Morgellons folk say they all have the same symptoms.

  • You research the internet and so easily discover that Elliot’s disease, National United Skin Parasites Association, the Fiber Disease, and Morgellons are all one and the same. Ironically, all of the people with the exact same symptoms that you have, have been receiving the same faulty diagnosis

What are these symptoms? What does MRF have to say? Well, they have two pages, one on “symptoms, and one that proports to be a case definition. Symptoms:
http://morgellons.org/symptoms.htm
Most individuals with this disease report disturbing crawling, stinging, and biting sensations, as well as non-healing skin lesions, which are associated with highly unusual structures. These structures can be described as fiber-like or filamentous, and are the most striking feature of this disease. In addition, patients report the presence of seed-like granules and black speck-like material associated with their skin.[...] More significant than skin symptoms, in terms of the diminished quality of life of the individual with this illness, are symptoms unrelated to skin, to include Chronic Fatigue Syndrome (CFS), Fibromyalgia (ME), joint pain, and significant problems with concentration and memory.
Remarkably, not all people with this disease have overt skin lesions, as some individuals report intact skin. The troubling sensations and accompanying physical structures, are the consistent clues to this infectious process

http://morgellons.org/case.htm
[...]The following case definition of Morgellons disease has been developed by physicians on the medical advisory board of the Morgellons Research Foundation[...]

Now, I’m not going to post the entire thing here, as it’s quite long. But I’ll paraphrase the important parts:

  • Lesions may or may not be present, they might be a symptom of the disease, or the result of scratching. They might look like pimples, or hives, and may or may not contain pus.
  • Crawling sensations can occur anywhere on the body.
  • Fatigue is always present.
  • There will be behavioral effects that are diagnosed as psychiatric disorders (the implication is that they do not have these disorders, but the symptoms indicate Morgellons).
  • Fibers are reported in and on lesions and on the skin. Fibers may be any color size or shape. Granuals of any size or shape are found on the lesions and skin. Fuzzballs up to 3mm in size are found on lesions and skin.
  • Additonal symptoms include: vision changes, neurological changes, gastrointestinal changes, skin changes, Musculoskeletal changes.

Other than the fibers, what we have here is a catch-all of symptoms. Anyone who has some chronic condition cannot fail to have some of these symptoms. NOBODY has them all.

One can become a “Morgellons” sufferer simply by matching a few of your symptoms to the list, and then examining your skin for fibers – which everyone has on their skin.

What about those other conditions mentioned: Elliot’s Disease? Well, Elliot’s Disease research Library links to this article about “this disease”
http://explorepub.com/articles/omar_10_2.html#top
This gives a simpler definition:

  • It is characterized by neurological sensation of movement subcutaneously and/or in deeper tissues and cavities that is usually associated with mucoid cutaneous lesions from which one or more species of arthropods as well as unidentified fibers may be recovered.

Unfortunately, although this is a shorter definition, it’s actually even less precise than the Morgellons.org definition. We have a “sensation of movement” either on the skin or somewhere on the body, usually with lesions but not always, and either with or without arthropods and with or without fibers. Based on that definition – I’ve got it, since my scalp itches a bit right now. Yours probably does too.

Moving on, NUSPA has a nice page of symptoms:

http://www.skinparasites.com/id12.html

They focus on a very broad range of symptoms of infestation by a parasite, insomnia and the specks and fibers. Nowheres does it mention fatigue or any neurological complain. This is obviously very different to Morgellons.

Then there is “The Fiber Disease” – this seems to be a term popularized by the biology-online forum thread.
http://www.biology-online.org/biology-forum/about1958.html
Unfortunately, they don’t list the symptoms anywhere I could find. But individual posters report a very wide range of symtoms.

Okay, finally my point:

Not everyone has the same thing.

There are so many different symptoms, it’s impossible to describe this as “a disease” or even “a syndrome”. Everyone has different symptoms, everyone responds differently to treatments. The term “Morgellons” was invented to describe a child’s skin problems, which he is now cured of, and which have no relation to the symptoms described by the vast majority of sufferers.

226 Responses to “We all have the same symptoms!”

  1. I was gonna comment, but one of my cats pounced on my keyboard and yonder she blew.

    How come people are scared of harmless fibers? How come they don’t learn anything about their other health conditons? (God forbid, I’m not refering to Lyme disease). Why all the martyrdom for a non-existence disease?

    Mama used to say when a person is crazy, they’re always the last to know.

  2. Why are you pushing this crazy thing?

    This is really quite cruel.

    I see you so want this to be a mental disease.

    There is a physical component to this.

    The lesions are real, they are filled with parasites.

    Ever heard of Chagas Disease?

    Ever hear of cyanobacteria?

    Protothecosis, a fungal disease?

    It if fungal, algae-related, fermentatious, protozoan.

    Now, if one has this going on in their bodies, do you not think that something physical is wrong?

    Please, stop the point of DOP, because, DOP is what? how is it cured? Even the psychologists and psychiatrist will only give meds, but, will not work with the patient in trying to find out why they are DOP.

    So, you see no one will look at this, because, DOP is not the diagnosis, it is the placebo, to not look at parasites.

    Western med is so afraid of worms, bugs, parasites.

    Even China has this worm and they cannot identify it.

    So, you think you are so smart by using the tried and true all out attacks and poking fun at people who suffer, you are sad, here.

    We are not martyrs, but, we may be for the right to health, treatment, this is about neglect and abuse as patients.

    I have been fighting to prove I am not crazy all my life, dysfunctional families makes one crazy, while growing up, but, a learned person knows they can overcome that, and I have.

    This is a physical condition, but, so many want to make this a mental condition, of which it is not.

    These lesions, again, are real.
    I am functional, despite this and despite the scars this has produced.

    It is similar to Leprosy. Do you know what that is?

    Please, why the attacks, I do not get it.

    Either you know what this is, and are trying to make it psychological, when they do not have answers, or you are just plain mean.

    Wingedschiff

  3. Of course the physical symptoms are real. They probably have a physical cause as well. The thing I’m taking issue with is that there is a distinct disease that everyone has caused by some unknown organism.

    I’m familiar with all the things you mentioned. Quite possible some people have some problems with some of the things you mentioned.

    A few also have DOP. This is nothing to be ashamed of. It’s just another kind of illness.

    You should read up a little on DOP. It’s fascinating.

  4. I have read up on DOP, but there is no clear psycological protocol to treat it. That is what I am saying. I do not know if it is true that there really are DOP people. I think a lot of mental diagnosis has been wrong in the past.

    I am saying that when scientific paradigms shift, then one will clearly see where this DOP diagnosis has no basis. It was used to cover for things that could have existed.

    Most DOP explanations will say that of course this patient could have parasites, but they are DOP.

    Now, how does one reach that conclusion?

    Good discussion.

    Wingedschiff

  5. DOP is a real condition – albeit a rare one. But it’s been around since the 1800′s with many very well documented cases.
    Of course patients are going to be mis-diagnosed sometimes. That happens with all conditions.

    People are often treated with psychiatric methods, which work, which would seem to demonstrate that there were no parasites.

    There are many different cases. Don’t lump everything together.

    Here’s the best site on this topic:

    http://delusion.ucdavis.edu/treatment.html

  6. And of course, that would be from an entirely liberal point of view.

    Parasites are not a psychiatric condition. It is a physical one.

    The psychiatric treatment is drugs.
    That we do not need.

    We are looking at cause, and this is so entirely foreign to most psychiatrists and doctors.

    You only treat the symptoms, which gets us nowhere.

    Noone can think clearly, because of the mind altering drugs. No psychological information or psychotherapy is available to really treat DOP. I am not talking about other psychological problems, just DOP.

    And, doctors who send us to psychiatrists, are practicing outside of their boundaries.

    That seems to be the center of all of this. Doctors have no right to diagnose us DOP, to declare us delusional, only psychiatrists and psychologists can do this, and they have no right either, because they to are crossing the physical symptom barrier.

    So, we get sent back and forth, and never are fully treated, because the real cause, a pathogen, is not being looked at.

    There is a need for pathologists in the dermatology departments and centers. But, they are not to be found because they were booted out of the Dermatology Centers. For political reasons.

    So, if we find the correct doctor to look at this, a dermatopathologist, then we may get somewhere. They look at lesions.

    Wingedschiff

  7. Your doctor can refer you to a psychologist if he thinks there is a probability of DOP (after eliminating other possibilites).

    You should read that site. However it also says:

    “It is pointless to argue with the sufferer as there is no way to sway them.”

    but also:

    “Management of patients with delusional parasitosis is best handled through the cooperation of dermatologists, psychiatrists, and entomologists or parasitologists. Psychiatrists are needed to confirm the diagnosis of delusional parasitosis and to make the diagnosis of any underlying psychiatric disorder in the case of secondary functional delusional parasitosis. In addition, psychiatrists are able to conduct psychotherapy and provide a long-term commitment during the treatment phase. Sufferers are often reluctant to consult a psychiatrist, and if the suggestion to do so is not done carefully, the patient may seek help from another physician. Dermatologists need to be supportive about the patient’s symptoms and suffering and should suggest that a psychiatrist may be able to help the patient live with the problem more comfortably.”

    “It is essential to rule out the presence of environmental irritants and/or actual parasites, allergens, or other organisms that cause contact dermatitis. Although many arthropods may bite humans, for the majority of species these would be unusual occurrences. The only groups likely to cause ongoing problems include mites, fleas and lice.”

    http://delusion.ucdavis.edu/treatment.html

  8. My first recollections with eczema was way back in nineteen-hunderd-and-fitty-
    nine. I was the same age as little Drew Leitao had been when his mom did something my mama shore didn’t do. Well, I suppose I should have probably died by now, having fibers in my skin all these years, but dang it, we always thought it was the most normal thing there was. Never thought about saying I was “sprouting fibers”.

    I outgrew it around the same age as little Drew is now, too, like all infants and toddlers with eczema. As far as I knew, that was the end of it then. Nope, I had something going on in my early twenties, and went to a dermatologist and he gave me the ugly truth. I had eczema, and I had it for life, and there is no cure. I treated with several prescription topicals until we found one that helped my symptoms the most. It was no fun, for about seven years, living with learning how to cope with it, and making a whole lot of alterations in my day-to-day life. Scratching every night in my sleep, I had a bloody mess when I woke up about every day. Then it went into remission again.

    My kid got it too, not because it’s contagious, but because of heredity. Wow, we never thought anything of fibers in her skin either, and she’s still kickin’. We’re in remission from eczema, but contact dermatitis, in a much lesser form than that is, is a fact of life for us.

    Still, we have never thought anything to be wrong, to have environmental fibers and other crap collect on and in our skin. We sure get a histamine reaction when things we don’t even often suspect makes contact with our skin. Burning, stinging, itching, something awful.

    Just yesterday, I was driving down the road, perspiring, and ooooooh, that gave me the itchie-crawly no-see-ums all over. Me and my kid live with it. It’s uncomfortable, to be sure, but what makes morgie people not accept diagnoses of SKIN ALLERGIES?

    They’re easy enough to arrive at a conclusion on your own, even, without the assistance of a doctor, although we’ve been seen by several, over the years, and they’ve been quite competent and never had to get down with a scope and peer for something I insisted was there, that they couldn’t see.

    What separates the morgies, especially the ones that have been diagnosed with atopic dermatitis — eczema, as well as their CHILDREN, from us?

    According to what Dr. Jay Adams, a Carson City dermatologist who is president of the Northern Nevada Dermatological Association, said, was that doctors usually get a sense of the patient during the visit and may suspect they’re dealing with a delusional person. Being a dermatological expert, he agrees that, “Everybody has fibers and foreign objects on their skin, even things that live on them although we don’t usually like to think about it,” Adams said. “For the most part people don’t obsess about that. There definitely are a group of patients who have focused on the idea that things are crawling under their skins and will take extreme measures to prove that to you. It can take over their lives.” Adams said it’s possible some patients may be misdiagnosed with delusions when they actually may have a physical cause for their symptoms. But he said that’s rare. “I think that patients with delusions are a far more common answer than any of the patients who may really have parasites. Delusions of parasitosis is real. Most of the patients are delusional.” He said that under magnification, the samples usually turn out to be lint. As for the black specks and other things the patients get off their skins, he said it’s possible to scratch, and poke and peel away parts of the skin tissue or just collect the lint that can be found anywhere. “You don’t want to encourage people to further resist the idea that they are not infested with parasites,” Adams said. “It’s dangerous to reinforce their delusion.”

  9. But see you are saying one is delusional at the beginning, no parasite tests are done, uneless one begs for them or finds out on their own. Are labs too pristine for fecal matter? Or have the pathologists been bought out too.
    Again, the pathologists were taken out of Derm centers. Herein, lies a big problem.

    Now, all kinds of emerging diseases are upon us, according to the CDC, but are there any tests for these? No.

    So why report it? Just to scare people.

    By the way, do you know what causes exzema?

    We are looking for cause, come on the DOP does not go here.

    We are told by the primary care person we are DOP. Crossing practice barriers.

    You know that mental labels, can kill. To say someone has delusional parasitosis, without any tests for parasites is absurd and wrong.

    Again, I say it is foreign for doctors to actually do tests for worms, or parasites, they just want them to go away.

    A change has happened in the environment. Bacteria is being used all over the world to clean up pollution. This is putting more bacteria in the air, alone, to deal with. We already have enough bacteria, then to use it in landfills to ferment, and eat away at garbage and create biofilms, now if it can be done without creating more biofilm, then this dried, will not go in the air.

    There are many things that could cause this. But, none are looked at.

    It is so much easier to label DOP than to look at environmental bacteria, microbes, nematodes, and so on.

