cotton” is full of bad grammar.
“TALL COTTON” SAYS———- You may have some physical disorder in addition to your mental problems, but you not have Morgellons.
I SAY——————— “BUT YOU NOT HAVE BRAIN”
TALL COTTON SAYS————————-And yes I do know you aren’t very smart on medical matters. The fact that you believe in Morgellons is proof of that. Can you slow down a get a grip on yourself. You’re coming apart. Oh, you’re mistaken again. I don’t read half of the nonsense you write. You need to go back to your trailer.
I SAY——————————– and yes, I know your not very smart in general… go back to your box beneath the bridge & remember… be careful, I just might own the Mcdonalds your denied a job from one day.
“TC”— you mentioned that “smiley” is more educated in medical science than I am? What is your level of education?
I guess I should go back to my trailer and figure out which PI I should hire to find out all about you! YOU are just SOOOOOO interesting, I can’t resist.
You know, if you keep it up… I might have to buy your entire trailer park just to boot you out. Oh wait-you only WISH you owned a trailer! I could buy you one if you’d like… you know, for a tax write off.
USUALLY, someone wouldn’t tell someone if they wanted to hire a PI jsut for them… UNLESS—I already did… HHHMMMMMM…
We have one making things easy around here now, debunking the myth of “morgellons disease”, and doing it singlehandedly. Thank you, thank you, thank you!!!
I think I’m gonna call ‘Entertainment Tonight’. I’ve never had anyone hire a private investigator on me, especially someone like Brandi Koch. Hmm, maybe the FBI would be better, given the situation.
Calm down, I was playing. Brandi, you’d fit in better playing with your own kind, like people who look up to you on Lymebusters, or something. You said you accomplished what you wanted, when I said you have your disease. So go enjoy it. You’ve only shown what it really is, here.
Sorry folks, in view of the flaming, disintegrating into vague threats, I’ve turned on comment moderation. This means your comments will not show up for some time (maybe hours) after you post them, if at all (in the case of flame-type comments). I’ll turn it off in a day or two. You can continue fighting elsewhere if you like.
I wish there were a way to communicate with morgies. I don’t see what it is that any of you want. You think people have done things that they haven’t. It would be so nice if you would have just trusted and worked with a doctor. The first doctor any of you saw. You can’t tell anyone what it is that you want. Do you all realize that you are yelling and carrying on about a PLAGUE, announcing it to the rest of society, while at the same time you tell us to leave you alone? Well, people do leave you alone, don’t they? The message boards full of morgies delete “outsiders” and tear into people like a bunch of old wet settin’ hens thinking a fox is in the chicken house. You even fight within your cult. People get a clue. You want others to really believe there is a new disease, and that your doctors were wrong, and that the looney doctors committing health fraud are right?
Sarah… I see where you are coming from. I just hope that people such as yourself will soon have the published literature adn proof that you need to feel that there is indeed something going on.
Smiley? I can live without… you? Well, I have to admit… in time, I hope that you will want to research with a different perspective.
I understand that this “whatever” has been described in such a VAST manner that it’s hard to even think that it could be real…
I guess, all I can say to you, is that I hope once all medical professionals realize there is SOMETHING going on, you will be the type of person conducting research.
I have looked into some of your comments, writings, etc.
Time will tell. Please, just keep an open mind. We need people like you.
Smiley…last thing. I should have raised the “sarcasim flag” for you about the PI. YOU seem to think that I CARE so much about you (although, you do try to reverse it at times),that I figured I’d leave you with what YOU want…
Funny thing, that “bio” of yours. Leaves little to the imagination–beyond your own.
Please, do call ET. I would love to go head to head with you in a debate-ESPECIALLY with an audience.
http://www.youtube.com/watch?v=XTOEp-8dx9I
Go check this out… anyone/everyone. Pretty creepy. I AM not saying that I’m “sold” on all of it… but, it’s pretty CREEPY. Silent Superbug Video 2 (part one)
07:52
From: nicscics
Views: 389
“TC” I apologize for saying the things that I said to you… they were completelly out of line and extremely pretentious. I don’t know anything about you or your life, just as you know nothing about me beyond all of “this”. I’m sure that you are a very successful man/woman & even if you weren’t… well, that has nothing to do with one’s character & definitely nothing to do with all of this. Sorry.
Smiley- I am also telling you sorry for any immature put downs or digs. I should have been the bigger person-but, I wasn’t, so–I am very sorry. I really hope that you put as much energy into helping sufferers as you have insulting them one day.
