Morgellons is sometimes described as a “Controversial Disease”. I was wondering what other controversial diseases there are, so I did a little Googling to find a few.a-cervical-collar-vc11.jpg

I was quite surprised when something that turned up was chronic Whiplash - yes, that bad neck you get when involved in a car accident, now an $18 billion industry. Surprisingly some studies show that demolition derby drivers do not ever suffer from chronic whiplash. In Lithuania (where car insurance is rare) chronic whiplash is unknown. Chiropractors dispute these findings.

Some symptoms of whiplash: headache, dizziness, abnormal sensations such as burning or prickling (paresthesias), or shoulder or back pain. In addition, some people experience cognitive, somatic, or psychological conditions such as memory loss, concentration impairment, nervousness/irritability, sleep disturbances, fatigue, or depression.

Also controversial: Multiple Chemical Sensitivities. Factors of compensation and legalities play a factor here too:april-carlisle-in-mask.jpg

“Whatever its physiologic, toxic or psychiatric origins are, MCS has become the focus for great efforts to support a particular set of beliefs about its mechanism and manifestations. MCS is discussed in an array of patient support groups and clinics, by clinicians, hotlines and lawyers, in journals and other media, and on World Wide Web sites. It has become the subject of disability laws and settlements”

Some Symptoms of MCS: Headache, Fatigue, Dizziness, Nausea, Irritability, Confusion, Difficulty concentrating, Memory problems, Muscle pain and/or stiffness, Skin rash or hives, Mood changes.

a-mad-woman-soutine34a.jpgHere’s another: premenstrual dysphoric disorder, (PMMD), which was listed as treatable by Prozac, but later, in Europe, described as “an invented illness and a strong example of the medicalisation of ordinary life.”. There is some suggestion that PMDD has been “marketed” by drug companies. Again, money plays a strong role in defining the disease.

Some PMMD Symtoms: irritability, nervousness, difficulty in concentrating, lethargy, depression, severe fatigue, confusion, paranoia, emotional hypersensitivity, crying spells, moodiness, sleep disturbances, acne, neurodermatitis (skin inflammation with itching), other skin disorders, including cold sores, numbness, prickling, tingling, or heightened sensitivity of arms and/or legs, and a whole load more.

I think the situation is too complex to draw any simple parallels between these kinds of conditions and “Morgellons”, but there are obvious aspects here and there – notably the smorgasboard of symptoms. Read the articles above. It’s fascinating stuff.

  363 Responses to “Controversial Diseases”

  1. I would reckon that PMMD is part of a stress-diathesis model. People with a predisposition to neurdermatisis, emotional hypersensitivity, fatigue, confusion, paranoia, are pushed into PMMD from the change in hormones and accompanying symptoms that often accompany menstruation.

  2. The reviews of the whiplash book, and the excerpt are fascinating:

    http://www.mqup.mcgill.ca/book.php?bookid=1497

  3. I had a lot of whiplash, in the past. That’s how I developed bone spurs that almost paralyzed me, I used to get PMMD, once in a while, and I’d see actor Gary Busey looking back at me when I’d look in the mirror. I look nothing like him. My daughter occasionally gets it too, and she swears she looks just like Robert DeNiro. No, she doesn’t. My mom laughed at us, until she later confessed she used to do the same. She’d thought she looked like Morley Safer, from CBS. Hahahahaha!!!

  4. Hmm, well, after reading about whiplash, I’ve got to say that I didn’t malinger, wear a cervical collar, or anything like that, or use it to try to obtain a lawsuit settlement. I continued working after sustaining each injury, adding further insult to it, over the course of close to 20 years. Then, things came to a screeching halt over a 3 day period. So, of course, all the strenuous stuff I did while I was in pain all those years, added onto the development of osteophytes/spondylosis/degenerative disk disease, with spinal cord and nerve root compressions. It’s weird, to me, when people feign illness, or injury. They should be thankful, and appreciative, of being in as good a shape as they are, and get all out of life that they can, I think.

  5. Michael – “I think I love”!!!! LOL! Been waiting for this one!!

    I have been saying for 6 years I have “Multiple Chemical Sensitivity” BUT no I was wrong …. NOT!!!

    I haven’t read all the links yet, but can’t wait, coz I got some real funny stuff to share, a bit of goss so to speak. Nothing sinister to do with Morgellons, just about me and my past experiences which are relevant on this topic.

    I just got so excitted after a quick read I had to reply. Well done.

  6. By the way – I know you guys are either in bed, or someone is doing the “grave yard shift” – so don’t feel as though you have to reply ok?

    If I need some support, I will let you know in any posts. Ta.

  7. WOW!! PMMD – can I sign up to be a volunteer for further research!!!

    Amazing stuff – do you know this is a medical break through – in my eyes anyway.

    You know I can remember hearing stories from others – what it must have been like for females many years ago. Things like, not being able to wash your hair during mensturation, can’t think of any others at the moment, but I know it was a lot of “old wives” tales type stuff, but it must have been horrific for some woman, with no one to talk to or turn.

  8. MCS – Multiply Chemical Sensitivity – Crikey!!! very very interesting. Put on the volunteer list for this one to please!!

    How Is MCS Diagnosed?

    There are no tests to diagnose MCS. A doctor generally bases his or her diagnosis on the person’s description of symptoms, usually following a complete medical history and physical examination. The doctor may use diagnostic tests, such as X-rays and blood tests, to rule out true allergies and other physical or mental health disorders as the cause of the symptoms.

    ************************

    Medical History and PHYSICAL Examination – Oh yes how important. How many doctors are very guilty of this one? Why is this so?

    During my research I came across an interesting document whilst reading on the Medical Journal Of Australia website. This particular report talked about the lack of the “hands on” approach – physical examination. Michael you may be able to find this – your computer skills are top notch.

    Physical examinations seem to have become a thing of the past with a lot of doctors within my area, not only myself, but of course others. I have tried to figure this one out.

    Is time the issue – 15 minute appt/30 minute appt?
    Still is enough time for the physical examination. I do make a habit of pre arranging a double appointment prior to my doctor visits. Far too much diagnosing from across the desk.

    Off Topic – Just a little something to share:
    When I visited the lady doctor the other day, I said to her, – “congratulations – I am pleased to see you do not have a computer on your desk, and you use a pen and hand write the prescriptions, keep it that way please”!! She replied saying – “At least I can guarantee both will work for me”!!!

  9. Premenstrual dysphoric disorder (PMMD) – Back in 1992 I travelled overseas, spent 3 months back in the UK. I actually went back to my old home town and visited the doctors surgery I visited when I was a kid. Calm down – I was not doctor shopping!! I had seen a gynaecologist at the Women’s Health Clinic in Melbourne (public/medicare)for my check up. I had started with a couple of unusual symptoms, one of them being hyperpigmentation on my face, my skin was perfect (babies bum stuff), but this damn pigmentation was awful. The folk I worked with at the time thought I was pregnant because I had the “mask” of pregnancy.

    Anyway on with the story – this doctor suggested that when I go on my overseas trip visit a doctor and get a prescription for Dianne 35ED, I think it was called, contraceptive pill, because it was so much cheaper to buy in the UK. At that time “Dianne” had not been on the market that long in Aust. so it was very expensive. This is exactly what I did, BUT the really good thing for me was that I got it FREE!!!! In the UK the Contraceptive Pill was free, purely because it was recognised as a “necessity”. Also Dental was covered by the NHS when I lived in the UK. Not sure if this is still in place in the UK. I tried to have a read about it on Wikipedia but it was too heavy a read for me, boring!!