    If we have so many wonderful tests on the horizon for the most minute thing, nano level, and can change proteins in horizontal gene transfer in many ways, and yet not
    be able to look at our skin in a more detailed way?

    There is something missing here.
    Gene therapy is on the horizon, and what is so damn funny, is that most of what sickness is, has to do with bacteria, not genes.

    Wingedschiff

  10. Can you give any evidence to support the recent shift in emphasis in dermatopathology that you imply?

  11. Reed and Weems, the Reed Patch,
    It may not be popular, but I do think it is correct.

    http://www.dermanities.com/detail.asp?article=185

    http://www.thedoctorsdoctor.com/pathologists/why_dermatopathologist.htm

    http://www.xmission.com/~bweems/rjrpatch2.htm

    Here is a few.

    Winged schiff

  12. Ticks feed from minutes to years. Except for fleas, lice, mites, not much to worry about in terms of infestation. What serious systemic, neurological and visceral disease associated with vectors and generally known to be parasitic in etiology? When delayed diagnosis and treatment can affect prognosis, morbidity and mortality to an alarming extent, is it not reckless to rush to embrace DOP dx?

  13. Those links don’t show anything. In fact they show that dermatopathology is still alive and well, and an often important part of the dermatological diagnostic process.

    I think you are just angry because your doctor determined that an analysis by a dermatopathologist was not necessary in your case, and you thought that it was.

    Why did you think this?

  14. Indeed, “Psychologist”, which is why they should not rush. In fact, they are quite specifically directed to eliminate other possibilites first. And they do.

  15. But, depending where you live, dermatologists know beans about pathology.

    This is pathological, why is everyone afraid of that word?

    Bacteria based, not gene related.

    Only a few Mendelian inherited genes from mutations are gene related diseases.

    The rest is all bacteria, microbes, fungi, algae, lichen,
    natural substances, that have been altered.

    Doctors will not go there, because they do not know.

    I am angry because of the medical lies told us.

    The premise for medicine is scewed.

    Do you not see that?

    http://www.euroamericanhealth.com

    Wake up, you are living in a world so predominated by associations and medical people who treat symptoms, and not the cause.

    If one finds the cause, much money is lost in drug production, because they are not needed, when they only treat the symptoms,

    Quality of life, not quantity is treated.

    Whole body approach to healing is very trustworthy.

    Polymer fibers are in chemtrails.

    Polymer biodegrading inorganic is incorporated into organic.

    Ever heard of plastic degradation, metal degradation, what stronger as catalyst would work to degrade and start the process of degrading.

    Fibers are excellent at this, whether it be fungal, protist, or bacteria, metal eating bacteria.

    Where has the plankton gone?

    Carbon sequestering.

    Many inorganic are not included with organic.

    So, even if we find the natural substance, which could be genetically modified, in the wrong manner, or if we find inorganic substances, as particles, that cause skin to react or change the DNA of a person.

    The science is there.

    Wingedschiff

  16. WingedSchiff, excuse me for not being able to address the questions you’ve posed to me, in reference to my comments, right now.

    However, upon seeing your last statement, “There is something missing here.
    Gene therapy is on the horizon, and what is so damn funny, is that most of what sickness is, has to do with bacteria, not genes”,

    I would implore you to NOT be concerned with the rest of society, but to be concerned in whatever YOU, as an individual, have that may be causing you to be in a state of ill health.

    For example (aside from being disabled from an on the job injury), my genetic makeup “IS” the sole reason for my conditions, not some elusive bacteria.

    I think back to a post on a morgie board, that I read one time, where a person was asking if anyone else noticed that on some days, “their morgies” wouldn’t allow them to move a bucket of water, or a foot stool, but that on other days, they allow one to have superhuman-like strength, enough, to lift a sofa.

    Do you see nothing wrong in such a comment as that?

    “Morgies” is/are (?) not causing that to happen for that particular person.

  17. There is an old saying:

    “What I fear… I create.”

  18. Okay, if we are talking genetic makeup, I am a carrier of muscular dystrophy, a gene mutated disease.

    Now, it is on my extra X chromosome.

    Now, if that is messed with in any way by genetically altered micro-organisms, protists, or those genes are homologous to what is in the mutated form in my X chromosome
    then my genes would be involved, I see what you mean there.

    I wonder about our own muscle nerve fibers, if that is what we see and med folks cannot recognize them, some are just like polymer.

    Bechamp talked about fibrin in the blood. Can be seen by dark field microscopy.

    Wingedschiff

  19. Q. Why are you pushing this crazy thing?
    A. To get people to think whether it’s applicable to them. I’m sorry if it carries negative connotations, but really, the word, “crazy” has been de-stigmatized, for quite some time now, and the field of mental health is not the same, today, as it once was. I apologize for offending you. I won’t apologize for saying that the creation of something called morgellons disease IS CRAZY, and there isn’t a befitting word in the english language to express my disgust, disdain, and disapproval.

    Q. Ever heard of Chagas Disease?
    A. Yes
    Q. Ever hear of cyanobacteria?
    A. Yes
    Q. Protothecosis, a fungal disease?
    A. Yes

    Q. Now, if one has this going on in their bodies, do you not think that something physical is wrong?
    A. Certainly

    Q. Please, stop the point of DOP, because, DOP is what? how is it cured?
    A. I didn’t realize it, if I tried making a point of DOP. Based upon the viewing of posts on message boards, it appears to me that a lot of people who believe in morgellons disease are very likely to be, especially when they’re diagnosed to be, DOP. I believe that one treats it, in hopes of it being cured, with the medication prescibed by their treating physician.
    I think all morgellons’ believers have paranoia/phobias. Most are obsessive/compulsive, without question. It looks as though some may have borderline personalities, be bipolar, have attention deficit disorder, quite a few mental health related things that are treatable. Someone admitted being diagnosed with psychosis. Delusional thinking is blatantly, BLATANTLY APPARENT in all who subscribe to the morgellons’ school of thought.

    Q. It is similar to Leprosy. Do you know what that is?
    A. Yes

    WingedSchiff, if at all possible, I’d suggest you try to ignore the reports of emerging diseases from the CDC, if they do, indeed, scare you, but reporting them is a part of the CDC’s job.

    I don’t know if these were directed to me, but since I mentioned eczema…

    Q. By the way, do you know what causes exzema?
    A. Yes

    Q. If we have so many wonderful tests on the horizon for the most minute thing, nano level, and can change proteins in horizontal gene transfer in many ways, and yet notbe able to look at
    our skin in a more detailed way?
    A. How is it that you have come to think that anyone’s skin “needs” to be looked at in a more detailed way? I’m sorry, my answer is in the form of a question, because I fail to see the relevance.

    Last, but not least, “Even China has this worm and they cannot identify it.”
    Well, maybe you should call China up and tell ‘em that you know?

    (please)

    You made a referrence to my thinking I’m so smart…
    Yes, I am, in every sense of the word.

    Now, forgive me, but please try to wake up, if you can.

  20. WTF???

    WingedSchiff ?—> “Now, if that is messed with in any way by genetically altered micro-organisms, protists, or those genes are homologous to what is in the mutated form in my X chromosome
    then my genes would be involved, I see what you mean there.”

    OH NO…YOU DO “NOT” SEE WHAT I MEAN THERE!!!!

    GET YOUR HEAD OUT FROM WHERE IT IS!!!!

  21. Okay, what is your point?

    Winged schiff

  22. My point is, that you have a lot of fear in your words, and
    you seem to be focusing your attention in places that do nothing to assist you, whatsoever.

    I’m sorry, I don’t know your history, or what you may have, Winged schiff, other than from your comment, “The lesions are real, they are filled with parasites.”

    Parasites aren’t difficult to detect, if doctor has reason to suspect them, based upon patient presentation.

    If you wouldn’t mind sharing what your symptoms are, I’d be more than happy to try and help you get on the right track, and get to the bottom of it.

    If you know, how did you contract parasites, and, had you been to a region where they’re endemic, or, have you, or do you, live in a rural area?

  23. I’d like to make a distinction regarding delusional parasitosis. I think it’s irresponsible to use the lable “crazy” to refer to it, and further dissuades patients from accepting that as a diagnosis. The name itself is a bit unfortunate in that respect.

    I have no doubt that the symptoms are real. That the itching, the lesions, the burning, the pus, the sensation of things crawling around within the lesion, are real. It is a real problem. But the *source* of the problem is the thing in question. There are many organic neural disorders that cause physical symptoms. It doesn’t mean you’re “crazy” and it doesn’t mean you’re making things up. It’s somewhat akin to having a metabolic disorder… you have an existing, underlying condition that is exacerbated by physical, environmental or other types of stress. The problem is no less real and no less serious – the distinction is that it has to do with your nervous system instead of your liver, for example.

    Things like this become labelled as “mental” because we do not understand the nervous system well enough to specifically identify the problem – and, sometimes, there are a range of problems. Instead, the focus is often on finding medications that will treat the problem, while we continue to study the brain in order to better understand it.

    Bottom line, something like “delusional parasitosis” doesn’t mean you’re crazy. It doesn’t mean you had a bad home life or a bad childhood. It doesn’t mean you are to blame for what’s happening. It doesn’t mean your symptoms are any less real. What it means is that the root of the problem is in an organ we don’t understand well enough yet – so people label it in unflattering ways, and we have to rely on treatment instead of finding the precise cause until we can understand the nervous system better. I hope that more people can understand this and be more open to such a diagnosis.

  24. Okay, but hang on Winged schiff.

    I haven’t made any distinction of DOP as being “crazy”. That’s not my call. I read morgie message boards and it’s too damned evident that there’s a whole helluva lot more going on with some people than just simple little DOP.

    I don’t understand DOP, but it seems to me, that if people were suffering as badly as they claim they are, and “maybe” (?) if they weren’t handed over a fake-disease- called-morgellons, that “possibly” (?) some people “might” (?) trust their doctors’ judgement.

    Of course, I don’t know, because I am only able to think within the frame of mind that I have, that “if” a person was suffering badly enough, that they would want it to end, and try what their doctor recommends, and not see them as their enemy. I don’t understand it, because that apparently isn’t the way it goes.

    I mean, heck, if nothing else, it would almost seem to be worth it, just to prove to the doctor that the medicine hasn’t stopped any of the occurences yet. Work- with-the-doctors, is all I am left thinking, and why not try finding out whether an adequate dosage of “whatever” can alleviate all of the claimed sufferings. Then, work with the doctors in backing back off of the drug, to see if a normal life can be resumed.

    Sometimes crazy is, as crazy does, and that’s all crazy is.

    The geniune “CRAZY” is the result of a person (and that person, then, signing on other persons), with a serious problem in their perception of reality, making up a disease and chasing after something non-existent, and starting a worldwide movement, preying on the vulnerabilities of thousands of others, with the same problems in their perceptions.

    “Crazy” is an outdated term, but it’s still all too easy to use in reference to anyone exhibiting bizarre symptoms of mental illness, and I doubt that there’s anyone who hasn’t thrown the word around quite a bit in their vocabulary.

    Without a diagnosis and an attempt to treat it, any number of mental disorders can make a person appear to be what society still, and, I’m afraid always will, refer to as, “crazy”.

    I’ve been called crazy plenty of times, but, to me, coming from the persons labelling me as such, I’ve considered it an honor. It’s meant that I’m so far removed from their capacity to understand where I’m coming from, that it doesn’t offend me in the least.

    There’s happy crazy and miserable crazy, though.

    When I was younger, I saw things in many shades of gray, but as I’ve aged, I see too much in black and white, now.

    I’m sorry for throwing the word around so carelessly.

  25. Now, I’m just being hypothetical, but with so many morgie people that seem to think that doctors are just no good, and of little use to them, other than to disagree, I wonder what it might be like if someone went in to see a doctor and said, “doctor, I think I have DOP”.

    Based on what seems to be the consensus of morgies, the doctor would be in disagreement, right?

    Well, it’s a well-known fact that doctors don’t appreciate patients who come into their offices offering a diagnosis of themselves, and rightfully so.

    So, maybe a doctor would…

    Nah, they wouldn’t. Would they?

    (Yes, it’s past my bedtime.)

  26. Sorry if I caused any confusion… that last post, about not using the label “crazy” because it dissuades patients from accepting a diagnosis… it wasn’t made by Winged Schiff. It was made by me (I’ll call myself BabyJune here, I guess). I’m a first year medical student, formerly certified as an EMT, with a psych background in my undergrad.

    So I make those arguments in the interest of being able to treat patients. Why don’t they trust doctors or accept diagnoses like that? There are lots of reasons. Many can’t accept the stigmatism associated with the “crazy” label. I can imagine it would be difficult, since it seems that in many cases, the sensation of creepy crawlies is the only symptom (there are no other “psychiatric” symptoms, delusional or otherwise). Others feel doctors simply aren’t listening. Regardless, I think perpetuating the “crazy” line of thinking is counter-productive if you hope to persuade people with this sort of illness to at least try the treatments offered to them. Try looking at it from their side of things.

    -BabyJune

  27. This post has been removed by the author.

  28. Smileykins,

    I think if a patient told their doctor that they have the false belief that they are infested with parasites that would be “Catch 22″. Or, would it? Yes, it is getting late.

    Tall Cotton

  29. My mistake. Excuse me, Baby Jane.

    I’ll thank you not to be so naive the next time around.

    http://of-morgellons.blogspot.com/

  30. “I have read up on DOP, but there is no clear psycological protocol to treat it.”

    That’s a lie, it’s not true. DOP and other monosymptomatic hypochondriosese have a clear set of protocol to treat it, including psychopharmacology and therapy. Go to Google, go to Scholar, and type in “delusional parasitosis.” There is more published literature on the treatment than there even is on the condition.

