Comments

I hope you’re not talking about me when you say the “brainless” Smily.

I want this whole Morgellons movement to finish. I need to hang up this keyboard and lap top for good. I was never interested in the internet you know, until I was pointed in the direction to use the damn thing. Slave labour I tell ya.

I deleted the fake comments.

I have been researching this disorder now for some time and have been fascinated, though somewhat frightened, reading all the different web sites on the internet. I commend Michael for trying to bring reality back to focus on a topic where the sufferers are obviously not able to, or refuse to accept the reality of their conditions. There are more web sites dedicated to “spreading the disease” then there are sites trying to inform the public of the real truth behind this disorder. I will definitly continue to read the posts!

I realize there is no Morgellons. That is my point. The frightening aspect of this whole disorder is the fact that others believe its real and their lack of ability to understand their own delusions. The spread of the disorder is in part due to their lack of understanding and promotions based on a delusion. Its effident in their posts…and yours.

Jandoe – ok I hear ya, besides – what is wrong with being delusional? It is not a crime.

effident, now that is lucid thinking, at its best.
Effident, mate effluent, I’m sorry.

Now for a “Forrest Gump” theory – “Life is like one big jigsaw puzzle….”

sorry I can’t remember the rest.

oops – sorry I know there is no such thing as Morgellons Disease.

Tally HO.

Al – We obviously can’t get through to Michael, a very hard head he seems to have.

Maybe you should give me a call Al. We made need to clear the slate and go back to the drawing board.

More science needed I think.

So Al, you and I are the MAD scientists. We don’t care, we are happy in our little world of insanity. Actually, “idiosyncratic” comes to mind. Maybe I should shut up before I am kidnapped and locked away.

Toodle pip.

Smileykins – you been riding that broom stick again lady?!!

Anyway on with the science –

Infinity defined:

To see the world in a grain of sand, and to see heaven in a wild flower, hold infinity in the palm of your hands, and eternity in an hour: – William Blake

See – as simple as that.

Michael – Do you intend to keep this blog site operating?

Remember you wanted to debunk Morgellons. Morgellons is not a disease as we have established, BUT…

There is one big thing that really bothers me though. Mary Leitao has been torn apart due to this internet plague, so many lies have been spread about her and her family to the point of her fearing her life and her children’s lives, death threats you name it! Is this really fair on a woman with 3 children who is now a widow, and her husband died just prior to them both trying to figure this thing out.

No it is not, and to be honest it is down right criminal. I wouldn’t be here today if it weren’t for Mary Leitao and the Morgellons Research Foundation.

Wow! what a strange bunch of people sharing some strangely ill-informed comments about Morgellons. But when in Rome……. so I shall offer my own strange comment from way down here in sunny South Africa.
I have great empathy for and some understanding of the ignorant comments made. We need the cynical and we need the critical.
We need such support! We need the narrow-minded, offensive and ill-informed comment since it might perhaps prompt those with Morgellons disease to tell their stories. The more who tell, the more the goverment agencies (wherever they may be) will be inclined to investigate.

I live in South Africa and Morgellons is here too. It is widespread throughout all our rainbow population and I know this to be so.
I too contracted this disease about 18 months ago and I know where, when, how and perhaps why…
I have initmately studied and documented this disease within my own body and I have witnessed the horror of it. Make no mistake, it is very real, it is pathalogically disturbing and it can be dramatically horrible depending on how developed it is within the body.
It manifests and develops at different rates in sufferers and some have external indications (such as lesions) and some do not. Lesions are not the only external indications. Please understand that the skin manifestations (lesions/sores) is not Morgellons as such, it is only a confirmation of infection!! Morgellons Disease is a highly contagious (at times) disease, which affects every main organ (except the heart although the cardio-vascular system is affected as a whole) as well as every major system within the body. It is a self-generating, self-sustaining affliction and I can directly relate to the vast majority of reported manifestations from across the world.
I am not delusional or psychotic but I am a very experienced engineer and technologist with an acute understanding of such things. Particularly Morgellons.
I have researched how it transmits, how it infects, how it behaves and what it does.

Pray those sceptics, that you never develop Morgellons!

Here is a poem which I recently wrote:

I have seen the lesions and the fibers and I have studied them.
I have grown the hairs and shed the flakes and analyzed them.
I have felt the “bugs” and found them.
I have seen my friends and found it in them.
I have had the tubes and closed them.
I have coughed and squeezed the slime of them.
I have felt the filters and extracted them.
I have found the secrets and simplified them.
I have determined the complexes and ruined them.
I have plucked the roots and poisoned them.
I have understood the determinations and defeated them.

I have exposed the defenses around them.

And finally I have disposed of them.

Greetings from South Africa

Smiley,

You’re not working for Monsanto? They even offer dental.

Gillian,

I do see that Ms. Leitao is suffering terribly, but I have to ask, because of what? To find out “the thing” was all along eczema?

Sarah – Mary is suffering also because she is sick. I am not certain of her diagnosis, but she is very unwell and so are her 3 children.

Sarah – I don’t know.

I hate misunderstandings. All that uproar from January is currently being revisited in the “morgellons community”. I knew it was nonsense when southcity had said:

I thought you had said that you were not a doctor smiley. Is that the truth or is this quote from you the truth.

” Posted by: Smileykins | Monday, November 13, 2006 at 01:48 AM

The information about Morgellons Disease on your site is not only accurate as far I can judge it, it is also very important! The suggested therapy looks good, and will not harm, which is even more important. Primo non nocere (in the first place do not harm!) is not for nothing an important part of Hypocrate’s oath that all doctors must take. Please carry on with telling the public what other sources will hold back! I have seen very many people in my pratice with Lyme’s Disease, and fortunately the therapy that overall looks a lot like the ones you are suggesting for Morgellons is rather successful in many cases.”

So what is the truth smiley, as I believe the interests you have in this issue are close to becoming disclosed.

It all began in comment #66, and “Xena Carpenter” had even commented about it, back then:

http://morgellonswatch.com/2006/12/22/psychiatric-news/

Since morgies are discussing it all over again, I had another, much closer, look, at all of the comments, there. I discovered that I DID, indeed, post something, and that nobody had impersonated me, after all. What Southcity had said I’d posted, accusing me of posing as a doctor, and what others are also attributing to me is:

The information about Morgellons Disease on your site is not only accurate as far I can judge it, it is also very important! The suggested therapy looks good, and will not harm, which is even more important. Primo non nocere (in the first place do not harm!) is not for nothing an important part of Hypocrate’s oath that all doctors must take. Please carry on with telling the public what other sources will hold back! I have seen very many people in my pratice with Lyme’s Disease, and fortunately the therapy that overall looks a lot like the ones you are suggesting for Morgellons is rather successful in many cases.

Posted by: Henk van Campen, orthomolecular nutritionist | Thursday, November 16, 2006 at 06:22 AM

My comment, that I hadn’t even realized I’d posted on that site, is above that one:

People with lyme disease could possibly have this condition. Its lesions give a moth-eaten appearance and can last for 10-20 years.

http://www.emedicine.com/derm/topic40.htm

Here’s the latest on morgellons, concerning the CDC’s involvement, from the LA Times:

http://www.latimes.com/features/health/la-he-morgellonsweb13nov13,1,2889750,full.story?coll=la-headlines-health

Please note the absurd article in this link, which includes the quote, “Meanwhile, the Food and Drug Administration (FDA) recently approved the use of a ‘food additive’ that may very well be the cause of an emerging Morgellons epidemic.”

http://pagosadailypost.com/pagosa_news/1609/Morgellons_Disease_and_Bologna_Sandwiches

According to the U.S. Department of Agriculture, use of this spray will have to be marked on the food just like any other ingredient on the label. So, within time, consumers might be seeing the words “bacteriophage preparation” on cold cuts. While this preparation is intended to make food safer, it doesn’t come without its own risks. But if anyone’s really afraid of it, just read the label, and avoid it. It was approved to try lessening the risks of contracting listeriosis by pregnant women and small children. There is a promising future on the horizon of bacteriophages replacing antibiotics, which will be great in combatting new strains of super-pathogens.

Bacteriophages, like all viruses, contain protein. These proteins can cause allergic reactions, just like milk proteins cause milk allergies. That is not groundbreaking news. Lots of people are susceptible to allergies. These bacteriophages could get into a battle with the friendly bacteria in the digestive system, making it harder for the body to digest food. But that’s nothing new, either, because the FDA already assumes that risk by allowing the use of antibiotics on farms. In my opinion, neither of those fairly insignificant risks rate as anything resembling a threat to safety and health of the public at large.

Posted by: Smileykins | Monday, November 13, 2006 at 01:48 AM

That’s easy to see how South first got confused, but I was at fault for paying attention to him, and for not looking at the entire set of comments on that blog. The name of the person commenting is posted AFTER their comments. Henk van Campen, orthomolecular nutritionist, is who said what everyone thinks I said.

The rest of the fun they’re having, is their business.

Katie, yes.

http://www.google.com/search?q=Demodex++morgellons

People need to be careful of the mental pitfall of the word “this”, I like that you said “some of this”. Morgellons is a self-diagnosis, and seems to be just an arbitrary grouping of a large variety of physical and mental conditions, and is not a distinct physical disease in itself.

This site is a disinformation site. All of you who are sick and have not had your symptoms treated to your satisfaction, and believe the answer may fall under a mysterious affliction that has been loosly termed Morgellons for lack of a full medical investigation and classification to date…please stop wasting your time arguing with professional disinformation agents who have set up this site.

I AM in the medical field and DO NOT have this affliction, but I am among a growing number of researchers that have found evidence that this can not be classified as DOP. We do have a mysterious condition that has emerged. Labs at both MIT and Lambda have found the fibers to be real and of nanotechnology origin.

A little help in identifying disinformation agents below, those behind this website are being paid to protect something very damaging and to discredit anyone who comes forward at this time. The truth that the source of these fibers and symptoms are of nanotech origin is HUGE and the potential for catastrophic reactions from the public sphere is what is at stake and is being protected.

Spot the Disinformation Agents-

Note: There are other ways to attack truth, but these listed are the most common, and others are likely derivatives of these. In the end, you can usually spot the professional disinfo players by one or more of seven distinct traits:

1) They never actually discuss issues head on or provide constructive input, generally avoiding citation of references or credentials. Rather, they merely imply this, that, and the other. Virtually everything about their presentation implies their authority and expert knowledge in the matter without any further justification for credibility.

2) They tend to pick and choose their opponents carefully, either applying the hit-and-run approach against mere commentators supportive of opponents, or focusing heavier attacks on key opponents who are known to directly address issues. Should a commentator become argumentative with any success, the focus will shift to include the commentator as well.

3) They tend to surface suddenly and somewhat coincidentally with a controversial topic with no clear prior record of participation in general discussion in the particular public arena. They likewise tend to vanish once the topic is no longer of general concern. They were likely directed or elected to be there for a reason, and vanish with the reason.

4) They tend to operate in self-congratulatory and complementary packs or teams. Of course, this can happen naturally in any public forum, but there will likely be an ongoing pattern of frequent exchanges of this sort where professionals are involved. Sometimes one of the players will infiltrate the opponent camp to become a source for straw man or other tactics designed to dilute opponent presentation strength.

5) Their disdain for “conspiracy theorists” and, usually, for those who in any way believe JFK was not killed by LHO. Ask yourself why, if they hold such disdain for conspiracy theorists, do they focus on defending a single topic discussed in a NG focusing on conspiracies? One might think they would either be trying to make fools of everyone on every topic, or simply ignore the group they hold in such disdain. Or, one might more rightly conclude they have an ulterior motive for their actions in going out of their way to focus as they do.

6) An odd kind of “artificial” emotionalism and an unusually thick skin — an ability to persevere and persist even in the face of overwhelming criticism and unacceptance. This likely stems from intelligence community training that, no matter how condemning the evidence, deny everything, and never become emotionally involved or reactive. The net result for a disinfo artist is that emotions can seem artificial. Most people, if responding in anger, for instance, will express their animosity throughout their presentation. But disinfo types usually have trouble maintaining the “image” and are hot and cold with respect to emotions they pretend to have and the more calm or normal communications which are not emotional. It’s just a job, and they often seem unable to “act their role in type” as well in a communications medium as they might be able in a real face-to-face conversation/confrontation. You might have outright rage and indignation one moment, ho-hum the next, and more anger later — an emotional yo-yo. With respect to being thick-skinned, no amount of criticism will deter them from doing their job, and they will generally continue their old disinfo patterns without any adjustments to criticisms of how obvious it is that they play that game — where a more rational individual who truly cares what others think might seek to improve their communications style, substance, and so forth.

7) There is also a tendacy to make mistakes which betray their true self/motives. This may stem from not really knowing their topic, or it may be somewhat ‘freudian’, so to speak, in that perhaps they really root for the side of truth deep within. I have noted that often, they will simply cite contradictory information which neutralizes itself and the author. For instance, one such player claimed to be a Navy pilot, but blamed his poor communicating skills (spelling, grammar, incoherent style) on having only a grade-school education. I’m not aware of too many Navy pilots who don’t have a college degree. Another claimed no knowledge of a particular topic/situation but later claimed first-hand knowledge of it.

My heart goes out to each and everyone of you suffering now. Leave this site and focus your attention on keeping your energy and strength up … you are going to need it.

P.S. I was totally being facetious about getting investigated, so don’t run with that.

Now, Chris. What was it that I mentioned about giving off an appearance to others? If you don’t want to be looked upon as you’ve said you’re being looked upon by doctors, and your parents, it’s probably that you’re doing something that makes you appear that way. Look at those mean things you just said. That doesn’t hurt me one tiny bit. Neither does being referred to, by so many, as a man. Chris, patients in the “morgellons disease” community make things be what they want them to be, but that isn’t reality. Since you’re new, let me explain.

There is something that has been going on with them since this blog began. There is an over abundance of morgie forums on the web, and they’ve been on the local and national news, in newspapers and magazines, and, yet, they’re all up in the air over Michael’ blog … this one little old blog, that he started last spring, known as Morgellons Watch.

Michael, Tall Cotton, and I, are, now, (well, at least I feel like it, from all I’ve seen), achieving an almost cult-like status, much in the same way that the myth of “morgellons disease” began. A couple of the guys, Greg & South, think they’re going to scare us away with threats of a lawsuit, or some sort of unrealistic scheme they’ve been trying to come up with since last summer. They’re always telling each other that we’re so many different things, and so many different people. It isn’t funny, but yet, it is. I don’t mean that it’s funny for so many patients to be that ill, but, well, if you were in my shoes, you’d be able to see the amusement they’re creating with it all. Junebook, Liz, Angela, are about like you sound, only worse. Evil talking as can be!

Oh, and, Prevenge. That one was all mixed up with his own set of misunderstandings (about God only knows what), just like all of you are, but he expressed wanting to track Tall Cotton down and kill him. What for? For nothing! Tall Cotton hasn’t done anything to him. He was mad over someone else who’d ordered a DVD under that username. They’re all so mixed up.

Don’t all of you feel like you’re possessed by a demonic presence, Chris? That’s such a common thing that’s repeated in this patient community. “Deliver us from this evil scourge”, is said so often. Any prayers that anyone thinks they’re praying to God Almighty, just get cancelled out, as soon as the focus is back on their “morgellons disease”. Lying, and cursing others to rot in hell, is sure to only get the person doing it there quicker. That isn’t the way to get God to hear anyone.

You need to come clean with yourselves. You need to, but I know that you can’t. Not a single one of you can, and it’s sooooo sad!!! But, with so many pet meds, poisons, and pills of all sorts, being used by so many people, who wouldn’t have a mixed up mind! Except, only a mixed up mind would do such things as what “morgellons patients” do!!! Someone needs to be in charge of your lives, looking out for your best interests. Where is that person? So many morgies have spouses, but why are they unable to help? Parents can’t help. Friends can’t help. Why? WHY????

Because you all “need to be believed”. And who’s, mostly, believing you? You’re believing each other. Charlatans believe you, of course, profiting from your vulnerability.

Scream, kick, holler, and yell….”I’M NOT VULNERABLE!!!!” The fantasies of legal actions, and changing the world, have no power in them, whatsoever. They really don’t.

It is good that you have all made this illness as public as you have, so that you can get the help you need. Like I told you, earlier, Chris, the CDC is working on this. They’re spending hundreds of thousands of dollars just to help you all. Patients have never eased up on them, wanting them to lend a hand way sooner than is realistically possible, but try being patient. This is serious and requires time. I do care about you. I care about all of you, very much.

I’d give some, but it isn’t the kind of feedback you’d like.

I did check with the EPA who directed me to the local branch….they do not have enough expertise in Identifying agrucautural insecticides to make a call …so they called the Department of Agruculturure and I contacted a Bayer Corp to see if I can get Technical or Testing Help as they have an agrucultural branch….

Ok I did read some of the other posts and now I see what your saying….Yes I dont believe In Morgellens its an Unknown Diease with no known cure but then Interstital Cystitis was known as a Delusional Diease just 10 years ago listed in one medical book as an (unconcisis hatred of men) because mostly women get it…my bladder burning and being the bathroom most of the night not being able to sleep was surely not a figment of my imagination but 10 years ago it would have been….I know this because Im 3rd generation Heritary and I am cured after years of suffering because I never believed Interstital Cystitis was a real disease….so I stumbled on the (Real) Diease because I was misdiagnosed as my mother and grandmother ….had If believed it was a real Unknown Incurable Diease I would have never been able to find the cure becuse I never bothered to look ….I do believe that the symptoms that people have are real and that there is a simple explination and treatment for whatevers ailing them although when you dont know …then you should try to find out….but these people are (sick bothered and may be nervous wrecks) a person who is used to seeing a doctor and being cured (which doesnt be the case for this ) of course will be frustrated….and some of the information may be theory guesses in an attempt to help themselves and others may be right or wrong…I dont see the harm in that….or see how its in anyway delusional….in school if you answered a question wrong for any reason they just put an x on your paper….So do you have another answer other than Delusion? To many people from all over are describing what seems to be the same thing…I dont think they all said at one time lets invent a new Diease…So what is your Theory Id appreciate your input

Anyone seen the movie “Bug”?!!