    Talking about Dental – that was also free in New Zealand when I was at school. Sounds great hey?? – NOT!! we used to get pulled from the class – not sure whether it was alphabetical, or maybe “who did they want to torture that day” (I don’t like to say it too loud, but I often think it was because I was English)!!! What a friggin nightmare…. they did not use anaethestic!!! The drill sound…the pressure on my tooth, I can still remember – I was 6 and 7, how awful hey. BUT on the flip side, when I was back in NZ in 1985 I had to go to the Dental Hospital in Dunedin and have a wisdom tooth out, which had grown into my cheek!!! I was attended to by a really nice young male Dental Student. He did a fantastic job, and it cost me $10!!!!!

  10. Been thinking a little more about PMMD and about cross-cultural studies. Women in China do not report menstrual distress (cramping, bloating, emotional distress). Now I’m leaning toward PMMD being a Western construct, but then again, I’ve never seen Robert DeNiro in the mirror (yeegads!).

    These are all contraversial topics. Chronic Fatigue Syndrome, I found to my surprise, is still a contraversial disease.

    http://www.kidshealth.org/parent/system/ill/cfs.html

    The more I read about it, the more I read it has similarities with “Morgellons.” For example, it has no known cause, it is only a list of symptoms with few being common in all cases.

  11. Professor Michael,

    Can I add PMMD and MSC to my degree from the Universaty of Morgellons Watch? Think I “aced” these courses, please check for me, thank Professor.

    LOLOLOLOLOL

  12. Okay, I’ll play the devil’s advocate this time. Are all these illnesses, including Morgellons, the same psychosomatic illness, with the same, or similar set of symptoms and causes?

  13. The illness formerly known as neurasthenia?

  14. The “Multiple Chemical Sensitivity” or “Environmental Illness” (EI) was a big industry in the 1990s. There are camps in New Mexico where middle-aged hysterical women go to die from all their sensitivities.

    All the victims swear it is real, but medical tests reveal nothing unusual. The “healing” industry created a New Age belief system to go with it. I remember a few women got out by taking psychotropic meds. One man took his wife to Mexico for ECT (electro convulsive therapy). They shocked the sensitivity right out of her.

    I suspect Morgellons will go away as a fad when a new trendy illness comes along.

  15. Chronic fatigue syndrome? Sure, some case are due to Epstein barr virus, but not all. Psychosomatic?

  16. First recorded death, in the UK, in June, this year, from CFS?

    http://en.wikipedia.org/wiki/Chronic_fatigue_syndrome

    That neurasthenia article was interesting.

    Sarach, we just make it work for us, and sign autographs, if PMDD happens to do it’s thing and causes us morph into male celebrities every once in a while. HA!!!

  17. I’m sorry, but, to me, this is an odd/amusing statement, from that Wikipedia article on CFS (CFIDS, or whatever):

    Other cases have a very slow, gradual onset, sometimes spread over years. People with gradual onsets may not realize there is anything wrong for quite some time.

    Fight, fight, fight, or else, let it getcha, I think.

  18. From Wikipedia on Neurasthenia

    “…and while they can make anybody crazy, they are not caused by craziness.

    That sounds almost like what Dr. Stricker told the San Francisco Chronicle about Morgellons.

    http://en.wikipedia.org/wiki/Neurasthenia

  19. That link worked for me, TC.

    “There really are physical symptoms that occur in people who are not crazy, although once they have it, it usually makes them pretty crazy,” said San Francisco Lyme disease specialist Dr. Raphael Stricker, who has seen several patients with Morgellons symptoms. Stricker and a handful of other doctors believe Morgellons is somehow related to Lyme disease because so many patients have already been diagnosed with Lyme disease.

    http://www.sfgate.com/cgi-bin/article.cgi?file=/c/a/2006/06/02/MNGOJJ6JO51.DTL

    There is no such thing as “morgellons disease”, and so what, if people who have Lyme disease seem to have it? People with a whole lot of other diseases “seem-to-have-it” too. Seem to have what? Silly, but extremely dangerous delusions that fibers have overtaken their bodies. That delusion has been instilled, implanted, reinforced, and heavily nourished, by the people who are behind this scam, convincing the poor people who think like that, that there is an undiscovered pathogen to blame for it. That ain’t right, and that ain’t normal. Sure, fibers, though, are very much present in people, and I wouldn’t dare deny that. It’s the inability of understanding how they got there, and the complete and utter disregard of knowing anything about human skin properties. Ill people, naturally, will be led by anyone claiming to be present for them, when nobody else seems to be. It’s wrong. It’s wrong as hell. The true conditions they have are what’s causing all of it, for them, and the freakin fibers are nothing to fear, they’re just incidental environmental fibers. Unless, a person has a nervous condition and they’re pulling out their own fibrous tissues.

  20. Well, that link is working now for me also. The first time I tried it, it didn’t have an underline, and appeared to be dead. Oh, well. Tanky.

  21. The link elves fixed it.

  22. I hope all the naysayers get this

  23. Ok so call it “UNIDENTIFIED DERMATOSIS SYNDROME” Per the state of Georgia. I could care less what the hell its called as long as people pull their heads out of ass and get busy working on this problem.

    http://health.state.ga.us/pdfs/hazards/UDS_SURVEILLANCE_DATABASE.pdf#search=%22unidentified%20dermatosis%20syndrome%22

    NEW SURVEILLANCE DATABASE
    “UNIDENTIFIED DERMATOSIS SYNDROME”
    Abstract: There have been reports to state and local public health agencies from residents
    throughout Georgia of thread-like skin parasites in their skin, and a related set of symptoms.
    In response, the Unidentified Dermatosis Syndrome (UDS) Surveillance Database was
    developed and is maintained by the Chemical Hazards Program, Environmental Health Section,
    Georgia Division of Public Health. It is intended to build and maintain self-reported symptom
    surveillance capacity.
    Definition
    The Chemical Hazards Program defines “Unidentified Dermatosis Syndrome” as reports of tiny
    bugs that look like black specks, or thread-like parasites in the skin; or of “something” biting,
    stinging, or crawling in the skin, and an accompanying set of symptoms including itching, visible
    sores, and fatigue.
    Hypothesis
    The Chemical Hazards Program will examine whether:
    1. parasites may be causing the symptoms, and
    2. individuals may share hypersensitivity to toxins produced by certain fungi/molds present
    in soil causing specific neurotoxic effects.
    CURRENT ACTIVITIES: PHASE I
    Surveillance Database and Initial Survey
    Beginning March 1, 2006 we will administer a survey to collect data from individuals reporting
    specific symptoms of UDS. Chemical Hazards Program staff is contacting Georgia residents
    following referral from various state, district, and local public health agencies, health care
    providers, other professionals, and individuals for voluntary participation in the survey.
    Beginning September 1, 2006 Chemical Hazards Program staff will analyze the results of the
    survey and decide which health education activities, networking strategies, referral resources,
    environmental sampling, or medical interventions will best meet the needs of the survey
    participants. Reports generated will contain grouped information only, and will not contain any
    personal identifiers such as name or address.
    The results of the data analyses are expected to be available to the public in late fall 2006. The
    UDS surveillance database will remain in place and continue to gather information about cases in
    Georgia.
    Survey
    The UDS survey requests basic demographic information: age, gender, race/ethnicity and
    education level. Questions about their home environment and daily activities, including length of
    residency, soil conditions, outdoor hobbies, employment history, and allergy history are
    included. Respondents will be asked in detail about their symptoms, doctor visits, current
    medications, health status of other family members and pets, and attempted and/or successful
    treatments and symptom relief.
    Data Management and Entry
    CHP staff will collect, manage, enter, and analyze all data from completed surveys. Survey data
    will be entered into an Access database and cross checked for validity, reliability, and accuracy
    by random verification of entered data and other accepted methods.
    Data Analyses
    Access 2000 database software will be used for data analyses. Survey questions will be analyzed
    and compared using analytic techniques appropriate for community survey design. Univariate
    analyses will generate descriptive statistics to characterize data from the survey. Bivariate and
    multivariate analyses will assess whether trends and relationships exist among survey responses.
    ArcView 9.0 software will be used to map/illustrate any trends and relationships.
    If trends and relationships are found to exist and are determined to potentially be a result of
    parasites and/or exposure to specific fungi present in soil, medical intervention and/or soil
    sampling recommendations will provided to appropriate agencies. For more information, to refer
    individuals, or to be considered for participation in the survey, please contact:
    Jane M. Perry, Director
    Chemical Hazards Program
    Georgia Division of Public Health
    Atlanta, Georgia
    (404) 657-6534