  31. For all that said Morgellons was untrue, I only hope are able to experience what you said was all in our mind, then it will be our turn to say “your exact words”.

    Maybe the only reality here is, when you get a bunch of ignorant people together, you’ll always be guaranteed to be the one’s eating your own stupid words.

    Pitiful stupid ignorants you all are!

    Maybe too, try alittle education, it will help you be a better person.

  32. Smileykins,

    We can only hope for you that your eyes one day will open, that is what they are for you know.

  33. Remain in the hell that you’ve made for yourself. You are damned.

    Understand me, Anonymous.
    You…ARE…damned.

  34. This post has been removed by the author.

  35. Let me make you accutely aware of what a perfect simpleton you are, Anonymous, because as much as I have copied it out, providing links to my blog all over here, so that you, and every other ignorant assed morgie could see it, and shut the hell up about accusing people, namely me, here, of…”oh, you wouldn’t dare talk that way if you knew, blah, blah, blah…”

    Kiss my ass and remain in hell.

  36. a lot of illnesses have a variety of symptoms that differ from afflicted to afflicted. that’s fairly typical. additionally, symptoms are often patient-described so there is no universal language being used.

    check out this illness: same symptoms as Morgellons…
    http://members.cox.net/llyee/ncs_diagnosis.htm

  37. NCS, besides being BS, is about as similar to Morgellons as any form of eczema.

  38. There are so many symptoms listed for Morgellons, that you could scoop up half the sick people in the world and place them under that one heading. In reality these people would have a very large variety of different illnesses. There’s no such thing as Morgellons, so it can’t be spreading. Due to all the media coverage, however, the belief that morgellons is spreading, is spreading. The believers are gaining in number.

    Tall Cotton

  39. For those of you who do not believe hell just go hug someone that claims to have morgellons. And wait about 4 weeks to see for yourself!

  40. Some morgies may have diseases that are communicable. That doesn’t mean they have Morgellons. Morgellons was invented by Mary L. No one has morgellons.

  41. Insideout, Smileykins and Tall Cotton, both, had the out-of-this-world symptoms which so many people, who believe that they have “morgellons disease”, report.

    It’s obvious that the reasons “some people” recover is due to their addressing an underlying organic cause that has made them ill. Once the body (and along with it, comes the mind) is brought back into balance, all those freaky-assed things come to a screeching halt.

    For “other people”, who that doesn’t apply to, there really is a lot of literature on the topic to explain it. It’s rather vice-versa, for them. For them, it’s fix the mind, first, and the body will follow, so to speak. There’s no shame in trying that. It would be so damn worth getting over it.

    I don’t know which is your situation…whether you think you have this, or you know of someone who does, but there is a solution, I promise.

    For the record, I would have ZERO amount of fear in hugging anyone who thinks that they have “morgellons”. No fear whatsoever.

  42. Michael wrote:
    “Of course the physical symptoms are real. They probably have a physical cause as well. The thing I’m taking issue with is that there is a distinct disease that everyone has caused by some unknown organism.”

    And THAT is why you started this blog and is why this is worth all this time and effort?! I have a suggestion. Move on. Who cares. If it’s real, it’ll be proven. If it isn’t you can be as smug and condescending as you like, until then why not leave it alone, or at least be positive and productive. Rather than dish out all this cloaked hate, and show the lack of healthy activities you have to fill your life, lol.

  43. I continue because I find it interesting, and because I feel that damage is being done to vulnerable people who will become convinced they have Morgellons and then start to distrust their doctor, and make poor choices regarding their health care.

  44. My doctor and I have each done our own studies looking (with a dermascope) for fibers on everyone who will let us. He thought we would find them on everyone and this would help us conclude that these are environmental fibers. I examined friends, family, and associates. Most people had NO fibers. I did find some fibers on one of my sisters who I share a bed with occasionally. And found a few on a couple of other people. My doctor found NO fibers on his wife or children, but he has them, but only on his hand. He examined his regular patients and found some with fibers, but most without any at all. The fibers found are all the same colors, black, blue, red, and colorless.

  45. Would you conclude that those people who have fibers on their skin have Morgellons? What if a microscope revealed that the remaining individuals also had fibers on their skin? If the tests in August reveal that the fibers are typical clothing types will you accept that report, or try to prove that the fibers are caused by Morgellons?

  46. Whatever. Oooooh.

    Greta, what type of doctor is this, that you have?

  47. No, I would not conclude everyone with fibers has morgellons.

    If the tests in August reveal the fibers are ordinary environmental fibers, I would still like to know why they appear to be growing under my skin, but yes, I would accept that my body and/or some unknown organism is producing them.

    My doctor is a medical doctor.

  48. And to answer your question about if a microscope revealed that the remaining individuals also had fibers on their skin? First, keep in mind that dermascopes are quite powerful, and second, I ask you this, since when have ordinary environmental fibers become microscopic?

  49. There have always been microscopic environmental fibers. Are you saying that if the tests reveal that these fibers are environmental, or clothing fibers, you will still insist that your body, or a pathogen, is producing them?

  50. More info about my doctor. He was a family physician for 20 years and for the past seven years, he has been a psychiatrist.

  51. Don’t waste your time on morgellonswatch.com. This website is being paid for by the people responsible for spreading this disease/parasite/bacteria, whatever it is.

    Factual information can be found at:
    http://biology-online.org/biology-forum/about1958-3324.html (note that you scroll through the posts on the biology website by using the “GoTo Page…” in the upper right hand corner.

    Also see:
    http://www.cdc.gov/ncidod/EID/vol9no2/02-0222.htm and here is more:

    http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=2768446&dopt=Abstract
    I just found out it is from the tobacco hornworm! This is the insect that the parasitoid wasp does a number on!!

    http://www.sciencedaily.com/releases/2004/10/041025120719.htm

    I have been trying to tell you guys about the ricsettsia diseases, in which they now call all of them the Bartonellas:

    http://www.sciencedaily.com/releases/2005/12/051219084711.htm

    Lice Join Ticks As Possible Disease Carriers
    http://www.sciencedaily.com/releases/2005/03/050328182844.htm

  52. I dont believe we have all contracted the plethora of symptoms seen in this health problem. I am most certain it has much to do with a persons immune system and their general health, those with good and very good health seem to have fewer symptoms. I also feel that the best of hygenic habits is essential for a reasonable measure of comfort. I feel very sad for all those who suffer with this, BUT stay focused and upbeat always, there are more people that care about each other in the world than their is ten percenters. Dont be in their club!

  53. I dont believe we have all contracted the plethora of symptoms seen in this health problem. I am most certain it has much to do with a persons immune system and their general health, those with good and very good health seem to have fewer symptoms. I also feel that the best of hygenic habits is essential for a reasonable measure of comfort. I feel very sad for all those who suffer with this, BUT stay focused and upbeat always. Most people care about each other in the world. Dont be a ten percenter.

  54. Randy,

    How can you advise people to remain upbeat while you help to spread the Lie of Morgellons. These people have real medical problems, but they DO NOT have a disease called Morgellons. I hope you see a good doctor, and follow his or her advice. The myth of Morgellons is hurting a lot of people, and the myth can kill. Wise up before you get caught up in something you can’t escape.

    Tall Cotton

  55. I sympathize with all of your distress over your symptoms, which I know are very real.
    I share your symptoms. I contracted the symbiote via self-administration.
    I helped develop it.
    It has been disseminated to the population via it’s mixture into jet fuel, and is constantly mixed into the atmosphere, the air you breathe.

    This is the very beginning of what will become a world-wide phenomena which will at first be perceived and publicized as a pandemic outbreak.
    This is not the case. While the efforts and reaction to the process, will be the same as any nation reacting to the perceived pandemic, said efforts will be a secondary and necessary second phase of the administration of the “treatment”.
    We have limited the discomfort of the process to as little as possible. Believe us, the earlier prototypes much more disturbing side effects and were less efficient in their purpose.

    Which leads me to state its purpose.

    The symbiote and it’s planned “inoculation” are binary processes in part of the most important phase our global society will be going through in current history. Possibly ever.
    With the human genome being completely mapped, a long dreamed of goal of forcing human evolution can now be executed.
    What has commonly been known as “Junk DNA”, genes that have been shown to have no purpose in our physiological makeup, previously accepted as “filler” in the complex chain of DNA, is in all actuality, “potential DNA”. We have proven this with the engineering of an entirely new and advanced species based on our own DNA, with many of the “potentials” unlocked.
    The program to develop such a species (among others) has been going on since the 1950′s.
    This symbiote causing your discomfort, and as stated before, the coming “inoculation” are dually active in reorganizing our chromosome, unlocking our stored potential to bridge Homo Erectus into out true potential as spiritual, efficient, prosperous beings: “Homo Terrus”.

    The life of Homo Erectus is coming to a close. Not to be shut down in one fell swoop, but in a transitory phase of change. Erectus is riddled with traits undesirable to our modern world. These traits aided us through history, and especially prehistory. They kept us surviving. The world we have created for ourselves demands we change with it. Our collective views and morals collide endlessly with our base instincts to horde and kill. These have been ironed out. The birth of Homo Terrus will be a slow one, a painful and chaotic one, and yet, in the end, a glorious one.
    Do not fear the symptoms. They will not reach the point of unbearableness . Comfort each other. The mental fog is temporary. The symbiote will leave our systems when the final administration of the “inoculation” is performed globally within the quarter-century. Change is on the horizon, and clarity and entirely new dimensions of reality and experience lay before us. Do not feel alone. We are ALL in this together.

    Do what you will with this information, as nobody in their “right mind” would believe such perceivably manufactured tripe.
    I have shared this for my own reasons, and understand the repercussions, but I am doubtful of any backlash, as this will be swept under the rug by one of our “beloved” traits: “arrogant skepticism”.

    God be with us all.

  56. Now that is interesting anonymous. Life is always good for those of us that will listen. I hear you!

  57. Anonymous,

    I hope you don’t expect anyone to believe that B.S.

    Tall Cotton

  58. Oh, what would we do without Anonymous to bestow this enlightenment upon us?

    Thank you, thank you…THANK YOU!!!

    Okay now, Beavis, find your buddy Butthead and try keeping inside the correct forum for your games.

  59. Homo Erectus has been extinct for ages. I’m not at all surprised to learn that “Erectus is riddled with traits undesirable to our modern world.”

    I’ll bet he can’t even whip up a good omelette.

    I thought you left us, Randy?

  60. Shoot, I feel the need to apologize. Forgive me, Anonymous, because there’s no way for me to distinguish a stupid ignoramus who gets their kicks from messing with sick people’s minds, from a geniune paranoid schizophrenic. Whichever you are, you need serious help.

  61. http://en.wikipedia.org/wiki/Homo_erectus

    There’s even some debate over whether or not Homo Erectus had fire. I’m pretty sure he lacked the dexterity to use a spatula.

  62. Yes, I am hoping for a raise this month. Thanks.

  63. Did you ever get your sunglasses?

  64. Nope, I decided to save my bonus points for a teleporter, instead.

  65. Oh, I’ve been caught in enough vortexes that I don’t trust teleporters.

  66. Jeezelouise : I will return when I please to write encouragement and to communicate with the normal people with a real affliction that come here. Im not interested in the freaks. Their just wasting our time. If anonymous is so strange then how do you explain smileykins satanic experience. Thats not hard to believe?
    Its a love story, the first time tallcotton saw smileykins metamorphesize it was love at first sight. You people all need to read this stuff to realize who we are dealing with.
    For all of you that have not read smileykins blog your in for a real treat! Ill try and find the blog and be back.

  67. Randy, most of them are smart enough to know that all they have to do is click on the name. Obviously, you need to read it again, and this time pay attention.

  68. I have read it twice and still find it hard to believe or that anyone would write something so far out without having evidence.
    Where is it? I have mine! Thanks for the blog directions.

  69. Randy, you may have evidence that you are sick, but you have no evidence that Morgellons is a distinct disease. No one has any such evidence because it’s not a disease.

    This blog is filled with evidence that it isn’t. The only evidence you’ve provided, thus far, is that you have psychiatric problems. If you choose not to believe our story, that’s your loss, not ours.

    We know that our story is true, and we know what we are talking about when we say that Morgellons is not a disese, whether you realize it or not. Are you going to believe the CDC when you get their report, or are you going to hang on to your delusions?

  70. We previously had a Randy Yaskal (Raskal) posting comments here, but I believe this is another Randy. Are you the athletic Randy that had seborrhea & eczema? I’m sorry, if I’m incorrectly recalling who you are, but even at that, my gosh, Randy (haha), it’s not as bad as your misinterpretations of me, in your comments.

    Okay, what’s this “evidence”, you’re referring to, Randy? Do you mean crud, like everyone else has, that, naturally, all looks similar to everyone else’s? I’d had enough crap escaping from my skin back then, that I couldn’t even begin to clean it all up. I’d even thought that I had to put some of it into my freezer to render it disabled. I’d kept containers, too, like everyone else. It was just meaningless crud, that only seemed like it was something else at the time. Is that the type of evidence you’re referring to?

    I didn’t scratch, pick, and examine my skin, as many morgie people do, and I didn’t have a microscope. But, even if I had, I’d had lots of microscopes growing up, throughout my childhood. I say that, because I think a gigantic portion of morgie people have obviously never, ever, looked under the lens of a microscope before. They absolutely shouldn’t be, either! That is a very unhealthy practice, and Mary Leitao has been bad to direct such people into doing it. She’s been worse, coming up with her “disease” to help stand in the way of, and assist in further deceiving, such people.