I have seen the movie, and I dragged one of my poor friends along with me. I was expecting a pretty intense, psychological thriller type of movie, knowing that this was the same director from “The Exorcist”. However, I was sorely disappointed.

It might have been the slowest movie I’ve ever seen. I kept waiting and waiting for something to really happen, but nothing ever does, until the bitter end. This movie is just that, a movie, and aims for Hollywood-type gore and extremes of insanity.

I feel like this film hinders those of us who seek to help individuals with delusory parasitosis. People who suffer from it could easily reference this movie to reassure themselves, “I’m not crazy. THAT MOVIE is crazy.” There is such a stigma attached to having a mental disorder. We need to figure out how to curb this so that people can get the psychological help they need.

Many sufferers are nowhere near the extremes of Ashley Judd’s character or the man’s (I forget his name). They usually have no other delusions accompanying their main ‘skin infestation’ one, they are usually older with many other medical problems (unlike Judd’s character), and they certainly don’t commit suicide, as a rule.

Hollywood had the perfect opportunity to inform the public- and therefore doctors, dermatologists, psychologists, etc. about the realities of this disorder so that there could at least be some awareness. None of these professions has DOP at the top of their research list right now. The problem is, as I have said, that Judd’s case was so very extreme, that this will be written off as a low-budget horror movie with nutcase characters, when it could have given us some insight into what they are really experiencing (maybe like John Nash in “A Beautiful Mind”).

People don’t leave the theater with any better awareness of true delusional parasitosis. As my friend told me after the movie, “If you hadn’t told me what this was about I would be so lost. That movie sucked.”

Note: I can’t speak for self-diagnosed “Morgellons” patients, just for individuals who believe there are “bugs” in their skin. I realize there is some overlap here, though.

For other commentary on “Bug” the movie, go to:

http://jandoe.wordpress.com/2007/05/29/morgellons/

One thing that really bothered me whilst visiting the Morgellons communities on the internet, was “no threads or posts were to be about HIV or AIDS”. I was told in a personal message on the “fiber disease” site that the “fiber disease” is NOT AIDS and this topic must not be discussed. If you try to put a link relating to HIV into a Morgellons Community website, it won’t post.

I always thought that was really strange, especially since HIV is pandemic world wide.

“I” don’t know what is wrong with my health. I know I am very sick, and my family know I am very sick.

Why is it the doctors can not tell me what is wrong?
Why have doctors played with my fragile mind and sick body?

My Health Department and my Government have let me down, and the same thing is going to keep on happening to young innocent woman like myself if we don’t cut through this bullshit.

12 months ago the Victorian State Government were going to launch a new ad. campaign to bring about awareness of the new HIV’s in our community.

We are still waiting to see those ads.

The medical profession DO know what is wrong with people like me. Unfortunately I don’t seem to qualify for certain treatment.

I wonder WHY??

Isabelle & Katmarie – After doing a little bit of surfing on the net I can not seem to find any real evidence of there being a movie called “Bug”.

So my question being, is “Bug” yet another internet scam or is the movie real??

If you could point me in the direction of a movie theatre in Australia which will be showing the movie sometime soon, I would really appreciate it.

Thanks!

Thanks for that Sarah.

What a big movie database hey. I wouldn’t mind seeing “Herbie Fully Loaded”. From what you guys have told me it would be far more entertaining than “Bug”.

Just my opinion.

Thanks Isabelle, I think I’ll wait awhile before I see that movie, too much doom and gloom.

I know I typed legion, but that is how Tony spelt lesion in his original post.

For those wanting to know what legion means, click on the link..
http://en.wikipedia.org/wiki/Roman_legion

To ALL who visit this blog and take the time to read, I urge YOU not to think this is an internet scam.

When something such as “Morgellons” hits a leading newspaper in Australia – exerts;

“The symptoms sound like something out of a horror movie. But whether the symptoms constitute a frightening new disease or a case of mass hysteria is a question for the Federal Centres for Disease Control and Prevention in Atlanta. Depending on its conclusions the ailment dubbed Morgellons disease, might soon displace ebola and bird flu as the world’s newest nightmare disease. Sceptics insist the lesions are self-inflicted by incessant scatching, the fibers are no more than lint, and the hypochondria is being spread by sensational TV reports and websites, which reinforce the delusions of the psychologically vulnerable. More than 4500 sufferers of the syndrome, the symptoms of which were first described in France more than 400 years ago, have registered.” – Chicago Tribune

Last year I tried to find the original newspaper article on the Herald Sun website so I could post at Lymebusters, I even wrote to the Editor 3 times spouting off about Lyme Disease. At the time, I didn’t know how to post a scanned image from my computer into a Lymebusters thread, with brain fog and all, what hope does one have. Pity hey, could have saved me and many others a lot of misery.

http://www.news.com.au/heraldsun/ –

“Illness digs under skin” – Wednesday July 26, 2006.

Lurker,

Please forgive my being direct, but I like understanding people, and, for all I know, you really might NOT be desiring to give the impression that you do when you use the particular style of communicating what “morgellons disease” is. You’re smart, so I’d appreciate hearing a description of how “morgellons disease”, for you, differs from DOP.

Thanks, Smileykins

Didn’t you just post that elsewhere? Please refrain from spamming. This is not a message board, Liatrus, it’s a blog, where one may comment on the topic about which Michael writes.

Smiley, do you mind me butting in on your chat with Lurker?

People with DP feel moving sensations, not just Morgellons. People with DP find bits of fibers and “grains” in their skin, just like Morgellons. I don’t see your point, Lurker.

The fibers are real, not delusions. The black specks are real. I’ve found similar things on and in my skin.

Where problems arise is when people interpret the these fibers as spontaneously emerging from their skin, and being somehow connected with their itching, and being evidence of a distinct disease.

The CDC is investigating why people report these symptoms. Why are people reporting “threads” on or beneath their skin? What would cause people to report this?

I think one reason people report “threads” on their skin is because they read about it on the MRF web site, and then looked at their skin and found fibers. everyone has fibers on their skin.

Of course I don’t mind, Sarah.

Liatris, millions of people have symptoms in common that are not related to one condition or disease.

Let’s imagine that your neighbor on the right complains of stomach distress, and it seems to match up to what your neighbor on the left has just told you about their stomach ache. The neighbor on the right goes to the emergency clinic and finds out their appendix is on the verge of rupturing, while the neighbor on the left discovers they’re suffering from pancreatitis. Neither condition was the same, but before the underlying causes of their symptoms were determined, they seemed real similar in description. Both neighbors had a “disease process” of an organ, but not “a disease”.

You’re real smart, too, Liatris, just like Lurker, so can either of you try to help the rest of us understand on the same level? Do “morgellons disease” patients think, for example, using the hypothetical situation I just described, that one, unique pathogen that causes all disease in people has yet to be discovered?

Sorry, I don’t understand your comment.
Who instructs who to believe what they say??

I’m sorry, Lurker. Fellow patients, and “professionals” that have a role in “morgellons disease”, is who I mean gives “instructions”.

Well, let’s see how I can help get my point across better. Do you understand that, oftentimes, when a person so desperately wants validation for something they believe to be true, that they may not be able to realize, that when someone takes what they’re saying at face value, without question, it’s because they have a motive?

Within a circle of family and friends, one such motive could be the hope of maintaining a peaceful environment. Then, if someone comes along promising validation to such a person, no questions asked, with the added elements of vindication being offered to them, and the promise of a sure-fire solution to the dilemma they’re dealing with, the tendency, of some, would be to place their trust in somebody with so much to offer. Oftentimes, when a person is ill, it compromises their ability to discern that such practices don’t have their best interest at heart.

The real manipulation I’m referring to, is everyone who’s used the myth of “morgellons disease” in attempts to benefit themselves, by appealing to, and preying on, patients’ vulnerabilities. I don’t know the motives behind every one of them, and I even extend the benefit of doubt (to some “professionals”) that they are (quite possibly), just as ill, and full of fear, as the patients they represent. Numerous times I have given my opinions on those who are easily accomplishing leading sick people further into this web of deceit, and endangering their health, as well as the health of everyone else. I do not think any fault lies within “morgellons disease” patients for trusting such “doctors” and “researchers”.

For you, personally, Lurker, I’ll cite one important thing:

http://www.morgellons.org/

The Following Signs or Symptoms are The Basis of Morgellons Disease as defined by patients that fit within a consistent boundary that is also outside the boundary of other “known” diseases. The initial three characteristics parallel a much more entrenched illness, Delusions of Parasitosis (DP) named decades before today’s laboratory technology and infection/immunity knowledge, driven by HIV, developed. The more recent findings listed below provide a far broader and more consistent evidence base, strongly supporting the likelihood that DP is a prematurely-assigned label to an organic, rather than purely psychiatric disease.

“Defined by patients” — “Outside of the boundary of other ‘known’ diseases”

Maybe you don’t know how the Morgellons Research Foundation came into existence, and that the “case definition for morgellons disease” keeps evolving, made up of the combination of registered members’ symptoms, and their listings of prior diagnosed diseases and disorders, which, understandably, have been kept confidential.

A sample of a poll that I recently looked at, affords some insight into the wide variety of prior diagnosed conditions affecting some of the “morgellons disease” patients, and medication side effects are extremely relvelant too, regardless of whether anyone involved with “morgellons disease” is aware of it, or not:

See Comment # 9

http://morgellonswatch.com/2007/06/20/osu-chs-and-morgellons/

There is nothing listed in that poll that is “outside of the boundary of ‘known’ diseases”.

“The initial three characteristics parallel a much more entrenched illness, Delusions of Parasitosis (DP) named decades before today’s laboratory technology and infection/immunity knowledge, driven by HIV, developed.” — “The more recent findings listed below provide a far broader and more consistent evidence base, strongly supporting the likelihood that DP is a prematurely-assigned label to an organic, rather than purely psychiatric disease.”

As I have said, many times, that is a load of nonsense. No laboratory technology is needed to look into the materials from a person’s skin that’s been diagnosed with DOP. DOP has a whole lot of causes, as that poll so clearly illustrates. People who develop it, progress into that state of confusion because of their UNDERLYING ill state of health, and that has always been known. The patients are the ones who are unable to understand that, and the campaign launched by Mary Leitao, to get the “disease that she declares her children suffer from” recognized, has misled a whole lot of unsuspecting ill people, and helped further stand in their way of getting the appropriate treatment.

Do I think “morgellons disease” only encompasses patients who are DOP? Well, it started that way, and only each person knows whether they have been diagnosed with it, and not followed through on the recommended treatment, hoping to deceive their doctors, or whatever it is that they do, and obviously can’t help doing. Being in possession of an unshakable belief is a very dangerous situation for many.

Whatever underlying illness triggered a state of DOP needs to be treated. If medication side effects have done it, a person needs taken off the offending drug. If a serious physical condition has triggered it, which, it appears that many people have that situation, they need adequate treatment for that underlying health condition, to make DOP go away. If a mental condition has caused DOP to develop, and a mental condition, alone, has caused it, that needs to be openly dealt with, but therein lies a serious problem.

Now, having said all that, upon so many OTHER vulnerable members of society (without DOP) having heard of “morgellons disease”, and thinking that they have it, if they’re really convinced that they do, well, I think that qualifies them as having developed DOP, when they may not have had it, otherwise. I say that, since they, also, now feel that some undiscovered organism has taken their bodies over too.

Openly discussing it with whomever a patient is referred to, would yield the appropriate investigations that patients seek, but so many state that if they are open with a mental health professional, they’ll be locked away. That could be something that has occurred to some patients, and by their voicing it, it’s wrongfully scared others into thinking the same would apply to them, when nothing of the sort would occur.

I gotta head off to the park, now. A campsite is calling. Later!!!

Wait!! Lurker originally asked that question as to whether Sarah was being ridiculous on purpose, Junebook. Why are so easily amused through saying ugly things about what only you believe about individuals that you don’t know?

Dear Junebook,

Please go back and see who you are quoting before misattributing words to me.

Anyway, it seems you are having trouble differentiating the many concepts we have discussed, and instead have jumbled them together. Let me clarify again for you.

The animals “Morgellons” sufferers allege live under their skin indeed cannot live under your skin. These creatures (beetles, hornets, earthworms) would suffocate and die. They cannot reproduce under your skin. Saying certain things are living in your skin shows a lack of knowledge about certain animals, which makes a great opportunity to learn. What people with “Morgellons” allege is living in their skin is as ridiculous as saying a cat lives in your skin.

This does not preclude other organisms from living in your skin, as you seem to say that I was asserting. However, it seems quite convenient for you to confuse what I am saying for the benefit of trying to put me down, so there it is.

I recommend that if you want to sound like an authority on me, catch up on your Sarah-stalking. Your information about my employment is quite dated. 😉

I can’t decide what is more sad, that someone feigned to be Smileykins or that the respondants didn’t notice it wasn’t her.

Well, yeah, but, once upon a time, a mother created a new disease, and a website, and she called it a “Research Foundation”, and most of the respondents didn’t notice that it wasn’t based in reality, either.

Parasites are not exclusive to the US. Scabies mites are quite common here. They live in the skin, they burrow little holes to get in. It’s more common in nursing homes and institutions. People get other parasitic infections all the time, like lice and various intestinal worms. Lots of other microscopic parasites as well.

A parasite is any organism that lives on another to the detriment of the other. There are millions of parasites, from single-celled organisms on up. A parasite not an insect, but a word used to describe an organism who engages in the above definition.

A lot of things can live under your skin. What “Morgellons” sufferers describe living under their skin is as outlandish as my cat analogy.

Satan?

Seriously?

There is another thing I have to say. Its an on the other hand sort of thing. I have read a short story by E.M. Forster called The Machine Stops and it seems to bring up an interesting point. The story is about a woman who lives in this machine. She never goes out and doesn’t know anything about the outside world. She has a son who is the opposite of her. He goes out and is curious about the world. He even shares his curiosity with his mother who acts negatively about it. The story progresses and the woman gets a weird message from her son. He just says “the machine stops!” The woman doesn’t think anything about it and goes on with her business. That is until one day when she turns on her music. Something in the machine causes the music to sound wrong. Soon it escalates and other problems arise. Moldy food, beds not popping up at the right time when summoned. Whole ways of life become destroyed and finally the machine breaks down all together. I’m not sure whether Morgellons is real or imaginary but what if these people really have something? Maybe they are just like the boy in The Machine Stops and just trying to give us a heads up before our world comes tumbling down. Personally though, I’d still would rather have Morgellons then cancer.

What if there is enough room in the budget to study these people? Maybe we can send some psychiatrists in and let them examine the patients mentally. It could be a start anyway.

I also get unexplained bruises out of nowhere…is that a problem anyone else has had feeling too llike there is a worm or something inside my ear canal

Sorry, but I just gotta share a recent comment from TC’s & my blog:

Trisha Springstead RN said…

48,000 reported cases worldwide you bunch of Nazis. Sadlykins and smallcotton. I am in contact with the CDC you morons and they say the same thing. No DEBUNKING HERE.
My last post with the Antichrists.

You don’t know it, but you’ve being seriously misled, Marcus, and I’m very sorry that you’re going through that, and that so many others have succumbed to the same, and similar, fears. It is completely understandable, given the situation, but, everyone who is so terrified, thinking that they have something being called, “morgellons disease”, has something else, and, I think that most of you need outside help in understanding how to work with a qualified doctor towards achieving a better state of existence.

Here is some help . . . First off BORAX baths for 20 min , useing a third of the box of BORAX , will kill everything on your skin ! . . . You will notice they will start floating off your body ! All different kinds of the Morgellons stages . . . . Also , Eating Moxidectin by (Quest) , will stop the “creepy Crawly’s” in 15 min . . This kills all the fibers traveling through your body , that were produced by the MAIN WORM . . . . If you have caught Morgellons , and are within 6 months of catching it , you can be healed . By useing ( Boron Borax pills ( Twinnlabs) makes a Boron suplement . Thake this for 3 weeks , and cosume NO sugars for 5 days . Along with the herb ( Thongkat Ali ) . . . . This will kill any worms in the Blood . . . . . For the rest of us , we have to find the General ( Mother worm) in our body , and cut it out ! Use Lidocane for the pian . . . . Make sure you get all of it . . . . . . Best wishes GT

Video from Europe..

Manmade??? hmmmmmmm

http://www.silentsuperbug.com/

Dan, were you asking if the silentsuperbug video is manmade, or if the content is factual? Unfortunately, the man behind that project is very ill, and he’s worked hard at developing a following comprised of other, like-minded, very ill people.

Whether you believe in “morgellons disease” as a result of the mass psychogenic illness it is, or whether you happen to be someone who’s thought that you’ve had it for a while, rebelling against doctors and family, allowing it to go untreated, most people are aware of (and accustomed to) the mental deficits and behaviors associated with it.

Now, to address the type of “entertainment” you’re into, and your motivation for telling us about it. There are some falsehoods about Tallcotton and me on the web, two, of which you’ve mentioned. I don’t know what your situation is, Dan, but I do understand (from seeing it, so much, from morgies), the sense of pleasure you’ve gotten from your actions, and that’s something very key to the issue of “morgellons disease”. Thank you, for sharing more insight into the spiritual side of the illness.

Hmmm, I think it’s time for those without Morgellons who have only judgements to make and doubt to perpetuate to step aside and stop taking up space on these message boards.