  24. Thanks, South. I didn’t think you lived in Gerogia, though, but if that pacifies you, I suppose that’s all that matters. Who’s head’s up where, when it comes to your own individual health? Give me a break. Puh-leeze.

  25. I’m sorry. That wasn’t nice, and I didn’t mean that. Please forgive me.

  26. I hope no one else gets caught up in the Morgellons madness between now and the time that the CDC makes their determination. Then, hopefully, the Morgies will forget about this made up disease and treat what is really ailing them. This Morgellons Movement has caused uncountable damage.

    Tall Cotton

  27. For those who don’t know, you can click on the photographs above, and get other stories. The third picture offers a repeat of “Some PMMD Symptoms”, but the first two have different information.

  28. Excuse me, PMDD, not PMMD.

  29. Uh-oh, the boss did it too.

  30. Do we have an elf that works on those?

  31. Hey Southcity,

    I’m *almost* a fan of “unidentified dermatitis syndrome.” That works. It doesn’t add a name, a history, and questionable background to an unknown physical condition.

    I still don’t think it exists as an independant condition, but I’d be satisfied with the UCS method of putting the horse before the cart.

  32. I think that for those who truly have a serious situation, and can’t stop what they’re thinking ,and doing, it can’t, and won’t, improve. Also, I personally don’t feel that “morgellons disease” is a fad. I view it as something that a whole lot of people had go wrong, causing them to experience a misinterpretation of cutaneous symptoms, and something we can’t talk about. It happened to a lot of people, all for different reasons.

    It happened to the woman who came up with “morgellons disease”, seeing it, not in herself, but, in her child, apparently for, yet, even, another reason. We know the rest of the story, and how it caught on, and how she made it grow larger, seeming to encompass more symptoms. The sudden, short-lived media propaganda explosion may seem to have made it appear to be a fad. I, however, feel that the perpetrators are forever hopeful of reaching more susceptible people, and are still quite driven to carry on, despite final word from the CDC. I think the damage has already been done, and since Mary Leitao added fuel to the fire for these misfortunate people, they’ll go on and on, until they can go no more.

    Before the internet united them, they’d have fared much better. But, the difference is, Mary Leitao and the con artist professionals have made this madness much worse for them. Pretending, with their ridiculous outside-of-the-box-pseudo-science, they’re sure to keep it going, and there are going to be those who continue to reap benefits from it. That will not cease when the CDC makes their final announcement. They don’t need the CDC, and they really never have.

    I think that many of the people who are under this false belief, know that it doesn’t matter. Otherwise, many of them would have followed the instructions the CDC gave to them, if they were really hoping for help, and truly wanting to get better. I think, if they could have, they’d have managed their health in the first place, though, too, rather than placing all of the blame on doctors. Inadvertently, I think the people who can’t help but think they’re victims of something other than what they are, will worsen, perhaps, even more than some would have in the first place, had they not become part of a group, to reinforce this so deeply into their minds.

    Anyone in denial of, and failing to treat, the underlying causes of any condition will get worse, and that’s just a natural fact. Also, the people who play around with antibiotics are not just endangering themselves, but are probably actually helping to contribute to a future health crisis for us all. Can I apply the benefit of doubt that the so-called professional people involved aren’t quite ill too, and experiencing the same thing we can’t talk about? Yeah, maybe, but it sure is hard to. Although, I wouldn’t be so blatantly stupid, for the whole world to see, if I were any of them, on purpose. Only if I had ulterior motives, would I, and if I knew there were no laws to stop me. It’s wrong, very wrong, to play people for any reason, but especially those such as the people who think they have “morgellons disease”.

  33. hey buggzy, heard from bb lately?

  34. sarah b sazs:

    “I STILL DON’T THINK IT EXISTS AS AN INDEPENDANT CONDITION”

    so who cares what you think? or did you learn about epidemiology in some of your graduate level courses? oh, i forgot you have had any.

  35. Texastar, I’d asked you something, twice, under the Factitious Disorders topic, that I would still like to know, please.

    When you’d said to Michael:

    Several doctors have seen and reported in the media events as to seeing the fibers. quit reading off of last months menu and present some meat and potatoes instead of your unfounded spun, selfserving verbage.

    I’d commented:

    We know of Drs. Casey & Wymore, and Smith (”victim”, also) from televsion-land. Elsewhere, who, other than, Harvey, Stricker, Smith (again), all in on it, and Squirts (sorry, Schwartz), and Bev Drotter (”victim”, also).

    Do you mean “several doctors”, other than them? They hardly qualify.

  36. I KNOW IT DOESN’T EXIST AS AN INDEPENDANT CONDITION, and I only completed the 12th grade.

  37. Texastar, readers care what Sarah thinks because she expresses her ideas in an intelligent, polite and thoughtful manner, with clear exposition, and sound reasoning. This is independent of her credentials. If you wish to be taken seriously, then I suggest you try to emulate her communication style.

    Personal attacks are pointless. If you wish to argue, then argue for or against a point, or for the veracity of some claim, or the promotion of another. To do otherwise is simply noise, and can only damage your cause.

  38. Hey, Sarach? Hi. You know, I’ve tried to understand what you’ve meant about your hair growing into your face. Is is anything like hirsutism? Since you have mentioned that you’ve been on prednisone, and it is a side effect, would you mind looking at the picture in this link, and seeing if that is what you mean? If not, oh well. I was just trying to understand. Catch ya later, sweet potater!

    http://vasculitis.med.jhu.edu/treatments/prednisone.html

  39. hey michael,

    you are the one who put so much emphasis on credientials….”a doctor or scientist.”

    you consider anyone credible as long as they are saying what you want everyone to hear, reguardless of their lack of intregrity or expertness.

    you should practice what you preach concerning attacking and discrediting people.

    do unto others as you would have them do unto you….bozo.

  40. Hi Smileykins – i had a look at that site, thanks. BUT that is not what I meant.

    I know it sounds crazy but my head hair grows into the skin (tissue)on my forehead, into my eyebrows if the hair is long enough, and the left and right cheeks along the ears, and right through my face, and behind the ears also.

    When my hair was longer the hair in my face attached to my head was horrific. This was witnessed by others also. I had lost heaps of hair. I finally shaved off what was left because I couldn’t cope with the pulling sensation and the pain in my head,neck and face. I thought if it didn’t do that I was going to have a severe stroke. I new the symptoms I was having were a small stroke, but no one listened.

