Comments on: Why do Antibiotics help with Morgellons?

By: tolga

tolga — Mon, 11 Aug 2008 19:51:54 +0000

i too have those little white things coming up from my nose and my teeth and all over my skin .. i actualy didnt have them with my second trial with lavamisol .. i didnt know such a thing before , never had heard of it anywhere before and this is the first time i see someone else had it on internet , so cant be a plasebo like thing i think .. i was on a parasite cleaning program and when i added levamisol they appeared everywhere on my body .. i tought they could be trichinella and saw a dr for it she wanted some tests but there was nothing out of normal like elevated esofinils indicating a parasite problem , but neutrophils r high .. and i never had fibers coming from anywhere on my body .. i have all the symptms of chronic fatigue .. hope i can find more info on this on internet .. by the way i have black hairy tongue and they got longer like a cm more and the new coming ones were white not black as the upper part .. i scraped some of them from my tongue , they look like worms but not moving ..

By: Linda

Linda — Tue, 04 Mar 2008 14:17:52 +0000

My doctor prescribed minocycoline and Cipro. minocycoline helped to heal the sores and bring me to a point where there were no more fibers comming out. but The Cipro made a big difference in bringing the soft balls (which when broken down equal many many tiny white things) to the surface. I am unfortunate enough to have this thing all over my body. Sometimes when they come out all of a sudden liquid will come out after them which makes me think it may be a water based bacteria of some kind. It seems to be related to my pores in some respect. also I have a hard time believing that this is a skin condition. It seems to me because of the stages I have gone through that it is something deeper and the skin condition is just a byproduct of the deeper issues. I have had it come out of my nose the inside of my mouth and tongue my teeth. My private parts and even in my excrements in large numbers. After I started treatment some of the symptoms started to ease up I even was able to start losing the weight I had gained slowly however. I had to stop taking the minocycoline because continued long term use of it discolors the skin and teeth. I think that when it is all said in done there will be many more people with this. I think it establishes itself over sometimes years and then when it has it’s system established it starts to show up through the skin. I know this may sound nuts, but then again that is what most people think us sufferer’s are, but I have found that when I put the lotion on and one area it starts to come out and it appears to trigger another area to come out like it is all connected in someway. Kind of like little cities that are connected by roads. I don’t know how else to discribe it. My skin has started to feel like skin again and my energy levels increased with time in treatment. I have gone through many stages and over the period of time with treatment every layer that has come out has been different than the previous one. My discovering the swans lotion was a God send. I noticed that I didn’t get sores under my arms in the pit area. I put some deoderant on my skin to see if that was what was making the difference and suddenly a large number of fibers came to the surface. Because of the ingredience in the deoderant I didn’t want to continue to use it all over me so I did a search on the internet to see what exactly deoderant did and that was how I came up with the swans wallmart anti itch lotion. All I can say is that when I started to use the lotion it brought out a huge amount of those things all over my body which made it impossible for any doctor to deny there was an existing condition that was not in my mind. That really went a long way in actually getting a doctor to believe my sores were not comming from me having a mental problem that caused me to itch and create the sores. Thus I was able to get my doctor to start the antibiotic treatment. He did not know what it was he just knew that it was real. At least even if it isn’t completly gone I no longer have those horrible fibers and sores. I am losing weight I have my energy back I am feeling almost human again and my skin is almost back to normal. If he hadn’t taken the chance on long term antibotics and a mixture of them I can’t imagine where I would be today.

By: Smileykins

Smileykins — Sun, 02 Mar 2008 03:48:00 +0000

Whoops. I’d lost my internet connection at the time I’d posted, and didn’t think the original post made it. Therefore, I rewrote my comment. Sorry.

By: Smileykins

Smileykins — Sun, 02 Mar 2008 03:43:26 +0000

Hi, Linda. You’ve asked:

has anyone else had this?

and:

I used to think that with all the things comming out all over I was getting better. Now it is more like an endless supply is comming out everyday with no end in sight. I would really like to know if anyone else has progressed to this stage.

Yeah, I progressed to that (and beyond) back in ‘02 after my skin was so dry it was just like cellophane. Dehydration kicked it all off. I’m extremely proud to be alive.

