Nov 15 2006
Is Schwartz a Quack?
How can you tell if someone is a quack?
Here’s someone who recommends Doctor Schwartz:
I found a Dr. Schwartz at book on morgellons at http://healingresearch.org/
I bought his book. I’ve been with Morg for about a year and have a low immune system because of kidney transplant.He will work with you to find a doctor to follow his protocol. But, I couldn’t wait and followed his book (broke the law and took horse dewormer I bought at the feed store and made my own eye drops with sulfa-liquid for cattle water, also at the feed store) Also, using the dermatexrx sprays and daitomacious earth mud packs) My doctor told Dr. Schwartz she would follow it and then later changed her mind. So we need another doctor. This is why I did what I did.
I had hundreds comming out each day. In just a few days I’ve gone from hundreds comming out each day to just a few today maybe 2. After the first “treatment” I was able to sleep without any creepy crawling… My sores are almost healing.
I have had some of the worms come out in my stool and the larval migrans are evacuating my skin.
Of course I’m vacuming like crazy, wash everything immediately after I wear it, mop the floors each day, wipe down the counters and even spray the walls. I bought some Neem oil, plant mite spray and use that on the walls as a mist and even on myself.
This can be beaten. Dr. Schwartz book has accounts of others he has treated who are healed of this parasite. Don’t live with it. It eventually will kill you!!! His consult fee was worth every penny.
Now, there are ways of discerning is someone is a quack. But really a quack is just someone who makes money from dubious medical practices. Someone who takes your money with no evidence that they are doing the right thing, and often much evidence that they are not.
Print This Post
“Oh dear, what a mess” - best way to describe it I think.
This person had a kidney transplant and then took horse dewormer - this is so tragic.
What can I say, it is almost like someone has flicked a switch in my brain (I know they haven’t! - figure of speech)and I am no longer seeing the world through “foggy glasses”.
It is very sad that Dr Schwartz has a problem/addiction with narcotics. I believe Dr Schwartz would probably benefit from a good physical and mental health assessment. I am not a doctor nor do I pretend to know what I am talking about when it comes to medicine and science, I know enough to get by, like any lay person.
Would the above person be suffering maybe OCD (Obsessive Compulsive Disorder) and DOP? Given the fact they had a kidney transplant I would guess that there is a heck of a lot more going on also ie. underlying illness/disease??
As for the “larval migrans” I have no clue what this is, and don’t really want to know.
http://www.freenewmexican.com/news/41621.html
This is one I appreciate particularly. March 2006.
“But on April 7, it will come to a crashing halt because of narcotics. The New Mexico Medical Board voted Thursday to permanently revoke the Santa Fe doctor’s license to practice medicine in this state — and a national database will circulate the ruling all over the country.”
To clarify, I don’t think that a doctor making one bad decision or one mistake makes them an overall bad person. But, at the same time, I think the far-reaching corruption of his practice may suggest that his doctor’s practice was quack-like.
What about being listed in “Who’s Who”, and being named as one of the “2000 Outstanding Scientists of the 20th Century”.
Wikipedia says of “Who’s Who”:
And the “2000 scientists” award is a similar vanity awards from the “International Biographical Institute”, that they will give to any scientist who asks, then make more money by selling them certificates, medals and an official “sash of office”.
http://snailstales.blogspot.com/2005/08/open-letter-to-wise-guys-at.html
Fluffing of resumes seems to be another clue to quackery.
Hey, here, we had a doctor botching up people in surgeries a couple of years ago. It turned out he wasn’t even a doctor, let alone a surgeon. The hospital administration had not EVEN checked him out before they hired him, saying only that his resume had looked impressive, he was very personable, and that they’d had no reason to think that they needed to verify anything He went on the run, and was luckily arrested in a southern state a few weeks later. People need to always look out for themselves. There are plenty of freaks around.
Anyway, is Schwartz a quack? Well, is the pope catholic?
I remember reading, among other things, that Doc Schwartz had prescribed large amounts of narcotics for five patients with the same surname; I remember reading that one patient paid more than $6,500 in cash over a six month period; I remember reading that he even sometimes wrote checks, himself, to cover those prescriptions; but I either overlooked the below, or it just didn’t register with me at the time.
This guy might not just be using morgie people, but he could really be deluded and hallucinating morgie varmits too, considering.
Schwartz’s intentions were always easy as heck to read, just like the MRF, and other “professionals” associated with stringing these innocent people along. Even after having it brought to light, it just doesn’t matter in the least to many. They continue to uphold the founder of “morgellons disease”, this twisted crack-pot quack, and really think that such types are deserving of respect. It is so sad that they’re so like babes in the woods, because of their illnesses. The general consensus of these patients is that legitimate physicians are quacks. So much of their thinking is just backwards from how things really are.
http://www.freenewmexican.com/news/41621.html
Oh, I posted a link to the same story as Sarah. Sorry, On one morgie message board, there was an apology concerning a Dr. Curti, last year, with the person saying, “I am truly sorry I did not know of his ways before I recommended him to people. Some got some help so I guess my goal was reached”. This person, as so many of them do, directs morgie people to quacks. I don’t know how that Dr. Curti was determined by this person to be one, and yet they’re so blind about Schwartz and all the others. If I recall correctly, Schwartz treats them out of Florida now.
Is Dr. Schwartz a quack?
I think the answer to that question is obvious. My immediate reaction when I heard about his claim to have isolated the Morgellons pathogen was that the man is full of it. That opinion has changed. He claimed that the pathogen is Stenotrophomonas maltophilia, a bacteria that sometimes colonizes hospital cathaters. It’s certainly not a pathogen that can do all the tricks that is reported of the so-called Morgellons pathogen. The truth of the matter, of course, is that the “Morgellons” sufferers are suffering from a wide variety of both physical and mental disorders.
According to the first story that I heard, Dr. Schwartz had also received a phone call from a member of the French Underground who stated that he was involved in making genetically engineered changes to the organism. Dr. Schwartz allegedly claimed that the creepy crawley sensations that Morgellons sufferers were experiencing were caused by the movements of the bacteria’s flagella. I found that totally hilarious, due to their insignificant size, and I posted my opinions.
Apparently my opinions reached the doctor because more was then added to the story. The engineering project allegedly modified the flagella. This would have been required in order for a person to feel their movement, but I never heard of this until after I had told everyone that it would be impossible to feel the movement of the flagella due to their size. It seemed to me that he added to his story after giving more thought to the matter. I later heard that it was the CIA, as opposed to the French Underground. But that’s neither here nor there. I think it’s obvious that the man was lying.
Dr. Schwartz began treating “Morgies” in their motel rooms in Santa Fe, New Mexico. He prescribed Septra DS to kill the bacteria. As I understand it, the treatment didn’t work to eliminate the “Morgs”. The doctor put together a pamphlet with material that he obviously had gleaned from the message boards of the Morgellons Believers. It was ill prepared and filled with misspelled words. He called it a book and sold it for about twenty-five dollars. He later wrote a more comprehensive version, priced at one hundred twenty-five dollars.
As I understand it, he is now treating patients with a mixture of daitomacious earth and crushed sea shells. He’s treating some patients for worms. I definitely believe he is exploiting them for their money?
According to the story, a bio-engineered version of Stenotrophomonas maltophilia was acquired through French bottled water. Did it have worms in it too?
All you have to do to fool a Morgie, is tell him that you believe what he says. You could march him off a cliff and hold his wallet while he fell. Dr. Schwartz may have been a good doctor at one time, but his license was revoked in New Mexico. Rumor has it that he’s addicted to narcotics. I don’t know if that’s true, but in my opinion, that’s what his appearance and behavior suggests.