    My hair has grown back and I keep it nice and short/clean etc, but my hair still manages to grow into my forehead and eyebrows. As my skin starts to show more improvement and the thickening its getting less my hair pops out which is still attached to my scalp. My skin has been twisted, turned, backwards, forwards, creating ripples and thickening and I think my hair must get involved this way somehow. what I do notice is that the couple of spots I have on my forehead – after washing and moisturiser my face a couple of pieces of hairs will always migrate towards the spot, and it is a really funny sensation and I can actually feel it, and also see it happen in the mirror. The other strange thng I get is some very unusual grey hairs which grow very very quickly and are longer than my own hair, they are a different shape also (wiggled or look like they have been crimped).

    I think my hair has a severe allergy to the world also. I often wonder if environmental fibers can take up residence in my scalp and start growing!!

  41. “you are the one who put so much emphasis on credientials….”a doctor or scientist.” ….you should practice what you preach concerning attacking and discrediting people. do unto others as you would have them do unto you…”

    Funny, first my undergraduate wasn’t enough, and now that THAT’s thwarted, you’re stuffing my grad work.

    I am all ears to hear your credentials (do unto others, right?).

  42. Texastar wrote:

    do unto others as you would have them do unto you….bozo.

    What, you want people to call you “bozo” and generally belittle you?

    I think you misunderstand my point on credentials. Anyone and everyone is free to voice opinions and posit theories, you don’t need formal credentials to do that. It is useful if you are reasonably intelligent and somewhat familiar with the subject matter, but that’s not a requirement.

    It also helps your point if it stands up to scrutiny. This is where I mentioned “doctors and scientists”, I was asking you if knowledgeable and trained people in the field agreed with your particular theory. Obviously they do not.

  43. I’ve been introduced to this term:

    http://en.wikipedia.org/wiki/Internet_troll

    “A troll is someone who comes into an established community such as an online discussion forum, and posts inflammatory, rude, repetitive or offensive messages designed intentionally to annoy or antagonize the existing members….”

  44. Don’t feed the trolls!

    Sometime people can be trolling without even realising it.

  45. The worse they are, the less they seem to offer to help their “professed” cause.

  46. For people who want to remove scabs from their lesions and take a peek underneath, I’ve invented and I’m marketing a full line of scab jacks.

    I have one that looks like a tiny bumper jack. It works rather well once you raise one edge of the scab.

    I have one a super tiny hydraulic model that I like the best. But for those sufferers that really get into pain, I suggest my miniature cork screw.

    Tall Cotton

  47. I’ve been introduced to this term:

    http://en.wikipedia.org/wiki/Internet_troll

    “A troll is someone who comes into an established community such as an online discussion forum, and posts inflammatory, rude, repetitive or offensive messages designed intentionally to annoy or antagonize the existing members….”

    you’re pretty bright for a stupid bitch…

    now let’s take a look at what you ass clowns do here… refute this all you want fuckers… but here is where your true credentials lie… not in medicine or science…

    1) Avoidance. They never actually discuss issues head-on or provide constructive input, generally avoiding citation of references or credentials. Rather, they merely imply this, that, and the other. Virtually everything about their presentation implies their authority and expert knowledge in the matter without any further justification for credibility.

    2) Selectivity. They tend to pick and choose opponents carefully, either applying the hit-and-run approach against mere commentators supportive of opponents, or focusing heavier attacks on key opponents who are known to directly address issues. Should a commentator become argumentative with any success, the focus will shift to include the commentator as well.

    3) Coincidental. They tend to surface suddenly and somewhat coincidentally with a new controversial topic with no clear prior record of participation in general discussions in the particular public arena involved. They likewise tend to vanish once the topic is no longer of general concern. They were likely directed or elected to be there for a reason, and vanish with the reason.

    4) Teamwork. They tend to operate in self-congratulatory and complementary packs or teams. Of course, this can happen naturally in any public forum, but there will likely be an ongoing pattern of frequent exchanges of this sort where professionals are involved. Sometimes one of the players will infiltrate the opponent camp to become a source for straw man or other tactics designed to dilute opponent presentation strength.

    5) Anti-conspiratorial. They almost always have disdain for ‘conspiracy theorists’ and, usually, for those who in any way believe JFK was not killed by LHO. Ask yourself why, if they hold such disdain for conspiracy theorists, do they focus on defending a single topic discussed in a NG focusing on conspiracies? One might think they would either be trying to make fools of everyone on every topic, or simply ignore the group they hold in such disdain. Or, one might more rightly conclude they have an ulterior motive for their actions in going out of their way to focus as they do.

    6) Artificial Emotions. An odd kind of ‘artificial’ emotionalism and an unusually thick skin — an ability to persevere and persist even in the face of overwhelming criticism and unacceptance. This likely stems from intelligence community training that, no matter how condemning the evidence, deny everything, and never become emotionally involved or reactive. The net result for a disinfo artist is that emotions can seem artificial. Most people, if responding in anger, for instance, will express their animosity throughout their rebuttal. But disinfo types usually have trouble maintaining the ‘image’ and are hot and cold with respect to pretended emotions and their usually more calm or unemotional communications style. It’s just a job, and they often seem unable to ‘act their role in character’ as well in a communications medium as they might be able in a real face-to-face conversation/confrontation. You might have outright rage and indignation one moment, ho-hum the next, and more anger later — an emotional yo-yo. With respect to being thick-skinned, no amount of criticism will deter them from doing their job, and they will generally continue their old disinfo patterns without any adjustments to criticisms of how obvious it is that they play that game — where a more rational individual who truly cares what others think might seek to improve their communications style, substance, and so forth, or simply give up.

    7) Inconsistent. There is also a tendency to make mistakes which betray their true self/motives. This may stem from not really knowing their topic, or it may be somewhat ‘freudian’, so to speak, in that perhaps they really root for the side of truth deep within. I have noted that often, they will simply cite contradictory information which neutralizes itself and the author. For instance, one such player claimed to be a Navy pilot, but blamed his poor communicating skills (spelling, grammar, incoherent style) on having only a grade-school education. I’m not aware of too many Navy pilots who don’t have a college degree. Another claimed no knowledge of a particular topic/situation but later claimed first-hand knowledge of it.
    8) BONUS TRAIT: Time Constant. Recently discovered, with respect to News Groups, is the response time factor. There are three ways this can be seen to work, especially when the government or other empowered player is involved in a cover up operation: 1) ANY NG posting by a targeted proponent for truth can result in an IMMEDIATE response. The government and other empowered players can afford to pay people to sit there and watch for an opportunity to do some damage. SINCE DISINFO IN A NG ONLY WORKS IF THE READER SEES IT – FAST RESPONSE IS CALLED FOR, or the visitor may be swayed towards truth. 2) When dealing in more direct ways with a disinformationalist, such as email, DELAY IS CALLED FOR – there will usually be a minimum of a 48-72 hour delay. This allows a sit-down team discussion on response strategy for best effect, and even enough time to ‘get permission’ or instruction from a formal chain of command. 3) In the NG example 1) above, it will often ALSO be seen that bigger guns are drawn and fired after the same 48-72 hours delay – the team approach in play. This is especially true when the targeted truth seeker or their comments are considered more important with respect to potential to reveal truth. Thus, a serious truth sayer will be attacked twice for the same sin.

