Jul 13 2006
Morgellons Photos
(If you are looking for some free Morgellons-style photos to illustrate an article, feel free to use any on this page, and then there are also many more free photos here)
I’ve been asked several times to explain the dramatic photographs of Morgellons sufferers. Well, let’s take a look at some specific examples:
This is “skin from lesion on back, 60x, with embedded fibers”
Presumably these are the types of “unusual” fibers that Ginger Savely finds in peoples lesions when she looks at them with her 30x radio shack microscope. I can’t really see much unusual about this photo though.
Then we have some close-ups: “Fiber and red spot, 200x, top lit”
And the same, but back lit:
Now that’s kind of interesting. The poster says “large fiber looks like it’s attached to blood spot, possibly feeding. Smaller fibers, babies?”. Sounds like an over-active imagination to me.
There’s a couple more, at 200x:
The poster comments “Fibers look nothing like clothing fibers” “fibers all different sizes”, “red dots - eggs?”, “fiber embedded under skin!”
Interesting photos, don’t you think. They really look like something is going on, some weird fibers embedded in lesions. Is this the evidence the the MRF is looking for?
It’s seems to be of the highest level of evidence they have presented so far.
But I can say quite confidently that this “evidence” demonstrates nothing - in fact it actually hinders the case for Morgellons!
Why such arrogance in my assertions? How can I be so sure?
The “Morgellons sufferer” is me, Margellons. The “lesion” was a healing zit on my back, the “skin from lesion” is a piece of scab/skin I peeled off it. The photos are mine, the comments are mine, the lesion is mine, the fibers come from the combed cotton and polyester black shirt I am wearing, plus whatever shirt I was wearing the past few days the scab formed, plus a few streaks of blood and skin fibers.
So, either
A) I have Morgellons, and I am in some deep, deep, denial.
B) Fibers in lesions are not evidence of Morgellons.
Fibers are everywhere, as are the Fuzzballs.
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Bravo!
okay, Bravo! But how do I explain the one my Gynesologist took from my Cervix? Yeah, she saw it! I’ have not been in the habit to put a shirt up their on my cervix each morning when I ge dressed!
I am arrogant too. I think abac68 just said, last night, that you’re “in denial” of having “morgellons disease”, Michael, when she was referring to your having fibers, and twisting it around to suit herself. Hehehe. Welcome to the club. You know we’re all gonna die.
London, don’t “explain the one” your gyno took from your cervix. Ask her. If you’ve ever used a tampon, voila.
OKAY, I aggree, you are smart, did n’t think of that one, but the fiv=ber was blue! Oh, hell, maybe my blood is too? I don’t think so. Hey Smiley, go back to the end of yesterdays postings, I just wrote there and do need your opinion.
Michael,
The way that black cotton fiber spreads, showing that it is basically a tiny rope, made of several finer strands, it looks to me just like some black fibers I saw on morgellonsusa. Excellent demonstration!!
Tall Cotton
Michael, on the MRF’s Medical Page…
Information you might need to know:
Some of the symptoms and physical structures associated with this disease are unusual and may lead physicians to assume that the patient is misinterpreting their situation. Nearly all (95% of) adults with the symptoms of this skin disease have received a diagnosis of DOP or Delusions of Parasitosis.
“…may lead physicians to assume that the patient is misinterpreting their situation.”
(Way beyond despicable)
It’s a despicable misuse of language. The symptoms are NOT unusual - millions of people have similar symptoms. The “physical structures” are not unusual - millions of people have lesions and they ALL have fibers in them, as demonstrated by the photos above.
It’s way beyond despicable for Ms. Leitao to have invented her disease, sucked people in the way she has, and all that has ensued, so far. The very idea. All of it, I mean, and saying such a comment as that statement underneath, “Information you might need to know”, catering to a specific population with the choice of wording, and dissin’ the doctors as being so mistaken.
By the way, how ya feelin’ there, Michael? From the looks of things you ought to not be doing too well. I mean, first, they were just “on” your skin. Haha, now there’s proof they’re in ya!!! Look out, now! Hahahaha!!!
This reminds me of the story about the merchants who speculated at length about how many teeth the horse had (thus it’s value) but no one thought to open the mouth and look. We have speculated for years that the fibers were fuzzballs, and finally someone looked. We have speculated for years that healing excoriations and pimples get fibers stuck in them but no one looked. Again, finally, our astute blogmeister actually LOOKED. Michael, your a genius!
Very well done.
I’d like to see what remains “inside” a bloody lesion after it is dabbled with a piece of tissue. I feel certain that some of the fibers would remain in the wound.
Undoubtedly, but you don’t even need to have a tissue involved, there are enough fibers floating through the air, or on surfaces and clothing that the lesion may come into contact with.
Every every lesion in the world contains fibers. It is practically impossible for a lesion to be free of fibers.
I would be impressed if the MRF could produce photos of a scab that did NOT have fibers embedded in it.
I would be even more impressed, if they were to examine the skin of someone, and not find fibers on them.
yeah, well you guys out to see the fibers my old alma matta made……they are nanotech fibers and they have a friggin virus attached. By the way…..I went to University of Texas! Hook-Em!!!!!
Yeah, I know they float through the air all the time. If anyone doesn’t believe that, they can turn a flashlight on at night. They’re everywhere, inside and outside.
Yeah… 250, 000 miles of nano fibers could be coiled into a ball the size of a poppy seed. They’re in no way related to the macro fibers of the Morgellons non-disease.
I told morgie people on LB message board, within a week after arriving there, that I had fibers in my skin from as far back as age one, and I always thought that it was perfectly normal for everyone to. Reasoning is foreign to people who believe they have this thing, though. I know, I’ve been there. That’s why I’m SO thankful I never stumbled across MRF/Lymebusters back when I was ill those two months, or I’d have laid there and died, believing I had a “real disease”, as screwed up sick as I was back then.
Click for Morgie Photo
Hmm, that picture’s one of his morphological states.
Just listen to me, “…SO thankful I never stumbled across MRF/Lymebusters back when I was ill those two months”? I was just now thinking, if things had been different, and, instead, I found myself sick like that now. Look at how very easily I could hear about “morgellons disease” at this point in time. Being a rational thinking person during that period of time was something I was far removed from. It was 100% totally impossible to be. A delusional state is all encompassing, and a person’s complete state-of-reality.
Speaking of fibers you can see in the air, like you mentioned TC. I have read plenty of morgie people writing about seeing regular house dust, as sunlight shines through a window, and being completely freaked out by it. It has to be so dreadful to possess fear on that level.
It’s not easy for a person to admit that they have let their imaginations get the best of them, or that they have misinterpreted their experiences, but it’s a necessary step toward recovery.
Goodnight, Smileykins.
okay, I have said that I knew what our illness was or what is was going to be blamed on. As I was researching some of my previous studies last night, I came across an article that was co-written by Ms. Ginger Savely where they had researched this same thing just last month. Does anyone know why we did not hear anything of this? I’m very curious…it’s good in a way that it confirms what I have held in suspect but bad in the way of I do not want to have this.
Sorry if that sentence did not make sense. I went to the MRF website and did not see a thing. Also this paper I refer to was in addition, written by Mr. Stricker as well. There was no abstract available. Just the title.
thanks-
London
You probably mean this paper:
http://morgellons.org/AJCDerm1.pdf
Full to nonsense like:
“More that 300 years after its initial description, Morgellons disease remains a medical mystery. The disease has defied investigation and continues to present a diagnostic puzzle to healthcare providers.”
And the biggest crock:
“The authors declare they have no conflict of interest related to the contents of this article”
Except that the primary author, Savely, makes a significant portion of her income from treating this “disease”, and Sticker gets a cut of that.
Nope, not that one! This one had about 4-5 authors names on it and it did not have Ms. Leito’s name on it.
It was more (the title) to do with a certain arthropod carrying a disease that I say we have! And I have thought this since I finally found an answer to all my research about 6 weeks ago. Also will give you hint: had more to do with the rheumatoid side of the disease…….
Anyway, Pub med said no abstract available…….
I just find it odd that she wrote this paper with this disease name in it n(the one that I think is our infection), then she turns around a week later and writes the one you posted Michael.