Until you become infected, you cannot understand and you cannot know.

They used to lock up Deaf people claiming they were insane. That is truly how misguided the medical community can be and has been in the past. This situation is not different.

Stop all of the accusations about mental illness because in all honesty, you appear to be individuals who have no lives…not to mention, unopened minds,judgmental personalities and perhaps some of the worst of the mental disorders. Something akin to a God complex.

Those who have morgellons will, together with those who do not want to judge or accuse….find the answers we need to heal our skin.

I can tell you that I was wrapped up like a mummy by Dermatologists..unable to scratch the sores and not scratching didn’t make a difference.

The facts you accusers need are facts you don’t want; the facts that come with actually living with this skin parasite. If I were you, I wouldn’t tempt fate.

JT, scratching itchy skin is not all we’re talking about with this group of patients. Everyone is aware of that, and how great it would be if only everyone involved knew not to expect to fool anyone, other than fellow patients who can’t take proper care of themselves, and the quacks ripping them off because of it.

Knowing the difference between right and wrong is not even close to being the same thing as judging a person. But, who’s accusing? Who’s labeling? Doctors diagnose, so they’re not labeling, or judging.

Can anyone accuse “morgellons disease” patients of having gone to doctors without a goal of working with them towards a state of better health? That has been well publicized, coming straight from the patients in this movement, so it does not qualify as an accusation, but it qualifies as proof of how ill they are.

Can anyone accuse “morgellons disease” patients of the harm they regularly describe doing to themselves, their kids, their pets? Again, it comes straight from the patients.

What? Are they lying about everything?

And, another thing is that many “morgellons disease” patients, undeniably, do not even think of themselves as individuals. They say that they’re all one unit, appearing to be a bunch that’s bent on destruction — cyberspace strangers — saying that they want acceptance from everyone, while seeming to be totally uninterested/unable to take it from others who are unlike them.

People, in general, know many of these patients need serious assistance. Unfortunately, some people are gullible, but it’s unwise to think that everyone else is stupid and unenlightened. “Thinking outside of the box” is really inappropriate language for patients who, sadly, in some cases, can’t get back inside the box to begin with.

All of their doctors had known best what they’d needed, and it’s obvious. To me, it looks as though setting mental health law back into yesteryear is what everyone is hoping to gain from all this.

It’s way beyond skin, and we all know that. Using legitimate anti-itching skin products help in calming itchy skin. It should be a goal to allow one’s skin to recover, so the temptation to scratch ought to be resisted.

Pulling off scabs ought to stop, too, even while being so compromised in one’s thinking processes as to believe that Mary Leitao needs that practice to continue, with the instruction of examining the contents for her.

The quacks (and conspiracy theorists) that her patient movement has brought out of the woodwork, instructing such patients to mail scabs in to them, as well as any other debris that they’ve brainwashed them into thinking is something bizarre, are beyond contempt with their self assurance that morgie patients’ skin will never complete the healing process.

Knowing, fully well, what types of seriously ill patients they’re dealing with — patients who have resisted treating their real diagnosed conditions BECAUSE THEY CAN’T — condoning everything the patients say and do, while playing up their worst fears, is nothing short of taking every one of them as far off into their deepening madness as they can possibly go.

I hate what we’re all up against due to the ignorance in using antibiotics when they aren’t needed, too, and I’d better just shut up now, cuz I’ve said more than enough.

David, I wish that I could make it to Australia to sit with you in your car for an hour. I’m sorry that I can’t, and I wish you well.

ive just read through this list of postings. a number of people are claiming to be non sufferers of “morgellons”. And yet spend an extraordinary effort over a long period of time discrediting something which has no credibility.
the whole reason i and no doubt other sufferers come on the internet is because we cant find doctors who will give this disease credence.

ive certainly never looked up websites for the flu or made postings about chicken pox. i go to the dr. get it cured.It has no interest for me.

The motivations of these supposed sceptics dont ring true to me.

Clicking onto morgellonsguide.com’s “Contac Us” link, they have the same snail mail address as discoverorganization.com

http://www.discoverorganization.com

(read their “Affliates” page)

David, you’re exaggerating things, plus, I’m a female. I haven’t shared my uninformed opinion, or bullied anyone. If I’ve given my opinion on “morgellons disease” and, in turn, tried exchanging conversation with anyone, only to discover that they basically, all, display the same behaviors, then, what type of opinion should I conclude from these experiences?

Nearly every “morgellons disease patient”, online, proves that it’s useless to even try communicating with them. Many patients claim that doctors and loved ones have abandoned them, but all of these online acts leave little to anyone’s imagination as to why this occurs. It appears that everyone in this group of believers/patients/victims seems totally unable to appreciate the results of having brought information about “morgellons disease” into the public arena.

I’m sorry, but, to me, everything gives the appearance that this patient movement was designed for something other than warning the public of a new disease. There should be nothing but willingness on the part of such patients to engage in conversation with anybody who wants to know more about it.
Instead, it’s as though every patient is trying to protect something, while, at the same time revealing so much about their illnesses, and not appearing to even realize it. This is so similar to Mary Leitao’s going public over her noncompliance with an evaluation for what she’s suspected of. Anyone, (other than those she’s gotten to back her “disease”), would expect that a mother who isn’t doing that to her child (children) to clear herself, rather than going forward in this way.

Something caused her to be the way she is, and I live in a free country, David, which allows me to have opinions about anything I want, and I do, especially when vulnerable members of society — including children and pets, who don’t even have a voice — can’t do anything to escape the fate that’s befallen them.

I think that it looks as though, by enlisting the types of patients that she knew she could, so easily, “to get the message of her new disease out”, drawing in all of the various types of compromised individuals that she has, the doctors & researchers in this cruel scenario are one of the worst kinds of predators. I’m one member of society who appreciates what the unfettered use of unnecessary antibiotics is doing, too.

So many patients in this movement really appear to seem to want to purposefully cut themselves off from anyone who is, for good reason, concerned about them, trying, in any way they can, to get others with the same types of problems to join up, to increase your numbers so you can get recognition. Recognition that you’re all in a terribly chaotic state, unable to take care of yourselves, and hatefully driving away people that care about you is the major thing I make of “morgellons disease”. I want everyone’s situations to change, but they are what they are, and when anyone turns their power over to someone else, trouble has a way of following.

I get called a man by “morgellons disease patients” pretty regularly, and I’m real sorry that I seem to be a creep, too, and that I remind Niels of anyone. That’s made him state, as though it’s factual, on more than one occasion, that I want everyone to be chemically lobotomized. That’s far from being what I want. Some “morgellons disease” patients are just into this type of “fun”, like his having said that I remind him of this: http://en.wikipedia.org/wiki/Vagina_dentata syndrome

Well, I’m sorry. If this weren’t so sad, it would be funny.

Niels, I wish that you were well, and I hope this can help you, some, with your short term memory deficit.

On this blog, you can refer to the topic, “Morgellons in the ‘Atlas of Human Parasitology’”, and your comment dated, July 29, at 4:00 pm

On Lymebusters’ message board, you can refer to the topic, “Eye balls, hand, teeth, hair IN TUMORS!”, and your comment, reply #4, dated, October 26, 2007, at 3:45 pm

Even though your antics seem amusing, there probably are some “morgellons disease patients” who believe that you’ve really met me. Has your style of communication always gotten you what you’ve wanted?

I wish you well, Smileykins

Michael ?

As you are clearly an intellectual it shouldnt be too hard for you to do me a favour.
I need a definition for what you scientifically describe as

“third hand media stories’

im intrigued

ban away
ill not be looking here any longer

You and smileylins make long winded pseudo scientific dribble an art form

Your logic is unfathomable

You refer to vague and nonspecific facts and sources to support vague and nonspecific notions.

How does this help anyone?

What is the point?

Just get each others phone numbers

bye bye

Let me make this very simple for you so you can understand.

ready

concentrate

You have no professional training to help in anyway.

This thing obviously needs attention drawn to it so light may be shone on the cause/cure

The more sceptical people are the less chance it will be taken seriously enough for that knowledge to be gained

You are causing great harm to people who are suffering beyond your experience

Perhaps even the last straw that causes suicides.

A ‘health care decision” is buying a good brand of vitamins

I think being eaten alive falls into a different category

Please get another hobby

David,

It’s obvious what the “Morgies” need… obvious to everyone except the Morgie. These people’s relatives do care! Their friends care! We care! Their doctors care! The problem is that the Morgies put almost all of their energy toward a disease that does not exist! They don’t seem to be able to talk about anything else. They have driven the people away that are supposed to be close to them. People get tired of hearing about the Morgellons nonsense all of the time. Don’t you realize that normal people know that there is no such thing as Morgellons? The doctors try to accurately diagnose the Morgies with whatever health problems they do really have. But the Morgies have made it obvious that they are delusional and when a doctor even hints about this fact, the Morgies run like hell to another one. They may not all need antipsychotic medication, but they all at least need counseling to rid their minds of their unrealistic ideas. It’s obvious that the Morgies have lost touch with reality, and that’s where the healthcare needs to begin. No one has rejected the Morgies. It’s the Morgies that have driven everyone away from them and refused help from anyone except those with the same sick mind as themselves. This movement is sucking up more and more people, convincing them that Morgellons is a legitimate disease. But Morgellons is not a disease, not a health condition, not anything. The movement helps to reinforce a lot of dangerous beliefs and helps to encourage a lot of dangerous practices, including making antibiotics useless for people out there that really need them. Chronic lyme is also a hoax. It’s a gimmick invented to make your quack LLMD’s rich. Post lyme syndrome exists, but it’s a mental problem. Chronic lyme does not. The Morgies are destroying the lives of their children, even killing their pets! Don’t come here saying that those of us that do not believe in Morgellons are contributing to anyone’s suicide. That’s utter nonsense and is totally backward thinking. We are the only ray of light in the Morgie’s lives, although, the hardcore believers are blind to it, and are rejecting it. Hopefully we will get the truth across to a few of the borderline believers. That’s about all we can hope for. But if even one person can be saved from the Morgellons madness, that’s one life that doesn’t go down the drain. I hope that we do damage the Morgellons movement. It needs to be stopped in its tracks. The belief in Morgellons is literally ruining people’s lives, and everyone is suffering because of the actions of the Morgellons believers.

Tall-

How can you be soo convinced that a new emerging disease is not possible? Are you that educated? Is alternative energy possible mr oracle? Please convince us.

Thanks

This was in the news last month:

http://www.cnn.com/2007/HEALTH/conditions/10/16/mrsa.cdc.ap/index.html

Deadly Clostridium difficile infections are making headlines, too.

This was in the news today:

http://www.abcnews.go.com/Health/Germs/wireStory?id=3870639

I’m all for alternative energy sources!

http://www.altenews.com/

And God bless Monsanto, too.

woops!!
compare the spelling of smileykins/smilykins username

I wonder if the same creep might be changing their username to suggest popular opinion

Its doubtful there would be more than 1 creep of that nature

MARG,
IF YOU REALLY ARE A HOBBYIST

IT MIGHT INTEREST YOU TO RESEARCH MALARIA IN THE LATE 1800S

MY CAPS IS STUCK BTW

COMPARE THE THEORIES OR RATHER ‘MEDICAL FACT’ OF THE DAY

PRIOR TO THE BIZZARE DISCOVERY OF A PARASITE TRANSMITTED FROM

A SICK PERSON TO A HEALTHY PERSON IN THE GUT OF ANOTHER COMPLETELY

UNRELATED PARASITE

THE STORY MIGHT RING A FEW BELLs

there are many one dimensional diseases. easy to identify and irridicate.

the stubborn ones are a little trickier to work out and cure becuse of these

symbiotoc or even bizzare relationships in nature.

What I can tell you first hand from my four years experience is that its not just one thing

I wont bore you with it all, but as far as sceptisism goes I have it in my eye.

Ive all but lost vision in that one

After 4 years it was the first time a DR. was prepared to use a microscope on me

because of sceptisism like yours, and even then it was by default

My eye is full of “unidentifiable flecks”.It undiagnosable because the research is yet to be done. bad luck for me.But good luck for future people.

This show is contagious. I have infected people I know. people react in greatly varied ways.

Why that is the case I can only guess.

But for that to make you sceptical ,i.e. the varied nature, is more to do with your

ignorance of the natural world than the dubious proposition of a new disease.

At any given time there are many emerging diseases. Broaden your horizons a little and it will all make sense to you.

You know I wish you’d actually read what i said before responding

I show you the same respect. And look at your suggested links

And by the way medical science has always and will always have the attitude that they know just about everyting there is to know

Its part of their charm

tall cotton the “we” is debatable.

Especially since I’ve had a response from you smileykins and Michael, all within a space of 15 minutes.

This is either incredible cooincidence that you are all reading the same blog at the same time or perhaps more likely that you are all one and the same person.

You claim that “we” have studied the disease in great depth.

Your qualifications are what?

How do you know what other posters have studied or not studied?

Falsifying the concept of popular opinion might work against morons

but that’s poor sport surely.

Anything works against morons

Using words like Logic Rationality and Reason is wonderful smileykins

Fortunately anyone with half a brain can and has compared my postings to yours

And judge who is actually loony tunes

And who is logical and reasonable

And as far as other websites are concerned, Im yet to find one you or your fictitious roommate havent dominated with your wierdness

Scuttle off parasite and get some fresh ideas you are a broken record

Does it occur to you that a sceptics forum, regardless of the subject, is not an opportunity for one person to teach others

You really should remain hiding under your bed in anonimity because you’re an embaressment

If i didnt have this filthy show i would be still living and enjoying my life, not dicking around on the internet

What’s your excuse?

nite gill miss ya

David, I don’t expect any answers from you, but you’re in a crisis, and there is help available:

http://www.health.wa.gov.au/services/category.cfm?Topic_ID=1

and the answer to your question “what is the point”

can be found in the next sentence of my posting

Quoting me out of context is brilliant.

Did you come up with that yourself?

And by doning that infer that im asking you for help

“what do i need?” you say

well if you read the next sentence after your quote

I wanted to know why a healthy person would want to dick around on the internet all day

Are you too big to fit through the front door?

Ive heard its quite common in your country

You have my sympathies

http://www.theparanormalreport.com/morgellons-new-disease-or-man-made-weapon-of-terror.html

Check your spam files for email slideshow. Thats where I found mine.

As an attatchment to a posting I made to a website I only looked at once

Rather than scare me off by the way, arseholes, you’ve actually made me realise I might have stumbled onto the right track.

There is a hell of a clue here

I just have to figure out what it is

Tallcotton — it’s pointless to argue with you. You’re an amateur and you don’t know much about medicine, or psychiatry. You probably even have fewer degrees and academic background than I, and certainly fewer publications, so this is a pointless argument that I’m not going to waste my time with…

Regarding chronic lyme. There is no controversy and it’s not speculation — it’s proven microbiology http://en.wikipedia.org/wiki/Lyme_disease_microbiology — the “speculation” and doubt is only if you listen to the HMO/insurance-funded scientists that have been paid to deliver the science that results in profits, not payouts for long-term, open-ended treatment. And again, the controversy is not for you to decide.. that’s why the Connecticut Attorney General is suing the infectious disease society of america in an antitrust suit ( http://www.the-scientist.com/news/home/49605/ )

“The question is whether there is a denial of coverage
to patients and doctors as a result of inflexible
standards that are then adopted by insurance
companies,” Blumenthal told The Scientist, adding
his office has not ruled out extending the inquiry
to insurers. According to the America’s Health
Insurance Plans, a Washington trade group, major
medical insurers do not cover chronic Lyme disease,
citing the IDSA guidelines in their medical coverage statements.

………….

Michael — Lyme has everything to do with Morgellons. Most Morgellons patients test for lyme (using ILADS diagnostic guidelines, not bogus CDC ‘surveillance’ testing using ‘lymerix deleted bands western blot’ which is also supposed to only be used for surveillance). Most morgellons
patients have the “lyme signature” IgG subclass 1-4 pattern,
and significantly decreased CD-57 (NK1) counts. I would imagine
that the immune deficiency triggered by Lyme, predominantly,
but also by Chlamydia Pneumoniae ( http://cpnhelp.org ) could also
be triggered by other factors in absense of Lyme or CpN (such as bad diet, stress, drug abuse, etc). This might account for skin lesions
in drug abusers that would respond to antipsychotic meds, since they would not need be to abusing immunosuppressing drugs while psychotropically medicated (they were probably using drugs to self-medicate anyways, so psychotropics may be appropriate for drug users that have morgellons). Unfortunately, for Lyme or CpN patients, independent of the level of psychotropic you give these patients, they will still remain immune-deficient, due to the underlying infection. And will therefore continue to be plagued by opportunistic infection of the morgellons parasite. UNLESS GIVEN LONG TERM ANTIBIOTIC TREATMENT such as the http://cpnhelp.org CAP or a very skilled eradication of Chronic Lyme (including cyst form, which requires extended metronidazole or tinidazole treatment, which just happens to be part of the CAP). Thus, IMHO http://morgellonstreatmentsteps.com/Morgellons_Medical_informat.html#correct_treatment
represents the best diagnostic&treatment guidelines for Morgellons.

Of course, in other countries, where research in ticks and detailed electron microscopy of tick-gut flora is allowed/funded, they’re noticing the same “cocktail” of infections in ticks — a lyme-like spirochete,
chlamydia-like nanobacteria, and mycoplasma. Of course, nearly all
ticks contain microfiliaria (dr. burgdorfer discovered lyme by accident while investigating “microfiliaria of exceptional size”) and many also contain plant bacteria (possibly including agrobacterium). As my
Lyme doctor says — “ticks are the sewer of the insect world.”

