Here’s an interesting paper on Morgellons, via the tachyonet, from the future CDC:

http://morgellonswatch.com/about-2/morgellons-disease-a-comprehensive-approach-to-its-definition-and-study/Now, there’s a number of problems with this paper, mainly due it not actually having been written yet. I plucked it to the present because it illustrates several problems with the process of defining diseases.

Here’s some choice quotes:

“The central issue in Morgellons Disease research is whether Morgellons Disease or any subset of it is a pathologically discrete entity, as opposed to a debilitating but nonspecific condition shared by many different entities. Resolution of this issue depends on whether clinical, epidemiologic, and pathophysiologic features convincingly distinguish Morgellons Disease from other illnesses.”

“The possibility that Morgellons Disease study populations have been selected or defined in substantially different ways has made it difficult to interpret conflicting laboratory findings related to Morgellons Disease”

“Current criteria for Morgellons Disease also do not appear to define a distinct group of cases”

“We believe that inappropriate tests are often used to diagnose Morgellons Disease in chronically fatigued persons. This practice should be discouraged.”

“We distinguished between psychiatric conditions for pragmatic reasons. It is difficult to interpret symptoms typical of Morgellons Disease in the setting of illnesses such as major psychotic depression or schizophrenia. More importantly, the care of these persons should focus on their chronic psychiatric disorder. On the other hand, we did not use other psychiatric disorders, such as anxiety disorders and less severe forms of depression, as a basis for exclusions.”

“The name “Morgellons Disease” is the final issue that we wish to address. We sympathize with those who are concerned that this name may trivialize this illness. The impairments associated with Morgellons Disease are not trivial. However, we believe that changing the name without adequate scientific justification will lead to confusion and will substantially undermine the progress that has been made in focusing public, clinical, and research attention on this illness. We support changing the name when more is known about the underlying pathophysiologic process or processes associated with Morgellons Disease and Morgellons.”

Well, it seems like it’s going to be quite some time before this one is resolved.

100 Responses to “CDC paper on Morgellons”

  1. “We believe that inappropriate tests are often used to diagnose Morgellons Disease in chronically fatigued persons. This practice should be discouraged.”

    And what tests might they be?

    If chronic fatigue were the only issue with this disease – I could live with that – but it ain’t!

    As I suspected – they will change the name of Morgellons Disease to something else – once they have had all the information handed to them on a silver platter and people have suffered unnecessarily for far too long!!

  2. Wow, I can hardly wait until 2015 when this article is actually published. It clearly substantiates that Morgellons is a legitimate disease but only needs to be more carefully defined. This should please Dr. Wymore no end.
    A glimmer of hope for the sufferers though, that when it is defined by 2017 or so, an experimental 3 year double-blind study of treatment regimens can be proposed to finally put this disease to rest. Thank Goodness for the international experts who will accomplish this important work.

  3. johnboy – you seem to get a kick out of other peoples suffering.

    Well if the CDC is made up of people like yourself – it is no wonder things are as bad as they are.

  4. Yeah, and does it really even matter, if it’s lucrative to tell people what they want to hear, which is “we believe you, and know this is real and we’ll continue fighting this together”, which can go on indefinitely, and probably will, since such behaviors are groomed and supported by MRF?

    It all started with a young boy named Drew, didn’t it, though? And, with an ill mom who appears to have aspirations of becoming a famous scientist, someday, having a clouding of her abilties to understand the simple, natural, processes occurring with her little boy’s eczematous skin’s natural inclination to attract environmental fibers. She was humiliated by his doctors, and off she went with this thing. Like-minded “experts” joined in.

    The Queen of Morgellons didn’t start this thing out even having anything to do with all those symptoms she composed as she went along. It all started with a young boy named Drew, diagnosed with eczema, who got frozen in time on MRF’s website, for four years, and was not heard of anymore, on there, while mom moved on with her mission. Her mission of what? Throwing in a bunch of unrelated issues from surveying registered MRF members, stated there as consisting of 95% of patients who’ve been diagnosed with delusional parasitosis. The claims of illnesses, diseases, and disorders, that anyone fills out there, as you’ve said, Michael, means nothing, yet she took those, she expanded those reports and unsubstantiated claims, and turned it into a ridiculous case definition for the CDC.