I mean, that article up above says Morg.Disease….is it real or whatever dumb thing it said…..but no this other one….ooohhh nooooooo
Hark, I hear Ted!
Gotta get the doorbell!
“More that 300 years after its initial description, Morgellons disease remains a medical mystery. The disease has defied investigation and continues to present a diagnostic puzzle to healthcare providers.”
I gotta look at that piece of crap paper again, then, cuz I sure had to have missed something.
You remind me of Ellen, smileykins. That’s a compliment!
Michael, I’m so pleased you decided to discuss photos. I guess Tallcotton couldn’t provide you with any photos. You see the reason for this is because he used to ring up Ms Leitao of the MRF and ask if he could use the photos she had taken of Drew. I wonder why that is????
abac68 - do you think there is any photographic evidence of Morgellons?
I’ve never spoken to that crazy woman in my life.
Michael - That definitely is a loaded question!
How about you answer that one for me.
Tall Cotton - I wouldn’t have expected any other answer from you other than that.
Aren’t you both up very early for a Saturday morning????
Michael & TallCotton - Your last comments - 10 minutes apart??!!
Will Smileykins be doing the late shift?
Obviously there is “evidence”. What I meant was: are there any particular photos that you personally think actually show that Morgellons is a real disease? Particularly any individual photos of fibers? Which photos?
And yes, I’m only asking so I can debunk the photos. What’s wrong with that? Are you implying the photos are actually no evidence at all? Not even worth my scrutiny?
Abac68, your amusing asides seem to me to be a way of avoiding the real issue. What is the best evidence of Morgellons that you can present?
Tall Cotton said relating to the nanofibers I spoke about in an above posting:
Yeah… 250, 000 miles of nano fibers could be coiled into a ball the size of a poppy seed. They’re in no way related to the macro fibers of the Morgellons non-disease.
*********************************
oh, no, I mispoke. I should have thrown more info out then that- your comment that there was no way the UT fibers that I spoke of were Morg fibers because Morg fibers are macro.
Yes, you are correct about that…..they used both nanofibers with a virus attached via the bacteriophage and then they produced what I have
began to call them:
BACTERIAL MICRO FIBERS!!!!!!
AND…… SOMETHING ELSE HERE, I’d like you guys opinion on. Southcity, a poster that I’m sure we are all familiar with, just today wrote on the biology-online forum that he will be interviewed on air for an hour sometime in the month of August- no details released yet…..
So, I just wrote him back and said that since I knew what this was, could I please be interviewed with him as well? Don’t you guys think that that would be a great idea?
And, our infamous Mr. Cliff Miclkleson and Greema are on the airways
a lot, so I think they should allow me to be on there with them!
If not on the air, then I think I could meet with them before hand and give them all the details- I will pay for my own flight to wither San Fran to meet with South or to Washington to meet with Cliff.
What do you guys think? Hell, this is a win-win situation is it not?????
Yippeeeee!!!!!! So, if any of you Lymebuster Members are reading this, will you please get this message to Greema and cliff for me???
Linda, you still post there right? And you do also don’t you ABAC68? Would you please make a post saying Attn: Greema and Cliff?
Thanks…..
In my opinion, the ultimate evidence comes from morgies speaking on the matter.
Maybe that’s why they closed down Lymebusters.
For the time being, considering the question posed to abac68, “What is the best evidence of Morgellons that you can present?”
I think the very most compelling evidence she personally has can be found in the below comment that I borrowed from underneath the Morgellons Case Definition topic…
ABAC68 Says:
July 8th, 2006 at 8:48 pm
My doctors words are that he doesn’t care what anyone calls this disease all he is interested in is killing it. He took me off Antidepressants and Antipsychotics because he believes it worsened this disease for me and it did.
That’s quite profound.
You think we are all so dumb don’t you.
I think its time to put aside your territorial jealousy, and stop putting a lid on things.
I speak on behalf of all in this country who are suffering.
Dan the Man of the CDC - Why can you not make a decision?
Now let me see who wants to take the blame for this.
Well the Derms and the Psychs are sleeping together keeping things nice and cosy with the pharma companies peeing in their pockets.
Come on idiots we have GOOD doctors and scientists out there, but no you lot are more interested in your fame and fortune. Do you not care for the poor suffering children with this affliction.
Who gives a damn and takes the lead and calls it Morgellons, but you obviously do and that is your main problem.
It is your patriotic Americans who are becoming your chosen disease of DELUSIONAL. These are the people who give a damn about their future and their childrens future.
Who are the people in the medical community who are not interested in this disease DERMATOLOGIST AND PSYCHIATRISTS - THE SKIN AND THE BRAIN, funny about that hey.
Retired Computer Programmers are not heartless bastards.
So you see Michael that title just doesn’t suit you. Get a grip on yourself or just let your country go to rack and ruin your choice. Your Government is letting you down BIG TIME and then in turn the rest of us.
You all pee in the same pot as far as I’m concerned. We would like things back to way they used to be, before we had to start researching our own diseases and the innocent and suffering getting caught up in crap that no one wants to take the blame for. Pass the buck, keep passing the buck.
dear ABAC68,
Did you read my post above? Please, go to Lymebusters for me and make that urgent plea to Greema and Cliff?
Will see who has to hide things then! I will fly out there and give them all the info I have…….
ABAC68, no, I actually think you are very intelligent.
The reason that nobody seems interested in “this” disease. Is that nobody has yet shown that there is a new disease. That’s what Dan’s people are doing right now. First things first.
Sure, you are sick ABAC68. But who’s to say you have the same thing as all these other people? What is the diagnostic criteria for Morgellons?
I care a lot for the suffering of children when their parent convince them that the doctors are lying to them.
The liars seem to have been Dermatologists and Psychiatrists.
Better get a move on Danny Boy don’t want the old bipolar kicking you in the butt.
Parents don’t lie to their children.
London - All done for you. Good luck with whatever your mission is.
Smileykins & TallCotton - what an utter disgrace you two are. Have you actually met each other in person yet? When is he going to make you Mrs TallCotton.
So, ABAC68,
You did that for me??? oh, wow, why thank you so very much.
I posted it to soutcity on the biology-online fiber forum. My mission is this:
I believe 100% that I know what our illness is. I simply want to use the voice of Cliff and Greema to get this out there. For he is on the radio a lot!
They could even say, well, we have not tested this yet but here we have these documents and all the signs are saying this….._______________ .
Then, maybe the scientist and the docs would get behind this urgent matter.
Look, people say they are doing better….I am not. I show signs that I have some type of retro HIV virus!!!
and ABAC68. this was molecur made; meaning it won’t show up in the doctors test on us…..that is why the DOP label works …….hell, I have even seen a first aid field safety procedure manual written for the soldiers
that starts out talking about spider bites they might encounter….etc., but
get this…..
The very next thing…..the third or fourth item on this document to our
soldiers is…………….Delusions of parasitosis!!! HAHAHA Now, I don’t think this document was given out to the soldiers- not at all. I think
it was simply written as a cover and for us who use the internet…….
But, hey, thanks so much if you did that! That was a cool thing of you to do. We will see, a lot from this now, wont we???
If they are really true, sick people, then how in the hell can they turn this down???
London - just checked on things for you 15 have viewed so someone will no doubt pass the message on. Cheers!!
Cheers!!! I hope so, it might just get deleted- we will see…..
In the meantime, here is some fibers to compare with the ones at the top of this blog. Curtesy of my good friend Skytroll:
http://www.psiainc.com/_new/c_photoboard/viewlist.asp?div=a10
Thank you for that London. A bit of the old Deja Vu!!
Not deleted - just added another note to see if anyone wants me to pass a message through to you.
Happy to help you
London - Message for you - Carrie is missing your witty sense of humour and wonders what has happened to you, you not post over there now? Who, what, where, when, why, how - I think that is what she is asking!!
ugggghhhhhh, first, thanks for telling me that and again, thanks for doing that! uhhhhggggg, Carrie knows good and well why. What does that tell you????
Everybody loves Carrie (even Me) but not everyone of us believe her tricks, don’t be fooled abac68…….and if they try to persuade you (and oh, my, they will) then remember this: I am only wanting to offer them free information…….never forget that!!!
thank you soooo much!