  48. well of course… a scab jack… the tweaker’s best friend… good job there ballsarotten… does it come with instructions?… i’ll bet shittykins can’t wait to dig in…

  49. You sure do lack reading comprehension. Ya know, that certainly isn’t your only deficit, either, MAFer.

    I’d like to see your credentials, if you don’t mind, TC.

    All kidding aside, though, like I’ve said before, morgie people are so suspicious of the motives of others, and always seem to be really big on this “credential thing”. They aren’t concerned, at all, over the credentials of the ones they should be concerned over. The Golden Rule should not be ridiculously ordered around so much, by one not applying it, either, especially, without basis for it, in the first place.

    Texastar, can you please respond to what I’ve asked, twice before, in comment number 35? Thank you.

  50. Thanks for posting that MAFer, it’s a fascinating look into the mind of a paranoid internet poster.

    As you know, the original version of your list was posted in 1997 by H. Michael Sweeney, and can be found in full here:

    http://www.ominous-valve.com/blog/25ways.html

    MAFer, perhaps you could point to ONE lie, error or inconsistency on my site? I’ll do my best to fix anything you find.

    I’d also be happy to add any evidence you feel I may have overlooked.

  51. He’s got to be here, the same as anyone else who thinks that they have “morgellons disease”, because he is seeking help. MAFer, how can we assist you? Please tell us, and we will be delighted to do what we can. That’s what I have been attempting to get to, with you, and others who are here, but you will not address the history of what you have, personally, and how come you are convinced that you have “morgellons disease”.

  52. MAFer,

    Click on your name. I think your snake-oil store is closed at this site.

    Tall Cotton

  53. margarette… i suppose that everytime you or one of your clowns post something, i could footnote it with an index number corresponding to that list… that would be pretty easy to do other than the time constaint… unlike you clowns here, most of us have real full-time jobs elsewhere…

    your last post for example… #1, second sencence… your new topics (and sbd’s too)… #2… most all of tc’s posts… #7… most all of sk’s posts… #6… and of course all of you exhibit #4 and #8 consistently with a smattering of #5 thrown in for good measure… your readers as well as yourselves… and this entire website for that matter… #3…

    you have left out many cutaneous disorders to be considered… for example, the entire family of trichotic diseases… many have similarities to morgellons lesions… you also refused to start a topic on cutaneous pathogens that due the their etiology/current treatment regimens, would require mechanical/surgical debridement… much easier for tc the fuckhead to make fun of scab picking instead… that would be a #2 btw…

    the question here really is not what have you ommitted?… but what have you really included?… very little obviously…

    you fuckers are either diluted, are liars, or both… plain and simple…

    paranoid internet poster?… me?… nah… i am just somebody who knows better… much better…

  54. Hmm. Very interesting, indeed. What the hell you’re talking about escapes me, though, completely.

  55. tallcotton Says:
    September 9th, 2006 at 1:49 pm
    MAFer,

    Click on your name. I think your snake-oil store is closed at this site.

    Tall Cotton

    hey meathbreath… aka tallcotton… when you click on my name, you are seeing a parked page… the advertisers on that parked page are placed there by the page parking company… and, everytime you click on one of those adverstiser/merchants/snake-oil saleman/whatever, you are simply advancing my click rates… thanks dumbass…

    here is a great link for you einstein… you are such a fucking moron…

    http://www.amazon.com/Internet-Dummies-John-R-Levine/dp/0764506749

    is it bothering you?… that i own several domain names… make me an offer and they could be all yours num-nuts…

  56. smileykins Says:
    September 9th, 2006 at 2:04 pm
    Hmm. Very interesting, indeed. What the hell you’re talking about escapes me, though, completely.

    i’m sure it does… #1…

  57. Ass Wiper,

    You wouldn’t know the truth if it jumped out of a bush and bit you on the ass. Your a fool!!

    Too bad your links are working now. How much money have you bilked out of Morgellons patients today?

    Tall Cotton

  58. Ass Wiper,

    Even if you aren’t making money off the products, you’re still helping others to. You’re a low-life. Face it!!

    Tall Cotton

  59. you’re right… sk has a bush… but i didn’t get any truth out of it… but i did get a bite on the ass for the trouble… thanks sk… loved it!…

    not really my links there moron… again, internet for dummies… dummy…

  60. Let me try this. Once upon a time, there was this fellur named, something. He got something, and thought he had something. Then, he got mad at everybody. Anybody that wants to understand what he’s going through, and how he arrived at the conclusion that he has something that isn’t something, but rather, something else, can’t get him to say anything. He thinks we’re enemies, all working together, against him. I swear to you, we aren’t. It’s wonderful that “most of you have fulltime jobs”. I, myself, am disabled, after having worked fulltime for many years. What this has to do with anything, though, is of no importance, other than to describe to you, since you must need to know, why I am on here too much for your liking. Listen, can you not forget this, “the most of us”? How about YOU, as an individual? I think that you, as one person, with your own individual set of circumstances, are more important than a whole bunch of misinformed individuals that make up an entire group of a lot of misinformed individuals. They’ll get nowhere, in solving their individual helth problems, that way. Do you want to solve yours, really, and truly?

  61. Ass Wiper,

    You’re still helping to promote their products. You’re helping them to bilk money from the Morgies. You’re all low lifes, and if there’s an idiot around here, you have proven it to be you. You’re just too stupid to realize how you come across to normal people. And, yeah, i do know. Fool!!

    Tall Cotton

  62. MAFer said:

    you have left out many cutaneous disorders to be considered… for example, the entire family of trichotic diseases… many have similarities to morgellons lesions…

    You are saying I should list all diseases on my site? This site is about Morgellons. I already say: “3. “Sufferers” have a mixed variety of physical and/or mental illnesses.” on every page, what exactly am I omitting?

    What’s a “trichotic disease”? Did you mean trichopathic (hair disease)? So what if these hair diseases have similarities to “Morgellons”? All that says is that some people who think they have Morgellons actually have trichopathy behind some of their symptoms.  Or perhaps you meant trichinosis?

    Show me any error in this site, and I’ll fix it.

  63. Really, Michael, I had thought that some of the links you’d included on your blog, back in the spring, actually led to some of the things that MAFer says that you haven’t included. Bossy, isn’t he? I think the lack of control over what he has ailing him, is making him act out in ways that he wouldn’t otherwise. I wish he could explain some of what is going on. He did slam down a few words on it, a couple of weeks ago, but he’s not trying to obtain any understanding from us. We’re getting a lot, though, just as many of the morgie people provide to us, here . It isn’t helping matters for them, though, and about all it really says, is that they just don’t like people very much.

  64. MAFer said:

    you also refused to start a topic on cutaneous pathogens that due the their etiology/current treatment regimens, would require mechanical/surgical debridement

    What should I say about them? That people who have them might mistakenly think they have Morgellons?

    It would be sad if someone had Necrotizing Fasciitis, but has somehow been convinced they had Morgellons, and all they needed to do was pick out the fibers from thier lesions.

    Again, what exactly would you like to discuss regarding these conditions?

  65. Michael – Very interesting the link on “trolling”.

    I used to see the term “newbie” at Lymebusters – which I thought was good at the time, so people could recognise someone new and needing support. I would like to think this was true. I could not see any harm from postings to a newbie back then, all looked okay and legite to me. I guess the experts on recognising trolling would have a better idea.

    Scarey stuff to be honest. You know I still to this day carry so much guilt for coming to MorgellonsWatch to fight Mary Leitaos battle by attacking Smileykins and Tallcotton.