That is my one disagreement with Dr. Harvey, however, when
he says “it’s not lyme disease” he means the specific symptoms attributable to the “morgellons” opportunistic infection and not lyme.
Lyme disease, as a separate clinical entity, has it’s own diagnosis
and treatment protocols independent of Morgellons, and I’m sure
Dr. Harvey’s distinction between Morgellons and Lyme is to not confound the “morgellons controversy” with the
It is the years-long process of eradicating lyme / CpN / chalmydia pneumoniae that allows the immune system to recover, and for the parasitic “opportunistic infection” to be eradicated through a combination of antiparasitics and the body’s natural immunity.

What Dr. Harvey hasn’t done in his current study
in appropriate detail (because it remains to be proven) is what
pathogen sets people up for the immune deficiency (a documentable, part of Dr. Harvey’s data) for which the morgellons parasite becomes,
like Kaposi’s Sarcoma in AIDS, an opportunistic infection. In advanced
stages, this ends up being an opportunistic poly-infection as mysasis has been documented in florida morgellons patients.

In terms of dermal manifestations, most dermatologists are woefully untrained to recognize the many dermal presentations of Lyme. These typically can include erythema migrans rashes and in europe, acrodermatitis chronicum atrophicans (I’m spelling these from memory, so excuse any mispellings), but also numerous other skin conditions
routinely misdiagnosed when a chronic infection is to blame. For example, rosacea … where they give topical metronidazole claiming it has anti-inflammatory properties… but the reality is that it is a potent antiparasitic and in-vivo, capable of killning the cyst form of borrelia. Borrelia have a preference for hair follicles, and a number of follicular diseases, e.g. tufted-hair folliculitis, should have Lyme disease (which can also manifest 299 other symptoms
other than folliculitis and other follicle-related infections) as differential.

As far as all your talk of “proof” very little of what you speak of — psychiatry — has any proof whatsoever. There’s no proof of the efficacy of any of the psychotropics misprescribed for a DOP misdiagnosis of Morgellons (they’re clinically distinct entities according to Lyme-literate psychiatrist Bransfield). It’s going to be absolutely impossible to perform much of any “evidence based” experiements on humans with morgellons because it would be unethical and unworkable. The disease manifestation is severe enough that it would be illegal to have “controls”
receiving placebos, and patients would be in enough physical discomfort that they’d end up debriding their lesions themselves and applying various topicals in an effort to relieve the physical discomfort. Claims of “self mutilation” should also be applied to people that remove splinters from their fingers, or glass from their feet, because Morgellons is no different. Painful foreign material in the skin, which if not completely removed, will continue to grow and will eventually cause even a healed lesion to re-erupt. And Michael — you can fake up all the pictures of Morgellons exudate on your own website for the purpose of pissing off Morgellons patients, but given that you’re were unwilling to meet with Brandi Koch or other morgellons patients to even have a look-see yourself — i can only speculate your real reasons for wanting to inflict hate-speech on morgellons sufferers.

Because, as Dr. Harvey says ( http://www.eblue.org/article/PIIS0190962207001958/fulltext )
“To anyone willing to look and listen, all patients with Morgellons carry elevated laboratory proinflammatory markers, elevated insulin levels, and verifiable serologic evidence of 3 bacterial pathogens. They also show easily found physical markers such as peripheral neuropathy, delayed capillary refill, abnormal Romberg’s sign, decreased body temperature, and tachycardia. Most importantly they will improve, and most recover on antibiotics directed at the above pathogens.”

The evidence is self-evident. The purpose of this website isn’t, unless
one speculates on the Quackwatch/Barett viewpoint that underLIES this site.

I see a lot of copy and pasting. I find that often, when people copy and paste, it is because they are taken in by the “scientific” sounding words, and actually they personally have little understanding of what it means or how it relates to the point one is trying to make. Consequently, I would like to encourage people to re-iterate research they copy and paste into their own words, to first, show evidence of personal comprehension, and two, be more direct with their point.

Whatever that commonly shared hate filled state is, causing so many of these patients to go into their one-sided argumentative mode to try and get people to consider the existence of “morgellons disease” resonates something very unique. The worst problem with it seems to be a self-induced development of an increase in their fears following their emotionally charged releases. I really feel badly when efforts to communicate with such people fail, but they seem to want that. I don’t know if some of them have ever known any other way. It’s plain sad, it is.

Hallo there,

I really feel along with the victims of this disease and I would like to give you herewith some informations that might be usefull to understand and maybe heal this man-made disease. Don`t expect anything good from doctors, because they will not only laugh at you but maybe even poison your body with even worse things trying to treat something they have no clue of. Excuse my bad english, it is a foreign language for me.

I will try to make you see how easy is to understand this disease, the cause and the healing if you have the right knowledge. We use first some logic and some real life examples to make you clear that this is a mistery sickness only because of the lack of knowledge and right thinking of the medicine and people.

1. Plastic things or fibres that come out of the body MUST come from outside of the body, through inhalation, breathing, food, etc. It is wrong and even ridiculous to take in consideration that such things would develop within the body. The source of the disease MUST be the pollution of the enviroment, food, etc. with THINGS they should not belong there. This is nothing new: we had “poliomelitis ” as a result of DDT, we had a lot of lung cancer because of asbest and other things, we have alzheimer as a result of aluminium, we have a lot of things because of the plumb, mercury, etc.

So now we have something in our body that wants to get out and the doctors are astonished – till today they dont want to face the truth that they have no clue of toxicology and nutrition and most disease are cause by them – and powerless. Besides this the media will try to cover up the morgellons and try keep the sickness as a mistery because the governement – or better the shadow governement – is the real creator of the sickness.

2. It is a natural law that the body tries to get everything foreign out of it, if it can! Everyone noticed this when we stick our fingers with sharp pieces of wood, metal or glass which remains under the skin.
So it is unlogic to think that an artificial fibre must be a kind of “worm” just because it moves out of the body. The body expels the fibres out of it, the way it can, which is individually diferent.

3. The fact is that only certain individuals get these artificial fibres in their body and others not, altough the live in the same area means the source of the foreign material is different or some individuals can cope with the foreign material in the body better than others.

Conclusions:
1) No everybody will eliminate foreign material in his body by the skin through pain causing the disease called morgellons.
2) This sickness cannot be contagious
3) The origin of the foreign material should be sought in food, air, tap water, medicine tablets, wrap paper, plastic containers for food or beaverages, food, everything containing nanoparticles or in secret experiments done by your governement.

Something that indicate a secret experiment could be the isolated appereance of the desease in only certain areas. If the disease comes up everywhere or randomly than the habbits of the pacients should be gathered and analysed carefully : food, medicine, treatments, containers for food and beaverages, etc.

4. A foreign material in the human body which is too big or cannot be solved and absorved in the human cells to be expelled the normal way is usually expeled by movements of the cells that helps expel the foreign meterial out of the body.

This might create the impression of a worm moving underneath the skin that tries to get out. This is something that most morgellon victims describe. Some other times the object is isolated and cause a wound and the object can only be retreaved through operation.

The entity, the intelligence that controlls all functions of the body (the body does not controll itself as most people think, nor the brain controlls it) is very intelligent in doing that and should be helped to expel the foreign material.

This can be achived in two ways if you know which is the entity who controlls and sustain the body functions and how the body works:

a) Give something to the body that makes it for the cells easiers to pass the foreign material to the skin, towards the surface.

Here I found somebody who succesfully got rid of morgellons this way. See the video in Youtube:
“Connie Tells Her Story of Triumph Against Morgellons”

http://de.youtube.com/watch?v=XcL8HvA7sME

Something that could help are “Schuessler Cell Salts”, homeopatic Remedies; plants, teas, Hildegard of Bingen Remedies and others.

b) The best way is though to make this “entity” stronger, so it can deal with the foreign material and sickness in the body better than at the present. This entity is nothing but the soul. This is the intelligence that has the mind, the concionsness, this is what we are, this is why dreams and forecast, feel, think, remember. This is also
what your governement doesnt want you to know you posses.

Most people think soul is something without form, but this ist not like this.
Our soul is like our a human body but made out of light material and it doesnt die, but it can get sick and weak and here is the cause for most diseases.
This is the light or etheric body people talk about.
This is actually also what doctors call a “immune sistem” or the thing that get sick in the chinese medicine, before the body itself show the manifestation of it.

A sistem that can function without inteligence and knowledge is as stupid as the thought that a computer would work without processor, the programm and the programmer. So an immune sistem without will, consiousness and intelligence cannot exist.

This introduction was necesary to understand how to make the soul stronger and healthier so it can have the power of expeling the morgellons easier or even solve them away if this is possible.

This can be done with only 3 methods or with methods related to them, as long as my knowledge goes :

1) Solar remedies. Barely known, but best medicine on the earth.

See original book from 1851 by Jakob Lorber, recevied through divine revelation
http://www.scribd.com/doc/417959/Healing-Power-of-SunlightJakob-Lorber

There you can read what the soul is and how healing occurs. I hope you realize WHO wrote that book…

I use these remedies myself for a long time, mostly not for myself. Amazing the effect, but who wonders anymore when one understands WHO gave the recepies to the mankind ? One doesnt need any other kind of medicine anymore if you have them. No exact diagnostic needed, not even a doctor. They makes the soul strong and thus the immune system strong.

These kind of remedies can be made by yourself (cheap and easy) or can be bought at:
http://www.nuhrovia.com
http://www.miron.ch
or 2-3 more places in Germany (Google)

2) homeopatic remedies given by a very good doctor. Homeopatic remedies
must hit the lack of a certain etheric substance in the soul, if this is not the case
the remedy is in vain.

3) Best and most efficient way is a spiritual healing through a heart prayer directly to Jesus Christ (means you have to believe yourself strongly) or through somebody
who developed his love to Jesus and to people so far he can lay hands in HIS Name ( this means you dont have enough believe yourself and you will have to look for and find somebody like this, but not a fake or a profit oriented one, or even a sect member !)

Besides of the healing, if it happens of course, the patient comes through this to more belief and to another consciuosness. This also cost anything and has the most win from a sickness. Because every sickness changes us and makes us open for things we were closed or unreachable before.

Now let`s go to the last part of my informations:

Where are these strange things in the body comes from ?

I dont know exactelly where they comes from, otherwise I would be one of those involved with secret experiments or poisoning of the population.

I only can assume and the reality and what the past thought us tells me that I cannot be very far away with my presumtion. One thing is though excluded: Aliens. This is bullshit and governamenntal desinformations made on purpose for the more naive among us. Don`t believe anything where you see UFOs, Aliens and this kind of stories
.
The US Governemant have flying sauccers and secret technology long time, but there is not a atom of an “alien” here and it cannot be. Thanks God, this is what we still miss here !

So in my oppinion the morgellons or the morgelon causing material is/are one of the following things:

1) Things sprayed daily from planes, the so called “chemtrails” which get into our lungs, water, food.
2) The effect of some other secret experiment with certain substances in certain areas
3) Nano particles – one of the most dangerous things for our health – that right now are pushed massive on the market. You find nanoparticles in food, medicine, paint, cement, toys, etc, soon on almost everything. It will be a major issue in the next years, if no wars or big economic crisis will cover them. It will be the same as with DDT, asbest, radioactivity, ultrasound. Designed to do evil by the most evil people on earth.

Nanoparticles could maybe stick together to form fibres and they get expeled this way.

Sillciumoxid is almost in food and medicine, Titanoxid in toothpaste, paint, food, cosmetics, etc. One should avoid industrial food and standard cosmentics.

Read this:
http://www.organicconsumers.org/forum/lofiversion/index.php?t21.html

—————————————————
In order to understand and accept that your governement is doing such things – it is not easy – you should inform yourself, watch the sky and some TV reports :

http://de.youtube.com/watch?v=9Wy-hgorBmU
http://video.google.de/videoplay?docid=-2815881561030958784

http://www.youtube.com/watch?v=PVZAChMUa0Y

http://www.youtube.com/watch?v=5FBoDUFoTkI

NBC Report. Chemtrails over California
http://www.youtube.com/watch?v=iIAWWL4HQDg

http://www.youtube.com/watch?v=MVc9GX5K_As

http://www.youtube.com/watch?v=SDnWNMI4ZO0

Aircraft in form of a ball spraying together with a normal jet:
http://www.youtube.com/watch?v=u_lBfsJ_5J4

One more thing spraying which is not looking like a plane
http://www.youtube.com/watch?v=PG6hfWt5p9Y

Time Lapse Videos
http://www.youtube.com/watch?v=tXhbsBCIG90
http://www.youtube.com/watch?v=mE_QNQRLAW4

Fallout hanging on the trees.
http://www.youtube.com/watch?v=8vck8rNAcSE&feature=related

Pictures of weird particles fallen from the sky which look similar to the morgellons:

http://www.flickr.com/photos/coloradomtnmamma/sets/72157601360839927/

Take a look also for the 911 Movie “Loose Change”:

http://video.google.com/videoplay?docid=-7859909765349743827&q=recut+loose+change+deutsch

—————————————————————
It might be a small step for the humanity if you wake up to understand the truth,
but it will be a big step for yourself !

Jesus bless you all.

A guest.

Regardless of whether the state of mind “morgellons disease patients” are in is the result of the paranoid delusions of an underlying mental health condition, or whether it’s a result of the effects of coronary artery disease, kidney disease, cancer, endocrine disorders, nutritional deficiencies, prescription drug side effects/interactions, illicit drug/alcohol abuse, or any number of known conditions they are oblivious to, because of their compromised state of mind, many of the “morgellons disease patients” have permanently destroyed their central nervous systems with intentional pesticide applications and ingestions. Such patients apparently believe that it’s perfectly acceptable to try and act as though everyone is expected to look upon them as though they’re extreme environmentalists, as they also expect to try blaming their poisonings on someone else.

Now, I, personally, don’t think it’s correct to say that such patients poison themselves “intentionally”, but that’s what it’s called.

Health & Safety Report from the California EPA, on Pesticide Morbidity in California, 1994-1996

http://www.cdpr.ca.gov/docs/whs/pdf/hs1822.pdf

Excerpt from the Executive Summary:

This study integrated information from the major sources of health data (hospital and poison control records) with the records of the California Pesticide Illness Surveillance Program (PISP).

The document was revised in May 2004, but the only reason I’m citing it is to illustrate a point.

From page 3:

The PISP lacks information on non-occupational cases, especially those involving intentional exposures and pre-school-aged children.

From page 8 of the report:

Pesticide exposures were classified as intentional if the record indicated that the person intended toxic exposure to occur. The following exposures were classified as unintentional: exposures incidental to using a pesticide for its intended purpose, exposures that arose from misunderstanding about the nature of the product, self exposures of children up to 12 years old, and older individuals who expose themselves while compromised by dementia, intoxication, or an acute psychotic episode. Exposure in attempting to treat delusional parasitosis, however, was classified as intentional.

Back when I had authored a topic that included the National Pediculosis Association’s with “morgellons disease” in its early days, I’d noted that the president of the organization fully appeared to appreciate that the overwhelming number of reports she’d received after a publishing in the Ladies Home Journal on Lindane poisonings were, indeed, reports of poisonings. Then, she got sucked into something else, altogether, for some reason that only she knows.

From all I’ve read, some “morgellons disease patients” probably have poisoned themselves, and their kids and pets, unintentionally, ignorant of the correct way to rid themselves of head lice or scabies, and they also developed DOP, continuously repeating the poisoning processes.

While I realize that, whatever the cause, some “morgellons disease patients” fully intend to abuse pesticides, dewormers, and other toxic agents, it’s still difficult to for me to think that it’s considered as “intentional”, when patients with such compromised reasoning skills can’t be accountable for their actions.

THE BURDEN OF SKEPTICISM REQUIRES INTENSE HUMILITY IN THE PRESENCE OF AN UNKNOWN UNIVERSE!!

In http://www.eblue.org/article/PIIS0190962207001958/fulltext
I noted the following passage:

“Carl Sagan captured this essential professional obligation in an essay titled “The Burden of Skepticism.” He saw the essential task of every truth seeker to balance credulity and skepticism equally, impossible without the trait of intense humility in the presence of an unknowable universe. Within such a context, we as physicians must see disease names simply as labels and defined disease boundaries as crude guesses that continually evolve.”

Sagan C. The burden of skepticism. In: Frazier K editors. The hundredth monkey. Buffalo (NY): Promethius Books; 1991;p. 1–9.

Michael — as a admitted fan of Carl Sagan (as per “Herd of Swine” on http://www.encyclopediadramatica.com/index.php/Wikipedia ) — where’s your intense humility in the presense of an unknowable universe?

Why hasn’t your definition of disease evolved past the barbarities
of medicine in the past — DOP and electroshock therapy being of the same vintage of psychiatric quackery, and completely unfounded
pseudoscience that cannot be backed up by any honest attempt at “evidence base medicine.” ???

I can see a pattern nearly all of them have been diagnosed with delusional parasitosis in the past :O

Ali

Roselle said: “My Oncologist once asked me if there was “Any history of mental illness” in my family. I replied: “Ofcourse, but none that’s been documented”.”

I know you’re experiencing a painful situation, but I found that so cute and amusing I laughed aloud. Who amongst us wouldn’t say the exact same thing?

TheGoodGuys,

In regard of the fact that patients, having what they consider to be “morgellons disease”, possess histories of repeatedly lacking the ability to accept diagnoses and follow-up, leading to further decline in their lives, I think everyone can empathize with your feeling the ways you do. Based upon everything I’ve been made aware of, so far, I’m of the opinion that the medical community and public authorities have performed their duties, but that such patients as this need someone assigned to assist them. Is that the solution you hope to foresee in the future?

Sincerely, Smileykins

Hi “Good Guys”,

I’m unsure about why Michael’s retirement status or career is of importance? Please explain further.

