Sep 07 2006
Controversial Diseases
Morgellons is sometimes described as a “Controversial Disease”. I was wondering what other controversial diseases there are, so I did a little Googling to find a few.
I was quite surprised when something that turned up was chronic Whiplash - yes, that bad neck you get when involved in a car accident, now an $18 billion industry. Surprisingly some studies show that demolition derby drivers do not ever suffer from chronic whiplash. In Lithuania (where car insurance is rare) chronic whiplash is unknown. Chiropractors dispute these findings.
Some symptoms of whiplash: headache, dizziness, abnormal sensations such as burning or prickling (paresthesias), or shoulder or back pain. In addition, some people experience cognitive, somatic, or psychological conditions such as memory loss, concentration impairment, nervousness/irritability, sleep disturbances, fatigue, or depression.
Also controversial: Multiple Chemical Sensitivities. Factors of compensation and legalities play a factor here too:
“Whatever its physiologic, toxic or psychiatric origins are, MCS has become the focus for great efforts to support a particular set of beliefs about its mechanism and manifestations. MCS is discussed in an array of patient support groups and clinics, by clinicians, hotlines and lawyers, in journals and other media, and on World Wide Web sites. It has become the subject of disability laws and settlements”
Some Symptoms of MCS: Headache, Fatigue, Dizziness, Nausea, Irritability, Confusion, Difficulty concentrating, Memory problems, Muscle pain and/or stiffness, Skin rash or hives, Mood changes.
Here’s another: premenstrual dysphoric disorder, (PMMD), which was listed as treatable by Prozac, but later, in Europe, described as “an invented illness and a strong example of the medicalisation of ordinary life.”. There is some suggestion that PMDD has been “marketed” by drug companies. Again, money plays a strong role in defining the disease.
Some PMMD Symtoms: irritability, nervousness, difficulty in concentrating, lethargy, depression, severe fatigue, confusion, paranoia, emotional hypersensitivity, crying spells, moodiness, sleep disturbances, acne, neurodermatitis (skin inflammation with itching), other skin disorders, including cold sores, numbness, prickling, tingling, or heightened sensitivity of arms and/or legs, and a whole load more.
I think the situation is too complex to draw any simple parallels between these kinds of conditions and “Morgellons”, but there are obvious aspects here and there - notably the smorgasboard of symptoms. Read the articles above. It’s fascinating stuff.
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I would reckon that PMMD is part of a stress-diathesis model. People with a predisposition to neurdermatisis, emotional hypersensitivity, fatigue, confusion, paranoia, are pushed into PMMD from the change in hormones and accompanying symptoms that often accompany menstruation.
The reviews of the whiplash book, and the excerpt are fascinating:
http://www.mqup.mcgill.ca/book.php?bookid=1497
I had a lot of whiplash, in the past. That’s how I developed bone spurs that almost paralyzed me, I used to get PMMD, once in a while, and I’d see actor Gary Busey looking back at me when I’d look in the mirror. I look nothing like him. My daughter occasionally gets it too, and she swears she looks just like Robert DeNiro. No, she doesn’t. My mom laughed at us, until she later confessed she used to do the same. She’d thought she looked like Morley Safer, from CBS. Hahahahaha!!!
Hmm, well, after reading about whiplash, I’ve got to say that I didn’t malinger, wear a cervical collar, or anything like that, or use it to try to obtain a lawsuit settlement. I continued working after sustaining each injury, adding further insult to it, over the course of close to 20 years. Then, things came to a screeching halt over a 3 day period. So, of course, all the strenuous stuff I did while I was in pain all those years, added onto the development of osteophytes/spondylosis/degenerative disk disease, with spinal cord and nerve root compressions. It’s weird, to me, when people feign illness, or injury. They should be thankful, and appreciative, of being in as good a shape as they are, and get all out of life that they can, I think.
Michael - “I think I love”!!!! LOL! Been waiting for this one!!
I have been saying for 6 years I have “Multiple Chemical Sensitivity” BUT no I was wrong …. NOT!!!
I haven’t read all the links yet, but can’t wait, coz I got some real funny stuff to share, a bit of goss so to speak. Nothing sinister to do with Morgellons, just about me and my past experiences which are relevant on this topic.
I just got so excitted after a quick read I had to reply. Well done.
By the way - I know you guys are either in bed, or someone is doing the “grave yard shift” - so don’t feel as though you have to reply ok?
If I need some support, I will let you know in any posts. Ta.
WOW!! PMMD - can I sign up to be a volunteer for further research!!!
Amazing stuff - do you know this is a medical break through - in my eyes anyway.
You know I can remember hearing stories from others - what it must have been like for females many years ago. Things like, not being able to wash your hair during mensturation, can’t think of any others at the moment, but I know it was a lot of “old wives” tales type stuff, but it must have been horrific for some woman, with no one to talk to or turn.
MCS - Multiply Chemical Sensitivity - Crikey!!! very very interesting. Put on the volunteer list for this one to please!!
How Is MCS Diagnosed?
There are no tests to diagnose MCS. A doctor generally bases his or her diagnosis on the person’s description of symptoms, usually following a complete medical history and physical examination. The doctor may use diagnostic tests, such as X-rays and blood tests, to rule out true allergies and other physical or mental health disorders as the cause of the symptoms.
************************
Medical History and PHYSICAL Examination - Oh yes how important. How many doctors are very guilty of this one? Why is this so?
During my research I came across an interesting document whilst reading on the Medical Journal Of Australia website. This particular report talked about the lack of the “hands on” approach - physical examination. Michael you may be able to find this - your computer skills are top notch.
Physical examinations seem to have become a thing of the past with a lot of doctors within my area, not only myself, but of course others. I have tried to figure this one out.
Is time the issue - 15 minute appt/30 minute appt?
Still is enough time for the physical examination. I do make a habit of pre arranging a double appointment prior to my doctor visits. Far too much diagnosing from across the desk.
Off Topic - Just a little something to share:
When I visited the lady doctor the other day, I said to her, - “congratulations - I am pleased to see you do not have a computer on your desk, and you use a pen and hand write the prescriptions, keep it that way please”!! She replied saying - “At least I can guarantee both will work for me”!!!
Premenstrual dysphoric disorder (PMMD) - Back in 1992 I travelled overseas, spent 3 months back in the UK. I actually went back to my old home town and visited the doctors surgery I visited when I was a kid. Calm down - I was not doctor shopping!! I had seen a gynaecologist at the Women’s Health Clinic in Melbourne (public/medicare)for my check up. I had started with a couple of unusual symptoms, one of them being hyperpigmentation on my face, my skin was perfect (babies bum stuff), but this damn pigmentation was awful. The folk I worked with at the time thought I was pregnant because I had the “mask” of pregnancy.
Anyway on with the story - this doctor suggested that when I go on my overseas trip visit a doctor and get a prescription for Dianne 35ED, I think it was called, contraceptive pill, because it was so much cheaper to buy in the UK. At that time “Dianne” had not been on the market that long in Aust. so it was very expensive. This is exactly what I did, BUT the really good thing for me was that I got it FREE!!!! In the UK the Contraceptive Pill was free, purely because it was recognised as a “necessity”. Also Dental was covered by the NHS when I lived in the UK. Not sure if this is still in place in the UK. I tried to have a read about it on Wikipedia but it was too heavy a read for me, boring!!
Talking about Dental - that was also free in New Zealand when I was at school. Sounds great hey?? - NOT!! we used to get pulled from the class - not sure whether it was alphabetical, or maybe “who did they want to torture that day” (I don’t like to say it too loud, but I often think it was because I was English)!!! What a friggin nightmare…. they did not use anaethestic!!! The drill sound…the pressure on my tooth, I can still remember - I was 6 and 7, how awful hey. BUT on the flip side, when I was back in NZ in 1985 I had to go to the Dental Hospital in Dunedin and have a wisdom tooth out, which had grown into my cheek!!! I was attended to by a really nice young male Dental Student. He did a fantastic job, and it cost me $10!!!!!