My pleasure - did you get an invite to the wedding and wake? hE hE!! bYEX
London, this is what Carrie REALLY said …
“Yeah…
1. Why isn’t she posting here?
2. Why does she think every one is a spy?
3. Why does she think I’m a spy?
That was the funniest thing I’d ever heard up until I heard some one say the reason they haven’t found our disease is because it is so microscopic.
4. Please tell her I miss her witty character.
Thanks. ”
Now, of course, the thread has been highjacked and folks are back to discussing their own symptoms and ‘cures’. Post #19 on “your” thread:
“greema,
Wow, nice pictures, thanks.
I am interested in your results using the silver coin.
When I accidently stimulated the melting skin of my lesion, to stop it from expanding I threw colloidal silver on it. I was just lucky I had it handy. It was tearing through my skin at top speed and the silver stopped it dead.”
Hi Jeez and thanks for filling me in. You’re such a sweet bitch. (kidding, kind of ) regardless, in all seriousness, you said “MY thread” . Think what you want, but I did not start that, If you read up above, you will see where I clearly ask ABAC68 to poat that for me……
Now, I’m sure you knew this, for you are not that slow, nah, did’nt think so, but then what’s your point with those ownership quotation marks you used up above, denoting “my thread”???
Just curious that’s all. And by the looks of things, you must want to start an aguement, eh? I’m tired as all get out, but if that’s what you want, bring it on….gimme your best shot……
oh, no???? then, clearly you do not like me because I speak the truth…oh, i seem, you bow down to the one every one is calling the queen…hahahaha N. Pleeze…….why do they all kiss her arse???
too funny. well, if you are innocent (which you are not), you are probably thinking what the hell is she inferring here? I ask the same to you…..do you think i care whoever it was that was talking about the siver product or whatever……wow, did not even want, nor expect one to reply anyway….
I simply wanted to get the attention of those two poeople to offer them some information free- information that maybe could be very beneficial to either treatment and/ or cure for some of us (I doubt that one- but , you never know)
i couldn’t care less if anyone wrote on the gd topic myself! it serves if purpose by just being there. Now does it not??
and regardless of what one wants to think- or, how they want to percieve it…one should really take a step back- away from all this bs rhetoric and gameplaying……we have sick people. I think most , or all of us with this will die from this…..yes, we all might have some inner bitches that come out once in a while, but for the love of mankind, people from wherever your views stem from….whether it be from a sufferer’s point of view, to a moderator, to a casual reader…..to one of the overworked ghost writers amongst us, we are all human and will have to answer to something a lot higher than all of us combined one day.
okay, whew! sorry about that, but you know what I mean.
and , the thing that gets me……is why the hell we were led on in the first place to search , to look. GD it, if they did not want us to, then why did they bring in the gameboy?
Hey Jeez, you around???? come back …..duh on me, I just realized when I reread your post above that it was Greema in post 19. Could you indulge me? Like what is “my thread” titled? I swear, I have not seen any of it, nor any of that forum in a good month now. Someone did send me an email asking me if I knew that it said something about a moderator
telling Greema (I think-this was just what I read off an email) that I was not banned from the forum. BS!!!! The emailer ( i have not a clue who) said I “so you must not be banned, go try.” So, I did, just about 5 minutes ago…..and Presto! Oh, yes I am banned!
This whole damn thing is getting funnier by the damn minute, is it not?
That’s fine with me if I am banned.
But jeez, if you will (b/c you are such a sweet bitch, remember
?) can
you tell me this- Do you by what you read and posted up above, think that means a no-go for Greema to meet with me?
Just curious, very curious. This will be most interesting to a lot of sick folks……whether they do get in touch with me or not. and, my email can be found thru my friend Skytroll. Just PM her and she is free to give it out to whomever ask her…..
Thanks again ~
What do you think? Anyone wanna make a wild guess? Will they meet with me?
“okay, Bravo! But how do I explain the one my Gynesologist took from my Cervix? Yeah, she saw it! I’ have not been in the habit to put a shirt up their on my cervix each morning when I ge dressed!”
London, do you not use tampons, which are inherently fibrous?
“Come on idiots we have GOOD doctors and scientists out there, but no you lot are more interested in your fame and fortune. Do you not care for the poor suffering children with this affliction.”
This is the conflict about which I am most confused. Many good doctors are only interested in fame and fortune– popularity and money. But is not Ms. Savely charging exhorbitant amounts for visits? Is not Ms. Leitao running from one news network to the other looking for someone to publish a story on the condition she has concocted?
Who is the one most interested in fortune? Fame?
London, I don’t know if anyone is going to meet with you. Really, if you want to know what’s going on, you should solicite that information from your friend Skytroll, as I am uncomofortable facilitating interaction with that board.
thanks
okay, thanks Jeeze! I will do that- she has been out of town.
Yea, will if they don’t meet with me I bet you one thing- there will
be quite a few upset people. But time will tell. I mean, 20 minutes is
all I need, so if they can’t do that- then they must be hiding something!
F-ing A! I’m just trying to help some sick people; and what kind of person would turn down that?
I think they will meet with me….how can they not? I’ve clearly stipulated 20 minutes would suffice and I will give them some documents
and that would be it. This is a test of their character…..and also of the ones who will try to portray me as a loon …and why??????
Because I have some info to give them that might possibly help mankind?
We will all see………
In addition to that, it’s so funny to sit back and watch have of the fake
usernames and moderators self-destruct! About 5 of them were all sending screaming mean messages to this “Princess” that writes on one
of the forums. Hell, some of them even sent me PM’s asking my opinion
of how to make this girl leave the forum; to shut up!
Well, when this blatenly stupid chick began her verbal assaults on me as I was only saying “HEY, I HAVE DONE SOME HARD RESEARCH HERE AND I THINK IT MAY BENEFIT US- I’D LIKE TO GIVE……THAT WAS G-I-V-E THAT INFORMATION AWAY TO SOME PEOPLE THAT ARE ACTIG AS A SPOKESMAN FOR THE REST. PLEASE, I’M REQUESTING A 20 MINUTE MEETING TO PASS THIS INFORMATION OUT .”
and the people who did not want this to get out…..and most of those same people were anti-this princess before……..
well, now they seem to have suddently changed their tune…….I dug up the dirt-the lies she has been dishing out to us and posted it. After all, this was after the fact of her attacks on me.
Seems to me, that these same people that had been screaming for her to leave the forum a week earlier would have been clapping and cheering!
Noooo, was not the case! And, that is what is so funny. They are coming out one by one, giving the real sick people a front row view of the deception.
I love it!
Anyway, thank you again JeezeLouise!
I want to share this, in case you’ve missed it, Michael, since this “disease” carries with it the symptom of taking things out of context.
http://www.biology-online.org/biology-forum/about1958-2808.html
Roomba
New Member
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Joined: 13 Jul 2006
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PostPosted: Thu Jul 13, 2006 9:19 pm Post subject: Reply with quote
Interesting Morgellons Fiber photos here:
http://morgellonswatch.wordpress.com/
One shows what looks like a black worm feeding on a spot of blood under the skin.
Michael wrote:
“……..millions of people have similar symptoms. The “physical structures” are not unusual - millions of people have lesions and they ALL have fibers in them, as demonstrated by the photos above.” …..
So the photos of YOUR scab somehow demonstrate that ALL (millions?)other cases are just cotten fiber in a scab? That is ridiculous. Just plain silly, really. You debunkers crack me up. As if the world could hold nothing you wouldn’t understand. Or thinking that from your few little experiences, you have all the answers. Too arrogant to be taken seriously. I wonder what you’ll latch onto next (when this is confirmed as an actual condition) to make yourself feel important and ’smarter’ than everyone else. Maybe that the sun really revolves around the earth, or that the world is really flat. Or maybe you’ll just move on to denying the holocaust…lol. Keep that head buried in the sand, it’s okay.
To anyone else, check out this video, it includes an interview with a Dr. Randy Wymore, who’s researching Morgellons Disease, with sponsership from the CDC….
http://www.ktvu.com/news/9264350/detail.html
No, it just demonstrates that having fibers in a scab is not at all unusual.
Wymore is not sponsored by the CDC. He’s just sending them results of his investigation, since he wants them to validate his research.
