To: Smileykins… & any other doubter who spends half their life on “MORG WATCH”
Hello… this is Brandi Koch. I have resisted the urge to read over comments on this site for too long… my curiosity finally got the best of me.
I noticed that someone calling themselves “Robert” threw a challenge out there for anyone to “go stay with the Koch’s for a couple of weeks”… you claimed to be un-phased by the idea/challenge, claiming that you would be more than happy to do so & wondered if he could “arrange a visit”.
Well, he can’t… but, I can. I would be more than happy to welcome you into my home for a week or two… if you think that this is a joke–think again.
I can assure you that if you were to spend so much as 2 days within my home you would not just see the amount of “normalcy” that I have strived to maintain for the sake of my children & their birthright to a blissful, carefree childhood… but, you would also get a chance to see firsthand this matter that emerges from my pores usually after a hot shower, workout, or any other activity which would trigger my pores to “open”.
You would also see that not only do I not pick my skin, but that I have very few lesions. Believe it or not, this “matter” comes out of unbroken skin. Now, I suppose that may sound hard to believe to some… but, if you really think about it–there are many different types of matter which is excreted from the skin from sweat to the bacteria which causes acne (whiteheads, blackheads).
Admittedly, these symptoms sound completely insane and downright unfathomable. You are right-seeing IS believing. I have had at least 10 close family and friends witness this horrific phenomenon for themselves. They too, were understandably skeptical before seeing it with their own eyes. They are now terrified and extremely involved in helping myself and my family figure out how and why this is happening.
To have people devote such a great amount of time and effort trying to debunk an illness that they really know nothing about is the epitome of insult to injury. I am weak, tired, & plain old SICK. I do not have the time or the desire to defend my sanity. I know what I know, & I have thankfully received validity from the people that matter most to me in my life. I do however, realize that I have an obligation to prove this exist to anyone adamantly doubting it’s existence for the sake of research and help for all of those suffering.
Now, I do believe that SOME of the people claiming to have “this”, probably do not. Of course there will be the few that will jump on the already existing, so called “crazy train”. It’s inevitable. Just as it’s inevitable that there will be good and bad persons within any race or religion that exists. The point is… this is real. I wish it weren’t. I wish that I were simply “nuts”, but I’m not.
I have also had the chance to show my symptoms to doctors. Just because you are not hearing about it, doesn’t mean it’s not happening. SOME doctors are finally actually LOOKING & listening.
Anyway, if you choose… you may pay me a visit. Of course, due to the fact that I do not know you, I would have security measures taken to ensure the safety of myself and my family & would welcome you to do the same.
Now, what will you do if you are disproved? Would you turn your time and efforts into helping those suffering VS mocking and scoffing? I really cannot understand why you waste so much of your time trying to convince everyone that this is not real. are you trying to convince others, or maybe yourself? It seems like there are just 3 or 4 of you that devote hours to debating an issue that shouldn’t really even concern you if you are healthy and believe this illness is one of a delusional nature. Why the concern, or is it really a “LACK of concern” & just an entertaining pastime of yours to try and discredit sick people.
The truth is the truth is the truth. It WILL come out. I know that you will opt not to listen to me… but, I can assure you–this IS real. I wish it weren’t.
So, take it for what it’s worth. You want proof? I have it. Come on down. I’ll even pay for your airline ticket & pick you up at the airport. I can promise you that you will be treated with 10 times the respect that you have given those of us who are suffering in such a horrible manner. Hey, bring your 2-3 friends… like I said-I will have a body/security guard here to make sure it’s a peaceful visit. I don’t have the energy to fight/argue with anyone. I just want help before this gets “up close and personal” with those of you who aren’t suffering & before my kids become even more ill. I wouldn’t wish “this” on my worst enemy.
Lastly, if you would like, you may post my email as long as you leave my email address out and print IN FULL the ENTIRE letter. I’m sure this would cause quite a “stir” within the “MORG WATCH” community. I don’t want or need the attention-I need a cure.
Warm Regards,
Brandi Koch
337 Responses to “Brandi Koch”
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Brandi, you addressed the above to Smileykins, but I would like respond to it, as you raise good points.
I’m not arguing that you are not ill. I have no idea what is wrong with you. If you have symptoms, then there are obviously causes of those symptoms.
What I am arguing is simply that there is no evidence that Morgellons exists as a distinct disease. There is no evidence that you have the same “thing” as the other people who believe in Morgellons. I started this site a year ago, just as a way to recording my thoughts about the claims that the MRF were promoting. From the very start I’ve had a little box in the top left corner which says:
That’s all I’m saying. This does not imply that any one individual is not ill, nor does it imply that physical illness is not a component of the condition that they personally have chosen to call Morgellons.
The intent of your letter is to have someone come and visit you, so they can see for themselves that “Morgellons is real”. This (and variants) is a common suggestion from Morgellons believers, so common I added it to the FAQ:
That’s basically the answer I’d give you. I (Michael) would not visit you because it would prove nothing. At best it would prove you have a fatiguing sickness, and have some skin condition. That we already know. I’m not a medical expert, why would I be able to see “it is real” when showing your condition to several doctors has not accomplished this? Why would seeing your specific condition mean that the MRF’s position is correct? What do dermatologists say about your skin problems?
I’m sorry you are ill, and I wish you all the best. I don’t think that there is a common condition called Morgellons, and I think it’s more likely you have a set of conditions that are unique to you, which symptomatically fall under the broad case definition of “Morgellons”. I understand it must be frustrating to have something that your doctors seem unable to effectively treat. But I feel your best route is to work with appropriate medical professionals on symptomatic relief and a search for the cause of your symptom. At least do not cut out the mainstream medical professionals. There have been, through all of recorded history, doctors who exploit their patients fears for their own personal gain by diagnosing on insufficient evidence, and charging heavily for unproven treatments that may do more harm than good. The doctors who “listen to you” may not have your best interests at heart. You can afford to seek a range of highly qualified opinions, and opinions upon those opinions.
Good luck.
Brandi,
While I recognize and sympathize that you are suffering, you still provide no proof for from what you are suffering.
I’ve suggested this on so many occasions before, when people describe tar or bugs coming out of their skin: get a video camera. If you own a digital camera, it probably does short videos. I know my cheap one does.
Dear Brandi,
Thank you for your in-depth, honest reply to the Smileykin regarding the horrific truth of the wierd symptoms of Morgellons disease.
I have been suffering with chronic Morgellons symptoms for the past 10 months. I have lesions that suddenly appear with white thread-like fibers sticking out of them. The lesions take a long time to heal and they leave ugly scars. I have white thread-like fibers growing out of my face, cheeks, jawline, forehead and scalp. Majority of my hair on my head has broken off, I have big bald spots near both my ears. I don’t look like the woman I was a year ago before this all started. I feel crawling and moving sensation on my scalp every night. It’s horrific. I just started using Demodex Solutions soaps and lotions – I’m hoping it helps.
Unfortunately, thru all of this. My two sisters and brother refuse to acknowledge that what I am dealing with is serious and real. I have had to defend myself to them about my being sick with these symptoms. They will not respect what I’m saying and they told me to please stay on anti-anxiety medication. I am of sound mind. I have worked in the title insurance field for 20 years and most recently I was employed as a Legal Assistant at an international mortgage company. I am a single mom and I have been supporting myself on my own since my divorce in 2001. How dare my family write me off as “crazy” and refuse to believe what I’m dealing with. My symptoms scare them immensly so they have made a self-centered decision to be angry with me and not acknowledge that what I am experiencing is real. It saddens me very much to be treated this way when I expected to receive compassion and understanding from the family I thought loved me.
I just wanted to say thank you for taking the time to write such a thorough and direct letter to Smileykin. I heard this saying: “Evil prevails when good people do nothing.” Thank goodness there are people like you who speak out.
Sincerely,
Elena Bianco
Warminster, PA
e-mail: eandjarbianco@aol.com
Hello, Michael… thanks for taking the time to reply. I opted to go ahead and post this particular email because I didn’t want anyone getting the wrong impression & thinking that my offer to see for one’s self was the typical, “come on down and get sick—then laugh” comment. I would NEVER want anyone to become ill no matter how wrong or annoying they had been
.
Look, you are wrong about my doctors not seeing this… they have. When I did the KTVU (San Fran) interview they were extremely deceptive with their editing. They said that we had been to many doctors and been called delusional. Not only is that not true-we never said that to anyone.
Dr. Neelum Uppal was the doctor in the interview who claimed that we had seen “other docs and been told that we were delusional”. She then stated that she had “seen it” & “sent it off to the labs”… not so. I have never been diagnosed with DOP. She could have been talking about another patient or family… creative editing is OH SO deceptive. NOW, Dr Uppal HAS witnessed this matter, but we have not seen a lot of doctors who previously diagnosed us as being delusional.
Also, I hope that you know that MY OFFER is not a bitter dare to come over and sleep in bed with me, or let me go out of my way to spread my germs with the angry intention of WANTING to infect someone. My offer was to make a point.
The point is, you could witness this with your own two eyes as MANY doctors of mine HAVE. Then, perhaps you would reconsider spending so much time trying to convince people that this is NOT real.
I know you say that maybe I have something… but, not Morgellons. I have to admit, I hate the name “Morgellons”. It now has such a horrific stigma attached to it. The only thing that makes one think that “Morgellons” could be the only possible explanation is the disgusting “funk” that surfaces from one’s pores. I mean, it’s quite unique. BELIEVE me, I have searched high and low for any other possible explanation. The matter that is excreted is definitely the common denominator in this affliction. it’s just so bizarre and unmistakable.
I have opted not to refer to this as hairs, fibers, etc. I will let the doctors figure out just what this is. When people say “fibers” it screams SYNTHETIC. I simply refer to it as “matter”, afterall–no one knows what the heck it is. However, I will say that I understand why people do refer to it as looking like fibers.
WHO KNOWS! This could be so many different things. After all, we are living in a world of toxins which we not only breathe in-but we also consume. look at hydroginated oil… what is it? ONE molecule away from being plastic & an ingredient which is in almost everything we eat. We have also been the “lucky” guinea pig generations… we have been fed preservatives since birth. Who knows? Just trying to come up with SOME sort of rational explanation to a seemingly irrational sounding affliction.
“M”, I wish that you would reconsider. You just don’t know until you have the chance to see it and THEN “see nothing”. Until then, how can you be so adamant that you are right. I do believe that you read a lot of nutty sounding comments from people calling themselves “morgies”. SO many of them do sound insane… & unfortunately, so many of them probably have gone insane due to the horrific and debilitating nature of this “syndrome”.
Again, my offer was not in the hopes of merely making some BS point that screams, “please, come on over and let me get you sick”. I told you that I would never wish this on anyone. You seem highly educated and intelligent judging by your writings and grammar… what else do you think could make me have some sort of matter surfacing time and time again?
I have had doctors witness this… I told you that in my last email. I just thought that you all wanted to settle this once and for all. I was only offering a chance for you to see it with your own eyes so that you might have a different take on it.
Also, I would love to tell you my story of how I heard about this kooky sounding illness… you would be surprised. You know how you all seem to think that the Internet is fueling this fire? Well, I believe that the Internet has actually hurt our credibility. I believe that if we DID NOT have the Internet and there were so many people reporting such bizarre symptoms to their docs without having access to computers, surely it would be taking more seriously.
I mean, eventually doctors would meet up with one another at conferences and other “meeting of the minds”… if they began to compare notes… notes from different patients all over the country that who had symptoms as similar as the ones we are all describing, the doctors would be dumfounded. If that were the case, they wouldn’t be able to explain it as some mere “Internet crazy train”–right? think about it.
I will email you my personal story on how I stumbled on to “MORGELLONS” at a later date. It definitely discredits the Internet theory.
You know, “M”… I don’t want to argue or be bashed and more humiliated than I already am. Believe me, if I didn’t think that coming forward to speak my TRUTH and to be a voice for those who are sadly suffering in silence was my only choice, I would have gladly kept my mouth shut and ignored it all. I mean really–it’s not exactly the type of thing you want to go around bragging about. I’m disgusted with myself. It is beyond humiliating. I knew it was the hardest & most embarrassing thing I have ever had to do-but, the RIGHT thing to do.
I don’t know… I’m really scared. I just wish you would not make it so hard for us. Imagine… it’s so grossly horrific and unbelievable that you can’t even believe it exist. Imagine having it and KNOWING it exist. I’m so scared. Sane, but scared.
I will email you more later. Please, don’t go out of your way to humiliate me. One day you’ll understand. I promise you… one day you will feel terrible if you continue to be so ruthless in your dealings with these people who ARE sick. You don’t seem like a horrible person, so why? Why is this so important to you? You should know all the facts if you are going to be an “activist” of sorts.
Again–I have to reiterate one last time that my offer was NOT one of malicious intent. I just want you all to know the truth.
I will email you later. I’m exhausted and have to get some sleep. Thanks again for emailing me back so promptly. I don’t get it. You seem like an okay guy. Again-if you want to post this–go for it. Just know that you are not dealing with some wacky chic that thinks she has “bugs crawling on her”. I have never even had that sensation-ever. Try and be compassionate. To me and every other person who is so scared and so sick. Take care, “M”.
Warmest Regards,
Brandi
Sarah… I actually have video taped this. I had my girlfriend film while I showered in a bikini and got out to dry off a little and film this insane sounding “freak show”.
Actually, my one friend film while her sister pointed out the different fibers emerging from my skin. YES… I did just call them fibers. Sometimes, that’s what they look like. I can understand why it would be so hard to believe because such different types of matter are often talked about. I have different looking sorts of matter that surface just from ME… so, I get how completely INSANE this all sounds!!
This friend of mine is… well-famous. She is going to be helping me make a documentary to show the world what I have to deal with. Then of course, if I opt to put myself and family name on the line, I would do it in a business like manner so that I could turn around and make money to help fund research and raise awareness.
I have to be smart in how I go about making this film and who I let see it for many reasons. I have had business meetings with lawyers and others who will be a part of making this happen.
You see, I KNOW this is real… I don’t have to prove it. I want to take part of this film for all the right reasons. We need funding & almost equally important-we need validity.
Actually, you’d be surprised how many doctors have already begun to study this & take it VERY seriously.
SO, Sarah! Give it a few more months. Dare I say,”great minds think alike”! HEHE…
OH!! Sarah… ONE more thing. I do NOT have tar or bugs coming out of my skin. I do not think that this suff “is alive”! I believe that some of the suffering lose it because of fear and begin to give themselves the “hebie jeebies”.
Kind of like when you watch “Arachnophobia” and you get the “creepy crawly” feeling… perhaps that’s not the best analogy… but, I beleive that because of the REAL symptoms-people get freaked out and start to think it’s “moving” or “crawling out of their eyes”!
Also, certain types of systemic disorders can cause the creepy crawly type sensations. Hence, all the “restless leg syndrome” commercials that have recently come out. You know, there could be some sort of rational explanation for all of this.
I’m sure all of you frequently visiting this site have already talked about the fact that fiberglass curtains were causing people to have similar symptoms back when they first came out and the people who were exhibiting the symptoms similar to the ones I have were written off as nut jobs. They figuredit out in time, but for awhile they were told they were kooky as well.
Well, I will be leaving replies from time to time-so I will talk to you later!! I hope that you all treat those who seem to have lost it with a lot of compassion. These poor people are just so damn scared. Some have lost it. I’m sure that I will catch a lot of crap for saying that-but, it’s true. This disease can MAKE you insane—IF you let it.
I just refuse to obssess over it… you can’t. You have to step back and realize that it could always be worse. I mean there are many disease out there that are untreatable and way more debilitating than “this”. I think we should all be grateful that we can walk, talk, & have not been told that we’re terminal. I figure, I MIGHT have to learn to live with this… so, I am not going to sit around feeling sorry for myself. I WILL try to get the much needed help… but, while doing so–I’m going to live. For my kid’s sake and my own. It’s out of my hands to a certain degree.
Love & Peace to all,
Brandi
Dear Brandy:
I’m real sorry you’re ill, and that the things you’ve spoken of are such are a bother to you. Also, aside from that, I’ve reiterated, many times, that viewing this blog is not good for patients who are unyielding in their belief that they have something they refer to as “morgellons disease”.
You’ve misunderstood what I’d said, last summer, in the topic entitled, “Morgellons On Television”.
Comment #8 Robert said, in closing:
July 29th, 2006 at 3:48 pm
And, I had responded…
Comment# 22 Smileykins Says:
July 29th, 2006 at 7:40 pm
Practice “peace and love”, Brandy, and the AMA.
SORRY!!!! Last post… this questions is for Sarah. I read the wacked out story that has been written about you on the NMO site. They get a little “fired up” if you don’t agree with them on EVERYTHING.
I wanted to ask you what you meant in one of your letters to Greg Smith about having a herniated navel or lupus. Do you feel that these symptoms mock that of the above mentioned afflictions? Just wondering.
I have often thought that I might have Lupus… mostly due to doctors mentioning that it might be a possibility. Nothing was ever diagnosed, but… it made me wonder.
My mind is wide open here. I know there has to be some sort of rational explanation for all of this. I would appreciate anyone and everyone’s comments and advice. I am not so arrogant that I don’t want to listen to any educated person who could help me out here. I AM sick… I need help figuring out why. PLEASE-ANYONE… thanks!
I’m sorry, I didn’t mean to ignore you, Ellen. I’m sorry you’re ill, too. I don’t know you, either. Can you identify what you think that I’ve done to you? Thank you.
Smiley… say what you mean and mean what you say… interesting. So? You were delusional at one point in your life? What did you see? I find that extremely interesting.
I also find it interesting that you feel the need to be snide inspite of my un-offensive intentions.
SO… if this site is not “good for those who believe Morgellons exist”-who are you REALLY TRYING TO HELP? You claim you care and wish to “help people”…
I think that you were called out and don’t want to know the truth… it’s a flight away. You want proof? OR, DO YOU?
Also-my name is with and “I” not a “Y”… so, how were you once delusional again?
This isn’t a “morgellons disease” support forum, and patients who believe they have “morgellons disease” are not my intended audience. If you want to know my opinions, and the state of my health, you may satisfy your curiosity by clicking onto the name, “Smileykins”, or “Tall Cotton”, and feel free to visit the comments’ section, as well.
Brandi,
If you would read this blog you would know that it is not for the Morgellons believer. Our purpose is to keep new people from being suck in to the insane world of Morgellons. You may be married to a baseball player but your opinions are no better than those of any other Morgie. I don’t know why you you would know if you had mental problems. You are such a bag of wind I couldn’t near finish reading your posts. No one said that you weren’t physically sick and we all know that it would be stupid to visit someone that could have anything wrong with them from AIDS to Syphillis. Smilykins , and the rest of us know that you don’t have Morgellons. We don’t fear Morgellons. But like I said you could have something else. HAHAHAHHA
Tall Cotton
Smileykins–
I am not asking for your support in any way shape or form… so, who IS your “intended audience”?
Are you really that caught up in this disease that you opt to try and “draw an AUDIENCE”? HHHMMMM… I suppose you could do that with your past. I mean, I would LOVE to hear about your delusions. Wow! That’s got to be a humbling experience! Seeing things that aren’t really there. WEIRD-but, INTERESTING!
I bet that was scary. I wouldn’t know… so,I was just curious as to what it must have been like to “see things” that weren’t really there. I’m guessing… drugs, stress, a genetic component..? DO tell.
SO, the audience you speak of? What exactly do you look for in an audience ms. “smiley/sad” face. Isn’t that a tad bit childish?
Then again, some people can express themselves with their writings and linguistic capabilities… & then there are those “former nut jobs” that probably SHOULD use “smiley face icons” to express emotion. No offense. I suppose we should all just be thrilled that you are able to type at all. You never know when the keys might start turning into little smiley icons!!
Although, perhaps that would help you out a little. Now I see why you spend so much time with all 2-3 of your friends trying to convince people that everyone else is just as nutty as you were/are. Does misery love company?
Oh… I’m so sorry. I am being SO insensitive. You know-you aren’t the audience I was “looking for” either. I prefer sane people that have lives beyond a keyboard.
You see, I was trying to find out if any of you “so called intelligent” debunkers had any insight into what else this COULD be. I have an open thirsty mind & you… well, I guess I can’t hold it against you that you haven’t quite flown out of the cuckoo’s nest just yet.
Perhaps this is your “therapy”? Try to prove that your sane and everyone else-is not? Well, as someone who does care… I should let you know-it’s just not working there, “smiley”.
But hey! Keep on smiling… you’ll get there sooner or later. Hopefully, sooner rather than later.
LOVE, PEACE, AND OF COURSE—LOTS & LOTS OF SMILEY FACES, “SMILEYKINS”! Such a clever name!!! Keep on smiling!!!!!!!!!!!!!!! XOXO!
Crap is supposed to come out of people’s skin. That’s what bathing is for. There won’t be as much if people will bathe regularly. They aren’t supposed to be obsessing about it.
TC
Tall cotton–
I’m so sorry if I can type faster than you think, type, or read… yes, I have LOTS to say.
SO, considering that I didn’t even BRING UP the fact that I was married to a BB player… was that YOUR little insecurities coming to light?
I actually welcomed you all into my home, so you have some nerve claiming that I think I am better than anyone else. If you are half as educated as you pretend to be… you would know that even if I DID have Syphillis or “AIDS”, it’s not something that is transmitted through casual contact therefore you would not be putting yourself at any risk whatsoever. Unless… well, unless you are into the girl on girl thing? Wait, are you a boy?
Anyway, I do believe that you seem a tad bit threatened by my “long winded” posts. I mean, they DID make a lot of sense, & you wouldn’t want anyone to find out how REAL this really is. Threatened? You sound VERY threatened.
You all need to get a life–& quickly. You sound ridiculous and you consistently contradict yourselves. I could prove it if you’d like? I read & re-read many of YOUR LONG winded posts. I am beginning to think that YOU and “smiley-whatever” have some serious issues.
You still haven’t mentioned WHY you spend SO much time on this. I mean, the one thing that we all need more of, is time. Why not just go on your merry little way and pray that you don’t fall back into your once upon a time delusional state? You don’t get time back.
Again-the truth is the truth is the thruth… it always does prevail.
SO! WIth all I just said about time… I’m out! Your site is a waste of mine! You definitely are anything but threatening. You have all of 3-5 regulars? Go get em!!! You are definitely making the world a better place- I can see that. SARCASIM FLAG!
Oh-for the record. I AM better than you. NOT because of who or what I have… but, because I actually care about people. I am definitely not the type of person to comment about someone having AIDS & then laugh. Careful-I might own the McDonalds you work at one day.
“TC”
“crap” is to be flushed… someone should have flushed you months ago.
What an embarrassment.
I wasn’t laughing at AIDS, or people with it. I was laughing at you, Brandi. You’re a nutcase.
Tall Cotton
Well Brandi, I too have offered to have Dan Rutz and any other loud mouth derm doc to stay at my house. I even offered to make them a nice meal…. I wouldnt be able to pay for the airfare now that my husband has died from this and we no longer have the good income that we WORKED hard for. It wouldnt matter how many videos or photos you show these insensitive people they will never understand all that we have been thru. I also strive to keep laughter part of our daily lives and do as many “normal” things as long as we have the energy to do so. There are many days when they dont so we just deal with that as it comes.
My kids are not covered in sores, the skin happened to be the last common denomanator. One could be covered with hives and the other will have red lines appear out of nowhere. We Laugh. They all have thinning hair and scratch their heads but I pretend not to see. This stuff is to scarey to see. Just like the comments that are usually written on here.
You ROCK Brandi,
Anne
And the fact that you are a nutcase is the best reason of all for not wanting to come into your home.
TC
Please try to be civil folks, harping is not helping.
And no “she’s crazy” is not a fact – it’s an assumptions and a simplification based on scant evidence, much like “Morgellons”. What are the facts here? And by facts, I mean things like numbers.
Anne Dill,
If someone were invited into your home and caught whatever you have, as a result, it wouldn’t prove anything. It might mean that you have “Something” that is contagious, then again, it might not. But there’s still no reason to believe that you, or anyone else, has Morgellons.
We know that your husband died of ALS. Isn’t that what’s on his death certificate? I wouldn’t mention it, but you brought it up, and like all Morgies, you blame everything on Morgellons. That’s pretty silly, despite the fact that Morgellons doesn’t exist.
This is about what you all may or may not have gone through. It’s about Morgie mothers and fathers abusing their children. It’s also about spousal abuse, and the abuse of the people that morgies recuit into its crazy cult. People need to quit accusing us of not having compassion. We aren’t the ones that are destroying people’s lives. Morgies and quack doctors are.
Tall Cotton
Michael,
I think that she’s shown us plenty of evidence that she isn’t playing with a full deck.
Tall Cotton
Who here claims to have a full deck?
Sure it’s easy to characterize people, slot them away. And it may well be that your impressions are somewhat reasonable. But it’s not helpful to insult or demean people.
I set this blog up initially for some skeptical notes of my own, and then kept it for catalyzing rational discussion, and as a resource for other people looking at similar things. Of course, people being people, things get nasty in the comments sections. I would prefer it otherwise, but my options are limited. Hence I simply ask you kindly to be polite, which I feel is more productive for everyone concerned, on all sides of the discussion.
With all due respect, I think Mrs. Koch has shown a very good description of what “morgellons disease” is. For her, it’s internal and external wastes that come out of, and off of, her skin. This happens when she perspires, and when she bathes. She also feels ill, and has been told by her family that she is.
Concerning the wastes coming from her skin, she remarked, “Admittedly, these symptoms sound completely insane and downright unfathomable. You are right-seeing IS believing.”
Like others who believe they have “morgellons disease” she is failing to grasp, through no fault of her own, that the delusion is the incorrect thought about what they’re seeing, and feeling — it is not that there isn’t anything there. They misinterpret sensations, and debris, and have been encouraged to continue along their paths. The belief in “morgellons disease” appears to have dissuaded her from pursuing investigation into lupus, upon the suspicions of several doctors.
Without question, “morgellons disease” is bad for the people who believe they have it.
Isn’t it amazing how Liz made a new thread to tell her fellow Morgies what was being said about about them on this blog, then she, and others, proceeded to talk about us. The difference is that everything we said about them is true, and most of what they said about us is lies.
We’re accused of reading their forum as if we are spies, yet they read this blog, and to them, that’s okay. Most Morgies are hypocrites. And most of them are liars.
I won’t say that they aren’t compassionate toward “some people”, but it’s only toward their own. They’re mean as hell to people that dont believe their bullshit.
Some of them even abuse their spouses and children. And anytime they welcome a new member it is abuse. They even brag about it on their forums. When they teach their children that their sufferings are because of Morgellons and instill fear in their hearts over something that does not exist, it’s child abuse, whether or not they’re too ignorant to realize it.
I’ve told them the truth, up front and bold. I’ve also snuck up on them with the truth. I’ve spoon fed it to them, and I’ve slapped them in the face with it. Ive tried to humiliate them by showing them their insanity, but they’re unshakable in their error.
One time I thought I had Morgellons, but you can’t say I havn’t until you change that ridiculous case definition, everybody has Morgellons, everybody in the whole world, even though Morgellons is a lie.
I’m telling the world the truth of Morgellons. Newbies don’t go near their cults. It will suck you in and destroy you. Now those are the facts. Like it or not.
Tall Cotton
[Edit by Michael, fixed formatting problem]
They’re ill in a way nobody can do anything about.
Smileykins… I know it’s so sad… all these mentally ill people coming out of the woodworks from everywhere. If only we could all be as sane as you.
“TC”–CAREFUL, I kmow how slow you read,so this might be a tough one for you… it’s pretty LONG!! Remember your “sight words”!
I told you that I have received validity from many doctors, family, & friends who have WITNESSED this matter coming out of my skin. DEBRIS? I also told you that I have had it video taped & am working with someone who is very well known to produce a documentary which will give everyone a hell of a “show”.
My question to SARAH-NOT smiley or TC… was if she has ever heard of anyone with lupus having black specs, fiberous looking matter, or anything of the sorts reported in case definitions as one of the symptoms of Lupus. You see, I am open minded and looking for a rational explanation as to why this is happening.
I find it amusing how angry you get when people who believe something is going on-the “something” which is being called Morgellons… well, whenever they make decent points you try so desperately to put them down and discredit them, but it really just makes you all seem less credible.
Here I come on this site with an open mind, wondering if you all have any explanations as to what this COULD be (BEYOND DOP). Instead, of acting like grown adults, you began ranting and raving about things that weren’t even said. For example-saying that I’m not listening to my doctors when they suggested Lupus? NOT TRUE. I would be thrilled to find out that I had Lupus so that I would have a diagnosis and would then be able to plan (WITH MY DOC) a “course of action” in which to take. You are only making yourself look bad TC by twisting and turning my words. You are “making fun of me” you said? WELL, you know what they say, “guilty dogs bark”! You sure do alot of barking!
Smiley,I think you are all scared. You still haven’t bothered to explain just what the purpose of you spending SO much time on this site is. You claimed that I was “not the audience you were looking for”. AUDIENCE? Are you sure your no longer delusional? Last time I checked, this wasn’t a play. If it were… there would have been a casting call & I am almost positive that Michael would not have even called you back in for a second audition. I mean really, your credentials consist of being a former nut job. I am still not convinced that “former” should be in front of the nut jub in your case. Do we make you so sad that your little smiley icon looks as though she’s going to cry all the time? Let me guess-it smiles when you get to put someone down, or think that you have a halfway decent comment to make for once. MAYBE-you should let all the other poeple posting judge whether your comment deserves a “frown up” or a “frown down”. So, an embarrassment? Yes, you should be embarrased. It’s a tad bit immature.