  5. I honestly did not mean it that way. My remarks were for the foot-dragging CDC employees who should be working on this ASAP and for the expert scientists and especially MD’s who use really big words in their published articles but end up going around in circles and really saying very little. A apologize to the sufferer’s and do hope things get moving before 2017.
    The person or person’s who wrote the tongue-in-cheek article Michael copied here were in my opinion also kidding the “experts” and trying to get them off their duff.

  6. Smileykins – Leave Mary Leitao and Drew alone. This website is designed to discuss a newly emerging infectious disease.

    You speak as though you know everything about Mary and her family, well you don’t.

    When you continual go on about Mary and her ‘made up’ disease and ‘it all started with a boy named Drew’ – you really come across as a very unstable person and very jealous.

  7. “This website” is designed to investigate Morgellons, including investigating the MRF, its claims and actions.

    As for “It all started with a youn boy named Drew…”, see:

    http://morgellons.org/aboutus.html

    Now, have you read the future CDC paper yet?

  8. Michael – I was referring to Smileykins and tallcottons story called ‘The lie about Morgellons’.

    You know the one where she talks about cat scratch fever – what a laugh that is!

  9. I really didn’t mean it that way. I was being sarcastic to try and make the point that the medical community and CDC should address this problem ASAP, and not give it the bureaucratic shuffle like most difficult issues. The author’s of the tongue-in-cheek article Michael found (God knows where) were also trying to point out how so many experts tend in their publications to use really big words but go round and round and end up saying very little, just to get another publication. I know people are suffering and that is not funny.

  10. Yes I have read the CDC paper. It doesn’t provide much comfort at all.

    What is very frustrating to me is trying to get help for sufferers in Australia particularly those in remote areas. I did mention in an earlier post that Australia doesn’t really recognise Lyme disease – so where do these poor people begin?

  11. HEY!!! HEY!!! HEY!!!

    Conditions That Explain Morgellons

    The following conditions exclude a patient from the diagnosis of unexplained Morgellons

    Under #3…”delusional disorders of any subtype”

    Man, that would eliminate 95% of the registered members of MRF.

  12. Please explain what you are finding laughable, about cat scratch fever, abac68.

  13. DEAR ABAC68,

    NO OFFENSE TO YOU, BUT SMILEYKINS IS PRETTY DARN KNOWLEDGEABLE. Mean as hell, but also funny as hell. Just overlook her.

    she used to make me get on my knees and hold both hands straight up in the air as I bent over keeping my hands stretched out (as in praying to allah?- whichever one it is where they pray everyday at two and hug the floor) but smiley made me chant as I repeatedly did 3 bow sequences, “I’m Not worthy, I’m not worthy, I’m not worthy” then she would forgive me and not use her voodoo doll on me for like 6 months.

    Huh Smiley? and ABAC68, one other thing…..you ought to read her post on cat-scratch disease one more time…..I’m surprised no one else had picked up on her saying that. You see, ABAC68, I think that is just what we have…..cat-scratch fever!

    you know how I know? 6 nights ago, Ted Nuggent was playing that song in my living room . It must have lasted a good 4-5 hours straight. over and over and over……I can hear him now….”I went to the doctor and the doctor told me…..”

  14. # ABAC68 Says:
    July 12th, 2006 at 4:46 pm

    Smileykins – Leave Mary Leitao and Drew alone. This website is designed to discuss a newly emerging infectious disease.

    You speak as though you know everything about Mary and her family, well you don’t.

    When you continual go on about Mary and her ‘made up’ disease and ‘it all started with a boy named Drew’ – you really come across as a very unstable person and very jealous.

    AND

    # ABAC68 Says:
    July 12th, 2006 at 4:56 pm

    Michael – I was referring to Smileykins and tallcottons story called ‘The lie about Morgellons’.

    You know the one where she talks about cat scratch fever – what a laugh that is!

    I think somebody is having some problems

  15. Linda, what did you go and post the whole article on Lymebusters for?

    The article is not a joke. I created it specifically to point out the problems of defining new diseases that have no testable causitive agents. Consider the two decades of research cited – and still they disagree, and still there is much quackery.

    The MRF could learn a lot by studying the scientific communities responses to CFS. For a start – how to write a good case definition.