    I have never ever been this sort of person in my entire life. When I was directed to Morgellonswatch I had no idea about blogging and was rather fearful, but my “programmer” thought I was doing a fine job!!! NOT

    So once again SK & TC I do hope I am forgiven for this. I never wish any harm on either of you okay, or you Michael.

  66. Sarach,

    I think you did a pretty good job too, but I have forgiven you. Likewise, I apologize to you for my ugly remarks. Let’s put it in the past and forget it ever happened.

    Tall Cotton

  67. Thanks TC – that does make me feel better. You have said in the past that you suffer I think Schziophrenia (sorry bout speling). Well my experience with these people in the past in my personal life has been nothing more than positive. I have always found them to be most interesting and highly intelligent. My great gran apparently suffered this disease, and from what I have been told, it was very hard and very sad for her. She basically became a prisoner in her home, and tended not to communicate with anyone.

    It is good to see that Mental Health has come a very long way since then and people with a mental illness without an underlying physical ailment, are receiving the appropriate treatment and RESPECT.

  68. Of course, you’re forgiven, Sarach. No, TC had a misdiagnosis from a shrink who wasn’t in tune to what he was telling him, at first. He has PTSD, not schizophrenia. I had cleared that up, previously, or tried to, with Aherah, or whomever she was being, at the time. It’s of no importance what anyone thinks, when it isn’t true, anyway, though.

    I want to talk about this, “morgellons disease”. Let’s get hypothetical, and say a patient develops a concern over the appearance of lesions that environmental fibers have become adhered to. Let’s say they call Mary Leitao up, and she tells them they have “morgellons disease”, for sure, and to get on the ball and start collecting material from their sores and looking at them underneath a microscope, and to try, along with everyone else, to search for, and try to identify, what her mysterious disease is caused by. She gives them the addresses and numbers to alert their local and federal authorities.

    Or, no, let’s imagine that a patient has already been to a doctor, or doctors, before taking that step in believing that they have “morgellons disease”, having not heard of it yet. They went to the doctor, with what they thought were specimens they’d collected from their lesions. Following proper protocol, based upon patient presentation (which does, afterall, take more into consideration than many patients even seem to be aware of), they are given a diagnosis of DOP and referred to a mental health specialist. What happens at that point, is different for everyone, but it’s often reported among such patients, that anyone who thinks that they have “morgellons disease” has been found to be “sane”. But, okay, anyway…

    Then what? One way, or another, if such people don’t treat the primary diagnosis (DOP), the secondary cause, which may very well, quite often, be the sole reason for the development of their misunderstandings, goes undetected, in some cases, and definitely untreated. As a result they worsen, of course.

    So, just as a hypothetical tool, suppose the patient in this case history, in the link below, thought that getting fibers in her lesions was unusual, and presented with the match-box sign to her doctor. Suppose she was insulted, and didn’t follow through on their initial diagnosis. If she had gone to see a mental health care professional, and she was open about what she was experiencing, based on all that I have ever read, the next step is to refer the patient for a consultation with a dermatologist to rule a parasitic infestation in, or, out.

    She has two choices:

    1. Follow her doctor’s diagnosis and follow-up treatment
    2. Worsen

    Let’s say she managed to do the right thing and followed her doctor’s diagnosis and advice. She told the mental health care specialist exactly what she was going through and how it was affecting her. Then, she went to see the dermatologist for evaluation. There, upon examining her skin, the dermatologist discovered what was wrong, which led to more tests.

    Now, her general practioner could have discovered it, in all probability, possibly, but she sort of freaked him out, because he’d never seen her acting that way before. He knew what the proper protocol was, and this was not a pleasant thing to be witnessing his longtime patient. Of course, though, she’d read his concern as having been something else, entirely, leading her into a further state of alarm.

    But naturally, things didn’t take that route, for the lady in this link below. I’m only using her case as an example, “had she” become overly concerned about fibers that had gotten into her lesions. This lady went to an ER, got a referral over her problem, and the pathway of discovery ensued.

    Everybody who thinks that they have “morgellons disease”, has their very own unique, and distinct, situation. But using this lady as an example, hypothetically, if things went a certain way for her, as I just said, and she focused, entirely on the fibers and didn’t follow-up properly, she could have gotten on the internet, instead. There, she could have discovered “morgellons disease” and compared the stuff that she got out of her lesions as looking pretty much identical to everyone else’s pictures of stuff they’d gotten out of theirs. That stuff doesn’t have too much of a choice but to all look the same way, people, but whatever health problems are causing oozing skin to get fibers in it, are numerous!!!

    And, upon closing, just imagine the seriousness of this ladies’s situation, if she had been that concerned over fibers, and taken all the wrong steps along the way, and become a morgie, quite by accident. That is what has happened to people, all having nothing in common, but totally convinced that they do! Some may have minor problems, some may have very major problems. They are all under a false belief.

    http://www.skinandaging.com/sa/displayArticle.cfm?articleID=article2426

  69. Very good story.

    I have and still do follow through on all the advice given to me by my treating physicians. I feel what created a “rift” for me with the medical community was when I first found the MRF website and was taking this information, as well as a letter from Leitao.

    Looking back I wish those medical people had of given me their “personal” opinion on the situation. You know tried to make me see what could really be happening. BUT they chose not to.

    Mary had programmed me to be rather aggressive to a couple of medical doctors, which has never been my approach before. These people were not upset with me, I could see that they felt sorry for me and my distress. (Especially given the fact that I had worked with them in the past).

    Even though I had given a couple of medical folk MRF info I had also added that I found the info. by Dr John Martin interesting, and said that maybe I had some type of stealth virus, and also gave them his information. So at least when I was under the infectious disease unit and dermatology psychiatry at a Melb Hospital, they took me seriously to try to figure this out. Of course at the time my blood work showed Rickettsiosis and elevated CRP & ESR, chest x-ray clear. Because I had not responded to one course of Doxycycline for the Rickettsia I was given a second cause reluctantly. The hospital could do no more for me. I did the Psychiatric inpatient stay for 3 days, and their final conclusioin was a physical illness as the underlying cause – but could not determine what is was. But they also felt that I was being severely effected by the Lexapro and that my dose of 40mg daily was very questionable, they did point this out to my treating shrink, but nothing changed.

    You see Rickettsia in Aussie is treated purely with one course of Doxycycline, end of story. This is not a reportable disease, and I could not find any info. within aussie on the internet as to a different treatment regimen for a person suffering chronic rickettsiosis of the spotted fever group which has gone untreated or detected for many many years.

    I carry all of these little buggers : R. australis (Queensland tick typus), R. honei (Flinders Island spotted fever), R.conorii (Meditarranean spotted fever), R. sibirica (North Asian tick typhus), R. rickettsii (Rocky Mountain Spotted Fever), R. akari (Rickettsial pox). Positive titre reading March 2005 was 512 for all and further tests July 2005 showed positive titre 256 for all.

    Had I continued with the MRF rubbish and not looked after me health first I think I would be dead by now. Hence to say I did put my health issues first but still carried on the MRF rubbish, which has definitely added to further worsening of all of my symptoms.

  70. Michael – this particular post – is this an example of internet talk, with reference to trolling, or in group talk, whatever they call it??

    texastar Says:

    August 28th, 2006 at 10:49 am
    Yes, Michaelllo(n$),

    Agree binary 0 or 1. data statement should contain other possibilities but morgellons should be included.