You know… you all should really get a life! You don’t know me. Tc bust out with, “just because your married to a BB player doesn’t make your opinions more valuable”. Yeah, well… it doesn’t make them any LESS valuable either. You wanted proof? I offered it up. You don’t want proof. What would you and your little smiley friend do then? I was serious about you coming here to see the fibers emerge from my skin with your own 2 eyes. You don’t even have to stay with me. Want a hotel? You see, I think that it would be more likely that this is infectious vs contagious. I beleive it’s probably environmental. When I put that offer up, I meant it & I will tell you that you would have all been treated with the utmost respect from very nice lodging to delicious breakfast lunch and dinners– OUT. Instead, you chose to eat your words. You had to get all frazzled and start throwing low blows and little verbal digs.
My docs are on my side and trying to figure out what’s going on. They know that I am not delusional. Mny docs are figuring it out which is why I guess it made theMorgellons Disease – Yahoo Live Science #10 In Hits
http://www.livescience.com/humanbiology/top_10_diseases-10.html. Feel free to check it out. I was only going to let you see what my docs have so that you would know WHY this is finally being taken seriously. I had a derm find them on ME while I just laid there. She was AMAZED.
You all try to act as though I’m hanging out in my house diagnosing myself and settling for some creepy diagnosis that so far-has no ryhme or reason. I am working with the SAME doctors who are all writing papers to be published in medical journals on what they KNOW to be true. At this point and time-you have lost your “audience”… the race will now consist of top doctors from around the world trying to figure out what is causing all of this. SO, my advice to you? Hang your running shoes up-you already lost your ill intended “race”.
Oh-Michael… thanks for defending my sanity-sort of. Again-thanks.
TC, still thinks I’m not “playing with a full deck of cards”,BUT- reading over the post from last night I’d have to say he got “TRUMPED”, or in simple terms-linguistically slaughtered!
“M”, I do appreciate the classy way you think before you type & although you disagree-you are not ruthless in how you express yourself. I know I became a tad ruthless last night-but, hey… I’m only human. I’ll work on that.
Warm Regards to “M”,
Brandi
When something unintentional accidentally triggers a person into thinking there has been a personal violation against them committed, I don’t know what to do. It might help you, Brandi, if you calm down and list what you believe I, as well as TC, have done to you.
I’m getting tired of using the words,”I’m sorry”, but you had previously said:
Brandi, I think it would be a good thing for you to print this entire topic, and comments, and go talk to a therapist. Print out TC’s & my blog, too, so they can help you understand your comments here, toward permanently disabled persons.
Good luck, too. You seem to have a lot of issues.
I shouldn’t have even made that distinction about our disabilities, but you did. It’s never okay to talk to anyone like you are.
I really dont know why I am even replying but the comment “we all know your husband had ALS” triggered the need to inform you that you all dont know what your talking about. On the death certificate it said respitory arrest. He had full lung function. He had a alergic reaction to the antiobiotics for the MRSA infection he got in the hospital.
Tom was diagnosed in the beginning of his illness with ALS. He began with vomiting, extreme fatigue, personality change, Thick rash on his trunk, arms, and head. Severe itching, sweating with a strange oder. His arm tingled and became weak and hot. He did have the twitching that is seen in ALS.
He later was hospitalized for sudden weakness and severe headache, and confusion. Tests were run and he did test positive for a toxocara antibodies, and was treated with albendazole for 5 days- in rehab for 3 weeks- He regained strength in his arms and was able to feed himself and dress (he couldnt when he went in) His cognitive significantly improved (neuro-Psych testing to prove this too) he was walking and regaining strength every day. Then he developed kidney stones and another emergency surgery. Our infectious disease doctor had moved away at this point and once again lost any support system we had in the medical community. She did however report this to the Health Department and CDC with no reply on assistance.
I have never told any physician that I think I have “bugs” in my skin, in fact I have never said the word “bugs” YET the media seems to add that every time.I also have never said Morgellons to a doctor. Since Toms death my dad has been diagnosed with ALS/multiple neuropathies- and has lesions on his head? I too have multiple neuro and my youngest has a slight drop foot now. We do see physicians who think that the CDC is actually looking into this.
I could go on and on but have better things to do than this. I dont know what it is that you are trying to acomplish here because you keep saying the “facts” are and you are so wrong. It seems to me that you are just trying to be mean.
Anne, I’m sorry about your health, your father’s, your childrens’, and I’m very sorry that you lost your husband, and that it was misrepresented on television. We have The American Medical Association for a good reason, and nobody is trying to be mean to you.
If anyone can, since we have some “morgellons disease” patients here, now, what is it that you’re trying to accomplish, that you couldn’t already do, before going public about what you think you have wrong with you?
Brandi Koch, thinks that taking antidepressants for about five years, while I was trying to adjust to my physical disablement, qualifies me as being a “former nut job”. Considering things from the “morgellons disease” patients’ perspective, especially that of those who’ve been involuntarily committed, this woman is not a good spokesperson for your illness. From my perspective, she’s representing the disease beautifully.
Brandi Asks: I wanted to ask you what you meant in one of your letters to Greg Smith about having a herniated navel or lupus. Do you feel that these symptoms mock that of the above mentioned afflictions? Just wondering.
I do not think that herniated navels nor lupus mock symptoms of “Morgellons.” I think many people delude themselves into thinking they have “Morgellons” and consequently attribute all physical sensations and conditions to “Morgellons.”
From Brandi: “My question to SARAH-NOT smiley or TC… was if she has ever heard of anyone with lupus having black specs, fiberous looking matter, or anything of the sorts reported in case definitions as one of the symptoms of Lupus. You see, I am open minded and looking for a rational explanation as to why this is happening.”
I have heard of people with lupus having black specks and fibers. I’ve heard of people with a yeast infection having black specks and fibers. I’ve heard of people with an ear infection having black specks and fibers. That’s because black specks and fibers are everywhere.
“I find it amusing how angry you get when people who believe something is going on-the “something” which is being called Morgellons… well, whenever they make decent points you try so desperately to put them down and discredit them, but it really just makes you all seem less credible.”
Angry, like, making silly, nonsensical fairy-tale stories, and writing intimidating emails?
Decent points? Like what? Name one decent point. That’s what I’m so keen to see.
Seem less credible? Like making little cartoon animations of people’s faces?
Oh, Brandi, you’re too much!
Sarah…let me tell you something VERY important. I have NO affiliation with the “NMO”. I think that they are a bunch of wackos.
Actually, you could ask Michael what I had to say about the freakish “fairytale” they wrote about you. I didn’t even know that it existed until one of your friends here enlightened me and told me to go check it out.
You know what I said? I said that it was the most ridiculous thing that I had ever read & no wonder people think that they are quacks. I also commented that you were a beautiful girl.
Sarah, again- I do not have ANY affiliation with the NMO. They are ridiculous. The name they chose is absolutely insane & almost every other part of their site as well. I mean for goodness sake-they have their pets “communicating” about how “they have Morgellons”. I think it’s pathetic.
Whoever wrote that story about you is clearly NOT playing with a full deck.
I was so disgusted by their site that I wrote them an email demanding that they “cease & desist” from using my picture on that site before my lawyers get involved. Which, BTW, they never asked to use my pic in the first place.
I was communicating with them, until I saw how kooky they were. I NEVER even knew they had a story up about you until yesterday (or the day before). Ask Michael.
So, please do not lump me in with “them”. Just as on THIS site, some of you seem credible while others clearly do not… well, the same is true for ANY group of any kind.
I am not a part of the MRF either. I was at one point, but now I am not-by choice.
Brandi,
I apologize for sounding like I was lumping you with those folks. I should have taken more care. I will still take issue with your comment, that you seem to be under the impression that skeptics of “Morgellons” are desperately trying to discredit decent points.
As of yet, I haven’t seen any decent points in peer-reviewed, published literature. The less-than-decent points, which permeate the “proof” of “Morgellons” don’t take much effort to discredit, much less any desperation.
“Smiley”… you are just grasping at anything now. You are disabled? HHMMMM… maybe it’s all in your head? You sure you aren’t imagining it?
Because, I happen to have a bit of inside info on almost all of you & your little story you just told… well, I don’t buy it. Maybe you are delusional & just faking it to get attention? Yeah, I’m sure that’s it.
How does that feel, Smiley? Pretty crappy-right?
However, you have said that you were delusional at one point and time and now you change your story? Interesting. Perhaps that is your lame attempt at gaining sympathy since you can’t seem to make any decent replies in regards to the points that I have made.
You seem to think that I am the one who is making the cruel remarks? Wow… don’t dish it if you can’t take it.
“NO ONE SHOULD TALK TO ANYONE THE WAY YOU DO”. WAH!
You have been mocking and treating people like crap for what looks like months. What? You have a disability and you think that gives you the right to be a bitter b—-?
We ALL have problems. OH, & remember–this IS NOT a support group for being physically disabled. You have no compassion for myself and those that are suffering with this very real affliction, & you think I should have compassion for you and your “disabilities”?
GO out and make a life for yourself-disabled or not. There is no need to sit around feeling sorry for yourself. Do something good VS trying to bash other people who are sick.
Yes… I have many things to say when someone talks out of their a– claiming that your here to help, but all you do is continue to talk out your a–. I have reiterated my points/questions/concerns per request, but you STILL don’t have anything useful and/or meaningful to say.
You also now are claiming that you were never delusional-but, I have it in writing-YOUR writing. I will post it if that’s okay with you?
Lastly, I speak for myself. I am done. You all are about to look extremely foolish soon. There is no point talking to any of you. I made my points. Apparently, a little too well. Enough to make you feel the need to use your “disabled card”.
Good Luck, I’ll pray for you.
Brandi,
There isn’t anything wrong with my reading abilities, or my reading comprehension. I choose what I read, and the things your write, bore me. You aren’t saying anything we havn’t heard a thousand times. You are just as delusional as the rest of the Morgies, and you are no more sane than the members of the NMO. You are all nuts. We have told you Morgies over and over, on this blog, why we are here. It’s not our fault if you don’t know how to read, or can’t comprehend what you read. You have clearly demonstrated your insanity.
Tall Cotton
Brandi,
No one said that you aren’t sick, or that your experiences are all in your head. What makes you delusional is your beliefs. Morgies can’t seem to understand, it isn’t about what they experience. It’s about what they believe about what they experience.
If you believe yuo have Morgellons disease, that’s a real good indication that you’re delusional. There is no Morgellons Disease, and there is no good reason to believe there is. You have no worthy evidence….none of you.
You Morgies have a variety of physical disorders. But the one thing you all have in common is DOP. By the way, Smileykins knows more about medical science than you have the ability to learn. She doesn’t lie, either! And she isn’t a bitch. Too bad that can’t be said about you.
You Morgies argue with people that know what they are talking about. It’s not that we think there isn’t a Morgellons Disease. We know for a fact that there isn’t. If anyone is talking out their ass, it’s you.
You Morgies are hurting a lot of innocent people with the lie of Morgellons. You talk about compassion. You’re a hypocrite. Where is your compassion for the Morgie chidren that are abused by their parents? Where’s your compassion for the spouses that have to put up with your delusions, until your fantasies finally become real to them? Where’s your compassion for the pets that the Morgies have neglected until they died?
You can keep running your mouth, buy you’re your ass.
Tall Cotton
Annie Dill,
If your husband didn’t die of ALS, then I apologize. The main point is, he didn’t die of Morgellons. No one has EVER died of Morgellons. If you’re confused, it should say on the death certificate. There’s no need to blame it on something that isn’t even real.
Tall Cotton
* Brandi, you addressed your letter to me.
* I explained you had misunderstood.
* You said you thought I was snide, inspite of your un-offensive intentions.
* In comment #9 you asked if anyone could help you.
* You asked about my health.
* I said this isn’t a “morgellons disease” support forum.
* I said you could satisfy your curiosity about my health on TC’s & my blog:
http://of-morgellons.blogspot.com/
* In comment # 14, you said to me, “I suppose we should all just be thrilled that you are able to type at all.”
* In comment # 16, you said to TC, “I’m so sorry if I can type faster than you think, type, or read.”
* You said, “You seem to think that I am the one who is making the cruel remarks? Wow… don’t dish it if you can’t take it.”
I’ve asked what you believe I have done to you. I explained that you’d misunderstood my comment to a stranger inviting everyone to your home last July. Either tell me, or shut up.
Print whatever it is that you have on me, first, if that will make you feel better. I don’t hide behind lies.
hey small, keep running your mouth dumbass
Oh, Norman!!! I have missed you so much. How have you been, and how is your mom doing?
Okay, it’s a new day, and I’ve tried to review this weird topic thread. From what I can make of it, and correct me if I’ve misinterpreted it:
* You think that we (especially, I suppose, “I”) have had you on our/my mind(s), Brandi.
* I know TC & I haven’t, and you feel that we all need to.
* You want me to believe that you think I’m on this blog looking for sympathy for myself by pretending to be here wanting to help people like you.
For whatever reason you have for caring about what you think others think about you; for whatever reason you’ve directed your focus on me; if you need to, read this blog’s comments’ section in the April 2006 archives and work your way up to the present. Normally, I recommend reading topics, and skipping comments.
I said a long time ago that I’m not equipped to deal with people like you. Based on my experience in having given it my best shot, in the past, there is no point in anyone (other than a paid professional) wasting time trying to find any way of attempting to get “morgellons disease” patients to understand anything. I think the only help any of you can find is through medication and therapy. If you could only get honest with yourself, first and foremost, you might be able to realize that if people in your life go along with you, it’s because you make them, or else.
I’ll be frank, now. By taking your illness mainstream and demanding the government to step in, I think it looks like this movement is wanting to set mental health reform back in time.
I’m truly sorry for being that honest about my interpretation, but I am hoping to clear up something for you, however futile it is, about my opinions on this situation. That was why I’d asked, what do you hope to accomplish with this, that you couldn’t have already done, before going public with what’s wrong with you? I’m not trying to be uncivil, I am trying to rationalize this. If quacks to treat you is all that you want, they were always there to begin with. Right? You could have done that without the government.
Smiley, Tc-.
My compassion for the animals and children that are NOT being abused?
You don’t KNOW that this illness does not exist-you ASSUME it does not. How could you possibly KNOW this does not exist?
I happen to KNOW that is exist-I have the proof.
You both make yourselves look ignorant. You can’t come up with any decent rebuttal beyond insults. It’s ammusing, really.
TC-if my post “bore you”-don’t read them & don’t respond. I highly doubt they bore you considering you spend half your life on this site just waiting for a chance to insult someone.
You are both scrambling now because the truth is about to be revealed. I will be interested to see how you maintan your composure after the truth is revealed.
In regards to my “snide commnets”… I shall re-phrase. I respect everyone who is worthy of respect. You insulted me, as did “TC”. You bite-I bite back. Believe me, I didn’t say half the things I wanted or could have said.
You are talking out of your … you don’t KNOW anything. Where is YOUR proof? Really? I offered you proof of what I have to say. Where is YOUR proof. Up in your twisted little mind? Disabled? Mentally disabled, at best.If you are mentally disabled let me know & I will definitely treat you with respect and understanding.Otherwise, I owe you no compassion or respect. You are not kind and have hurt too many people for me to respect you enough to sugar coat what I think of you.
You all got angry because all that I have said makes sense. All you have to say in return is, “your DOP, your DOP, your DOP”… Come on. Give me something I can use? You say that all I have said has been said a million times? HA! Read through your pathetically spent time posting the same things & the same insults-over and over and over and over. What will you do when your disturbed brain runs out of insults? Move on to torturing people with Parkinsons? You just make no sense & quite frankly, you truly seem to be the one who is mentally ill.
“TC”-you must be bored to spend half your life trying to convince others about something you truly know nothing about. YOU don’t KNOW either. You all are very strange. BTW-you don’t know if Smiley has more medical training than me. You don’t know-you assume. You make assumptions & never state facts.
So, your motive… is to “save people” from Morgellons–oh wait… believing that Morgellons exist? You don’t even know if it exist or not yourself so what good are your opinions? You don’t have it. You are GUESSING that it doesn’t exist.
Smiley asked what I think she did to me. Well, Smiley… I think that you are a coward. I feel that if you devote so much energy on your “cause”-you should KNOW what you’re talking about. At the very least, you should take an oppurtunity to find out. I have no respect for you-that’s all. You have spent so much time doing “this” when you could/should have found a worthy cause where you actually helped people VS wanting to hurt them.
You claim to be altruistic worrying about kids and pets being abused. If children were being abused the dept for “Child & Family Services” would have intervened by now. Yes, I know that there are a FEW cases where they have-but, perhaps those children WERE being abused.
You know what I think? I think you are abusing the children who have been unfairly dealt a disease such as this… you are abusing them by TRYING to make it harder for them to get the treatment they deserve & NEED simply because YOU don’t beleive it. You are also abusing them by not validating their fears & concerns. If a child (mostly, older children) SEE matter coming out of their skin, don’t you think they know it’s not supposed to be happening & that it would be terrifying for them? How about if the people they are supposed to trust (beyond their parents) to help them feel better and get well (doctors, & other people within the medical community) were to completely ignore it because it seemed “hard to believe” & was not in the medical journals-YET. I think you and TC need to take a good look at who you are and work on improving yourselves before you go around pointing fingers. You want to make the world a better place? START THERE.
If animals were being abused… why hasen’t PETA stepped in? The animals are not being abused. Also, my point about the pet page on the NMO? Right now, we are working on gaining validity so that our children and we ourselves can get help-any website that makes us look foolish by people “talking for their pets” is actually going to DELAY the process of getting them help. It just makes us all look bad. Simple, really. You seem to be lacking commen sense as well as the compassion you claim to have. Talk is cheap, smiley/TC. Some more than others.
You all don’t stand a chance at winning any debate with me. The reason is very simple. You can’t argue with the truth & again-it WILL be revealed. I’ll try desperately not to say, “I told you so”… & if you ever are unfortunate enough to get this horrific disease-I’d be the first to lend you a ear, hand, anything I could possibly do to help. Hopefully, this will be figured out and wrapped up before you ever have to share the same fate as me. You know one way to know you’re not a very good person? When hundreds of sick people secretly wish you’d fall ill in the same manner they have… you might want to think about that. Again-I wouldn’t wish this on my worst enemy.
SMILEY SAID——* You think that we (especially, I suppose, “I”) have had you on our/my mind(s), Brandi.
* I know TC & I haven’t, and you feel that we all need to.
* You want me to believe that you think I’m on this blog looking for sympathy for myself by pretending to be here wanting to help people like you——I SAY, THEN WHY THE HELL ARE YOU ADDRESSING ME?
SMILEY… people go along with me-or else? LOL! That could be ONE of the dumbest things you have ever said… & believe me, you say a lot of DUMB things.
As far as caring what people think of me? Well, let’s work on that common sense once again… I wouldn’t have gone public if I really cared. I went public to help people.
OH… “quacks”… once again-you are making assumptions. You don’t know my doctors.
SMILEY SAID—— I said a long time ago that I’m not equipped to deal with people like you. Based on my experience in having given it my best shot, in the past, there is no point in anyone (other than a paid professional) wasting time trying to find any way of attempting to get “morgellons disease” patients to understand anything. I think the only help any of you can find is through medication and therapy.
I SAY——— of course you can’t help anyone else! You can’t even help yourself, let alone anyone else. Get over yourself. You are pathetic. If you say I’m not on your mind. Stop posting. I am posting to make valid points on behalf of anyone & everyone suffering with Morgellons, as well as to give anyone on the “fence” about whether or not it exist–the real story.
YOU are of no help to any of us and I am not asking for your help. That’d be like asking a dog to teach me to speak English. Keep on barking, Smiley!!!
Dictionary OF “SMILEY SYMBOLS”
* = your about to read something really dumb
Brandi,
I appreciate your candid, truthful and valuable information regarding Morgellons. I know it all to be true. I have Morgellons as well. I also have a master’s degree, have run many marathons and know better than to listen to the narrow-mindedness of some of the bloggin’ fools. I know I recently had to leave my profession of 23 years, can not endure the physical challenges that I used to, and need to save my children from this horrific illness. Shame on any of the people who live in a box unable to realize that life is bigger than them. Ignore their insecurities and ignorance, Brandi. We need you!
Thanks to you, and to others that help educate the less fortunate people living in a medical world of the dark ages, we will get the people to listen. It is all about openness, not agression. The “agression” is triggered by those who just don’t know how to grow. You go, Brandi!
It´s a funny thing that one of the Morgellons.org founders apparently has Munchausen by Proxy…
I don´t live in the US,but in a small northern European country.For some time my sister in law(referred to here as “D”) has been suffering from a skin condition no PhD seem to be able to identify.They call her nervous and dismiss her with a prescription for anti-anxiety drugs.
I´m not a Morgellon believer myself since many sites seem to be too far out in the conspiracy/UFO-sphere to be taken seriously,I´m sorry but that´s how I feel.
I´m anxiously waiting for SERIOUS reports,not coming from UFO-sites and conspiracy theoretics.
Whether Morgellon´s exist or not,it´s a hell for the family when a family member is so totally into Morgellon´s that she is beyond reasoning about possible other causes.My other sister in law,the one that´s not sick(referred to as “C” here),is very intelligent,well-read and most of the time reasonable.Now “C” talks about genetically manipulated virus sprays,”authorities” such as Hildegard Staininger(with whom she has spoken to on the phone),chem trails and that the only possible cure for her sick sister is “living food”.”D” has become even more depressed from this-of course she has Googled on Morgellon´s herself.
“C” also made life hell for all of us with her talk about Morgellon´s,including her sister who herself is convinced she has some kind of scabies or Lyme disease.
I´m not saying people aren´t sick.My sister in law is definitely.But being sucked into some internet diagnosing loop is harmful for someone already in a vulnerable position.
Morgellon´s is an open field for anyone looking for some internet fame,paying the price are the people who are sick in one way or the other,AND their families who don´t know what to believe anymore.
I´m not criticizing anyone but those who seem to find excitement in publishing different kinds of unconfirmed crap on the internet.
Cecilia,
You almost sound like you are a mature, open adult-minded woman. I agree with not jumping on a band wagon of illnesses, and I also agree that the internet lends itself to just that. That is why, other than today really, I do not post info. on these sites. I was looking for something, know of the Koch story and then became irritated at how Brandi was being judged, then I chose to remark.
I do hope your family members find health. Whether this is from chemtrails, a nano-machine loose in our world or from a nemotode of cotton, People need to look, listen and learn. Oh btw- I do have chronic Lyme as well.
I want ALL of you to know that I am not responding to set up a comment for debate.
Seems like ALL of you have enough fuel for the fire already. Rip each other apart for sport!
This is a statement for all those out there who have family members who are sick, and are freaking out just not knowing for sure ( is it real? If so, Is it contagious, etc.), because the medical community is not ready to spill on what they actually know yet. I felt the need to give comment.
First of all, to all of you who suspect that you have “Morgellons” God bless and be with you. For all the debunkers, or people in denial, Bless you too. I understand your points and how you feel also.
I will not get into the mud fest that has been going on over the past while.
I say Stop It!
You are all surely bigger people. This blog honestly sounds like a domestic dispute gone bad.
That is why I just want to make a statement here.
I am a complete cynic.
I see the angles of what you are saying with the mental illness, and parasitosis, etc. I researched it for 2 years. ( however since it has not been classified as a “REAL” disease what can you really find? I deviated to auto immune diseases.
I questioned it all myself for quite a while.
I was ready to get the net for those who were making these claims too.
I have to be upfront and tell everyone that I have Lupus. (It is a rare form so I am told. They call it Verucous Lupus. Took 12 years to diagnose it. Thank you University of Michigan and Dr. Anna Taylor).
With that being said, I’m going to weigh in here.
I want to tell you that I took the time to read back before I wrote this.
And now I say to all of you with too much time on your hands,,,
STOP IT, STOP IT, STOP IT! You are all so focused on BEING RIGHT that you have lost the true bane of your legitimate arguments.
You have all turned to dissin each other,instead of sticking with the known facts.
Stop it and re-focus here. Enough Yaddah Ya.
Take time to read what is written NOW,(by qualified med people), and regroup your thoughts, BEFORE YOU SPEAK. That’s how reasonable intelligent people do it. Right?
I have a family member who claims they are sick.
I am with the debunkers.
I was told that she was a nut. ( drug addict)
I believed it. FOR 2 YEARs.
I had not talked to this person for 8 years.
She was outside the family.
After I kept hearing the scary stories, I actually contacted her.
I just had to see for myself. ‘
“Was she a nut? Was she making the kids think they were infected too? That wouldn’t be right, would it?
I am sick. I mostly keep to myself. ( anyone who is chronic understands. You don’t have energy to fight battles that aren’t yours. You let things go).
However, being sick( documented.) I just had to know.
Any woman that reads this knows how hard it was for me to call an ex-sister after 8 years.
It was about me and my family. It was ODD.
So I tell all of you who click in now… “Morgellons” I hate the name too,
makes everyone sound like a nut, due to the beginning of it all…
To take a moment and think.
Final comment: Healthy people don’t really give a SHITE. The world is a rosy place when you have it all! No one cares until they,or their kid gets sick. Thats a FACT JACK!
If you folks aren’t sick, and you aren’t physically sick, why do ya get your willies of on writing all this sick stuff?
Love & Light to everyone.
Brandi, I have only addressed you because of:
Brandi Koch
Posted by Michael on April 8th, 2007
To: Smileykins…
That’s all.
When I had said, in comment #37:
When I reiterated that, in comment #54, it was preceded by my explaining what I feel about your movement forcing the government’s hand, and that I have no desire to try reasoning with anyone who thinks they have “morgellons disease”. I added to that, a generalized question, again, about “the morgellons disease movement”, not aimed at you (unless you chose to answer it), when I’d said, “If quacks to treat you is all that you want, they were always there to begin with. Right? You could have done that without the government.”
I wasn’t addressing you, and calling your doctors quacks. I don’t care if they are, I don’t care if they aren’t. Brandi, I do not care.
Why do you need me to? Who AM I, to you?
Since my opinion matters to you though, if they are accredited AMA members (like, perhaps, the reported 10-40 doctors, on the average, that diagnosed the group of patients with whatever they vehemently disagreed with), then, that’s not the type of doctors I was referring to.
You’re an excellent poster-child for “the movement”, Brandi, a real hell-cat, and you even helped sum up a lot of what “morgellons disease” is, all about, without realizing it, right here:
I don’t gauge my character on what “morgies” think about me. You’ve told me to stop posting. Who are YOU, to me? Answer: Nobody
I’m gonna hang back, now, and let em go, MG. Don’t worry about me. I learned with Aherah.
Well, I will exit today by complying with something to make someone happy.
Brandi, you make wonderfully educated, intelligent, and very valid points. I believe that you’re a victim of a new plague called “morgellons disease” and I hope the government can do what is needed to help you.
I apologize for that, MG, but surely you have to see that she needs my validation.
You know, Smiley… that’s exactly the problem. YOU can’t stand that I DID indeed make intelligent, valid points… do you really think by your “snide patronizing” you PROVED something? Comical. It’s only a “compliment” & “way fo making someone happy” IF you don’t feel the need to post a “prelude to an insult” as well as a “closing cut down”.
YOU-are NO ONE to me either. Well, I take that back. EVERY person is SOMEONE to me. I value people’s opinions & people in general. I like people. It’s just who I am.
Now, You keep asking, “why me, why me?”… well, I offered you a chance to come and see for yourself MY proof. If YOU had proof that it did not exist and made the same offer to me, I’d would have taken you up on it.
YOU, don’t REALLY care about anyone but yourself. You don’t care to know the truth…
You try to act so innocent as to why I am addressing you. HELLO… you have had plenty to say to me. I answer and address you because you and your buddy “TC” are the only staples here. You TWO are the ones running your mouth,CONSTANTLY.
Practice what you preach!!!! If you can’t take it—–DON’T serve it…or”dish it” as you prefer to say! YOU leave yourself WIDE open… who ELSE shall I address? You are the only person ranting and raving 24/7.
I would also like to say that it was so amusing what you said about “one’s spouse buying into their FANTASIES”… WTH? I don’t know about you, but I sure as hell have NEVER had a fantasy which includes weird matter coming out of my skin. YEAH… just what I’ve always dreamed of!!!
If you feel threatened by my opinions and feel the only way you can get out of looking like a fool is to make it very clear that you are PRETENDING to compliment me… so be it. I should warn you–it’s still VERY obvious that you were cornered by your own ignorance & hung yourself.
Hey. I accomplished EXACTLY what I wanted to…
Brandi,
You are most sadly mistaken. I do know for a fact that Morgellons is DOP. If you would study how this lie began, and how it evolved, you might understand. The Morgellons community is also filled with a lot of other mental disorder. You could learn a lot by reading this blog, instead of running your mouth. I know for a fact that Morgie children are being abused. You wouldn’t know the truth if it jumped out of a bush and bit you on the ass. You havn’t offered any evidence that Morgellons is a disease, or even that it exists. You may have some physical disorder in addition to your mental problems, but you not have Morgellons. I don’t care if you believe it or not. Read the blog. Why should we repeat everything that’s been said, just for your education. And yes I do know you aren’t very smart on medical matters. The fact that you believe in Morgellons is proof of that. Can you slow down a get a grip on yourself. You’re coming apart. Oh, you’re mistaken again. I don’t read half of the nonsense you write. You need to go back to your trailer.
