Comments on: Morgellons Recap, for the CDC http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/ Resources for Morgellons investigators. Skeptical analysis and discussion. Sat, 21 Feb 2009 17:10:26 -0800 http://wordpress.org/?v=2.8.5 hourly 1 By: lp http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/comment-page-2/#comment-21049 lp Fri, 09 May 2008 05:43:01 +0000 http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/#comment-21049 If you remember the inside edition video ,the fibres were coming out like a snake in a basket listening to the flute. To me it looked like static electricity fibres from the air. I not even sure how inside edition was able to get through that and why they would even do a story like that , If that was actually happening the last place you would be was to show it off , you would be quarantined forever if it was like that .My wife has been to a derm. dr. at a major teaching hospital in major city this week. He said to her that he never heard of that desease and that she was wasting his time. The cure for her, was Ziprexa .And it was almost immediate, her family dr. is just not taking any chances that she might have somehting else that is why she is going to different drs. I have never told her what I think about this ,because of the state she is in as with all the other people in situation and I do think it has to be handled tactfully and with some understanding drs. to guide them through the process of elimiation. I find most of these people are trying to be sick instead of listening to dr. and saying there is nothing there, that is the problem with this ,it gets in their mind and takes control ,nothing else excists except this desease ,and gets worse as time goes on ,.On the one website I visit there is a new person (usually a few a week now) and the whole family has it ,they were told it is scabies but they are on the website feeling comfort with the rest of them. I find that these ones with acess to internet are worse off and that this particular person should have the state step in and take kids away before it gets even worse. In the states ,i guess you have to pay for drs. visits as opposed to canada ,maybe that is why it is worse down there as they will surf for answers and go from there. If you remember the inside edition video ,the fibres were coming out like a snake in a basket listening to the flute. To me it looked like static electricity fibres from the air. I not even sure how inside edition was able to get through that and why they would even do a story like that , If that was actually happening the last place you would be was to show it off , you would be quarantined forever if it was like that .My wife has been to a derm. dr. at a major teaching hospital in major city this week. He said to her that he never heard of that desease and that she was wasting his time. The cure for her, was Ziprexa .And it was almost immediate, her family dr. is just not taking any chances that she might have somehting else that is why she is going to different drs. I have never told her what I think about this ,because of the state she is in as with all the other people in situation and I do think it has to be handled tactfully and with some understanding drs. to guide them through the process of elimiation. I find most of these people are trying to be sick instead of listening to dr. and saying there is nothing there, that is the problem with this ,it gets in their mind and takes control ,nothing else excists except this desease ,and gets worse as time goes on ,.On the one website I visit there is a new person (usually a few a week now) and the whole family has it ,they were told it is scabies but they are on the website feeling comfort with the rest of them. I find that these ones with acess to internet are worse off and that this particular person should have the state step in and take kids away before it gets even worse. In the states ,i guess you have to pay for drs. visits as opposed to canada ,maybe that is why it is worse down there as they will surf for answers and go from there.

]]>
By: Michael http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/comment-page-2/#comment-21011 Michael Mon, 05 May 2008 18:14:31 +0000 http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/#comment-21011 No, there are many links of people SAYING they have fibers coming out of their skin - but when they are examined by a dermatologist, the doctor cannot observe what the patient is claiming. Can you point me to one video or photo on the web that actually shows fibers coming from the skin? Can you find ONE dermatologist who claims to have seen this happening? No, all you have are patient accounts, which when examined cannot be verified. No, there are many links of people SAYING they have fibers coming out of their skin – but when they are examined by a dermatologist, the doctor cannot observe what the patient is claiming.

Can you point me to one video or photo on the web that actually shows fibers coming from the skin?

Can you find ONE dermatologist who claims to have seen this happening?

No, all you have are patient accounts, which when examined cannot be verified.

]]>
By: JimT http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/comment-page-2/#comment-21006 JimT Mon, 05 May 2008 11:25:18 +0000 http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/#comment-21006 You've got to be kidding. There are links, references, photos and videos everywhere. But when you by definition deny their validity by saying they are meaningless because Morgellons cannot exist, there is nothing anyone can do to convince you. You engage in nothing but armchair analysis, which leads you to wrong conclusions. You say what people are finding is fibers stuck ON normal skin or stuck in exudate. This is a classic example of what I referred to before, that you ignore statements that contradict what you want to believe and accept those that confirm your position. There are copious examples across the internet of people who have fibers coming out of unbroken skin. I see in your responses you ignore the major points I am trying to make, that you decry the validity of anecdotal evidence when it comes from a Morgellan claimant, but you rely on the same caliber of evidence to form your own conclusions. This is the hallmark of bias. I've said all I have to say on this subject. You’ve got to be kidding. There are links, references, photos and videos everywhere. But when you by definition deny their validity by saying they are meaningless because Morgellons cannot exist, there is nothing anyone can do to convince you.