I heard that he is practicing medicine in Florida now. I suppose some of the Morgies will be taking a winter vacation. I hope the doctor leaves them with enough money to find their way back home. It’s a sad situation and it’s not getting better. So, is Dr. Schwartz a quack! Yeah, in my opinion, the man is definitely a quack!!
Tall Cotton
Excuse me. I meant to say that my opinion about Dr. Schwartz has NOT changed. I think you probably gathered that that was what I had meant to say. Sorry about that.
“Schwartz said he prescribes narcotics mostly for Morgellons disease patients who suffer from severe pain syndromes, cancer, migraine headaches or injuries.”
http://www.freenewmexican.com/news/36451.html
I don’t know whether it’s legal for Dr. Schwartz to practice medicine in Florida after having had his license revoked in New Mexico, but in my opinion, if it is legal, it shouldn’t be.
TC
I’ve wondered about Florida licensing him, too, but not enough to look into it, because, either way, he’s going on. I think this guy’s more than proven that he hasn’t been concerned with legalities in recent years. As he’s been known to say, even when he had the audacity to go against the court order during his trial, and continued prescribing narcotics, alleviating patient suffering is all he’s concerned with. Um-hmm, yeah. That sounds so nice of the good doctor, now doesn’t it?!
When I experienced my first bout of paranoia after taking Flagyl (200mg 3 times daily) I phoned my quack in a terrible state.
I was hoping he would have told me to stop taking it, or reduce the dose - something like that.
I said to him that I didn’t “trust” this “Morgellons” it didn’t feel right, I couldn’t understand “it” anymore and I was having terrible fearful thoughts.
Well he responded with a few all over the place comments such as;
“I seriously believe that what you have has an infectious agent/component to it”.
“Oh I think you can trust the Morgellons Research Foundation, they seem like very nice people to me”.
“Did you hear about Robert Beck he wrote “The Road Less Travelled”, well he was murdered recently and they belief the mafia did it”.
“It has been said for a while that the mafia are involved in the pharmaceutical companies”.
Verbatim and true. Do you think those comments calmed my mental state at all or just reinforced my delusions?
So back to the conversation with him : NO mention of the Flagyl or the effect it was having on me, nothing. He had been warned via Mary Leitao that Flagyl could bring on anxiety/paranoia in this particular group of people. I had to take Tetrex 250mg 2 capsules 3 times daily at the same time also. After a week and half of sheer horror I phoned my pharmacist for help he said : “Well Gill after what you have just told me and if it were me I would never take the Flagyl again, and I guess you want someone to validate that for you, so Gill don’t take them”.
The quack never really bothered when I told him, it was sort of brushed over.
It was an awful experience to say the least, I had never run around in circles literally fearing for my life. I could not trust anyone, not even my own dad, and that is just so stupid. But I could not explain what was happening to me.
I had my first “twilight zone” experience, nothing like pink poodles hanging off ceiling fans - mine was a simple tube of cream in a box “Antiparasitic cream” white box and green writing. But this tube of cream was in my bedroom at my parents place, I had never seen it before, I even picked it up. There were other strange things on the dressing table also, but I just don’t want to repeat them. This same tube/box of cream was at my Grandma’s bedside that very night when I visited her in hospital. I picked up that box also, I was so scared and paranoid I could barely talk. I hate to say this but my dad was really strange too, I tried to put this down to the fact that my mum was in hospital at the very same time (different hospital to my grandma though)and he was on his own missing mum, but it wasn’t that, he was strange/different.
I tried to figure it out - What events had happened prior to this particular incident?
My dad had recently been in hospital and had had more cancer lasered from his tongue.
Also he had recently renovated his ensuite bathroom - as in a total rebuild, stripped the floors, walls, loo, shower, vanity, replaced the entire lot with all brand new fittings and then repainted the walls and ceiling. But my dad had done this his entire life, didn’t make sense.
I was really concerned about him. He was like that for two days, and then bang - back to normal. He said weird things to me such as: “you need to read the adromeda (sp?) strain and prey by Michael Crichton”. He said “it will help you to understand things more”. Well I didn’t and I haven’t. This just wasn’t my dad, that is all I can say.
Michael - I have done it again I know, please tell me to go away or shut up or whatever if you think I should. It’s just that sometimes I think I’m going to burst because as you know, this has been so awful for so many of us.
Duragesic
http://www.drugs.com/duragesic.html
About July this year I had my last lot of IV clindamycin. The herx reaction was the worst I had had, I really believed I was dying. The pain was terrible, I felt as though I couldn’t breath properly, or get enough air in my lungs, well I couldn’t stand up straight for a start.
I asked the quack for some pain relief “pleaseeee”. He prescribed Duragesic patch. His only warning was to be careful because it was highly addictive and to follow the dose instructions. So I did what he said.
I have only ever had Pethidine in the past. For a tonsillectomy and when I was admitted to hospital with Salmonalla whilst away with my family in the country. (Oh sorry Smily I said before I had never been admitted to hospital, I forgot!!)
Pethidine and me just don’t mix, runs in the family.
Well those Duragesic patches were a horrible experience. I felt really “drugged” - never had this sensation before, as well as fitful sleep, nightmares etc.
I think he helped invent this pscho fungus, lipid fibre mess. One thing is for sure…..he hit the nail on the head when he claimed Stenotrophomonas maltophilia….that’s a fact Jack!
Now how in the hell did he know if it was not he and Mary in the doughnut shop in Oklahoma cooking it up…..probably had those skateboarding train riding angels right there with them too.
Hey, I have not been here in about 2 or 3 months now. Michael, I thought you said people were not allowed to post anymore….
Hmmm….maybe it was a while back that that happened, maybe it was just me…….
Anyhoo, Yes, he sure did know that Stenotrophomonas maltophilia was involved…..
Hey, is anyone else that is truly ill with fibres protruding from them also bein followed around by a helluva lot of white AT&T trucks? Just wandering…..and no, I’m not having delusions…..unless my photos of this and the one videotape I have of this taking place is delusional as well…cuz, it is happening…..
Hi London. I just switched off comments on one post, as it was getting silly. Comments are now moderated, to prevent runaway flaming.
Schwartz does not seem to believe in the S. Maltophilia theory any more, he’s just not updated his web site. He’s now pushing some worm parasite theory.
Here’s a bit of his bulk email:
Great, so you send him $500, and he’ll tell you to take horse dewormer?
Here’s his vanity “press release”, for which he paid $399:
http://www.medicalnewstoday.com/medicalnews.php?newsid=50515
It’s sad that at least one person has paid his $500 fee, probably several people have. Very sad.
Does he get referral fees from DermatechRX, and their wide range of insanely expensive diluted Benzalkonium chloride products?
That must be one sneaky little parasite, since out of the thousands of Morgie pics, no one has photographed one yet. It does so many other tricks, I’ll bet it can make itself invisible. The bio-engineers probably made it a cloaking device. Yeah, that’s probably it. I think it might be a robotic spider, with a cloaking device, and it’s trying to wire everybody up into a world wide web. Yeah, and it emits optical fiber from its spinnerets. Oh, and I think it’s a jumping spider too. Of course, it is the source of the creepy-crawleys, while it’s cloaked. I’m glad I figured it out.
Those scattered brain signals that Dr. Schwartz speaks of aren’t a result of Morgellons, but if they’re really present, they may be contributing to the delusions.