    Let me help you understand better, Randy. Four years ago, for two months, I’d suffered the effects of a delusional state, including hallucinations. I was very ill from a progression of heat rash (due to dehydration), leading on to more complications, including the production, and the passing, of kidney stones. A whole lot of illnesses, regardless of their cause(s), can, and oftentimes, will, affect the mind. Of course, that can produce a state that is similar to the effects of a mind altering drug. I could still act quite normal around other people, though, regardless. I became increasingly ill, and my health deteriorated to the point that I was wasting away. When I realized I had to force myself into struggling to apply adequate restorative health measures, I was back to a normal state, both physically and mentally, in a very short time.

    Believers in this, have many different things going on, that they’ve all chosen to place underneath the title of “morgellons disease”. I didn’t have it. I’d heard about it three years after my experience, on Coast To Coast radio talk show. I went to MRF’s website, like the program directed, which took me to Lymebusters’ message board. I was told there, that I had it. No, I didn’t, because there’s no such thing. I already knew better, but I spent about six months there, seeing what was going on with people who think they do have such a thing.

    People who haven’t received DOP diagnoses, well, who knows what they have going on? I only know of the people who have had that diagnosis. Apparently, a lot have gotten it more than once, too. I didn’t receive it, but I didn’t exactly need to. There was something making me see things differently those two months when my body was ill.

    It appears there are some believers freaking out over normal environmental fibers on their skin. Some have fibers and other environmental debris trapped inside their epidermis and they need to restore their skin’s, and probably their entire body’s ph balance. Lots of believers examine everything coming out of their bodies and obsess over it. They’re deep into examining things they should not even be looking at, and handling, in the first place, and misinterpretting what they’re seeing.

    Many are injuring themselves, convinced that they’ve got something they need to kill. They use toxic substances externally, and internally. Quite a few notice fibers only when they dig into their own connective tissues and pull them out. A lot seem to pull scabs off at various stages during healing, thinking that something alive is underneath them.

    Careful advice along the lines of refraining from causing themselves further harm incites anger. I know what incessant itching is like to live with. Many of these people are using oats to bathe in. Not something like Aveeno brand colloidal oatmeal, but oats, just like the kind we eat! That is not going to help alleviate itching. There seems to be little desire to learn anything reasonable, or of value to their health, or of any interest to leave their skin alone. Instead, they only do things to make it worse, and keep it messed up. Are you like that, and can you tell me why, Randy?

    The belief in “morgellons disease” has caused many people with real conditions to sort of be in denial of them. I say, “sort of”, because they have somehow gotten it into their heads that an undiscovered “morgellons pathogen” is what has caused everything. Quite a few people seem to burn most of their furniture, clothing, and belongings, and move from home to home. It follows them, and they say they’ve ended up losing everything because of it. None of this is due to something that a mentally disturbed woman labeled as being “morgellons disease”. It’s something that only each individual ought to know they have to face and deal with.

    The trouble is, they definitely don’t know that, and that they’re in more desperate and dire need of assistance than they even realize, from all that I have gathered from associating with many of the “victims” of this, on line. Maybe some actually aren’t, but too many that I’m aware of, truly are in need of help. Yet, from all that I can see, they don’t seem to want it, other than from placing their hopes into the wrong hands.

    I hope I’ve helped you understand me a little bit better, now. I’d like to understand you, as well, please.

  71. I wrote several posts, but I believe your all so immersed in your world you only read whats conveinient for you. Look!

  72. Randy, I read your posts, you said:
    - Three years ago, you abruptly felt “strange and somewhat nauseus” after working. Suspected something in some old dirt you moved.
    - Shortly after, you felt a moving, crawling, pinching sensation on your skin, but could see nothing. Suspected critters from the dog.
    - You rubbed your head with a cotton ball, and found on it red, white and blue fibers, and some small specks.

    https://morgellonswatch.wordpress.com/2006/08/17/coming-attractions/#comment-4531

    What is your condition now? Do you have fibers? What about the fibers is unusual? What’s happening now that makes you think you are infected with something? Why do you think it is “Morgellons”?

  73. I dont know what morgellons is? Im only aware of the symptoms I have.

  74. Well, what are you arguing about then? I’m not disputing your symptoms. I’m sure you do have itching, crawling, and fibers on your head. What’s the dispute here?

  75. Microscopic! threads all entangled in several colors. No lesions,
    Sometimes red marks where Im sure a small pestilence resides.
    Black specks from the size of a pin head to the size of the pin point. Microscopic pieces that resemble wood slivers, and the occaisional amber critter looking thing. Im not a researcher so I dont have a clue as to the origins of this. What say you bud!

  76. Is the problem on this blog all over what this is labeled?

  77. What is your point in being here?

  78. You have no such affliction, do you?

  79. I know your groping for a reply, I can feel it!

  80. Randy, I’m sorry you are ill. Sometime though, things are a little simpler than they appear. I take it you have a microscope? Have you spent some time looking at things that you did not think came out of your skin? I suspect that if you do, you’ll find a lot of weird things there too. Have a look at the debris inside your keyboard, or just look at some laundry lint under a microscope.

    I know you think you’ve found something of significance, but all the things you describer are just the kinds of things you find floating around the environment, on every surface, and especially on your skin. The “amber critters” are probably sebum. The “wood slivers” are possibly wood slivers, or hairs. The threads are fibers, which are everywhere you look, and generally red, white and blue.

  81. Mar dude, do you really think I just crawled out from under a rock

  82. There is no cyclone in this house whipping up fiber or anything else. Sounds like the wizard of OZ. I dont want to be Dorathy

  83. Being very intelligent does not preclude you from making a mistake. I make mistakes all the time. I’ve also held mistaken beliefs for a long time.

  84. Did I spell Dorathy wrong?

  85. No cyclone here either, but there are fibers on every sufrace.

    See here:

    http://morgellonswatch.wordpress.com/2006/04/11/fibers-are-everywhere/

  86. Three years of living with this is plenty of time to make observations? You know Mar…….I dont like this stuff inside of me. It really sucks. But this is the most resilient life form I have never wanted to meet.

  87. Do you have some fibers right now? Can you measure them?

  88. It is here and I have doused it with everything I could find and still live. Thats before I discovered this is under the surface.

  89. The threads are always present in some measurement but I measure in inches and feet not in these dimensions.

  90. This is contagious! It is somewhat controllable but worse at certain times of the year

  91. My observation for me alone, Summertime:tolerable. Autumn:worse.
    Winter: sucks big. Spring: Gets better In New England

  92. I can deliver a sample at any time of the day because Im completely infested! This grows at a .incredible rate

  93. Because this is microscopic no one knows it is there but me and the few people I have confided in.

  94. Forced analysis for me because most people including physicians find this repugnant, Freekin cowards, no balls.

  95. I think I can say this, Im known for facing the worst and coming back with a smile. So what is your gig?

  96. Randy. excuse me for asking, but how large an area does this encompass? Is it only your scalp? Thank you.

  97. Mar dude did you fall asleep?

  98. Head, eyes, feet, hands,inner ears,groin etc
    EVERYWHERE MAR This thing is efficient and all encompassing

  99. Have you ever been told that you have seborrhea?

  100. What does your doctor say? Itching has lots of causes.

  101. I consider myself lucky because I have habits that Im sure really piss these things off. I exercise often and the constant flow of perspiration drives some of them off me. But its never enough.

  102. I must take two showers daily and scrub with a tire brush with a long handle to reach the back. People tell me Im thick skinned, they dont know just how thick

  103. That sounds like milaria, Randy. Heat rash, and the expulsion of dead sweat gland cells.

  104. Doctor says Im as healthy as a moose but wouldnt look at me any closer than he needed to.

  105. NOOOOOOO, you are DAMAGING your skin. Do not use that brush, and try to back off on showering so often. Don’t tell me you use hot water, too.

  106. Im a very very healthy person except for this nuisance

  107. My skin is good and the use of a brush doesnt bother me at all.
    I visited a dermatologist and he was dumbfounded as well. Couldnt explain this and said its not often he sees something he cant explain.

  108. Im going to a epidemiologist next

  109. I guess I will let everyone thats willing have a try at defining this. So why are you people interested in this strange thing?

  110. Well, okay. I thought you were stripping your skin, from the sound of it. Here is a good link on skin care. (and go ahead and laugh, if ya wanna).

    http://www.skinbiology.com/keepingskinyoung.html#Damage%20to%20the%20skin%20barrier%20and%20skin%20conditions

  111. Click onto the name, Smileykins.

  112. I think something is very strange here people. Are you all sitting in a place,together, with your laptops at the ready?

  113. I read it more than once Skins and I dont get it, I mean I hope I never get that.

  114. Yeah Im on the laptop but Im alone. Are you sitting with the cutting crew?

  115. If you are into reading things, did you read this:

    http://merck.micromedex.com/index.asp?page=bpm_viewall&article_id=BPM01DE05

    It’s inordinately interesting if you have any kind of itching.

  116. I hope that you never do either, and since you’re so active, can I trust that you keep very well hydrated?

  117. I wouldnt describe this as itching. More like crawling and when the temperature changes from cool to very warm and causes perspiration there is a bristling sensation on my head. Around other parts such as the butt or groin its a irritating pinching.

  118. When I return from work I have been warm the entire day and my feet are especially moist. When I enter the tub and have a few inches of water in it I swish my feet vigorously and thousands of the infamous black speck are there in the tub. Now the tub is a beige color and the specks are very easily seen under this set of circumstances.

  119. I drink lots of water skins

  120. I cant type fast I use the hunt and peck method.

  121. Yeah. When I perspire, I feel just like something is biting me. My kid does it too. If you read “Skins” story, then ya know I have skin allergies. My kid had to use Nizoral shampoo for a period of time. Why don’t you get some of that and try it? Derm doc to her to wash her hair every time she perspired, even if it meant doing it a half a dozen times a day. You can’t get a quick fix, as I guess you already know. It takes real diligence, and extreme care, to get skin back into proper functioning.

  122. So what label would you like to put on this. Hows Randys crappie bugs. I know you have a aversion for morgellons OH SORRY! I wrote it again.

  123. I dont know what it takes Skins! I have never encountered anything at all like this.

  124. Randy’s crandies. Yeah, I like dat better.

  125. Crandies huh…………maybe, but their my bugs and I reserve the right to make the final decision. One of you will probably fight me on anything I label this.

  126. I need to sleep now, it is 10 PM here in New England and Im up at 4 AM for work. Good night and be blessed by something!

  127. Well, I don’t know how a dermatologist was baffled at what you have, Randy. Were you prescribed anything, or given recommendations, and tips on what to do? For instance, my kid and I both have eczema, but it’s been in remission for a long time. We do our best to try and keep it that way, too. I’ll tell you one thing, and it’s even mentioned at the bottom of that page in that link I sent you a while ago. Dryer sheets. Big skin offender. I realized that, many years ago. Not only did they make a gummy residue, after a while, inside my clothes dryer, but that residue was in my clothes, and my skin reacted to it. I only use liquid fabric softener. If you use dryer sheets, I recommend not using them anymore, to anybody with skin problems. Never bathe or shower in hot water, and use a super-fatted soap, to bathe in, and only apply something like Cetaphil, or Lubriderm lotion, after you gently pat dry. Lots of things with added colors, and/or fragrances, have to be avoided, as well as anything with alcohol in the ingredients. Back when I was ill that 2 months, in 2002, I bathed in seborrhea/psoriasis shampoo. It was helpful, for a while. You have to refrain from scratching. Aveeno colloidal oatmeal bath helps. Vitamins A & D. and E, and C, do, too.

  128. Oh my goodness, I used to use dryer sheets and my clothes and bedsheets used to make me itch. I though I was getting dry skin in my old age, but it suddenly stopped. I was thinking back and it was right around the time I stopped the dryer sheets. I ran out and just kept forgetting to buy them. I guess that worked out for the best.

  129. Yes, that was a stroke of luck, huh? I stopped using dryer sheeets just a short time after they first became available, Jenniferh. I am on top of just about all my skin allergy triggers at this stage in my life, but it took a lot of exhaustive efforts to eliminate things that my child and I have been sensitive to. It would be nice to not be like this, but it’s not completely impossible to manage, after one gets into the swing of it.

  130. Jennifer, see, there’s the thing. There are lots and lots of reasons that people itch. As you said earlier, the difference is FEAR, and that sometimes makes us reject the simplest answers.

    I have had chronic generalized itching for a good twenty years. I have no idea what I am allergic to, but it’s certainly something ubiquitous in my environment. Since it began during pregnancy, the first order of business was to check liver function, and I’ll admit to being scared. I’ll also admit to having more than a passing interest when Morgellons first hit my local news, and checking my symptoms against the “definition” at MRF – and also to thinking “Whoa, maybe *this* is what I have!” (Thanks again, Michael)

    But I don’t have Morgellons. I don’t know what causes me to itch nearly every day, and perhaps will never know. But Benadryl works, and that’s a lot easier to accept and live with, than deciding to be a Morgie.

  131. It is something to look out for, especially with new products coming out all the time. I’ve heard of cases where three allergy patients come in on the same day complaining of morbid depression. The culprit was Claritin, but it was a very rare side effect.

    Back to fabrics, does anyone remember the flame retardant fabric Tris? It was supposed to be like asbestos but totally safe. My mother got me a nightgown made out of this. It was warm in the winter but it had what I can only call “sticky lint”. It didn’t go into the skin but for the first time I wore it I had to shower afterward. Long story short, it was recalled because it gave mice bladder cancer or some strange side effect.