Tall Cotton
One morgie thinks that I’ve been in her home, already, Brandi, and that we’ve worked together on church projects. She also thinks she has pictures of TC & me, and that we live right down the road from her. She really has “morgellons disease”, too. I think all of you do.
I beg to differ! She could not learn anything by reading this blog.
Don’t read this blog. Look what confusion it causes to morgies. Just tell them you believe them, and make them content.
“TC”- your write like a 4th grader. Read your post.
Smiley-STOP addressing me, you freak… we go to church together? WTH? you are SSSOOOOO out there. Someone ought to Baker act you. Oh wait-you alraedy have been.
Oh… excuse me, Smiley. You were talking about someone else (another Morgie). I know who. Let’s just say her name begins with a k…
I don’t have to “think” anything… yeah, “TC”, I’ll go back to my “trailer”. HA! My pinky ring cost more than you will ever make in a lifetime.
My IQ is also higher than what you weigh in at… & that’s assuming that you are a large “bitter Bob/Barbara”.
TC SAYS——————The Morgellons community is also filled with a lot of other mental disorder.
I say———————– and the world of “tall cotton” is full of bad grammar.
“TALL COTTON” SAYS———- You may have some physical disorder in addition to your mental problems, but you not have Morgellons.
I SAY——————— “BUT YOU NOT HAVE BRAIN”
TALL COTTON SAYS————————-And yes I do know you aren’t very smart on medical matters. The fact that you believe in Morgellons is proof of that. Can you slow down a get a grip on yourself. You’re coming apart. Oh, you’re mistaken again. I don’t read half of the nonsense you write. You need to go back to your trailer.
I SAY——————————– and yes, I know your not very smart in general… go back to your box beneath the bridge & remember… be careful, I just might own the Mcdonalds your denied a job from one day.
“TC”— you mentioned that “smiley” is more educated in medical science than I am? What is your level of education?
I guess I should go back to my trailer and figure out which PI I should hire to find out all about you! YOU are just SOOOOOO interesting, I can’t resist.
You know, if you keep it up… I might have to buy your entire trailer park just to boot you out. Oh wait-you only WISH you owned a trailer! I could buy you one if you’d like… you know, for a tax write off.
USUALLY, someone wouldn’t tell someone if they wanted to hire a PI jsut for them… UNLESS—I already did… HHHMMMMMM…
We have one making things easy around here now, debunking the myth of “morgellons disease”, and doing it singlehandedly. Thank you, thank you, thank you!!!
I think I’m gonna call ‘Entertainment Tonight’. I’ve never had anyone hire a private investigator on me, especially someone like Brandi Koch. Hmm, maybe the FBI would be better, given the situation.
Calm down, I was playing. Brandi, you’d fit in better playing with your own kind, like people who look up to you on Lymebusters, or something. You said you accomplished what you wanted, when I said you have your disease. So go enjoy it. You’ve only shown what it really is, here.
Sorry folks, in view of the flaming, disintegrating into vague threats, I’ve turned on comment moderation. This means your comments will not show up for some time (maybe hours) after you post them, if at all (in the case of flame-type comments). I’ll turn it off in a day or two. You can continue fighting elsewhere if you like.
I wish there were a way to communicate with morgies. I don’t see what it is that any of you want. You think people have done things that they haven’t. It would be so nice if you would have just trusted and worked with a doctor. The first doctor any of you saw. You can’t tell anyone what it is that you want. Do you all realize that you are yelling and carrying on about a PLAGUE, announcing it to the rest of society, while at the same time you tell us to leave you alone? Well, people do leave you alone, don’t they? The message boards full of morgies delete “outsiders” and tear into people like a bunch of old wet settin’ hens thinking a fox is in the chicken house. You even fight within your cult. People get a clue. You want others to really believe there is a new disease, and that your doctors were wrong, and that the looney doctors committing health fraud are right?
Sarah… I see where you are coming from. I just hope that people such as yourself will soon have the published literature adn proof that you need to feel that there is indeed something going on.
Smiley? I can live without… you? Well, I have to admit… in time, I hope that you will want to research with a different perspective.
I understand that this “whatever” has been described in such a VAST manner that it’s hard to even think that it could be real…
I guess, all I can say to you, is that I hope once all medical professionals realize there is SOMETHING going on, you will be the type of person conducting research.
I have looked into some of your comments, writings, etc.
Time will tell. Please, just keep an open mind. We need people like you.
Smiley…last thing. I should have raised the “sarcasim flag” for you about the PI. YOU seem to think that I CARE so much about you (although, you do try to reverse it at times),that I figured I’d leave you with what YOU want…
Funny thing, that “bio” of yours. Leaves little to the imagination–beyond your own.
Please, do call ET. I would love to go head to head with you in a debate-ESPECIALLY with an audience.
http://www.youtube.com/watch?v=XTOEp-8dx9I
Go check this out… anyone/everyone. Pretty creepy. I AM not saying that I’m “sold” on all of it… but, it’s pretty CREEPY. Silent Superbug Video 2 (part one)
07:52
From: nicscics
Views: 389
“TC” I apologize for saying the things that I said to you… they were completelly out of line and extremely pretentious. I don’t know anything about you or your life, just as you know nothing about me beyond all of “this”. I’m sure that you are a very successful man/woman & even if you weren’t… well, that has nothing to do with one’s character & definitely nothing to do with all of this. Sorry.
Smiley- I am also telling you sorry for any immature put downs or digs. I should have been the bigger person-but, I wasn’t, so–I am very sorry. I really hope that you put as much energy into helping sufferers as you have insulting them one day.
The so called hype about “Morgellons” is due to finding ONE word to describe that people who ARE NOT delusional are having some sort of matter come out of their skin. All the other “symptoms”… I don’t know, but the one that needed “a name”, was the symptom that is the creepiest and most terrifying of all… this “stuff”. Living with this is enough to put just about anyone over the edge (if you let it). Some have fallen, some have not.
I feel that for those of us who have not “fallen”… well, we need to stand up for all the ones who have. I’m sure you imagine how scared some of these people are because we KNOW it’s really happening. Again-I WISH I WERE CRAZY.
Take care. I am NOT being snide (this time). I can honestly tell you, that I will pray for all of you and could use the same in return.
Brandi
Brandi, I honor your logic and attempts you have made here, good job in not allowing them to suck you into their traps. Just keep with the logic and continue to feed them rope. People like this eventually hang themselves. This cant be helped when one is not correct and standing on a soapbox.
I continue to post here occasionally not because of the 3 or 4 people here acting in collusion, but for the people visiting this site. It is important for these people to witness the types of arguments presented here. There is no better proof of cooperation with industry than this site and its efforts.
By the way, the same exact offer Brandi has made, I make as well. So how about one of you spending a day in both of our homes and see just how uniquely this illness presents itself, but from 2 different places and from people whom have never met.
Thanks for your courage and determination Brandi, good job. As for the rest of you, TC, smiley, SBD and Michael, What do you say? Still believe you have nothing to see? or to lose?
Southcity
smileykins Says:
April 11th, 2007 at 4:35 pm
I think I’m gonna call ‘Entertainment Tonight’. I’ve never had anyone hire a private investigator on me….
Once again you claim knowledge over something you cant possibly be certain of. It’s perfectly natural for belief structures such as yours.. The “Morgellons isn’t real” and “I have never been investigated” beliefs are sure to leave you with a sense of safety and security. My suggestion is that you realize that sometimes your beliefs are incorrect, and that for some things, timing is everything.
Children don’t get the opportunity to make their own decisions, and of course, they aren’t capable of making those decisions. So, it only does harm to instill fear in the children’s hearts. But if they were to fear, if any people were to fear, they should be fearing the diseases they actually have, not Morgellons. The people who believe that they have Morgellons, want validation, but they don’t have a valid argument. Any time someone ignores a valid diagnosis, they are abusing themselves. And if they are ignoring valid diagnoses that have been given to their children, and refusing to give the children the treatment they need, that is child abuse. People who believe they have “Morgellons Disease” have a tendency to blame all their health problems on Morgellons. And “Morgie” adults aren’t usually qualified to be diagnosing themselves, much less their children or their pets. Some of the Morgie children are, in fact, being abused. This is also happening with some of their pets. They speak of it openly on their forums. Why isn’t something being done about it? Something is being done about it, but we only have a few people combat this outrage. There’s also some quack doctors and quack researchers exploiting “Morgellons sufferers”. They haven’t succeeded in validating their claims, but they are trying to. It is true, that the truth will eventually come out. But the truth, which will eventually help everyone, is that “Morgellons sufferers” are DOP, and they need to be treated for their psychosis. It’s totally obvious to everyone watching this matter, but the people that have the mental problems. Morgies are unshakable in their false beliefs. There’s no reason to expect to get through to them, but the truth needs to be told because that’s the only thing that well help the Morgie families. We have been telling you the truth.
Tall Cotton
Hello… look. I wrote and apology letter earlier that was directed to Smiley and TC… although, I feel that you have been equally as ruthless,I am sorry for sounding like a pretentious b-tch.
BTW- I want you to know that the “PI comment” was saracsim due to your never ending comments that I seemed overly concerned with you and everything about you. I should have made it more obvious. I am sorry for anything nasty that I said to you.
TC- I am sure that you are a very successful person & I am sorry for any ridiculously crude comment that I made. Even if you did live in a box, trailer, work at “mcDonalds”, it still would not make you a bad person & has NOTHING to do with ANY of this. It was just un-productive anger. It’s hard not to get defensive when you have people throwing low blows in regards to your sanity.
I came her hoping to gain insight of some sort. I really did not expect such a unshakable belief that this could only be DOP. I just figured that you were annoyed about lumping SO many symptoms into the MORGELLON’S case definition. I guess I expected respect at the very least.
SO… I tried to post earlier and could not… so, I am not sure if this will go through-but, I feel that the name “Morgellons” is just one word used to describe the creepiest symptom & the defining symptom used to explain that some sort of new & unidentified matter is coming out of people’s skin. We needed some sort of name to describe what it was that was making people who are NOT delusional, have such horrific symptoms.
As I said, I tried to post before & closed with telling you ALL that I will pray for you and could you the same in return. Again- I am sorry for any ridiculously nasty comments that I made in any post on this topic.
Bye… Take care!
Smiley… do you really think that leaves me feeling safe and with some sense of security.
I know that what I am saying is true because I have it. You COULD get proof if you wanted. You say that you couldn’t, but you could.
Hypothetically–what if you were to meet up with myself, or any other person having such symptoms? If you were to see with your own 2 eyes the strange matter that is easily seen with the naked eye (you don’t have to search for it) don’t you think you’d feel a little different?
Really? Imagine WATCHING numerous amounts of fiber emerge (without the person touching themselves) from their skin. Would that not be proof? The doctors that have witnessed it (in my case) were amazed and are now all studying it in a very serious manner.
THAT is why I tell you that I DO have proof. I wasn’t trying to (intitially) be a bi— and start fighting in such a counter productive way. I was just hoping that you all had an idea as to what you thought might be going on. SOMETHING is going on. this is not the type of thing you would just willingly accept unless you HAD to OR you were crazy. I know that some are… but, ther are way to many people getting this who ARE NOT delusional. Something is going on. I know this to be factual.
I will (if you want) send you one of the first hundred documentary videos that go out. If you are so set in your thinking that you wouldn’t at least jump at the chance to see that… well, why not? I just don’t get why you are so angry with those of us who are experiencing these symptoms. You really do seem angry.
Whatever. It also seems as thought talking to you all is a waste of time too. Highly educated doctors and scientist are now even beginning to take this seriously yet you remain completely opposed to even a “what if”.
Please, just deal with the future sufferers who come in to post with a little bit of respect. I realize that I was out of line and have no room to talk about showing respect… but, I am sorry. I could have been the bigger person & I wasn’t.
Regards, Brandi
Sorry Brandi, your prior post was automatically deleted because it had a youtube link. I’d set up a filter a long time ago because were were getting a lot of youtube music video spam, and I forgot to remove it. I’ve fixed it now, but I’m afraid your post with the youtube link is gone.
Brandi,
I have never said that the Morgies aren’t experiencing what they claim to be experiencing. I do not, however, believe Morgellons is a disease. I also expelled a lot of strange looking material from my skin, including long hair-like fibers. In my case, the hair-like fibers jettisoned out through the pores in about 1/2 second, or less. My hairlike fibers were transparent, althuogh I did find one on my sink that was fluorescent blue. I can’t prove that it came from my body, but I watched the others come out.
A lot of the hair on my head looked like it was plastic. It was transparent, and some of it was flat, instead of round. I do not believe it was real hair. I believe it was the same material that I watched extruding through the pores on my face. If it was real hair, it was sure strange looking.
The whold lower half of my face was covered in hugh lesions that oozed an oily liquid that quickly solidified and looked exactly like skin. It built up in layers, It seemed like I was being taken over. I also experienced some almost unbelievably strange things. Some of them I even photographed. This wasn’t all of my symptoms, but I’m telling you I experienced these things, not only because they are true, but also because I wish to make a point.
I also had hard plastic-like shards of material in my skin. Some of it was needle-like, and spear-like, I also had material come out that was like the stickers on a prickly pear cactus.
Did I have Morgellons? No. I had toxic poisoning from a whole lot of methamphetamines over an extended period of time. I also only have one kidney. I don’t know what kind of compounds were made when the chemicals in the meth combined with those in my body, but some of them had some very strange behaviors.
The kidneys filter the blood, as I’m sure you know. You also know that the liver metabolizes chemicals that are put into the body. But when there is a toxic overload from too many chemicals, and/or ingesting chemicals that won’t metabolize, the body begins expelling these these things, both solid and liquid, out through the skin. I believe this is called transdermal elimination. Some materials are partially metabolized.
The body has another means of dealing with these toxins. It will attempt to encapsulate them. Everything is either petabolized, encysted, or pushed out through the skin. In the case of encapsulating the undesireable material, the body produces fibers that wrap around the object, as if it were sealing off a mummy. These fibers are called fibroblasts.
I believe that the Morgies are likely suffering from toxic poisoning, or have an immune system that interprets the materials to be foreign, or somehow undesirabkle. “If” that’s the case, it doesn’t constitute a new disease. But if the Morgies are having the problem I described, I still don’t know what toxin it would be. In my case it was meth, and with God’s help, I was able to quit using. But I sure put a lot of it into my body for a long time. It wasn’t an easy task.
I’m not suggesting that the Morgies are using meth, but they may be causing the problem, or adding to a problem, with some of the things they ingest. There also may be something toxic in the air, or it may be toxic to them, or interpreted by the immune system to be unwanted. In the case of real chemicals causing the problem, they may be affecting the color of the fibroblasts or the color of extruded hair-like material. There’s sometimes very little difference in what makse something blue or red. Such is the case with the ruby and the sapphire.
In my opinion, Morgies are misinterpreting what they are experiencing, but I think they have fought for their cause hard enough, and long enough, that some of their beliefs are well reinforced.
Brandi, I also apologize for my nasty conduct. And of course I will “continue” to pray for your healing, and the healing of the rest of the Morgies and Lymies. I pray for both, almost every night. Morgies piss me a lot, but I do care about them. I always have. This doesn’t mean that I approve of what some of them are doing. You’re all going to make it though, if people will just quit killing themselves.
Tall Cotton
Cutaneous Manifestations of Cholesterol Embolism
Synonyms and related keywords: CE, CE syndrome, atheroembolization, cholesterol crystal embolization, multiple cholesterol emboli syndrome, cholesterol microembolization, cholesterol emboli, atheromatous embolization, atherosclerosis, atherosclerotic cardiovascular disease, microthrombi, limb ischemia
http://www.emedicine.com/derm/topic628.htm
Dermatologic Manifestations of Cardiac Disease
Synonyms and related keywords: cutaneous manifestations of heart disease, skin changes in cardiac disorders, clubbing, cyanosis, edema, xanthelasma, xanthoma, Janeway lesions, livedo reticularis, erythema chronicum migrans, earlobe crease, Marfan syndrome, Down syndrome, mitral facies, elfin facies
http://www.emedicine.com/derm/topic548.htm
Dermatologic Manifestations of Hematologic Disease
Synonyms and related keywords: antiphospholipid syndrome; APS; warfarin-induced skin necrosis; coagulation disorders; iron deficiency anemia; pernicious anemia; hyperviscosity syndrome; cold agglutinin disease; plasmacytoma; POEMS syndrome; polyneuropathy, organomegaly, endocrinopathy, M protein, and skin changes syndrome; amyloidosis; myeloproliferative disorders; polycythemia vera; cutaneous myelofibrosis; hydroxyurea-induced skin changes; Sweet syndrome; pyoderma gangrenosum; purpura; thrombocytopenia; idiopathic thrombocytopenic purpura; ITP; posttransfusion purpura; thrombotic thrombocytopenic purpura; TTP; disseminated intravascular coagulation; DIC; qualitative disorders of platelet function
http://www.emedicine.com/derm/topic626.htm
Dermatologic Manifestations of Renal Disease
Synonyms and related keywords: dermatologic manifestations of end-stage renal disease, dermatologic manifestations of uremia, dermatologic diseases seen in the dialysis population, dermatologic disease and renal transplantation, diabetes mellitus, lupus erythematosus, Wegener granulomatosis, polyarteritis nodosa, PAN, systemic sclerosis, SSc, cholesterol emboli, hepatitis C virus, HCV, HIV, human immunodeficiency virus, amyloidosis, acquired perforating disorder, Kyrle disease, alopecia, arterial steal syndrome, bullous disease of dialysis, calcinosis cutis, calciphylaxis, half-and-half nails, ischemic ulcerations, lichen simplex chronicus, nephrogenic sclerosing nephropathy, pigmentary alteration, porphyria cutanea tarda, prurigo nodularis, uremic frost, xanthomas, xerosis
http://www.emedicine.com/derm/topic550.htm
Dermatologic Manifestations of Gastrointestinal Disease
Synonyms and related keywords: Kaposi sarcoma, Plummer-Vinson syndrome, Patterson-Brown-Kelly syndrome, epidermolysis bullosa, EB, scleroderma, systemic sclerosis, pemphigus vulgaris, PV, acanthosis nigricans, Sister Mary Joseph nodule, Osler-Weber-Rendu syndrome, hereditary hemorrhagic telangiectasia, hemochromatosis, porphyria cutanea tarda, PCT, pancreatic fat necrosis, lichen planus, Peutz-Jeghers syndrome, PJS, Henoch-Schönlein purpura, dermatitis herpetiformis, DH, blue rubber bleb nevus syndrome, familial adenomatous polyposis, Gardner syndrome, Muir-Torre syndrome, MTS, Cowden disease, multiple hamartoma syndrome, Cronkhite-Canada syndrome, inflammatory bowel disease, Crohn disease, Crohn’s disease, CD, ulcerative colitis, UC
http://www.emedicine.com/derm/topic545.htm
Dermatologic Manifestations of Neurologic Disease
Synonyms and related keywords: neurocutaneous disorders, neurofibromatosis type 1, NF1, von Recklinghausen disease, neurofibromatosis type 2, NF2 central neurofibromatosis, bilateral acoustic neuroma, tuberous sclerosis, Bourneville syndrome, epiloia, nevoid basal cell carcinoma syndrome, Gorlin syndrome, variegate porphyria, LEOPARD syndrome, multiple lentigines syndrome, ataxia-telangiectasia, AT, Louis-Bar syndrome, Sjögren-Larsson syndrome, SLS, incontinentia pigmenti, IP, Bloch-Sulzberger syndrome, Sturge-Weber syndrome, pellagra, varicella zoster virus, antiphospholipid syndrome, Sneddon syndrome, diabetes mellitus, lyme disease, arsenic poisoning, reflex sympathetic dystrophy, RSD, seborrheic dermatitis
http://www.emedicine.com/derm/topic549.htm
Dermatologic Manifestations of Pulmonary Disease
Synonyms and related keywords: skin, cutaneous, pulmonary, cyanosis, clubbing, lung cancer, hypertrophic osteoarthropathy, HOA, primary hypertrophic osteoarthropathy, primary HOA, secondary hypertrophic osteoarthropathy, secondary HOA, superior vena cava syndrome, SVC syndrome, sarcoidosis, papular sarcoidosis, lupus pernio, erythema nodosum, EN, Wegener granulomatosis, Churg-Strauss syndrome, relapsing polychondritis, pulmonary arteriovenous malformations, PAVM, alpha-1 antitrypsin deficiency, fat embolism syndrome, yellow nail syndrome
http://www.emedicine.com/derm/topic547.htm
There are enough skin diseases and disorders to go around, already. There are enough systemic disorders and diseases (and not even of an infectious nature, which seems to be all the focus), which cause skin symptoms, too. What are the well publicized, common denominators within the group of patients who are convinced they have something they’re calling “morgellons disease”?
All of the aforementioned diseases, in my previous comment, have dermatological manifestations, and they can trigger a state of delusional parasitosis. Underlying mental disorders can also induce it. Nutritional deficiencies, drug & alcohol abuse, and some medication interactions & side effects, can trigger it, too. It is widely reported that morgies have a wide range of physical and mental conditions. It’s widely reported they also have cognitive difficulties. They are, most definitely, really not able to understand what they have wrong with them. I, most definitely, as I think we all do, believe they are really sick. They accuse us of not believing that they are, as we are telling them that we know they are.
There are lots of patients who have difficulties communicating their symptoms effectively to a physician, but they don’t seek out dozens of them. The skin manifestations are all that these patients can focus on. So, when presenting to a doctor, badda-bing-badda-boom — that doctor KNOWS that they must clear up their delusional state, first and foremost. Someone unable to think the right way is very much ill. The necessary testing for physical conditions, to see why they are experiencing what they are, I feel, from all I’ve learned from patient accounts, based on what doctors can go on, are being carried out. Apparently, many morgies DO KNOW PRECISELY what underlying health conditions they have. (All their combined conditions made the bogus “case definition for “morgellons disease”, afterall.) The patients are mad because they haven’t gotten the types of tests “they’d wanted”, but things just don’t work the ways they expect, and want, them to. They don’t understand that, at all. That, alone, is an indication of something seriously wrong. If they’d followed through, honestly, DOP would have either been ruled in, or out, and they would have, each, found what caused that state to develop.
If they’d only follow their doctors lead, and keep in touch during the course of treatment, getting their delusional state to lift, and, as a result, no longer attribute every underlying ache and pain as having a link to their unfounded suspicions, they would stand a much better chance of effectively communicating later on, (maybe), what other symptoms they have. Then a doctor could get down to some serious business. However, from all I have been gathering over the past couple of years, someone really, really, needs to be in the patients’ corner, in a big way, to do the talking for them. They instruct each other to withhold the truth, to keep from getting well. Now, when quacks start doing that, someone had better step in, and I think it’s high time. As can often be observed, sometimes, though, their families are every bit as much in the dark about things as they are. (Well, that’s more of all the proof of what their unshakable beliefs, which is the hallmark indicator of what they’re suffering from, does to people.)
Just look at what the charlatans are OPENLY doing to them. They’re further messing with their minds, taking these patients’own, bizarre, theories straight from their message boards and blogs, drumming up business for themselves. Talking their talk, and going along with them, instructing them, and doing outlandish testing on them, and making an attempt to clear up their superficial skin problems, temporarily — all at an astounding cost — is just leaving their underlying, serious, conditions untreated. That’s placing these patients at risk, more than they already are. Members of their immediate families, including, innocent children, and pets, remain at risk under their charge, too.
If the situation had never been brought to light, we wouldn’t know about it. But it HAS been brought to light, though, and they’ve wanted us to know about it. Every day they’re asking for help in figuring it out for them. They aren’t looking at the source. They could have figured it all out if they had just listened to their doctor, and told a mental health professional the truth of their experiences. The wrongs of all of this totally stuns me. If all that “morgellons disease” amounted to were patients with somatization disorder, well, that’s bad, for sure. (I think that quacks even serve a good purpose for those patients.) But, I feel, for certain, that this has real sick people, who could be dying, right now, due to believing that they have it.
Those vulnerable patients, the ones at risk, who are worsening from their conditions that induced DOP (and, in turn, their DOP worsens too, while nothing gets treated), are steadily being misled into all directions. Thinking that their “morgellons disease physicians”, the quacks, are doing them any favors by trying to help clear up their skin, is likely going to end up resulting in some untimely deaths. Like, for instance, whomever (if there even is anyone), that Dr. Harvey thinks he’s referring to in his letter to the editor of The Journal Of The Academy Of Dermatology. If there are patients with such test results as that, they need treated through a REAL doctor, based on those test results he listed. To hell with that nonsense.
I know informed consent is somewhat complicated. However, considering the wide reports that these patients have, already, repeatedly, been diagnosed with DOP — not “misdiagnosed”, as stated among the other falsehoods that the Morgellons Research Foundation claims — if any family member, or close friend, of one of those such patients, has the fortitude, the stamina, the wherewithal, or whatever it takes to pursue it, please, do it for your loved one, so you can get them the real help they need. This is health fraud in one of its worst forms. Just report their quacks to the authorities, because, otherwise, you may not have them with you, and in a much better state of health, for as much time as is possible. From emails I get, I know that some spouses are just letting them go, ignoring their real conditions, playing into the delusion. Apparently, it can’t be helped, and, yes, I do realize that. Maybe that is, even, “honoring them in sickness”, to them. But they need your help, and gentle guidance, like never before. There is no need for this to be happening to anyone.
I just now read over some comments from today. The private investigator threat on Tall Cotton, (not me, but I responded, considering it the same), wasn’t taken seriously by either of us! I think it’s perfectly clear that it wasn’t, in comments #80 & #81.
Smileykins,
You remind me of a guy I went to college with that would get high and then go on and on about something he knew nothing about. Really, a closed mind in this day and time, is really only a sign of ignorance. It is true though, you can know what you know.
Happy learning, hope you look at things differently.
I would like to note, that in this conversation about open-mindedness, that there is a profound difference between being open-minded and being gullible.
I gave you a trip down memory lane, did I, Shiloh? Just as long as I only remind you of that guy, it’s fine with me. I notice in your previous comments that you look at things a little bit differently than I do. I love to learn. That’s what life’s all about. What can you tell me about yourself?
Smiley… okay, I see your point. TC… I am so taken back by your story I don’t even know what to say other than, thank you. I commend and respect you to the fullest for having the courage, strength, and intelligence to do what you did. I have never done Meth (or even seen it for that matter), but I have heard that it is one of the hardest struggles of all when it comes to getting sober. Your story truly brought me to tears. I know- I AM a SAPPY DORK!
TC-that’s the kind of info I was looking for. I guess because I believe that this could really be some sort of toxin coming out of our skin & like I told you before… we have been the ‘guinea pig generation’ brought up on preservatives with ingredients such as Hydroginated oil being ONE molecule away from plastic. That’s really crazy if you think about it. Right?
Smiley-I’m relieved that you knew I was kidding about the PI… it was a dumb thing to say (joking or not). Yes, I know… you dished it right back.
Now, here’s where I’m confused… TC talks about his experience being real, yet due to his FORMER drug experimentation. YOU (Smiley-obviously), talk about believing beyond a shadow of a doubt that any matter seen with the naked eye can ONLY be due to us being in a delusional state of mind and only thinking we are seeing things. Correct me if I’m wrong.
Smiley, I get (& appreciate) your rundown of all the DIFFERENT types of illnesses that could cause the exact SAME symptoms listed within the “Morgellon’s case def.”, but why is it SO hard for you to believe that it IS POSSIBLE (I know it to be FACTUAL) that a person could have some sort of matter coming out of their pores. After all, that is one of the functions of the pores-right? To help excrete unwanted matter from the body, or any type of substance that is supposed to/needs an out.
Okay, Smiley. I know you are somewhat fed up with me and my relentlessness towards addressing you and “needing your validity”… BUT, I offered you a chance to see if this was indeed happening. Screw all the other symptoms. I’m sure that you can understand that this HORRIFIC symptom IS the most mentally consuming of them all due to it being so damn creepy and terrifying.
I do want YOUR validity. You are right. I also want TC’s & Michael. I would be a liar to say otherwise. I would also think that you would understand that. You all, are the main persons on this site who are extremely opinionated about the most horrifying symptom of all. You know, the one that ends up with most people getting the DOP diagnosis. I told you I never had that diagnosis.
Now, the offer that I suggested to you in regards to you coming to visit me may have seemed a bit unreasonable… but, I meant it. The reason would be for you to see for yourself that this funk coming out of our skin is beyond explanation at this point. I even stated that I would put you up in a hotel. I would. I would also offer you a SAFE and sanitary environment in which to observe this, because I don’t want you to “get it”. You don’t believe it (yet) anyway. When I said “hundred of sick people secretly wishing you’d get this”, I didn’t mean myself. I really DO NOT want ANYONE to ever have to deal with this. I just meant that so many sufferers are so aggravated that I have heard/read them saying that they which that you’d get “it” so that you might one day understand the horror of it all.
So, with what “TC” had to say… don’t you think it’s possible that this main skin symptom COULD be real & explained beyond a DOP diagnosis? What if I offered you a safe way to observe it? What if I swore to you that if after at least taking the time to LOOK–& if you STILL thought that the skin symptom was DOP that I would become a Morgellon’s Watch activist and make a public announcement that I was indeed, DELUSIONAL!?!?!
I know your going to say (probably) something like, ” I wouldn’t waste my time because I know you are”… but, you would have a much more respected opinion if you at least LOOKED… or, in my opinion, a completely changed opinion. Why not? You can bring 3 of your friends… I will put you all up in the nicest hotel around, pay for all your food, cover your airline tickets, etc. You think I’m being a smart ass, but I’m not. I would/could show you at my “ID” doctor’s office so that it wouldn’t be some unsupervised freak show. Why not? How about you, TC? I would definitely want TC to come!