When people this mixed up lay it all out here on the web (and seriously, I don’t think they even realize it), dag-gone-it, anyone who reads their posts can come along and screw around with them. The GDMFSOBs.
Tallcotten, a cloaking device, just like in Star Trek, right?
I am absolutely dying to know what that means Smiley!
Well I think I have been a fine example of laying it all out on the Web, don’t you?!!
And you’re right - I didn’t and sometimes still don’t realise I am doing it. Thank goodness we are on moderation and those little elvs are ever so helpful at times.
And the “Bad People” have tried to screw around with me, well I said it before, and my OCD will say it again, “I am on my own”. Yes I have Delusions of Parasitosis and I am proud of it!!
My little mate Al Pal said to me on the phone yesterday, “I don’t know why you bother with that lot at Morgellons Watch, have you read the latest at Morgellons Support Group?”
I told Al I am not interested in reading about “cosmic waves” and “UFO’s”, I said it is dangerous stuff for my fragile mind, it will tip me over into paranoia if I allow it, and I WON’T.
I said: “Al, you and me both have DOP, as well as an underlying illness of some type, we don’t have the same thing.”
I come to this blog because it helps ME, and I hope it helps you guys. No you don’t lie, and you provide links to “real” diseases and illnesses, you have helped me realise this entire situation.
I know I have driven you all to near insanity because I just did not understand the dynamics of DOP, and yes I was very embarrassed to even think I was DOP. But now I understand and I thank you.
So if otber people in the Morgellons Believers Community think that I am a “brown noser” well good for you, I don’t care, because you all need to listen up and see the truth for what it is, we are all DOP and we all have our own individual diseases/illnesses.
Sarah Bione-Dunn,
Yeah, the Star Trek kind of cloaking device, the same kind our military is working on, and I think the optical transmissions are monitored from the AT&T vans. hehe.
Gillian,
Keep up the good work. It sounds like you are doing real good. Good Luck!
Tall Cotton
Bravo, Gillian. When I was a member of LB, a few times, when people brought up some really serious issues of the real diseases they’d said they had, I’d tried to steer them onto taking the matter seriously, and treating it through a real doctor. I didn’t allude to DOP, but I’d said, rather, to try to help them understand, that the underlying condition was what caused “morgellons” to manifest.
But, nope, even though they knew what they had, lord have mercy, they didn’t know! Everybody is convinced that a mysterious new pathogen has caused everything that anyone’s got. It would be so nice if all morgie people were able to do their “research” into their real illnesses, and, then, into DOP, to see how it ties together, and how it came about for them to think such unusual things. Imagine how nice it would be.
Well, back to reality now…
You’re totally right about that far out kind of stuff being dangerous for fragile minds. Oh yeah. I suppose since they are seeing such inexplicable things, they think those weird discussions are going to lead them somewhere. It won’t, except to spiral them further into an abyss. It is a joyous thing to see that you know it’s unhealthy. That group think is never going to go anywhere. People need to stand on their own two feet and face the music. (And, dance, dance, dance.)
Oh. That string of letters I put up there earlier stands for some bad things. I was overcome by emotion, and had a little hissy-fit. Hahaha!!! Sorry. But, actually, morgie people will call each other down and label each other as being crazy sounding, and say that if anyone would happen to look in on them, they’d make the entire lot look bad. Really, I didn’t have you in mind, at all, Gillian. I’d meant that on message boards they seem to think they’re in an obscured, secluded, place where nobody knows what they discuss. That’s what I’d meant about how they lay it all out there on the web. That’s exactly how come predators know how to play them so well!!!
I didn’t clarify. The hissy-fit was towards my feelings concerning all the creeps, Gillian, not morgie people. I care about all morgie people.
And that is the TRUTH and thanks guys I feel real chuffed.
I gave myself the best therapy this evening. We watched a DVD “A Bear Named Winnie”. I highly recommend this to anyone. It has really cleaned out my pipes, I howled my heart out! and Tony had a bit of sob too.
I am exhausted, but a nice exhausted. Thanks for today, goodnight.
Mainstream quackery:
http://www.msnbc.msn.com/id/15791227/site/newsweek/
Very good. Just dig that “mainstream quackery” article (if ya can). Yeah. See, people with this malady were already persuaded into the wrong directions through the tricks their own senses have been playing on them. Not that something isn’t going on with them physically, because it is! They seem to have immense difficulty understanding that part. What I mean is, in their thinking that they stand accused of not having anything wrong other than inside of their heads. Wymore, as well as every “professional” caught up inside this whole scenario, included.
Many patients had gone in to see real doctors, and did just like it was reported that Mary Leitao had done. They became insulted, said their doctors told them it was all inside their heads (their interpretation of what went down at their docs, I mean…we have never heard any of their doctors’ versions), and they have continued saying that real doctors should practice medicine differently. There is no way that anybody can think that way, unless they have something very distorted going on with their thinking processes.
There are some major players in the morgie scene, and some have always had the lingering odor of a rat, to me. Schizophrenia or illicit drug abuse are suspect, yet, they may be truly be unable to control what they are doing to further damage the fragile minds of this group of people on line. Anyone can see, that the more bizarre their tales, the larger the following they develop. It has always made me wonder about the possibility of an ulterior motive to reel more of these sad patients in, for someone lurking back in the shadows to step forward with unsubstantiated claims of being able to assist them.
I’m sorry for thinking that way, but I have been watching this for a while. That’s just the way it’s appeared. And, then, in swoop the vultures. (Oh, sorry. I mean, the quacks.) But these poor morgie people think the real doctors are the ones who are quacks. The excellent doctors who have known that they need to get their poor minds treated before they can get into a better state of health and understanding.
There are just so many facets to this. There’s the “old-time morgies”, (hehe, sorry, but y’all know what I mean without my having to say it), and the “newbies”, who, with this advent of “morgellons disease”, I guess, quite innocently, go in to see doctors armed with assuming they have something legitimate to report. I don’t know, it’s just all a horrific mess.
People are willing to pay attention to nothing that’s grounded in reality and let it completely destroy their lives, and, yet, they are surprised in their accounts that other people in their lives have called them crazy. If I didn’t want to be thought of in that way, I’d shut the hell up, and keep it to myself. If I couldn’t handle it, I’d trust someone in a real position of authority, like my doctor, to know what to do to help me get back on track. I wouldn’t have joined a movement like this and forced the government to get involved in it.
Quackery has been around for a while, and is not going away.
One sad problem is that anyone with a Ph.D. in any subject can call themselves “Doctor”, which has such an air of authority to most people. People like Hulda Clark and Trevor Marshal. They are not medical doctors, yet they essentially diagnose unproven diseases and prescribe very unusual treatments, and they make a living doing it.
Yes, to this day I still scratch my head and ask myself - Why?
What on earth did I do so wrong?
My quack was dabbling big time in the “Marshall Protocol”. I know he was following Marshall’s vitamin D theory.
He had my vitamin D levels checked. Funny thing though when I phoned the hospital pathology department to check my results, the gentleman told me that the tests my doctor had ordered were something the hospital did not recognise, therefore they weren’t going to have a bar of it.
Anyway, my quack told me my vitamin D levels were elevated, but not evelated enough to cause all of the symptoms I had from A-Z, but enough to cause maybe the inflammation of the skin.
So… he couldn’t give me the Benicar because my blood pressure was already 90/50, and he said the Benicar could possibly help the “bug” grow in me. He told me to avoid fish, eggs, milk, butter, etc. Wear my sunglasses in the house, avoid natural and artifical light and cover my body with clothes from head to toe.