    Let me quote from the article regarding case definitions (editing one word for clarity):

    Whether to retain any symptom criteria other than fibers generated the most disagreement among the authors. Disagreement occurred between those who favored a more restrictive approach (using several symptom criteria), as was done in the 2008 Morgellons Disease working case definition, and those who favored a broader definition of Morgellons Disease (using fewer symptom criteria) as was done in the Australian (3) and British (4) Morgellons Disease case definitions. Those favoring multiple symptoms argued that use of multiple symptoms best reflected the empiric clinical sense of Morgellons Disease as a distinct entity. Others argued that no symptoms have been shown to be specific for Morgellons Disease (28) and that some studies suggest that a requirement for multiple symptoms biases the selection of cases toward those with psychiatric disorders (28, 44). Disagreement over this particular issue underscores the need to establish specific features of Morgellons Disease and the validity of any Morgellons Disease case definition.

  16. I was referring to this Smileykins

    “And I have cat scratch fever too,” she said, “but I don’t need any tests performed to know that. That’s something I’ve had all my life. It’s a normal thing, for me, to get pretty ill upon skin contact with a cat’s claw, and to stay ill for quite a few days after, and I just live with it.
    My autoimmune problem was in high gear, because of a cat claw puncture wound, too, with the tip of the claw broken off inside. I always have to wait for them to work themselves out”

  17. Although the term, Morgellons Disease, appears to be used quite loosely, the article clearly states that it has not yet been determined whether or not is is a disease. They have given it a definition. Now, they have to see if anyone meets the criteria. After the CDC has done all of the proper culling, there won’t be a single person left. You wait and see.

  18. Did you not think I’m special enough to be picked on tonight Tall Cotton?

    Duh, I even asked you a question up above…..

  19. Abac68, I know what I have, and I know what I said. That wasn’t what I asked you. I asked for you to explain what you think is laughable about it to me, and the rest of the class.

    Thanks for the compliments, london, but that religion-based rumor that I’m a muslim, just contributed to the formation of that delusion you had of me making you get down and do all that. I’ll try to go easy on ya during any others I’m present in. Hahaha.

  20. TC, the CDC have not defined Morgellons Disease *yet*. Like Johnboy mentioned, the article is not due to be published for quite some time.

  21. Who do voodoo? Oh no, not me. I so soory somebody else, london. An imposter, for sure.

  22. When I made my previous post, I had not read Michael last post. Well, they could give Morgellons a definition, but still, no one would qualify because of the lack of pathogenicity and the underlying psychiatric disorders. I’m almost wishing I were a member of Lymebusters to see where they run with that one. HAHAHAHAHA.

  23. I’m a member – it’s going nowhere. Oh well, maybe it will spark a few thoughts.

  24. Smileykins – why should I tell you what I find laughable!!

    Why don’t you tell me why you and your boyfriend tallcotton still haven’t taken a break from the internet??! Obsessed are we??

  25. If people are suffering, they need to go to their doctors and treat the conditions that they actually have, and quit trying to convince their doctors they have a made up disease called Morgellons. I don’t know about everyone that claims to have Morgellons, but most of the people at Lymebusters have very obvious mental disorders. Those psychiatric conditions need to be treated.

  26. London, I wasn’t picking on you. I was picking on Condelezza. Like I said at Lymebusters, if you look hard enough you will probably find GWB and his cabinet there with her.

  27. Abac68, nevermind, you wouldn’t understand.

  28. Michael – stupid question – but where did you get this document from?

  29. Well, the path of Morgellons is all planned out, and this is a document that is going to be released in 2016, to alleviate global panic.

    Or, it’s just the CDC case definition for CFS, with some search-and-replace.

    http://www.cdc.gov/cfs/cfsfullcasedefinition.htm

  30. It’s just odd how people view things, such as abac68, in having commented directly to me, “Leave Mary Leitao and Drew alone. This website is designed to discuss a newly emerging infectious disease”, and other such things she said, following it with, “You really come across as a very unstable person and very jealous.”

    Then, after Michael’ reply to her, she said, “Michael – I was referring to Smileykins and tallcottons story called ‘The lie about Morgellons’. You know the one where she talks about cat scratch fever – what a laugh that is!”

    In your evasiveness, I’m left to examine these comments on my own, and try seeing how you arrived at your conclusions. I “really come across as very unstable and very jealous”.

    I’m of a fairly sound mind, regardless of how I tend to come across, and I have stated why I am outraged, but if I were jealous, that could only be due to two possibilities:

    a. Either I’m jealous because my own mother didn’t flip out over fibers in my eczema when I was a toddler, and I’m upset that there was no internet for her to spread mass hysteria over it

    or

    b. I am jealous that I wasn’t mentally imbalanced and came up with what Mary Leitao has done, myself

    If my having cat scratch fever is funny, and it has brought laughter into your life, abac68, I’ll never knock laughter, so I’m glad to have had that effect on you.