    There are a ton of things that can mess with skin and emotion, and that is where the trouble can start. When we get afraid or obsessive, simply that mood can be an immunosuppressant. If we catch something or think we have, a good mood and a fighting spirit is absolutely necessary.

  132. http://groups.aol.com/moregellons

    “If you are sane enough to know they think you’re crazy,your crazy if you let them tell you -that you are insane..think about it!!”- LeanneDenise(c)2006

    love in Jesus, Leanne
    http://WWW.GODSpeople.inJesus.com

    ps-ouch it really really really hurts people!!and so i say medical people;

    Be a part of the solution,otherwise you are part of the problem!!-LeanneDenise

  133. I do like that comment.

  134. Best way to figure if you have this is to go to a doc and rule out everything else. If you have non healing skin lesions with microscopic fibers in them visible with a 100X microscope you have this.

    First check and get tested for bacterial infections, MRSA, Fungal infections known parasites.

    Go to a derm and see if he can recognize your skin disorder and then double check to make sure you do not have scabies.

    Go to a shrink and get a clean mental health check up so if any doc tells you to see a shrink you can say you already have and shut him up.

    Randy Beth

  135. Oh, my gosh. Hang on. Go to a doctor with the symptoms you have, and communicate effectively. Doctors do not treat patients by “ruling everything else out”!!!! Don’t go to a shrink and do what Randy just said, either. See? You just let the cat out of the bag, girl, although I knew it, already. If anyone sees a shrink and withholds what is going on, just to dupe someone, then, who in the hell is that helping?!!! O…M…G…Randy.

  136. Lady, you just told the whole story, right there. People who think they have “this” need someone that can go to a doctor WITH THEM to communicate their symptoms to the doctor, and assist them in doing so. Mercy sakes alive. No wonder such people get pissed off at doctors and blame them, thinking that they don’t know how to practice medicine.

  137. Leanne said…

    “If you are sane enough to know they think you’re crazy,your crazy if you let them tell you -that you are insane..think about it!!”-

    I thought about, and it’s a stupid statement!! Many people think they are sane, but they’re still crazy.

    Tall Cotton

  138. Randy – some 2 yeas too late to giving advice don’t ya think?

    When I registered with your support group through yahoo – you gave me some quick advice in an email, I remember a couple of things:
    1. Exercise even if feel you like it will kill you. 2. Avoid stress – IT feeds on it.

    Before you say anything – I still have a copy of this email. 1. I was that ill I couldn’t walk let alone exercise. 2. I was a bag of stress. Not good advice looking back now do you think not?

    You may not realise this Randy but I became the “meat in the sandwicb” with you and Mary Letao. I was “programmed” asked actually to post 2 or 3 comments on Biology Online – I used the username: Doobie. All were written by Mary herself. I received warnings to my personal email address for these each time, but I didn’t worry at the time becauses it made Mary happy!!!!

    I heard you tried in the early days to get your claws in Dr Wymore, telling him you were getting a grant etc. Oh yes Mary has told me that one too.

    People need to be accountable for their actions, especially when throwing around medical advice and playing Chief/Boss and are probably not qualified for either.

  139. I think someone may have sent someone to attack me. It is happening over at Morgellons Group.

    I hope she comes here and reads – SHE needs to learn this saying “A Little Knowledge Can Be Dangerous”.

    She has obviously no idea who I am, or anything other than what is written on this blog – so therefore – she IS dangerous.

  140. This has been a rather hard day for myself and I am still up a little bit too late than I would have liked, so I will try to make this quick and concise.

    My anger grows more and more each day with what I have suffered at the hands of the MRF and others alike.

    The MRF & Morgellons Sufferes on the internet will come to a grinding hault sooner or later, but this will not stop as quickly for the victims and their families.

    Look what you people have done. People have killed themselves, relationships broken up, familiess ripped in half and god knows what else.

    I wonder if other Morgellons victims share my same fear? of consistently thinking they will be made to be look like a fool, or crazy. Their families never really feeling the same way about them again, not being able to erase the past nightmares of Morgellons that were inflicted upon them by someone else.

    I continued my search for the illusive pathogen, not for spreading the word about raising money for a pack of leeches and maggots, but to regain my credibility and dignity as a person, to be given some god damn RESPECT.

    You sicken me to death, I wouldn’t even piss of ya if you were on fire.

    Of course I am in no position, or would even want, to come chasing after you MRF with a law suit. I think there will be plenty of people in the USA beating me to it anyway.

  141. Randy Yaskel,

    In my opinion, that was lousy advice. People should not try to pull the wool over the eyes of their psychiatrists. They should discuss any mental issues they have which are causing problems.

    Neither should they attempt to take tests to eliminate all other possibilities. That would require several visits and needless expense. No doctor is going to do that anyway, unless he is a quack, and certainly not on an HMO.

    Tall Cotton

  142. That’s the-thing-about most of the people (at least, all that I have ever read about) who think they have this “morgellons disease”. Mary Leitao, quite strangely too, because one would certainly think that with her background history of working in the medical field, that she ought to be a wee bit doctor savvy (then, again, when a person is sick like that, it cancels everything else out, though)….but they’re honestly (and I’m sorry to be so blunt), “delusional” in expecting a doctor to diagnose a person through doing unnecessary tests!

    All of this absurd talk that conventional medicine is a crock, is unfounded. Doctors have, and always will, diagnose the correct way, based-upon-symptoms-in-the-clinical-presentation. Naturally, if a person goes in focusing on fibers in their skin, that has one diagnosis, and it is the right one, if the doctor is up to par, and not swayed into a less than ethical direction by believing in this “morgellons hype”. If patients mention other symptoms, rather than only that, a doctor would take those other symptoms into consideration (based upon their patient’s presentation), and if they deemed it necessary, order tests. But, if all the focus is on fibers in their skin, and a doctor sees that is their main concern, I doubt, even if they have do have any other symptoms that they wanted to further mention, that a doctor could, maybe, or would (but now, I am “only guessing”), due to their training, do too much in the way of considering them as carrying a whole lot of weight, until the first diagnosis is treated, and resolved, for the patient. Then, they can sort through, and move on with their other health concerns.

    From what I have gathered, upon reading many accounts of patients with this issue, they have indicated that the DOP diagnosis stood in the way of any further communication between them and their doctor. That is why they need a patient advocate to attend doctor appointments with them, to do the speaking, and listening, for them, if they are unable to have effective patient-doctor communication and feel that a less than an adequate service has been provided to them.

    I’d discussed the matter of seeing a mental health specialist and withholding information, concerning what patient is experiencing, with Randy previously, on here. Many people who think that they have “morgellons disease” obviously do this.

    Her advice is erroneously counterproductive.

  143. what I find odd about all of this DOP diagnosis is that for one, until recently I had never even heard of this psychological disorder. As stated in one of the posts above, it is a rare disorder. If it is so rare then isn’t is strikingly odd that out of the blue thousands of people from all walks of life all over the world are suddenly being effected by this psychological disease? If the medical community is fighting so hard to downplay the morgellons with DOP, wouldn’t they have noticed how many sudden DOP cases have currently arisen? Either way there is a major growth is a certain area of formally unheard of case types. Physical or psychological- either way there is still a problem here.

  144. No name, your have a common misconception that is convoluting your opinion about DOP.

    People have always, always had DOP. Some things, like drug use and prescription medication use, are making the reports more frequent. Other things, like the “Morgellons” phenomenon on the internet, are making what would have been something that would go away in a few weeks a lifetime of struggle. People feel itchy and scratchy, they go online, they “find out what they have”, and feel persecuted, and these things contribute to their mental attachment to “Morgellons” (DOP).

  145. People feel itchy and scratchy, they go online, they “find out what they have”, and feel persecuted, and these things contribute to their mental attachment to “Morgellons” (DOP).

    If I were to apply DOP to my symptoms I would describe it as “all in my head” – well yes… the parasites have gone to my head literally because I know I have some sort of infection that has got way out of control. I am not delusional, just sick.

  146. re blog 103 scmooeycummypants……u made a typo…..again….
    its malaria……. you go check, ya supercillious crone

  147. Al,

    It’s a different disease, dummy. You look it up.

    TC

  148. so, Michael you are editing my blogs and deleting them
    well done old chap, indeed the power is yours.
    i dare you to post them you weak assed yank, this is why i urge all those who feel abused by the unholy trio, to print hardcopy of this site, as i have been from inception.. the differences will astound, nay disturb. so where are my posts margy poo?,, and i notice both smkns and tc have withdrawn their blogs at times…..is that open to us all? or only u three?
    WHERE ARE MY BLOGS CONCERNINCY THE CONSPIRITORIAL NATURE OF YOU GUYS M.O.?
    PLAY FAIR

  149. I left out an “i” in miliaria. One can tell, by the content, that malaria was certainly not what I meant.
    Miliaria — http://emedicine.com/derm/topic266.htm
    Al…
    http://morgellonswatch.wordpress.com/2006/07/13/morgellons-photos/
    I’d made the comments there, that you’d just referred to yesterday, when you’d shown up here two weeks ago. You did little else than be ugly acting then, and I see you’ve done it again, after I replied last night.
    Is the Taswegian suffering from Tall Poppy Syndrome?

  150. Smileykins said…

    Is the Taswegian suffering from Tall Poppy Syndrome?

    Hehehehehe?

    TC

  151. really you are such a rude little person smily…. for fucks sake, do you have penis envy?…….lol now i can see where TC’s inadequacy comes from….babe go get laid…..get rid of yr heat ……no not tall poppy syndrome …..tall cotton syndrome, sorta sounds like toxic shock from a johnston product, dont ya think?

  152. Al,

    If Morgellons is a real disease, why is it that only mentally ill people think they have it?

    TC

  153. Ummmmmmmmmm,
    gee, TC….u never heard of neurotoxins?…a la` lyme?
    you had meth sores you idiot,
    perhaps this is different?

  154. Al, we’re immune to the silly nature of what morgie people say, so you’ll either have to try harder or just surrender.

  155. Al, supposedly, there are neuropsychiatric effects associated with what some people call chronic, or late stage, lyme disease, in the form of leukoencephalitis. It causes neurologic impairment, such as bladder dysfunction, ataxia, spastic paraparesis, and marked cognitive deficits, including dementia.

    But come on, man, the topic, here, is “morgellons disease” (not lyme), and concerns people who all think they have the same symptoms. Lyme disease certainly isn’t the ONLY thing listed on the registration page for “morgellons disease”, comprised of already-diagnosed-by-a-physician conditions that people have, as well as their associated symptoms. Hell, neuropsychiatric effects are associated with any condition that attacks the central nervous system! Hello? That results in “we all have the same symptoms”, including YOU, with systemic lupus erythematosus. I’m tellind’ ya, people are getting fucked over good with this bullshit “morgellons disease” nonsense. Lots of people are seriously ill, and have lost their way, and may never find their way again. Plus, thanks to this bullshit being made up, other people having anything wrong with them (or not, even) hear about it, and think they have it. Let’s take into consideration, too, the toxic neuropathy some people are giving themselves from organophosphates, using pesticides, because their underlying conditions have made them think they have been parasiticized.

    Really, now. Who’s being an idiot? Certainly not TC. “Meth bugs” are not any different. DOP is DOP, and brain dysfunctioning that causes people to think they’ve been parasitized, when they most certainly aren’t, comes from any number of reasons that has created the effect on their brain. Why in the hell that is so hard to understand, is because there is a brain dysfunction to begin with, and people have been thrown completely off course with this damned made up “morgellons disease”. Do ya read me, Al? I have listed it enough times.

  156. Hahaha!! “Parasiticized” How ya like that one, Al?

  157. Comment #45 Tall Cotton asked Greta:

    If the tests in August reveal that the fibers are typical clothing types will you accept that report, or try to prove that the fibers are caused by Morgellons?

    Comment #47 Greta replied:

    If the tests in August reveal the fibers are ordinary environmental fibers, I would still like to know why they appear to be growing under my skin, but yes, I would accept that my body and/or some unknown organism is producing them.

    Comment #49 Tall Cotton:

    Are you saying that if the tests reveal that these fibers are environmental, or clothing fibers, you will still insist that your body, or a pathogen, is producing them?

    She certainly did, and didn’t need to repeat it. I wonder how the lady in white is doing at this point in time?

  158. IM NOT REALLY SURE HOW TO JUST JUMP RIGHT IN, I’M A MOTHER OF FIVE,THE OLDEST BEING 17 AND THE YOUNGEST ALMOST 2 MONTHS.I,TOO CAN RELATE TO A MAJORITY OF THESE SYPTOMS,BUT NOT TOO MANY PEOPLE MENTION A SUBSTANTIAL AMOUNT OF STATIC ELECTRICITY AND ASIDE FROM THE LESIONS ON THE SCALP WITH AN ABUNDANCE OF WHAT LOOKS LIKE LINT BUILD UP ALL AROUND AND INSIDE OF THE SEMI-HEALING WOUND,MY HAIR AND MY 1 1/2YR.OLD DAUGHTER,WAKE UP WITH OUR HAIR ALL TANGLED UP,AND BALLS OF LINT DEAD CENTER OF EACH KNOT.WE HAVE YET TO BE DIAGNOSED,I GUESS IM JUST SCARED!WHAT IS THE AGE OF THE YOUNGEST KNOWN VICTIM,TO HAVE CONTRACTED THIS DISEASE,AND DOES THIS (deathly fate)COME IN STAGES, SO WELL KNOW HOW MUCH MORE TIME WELL HAVE WITH OUR LOVED ONES?*OUR SINCEREST REGARD,TO THOSE WHO CAN RELATE,AND THEIR FAMILIES!WELL HOLD YOU TOO,IN PRAYER,GOD BLESS……..