I’ve edited your post to point to the original KTVU story, since your link went to a porn site.
well, as an australian morgellons suffererfor eight years i find your banter pathetic, but mildly ammusing. To see so many preening self righteous individuals concocting a cover for there crimes. i know exactly the mode of transmission fellows…brethren, templars……its by your handshakes, you pathetic disingenous goatfuckers…same modus operandi the world over, you believe the power of your ascribed beliefs, but its a big wheel that doesnt do a full circle, and to the keepers of these poisons (the church) i say your days are numbered and yes of course your souls are smut
Simplicity is the answer to all complicated things.
Al, you’re a fool!
I was laughing with TC, telling him I didn’t mean that above statement I made, but I didn’t finish my thoughts when I’d posted it. I was only meaning it pertaining to each individual who thinks that they have “morgellons disease”.
I’m sitting here thinking, now just “what is” a “morgellons’ sufferer”? I’m not trying to be funny. How can it be defined? I don’t have it, because there is no such thing, but by the standards believers in it ascribe to, I’ve had it all my life. By others’ ideas about its origins, I couldn’t have it, because I was born in the late 50s, back before all the technology they think has caused it. Now, the question is…why do people want to believe in it so badly? What are they deriving from it? Everyone has to have a reason for the things they do. Money is the reason for the unscrupulous ones who treat it, placing everyone at risk through not exercising prudent measures with antibiotics, as though there is no risk involved. That pisses me off too, but their reasons for believing in it, can be easily understood. If the “victims” of it don’t have mental problems at play, causing them to believe in it, what other reason would they do such a thing?
was expecting a response but not vitriol go screw urself tc
smilykins says”My autoimmune problem was in high gear, because of a cat claw puncture wound, too, with the tip of the claw broken off inside. I always have to wait for them to work themselves out.’ cat claws my goodness id just kill the cat
Oh, Al and Fred, you’re funny. Okay, Al, what exactly are you talking about in comment #59? My pets all make me real sick, Fred. They’re family, and I’m stuck putting up with it. They’re worth it, I’m tough as nails.
tall cotton u were a meth head n u call me a fool? u go figure …. im guessing ur an entered apprentice…welome to hell
You could define a Morgellons Sufferer two ways, either:
A) Someone who fits the MRF case definition (i.e. everyone).
or
B) Someone who believes that something called “Morgellons” is responsible for their illnesses.
(and maybe c - someone who believes Morgellons is a masonic conspiracy transmitted by handshakes).
If a person wants to believe in “morgellons disease” it appears to be almost a good thing, in a perverse kind of way. The die-hard believers who think they have it, most assuredly have a love/hate relationship with it. They all bitterly defend its existence in the face of all contradiction, rather than seeking the proper avenues they’ve been directed to in order to find ways to end their suffering. They absolutely can’t help it, for certain. I have no doubts, whatsoever, about that!
Deception is the very essense of what “morgellons disease” is all about. Such people as those who have become led into believing they’re infected with a non-existent pathogen, which the MRF holds the promise of discovering for them, shows just how extremely vulnerable those members of our society truly are. It’s convenient for everyone who needs to use it, and most of them may actually not even know they’re doing it.
Now, of course, I’m not saying it’s that way for everybody. I know people have many things at play surrounding this, but it can easily be used as a way of not dealing with what needs to be dealt with, on so many levels, in people’s lives. Why, just look how it helped Mary Leitao when she said her two older children got it when their father, sadly, passed away. How very sad that mother is so far gone that she couldn’t help her kids through their grieving processes. I fear she’s unable to help them with much of anything.
Imagine being so far removed from reality. These people really think a cure is going to be discovered for what they believe in. Spreading rumors of it, and getting more vulnerable persons to hop on the bandwagon makes it seem “more real” to them, somehow. Deep down, I think they know better, or they wouldn’t get angered by anyone knowing that it doesn’t exist. Of course, we know what it means to “professionals” involved with it. Consider what type of thinking is involved though, really, to believe there would ever be a pathogen discovered for this imaginary thing they believe in. It would actually mean, a cure for pretty much every disease there is!!! It’s so sad, and so wrong.
Thank you, Al. TC, “was” just exactly like you gave him the correct credit for, speaking in the past tense, someone who used meth at one time in his life. He is a free, and happy, healthy, man, other than having weakened lungs from smoking.
well i found the morgellons site after typing “hair like filament” (which is what i been pulling out of my arms for several years, along with lesions pruritis mental slowness etc) it fits my symptoms precisly, in fact, all people who have seen my arms, seen the site actually agree……..i only found the site 3 weeks ago, have been in agony and bewilderment till that time, in fant a pathology report lists “relatively inert birefringent foriegn material in the upper dermis”….and i aint got no cat………
Al, I feel for you, I truly do, but let me assure you, ya ain’t got no “morgellons disease”, neither, aside from havin’ no cat. What ya need to do, is ask your doctor what the lab report means. Also, here is some stuff to assist you, hopefully, because you DO have a lead, afterall, as to your individual problem.
Relatively inert birefringent foreign material in the upper dermis…
http://tinyurl.com/f5ajs
Inert birefringent foreign material in the upper dermis…
http://tinyurl.com/zuaro
Birefringent foreign material in the upper dermis…
http://tinyurl.com/ge8of
Al, this is a fact. There are some morgie people who have already been diagnosed with Sarcoidosis, yet they have a process going on with their thinking that causes them to be unaware of it, even though they admit they have it. I hope that you don’t have it, but, please, equip yourself with some background knowledge and adequately discuss that pathology report with your doctor.
If you come across anything by searching around in those links I tried helping with, that seem familiar to your symptoms, let me know, too, please?
Keep hanging out here and reading too. You’re funny.
thanks lets all be freinds and look 4 a commonsense approach, my dictum has been “make pain yr friend”….excersize, while painful is an active body defense, in itselfthe psychiatric implications r unreal, i “practiced stillnes” 4 2 years to just settle my head after i 1st became unwell, now its for me, whatever the dignosis, coz , as i say , after 8 yrs of precisely those symptoms, i found something, and have been drawn into an, at times, confusing realm of info, and disinfo, trust me smilykins, im a smart guy…its how i survived it all..together, im sure if we put our egos to one side can really understand the factors and vectors and body responses involved but i agree on several things you say….yes , it’s true!!!!lol water water water, zinc, selenium, aloe vera juice and artemesia(wormwood) peroxide is an excellent topical as it only works on affected tissue, i’ve had bottles literely boil and fulminate with fascinating vigour when held bottle first onto a suppurating lesion, interestingly i found aloe vera far too excruciating to bear on the lesion,lemon grass oil acts as an astringent, drying the lesion which will, after sucessive application, peel off naturaly leavinf fresh, healthy skin……affects the spleen, diatomecous earth in suspension to serrate the clusters and cleanse the bowel, magnesium for well being zinc, so important in health, not enough in food, umm thanks for thinking im funny lets hope that whatever is going on these sufferings, whether delusional and psychosematic eliciting these bizarre, but hauntingly familiar symptoms, remember, im thousands of miles from u guys, or in fact it is a stealth pathogen based on some borrellious bug, me? i just call myself “mr polyester” ( coz of the fibres u see) and look to the future, alll the best folks.. lets kep the dialogue cruising to the common good, remember, respect for human dignity is the order of the day, we have dark days to counenance, and we need prepare with grim and resolute determination for the future for our humanities sake
Amen, Al. In with the good, and out with the bad. Really, though, man, you have a major lead in that pathology report. Go with it, so you can get treatment for what’s causing it.
Remember all of you who cant believe in something so absurd the majority of the world at one
time also thought the world was flat, and if man were ment to fly he would have wings.I personally have wittnessed the stealthy critters over 17 years ago and believe!
Hi everyone. I reviewed your conversations after watching dateline tonight regarding Morgellons Disease. Let me tell everyone something, I am 29 and live a perfectly normal life now. However, when I was about 12, I started to notice these pimple like red bumpse on my inner arms. I kept trying to pop them for weeks. The doctor said to just leave them alone. They were painful and itchy. I finally was able to pop one and I pulled out a HUGE long, white, rubbery fibrous thing. It was about 4-5 inches long. I ended up cutting it off. I continued to this until I pulled all of these things out of my arms. I now have 3 scars on my left inner bicep and 2 on my right inner bicep. They are about the size of a pencil eraser. I was too embarrassed to show my mom back then. No one believes me know and I have never had that happen again and I am glad. Has anyone had anything similar?
