Comments on: Does this family have Morgellons? http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/ Resources for Morgellons investigators. Skeptical analysis and discussion. Tue, 31 Jan 2012 15:20:43 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Gillian http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-21998 Gillian Tue, 02 Sep 2008 06:39:29 +0000 http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-21998 I agree with you Pongo, it doesn't help to label people crazy. Let's hope that the "Morgellons Movement" can bring about change so we can bury the hatchet on the crazy label. <blockquote>Pongo said: However, there are thousands of clearly defined devastating disorders, diseases that cause consequences orders of magnitude worse than what Morgellon’s patients face, that desperately need the attention of the scientific community.</blockquote> I have to disagree with you strongly Pongo on your comment here. I believe human suffering should never be measured, suffering is simple that - "SUFFERING". Whether you have Morgellons, an ingrown toe nail, cancer, or schizophrenia, pain is pain. Besides we haven't learnt all there is to learn yet about Morgellons, so we have no idea what we face. Mind you I really feel the greater community have a lot to gain & learn from anyone who has been diagnosed with "Mental Illness". Look on the bright side, the "Morgellons Movement" could save one of your kids in the future from losing the life they thought they had. Morgies wouldn't make noise unless they felt it justified. I agree with you Pongo, it doesn’t help to label people crazy. Let’s hope that the “Morgellons Movement” can bring about change so we can bury the hatchet on the crazy label.

Pongo said: However, there are thousands of clearly defined devastating disorders, diseases that cause consequences orders of magnitude worse than what Morgellon’s patients face, that desperately need the attention of the scientific community.

I have to disagree with you strongly Pongo on your comment here. I believe human suffering should never be measured, suffering is simple that – “SUFFERING”. Whether you have Morgellons, an ingrown toe nail, cancer, or schizophrenia, pain is pain. Besides we haven’t learnt all there is to learn yet about Morgellons, so we have no idea what we face. Mind you I really feel the greater community have a lot to gain & learn from anyone who has been diagnosed with “Mental Illness”.

Look on the bright side, the “Morgellons Movement” could save one of your kids in the future from losing the life they thought they had. Morgies wouldn’t make noise unless they felt it justified.

]]> By: Pongo http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-21969 Pongo Sun, 31 Aug 2008 20:03:18 +0000 http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-21969 I agree that it doesn't help to label people crazy. It also doesn't help to feed their delusions or personality disorders just to pacify them. I hope the CDC is taking the right approach with this, because frankly it ticks me off just a bit that incredibly precious and dwindling resources are being devoted to this simply because of the "squeaky wheel" phenomonen created by a large group of self-diagnosed sufferers--especially since many of them have been unwilling to even try the therapy recommended for DOP. If it turns out there's something here, that information will be very helpful and Morgellon's sufferers will have been vindicated. It has happened before. However, there are thousands of clearly defined devastating disorders, diseases that cause consequences orders of magnitude worse than what Morgellon's patients face, that desperately need the attention of the scientific community. If this all turns out to be DOP, it is unconscionable for money to be diverted to appease the delusions of a group of people unwilling to accept reality. I agree that it doesn’t help to label people crazy. It also doesn’t help to feed their delusions or personality disorders just to pacify them. I hope the CDC is taking the right approach with this, because frankly it ticks me off just a bit that incredibly precious and dwindling resources are being devoted to this simply because of the “squeaky wheel” phenomonen created by a large group of self-diagnosed sufferers–especially since many of them have been unwilling to even try the therapy recommended for DOP. If it turns out there’s something here, that information will be very helpful and Morgellon’s sufferers will have been vindicated. It has happened before. However, there are thousands of clearly defined devastating disorders, diseases that cause consequences orders of magnitude worse than what Morgellon’s patients face, that desperately need the attention of the scientific community. If this all turns out to be DOP, it is unconscionable for money to be diverted to appease the delusions of a group of people unwilling to accept reality.

]]> By: Tsu Dho Nimh http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20959 Tsu Dho Nimh Tue, 29 Apr 2008 21:43:17 +0000 http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20959 Sarah ... you said, "<I>Does someone need to call this family and tell them that indeed, it is a worm-like creature that spawned from a genetic mutation by evil scientists</I>?" Read the rest of cockeyed.com and you will learn that Rob is an evil scientist. He would be delighted to have mutant nanotech worms infesting his eyelashes. Sarah … you said, “Does someone need to call this family and tell them that indeed, it is a worm-like creature that spawned from a genetic mutation by evil scientists?”

Read the rest of cockeyed.com and you will learn that Rob is an evil scientist.

He would be delighted to have mutant nanotech worms infesting his eyelashes.