Just to bring things up to the present day. My current doctor tested my vitamin D levels after I told her my doctor said I was allergic to vitamin D.
Well you guessed it! He was wrong, I am deficient in vitamin D and I now have to take a supplement.
quack, quack…
A hundred years ago, there were lots of “patent remedies”, a lot of them made the person taking them feel good. Sometimes REALLY good. It turns out they often contained cocaine or heroin.
Read this, written in 1905, over a hundred years ago:
http://www.mtn.org/quack/ephemera/oct7-01.htm
That’s why you have that pesky FDA. But now the quacks just put disclaimers at the bottom of the page “Not intended to treat ….”, “Not evaluated by the FDA”, and sell their snake oil anyway, because it makes sick people feel better to think someone is taking their disease seriously, it gives them hope and validation.
Quackery is the opium of the Morgies.
I’m quite offended by the “anyone with a PhD” comment. Where do you think all drugs and treatments for legitimate diseases come from? Who is working on cures for cancer and numerous other diseases? For the most part it is PhD’s. Physicians (MD’s and DO’s) see patients and run the clinical side of research but the majority of them do not spend their days in a lab. Physiologists and other PhD’s are the people who do the hands on lab work. This board is here to tell patients to listen to their doctors, that most doctors are not quacks, etc. I agree. But it is also true that most people who go to school for 7+ years to receive their PhD do NOT spend that enormous expenditure of money or time to fool people into buying pretend cures.
I wish I had never done a testimony for that quack about his NAET Allergy Elimination Technique.
The awful thing about it is, he asked me to do the testimony when I was still feelling really unwell. My testimony was to go with some other papers that were to be submitted to the government. He (the quack) was trying to have NAET and other alternative medicine under the Medicare Health System.
So he asked a very sick and vulnerable person like myself to write a letter stating how wonderful NAET was and how I felt it was helping me on my way to recovery.
Well….I wish to retract that testimony (if I could). What a load of rubbish NAET is and what a big money spinner it is for that quack, he made plenty out of me.
Jace, my point is that a PhD (in any subject, which can include math or archeology) does not qualify you to diagnose illnesses, nor to prescribe treatment. Sure lots of people with PhDs make valuable contribution in their fields - it just annoys me when quacks like Hulda use the “Doctor” honorific to justify their quackery.
NAET - which can cure Acne, Addiction and “Computer Radiation” (and everything else).
Gillian, you are so well shot of that quack. At least you’ll know how to spot one in the future.
I don’t like it when a doctor of philosophy tells people that Morgellons is a real disease, and helps to reinforce the delusions of vulnerable people, i.e. Doctor Wacky Wymore.
Tall Cotton
Jace, here’s a bit more on Marshall, and why this annoys me:
http://impnvestigator.chat.ru/
I couldn’t agree more. Trevor Marshall was qualified as an Electrical Engineer before he did his PhD. I have no idea how long a PhD takes to complete, before they can put “Dr” in front on their name.
So..would I be wrong in saying that he had no medical background whatsoever?
And quacks are buying Marshall’s theories via the internet and then treating patients?
**************************************************
A Biting Anger
As they fight Lyme disease, its victims say they must also battle the attitudes of health-care providers. Health-care issues percolate under the Jefferson City dome
By GREG MILLER of the Tribune’s staff
Published Sunday, May 21, 2006
http://www.columbiatribune.com/2006/May/20060521Show001.asp
You better believe that one!! and run a mile!!
Or…maybe I could do a SarahConnor and go blow them all up!!
As you just said, Michael,
Key words: IN THEIR FIELDS
Like I’d said, before,
My ability to discern what’s going on with these poor people is intact.
Michael - I don’t know whether you know this or maybe I have already told you, but apparently Trevor Marshall said that Mary Leitao was a neurotic woman obsessed with skin lesions. He was forced to make a public apology and I think (don’t quote me here) remove something similar from his website.
I think it was a very foolish thing he said.
The following risks are believed to exist from doing the MarshallProtocol.com for persons with Chronic Fatigue Syndrome, Lyme, Gulf War Illness / Sickness [GWI / GWS], Fibromyalgia [FM], Irritable Bowel Disease [IBS IBD], Irritable Gut Syndrome [IGS]. Please follow link.
http://lassesen.com/cfids/MarshallProtocolRisks.htm
A QUACK, BY ANY TITLE, IS STILL A QUACK. If a person needs a specialist, it is a simple matter to check with the AMA to see if a doctor who is practicing medicine is credited in their field of specialty. Morgie people are all mixed up backwards with the ways they think, and have such a strong fixation on their skin conditions, and what they think is causing them, that it’s well known what they think about REAL DOCTORS. It’s no small wonder why they are running into all directions, like a chicken with its head cut off, scared out of their wits. These freakin’ quacks capitalize on people who are such easy marks as this. It’s like taking candy from a baby. They can keep on pacifying people, while not only are their real health matters going unattended, but, many times, quacks’ ridiculous “treatments” may possibly also harm them further, without their patients having a clue. The FDA? Well, look at all these mixed up people. Everything they think is all backwards!!!
I like the way my Grandma doctored me. She’d tie a big white cloth around my big toe, leaving two big ears like a rabbit’s on top. And she’d douse it with something she called Annie Pain Oil. I hopped around like a one legged rabbit and it was really easy to see that I was wounded in action. I miss my Grandma.
Jarisch-Herxheimer Reaction
http://www.roadback.org/index.cfm/fuseaction/education.display/display_id/186.html
Now can anyone tell me is the Herx reaction real scientific medicine or just more quackery??
I believe that article on the Herx Reaction and Antibiotic Therapy makes the whole thing sound rather like a picnic. How far it is from the truth!!
Living in a herx reaction is nothing more than sheer hell. I know this only too well.
I live in a constant herx, now is that normal?
The Jarisch-Herxheimer Reaction is a real thing, but the problem that fans have is they attribute any ill-feeling after self-medicating to an indication that the medication is working.
Here’s the logic:
1) I take medicine
2) I feel really bad, worse than before.
3) It must be herxing, so the medicine is working!!
Of course, “feeling really bad” is not a good indication that your treatment is working. It could equally mean that the treatment is NOT working, or that it’s making your condition worse, or subjecting you to side-effects.
Remember, just because a treatment makes you sick, does not mean it’s making you well.
http://www.quackwatch.org/01QuackeryRelatedTopics/lyme.html
Gillian - what makes you think it’s herxing? Herxing is a temporary reaction that follows the initial doses of antibiotics, and does not last more than a few days.
I know you are ill, but why do you attribute your pains to herxing rather than something like Toxoplasmosis?
Michael - I am laughing here!!! Herxing a temporary reaction!!! I think not in my case, I would be bed bound for days and days. Yeah and I was told it was “just the herx”.
And the herx nearly killed me a few months ago.
The doctor decided not to administer the next dose of IV, due to the fact that I would have died 2 days later.
Because I believed my doctor and I don’t really know/understand the full dynamics of Toxoplasmosis to be honest. I guess a better way to answer that really is; I feel the same I did whilst I was on the antibiotics, really friggin ill.
oh dear…Michael would you like to repeat that to the “duck” down the road from me?
Didn’t you know…”You’re meant to feel sicker before you feel better”….that was the moto I had drilled into my swollen head.
Oh yeah… and if all else fails when the pain is just way too much…pray!! WTF!
I do apologise I did not explain myself correctly; post 50 was not my idea, it was the ducks.