Sounds a bit like Guinea worms (dracunculiasis) but that’s incredibly rare, or maybe just an abscess with semi-solid pus that was squeezed out in cylindrical form. Does not really sound like Morgellons, but I guess your point is that there is some weird stuff out there.
Hey, I read your response. They were not semi-solid. I had to cut them with a pair of scissors to get it out of my arm. I thought it might have been muscle fibers or something. I could pull on either end and release and the fiber would just kind of curl right back to it’s original size. Very strange.
Don’t waste your time on morgellonswatch.com. This website is being paid for by the people responsible for spreading this disease/parasite/bacteria, whatever it is.
Factual information can be found at:
http://biology-online.org/biology-forum/about1958-3324.html (note that you scroll through the posts on the biology website by using the “GoTo Page…” in the upper right hand corner.
Also see:
http://www.cdc.gov/ncidod/EID/vol9no2/02-0222.htm and here is more:
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=2768446&dopt=Abstract
I just found out it is from the tobacco hornworm! This is the insect that the parasitoid wasp does a number on!!
http://www.sciencedaily.com/releases/2004/10/041025120719.htm
I have been trying to tell you guys about the ricsettsia diseases, in which they now call all of them the Bartonellas:
http://www.sciencedaily.com/releases/2005/12/051219084711.htm
Lice Join Ticks As Possible Disease Carriers
http://www.sciencedaily.com/releases/2005/03/050328182844.htm
The sky is falling, in other words. Um-hmm. Ignore your doctors and take off, You’ll never get to the finish line that way, especially when someone else is running the race for you and doesn’t know the course.
Delusional people are coming from everywhere with all sorts of illnesses, claiming that they have this non-existant diesease. I suppose it’s largely because of their inability to accept the diagnoses that their doctors gave them.
Unfortunately, since ABC’s coverage, their forum on the topic is not too good sounding.
It’s hard to find any relevant information on any of the believer’s forums.
If I didn’t have this crap I would so NOT be researching info,and thus I would not have found your sorry butts.So,if you don’t know what your talking about shut-the -hell up.If I could have an illusion it would be that this God for- saken shit would pack its bags and crawl away.
ummm r u two{smileykins n tallcotton} paid up scientologists? ya fkn wankers
Nope, not us, Al. We’re both Christians. Why do you ask if we’re Scientologists? How the heck ya been doin’? I’ve missed ya! Have you gotten any answers about that pathology report, from your doctor?
im sore, i got fibres comin outta behind my eyes, outta my left leg, thick as a horses mane, what else? um, recent admission to psych ward, kicked my woman out in mania, um not working, sore as buggery ….id say im losin the plot…i rub my nose…thres fibres….is it demonic? cmon if ya got a clue, share it
Oh, Al. I’m so, so, sorry. Everyone’s situation is different, but when I was ill for a couple of months in 2002, I recovered with a well balanced diet, vitamins E, C, A&D, and Selenium, Goldenseal Root, and Grapeseed Extract. Vitamins E & C were the only ones I remained on after it was over, and I was back to myself again. Sublingual Vitamin B12, I highly recommend. Not all those things are safe to take for more than a few weeks. If you’d want to have a go at that, read and follow the directions on the labels of all supplements. I’d been in a severe state of dehydration, and I devoured water, and flushed all that crap and fibers out by sweating. I turned up the hot water in the shower and stood in the steam it produced, too. You may want to have a go at that. If you’re in good health, and can exercise, safely, go for it. It was miserable, getting myself all better, but so very worth it. You may want to try bathing with shampoo for seborrhea/psoriasis, because that helps cut through built up dead surface cells on the skin and will help loosen it up so everything can be expelled. Whether you would feel like you’d want to try any of this, of course, is up to you. I don’t know your skin’s situation, naturally, and by all means, do not use that shampoo, or anything, if you have any broken skin and something stings it, causing you more irritation. Apply warm wash cloths to your eyes, regularly, and wash them gently with no more tears baby shampoo. Al, hang in there. If you’re on any medication, and would be interested in taking the dietary supplements that I had taken when I got better, you must check to see if there are any interactions before taking anything. You must eat from all the basic food groups. If you’re living alone, that might present a bit of a challenge. I’m so sorry, Al.
Uh, Al, at the time, since I’d never experienced anything like what I was going through, before, it almost seemed rather demonic, I suppose. It was winning, for sure, and dying would have been my easier option. I got too close, and wasn’t ready to go yet, so I fought back and made it. Two months, I know, seems like a short time. It wasn’t. Not with what I was going through, day & night, non-stop. I developed kidney stones from the dehydration, and passed a whole lot of them. That was the most excruciating thing of all. It was all like a nightmare. All of it was. When I fought back, it was over.
so you actually were suffering somethind then, by your last posts…but you say we’re delusional, what gives?
Al, I have ALWAYS been honest about what I’d gone through, back in 2002, since my arrival on Michael’ blog, and a summary is in TC’s & my blog. I couldn’t be forthcoming when I posted on morgie message boards, because it was practically forbidden to say anything even hinting at reality. I’d made those above comments when you’d shown up here two weeks ago. I was very concerned about you, and I’m still concerned.
Whether you’ve ever been told you have it, I have no idea, but there doesn’t appear to be any one underlying cause for DOP, although it seems that it probably has to do with the fundamental aspects of brain chemistry. The syndrome is often classified into three types according to the underlying condition:
1. Primary Psychotic Delusional Parasitosis — DOP is the sole psychological disturbance:
* patients otherwise behave normally * reason in a rational manner
2. Secondary Functional Delusional Parasitosis — an underlying psychiatric condition, including:
* schizophrenia * paranoia * depression * anxiety disorders * obsessional states
3. Secondary Organic Delusional Parasitosis — there’s an underlying physical illness present,including:
* drug abuse * hypothyroidism * cancer * cerebrovascular disease * tuberculosis * neurologic disorders * vitamin B12 deficiency * diabetes mellitus
TC & I’d both had the number 3 secondary type, yet we’d had completley different underlying causes for thinking that we’d been mysteriously parasitized with something dreadful. All people have different reasons, because people are individuals. Nobody is the same, and nobody is suffering from one singular thing called “morgellons disease”. Mary Leitao made that up, and it is a dangerous substitute that’s appealed to a lot of people as a perfect replacement for something else.
Nobody could have told TC or me that what we saw was not all real back then. Until it ends, it is IMPOSSIBLE to realize it, and hard as hell to accept that one’s own mind could do such a thing. But somehow, despite it all, we remained grounded, somewhat, nevertheless. People are seriously way off into ridiculous stuff with all these sci-fi/pseudoscience theories. It’s sort of understandable how they’re misled into it, though.
If simple logic is impossible to apply to what’s going on, and the blame has to be placed somewhere, “morgellons disease” is the perfect answer for many people, rather than the truth, and they really just can’t seem to help it. What many people really have occurring, has them on a path of despair & destruction and it’s being fueled by some real sickos that are in positions to know better.
http://www.ahealthyme.com/topic/parasitosis
The article in that above link is identical, concerning people calling in, and writing, behaving just like people who have become possessed with the notion they have “morgellons disease”.
Al, I don’t have any idea, just from what you’ve said here, but do you think that your skin condition is possibly occupational related to carpentry or horticulture? I would look into it, at least, but please know that I am not “diagnosing” like some mistaken people have confused me as doing. You need to go to have a physical and have some routine tests performed, if you haven’t, and get yourself treated properly.
People who are more likely to get sarcoidosis include:
* Health care workers
* Nonsmokers
* Elementary and secondary school teachers
* People exposed to agricultural dust, insecticides, pesticides, or mold
* Firefighters
http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sarc_all.html
Sporotrichosis, is another thought, since it can be contracted through the resin in sawdust, or through horticulture.
http://www.emedicine.com/med/topic2161.htm
Anybody who wants to start up with me “causing confusion”, please, check yourself. I’m just addressing my buddy, Al. Take care.