Been thinking a little more about PMMD and about cross-cultural studies. Women in China do not report menstrual distress (cramping, bloating, emotional distress). Now I’m leaning toward PMMD being a Western construct, but then again, I’ve never seen Robert DeNiro in the mirror (yeegads!).
These are all contraversial topics. Chronic Fatigue Syndrome, I found to my surprise, is still a contraversial disease.
http://www.kidshealth.org/parent/system/ill/cfs.html
The more I read about it, the more I read it has similarities with “Morgellons.” For example, it has no known cause, it is only a list of symptoms with few being common in all cases.
Professor Michael,
Can I add PMMD and MSC to my degree from the Universaty of Morgellons Watch? Think I “aced” these courses, please check for me, thank Professor.
LOLOLOLOLOL
Okay, I’ll play the devil’s advocate this time. Are all these illnesses, including Morgellons, the same psychosomatic illness, with the same, or similar set of symptoms and causes?
The illness formerly known as neurasthenia?
The “Multiple Chemical Sensitivity” or “Environmental Illness” (EI) was a big industry in the 1990s. There are camps in New Mexico where middle-aged hysterical women go to die from all their sensitivities.
All the victims swear it is real, but medical tests reveal nothing unusual. The “healing” industry created a New Age belief system to go with it. I remember a few women got out by taking psychotropic meds. One man took his wife to Mexico for ECT (electro convulsive therapy). They shocked the sensitivity right out of her.
I suspect Morgellons will go away as a fad when a new trendy illness comes along.
Chronic fatigue syndrome? Sure, some case are due to Epstein barr virus, but not all. Psychosomatic?
First recorded death, in the UK, in June, this year, from CFS?
http://en.wikipedia.org/wiki/Chronic_fatigue_syndrome
That neurasthenia article was interesting.
Sarach, we just make it work for us, and sign autographs, if PMDD happens to do it’s thing and causes us morph into male celebrities every once in a while. HA!!!
I’m sorry, but, to me, this is an odd/amusing statement, from that Wikipedia article on CFS (CFIDS, or whatever):
Fight, fight, fight, or else, let it getcha, I think.
From Wikipedia on Neurasthenia
“…and while they can make anybody crazy, they are not caused by craziness.
That sounds almost like what Dr. Stricker told the San Francisco Chronicle about Morgellons.
http://en.wikipedia.org/wiki/Neurasthenia
That link worked for me, TC.
http://www.sfgate.com/cgi-bin/article.cgi?file=/c/a/2006/06/02/MNGOJJ6JO51.DTL
There is no such thing as “morgellons disease”, and so what, if people who have Lyme disease seem to have it? People with a whole lot of other diseases “seem-to-have-it” too. Seem to have what? Silly, but extremely dangerous delusions that fibers have overtaken their bodies. That delusion has been instilled, implanted, reinforced, and heavily nourished, by the people who are behind this scam, convincing the poor people who think like that, that there is an undiscovered pathogen to blame for it. That ain’t right, and that ain’t normal. Sure, fibers, though, are very much present in people, and I wouldn’t dare deny that. It’s the inability of understanding how they got there, and the complete and utter disregard of knowing anything about human skin properties. Ill people, naturally, will be led by anyone claiming to be present for them, when nobody else seems to be. It’s wrong. It’s wrong as hell. The true conditions they have are what’s causing all of it, for them, and the freakin fibers are nothing to fear, they’re just incidental environmental fibers. Unless, a person has a nervous condition and they’re pulling out their own fibrous tissues.
Well, that link is working now for me also. The first time I tried it, it didn’t have an underline, and appeared to be dead. Oh, well. Tanky.
The link elves fixed it.
I hope all the naysayers get this
Ok so call it “UNIDENTIFIED DERMATOSIS SYNDROME” Per the state of Georgia. I could care less what the hell its called as long as people pull their heads out of ass and get busy working on this problem.
http://health.state.ga.us/pdfs/hazards/UDS_SURVEILLANCE_DATABASE.pdf#search=%22unidentified%20dermatosis%20syndrome%22
NEW SURVEILLANCE DATABASE
“UNIDENTIFIED DERMATOSIS SYNDROME”
Abstract: There have been reports to state and local public health agencies from residents
throughout Georgia of thread-like skin parasites in their skin, and a related set of symptoms.
In response, the Unidentified Dermatosis Syndrome (UDS) Surveillance Database was
developed and is maintained by the Chemical Hazards Program, Environmental Health Section,
Georgia Division of Public Health. It is intended to build and maintain self-reported symptom
surveillance capacity.
Definition
The Chemical Hazards Program defines “Unidentified Dermatosis Syndrome” as reports of tiny
bugs that look like black specks, or thread-like parasites in the skin; or of “something” biting,
stinging, or crawling in the skin, and an accompanying set of symptoms including itching, visible
sores, and fatigue.
Hypothesis
The Chemical Hazards Program will examine whether:
1. parasites may be causing the symptoms, and
2. individuals may share hypersensitivity to toxins produced by certain fungi/molds present
in soil causing specific neurotoxic effects.
CURRENT ACTIVITIES: PHASE I
Surveillance Database and Initial Survey
Beginning March 1, 2006 we will administer a survey to collect data from individuals reporting
specific symptoms of UDS. Chemical Hazards Program staff is contacting Georgia residents
following referral from various state, district, and local public health agencies, health care
providers, other professionals, and individuals for voluntary participation in the survey.
Beginning September 1, 2006 Chemical Hazards Program staff will analyze the results of the
survey and decide which health education activities, networking strategies, referral resources,
environmental sampling, or medical interventions will best meet the needs of the survey
participants. Reports generated will contain grouped information only, and will not contain any
personal identifiers such as name or address.
The results of the data analyses are expected to be available to the public in late fall 2006. The
UDS surveillance database will remain in place and continue to gather information about cases in
Georgia.
Survey
The UDS survey requests basic demographic information: age, gender, race/ethnicity and
education level. Questions about their home environment and daily activities, including length of
residency, soil conditions, outdoor hobbies, employment history, and allergy history are
included. Respondents will be asked in detail about their symptoms, doctor visits, current
medications, health status of other family members and pets, and attempted and/or successful
treatments and symptom relief.
Data Management and Entry
CHP staff will collect, manage, enter, and analyze all data from completed surveys. Survey data
will be entered into an Access database and cross checked for validity, reliability, and accuracy
by random verification of entered data and other accepted methods.
Data Analyses
Access 2000 database software will be used for data analyses. Survey questions will be analyzed
and compared using analytic techniques appropriate for community survey design. Univariate
analyses will generate descriptive statistics to characterize data from the survey. Bivariate and
multivariate analyses will assess whether trends and relationships exist among survey responses.
ArcView 9.0 software will be used to map/illustrate any trends and relationships.
If trends and relationships are found to exist and are determined to potentially be a result of
parasites and/or exposure to specific fungi present in soil, medical intervention and/or soil
sampling recommendations will provided to appropriate agencies. For more information, to refer
individuals, or to be considered for participation in the survey, please contact:
Jane M. Perry, Director
Chemical Hazards Program
Georgia Division of Public Health
Atlanta, Georgia
(404) 657-6534
Thanks, South. I didn’t think you lived in Gerogia, though, but if that pacifies you, I suppose that’s all that matters. Who’s head’s up where, when it comes to your own individual health? Give me a break. Puh-leeze.
I’m sorry. That wasn’t nice, and I didn’t mean that. Please forgive me.
I hope no one else gets caught up in the Morgellons madness between now and the time that the CDC makes their determination. Then, hopefully, the Morgies will forget about this made up disease and treat what is really ailing them. This Morgellons Movement has caused uncountable damage.
Tall Cotton
For those who don’t know, you can click on the photographs above, and get other stories. The third picture offers a repeat of “Some PMMD Symptoms”, but the first two have different information.
Excuse me, PMDD, not PMMD.
Uh-oh, the boss did it too.
Do we have an elf that works on those?
