Comments on: Why California?

By: Seanette

Seanette — Wed, 03 Sep 2008 11:48:06 +0000

I’m not a psychiatrist or any other type of medical professional, nor do I claim to be. I’m a reasonably well-informed layperson. What I’ve read about depression (which does not come from any anti-psychiatry sources such as Morgellons support groups, Scientology, or others that insist that mental health professionals are out to deliberately harm patients) suggests that both heredity and environment are involved, the relative importance of each varying from patient to patient, which does make sense to me. The known fact that a lot of depression patients are helped by medication does strongly indicate that by whichever cause, the depression patient’s neuro-chemistry is abnormal and in many cases can be corrected if the patient is willing to seek help rather than cry “I’m a victim!” constantly.

By: Seanette

Seanette — Sun, 31 Aug 2008 02:03:12 +0000

You’d have to convince me this is a real disease (which hasn’t happened) before I’ll believe someone claiming to have it, and you’re going to have to show me some actual evidence on this mysteriously sentient “mycoplasma” before I’ll agree that it even exists. As for antidepressants and CFS, I’m quite sure you can find some actual science on this one, I’m going on statements from CFS patients who’ve been helped by this (and depression can affect energy levels, as I can testify, being depressive myself).

And about someone choosing to play the victim? Happens all the time. If you’re the poor helpless victim, you get attention and sympathy, people don’t expect much from you, and you can probably sucker someone into taking care of you. Some think this is a good deal. Those with a little something called “self-respect” do not.

By: Gillian

Gillian — Mon, 25 Aug 2008 09:01:32 +0000

I have a great deal of trouble getting my head around factitious disorders. What a waste of life it would be to play the role of victim. Human beings are not “made” this way. I am convinced these people are ill, not attention seeking. An underlying physical disease untreated could cause unusual behaviour ie. your patient deliberately excerbating symptoms.

Why would you treat fatigue with an antidepressant, which is for the treatment of depression? I guess it shuts the patient up, alters their brain, thus allowing the causative agent responsible for CFS (and many other diseases) to move onto other cells in the body resulting in a disabling disease.

Mycoplasma has out smarted the anti depressants & anti pyschotics on the market resulting in a new epidemic of once known to be “rare” diseases such as Delusions of Parasitosis. As well as the emergence of Body Dysmorphic Disorder & Morgellons Disease.

To disbelieve a person who has symptoms of Morgellons Disease is just the ticket required for this condition to proliferate. Not nice hey?

By: Seanette

Seanette — Fri, 22 Aug 2008 14:51:15 +0000

And we have just invoked Godwin’s Law. I know from experience with a self-professed CFS patient (who refuses to even try at least one demonstratedly helpful treatment because it involves anti-depressants, and who has been known to self-induce or deliberately exacerbate symptoms) that when the only argument someone with a factitious disorder can produce is ad hominem hysteria against anyone who dares ask for actual evidence, that person has a lot riding on his/her “sufferer” status and is highly invested in playing the role of victim.

By: silvergirl

silvergirl — Wed, 20 Aug 2008 22:12:47 +0000

this is real. i was living a normal healty life before i got this. how can anyone deny the legions that are right in front of your face. people are suffering and i don’t what it is or how i got this, but it is real and it is a living hell. hearing people who don’t have this–deny this, is like the people who were in denial when Hitler was killing people. you are not helping when you even dare to say that those who suffer from this are delusional. i hope they figure this out for the sake of those who have this and not for those who have doubts that this is real.

By: Smileykins

Smileykins — Fri, 30 Nov 2007 23:30:43 +0000

Hi, Randy. Concerning the hurthle cells that had been found in your thyroid, how are you treating that condition?

_______________________________________________

I think the Morgellons-Disease-Research’s Morgellons Poll is very assistive towards understanding what “morgellons disease patients” have in common.

http://www.morgellons-disease-research.com/Morgellons-Message-Board/index.php?topic=174.0

Please note the participants’ answers to questions numbers 15, 17, ad 24…

15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).
17. Any medications you have taken or are taking?
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP – delusional parasitosis)?

By: Michael

Michael — Fri, 30 Nov 2007 17:13:12 +0000

Hi Randy. Actually there is no money being specifically earmarked. It’s just a general encouragement for the CDC to hurry up and figure it out. I certainly wish they would too, so I’m all for it. You know there are a lot of members on that committee, and they can stick anything they want in there. There is usually a lot of pork, but also lobbyists can be satisfied with just some extra language sometimes. Probably just more good work by pez (advocacy@morgellons.org)

Nobody denies that “Morgellons” exists, the disagreement is to WHAT Morgellons is. Is there evidence that it is a distinct disease? Is there evidence about the fibers? Is there enough evidence for the CDC to investigate?

I have mixed feelings about the CDC investigation. On the one hand it’s great that some real science will be brought to bear on the subject. But on the other, it’s sad that that it’s being done on the basis of a PR campaign, at the expense of other public health issues. It’s also a problem that it’s taking so long, as even if it comes out that Morgellon is just a mixture of existing diseases, and the fibers are a mistaken component, the validation provided by the CDC involvement is causing people to make poor health care decisions, like taking fish antibiotics and horse de-wormers.

Lots of things are not delusional. Morgellons is not a delusion – it’s a lot more complex than that. I wrote a post about that.

http://morgellonswatch.com/2007/06/26/morgellons-is-not-a-delusion/

By: Randy Yaskal

Randy Yaskal — Fri, 30 Nov 2007 08:15:21 +0000

Subject: MORGELLONS MENTIONED IN THE 2008 US SENATE APPROPRIATIONS BILL!

Click here: http://www.earmarks.omb.gov/resources/tracking_pdfs/senate_floor_account_LA.009.38.0511.pdf

Page 76 to 77

We are now offically in front of Congress with money being ear-marked to support research via the CDC–so is this delusional too?

Get down off your Morgellonswatch horse and finally admit you are wrong.

Thanks you.

By: Michael

Michael — Thu, 22 Nov 2007 18:34:19 +0000

911, it’s certainly related. If you do a google search for “dismissed as psychological”, you get Morgellons, but you also get these two links:

http://news.bbc.co.uk/1/hi/health/6914492.stm

http://www.timesonline.co.uk/tol/news/uk/article565208.ece

It’s a similar situation: people with MUPS fixate on a particular cause, with no evidence. Advocacy groups spin science to the media. The second article is a ridiculous spin, if you read the actual report they are referring to:

http://www.hpa.org.uk/hpa/news/articles/press_releases/2005/051103_electrical_sensitivity.htm

By: 911

911 — Thu, 22 Nov 2007 17:38:56 +0000

Anyone still read lymebusters? Thought this was interesting discussion for some reason:

http://lymebusters.proboards39.com/index.cgi?board=rash&action=display&thread=1195613417