You engage in nothing but armchair analysis, which leads you to wrong conclusions. You say what people are finding is fibers stuck ON normal skin or stuck in exudate. This is a classic example of what I referred to before, that you ignore statements that contradict what you want to believe and accept those that confirm your position. There are copious examples across the internet of people who have fibers coming out of unbroken skin.

I see in your responses you ignore the major points I am trying to make, that you decry the validity of anecdotal evidence when it comes from a Morgellan claimant, but you rely on the same caliber of evidence to form your own conclusions. This is the hallmark of bias.

I’ve said all I have to say on this subject.

]]>
By: Michael http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/comment-page-2/#comment-21002 Michael Mon, 05 May 2008 04:03:52 +0000 http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/#comment-21002 I don't think that embedded fibers in the skin is common. In fact I think it hardly ever happens, and what people are finding is either fibers suck on normal skin (as anyone will find) or fibers stuck in <a href="http://en.wikipedia.org/wiki/Exudate" rel="nofollow">exudate</a>. I think this because nobody has ever presented evidence of fibers emerging from skin - no photos, no videos, no sections of biopsies. You can't present a theory with no evidence, and then ask for evidence from those who question the theory. I ask you directly, JimT, what is the evidence that backs your theory? Links, references, photos or videos. Any evidence would do. I don't require you to jump through high hoops - you have set that requirement yourself. I don’t think that embedded fibers in the skin is common.

In fact I think it hardly ever happens, and what people are finding is either fibers suck on normal skin (as anyone will find) or fibers stuck in exudate.

I think this because nobody has ever presented evidence of fibers emerging from skin – no photos, no videos, no sections of biopsies.

You can’t present a theory with no evidence, and then ask for evidence from those who question the theory.

I ask you directly, JimT, what is the evidence that backs your theory? Links, references, photos or videos. Any evidence would do. I don’t require you to jump through high hoops – you have set that requirement yourself.

]]>
By: JimT http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/comment-page-2/#comment-21000 JimT Sun, 04 May 2008 21:56:14 +0000 http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/#comment-21000 Your so-called "20 examinations" is the very point that is being debated. So until that debate is resolved you can't use it as your defense. If those 20 doctors never heard of Morgellons, don't be surprised none gave that diagnosis. What is being debated is the nature of the examination. These people are calling for that process to be re-evaluated. If an examination consists of people reciting their symptoms and the doctor replies with a memorized diagnosis, does that qualify as a valid examination? It is not unreasonable for people to expect a doctor to examine the physical evidence, and for that examination to consist of more than just a look. Heck, I'd go to a hundred doctors if the ointments and creams from the first 99 didn't work. There's nothing wrong with that, Michael. You're either missing or avoiding my point completely. You have raised very good points that people who claim to have Morgellons need to respond to. What I find wrong with your site is you do not hold the debunkers to those same standards. When someone says he examined a patient and saw textile fibers, you should question that. These are the anecdotal reports I am referring to, Michael, that you do not hold to the same critical requirements that you do Morgellons claimants. How does the doctor know it was textile? What process did he go through to determine that? Did he send it to the CDC? Did he even look at it under a microscope? I have noticed it is typical of so-called debunkers to concoct bizarre explanations -- anything at all, just so they can say they said some words, to explain things. You say that the fibers coming out of people's skin are embedded textile fibers. Have you ever tried to insert a piece of lint into your unbroken skin? It's like pushing a string. You have said on this site that embedded fibers in a person's skin is common. I challenge you to defend that statement. I personally know that I do not have even one fiber coming out of my skin. I have occasionally gotten a few fiberglass fibers in my skin when working with insulation, but they go away after bathing. But pulling environmental fibers out of skin on a continual basis, even in places such as the inside of one's mouth where something like that might happen once or twice in a lifetime, on a continual basis?? Is there never a point at which you finally say "Yeah, that's freaky unlikely. It deserves a thorough investigation." Frankly, it takes more faith for me to believe that thousands of these people are totally stupid enough not to know what they observe than it does for me to think it is caused by a disease. You require those who claim Morgellons to jump through very high hoops, but those who support your claim can say anything they want without question. Your so-called “20 examinations” is the very point that is being debated. So until that debate is resolved you can’t use it as your defense. If those 20 doctors never heard of Morgellons, don’t be surprised none gave that diagnosis. What is being debated is the nature of the examination. These people are calling for that process to be re-evaluated. If an examination consists of people reciting their symptoms and the doctor replies with a memorized diagnosis, does that qualify as a valid examination? It is not unreasonable for people to expect a doctor to examine the physical evidence, and for that examination to consist of more than just a look. Heck, I’d go to a hundred doctors if the ointments and creams from the first 99 didn’t work. There’s nothing wrong with that, Michael.