    I’m sorry lyme disease isn’t recognized in Australia. I see that Murray Valley encephalitis and Kunjin viruses are spread through mosquito bites there. Although I’ve read articles that there are other vectors for lyme disease, do you have ticks in Australia?

    You are a bossy lassie, aren’t you, telling people such regular commands as you keep repeating.

  31. Smileykins – the best way to describe your posts is ‘VERBAL DIARRHOEA”. Go choke on your eczema.

  32. Michael – with reference to this so called CDC document, how do you think the authors would feel about you cutting/pasting and changing things?

  33. My eczema has been in remission for approximately 20 years, almighty ruler of the web, your highness.

  34. I think they would see the point I was making.

  35. That you have completely no idea what you are talking about.

  36. Who do? Michael? Oh now, puh-leeze, puh-leeze, puh……leeze.

  37. Well I keep telling you guys that the skin manifestation of Morgellons feels like a spirochete in the skin – no response. My hair grows into my face – no response. This ‘thing’ twists and pulls the skin – the arms can not extend fully at times etc etc etc – no response.

  38. ABAC68,

    Just think how many years you’ll be able to deny that you have DOP.

  39. tallcotton Says:

    July 12th, 2006 at 10:15 pm
    ABAC68,

    Just think how many years you’ll be able to deny that you have DOP.

    Just to bring everyone up to speed – I wish I had DOP then I could take a pill for that.

    I have taken antidepressants and antipsychotics – they don’t work if you don’t need them. It just really slowed down my metabolism allowing this thing to really take a hold of me. As well as many other horrible side effects, so glad I am free of that rubbish. I am not knocking psych meds. because they are well and truely needed for those that do have a real chemical imbalance.

  40. Allow me:

    Spirochetes are 50 microns long, that’s 0.05 mm long. Their length is about half the thickness of a human hair. They are about 0.25 microns thick (0.00025 mm thick), that means you could insert 400 of them into a hair follicle, and you would not feel them.

    There is no way you could feel anything from “a spirochete”. Try to describe the sensation in terms of something that you have actually felt before. Like insects.

    Your hair grows into your face. Ingrown hair? Google it. Everyone has that to some degree.

    Your skin is tight – there are lots of causes for that – what makes you think “the thing” is pulling your skin? Maybe you can’t extend your arms because of arthritis. Maybe scleroderma, or some connective tissue disorder.

    If you want a response, ask a question.

  41. As stated before i do not have a connective tissue disease, all blood work is clear.

    Michael said: Your hair grows into your face. Ingrown hair? Google it. Everyone has that to some degree.

    The hair like fibers that pop out of my face are attached to my scalp (this is not just happening to myself, many others have reported this).

    It is not just that I think it is pulling my skin – it is very obvious to anyone – this thing will reshape your body for ya!!

    My doctor and the Prof. of Derm that I saw both said that they have never seen anything like it.

  42. Abac68, I don’t know what you’re meaning -”no response”. You’ve told us that your doctor is treating you for “morgellons disease”, and that you’ve been cleared of any psychosis by a mental health expert. Or am I mistaken? You’ve said that doctors there recognize “morgellons disease”, but that they don’t recognize lyme disease. Unless you’ve had a spirochete in your skin before, which you must have, to know how it feels, do you have a spirochete in your skin? You said your doctor just wants to kill whatever is in you, that is making you ill. Are you sure that fibromyalgia is ALL that you have ever mentioned being diagnosed with, aside from your doctor “believing in morgellons disease”, and treating you for it with those 56 IV sessions?

  43. Huh? “As stated before i do not have a connective tissue disease, all blood work is clear.” Well, what do you think fibromyalgia is, abac68?

  44. Clean the grease off of your forehead.

  45. My way of describing the skin symptoms of Morgellons is like a spirochete is in my skin.

    If I had to choose any garden variety germ, bug, bacteria that was involved in the skin symptoms I would choose spirochete – the reason being is that I don’t know many skin disorders that twists the skin like a cork screw.

    So I use the term spirochete as a way to describe the symptoms.

  46. Well ABAC68, your symptoms are quite unusual – in fact they actually fall outside the MRF case definition for Morgellons, so you can cross that one off your list of possible causes for your symptoms.

    What else is on the list?