Work-related skin diseases account for approximately 50 percent of occupational illnesses and are responsible for an estimated 25 percent of all lost workdays. These dermatoses are often underreported because their association with the workplace is not recognized.
Occupational Skin Disease:
http://www.aafp.org/afp/20020915/1025.html
This is a very good site to check specific jobs w/ related hazardous exposures & symptoms:
http://hazmap.nlm.nih.gov/index.html
Hey I saw the report on abc in houston about morgellons and zi was just wondering if it was accurate or just another attention grabber for a selected audience.
I’m very sad to see that there are more people online who wish to assume that this disease is false. It is true that it is “unsolved” a lot of diseases remain that way until more people come forward. When something very strange and very alien-like appears like has happened with the sufferers of this still unofficially diagnosed disease it is common for doctors to scratch their heads and wonder what it is. It is common for doctors to turn patients away and not do skin graphs and not treat them, because they don’t know what they are seeing and do not know how to treat it. Trust me I have been there with my daughter. Unfortunately for the sufferers, their pain and feelings are real, albeit there may be people with mental disorders that immediately assume they have some disease they read about online just because they have dry itchy skin, but there are also the real sufferers.
I am not surprised to find a forum bent on proving how this disease is false by people who are not even in the Medical field, who do not even know anyone in their real lives who suffer from this. How terrible for the sufferers that so many fake sufferers exist out there and make it difficult for any doctor to really listen to them. One person cries wolf and is proven mental, and the whole of those really inflicted suffer the consequences.
I wish you all would think of how you impact the world by your comments, and how you like many others, including doctors and psychologists delay the real truth from coming out by arguing how false it is. How long did the humans of our world believe our planet was flat before it was finally proven it was round?
For those who read these posts who have experienced this terrible “unknown” thing happening in your skin, know that there are doctors out there that will take you seriously and who have seen real patients suffering and who do need funding to investigate further and who are trying to find support to do so, and for the rest of you who contribute to the ignorance of this terrible affliction may god bless you that you never ever have to go through it.
Verysad.
Dear Verysad,
No one “wants” to assume that this “disease” is not real. It would be easier for everyone if it was real, with a real name and an identifiable pathogen.
However, when looking at the facts, things that are measurable, things that are tangible, and hold the “symptoms” and “evidence” to scrutiny, as all good science should, it doesn’t hold up to be a new, emerging “disease.” That’s how science works, it’s an methodology of skepticism, which is what keeps us understanding the world is round, not flat, the earth goes around the sun, not vice versa, that he flu is caused by a virus, and that “Morgellons” is not a distinct medical condition.
When you see people “debunking” something, that may be a confusing term to some people. “Debunking” HIV/AIDS included informing people that you can’t get it from toilet seats or sharing a water fountain. No one’s out to get you, we have beter things to do. People are out to discuss the contraversy and illuminate what holds up to scrutiny. Photos of Morgellons do not.
Does this mean you’re crazy? Or on drugs? No. Your symptoms are probably real (unless you are on drugs, then, that’s another story). But, to what you are attributing your symptoms is the point of contention.
Hope this is helpful.
Sarah
Oh, Michael, I don’t realize how I missed that the above photos were from a zit on your back. It takes a humble person to publish their bacne, woudln’t you agree?
Verysad, you’ve made some strong assumptions, reminding me of a comment I viewed elsewhere. In reference to the particular comment you’ve drawn to my mind, a person had said that due to drug users and actual mental patients, thinking that they have “morgellons disease”, that they had gotten labeled by a doctor as “crazy” for thinking they have this particular ailment.
From their general tone, that person had been very presumptuous, accusatory, very bitter, and suspicious. Yet, upon closing, as is so often the case, they turned right around and blessed me and wished me well. I think it is imperative to not be at conflict with our true emotions. When negative feelings are expressed, there is absolutely nothing wrong with owning them, and one should never feel guilty about it. Onlookers have no mistake about it when it’s there, and can just as easily realize that any well wishing upon closing is not a geniune expression. Please consider this thought, and I am sorry that you are very sad, and have been unable to find help for your daughter.
smikleykins oh queen of ignorance - your quote imitates your writing style or visa versa
“You’ve made some strong assumptions, reminding me of a comment i viewed elsewhere,…
From their general tone, that person had been very presumptuous, accusatory, very bitter, and suspicious. Yet, upon closing, as is so often the case, they turned right around and blessed me and wished me well.”
“… realize that any well wishing upon closing is not a geniune expression. Please consider this thought, and I am sorry that you are very sad, and have been unable to find help for your daughter”
you start your post accusing verysad of having strong assumptions and then place her in a category with your comment drawn to mind.
you end your post in a very sweet tone.
smileykins, you are a contradictory prick with a self professed delusional history.
if you really we want to help, why not just refer her and others to the cdc?
well, you will find turn around in this post.
i start disgusted with your ignorance and i end disgusted with your ingorance.
Excuse me,Ivankipling. (And they say, “chivalry is dead”?) I don’t like not understanding anyone, or being misunderstood. There are a lot of miscommunications on this topic of “morgellons disease”. I was referring to VerySad’s statements reminding me of something very similar that I’d recently read. In particular:
It is very kind of you to rise to this person’s defense. I assume that she just hasn’t read much of this blog, and hope that she has by now. For that matter, I hope you are reading and learning, too. Hopefully, she will share more about her daughter with us. I’m sorry, but I don’t think that doctors are as confused as patients who believe in “morgellons disease” are, and certainly if someone needs a skin graft, that would not be overlooked. I also don’t understand this notion, that VerySad stated, concerning “fake sufferers” making anything difficult on anyone else, any more than the comment from somebody else that I’d made reference to. The similarity lies in that other person’s having blamed “drug users and actual mental patients” (as they’d put it), for being at fault for their having received a label of what they’d called, “crazy”. If you can enlighten me on this matter of blaming others (as these two have), I think we would all definitely stand to benefit. I just don’t grasp what VerySad meant, at all, and if guilt was what motivated her into deciding that it was necessary to apologize for all that she’d said, by ending with:
I really don’t understand how a person can have such a conflict within themselves. Do you not think that sounds odd?
Simple freedom of speech in discussing a controversial issue that’s helping so much to further interfere with people following the advice of their doctors, is not “impacting the world”, or “delaying the real truth from coming out”. I have said, repeatedly, that someone else needs to go to doctor appointments to advocate for patients who have communciation problems with their doctors.
Lastly, you said:
Ivankipling, I would like to hear more on your opinion of this, so we can discuss where you’re coming from. How am I “contradictory”? I have no secrets, and have bared it all about being ill for two months, four years ago. I know that I can’t help VerySad, or anyone, who is deep under the belief of “morgellons disease”. Her statements were confusing to me, though, and she can clarify them if she wishes.
If people want to be understood, we all have to let down the walls that block communication. When someone goes so far as to make a statement, they ought not to mind having it addressed with a question. If something is important enough to mention, it sure isn’t a secret, now, is it?
Ivan, with all due respect, let me make it clear to you that I’m not used to the communication difficulties. Maybe I’m guilty for applying the wrong method, but I wasn’t having any conflict in my sincere desire to understand VerySad’s reasons for the things she’d said, or in suggesting considering trying to bring her emotions into balance. I didn’t mean to place her into a category, as you’ve said I did, but I don’t think you’re appreciating the magnitude of the all the communication failures involved here. I tried for a long time, politely, too, to get answers about what is going on with people who are convinced of the existence of “morgellons disease”. Since participating on this blog, people have been coming here, mad, and we’ve yet to accomplish any meaningful exchanges of words to hear what’s got them convinced. Okay, so I tried making statements in response to VerySad’s comments, that I can’t understand, rather than posing questions, so the opportunity was afforded to her to bring clarity to the matter. Due to preconditioning, I know that asking questions is off limits. In stating I was sorry she is ‘very sad’, and unable to find help for her daughter, I was not being disingenuous.
I don’t know if this is what I have but it fits the symptoms you give. Please tell me how I could have gotten this conditionn sine I seldom leave my home. Except for Drs. appointments, I have not left my home in 15 years.