Alright… I know that I am wasting my time & that you have heard this offer time and time again… BUT- I still hope that you have a bit of patience with us all. I understand that this site is NOT “for” people who think they have this, but at times it does seem as though there is some twinge of compassion within you for everyone involved (suffering or not). Please, just use your brain for “good” VS “evil”. I will give you credit on your seemingly intelligent mind. I just hope you will use it differently one day when you DO have the proof you need. That’s all.
Smiley–OH! Also, I accidentally posted a similar post 2 times due to the fact that I didn’t think my post had gone through previously… I felt like an idoit afterward… but, that is why 2 of my posts sound VERY repetitive. Hence, the “sort of repeat” of #84
Sarah,
You strike me as anything BUT gullible. I meant, WHEN you all get the PROOF that you need. I don’t expect ANYONE to just swallow this up without proof. I understand your skepticism & cannot honestly say that I would not be the EXACT same way if the tables were turned.
That is why I told the members of the “NMO” that they were morons for insulting the type of intellects and researchers that we OWE proof to. It’s easy to SAY how you would act while in someone else’s shoes… but, I UNDERSTAND & RESPECT anyone who doesn’t just “jump all over it”.
I would be more concerned with someone that instantly said, ” OH YES!!! I BELIEVE YOU!”-VS “YEAH!!! OKAY–lay off the acid!”… well, maybe that was a bad joke… but, you all get the point!!
Anne, Southicity… thanks for the support. I will pray for you all as well!!!! Anne, I am so sorry about your husband. You WILL ses him again one day… faith, faith, faith!!! Luv ya!!
Elena & Gina too… thanks for all the kind words and support. I kmow that we are not the “audience” they are looking for–but, it doesn’t seem as though they have much of one beyond us. NOT trying to start up a fight again–Smiley & “TC”, but yo have to admit, you really don’t have that many people coming in and out of here that are on your side.
TC–I am still so intrigued by your story. I can’t stop thinking about it. Well, to me it makes sense. You aren’t saying that there is nothing going on, but that it could be some toxic response fo the body.
When you said “encapsulated” would that form cyst like lumps underneath the skin? Did yours go away after awhile? SO very interesting.
I bet you were freaking out.Did you have any family members see it?
Well, I know that the majority of the Morgies are not on drugs, especially considering kids have this symptom, but what kinds of stuff do you think could be going into our bodies that might react this way? If you have any ideas…
What is the active ingredient in Meth & do people smoke it, sniff it, or pop it?
I don’t know. I guess I’m nosy too!! Sorry. I just want answers & thought that your most recent post at least gave SOME sort of insight.
Regards, BRANDI!!
SHILOH!!!! YOU TOO!! XOXO!!
Something I just read I could not resist sharing:
From “The Demon-Haunted World”, by Carl Sagan, Chapter 10, P185:
Here’s a more detailed version of the story.
http://www.findarticles.com/p/articles/mi_m1430/is_n7_v17/ai_16848268
BTW, “Demon Haunted World” is a wonderful read. Comes with a handy “Baloney Detection Kit”
Michael—wth??? THAT IS FUNNY–sort of… actually, it’s pretty gross too. I am all lover that link!! HEE HEE!
MedTerms medical dictionary
Definition of Delusion
Delusion: A false personal belief that is not subject to reason or contradictory evidence and is not explained by a person’s usual cultural and religious concepts (so that, for example, it is not an article of faith). A delusion may be firmly maintained in the face of incontrovertible evidence that it is false. Delusions are a frequent feature of schizophrenia.
http://www.medterms.com/script/main/art.asp?articlekey=26290
Many underlying conditions, both physical and mental, can induce delusions.
http://www.medicinenet.com/psychotic_disorders/article.htm
amiley–does your “frown” ever turn “upside down”… okay–that was dumb–but, really? does it ever smile?
Wow! Seems like everybody kissed and made up. That’s nice. I was really hating seeing some of the stuff written up here.
You all seem like very intelligent people. You all went through a lot of pain and suffering and many no doubt continue to do so.
I also see that you share a firm belief in a creator.
That’s good. It will keep you strong.
This too shall pass.
Brandi, (And other sufferers)
You will eventually get wise and ignore the people on this site that say the disease does not exist.
Right now all of those reading with lesions that are really horrible if you try Equimax (for horses) on your lesions, not taken internally, they will disappear in less than a week which clearly shows that this is a parasite of some type. Use it for a month and you will be free from most of the symptomology associated with this disease.
So ignore these people that have no idea what they are talking about since most of them are drug users and people addicted to judging others, like cats at a cat show, and are retired and bored and need to feel as if they actually know something by upsetting people with a real disease.
It is a big scam site and has NOTHING to do with truth.
They hide behind false names and upset sick people while they gather your e-mail addresses from cookies and sell your info to drug compaies and make a profit from you typing here. It is a huge scam.
The more they can upset those who are sick the more volume they get on this site and the more money they can make by selling your e-mail address.
People get wise…ignore these fools!
Animal medication.
And why?
Peter Lang, since you broached the topic, I fail seeing any Believers in God’s Promises within the group of patients entertaining this false belief. “By His stripes ye are healed”. They feed their illness.
Randy you are a liar, and you know that you are. Stop scaring your friends like that.
….and what about Lab 257 on Plum Island? Now, that can’t be ignored. All kids of conspiracy theory to add to the fire as to what the heck is going on.
Regardless of how I’m (mis)interpreted, I’m not judging anyone. Just act like an adult if you want to be treated as one.
Do you live there, Shiloh? If not, forget about it. If I lived there, I wouldn’t give a shit. That’s an anxiety disorder.
LOOK. You’re here, right? So read this interesting story that Michael posted.
From “The Demon-Haunted World”, by Carl Sagan, Chapter 10, P185:
http://www.findarticles.com/p/articles/mi_m1430/is_n7_v17/ai_16848268
Read it, and dare say it isn’t relative.
Randy,
What’s the matter? Couldn’t you stay away. You’re here, and you’re telling them not to be.
I used to be an addict, but I quit using two years and eight months ago. Smileykins has never been addicted to anything.
You’re definitely a liar, big time. You don’t seem to even know how to tell the truth. There’s only two sites where you can find the truth. This is one of them, and the other one is a blog where Smileykins and I tell our stories.
The truth that we are sharing with the Morgies should be a relief. It’s good news, not bad. We are telling you that Morgellons doesn’t exist. Now why would you rather have a disease that has no cure. You people have health problems that are treatable, if you would find one non-morgellons doctor and stick with him and give him half a chance to figure out what people have.
In some cases Morgies know what they have. Haven’t you been diagnosed with Sarcoidosis. I can cause every one of your symptoms. That makes it look like you are the one that’s a fool.
Please quit telling the other Morgies lies about their medical conditions. There is no Morgellons pathogen, and there is no Morgellons disease.
Everything you have said about us is a lie. Does your Jewish false God approve of your lies? Sure he does, because God sent Christ to die on the cross. Every God other than the Holy Trinity are false god. I can say the word, God, since I’m not a Jew. And you’re a hypocrite to even claim to know him and lie like you do. You’re a pathological liar.
Tall Cotton, Tall Cotton, Tall Cotton
We use user names like most of the other people on the forums and the blog do, including the users of the sites of the Morgellons believers. You’re the odd ball, not us!
Now do I have anxiety behavior, too? I AM a mess…… the article was vaguely familiar. I think I have read that before, or seen it on Star Trek. No really, I am not so bold to suppose that couldn’t happen. Touche! I will point out that Morgellons does not look entirely the same for all of those that have it. I can’t totallt relate to “weird things” poking out of my skin, but do have other oddities that are truly disturbing. I do not appear to be sick, twisted at times, but unless you knew what you were looking for you would not know I was burdened by this illness. The fibers do exist for me, but are not a huge part of my ordeal. The bottom line, people- good, quality, educated, honest people are watching their entire persona change. Lives are falling apart and so on. I hate having to deal with this. If I were to be delusional……I would be Madonna. Well, maybe not.
I thought the whole Lab 257 concept was, and is, intriguing. Why not? No, I donot live near the area.
What happened while I was gone? You are back at each other’s throats!
Not a very Christian way to behave.
Shiloh, I that wish you and other morgies thought less about things that you didn’t need to, and wouldn’t dwell on it, since it’s bad stuff that upsets you and makes you feel, and do, the things you do. What, if anyone could identify it with a name, is the ONE, singular, word of what is standing in the way of all morgies, blocking them from enjoying their thoughts, and beliefs, about what they see, think, and feel? Being honest, I mean. Can you define what you think a delusion is? Please? Nobody is grasping it.
Peter, how familiar are you with “morgellons disease”?
Shiloh, a REAL doctor knows. They don’t HAVE TO LOOK FOR anything else when it is blatantly obvious that their patients’ ill conceived perceptions of things is the major cause of distress to them. Yes, you, and all morgies, have anxiety. Read what anxiety is. Real what it can lead do. All of you are on the wrong track in what you’re thinking. Thoughts make people ill. We are our thoughts.
For the record, because I know it will be coming (and no, not due to any underlying anxiety disorder, but due to experience), please note that I did not say that you are not ill physically. Let’s look at what other people really say, please.
Brandi Koch – I’m with you, go girl. Gx
To Smileykins:
I am very familiar with “Morgellons Disease”. Before that name, the disease was referred to as USPI – “unidentified skin parasite infection”. There used to be a bulletin board at http://www.skinparasites.com. A lot of sufferers posted their observations. You could say I was their “poster boy”. I’ve had the experience of a “hair” ejecting itself from my arm. Felt like a needle being withdrawn quickly from my skin. The hair traveled about a foot in the air before falling to the coffee table. I’ve had the experience of a sticky, opaque, honey coloured liquid oozing from my knuckles. I believe TC mentions similar experiences further up this thread. Where we differ is that I had no experience with meth to associate with as a possible cause.
However, I’ve had many other experiences that lead me to believe that this illness is real and it is environmental as opposed to self induced.
I am not here to debate if this illness is real or imagined. We all form our opinions based on our own individual experiences. It saddens me however, when people are ridiculed and attacked.
Peace be with you all.
macko.ac9z@ncf.ca – that is a disposable email. You abuse it, I will ditch it.
I think you may have read my sarcasm/humor as anger. I apologize for early morning hours of nonsensical rambling. I have no disagreements about your remarking that “morgies should think less about things you don’t need to”. This is true for all people, don’t you think? Obsession can only escalate any problems.
I was, in my not-so-effective manner, trying to express my willingness to accept alternative answers. I may have been delusional when I was referring to Madonna…..humor- ha, ha.
What I know, is what I know. I am not the same atheletic,spontaneuos, well-spoken person I was in the past. My dreams now have to alter to match the needs and capabilities of a person I do not know. The marathons and training are also on hold. This has changed who I am, and how I interact with life! I do not talk to anyone at work about this, nor neighbors etc, no one. I am not trying to receive attention, nor do I want any. I am too old for that, and I already got some good attention in my day…..:)
Again, Smileykins, I am only wanting to impress upon the fact that people (including the medical world) can not expect to gain knowledge without taking time for a more analytical, objective approach. And, in support of the skeptics, one should not assume everything to be as it is presented. It is improtant to cross-examine and respect all beliefs. It is about process. I hope I am a little more organized in my thoughts here.
Every morgellons disease believer refuses to define what they think a delusion is. Do you know why? When many people are diagnosed with something, they learn all there is to know about it. That is how we take care of ourselves.
Can anyone identify your reason for believing that you are correct in your interpretation of your experiences, and consider yourselves to be in possession of a higher knowledge than others?
Why are you chasing after something elusive and not studying human anatomy, our immune systems, your skin, the brain, and the mind? Knowledgeable members of the AMA know all about our bodies and their functions. Many morgies say that they know their own bodies, but none of you have an understanding of how they work.
I can’t apologize for being what any of you consider as mean, when I do not know what charges are against me. State it clearly, please. That is how people communicate effectively with each other. I am not against any of you, and I realize that all of you believe that I, and others here, are.
Here you go, Smileykins:
A delusion is a mistaken belief, something not based on fact.
Although I believe “Morgellons” is a real disease and I suffer from it, no physician has diagnosed me with DoP.
My initial diagnosis following a cursory examination of my skin in 1997 was “contact dermatitis”. As the disease developed, a more thorough examination, including chest x-rays, revealed soft tissue damage in my lower left lung near the Helum. Consequently, I was put in front of the line for the CAT scan machine. The fellow waiting in line behind me, waited 1 year for his turn at the machine – he was a cancer patient. I make no apologies for the sad state of public health care in Canada during the late 1990s. Funding was cut to reduce the budget deficit. It is interesting to note, however, that health care officials were concerned enough about the state of my health to progress me to the front of the line. Had they thought “it was all in my head”, I wouldn’t have been afforded such treatment. They were unable to offer any further diagnosis, other than to say “You seem to be ok for now, we’ll keep an eye on you.”
I am 99% better. But I went through hell and back in March of 1999.
Why am I still looking for answers? Given the magnitude of my personal experience (it was no “scraped knee”), I would like to know what happened to me – and appears to have happened to others as well. Let’s just say I have a personal interest in following this story to it’s conclusion.
Peter, atopic dermatitis is very common. I’m sorry that you were, or are, ill, whichever the case may be, and have complaints with your health care system. That’s common, too, and it requires a tremendous amount of skills to maneuver our ways through it.
I’m certainly glad that you’re 99% better, now. Since you’ve brought up the phrase, “keep an eye on you”, I trust that you know that it means that when you have complaints, to see your pulmonologist, and that is how your lung condition will be monitored, same as any health condition requiring follow up.
I assure you, I didn’t say that to insult your intelligence, but rather, because many of the “morgellons disease” patients don’t appear to know, and expect, that, someday, someone will call them back. It isn’t the health care system’s job to do that.
I hope you remain as well as you are able to be.
No one diagnosed TC, or me, with DOP, either. Once things up, one knows, with certainty.
Oh, now. Look at that. I blinked my eyes and left out the word “add”.
Peter, thank you for defining delusion. Forgive me, but I don’t entirely understand your standpoint. At first, I’d thought that you were working your way through understanding what you’d gone through in 1999, being 99% better from that experience. Are you in a state of suffering, currently, or, are you meaning something along the lines of how Southcity thinks of “morgellons disease” as being something with remissions, and that’s how you’re using the word, “suffer”? I’m not meaning to pry, I only like to understand what people mean. When I’m unsure, I ask. That’s all.
Shiloh, all is well. I haven’t misunderstood anything in your comments. I promise, I ALWAYS ask questions when I don’t understand things.
Peter, I’m sorry, my pets and the telephone have me distracted today. I’d mistakenly addressed atopic dermatitis, when you’d clearly said contact dermatitis, but it’s real common too. Concerning the fluid oozing from fissures in your knuckles, that happens, normally, when there’s a break in our skin barrier. Our skin protects us by keeping things out, as well as by holding our body fluids in. Contact dermatitis can make skin very dry and cracked, and it was, no doubt, just serum, or plasma, sebum, and protein cells. Of course, if you developed infection, there were infectious agents and white blood cells mixed in there too.
Based on how you described what you went through, as having a progression, did you ever consider sarcoidosis? In the majority of cases, it’s not disabling, appearing only for a brief time, and disappearing on its own without treatment.
I’d ask my doctor, if I were you.
Hi Smileykins:
My recovery took a very strange course. Up until March 19th, 1999 I was literally at death’s door step. At exactly 5:30 p.m. EST the strangest thing happened.
I was knocked flat on my back, my tongue was burning but I started breathing much easier. What ever it was inside of me was leaving my body at a rapid pace. My dogs, who had been lying in the back yard in a crumpled heap as they too were dying from this “stuff”, had gotten up and began running around. I got up from the floor after about 5 minutes of lying there and poked my head outside. I could smell a strong odour of negative ions, much like during a Spring rain storm. However, it was – 14 C, not a rain cloud in sight.
Three days later I awoke during the middle of the night to the sound of what appeared to be something like hail striking my roof. It only lasted for about 45 seconds. I went downstairs to pour myself a glass of water and as the water hit the drain in the sink, the strongest odour of sulfur hit my nose. Near as I can figure, whatever came down on the roof entered the two inch air vent for the plumbing system on the roof and the water interacted with the chemicals to cause the odour. It couldn’t have come from the sewer, as there is a water trap in the goose neck under the sink. Not only did I start getting better from that weekend on, but so did many others whom I knew were also infected in Ottawa. (I have a large accounting practice with over 350 clients, so I had been able to establish that I was not alone in my suffering.)
From then on, my lesions healed up pretty quickly, I would say in less than a month. Within a year most of my other symptoms had disappeared as well. Every now and again I feel a sting or bitting sensation on my arm or legs, especially during the Winter season.
Serves as a reminder. I will never forget.
Well, that’s quite something, Peter, and it’s wonderful that it’s in the past. I have many symptoms, of all sorts, but I have never had anything that isn’t already known to exist. As far as skin is concerned, I, too, have contact dermatitis. I have to avoid my triggers, of course. Hehe, that is why it’s called what it’s called. Discovering, and eliminating, triggers, is not an easy thing to do. My own perspiration, also, at times, gives me the creeping, crawling, biting sensations. But, that’s how skin allergies have always been for people, and how they always will be. I have eczema (atopic dermatitis) too, but it’s been in remission since the 80s. Having these conditions all my life, I learned not to scratch when I was real young. It takes a lot of control. When I had eczema flare-ups, I would do fairly well during the day, but wake up with blood on my sheets from scratching in my sleep. I’d even wear cotton gloves to bed, but would work them off. My sub-conscience just took over and reigned supreme. That would make me so aggravated, because I couldn’t get my skin to heal as long as I was doing that. Like all people do, I sometimes have bumps, scratches, cuts, and nicks, and if something isn’t flushed out at the time of injury, I’ll get a tiny granuloma. I’m a little clumsy, so I might kind of get hurt more that way, and get stuff like that, a little more than a lot of other people, but my immune system does a good job of taking care of it. My daughter inherited sensitive skin too, but eczema, for her, is also in the past (knock on wood).
A final word, and then I will sign off. I am not sure where the communication break down occured, but that is the problem I come across with posting. I never meant that you were mean, nor was I inferring that you had done anything to “charge” against. All I ever wanted was to communicate open-mindedness. I thought I was clear, and I question some of your clarity. Not a problem, I certainly understand now.
And- I don’t think it is fair to assume I don’t study, investigate other avenues like you suggested. You don’t know me. That wasn’t fair. I will let you now entertain while tainting someone else’s integraty.
opps…..”integrity” (keyboard impairment)
Thanks, Peter—Shiloh—RANDY—GILLIAN—ALL OF YOU…
Look. I do not have much to say at this point in time… I am enjoying reading VS typing for once.
HOWEVER–this talk about christianity? COME ON. I don’t think ANY OF US are in a position to JUDGE others. Whether or not you want to admit it… even bringing up the word “Christianty” in regards to ANYONE typing on this site is a FORM of judging others. I just don’t think any of us know each other well enough to comment on such a SERIOUS subject.
EVEN IF WE DID know each other on a much more personal level… no one has the right to tell me if I am doing right in the eyes of God/Jehovah other than HE, himself. PERIOD.
I made myself look bad by “cutting people down” due to my own insecurities and unexpected need to “defend my sanity”. I doesn’t make it okay.
PLEASE–we are all imperfect human beings (ESPECIALLY ME). I just want help/answers/understanding. I suppose I came to the wrong place for that. I get it now. BELIEVE ME!!!
Brandi, please just take another gander, if you want someone to come to your home:
http://morgellonswatch.com/2006/07/28/morgellons-on-television/
Comments 24, 25, and 27.
That’s your woman to contact, not me.
Shiloh, there wasn’t any communication breakdown between us, and no problems, whatsoever. You’d said that you came here, saying what you did, because you didn’t like how Brandi was being judged. Look at the entire scenario. People speak for themselves on how they want to be treated. Like it or not, that is how life is. If coping skills are lacking, there is easily attainable assistance for it, and it isn’t fair for anyone to suffer, and make everyone else have to, along the way.
“Control” isn’t that the name of this game?
“Control” isn’t that the name of this game?
There ya go folks. The name of this game per smiley is “control” the high school grad, maybe. Save your energy for something usefull.
Well? Morgies shut people out in their forums, and some of you come here all mean and bossy, too. People are not supposed to control other people. That’s very mean.
I don’t drink, do drug or lie.
I also have a clean bill of mental health and I have fibers and lesions that for some odd reason are healing due to Equimax and before that were doing a good job of healing with Miracle of Aloe Foot repair.
This Fiber Disease does exist.
Sacrocid, yes, an emergency appendectomy, yes, a goiter with hershal cells, yes but none of this before the fatigue and lesions.
What we have is an unknown autoimmune disease with a parasitic element.
It is a condition excluded from ALL others by the fibers.
Your entire occupation, new addiciton and survival is this site and getting those to pay attention to it so you can get addresses to market for profit. Otherwise why would you be here to talk about something you know nothing about?
I say Bravo for your sobriety but your itching and picking at your skin was due to YOUR drug problem and now you don’t have it and now you say what we, non drug users have is what you had. Nope. That is the lie.
Someone asked me to come see this site so I did and had to comment. I gave up on you guys months back. You hide in shadows and don’t come forward so you are no use to people doing real research. you are part of the probelm and not the solution.
And comment about my non christian status of being Jewish..jeesh! You an anti-semite too…is your head haved and do you hang out in camps with guns?
So far research has found Agrobacterium and unknown fibers when compared to an FBI database.
There is no cure only relief if you are a non drug users and don’t drink or smoke and have a clean bill of physical and metal health.
BTW: My skin lesions were tested for Sarcoid and the test came back negative unlike my biopsy of the lymph
node which came off positive.
So know what you speak of. I scare of all you because I speak the truth and I have no drug, alcohol or other addictions and I am not on any psych meds. I am a clean slate of physical and mental health and a threat to all you trying to debunk this disease.
I am outta here..this site ifs for those that don’t know the “marketing your e-mail” trick you guys employ.
Later!
Shiloh, I’ll try explaining something that you’ve apparently just stepped into here, without any prior knowledge, and I’m sorry if it seemed to you that I was directing things towards you. I assume it’s apparent when I address a person, and, then, when I’m not. I really didn’t mean to create confusion. If you ever don’t understand what I happen to be saying, that’s a real good indication it’s not intended for you to begin with. I may say a person’s user name, when I am addressing them (which I have learned to try and do), but, heck, I don’t know, morgies are always saying that I’m mistreating them and for me to cease and desist. Knowing that morgies read here, and since the usual accusations recently surfaced, again, I was asking anyone to step up and tell me what I did. It seems a simple enough a request, everytime it happens. (Okay, that was all Shiloh.)
Since I’m left to figure it out on my own, is this what “the morgie perception” of being mean to you is?
http://morgellonswatch.com/2006/04/11/fibers-are-everywhere/
Starting from Junebook on Comment 212
http://morgellonswatch.com/2007/03/21/oh-doctor-doctor/
Starting from Junebook on Comment 13
Liz posted a thread on LB, complaining about our exchanges with Junebook, and said that she’d recalled the names, “Tall Cotton and Smileykins” on their message board. We haven’t posted there. They had a hey-day, and then, poor RamoneHormone was accused of being one of us. Nobody from the outside can talk to any morgies there, or anywhere else. Junebook hasn’t said anything else to us, and I hadn’t seen her posting there, either, afterwards. Then, Liz apparently became very concerned, and the thread where they were all in an uproar, at each other’s throats, was deleted. Since we knew that Liz was reading here, she was addressed here, due to circumstances. Then, I saw a day or two ago, that she’s been rather misled by administration, there, along the lines of entertaining some sort of a notion that she had befriended us, or something (?), and that we stabbed her in the back afterwards! It’s real messed up, but, at the very least, that is all I can make out of the misunderstanding. Some morgies used to act like junkyard dogs on LB, and I feel that they think being mean to people, is going to acheive a desired effect. Well, it does. It keep you angry, sick and confused. Everyone is, all of the time, anyway, believing things nobody should be believing. Morgie people, this is the world wide web. You’re not obscured from view. Nobody is spying on you. Nobody has given you a plague.
Speaking of a lying, desire to control others, junkyard dog. Be gone, Randy, you have no power here.
Lord, lord, lord. The grandiosity. The insecurity. The pathological lying. Treat it, Randy, and you’ll lose all your delusions.
I left out paranoia. You left out how high your I.Q. is, this time.
Brandi Says:
April 14th, 2007 at 5:23 pm
I’m with you Brandi, sounds like WE have had very similar experiences whilst fighting this monster. I am 99% well, and like Peter said earlier, I too want to know why this happened to me??? and how???
Trust me people – you would KNOW if you had this condition. Take care now.
Gillian
Aussie.
I’ve yet to see a morgie trying to defend anything but “morgellons disease”. Morgies think it’s something like Brandi referred to about “sides”, as in Morgellons Watch versus believer/victim forums, or something.
You are all so scared of me telling the truth it makes me laugh. Speading lies about me that have not once ounce of truth..so very sad. When I asked you to call me you all siad no so you don’t know me nor will you contact me to see who I am. You are all just bored ugly people.
If you are not sick get on with your life and try doing somethng else like tell people with cancer or AIDS or Fibromyalgia that they don’t have a disease or tell starving children they are not really hungry or poor people that is is their fault they are poor. Pick another target!
Get a life. You are not sick..do something else than tell peole who are they a they are not for your own amusement. SICK SICK SICK! That is what you are addicted now to this.
Why are you here? To tell people they don’t have something they know they have. What is your point exactly?
BORED? Get a job.
Everyone who knows me knows I only speak the total truth which really pisses all of you off they are collecting data for sale. You are the merchants of this disease, the ambulance chasers helping no one and only boosting your own egos using sick people as your stepping stones.
That is the truth and everyone who has this knows it.
NOw, having me on this site makes more people come to it so I will nto do you the favor of making it popular anymore and doing an inhustice to all of those new sufferers.
If you are sick and you need real help my number has always been 434-974-7128
and my e-mail has always been and still is cisfl2004@netzero.com
I will not help you make this site interesting.
Bye!
Smiley, Smiley, Smiley…
You are so pathetcally repetitive & you ARE a hypocrite. I’m sorry. You ask for it. You really do. You have NO new “enlightening” info. You say the same things OVER & OVER & OVER. You have been typing away on this site for such a long time that I do believe your brain is completely out of anything to say beyond your usual–”morgies this & morgies that”.
You keep saying that we shouldn’t “buy into the morgellon’s theory” & ignore all of our symptoms by blaming them all on a “made up disease”.
However, you continuously refer to ALL of us as “morgies” and steriotype ALL OF US as well. You are constantly making snide remarks and then acting as though you just can’t seem to understand why people don’t really like you or respect anything you have to say.
You are boring & annoying. You really are. You seem to think that you know everything and that YOUR THOUGHTS & OPINIONS are infallible. You really could use a dose of humility. I hate to break it to you… but, whether you believe it or not–you’re going to get exactly that after all the research is done. PERIOD-FACT. I CAN SAY that, because I KNOW that I do indeed have something going on with my body. I have fibers/funk/matter/stuff OTHER than the usual type of normal stuff that should come out of one’s pores. THAT (for the last time) IS EXACTLY what makes all of us, “morgies”, have to reluctantly & sadly take on THAT name whether we like it or not.
You keep saying that we “are mean”. You keep asking what you have done to make A LOT of people dislike you. You make the most ridiculous comments about everyone. You couldn’t even offer up a sorry after I apologized to you for my rude comments. I really do believe that you are mentally ill. In all honesty, I think that something is very wrong with you. Your way thinking is warped/delsional ( & NO I DO NOT need for you to go on and on about the definition of “delusional”). My vocabulary is up to par, ESPECIALLY in regards to a word that has frequently & falsely been used to describe the things going on with my body and many others.
Smiley. what is wrong with you? Seriously. You seem very disturbed. I cannot believe that someone had the odassity (you or TC) to make a comment about about Randy’s religion. THAT was so out of line it’s unreal. HOW DARE YOU be so self righteous. Who do you think you are? SO, DO NOT ever wonder why you are disliked by so many people. You have a problem. We ALL have problems… but, making such and evil comment about her being Jewish is UNACCEPTABLE and there is nothing you can say to fix it.
PLEASE-DO NOT start your annoying attempt at justifying all you do. You have not an ounce of humility in you. You come off (whether you mean to or not) as thinking you are better than anyone & everyone. It’s so played out & untrue. In MY opinion. You seem like a horrific person. Sorry, you do.
Maybe you aren’t, but you sure have made yourself sound like one. Also, judging from your bio. You seem as though you are definitely a mentally disturbed individual. GET OVER YOURSELF. PLEASE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! JUST GET OVER YOURSELF. GET A LIFE, GET A JOB, GET OVER THIS. THIS is not your fight (& by fight I mean-for our cause)… YOU have made that perfectly CLEAR—YOU ARE NOT SICK– YOU THINK WE ARE DOP–NO ONE COMES ON THIS SITE BUT THE SAME OLD SAME OLD who you say are not your “intended audience”— SO GO! GET LOST–MIND YOUR OWN DAMM BUSINESS—REALLY! MIND YOUR OWN freaking business!!!! You are out of line. Completely. WRITE A BOOK–DO ANYTHING ELSE, but leave us alone. You don’t really give a crap about anyone–I was wrong when at one point and time I thought that I saw a glimpse of humanity and caring in you. You are a “think you know it all type”. Those type of people are usually lacking true knowledge because they never think that have room to learn. You say that you do… but again–TALK IS JUST TALK & so damn cheap. TALK is all YOU Have. WE HAVE THE PROOF. Good bye “smiley”. PLEASE–give it a rest. If for no other reason–for your mental health.