  47. Okay, let me say that I know fibromyalgia is a complex pain syndrome with chronic fatigue, brain-fog, and all that stuff we know about that goes along with it. However, whether he was right or wrong, my rheumatologist explained it to me as being the same thing as what our forefathers referred to as rheumatism, and that it originates in our tendons and ligaments, which are connective tissues.

  48. Smileykins – What particularly blood test is now used to show fibromyalgia?

    From my knowledge the rheumatoid factor blood test is a way of showing not only rheumatoid arthritis, but also connective tissue disease. I do not have an elevated rheumatoid factor.

    I was diagnosed with fibro long ago, when doctors didn’t know a lot about it.

  49. Michael Says:
    July 12th, 2006 at 10:44 pm
    Well ABAC68, your symptoms are quite unusual – in fact they actually fall outside the MRF case definition for Morgellons, so you can cross that one off your list of possible causes for your symptoms.

    Yes, my symptoms are unusual and the longer this whole thing drags out the more and more people will start to mention these types of symptoms.

    I had the lesions many years ago and got rid of the them. This is many years in the making.

  50. Yeah, well a spirochete in your skin feels like nothing. A spirochete might trigger itching due to abnormal cortisone levels due to inflammation stimulated by immune response, but that’s not what you are saying.

    Say “It feels like someone is rubbing my skin with rusty steel wool” – or something that describes the feeling realistically.

    Anyway, this is all off topic. Much as I feel sympathy for your personal situation, I have no idea what it is, and there is no way I can diagnose it from here. All I want to do is show that it’s probably not the same thing every other Morgellons believer has, and the fibers are probably mostly normal.

    If you have questions, ask away, but I’m not going to play doctor any more. You simply have a bunch of odd symptoms, much like millions of other people.

  51. Smileykins said: Are you sure that fibromyalgia is ALL that you have ever mentioned being diagnosed with, aside from your doctor “believing in morgellons disease”, and treating you for it with those 56 IV sessions?

    What else would you like to know or by the sound or it you could probably tell me?

  52. This is where you are very wrong Michael – the fiber issue is what puts us all in the delusional category and trying to express something so strange which is not in a medical text book is so difficult. I never said it feels like a spirochete. I never said I felt anything. I said that there are not many germs or bugs that I know of that could do this to human tissue, and the best way for me to describe it is as I just stated.

  53. You just don’t seem to welcome any new information on this disease. Or is it the Morgellons foundation that is of more interest to you?

  54. I appreciate the difficulty in communication, what did you mean by this then?

    ABAC68 Says:
    July 12th, 2006 at 10:08 pm
    Well I keep telling you guys that the skin manifestation of Morgellons feels like a spirochete in the skin …

  55. Michael Says:

    July 12th, 2006 at 10:55 pm
    “This”?

    Pardon me – but did I miss something here?

  56. The skin is twisted in a cork screw circular motion and does this from all the main lymph gland regions.

  57. I was busy just now, and missed some things, but yes you did say this…

    ABAC68 Says:
    July 12th, 2006 at 10:08 pm

    Well I keep telling you guys that the skin manifestation of Morgellons feels like a spirochete in the skin – no response…….

    Then, said, “I never said it feels like a spirochete. I never said I felt anything.”

    I can’t help you, but at least you’re under a doctor’s care.

  58. Did you miss “this”?

    http://morgellonswatch.wordpress.com/2006/07/04/this-disease/

    ABAC68 – I’m very interested in the Morgellons phemonenon. I’m interested in if there is a actually a new disease. I’m interested in if fibers are emerging from the skin. The evidence on both seems to point to no. I’m talking to you to try to figure out why you think the opposite.

    I’m sorry that you are sick, but what you say about your own illness has very little relevence, unless you can demonstrate that fibers are coming out of your skin (video?), and that other people have the same symptoms as you. Apart from that, it’s just irrelevent details.

    I hope you get well.

  59. “Welcome any new information on this disease”???

  60. That’s a better description. But still off the charts for Morgellons. Looking elsewhere would be a better bet.

  61. I mean…

    # ABAC68 Says:
    July 12th, 2006 at 11:01 pm

    You just don’t seem to welcome any new information on this disease. Or is it the Morgellons foundation that is of more interest to you?

    (Just sort of blowin’ my mind a little bit)

  62. “Linda, what did you go and post the whole article on Lymebusters for?”

    Gosh Michael, if we were buddies and you told me to keep stuff confidential, well…we’re not. You’ve chosen not to be. Anyways, it’s a strange article, need I say more? Now we know why it is strange; you doctored it up a bit, eh? Why would you need to? See YOU ARE A DOCTOR after all.