Hey Southcity,
I’m *almost* a fan of “unidentified dermatitis syndrome.” That works. It doesn’t add a name, a history, and questionable background to an unknown physical condition.
I still don’t think it exists as an independant condition, but I’d be satisfied with the UCS method of putting the horse before the cart.
I think that for those who truly have a serious situation, and can’t stop what they’re thinking ,and doing, it can’t, and won’t, improve. Also, I personally don’t feel that “morgellons disease” is a fad. I view it as something that a whole lot of people had go wrong, causing them to experience a misinterpretation of cutaneous symptoms, and something we can’t talk about. It happened to a lot of people, all for different reasons.
It happened to the woman who came up with “morgellons disease”, seeing it, not in herself, but, in her child, apparently for, yet, even, another reason. We know the rest of the story, and how it caught on, and how she made it grow larger, seeming to encompass more symptoms. The sudden, short-lived media propaganda explosion may seem to have made it appear to be a fad. I, however, feel that the perpetrators are forever hopeful of reaching more susceptible people, and are still quite driven to carry on, despite final word from the CDC. I think the damage has already been done, and since Mary Leitao added fuel to the fire for these misfortunate people, they’ll go on and on, until they can go no more.
Before the internet united them, they’d have fared much better. But, the difference is, Mary Leitao and the con artist professionals have made this madness much worse for them. Pretending, with their ridiculous outside-of-the-box-pseudo-science, they’re sure to keep it going, and there are going to be those who continue to reap benefits from it. That will not cease when the CDC makes their final announcement. They don’t need the CDC, and they really never have.
I think that many of the people who are under this false belief, know that it doesn’t matter. Otherwise, many of them would have followed the instructions the CDC gave to them, if they were really hoping for help, and truly wanting to get better. I think, if they could have, they’d have managed their health in the first place, though, too, rather than placing all of the blame on doctors. Inadvertently, I think the people who can’t help but think they’re victims of something other than what they are, will worsen, perhaps, even more than some would have in the first place, had they not become part of a group, to reinforce this so deeply into their minds.
Anyone in denial of, and failing to treat, the underlying causes of any condition will get worse, and that’s just a natural fact. Also, the people who play around with antibiotics are not just endangering themselves, but are probably actually helping to contribute to a future health crisis for us all. Can I apply the benefit of doubt that the so-called professional people involved aren’t quite ill too, and experiencing the same thing we can’t talk about? Yeah, maybe, but it sure is hard to. Although, I wouldn’t be so blatantly stupid, for the whole world to see, if I were any of them, on purpose. Only if I had ulterior motives, would I, and if I knew there were no laws to stop me. It’s wrong, very wrong, to play people for any reason, but especially those such as the people who think they have “morgellons disease”.
hey buggzy, heard from bb lately?
sarah b sazs:
“I STILL DON’T THINK IT EXISTS AS AN INDEPENDANT CONDITION”
so who cares what you think? or did you learn about epidemiology in some of your graduate level courses? oh, i forgot you have had any.
Texastar, I’d asked you something, twice, under the Factitious Disorders topic, that I would still like to know, please.
When you’d said to Michael:
I’d commented:
I KNOW IT DOESN’T EXIST AS AN INDEPENDANT CONDITION, and I only completed the 12th grade.
Texastar, readers care what Sarah thinks because she expresses her ideas in an intelligent, polite and thoughtful manner, with clear exposition, and sound reasoning. This is independent of her credentials. If you wish to be taken seriously, then I suggest you try to emulate her communication style.
Personal attacks are pointless. If you wish to argue, then argue for or against a point, or for the veracity of some claim, or the promotion of another. To do otherwise is simply noise, and can only damage your cause.
Hey, Sarach? Hi. You know, I’ve tried to understand what you’ve meant about your hair growing into your face. Is is anything like hirsutism? Since you have mentioned that you’ve been on prednisone, and it is a side effect, would you mind looking at the picture in this link, and seeing if that is what you mean? If not, oh well. I was just trying to understand. Catch ya later, sweet potater!
http://vasculitis.med.jhu.edu/treatments/prednisone.html
hey michael,
you are the one who put so much emphasis on credientials….”a doctor or scientist.”
you consider anyone credible as long as they are saying what you want everyone to hear, reguardless of their lack of intregrity or expertness.
you should practice what you preach concerning attacking and discrediting people.
do unto others as you would have them do unto you….bozo.
Hi Smileykins - i had a look at that site, thanks. BUT that is not what I meant.
I know it sounds crazy but my head hair grows into the skin (tissue)on my forehead, into my eyebrows if the hair is long enough, and the left and right cheeks along the ears, and right through my face, and behind the ears also.
When my hair was longer the hair in my face attached to my head was horrific. This was witnessed by others also. I had lost heaps of hair. I finally shaved off what was left because I couldn’t cope with the pulling sensation and the pain in my head,neck and face. I thought if it didn’t do that I was going to have a severe stroke. I new the symptoms I was having were a small stroke, but no one listened.
My hair has grown back and I keep it nice and short/clean etc, but my hair still manages to grow into my forehead and eyebrows. As my skin starts to show more improvement and the thickening its getting less my hair pops out which is still attached to my scalp. My skin has been twisted, turned, backwards, forwards, creating ripples and thickening and I think my hair must get involved this way somehow. what I do notice is that the couple of spots I have on my forehead - after washing and moisturiser my face a couple of pieces of hairs will always migrate towards the spot, and it is a really funny sensation and I can actually feel it, and also see it happen in the mirror. The other strange thng I get is some very unusual grey hairs which grow very very quickly and are longer than my own hair, they are a different shape also (wiggled or look like they have been crimped).
I think my hair has a severe allergy to the world also. I often wonder if environmental fibers can take up residence in my scalp and start growing!!
“you are the one who put so much emphasis on credientials….”a doctor or scientist.” ….you should practice what you preach concerning attacking and discrediting people. do unto others as you would have them do unto you…”
Funny, first my undergraduate wasn’t enough, and now that THAT’s thwarted, you’re stuffing my grad work.
I am all ears to hear your credentials (do unto others, right?).
Texastar wrote:
What, you want people to call you “bozo” and generally belittle you?
I think you misunderstand my point on credentials. Anyone and everyone is free to voice opinions and posit theories, you don’t need formal credentials to do that. It is useful if you are reasonably intelligent and somewhat familiar with the subject matter, but that’s not a requirement.
It also helps your point if it stands up to scrutiny. This is where I mentioned “doctors and scientists”, I was asking you if knowledgeable and trained people in the field agreed with your particular theory. Obviously they do not.
I’ve been introduced to this term:
http://en.wikipedia.org/wiki/Internet_troll
“A troll is someone who comes into an established community such as an online discussion forum, and posts inflammatory, rude, repetitive or offensive messages designed intentionally to annoy or antagonize the existing members….”
Don’t feed the trolls!
Sometime people can be trolling without even realising it.
The worse they are, the less they seem to offer to help their “professed” cause.
For people who want to remove scabs from their lesions and take a peek underneath, I’ve invented and I’m marketing a full line of scab jacks.
I have one that looks like a tiny bumper jack. It works rather well once you raise one edge of the scab.
I have one a super tiny hydraulic model that I like the best. But for those sufferers that really get into pain, I suggest my miniature cork screw.
Tall Cotton
I’ve been introduced to this term:
http://en.wikipedia.org/wiki/Internet_troll
“A troll is someone who comes into an established community such as an online discussion forum, and posts inflammatory, rude, repetitive or offensive messages designed intentionally to annoy or antagonize the existing members….”
you’re pretty bright for a stupid bitch…
now let’s take a look at what you ass clowns do here… refute this all you want fuckers… but here is where your true credentials lie… not in medicine or science…
1) Avoidance. They never actually discuss issues head-on or provide constructive input, generally avoiding citation of references or credentials. Rather, they merely imply this, that, and the other. Virtually everything about their presentation implies their authority and expert knowledge in the matter without any further justification for credibility.