We’ve recently had very cold weather where I live and I developed some dry skin on my face due to heating our home. It’s been sort of flaky in a few tiny patches and after I’ve washed my face, there’s little rolled up balls that resemble tiny cocoons, on the washcloth. I don’t like when that happens, but it’s just fine now. Dead skin has to be gently exfoliated when we bathe, or it will continue to build up in layers of dull, unhealthy, skin. There are a variety of superficial and underlying conditions that can interfere with our skin’s normal sloughing process. Dry skin is so irritating and itchy for people as well as for pets.

If you care to read what happened to me in ‘02, you can click on my name, “Smileykins”. It may be difficult to follow, but I’ll answer anything you might want to know about it, in the comments’ section.

What type of treatment has your doctor given you over the past two years for “morgellons disease”? Since you’ve posted underneath this topic, am I correct in assuming antibiotics, and are you through with a two year treatment, or continuing them?

Thanks, Smileykins

By: Smileykins

Smileykins — Sun, 02 Mar 2008 03:20:35 +0000

Hi, Linda. You’ve asked:

has anyone else had this?

and:

I used to think that with all the things comming out all over I was getting better. Now it is more like an endless supply is comming out everyday with no end in sight. I would really like to know if anyone else has progressed to this stage.

We’ve recently had very cold weather where I live and I developed some dry skin on my face due to heating our home. It’s been sort of flaky in a few tiny patches and after I’ve washed my face, there’s little rolled up balls that resemble tiny cocoons, on the washcloth. I don’t like when that happens, but it’s fine now. Dead skin has to be gently exfoliated when we bathe, or it will continue to build up in layers of dull, unhealthy, skin. There are a variety of superficial and underlying conditions that can interfere with our skin’s normal sloughing process. Dry skin is so irritating and itchy for some people. What type of treatment has your doctor given you over the past two years for morgellons disease?

By: Linda

Linda — Fri, 29 Feb 2008 18:42:33 +0000

If you are a fellow sufferer, the swan clear anti itch lotion from wall mart was a God send. The first application brings it up to the surface the second one when you rub it helps it to come out. I took a bottle of it to my doctors office with me when I was first trying to convince him I had morgelleons, I applied it in his office and when he saw all the fibers that popped out of my skin for himself, first he said it was grossing him out then he said he wouldn’t have believed it if he hadn’t seen it for himself. Then he started treating me because he knew it wasn’t just in my mind. Hope this helps you.

By: Linda

Linda — Fri, 29 Feb 2008 18:34:21 +0000

I have been under a doctors treatment for 2 years for morgelleons. The sores have long since passed, and so have the fibers. For months I have had soft white things comming out of every place on my body. Even my teeth. has anyone else had this? When you apply swan clear anti itch lotion, (wall marts generic of the poison ivy lotion) to the skin, originally it would make all the fibers come up to the surface now it pops out the soft white things kind of like little balls sometimes they have a blue center. I used to think that with all the things comming out all over I was getting better. Now it is more like an endless supply is comming out everyday with no end in sight. I would really like to know if anyone else has progressed to this stage. There is no longer any way any one can say it is all in my mind. There is a body of evidence every day.

By: sandra

sandra — Sat, 23 Feb 2008 19:47:08 +0000

it just hurts my feelings when we suffer so much and theres no real support on this sight its like a place to play ,if somone out there knows what its like to have crawling on you ,sincerily i would like to talk to you.because we are not just for conversation pieces we want to be able to finish out our lives like were supposed to .this is not normal . maybe somone gave their self this name i am new to this sight and some of the things that are said on here are very very disturbing and those people need to find somthing else to do with their time…….

By: sarahbionedunn

sarahbionedunn — Thu, 21 Feb 2008 16:23:38 +0000

Sandra says in part: “ALL I KNOW IS IT ERKS ME THAT SOMEONE WILL GET ON HERE AND TALK ABOUT US AS MORGIES”

I find “Morgies” is a term that people who allege they have Morgellons call themselves. I was unaware that it was a term solely for internal use amongst the community. Correct me if I’m wrong.

By: sandra

sandra — Thu, 21 Feb 2008 01:47:06 +0000

the antibotics helped my symptoms to a degree,it helped the lyme disease that i got i guess from the banana i ate 9 mths ago since its not a B U G.OH YEAH NOT TO MENTION ROCKY MT SPOTTED FEVER, MUST A GOT THAT FROM EXERCISING YEAH THATS IT.