To Brandi:
Gee, and I thought you were mad at me for bringing up Christianity. Which I really didn’t. I only observed in my first post that you folks seemed to believe in a creator.
When you folks were making up and offering to pray for one another (and that includes TC), I broached the subject of religion, because I do feel that one’s faith, whatever it may be, is an important source of strength to fight this thing when the secular world of science is telling you that there is no such thing as what ails you.
In my second post, I chastised by saying “it is not very Christian”. That was in response to TC’s anti semetic rant. It seems to have worked, as he has been strangely silent since then.
For the record, although I was born a Catholic and though I do not actively participate in my religion, I haven’t forsaken my belief in God. However, I am not so narrow minded as to think that the Christian God is the only true God. I believe when a person of faith prays to Allah, Jehova, Jesus or a Creator, their prayers are all directed to the same deity.
Now, the difference between you and I is how we deliver our disapproval. Let’s try and treat others, even if they offend us, as we would like them to treat us.
Certainly there comes a time when “turning the other cheek” just fails to work. It is at that time to take Jesus’ advice and “shake the dust off your sandals and go on with your life.”
I’ve said before, Randy, that we’re not able to detract anything away from, or diminish, a geniune disease just by discussing the facts. Treat what you have. Otherwise, relax. If it’s real, it will remain real. Try to consider that. The ways you present yourself just sounds exactly like someone with a factitious disorder, whether you realize it, or not.
If there weren’t something pathologically interfering with your proclaimed high IQ, you’d be able to problem solve. Deny that, but it IS true. You would know what this is, for you, and you’d be able to do what was needed to have the delusional thoughts diminish. It’s different for everyone, because so many underlying conditions cause delusions, but so similar, only, in the ways you perceive so many things, that you needn’t be concerned with, incorrectly.
The underlying illnesses that induced all of your separate delusional states are in need of sound medical treatment. Being honest about what each one of you thinks, feels, and believes, would not get you people locked up! Instead, the shrinks would go on and order those appropriate tests for parasites, that you all so desperately wanted, and expected, to receive through another doctor. None of you FOLLOWED THROUGH, in the same mistaken ways.
Now, you can pull out each and every one of your big bully girl stunts with others who have the same beliefs as you, because they, too, are in a compromised position, not treating their real issues. Stop looking at this blog since it creates only upset for you.
Publicizing your name and phone number (and you also post your address, sometimes, in other forums) on the internet, like you do, is so dangerous. You don’t even know that, yet you’re scared of so many things you needn’t be concerned with.
Peter, TC is traveling right now. Both of answer to Jesus, whenever it’s impressed upon our heart by The Holy Spirit to ask to be forgiven, so don’t anyone tell us how we should be in your eyes. It’s always just between us and Jesus.
Do any of you know a morgie who goes by the user name of Ursula, because unless she is making something up, maybe this is how this whole thing started. She claims:
http://scienceblogs.com/aetiology/2006/07/new_story_on_morgellons_diseas.php
I asked for her source, and she’s been gone since then. Hopefully, she’ll return with more.
Well Smileykins you can tell TC when he returns that I and about 5 billion other people don’t accept his claim that:
“Every God other than the Holy Trinity are false god.”
You may also tell him that from where I sit, I think his experience with:
“I also expelled a lot of strange looking material from my skin, including long hair-like fibers. In my case, the hair-like fibers jettisoned out through the pores in about 1/2 second, or less.”
may point to his possible Morgellons infection, not to his drug abuse.
You can have Morgellons and be addicted to drugs. They are not necessarily mutually exclusive. If anything his drug use may have exacerbated his Morgellons.
So, if we are talking about being delusional here, ie a mistaken belief not based on fact…if the shoe fits…
My advice to him would be…
Wait till a credible medical body such as the CDC comes to some sort of conclusion before passing judgment on others.
Why is everyone so against having DOP? You’d rather think that you’re right, and that it’s something other than it is, than to treat it and get your lives back. I know “morgellons disease” covers every disease and disorder known, and more, but only to dupe you because in that state you can be. DOP is caused due to a lot of underlying diseases and disorders. For those making up the 95% of patients who have been diagnosed with DOP, from an average of 10-40 doctors, why is it so worth it? It’s a hellish condition to have.
——————————————————————————————————
this 1998 review on Psychogenic Parasitosis, in a past issue of “Psychosomatics”, from The Academy of Psychosomatic Medicine.
http://psy.psychiatryonline.org/cgi/content/full/39/6/491
Excerpts from case reports:
* a 39-year-old white woman who presented to dermatology clinic complaining of “white strands” on her face that “feel like they are moving — like hair being pulled through the skin.” She brought several Ziploc (plastic) bags filled with samples, which microscopy revealed to be fibrous strands and epithelial cells. Physical examination demonstrated multiple hyperpigmented patches and a healing erythematous lesion on her right cheek. Otherwise, her skin was clear.
* a 69-year-old man stated that 3 to 4 months prior to his dermatology evaluation, he began to observe “little tubes” protruding from his skin. These tubes were stated to be extremely pruritic, causing him to scratch. When he did scratch, he believed that this incited a process in which three-cornered crystals would sprout legs and jump out of the tubes. After “exciting” the tubes, the crystals would leave “slag” (a byproduct of “welding”) behind. He also complained that physicians would not look at him and that they thought he was “going crazy”.
———————————————————————————————————
Both of those patients appeared to have DOP. However, their beliefs were NOT unshakable. The female patient was cooperative and responded favorably to treatment for anxiety, and the male improved after his underlying physical condition was explained to him as having resulted in the development of his skin symptoms.
1. Primary Psychotic Delusional Parasitosis — DOP is the sole psychological disturbance:
* patients otherwise behave normally * reason in a rational manner
2. Secondary Functional Delusional Parasitosis — an underlying psychiatric condition, including:
* schizophrenia * paranoia * depression * anxiety disorders * obsessional states
3. Secondary Organic Delusional Parasitosis — there’s an underlying physical illness present,including:
* drug abuse * hypothyroidism * cancer * cerebrovascular disease * tuberculosis * neurologic disorders * vitamin B12 deficiency * diabetes mellitus
and more.
Peter… NO!! I was not annoyed with you at all. I actually thanked you in a different post… I just was annoyed at how Smiley and TC started REALLY getting into the “finger pointing”.
I didn’t think that you were doing anything wrong.
I know how snappish I come off at times. I suppose I don’t always express myself well. Sorry if I came off that way.
NOW!! The remarks about the Jewish faith really bothered me. If yu are bothered by the way I express my disproval at times-I’m sorry. Again, I AM an imperfect human being. Sorry, Peter.
I haven’t passed judgement. I don’t know any of you. I know the facts as they exist.
You let everything bother all of you, don’t you? When it isn’t anything to concern yourselves over, at all.
SMILEY-that is comical! YOU DO NOT know facts!! You DO NOT KNOW that I “DO NOT” have fibers emergimg from skin or that anyone else does not, for that matter. SO! You DO NOT have FACTS. You have NO FACTS AT ALL other than the fact that YOU were once delusional.
You know nothing beyond assumptions.
That is what concerns me so. It might concern one or two of you, too, if you could see what is happening, and why.
I was not addresssing Brandi, in my last comment. I am concerned over what morgies can’t see, which should be apparent, without stating it. Please, exercise your freedom to let er rip.
smileykins and tallcotton,
i would really like to talk with u guys, but don’t know how to contact you.please reply here.
baybeekat
Brandi, if you really read my brief account, you missed:
A lot of morgies know this about me too, and like to overlook it the same as you. I know, though, since it’s one of the listed symptoms, that all of you, sadly, have cognition problems. Your version of my experience is different from my real version. The brief psychotic state I was suffering from was due to dehydration, which led to prickly heat, and heat exhaustion that led to my passing kidney stones, and I was wasting the whole time. Why would I want to see your fibers? I had enough of my own, back then, to stuff a pillow with. Morgies are doing a dumb thing, for wishing their disease on me. They really probably would prefer that TC and I had both gone ahead and died. Good Luck. One of the morgies is sure having fun here, but they began before I said anything about cutting loose. I hope it’s helping them deal with something.
Hi, Baybeekat
TC and I won’t be able to be on here for a couple of days, but you can leave a message for us in the comments section at:
http://of-morgellons.blogspot.com/
I didn’t mean that I literally stuff a pillow! They went in and out of my dog, too. Or so it seemed. It was bad.
What are the facts people? All we have here (in these here comments) are a bunch of folk who sound angry, and claim some weird experiences. Thence shouting.
What’s the question again?
The question is not “are some people sick”, or “is Brandi making assumptions about her perceptions”. Nope, the question is: what is the evidence of a distinct disease that makes fibers come out of your skin?
Evidence means statistics. It means independently repeatable observations. What do we have? A bunch of different people, with widely different experiences. Brandi and Randy, why don’t you compare notes in detail, and see if you think you have the same thing.
Bullshi**ing ??? Ive seen a couple of people in pretty bad shape walking down the street. Hard to tell what they have, but it looks like they are going through hell. Like VERY severe acne, amphetamine/methamphetamine abuse or these “Morgellon’s” lesions.
Sounds like your bodies are falling apart ? Infestation with NANOTUBES ?
http://www.rense.com
Brandi,
After logging out for a day or two, I feel like I am reading the same stuff! I would love to compare notes with you, talk to you etc. I just don’t want to do that here. I have some reservations about some of the climate and am wanting to be taken seriously.
Michael,
Hello. You said “facts”. Well, are you agreeing or disagreing that we could possible factually have fiber/specs/whatever coming out of our skin?
Usually, the people with whom I have talked to have said that they too have all the SAME types of DIFFERENT matter emerging from their skin.
Now, giving us the benefit of the doubt (which you seem to at times)- that is the only fact we need to know something is NOT RIGHT.
Could it be dehydration, former Meth users, whatever…. at this point, I don’t know what the heck is causing “IT”, but it is happening.
So, Smiley admittedly had fibers but believes they were synthetic, & TC had different types of matter coming out of him but claims that they WERE indeed there, but it was due to the way the toxins were being excreted from his skin. So. In TC case… he said he knew that he had a real experience although he has an explanation for it which then made him able to look past it and move on. HIS–went away! Ours–won’t.
What would you suggest we do? Smiley-please do not chime in with “go get a good shrink”. A shrink wouldn’t have made TC’s matter go away. It’s medical (THAT part of it). Now, I am the first to admit that many of the people who have this do seem to have mental problems, but many DO NOT & have gotten a clean bill of mental health from a highly qualified “psychiatrist”. The shrinks refer you to medical doctors. We are all stuck chasing our tails & you offer a site to reinforce that we don’t really need help beyond counceling. Well, that what Smiley seems to imply. Actually, she contradicts herself alot and then tells us we lack in reading comprehsion capabilities.
Well, what if you didn’t have an explanation for it? Wouldn’t you want one? Would you not be terrified? It doesn’t matter HOW I got here (AT THIS POINT), but how to get rid of this–for now. Of course, figuring out how we got here is important in figuring out how to get rid of it–but, I’m sure you get my point. How would TC or Smiley feel if they continued with the horrific symptoms they once had and many DIFFERENT researchers where baffled as to what the matter was. Yes… I know… some just say it’s nothing. Could they have said that in TC case had it gone on long enough for him to have to seek out medical treatment due to the pain and horror of it all?
Now, I don’t care if we all have something different causing our symptoms… I think most everyone’s cheif complaint is not whether or not we have something that could be caused by the same thing… we are being ignored (most are). This is not the type of thing that you can just live with. Smiley and Tc both stated that their are conditions where matter can come out of one’s skin that is clearly NOT the norm… So, why are we having to suffer needlessly. I listen to my docs-they are concerned as well as baffled (COMPLETELY). I have been checked for EVERYTHING and no one can figure out what’s wrong.
I am not here saying that I have been abducted by aliens or sprayed by mind controling chemtrails… I am saying that way too many people are suffering from freakish symptoms and instead of being examined, they don’t even get a second look before getting the dreaded “DOP” acronym written on their med records.
Now, Smiley… you are big on defenitions-right? You & Tc tell people that they are DOP all the time. You contradict yourself. Why don’t you write the def. for DOP? CLEARLY, I do not have that… I do not believe that I have bugs living beneath my skin. I do not feel anything moving. I just know that I am having some weird symptoms, as is my family & I want/need an explanation. I said nothing to my children… they came to me asking what was coming out of their skin. FACT. Anyone that knows me, knows that I lie to them pretending it’s normal to protect their psyche.
Michael-I have talked to SO many people with this and the symptoms are uncannily alike. At least the matter that comes out of the skin. I don’t know what to think. I keep a very detailed journal even writing down observations in regards to what other people with this tell me about their symptoms. I’m trying here. I just need relief. This is horrible. I am so exhausted and in so much pain. I hate whining & dislike hearing others whine… but, that’s a fact.
Smiley–the cognitve comments. No… You DID say that you were having delusions at one point and time. It was still a low blow, regardless-so I am sorry. However, you seem to clump us all together more than we do ourselves. Isn’t that what you’re disputing in the first place? That we should not assume we have the same thing? BTW-not everyone has cognitive difficulties. Again, you are making a broad assumption.
I would love to talk to Peter, Shiloh, or anyone else who has been apart of this discussion that would like an ear or wants to lend one. I guess I could leave a seperate email… I don’t know. Michael–do you think that it’s wise to give out my email on this site? NOT because of anyone that has written in here, but others… how would you suggest I get in touch with them?
Definition of Delusory Parasitosis: a false, unshakable belief that organisms are infesting one’s skin or body.
There are a million reasons why you would see things coming out of your skin. The question is: is there common cause? Billions of people have skin problems. Why do you think you have the same thing as Drew Leitao, Gillian and Randy?
Step 6 – Professor Wymore soundbites – like “there’s definitely something going on“. Show Wymore in his Lab and wearing a white coat. Make it look like he’s an expert in this field. Do not mention he’s not a doctor. Do not mention he’s actually an assistant professor.
THIS WAS IN THE LINK THAT YOU (SMILEY) ADVISED ME TO TAKE A LOOK AT… THIS WAS WRITTEN BY MICHAELLLONS… WELL, DR. WYMORE DID INDEED COMPLETE MEDICAL SCHOOL AND HAS EARNED THE TITLE DR. WYMORE THOUGH HE IS NOT A MEDICAL DOCTOR.
HE IS THE ASSISTANT HEAD PROFESSOR AT OSU—HE IS ACTUALLY UP FOR TENOR & MIGHT SOON HAVE THE ‘HEAD’ PROFESSOR TITLE. BEING THE ASSISTANT ‘HEAD’ PROFESSOR IS MUCH DIFFERENT THAN BEING ‘AN ASSISTANT’ PROFESSOR.
#124 SMILEY WRITES…
Shiloh, a REAL doctor knows. They don’t HAVE TO LOOK FOR anything else when it is blatantly obvious that their patients’ ill conceived perceptions of things is the major cause of distress to them. Yes, you, and all morgies, have anxiety. Read what anxiety is. Real what it can lead do. All of you are on the wrong track in what you’re thinking. Thoughts make people ill. We are our thoughts.
Smiley, I have a thought for you. If someone’s ‘thoguhts’ make them ill… does it make them less ill too?
Here’s my point. One man jumps off a cliff and the other man falls… they are both injured laying at the bottom of the cliff and the paramedics come.
They are both equally injured (maybe the one who ‘jumped’ is even worse off)… do you think that the paramedics/doc would then say, “WELL, SIR—SINCE YOU JUMPED OFF THE CLIFF AND HE ‘FELL’—WE ARE ONLY GOING TO OPERATE ON THE MAN WHO FELL… YOU SEE, WE FIGURED SINCE YOU ‘JUMPED’ OFF THE CLIFF YOURSELF… WELL, WE THINK IT MIGHT THEN ALSO BE POSSIBLE FOR YOU TO ‘JUMP OVER YOUR INJURIES’ AS WELL. GOOD LUCK”…
Of course, that would not be the case. Yes, it is a fact that stress/anxiety/depression can make a person very ill and even cause death.
However, just because you got from point A=well TO point B=sick one way as oppose to another… DOES NOT change the fact that you are at point “B”-now does it? You are still sick and in need of PROPER and compassionate medical care. Plain & simple!
Definition of Delusory Parasitosis: a false, unshakable belief that organisms are infesting one’s skin or body.
Hey, Sarah… I don’t know if I am being “infested”… I don’t know if I have any type of “organism”. I really do not think that what I have is “alive”, which would be the def. of an organism–right? Any LIVING thing…
SO!! I don’t have DOP… I have what I call “funkanitis”… hahaha… okay, bad joke in bad taste, but that is what I call it. I have learned to ignore it to the best of my ability & when I can’t—laugh it off! I refuse to not enjoy my life because of “this/funkanitis”.
I do believe that the ‘DOP’ word has been thrown around a bit too loosely. Cut me some slack here!! I just want to understand what is happening with my body-that’s all.
As I told you all before, I was a runner who competed in 5 & 10 K’s. I was training for a marathon… now, I am too tired to run and my body hurts in an excruciating way—more often than not. I MISS running SSOOOO SSSOOOO SSSOOOOOOOO much!! It was my ‘drug’,my sanity saver, passion, etc.
SO! I don’t know… I just want hope. Hope that somewhere somehow, people will stop worrying about whether it’s ‘real or not’ & focus/worry about how to fix it. I already know it’s happening. I only need other’s validity so that it will then lead to reasearch VS debates about whether it even exist.
Brandi,
I’m confused, I know this wasn’t written to me but you said
“WELL, DR. WYMORE DID INDEED COMPLETE MEDICAL SCHOOL AND HAS EARNED THE TITLE DR. WYMORE THOUGH HE IS NOT A MEDICAL DOCTOR.”
Dr. Wymore did finish medical school, but is not a medical doctor, but has earned the title? I don’t understand how that is possible. How can he finish school and earn the title but not be a medical doctor?
Hey Michael!
Well… I think that I might have the same thing as them because I have some matter that comes out of my skin on a regular basis and sounds EXACTLY like the sort of matter that many of the others describe.
Do you have any ideas? You really believe that it is just some insane case of mass delusions fueled by the internet? I know you know that I didn’t know that anyone else was going through this besides me until a year into my freaky symptoms–it was THEN I heard from someone that I had what sounded like “the ‘M’ word”. THAT is how I found out that I was not the only human being around with ‘funk’ coming out of my skin.
I mean, COME OM!!!!!! It’s not everyday that you hear of people having stuff come out of their skin (young and old alike). What would you think if you were me?
Does anyone have any updates on when or what the CDC is doing?
Sarah…
I don’t know… I guess I thought that he had told me he did go to med school late in life… he does have his doctorine (obviously)… I just tried to look up his credentials but didn’t have much luck.
I guess I could be wrong… my apology.
Regardless, if he was some quack don’t you think that he would no longer be employed by OSU? I don’t understand why everyone is so eager to discredit him just because he is doing RESEARCH. That’s what he is supposed to be doing… it’s his job.
Also, there are medical doctors who are now studying this. Many more have taken a real interest in this illness… or–WHATEVER it is that is causing different people to have such weird symptoms (mainly–the matter from the skin). That symptom alone is enough to make anyone want to join forces and not be alone, HENCE–the amount of people ON LINE looking for support in any way shape or form.
Brandi,
I don’t think people are trying to discredit him for the fun of it. I think people are just trying to err on the side of caution and skepticism. He’s doing research, but as of yet, we have seen no peer-reviewed published literature on his findings.
Also, a slight distinction. Some people may have M.D.’s, but that does not mean they are qualified researchers. A medical doctorate means one is a highly skilled technician in medicine. I point specifically to Dr. Gregory Smith, who openly admits that he is not knowledgeable about the research process, and admits he does not know how to form a testable hypothesis. People with Ph.D. degrees are people who have degrees in research.
Brandi,
Also, this was not addressed to me, but I’m curious about it, if you don’t mind me butting in.
“You really believe that it is just some insane case of mass delusions fueled by the internet? ”
I don’t think anyone asserts that you are imagining or hallucinating a skin problem (anyone? anyone?). However, to what you attribute your skin problem is what is contestable, and I do think that some components of the Morgellons phenomenon are fueled by the Internet.
Sweat, hair, sebum, splinters, blackheads, dead skin, – everyday things that come out of your skin. Then if you go over to dermnet.com you can see thousands of unusual things that come out of people’s skin. Look at Eczema Dyshidrosis, not something you see every day.
Hey, I have not posted to this site in a while but it seems like all the main players from TV are on here now too (Mrs Koch & Mrs. Dill). Its like walking into a room with movie starts in it:P
Now to be serious i dont come on here much or post because most of the time people just call each other names and are rather cruel to one another. I am interested in morgellons as a psychological disease. I am skeptical of it and dont beleive in it for the following reasons:
1. Mrs. Leito is making lots of money off this thing and some people quit her foundation because of it.
2. This was practically unheard of till Leito put it on the net, thus seeming to create the first ever “net” disease with people reading about it and claiming they have it.
3. There has yet to be any scientific data proving this disease exists.
4. Some anti psychotic medications have been used in treating morgies with great results.
Too the people who beleive they have this condition all i can ask is have you tried therapy or any drugs for depression, psychosis or what not. I dont think anyone on here is crazy and do beleive they are suffering but i think the cure is out there, but no one wants to be perceived as crazy and take the proper steps to become healthy. Out of all the morgies i have met thru the net none of them has every stuck to therapy or mental health medications long enough to see results. I do beleive this to be mostly a disease or condition of the mind (and i have masters level degree of research in the psychology field so its not like i dont know anything about psychology). If i am proved wrong by the CDC i have no problem in admitting i was wrong. But till there is credible peer reviewed info i am going to have to stay a skeptic.
I wish everyone well,
911
Brandi-
Dr Wymore did not go to medical school and is not a medical doctor. He has a PhD and has done research since graduating.
well, again… it’s not the normal typical “stuff” that one would expect to come out of someone’s body. It is quite UNBELEIVABLE, for lack of a better description. THAT IS WHY I wanted SOMEONE to come on down and SEE it!!
Obviously, that’s not going to happen… but, the proof is a flight away! If you could see what I have going on–you WOULD positively change your mind. It is that strange & abundant in volume. Again–you will all see one day. Promise.
Until then… well, I suppose there is noting else I can say.
911–you up for a visit? LOL! I know that it must seem untrue. I get it. It’s way to hard to comprehend unless you have seen it.
Oh, Sarah, I DO NOT mean Greg Smith.. He is no doc that I’d be proud to say was on “our side”. I told you how I felt about him/they (the NMO). they are a tad kooky.
There are others…
Oh well. I am bothered that I can say nothing to gain even the slightest bit of ‘credibility’… but, I do get it. I cannot say that I would not feel the same way if the tables were turned. As much as I’d like to think I would… I don’t know-really!!
Well, thanks for the insight. i will talk to you all soon!
goodnight& sleep well.
Again, no one answers my question about going through phsychological therapy and taking medication. They just offer me plane rides to stay at their house. There is an article on the wikipedia page for mogellons that links treatment with an anti psychotic to successful treatment of “mogellons.” I would look into trying it to at least see if symptoms resolve themselves. Cant hurt can it?
911
Brandi
YOU ROCK GIRL!!!!!!!!!!!
SLAM DUNK THE FOLKS THAT DON’T THINK THIS IS REAL!!!
I know lets start a Bed and Breakfast and let them folks come stay a week or two!!!
TexasRose
Again, can anyone answer the question about therapy or medication for me. It just seems that any time i bring up a psychological cause people would rather ignore me. Wasnt there already research by wymore that showed the fibers were organic and thus not alive? I think we have a person on here a while ago that did research with him. Michael, do you remember this?
Well, I don’t think people are doubting that you are ill, and you have symptoms involving your skin. But it’s more complex that that. You are also stating that the things coming out of your skin are “unbelievable”, and that you have the same disease as a bunch of other people.
Look at it from a different perspective, suppose you say you had seen something odd in the sky. Now, there’s no reason to doubt you, people see things in the sky all the time, birds, planes, balloons, clouds, etc, and they can’t immediately tell what they are, so they call it an unidentified object. Nobody would doubt you saw something.
Now suppose you said you saw something in the sky, and you though it was an alien spacecraft. Again, nobody would doubt you saw something. But they might doubt your interpretation of what you saw. They might think you were mistaken.
Then suppose you said you saw an alien spacecraft land by your house, and alien got out, abducted you, performed experiments on you, and returned you to your house, and this had happened several times. Then people might doubt you. They might think you made it up, or you imagined it, or your dreamed it, or you were crazy, or some combination of these things.
Of course, there might actually be UFOs, but nobody is going to believe a story like this just on disparate eye-witness testimony. That’s notoriously unreliable. Nor would it seem worthwhile to accept an invitation to their house, as that would probably be the day the UFO did not show up. We would want video of the incident. We would want multiple corroborating accounts of the same incident, preferably from expert witnesses.
So what would it take for me to believe you Brandi? Well, I already believe you are ill, and have something going on with your skin. I just don’t believe Morgellons is a distinct disease, and I don’t believe that lint-like fibers are related to illness. I think you are somewhere between the first and the second UFO examples. You are nowhere near the third, but you know some people are, and that colors your assertions by association. But anyway, if you want to convince me (and everyone else) of the “unbelievability” of your situation, then what I recommend you do is:
A) Buy a HD camcorder. Like the Sony HDR-SR1 ($1200), one with a macro function. Also buy a tripod, maybe a softbox light as well.
B) Video the “unbelievable” stuff emerging from your skin, in full HD, well lit, in focus, from several angles.
C) Video some testimony from medical professionals. Anonymous if needed. They should give their medical opinion of what might be going on. Have them describe what they see in the skin video.
D) Rent some server space, on godaddy.com you can get 100GB for $7 per month, enough for all the video you could want.
E) Upload the full high definition videos to this web space, and post links to them.
Sounds like a lot of time and money? Well, you are very wealthy, and you would spend more on having one person come visit you for an inconclusive trip. This way you get actual evidence that people can use to determine what weight to give to your claims.
I’ve been reading this post for several days now and decided to jump in..
Brandi says- “I have talked to SO many people with this and the symptoms are uncannily alike. At least the matter that comes out of the skin. I don’t know what to think. I keep a very detailed journal even writing down observations in regards to what other people with this tell me about their symptoms.”
Brandi,
You need to find someone objective who can keep this kind of journal, depicting observations from many different people, so that he or she can draw independent conclusions. Not to say that yours are not accurate, but it is probably safe to say that the confirmation bias comes into play here. When talking to these people, you probably notice the similarities in symptoms between you, but if they are having different symptoms, they are easy to ignore because that is not “Morgellons” as you know it to be. Simply put, in talking to these other people, you are only looking for evidence to confirm “Morgellons Disease”, and since that is what you want to believe, that is of course what you will find. You need to stop arguing with people who do not believe you (and aren’t going to) and spend your time elsewhere finding someone who will listen objectively. He or she may be hard to find, but it can be done.
Again, has anyone tried therapy or anti-psychotic (i hate that name) medicine. And not just for like a week or two. Anti psychotice medicine can take a month or more to work so i want to see someone who at least tried it.
And the whole come to my house thing is getting old. People have been saying that since i started coming here.
One thing bugs me… how come I find these strange fibers in my skin? The exact same fibers! I have had a small piece of skin peel-off, like a rash, and find fibers underneath. They are from the environment? Hogwash. My son has had rashes appear, fibers and all. My houseplants have the same fibers. Environmental? Hogwash. I have seen the fibers actually connecting leaves together.
Brandi, keep treating this with salts, hydrogen peroxide, vick’s vapor rub, neem oil, etc. I have found a drastic reduction of the fibers that come out of my skin. I started treating with vick’s vapor rub and neem oil. In the beginning of the treatment, I would have about 30-50 morgies evicted from my skin. (I wash my hands 3 times with dishsoap, then saturate with the rub & oil, and gather the black dots (threads) as they appear.) Last week I ran the treatment and zero threads appeared. Either they have grown immune to it, which seems possible, cuz I still itch, or they are being killed. However, i only treat my hands (my wife hates the smell, and she’s not convinced!) Imagine that! She has seen countless threads on/from my skin, on her skin, and on my kids, also my houseplants, and she has similar itching inside her ear and eyes, and she still doesn’t believe me! Brandi, these people may never believe it, hell, it’s such a sneaky disease that they may even have it and not know it.
Finally, I know I’ve had this thing since at least 1991, and there have been times where I’ve had red bumps or ‘bites’ all over my body (diagnosis=scabies, treatment didn’t work), but somehow I treated it. Diflucan may have helped, I remember I was given diflucan for a fungal rash, and my red bumps went away. Oh, and I once had a chest x-ray for TB, results=negative, but the doctor said that my x-ray showed ‘specks’ in my lungs that she didn’t recognize. She prescribed a sulfa-based antibiotic. It cleared up my rash and my chronic bronchitis (the phlegm stopped altogether). By this time I had stopped telling doctors about my parasite problem, I have all but given-up on modern quackery, I mean medicine. Getting back to my point, this disease seems to be treatable, so don’t give up. And don’t worry about what skeptics say. The world is full of idiots. Everybody is stupid, and nobody knows it.