2) Selectivity. They tend to pick and choose opponents carefully, either applying the hit-and-run approach against mere commentators supportive of opponents, or focusing heavier attacks on key opponents who are known to directly address issues. Should a commentator become argumentative with any success, the focus will shift to include the commentator as well.
3) Coincidental. They tend to surface suddenly and somewhat coincidentally with a new controversial topic with no clear prior record of participation in general discussions in the particular public arena involved. They likewise tend to vanish once the topic is no longer of general concern. They were likely directed or elected to be there for a reason, and vanish with the reason.
4) Teamwork. They tend to operate in self-congratulatory and complementary packs or teams. Of course, this can happen naturally in any public forum, but there will likely be an ongoing pattern of frequent exchanges of this sort where professionals are involved. Sometimes one of the players will infiltrate the opponent camp to become a source for straw man or other tactics designed to dilute opponent presentation strength.
5) Anti-conspiratorial. They almost always have disdain for ‘conspiracy theorists’ and, usually, for those who in any way believe JFK was not killed by LHO. Ask yourself why, if they hold such disdain for conspiracy theorists, do they focus on defending a single topic discussed in a NG focusing on conspiracies? One might think they would either be trying to make fools of everyone on every topic, or simply ignore the group they hold in such disdain. Or, one might more rightly conclude they have an ulterior motive for their actions in going out of their way to focus as they do.
6) Artificial Emotions. An odd kind of ‘artificial’ emotionalism and an unusually thick skin — an ability to persevere and persist even in the face of overwhelming criticism and unacceptance. This likely stems from intelligence community training that, no matter how condemning the evidence, deny everything, and never become emotionally involved or reactive. The net result for a disinfo artist is that emotions can seem artificial. Most people, if responding in anger, for instance, will express their animosity throughout their rebuttal. But disinfo types usually have trouble maintaining the ‘image’ and are hot and cold with respect to pretended emotions and their usually more calm or unemotional communications style. It’s just a job, and they often seem unable to ‘act their role in character’ as well in a communications medium as they might be able in a real face-to-face conversation/confrontation. You might have outright rage and indignation one moment, ho-hum the next, and more anger later — an emotional yo-yo. With respect to being thick-skinned, no amount of criticism will deter them from doing their job, and they will generally continue their old disinfo patterns without any adjustments to criticisms of how obvious it is that they play that game — where a more rational individual who truly cares what others think might seek to improve their communications style, substance, and so forth, or simply give up.
7) Inconsistent. There is also a tendency to make mistakes which betray their true self/motives. This may stem from not really knowing their topic, or it may be somewhat ‘freudian’, so to speak, in that perhaps they really root for the side of truth deep within. I have noted that often, they will simply cite contradictory information which neutralizes itself and the author. For instance, one such player claimed to be a Navy pilot, but blamed his poor communicating skills (spelling, grammar, incoherent style) on having only a grade-school education. I’m not aware of too many Navy pilots who don’t have a college degree. Another claimed no knowledge of a particular topic/situation but later claimed first-hand knowledge of it.
BONUS TRAIT: Time Constant. Recently discovered, with respect to News Groups, is the response time factor. There are three ways this can be seen to work, especially when the government or other empowered player is involved in a cover up operation: 1) ANY NG posting by a targeted proponent for truth can result in an IMMEDIATE response. The government and other empowered players can afford to pay people to sit there and watch for an opportunity to do some damage. SINCE DISINFO IN A NG ONLY WORKS IF THE READER SEES IT - FAST RESPONSE IS CALLED FOR, or the visitor may be swayed towards truth. 2) When dealing in more direct ways with a disinformationalist, such as email, DELAY IS CALLED FOR - there will usually be a minimum of a 48-72 hour delay. This allows a sit-down team discussion on response strategy for best effect, and even enough time to ‘get permission’ or instruction from a formal chain of command. 3) In the NG example 1) above, it will often ALSO be seen that bigger guns are drawn and fired after the same 48-72 hours delay - the team approach in play. This is especially true when the targeted truth seeker or their comments are considered more important with respect to potential to reveal truth. Thus, a serious truth sayer will be attacked twice for the same sin.
well of course… a scab jack… the tweaker’s best friend… good job there ballsarotten… does it come with instructions?… i’ll bet shittykins can’t wait to dig in…
You sure do lack reading comprehension. Ya know, that certainly isn’t your only deficit, either, MAFer.
I’d like to see your credentials, if you don’t mind, TC.
All kidding aside, though, like I’ve said before, morgie people are so suspicious of the motives of others, and always seem to be really big on this “credential thing”. They aren’t concerned, at all, over the credentials of the ones they should be concerned over. The Golden Rule should not be ridiculously ordered around so much, by one not applying it, either, especially, without basis for it, in the first place.
Texastar, can you please respond to what I’ve asked, twice before, in comment number 35? Thank you.
Thanks for posting that MAFer, it’s a fascinating look into the mind of a paranoid internet poster.
As you know, the original version of your list was posted in 1997 by H. Michael Sweeney, and can be found in full here:
http://www.ominous-valve.com/blog/25ways.html
MAFer, perhaps you could point to ONE lie, error or inconsistency on my site? I’ll do my best to fix anything you find.
I’d also be happy to add any evidence you feel I may have overlooked.
He’s got to be here, the same as anyone else who thinks that they have “morgellons disease”, because he is seeking help. MAFer, how can we assist you? Please tell us, and we will be delighted to do what we can. That’s what I have been attempting to get to, with you, and others who are here, but you will not address the history of what you have, personally, and how come you are convinced that you have “morgellons disease”.
MAFer,
Click on your name. I think your snake-oil store is closed at this site.
Tall Cotton
margarette… i suppose that everytime you or one of your clowns post something, i could footnote it with an index number corresponding to that list… that would be pretty easy to do other than the time constaint… unlike you clowns here, most of us have real full-time jobs elsewhere…
your last post for example… #1, second sencence… your new topics (and sbd’s too)… #2… most all of tc’s posts… #7… most all of sk’s posts… #6… and of course all of you exhibit #4 and #8 consistently with a smattering of #5 thrown in for good measure… your readers as well as yourselves… and this entire website for that matter… #3…
you have left out many cutaneous disorders to be considered… for example, the entire family of trichotic diseases… many have similarities to morgellons lesions… you also refused to start a topic on cutaneous pathogens that due the their etiology/current treatment regimens, would require mechanical/surgical debridement… much easier for tc the fuckhead to make fun of scab picking instead… that would be a #2 btw…
the question here really is not what have you ommitted?… but what have you really included?… very little obviously…
you fuckers are either diluted, are liars, or both… plain and simple…
paranoid internet poster?… me?… nah… i am just somebody who knows better… much better…
Hmm. Very interesting, indeed. What the hell you’re talking about escapes me, though, completely.
tallcotton Says:
September 9th, 2006 at 1:49 pm
MAFer,
Click on your name. I think your snake-oil store is closed at this site.
Tall Cotton
hey meathbreath… aka tallcotton… when you click on my name, you are seeing a parked page… the advertisers on that parked page are placed there by the page parking company… and, everytime you click on one of those adverstiser/merchants/snake-oil saleman/whatever, you are simply advancing my click rates… thanks dumbass…
here is a great link for you einstein… you are such a fucking moron…
http://www.amazon.com/Internet-Dummies-John-R-Levine/dp/0764506749
is it bothering you?… that i own several domain names… make me an offer and they could be all yours num-nuts…
smileykins Says:
September 9th, 2006 at 2:04 pm
Hmm. Very interesting, indeed. What the hell you’re talking about escapes me, though, completely.
i’m sure it does… #1…
Ass Wiper,
You wouldn’t know the truth if it jumped out of a bush and bit you on the ass. Your a fool!!
Too bad your links are working now. How much money have you bilked out of Morgellons patients today?
Tall Cotton
Ass Wiper,
Even if you aren’t making money off the products, you’re still helping others to. You’re a low-life. Face it!!