Side Effects of Antibiotics:
http://www.merck.com/mmhe/sec17/ch192/ch192a.html
* Hearing loss
* Dizziness
* Kidney damage
* Seizures
* Confusion
* Gastrointestinal upset and diarrhea
* Nausea
* Allergic reactions
* Jaundice
* Nervousness, tremors, seizures
* Inflammation or rupture of tendons
* Crystals in urine (rare)
* Decrease in white blood cell count
* Sensitivity to sunlight
* Staining of teeth
* Red-orange saliva, sweat, tears, and urine
* Flushing, itching
Symptoms of “Herxing”
* increased joint or muscle pain
* headaches
* chills
* Heavy perspiration and night sweats
* Nausea
* Burning micturition
* Bone pain
* swollen glands
* bloating
* constipation or diarrhea
* fever (usually low grade)
* hypotension (low blood pressure)
* Itching, hives and rash
* heart palpitations, elevated heart rate, orthostatic
Toxoplasmosis in immuncompromised patients
http://www.wrongdiagnosis.com/t/toxoplasmosis/symptoms.htm
* Malaise
* Muscle pains
* Enlarged lymph nodes
* Enlarged glands
* Anemia
* Liver symptoms
* Low blood pressure
* Eye inflammation
* Fever
* Chills
* Skin rash
* Lung symptoms
* Heart symptoms
* Kidney symptoms
* Brain symptoms
* Encephalitis
* Headache
* One-sided muscle weakness
* Tremor
* Vision problems
* Hearing problems
* Confusion
* Coma
Was this the quack giving you the IV?
Okay flip side here:
What little I know about Toxoplasmosis, I could attribute my symptoms to this, and if human to human transmission is possible, or has taken place, that could quite possibly explain the change in mental behaviour in people close to me.
Keep in mind Michael I do have a vivid imagination so I really do “analyse” things at times, but to me it is a reasonable and logical explanation for this entire mystery so far.
Yes.
I currently have these symptoms.
* Malaise
* Muscle pains
* Enlarged lymph nodes
* Enlarged glands
* Anemia (**previous)
* Low blood pressure
* Eye inflammation
* Fever - continually in the past
* Chills - not recently
* Skin rash - not really a rash, put pimple spot things.
(Look similar to chicken pox at times)
* Lung symptoms (tight chest,shortness of breath)
* Heart symptoms (palpitations)
* Kidney symptoms (frequency at times and stress/urge incontinence)
* Brain symptoms - self explanatory I think.
* Encephalitis - my head has changed shape many times?
* Headache - yes
* One-sided muscle weakness - right side, similar to a stroke at times
* Tremor - had severely 2 years, appeared like a full blown “Parkinsons”
* Vision problems
* Hearing problems - severe ringing and humming
* Confusion - oh really, I wouldn’t have thought that for a minute!!
My apologies.
Correction: I hadad a severe tremor 2 years ago, that appeared like full blown Parkinsons. This tremor would come and go at times. The tremor is not noticeable so much these days, but I do feel my whole body literally vibrating from within - the majority of the time. It is like an entire body neuralgia.
Believe me, Marg I understand what you’re saying. I spend a lot of time simply explaining to people the difference between a physician and a PhD. Many people hear doctor and assume physician. But I don’t believe that simply because a researcher is working on something they’ve never worked on before that they are practicing “pseudoscience”. If no one ever endeavored to take on something new no progress would ever be made. It’s ludicrous to say that anyone who does research should only stick to one thing. Physiology covers a whole heck of a lot of ground (like every single body function), so if you have a background in physiology you know way more than what you wrote your thesis on because you are required to take a lot of classes, many of which are not thesis related. People who don’t understand how this whole process works should not be making their own assumptions. And Michael, while I understand what you’re saying I just felt you presented a very one sided view, and I wanted to explain there is more to research than that.
Research is one thing, anyone can research anything they want, I have no problem with that, research is good
It’s when people start effectively diagnosing and treating that I have a problem, especially when they use the “Doctor” moniker to bolster their “diagnosis”.
I do not include Wymore in this. I really was just thinking of Clark and Marshall, but I’m sure there are many others.
Gotcha. Actually I read your links and was just dumbfounded at what those two did. I just don’t want all PhD’s judged in the same manner that the morgies are judging their doctors. There bad physicians and bad PhD’s, but for the most part I think most people have good intentions.
Michael hadn’t said it, anyway, I’d called what Wymore is doing “pseudoscience”. I haven’t included him as someone that’s treating patients, although some morgie people were of the mistaken opinion that, what was it(?), dewormer and uppers were being administered at OSU, quite a few months ago.
I’d had my opinions already, but I believe it was in June, when Abac68 first made us aware of Wymore’s letter to physicians, that I’d commented that it appeared nothing like a professor of anything, to me, had authored it. It appealed to “morgellons patients”, speaking in their language. I’d said at the time, that with a strong background in physiology (as you’ve just reiterated, Jace), there is something wrong in him not grasping anything.
Any physician that letter has been handed to, can see that the author is challenged in his understanding, speaking of “grains” and the like. I’ve always said, from the start, there is something the matter, in my very strong opinion, for a man of supposed intelligence to have involved himself in “morgellons disease”. His actions, since, have screamed it out louder.
I’m all for research, when there is a reason for it. He’s got his reasons.
You’re sounding so much better Gillian, and I am so thankful. It is hard as heck, I know. Ya gots guts, gal. Wowee.
Back to the PhD in physiology, though. He is researching fibers that DOP patients have always (since DOP has been around), thought were something of a parasitic nature. Uh, the dude has collected fibers obsessively, himself, from all over, as reported in the news. His “research” is very detrimental, serving to take such patients deeper and deeper inside of their problem, causing them to continue to fail seeking treatment for what all ails them. There is something wrong with that, and with a professional person going public with all the comments that he’s made, such as saying that these patients are not delusional, and that there really are fibers that are visible to others in their skin. Good Lord, everyone knows that! The ill-conceived belief about the source of those fibers (as well as all the other components of internal and external wastes, infectious processes, as well as wound healing processes), plus, patients relating them to their other symptoms of being sick, which is exactly what is taking place in these patients…
is the illness (of DOP), and the cause for that-illness-to-manifest, is due to various-underlying-ill-states-of-health that each separate patient has, as an individual.
I could argue till the cows come home, but people have too much invested in their fixations and beliefs, and too much false hope attached to it all, thanks to the “morgellons movement”, they have fallen much further into the abyss. Remember the spider (people, in what looks like, to morgies, authoritative positions) and the fly (the morgie people, themselves).
The quack I was seeing read Dr Wymore’s letter and then said; “well this is good for your cause dear”.
At the time, I could not understand what on earth he was talking about. Now when I think about it, oh boy it makes me angry.
Smileykins said:
Morgellons: Mystery Disease, Delusion, or the Next Global Pandemic?
http://www.morgellons-disease-information.com/
This book is a fine example of the “swarms” which “prey” on the “morgies”.
Do you know the book hasn’t been written yet?
The author will however phone you once you have emailed all your details to her. She will even include you in her book.
NO thanks lady, I can write my own.
Thank you and my pleasure. My mind is feeling tip top, I just wish my body would follow through, but it seems to be going in the other direction. Yes it is extremely hard.
I was born with guts, I got nothing to loose here, apart from my life, and that’s worth fighting for.
P.S. I will be glad to get that scan over and done with tonight.