I’m confused about why it is important the amount of time Michael spends on the website is important. If he is making claims that contradict evidence you can present, then should the claims be the issue, not the amount of time?

I’m confused about your statement “We know for a fact Morgellons is more than a disease caused by mysterious fibers.” It seems to me that, boiled down, your sentence says “We know for a fact that the cause is a mystery.” Could you explain further?

Excuse me, TheGoodGuys. Even though your username is plural, I admit that I’m guilty of always being under the impression that one person is posting a comment. I didn’t mean to offend any of you. Morgellonswatch is just the name of this blog, which discusses “morgellons disease”. There is not any type of organization behind it. Do you have family, and how long have you been ill?

Here’s the thing about “Morgellons Disease”. If you are skeptical of it’s existence, you cannot contract it.

Many people have these symptoms as they are very common. I have a friend who exhibited all the symptoms of “Morgellons” however, he had never heard of the “disease”. He went to the doctor, was diagnosed with something else entirely and told that his sores and legions were caused by scratching, took his prescribed medicine, and now it perfectly healthy. However, were he predisposed to believe that he has “Morgellons Disease”, perhaps he would have ignorantly ignored the doctor’s instructions, BECAUSE THAT IS NOT WHAT HE WANTED TO HEAR.

This brings me back to my original point. Unless you have foreknowledge or “Morgellons Disease” and are willing to believe it exists contrary to scientific facts, you cannot suffer from it.

To those that feel they suffer from “Morgellons”, I feel your pain and I wish you the best. Most likely your symptoms are real. Only your belief that you are suffering from a specific disease it incorrect. You have to help yourself though and the only way to do that is to listen to your doctor and be open-minded about his diagnosis. If they tell you that the fibers are from material, listen to them. If they tell you the sores are from scratching, listen to them. Your doctor wants to help you but cannot unless you allow yourself to believe that “Morgellons” may not actually exist. Once you can do that you are on your way to recovery.

So, you *think* you have Morgellon’s? I *think* I did, too. I got ‘bit’ on the back by something cleaning up litter in Pittsburgh in March, 2006. This THING temporarily ruined my life, which was made only worse by the CDC’s denial and total INactivity and the parade of ‘doctors’ who misdiagnosed me.
I immediately felt feverish and flu-like that day. I got sicker and sicker. I was tired, achy, grumpy, my stomach made weird noises. I had no endurance or strength, I was in fear something would jump out of my skin or I’d infect someone – I laid around alone and cried in pain, depression and fear. IT affected all of my systems and made me sick to the point I almost couldn’t fight.
When my right eye took on a new nervous twitch and I suddenly couldn’t spell one day in April 2007, I began to look for answers on my own.
I’ve already read of two Morgellon’s suicides and I can NOT stand to read of any further suffering. I can’t stand to read of people hurting themselves by bathing in Borax and Bleach anymore (don’t hurt yourself – kill IT)! When I read of all of US, and what we’ve seen and had to go through, it made me weep.
I’m NOT a ‘distributor’ of these products, nor will I ever become one or take any money or perks from this company, purposely so that my conscious is clear when I tell you: I *think* I had Morgellon’s and I *think* one or two of these weird herbal pills cured IT. The ‘Arthropodex’ made me YAWN for the first time in almost 2 years, it also caused HUNGER to return, along w/ the return of the NORMALCY of 2 different bathroom activities. I only began taking Arthropodex on 12/11/07. I feel like it is still working in me. I *think* I am beating this!
Today, for example, it sounds like a small bear is trapped, roaring in my stomach – a sound I heard for a few days in April, 2006. It seems like this THING is leaving me in the same order it attacked.
What I don’t know is if the ‘Morgonex’ I took around Thanksgiving is necessary or if I needed to take the 2 together or if the Athropodex alone is going to kill it totally. Keep in mind, I quit taking the Arthropodex 10 days ago and some things are still going on with me, so don’t get upset if you aren’t finished healing after it’s 7 day course is taken.
I want to help people get well as quickly and inexpensively as possible, so please email me and let me know exactly what worked for you (I’m not a doctor, I’m not a health store person, I’m only trying to help anyone who’s going through the hell I just did…but if I had to through this again – I’d say definitely take Arthropodex, for sure, and if you can, you might want to take both Morgonex and Arthopodex together, at the same time. I don’t think it’s anything ‘mutated’ (but who knows?!) and I didn’t try any of the lotions. I did the weird zapping and the Remote Muscle Testing, which did not work for me.)
http://www.precisionherbs.com/index.cfm?fuseaction=category.display&category_id=357&CFID=106424&CFTOKEN=44098840
Through my tears, asking “Why Me?!” – this feeling came to me that I cannot describe. I know this happened to me there, that day, so that I would help and protect others.
This company is closed for the holidays, but they ship very quickly and you can start to take your life back as soon as 01/03/08!!!
P.S. Know Anyone Who’s Lactose intolerant? I became that suddenly, too – within 11 days of when I got ‘bit’! I think IT was laying eggs in me (Ew!) Anyone who is lactose intolerant may want to give this a try, as well! Additionally, Gee – I got my first-ever gray hairs right in a line with marks IT gave me on my neck…Perhaps our CDC would have helped US if IT didn’t make the pharmaceutical companies and the medical industry trillions. There are wolves among sheep who seem to have been paid to post things to distract, frighten and hurt US. You can’t put a patent on naturally occurring elements such as roots and herbs, my friends. This cure will cost them all trillions, forever. I strongly believe that is what this is ALL about. Let’s help each other J
http://www.enviro-girl.com
email – enviro-girl@hotmail.com

I have to P.S. to those who say it’s an excuse to drop out of living to claim to have this disease.

Those of us with morgellons do not use it for sympathy. On the absolute contrary. Most of us cover our sores with makeup and long sleeves and are ashamed that anyone would know. I have been gainfully employed for the 16 years I have had it and I hide it out of shame because it looks so infectious. There is crushing shame to being visibily covered in sores and “post lesion hyper-pigmemtation”, that is, once the long-living sore “heals” the evidence of it having been there is a dark discoloration that can last for months and months–on skin that is never again afflicted or disturbed.

We who have it, soon become researchers into our own problem because the medical community, until recently, has turned their backs on us in a cruel way.

There are so many quick and insensitive comments made here, and so many “off the cuff” conclusions drawn, made toward people who are suffering terribly, who aren’t mentally ill absent, perhaps, having to deal with such uncertainty. Most of us live PRODUCTIVE lives despite this mysterious problem. And yes, we try anything (some of us go farther than others) but you would too try anything with even a hint of promise.

I don’t know if it’s an infestation. I’ve been tested for parasites and have none. I’ve been treated for all sorts of parasites, but have none. I don’t know if it comes from within or from without. I just know that I leave my skin alone to do what it will; I keep it clean; I try to eat right, drink lots of water…and every once in awhile I’ll bandage myself up with antibiotic ointment, or use powder, or hydrocortozone cream, or something I haven’t tried before…but the fact remains that there’s a missing diagnosis here.

Unkind words, and casual conclusions cut us sufferers deeper than any lesion we could possibly suffer with. Those who say we are hurting ourselves, or killing ourselves, should not prey on those of us who are downtrodden by something that modern science cannot yet explain.

Angie

Michael, Please accept my apology for my sarcasm on some of my prior posts. I know that I said some things that were not very nice. I get upset and then I get carried away, I’m sure that that is some kind of dissorder, but I will say again that I am sorry. I guess I completely forgot why you have this blog. I will try very hard to refrain from insinuating things that I personally can’t prove. That Nancy Hinkle thing on the ringtones is back on the recent comments board, just in case you havn’t seen it yet. I would like for you to post my comment to Angie if you would. It is nothing bad, and points out some things that are facts about this illness, whether it be delusional or physical. I also wanted to comment on Tallcottons post just above Angie’s. I’m not sure who they are, but that comment was not offensive and well stated. But he made a statement about most people have been given a diagnosis of, and I am not quoting because I can’t refer to his exact words right now, a physical illness associated with a mental one. That may be true. But everyone has not been given a proper diagnosis. I went to my personal md yesterday for my prescription refills. I talked to him about all of this again. He was very nice. He asked me for the first time about my biopsie report that was taken over two years ago. My doctor is primarily a script doctor, although he is very intellegent. I discussed treatment with him, and I asked him to go back and treat me for DOP, to see if that is indeed what I have. I also asked him about antibiotics for the sores, he is reluctant to do either. He was kinder than he has ever been about this problem. It has been very stressfull for both of us. After reading the biopsie report, he wants me to take vistiril for a while. The report suggested an arthropod attack or a drug erruption. He gave me allergy eye drops, and the vistiril. He is going at it at the allergy angle for right now. He told me if I am not significantly better in two weeks, he will start treatment for DOP, and if that doesn’t help, he will send me to an infectious disease doctor, although he said yesterday that he thinks that it is purely dermatalogical. I do get paranoid sometimes, but you have to understand where I come from. I have been very sick for almost three years. I have just now got to where I can talk to my doctor without feeling like he thinks I am nuts. I probably have been at times. But I am not crazy, I may have DOP, but now my doctor doesn’t think that is the case. I am just the same as alot others, in limbo. All I, and probably the majority of others on your site, am asking for is for the CDC to get the show on the road. I know what you stand for, you want proof of a new emerging disease, and you know that there has not been any produced. I also want proof, of whatever it is. I understand where you are coming from, seeing all the hysteria. I am not hysterical, I am just tired of waiting. I say the things I do on purpose, to get someones attention. You and I are after the exact same thing. We are not enemies, we just believe differently, that’s all.

I have stumbled onto morgellons while researching chemtrails. I am more and more convinced that there is a massive cover up and disinfo campaign surrounding this issue. I would remind all paid disinfo agents that we are infinite spiritual beings and nothing remains hidden forever. My prayers go out to all the suffering people who are the victims of this hideous nwo plot.

Brooke, please contact me at v.mattie2.gmail.com. I would like to talk to you privately about the treatment you are doing. Thanks, and God bless!! Niecy

jim jones, Do you have proof about Bill and Melinda Gates?

The only proof is that theWHO has left in its wake a devastation of disease and sterility. Ebola and AIDS were manufactured viruses and Bill Gates Father is a known geneticist. Also doctors arrive en masse to deliver the injections so as to preclude escape from this western genocide. When you look into the people that control the big NGO’s you find the trillionaire illuminati crowd that have the stated intention of reducing the worlds population by several billion. And if any one of these people gave a shit about the third world or us for that matter why does everything always get worse. Between the Rothschilds the Rockefellers and the Queen of England is the majority of the wealth in the world. Gates is just trying to ingratiate himself with his betters.

Jim, Do you really believe someone created this thing? Do you have any links for your theory? I am a sufferer of something that greatly resembles Morgellons.

Chemtrails do not exist.

They are as heavily debunked as Roswell, the sniper on the grassy knoll, or aliens at Area 51.

If you insist on perpetuating this insanity, do so in a fashion that is not analogous to magic.

Chemtrails I can see with my eyes. The motives of Mike are far more mysterious. I would like to know who is paying his bar tab. The powers that be are even more mysterious but that does’nt make them go away. I just heard that thing about the weathermen so I really don’t know. Still its odd that these huge white stripes are so obvious from the ground yet you will never see them from space. Not quite true .Google chemtrails from space. And get mike to describe the emporers clothes.

So Jim, who is Mike? He work at NASA or something?

Has anymore considered that global warming plays a major role in this condition?

I guess you would have considered this.

Well I guess I’m “global warming ready” now thanks to Morgellons.

Genetics also.

Mike must also be Michael, the owner of the site…and the owner of this site must be somebody w/something to cover up. (why else would someone make this site, set up to confuse Morgellon’s victims and deny them further? Kind of obvious…)
I notice every time I’ve spoken the truth and/or implicated the GOV – the name I used is blocked the next time I return, so I’ve had to use a different ‘name’.
Ha, ha it’s me – Enviro Girl, Brooke and Mary Leitao’s My Hometown Hero…Duh – You gotta get up a little earlier than that to shut me up.
So much for free speech – Here you may post ONLY if the siteowner likes what you say. And they didn’t seem to like when I posted about a CURE, so:

http://www.precisionherbs.com/index.cfm?fuseaction=category.display&category_id=357&CFID=106424&CFTOKEN=44098840

http://www.enviro-girl.com
enviro-girl@hotmail.com

Are any of you joining in on the CDC’s telecast today?

I saw the info on the cdc making a public telecast. Any ideas on what it is about?

Enviro Gal Did you listen to the telecast? I did, they only let the media ask question. I will have to say the media asked very pertanent questions, but they WERE given some pretty evasive answers. I think the media will be who keeps the pressure on all of this.

That’s ok I will just send her a personal email:)

This is a really interesting website.

I’m curious, though; what is the physical/chemical composition of the fibers? Are they similar or dissimilar to ordinary fibers one finds in bandages, carpet, clothing, etc.? If they are dissimilar in key ways, wouldn’t this be the smoking gun toward a definitive diagnosis of the “disease?”

If they are run of the mill fibers found anywhere, no wonder the scientific community greets the postulate of Morgellons disease as a matter of great dubiety. Why would inorganic matter grow out of an organic wound? How could inorganic matter of familiar chemical composition stuck to a wound be considered definitive of diagnosis when nowhere in the history of medicine or science has inorganic matter grown in living biological tissue?

I think that you all should read this…http://www.parasitetesting.com/door/
scroll to the bottom and you will see this… Dr. Amin now sees NCS (also known as Morgellon’s Disease) patients for evaluation.
During an evaluation session, the patient’s medical history and environmental exposure are discussed, a diagnosis of NCS may be established, and recommendations to manage/resolve the conditions are made. Our phone number at the Parasitology Center, Inc is 480-767-2522.
Apparently, the real name of Morgellon is Neuro-cutaneous Syndrome and it is so very real. I wish that it wasn’t but it is. http://members.cox.net/llyee/neuro.htm
Please read first before flaming and criticizing. I think you will find it quite interseting.

RE: Recent CDC telecast on Morgellon’s
http://www.cdc.gov/od/oc/media/pressrel/2008/r080116.htm
Is this all there was to the big telecast or does someone have a link to the live, taped version?
Yawn. That’s the same ole song and dance we’ve been hearing from the CDC since August. What’s newsworthy about ‘nothing’? Did this info. go out to all news stations or just in towns where angry Enviro Girls have been posting on HERE that they got Morgellon’s in Pittsburgh cleaning up litter???
Mighty odd ‘The Big Study’ has made it into my local paper 2 days this week…What’s the point in putting out a new statement that says ‘nothing’? Who was that supposed to impress?
Pathetic: It’s taken since at least 2001 (longer – I’ve read of some having Morgellon’s for 15 years) – to even get a study promised…Mary Leitao, from my area, http://www.morgellons.org – had to form her own foundation to study Morgellon’s since no one would help her 3 children. If my GOV would have done it’s job properly – this would have NEVER happened to me in 2006.
See, I can sit here and put out news reports for the next 7 years that I’ll someday scratch my ass, too. But I’d probably just reach down right now and scratch my ass.
I want the CDC investigated for their mishandling of Morgellon’s/what they are covering up/how they can let the pain and suicides go on (Oh – and why did the only dr. in my area that treats Morgellon’s have to sign a waiver to refuse to treat Morgellon’s Victims if the patient is on gov-assisted health care? Not that they can pay for it out of pocket, he is not Allowed to treat them.) The ONLY answer can be greed and corruption…
Where & How does one begin to go about getting the CDC investigated?

Hey I’m just being skeptical here – but why is your website double-private registered?

First I get it registered to godaddy.com, then their information registers you anonymously to a further site, domainsbyproxy.

In all my times of looking up website ownership info I’ve never seen a site that secretive. Not one named e-mail contact! If you want people to think you’re on the payroll of some bio-disease testers or manufacturers then you’re going about it the right way.

mushroom_blotter: I’d have registered it privately also. Many of the people who believe they have a diseased named “morgellons” exhibit paranoid and / or spiteful reactions to the information on this page. I don’t blame him.

Smart People – What’s up w/the Agrobacterium being consistent in recent Morgellon’s Victims lab tests? Do ‘normal’ people have Agrobacterium?
Just read this last night and was, yet again, traumatized.
If I’m going to be able to crap out plants maybe I ought to forget about a Morgellon’s Cure and just open a nursery!

It’s not just Stricker. Others have tested for it and found it, consistently. So, I say again –

# Enviro Girl on 23 Jan 2008 at 11:18 am

Smart People – What’s up w/the Agrobacterium being consistent in recent Morgellon’s Victims lab tests? Do ‘normal’ people have Agrobacterium?
Just read this last night and was, yet again, traumatized.
If I’m going to be able to crap out plants maybe I ought to forget about a Morgellon’s Cure and just open a nursery!

http://patentbaristas.com/archives/2005/02/08/monsanto-and-bayer-settle-dispute-over-agrobacterium-technology/

http://www.usdoj.gov/opa/pr/1998/November/570at.htm

http://www.isb.vt.edu/articles/feb0504.htm

Michael – Do you know for a fact that all of this bio-engineered mutant AGROBACTERIUM that your EPA has allowed to be washed down the drain in research facilities from CA to PA, for the last 20+ years, is NOT to blame for Morgellon’s Disease?
If you say YES – Then, perhaps you should get your head out of your tookus and go read about medical professionals (in other countries that PROTECT their citizens) warning lab workers that worked w/agrobacterium, in even the natural form, that it has the ability to attach to human DNA in the same fashion it attaches to plant DNA? They warned them to get tested for Agrobacterium.
So now, the FDA has allowed this GENETICALLY ALTERED PLANT CANCER into your food supply – How retarded!
Show me a presidential candidate who’d vow to ABOLISH the special-interest serving CDC, FDA and EPA – and there’s where my vote would go.