Bullshi*ting ??
Yeah; lets hear whats up with the CDC… NANOTUBEZ ?
yea, total bullshit from these freaks. Delete my post plz We aint going away.
Hi 911,
You said “I would look into trying it to at least see if symptoms resolve themselves. Cant hurt can it?”
I agree, that the only documented, published, peer-reviewed cure for Morgellons has been wrapping it in a cast and orap (pimozide). But the idea that it can’t hurt is questionable.
Antpsychotic medication has a disfiguring, permanent side effect called tardive dyskinsia. Even when people taking these medications stop, they are permanently disfigured with involuntary movements. So, I would say there is a risk, which can hurt. http://en.wikipedia.org/wiki/Tardive_dyskinesia for more info.
On the other hand, research shows that medication has the highest efficacy rate in treating DOP and those associated symptoms with Morgellons.
Therapy however, if properly administered, only has a 10% efficacy rate… but I don’t remember my reference for that. Let me get back to you.
Bit of a simplification. What is “therapy”?
Try Psychology, an International Perspective, Ch.23, Pages 873-875. You can view it on Amazon. Also:
http://www.psypress.com/pip/resources/slp/topic.asp?chapter=ch23&topic=ch23-sc-06
Cognitive and Behavioral Therapy works well with those with DOP/”Morgellons.” The incident of side effecs such as tardive dyskinsia is between 5-10%, not that really high. So chances are heavily in favor of a person not having that side effect. I think it could be safe enought to use on morgellons patients. I mean some of these people are putting lysol toilet cleaner on their skin and permantly disfiguring themselves already.
911
BEELZEBUB AND A FEW OF HIS COHORTS ARE ALIVE AND WELL ON
PLANET EARTH.
THEY’RE ALL HOLED UP WITH A COUPLE OF LONG-TIME FRIENDS, A COUPLE OF EX-DRUGGIES (WHOSE BRAINS WERE PROBABLY FRIED BY MANY YEARS OF METH SUPPLIED BY THE DEVIL HIMSELF), IN A SICKLY, SMELLY LITTLE APARTMENT ON THE OUTSKIRTS OF TOWN. ONE ONLY NEEDS TO READ “THE SMELLY PERSON’S” BIO (WRITTEN BY HER SO-CALLED INTENDED),TO FIGURE THAT OUT. SO, WHAT YOU MUST REMEMBER IS, EVERY TIME THEY GET THEIR CLAWS INTO SOME INNOCENT VICTIM, IT’S THEIR INTENTION TO TEAR THEM UP ONE SIDE AND DOWN THE OTHER. YOU SEE, IT IS “THE WICKED ONE” BEELZEBUB HIMSELF WHO CALLS THE SHOTS WHENEVER HE’S IN TOWN–AND WHEN HE’S NOT, OF COURSE. ;0) HE DICTATES EVERY WORD THEY WRITE. HE TAUGHT “THE SMELLY ONE” HOW TO COPY AND PASTE YEARS AGO BECAUSE HE KNEW HER BRAIN WOULD SOON BE IRREPARABLY DAMAGED, AS IS THE MAN’S WHO MUST BRING HOME MEAGER SCRAPS OF BACON BECAUSE SHE CLAIMS SHE’S CRIPPLED–OR IS IT DISABLED? THEY OWE “OLD SCRATCH” BIG TIME. ANYWAY, IT’S CLEAR AS DAY THAT THESE TWO WICKED CRAZIES PROMISED “THE OLD GOAT” THAT THEY’D DEDICATE THE REST OF THEIR MISERABLE, UNHAPPY LIVES TO PROVING A POINT THEY’RE ILL-EQUIPPED TO MAKE–THAT THERE’S NO SUCH THING AS MORGELLONS, THAT “ALL MORGIES ARE CRAZY,” WHICH MAKES BOTH OF THEM SOUND LIKE THE BIGOTED ARCHIE BUNKER. FRANKLY, I DON’T CARE WHAT IT’S CALLED. FOR ALL WE KNOW THIS HORRIFIC DISEASE SO MANY OF US SUFFER FROM, MAY HAVE ANOTHER NAME–OR MAYBE LATER,IT WILL BE GIVEN ANOTHER NAME BY THE SCIENTISTS AND RESEARCHERS.I DO KNOW WHAT IT DOES, I DO KNOW HOW IT HURTS, AND I DO KNOW HOW IT CHANGES LIVES FOR THE WORST, FOREVER.
* * *
Dear Brandi, The very best thing you can do for yourself is to turn your back on “the smelly person” and the her intended, “THE TALL WHATSIT. Read “the smelly person’s” bio as it’s related by her fiance, and you’ll see exactly what these two are all about. They are sick and obsessed, their lives revolve around this site merely to demean, insult, anger, rile, make fun of, and accuse them of anything and everything to publicly embarrass them. The very second someone with a very serious skin problem logs on, they’re armed and ready to go. The worse they make you feel, the better they sleep–if they sleep at all. Under the direction of Beelzebub, they toy with your mind like cats with an injured mouse.Don’t allow them to do that to you. Take control back. Don’t read their posts, don’t respond to their questions or insults–no matter how sickly sweet they sound. They are of the devil, and that’s what he instructs them to do–”Lure the Morgies in, encourage them to takethe hook, then hit them with everything I’ve taught you. Disappoint me, and you’ll burn in hell.” In my opinion, these two tricksters, should be blocked from every Morgellons site around the globe. The damage they do to sick people, imeasurable. Attacking Anne Dill last week, unforgivable. More later. :0))
Nice to see no one ever answers my question.
I think this is all mentally. There are way too many symptoms listed and new things happening daily. When the hell did drop foot become part of this. If wymore is around these morgies all day how come he has not got the condition. Why did wymores research show the fibers are not organic (thus not coming from the body) and he never talks about this. This is all supicious.
911
We’re back.
Morgies think it’s all “we” and “us”. I consistently say that people are I-N-D-I-V-I-D-U-A-L-S. Why do people under the belief that they have something they’re all referring to as “morgellons disease” NEED EVERYONE ELSE who thinks they have it too, to lean on all the time, so confused, helpless, and hopeless?
Where is everyone’s sense of self? What happened to it? Where did it go? Why so down on mainstream medicine? What does THAT say to people?
Comment #37
smileykins Says:
April 10th, 2007 at 1:32 pm
Bet ya fitty cents nobody can answer what they want to accomplish by spreading the word of what they have wrong with them.
Ill take your 50 cents.
I can only speak for myself of course, but I am certain that many others feel the same as I. The reasons behind any efforts made to stimulate awareness, is so other people do not have to go through what I have. I already have one person on my conscience and do not wish to have any others.
And, as I am sure you may imagine, I want this figured out, so perhaps my life could return to the health and optimism I enjoyed before acquiring this illness.
Southcity
Michael, you stated:
“A) Buy a HD camcorder. Like the Sony HDR-SR1 ($1200), one with a macro function. Also buy a tripod, maybe a softbox light as well.
B) Video the “unbelievable” stuff emerging from your skin, in full HD, well lit, in focus, from several angles.”
Would a scope with Zeiss Optics/Colorview 8 CMOS compiled with analySIS software be up to your standards? The software alone costs several times more than your $1200 cost estimate.
Have a look here.
http://tinyurl.com/2eywut
http://tinyurl.com/2nfxhj
http://tinyurl.com/2nxe32
http://tinyurl.com/3dxyvs
http://tinyurl.com/3y9eqn
Well, South, from what I can make of it, there are some patients who feel lousy, and don’t understand the properties of their skin. They are overly concerned with it, think abnormal thoughts about the causes of their itching, and don’t appreciate just what it is that our skin does. I’m sorry, but it seems that many “morgellons disease” patients have been repeatedly told what’s the matter with them. If I weren’t in the position, myself, at one time, I still think I’d be seeing this for what it is. None of you has the same thing. You all just share the same misunderstandings. You’re sick, and none of us are discounting that. Oftentimes when we are, it shows up in our skin. Why not learn about your skin, and all it does, as well as whatever underlying condition you have? You’d be on the road to recovery, if you did!
Hello Everybody, did y’all miss me? I just finished my chastisement. Smiley taped my hands together and made me stand in the corner. She said that I shouldn’t accuse anyone of being a devil worshiper, even Randy. I think Smiley must have some Jewish blood in her ancestry,since she imposed such a harsh sentence on me. Oh well, I paid for my crime. G-d knows I didn’t mean any harm.
Smiley and I have also been doing some traveling. I’m not exactly sure how we did that, while I was standing in the corner with my hands tied, but we did. And everyone knows that I’m not delusional like some people we know. Well, I just wanted to check in, and let you all know that I missed some of you. I see that Brandi is still runnin’ her… nevermind. Goodnight, everybody. I’ll talk to y’all tommorrow.
Tall Cotton
South. The equipment quality is obviously not the issue. The issue is the quality of the evidence. Those photos show what look like to be normal clothing fibers laying on skin. Everyone has these fibers on their skin. It is inevitable. I have them on my skin, which is the exact point I was making a year ago. It is not unusual to find fibers on your skin. Some of the photos show your stain highlighting ridges of dead skin. As suspicious as a fingerprint. Those photos could be of anyone.
What I was asking Brandi was to show video of things emerging from her skin. To actually show something unusual going on. Brandi?
911,
The Morgies stay sick because they refuse to treat their real mental and physical disorders. When they don’t get complete healing or instant relief, they reject the doctor’s diagnosis as invalid. They also refuse to accept the fact that a large portion of their problems are mental. Their beliefs are seriously flawed, but they remain bound by the Morgellons madness because they refuse to treat their mental problems. The Morgies have a large variety of different physical disorders, but the one thing they all have in common is that they are all delusional. They can’t be expected to see it, themselves, but it’s totally obvious to any non-morgie that has observed them. It won’t matter that the CDC informs the Morgies of what they have known for years. They Morgies will simply claim that the determination is part of a larger conspiracy. When will it ever end for the Morgie? Only when they start believing what their dermatologists have been telling them for years, and accept the treatment they prescribe.
Tall Cotton
South,
Take those pictures again, but lay a penny next to the fiber to give a size reference. That’d be a step in the right direction.
I know my cheapo digital camera has a video component that takes up to four minutes. Does your nice camera have something similar? If so, take a video of those fibers coming out of your skin. If they are as abundant as you assert, it should not be particularly difficult.
Looking forward to it! – Sarah
South,
Why have you ignored the words on your pictures that say, “ONYCHOLYSIS/ HYPERKERATOSIS LIKE”?
I’ve mentioned, before, how psoriasis is, and what it does, upon comments from you about going to bed in a set of pristine sheets, and awakening the next morning to a mess of stuff expelled from your skin. I swear that I’ve been there, and I promise, that I know this! (I do not work for Monsanto, or the government, either. I am a plain, old, ordinary person. I once misinterpreted things, too, but not to such an extent as others.)
Hyperkerotic skin conditions are painful, messy, and life-altering. Many people have them. Worrying about what one’s skin is doing, taking pictures of it, collecting shed cells from it, and debris that has been entrapped inside of it, looking at it, and thinking it is a new disease, is not that common.
There are treatments for both of those disorders. I think everyone knows that there is, too, but can’t admit it. Many morgies do so many things to keep their skin in a messed up state.
I have sensitive skin, and I always have. A week ago, I had seven small lesions along a vein on my left hand. I left it alone (of course), and now there is only a trace of a single, tiny spot of dry skin. In the past, when I used to have eczema (it’s been in remission for a couple of decades), I had to do a lot of detective work, to eliminate things that worsened it. My child developed it too, and, among other things, people with skin problems must launder their clothes in the gentlest detergent on the market. The brand of detergent for babies, like Ivory, or Dreft, is a must! So many morgies use ammonia and bleach in their laundry. Well, my gosh, no wonder they have skin problems, not to even mention all the ritualistic things they take, and put on their skin. They need to get their focus OFF of their skin, and leave it alone. There are, and always have been treatments. (What happened to me five years ago, was an acute state of ill health, that seemed as though it was a new and mysterious disease. It was only something messed up in my thinking. Extremely messed up, too, and I almost wasted away due to it.)
Have a look at this, South:
http://www.palpath.com/MedicalTestPages/skinker.htm
Come on. Scroll down and have a look at the pictures on this page.
http://dermnetnz.org/scaly/ichthyosis.html
You’d mentioned, before, that due to your fingers hurting, that typing was hard for you. I asked about it, wondering if you’d meant that you had carpal tunnel pain, joint pain, or whether it was due to the condition of your skin.
Morgies think incorrectly about what they see. Morgies think incorrectly about what they feel. Morgies are unwilling to even try to entertain the fact that they are incorrectly thinking. All of that has to be an unbelievably miserable state of existence, so why keep on doing it? There is no such thing as “morgellons disease”, other than it being an erroneously shared belief that some people cling to, that is standing in the way of their own healing.
Morgie people are not able to open their minds, nor are any of the ones I read about, on line, even trying to. The first step, for everyone, is to look inside themselves, and examine the reasons why. It’s abundantly clear that morgies are living in fear, and nobody needs to be. Morgies think they know something that the rest of us don’t, and that we feel that our ignorance is bliss. No, it is the morgies’ ignorance that is interfering with their lives and ruining them. You are not all suffering from the same, one, thing — you are suffering from your real conditions that have produced the same types of incorrect thoughts and behaviors.
I’m mean for saying that. Yeah, I know.
This website is disgusting. These people call themselves debunkers as if they have done even a shred of non-biased research. I’m not a meth-head, and I don’t have Morgellons. I also work full time, but even I was able to do enough homework to see that a small number of people are undeniably suffering from a skin condition that is not drug related. These people are not crazy. Tell me, debunkers…if Morgellons is a widespread hoax to hide meth addiction, if all the vitcims are suffering delusions, then please tell me WHY:
1. Why have researchers from highly reputable United States labs confirmed the discovery of unidentified cellulose based fibers in tissue samples taken from Moregellon’s “claimers”. Why have they been unable to match these fibers with any known manufactured sample from far and wide? Why do the fiber samples from widely seperated donors bear remarkable similarity under standard and electron microscopes?
2. Why do officials high up within the CDC admit that they are concerned about a “possible developing disease” that has been reported in nearly every US state?
3. Why has the CDC so recently backed away from it’s assertation that all previous Morgellons ‘victims’ were suffering from delusions about parasites or some garbage. Go look at the editing on thier website.
4. Why has the CDC established a special team drawn from multiple disciplines of science to track down the cause of these skin lesions and the fibers that develop within them? The fact that it hasn’t done much of anything till now is besides the point. If its purpose was to make an effort to explain away the physical evidence, they’ve done a poor job so far, but the fact remains that they DID see enough evidence to form it in the first place.
5. Why have numerous state news agencies, radio stations and papers run stories, interviews and documentaries including interviews of people currently suffering from Morgellons? The media can smell hoaxing druggies out pretty rapidly in most cases–why are they giving these people the time of day? Is it actually *GASP* possible, that most of these people are not meth addicts? Children meth addicts? Blue collar families of meth addicts?
6. Why, if Moregllons is such a load of baloney, have CDC officials admitted there may be a regional connection linking outbreaks of Moregllons reports in recent years? If these victims are nothing more than insurance hounding meth heads, why are entire families coming down with the exact same symptoms? Last time I checked, users cannot pass thier highs, let alone resulting skin burns, onto people them come in close contact to. Viruses and diseases on the other hand, do a very good job of exploiting that sort of situation.
7. Why have numerous United States Senators and lower reps been in repeated contact with the CDC in regards to Morgellons? Why are they pressing for action, why are they worried about the spread of this condition IF IT IS ALL NOTHING BUT A HOAX?
This website is an absolute joke. Normal people are suffering with an unknown illness. Like most of the slow to act government, you people running this website are content to sit back and ridicule the victims for as long as possible. There is physical evidence, yet you try to just explain it all away, like it’s a bloody UFO or something.
It’s amazing how you ignorant blowhards stalking these boards are so in love with this idea that all of these people are wrapped up in some massive, conveniently similar conspiracy to pull one over on you. It is you who are the conspiracy theorists I’m afraid. Especially this Michael poster and his all-knowing blog pals–what a collection of arrogant, offensive, heartless sacks of garbage.
They should write fiction for a living.
There were people just like many of you trying to debunk AIDS as some sort of fairy tale when blacks and gays started looking all strung out. The arguments didn’t last after AIDS was in every state in the country, did they?
At least try to have some respect for these victims, regardless of what you think they may truly be suffering from. None of you are quite as smart as you think.
But wait…that’s not what you’re here to do, that’s not the purpose of this website is right?
“Resources” for Moregellons Investigators
LOL–yeah, it’s called B.S., used to fertilize.
I would like to encourage my fellow blog readers not to even validate that last post with a response.
Validate this then:
CDC retreats from DP diagnosis for Morgellons:
http://www.cdc.gov/ncidod/dpd/parasites/delusionalparasitosis/
Or this:
”
INTEGRATIVE HEALTH INTERNATIONAL, LLC
12235 Centralia Street, Lakewood, CA 90715
Tel: 562-402-7300 Fax: 562-402-7308 Direct: 213-382-2786
Project Contract Labs: AMDL, Inc., ACS, Inc., MIT, and Lambda Solutions, Inc.
PHASE IA Samples from Sept. 1, 2006.
Results Received February 5, 2007
Subject Samples of Unknown Fibers Collected form Many Sources and Delivered to Laboratory.
Report of: Examination, Microscopic Measurements and Spectrographic Analysis of Several Dozen Fibers Sent from IHI, LLC, Lakewood, CA.
INTRODUCTION
Several batches of unknown suspect fibers were sent to the laboratory over a period of several weeks. We were asked to examine them, study them microscopically, determine some physical properties, and run elemental analysis by energy dispersive spectroscopy (EDS) and chemical groups by Fourier transform infrared spectroscopy (FTIR). Also some samples would be analyzed by Fourier transform Raman spectroscopy (FT-Raman).
Laboratory personnel would also compare the fibers with some other nanofibers reported to be carbon-silicon fibers with photoluminescent and other properties.
NOTE: All Samples were compared to the “Goldenhead” as found by Dr. Rahim Karjoo and Dr. Hildegarde Staninger (October 28, 2006) and a fiber that was identified as High Density Polyethylene Fiber (HDPE).
RESULTS
1) Visually a few of the fibers resembled the carbon-silicon fibers previously studied by Integrative Health International, LLC.
2) Close-up photos and photomicrographs (1,000 x) were taken of most samples.
3) Many strange shapes and lumps were seen and some could not be identified.
4) Identification of the photomicrographs were identified to contain a “foreign fiber” or not. These fibers were then selected for further testing and melting points.
5) A FTIR spectrum of one spot on the fiber indicated the presence of high density polyethylene fiber plus a trace of another material (brown gel).
6) EDS and Raman results will be discussed in Phase II and Phase III of this report.
SUMMARY
The fibers identified, gel material, and gel shaped materials had no cellular integrity with no eukaryotic cells. The materials identified in the fibers were of a manufactured nano technology to form a specific structure with an undetermined function. The chemical composition of fibers that had EDS and Raman did not match the chemical composition of the human body nor were they any part of the human body (nails, hair, skin, nerves, etc.).
Special features as identified by Los Angeles County Fire Department, Los Angeles, CA personnel are the following: 1) skin melts or burns at above 165 degrees F; 2) fibers from a human body that do not melt at 1,400 degrees F or above 165 degrees are not made of human cells; and 3) human tissue does not secrete gels nor would they be of known human cellular composition that melt above 300 degrees C (i.e. approximately over 600 degrees F). ”
All you skeptics on this blog have been railing away at these victims for so long you are utterly unable to consider the fact that perhaps you have been wrong about some of these case studies. It’s easy to talk crap on the ‘net–people out in the field have put thier careers and reputations on the line over the evidence. I don’t deny that there are some out there who are suffering from recognized diseases or drug addictions, but you cannot deny (although you insist on doing so even now) that there are also some people showing real symptoms of a new infectious agent.
“I would like to encourage my fellow blog readers not to even validate that last post with a response.”
Come on, Sarahbionedunn–surely you can do better than that? Shower me with your debunking skills. Illuminate me with your medical expertise. Explain to me why people should give this website a shred of credibility when it is headed with statements like this:
1. The fibers are environmental and unrelated to any illness
2. Morgellons is not a distinct disease
3. “Sufferers” have a mixed variety of physical and/or mental illnesses. ”
There is no published evidence to support a blanket statement such as this, none whatsoever. The final verdict on the truth of this condition has NOT YET BEEN delivered, yet this web page and others like it ignore that reality, displaying amazing powers of
omniscience with thier declarations.
Funny how this website contains only the information that was picked and chosen specifically to portray Morgellons as some sort of hoax by a bunch of crazy people…Why is none of the supporting research out there linked up to Morgellonswatch? And don’t even try to claim there is none, because there is and that’s the bottom line. Contrary to what some of the regulars here would like to believe, there ARE credible proffesionals out there who are putting thier careers on the line because they believe the evidence warrants a full blown investigation. Oh wait–these doctors and researchers must all be hitting the meth pipe too right?
From CDC web:
”
Delusional Parasitosis
The Delusional Parasitosis page has been removed from the Division of Parasitic Diseases site.
”
That must really piss some of you off I’m sure.
Article:
”
The debate has grown so heated that, recently, the federal Centers for Disease Control and Prevention got involved, and not because they wanted to. They were inundated with calls from irate people who say they have this disorder and want answers. “More typically we get a very credible indication of an emerging problem from an official source,” says Dan Rutz, spokesperson for the CDC. “This was driven by lay people and some clinicians who are frustrated and not sure what to do with these folks.” The CDC is currently in the process of assembling a multidisciplinary research team to examine a cluster of patients sometime in 2007.
While most physicians seem to lean toward the delusional parasitosis diagnosis, there are a handful of people who think there’s something real going on here. About a year ago, Oklahoma State neuroscientist Randy Wymore stumbled upon Leitao’s Morgellons site and became intrigued. Wymore called Leitao and asked if there were any fiber samples he could look at. Within days, Ziplocs were arriving in the mail from around the country. Though the fibers all resembled one another, he says, they looked like no other synthetic or natural fiber he compared them to. Ultimately, he asked the fiber experts on the Tulsa police department’s forensics team to examine them.
First they employed a type of spectroscopy that identifies the chemical structures of fibers and compared them to their database of 800 fibers. No match.
Next they subjected fibers to gas chromatography. Compounds put through this process are encased in a vacuum chamber and exposed to high heat; the temperature at which they reach boiling point is a clue to what compound they are made of. The forensic experts had a database that included the boiling point of 90,000 organic compounds with which to compare the fibers. But the machine ran to its highest temperature, 1,400 degrees, and apart from some slight blackening, nothing happened. The fiber experts were mystified. “The conclusion we were left with is that they are unknown fibers, not simply contaminants from clothing sticking to scabs,” says Wymore. ”
That’s just one article, one drop in the bucket.
Wymore, who is not a physician, also asked Rhonda Casey, the chief of the pediatrics department at Oklahoma State University Hospital, to take a look at some of the patients for him, to get a medical opinion. “Honestly, when he first told me about it, I thought, they’re all nuts,” says Casey. But she changed her mind. “There was not one patient I saw who did not look ill,” she says. What’s more, they all looked ill in the same way, with neurological symptoms, including confusion, foot drop, in which a person loses control of their foot and has trouble walking, and a sagging mouth when they spoke. Many had been diagnosed with atypical forms of neurological diseases like Parkinson’s or amyotrophic lateral sclerosis (Lou Gehrig’s disease).
She examined their skin via a dermatoscope, a light tool with a magnifying lens. And she did biopsies on both their lesions and apparently healthy skin. She says she saw fibers embedded in both places. The white ones, she says, are hard to see. A dermatologist who either didn’t look at all, or didn’t use a dermatoscope, might not see them under the skin. But some—the black, red, and blue ones—are blatantly obvious, she says. One young girl had a small pimple on her thigh with a bundle of black fibers just barely protruding from it. Many doctors have accused these patients of embedding fibers in the sores themselves, but Casey doesn’t believe it. “As a physician, I can’t imagine reproducing what I saw in that little girl’s leg.”
There’s also some evidence of an overlap with Lyme disease. Ginger Savely, a San Francisco nurse practitioner with a long history of treating Lyme patients, now sees Morgellons patients and says 90 percent of them test positive for Lyme disease. “I think that one of two things is happening,” she says. “Either there’s a co-infection people are getting at the same time they get Lyme, because there are a lot of infections spread by ticks.” Or whatever is causing Morgellons is something ubiquitous that many of us are exposed to, but the disease develops only in people with weakened immune systems, like those with Lyme disease.
Until the CDC has given the final word on this, you bloggers need to stop posting that there is no such thing as Morgellons. The CDC is the only authority with the right to declare that with any amount of certainty. You present opinions on this site that are backed up by no institution.
If the CDC does in fact determine at some point that a small number of people have indeed contracted this illness in recent years, I want to know what you rabid skeptics are going to do then? I’m sure you’ll find a way to justify your misleading information and comments, regardless of what developments may come in regards to Morgellons research.
What will you do then–set up a web page to debunk DU and Gulf War I syndrome? Good luck with that.
I don’t know if anyone mentioned this already, but in relation to:
DOP has been removed from the division of parasitic diseases since it is not a parasitic disease, nor is it even a disease. The CDC is the Center for DISEASE Control.
I’m not claiming that there is no such thing as “Morgellons”. I’m claiming that there is no evidence to indicate that there is. You actually need some statistics to support your case. There is none. Breathless news stories (like those you quote) do not count as evidence, otherwise we’d all believe in ghosts, animal telepathy, crystal healing, dowsing, UFOs, chemtrails, angels, ectoplasm, and fan death. None of these I discount, but none have any supporting evidence.
Evidence is required for action to be taken. All the CDC is doing is seeing if there is any evidence. Feel free to peddle your quackery when you get some solid statistics.
Does anyone know anything about this:
http://www.mayoclinic.com/health/morgellons-disease/SN00043
Some morgies were talking about this on a message board. Why would a well respected facility such as the mayo clinic put up this article without first putting out any research?
When one gathers a solid background on a topic, before getting irate over what they think they understand, there is often very little room for questions.
Since the CDC removed DOP from their parasitic diseases’ site, last month, I have seen that quite a few morgies are hoping it’s some sort of move into the right direction. In my opinion, the CDC finally realized that by having it on that page, it inadvertently contributed to the erroneous thought processes that many patients with DOP have.
911, lookie here, too:
http://www.healthfinder.gov/orgs/HR3704.htm
I dunno. If the terminology is changed and it can result in getting patients to treat, it will be a gigantic accomplishment. With the Virginia Tech incident, hopefully, the winds of change will blow a little harder now, to help patients with psychosis.
Smiley,
I too have read things about DOP being removed from the CDC parisitic website. But I just figured it was because DOP is not a parisitic disease. I am also baffeled about your link. What is your take on this Michael? Is this the result of the morgellons foundations big media exposure from last summer?
911
Since it printed right after your comment, 911, it appeared as if I may have meant you, when I said this:
(Of, course, I didn’t mean you, but thought I’d better say so, hehehe.)
I find it some of the comments on here incredibly rude. This woman is obviously ill. True, evidence does not proove that morgellons is a real disease but it also does not prove it’s not a real disease. Calling her a ‘nutcase’ is absolutely over the line. You do not know what she’s going through. You have not seen what this illness can do to her. And if it turns out to be a psychological disorder, there is still no need to be so offensive.
Excuse me, but how would you define disease? If you were to look in a dictionary, you would find that a disease is “an impairment of health or a condition of abnormal functioning”. Now, as far as I understand it, Morgellons sufferers do experience an impairment of health, do they not? So how can you possibly claim that Morgellons is not a disease? Please, elaborate on how you came to that conclusion.
Without going too far into it (since it’s all been said, repeatedly), when people are ill, they go to doctors in hopes of obtaining a better state of health. Based on unrealistic expectations, going to a doctor in possession of an unfounded belief of the intended outcome, refusing to accept diagnoses and follow-ups, is indicative of a particular, very serious problem. Patients who are convinced that there is something new, that’s being referred to as “morgellons disease”, even know that their reasoning skills are seriously compromised. That is a dangerous position for anyone to be in, and I’m just not able to comment on this topic without seeming to be rude. I think it needs to be discussed for what it is, but it’s all too clear that patients who think they have “morgellons disease” are incapable of understanding what has happened to them. The orchestrated efforts behind the perpetrators of the myth is also clear. If seeing something said by me is offensive, tell me why, and I will try and make ammends.
DOP is Delusions of Parasitosis – the sufferer imagines they are infested by parasites, but only they can see them. That is what was removed from the Division of Parasitic Diseases. It is not a parasitic disease, since no parasites are involved. It is a mental disorder. Yes, you could include it under some definitions of “disease”.
“Morgellons” is a blanket term, self-applied to people suffering a wide range of physical symptoms, who frequently have been diagnosed with DOP. They tend to reject the DOP diagnosis, and label their condition “Morgellons”, after reading about it on the internet. Convinced they have an unusual new disease, they seek unusual modes of treatment, frequently neglecting their diagnosed physical problems, and totally rejecting any treatment for any mental component in their condition.
Unfortunately there is no evidence that suggests that people who self-diagnose with “Morgellons” actually have the same condition. They tend to have a very wide range of different symptoms, most of which can have many causes.
Their illnesses are very real. They are obviously sick. However, “Morgellons” is a baseless label that serves only to distract them from getting appropriate health care.