I am so frightened about this. When I described my syptoms to my doctor, he sent me straight to a psychaitrist. I have seen worms crawling out of my skin, NO ONE will believe me!!! It is so frustrating. The more I try to convince them, the crazier I seem to them. small ones and larger, crecent shaped onds. I get bites that feel for all the world that someone stuck me with a needle, and itching is torture. I sit around with tweezers and tissues so I can dig into my skin to find worms. Sometimes I pull out something that looks like a hair, but much much much finer.
Please help me. This kind of life is torture and I don’t want any more of it!!!!!!!!!!
Please Please Please tell me what I can do. Is it curable? Is there a specific treatment for it?
Sometimes I wonder about my sanity. For instance, People tell me I slur my words. I don’t hear it. People have told me I said this or that, and I have no memory of it.
I know I have never heard of Morgellons disease. Oh God please help me!!!!!!!!!!
IMHO:
Some of these ‘alleged’ Morgellons suffers do instead more than likely have an Actinomyces like infection and it’s often very hard to diagnose and pathologize.
I’m a confirmed suffer of Actinomycosis. The disease takes on many variations and forms.
Over the last 2 years it’s has now spread to my cervio-facial area & my scalp tissue. I now constantly suffer from excruciating ‘creepy crawly’& burning like sensations as it oozes through the pours of my skin.. It also has some filaments inside the granuolous particles & causes skin lesions.
Ian Julian New Zealand
On November 23rd, in comment #100 Juanita Pellon Says:
Question:
I’m sorry, I just saw your comments today, on December 11th. If you are still around Juanita:
Answer:
Nobody over the internet can tell you how you have gotten anything!! Think about that. Nobody, on here, anywhere, knows you. Ask your doctor!! Look at your personal and family medical history; think of when your symptoms began, what they are, if you have come into contact with anything that exacerbates them; take into consideration any medications you’re on, prescription, as well as off the shelf, and any dietary supplements; and, trust your doctor. Based on what you’ve said, it sounds like there is a strong possibility that it is related to whatever your reason is for not leaving your home in 15 years, except for doctor appointments, doesn’t it?
Juanita, you went on to describe actually injuring yourself to probe for worms, ending with:
Have you seriously come here seeking help? Are you homebound due to a mental or physical disability? Are you able to realize that you come across being in a state of crisis? You have excellent reason to wonder, like you’d said, about your sanity, but, surely to God, upon telling the psychiatrist what is happening to you, that has not been the end of your treatment with them, because there are specific medications that will stop what you have described.
Stay with the same doctors, and work with them, and you’ll get the help you’re desperately pleading for. Tell them *everything*, including that other people are concerned about your slurring of words, and that you don’t notice it, and that you are saying things that you aren’t able to recall. You may need to have some brain imaging studies, so hold nothing back from them, and follow their sound advice. There is an underlying cause for the problems you described, but it is not something called, “morgellons disease”, and I can promise you that.
To Ian Julian, a confirmed sufferer of Actinomycosis. I’m sorry that you have that, and trust that you are cooperating with your doctor to keep treating it.
Good luck to you both.
Juanita,
You must quit scratching and picking at your skin. Scratching will intensify the itching, causing a never ending cycle. Picking at the skin quickly develops into a nervous habit, and it doesn’t stop when you have damaged the skin and underlying tissues. As you work to fix the damage you cause, you develop Body Dismorphic Disease. Nothing stops until you stop it, and you’ve got to stop it NOW!
There’s no such thing as Morgellons Disease, and we have come here to inform people that there is no evidence that the disease exists. It’s likely that you have a problem in your brain chemistry or with your central nervous system, but that can only be determined by a doctor. You need to work with your GP and with your Psychiatrist. You need to take whatever medication they prescribe.
It doesn’t help for you to live in fear. This condition probably feeds on fear and anxiety. If you’re able, and it’s safe, get out and do some things to get your mind off of yourself. Smell the flowers. Look at the clouds. Take a walk, even if it’s only in your own yard. You want results to be different than what they’ve been, so you must do things differently.
I suggest you quit using your computer in an attempt to identify your medical problems. Keep your appointments and trust your doctors. Good Luck with your healing, and don’t forget. Do not scratch or pick at your skin.
Tall Cotton
Ian,
Why do you believe that you have actinomycosis? Did a doctor give you that diagnosis? People that believe they have Morgellons are suffering from a variety of skin diseases and associated problems. Of course, none of them have Morgellons. That disease simply does not exist.
If you don’t mind my asking, do you have other symptoms besides the crawling, burning, sensations, and the lesions that are draining sticky fluid and hyphae-like fibers? When and how did your infection begin, and how long ago has that been? Are you taking medication, and are you doing anything to exacerbate your condition, like picking and scratching?
I’m sorry for all the questions. But the more we learn, the more we are able to help others like you. Thanks and good luck.
Tall Cotton
“besides the crawling, burning, sensations, and the lesions that are draining sticky fluid and hyphae-like fibers?”
anything else bothering you?
All you morgellons disease doubters and cynics go and have a look at the firs captured images of a living organism moving that is the cause of this disease. You are welcome to contact me if you want to hear about my seven-year suffering with this disease. I live in London and did not even know there was a disease listed as morgellons until 2006, or that it was the same as the disease I had been suffering from for the last seven-years documented.
All-comers doubters welcome to view on youtube at
youtube.com/watch?v=g1MPArQLsLI
Also
youtube.com/watch?v=NKW0bCcfvPE
Something moving. Is that your proof? The video is so out of focus, I’m not even sure if I was looking at the right thing. I’d be embarassed to show that video to anyone, much less use it as evidence of anything.
Hi, again, Andy. Could you please explain what body part your viewers are seeing in your videos? I’m assuming it is your face, but it could be an arm, or a leg, for all I know. Also, it would help, immensely, for you to provide everyone with a descriptive interpretation of the event, from start to finish. Thank you.
I want to know if i have morgellons disease.I feel something crawling from head to tose like animals in my skin.I went to all kinds of doctors,yet they say im dilusional.Its been going on for a year,i’ve quit my job,because of imbarrasement.People itch a lot when im near them,they act like if something is crawling on them.IM going crazy i get suicide thoughts like if its the only way to get rid of “IT”.Im in the bus to go to work somebody next to me complaints of a bite screams saying something had bit him.It was a daily routine for me,now im a prisoner of my own home.Please someone help!!
Roy,
The people who think they have Morgellons Disease are mistaken. There is no Morgellons Disease. They have a variety of physical disorders. Please follow your doctor’s advice. With suicidal thoughts you need to talk with a counsellor. They can help you a lot.
Tall Cotton
Roy, I’m so sorry you’re going through this. Those sensations, and thoughts, can be stopped, and you can have your life back!!! You sound like you have real medical conditions but, perhaps, you’ve yet to develop the essential bond of remaining with one doctor and working as a team? Doctors want their patients to improve, and I promise you that you don’t have anything that’s called “morgellons diease”.
You need to talk to someone NOW. There are maps on these pages to click onto your home state, and numbers to call to speak with a caring person who can help you. Call and allow them to listen to what’s been going on. Please keep in touch with us, and let us know more. Things will get better. They can, really.
http://mentalhealth.samhsa.gov/suicideprevention/
http://mentalhealth.samhsa.gov/databases/
1-800-SUICIDE (800-784-2433) - Nationwide crisis hotline
I see these, i am not psychotic, i am a nurse scientist looking for answers too. There is a relationship to protien crystal development by some bacteria, they also have flagellates for their motility.
Spirochetes have various forms as is know accepted in scientific community. What can these forms cause, we don’t know yet. We must look at untreated tertiary syphillis too as it is also caused by spirochetes with flagellae. Lesions in late syph, neuro changes, arthritic changes. Spirochetes in open lesions. Could there be colonies forming plaque like “bunches”. Hence fibers? Some food for thought maybe? We will continue the research. Aids and lyme patients were considered nuts, “it’s all in their heads”, at the beginning, now look where we are!
You’re very mixed up. Are you Trish Springstead?
NEXT - WHAT HAS HELPED ME TO SLEEP & WORK?
ITEMS COSTING ME $3, $5, $10, $20 & $25
FUZZY SKIN PARASITE DELIVERED TO MY DOOR LIKE A PIZZA ORDER FILLED!!