  159. THE FIBERS ARE NOT ENVIRONMENTAL. PERIOD. MOVE ON.

    Don’t believe your body can produce strange fibers? Read this diagnosis:

    Lesions typically appear as elevated, dark, follicular plugs or papules.
    The lesions may have protruding tufts or spines of fine hair
    The horny plugs are soft and contain 5-25 hairs per plug.

    Sound like Morgellons? This is actually a description of Trichostasis Spinulosa, a rare disease in which barely visible vellus hairs grow inside a follicle until the skin gets so irritated it forms an itchy lesion. Scratch or pick at this and guess what happens… LITTLE FIBERS COME OUT!!!

    Your skin feels like there is something crawling in it like bugs because the tiny hairs are growing and touching nerves. If you have this skin condition and you also have OCD and pick at these plugged hair follicles to the point where scarring exacerbates the problem, then go see a doctor, he will think you are nuts. This is because most dermatologists don’t even know about TS. You are certain you’re pulling the fibers out of your skin, so when you hear about Morgellons, you think “THAT MUST BE WHAT I HAVE!”

    Does this debunk Morgellons? Not neccesarily, but it can probably explain the symptoms of a lot of folks who are worried that they have Morgellons and think they might die from it. TS is a cosmetic problem that can be treated with Retin-A. It won’t kill you.

    Furthermore, any doctor who says fibers can’t grow under your skin is a quack and should be barred from practicing medicine.

  160. Obviously fibers can grow under skin, hair being just one example. Nerve fibers are another. Capillary blood vessels are another. The body can also produce things that look a bit like fibers, such as extruded sebum, or even coagulated blood. All these fibers no doubt each account for a certain percentage of “Morgellons” cases.

    But the fibers you talk about are hairs, and identifiable as such. Trichostasis Spinulosa does not seem to be as rare as you make out, eMedicine says “the condition is common, especially in elderly persons”. It’s often initially misdiagnosed as blackheads, since that’s what it looks like.

    Also, Morgellons believers talk about “lesions”, but they are not talking about the same lesions you find with TS, which are tiny black dots 1-2mm or so in diameter. The “lesions” of Morgellons are open sores, which in most cases resemble excoriations.

    Still, that’s a good point Robin. There are a wide range of possible sources of fibers on and under your skin, and people need to make sure they have not overlooked something natural (and known) before moving on to exotic new diseases.

  161. Audrey,

    There’s no such thing as Morgellons Disease. You should discuss your and your baby’s symptoms with your doctor. People who think they are suffering from Morgellons Disease really have a large variety of different health problems. It’s important that you see your doctor and follow his recommendations.

    Tall Cotton

  162. Audrey,

    I have long hair too. I always wake up with my hair in knots. In fact, it gets it knots even when I’m awake during the daytime! And lint is the least of the weird things I’ve ever found in my hair. My partner jokes that my hair is like killer kudzu, and will strangle him in his sleep one night.

    It sounds like you need a lint roller and a detangling spray.

    http://www.shoplet.com/office/cgi-bin/search8_sub.php?mode=all&key=Lint+rollers&cat=all&cpu=all&range=0
    Some nice lint rollers for your sheets and

  163. Michael, I don’t mean to step out of line, delete my comments if necessary, or edit them, at your discretion. I don’t like to talk politics or religion, here, but Audrey sounds very upset, and she brought this up:

    *OUR SINCEREST REGARD,TO THOSE WHO CAN RELATE,AND THEIR FAMILIES!WELL HOLD YOU TOO,IN PRAYER,GOD BLESS……..

    Audrey, if you took your prayer to God in faith, and left it, it is done. Do not keep entertaining your fears and running back to Him in prayer over it, time and time, again. He’ll listen, but what The Almighty hears, is that you had no trust in Him, and no faith that He would answer your prayers, once you placed them before Him, at the cross.

    Did you never have an itchy scalp growing up, or anytime before now, and needed to use a medicated shampoo and resist the urge to scratch? Did you never get little fuzz balls of lint tangled up in your hair, when you were young, and your mother had to struggle with getting it out, tugging, and pulling, at it daily?

    You need to see a doctor, and follow their advice. In the meantime, for an itchy scalp, buy some Nizoral (Ketoconazole) shampoo, lather it, and leave it on 5-10 minutes, and follow up with a creme rinse to reduce static electricity. Have your family drink more water to help with that too. Dry skin gets itchy.

    Dehydration causes skin to be dry, and static electricity is worse when homes are heated in cold weather. Bring the humidity level up inside your home to reduce it. Something as simple as sitting a few bowls of water around makes a difference, if you don’t already have a humidifier. Drinking extra fluids helps dry skin heal, too. .

    I apologize if I am too blunt. The topic is mothers. I’m one, myself. I’m not singling you out Audrey, I just need to express some pent up feelings too close to the surface. Divert your eyes if you think you need to, because here I go. I repeat, I’m not singling anyone out.

    A mother is the most influential force in any child’s life. I implore all morgie mothers, if there is one fraction of a normal thought that can be mustered up in your minds, to know that your behavior is leaving an indelible mark on all of your children, for the rest of their lives. I know that some are worse than others, but the lame defense of, “oh, but I don’t mention it in front of the children”, is just that. It’s a 100% lame defense, an excuse, to hang onto “morgellons disease”, rather than doing whatever your doctors told you.

    Your lives are in chaos, and you need to talk to your family doctor, and be placed on something to balance out your brain chemistry, and/or to talk to a psychiatrist, or a clinical psychologist, also. Your doctor would be thrilled to see you back, and have you ready to try getting better. Mothers owe their babies their best for having had them. They didn’t ask to be brought into this world, and they deserve to have their mother with them, all the way. Those precious little ones know that all is not well. Impressionable little minds are fresh as the morning dew, and, just like sponges, they absorb everything going on all around them. You all deserve to get with it and straighten up and fly right.

  164. Typo: Omit “it” before “to” in my last sentence.

  165. Smilykins said:

    Your lives are in chaos, and you need to talk to your family doctor, and be placed on something to balance out your brain chemistry, and/or to talk to a psychiatrist, or a clinical psychologist, also. Your doctor would be thrilled to see you back, and have you ready to try getting better. Mothers owe their babies their best for having had them. They didn’t ask to be brought into this world, and they deserve to have their mother with them, all the way.

    Well said.

    I’ve just been over to my parents place. I had to get my hair cut, and the hair dresser is mobile, and goes to my mums place.

    I wish my mother would get with it. She is too caught up in her own life and “little” world.

    I had to quickly explain to the hairdresser my reason for shaving my hair in certain areas around my hair line, that being, back of neck, sides of face, entire forehead. I said to the hairdessers, whilst my mum was listening; “I get intracranial pressure in my head, I try everything to relieve my symptoms, and shaving certainly helps.” Mum butted in with something stupid, I just flew back at her and pointed at my big fat swollen feet and ankles, I said “So there is NOTHING wrong with me, hey?”.

    Could you imagine if I had of said this to the hairdresser; “when I run a razor across my forehead, backwards and forewards, long hair like fibers come out.”

    Or even if I had said this:

    “See this black scab lesion on my chin with a “crease” in my chin next to it?” “Well you see, inside that lesion was dark black hairs, some half the size of an eyelash, even smaller, and some twice the size of an eyelash, but much thicker and darker.” “Oh and guess what, I get the same black type of hair fibers coming from the skin on my chin where the skin is intact and not broken. These black fibers are in a half circle shape, absolutely perfect, each one is indentical, and it doesn’t matter which part of the body it came from, they are all the same”.

  166. Those hair-like fibers are called “hairs”.

    TC

  167. Tallcotton said:

    Those hair-like fibers are called “hairs”.

    Yeah I know, but mine have a bar code number “007″ printed down the shaft, you could quite possibly see this number with a hand held microscope!!!

    I DUNNO if ya can… I just like pulling ya leg TC!!! Ha!

  168. This thread has seriously derailed somewhere along the line.

    I’m not sure if the site is set up to dispel some myths or for people to discuss their myriad health problems.
    I think the main issue here is the fact that doctors are blowing people off in two significant ways:

    1. Telling patients that the fibers are sweater lint
    2. Telling patients that they have delusions of parasites

    The first statement is obviously hasty without testing the patient for TS, and the second DOP excuse is even worse because how many of these doctors actually did a test for these little buggers?

    http://pathy.fujita-hu.ac.jp/~tsutsumi/photo/photo199-1.htm

    Japanese doctors are all over this demodex mite. I can’t help thinking American doctors just aren’t up to the challenge of diagnosing and treating these Morgellons symtoms. I have TS on my arms, chest, back and nose. When I go see a dermatologist, the first thing they see is the irritation on my nose and write me a prescription for antibiotics telling me I have Rosacea. As far as I know you don’t get Rosacea on your torso. If they even bother to look at the rest of my body they just tell me to double dose on the pills. FYI no amount of antibiotics will stop hair growth, only worsen it. These doctors just want to get you out of the way so they can squirt some more Botox and make a quick buck. Very sad.

  169. If you know you have Trichostasis Spinulosa, then what’s the problem? Why are doctors diagnosing you with something else? Presumable some doctor has diagnosed you with TS? Or did you self-diagnose?

    Over 90% of all people have demodex mites. They have been called “a mite with which we live in harmony”.

    Robin, is your basic point that different forms of what people call “Morgellons” are explained by any of a number of known medical conditions (Trichostasis Spinulosa, demodex, folliculitus, etc.) But you feel that dermatologists in the US are incompetent, which means they fail to properly diagnose and treat these conditions, leading to people thinking it’s something new?

    How do you feel delusions of parasitosis fits into this picture? It sounds like you think most DOP diagnoses are actually something real.

  170. Yes, I’m saying every dermatologist I’ve seen wouldn’t know a zit from a mosquito bite. And I’ve seen about 6. Reputable ones at that.

    I diagnosed myself with TS. No doctor I’ve mentioned it to has even heard of it. In fact the only doctor who said my problem was probably hair related and not rosacea wasn’t a dermatologist, just a general practice doctor. Some rosacea medications help it and some make it it worse, so I get an Rx for the helpful ones.

    Demodex mites aren’t always harmonious, they can cause serious skin problems. The point I’m trying to make is that dermatologists will dismiss you without looking at you with a microscope, doing a biopsy or anything. They want to do the cosmetic stuff all day, chemical peels and eye tucks. They’re not the least bit interested in pathology or medical mysteries.

  171. Many of the fibers are identical in appearance to cotton. In fact, some have been tested to be made of cellulose. These fibers look nothing like hair. The most likely origin of this particular variety of fibers is from the patient’s clothing. There are also other types of fibers from the environment, and of course their are various fibers that are produced by the human body. There’s nothing unusual about the fibers, or their presence on one’s body. But the Morgies obsess with them, and with cellular and environmantal debris. If anyone doesn’t think that the Morgies are delusional, they should hear what Morgies think about these materials. They’ve also got a lot of other crazy ideas. It’s an established fact that Morgies are delusional, but they also tend to have other mental problems also.

    Tall Cotton

  172. Michael said:

    It sounds like you think most DOP diagnoses are actually something real.

    It is real.

  173. Robin,

    A person could have TS, Roseacea, and Demodex, at the same time, and still be DOP. You apparently don’t understand DOP too well.

    Tall Cotton

  174. Robin Graves Says:

    This thread has seriously derailed somewhere along the line.

    Smileykins Says:

    Hehe.

    Robin Graves Says:

    I’m not sure if the site is set up to dispel some myths or for people to discuss their myriad health problems.

    Smileykins Says:

    Well, Robin, see up at the top of the page, where it says:

    Morgellons Watch
    Resources for Morgellons investigators. Skeptical analysis and debunking.

    Hi, Robin. This blog was created by Michael in April of this year. He’s an easy going gentleman who has many topic threads explaining, and dispelling, the myth of “morgellon disease”. If you look, you’ll see it’s not uncommon for the comments’ sections to be derailed, completely, off topic.

  175. Michael said:

    Over 90% of all people have demodex mites. They have been called “a mite with which we live in harmony”.

    harmony???…i don’t think so..

    Not anymore.

  176. Robin said:

    This thread has seriously derailed somewhere along the line.

    thread??…you mean Morgellons.

    I’m not sure if the site is set up to dispel some myths or for people to discuss their myriad health problems.
    I think the main issue here is the fact that doctors are blowing people off in two significant ways:

    1. Telling patients that the fibers are sweater lint
    2. Telling patients that they have delusions of parasites

    I have never been told 1 or 2.

    The first statement is obviously hasty without testing the patient for TS, and the second DOP excuse is even worse because how many of these doctors actually did a test for these little buggers?

    How do you suggest we fix this situation Robin?

  177. Robin, I’m amazed you choose your own diagnosis over six trained dermatolgists. What evidence do you have that you are right and they are wrong? It seems like if you have TS it would be exceptionally easy to demonstrate.

  178. Morgellons Research Foundation
    Update On Media
    http://www.morgellons.org/medialrt.html

  179. The December 18, 2006 issue of People Magazine, on the stands now, includes an article about Morgellons disease. The article is on page 127.

    Can anyone find this article please?

  180. “Yes, I’m saying every dermatologist I’ve seen wouldn’t know a zit from a mosquito bite. And I’ve seen about 6. Reputable ones at that.”

    What kind of reputable dermatologist wouldn’t know a mosquito bite from a zit?

    Furthermore, it is actually inappropriate to diagnose anything as a “bite” without direct evidence of the offending biter… such as the carcass of the actual mosquito.