P.P.S. I can’t decide between “Mozart” and “Puccini” to listen to whilst I have the scan, such big decisions hey?!!!
Fenbendazole (Panacur)
http://www.veterinarypartner.com/Content.plx?P=A&C=301&A=1596&S=1
Ritalin
http://en.wikipedia.org/wiki/Methylphenidate
These were the drugs being used, but I have no idea who was administering them. I was told to keep my mouth shut about this, whoops I’m sorry it just fell open!
I believe the Ritalin was being used for the “brain fog” symptoms and “chronic fatigue”.
Personally I think taking Ritalin for DOP seems really bizarre. I reckon I would self combust if I took that stuff and then no doubt my liver and kidneys could possibly collapse from ingesting Fenbendazole.
Look I don’t have any proof myself if Fenbendazlone would do that to my liver or kidneys, but my gut just tells me that you don’t take this sort of medication, it is for animals, and a doctor wouldn’t/shouldn’t prescribe to a patient.
The “Bottled Water Of France” Myth
According to Jim Mortellaro bottled water from France is the reason for the outbreak of Morgellons
http://www.morgellons.eu/news-2-the-bottled-water-of-france-myth.html
This is good! I have only just stumbled across it. I guess that sums up Schwartz being a quack.
You’re welcome, Gillian. Focus on that spirit of yours. That is who we all really are, not these bodies that work against us.
Cloning of a mammalian elk potassium channel gene and EAG mRNA distribution in rat sympathetic ganglia
http://www.blackwell-synergy.com/links/doi/10.1111/j.1469-7793.1998.675bg.x/full/
Would you call “cloning” pseudoscience?
I don’t think Wymore is a quack, nor do I think he’s practicing pseudoscience. I think though that he’s made two major mistakes, which push him towards “bad” science.
Firstly he’s investigating the fibers without checking to see if there is a disease related to the fibers. Are these people actually sicker that other similar people? Do they actually have more fibers under their skin than people who suffered from neurotic excoriations? By failing to quantify this situation, he’s really got no idea what it is he’s actually investigating.
Secondly, he’s participated willingly in massive media campaign promoting a disease for which there is no evidence beyond anecdotes. By identifying so strongly with the “believers”, he casts his scientific impartiality into question.
I think in time he will recognize this to a small degree, and modify his position.
Oh, I sure hope so. I think if he weren’t so swept up in fibers, that maybe he could have been able to recognize that “callus” thingys, too, are what the rest of the world calls “scabs”, and that they need to be left in place, and can be expected to be uncomfortable, and itch, sometimes, as patients’ skin is healing. (hehe) He used that “world is not flat” talk too, in an article, and said that getting people to believe in this was about like expecting someone to change their religion. (I sorry. He seems “unwell” to me.)
I couldn’t agree more.
Hi Gill-
I do not agree with the DOP prognosis. There is more to this. (what causes DOP?) It is uncommon.
Regards
Starlink,
Delusiona aren’t what most people think. It doesn’t necessarily mean that a person is “seeing things” that aren’t there. It means that they believe things that aren’t based on the evidence. I doesn’t mean that a person is hallucinating. It means that their beliefs are wrong, and not based on the facts at hand.
Delusions of Parasitosis is the false belief that parasites are infecting one’s body. A parasite is considered to be organisms that don’t belong in us. For example, we don’t consider E. coli to be a parasite when it’s inhabiting our digestive tract and aiding digestion.
There’s different 3 types of DOP, and Smileykins has posted them several times. But one type is for people that are really sick, and it can be that they really have skin problems. It’s just that they have some beliefs about their condition that isn’t based on reality. Everyone that believes that they have Morgellons Disease has DOP.
Please study all three types. A lot of times a person will need to take medication so that their strage beliefs will come into line with reality. Their brain chemistry is imbalanced. For some people, counselling may be all that is necessary.
Tall Cotton
Hello, Norman. DOP has come out of obscurity now. That’s all. The majority of “morgellons” patients (perhaps, minus some of the newcomers) have made no secret that they have received numerous, repeated, diagnoses of DOP.
Have you not been reading anything here? Please do. A woman misinterpretted her child’s eczema and thought that fibers in his skin was a new disease. She has continued picking at her child to this day, and has admitted that she was told by doctors that she is mentally ill with Munchausen By Proxy Syndrome.
She found a name of ancient misunderstanding about clogged skin pores. She adopted the name and started a web site. Other people who could identify with what she said on her site, joined up to her belief. Most all of them had been to many doctors, and were told they had DOP, scared to pieces that they had something else. Well, yeah they had skin symptoms with stuff in them. The very hallmark of DOP is denial. Why? Because it’s impossible for a person to know when their mind is messing with them like that. Doctors have been following the correct protocol. The uncooperative patients have resisted addressing this condition.
They registered on her site, specifying their pre-existing, concurrent, medical conditions as part of the registration process. She deliberately cultivated her movement, on a mission to raise awareness of what she has thought was a new disease, receiving reinforcement, herself, along the way. The case definition was composed from the list of previously diagnosed illnesses that people registered to become members of the Morgellons Research Foundation. As a result of the entire, ongoing, scenario, more vulnerably susceptible people have fallen under the belief, and continue having it dangerously reinforced. Thanks to the fervor of one woman, her movement has resulted in raising the world’s awareness of a set of terribly misled people, with DOP, from many different causes, begging the government, no, forcing the government, to step in to help them.
Norman, I have posted it so many times. Nobody wants to learn what DOP is about, because they have all been offended at the diagnosis. They should not be, my gosh. Look at what not treating it has been doing to people.
Their underlying conditions are what causes DOP to happen. A doctor can’t very well treat a patient, for anything, when all they are fixated on is what they have found coming out of their skin.
1. Primary Psychotic DOP is the sole psychological disturbance, and patients otherwise behave normally, and reason in a rational manner
2. Secondary Functional DOP has an underlying psychiatric condition causing it, including: depression, anxiety disorders, paranoia, OCD, schizophrenia
3. Secondary Organic DOP is caused from an underlying physical illness,including: neurological disorders, cerebrovascular disease, cancer, tuberculosis, hypothyroidism, diabetes, drug/alcohol abuse, nutritional deficiencies such as vitamin B12, thiamine, or niacin, and a whole lot of conditions
People can’t take care of their underlying problem(s) until they treat the DOP, first, to realign their brain chemistry so they can perceive things correctly.
This story is so similar to what people have done with “morgellons disease”. Please, I beg you to just read it, and you will see for yourself.
http://www.ahealthyme.com/topic/parasitosis
Hi Starlink - Do you not mean DOP diagnosis?? not prognosis?
I hope re-reading the above statement helps you out Starlink.
As for DOP being uncommon, well you know you could very well be right. I had never heard of it before, it is very new to me. That is why the CDC are involved Starlink, they obviously do realise that we have a lot of very sick people in this world, especially young people.
Take care please.
DOP is uncommon, but still thousands of people have it. It’s been recognized for over a hundred years. It often has a physical trigger.
The CDC is investigating why there seems to be an increase in the number of people reporting symptoms that look like DOP. Maybe there is an actual increase in cases due to some environmental cause (like pollution or fiberglass) or infectious agent (like MRSA), or it’s just a demographic shift with baby boomers hitting menopause, or maybe it’s an illusory increase, focussed by the media’s coverage of Morgellons, or maybe it’s magnified by the internet’s villagification of the world. Maybe a combination.