Routines That Have Helped A 48 Year Old To Live (WORK, WALK, SLEEP &
SMILE) The Wool Strand Parasite Changes A Life Forever, NOW HABITS.
THOSE FIBERS IN MY SKIN WERE LIKE GRASS BLADES
I HAVE READ THE PARENT’S SUFFERING WITH CHILDREN. I HAVE FOUND VIDEOS.
THOUSANDS OF FAMILIES SUFFERING. I HAVE READ WHOLE FAMILIES ARE BEING
HIT WITH THIS FIBER DISEASE. I HAD READ PEOPLE ARE DIEING AND ONE MAN
COMMITTED SUICIDE. I PERSONALLY WROTE ONE PARENT.
GO TO: http://WWW.POISONTORTUREDINUSA.COM
I HAVE BEEN POISONED WITH THAT PARASITE. YES, THAT WATER TENTACLE SPREADING PARASITE.
IT WAS DELIVERED TO MY APARTMENT & PLACED IN SOMETHING I DRANK.
SOME ANSWERS FOR A FEW PEOPLE POISONED. IT IS NO SECRET, POISON IS MAKING IT’S WAY TO
THE AMERICAN PEOPLE. LIVES ARE DESTROYED. THERE IS SOME HOPE.
http://WWW.POISONTORTUREDINUSA.COM. A SURVIVOR OF THIS POISON BEING DISTRIBUTED.
My best friend has this disease and its stressing her out. Makes her extremely irritated the fact that she feels the tingling sensation when they “crawl” out of her neck. She also found them on the toilet paper she wiped herself with. The lab is presently examining the ones found on the paper. What are these narly creatures? We are wondering if they are “eating” her insides. Scary. she finds black and white ones. what determines the color of these narly creatures? yuck!
When did your best friend first begin having thoughts like that? Are you, mutually, her best friend as well, and feel that you’re supplying her some form of support by going along with it? Are you, honestly, being real about being scared, not of her change in behavior, but scared that whatever benign substances she’s developed such incorrect thoughts about is physically harming her? I’m not kidding, here.
One theory:
What determines the color is whatever they attach themselves to. They can morph their shape and color to blend in with any substance; on the body they mimic skin, on the scalp they mimic hair and take on a worm like shape. I even extracted one from under the skin, in an area that bleeds quite a bit and it appeared blood red, shaped very irregularly, like a seahorse or a demodex mite.
Another theory:
They parasitize materials and use them to their advantage. I believe they even get in cigarette ashes and use them to blow on the wind. Many times I’ve pulled one off of me and observed as a smaller mite jumped off of what I initially believed to be the parasite’s “body.”
Out on a limb:
It can interact with unseen energies or magnetism, it uses the aether as a sort of map and medium. Maybe psychosomatic in part, or thereby affected.
Personal: My eye!! Ahhhhh!! Urrgh! Rrrrrrr… I’m pretty messed up after three months of this stuff. They’re barraging my eyes incessantly, my vision is declining, my left ear is shut almost completely, my head feels…rrrRRR…it’s all very distracting and very unpleasant. Is there any effective way to treat symptoms?
Check out “a parasite sufferer’s diary” if you haven’t, “Strongylus Monospinigerum” looks alot like Morgellons, and has some interesting information. The site upon which it is located might’ve doctored the paper up for commercial purposes, but I think the info itself is valuable.
I have seen red, blue, white, I have watched them move, they look like strands of hair. They come out of my skin when I put peroxide on them and very hot water. I thought I was insane. Anything a drop of blood gets in or on I find these things miving towards it and feeding on it. And they aren’t just in open sores or scabs of any kind I have watched them burrow into and come out of my skin.
And yes my eyes, these things get into the corners of my eyes ruthless little bastards. Any open hole of any kind, (earrings,etc.) I find them in, I also have located something of a much larger sort living deeper in my tissue, they are nearly impossible to get out, I have had to use a hot compress and pull them out with tweezers once on the surface. They were the size of my pinky nail and had hair on them. If you pour peroxide on them you can hear them “sizzle” and come out of certain “pockets” in the crooks of my arms and on my hands and feet. I believe a hot tub or sauna will drive them out. i am going to try. It;s driving me insane(r).
To all afflicted, try to get a hold of a book called The Fungus Link by Doug Kaufman, it may help. The affliction sounds very parasitic and could be fungus related, and fungus related illnesses are becoming epidemic in this country as a result of the declining quality of our food supply, among other things.
To those complete knuckleheads who seem to be denying that this condition exists as defined, you are either in a state of denial or just plain stupid. There is so much indisputable research on the nature of this affliction, including data explaining the bio-makeup of the strands, which several labs have confirmed are not identifiable, even from the FBI lab, which compared them to every known fiber.
Parasites that crawl under the skin are an everyday occurence in some third world countries. Ecto parasites and similiar fungus or parasitic conditions are relativlely common, and this could just be a new unknown one. Athletes foot, for example, can be devasting to SOME PEOPLE, not all. The ringworm that causes it can be worse for people with immune deficiencies, and some of the excruciating rashes that follow all over the body are the result of the myco-toxins being spread by rubbing, itching, etc. But I suppose Athletes Foot does not exist!!! (For all the lunkheads like tallcotton, when Atheltes Foot first hit the scene, there were plenty of ‘experts’ who thought it did not exist, as well as a host of other bacterial, viral, fungal, and parasitic diseases throughout medical history that were denied at first, including cholera!!!!…)
Interestingly enough, malaria and schistomiasis are the top parasitic infection concerns worldwide (as far as public health and economic impact), and the symptoms are strikingly similiar to morgellons, both physically (rashes, lesions, etc.) and mentally (brain fog, headaches, fatigue)…
For those suffering, dont believe blogging boneheads, I think its pretty safe to say that scientists, lab researchers and clinicians know a little more than these self righteous know-it-alls. Go to http://www.morgellons.org and see if you can get some help. Please dont tell people what exists or doesnt exist unless you are a certified or licensed professional who knows what you are talking about and can back it up with extensive lab research and technical data!!!
For those of you are suffering because you are truly psychotic, good luck, thats a little tougher…
http://www.morgellons.com
There has been no real analysis of the fibers that showed them to be anything consistent. One lab tried, but could not get the fiber to melt in their FTIR. That was about he extent of it. All tests have given conflicting results - as you would expect if it were just random lint and debris.
People are sick, however. Painful symptoms are real painful symptoms, even if the fibers have nothing to do with them. However there are a wide range of conditions that can explain those symptoms, and people need to be treated on an individual basis.
I wonder why it is that people have such a hard time getting to the root of an issue. It’s not psychiatric…it’s something…and it doesn’t have to be a disease…yet it’s something. Maybe it’s the type of immune system, or another disease, or a difference in the type of skin (that allows it to embed and or create particles). Instead of everybody labeling this already…why not just say..lots of folk are complaining about blah blah…let’s start methodically collecting the data and see if any conclusions can be drawn. How hard is that…every doctor submits the tissue and accompanying symptoms to the testing lab …each is labeled…each is tested…and then it’s taken from there re: similarities, disparities, etc. The testing over in California is small scale - there is no reason the cdc can’t have this phenomena centrally tested with samples from all over the country. And, let’s say it is fuzz in a scab…what is it about some people’s skin that allows itself to capture/restructure/expel particles, while other people’s skin just doesn’t bother being affected at all? Scientific inquiry is fascinating! People could look at this as a mystery and embrace the challenge. And all this judgement of people being nuts? Where is that coming from? Let’s say it is in the brain…What is going on in the brain that makes one person’s skin crawl and another’s not? Come on now…We can do this.
This is becoming like a theoretical debate…instead of proving each other wrong..when are we going to start proving each other right?
I know of a couple of people with this disease. One of them denies it the othe is covered with sores. They have gutted their house, one has shaved head. The point is is that I think this is a real…god only knows what! I do not doubt that they are suffering. Research must be funded. Lots of questions too few answers.
Elise, you raise very good points. That’s just the kind of study that should have been done in order to justify the CDC investigation. It would not take much, just a published study of say ten patients.
Yet this was not done, and instead the Morgellons Research Foundation instead forced the CDC to do this investigation by pure political pressure. There is no science behind it.
The basic problem is that there is no good s