    101 for i=1 to 1000:read n$(i):? n$(i):next I

    ** I am not saying Texstar is a troll – I just thought it was a good example, because I can not understand it.

  71. Sarah Bione-Dunn Says:

    September 8th, 2006 at 8:17 am
    Been thinking a little more about PMMD and about cross-cultural studies. Women in China do not report menstrual distress (cramping, bloating, emotional distress). Now I’m leaning toward PMMD being a Western construct, but then again, I’ve never seen Robert DeNiro in the mirror (yeegads!).

    These are all contraversial topics. Chronic Fatigue Syndrome, I found to my surprise, is still a contraversial disease.

    http://www.kidshealth.org/parent/system/ill/cfs.html

    The more I read about it, the more I read it has similarities with “Morgellons.” For example, it has no known cause, it is only a list of symptoms with few being common in all cases

    Dear Sarah – Do you know the local health centre in my area now has new pamphlets on CFS – the only thing missing is lesions and fibers.

    Don’t know a great deal about Chinese culture and women, but the little I do know – they seem to have a really hard life, and a lot of women commit suicide by 30 yrs of age. We really are very lucky in comparison.

  72. Michael – I was also programmed to believe that you were a Dermatologist and that was your reason for starting this website.

    Even if you are a Derm. still doesn’t give someone the right to programme a sick woman to attack you.

    I remember one of the first emails you sent me and you said “maybe I am Dan Rutz” – if you are, well even better, at least the information is getting to the right place.

    BUT – I am not disbelieving you about being a retired computer programmer. All that matters to me is that your reasons behind starting this website was purely to help victims. So far you have helped me, thanks.

  73. Texastar was not really trolling with the binary/code comment above, he was just trying to use a clever analogy that did not really fit.

    And thank you for your kind words. I genuinely do want to help people, and I am who I say I am.

    I’m glad you are continuing to do well with your health.

  74. On the topic of controversial diseases I found this link.

    http://www.morgellons.ca/index.htm

    Have you seen this Michael?

  75. “And thank you for your kind words. I genuinely do want to help people, and I am who I say I am.”

    I thought you were just having fun, Michael, like you said (a hobbie?). You thought maybe you might help the “marginal” ones, right? Sarach, do you have a combination of symptoms described on the MRF website including fibers that come out of skin/lesions? How is it that all these people are “programming” you? You do realize that Michael is a computer programmer. Apparently HIS programming techiques work pretty good on you too.

    Who are you? Who Who. Who Who. (sing it with me now!) Who are you? Who Who. Who Who. Now if you were Dan, I’d be pissed that you were spending so much time here and not working!!!! Ya know, there has been a tremendous amount of B.S. landing on your blog lately. Yes, S.B. espouses some serious B.S. Apparently she goes to a school in which postmodern thought is NOT taught. She sure seems to believe in her ability to diagnose thousands of people she has never met and then package them in some profoundly unflattering labels. She has earned the title of Queen of B.S. We’ll forgo that argument for another day though; I’m too busy to play these days. Just checking in Michael.

    ah

  76. Of course I have all the symptoms listed on the MRF website. How do you think that Michael is Programming me? Do YOU or anyone for that matter have the ability to read my mind?

    You can read my posts, but ya can’t read my mind or see me. Just like I can not do either with regards to any of you. BUT the discussion here is Morgellons.

    I am using this blog site to get the word out about TRUTH. What I have suffered (and others) at the hands of the MRF and all affiliated. Until these people put themselves forward and give an explanation to us all, I think we will be blogging and debunking till the cows come home. We are all victims of their cruelty and the very reason we are here now.

  77. I am in no position to comment on SB – that does not mean to say I agree with all her articles. I can joke and have fun about it, but I ain’t giving myself a title of any of them, I don’t need a damn label.

    Aherah – Maybe Michael could be just another extention of the MRF working under the radar??? Lots of good stuff has been discussed on here – which will in turn fill the back pockets of lots of ‘experts’ with their fabricated psychiatric illnesses.

    I may be a victim of Mary Leitaos insane Morgellons Disease but I am not completely blind, just act that way at times.

  78. People need to ask themselves what has motivated them to do what they have done???? MRF and others.

    These people need to be accountable for their actions IMMEDIATELY and give us a response, the circus is certainly drawing to an end.

  79. So Michael – Can I ask you is this “Morgellonswatch” a case of “Good cop versus Bad cop”.

    I am all for not using the term Morgellons Disease. We all have lots of fibers in our body, which is the commenality which has brought us together.

    The fibers distress me no end, especially the way in which the pathogen in my body and skin – will utilise these fibers in such a way to hold the skin in a particular position, twist the skin into a circle and so on.

    I have never found a medical document to date that describes exactly my physical symptoms nor has any doctor I have seen. Hypothetically, if I were the only person in the world with these symptoms, it certainly is something new to the medical establishment in this part of the world.

  80. So people how is my “programming” ability going so far??

  81. By the way I did register with Medscape – good website. I had to slightly change my user name of SarahConnor because it had already been taken. I would much prefer that it was spelt “Sarah” rather than “Sarach” which is what comes up on this blog site. Especially since the arrival of the new “Sarah” and not forgetting her timing also, becomes confusing at times for readers I guess.

  82. Examine a dozen or so swabs or Q-tips, or cosmetic cotton balls. Concentrate on watching the filaments that are sticking out randomly from the rest of the wound cotton. Give each one a minute or two of examination. See anything that appears to be acting in a rather “uncommon” cotton fiber manner.

    Place the cotton beneath a jar if air movements are a problem.

    Not all cotton appears to be infected, but much of it is. Of the last 5 boxes of Q-tips I bought and examined, 4 of them were full of these parasites.

    On some of the individual swabs you may see s 3 or 4 parasites. There has been some thought as to the generic engineering of plants – noting specifically cotton plants.

    So, is Cliff gonna sue Johnson & Johnson? I sure hope he at least saved his store receipt and returned the unused portion of contaminated Q-tips for a full refund of his purchase price.

    Okay, so which is he? Well over a year ago, I’d thought he was a sci-fi writer, heavily into on line role playing games. I tried to dissuade morgies from paying any attention to him, not dare dreaming, back then, that anyone ever would, when he’d posted a link on LB, to his silliness. Then I found out, later, that he’s a human-imagineeering writer. Then, I discovered that page he wrote, on that link I provided underneath the “White Fibers Fluoresce Blue under UV” topic, which is insightful, and self-explanatory.

    He’s been an enigma, himself, with me having wondered if he’s a true person convinced that he has “morgellons disease”, or whether he’s just another plant to draw more vulnerable people in on it. But, that is the thing with this, of course, because both alternatives pretty much equal the same.

  83. The following websites trouble me – Morgellons Research Foundation, Lymebusters, Morgellons Group, Biology Online – are you all collaborating?? Sure has felt that way in the past, and at times still does.

    If this is a way to get the word out to the CDC to enable them to take action – GOOD!!! If it isn’t then I would say we have some seriously “cult” issues on message boards and websites regarding Morgellons Disease.

  84. Morgellonswatch – are you collaborating also with the above website?

    Michael – this is not a question for you – this is a question for the person who hands you the material to place on this blog site every morning.

    An honest answer would be appreciated, but I think the use of the words HONEST & TRUTH have been abused and bashed to death since Morgellons Disease was invented.

    I am proud to say I still and have always told the truth.

  85. Smileykins said:

    He’s been an enigma, himself, with me having wondered if he’s a true person convinced that he has “morgellons disease”, or whether he’s just another plant to draw more vulnerable people in on it. But, that is the thing with this, of course, because both alternatives pretty much equal the same.

    Well on that note Smileykins I think the sooner someone tells us what this “Morgellons” is the better off we will all be.

