I’m not saying all doctors are wonderful people. But after 20 doctors tell you the same thing, is it not likely that some of those doctors actually cared, and looked at their skin?

People need to be treated as individuals, that’s very true.

I had some adult acne which only cleared up on Minicin (sp.) I don’t have to self treat, but when I had some brain fog and was in a power position, they tell you to take a pill. I drank coffee and worked out.

Now I am in FL and the quality of care is something to be desired and it took 2 months to diagnose the Lymes (2 visits to Holy Cross and 8 trips to the dermatologist). They knew that I was dealing with something – I have had the same insurance since ’92 and this was not a manic episode….:) I wish!! I had to take down my Christmas decs. and organize my home not run back and forth to the docs.

I trusted my God given instinct about my brain and my body. I know what I know about ME and my situation. When I had no answers and was desperate and found a bunch of strangers talking about EXACTLY what I was experiencing during this hellish nightmare, I thought, God, what did I do wrong this year to share these bizarre symptoms with these strangers. I was specific in my request to find relief. Products that smelled funny and came from out of the country brought relief. Other products called this and that from Tenessee that I spent LOTS of money on did not work. I cannot deny the obvious results even if they were labor intensive.

Getting better takes work. Taking pills is easy, but takes its toll. I want to be better without antibiotics. I have a VERY conservative insurance co. who is also my employer. Guess what, they have approved EVERY Rx except for the very risky 30 day dewormer which is usually a 3 day dewormer. I chose to go to Whole Foods and organically cleanse.

I don’t want my money going to the reps at …..I want the answer in a box with a ribbon for Christmas!! Any takers:)

Lighten up and give the sufferers a chance to prove the naysayers wrong. We have enough going against us these days:)

Let’s give peace a chance and agree to disagree until some mad scientist finds out exactly what is wrong. You will all feel bad if you end up in the office asking for antibiotics yourself because of some unusual nonhealing situation.

This from a gal who read the book on how bad they are for us….It is the fix that is working right now.

When I finally stopped going to the dermatologists, my friend’s brother (MD) brought me in for tests. The labs told a bigger story, but the doxycycline worked wonders until I went off. The point is that I hate pills and didn’t even take my prenatal vitamins and juiced and ate well instead. I didn’t want the meds to work because I preferred the dermatologists topical treatment…if it worked!

I cannot deny the fact that the pills that I loathe are what has taken me out of the crisis. I’m on the fence. I’ll do anything to get better because I have a 5 and 7 y/o. I’m all they have – literally. We lost family to 911. I have a good life here. I have no reason to know any of you or be joined by this freakish whatever you want to call it. It is what it is and I’m too social and shallow to want this in my life – truth be told.

BTW, after I took the meds, I put most of the weight back on. Now if I could wo again the way i used to- I think I’ll go for a bike ride right now

The jury is not out. There are 2 schools of thought even with Lymes. I would love for this to be a figment of my imagination…i’m still waiting. In the meantime, don’t forget about the Red Cross and the cost of screening blood back in the day when AIDS began. I audited major pharmaceutical co’s and insurance co’s (Pfizer, NY Life, etc) for the largest audit firm in the world. It’s all about the money and the books and off label versus industry standard. It’s much too big for me to contemplate knowing what I know about business. On a much smaller scale, I just want to be healthy, happy and able to raise my boys to become men. I’m just one gal trying to stay afloat:)

I really didn’t want to post here originally, but honestly, we have to look at the big picture as well as the individual cases. They are humans with jobs and families. Let’s be compassionate.

Melissa

Honestly, I’m so caught up with singlemotherhood la la land that I had no idea that anyone was complaining about “bites.” I have a very high tolerance for pain, but my doomsday was so specific – after a hot shower at dad’s (warm winter, farm animals, cats, dogs, filth, dead deer heads, untreated water had never bothered me previously) my face was on fire and the next day I looked as if I had a body chemical peel.

The horror continued and suffice it to say that after several visits to the dermatologists for razor like cuts in unattainable places with very good insurance and still no answers after 8 weeks, I started googling after throwing out almost all of my prized Calvin Klein home linens and sleeping for 45 mins in a bathtub and losing 30 lbs in as many days. I was horrified to find the common elements with what I would previously call freaks with a disease not on the books ! I was not going to be some patient zero – not me.

Well, I have Chronic Lymes and CD57 of 28 and am still battling this coinfection with a name from some old english literature….I’m as skeptical as all of you and probably 10xs more – I’m from NY and burried 22 people after 911 and was still jaded and proof oriented.

I cannot deny the fact that I am joined to many strangers who experience what I am experiencing and I still pray that i wake up and it was just a nightmare, but when I do, I will be on your site…..I just don’t believe that it will be in this lifetime, but I will get better. I’m a jaded NYer who will fight for my health and my family.

M

Does this mean that NSAIDs do not help arthritis. No, it just means they don’t cure arthritis. Still, millions of people take NSAIDs every day for their arthritis.

So when a sick person hears Wymore say: “Antibiotics seem to help some, but if they are stopped the symptoms come back”, then what they understand is “if I take antibiotics, I will feel better, but I will have to keep taking them”. Since they can get a one-month supply of Ampicillin for just $20 at the local pet store, then why would they not do this?

What they get from Wymore is:

- I believe you
- You are not delusional
- I’m looking for a cure, and given time and money it will be found
- While you are waiting, you can take antibiotics to feel better

And yes, you can help what patients believe. In fact you (at the OSU) are greatly influencing what patients believe.

Tall Cotton