Tall Cotton
you’re right… sk has a bush… but i didn’t get any truth out of it… but i did get a bite on the ass for the trouble… thanks sk… loved it!…
not really my links there moron… again, internet for dummies… dummy…
Let me try this. Once upon a time, there was this fellur named, something. He got something, and thought he had something. Then, he got mad at everybody. Anybody that wants to understand what he’s going through, and how he arrived at the conclusion that he has something that isn’t something, but rather, something else, can’t get him to say anything. He thinks we’re enemies, all working together, against him. I swear to you, we aren’t. It’s wonderful that “most of you have fulltime jobs”. I, myself, am disabled, after having worked fulltime for many years. What this has to do with anything, though, is of no importance, other than to describe to you, since you must need to know, why I am on here too much for your liking. Listen, can you not forget this, “the most of us”? How about YOU, as an individual? I think that you, as one person, with your own individual set of circumstances, are more important than a whole bunch of misinformed individuals that make up an entire group of a lot of misinformed individuals. They’ll get nowhere, in solving their individual helth problems, that way. Do you want to solve yours, really, and truly?
Ass Wiper,
You’re still helping to promote their products. You’re helping them to bilk money from the Morgies. You’re all low lifes, and if there’s an idiot around here, you have proven it to be you. You’re just too stupid to realize how you come across to normal people. And, yeah, i do know. Fool!!
Tall Cotton
MAFer said:
You are saying I should list all diseases on my site? This site is about Morgellons. I already say: “3. “Sufferers” have a mixed variety of physical and/or mental illnesses.” on every page, what exactly am I omitting?
What’s a “trichotic disease”? Did you mean trichopathic (hair disease)? So what if these hair diseases have similarities to “Morgellons”? All that says is that some people who think they have Morgellons actually have trichopathy behind some of their symptoms. Or perhaps you meant trichinosis?
Show me any error in this site, and I’ll fix it.
Really, Michael, I had thought that some of the links you’d included on your blog, back in the spring, actually led to some of the things that MAFer says that you haven’t included. Bossy, isn’t he? I think the lack of control over what he has ailing him, is making him act out in ways that he wouldn’t otherwise. I wish he could explain some of what is going on. He did slam down a few words on it, a couple of weeks ago, but he’s not trying to obtain any understanding from us. We’re getting a lot, though, just as many of the morgie people provide to us, here . It isn’t helping matters for them, though, and about all it really says, is that they just don’t like people very much.
MAFer said:
What should I say about them? That people who have them might mistakenly think they have Morgellons?
It would be sad if someone had Necrotizing Fasciitis, but has somehow been convinced they had Morgellons, and all they needed to do was pick out the fibers from thier lesions.
Again, what exactly would you like to discuss regarding these conditions?
Michael - Very interesting the link on “trolling”.
I used to see the term “newbie” at Lymebusters - which I thought was good at the time, so people could recognise someone new and needing support. I would like to think this was true. I could not see any harm from postings to a newbie back then, all looked okay and legite to me. I guess the experts on recognising trolling would have a better idea.
Scarey stuff to be honest. You know I still to this day carry so much guilt for coming to MorgellonsWatch to fight Mary Leitaos battle by attacking Smileykins and Tallcotton.
I have never ever been this sort of person in my entire life. When I was directed to Morgellonswatch I had no idea about blogging and was rather fearful, but my “programmer” thought I was doing a fine job!!! NOT
So once again SK & TC I do hope I am forgiven for this. I never wish any harm on either of you okay, or you Michael.
Sarach,
I think you did a pretty good job too, but I have forgiven you. Likewise, I apologize to you for my ugly remarks. Let’s put it in the past and forget it ever happened.
Tall Cotton
Thanks TC - that does make me feel better. You have said in the past that you suffer I think Schziophrenia (sorry bout speling). Well my experience with these people in the past in my personal life has been nothing more than positive. I have always found them to be most interesting and highly intelligent. My great gran apparently suffered this disease, and from what I have been told, it was very hard and very sad for her. She basically became a prisoner in her home, and tended not to communicate with anyone.
It is good to see that Mental Health has come a very long way since then and people with a mental illness without an underlying physical ailment, are receiving the appropriate treatment and RESPECT.
Of course, you’re forgiven, Sarach. No, TC had a misdiagnosis from a shrink who wasn’t in tune to what he was telling him, at first. He has PTSD, not schizophrenia. I had cleared that up, previously, or tried to, with Aherah, or whomever she was being, at the time. It’s of no importance what anyone thinks, when it isn’t true, anyway, though.
I want to talk about this, “morgellons disease”. Let’s get hypothetical, and say a patient develops a concern over the appearance of lesions that environmental fibers have become adhered to. Let’s say they call Mary Leitao up, and she tells them they have “morgellons disease”, for sure, and to get on the ball and start collecting material from their sores and looking at them underneath a microscope, and to try, along with everyone else, to search for, and try to identify, what her mysterious disease is caused by. She gives them the addresses and numbers to alert their local and federal authorities.
Or, no, let’s imagine that a patient has already been to a doctor, or doctors, before taking that step in believing that they have “morgellons disease”, having not heard of it yet. They went to the doctor, with what they thought were specimens they’d collected from their lesions. Following proper protocol, based upon patient presentation (which does, afterall, take more into consideration than many patients even seem to be aware of), they are given a diagnosis of DOP and referred to a mental health specialist. What happens at that point, is different for everyone, but it’s often reported among such patients, that anyone who thinks that they have “morgellons disease” has been found to be “sane”. But, okay, anyway…
Then what? One way, or another, if such people don’t treat the primary diagnosis (DOP), the secondary cause, which may very well, quite often, be the sole reason for the development of their misunderstandings, goes undetected, in some cases, and definitely untreated. As a result they worsen, of course.
So, just as a hypothetical tool, suppose the patient in this case history, in the link below, thought that getting fibers in her lesions was unusual, and presented with the match-box sign to her doctor. Suppose she was insulted, and didn’t follow through on their initial diagnosis. If she had gone to see a mental health care professional, and she was open about what she was experiencing, based on all that I have ever read, the next step is to refer the patient for a consultation with a dermatologist to rule a parasitic infestation in, or, out.
She has two choices:
1. Follow her doctor’s diagnosis and follow-up treatment
2. Worsen
Let’s say she managed to do the right thing and followed her doctor’s diagnosis and advice. She told the mental health care specialist exactly what she was going through and how it was affecting her. Then, she went to see the dermatologist for evaluation. There, upon examining her skin, the dermatologist discovered what was wrong, which led to more tests.
Now, her general practioner could have discovered it, in all probability, possibly, but she sort of freaked him out, because he’d never seen her acting that way before. He knew what the proper protocol was, and this was not a pleasant thing to be witnessing his longtime patient. Of course, though, she’d read his concern as having been something else, entirely, leading her into a further state of alarm.
But naturally, things didn’t take that route, for the lady in this link below. I’m only using her case as an example, “had she” become overly concerned about fibers that had gotten into her lesions. This lady went to an ER, got a referral over her problem, and the pathway of discovery ensued.
Everybody who thinks that they have “morgellons disease”, has their very own unique, and distinct, situation. But using this lady as an example, hypothetically, if things went a certain way for her, as I just said, and she focused, entirely on the fibers and didn’t follow-up properly, she could have gotten on the internet, instead. There, she could have discovered “morgellons disease” and compared the stuff that she got out of her lesions as looking pretty much identical to everyone else’s pictures of stuff they’d gotten out of theirs. That stuff doesn’t have too much of a choice but to all look the same way, people, but whatever health problems are causing oozing skin to get fibers in it, are numerous!!!
And, upon closing, just imagine the seriousness of this ladies’s situation, if she had been that concerned over fibers, and taken all the wrong steps along the way, and become a morgie, quite by accident. That is what has happened to people, all having nothing in common, but totally convinced that they do! Some may have minor problems, some may have very major problems. They are all under a false belief.
http://www.skinandaging.com/sa/displayArticle.cfm?articleID=article2426
Very good story.
I have and still do follow through on all the advice given to me by my treating physicians. I feel what created a “rift” for me with the medical community was when I first found the MRF website and was taking this information, as well as a letter from Leitao.