You’re either missing or avoiding my point completely. You have raised very good points that people who claim to have Morgellons need to respond to. What I find wrong with your site is you do not hold the debunkers to those same standards. When someone says he examined a patient and saw textile fibers, you should question that. These are the anecdotal reports I am referring to, Michael, that you do not hold to the same critical requirements that you do Morgellons claimants. How does the doctor know it was textile? What process did he go through to determine that? Did he send it to the CDC? Did he even look at it under a microscope?

I have noticed it is typical of so-called debunkers to concoct bizarre explanations — anything at all, just so they can say they said some words, to explain things. You say that the fibers coming out of people’s skin are embedded textile fibers. Have you ever tried to insert a piece of lint into your unbroken skin? It’s like pushing a string. You have said on this site that embedded fibers in a person’s skin is common. I challenge you to defend that statement. I personally know that I do not have even one fiber coming out of my skin. I have occasionally gotten a few fiberglass fibers in my skin when working with insulation, but they go away after bathing. But pulling environmental fibers out of skin on a continual basis, even in places such as the inside of one’s mouth where something like that might happen once or twice in a lifetime, on a continual basis?? Is there never a point at which you finally say “Yeah, that’s freaky unlikely. It deserves a thorough investigation.” Frankly, it takes more faith for me to believe that thousands of these people are totally stupid enough not to know what they observe than it does for me to think it is caused by a disease.

You require those who claim Morgellons to jump through very high hoops, but those who support your claim can say anything they want without question.

]]>
By: Michael http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/comment-page-2/#comment-20999 Michael Sun, 04 May 2008 18:37:46 +0000 http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/#comment-20999 Jim, it's precisely because the evidence is anecdotal that I hold the opinions I do. There is no convincing evidence to suggest Morgellons is a distinct disease - it's ALL anecdotal. Even the "thousands of people who claim to have this disease" is suspect - based simply on people who registered at the MRF site, and not actually people who made a claim to have the disease. The original MRF case definition says: <blockquote>Most patients will have sought care from <b>multiple medical care providers</b>. A large number will have been diagnosed with Delusional Parasitosis likely because of the juxtaposition of unexplained skin lesions and sensations and psychiatric overlay.</blockquote> http://web.archive.org/web/20060926014910/morgellons.org/casedef.html Anecdotes: <blockquote> NOTHING compares to the physical pain that comes along with Morgellons, except for the emotional and, yes, MENTAL PAIN of knowing not one of the 30 doctors that have seen me can give me an answer as to what, how, why, when or how long this will remain!</blockquote> <blockquote> I have been to 20 to 30 doctors. They do not believe me or that my skin texture has changed.</blockquote> http://www.kcet.org/lifeandtimes/blog/?p=131 <blockquote> I'm a 51 yr.old fem. had this condition since May, 2003. After 3 Primary Care physicians, 13 dermatologists, I have been to hell and back.</blockquote> http://curezone.com/forums/fm.asp?i=347035 <blockquote>Dear Sir or Madam: I have been suffering with severe Morgellons disease symptoms since at least January, 2006. I have been to see 17 different physicians (allergist, immunologist, infectious disease, MD's, DO's, rheumatologist, endocrinologists, etc.)</blockquote> http://www.ipetitions.com/petition/Morgellons_Congress_CDC/signatures-30.html You can quibble over the numbers - but the central point remains that these people have been examined by several doctors who are far better qualified than I am. Hence it would not change anything for me to examine them. Jim, it’s precisely because the evidence is anecdotal that I hold the opinions I do. There is no convincing evidence to suggest Morgellons is a distinct disease – it’s ALL anecdotal.

Even the “thousands of people who claim to have this disease” is suspect – based simply on people who registered at the MRF site, and not actually people who made a claim to have the disease.

The original MRF case definition says:

Most patients will have sought care from multiple medical care providers. A large number will have been diagnosed with Delusional Parasitosis likely because of the juxtaposition of unexplained skin lesions and sensations and psychiatric overlay.

http://web.archive.org/web/20060926014910/morgellons.org/casedef.html

Anecdotes:

NOTHING compares to the physical pain that comes along with Morgellons, except for the emotional and, yes, MENTAL PAIN of knowing not one of the 30 doctors that have seen me can give me an answer as to what, how, why, when or how long this will remain!