Well, I don’t have a catheter in me, Michael. So, if my blood tests positive for Agrobac this week – I’ll be glad to post up a link to my test results for you to TRY to discredit and deny. (Maybe you can post up that ALL of the Morgellon’s Victims who test positive for Agrobac have begun stuffing BT corn up our bum-holes in order to sway the test results??)

2003 – “Over time, evidence has grown to suggest that Agrobacterium is among the plant pathogens that can infect animals and humans. Goodner has dug up more than 60 medical reports of opportunistic diseases caused by Agrobacterium. His interest lies in understanding the process by which this microbial menace makes its way into people with weakened immune systems”

http://publications.nigms.nih.gov/findings/feb03/seeds.html

Evidence? If there were any evidence on any of this, I guess we wouldn’t need to be ‘skeptically analyzing and investigating’ on fine websites such as this, no? Why don’t you all show me some evidence that AGROBACTERIUM is NOT responsible for Morgellon’s Disease?

Makes sense, people – AGROBACTERIUM IS A NATURALLY OCCURING PLANT CANCER, WHICH HAS ALSO BEEN GENETICALLY MODIFIED FOR PESTICIDES AND CROP PRODUCTION. AGROBACTERIUM HAD ALREADY BEEN PROVEN TO BE ABLE TO SPLICE ITSELF INTO HUMAN DNA, THE SAME WAY IT ATTACKS PLANT DNA. HUMANS AND ANIMALS ARE INFECTED, BY EVEN THE NATURAL FORM OF AGROBACTERIUM, JUST BY BREATHING IN THE MOLD SPORES OR TOUCHING INFECTED SOIL OR TOUCHING ANY PLANT AFFECTED WITH IT.
STILL, THE CORRUPT FDA WELCOMED GENETICALLY MODIFIED AGROBACTERIUM INTO THE U.S. FOOD SUPPLY IN 1996. SIXTEEN YEARS AGO. FIRST U.S. MORGELLON’S CASE I’VE READ OF – 15 YEARS AGO.
THE FDA, CDC & EPA ARE ALL TO BLAME FOR MORGELLON’S DISEASE AND HENCE THE MASSIVE COVER UP.
ALSO, MORGELLON’S VICTIMS, AS WELL AS THE MILLIONS (?) OF OTHERS UNKNOWINGLY, INTERNALLY INFECTED W/AGROBACTERIUM – SPEND TRILLIONS GETTING TREATED FOR ALL THEIR RESULTING AILMENTS FROM LACTOSE INTOLERANCE TO CANCER – BIG PHARMA ALSO HAS A LOT TO LO$E, FOREVER WHEN A CURE IS FOUND.
DOCTORS HAVE BEEN INTENTIONALLY TRAINED BY THE AMA TO MISDIAGNOSE MORGELLON’S VICTIMS – LOTTA MALPRACTICE WILL BE PAID DATING BACK TO 1997.

What a dirty deal with the devil. Bunch of greedy, corrupt clowns w/no regard for human life – playing GOD w/plants for the sake of the Almighty Buck.

Here’s an interesting link…

http://www.cdc.gov/search.do?queryText=agrobacterium&action=search&searchButton.x=26&searchButton.y=10

Sure, Enviro Girl, people with all kinds of confused thoughts and ideas can freely post them all over the internet without providing any proof to back up their declarations. The sharing of such personal thoughts indicates to others how someone like that feels about their experience in life, and the world around them, but it further creates more fear and confusion among others with similar thought patterns.

A gentle reminder:

# Enviro Girl on 27 Jan 2008 at 1:19 pm

Well, I don’t have a catheter in me, Michael. So, if my blood tests positive for Agrobac this week – I’ll be glad to post up a link to my test results for you to TRY to discredit and deny. (Maybe you can post up that ALL of the Morgellon’s Victims who test positive for Agrobac have begun stuffing BT corn up our bum-holes in order to sway the test results??)

Take care, Enviro Girl.
Smileykins

I am intrigued by this supposed illness. I have an open mind about it, especially since that baseball player died at such a young age with no reasonable explanation. It is seems painfully obvious that the owner of this site is close minded. Not only that, this site is obviously sniping at all Morgellons sufferers, and the snide tone is smacks of arrogance and close mindedness.

There are better ways to get the point across that this site does not believe. I think this site is more dedicated to the sadistic pleasure of the host of humiliating Morgellon’s sufferers. I wonder if the site owner is the type of human that would laugh at a little girl bleeding to death in a car accident, in her dying face, in fact.

In light of the hubris and sadistic pleasure which this site owner humiliates Morgellons sufferers, I hope the disease is real and I hope the site owner contracts the disease. Wouldn’t that be the ultimate in irony? A person who so joyfully laughs while humiliating Morgellon’s sufferers ends up contracting the disease himself would be too poetic.

If Morgellons is found to be real, will the sociopathic sadist who runs this site recant the humiliation, and post all over this site the stupidity, hubris, and sadism of the content of this site and will he post just what a jerk and an idiot of a human being he has been? If it is discovered to be real, there should be no place you can hide without everyone pointing the finger at you and exclaiming- “What an A-hole”.

If you had taken a less vicious self serving snide approach, and offered even the least bit of sympathy without the sarcastic derision, I would not be writing this. Too bad your mother did not teach you manners, or humility, or empathy.

Whats next on your list of debunking- are you going to tell us how the Holocaust didn’t happen with the same tone of hubris, derison and sociopathic glee? I am sure you have documentation proving Auschwitz was a health spa for Jewish vacationers along with your irrefutable proof that Morgellons does not exist, a collection of puss and fuzz from one of the many oozing acne sores on your skin. I bet you are so proud of yourself, aren’t you.

I wonder if Enviro Girl could raise some $ and offer it up as ‘a reward’…
to get some genuine evidence of the truth about who’s responsible for Morgellon’s Disease and it’s denial and cover-up?

Wonder how much $ The Truth would cost…

Hi, Kandy.

There’s no arguing that those who believe themselves to be ailing from something being called “morgellons disease” are ill. I think, for the most part, unless I’m misunderstanding how you mean it, that you’re absolutely right about the inability of delusions to create lesions. Lesions is a catchall word being used to describe a variety of skin signs that can be caused by a variety of many different things (and some “morgellons disease” patients even claim not to have lesions). Where the word delusion comes into play, is in a person’s interpretation of their experience, such as, what’s caused their lesions, or what’s caused them to be ill. By expecting doctors to practice medicine incorrectly, that’s even more of an indication of delusional thinking. A delusion is not visible, it’s something conveyed to others through spoken language, such as when speaking to doctors, or, through written word, such as can be found in abundance from some patients on the internet.

In answer to your question:

So are all of you for trying to make “liars” out of innocent people who are suffering.

NO, absolutely not, and I’m sorry you’ve misunderstood and been so quick to judge. Rather than offering your prayers (which makes no sense) try giving those, like me, who aren’t used to this phenomenon, a little slack, huh? Because, people who are familiar with telling the truth usually just don’t happen to get mad, evade questions, or vary, and embellish, their stories and shout out all sorts of obscenities. The “morgellons disease” patients want acceptance, but appear to only be interested in doing things that are counterproductive to it, creating, yet, a bigger gap and further distancing themselves from others. Can you explain why, Kandy?

Smileykins

i think all of you just need to sit tight and wait for the CDC to come out with results…people are ill and suffering…i for one have been very disappointed with the medical community in general….do you know how hard it is to get them to diagnose something that’s already in the books ?!!……. just imagine how scary it is when you go to a doctor and they can’t tell you what it is or how to fix it….just because it’s not in the medical text yet does not mean it’s not possible for something new to arise….i suffer, maybe not with “morgellons” symptoms, but it’s enough…i pray everyday for a cure….i also must agree with Kandy Griffin’s comment….

# Kandy Griffinon 27 Feb 2008 at 10:22 am
This site was obviously designed to “debunk” Morgellon’s disease.

Is it run by the CDC by any chance? LOL

Morgellon’s is real.

Delusions do not create lesions.

People are ill. So are all of you for trying to make “liars” out of innocent people who are suffering.

You should all be ashamed of yourselves.

I pray to God for all of you… for you know not what you do.

I itch, but not real bad. I had sores, a lot of them. I got rid of a lot of them with peppermint oil and a no sugar diet. I still have crawling senstions, drilling sensations, and I find little black specks on my skin AFTER I bathe in salt and peroxide. I take white and black specks out of my eyes all the time, regardless of what I am doing. I have black threads that I pull out of my skin, usually on my chest. The really bad part is the crawling sensations on my eyes and eyelids. And I am tired a lot more often. And I can’t think well anymore. MY boyfriend has it now. A woman he had sex with got it from him. So, if I am delusional, how did I manage to spread my delusion to others? My friends, who have known me for years, all take this seriously.

Lacy, I think that most people can discern that “morgellons” is not a disease (old, or new) based upon the facts surrounding the issue. This patient movement to increase awareness has, undeniably, brought more people, with similar problems, into the mix. And, some people, too, in the absence of concern over having all the facts, use less information, than the rest of us, to draw conclusions.

You’ve said:

…the fact is that nobody ever understands anything until they’ve atcually gone through it themselves….

And, while I happen to disagree with you about that, the fact remains that (haha, oh lordy) I have gone through “it” myself. Regardless, had I not heard of this “morgellons disease”, back in February 2005, and never looked into what all of those patients back then were talking about when they expressed anger at doctors for repeated diagnoses of “DOP”, all I had to do was read from the Morgellons Research Foundation site to see through it.

Never having heard of it, I had to look up what “DOP” meant, and I’d immediately known I’d been a survivor of it a few years earlier. That state is triggered through a lot of different conditions, and, respectfully, I used to painstakingly try communicating with “morgellons disease” patients by saying that what I’d had for a couple of months was an “acute” attack of their “morgellons disease”, as opposed to what appears to be “chronic” for quite a few. One doesn’t dare call it what it is, and they’re the ones diagnosed with it. I hadn’t been, but they showed me that was what I’d had. It is worse for some, and a very complicated state of psychosis to be in.

I’m sorry you thought this was something other than my own words:

Everybody has to maneuver the same difficult health care system, and the majority of us are very thankful to have treatments, knowing that wishing for cures for all of our ills isn’t feasible.

But, it’s essential to intimately know God for praying to be effective, and I couldn’t speak on behalf of other people when I’d said “wishing”.

The sufferings of others bothers those of us who also don’t condone needless sufferings too, Lacy.

Casey – Hi, I hope you are doing better…Better days are ahead, even if not – email me.

Wow – From all I’ve read so far from others – we thought this was NOT contagious. It was sounding like – if people in the same house/family contracted Morgellon’s, it was from exposure to the same unknown ?contaminant/parasite/lab creation whatever demonic thing this is?
Hmmm. Scary. What you must have gone through! I’m sorry it happened to all of you – this whole thing is biblically WRONG.

Can you email me off-blog so I can ask you something too personal for here about the ‘transmission’ to this other girl? I had/maybe still have Morgellon’s and I am kind of fixated on knowing everything I can about it & trying to help others – since I got IT cleaning up litter and then no one would help me – I’m not quite pleased w/how all of us have been treated…I’m kind of making it my personal mission to get right on down to the corrupt bottom of this all and then getting US all some real justice.

As 4 U/the 3 of you feeling better ASAP – I do think I can help. Email: enviro-girl@hotmail.com

See the “Important Action Alert” at morgellons.org

funny that you would be the one to make such a point sarah. most people who display the degree of empathy for others that you do are referred to in clinical terms as sociopaths. as for the terms used by the general public…… ahhh lets not go there. i’m sure you can come up with a few all by yourself. bye bye sweetie pie. hugs and kisses and all that good stuff…

Wonder how much e-medicine got paid to post that article & by whom?! (CDC?)

Boy, are they MISinformed – what a joke…

Hopefully, e-medicine will follow the precedent of the CDC and remove ‘Delusions of Parasitosis’ from their website, just like the CDC removed it from their website in 2003…

Q – WHY DID THE CDC REMOVE DOP/DELUSIONS OF PARASITOSIS FROM THEIR WEBSITE IN 2003???

A – It doesn’t exist. It was removed from the CDC’s website in 2003 to cover their tracks for being LEGALLY responsible for the MANY doctors MANY misdiagnoses of Morgellon’s Disease being mistaken for DOP/Delusions of Parasitosis.

ARE YOU ALLEGING THAT CDC IS CURRENTLY WASTING THE TAXPAYER’S MONEY TO STUDY A NON-EXISTENT DISEASE? That’s a rather serious allegation – What evidence do you have to prove that Morgellon’s Disease does NOT exist? Yes – NONE – Because it does exist. Current Evidence – Agrobacterium identified in EVERY single patient (not just Stricker’s – ALL OF US.)

I’m sure this comment will fall on deaf ears, but I’m compelled.

Enviro girl says” ARE YOU ALLEGING THAT CDC IS CURRENTLY WASTING THE TAXPAYER’S MONEY TO STUDY A NON-EXISTENT DISEASE?”

Non-existent and “not a specific medical condition” are entirely different. No one says it “doesn’t exist,” except people from the Morgellons community setting up a straw man.

And who said wasting? Again, a straw man.

The way science works is that if there is a claim, you test it empirically, and you assume that what you are testing will not come out true– the “null hypothesis”, and only when it cannot be explained otherwise do you accept the “alternative hypothesis.”

“What evidence do you have to prove that Morgellon’s Disease does NOT exist? Yes – NONE”

The people making the claim are the ones responsible for proving it. Furthermore, have you ever tried to prove a negative?

PUBLISH THE REST OF WHAT I POSTED, MICHAEL – GENETICALLY MODIFIED AGROBACTERIUM…MAD COW, SHEEP GETTING SCRAPPIE, SARS, BIRD FLU, 30,000 DEAD HONEYBEES AND MORGELLON’S DISEASE – NONE OF THIS EVER, EVER, EVER HAPPENED BEFORE GENETICALLY MODIFIED AGROBACTERIUM WAS PUT ON HAY & SPREAD ALL OVER AUSTRALIA, DID IT?! NOOOOO.
…GM HAY THAT WAS FED TO THE CATTLE, FED TO THE SHEEP, IN TURN FED TO HUMANS – EVEN THE NATURAL FORM OF AGROBACTERIUM CAN JUMP KINGDOMS – YOU SELF-PROCLAIMED SCIENCE DORKS SHOULD KNOW THAT FOR A FACT. EVEN THE NON-GENETICALLY MODIDIFIED FORM OF AGROBACTERIUM INFECTS EVERYTHING IT TOUCHES – FROM PLANT TO SOIL TO PLANT TO ANIMAL TO HUMAN – THAT SHOULD BE IN YOUR GEEKY SCIENCE TEXT BOOKS – BECAUSE THE REST OF THE GLOBE (THAT ISN’T CORRUPT) HAS KNOWN THIS TO BE FACTUAL SINCE AT LEAST THE YEAR 2000. BUT EVEN IN 2000, IT WAS ALREADY TOO LATE – IT WAS ALREADY EVERYWHERE…GENETICALLY MODIFIED AGROBACTERIUM – I WOULD BET MY SWEET-LOOKING ASS – IS PROBABLY WHY ORGANIC FOOD WAS EVEN THOUGHT OF IN THE VERY FIRST PLACE!!!
AND HEY, SCIENCE/FACT/PROOF PEOPLE-THIS HERE IS JUST A BLOG – I CAN SAY WTF I WANT, IT’S NOT MY JOB TO PROVE SQUAT – THAT IS GOING TO BE UP TO THIS PESTICIDE COMPANY’S DEFENSE ATTORNEYS – IF THERE’S ANYONE LEFT IN THIS COUNTRY’S GOV THAT ISN’T BOUGHT AND PAID FOR, WHICH I DOUBT…
THE SAME WAY IT’S YOUR RIGHT TO HURT INNOCENT VICTIMS OF MORGELLON’S DISEASE BY YOUR CRUEL, RUDE POSTS HERE – IT IS MY RIGHT TO REACH OUT TO COMFORT THEM & ALLEGE WTF I WANT ON THAT VERY SAME BLOG.

Michael ,, I am glad you changed to this name ,, on other websites they all have something to do with that desease , something always with bug or something in there..

Although I have visted your site several times in the last few years, I have to admit that I haven’t really studied it to understand why you are so adamantly opposed to the “Morgellon’s Syndrome” or whatever name you would like to use for it, so I am going to take the shortcut and just ask. What do you hope to accomplish by taking such an adamant stand against this, using so much obvious ability and talent to build a site, just to add weight to the argument that this doesn’t exist? Why do you care?

To clarify why I care – this crap (mostly just the little white worm looking things) knocked me on my ass about 5 years ago. I wish that you were right and that it doesn’t exist but I just can’t quite seem to convince these little round sores with the little white- colored, hoobie-doo’s sticking out of them that they are not really there.

I went through all the B.S. that the other nut-jobs have gone through – “Dr.Normal” thinks I am an insane I.V. drug user and can’t get me out of his office fast enough, “Hot-Looking-Dermatologist-Chick” feels my pain and shoots cortizone into them and tells me that this hundred dollar tube o’ shmear should clear it up… “Oh yeah, and try to reduce the stress in your life.” I left her office thinking, (not daring to say,) “What stress? I haven’t left the house in a year and the depression and fatigue are finally subsiding.”

So now, I feel pretty good. I still got spots, my brain has come to terms with that. I feel well enough to work again. occassionally I’ll search the web to see if any one figured out what the hell it is yet. And every now and then, I’ll snatch one of the little bastards out for a face to face under my jewler’s loop.

So that’s my angle…what the hell is yours?

Regards – Charles Henry, Oklahoma City

The reason that I wound up on your site again for the umpteenth time in the last few years, is that I just had another outbreak and couldn’t do much with myself besides spend my time fighting these litle buggers off, and searching the web for the latest news.