There are a lot of misconceptions at play with people who are ill and think that it’s all due to “morgellons disease”. One such misguided notion is, that it would be that difficult a process for a new disease to be detected. Of course, one of the main players, Dr. Stricker, has been instrumental in reinforcing that fear, citing his past experience of witnessing when AIDs patients were first seen. The history of Lyme disease becoming recognized, also, of course, has been applied in this process.
A very complex problem has been in existence with many of the patients who think they have “morgellons disease”. The CDC responded to patients’ pleas, by instructing them to see their local health care providers. No one would think that the CDC’s directions should be ignored, but due to so many patients’ difficulties with doctors in their past, it was, in many cases. There may have been more behind the CDC’s recommendation, than such distrustful patients were able to realize. They’d had the matter brought to their attention, so how better to address it than through the local levels of the health care system? Believing themselves to be carriers of new disease, reporting it, then, was a crucial step, chosen to be ignored by many.
Thousands can seem to be a really large number, but, looking at the bigger picture, it isn’t. Some patients, as we’ve known to expect, believe that “morgellons disease” has been something unleashed upon them by the CDC itself. It appears that quite a few may not be able to come to terms with the possibility that they could be mistaken about a lot of the things they believe. Now, one could argue that I have a lot of preconceived notions, too, and, yes, I know that I’m opinionated. I’m not very ill, and risking further harm to myself, not knowing what is the matter with me, though, and crying for help from my government. I pray that these patients develop a real strength, like none they have ever known.
The CDC is investigating why there seems to be an increase in the number of people reporting symptoms that look like DOP. Maybe there is an actual increase in cases due to some environmental cause (like pollution or fiberglass) or infectious agent (like MRSA), or it’s just a demographic shift with baby boomers hitting menopause, or maybe it’s an illusory increase, focussed by the media’s coverage of Morgellons, or maybe it’s magnified by the internet’s villagification of the world. Maybe a combination.
Oh, that is SO well worth repeating.
Excuse me, I wanted my preceding comment in bold print, but I neglected to attribute the quote to Michael.
Michael - Do you know that my family and I see this “delusional” behaviour in my Grandma’s doctor.
My Gran has COAD, Rheumatoid arthritis, and osteoporosis, probably some other things, but I have given up trying to remember!
Anyway, her chest and breathing can get bad at times. My Gran is so self consumed with her own health and panics over the smallest symptoms. Her doctor keeps giving her antibiotics when her chest gets a bit bad. So she is on yet another course of them.
Her doctor said after the second course if there is no improvement, he wants her to have a chest x-ray. Well my mum is just so over this, she said he did this last time, and the time before that. Mum said the x-rays just show that she has COAD and some heart problems due to her age. We believe my Gran’s doctor is just reinforcing her own “delusion”.
My Gran is not what you would consider senile in anyway, she will be 91 in a couple of months, and we know she can’t wait!! She has always been one to be very self consumed, and very selfish. She has compared her health with mine for a long time now, and as you can understand this drives my parents crazy!!
The doctor that treats my Gran is the very same doctor that turned down treating my condition when the Psychiatric Hospital contacted him after my inpatient stay. He said that taking on my case was “too complicated”. I was really shocked to be honest. I used to see this guy when I was 17yrs. At the time he was trialling some new theory he had on penicillin treating severe cold sores. He used to give me injections in my backside every month, to try to reduce the size and frequency of the cold sores.
The lengths this doctor has gone to with my Grandma’s health is totally obsurd. She is as fit as a fiddle and still lives alone, and her home is immaculate. My dad gets so damn angry with him. The tests that my Grandma has had in the past ie.CT scans,x-rays you name it, as well as lots of inpatient hospital stays, and the entire time she is treated like a queen. The very same hospital I could not get past the ER without them bringing in the psych.team, and this was on 3 occasions you know, and the last time I was showing signs of a stroke!
My parents say that it seems a lot of doctors today really take care of the elderly, maybe it is good practice for them or something, because they certainly can not figure out WHY their daughter can not get any willing doctor to perform a bunch of tests and nail down what is wrong with her, when it is so obvious how sick I am.
Anyway Michael, the scan was done last night, and I am off to have an EEG this morning. Oh and of course I am driving myself, the crazy behaviour in people around me just continues. When I stand up my legs just want to buckle beneath me, and then I have to struggle with the overwhelming nausea, meanwhile I am swaying because my balance is so bad.
I am not feeling sorry for myself or whinging, I just want to point out the insanity of this entire situation. I blame the quack with his misleading information, and his damn theory that Rickettsia causes “everything”! Well I just don’t know about that. You know I told him 8 months ago that I have had a collapsed right nostril for over 2 years, he said “Oh Rickettsia can cause that”! And not to mention his theory of “you must feel sicker before you feel better”. He gave me a prognosis of a 70% chance of a full recovery in 18 months to 2 years (that was July 2005).
I have explained DOP to my parents, but you know I think maybe it is just too late for them to understand anymore. My mum makes me feel like I am just not helping myself. She doesn’t visit me (nothing new really, she never has), she doesn’t treat me like I am ill is what I am trying to say. It really hurts me.
Michael - please don’t get me wrong, I love my mum to pieces, and I know she feels the same. I could not ask for better parents. They have always been there for me.
I can’t remember whether or not one of us already posted this link. It’s to an Oklahoma Gazette article on Morgellons. It also has a place to comment. There’s some comments there that were made by a couple of people we all know.
http://www.okgazette.com/news/templates/news.asp?articleid=925&zoneid=3
Thanks TC I remember that article. I just found it to be more dribble really.
And the comments section, OMG!! People are going NUTS aren’t they?
Chemtrails, bioterror, an escaped experiment; dangerous stuff for folks to be stressing their sick little minds over, and I am serious about that too, very unhealthy.
I should know, I’ve been there…
Well I couldn’t keep my mouth shut once again, I just made a comment on the okgazette website.
People have got to stop playing with such fragile minds, these people are really sick and so vulnerable.
I don’t know what the heck that hospital was up to 2 years ago, but it certainly wasn’t an EEG I had.
This morning was an EEG. I told the technician about the supposed EEG I had 2 years back, she said; “doesn’t sound like one, if so, it was maybe a cheaper, or smaller version”!
My head just spins you know, such confusion this entire thing brings about.
By the way, the lady technician said I shouldn’t have been driving myself home. She was really worried about me, and fussed a little, telling me to go have something to eat before I drive, I was rather dizzy afterwards you see. She even walked me around and showed me the cafe.
I did mention to her that I was very impressed with the Private section of the hospital, very efficient and caring.
Gillian said…
Gillian, if you know that you had DOP, you don’t have it now. It’s kinda like catch 22.
Tall Cotton
Jeepers Gillian, did you have a quack hospital as well?
If you do a Google Image Search for EEG, you see they all look fairly similar:
http://images.google.com/images?q=EEG
A bunch of electrodes surround the brain, connected by a bunch of wires to a computer, which records the brain waves.
What did your EEG machine look like two years ago?
More importantly, when do you get results from your current round of tests?
Very hard to say really. The machine was across the other side of the room, and the guy was sat behind the machine thing. I was in a chair, but I didn’t wear the cap on my head. It was totally different than today.
The test results will be given to the Neurologist, and he said he would phone me asap to let me know if he needs to see me again.
Wow! That is good news!
Hello Michael - I was wondering if you had ever seen this? If you click on the link, and scroll down the page to find the heading;
“MORPHBORGS WELCOME HERE - NEW NAME FOR OUR DISEASE”. Apparently Dr Wymore gave Morgellons this new scientific name of “Morphborgs”??
http://morphborgs.blog.com/
Just to clarify what Morphborgs are meant to be - “A Bioengineered Plague”.