I have been to 20 to 30 doctors. They do not believe me or that my skin texture has changed.

http://www.kcet.org/lifeandtimes/blog/?p=131

I’m a 51 yr.old fem. had this condition since May,
2003. After 3 Primary Care physicians, 13 dermatologists, I have been to hell and back.

http://curezone.com/forums/fm.asp?i=347035

Dear Sir or Madam: I have been suffering with severe Morgellons disease symptoms since at least January, 2006. I have been to see 17 different physicians (allergist, immunologist, infectious disease, MD’s, DO’s, rheumatologist, endocrinologists, etc.)

http://www.ipetitions.com/petition/Morgellons_Congress_CDC/signatures-30.html

You can quibble over the numbers – but the central point remains that these people have been examined by several doctors who are far better qualified than I am. Hence it would not change anything for me to examine them.

]]>
By: JimT http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/comment-page-2/#comment-20997 JimT Sun, 04 May 2008 15:53:46 +0000 http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/#comment-20997 You do not know for a fact that most of the thousands of people who claim to have this disease have been to 10-20 doctors. That is a strawman. It is another example of the irony, which you do not seem to grasp, that you are guilty of exactly what you accuse others of doing. You form conclusions based on bits and pieces you have gathered from the internet, from tv reports, and other eye-witness accounts. You have nothing but anecdotal evidence, from which you pick and choose the elements you present as credible. You do not know for a fact that most of the thousands of people who claim to have this disease have been to 10-20 doctors. That is a strawman. It is another example of the irony, which you do not seem to grasp, that you are guilty of exactly what you accuse others of doing. You form conclusions based on bits and pieces you have gathered from the internet, from tv reports, and other eye-witness accounts. You have nothing but anecdotal evidence, from which you pick and choose the elements you present as credible.

]]>
By: Michael http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/comment-page-2/#comment-20992 Michael Sun, 04 May 2008 01:04:45 +0000 http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/#comment-20992 I'm basing it on the evidence presented. Most people with Morgellons claim to have been to 10-20 doctors who have examined them, and told them the fibers are not coming out of their skin. Eventually they find a doctor who will say that they are. However, these doctors refuse to present ANY verifiable evidence that this is happening, and at the same time give their new patients very expensive treatments for a condition that most doctors think is not a distinct disease. Hence the patients do not have their actual conditions treated. If 20 doctors have examined a patient, then why would it change things if I examined them? I’m basing it on the evidence presented. Most people with Morgellons claim to have been to 10-20 doctors who have examined them, and told them the fibers are not coming out of their skin. Eventually they find a doctor who will say that they are. However, these doctors refuse to present ANY verifiable evidence that this is happening, and at the same time give their new patients very expensive treatments for a condition that most doctors think is not a distinct disease. Hence the patients do not have their actual conditions treated.

If 20 doctors have examined a patient, then why would it change things if I examined them?

]]>
By: JimT http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/comment-page-2/#comment-20988 JimT Sat, 03 May 2008 15:39:36 +0000 http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/#comment-20988 But you've never actually examined anyone with the condition, right? You say Morgellons sufferers are "self-reporting" their symptoms, but you've never confirmed it yourself. All you do is deny it is possible. That is what I find ironic about this site. You keep talking about how you represent the scientific view of this phenomenon, but yet the cornerstone of science is observation and examination, the two fundamental things you have never done. While you might find comfort in saying "it ain't so," you're only convincing yourselves. If your goal is to really convince somebody who is watching these things come out of their bodies, you might actually want to see it for yourself. Then you'd have grounds for expecting people to respect your opinion. But you’ve never actually examined anyone with the condition, right? You say Morgellons sufferers are “self-reporting” their symptoms, but you’ve never confirmed it yourself. All you do is deny it is possible. That is what I find ironic about this site. You keep talking about how you represent the scientific view of this phenomenon, but yet the cornerstone of science is observation and examination, the two fundamental things you have never done.

While you might find comfort in saying “it ain’t so,” you’re only convincing yourselves. If your goal is to really convince somebody who is watching these things come out of their bodies, you might actually want to see it for yourself. Then you’d have grounds for expecting people to respect your opinion.

]]>
By: Michael http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/comment-page-2/#comment-20986 Michael Sat, 03 May 2008 14:42:07 +0000 http://morgellonswatch.com/2008/01/16/morgellons-recap-for-the-cdc/#comment-20986 I think that the fibers are generally environmental fibers and/or hairs. Nobody has ever show any convincing evidence of fibers "erupting" from unbroken skin - it's an entirely self-reported symptom. I think that the fibers are generally environmental fibers and/or hairs. Nobody has ever show any convincing evidence of fibers “erupting” from unbroken skin – it’s an entirely self-reported symptom.

]]>