    London, you’re a riot.

    ah

  63. Smileykins – hopefully the wind might change and literally blow you up.

    Isn’t this web site designed to discuss morgies or am I mistaken? Or did you just want to keep it cosy with maybe just 3 of you talking about it.

  64. You said, tonight…

    ABAC68 Says:
    July 12th, 2006 at 4:46 pm

    Smileykins – Leave Mary Leitao and Drew alone. This website is designed to discuss a newly emerging infectious disease.

    I say, that morgie people make things, and people, into anything they want them to be, on this blog, entitled:

    Morgellons Watch

    Resources for Morgellons investigators. Skeptical analysis and debunking.

    I remember this excerpt on the Tea-tree Oil topic,

    # Michael Says:
    April 27th, 2006 at 4:58 pm

    “I’m more concerned with the more marginal people, who have not yet fully slipped into the seductive abyss of circular irrationality.”

    AND, SO…

    I decided to hang out here when I saw what the mission was. It wasn’t to fight. It’s about promoting truth. The last time I checked, truth was a good thing.

    This blog has somehow had a profound effect on people it wasn’t intended for. The people who are convinced that they have “morgellons disease” read here and feel personally attacked on a primal level. Their intentions for coming here were clear before they arrived and wrote their first words. The exhibited manifestations of some of the combined illnesses, are more than I care to deal with, but it’s an indication that some “believers” are trying to come to their senses, when they come here and want to stay. There’s no telling how many other such people are only reading this blog and it’s changing their minds too.

    People who aren’t so sure are responsible for this blog going through an evolutionary process. The etiologies of each individual who believes they have “morgellons disease” are extensive, as well as very intensive. As I’ve made clear, I’m ill-equipped for dealings with such people. Six months on lymebusters was too long. I think it’s a job solely to be handled by professionals.

    *Remember, you came here, to shut Michael’ down abac68, so I have to get all that I can say out, before you do it.

  65. “Well I keep telling you guys that the skin manifestation of Morgellons feels like a spirochete in the skin”.

    That’s your Morgs playing leap frog.

    “I never said it feels like a spirochete. I never said I felt anything.”

    That’s your neurons playing leap frog.

    Aren’t these things in the case definition?

  66. How is the weather in good old Oklahoma?

  67. There’s better places to travel to, but since TC’s at an appointment right now, I went ahead and looked that up for you, abac68.

    http://www.okcweather.com/radars.htm

  68. Abac68, are you coming to OSU for studies with Wymore?

  69. Don’t need to. We have already done that.

  70. Look people, here is the deal. Bottom line Info? “WE ARE GOING TO HELL IN A HANDBASKET! ” and that is pretty much it. It’;s not going to get any better.

    And Smiley ( I think it was you that mentioned Rheumatism above) well, that I now have too. But funny, my fiance and I both woke up one morning with swollen feet and arthritis on the same day.) Mine was given to me thru your local F-up scientist and their ability to c ause GENE TRANSLOCATION!!!!! dON’T EVEN ASK ME TO EXPLAIN IT, OR I WILL.

    Tall Cotton,

    I know you were not being mean. But I wanted you to be Dammit!
    If you go back to my post at the top (or maybe it was yesterday) I wrote and told you what my Shrink (that I really did go see) wanted me to try. I thought you would know about it. I think the RX is called Buciprofon? I dunno. I just want some mushrooms to boil really.

    and Cat Scratch Fever can kiss my arse too. I have never picked a GD cat up in my life. Ever! But you know what? It was either those hair worms that put those two big 3 inch long scratch marks on my tummy as I was showering (last year when this disease came on me) or the friggin, spiraling, airborne asbestos traveling thru my condo!

    But this much is true, you CDC pieces of crap……No GD cat has infected my butt, got it? Now, you best think of something else to say or get me a lifetime supply of mushrooms to put in my koolaide!

  71. Michael,

    Last night when I clicked onto your hyperlink re: what the CDC said, I clearly remember in the first sentence is said “thought to be Ricksettia in nature” Now, either that has gone-i.e., they changed it, or, I can’t find it.

    Can you help me out here? Also, since I cannot access Slimebusters, can you tell me where/ how to find this for myself on the CDC link?