  181. Catalases of Aspergillus fumigatus and Inflammation in Aspergillosis.
    http://www.aspergillus.org.uk/secure/articles/pdfs/17086155.pdf

    Inflammation is an important process during infection of host tissue with any pathogen. One way a normal host responds to the infection is by releasing hydrogen peroxide and other similar chemicals. Aspergillus releases enzymes called catalases and it is known that these enzymes can neutralise the peroxide, and it seems possible that that is one way Aspergillus can overcome the defences of the host on the way to establishing an infection. In order to find out if this is true this group have mutated the genes in Aspergillus that cause catalases to be made – there are three catalases (one produced by spores and two produced by the hyphae of the fungus) so there are three different mutant strains of Aspergillus, each one with a different gene ‘knocked out’. When a strain was tested that had BOTH hyphal catalase genes ‘knocked out’ it was found to be less able to infect rats.The catalases are strong antigens for antibody production, as seen in those with chronic pulmonary aspergillosis.

    It can therefore be concluded that the two hyphal genes (named cat1 & cat2) are important for infecting Aspergillus i.e. they are virulence factors.

    ************************************************

    Humm interesting article. I wonder now if there is some truth in the hydrogen peroxide therapy?

  182. Bit late for hydrogen peroxide therapy for me.

    I gotta go to bed and elevate my legs. My entire lower legs, knees to my toes are fat, swollen, and tight. Hurts to walk, but that’s nothin new!

    and weeing razor blades again. It’s ok, I can look after myself.

    Yeah I hear ya! take the advice of my doctor.

    NO respondavou from ANYONE!! NO advce from ANYONE!

    What now santa claus?

  183. Gillian, was whomever placed you on prednilosone informed of your complete medical history? I know that you’ve said you’re in the process of coming off of it, but have you reported your side effects to them….ever??? Look at this, please:

    http://www.drugs.com/MTM/prednisolone.html

  184. Smileykins said:

    Gillian, was whomever placed you on prednilosone informed of your complete medical history?

    Yes, absolutely.

    I know that you’ve said you’re in the process of coming off of it, but have you reported your side effects to them….ever???

    I would always report every single side effect I had, ie. during my IV antibiotic treatment, and inbetween (spoken words & written notes to give to doc). It became extremely hard for me to know what was causing what symptoms. The doc. would just say it was the herx. reaction or that rickettsia causes this and that.

    I am very well aware of the dangers of Prednisolone, and I wish to god I could be off them next week. I know they are playing havoc with my body. My current doc, well forget it, I am meant to see her mid/end January. I won’t be able to wait that long, I will have to organise to see someone else, I can not continue to let these terrible symptoms keep happening to my body.

    Thanks so much for the link, it really helped.

  185. Sarah B-Dunn said:

    Furthermore, it is actually inappropriate to diagnose anything as a “bite” without direct evidence of the offending biter… such as the carcass of the actual mosquito.

    Now THAT was hilarious!!!

  186. I am sorry, Gillian. I posted that link with the information on prednilosone’s side effects before your post was up.

  187. Hehe, and I misspelled it, each time.

  188. When our white blood cells fight infection they produce hydrogen peroxide to oxidize any offending culprits. If a person has lowered oxygen levels, even from something like anemia, that hampers the body’s ability to heal itself.

  189. Sarah said: What kind of reputable dermatologist wouldn’t know a mosquito bite from a zit?

    Gee Sarah, what I meant was that dermatologists don’t know everything. It’s like if I told you “You don’t know your ass from a hole in the ground”

    It’s called sarcasm, it’s a figure of speech that we Earth people use sometimes.

  190. By the way, Is Michael a doctor? He seems to have all the answers even before the CDC report comes out.

    The only thing worse than being preoccupied with an illness because you think you have it is being preoccupied with trying to debunk it.

    Why don’t you people try to discredit Bigfoot and UFOs instead? Seems more interesting to me.

  191. I’m not a doctor, I’m a retired computer programmer.

    I debunk Morgellons because nobody else does.

  192. Robin,

    The belief in Big Foot and UFO’s doesn’t lead to child and pet neglect. The belief in Morgellons does.

    TC

  193. Robin, do you want to tell us what your problem is? Really, I mean?

  194. Many Morgellons symptoms are very similar to those produced by various helminths. The problem is, the only really knowledgeable doctors in most of the Western world on this topic are devoted to research and do not see patients.

    The research is to benefit third world medicine, mostly. Most helminth medications are distributed to those areas, and some to veterinarians in the US, who would lose their license if they were to practice on humans.

    Some worming medications are not available in the US on any basis.

    Due to the influx of outside populations in the US, some consideration is given to re-instating education in nematode parasitology to doctors in the US, but this is a modern ‘consideration’, and the majority of doctors have very little knowledge of these things.

    Humans in the US, when we were an agrarian society, were wormed regularly by their doctors.

    These things, from my research, take a great deal of expertise to detect in a lab, requiring a full time person with constant practice in doing not much else.

    Generally, when a doctor finds that you have not been out of the country and have these biting and squirming symptoms, his sources will tell him a person is delusional. If you have been out of the country, and are very lucky, you may be sent to a place with some experience in dealing with unusual tropical parasites.

    Infectious disease doctors in the US do not deal in esoteric worms. Doctors who are tropical disease specialists generally have a similar practice, but also will administer the required vaccines prior to visiting a foriegn country.

    My advice to a Morgellons sufferer is to take a treck through a rain forest. Go to your doctor and do not mention Morgellons. Say you think you contracted some worm because of the squirming feelings moving around your body.

    That will probably put them on the right track and then they will try to get you in touch with someone, if you are lucky, who knows how to deal with these things.

  195. Corvid, the symptoms of “Morgellons” are similar to many things, like menopause or meth, to choose two at random. Why just pick helminths?

    Why so convinced? Surely not just based on some similarity in the symptoms list. There are hundreds of conditions that could fit that. What tests have you done?

  196. Worms don’t squirm around under the skin, nor do they create that sensation. Helminths can also be ruled out with ordinary blood tests. Corvid, your ideas are a part of the problem, not a part of the solution. Many Morgies already have delusions of intestinal parasitosis, and they don’t need more reinforcement.

    TC

  197. Hello, Corvid. I’d like to point out something that you said:

    These things, from my research, take a great deal of expertise to detect in a lab, requiring a full time person with constant practice in doing not much else.

    A couple of years ago, when I’d first heard of “morgellons disease”, and began reading on lymebusters’ message board, it was confusing to see the term “research” being used so loosely. I soon realized that everyday people were only referring to googling, and simple reading, but with so many in the possession of microscopes (which also threw me off), at first glance, the implications were misleading. Some morgies disagree, but I was, and am, in possession of my faculties, but that type of talk can be dangerously misleading to a bewildered person, who doesn’t know what is happening to them, when they see it. I doubt you’re a scientist any more than they are, but it seems that many people who believe in “morgellons disease” enjoy passing themselves off as such, to one another. You’re advising people who think they have it to visit a rainforest? Um, uh, Corvid, hello?

  198. Corvid said:

    My advice to a Morgellons sufferer is to take a treck through a rain forest. Go to your doctor and do not mention Morgellons. Say you think you contracted some worm because of the squirming feelings moving around your body.

    I have trekked through many rainforests in the past whilst travelling, as well as visiting many different countries in this world.

    An itchy rash on my hands 20 years ago was said to be a contact dermatitis, or neurodermatitis, no tests ordered.

    as well as;

    Itchy rash in all joints ie, elbows, knees. As well as forehead, chin, neck. This was said to be eczema, no tests ordered.

    Both these problems did resolve after treatment ie. topical cream.

    The name “Morgellons” was not even thought of 20 years ago.

    If I were to go back say 8 years when I showed the local doc itchy red bumps, like little blisters which just appeared on my chin. To be told she really didn’t know what is was, but leave it and it should go away. It did for a little while, then came back 12 months later.

    If I were to go back only 3 years ago when I presented at the local doc with a swollen red eye (for no apparent reason). I was told, some sort of an allergic reaction, but it will resolve on its own. Well it didn’t resolve, it spread across the bridge of my nose and to my right eye. This doc also new that I had been to Far North Queensland and Thailand 12 months prior to this.

    And the Dermatologist I saw 3 or 4 years ago with regards to my skin problems, he really didn’t know what I had.

    Please don’t think I am having a “whinge” session here, I am not, just trying to make a point to Corvid.

    Corvid, I have never told a doctor what I thought I may have contracted or what disease I think I may have. I have only ever given symptoms, or said for example; I think it could be thrush (obvious reasons) or I think I have a UTI, and even said I feel depressed and I don’t know why.

    Doctors need and like a patient to be a good ‘historian’, it helps them to help you. If you don’t tell the truth to your doctor he/she is never going to be able to help.

    But as we know, this is not a perfect world, and even if you do tell the truth to your doctor, it doesn’t necessarily mean that he/she is going to be truthful in return.

  199. Michael said:

    Corvid, the symptoms of “Morgellons” are similar to many things, like menopause or meth, to choose two at random. Why just pick helminths?

    It has been a long time since I read about helminths, 4 years maybe. So I can’t really remember.

    At the time though, I do recall that the helminths were a fitting picture for my current malady. I also noted that some local universities and interstate unis in Australia were doing extensive research into helminths.

    What are helminths you ask? (withOUT me doing a google search) hmmmm…I have NO idea!!!

  200. Gillian said:

    At the time though, I do recall that the helminths were a fitting picture for my current malady.

    I didn’t know back then, that what I actually had was Rickettsia Spotted Fever Group.

  201. All you morgellons disease doubters and cynics go and have a look at the firs captured images of a living organism moving that is the cause of this disease. You are welcome to contact me if you want to hear about my seven-year suffering with this disease. I live in London and did not even know there was a disease listed as morgellons until 2006, or that it was the same as the disease I had been suffering from for the last seven-years documented.

    All-comers doubters welcome to view on youtube at

    youtube.com/watch?v=g1MPArQLsLI

    Also

    youtube.com/watch?v=NKW0bCcfvPE

  202. Something moving. Is that your proof? The video is so out of focus, I’m not even sure if I was looking at the right thing. I’d be embarassed to show that video to anyone, much less use it as evidence of anything.

  203. I have an itchy (I scratch most in my sleep ), waking up from frantic digging my upper arms,now reaching to outer elbows &inside elbow crease, my skin is dying, it is beginning to hang like i am 150 years old, it feels like tree bark, is a ugly color, I get large 2-3 inch lumps under the skin too, my arm muscles fold like hanging to my elbows, the pimple like bumps on outer skin, itch unbearably, but they get worse, go thru a stage like, then you get pain, blood and a perfectly round red hole as if a dot(1/25″) in size, usually. they take forever to dry up, if they do. my left arm is fatigued like its almost paralyzed, & blood blister like bruises are coming up in tiny dots all over forearm (same arm), they leave ugly round tiny white spots ropugh kinda scaly looking, but do not get to that point until who knows! but they are getting worse quicker than ever before. I use ice paks and it does help, but now it doesnt seem as if it helps these more rapid ones popping up. as I look at my skin, it looks worse than leather! My body is aging in little areas like at big rates daily, knees, botton of (rear end) muscle tone is just disappearing many places,before my eyes…I am walking lots, too fatigued to really excersize, pain in left leg, spasms at times, pain on inner left knee to inside & slightly in back of knee, I cant feel the muscle sometimes it seems, just pain when I walk. often, I begin to notice my foot turning in and have to lift it(its heavy) or jerk it strait, but the whole leg is not normal.I almost want to lift my pant leg with my hand. I wonder if it is all related, seems too have come about together.? I have had this itchy bump thing tho Off & on 4 almost 9 years ( I havent got it for the last 3 I believe, tho this is the worst). Doctors, a few, E.R. never knows what it is, doctors do the same creams, allergy meds. benydryl til I sleep non stop ( still scratching in my sleep) it has helped some for the 1st time tho. But my muscle tone and skin texture is horribly rough ugly and if I try to clean it, sluff old cells off, massage, nothing helps only aggravates! I am 52 now.I used to get it on my shins at times as well, havent for about 5 years now, but only there and arms, it has scarred my legs also. I also have tiny whites round perfect spots all over the top back of shoulders from both arms up across that area of my back. I just noticed it in march, & I was shocked! wierd spots that are very significant and visible.? no itch , nothing I saw in the mirror 1 time after my boyfriend was looking(didnt know I saw him) I looked later and was horrified! any suggestions? (alergic only to sulfa). thanks.

  204. Teresa, I’m sorry you are ill. I’m not a dermatologist, and it sounds like you need to talk to one. I’m sure you’ve already been to seen one, but problems like this are best handled with a doctor who knows a lot about the subject.

    What you describe sounds a bit like folliculitis and maybe Lichen Planus.

    http://www.dermnet.com/thumbnailIndex.cfm?moduleID=3&moduleGroupID=41&groupIndex=0&numcols=0

    Obviously a big part of the problem is the scratching – I understand it’s difficult not to scratch, but at some point the cycle needs to be broken.

    Unfortunately there are a lot of skin conditions that could be contributing to your condition, see here:

    http://www.dermnet.com/menuCasePhotos.html

    Please try to work with a dermatologist on a more long-term basis than ER visits.

  205. Morgellons is NOT a disease, but rather a reaction to GM products(crops).
    Peolpe with compromised immune systems, such as fibro, are not able to fight off the pesticide proteins.

    Morgellons fibers are NOT fibers, but rather filaments.
    Textile fibers have a twist, such as in a piece of yarn, for exmaple.
    If you look at these filaments closely, you will not see any twists.
    They are shiny and transparent and are clear, blue, red, orange and purple!
    I use a digital microscope at 60X Power. This shows these filaments very clearly.

    Go to youtube and then look at mainemorgellons videos.