Hi Michael and everyone else, just as a clarification, it is not a requirement for diagnosis to be able to see the parasites. They can be microscopic to all eyes, even the sufferer.
Have y’all seen what this dermatologist wrote on “morgellons”?
http://www.dermanities.com/detail.asp?article=245
This is good, too, concerning some patients’ needs.
http://www.dermanities.com/detail.asp?article=202
Actually, there’s a whole lot of good reading in that journal. I found this really captivating:
Psychodermatology—A Personal Odyssey
Caroline Koblenzer
http://www.dermanities.com/detail.asp?article=154
You guys are about as stupid as a sack of rocks. Why won’t you take Brandi up on her offer, scared?
Oh, now, Steve. Surely, you don’t mean that. Brandi addressed me, when it had been Jeezelouise who’d facetiously shown interest in taking up some stranger’s bizarre offer, last summer, to go stay with the Koch family. Can you not realize there is no part of this making any sort of sense? Come on, a person that Brandi Koch doesn’t even know, by the user name , “Robert”, invited people on a blog to go stay at her home. Over six months later, she’s mad because nobody took that stranger up on his offer, tearing into me, and literally begging me to fly out and stay with her. Hell yeah, I’d be scared. That ain’t what I call acting within the bounds of normalcy! Now, imagine this…Brandi doesn’t know me, and anyone who’s read this on the web could arrive at her doorstep. Oh, why can’t any “morgellons disease” believers see how their minds are malfunctioning, and what risks it’s created for them? Shit.
Again, it is quite curious to me, the “if you’re around us, you’ll get it.” Why haven’t the alleged 10-40 doctors documented by Leitao and Savely gotten “Morgellons”? And please don’t reply that some doctors do have Morgellons– the question is, why haven’t the hundreds of doctors visited by “Morgellons” sufferers been infected?
In my opinion, most commonly, an insect vector is involved. Bed bugs, ticks, cone nose/ kissing bugs are named by sufferers quite frequently.
May 2006/ USA epidemic/
NEW SURVEILLANCE DATABASE
“UNIDENTIFIED DERMATOSIS SYNDROME”
Abstract: There have been reports to state and local public health agencies from residents
throughout Georgia of thread-like skin parasites in their skin, and a related set of symptoms.
In response, the Unidentified Dermatosis Syndrome (UDS) Surveillance Database was
developed and is maintained by the Chemical Hazards Program, Environmental Health Section,
Georgia Division of Public Health. It is intended to build and maintain self-reported symptom
surveillance capacity.
Jane M. Perry, Director
Chemical Hazards Program
Georgia Division of Public Health
Atlanta, Georgia
(404) 657-6534
The state of Georgia has started a database concerning this illness. They are using a different name for it though. http://health.state.ga.us/pdfs/hazards/UDS_SURVEILLANCE_DATABASE.
pdf#search=%22unidentified%20dermatosis%20syndrome%22
unidentified dermatosis syndrome
Contact information
Jane M. Perry, Director
Chemical Hazards Program
Georgia Division of Public Health
Atlanta, Georgia
(404) 657-6534
South, that May 2006 database is mentioned here:
CBS 46 Investigates: Making Your Skin Crawl
Feb 22, 2007 09:23 PM
http://www.cbs46.com/global/story.asp?s=6066877
South, there’s great significance in “morgellons disease” patients’ reports of their experiences, beginning with the prevalence of claims that they were misdiagnosed by so many doctors. Patients, and the charlatans involved in this movement, are quite openly misleading and instructing each other on the web, and the fact that so many rejected their true diagnoses and treatments, including purposefully withholding, refusing to share what they’re going through with the right type of doctor, speaks volumes. (It’s absurd, that so many morgies mention passing a test of their sanity, like a person is either “sane”, or “insane”.) Lacking insight into the condition of one’s poor state of mental health is a disorder in and of itself. There is no reason to be insulted, given the fact that the brain is an organ, and can need medicine, too, just like any other organ. Morgies can never recover by withholding. It’s terrible, that help has always been available for the state all morgies have found themselves in, but due to the self-deception of their sensibilities, through no fault of their own, and, especially, due to the this movement, much stronger desires have precedence over everything. Everybody has their own, unique, set of circumstances. There is no “we”, there is no “us”, and it troubles me that morgies don’t realize their individuality. There is no strength to be found in numbers, in this matter. Individual strength is what it takes to recover.
Southcity says: “In my opinion, most commonly, an insect vector is involved. Bed bugs, ticks, cone nose/ kissing bugs are named by sufferers quite frequently.”
Bed bugs, ticks, and kissing bugs are common and abundant in the southeast. It should not be difficult to acquire at least two or three for identification by an entomologist, which would surely further the “Morgellons” cause. However, to the contrary, the “matchbox sign” is still a common indicator of DP, as what is asserted to be bugs– including the ones mentioned by Southcity– will only be bits of dirt, dust, hair, carpet, lint, etc.
To the contrary, let me explain. After a year of living with me, my girlfriend became symptomatic. We both were doubtfully sure it was sexually transmitted, as no one else to us seems to be affected by it.
A few days later, I found a freshly dead reduviid, AKA kissing bugs, or conenose bugs) in the bedroom closet. Exactly the same as in this photo. http://tinyurl.com/29lufv I also had the same positively ID’ed by a tech from Crane Pest control. He said it was the first one of these he had seen and by most reports at the time, it had not been thought to have migrated this far north, yet here it was. We moved shortly after.
I feel this is very relevant because of the fact that my symptoms began after being bitten by bed bugs, while staying in a South San Francisco hotel near the airport. I am certain this is how I acquired this.
This would also possibly explain why some entire households are affected while in others it may be only one person. Who knows?? But I for one would very much like for someone to figure it all out.
South,
Please clarify. After you having “Morgellons” for many years and your girlfriend having it for one, you find one bug, and it is the culprit?
Please excuse the interruption.
Yet another morgie recently told, on Lymebusters, what’s caused his beliefs to develop. If you happen to read this, I implore you to try and consider studying what you’ve stated you have wrong with you, rather than chasing after the mythical “morgellons disease”.
Pituitary Network Association
Because Knowledge is the Best Defense
Please, search this site, and all that you can on it:
http://www.pituitary.org/
Any other morgies who have mentioned ignoring referrals to endocrinologists, need to go. These doctors need to be told what you’re going through. “Morgellons disease” is not what’s wrong with any of you. All morgies have underlying conditions, of various sorts, and those conditions are what’s triggered all of your misinterpretations.
South, your girlfriend also posted on Lymebusters, in March 2006, that she was diagnosed with Pituitary Adenoma in 2001, too. Please try and consider reading about stuff that can help her. I don’t know if you know your underlying conditions, or not, but that is what you, like all morgies, NEED to be learning about.
Please read:
http://www.emedicine.com/oph/topic471.htm
(Y’all can call me mean, all ya want to.)
> > Hello from the antipodes.
> > For the sake of all the suffering we have endured, what a
journey!
> > Please try this one…
> > Take several hypericum; St John’s Wort tablets and place them in
a
> deep vessel.
> > Put enough water on the capsule to make a paste, this can take a
> while as the capsules are finely powdered, and dense.
> > Apply the paste directly to lesion, you will be amazed at the
> sensation of coolness which ensues.
> > If the paste is allowed to dry it has a very tenacious grasp on
the
> wound. If dryness causes irritation, one can apply a mentholated
> ointment to soften the hypericum which totally covers the lesion.
> > Once the paste has been applied and one has slept pus will exude
> from the lesion, which is a quantum shift in morgellons treatment,
> once the pus is formed, by effective destruction of the morgellons
> biota, the bodies immune system is able to, finally respond.
> > The fibres seem to adhere to the paste and as Dr Schwartz
described
> with diatomeacious earth, it may asphyxiate them. However, under
the
> crust of hypericum paste will be a sinus of loose mobile pus,
which
> can be removed by gentle pressure around the affected area, which,
> the ability to be able to squeeze such painful areas, is, in
itself
> amazing.
> > After the pus is removed, preferably, OFF TO THE LAB!!, the
crust
> can be removed along with the cluster, matrix or labyrinth of
fibers
> which will be there.
> > My conjecture as to the evolution of morgellons in the body, its
> causitive agent and treatment steps are as follows:
> > At the point/s of INTRUSION into the body the quorum sensing
> abilities of this agent “hive” in a mycoplasma with nodules
> projecting through to the sub-dermis. From the initial trauma of
> intrusion, the upper dermis remains intact, whilst underneath
broils
> in a mealstrom of biological activity, porphyria, lupus, thc n’
> lsd….What a great genetic splice…The first signs will be an
> intact watery blister, accompanied with shooting spasms of
electric
> intensity. After an insidious period of unfamiliar muscular and
> skeletal pain, adherent neurological maladies occur, brain
fog….too
> much lsd n’ thc I’m sorry to say. We are simply genetically
> engineered proto types, which underlies the imperative for good to
> prevail over the malodorous evil which is ensconced in this
disease.
> > Suppuration may or may not occur in the early stages but by the
> time it does the entire body is affected.
> > But my belief is that this disorder has an Achilles heel.
> > It must maintain the “hive/s” to survive.
> > Kill the hive, destroy the quorums base, problem solved.
> >
> > p.s.
> > Fenbendazole is the active constiuent of panacur, a
> vetinary product used in medicine as anti parasitic, interestingly
> cited for use in stronglyoide infection.
> >
>In reply to your questions Dana;
I will preface my comments by saying I acquired morgellons in june
1999. I recognized morgellons after googling “hair like filament”.
I only recently started on hypericum paste, but was astonished to
see the results and I feel it an imperative that it be disclosed.
If an organism, any organism, reaches saturation point, in that it’s
food source/s, it’s waste management regime and its reproductive
potential is reached, it will search new domain.
Range and domain, mathematical precepts which describe the hive
formation within the body. Similar in respect to geography studies
in urban morphology, in respect of town and city planning within a
municiple setting; towns and cities strategically placed networked
by road, air, sea and rail. Analgous of morgellons within the body.
This is why you will find sores forming concentrically around a
central, deeper lesion, the hive.
It is my belief that there are several manifestations/ stages of the
birefringent fibers associated with morgellons.
I have pulled barely visible filaments from source intrusion lesions
which can only be seen against a light (birefringent= to refract
light)which have been over three inches in length. Whether that was
its full entirity, I cannot say.
Interestingly, as an aside, the symbol used by the medical
fraternity is a staff with two “serpents?” entwined.
In truth, in lore, it was an hermetic practitioner, recognizing a
thread like parasite, wound it about a twig, easing the worm around
the twig till the invader was removed without breaking, thus denying
the opportunity for asexual, regenerative reproduction.
This protocol eased a tiresome burden from a population and thus the
symbol of medical excellence was born. May the contemporary
practitioners of medicine who have ignored morgellons reaffirm the
Hippocratic oath and look to achieve the excellence required.
So, you will have a primary intrusion/source infection; which may
even be numb, may or may not suppurate.
From the original primary “hive” , clusters of nodules form,
the “brain” of the “hive”, the intelligence.
Once in the body a programmed latent dormancy awaits.
Even to the level of meta genetic manipulation.
Once the dormant phase is broken the hives begin their work, simply
by using the cardio vascular system, travelling through the
endocrine system (ever wondered why your glands fel like their
exploding), through the myriad pathways of the nervous system.
This is what I refer to as secondaries, and it is these which you
refer to as dispersal of your sores.
As yet I have done no research on hypericum, but understand its role
in depression, but I take heart in its vernacular title, St Johns
wort. I’ll get back to you.
I’ll do some research now and see if i can get some leads to tie
together.
anticipate sucess…..always.
One must rigorously engage the mind in meaningful positive safe
thinking. Even if you know that you are being affected detrimentally
by this disease its just the bottom line that you can achieve
stillness of mind, mastery of your emotions, and chart your course
to your destiny, your way.
Feel peace, send out peace, only peace.
When you go to sleep, imprint peace in your mind, let it wash over
you.
Tallcotton, i know this is way over your head, and Smily, you know its true
Really, after a sojourn away from here, nothing has changed.
To Ann , to Brandi, to all who remain silent lest the derisive scorn, archetypal to this site, is unleashed, I say this.
Stand proud. Let the sun lift your countenance .
Simplicity is the answer to all complicated things.
The velocity of an object falling through a vacuum in one half gravity, by times squared….keep it in mind when the next black hole comes at you….viscious cowardly fools you morgellons debunkers are.
Steve Frey Says:
April 28th, 2007 at 3:46 am
You guys are about as stupid as a sack of rocks. Why won’t you take Brandi up on her offer, scared?
ya know, thats the best description heard of the tards. thx
Starlink, its great to see you still about dude.
It’s me, Al, in disguise.
Moderate Michael, why do you take such a lassiez faire attitude to the vitriol which pours forth on here?
Oh Dear.
;9
I love you, Al & Norman, and you don’t even reaize it.
Oops, left out an “l”. Get some blood labs, Al. How is your spleen doing?
http://public.srce.hr/acphee/35906.pdf
Al has a very good perspective. Thanks Al
decided to take the night off. I’m whipped again. nite gill
Oh, Norman. Hahaha. You like pretending you’re TC, don’t ya? He actually had plenty of energy at the hospital, tonight, playing on the elevator (it’s a real fast one), and exploring the surroundings with me. We had hours of fun, and I am so happy. Not only was TC not “whipped”, but he’s showing all kinds of improvement, just since yesterday.
Brandi!! would love to come stay with you…not because we don’t believe in Morgellons..because we have it very bad up here in Portland..but rather because we love your husband, love baseball…and think you are a brave fiesty girl commited to our cause…to deal with these cruel aholes who have niothing better to do than pick on sick people!!!oh. did i mention we are from the bay area..moved to portland just days before the earthquake and watched the gamne where may of my friends were when the earthquake hit..anyway you can converse with me through the Lymebusters msg board under Liz…don’t worry we won’t invite ourselvers over..just want to talk to anothet couple are age…with an 9 tear old nephew now also showing symptoms….don’t let these guys sap your energy Brandi…..there not worth it!
Excuse me, Liz, I don’t know, but I don’t believe that Brandi Koch has mentioned having a progression of white matter lesions, or any previous studies suggesting that she could have a demyelinating disease, as you have stated about yourself on Lymebusters. I know that you don’t realize it, and I’m sorry, but you are misinterpreting the concerns that I, and others, have for those who have been led to believe in “morgellons disease”. You require follow up with a neurologist, or, at least, with the doctor who’d told you about possibly having multiple sclerosis, and it should include also include discussion concerning your mother’s lupus diagnosis. The longer you avoid seeking help for what you really have, the worse it will get.
Dear all who are afflicted:
I am a single Mom who has worked very hard for the last 10 years to raise a beautiful little girl on all my own.I have worked so hard just to have a “normal” life for the two of us. Normal is what we used to be…MESSED up beyond belief is what we are now. This disease or whatever the MAD SCIENTIST’s want to call it…nano-technology, stem-cell, parasitic, mold, fungus, delusional is absolutely horrorific!!! Neither of us had ANY health problems prior to contracting this terrible disease. Now we are both stricken with tooth loss, extreme bone pain, awful skin lessions and chronic fatigue and yes a constant itch that will not go away along with crap emerging from our skin daily. It’s so heart-breaking to read all of these postings and know that so many people are suffering with little to no support. This disease attacks rich, poor, young and old. IT KNOWS NO BOUNDS !!! For all of you skeptics out there…all I can say is…just wait it won’t be long until one of your loved ones get’s ill or maybe it might even be you. This is a world-wide PANDEMIC that is circuling the globe as we speak and our fruitless leaders know ALL about it. Why do you think we ALL get labelled as Delusional??? A COVER UP…. ONE MASSIVE F’EN COVER UP.
After studying and researching this for thousands of hours. I have come to the conclusion that this is disease is a result of “PROJECT CLOVER LEAF ” Do a google on it and add Morgellons after it…and read, read, read… WE ALL NEED TO COME TOGETHER AS A GROUP and get to the media FAST…Don’t bother with Ophra because I beleive that top society has been innoculated and will do us no favors. We need to form a world-wide log with names, numbers and with the use of donations start educating the public via MEDIA outlets. YES, we need to become activists and be heard. US CDC and World Wide Health Organization need PRESSURE. This will take time and money and I am more than willing to spend every last minute of my life dedicating myself to this. THE BIRD FLU is a massive attempt to cover the true identity of this plague up. The goal of what I will call an “elite society” is to de-populate the world from 600 billion to aprx. 50 million by 2010!!! The micro-biologist’s who created this awful mutated organism have all mysteriously DIED !!! This is no joke, the CONSPIRACY THEORY is real…very real…All people interested in getting the TRUTH out there…let’s talk. My thoughts and deepest sympathy go out to all of you. Interested people wishing to purse this, please leave me a post with a way that I can reach you.I am in Canada and we do have a support group here but we need to come together GLOBALLY…LET’S DO THIS PEOPLE!!!
Dear Brandi,
I believe every word you have said. I have known that I have been infected with Morgellons for about a year. ITS REAL. Every symtom that people are experiencing is the same. My doctors have said that I was crazy. The first video about this I saw was with you and your family. It really freaked me out because I fully realized that I was not alone on this horrible thing I would call it.
I am from Bakersfield, CA. my baseball coach here knows a lot of guys that your Billy your husband played minor league baseball with. My coach in Bakersfield called your guys house and left my phone number for me to talk to exchange notes on what I have experienced. He called you guys around January of 2007 I believe. Anyways. Thank you so much for that strong address to people who do not know better. GOD knows the truth. I wish your family the best as to all the morgellons sufferers out there my heart is with you as well. I know what you are going through.
Imagine brown sand like crystals growing out of your hand for about 5-10 min.
Imagine having liquid stools for a month straight and seeing a toilet full of black hair like fibers.
Imagine the feeling of bugs crawling on your skin and itching them everywhere.
Imagine knowing that you have morgellons and the only people that know what you are talking about are people that also are experiencing the same thing as you.
Why would thousands of people across the world lie about the same exact symptoms? What would I have to gain by writing this post? The only thing I have to gain is venting my frustration that no one believes me except sufferers and my parents because I to show them things growing out of my skin about 10 times before they believed me.
This is a world epidemic and something has to be done. I believe it will take many years until enough you of you stupid none believers to either be infected or have a friend or family member infected. I am only writing this because I have no one to talk to about my condition. My parents dont even want to hear about it anymore.
I would not want my worst enemy to have this horrible disease.
Chris,
It sounds like you’re experiencing some extreme physical symptoms. Do you have a camera, or a video camera? It seems with such blatant physical symptoms a camera could bring some folks around right quick.
Have your parents not even taken you to get medical attention, Chris? A month’s worth of loose bowel movements, alone, more than warranted it.
Of course my parents have taken me to see doctors. They have all said I was crazy. The doctors could not explain why I was having bad bowl habits for a period of a month. The doctors asked if I was eating foods to cause that. In fact I am eating very healthy with fruits vegetables, chicken and nonfat milk. I am also taking as many daily vitamins as I can to try to boost my immune system to fight morgellons. Some times it comes out normal for a certain period of a time.
I dont know when or how often the fibers grow out. It comes at unexpected times. I believe that the doctor Harvey who is listed on http://www.morgellons.org has filmed fibers growing out of this toe area. I dont know if he has put it on the internet.
Have you not seen the footage of videos from http://www.morgellons.org? there are videos all over the country about people experiencing this.
To Angelfire,
I believe you have strong points about this. When I first thought about this I also believed it was some kind of conspiracy as well. That may not be far from the truth. People are committing suicide because of the symtoms of morgellons. That is why there is a suicide hotline on the website. Its hard to get people together to want to achieve media coverage about this issue. Most medias dont even want to broadcast it because its so weird. I will also dedicate my life to spreading the word about this. Its too hard for people to be believe it because it sounds so weird. There may be a cure out there already who knows. Your post was straight to the truth.
TO ALL YOU SKEPTICS OUT THERE! YOU KNOW WE ALMOST ALL TEST POSITIVE FOR lYME DISEASE AS WELL? DON’T YOU SEE THE POSSIBLE CONNECTION….OR DO YOU THINK lYME DISEASE IS ALSO A DELUSIONAL DISEASE? WE FIND EACH POTHER BECAUSE i SEE ONLY ONE ILLNESS WHERE FIBERS COME OUT OF YOUR SKIN! NOT TO MENTION ALOT OF OTHERS AWFUL THINGS…REAL DOP IS NOTR A CONTAGIOUS DISEASE! WHEN I FIRST REPORTED TO AN ISIOT DERM DOC WHO GAVE ME 5 MINUTES A DOP DIAGNOSIS AND A ZYPREXA SCRIPT ONLY I HAD IT..NOW MY HUSBAND HAS IT..MY LITTLE NEPHEW HAS IT..MY DENTAL ASSISTANCE HAS IT! DO YOU THINK WE HAVE ALL GONE NUTS AT THE SAME TIME..KIDS TOO! WAKE THE –CK UP! WE ALSO TESTED POSITIVE FOR TOXIPLASMO, LYME DISEASE me AND A FEW OTHER STRANGE THIRD WORLD BACTERIAS WE HAVE NO IDEA HOW WE GOT?WALTER REID HOSPITAL IS CONCERNED ABOUT WHERE THESE WEIRD BACTERIAS ARE COMING FROM? READ IT IN THE WASHINGTON POST! HILLARY CLINTON HAS WRITTEN A LETTER TO CDC ABOUT MORGELLONS SAYING BASICLY GET OFF YOUR BUTTS AND HURRY ON THIS ONE! YOU CAN GET A COPY FROM THE NEW MORGELLONS ORDER! DO YOU REALLY THINK ALL THIS WOULD BE GOING ON IF THIS WAS JUST A BUNCH OF MENTALY ILL OR DRUG ADDICCTED PEOPLE CONVERSING OVER THE INTERNET…
Yes, and it’s a sad situation you’ve all fallen into.
Brandi,
I think you did a wonderful job speaking for all of us that have similiar symptons of an infection vs infestation. Morgellon’s is a temporary name for a disease that may be a group of coinfections, we just don’t know.
I will say this, I could predict, he would find a reason NOT to come visit you. He is afraid of something he does not believe in and he will not admit it. What it will prove is that what you and many others are being effected by some type of disease that is devastating our lives and our family and friends.
Instead of using words to discredit, use action to prove we are not having this phenomenon and by doing that is by physically your senses and by testing. So, smileykins and the rest of you, you are innocent untill proven guilty in a court of law. The law of medicine is : DO NO HARM…believe me there is alot of that going on, right now. Where is our caregivers and protectors? Where is our government…. why was anyone surprised that TB resistant traveler was flying all over the world…imagine that…
Am I a man again, today? Shit.
What is TB flying around the world? i dont understand what is going on?
Yes smileykins you would be amazed if you went the Koch house in florida. I know what they are going through because i am going through the same thing. You seem like you care about what we are going through but you are skeptical which is normal.
Again i will repeat myself. it will take time until you or a friend or family member comes down with some weird ass symtoms that he or she can not explain or be too ashamed to explain because it is so weird. again. i do not wish any human to get morgellons except you.
Chris, I would never consider an internet invitation into a stranger’s home. Even more bizarre, were the circumstances of someone else’s challenging anyone here to do it. She’d somehow taken offense, and got all mixed up over it, much later, and became combative.
I am NOT a skeptic of “morgellons disease”, I never have been, and I never will be. Skeptics have doubt. I am SURE, 100%, that there is no new disease that people are calling “morgellons disease”. Click onto my name “Smileykins” and get ready to get happy. I once came down with some weird ass symptoms. Now, how did I know it wasn’t some weird ass new disease? LOGIC You seem to be what they call a “newbie”, in the “morgellons disease” community, and I’m sorry they’ve given you something false to believe in. You’re sick, and so is everyone who thinks what they have is “morgellons disease”.
Smileykins……I asked some some specific questions..and you gave me a very weak answer…it appears to me you so called de-bunbkers are losing ground fast! Promise me one thing! When this thing is all confirmed not to be pychosis and this spreading illness comes out in the open big time..and it will! that you won’t disapear like cowards after all the mean and hurtful things you have said to undermine true heros trying to investigate this and true families suffering from this disease…and please do a little more research before you make statements or before you use my personal medical records I provided not for your website but Lymebusters..and if your going come into those websites have the guts and integrity to use your real name or your screen names..I do when entering your website!.There are alot of hard to believe and baffling diseaes out there…new ones probably emerging all the time..there is a disease where little children turn into old people in a matter of years )I forget the name of it) but I would never tell the families suffereing Thast it didn’t exist! even if I had no photgraphic proof! we have provided photo and video evidence! entire families do not become all delusional at the same tme…I am not saying people don’t pick there skin that do speed or that there are no real dop cases that exist ot that people do not have other medical issues going on as well.. but we all have some things in commen and so we are inclined to believe that maybe this situation had caused all these other body system involments and lesions that all look the same…by the way how could one self afflict lesions that look identical across ther country and world for that matter? or how do we afflict those lesions in the middle of our backs…alot of our MRI brain scans, blood work, heart and lung studies all look the same! we we all previosly healthy prior and alot of people are very young! I warn you to trash these brave scientist and docs trying to help or slow down and debunk us getting this info out to the public, you are cutting your own throats…I promise you in a couple of years if we don’t start taking this very seriously someone you love, maybe your child, maybe your mother maybe your best friend will be suffering with this and then, How will you ever live with yourself then? Please answer those questions “dont just say that we have fallen into a sad state of affairs” that is chickensh-t and you know it!
Liz? You didn’t address me with any questions, previously. You’d said, in comment #256…
I’m not a skeptic. I know there is no “morgellons disease”. The only people who can appreciate your style of communication on this matter are other people with the same, or similar, affliction, but I answered your last question in comment #256. You’re mean, and talk like someone who needs an exorcism, Liz.
Liz,
You’re in no position to be making promises because you aren’t in possession of the truth. You’ve heard the truth, but to you it is worthless because you have rejected it. It is totally foreign to you, and because of the spirit that is in you, truth is unrecognizable by you.
You fail to understand Morgellons, and you fail to understand the harm that your lies are causing. People who believe they have Morgellons actually have a wide variety of diseases and disorders. Some of these are physical, but Morgellons believers also share some common delusions. These delusions are causing Morgellons believers to be disfunctional.
By sharing your delusions you are not only reinforcing each other’s false beliefs, but also sucking innocent people into your cult movement. Whole families do suffer from an identical set of delusions. I know you’ve heard of folie a famille. Morgellons is a dangerous thing to believe in.
Believers forgo needed medication, opting for the self-diagnosis of Morgellons. They self-medicate, harming themselves and others who depend on them for care. Yes, they do abuse the children, spouses, and pets. They also break ties with everyone that doesn’t believe them, even their own family members, and as they jump from one doctor to another, and become ruined financially.
Spouses often resist their mate’s false beliefs, but eventually give in, and of course, children are easily influenced. Morgellons is communicable, in that sense, and although it’s nothing new, it is a delusional disorder, and it’s quickly spreading like sick rumors do.
Tall Cotton
Like I’d said in comment #147, above, Liz, LB’s administration deleted that thread where you were all stirred up, spouting off your mouth over thinking that TC and I did something we didn’t, and your paranoia got others stirred up and confused.
Then, Greg, the usual instigator of confusing people, the most, with his false identifications, said, in another post:
http://lymebusters.proboards39.com/index.cgi?action=display&board=rash&thread=1174445829&page=2
Like I’d said, and here’s how it was. Junebook came here, after not posting for a long time (she’d once said that I’m obviously a man who longed to be the man I used to be, or something nutty) and she goofed off again, thinking she was being bright, or something. If you want, I’ll post the links to these later, so you can see. Then, that’s when you made a topic thread on LB, and showed your ass about how you felt about TC & me, for some unknown reason.
Due to Junebook’s odd behavior, jumping into my shit where there was no reason to, I needed to find out what was wrong with her. So, I looked, and saw what is, no doubt, a lot of her problem (really serious health problems, too), and I’d wanted to discuss it with her. Well, everyone knows that people can’t talk about anything except the way out stuff on LB. I had to try talking to her here.
What happened, is that she got even more wild acting, then, when I was only trying to help. Simultaneously, I’d seen your topic about TC & me, so I looked to see what could be your true health problems. Like Junebook, you have some serious ones too, and I had mentioned, here, that you needed another brain scan, due to it being so long since you’d had one, and that you knew you’d been told you have a demyelinating disease, and that your mom had been diagnosed with lupus in her 40s.
Well, you evidently saw that, and freaked out, thinking that TC and I had bugged your computer, or some other nonsense, and they had a time on that thread, until administration warned you something about being careful who you befriended, and then, it was deleted.
You didn’t post your medical records, and I didn’t rob them from LB, Liz. This is the world wide web.
And Greg, my gosh is he ever screwing you all up so much more than you all already are. You’re all getting so much worse as time goes on. Liz, ask him if he remembers this?
We don’t lie on this blog.
Can you grasp what I just said, Liz? If not, I’ll try my best to help you understand. I can’t believe that you said you were targeted with lies. You were targeted with truth.
Since when has skepticism been a bad thing? I’m confused how this term is getting thrown around like an insult.
Skepticism critically evaluates claims, such as “Morgellons is a real disease, not a psychosis” and holds it up the light, and examines the evidence. If the evidence does not support the claim, the claim is rebuked. It’s not “being negative,” it’s just asking people to support their claims with logic and evidence.
For example, if I wanted to say that Jesus has returned in the flesh and has been sleeping on my couch for the past month, you wouldn’t say “Hey, that’s great!” You’d want evidence. And I have no room to get all bent out of shape for you wanting that.