The way this thing operates, just about the time you have all them cleared up, and think you may have beaten it, they come back with a vengeance and it starts all over again -numerous little places to deal with: fight the little sore, hope you can get all of the small mass out of it so that the sore can heal, and try not to create an infection in the process.

There is also a bonus -you get to do all of this with a certain amount of fatigue and insominia! All of this fun while trying to maintain the belief that you are not fighting an intelligent little entity that is taking you over. Believe me, that is one of the hardest parts, these little suckers sure do seem to have been designed and alive, which, I am guessing is why, “Morgellans” has wound up in the UFO files.

During my five years of this cycle I have done just what I expect everyone else that is experiencing this has done -experiment. I have a small amount, of basic wound-care medical training, and have a medical proffessional in my family to consult with, and feel fortunate to have that. There is NO medical help, which only leaves you one option -try to figure out a way to at least close up the sores. I have come up with a process for doing that with fair results. I am not going to share that here, because the cure is almost as bad as the disease. Yeah, Disease. Just because someone hasn’t had one of these things on their ass doesn’t qualify them to dismiss it.

Your site comes up fairly high on a Google search, which I am guessing makes it a near-first stop for people with questions on this subject, sometimes people looking for help. The people that come off as “nut-jobs,” the people that seem so scattered and almost incoherent, I suspect are people that are in the early stages of this. People that are suddenly overcome by open sores that WILL NOT heal on their own. People that are watching their nice, smooth skin become riddled with holes. People that are being ridiculed by health proffessionals. People that are being put in a position of having to experiment on their own bodies, without training, in hopes of just being normal again. Experimenting on your own body is psychologically taxing.

Your blog provides a disservice to those suffering people, a further disservice to (afficted and unafflicted) people that may be trying to find factual information on the topic, and lends credence to it belonging in the UFO files. That is why I asked what your angle is. Expressing an “interest” in this subject hardly answers my question, but I think it may answer why you began the blog. I’m disappointed that it has turned into a place for suffering people to come to be told that they are crazy, by what seems to me, to be coffee house college kids without life experience or anything better to do.

So, in closing brother, I am gonna have to toss your blog into my UFO file.

I’m confused, Bish. Your cousin thought they had Lyme’s disease, but all of the Western blots that were negative were wrong, but a friend who confirmed your cousin’s self-diagnosis is correct?

I understand getting a second or a third opinion because doctors can be fallible, but for some reason your cousin’s friend is superhuman and infallible?

Thank you Michael, that is the reponse that I sought, and I do understand your position.

I would also like to thank you for not posting my last comments, which were embarassingly irrational. As mentioned in my last post, I have had a recent outbreak and it has convinced me of the “nut-job” aspect of this. There has to be some serious chemistry going on here. I would also like to stay around as a contributor, in a civil manner, who happens to have the opposing view. In light of that I would hope that you could post the following:

http://www.healthsciences.okstate.edu/morgellons/docs/Wymore-position-statement-2-19-07.pdf

Hi, Michael.

Thanks for cleaning up my post. I followed the link to the discussion regarding Dr. Wymores statement of finding. It caused some interesting discussion. I’ll be posting again.

Awful quiet around here, fellas. Guess I’ll give you a bit to chew on.

I just passed by here to check the date on my first post, 9 June, to mark the begining of the outbreak that I am (thankfully, gratefully,) nearing the end of. Rough ride, this one, second only to the initial outbreak. I managed to, (barely,) stay in front of the little buggers and there were plenty of ’em. The physical aspect of this is nothing compared to the mental. I have been on such a roller coaster of fatigue and depression. I managed to work my way through it with the support of my friends and my own determination to not be beaten.

I spent a bit of time sifting through the trash on the web, during the times when the fatigue would not allow me to work, and man, what a load of crap out there!

It seems that there are too many camps to count, one more loonie than the last, ranging from the idea that we are “ascending” to a higher level of being and that our DNA is going through changes, (based on documents from some “secretive authority that is -in the know,”) to the nano-bot attack theory, also supported by an authority figure. We have conspiracy folks with “chem-trails” and the people that blame the modified foods and, of course the french bottled water group.

Let me tell you what I KNOW about this: There are little white nemotode looking critters that ARE alive -on some level -that inhabit the dermis of some human beings. They colonize in circular-like formations under the skin and for whatever cause or reason, fibers are formed between the epidermis and dermis and even within the dermis and critters themselves. During high levels of activity, (reproduction,) by these critters, the host person endures serious chemical imbalance. I have pulled literally thousands of these out of my arms and shins. These are things that I KNOW.

Let me tell you what I “THINK” about this: I think that we are reaching the time when it is pointless to try to convince people that this doesn’t exist. WE are becoming too many. I further “think” that this could be a natural occurrence, (an evolution of an organism, that now has a taste for people,) however, “Me thinks the lady doth protest too much.” The fact that there is so much disinformation on the subject -that so many people have worked so hard to discredit not only the “syndrome” but the people afflicted and those that work to bring it to the forefront -leads me to think there is money and/or power at stake.

I think it is possible, if not likely, that this thing is “somebody’s baby.” This thing may have started as an organism to make the gypsy moth impotent or some other well meaning purpose -only to find that it had an undesireable side effect when it combined in an unintentional manner. We will likely never know, but I would bet dollars to donuts that there is some high-dollar signature on this shit somewhere -some little high-tech genetic doo-dad that can be traced back to some corporate or government lab, and they don’t want it found. Were that the case, I agree with ’em -the lawyers are rich enough. Whatever the case, they need to help kill this shit, because whatever city you are in, in whatever country in the world, some chemically imbalanced fuck is standing over his bathroom sink, ripping this shit out of his body, muttering things like, “What the fuck IS THAT?” and washing it right down into the water supply. I hope the little fuckers don’t swim.

So …This is Charles Henry, in Oklahoma City, signing the fuck off and checking the fuck out of this one, but since I already signed in at the front desk, I thought that I would mouth off a little before you guys close down shop and strike this set.

Plant Transformation
http://www.abc.net.au/ra/innovations/stories/s1529049.htm

Hi, Please excuse me for my absent. I was very busy with all my friends and family telling me that I was crazy. on drugs,needed tp

Those who continue to ridicule people with Morgellons are the ones who need serious help. If you aren’t willing to get help for your problems with ridiculing people who are suffering then at least STOP ridiculing. You should spend a little time hoping that you won’t become infected as well.
These people are no more delusional than you think you are.

I have seen Morgellons and it is a spider-like, mite-like parasite. Those that are large enough for the human eye to see are very visible. The problem is; the majority are not visible and can travel on the skin without being seen. Even those that are large enough to see could elude you because they are light in color and very small.
Many people who have this parasite have to vacuum their homes constantly because they can be found making webs in their homes. Once you have the webs forming you can simply go to the webs and see the larger ones…take them to a microscope and clearly see them. They differ from spiders slightly in their physical make-up at least visually. Two of their legs are bent…not straight the way spiders legs are.
This is not a sudden epidemic of crazy people running around claiming something that isn’t really happening. However, it may very well be an epidemic of people running around claiming people with sores that won’t heal from this burrowing spider-like parasite are crazy, indeed is.
Find some compassion and really check it out..investigate before you condemn. The majority of these people with Morgellons are rational, hardworking professional people who don’t have the freakin’ time to deal with the nonsense of creating sores all over their body and spending their hard earned money to try to heal. Especially when their fellow brothers and sisters of this planet have nothing to do with their time but decide they are crazy rather than showing compassion and intelligence rather than ignorance from a lack of real investigation.
Pray you are not so unfortunate to come into contact with a parasite that is extremely difficult to get rid of, if not impossible. If you aren’t infected. Thank your God and thank him daily.

There does not seem to be a specific disease called “Morgellons”, and people should try to find what helps them best as individuals.

To be told the truth would be a good place to start.

JT & EmmaRose – thank you for your support! This is quite real, despite what the innocent victims are paying most ‘doctors’ to be told. I contracted Morgellon’s Disease from a diseased-looking sharp, thorny tree, cleaning up litter in March of 2006.
Gillian, hang in there, we’ll all get through this together, there is hope! If you don’t know of 2 websites that HELP AND NOT HURT, please email me or post….
Debbie Boggs – Anyone remotely humane that has Morgellon’s should not be able to see anyone else suffer. Notice how I posted up my best healing method so far. Since the CDC has turned it’s corrupt back on us & the AMA is making the situation worse by training new docs to cruelly misdiagnose it, because some govt. agency must have something to HIDE – There are at least 20,000 sufferers. Many more w/it’s MANY symptoms, that aren’t even aware. Can you not feel HOW WRONG this all is, girl?! Do you want anyone else to go through the relationship problems you did due to this? This is life-ruining shit! People have committed suicide to escape this and are terrified of what they see coming out of their skin. IT probably came from that DECK. We need to HELP each other here to figure out what kills this thing from hell because I’m yet to see a CURE. The longer I wait and the more victims that I see, the more pissed off I get, Dear CDC & AMA – I think if you don’t light a fire under Kaiser Permanente’s lazy ass, give us the CURE and tell us how you are going to RETRAIN the medical community and have them contact every misdiagnosed victim they ripped off and hurt with this bullshit misdiagnosis of ‘delusional parasitosis’ – I’m about to start screaming for a Congressional Hearing and a Justice Department Investigation! I think I better hear of A CURE from you SICKOS w/in 14 days from this so-called study or I am about to bring some noise like you’ve never heard, I swear to you. You let this happen to the wrong person with me. End this nightmare right now so you can save yourselves, because anyone who had a part in covering this EVIL up is surely going to rot in hell…14 days from now and the CDC & AMA will have exhausted any remaining patience I had. Always amazing how things seem to get done in Washington around Election Time, isn’t it?!
So, Debbie – If you THINK you’ve got something that works because you have done a better job as one woman that entire CDC & AMA – let’s hear it right now so we know you are for real. You should understand WE have been though enough nonsense. IF your ‘cure’ works, I’ll personally send you anything you ask – and if you genuinely had it and cured it, you would know that the sufferers would be soo relieved & grateful that you’d get more than what you’d ever dream financially and eternally. BUT show me you aren’t one of the snake-oil sales predators, first.
NOTE: Debbie, if your cure involves drinking some kind of pesticide or doing something painful or weird, please don’t even bother. People have been hurt enough, no POISONS. We’ve seen more than enough weirdness just having this. And please post how you KNOW you got rid of it, what happened as you got rid of it, what did you see, what did you feel – Let’s see if you really have cured this before anyone’s going to make anything ‘worth your while’.

My 17 mo baby has this, as well as I, I don’t know it I continue watching him suffer, and being in pain too, very little sleep, I feel like quitting and taking my poor baby with me. please pray for us, pray for us all!

I completely agree with Michael. Morgellon’s is non-existent….in the context that it is not simply “A” disease, but “SEVERAL” diseases being reported as a completely new one by a certain percentage of people who can’t (or won’t) accept the fact that they haven’t been mysteriously poisoned by the government.

At least that’s the usual story we hear out of a Morgellon’s “patient”, on top of the exagerrated claims that can’t be backed up with hard evidence 99% of the time.

Keep in mind that I initially started my interest in Morgellons on a site that was 100% full of Morgellon’s believers. I had ALWAYS believed in “the fiber disease” that I saw on the news years ago. I had came up with a weak theory, but one that I thought deserved mentioning. So it was posted there.

Within a week, I had been accused of being Michael, accused of being “Smileykins”, accused of being a paid spreader of disinformation, & accused of being a meth-addict. And when I made the absolutely horrible request of wanting to see STUDYABLE evidence of the claims being made, it was clear that I wasn’t welcome in Morgellons-Land. (The story was always remarkably similar to EmmaRose’s above…..”Take my word, there’s living critters coming out of my body….but I won’t let you see any real evidence of that. But trust me, I have critters in my pores.”)

So basically, what my experience led to, is that my take on “Morgellons” did a 180 degree turn, based strictly on the attitude of the Morgellons community itself.

My take on it is…..

…..Yes, Morgellons patients DO have a disease. It is NOT Morgellons, but a multitude of other diseases….most of them already nown about, perhaps 1 or 2 some type of emerging disease. There are treatments available for many of these, but the extreme deniability of what they actually have & desire to blame ANYONE for their suffering have made them incapable of believeing that they DON’T have this “mysterious new alien disease invented by the Bush Administration & caused by GMO’s being spread by Chem “Con” Trails.”

So, in affect, the Morgellons comunity itself has also introduced yet ANOTHER form of “illness” into the community….a mental one now. They so want this to be what they think it is that they can’t accept the fact that it is something completely different. And THAT is perhaps the most deadly aspect of this entire “disease”…..we have people constantly clawing off their own skin, refusing medical help, & even commiting suicide….because they’ve believed the crap that some people have fed to them about how they have this new disease called “Morgellons”.

I was speaking to Michael. I just nicknamed you Mike. This disease is real. It could be caused by many things, but it seems to be coming from diseased plants, trees, and water treatment plants. That’s what people researching this have narrowed it down to. And colloidal silvers (NutraSilver…etc..) either put on topically or INGESTED into the body seem to purge these suckers out of the body pronto. They seem to be the fetus stages of actual creatures like worms and parasites. Some of these things magnified up close seem to look snakelike and some even have fangs on them and some look like the fetus stage of rats. It’s weird. And they’re definitely bioengineered. And the flourescent wiry things that are red/blue/silver are not thread or something you can find everyday. Uh uh. Nope. They’re bioengineered too. And they are flourescent. It’s bizarre. Try ingesting some brand of colloidal silver without overdosing. (I’m not sure what to do about your 17 month old…how horrific). But it seems the chem trails dissipating into the lawn or trees (and they will crystallize) or actual “stuff/poison/god know’s what” being put into water treatment plants which then ends up in your shower/bathwater/faucet is poisoning you. It’s going into your pores, scalp, and stomach and slowly killing you. After my friend ingested a couple glasses of NutraSilver, she waited about 12 hours and was throwing up wormy parasites that were flowing out of her and spilling out of her scalp, eye sockets, nose, pores in her skin, ears…no lie. And then she was cured. She stays away from gardening and stays inside when she sees chemtrails sprayed into the atmosphere. After using the NutraSilver (but you can use any colloidal silver) topically or ingested into the body, you will be CURED. Also, some people I’ve heard have put magnet bracelets around the wrists and ankles and around their heads and this has helped them brain fog and headaches…etc..the suckers don’t seem to like magnets or this colloidal silver.

After my friend ingested a couple glasses of NutraSilver, she waited about 12 hours and was throwing up…………

…..David makes note to himself——“NEVER drink NutraSilver!!”

Reminds me of those long-ago years, most of which are pretty fuzzy, when I was young, dumb, bulletproof, made of rubber, & enjoyed (??)….uummm….”beverages of ill repute”.

hi, u know I believe your right, this is a “crazy ” person disease. What I don’t understand is why you all are so adamnant and determined to convince the “crazies”? What does it matter , or how does any of this affect you? If some one thinks they are napoleon, or thinks they are invisible, would it affect you in any way? Why does this matter to any of you so much to disprove this? I would like to understand why people who don’t have it are so interested in it? Wouldn’t there be a better way to spend time? I tried to convince myself I was “crazy”, that would to me be a relief. But my crazy is in/on my baby, He cries, sctratching at his head, his neck, his arms, fingers, etc. He looks at me like why are you not helping me? He wakes up every night crying with his hands scratching. I have other children, so I am familiar with ear infections, teething, etc, I have never had one of my babies fall on the ground scratching and crying, If it was easy enough for me to show proof, then none of us would b on this site, I know I wouldn’t, I’d b at disneyland watching my babyhve fun on dumbo, or at the beach, fishing hiking, enjoying life! So GOD BLESS to all, just let the “crazies” be, who cares if someone wants to be”crazy” Really, does it matter?

“CRAZY” is when a mother allows their precious baby to go on like what was just described.

From what I can see, quite a few “morgies” suffer either from psychosis or extreme OCD, and probably are pretty tormented. It is tragic to hear about children and pets getting caught in the crossfire.

hi all, thanks for the advice, I have been to kaiser SEVERAL times throughout his life, through regular day time appts, urgent care, e.r. etc…. my baby has been given treatment for eczema already, not cleared up, antibiotics, more harsh creams, ( kinda scary stuff when a dr. puts a baby on antibiotics for over 3 weeks, 1st one type, that didn’t work, so another one that was stronger!). He got sooo sick from being on those antibiotics for so long. But I kept taking him back to kaiser, have recently seen a dr outside of kaiser, trying something else. It seems like kaiser has dr’s that just prescribe meds, no one really caring enough to see what treatment that has been used, to stop and say, “ok, i care enough about this child to spend a little extra time to investigate, to find the root of the problem,” Not just ” here’s some medication , put a band aid on your boo boo” Thanks for caring about my little one every one, even though some meant it for evil, I will receive it as good, that you took the time out of your day and life to think about us. that’s almost like a prayer! GOD IS GOOD! Smily, and merc you really care and obviously want to help, email me your number, I would gladly appreciate any help and assistance!, especially during the 2:00 a.m trips to kaiser, maybe if you go with us you guys can assist the dr’s with the diagnosis? The LORD knows we haven’t had great luck with them. Any hoo, GOD”S grace is sufficient, Thanks Again!!

karolyn, I’m relieved to hear that you are regularly visiting a doctor, though it’s a shame that your baby is still in distress. I have had frustrating experiences with dismissive doctors, and I can’t imagine how much worse they would have been if they involved my child.

It’s good to hear that you’ve been persistant, and that you have the means to see doctors who aren’t on your insurance plan. To be honest, almost all of my medical expenses are out of pocket, because my employer’s health insurance is terrible. This isn’t advice to anyone, this is just my personal experience.