The so called hype about “Morgellons” is due to finding ONE word to describe that people who ARE NOT delusional are having some sort of matter come out of their skin. All the other “symptoms”… I don’t know, but the one that needed “a name”, was the symptom that is the creepiest and most terrifying of all… this “stuff”. Living with this is enough to put just about anyone over the edge (if you let it). Some have fallen, some have not.
I feel that for those of us who have not “fallen”… well, we need to stand up for all the ones who have. I’m sure you imagine how scared some of these people are because we KNOW it’s really happening. Again-I WISH I WERE CRAZY.
Take care. I am NOT being snide (this time). I can honestly tell you, that I will pray for all of you and could use the same in return.
Brandi
Brandi, I honor your logic and attempts you have made here, good job in not allowing them to suck you into their traps. Just keep with the logic and continue to feed them rope. People like this eventually hang themselves. This cant be helped when one is not correct and standing on a soapbox.
I continue to post here occasionally not because of the 3 or 4 people here acting in collusion, but for the people visiting this site. It is important for these people to witness the types of arguments presented here. There is no better proof of cooperation with industry than this site and its efforts.
By the way, the same exact offer Brandi has made, I make as well. So how about one of you spending a day in both of our homes and see just how uniquely this illness presents itself, but from 2 different places and from people whom have never met.
Thanks for your courage and determination Brandi, good job. As for the rest of you, TC, smiley, SBD and Michael, What do you say? Still believe you have nothing to see? or to lose?
Southcity
smileykins Says:
April 11th, 2007 at 4:35 pm
I think I’m gonna call ‘Entertainment Tonight’. I’ve never had anyone hire a private investigator on me….
Once again you claim knowledge over something you cant possibly be certain of. It’s perfectly natural for belief structures such as yours.. The “Morgellons isn’t real” and “I have never been investigated” beliefs are sure to leave you with a sense of safety and security. My suggestion is that you realize that sometimes your beliefs are incorrect, and that for some things, timing is everything.
Children don’t get the opportunity to make their own decisions, and of course, they aren’t capable of making those decisions. So, it only does harm to instill fear in the children’s hearts. But if they were to fear, if any people were to fear, they should be fearing the diseases they actually have, not Morgellons. The people who believe that they have Morgellons, want validation, but they don’t have a valid argument. Any time someone ignores a valid diagnosis, they are abusing themselves. And if they are ignoring valid diagnoses that have been given to their children, and refusing to give the children the treatment they need, that is child abuse. People who believe they have “Morgellons Disease” have a tendency to blame all their health problems on Morgellons. And “Morgie” adults aren’t usually qualified to be diagnosing themselves, much less their children or their pets. Some of the Morgie children are, in fact, being abused. This is also happening with some of their pets. They speak of it openly on their forums. Why isn’t something being done about it? Something is being done about it, but we only have a few people combat this outrage. There’s also some quack doctors and quack researchers exploiting “Morgellons sufferers”. They haven’t succeeded in validating their claims, but they are trying to. It is true, that the truth will eventually come out. But the truth, which will eventually help everyone, is that “Morgellons sufferers” are DOP, and they need to be treated for their psychosis. It’s totally obvious to everyone watching this matter, but the people that have the mental problems. Morgies are unshakable in their false beliefs. There’s no reason to expect to get through to them, but the truth needs to be told because that’s the only thing that well help the Morgie families. We have been telling you the truth.
Tall Cotton
Hello… look. I wrote and apology letter earlier that was directed to Smiley and TC… although, I feel that you have been equally as ruthless,I am sorry for sounding like a pretentious b-tch.
BTW- I want you to know that the “PI comment” was saracsim due to your never ending comments that I seemed overly concerned with you and everything about you. I should have made it more obvious. I am sorry for anything nasty that I said to you.
TC- I am sure that you are a very successful person & I am sorry for any ridiculously crude comment that I made. Even if you did live in a box, trailer, work at “mcDonalds”, it still would not make you a bad person & has NOTHING to do with ANY of this. It was just un-productive anger. It’s hard not to get defensive when you have people throwing low blows in regards to your sanity.
I came her hoping to gain insight of some sort. I really did not expect such a unshakable belief that this could only be DOP. I just figured that you were annoyed about lumping SO many symptoms into the MORGELLON’S case definition. I guess I expected respect at the very least.
SO… I tried to post earlier and could not… so, I am not sure if this will go through-but, I feel that the name “Morgellons” is just one word used to describe the creepiest symptom & the defining symptom used to explain that some sort of new & unidentified matter is coming out of people’s skin. We needed some sort of name to describe what it was that was making people who are NOT delusional, have such horrific symptoms.
As I said, I tried to post before & closed with telling you ALL that I will pray for you and could you the same in return. Again- I am sorry for any ridiculously nasty comments that I made in any post on this topic.
Bye… Take care!