  206. Betsy, with all due respect, has anyone (whether it be a friend or family member, or a doctor) ever tried discussing with you what causes you to make authoritative statements about things that aren’t factual?

  207. Do you have these filaments in your skin?
    If you did, then you would clearly understand.

    Anyone can see that these are not textile fibers!
    If you put a textile fiber next to a Morgellons filament, you can clearly see the difference.I use a digital microscope at 60X power.
    Textile fibers are not transparent and shiny…
    Next time I make a video, I wil do this.
    Morgellons is NOT a disease..like air born flu. etc.

  208. aww hell why don’t y’all just ask sarahs daddy about the fiber/cable/nano crap. he’s in the business i believe. i owe you one for my friend karen, sarah. can’t wait to see ya. go broncos!

  209. I have had Morgellons for about 10 months.
    I have put some Morgellons videos on youtube, they can be found and viewed under mainemorgellons.One of the video links is below:
    http://www.youtube.com/watch?v=xxXC9nfuNEk
    I also have a website: mainemorgellons.com

    After much reseach, I think Morgellons is not a disease but rather a REACTION to BT and GM cotton.
    People with compromised immune systems do not have the ability to fight off the pesticide proteins in BT and Gm cotton.
    (I have fibromyalgia and carry Parvo B-19).
    Doctors just “freak out” when this is mentioned as a disease.
    They are yet uneducated in this issue.

    I also think the fibers should be named filaments.
    They don’t have the “twist” as textile fibers do.
    The Morgellons filaments are transparent and shiny.
    When I have taken a toothpick or tweezers over my long filaments, they tear and break up very easily.
    Textile fibers do not do this.

    All in all, because we have may have incorrectly named these,we have perhaps caused the problem with the lack of interest with doctors and reseach…
    “Disease”??.. “Fibers”??… It all sounds like a science fiction movie!
    “Reaction”…”Filaments”…
    Now, that is something to think about….

    http://www.mainemorgellons.com/
    Maine

  210. Well the die is cast.
    I hope that the expulsion from wikipedia sinks in.
    Morgellonswatch is unwanted, unhelpful and causes an untold increase in suffering.
    I note also your practice of banning the voice of dissent.
    You guys are like a carnivale, roll on to the next town duping the innocent, rolling the savvy.
    How do you feel, Michael? The architect of this site, allowing your vultures to destroy lives?
    Michael, how do you feel,
    About a poor lady, living in a car, committing suicide as she could no longer bear the pain….
    How do you feel, Smilykins, knowing that you, yourself may have been instrumental in increasing her feelings of abandonment, of despair?
    TC, however you feel, is between you and your maker…
    Tread gently please Morgellonswatch, let there be no more ridicule or myth.
    Best Regards Al

  211. Betsy, can you share where you received accreditation to do all of your research? Thank you, Smileykins

  212. Smilykins, you are just a high school graduate, correct?
    Once again I adjure you.

  213. smiley,
    where did you get your degree? or accreditation? you do have something besides that lame story about delusions caused by dehydration right? i mean,just between me and you,you think about dressing up the old resume if thats all you got. focus on your positive achievements. for instance you can highlight your computer skills and provide examples along with a reference by simply listing morgwatch in place of that pathetic story as the focal point of your resume. actually one’s just as weak as the other so don’t bother. make ya a deal smirkey? you stop asking people for their credentials and we promise to send you that hooked on phonics program you have been wishing for. run forest run! and stop eating that box of chocolates

    smooches
    ppy

  214. Al, I feel fine about all I have done. I have only every tired to help people by prompting them to work with their doctors, and to not put all their eggs in the rather tenuous basket of a “Morgellons” diagnosis. I stand by everything I’ve said.

    The link was removed from Wikipedia simply because this site is essentially a blog, and they have rules saying links to blogs should be avoided. This does not reflect on the content of this site. Many editors felt the link should still be there.

    People are sick. Physically and mentally. Nobody disputes this. The dispute is how best to treat the patients in order to make them better. I think that it should be based on actual evidence. The MRF and Savely/Stricker feel anecdotes and wild speculation are better.

  215. Ppy, you only want to communicate your confusion over thinking that you’re a bad person, and you’re not. Al and Norman know that I only graduated from high school. I don’t go around asking people for their credentials, haha!!! Betsy just makes authoritative-sounding statements as if they’re facts, and she says that she bases them on what she calls “her research”. I think it’s reasonable to ask specifics about such things, and she should be forthcoming with the topic she broached, herself, after all, as that is how people communicate. If I asked another stupid question, she can just keep on ignoring answering them, leaving me speculating as to why she’s being evasive.

    Hi, Al. I’ve missed you, and I hope that you’re feeling better. The disdain that you, and such a diverse group of patients with similar traits, harbor towards this blog has always been evident, as well as the reasons why.

    Michael sends a positive message, of truth, and he’s, clearly, a humanitarian. Doesn’t the “morgellons disease community” seem to discourage communications with people outside of “the illness”, due to the groups’ prejudices towards anyone who isn’t in possession of their uniquely similar thoughts or practices? I have always suspected there to be another reason for the isolation, as well, but that has yet to be proven. Sharing fears and dangerous practices, rather than even wanting to try working through the reasons causing them, is impossible for me to understand as being something that patients consider as being supportive and good. I totally understand what it was like to share my past illness with someone who completely seemed to have endured something so much like it, but, “morgellons disease” is not something that anyone can’t save themselves from, with the right kind of help. There appears to be so much of everything negative living inside of so many patients who think they have “morgellons disease” that they are powerless over themselves, though, and I feel so badly for everyone.

    It’s a well proven fact that patients of a particular persuasion (of which many “morgellons disease patients” have freely admitted to having been diagnosed with), can not, by virtue of the underlying illness causing it, allow themselves to receive that diagnosis, or the necessary treatment for it. But, I also feel that it’s reasonable to presume that a portion of “morgellons disease patients” are inadequately equipped to sufficiently deal with the necessary communications between doctor and patient, thereby, rendering them unable to attend to their health needs on their own. There are, without doubt, lots of other subcategories of “morgellons disease patients”, but some evoke (in me) a much greater level of concern than others. There are those who really appear to love it, and it’s easy to see which subset they fall into. Such patients as those really add, so much, to the further misleading, and subsequent harm, of others.

    I suppose it’s the prerogative of each affected individual to not appreciate the heartfelt concerns for their welfare, as many “morgellons disease patients” claim as having occurred within their circle of friends and family members, resulting in a state of estrangement between them. When anything is put forth, like this, for all the world to see, it should come as no surprise that some people will take notice and draw conclusions from all that has been said and done. “Morgellons disease” IS an unprecedented event, and it’s hard to bear witness to people succumbing to all it entails.

    I know that there is treatment for what every INDIVIDUAL patient actually has, which they’ve labeled as being “morgellons disease”. I think that’s the main message of Morgellons Watch. No lies. No deception. No money being made off of patients who can’t fend for themselves. Just go back and listen to your doctor, and treat what you have. It’s not that simple, especially now. I realize that. Someone needs to pay for all the wrongs, and everyone is in need of a knight in shining armour. I’m sorry.

    I think it’s so unusual (I’m not saying it isn’t all right for those who make the decision to participate) to disrespect the memory of someone by using their death in the ways that so many “morgellons disease patients” do. Karen Stern, aka Skinmystic, didn’t take her life due to anything that Michael, Tall Cotton, or I, did to her. For anyone who knew of her and didn’t keep up, I strongly recommend performing a search on her comments on lymebusters’ message board, and learning quite a lot of something about her life from the words that she left behind.

    In Skinmystic’s last comment, just four days before her death (in the topic thread wishing Friski, “Happy Birthday”), she’d inquired about the smoke from the wildfires and was expecting it to soon arrive where she was, homeless, in the Mojave Desert. Was her death confirmed as suicide? If so, I don’t doubt that she felt it was necessary, and she appeared to have been so very alone.

  216. slimey,

    karen stern was my friend. i am “disrespecting her memory” in NO way by concluding that you people were instrumental in spreading lies and disinformation about our illness, and allowing people to erroneously conclude that morgellons is a form of mental illness. She suffered greatly over the course of several years. karen’s life was taken from her by this disease. she died oct 29, but she hadn’t been allowed to LIVE for quite some time. she was merely surviving for such a long time, hoping for some relief from her very real physical symptoms. she was brave, strugggleing valiantly through this daily nightmare as best she could. make no mistake, karen wanted to live. she fought to get her life back. she held on as long as she possibly could but finally the pain overtook her hope. she let go.
    i spoke with karen often. i helped her as much as i could. she left a message on my phone not long ago saying that she was worried about me because i was sick. imagine, all that she was dealing with, yet she was worried about me. this world has lost a beautiful soul. we are all the worse for her passing. if there is any justice in this universe, those who helped hasten her demise will surely be held accountable.

    kelly

  217. slimey,
    what does this mean “I think it’s so unusual (I’m not saying it isn’t all right for those who make the decision to participate) to disrespect the memory of someone by using their death in the ways that so many “morgellons disease patients” do” what ways are being used to disrespect karens memory? please list several for me so that i can investigate further. i would be very disappointed to find any morgie involved in that type of behavior. please specify exactly which actions you consider to be disrespectful when you list your examples.

  218. Well, Smily,I havent been posting here for two reasons;
    I got banned, As have others, if you read the boards.
    Who gets banned from mogwatch?
    Only those who can, by assiduous research, declare,
    ACE pigments, byrozoan mycoplasma, agrobacterium et al, occur in lesions are banned.
    The other eason is I have had no wish to participate in your brutal character assasination which occur.
    I plan to ascend, along with as many people who can overcome the debilitating physical reality of morgellons, which is hell, to replace it by living in the spirit.
    To Overcome, so to speak.
    Question, Michael; Why is it that your user name on wikipedia was “Herd of Swine”?
    Does that refer to yourself and your clique of nanobuddies, or us, the sufferers?
    Challenge, Smilykins; Succinctly declare how you got rid of your symptoms.
    I think you people will find that we Australians are not as gullible as some other nationalities, we are reknowned for our inventiveness, courage, and when the chips are down, by fuck, we fight.
    The other thing you guys might remember, is that most boards re morgellons have members who have experience the scurrilous desparaging of sufferes which occurs here, saying this I infer that your behaviour, attitude and duplicity have been noted.
    I will eagerly await the response from you, Micheal, in rspect of your “Herd of Swine” nom de plume.
    You Pigs.

  219. Well, Smily,I havent been posting here for two reasons;
    I got banned, As have others, if you read the boards.
    Who gets banned from mogwatch?
    Only those who can, by assiduous research, declare,
    ACE pigments, byrozoan mycoplasma, agrobacterium et al, occur in lesions are banned.
    The other eason is I have had no wish to participate in your brutal character assasination which occur.
    I plan to ascend, along with as many people who can overcome the debilitating physical reality of morgellons, which is hell, to replace it by living in the spirit.
    To Overcome, so to speak.
    Question, Michael; Why is it that your user name on wikipedia was “Herd of Swine”?
    Does that refer to yourself and your clique of nanobuddies, or us, the sufferers?
    Challenge, Smilykins; Succinctly declare how you got rid of your symptoms.
    I think you people will find that we Australians are not as gullible as some other nationalities, we are reknowned for our inventiveness, courage, and when the chips are down, by fuck, we fight.
    The other thing you guys might remember, is that most boards re morgellons have members who have experience the scurrilous desparaging of sufferes which occurs here, saying this I infer that your behaviour, attitude and duplicity have been noted.
    I will eagerly await the response from you, Micheal, in rspect of your “Herd of Swine” nom de plume.
    You Pigs.
    Regards Al

  220. Btw I’ve missed you too Smily, but, no I’m not feeling better, I’ve had 6 biopsy removals from two lesions in 2 weeks.
    But, My GP absolutely agrees with the protocol, so I’m getting better.
    Its just the ELF shield I have built to wear to protect myself from harmful intergalactic death rays is a tad bulky and I cant move my arms because of the jam jar and tinfoil protection I need. I have got three antennae dishes on my helmet which uses zero point technology to make my etheric force field proton photonbuster stronger.

  221. “herd of swine” is from the Bible. It just reminded me of the situation with the media – but it’s a poor analogy, and nothing specific should be read into it.

  222. yes, micheal, we know it is biblical, we also know its context….putting the “demon” in the herd of swine.
    Yes, a poor analogy.

  223. If shit was as rare as gold the poor would be born without arseholes.

  224. I am a Morgellons sufferer and I really don’t care what the doctors that have no clue say. Admit it docs – you’ve never seen this and you have no idea. sorry but 11,000 people with the same symptons. I don’t think we are all crazy.

    And by the way i don’t need doctors i have God and have found a naturopathic doctor that belives me and i am now on the way to healing after 27 months of suffering.

    The cure: soak in a tub of Borax laundry detergent 10 minutes or more every other day. Drys your skin out and changes the environment of these creatures to one that they can’t thrive in and they flee either into the body and the alfalfa gets them and if they try to escape out of the body the borax gets them. Your itch will cease for at least 2 days if you soak. Great relief more than any of all the toxic crap they precribed for me for nothing. Take alfalfa tablets daily. and for the scars and the dead skin that won’t exfoliate put zinc oxide on it.

    the borax is homeopathic so it won’t hurt you.

    imagine – i am actuallly using a product used years ago!!!

  225. Valerie, I believe, as the majority of society, in real doctors, practicing real medicine, for conditions that require real medicine. Without knowing it, most patients in this “morgellons disease” movement are just as open as a book in describing being unable to care what those types of doctors say. Everyone wants them to get real help and some need it more than others.

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