    Juswt yesterday on their site, I had typed Morgellons in on their search button but it pulled up nothing for me.

    thank You~

    London

  72. London, that CDC paper is not real. It’s a paper on “Chronic Fatigue Syndrome”, where some words replaced with “Morgellons” and a few “lesions”, “fibers” and “lyme” sprinkled in for effect. The point is how the vast majority of the paper still makes sense, even though it’s talking about a totally different thing. This shows that a lot of the issues surrounding CFS will be the same for Morgellons, if Morgellons is ever shown to be a real disease.

  73. oh, now this is great! Everybody check this crap out…..go back to the hyperlink at the very top that Michael so graciously put up there for us.

    When it opens up, look at all the references at the bottom will ya? the damn papers were written in 2008, 2009, and 2010?

    NOW DAMMIT, WHAT DOES THIS TELL YOU? STILL BELEIVING IN NO COVERUP BY YOUR LOCAL GOVERNMENT? IF SO, YOU ARE REALLY DELUSIONSAL!!!

  74. okay, just now seeing your post Michael. But why did it say rickesettia in nature last night but does ot today?

  75. London, here is the original:

    http://www.cdc.gov/cfs/cfsfullcasedefinition.htm

    It used to say: “From the Division of Viral and Rickettsial Diseases …. ”

    But that was just one of a long list of participating institutions. I removed the list in case someone thought the paper was real, and tried to contact them. I don’t want to waste their time.

    The original is an interesting paper.

  76. Oh, did I say that cat scratch fever made me ill for two months in 2002 with the symptoms of what we’ve been told is something known as “morgellons disease”?

    No, I didn’t.

    I prefaced the account of some of the unusual symptoms I’d had, as well as why I’d had them, with a health history to show that I have some similar, common, disorders that other people who “think they have morgellons disease” have, to show that they had nothing to do with the bizarre skin manifestations that I’d witnessed.

    I’m not like the morgie person who thinks that if she can’t lift a bucket of water, or a footstool, that it’s her morgies being uncooperative with her.

    I never thought anything along such lines as that, even at my sickest. So, go figure.

  77. Well, then Michael, In that case, it was funny as hell. Did you do the parody yourself? I thought it was real when I read it last night but It was so late and I kept falling asleep if that’s any indication of my comprehensive skills, So, you wrote that? hahaha, that was well done.

    Smiley, Are you talking to me or ABAC68, ot to both of us? I just saw your post the other day for the first time when you gave me the link. Am I sorry, but I want to make sure….are you saying that you do or do not think that you had some type of cat-scratch disease. (I’m not being funny or rude here, I just want to understand.)

  78. Prefaced the account with a health history, London.
    Clearing it up, here, for anyone who reads either of your comments that bends and twists my reality.

  79. I was not trying to, I promise!

  80. S’okay, london. I fail to understand the relevance of either of your comments, and that’s about it.

    Abac68: “You know the one where she talks about cat scratch fever – what a laugh that is!”

    London: “and Cat Scratch Fever can kiss my arse too. I have never picked a GD cat up in my life.”

    Equals: Beats the hell outta me.

  81. Soory, london. You were probably talking to Ted, and I wasn’t even considering that. I just don’t want anyone to misunderstand, and think that I was trying to say that anyone, including myself, had, or has had, “morgellons disease” symptoms due to cat scratch fever.

  82. London,

    Buspirone is an anti-anxiety medication. Buproprion is an anti-depression medication.

    Tall Cotton

  83. Tall cotton,
    You will just not be mean to me! Nada, zilch, nothing! You could have floored me with that. So, I will do it for you.

    May eczema is itching, so I just took 5 Buspirone tablets with a swig of Merlot. Now, I feel better. I’m not as DOPish anymore.

  84. Yeah, I know I could have. People underestimate the horrors of eczema. But there’s plenty of other things that can cause people to itch. There’s also lots of things that can cause lesions. Morgellons is not a disease. And if it was, it wouldn’t be a “fiber disease”. With the exception of a few people who may have sensitivities to certain industrial fibers, or their dyes, the fibers are benign. I don’t mean to say that people don’t sometimes get into asbestos or other highly irritating fibers. but that’s not the case with the typical Morgellons non-disease victim.