Michael - I just re-read that Morphborg article, sorry I was wrong about Dr Wymore calling Morgellons Morphborgs, it was Skytroll, my apologies for the mix up.
I do have a real burning question that has nothing to do with the current topic, but I have to ask;
What on earth has happened to Cliff Michelson?? Has he been abducted by Aliens?
Wormwood
http://www.drugdigest.org/DD/DVH/HerbsTake/0,3927,4064%7CWormwood,00.html
Our little friend Al told me the other day to stop taking the medication I was on and to take Wormwood instead. And once again reminded me that “Morgellons” had many different stages and changes to go through.
I told him “NO”, I said if I stop taking Prednisolone just like that, I am sure to drop dead.
He is the second “male morgellons sufferer” to tell me to take Wormwood in the past 2 years.
I don’t know where Cliff went, but I know that the man’s ideas about Morgellons are nothing but pure nonsense. The same is true for Jan’s ideas. They’ve both obviously lost touch with reality.
TC
So after reading that link on “wormwood” would you say that people have been trying to help me? or harm me?
Not nice is it.
Gillian,
Do you have any lesions at the present time?
TC
Gillian, I think they were trying to help you. They were just going about it the wrong way, with half baked theories and unproven remedies. Had you followed their advice you probably would be worse off, but they probably meant well.
We need to take responsibility for our own health, and that includes making wise decisions about who we trust for medical advice - regardless of their well-meaning intentions.
No, not one.
MyFox Cleveland | Medical Mystery: Morgellons Syndrome
http://www.myfoxcleveland.com/myfox/pages/News/Detail?contentId=1549984&version=1&locale=EN-US&layoutCode=VSTY&pageId =3.2.1
Michael - I found this link, it is meant to be on “Morgellons Syndrome”, the link doesn’t appear to work for me, can you take a look please, thanks.
Just to clarify for you - my skin is not the major issue here at all.
I agree Michael, BUT (I always have a “but”) what is one meant to do when it appears that half or more than half of the medical community are deluded, and even delusional?
I have paid these morons the majority of my disability pension to get to the state I am in now, this is so unforgiving.
As Al would say; “They stand out like dogs gonads”.
Maybe half the ones that you have been in contact with. But is that typical? Most people have quite reasonable experiences with health professionals.
If everyone who had a bad experience with a doctor got together, then it would seem to them that everyone was having a bad experience. Personally I’ve been to the doctor several times, and they seemed quite professional to me.
Gillian, please don’t tar everyone with the same brush. You seem to have had extraordinary bad luck with both your doctors and your health. Hopefully things are improving.
You’ve said that you have a good doctor now, Gillian, which that is a relief to know. I don’t know what kind of doctors you’ve been to. One delusional-acting doctor is too many, but over half that you’ve seen, is mind boggling. If they were licensed and accredited by the medical board that could not, or should not, be happening. If they haven’t been, and they’ve been quacks, instead, well, that’s altogether different.
I know that we are oftentimes weakened by injury and illness, but NEVER allow a doctor, if anyone finds themselves in the presence of one whose behavior is questionable, to subject us to anything we are in the least bit weary of. Gosh, I mean, I know that the conditions we’re there for can render us quite powerless at times, but still, if a doctor seems strange, I hope there would be something left inside a person to know better than to subject themselves to anything unusual.
I am aware of some rare sicko doctors, having heard reports of female patients being somehow developmentally challenged in their thinking that they had to subject themselves to criminal behavior. Such women, as the ones I am aware of, have brought national attention to this from banding together, as fellow patients, and suing these types of doctors. However, they were rarely even weakened by illness, and were active participants in the act of violation, all because, they’d claimed, they looked upon doctors as figures of authority and thought they had to subject themselves to something they knew was dead wrong!! Go figure.
If past bad experiences have occurred, to anyone, like that, and nothing can be done now about it now, take another person along to appointments, or, if nobody else is present, yell for a nurse if they are acting weird. Get out, never go back, and report them.
I have dealt with a lot of doctors over many years. I came across two or three with less than impeccable bedside manners, but I have no complaints, at all, concerning their professionalism. I think our doctors do an excellent job assisting us. Sometimes, we also have to assist them, because they can’t read our minds. (Hehe, that was a personal note, cuz some people I know in my life, seem to think that they can.)
I don’t normally tar everyone with the same brush Michael. But this so called health system of ours in Australia has had me thinking otherwise for a long time now.
I have always been a very healthy woman. This is not bad luck that I have been having. A diagnosis of Fibromyalgia 10 years ago, and we still don’t really know what that is, or what causes it. Maybe the “end stage” of Fibro. is DOP, and then ya die.
So..things are not improving and just for the record “they all pee in the same pot”!
BIG PROMISES FROM THE MAIN POLITICAL PARTIES ON VICTORIA’S TROUBLED HEALTH SYSTEM (Stateline Victoria: 17/11/2006)
http://www.abc.net.au/stateline/vic/content/2006/s1791434.htm
http://www.abc.net.au/stateline/vic/content/2006/s1791436.htm
See..it’s not just me complaining.
Gillian, fibromyalgia is disabling to many, but that’s all. There have been a lot of ongoing studies on it, and they’ve linked it to things such as pain signals being heightened in our brains, cervical spine injuries, the chiari malformation, IBS, and I don’t recall everything that’s been written. It’s something I take in stride and chose to believe what my rheumatologist said about it, in that it’s exactly the same thing that our elders always referred to as rheumatism. I’m well used to it, after getting diagnosed over twenty one years ago with it, when they called it fibrositis, and luckily, it’s the least of my health problems.
But, as far as the health care system is concerned, the United States is far from being perfect, also. Reading the links you provided, well, I could cry someone a river over the bureaucratic messes I’ve been in, too. Many of us have outrageous stories.
I’m real sorry things are the ways that they are, too, but that bureaucracy has nothing to do with “morgellons disease”, though. As the story has it, people, over here, have apparently had no trouble being seen by doctors, and a very large number of doctors, too.
Thanks Smileykins for that info. Well I have learnt something new about Fibromyalgia, I wasn’t aware that the chiari malformation came into. I had researched chiari a while back which seemed quite fitting for some of my symptoms.
Fibromyalgia seems to get brushed under the table in this country, maybe because it seems to be mainly women suffering.
So if your a homosexual male in this country, ya get the best help and medical treatment, I have witnessed it with my own eyes.
So what the hell is wrong with the medical community in Australia then?
Bureaucracy has nothing to do with “morgellons disease”? Do I laugh or cry?
You’re welcome, Gillian. There truly are tons of health problems that are far more serious than fibromyalgia. If you have the chiari malformation it will show up on the MRI you had, and can be addressed. But fibromyalgia is basically just a non-threatening chronic pain and fatigue condition of connective tissues. There’s nothing infectious involved, and no risks to our major organs or anything like that. Some people are depressed with it, and the treatment for fibromyalgia is through antidepressants. They supposedly help a few people with both of those conditions. My rheumatologist insisted I that I try klonopin for restorative sleep, and I had a go at it for a month or two. Weighing the risks, I chose to not refill the prescription. Plus, I’d already been living with fibromyalgia for over twenty years, so I was pretty used to it by the time it was detected in a second, routine, diagnosis.
Correction: The second time around, that fibromyalgia was found in a routine exam, was fourteen years later, not twenty. Sorry.
# Gillian Says:
November 23rd, 2006 at 2