Looking back I wish those medical people had of given me their “personal” opinion on the situation. You know tried to make me see what could really be happening. BUT they chose not to.
Mary had programmed me to be rather aggressive to a couple of medical doctors, which has never been my approach before. These people were not upset with me, I could see that they felt sorry for me and my distress. (Especially given the fact that I had worked with them in the past).
Even though I had given a couple of medical folk MRF info I had also added that I found the info. by Dr John Martin interesting, and said that maybe I had some type of stealth virus, and also gave them his information. So at least when I was under the infectious disease unit and dermatology psychiatry at a Melb Hospital, they took me seriously to try to figure this out. Of course at the time my blood work showed Rickettsiosis and elevated CRP & ESR, chest x-ray clear. Because I had not responded to one course of Doxycycline for the Rickettsia I was given a second cause reluctantly. The hospital could do no more for me. I did the Psychiatric inpatient stay for 3 days, and their final conclusioin was a physical illness as the underlying cause - but could not determine what is was. But they also felt that I was being severely effected by the Lexapro and that my dose of 40mg daily was very questionable, they did point this out to my treating shrink, but nothing changed.
You see Rickettsia in Aussie is treated purely with one course of Doxycycline, end of story. This is not a reportable disease, and I could not find any info. within aussie on the internet as to a different treatment regimen for a person suffering chronic rickettsiosis of the spotted fever group which has gone untreated or detected for many many years.
I carry all of these little buggers : R. australis (Queensland tick typus), R. honei (Flinders Island spotted fever), R.conorii (Meditarranean spotted fever), R. sibirica (North Asian tick typhus), R. rickettsii (Rocky Mountain Spotted Fever), R. akari (Rickettsial pox). Positive titre reading March 2005 was 512 for all and further tests July 2005 showed positive titre 256 for all.
Had I continued with the MRF rubbish and not looked after me health first I think I would be dead by now. Hence to say I did put my health issues first but still carried on the MRF rubbish, which has definitely added to further worsening of all of my symptoms.
Michael - this particular post - is this an example of internet talk, with reference to trolling, or in group talk, whatever they call it??
texastar Says:
** I am not saying Texstar is a troll - I just thought it was a good example, because I can not understand it.
Sarah Bione-Dunn Says:
Dear Sarah - Do you know the local health centre in my area now has new pamphlets on CFS - the only thing missing is lesions and fibers.
Don’t know a great deal about Chinese culture and women, but the little I do know - they seem to have a really hard life, and a lot of women commit suicide by 30 yrs of age. We really are very lucky in comparison.
Michael - I was also programmed to believe that you were a Dermatologist and that was your reason for starting this website.
Even if you are a Derm. still doesn’t give someone the right to programme a sick woman to attack you.
I remember one of the first emails you sent me and you said “maybe I am Dan Rutz” - if you are, well even better, at least the information is getting to the right place.
BUT - I am not disbelieving you about being a retired computer programmer. All that matters to me is that your reasons behind starting this website was purely to help victims. So far you have helped me, thanks.
Texastar was not really trolling with the binary/code comment above, he was just trying to use a clever analogy that did not really fit.
And thank you for your kind words. I genuinely do want to help people, and I am who I say I am.
I’m glad you are continuing to do well with your health.
On the topic of controversial diseases I found this link.
http://www.morgellons.ca/index.htm
Have you seen this Michael?
“And thank you for your kind words. I genuinely do want to help people, and I am who I say I am.”
I thought you were just having fun, Michael, like you said (a hobbie?). You thought maybe you might help the “marginal” ones, right? Sarach, do you have a combination of symptoms described on the MRF website including fibers that come out of skin/lesions? How is it that all these people are “programming” you? You do realize that Michael is a computer programmer. Apparently HIS programming techiques work pretty good on you too.
Who are you? Who Who. Who Who. (sing it with me now!) Who are you? Who Who. Who Who. Now if you were Dan, I’d be pissed that you were spending so much time here and not working!!!! Ya know, there has been a tremendous amount of B.S. landing on your blog lately. Yes, S.B. espouses some serious B.S. Apparently she goes to a school in which postmodern thought is NOT taught. She sure seems to believe in her ability to diagnose thousands of people she has never met and then package them in some profoundly unflattering labels. She has earned the title of Queen of B.S. We’ll forgo that argument for another day though; I’m too busy to play these days. Just checking in Michael.
ah
Of course I have all the symptoms listed on the MRF website. How do you think that Michael is Programming me? Do YOU or anyone for that matter have the ability to read my mind?
You can read my posts, but ya can’t read my mind or see me. Just like I can not do either with regards to any of you. BUT the discussion here is Morgellons.
I am using this blog site to get the word out about TRUTH. What I have suffered (and others) at the hands of the MRF and all affiliated. Until these people put themselves forward and give an explanation to us all, I think we will be blogging and debunking till the cows come home. We are all victims of their cruelty and the very reason we are here now.
I am in no position to comment on SB - that does not mean to say I agree with all her articles. I can joke and have fun about it, but I ain’t giving myself a title of any of them, I don’t need a damn label.
Aherah - Maybe Michael could be just another extention of the MRF working under the radar??? Lots of good stuff has been discussed on here - which will in turn fill the back pockets of lots of ‘experts’ with their fabricated psychiatric illnesses.
I may be a victim of Mary Leitaos insane Morgellons Disease but I am not completely blind, just act that way at times.
People need to ask themselves what has motivated them to do what they have done???? MRF and others.
These people need to be accountable for their actions IMMEDIATELY and give us a response, the circus is certainly drawing to an end.
So Michael - Can I ask you is this “Morgellonswatch” a case of “Good cop versus Bad cop”.
I am all for not using the term Morgellons Disease. We all have lots of fibers in our body, which is the commenality which has brought us together.
The fibers distress me no end, especially the way in which the pathogen in my body and skin - will utilise these fibers in such a way to hold the skin in a particular position, twist the skin into a circle and so on.
I have never found a medical document to date that describes exactly my physical symptoms nor has any doctor I have seen. Hypothetically, if I were the only person in the world with these symptoms, it certainly is something new to the medical establishment in this part of the world.
So people how is my “programming” ability going so far??
By the way I did register with Medscape - good website. I had to slightly change my user name of SarahConnor because it had already been taken. I would much prefer that it was spelt “Sarah” rather than “Sarach” which is what comes up on this blog site. Especially since the arrival of the new “Sarah” and not forgetting her timing also, becomes confusing at times for readers I guess.
So, is Cliff gonna sue Johnson & Johnson? I sure hope he at least saved his store receipt and returned the unused portion of contaminated Q-tips for a full refund of his purchase price.
Okay, so which is he? Well over a year ago, I’d thought he was a sci-fi writer, heavily into on line role playing games. I tried to dissuade morgies from paying any attention to him, not dare dreaming, back then, that anyone ever would, when he’d posted a link on LB, to his silliness. Then I found out, later, that he’s a human-imagineeering writer. Then, I discovered that page he wrote, on that link I provided underneath the “White Fibers Fluoresce Blue under UV” topic, which is insightful, and self-explanatory.
He’s been an enigma, himself, with me having wondered if he’s a true person convinced that he has “morgellons disease”, or whether he’s just another plant to draw more vulnerable people in on it. But, that is the thing with this, of course, because both alternatives pretty much equal the same.
The following websites trouble me - Morgellons Research Foundation, Lymebusters, Morgellons Group, Biology Online - are you all collaborating?? Sure has felt that way in the past, and at times still does.
If this is a way to get the word out to the CDC to enable them to take action - GOOD!!! If it isn’t then I would say we have some seriously “cult” issues on message boards and websites regarding Morgellons Disease.
Morgellonswatch - are you collaborating also with the above website?
Michael - this is not a question for you - this is a question for the person who hands you the material to place on this blog site every morning.
An honest answer would be appreciated, but I think the use of the words HONEST & TRUTH have been abused and bashed to death since Morgellons Disease was invented.
I am proud to say I still and have always told the truth.