I cant beleive how many people still come on here with no evidence for morgellons but yet beleive i should beleive in this condition based on many people having the same symptoms and “evidence” that includes fuzzy film from you tube and pictures taken with a cheap radio shack microscope. I am not saying this condition doesnt exist, but based on what has been presented (and what i know from working in the mental health field) i cant beleive that this condition exists.
Also, Smileykins, do you have a life. All you do is spend time on the internet talking about this and kinda being a prick and all high and mighty about your own story which doesnt even have anything to do with morgellons not even existing. These people are obviously sick whether it be mental or physical and i cant beleive you come on here and cause them more distress by antagonizing them. get a life.
I have never been told in my life I was mean or needed an exorcism. If someone was trying to stall you and the people you love from getting help…you would be mean too! All the energy you put into to this could be used a better cause…Why are you so obsessed with us? As far as me being mean you do seem to bring worst out in people with your constant sidestepping and viewing of our our words coming in as guest users and probably under other names as well….it takes awhile to establish yourself on the legimate Morgelloms/Lyme disease boards because of people like yourself who come in grab our words and info and try to you them for your evil, evil…cause…as far as me accusing you of computer tampering I have an uncle in a very high place and you would be very stupid to do such a thing! I am not going to comment on this board ever again! say what you want about me! I am sick, People I cherish are sick and I have more important things to do!
Easy there, boss, er, uh, I mean, 911. “All” is a really heavy word, but I really respect that effect I’ve had on you.
“All” I am saying is you have no proof to back up that morgellons exists, just like the people who say it exists dont have evidence. Your no different then them.
i meant no proof that it doesnt exist…sorry
Dance a little jig, then. I read all of what you said, and got it clear the first time, 911. So, okay, then, you didn’t say what you meant, or mean what you said. No sweat.
911, you sound like you are just one fiber away from being a full fledged Morgie. You seem to have their mentality already.
Tall Cotton
No, I don’t believe in morgellons. I have been in the mental health field for 5 years and have met many a folk with DOP. I beleive Morgellons is a new form of DOP that has spread over the net also combined with various other known skin conditions. Both of you always ask for evidence that morgellons exist, yet don’t offer any evidence it does not exist, other then smileykins interesting story. I find it interesting that two people with no idea how scientific research works (trust me, i am working on a PH.D i have done plenty) can go around saying a disease 100% does not exist, just like those who say it 100% does exist. There is no difference between you two and the morgies. Both clueless and think they know what they are talking about. At least Michael knows what he is talking about. I think you both just use this website to make yourself look like experts at something you are not and have no place telling people what does or does not exist with no understanding of how research works. Wait till the CDC 100% proves it does not exist until you going around telling people what to think. The morgies need help and neither of you two are providing it.
911, so, you have some issues. Well, “trust me” (ahem), those are YOUR issues, they’re certainly not TC’s, and they are not mine.
Liz, i know what you are talking about. Only we who have this know what we are talking about.
911 you say that Liz is not in posession of the truth? She says she is infected with this new disease called morgellons so SHE IS in posession of the truth. This shit is real. I have it and i know that this is going to grow into something that can not be stopped. There is no way that thousands of people can be saying the same exact thing about the symtoms. The family members and of the sick are the only non-infected people to believe this is real. I wish that 911 and smileykins could some how get a couple shots of my blood and hopefully they would be infected then you would want to pull your foot out of your mouth.
I wish I had a couple shots of your blood too.
If we had a couple of shots of his blood, we could probably figure out what is wrong with him.
TC
Yeah, so I went on the lymebusters board for the first time and read some posts for about and hour and all i can say is……………..WOW!!!
Chris, I hope if there is a morgellons disease that the CDC will confirm it and you will get the proper treatment. But if it is proved not to exist where do u go from there?
911 if you are working on a PHD I am a fairy princess with magical powers.
You are bored and clueless and talkin out your arse.
Just my very intuative opinion.
Now I will leave this site alone since it serves NO purpose but to hurt and harm and is not interested in PROVING anything.
Here’s the deal with conspiracy theories. You may ask what people will do if the CDC finds that Morgellons is synonymous with DP, or is not an independant medical entity. If this is found, the only thing people with “Morgellons” will say is “see! The medical establishment is doing a cover-up!” So it’s always a win situation for them.
Not living in a state of reality, such as many of the patients who think they have “morgellons disease”, people are hurting and harming themselves, and others, wanting to prove PLENTY, but they’re unable to. Anyone taking advantage of that state, is hurting and harming others, not needing to prove anything to them, either.
If honesty factored into the equation, plenty could be proven, but honesty is forbidden.
If the fairy princess hadn’t flitted away, never to return, I’d tell her that within the NetMedVisit link on her site, they left Indiana out of our states’ list, substituting “other” in its place.
http://netmedvisit.com/html/state.html
I recommend exploring her site, and seeing how hard she’s working for “the cause”.
She must have a nurse/relative that will treat patients.
http://netmedvisit.com/html/patient_detail.html
On this particular page
http://unknownskindisease.com/html/doctors.html
Where she states:
He’s on the Morgellons Research Foundation’s Medical Advisory Board, just like the other guy that some “morgellons disease” patients have been posting about in the past week.
Golly gee.
This notice from Nurse Springstead, on Randy’s forum, is really interesting, too.
http://www.espbotanicals.com/
Excerpt from bottom right-hand side of page:
Interesting page from there
“I HAVE BUGS COMING OUT OF PEOPLES BODYS. CAN IT BE MORE CLEAR. 2007-05-01. SINCE MARCH OF LAST YEAR. 2006.”
http://www.espbotanicals.com/bugs.htm
Excerpt:
(“Our corporation is working with the CDC”?)
Do these “professional” realise how messed up they are?
To the fairy princess – YOU my dear are bored and talking out of YOUR ARSE!!
Yeah, silentsuperbug looks like a real interesting website with about 900,324,253,234,645 different theories of how morgellons. Nice straw man argument randy.
911 – the silentsuperbug website is locked down, you have to register to read these days. I couldn’t be bothered, what for??
Oh I know – there are some real evil folk out in internet land. Hoping little fish like me will read such trash, get scared to death, and then commit suicide.
hey guys to non believers in front of my i have a 3 foot long piece of fiber that grew out of my skin. its not like any fiber that you have ever seen. i cant wait to show this evidence to my parents who believe i have a strange disease. it is wrapped up in my wallet right now.
you know what? i am drunk even more on this web site but i am not angered because i know jusitice will come.
I do believe in God but i am a deist. i believe God created this earth but i am not a christian. I know that some how the inteligent design of earth will have justice on all of us. I believe in carma as well.
I am saving my piece of evidence of morgellons. I have had other pieces of hair like fibers grow out of my arms out of no where and i have not kept them.
This one is at least 3 feet long and it is saved for the first time.
Other pieces I have snapped in half and it curls up and regular hair does not do that.
I know that this piece of fiber in my wallet is not known to humans.
FUCK YOU PEOPLE PUTTING HURTING PEOPLE DOWN. I WISH I COULD SHOW YOU THE TRUTH AND LET THE WORLD KNOW ABOUT THIS EPIDEMIC. THIS IS AN EMERGENCY THAT THE WORLD NEEDS TO KNOW ABOUT.
I dont know why you non believers would spend so much time on here if you didnt “care about” what we “morgies” are suffering from. FUCK YOU.
BRANI KOCH:
If you read this, please respond to me. My baseball coach called Billys cell phone and left my cell number. we have mutual friends. I am one of you. I just need someone who understands what I am going through. I am a college baseball player who is struggling with this horrible disease. bye
Chris – the people on Michael blog do care, honest they do, please don’t get angry.
I was shot down in flames last year by some members of the Lymebusters support forum for calling their website “Slimebusters” on this blog site. At the time I thought I had good reason to call them slimebusters. I kept asking the other members open and honest questions and no one was giving me a straight forward answer.
I recall a private message from one member, she told me not worry myself about finding out about what Morgellons was, “leave it to the other people to sort out”, she told me. She also suggested I not tell people I have “Morgellons Disease”, she said “tell them you have allergies, do something like art & craft, hobbies etc to keep yourself busy”. “Maybe earn some money on the internet working from home”.
I was sick, really damn sick and I wanted answers from someone somewhere, not a pat on the head.
From that moment on I was on my own. That is how I ended up at Morgellons Watch.
“I am one of you” – Chris what does that mean?
Is it because I am an Aussie that you simply ignore my posts?
I used to wonder if I was “invisible” when I posted on other Morgellons support forums in the past. It was like people were literally talking over the top of me, not taking any notice of what I said.
In other words, they had there own hidden “agenda”.
I recall a private message from a member on the Lymebusters support forum asking me to post more information about Diseases in Australia, “Oh please post some more Sarah, I love the way you write, I really enjoy reading your posts”.
Well read this lady – “kiss my arse”!
Chris says: “hey guys to non believers in front of my i have a 3 foot long piece of fiber that grew out of my skin.”
I thought you weren’t going to waste your time trying to prove anything?
Let me put it this way. Here’s my post:
Hey guys, a cat just crawled out of my skin. She’s about three feet long and I’ve named her Fifi. This happens all the time. I do have a cheapo digital camera that would make a video of this phenomenon, but I don’t want to waste my time proving it to you. I just want you to believe me!
Chris,
Have you showed this fiber to a doctor. If you are on campus there is probably a biology lab or a prof that would be more then happy to examine it for you and tell you what it is made out of and what it is. I think that would be a good start to figuring out what is going on. Take it to a prof in the biology dept and have him take a look to tell you the make up of it. Just trying to help. Do you parents not believe you?
911
911 – my parents believed me, they witnessed many things coming out of my skin with their own eyes, not a microscope.
Unfortunately because the doctors would not take a look I think my family have gone into denial. Well I kinda understand, if the doctors aren’t bothered why should they be.
Chris is probably sleeping off his hangover, poor thing. Come back and talk to us Chris, time is of the essence if we ALL want to get well.
I am working with Patrick Fraser and Body Bugs. Go to http://www.wsvn.com enter Body Bugs in the Search bar. Then Body Bugs 2. We are coming out with Body Bugs 3 in the near future.
I have and am predicting that this is the next epidemic in the Country if not the Globe. Children have it, some born with it. Some are VERY VERY sick. Hulda Clark was so right in her book the “Cure for All Diseases”, You may email pfraser@wsvn.com in regard to Morgellons, End Stage Lymes etc. The Bugs have gotten Bigger and the fibers more pronounced.
Trisha
Yeah, i am supposed to believe someone who sell products and makes money off all this. Yeah right.
Bugger – everyones “NUTS”!
Always believe those who report their scientific findings through mass media or by selling something ahead of peer-reviewed journals. Thanks Trisha, RN!
and Trisha you should know better being an RN, shame on you gurl!
or is it “girlfriend”, sorry I get all mixed up with the yankee talk
Trisha, the link you have in your website for “read more” about Body Bugs doesn’t work. I must somehow rise above my anguish.
Sarah – I must be severely ‘Delusional’ coz that website is bogus!
Besides Trisha, head lice is treatable. By the looks of things, I think you can afford it!
I would really like to think so.
Ken Cowles
Director
Media & Public Relations
Email Ken:
kencowles@morgellons.org
I spoke to Ken Cowles myself on the phone. He said it would be great if we could find a research facilitate in Australia to join forces with OSU and Dr Randy Wymore. I told him I couldn’t agree more. I sent links for Melbourne University to OSU.
12 months ago I wrote more emails to local radio stations pleading for help and I was promised (by one of the radio producers)that she would phone me and allow me to speak on the radio about Morgellons. This all happened around the time the MRF split up and I resigned my voluntary position as the “Australian Represtative for Morgellons”. I was getting really impatient, because my health was deteriorating, so I emailed the radio producer again. She told me I had to be patient, so I linked her and Dr Wymore together, so he could be my medical advocate.
You said it lady, anguish.
I think the Victorian Health Department know me very well by now, after my many phone calls. I last contacted my health department when Dr Ed Spencer had written a report about Morgellons. I wrote them and phoned them. I was told they couldn’t phone USA on tax payers money. Well I have phoned the USA many times in the past 3 years and it hardly cost me a cent. I used a supasaver card which I bought from the local video store – for $10 I got hours and hours of talking time, which I needed too. Mary Leitao must have been sick of hearing me on the end of the phone, but she never dismissed me, she cares.
If you want to point the finger at anyone, point it straight at the Victorian Health Department. I phoned their hotline telephone number on a Sunday afternoon when I found Elliott’s Disease and Morgellons Disease on the internet, I knew how sick I was, but I don’t think the lady on the other end realised. She said she’d never heard of Elliott’s Disease or Morgellons Disease.
I mentioned I was hoping to get an appointment lined up with an infectious disease doc at a Melbourne Hospital and asked her should I mention Elliotts Disease & Morgellons Disease, she said yes.
That was nearly 3 years ago. That hospital put me in the psych ward for 2 days. I don’t lie, and I am who I say I am too. Check me out, I’m in google too, I was even on the internet radio – quoting my real name. All looks so damn stupid know in hindsight, but I was desperate for some help and I still am.
“I ain’t crazy I’m just a little unwell, hey now, hey now……”
I ain’t CRAZY = I’m ILL!!!
I rest my case, so help me God.
Gillian.
Idiot here even emailed the Queensland University asking them to consider researching this condition.
SO ya’ll need to quit pointing ya blue beams on my head coz I am SICK of being a ROBOT!!!!!!!!!!
and I much prefer a wollen hat in winter rather tban tin foil.
one more thing to the “beam shooters” leave my cat alone, my friends & my family….
We have all had enough of your organised coincidences and near death experiences thank you.
My Gran is 91 you know, and she ain’t done nothin wrong either!!
I know I am raising my voice, but I need to so I can hear myself above the buzzing in my head. I hope I am making myself perfectly clear, in a calm and concise manner.
ET = go suck eggs, this whole tbing sucks.
I was being facetious about the mass media versus peer-reviewed journal thing.
http://skeptoid.com/episodes/4037
I was just parroting a favorite skeptic of mine.
How true is this statement from that link -
“Remember, you should always read with skepticism the comments of anyone too lame to put their real name & city.”
So why is Morgellons Watch registered until 2008?
WordPress.com seems to be getting around too.
If anyone here thinks I am going to have to be patient, and wait until 2008 before my baby and myself get some medical treatment, ya’ll got a nothing thing coming!!
Send in the evangelists – I need an exorcism!!!!
Parrots ??? friggin Punks more like it!!
As the topic reads “Brandi Koch” – well at least you got money lady.
I was living off Disability Support Pension long before I ever heard of Morgellons.
So quit ya moaning Brandi – go buy another boat.
I know I am liable for whatever I say on this blog, that is why I tell the truth.
Sarah – are you Michael too??
“Sarah big bum” suits you better really – you know I love to call you names.
Don’t take offense – I’m just parrotting on since I’m been up all friggin night trying to clear my name.
Tired and fed up.
Gillian,
You need to stop posting random blather on this site. I dont even know what the hell your talking about.
Get some help, please.
911 – I would if I could, but you are starting to bore me with your “bio terror fear mongering”. I haven’t lied. But someone sure is lying.
Should I suddenly disappear, I guess my family will learn someone got to me before I could spit the truth out.
I know the TRUTH and I am prepared to take whatever risk I need too, and the internet is the fastest way.
You call my posts random blather, get your head checked mate.
You are just ONE idiot with an Internet Connection. That is FACT.
Michael – you in, obviously knot
You got your strings tangled dick wad.
I am not a puppet, I hate what you have done to me.
God will have his way with this, you mark my word.
Ahole
thanks 911, I appreciate your concern, and I am trying,
very trying, my apologies.
Michael – I’m sorry.
I spent $200 yesterday on an Iridology reading/foot detox and calcium pills. My memory has returned even more and I am morphing literally hour by hour.
Since we had that detox done, things have gone off the rails. Will has had colic all night,I look like a scared rabbit and Sally my cat is a little confused and eating constantly.
Something not right with this picture.
Gillian you are a God among ants.
Yes chris is back. that is me. I have showed fibers to my doctors. they have said that the are normal hairs.
also i have had my mother with me in the doctors office and have told the doctor about my fibers growing out and my mother who is a Registered Nurse have told the doctor that she saw it with her own eyes that it is real. the doctor did not know what to say so he said it is not a real disease and should not worry about it.
That was about a year ago and now the symtoms have gotton worse and there is skin lesions on my dick head. I have been checked for EVERY STD THERE IS. i have none. My dick was bleeding from a skin lesion after masterbating on the side of my dick head. Also there were white fibers growing out of it.
Why would i make up some bull shit and waste my time on this site so say to this??????
I have more important things going on in my life that i should worry about. I have put my life in perspective like none of you non believers could ever imagine.
You lucky people who are not infected have no idea how lucky you are.
I am a very smart sane person and i know that someone you know will probably be infected with the same symtoms some day.
The person you know might try to hide this from everyone until it shows skin lesions all over their body.
I wrote to Brandi Koch because my fastball velocity lost 10 MPH just like her husband who has Morgellons. I have Morgellons and we share something that no one will understand.
Fuck you. That is all I can say to people who do not know who we are. We are something that no one can understand.
Praise the Lord Chris, I sobbed tonight.
Brushing your hair Chris will help when it’s all in your head, you understand.
I live an hour at time somedays. I will not live my life in constant thought, questioning myself “am I in recovery from Rikettsia or dying”, the feeling – torture.
Morgellons has got to stop for me. I don’t want to die.
I am aware when I have been Delusional, how can this be?
Take care Chris. I can’t talk anymore tonight, I’m too emotional, but doing ok.
Love Gill x
T M I
“I wrote to Brandi Koch because my fastball velocity lost 10 MPH just like her husband who has Morgellons. I have Morgellons and we share something that no one will understand.”
Don’t know how reliable this is. But Billy Koch since he no longer has Morgellons and never did. Maybe he is just trying to get his job back in baseball.
Mercy sakes, Chris, didn’t you kinda explain the reason why your pitching arm may have been a little tired?
Hi, Brandi:
Tallcotton says “You haven’t offered any evidence that Morgellons is a disease, or even that it exists. You may have some physical disorder in addition to your mental problems, but you not have Morgellons. I don’t care if you believe it or not.
Brandi, TC has never offered any evidence that Morgellons does exist. He knows absolutely nothing about it. He’s never seen it. Never looked at it under a microscope. He’s read about it–that’s the extent of his knowledge. The same goes for his smelly cohort. They’re both kooks. Funny kooks.
===================================================
This woman, Sarah, employed by the University of GA, a so-called professional, spends her time, and her employers time, being snide and sarcastic to all who cross her path on this site. She calls herself an entomologist, but told one patient insects couldn’t breath under our skin–no more than cats could.
sarahbionedunn Says:
June 11th, 2007 at 7:24 am
Chris says: “hey guys to non believers in front of my i have a 3 foot long piece of fiber that grew out of my skin.”
Sarah: I thought you weren’t going to waste your time trying to prove anything?
Let me put it this way. Here’s my post:
Hey guys, a cat just crawled out of my skin. She’s about three feet long and I’ve named her Fifi. This happens all the time. I do have a cheapo digital camera that would make a video of this phenomenon, but I don’t want to waste my time proving it to you. I just want you to believe me!
======================================================
Michael Says:
April 21st, 2007 at 9:14 pm
South. What I was asking Brandi was to show video of things emerging from her skin. To actually show something unusual going on. Brandi?
Brandi, this request alone proves how devious these people are. Why in God’s name would you send them videos of your nightmare when they don’t believe the thousands of Morgellons videos available on line? All “they” want to do is humiliate you by picking your video apart until nothing’s left but the plastic case. We don’t have to prove anything to these sadistic people. Thousands have already done so. Go look at their videos. MorgellonsWatch posters, go see how they’re suffering, and while you’re about it, you tell them they’re crazy–that it’s all in their head.
Junebook, have you ever suffered a stroke?
Junebook says: This woman, Sarah, employed by the University of GA, a so-called professional, spends her time, and her employers time, being snide and sarcastic to all who cross her path on this site.
Please show me evidence of snide and sarcastic comments made on any of my employer’s time. I’m sure it will be easy for you to copy and paste quotes.
Junebook says:
She calls herself an entomologist
Please show me evidence of this. Copied and pasted quotes are fine.
Michael Says:
April 21st, 2007 at 9:14 pm
South. What I was asking Brandi was to show video of things emerging from her skin. To actually show something unusual going on. Brandi?
======================================================
sarahbionedunn Says: “While I recognize and sympathize that you are suffering, you still provide no proof for from what you are suffering. I’ve suggested this on so many occasions before, when people describe tar or bugs coming out of their skin: get a video camera. If you own a digital camera, it probably does short videos. I know my cheap one does.
======================================================
Sarahbionedunn Says:
June 4th, 2007 at 8:26 am
Chris,It sounds like you’re experiencing some extreme physical symptoms. Do you have a camera, or a video camera? It seems with such blatant physical symptoms a camera could bring some folks around right quick.
======================================================
Brandi, this is deviousness at its finest. I’m serious. They’re good. Really good. They want proof. They want videos of your Morgellons disease.
Why? Because having them gives them additional power. And that’s really what they’re all about. Power to say anything they like to people they don’t even know. Sick people, no less. Power is what they get off on. They’d tear you and your videos to shreds with their snide, mocking remarks, while patting each other on the back. Give them nothing. Zilch.
=====================================================
smileykins Says:
April 15th, 2007 at 10:27 am
Peter, TC is traveling right now. Both of answer to Jesus, whenever it’s impressed upon our heart by The Holy Spirit to ask to be forgiven, so don’t anyone tell us how we should be in your eyes. It’s always just between us and Jesus.
======================================================
While still in the womb, my Heavenly Father gifted me the power of discernment. I’ve never ever abused
that gift, and use it only when prompted. Which is why in response to the comments above I call the woman who made them a liar. As I said months ago when prompted, her and her sidekick made a pact with Olde Beezlebub.
“They signed on the dotted line and there’s no going back. There’s no redemption, and no way out for them. They’re forever lost. Do not acknowledge their presence or address them.” Amen.
God Bless
Do you know whether you have ever had a stroke, Junebook?
*raises her hand*
June, I’m still waiting for the quotes of snide comments and where I said I was an entomologist.
Hi there, -Brandi, the videos below are just the tip of the iceburg. There’s a gozillion others out there on the Internet, and it goes without saying that the debunkers on this site wouldn’t give them the time the time of day–no more than they would yours.–*
1) http://behindthescenes.blogs.cnn.com/2007/06/25/a-special-note-for-our-cnn-pipeline-subscribers/
2) http://www.youtube.com/watch?v=-iUk59qwFYY&mode=related&search=
3) http://www.youtube.com/watch?v=GF2PYa6cUC0&mode=related&search=
4) http://www.youtube.com/watch?v=OX5joYTF0AY
the reason why i say that morgellons may be the reason why my velocity on my fastball has went down is because morgellons gives you joint pains and weakens your joints.
my freshman year of college i threw 87-90 mph. over the last 3 years the velocity was decresing to 80-82. in the last 3 years I have gotton bigger and stronger. Its strange that with all the symtoms of morgellons that i have that it couldnt be a reason. Billy Koch who pitched in the majors believes that morgellons is the reason why his velocity has dropped. It makes sense to me.
To 911:
earlier you told me to show my fibers to a Professor or doctor on campus.
I would not do that because i dont want people at my school to find out I have some weird ass disease. Girls would not want to date me anymore.
i would lose friends and be miserable at my current college in southern cali.
You do not know how we feel about sharing our condition with people.
We are embarrassed to talk to people who dont care about our condition and people who only say things that might be the reason for our diareah and itching. I cant teach a def person to talk. Just like i cant explain to you what we feel ALL THE TIME.
hahahhahahha i meant to say I cant teach a mute person to talk. my bad.
another thing i have noticed about this “thing”
I have been a huge pot smoker for a few years. I have quit because it makes me depressed and i surely do not need that when i already have depression of knowing i have one of the worst diseases in the history of the world. Morgellons is only a temporary name until scientists figure out what it is.
Anyways about the pot.
I have noticed when i was geting high that i would have a lot of anxiety and some of the time more of this sand like crystals would grow out of the palms of my hands.
I smoked for fun obviously but i would smoke to see if the crystals were more likely to grow out if i was high.
By the way this post is only for Pot-smoking Morgellons people. Other wise dont write back.
It sounds crazy but everything on here sounds crazy to people who dont know what it feels like to have it.
HELLO, CHRIS… I JUST GOT OFF THE PHONE WITH BILLY. HE SAID THAT HE HAD NOT RECEIVED ANY MESSAGES IN REGARDS TO YOU. HOWEVER, I WOULD BE MORE THAN HAPPY TO SPEAK WITH YOU AND ANONE ELSE THAT WOULD LIKE TO CONTACT ME IN REGARDS TO WHAT’S BEING CALLED,”MORGELLONS”.
IT’S HARD TO FIND A SAFE WAY TO HOOK UP VIA INTERNET… SO, I WIL GIVE AN ALTERNATE EMAIL. ONE THAT WILL BE SHUT DOWN IMMEDIATELY IF I RECEIVE ANY THREATS OR NASTY COMMENTS.
I WILL ALSO HAVE IT REVIEWED WEEKLY BY AN INTERNET INVESTIGATOR TO ENSURE SAFETY AND WEED OUT ANY MALICIOUS “SHOUT OUTS”. I DON’T HAVE TIME FOR ANY OF THAT.
ALTHOUGH I FEEL THAT I HAVE SOMETHING VERY SIMILAR TO WHAT SOME OF YOU HAVE (MORGELLONS), I OPT TO LIVE MY LIFE TO THE FULLEST WHICH MEANS NOT SPENDING EVERY DAY ON THE COMPUTER. I HAVE 3 AMAZING CHILDREN WHO ARE OUT OF SCHOOL FOR THE SUMMER SO I AM ONE BUSY MOMMA!!!! SO, IF I DON’T GET BACK TO YOU RIGHT AWAY YOU’LL KNOW WHY.
HANG IN THERE EVERYONE! THE TRUTH ALWAYS SURFACES SOONER OR LATER (NO PUN INTENDED)!! HOPEFULLY SOON FOR ALL OF OUR SAKES!
911—I APPRECIATE THE POINT YOU MADE ABOUT THEIR ‘PROOF’ BEING EQUALLY AS LIMITED AS OURS. THIS CHILDISH HE SAID SHE SAID FINGER POINTING IS JUST DOWNRIGHT RIDICULOUS.
ALSO, AS FAR AS ME MAKING A MOVIE TO PUT ON LINE… WELL, IF YOU GO WAY BACK YOU WILL SEE THAT I AM IN THE PROCESS OF MAKING A DOCUMENTARY THAT WILL LEAVE EVERYONE IN AWE—OR RATHER SHEER FEAR.
LASTLY, MY COMMENTS FOR VISITORS TO COME WERE NOT THROWN OUT THERE LIGHTLY. I HAD SAID THAT I WOULD HAVE A BODYGUARD/GUARDS WITH ME AT ALL TIMES AND WOULD BE APT TO PUT WHOOEVER CAME UP IN A HOTEL FOR THEIR STAY TAKING THEM TO MY ID DOC’S OFFICE FOR TEH BIG ‘SHOW’ SO THAT IT WOULD BE A SANITARY ENVIROMENT AS I WOULD NEVER WISH ANYONE TO CONTRACT THIS ILLNESS IF IT WAS INDEED CONTAGIOUS.
OKAY… HERE IT GOES—- KOCHBBCK44@AOL.COM —-LIV, CHRIS, GILLIAN, & ANYONE ELSE WHO HAS SOMETHING TO SAY (AS LONG AS IT’S DONE IN A RESPECTABLE MANNER-PLEASE EMAIL ME). YOU DON’T HAVE TO AGREE WITH ME TO BE RESPECTFUL… JUST PLEASE-NO NONSENSE!!!!
I have been reading everything on this blog, and I have to say to the people who don’t believe Brandi or think that she is crazy or insane or nuts, or whatever else you close minded people have to say…. If you knew Brandi and her incredible family you would know that they would give anything not to feel sick. I am sure that Brandi has obviously chosen to speak out because she feels she has to defend herself and her family from people who refuse to think this could possibly be real and sometimes the only way to get answers is to put yourself out there in order to raise awareness. Shouldn’t this site be for people who are trying to find answers and not for people who obviously don’t have anything better to do with their time than discount someone who truly knows they are sick and suffering from something that no one can explain??? And to those people who feel it necessary to disbelieve someone and take the time to write rude comments, I feel sorry for you, I honestly do.
To the Koch family, you are in my thoughts and prayers and I love you all.
My love, Sister Sara x
Smileykins and Tallcotton,
It is quite obvious your purpose here is to stir up emotions for more heated debate, hence, creating more visitors on this site. Hope you are getting paid well to initiate your idiotic opinions and controversy on a subject that is unfortunately, undeniably real. Seems that people will sell their souls for money these days…find another job that doesn’t hurt others in the process..otherwise, as the old saying goes, ‘what goes around, comes around’…
Brandi Koch came here very confused and nobody can help her. You’re also talking very strange, and must have a clue as to why.
Brandi,
There are so many new illness’ coming about, one would think it has something to with the environment we live and the food we eat. I’ve been involved in the wellness industry for the last four years and have seen some amazing results with many different ailments, with the use of a patented product I have found. I truely believe it could help you. Reply if your interested.
Peter would you please email me at my yahoo address. kathylin34@yahoo.com