]]> By: Maribeth Noxon http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20958 Maribeth Noxon Tue, 29 Apr 2008 16:47:47 +0000 http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20958 Dear All you All, I am a Nurse Practitioner. I also have the disease that is called Morgellons. I know exactly HOW, exactly WHEN, and because of the research I have been able to do, I now know exactly WHAT the causative organism is. This theory, I believe to be right-on! Or, pretty darn close, close enough, that for all our sakes, NEEDS to be seriously looked at. The research I've done is basically first-hand experienced, and first-person recorded. It is based on an ongoing signs and symptoms as seen by a well seasoned clinitian, from the initial exposure accident (and surrounding circumstances), to my now, declining health. It includes all environmental evidence that mirrors my physical evidence. This also includes incidental information as in personal lab results, and a convincing Spore Analysis completed by a professional company (67%Asp/Pcn in basement as compared to 5.3% out doors, same day). We have a small fruit orchard which has given tons of environmental information. All of this information being gathered since a known exposure accident. This accidental exposure to the disease "Morgellons" was due to the use of a shop vac (unfiltered) on Nasty, suspicious carpets of a newly purchased, older home. These carpets were causing "weird" stinging sensations. That was nothing compared to the all over stinging of fine particals of dust/lint-like black dots and different lengths of "baby eyelash" strands that thickly floated in the air from our shop vac. This "stuff" would burn into your skin, and you could not remove it. Asthma-like difficult breathing and coughing, plus extreme hypotensive feeling, sent us running from our home. Me to urgent care. The environmental specialists to determine our safe return(?) were called to do testing. Small ulcerative sores slowly surfaced from the places on my skin previously burned by the airborne contaminates. So, now with all this unproven (by Scientific Methodology) gathered information, I believe I have connected some formidable "Dots". I work on the fear of speaking out. But, the need to speak now, is becoming stronger. Morgellon's is an INFECTION, due to the COLONIZATION by contact of a Biocontrol organism. I strongly, without a doubt feel it is a Rouge Molecularly Altered by DNA transfer of coding for BT Toxin (from agrobacterium)!!!!!!FUNGAL Organism, specifically: ASPERGILLUS FLAVUS 36 This biocontrol organism was used by Agriculture to displace Aspergillus Flavus. It was used in conjunction with BT Cotton The seed of this cotton genetically alstered with the same BT Toxin. This seed has the ability to burn its way into better germination sites. BT Toxin DNA transfers across Kingdoms, and Back, potentially. ASPERGILLUS FLAVUS 36 is dominant over Aspergillus Flavus (which produces Aflatoxin and revunue loss for crops in the market), ASPERGILLUS FLAVUS 36 DOES NOT. It has been used extensively, especially by air dropping, all over the United States. It has been given exemption from studies for human health or ecological effects. It has been successful, though, for decreased levels of Aflatoxin at the market. Aspergillus is a normal soil organism. Aspergillus Flavus is known as the "Dust" fungus and a known pathogen to humans. It infects the largest numbers of insects and may have a "Vector" relationship with many. ie, Ticks! (making the connection with Lyme's Disease). The only message I have to give from all of this is a direction of focus for our Research, and if you know you have Morgellons or suspect you do, seek Lab testing specific to Aspergillus Favus from your Healthcare Provider. It needs to be very specific to antigens of or the DNA of Aspergillus Flavus. I will gladly send by e-mail, my research paper to anyone who asks. Hoping for answers, and from my heart, Maribeth Dear All you All,
I am a Nurse Practitioner. I also have the disease that is called Morgellons. I know exactly HOW, exactly WHEN, and because of the research I have been able to do, I
now know exactly WHAT the causative organism is. This theory, I believe to be
right-on! Or, pretty darn close, close enough, that for all our sakes, NEEDS to be seriously looked at.
The research I’ve done is basically first-hand experienced, and first-person recorded.
It is based on an ongoing signs and symptoms as seen by a well seasoned clinitian,
from the initial exposure accident (and surrounding circumstances), to my now, declining health. It includes all environmental evidence that mirrors my physical evidence. This also includes incidental information as in personal lab results, and a convincing Spore Analysis completed by a professional company (67%Asp/Pcn in basement as compared to 5.3% out doors, same day). We have a small fruit orchard
which has given tons of environmental information. All of this information being gathered since a known exposure accident. This accidental exposure to the disease
“Morgellons” was due to the use of a shop vac (unfiltered) on Nasty, suspicious carpets of a newly purchased, older home. These carpets were causing “weird”
stinging sensations. That was nothing compared to the all over stinging of fine particals of dust/lint-like black dots and different lengths of “baby eyelash” strands
that thickly floated in the air from our shop vac. This “stuff” would burn into your skin, and you could not remove it. Asthma-like difficult breathing and coughing, plus extreme hypotensive feeling, sent us running from our home. Me to urgent care. The environmental specialists to determine our safe return(?) were called to do testing. Small ulcerative sores slowly surfaced from the places on my skin previously burned by the airborne contaminates.
So, now with all this unproven (by Scientific Methodology) gathered information, I believe I have connected some formidable “Dots”. I work on the fear of speaking out. But, the need to speak now, is becoming stronger.
Morgellon’s is an INFECTION, due to the COLONIZATION by contact of a Biocontrol
organism. I strongly, without a doubt feel it is a Rouge Molecularly Altered by DNA transfer of coding for BT Toxin (from agrobacterium)!!!!!!FUNGAL Organism, specifically: ASPERGILLUS FLAVUS 36
This biocontrol organism was used by Agriculture to displace Aspergillus Flavus.
It was used in conjunction with BT Cotton The seed of this cotton genetically alstered
with the same BT Toxin. This seed has the ability to burn its way into better germination sites. BT Toxin DNA transfers across Kingdoms, and Back, potentially.
ASPERGILLUS FLAVUS 36 is dominant over Aspergillus Flavus (which produces Aflatoxin and revunue loss for crops in the market), ASPERGILLUS FLAVUS 36 DOES NOT. It has been used extensively, especially by air dropping, all over the United States. It has been given exemption from studies for human health or ecological effects. It has been successful, though, for decreased levels of Aflatoxin at the market.
Aspergillus is a normal soil organism. Aspergillus Flavus is known as the “Dust” fungus and a known pathogen to humans. It infects the largest numbers of insects
and may have a “Vector” relationship with many. ie, Ticks! (making the connection with Lyme’s Disease).
The only message I have to give from all of this is a direction of focus for our Research, and if you know you have Morgellons or suspect you do, seek Lab testing specific to Aspergillus Favus from your Healthcare Provider. It needs to be very specific to antigens of or the DNA of Aspergillus Flavus.
I will gladly send by e-mail, my research paper to anyone who asks.
Hoping for answers, and from my heart, Maribeth