Smileykins said:
He’s been an enigma, himself, with me having wondered if he’s a true person convinced that he has “morgellons disease”, or whether he’s just another plant to draw more vulnerable people in on it. But, that is the thing with this, of course, because both alternatives pretty much equal the same.
Well on that note Smileykins I think the sooner someone tells us what this “Morgellons” is the better off we will all be.
When cotton fibers are wound onto the “stick” to for a cotton swab, they are wound with a certain amount of tension. When these swabs are unpacked they begin to unwind because the tension is allowed to release. There’s nothing mysterious about it. There isn’t anything inside those cotton fibers but cotton. And they are cotton. The same is true when when you wad up a ball of cotton to make a cotton ball. It’s gonna unwad itself until all the tension is released.
Nope, I’m all alone here SarahConnor, except for those two articles SB wrote. I’m just a retired computer programmer doing this alone.
I don’t think any of the websites you mentioned are really collaborating. But there are probably some individuals who post to two or more of them.
What people say on the internet is meaningless in itself. Look at the evidence, and see for yourself what is right.
Aherah, good to hear from you again. It’s a pity you can’t stay around and chat.
Did anyone ever say that one man’s pity is another man’s party? If not, they should have. Pity Party!
Michael said: What people say on the internet is meaningless in itself. Look at the evidence, and see for yourself what is right.
*********************************************************************
You are not wrong on that one Michael.
*********************************************************************
Why is it that alot of people reporting to have Morgellons (victims) are having a lot of computer issues?? ie. internet users attaching themselves to msn hotmail contact lists, as well as a massive increase in junk emails that never go to the “junk” box but the “inbox”. All I receive in the way of emails these days is rubbish, I just don’t seem to get what I used to get.
Skype had to be installed on this computer not because Cliff Michelson told me on the phone to do so, BUT because the person who owns this damn computer needs it for his job, his boss asked him to put it on.
And already today - someone has intercepted and come online asking for Tony by his full name during my blogging here. He was not happy about it at all.
So far for the month of September - 15,370 hacker attempts on this pc in one week - already today there has been some 340 attempts.
dedicated66.thehideout.net has been trying its guts out for a long time to hack into this computer ping trace, Melb - USA sunnyville, new york.
Taking a chain saw to this computer is looking pretty good I think!!!!
You should try running something like ad-aware:
http://www.lavasoftusa.com/software/adaware/
I don’t think Morgellons victims get more spyware than average. Perhaps they are just a tad more suspicious.
Michael Says:
So Michael - do you choose the topic of the day so to speak ie. “Occams Menopause” etc etc in other words do you google the topic and take it from there??
I am aware SB gave you those two topics and asked for them to be posted. Why do you think that is??
I feel that introducing more and more “fabricated” psychiatric illnesses - is just another smoke screen to confuse the entire F@$# out of everyone.
Why keep adding fuel to an already controversial issue?? Post away SB as long as you understand that your topics are purely to give us something to talk about, inbetween dealing with real issues.
I have said it from the word go - Why the hell does our body suck in environmental fibers??
TC - good point about the cotton balls.
http://www.cdc.gov/ncidod/eid/vol7no1/valdezate.htm
This link shows an interesting little bacteria that sticks to everything. I have them growing off my clothes pegs!!!!
Michael Says:
Michael - you throw that bait and I come a running don’t I. We are not more suspicious. I live in a house with someone who couldn’t give a rats bum about Morgellons and he has told me that this has happened via msn hotmail, I said - thank you I thought it was me going mad!!
I am not a computer genius at all, I can move a mouse and work a keyboard, anything more goes over my head.
tallcotton Says:
September 10th, 2006 at 12:22 am
Did anyone ever say that one man’s pity is another man’s party? If not, they should have. Pity Party!
Is that what this blog site is all about then??
Michael - Your computer programming skills are starting to urk me a little.
Ad-ware?? Do you not think that most intelligent people with a pc try to protect their computer from hackers??
I don’t think even the chain saw would stop the majority of them. Scratch my back and I’ll scratch yours - is certainly something that has come to light with Morgellons. All the parasites have been unearthed and in attack mode. We are not alone - my god the aliens have landed!!
Sarah Bione-Dunn, why you naughty-naughty girl. Who did you diagnose while I’ve not been looking?
Part I — I feel like doin’ a lil breakin’-it-down.
From: Morgellons Research Foundation
Date: February 14, 2006
Subject: CASE DEFINITION - MORGELLONS DISEASE (DRAFT)
The following case definition of Morgellons disease has been developed by physicians on the medical advisory board of the Morgellons Research Foundation. This case definition is a preliminary and evolving document, now updated for review by the Centers for Disease Control and Prevention (CDC). This document will be refined as further information becomes available and as members of the medical advisory board deem necessary.
The Following Six Signs or Symptoms Are The Basis of Morgellons Disease
Here I go, on…
Number 1: Skin Lesions
*Skin lesions, both spontaneously appearing and self-generated, with intense itching.
The word “lesions” was chosen purposefully, to cover anything, and everything. RED FLAG
That means lots of people itch. That means people develop lesions from conditions that produce them, of which there are many. RED FLAG “Self-generated”, means self-inflicted skin wounds. RED FLAG
*The former may initially appear as “urticarial-like”, or as “pimple-like” with or without a white center.
That means, that people who have caused self-inflicted skin wounds have dug at hives, or at zits. RED FLAG
*The latter appear as linear or “picking” excoriations.
That is because they ARE. It was just described right above. They scratch and dig. RED FLAG
*Even when not self-generated, lesions often progress to open wounds that heal abnormally and usually incompletely. (e.g., heal very slowly with discolored epidermis or seal over with a thick gelatinous outer layer.)
Even if someone is not a “picker” lesions often progress to open wounds that heal abnormally and usually incompletely. There are conditions that would account for interferring with that, two right off the bat, are smoking, and diabetes. RED FLAG
Now, if this is not the stupidest way of describing, so far:
“heal very slowly with discolored epidermis”…That is what is known as A SCAR.
“or seal over with a thick gelatinous outer layer”…OMG. That is sebum & plasma, perfectly NORMAL.
RED FLAG, RED FLAG
And, furthermore, environmental fibers get stuck in each and every open skin wound that a human, or any other warm-blooded mammal, has.
This was constructed on such a below remedial level “developed by physicians on the medical advisory board of the Morgellons Research Foundation”, of course, to appeal to a particular audience that would understand it, and identify with it. Just like Wacky Wymore’s infamous letter to physicians.
That’s all for now.
Skooze me, I got my “former & latter” mixed up:
*The former may initially appear as “urticarial-like”, or as “pimple-like” with or without a white center.
CORRECTION: That means the spontaneuosly appearing lesions, are initially just hives, or zits.
So? RED FLAG
Hey now, wait. I can break that top one down some more…
*Skin lesions, both spontaneously appearing and self-generated, with intense itching.
“Spontaneously”, as in coming into contact with an allergen; “self-generated” , as in a systemic condition.
Everything is covered, naturally, and all perfectly explanable. (We all already know that this gets wilder, as it goes, but that number 1 in the made up case defintion is plenty outrageous!)
Uh-oh. So, I can do this one again too…
*Even when not self-generated, lesions often progress to open wounds that heal abnormally and usually incompletely. (e.g., heal very slowly with discolored epidermis or seal over with a thick gelatinous outer layer.)
That can also be taken to mean, “self-generated”, as in, for instance, lets say, a systemic disease like lupus erythrematosis, occuring in someone who is also a diabetic. Their “self-generated” skin wounds would progress, and be difficult to heal, or slow to. Then, that second half of that statement would pertain to scab jackers.
Mercy.
Sorry y’all. Yes, I chewed on that way too much. OCD, ya know.
HAHAHAHA (That wasn’t meant for you, Houston. Hi, there, though.)
I still see another one….
*Skin lesions, both spontaneously appearing and self-generated, with intense itching. The former may initially appear as “urticarial-like”, or as “pimple-like” with or without a white center. The latter appear as linear or “picking” excoriations.