Keep your chin up, keep looking for a doctor you connect with, and best wishes to your baby boy.

Discovery of this Morgellons subculture has been quite unsettling to me. I was mulling over it tonight and thinking that this represents the best and worst of the internet. The best is this site, without which I’d probably still think Morgellons is “real”. It’s fabulous to see how one guy can completely debunk this type of junk science with one well-researched blog. I’m quite impressed by how objective, thorough, and reasonable all the articles are.

I was going to say the worst is how the internet allows small groups of people to collectively sustain each other’s illness. I also want to say that I am utterly appalled at the state of medical journalism in this country. I’d always kind of rolled my eyes when people bemoaned the quality of network news, but the fact that ABC, CNN, CBS, Fox, and numerous other reputable news sources have produced such lazy and sensationalist stories shocks me. I’m naive, I guess.

However, I wonder if some good won’t come out of this after all. Morgellons victims may be mistaken about the cause of their suffering, but there’s no question that they do suffer. And hey, why should they suffer in silence?

I’ll be curious to see if the CDC comes out with a generic “we found no evidence supporting the idea of a distinct disease called ‘Morgellons'”, or if they will provide some additional insight into the underlying pathologies, and perhaps a better protocol to assist people with DoP.

Karolyn, try this link

http://morgellonsfree.proboards81.com/index.cgi?action=display&board=general&thread=66&page=6

merc, exactly. some doctors refuse to look at ANYTHING the people bring in. not anything. and they’re doctors! i have a brother-in-law who does internal medicine and cannot imagine refusing to investigate thoroughly someone’s symptoms. so when these board certified doctors will not even investigate, they’re in cahoots with the gov’t or something. that’s absurd. and i wish these people would bring in the parasites and the fibers and make them use their “tools” to figure out what these things are and how they got into their bodies. someone needs to figure this out.

A shout out to the ignorant pricks @ the CDC, who finally added Morgellon’s to their A-Z list of diseases!!!
It wasn’t listed in the A-Z last year, dunno when that happened.
Only took the Centers for Disease Cover-Up, what 6 years now (?), since Mary Leitao began doing their job for them – in order to accomplish this truly amazing feat. Better do something else to help, though. Adding it to the A-Z and pretending to do a study is not quite cutting my mustard.
Love how the CDC been subtly trying to downplay their corrupt lack of attention to Morgellon’s after their inattention leads to suicides and they are responsible for the AMA mis-training these rude, mal-practicing doctors. Just to trying to avoid mass lawsuits & pink slips – same thing as when they removed the ‘Delusional Parasitosis’ definition from their website in 2003.
Just spoke to someone who was trying to get help through Kaiser and was told that ‘isn’t acknowledged’. Um – Why are the people doing study still not treating Morgellon’s and are still denying it’s existence to it’s victims as of last week? Hmmm.
Somebody better send somebody an inter-office memo @ Kaiser Retardemente. That shows this is still being denied. Study Faster.
Congrats, though, CDC – on listing Morgellon’s in your A-Z, you big heroes – to think it only took you 6 years to PRETEND to get your heads out of your corrupt asses! Highly commendable!!! Better get to work on correcting ALL the doctors now! At your given rate of output, I expect you will have the AMA retrain the doctors and contact the folks they hurt w/DOP in no less than 12 years!!! It is fantastic to see my tax dollars @ work so efficiently!

OK, folks, now you are hearing from a physician with Morgellons, and having it is weirder than anything L Ron Hubbard could make up. The CDC has its work cut out for it and it is high time it stepped up to the plate. I encourage all of you to see the film “Under Our Skin”, which will be in wide release soon.

This is a whole new era in autoimmune phenomena, co-infections and the emergence of biological entities which may have been dormant or newly mutated, and which now have the environmental conditions to express themselves. Any medical practioner who sticks their head in the sand out of self-interest for profit, research grants or political power is unconscionable.

Anybody who has not experienced this should not sit in judgement on anybody who has. Count yourselves lucky if you have never seen it coming from your own skin–I wouldn’t wish it on anybody.

Find a doctor who believes you and be willing to consider creative treatments. We don’t know what it is exactly, or what causes it, but I will do everything ethically possible to provide relief for my patients, myself and my family.

I do believe that “first, do no harm” is an important part of the Hippocratic oath. Accusing patients of being crazy does them harm, as much or more than any unnecessary procedure could do. I have experienced the resentment when it is clear that a doctor doesn’t want to hear about my uncharacterizable symptoms, or doesn’t want to admit they can’t explain baffling lab tests or findings. I have been blessed with relief from a dermatologist who said, “yes, something is wrong, we will work to find it out”. I wish that for all of you who need to hear it.

For those who have it, please know that although there is not a cure known as yet, there are treatments that can help provide relief, and they are not just pharmaceutical ones. Look on the ILADS and LDA websites–those associated illnesses have some common features and common treatments which can provide relief.

Those sites also list physicians courageous enough to take on complex and baffling illnesses, often at the risk of their licences and livelihoods when the insurance companies decide they are spending too much money or taking too much time treating patients.

Many of those physicians take their own time to educate those of us who need to know more about such illnesses. I feel cheated that information has been falsely filtered by the political-medical powers that be, when knowing the true complexity of many of these illnesses could have literally helped me save lives sooner. It makes me feel like a waiter in a bad restaurant, but also more determined to build a better restaurant, from the ground up if necessary.

Let’s hope the next federal administration will lend a hand in that process rather than conceal or restrict information from physicians—making sure people with “pre-existing conditions” can have treatment options would be a refreshing start.

Good luck to you all, Dr W

Hi Dr. W!

I like the waiter in a bad restaurant analogy – TRUE. Sorry if WE tend to trash docs., I’m sure you can understand why. It is good to hear from one of the few who aren’t delusional themselves!

I’m about to try something new, if you’d like to email me to join in or hear of my volunteer guinea pigging (might as well give my life to see what works, short of borax, bleach, pesticides and anything else hurtful people have tried – if I have to be a test rabbit, fine – because that’s what needs to be done – feel like most of my life has already been taken from me by Morgellon’s, anyway – I’d rather give up what’s left of my life to fight, rather than to be JUST another victim. I see many worse than me that need solace – so I will be strong for them, even when I don’t feel it.) …And I just made a new friend who has Morgellon’s & who thinks her baby was born w/it – so now, I am more determined than ever to HELP. We need to stick together until we get some answers. Doc – Please email me so I can let you know what I’m doing and if some weird wheat-grass concoction makes me keel over – you will know what NOT to take & can post on here that it did something bad to me.
Cross your fingers/Wish me luck, friends!
Start taking this probably Wednesday…Hopefully, I’m not going to have to stay close to the home toilet until the following Wednesday 😮 – but I guess I’d expect a demon like this to not leave my body w/out a fight – so, put me in the game, coach…I’m ready for battle!!!

Hello Enviro-Girl,

I’m not a dr but I suffer from delusions.

There is no shame in suffering delusions. I am grateful in a way, because if it weren’t for my delusions I wouldn’t be alive today.

Gillian.

Apparently billions of people have Morgellons.

Could you elaborate on that for me please Michael.

It’s just that I am being sprayed at Morgellons Free. They don’t think I “mean” what I say. This is awful. My specialists are tying to ease my suffering but hell on earth my partner is not well, my family don’t understand, and don’t help.

No one returns my emails. Michael should we communicate via email to talk about what Morgs really is, or do you want to email me?

Thanks
Gill

you have to ingest colloidal silver in amounts that won’t kill you but it will push the parasites out of your body. you cannot just do external method of putting vaseline on your body or lotions, you’ve got to get them out of the INSIDE of your system which seems to require colloidal silver products of some kind to make them leave. they don’t like magnetic fields or silvers and will leave or really pour out of your system. you have to purge your system of them, but base it on your weight and all to still be healthy.

NO I AM not OK.

I am unwell and “delusions” are part of my condition. I never said everyone was “delusional”. I have BDD also, which involves delusions which are not treatable with antipyschotics. BDD is condition which is still fairly new just like Morgellons.
Yes I have both. Michael I know this is not an experiment, I just get sooo fed up, OK!! EmmaRose what is your email address please. I can’t remember alot of things so please do not have a go at me.

I believe Morgellons makes me, us distrust the people closes to us, well it does for me anyway.

Gill.

Unfortunately, I have been banned from all Morgellons Forums. I think because I can not lie, or hide the truth. Story of my life, I have been kicked in the head for 40 years. I am not saying I am smarter than any of you, I certainly am not. I am going on my personal experience. Is it a crime that I am full of tenacity? as my father has always said. I try & try & try with all my might, all I ever wanted to do was HELP.

I apologise AGAIN for upsetting the Morgellons Community.

Gill.

gillian, type for my e-mail that works “edorapietrafesa@hotmail.com”. nutrasilver will NOT make you a vegetable. it won’t. take it in amounts that will not actually harm you but push the parasites out of you and they will spill out of every orifice about 12 hours after you ingest the colloidal silver. put vaseline all over your body to make them expel easier and they will come out of your scalp, nose, eyes, mouth, and skin pores and you will be cured finally. the topical solutions are only temporary because they are infested INSIDE of you and can keep spawning more parasites unless you expel the host(s).

Merc, yes Body Dysmorphic Disorder. Thanks for the info EmmaRose, but I think I would rather let my doctors deal with this one thanks. If Nutrasilver was all that is was cracked up to be no one would be ill, would they?

So what is the word from the CDC does anyone know? I was told by the end of this year we should know something. I’m getting rather anxious coz sometimes I fear I will never make it till the end of the year.

Governments don’t move mountains with new diseases unless people are dropping dead. Now poor Mary Leitao has been fighting this shit for 8 years, and me for 4 years. I think that’s enough time for you all to complete your stupid studies don’t you?

I wish you well too Michael.

hi, sorry about how your feeling gill. You know when I was utilizing my ins, with kaiser, they had me on all sorts of meds, including upping my dosage of gabapentin, to extreme amounts, cuz they just could’nt get my”nerves” to stop moving, It actually made me worse, that’s when they sent me to psych, cuz “if it ain’t textbook” you MUST b crazy. From what I’ve learned about parasites, they thrive on acidic ph balances. drugs, alchohol, tobacco, and ALL CHEMICAL DRUGS (MEDICINE FROM JU DR), Are THE MOST acidic things around. So that’s why “the diet” is so important. Enviro-girl, I was thinking the same thing, if what I’m doing now doesn’t work, what the hey, I’ll try drinking a bottle of silver, beats pouring gasoline on yourself, like some people have tried. Don’t think I’m that brave! Guess I can handle puking my brains out , “literally”, but who knows!!! Maybe I’m not brave at all? If it don’t kill you, it only makes you stronger. I wasn’t gonna post here anymore, but it seems , that michael , is having a sensitive streak, and not beating down, on us fools. AAAhHHH, the grace of GOD, life’s good.:) peace gill, I’ll be praying 4 you!

“ALL CHEMICAL DRUGS (MEDICINE FROM JU DR), Are THE MOST acidic things around.”

You sure about that KC??

Out of the most commonly used 25 medicines…15 of them being prescription-only & 10 being OTC…here’s how they rate:

Acids (below ph 6) = 12, including Aspirin, Singulair, Lipitor, & Plavix

Bases (above ph 8 ) = 7, including Nexium, Prevacid, Sudafed, & Fosamax

Neutrals (ph 6-8) = 6, including Celebrex, Flomax, Advair, & Benadryl

If you expand the list to however many you want….50, 100, 250….the percentages will still stay much the same.

So where did you get your info from?? Mine came from various well respected chemical & medical sites, which I can provide links to. I’d like to know your sources.

Dear David,

I don’t care if what we have in my family is the so called morgellons, or something else. What I know is that the crawling in our bodies is something very annoying and to seek treatment for it is frustrating. My husband was treated for scabies, allergic reaction, and now for bacterial infection. I am avoiding all treatments and taking the natural approach, specially with better hygiene.

I am seeking for research in my region. I contacted the local health authority and a dermathologist researcher in Brazil and I am hoping that somebody can show some interest.

I found information about other people with similar symptoms searching online for “crawling in the body” after all the unsucessful treatments that doctors tryed in my husband.

It is unfortunate that we can’t find a trustful source for information about this issue. I will keep looking for more insights in this forum because it gave me some ideas about what I may have.

Good luck to you.

David:
There is already enough scientific evidence for those of you who continue to explain this away…Would you like to discuss non & genetically modified agrobacterium? I bet not.
As a person who never had 1 thing wrong w/them in their life and has suffered daily since I backed into a tree busting my ass to clean up litter and began to self-diagnose ONLY after 5 overpaid doctors failed me…Pardon me, but I do personally take offense to & wish a case of this on anyone who’s so in vehement denial of the FACTS that 20,000 (?) ++++ U.S. citizens are infected by Morgellon’s, that it is obvious they are paid to go around denying its existence on blogs.
I do wish LESIONS upon the face to anyone in the U.S. govt who has REFUSED to help its citizens since 2001 OR who maligns victims trying to get help or help others, who slanders victims by saying we’re lying and asks for further proof to further persecute us with – because when you are given that proof you just deny it away, thus convincing me that it’s your job to do so…
Let’s make a deal – you non-believers bring your camcorders on over and I’ll put anything that comes out of my skin on your sandwich. Perhaps the Illumanti gave you some top secret Morgellon’s vaccine – I’d love to help you take it for a test drive 🙂
enviro-girl@hotmail.com – Email me to set up a meeting, please.

Jenn: Thank you for the post. If the people here were true scientists with altruistic intent, they would ask for samples, help clinical trials get under way or somehow assist with funding. They would gather information. They seem to be interested enough to have this website. Why not study the pathologies? Remember AIDs and the reputations of the men/women who denied the truth? That was a sad story in our history and people died, for impossibly corrupt reasons. Do you want to be part of a solution or be part of the problem? It is spreading, and it will be a leading cause of torture, death,misery in the future as it is in the present. Your families will get it, not because I wish harm on anyone, but because it is a complex pathogen with many life cycles. It is easily spread, especially to those with weak immunity. It will rob our country of the best and brightest. Some of the people in the fields of medical research and science have loved ones with it now. They suffer in silence. They are afraid to step forward. Some were given the disease by those who have it. This was done, I suppose because they were so desperate and wanted attention to their cause.
I ask that funding be made available immediately. I cannot let my identity be known, but I implore anyone with the ability to find funding, to supply it.

Much like AIDS, perhaps once the PHARM cos. can patent a life-long treatment they can take these victims $ for permanently, they will then allow our GOVT to help us.
It is infectious, MW, knock it off – I got IT from a tree, that sounds infectious and quite specific to me. Tree is still there if any of these science geeks who are always demanding PROOF from victims on a blog want to come see what is rotting this tree, w/black sap oozing out it’s roots…I want it taken down but my health dept. won’t do anything (surprise) – If anyone wants to see IT, I will be pointing The Tree out from across the street, in my car. I suggest Bio-Hazard Gear, at the very least. If someone doesn’t come remove it soon, I think I might crash a car into it (I’d jump out first, of course) – because IT’s still there and it makes me sick thinking about this happening to someone else and there’s nothing I can do about it. But then I worried that the clean up crew after the tree was knocked down would get Morgellon’s, so I never did that 🙂
IT came from there or IT came from the dead tick on the tree that was in my sweater. End of story. Stop w/the games, it’s a joke at this point, please…
Lyme meds did nothing. Tree Poke – Immediate fever and intense flu-like, (felt like the onset of the WORST flu you’d ever contract), sharp bright red shards that embedded into my foot and calf, intense itching days later in my back where the tree poked me, weird nodule grew on my back, lactose intolerance began 14 days. Every other symptom IT causes since that day, those are facts. I didn’t have these things before, MW – IT caused them. So you are right about many resulting diseases, I’ll give you that. That is why I get pissed when you corruptos accuse of Morgies of being delusional – not one thing wrong w/me prior, ever – including my mental health, thank you. I had every single symptom typed by date long before I went looking on the web and NOT because I was looking for an ignored, emerging disease cult to join – I only went looking, one year after The Tree because my right eye began to twitch constantly and I could no longer think normally or spell (A.K.A. – Brain Fog) and I let 5 docs misdiagnose me and take my $, long before I went looking to help myself. It’s rather rude to say people are just googling around, looking for attention from their loved ones and Morgellon’s looked like a !@#$%^ fun summer vacation!! If I had my choice, I woulda picked a disease that gives ya big hooters or something, instead.
Pretty ‘speficic’ to me, that THIS caused ALL of that, since I’ve seen and felt every symptom since THAT DAY. The thing that causes many things, if that can help those of you w/a lesser IQ to cease your ignorant denial. But I understand, you are just doing your jobs. So the rest of us can understand, get well and help others – you all keep up your work of denial and I hope whatever the Illumanti is paying you to deny this is worth the price of your diseased souls.
Genetically Modified Agrobacterium being used in pesticides on non-crops in the U.S. for at least 28 years, (used on crops since, what 1994?) as long as I’ve heard anyone say they have Morgellon’s, is also is pretty specific. Too much of a money maker for BIG PHARMA to let us stop IT’S usage (treating all the other things IT causes) is why they won’t let it be stopped. So, Agr. Industry, that’s great that produce will have a longer shelf life, except guess what? Oops, we’re all too sick to be hungry, ya tools! The earth and it’s people (and animals) are screaming for help. I need to do more. Someone who can help me HELP, please email me…
enviro-girl@hotmail.com

“All you have a a group of people who are very ill, but whose illnesses are for the most part explained by a variety of known conditions.”

Two issues:

1 Group of very ill people
2 Variety of problems

Similarities

A) Similar Conditions
B) Fast to Explain Away

It is hard to understand why a group of various disease would join to claim a single disease. splain