]]> By: Smileykins http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20899 Smileykins Sat, 19 Apr 2008 22:40:37 +0000 http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20899 As Brandi stated, due to his circumstances,TC may have had moments of clarity, but I didn't. I only knew I was very physically ill and that it affected my mind to the point that it couldn't be trusted. That's really a common occurrence among us humans. I don't think it's all that unusual for someone to realize that in themselves, either, although, I have a hunch that it may have a whole lot to do with the underlying personality of the person. Hehe, more gossip...I have a sleep disorder? As Brandi stated, due to his circumstances,TC may have had moments of clarity, but I didn’t. I only knew I was very physically ill and that it affected my mind to the point that it couldn’t be trusted. That’s really a common occurrence among us humans. I don’t think it’s all that unusual for someone to realize that in themselves, either, although, I have a hunch that it may have a whole lot to do with the underlying personality of the person.

Hehe, more gossip…I have a sleep disorder?

]]> By: tallcotton http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20897 tallcotton Sat, 19 Apr 2008 21:46:49 +0000 http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20897 Brandi, Smileykins was not, and is not, using drugs. That is false information started by Morgies. Our stories make that very clear. One of the points of our stories was the fact that two different people, worlds apart, can arrive at the place we all called Morgellons, and come there by very different routes. Mine was through drug use. Smileykin's was because of other health issues. This also applies to the other people who think they have Morgellons. A whole garden variety of conditions can cause those same symptoms, and there's no reason to believe that Morgellons is anything new, or that it is a condition that is shared by a lot of people. They merely have some of the same symptoms, and there is nothing unusual about those symptoms. Tall Cotton Brandi,

Smileykins was not, and is not, using drugs. That is false information started by Morgies. Our stories make that very clear. One of the points of our stories was the fact that two different people, worlds apart, can arrive at the place we all called Morgellons, and come there by very different routes. Mine was through drug use. Smileykin’s was because of other health issues. This also applies to the other people who think they have Morgellons. A whole garden variety of conditions can cause those same symptoms, and there’s no reason to believe that Morgellons is anything new, or that it is a condition that is shared by a lot of people. They merely have some of the same symptoms, and there is nothing unusual about those symptoms.

Tall Cotton

]]> By: Michael http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20896 Michael Sat, 19 Apr 2008 19:37:00 +0000 http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20896 Brandi, you make a lot of good points, and I think you explain your situation very well. I can understand your frustration. Nobody on the internet can really comment on this stuff coming out of your skin, without seeing a photo, or hearing it described by a dermatologist. It sounds like there is something wrong with your skin. There are thousands of known dermatological conditions, and thousands more still to be discovered. I don't really understand why you chose Morgellons in particular, or why you think other people are suffering from the exact same thing as you. I've got a question for you though - you must have been to several different dermatologists, and shown them the stuff that was coming out of your skin. They must have had some theories as to what the "stuff" was made of. They might even have had some theories as to what was causing it. My question is: what were those theories? Brandi, you make a lot of good points, and I think you explain your situation very well. I can understand your frustration.