“Former” aka “spontaneously appearing” = “urticarial-like”, which would mean breaking out in hives
“Self-generated” aka “the latter” can also be referring to the later part of that description = “pimple-like with or without a white center”, which is also “the latter”, that is involved in excoriations and self-inflicted skin injuries.
The wording is designed just right to fit everyone perfectly, backwards and forwards, former and latter.
RED FLAGS OUT THE YING-YANG. Good-night.
Here is another link which I meant to put with the other link on cotton balls (sorry I forgot)
http://www.cdc.gov/ncidod/EID/vol8no9/01-0535.htm
I feel that introducing more and more “fabricated” psychiatric illnesses - is just another smoke screen to confuse the entire F@$# out of everyone.
Why is the word F@$# made into a link for an email?? We all know what the word is don’t we?
Sarah Bione-Dunn Says:
Sarah bioDUNG - if you got your face out of everyones business you could probably spend your time reading something worth while. You would then probably understand why woman in china do not report menstrual disease because if they did their damn husband would kill them, so they suicide in stead.
So Sarah - funny name for a man don’t you think? Yes you do strke me as man a very controlling and manipulative man. No woman in her right mind would put her name to that document of yours on PMMD. That symptom list describes every person in this entire world male and famale. (leaving aside points of reference only relating to woman, I can’t be bothered re reading it at the monent).
I think you have an over load of flagella in your brain. You are not immune from the Stenotrophomonas maltophilia bacteria because the water is full of it, even if you are a psychiatrist.
Money hey - what people do for money - because they got a degree in Head manipulation/control/psychiatry they think this will give them all the answers, just doing the book work and there you go. You learn from a damn book when you are in training BUT you are still in damn training because the general public is and always has been your god damn guinea pigs. Making money for the likes of you. Lets add some psychiatric medication to the mix……Hell on wheels we got ourselves our real life walking talking robot, and research model.
BUT then again you and your documents could also be a fabrication as to prove ot push the issue surrounding Morgellons. Then you have to bring MCS into it and then CFS chronic fatigure. Well bust ya cover why don’t ya. Chronic fatigue was put on the shelf until 2010 by the CDC. People really want to hurry things along. And lets just say USE people like myself to learn lots and lots more about diseases effecting humans with hormones gone a bit crazy and whatever else in the pot.
So SarahbioDUNG take your psychiatric manual and go play on someone else, I have been sucked dry emotionally by the Psychiatric community.
One more thing Mrs BioDung - Your somatoform disorders and factious diseases, and ya bdd and ya ocd and ya stick it up ya bum chum is only the cause of an UNDER LYING DISEASE.
Oh also you want my theory on your Munchhausens syndrome via proxy - it really is a syndrome and yes it is involved in Morgellons BUT not the horrible, cruel way that is described in the rubbish I have read recently. This also has an UNDER LYING DISEASE.
What causes my ma to fall under this category of yours and alike? The fact that she loves me, and I do know that she does have a disease and physical one which which feeds the anxiety in her. The body is one big ORGAN… The brain and organs communicate….
So to break it down for you dumb ass woman get anxious and so do men. Anxiety is a pain which can not be described okay. What causes anxiety? No idea. BUT anxiety is connected to just about everything in life just like stress. What causes stress? No idea.
Find the pathogen that causes stress and anxiety and then maybe you might have something to blow your horn about. All that I have read from you is nothing more than premature ejaculation. Time go see your pharmaceutical buddy to top up on the viagra, get him to give you some freebie post it notes and pens. You may have earned yourself enough frequent flyer points for a free holiday….congratulations.
You know I wouldn’t feel quite right about a free holiday…knowing that I had given psychiatric medication to certain patients when I shouldn’t have done or maybe even pushed the boundaries a tinsy on the dosage just to see what happens hey>>
See Mrs Sarah FungDung - you got me running around in circles now. I just walked into the bath room to jump into my bath, looked in the mirror and bang I remembered thing else to tell you.
You Suck - good night.
Michael - Why is it you once said “the path of Morgellons has already been set”.
They are pretty powerful words don’t your think?
Especially given the amount of time we spend doing this blogging.
Please answer me this - Why is it that a document that was sent to my computer via the MRF from the CDC (Letter to CDC patients) - when I open this and click on print - in the print folder I can click on the document to print it BUT I can also print on about 250 something more and these documents are all websites that I may have visited, or documents I may have received with picture attachments. Is this normal? because I have never seen it before.
Why should that document from the CDC have websites visited by myself in the print folder command?
Sarah Bione-Dunn Says:
Mrs CowDung - since you are a shrink you really do make it so obvious that one of the major issues with Morgellons has been and still is the Dermatology and the Psychiatric community. Not the patient BUT YOU DAMN DOCTORS.
*******************************8
You say:
In other words - you believe in something BUT not Morgellons.
Who, What, Where, Why, When & How???? BIG NOSE!
You know seeing the words RED FLAG being thrown about in that Case Deinition reminds me of Lymebusters.
Did you catch all those RED FLAGS Mrs BIO BIG BUM. Does this correlate with all the other programming you and every one else has done here today??
Won’t wash with me buddy.
“Twenty-Five Ways To Suppress Truth” - and you call yourselves caring human beings.
Time to start a Morgellons Protection Programme.
Could we make it a nice tropical location, with everything thrown in for free?
Artificial Emotions - “thick skinned” - well stop god damn stratching Michael and get to the doctor.
Michael said…
Tall Cotton asked…
Sarah Connor asked…
To Sarah Connor,
As you can see, my comment, above, was in reference to Michael comment about Aherah’s absence. I was referring to nothing else.
Tall Cotton
Dear Sarah Conner,
Nothing validates and justifies your concerns like name-calling and senseless, incomplete sentances, in my opinion.
Good show. Your comments reminds me of a time I was volunteering with a five-year-old who wanted cookies, not fruit, for snack and called me a poo-poo-head.
I’ve read your comments a few times through, and I can’t find what your complaint is with me. Instead, you seem to have problems with
1) manipulative, controlling men
2) negative, false concepts about Chinese women
3) psychiatrists
4) facts from textbooks
Your comment about Chinese women is, except in rare occasions, wrong. I’m sorry you dislike facts. Furthermore, I am not a man, nor a psychiatrist.
If you’re angry, instead of acting like a child and lashing out at someone you have admitted you don’t know,
“Mrs [Bione-Dunn] - since you are a [student of psychology] you really do make it so obvious that one of the major issues with Morgellons has been and still is the Dermatology and the [mental health] community. Not the patient BUT YOU DAMN DOCTORS.”
I had to correct some basic errors in your comment to make it legitimate in the first place, but, the patients are very often the problem too. If they would accept a diagnosis, pursue treatment, and take care of themselves, instead of hating doctors and self-medicating with bleach on their skin or worse, they might actually get better.
“Who, What, Where, Why, When & How???? BIG NOSE!”
I want you to go back and read that post you wrote. Are you able to write it again so it makes a coherent statement? Or is this a statement against my Italian genes, that I have a big nose?
I will continue with a new post….
“Oh also you want my theory on your Munchhausens syndrome via proxy - it really is a syndrome and yes it is involved in Morgellons BUT not the horrible, cruel way that is described in the rubbish I have read recently. This also has an UNDER LYING DISEASE.”
Munchausens syndrome by proxy– the process of lying, emotionally and physically abusing children– “yes it is involved in Morgellons”?? “But not in a horrible cruel way”?
Munchausens syndrome by proxy is the falsification of physical symptoms for the cruel, premeditated abuse of children. MSBP often involves drugging children so that they vomit or become unconscious or have horrible headaches, so that the parent abuser can receive attention…. but this is NOT horrible and cruel?
MSBP is also one of the most lethal forms of child abuse– but it is not horrible and cruel?!
If this is true, SarahConner, steps must be taken to have every child and every person who is a parent registered to have Morgellons to have their children taken to safety. So tell me, is it true that Morgellons is linked to child abuse and you don’t think there’s anything wrong with that, yes or no?