  85. Just WTF is the WTF Foundation “after” with their research?

    Mary Leitao started out with “her creation”, based on the closest thing she could locate to compare her very ill-conceived misconceptions to, which was a old paper from the 1600s, of all things, of people not understanding, yet, the cutaneous effects of the lack of regular, personal hygienic measures. (Incredible)

    Being just like any other person who thought there was something mysteriously wrong going on with fibers in skin, she brought such people together, under giving a name to that mistaken belief on her Morgellons Research Foundations’ web site. (Unreal)

    If such people didn’t already have microscopes and ultra-violet lamps to view the crap they got out of their skin (and from other places, too), she urged them to purchase such items for “their research” and instructed them to launch an all out state and federal campaign for recognition.
    (Outrageous)

    So okay. But even for a severely mixed up person, the matter of fibers in skin isn’t something that takes too long to resolve. It wasn’t, though, and all those concerned still continue onward with the obsession. What’s caused that?

    The way I see it, she had all of these people, who shared her misgivings, fill out health questionaires. That was another seriously wrong thing for her to do, adding fuel to the fire, when she took from that and made her symptoms’ lists and later on, a case defintion.

    The matter of the integrity of our skin being compromised and fibers getting into it, was a rather benign situation, that should have, like I said, been resolved and concluded for all concerned.

    Since “she created the disease” to begin with, she played with it, making it become even bigger, as she went along. In doing so, combining the lists of similar health problems from members on her web site, she instilled the belief, “the fear”, in her followers, that all of the problems that they have are due to “her created disease”.

    Rather than the major concern over their visible fibers, then, such people began to totally freak out that there is a pathogenic agent that is causing EVERYTHING –the fibers, themselves, as well as all of their conditions.

    Off we go
    Into the wild blue yonder
    Flying high into the sky…

  86. hahaHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAH

    aaaaaahhhhhhhhh, HAHAHAHAHAHAHAHAHAHAHA!!!!!!!!!!!!!!!!!!!!!!!!!!

    I’M ROLLING!

  87. It’s hard to have a conversation here with such vague references and incomplete sentances and all of the personal mudslinging. Perhaps we could discuss the topic?

  88. You guys are laughing but if a loved one had this crap, you would not be.

  89. Houston, I am certainly not laughing. I’m just not convinced that Morgellons is a discrete disease.

  90. Pray you dont get it laughing boy

  91. It is real. My mom has it.

  92. Houston, newcomers to this blog are often unawate that comments posted to older posts are often unnoticed by the other participants here. It would be most helpful if we were to take this conversation up to the most recent post, which is currently here:

    http://morgellonswatch.wordpress.com/2006/07/30/white-fibers-fluoresce-blue-under-uv/

    Thanks

  93. Houston?

    # London Says:
    July 15th, 2006 at 10:58 pm

    hahaHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAH

    aaaaaahhhhhhhhh, HAHAHAHAHAHAHAHAHAHAHA!!!!!!!!!!!!!!!!!!!!!!!!!!

    I’M ROLLING!

    Is that what you’re referring to as “all of us laughing?” That’s London, she is a morgie. You’ve misunderstood!!! We’re NOT laughing.

  94. My hamster had it. It was all over its cage and coming out its mouth.

  95. so then it came our of your mama
    thats wierd

  96. Jeeze-

    Your skepticism is understood. But we have a MAJOR problem. How could so many people be infected with this if it is dillusional? It is not. I think al-queda made due on their promise to attack us. My opinion only.

  97. I have been bed ridden with morgellons for almost 2 yrs.I had a sucessful business, and a great life. Disability has turned me down 2 times, and medicaid refuses to give me healthcare.My body is shutting down, and I am loosing faith, and I see no hope for the future. I was originally diagnosed with cutanous non hodkins lukemia, with a life expectancy of 8 month’s. I lived with that diagnosis for 3 month’s. I have cut myself off from everyone, except my sons, and I have no doubt that Morgellons is a real, and contagious disease,that the cdc will someday admit is fatal.Im so lonley, as I cant talk to most people about it, as they treat me as a leper, and i admit that I feel like one. Im enclosing my phone #, if anyone wants to talk, just please no cruel or hateful people, as we sufferes have endured hurt, diagnosis of mental illness, and complete lack of respect and compassion already from the medicial community. You can call me D. 727-821-7582.

  98. Dear Zoom, I’m so sorry you’re so ill. What year were you diagnosed with NHL?

  99. Houston,

    “So many” people aren’t infected with Morgellons. In fact, none are, but many people have a garden variety of other health problems. And quite frankly, many of those health problems are mental. Don’t blame this hoax on the al-queda. Enough lies have been blamed on them already. Can’t you understand that if the al-queda had spread a disease as an act of bio-terrorism, they would have chosen, not only a read disease, but it would have been one that kills.

    Tall Cotton

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