Nobody on the internet can really comment on this stuff coming out of your skin, without seeing a photo, or hearing it described by a dermatologist. It sounds like there is something wrong with your skin. There are thousands of known dermatological conditions, and thousands more still to be discovered. I don’t really understand why you chose Morgellons in particular, or why you think other people are suffering from the exact same thing as you.

I’ve got a question for you though – you must have been to several different dermatologists, and shown them the stuff that was coming out of your skin. They must have had some theories as to what the “stuff” was made of. They might even have had some theories as to what was causing it.

My question is: what were those theories?

]]> By: brandi http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20895 brandi Sat, 19 Apr 2008 19:19:06 +0000 http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20895 OKAY-I lied... I'm back... Dave-can I email you? I need to ask you a question... OKAY-I lied… I’m back… Dave-can I email you? I need to ask you a question…

]]> By: brandi http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20894 brandi Sat, 19 Apr 2008 19:16:42 +0000 http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20894 You all want to go on about irrelevant posts... posts that are ad-hominem... PLEASE... go back and read all of your post... give me a break!!!! Not to mention, it's the SAME old same old people posting here... over & over & over & over again & again & again... ugh! In case you all haven't noticed... it seems as though people are becoming a bit bored by you all and this website in general... slowly but surely... it's losing it's appeal... slowly fading... away. You know why? BECAUSE what YOU write about proves NOTHING as well! If you have something to share with the world... why don't you wirte something VS BLOGGING... as in, an article... book... anything! I'm signing out for good!!! I have a LIFE to live! & you know what? Those of you with kids... you need to prioritize... go get some sleep--...smilelykin...rick...TC...winter, sarah...ChrisB.(love ya chris!) & all the rest of my MW buddies Take care of yourselves! I hope you all find happiness... I mean that!!! You know what they say-keep your friends close and your enemies closer! PEACE!!! You all want to go on about irrelevant posts… posts that are ad-hominem… PLEASE… go back and read all of your post… give me a break!!!!

Not to mention, it’s the SAME old same old people posting here… over & over & over & over again & again & again… ugh!

In case you all haven’t noticed… it seems as though people are becoming a bit bored by you all and this website in general… slowly but surely… it’s losing it’s appeal… slowly fading… away.

You know why? BECAUSE what YOU write about proves NOTHING as well! If you have something to share with the world… why don’t you wirte something VS BLOGGING… as in, an article… book… anything!

I’m signing out for good!!! I have a LIFE to live! & you know what? Those of you with kids… you need to prioritize… go get some sleep–…smilelykin…rick…TC…winter, sarah…ChrisB.(love ya chris!) & all the rest of my MW buddies Take care of yourselves! I hope you all find happiness… I mean that!!! You know what they say-keep your friends close and your enemies closer! PEACE!!!

]]> By: brandi http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20893 brandi Sat, 19 Apr 2008 18:13:45 +0000 http://morgellonswatch.com/2008/02/22/does-this-family-have-morgellons/#comment-20893 OH! To answer your "what does this prove?" question... that there IS indeed a need for research. MY DOCTORS are all in agreement that something is wrong yet cannot ffigure out what is going on... even my docs are annoyed as to WHY more research is not being done & that is becoming increasingly common... doctors demanding research and becoming as frustrated as we are... HOW DOES ANYTHING YOU ALL POST PROVE THAT IT DOES NOT EXIST? My post are relevant because they show the mindset of a couple individuals that need to focus on themselves VS others... Just as you all are trying to "warn" others of finding others suffering with the same symptom they are... "the Morgies" I am trying to show how unreliable some of the regular sources on this site are... I noticed that you didn't post my question in regards to Smiley's sleep disorder... OH! To answer your “what does this prove?” question… that there IS indeed a need for research.
MY DOCTORS are all in agreement that something is wrong yet cannot ffigure out what is going on… even my docs are annoyed as to WHY more research is not being done & that is becoming increasingly common… doctors demanding research and becoming as frustrated as we are…
HOW DOES ANYTHING YOU ALL POST PROVE THAT IT DOES NOT EXIST?
My post are relevant because they show the mindset of a couple individuals that need to focus on themselves VS others…
Just as you all are trying to “warn” others of finding others suffering with the same symptom they are… “the Morgies”
I am trying to show how unreliable some of the regular sources on this site are…
I noticed that you didn’t post my question in regards to Smiley’s sleep disorder…

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