  86. When cotton fibers are wound onto the “stick” to for a cotton swab, they are wound with a certain amount of tension. When these swabs are unpacked they begin to unwind because the tension is allowed to release. There’s nothing mysterious about it. There isn’t anything inside those cotton fibers but cotton. And they are cotton. The same is true when when you wad up a ball of cotton to make a cotton ball. It’s gonna unwad itself until all the tension is released.

  87. Nope, I’m all alone here SarahConnor, except for those two articles SB wrote. I’m just a retired computer programmer doing this alone.

    I don’t think any of the websites you mentioned are really collaborating. But there are probably some individuals who post to two or more of them.

    What people say on the internet is meaningless in itself. Look at the evidence, and see for yourself what is right.

    Aherah, good to hear from you again. It’s a pity you can’t stay around and chat.

  88. Did anyone ever say that one man’s pity is another man’s party? If not, they should have. Pity Party!

  89. Michael said: What people say on the internet is meaningless in itself. Look at the evidence, and see for yourself what is right.

    *********************************************************************

    You are not wrong on that one Michael.

    *********************************************************************

    Why is it that alot of people reporting to have Morgellons (victims) are having a lot of computer issues?? ie. internet users attaching themselves to msn hotmail contact lists, as well as a massive increase in junk emails that never go to the “junk” box but the “inbox”. All I receive in the way of emails these days is rubbish, I just don’t seem to get what I used to get.

    Skype had to be installed on this computer not because Cliff Michelson told me on the phone to do so, BUT because the person who owns this damn computer needs it for his job, his boss asked him to put it on.

    And already today – someone has intercepted and come online asking for Tony by his full name during my blogging here. He was not happy about it at all.

    So far for the month of September – 15,370 hacker attempts on this pc in one week – already today there has been some 340 attempts.

    dedicated66.thehideout.net has been trying its guts out for a long time to hack into this computer ping trace, Melb – USA sunnyville, new york.

    Taking a chain saw to this computer is looking pretty good I think!!!!

  90. You should try running something like ad-aware:

    http://www.lavasoftusa.com/software/adaware/

    I don’t think Morgellons victims get more spyware than average. Perhaps they are just a tad more suspicious.

  91. Michael Says:

    September 10th, 2006 at 12:13 am
    Nope, I’m all alone here SarahConnor, except for those two articles SB wrote. I’m just a retired computer programmer doing this alone.

    So Michael – do you choose the topic of the day so to speak ie. “Occams Menopause” etc etc in other words do you google the topic and take it from there??

    I am aware SB gave you those two topics and asked for them to be posted. Why do you think that is??

    I feel that introducing more and more “fabricated” psychiatric illnesses – is just another smoke screen to confuse the entire F@$# out of everyone.

    Why keep adding fuel to an already controversial issue?? Post away SB as long as you understand that your topics are purely to give us something to talk about, inbetween dealing with real issues.

    I have said it from the word go – Why the hell does our body suck in environmental fibers??

  92. TC – good point about the cotton balls.

    http://www.cdc.gov/ncidod/eid/vol7no1/valdezate.htm

    This link shows an interesting little bacteria that sticks to everything. I have them growing off my clothes pegs!!!!

  93. Michael Says:

    September 10th, 2006 at 12:45 am
    You should try running something like ad-aware:http://www.lavasoftusa.com/software/adaware/

    I don’t think Morgellons victims get more spyware than average. Perhaps they are just a tad more suspicious.

    Michael – you throw that bait and I come a running don’t I. We are not more suspicious. I live in a house with someone who couldn’t give a rats bum about Morgellons and he has told me that this has happened via msn hotmail, I said – thank you I thought it was me going mad!!

    I am not a computer genius at all, I can move a mouse and work a keyboard, anything more goes over my head.

  94. tallcotton Says:
    September 10th, 2006 at 12:22 am
    Did anyone ever say that one man’s pity is another man’s party? If not, they should have. Pity Party!

    Is that what this blog site is all about then??

  95. Michael – Your computer programming skills are starting to urk me a little.

    Ad-ware?? Do you not think that most intelligent people with a pc try to protect their computer from hackers??

    I don’t think even the chain saw would stop the majority of them. Scratch my back and I’ll scratch yours – is certainly something that has come to light with Morgellons. All the parasites have been unearthed and in attack mode. We are not alone – my god the aliens have landed!!

  96. Sarah Bione-Dunn, why you naughty-naughty girl. Who did you diagnose while I’ve not been looking?

    Part I — I feel like doin’ a lil breakin’-it-down.

    From: Morgellons Research Foundation
    Date: February 14, 2006

    Subject: CASE DEFINITION – MORGELLONS DISEASE (DRAFT)

    The following case definition of Morgellons disease has been developed by physicians on the medical advisory board of the Morgellons Research Foundation. This case definition is a preliminary and evolving document, now updated for review by the Centers for Disease Control and Prevention (CDC). This document will be refined as further information becomes available and as members of the medical advisory board deem necessary.

    The Following Six Signs or Symptoms Are The Basis of Morgellons Disease

    1. Skin lesions, both spontaneously appearing and self-generated, with intense itching. The former may initially appear as “urticarial-like”, or as “pimple-like” with or without a white center. The latter appear as linear or “picking” excoriations. Even when not self-generated, lesions often progress to open wounds that heal abnormally and usually incompletely. (e.g., heal very slowly with discolored epidermis or seal over with a thick gelatinous outer layer.)

    Here I go, on…

    Number 1: Skin Lesions

    *Skin lesions, both spontaneously appearing and self-generated, with intense itching.

    The word “lesions” was chosen purposefully, to cover anything, and everything. RED FLAG

    That means lots of people itch. That means people develop lesions from conditions that produce them, of which there are many. RED FLAG “Self-generated”, means self-inflicted skin wounds. RED FLAG

    *The former may initially appear as “urticarial-like”, or as “pimple-like” with or without a white center.

    That means, that people who have caused self-inflicted skin wounds have dug at hives, or at zits. RED FLAG

    *The latter appear as linear or “picking” excoriations.

    That is because they ARE. It was just described right above. They scratch and dig. RED FLAG

    *Even when not self-generated, lesions often progress to open wounds that heal abnormally and usually incompletely. (e.g., heal very slowly with discolored epidermis or seal over with a thick gelatinous outer layer.)

    Even if someone is not a “picker” lesions often progress to open wounds that heal abnormally and usually incompletely. There are conditions that would account for interferring with that, two right off the bat, are smoking, and diabetes. RED FLAG

    Now, if this is not the stupidest way of describing, so far:

    “heal very slowly with discolored epidermis”…That is what is known as A SCAR.

    “or seal over with a thick gelatinous outer layer”…OMG. That is sebum & plasma, perfectly NORMAL.

    RED FLAG, RED FLAG

    And, furthermore, environmental fibers get stuck in each and every open skin wound that a human, or any other warm-blooded mammal, has.

    This was constructed on such a below remedial level “developed by physicians on the medical advisory board of the Morgellons Research Foundation”, of course, to appeal to a particular audience that would understand it, and identify with it. Just like Wacky Wymore’s infamous letter to physicians.

    That’s all for now.

  97. Skooze me, I got my “former & latter” mixed up:

    *The former may initially appear as “urticarial-like”, or as “pimple-like” with or without a white center.

    CORRECTION: That means the spontaneuosly appearing lesions, are initially just hives, or zits.

    So? RED FLAG

  98. Hey now, wait. I can break that top one down some more…

    *Skin lesions, both spontaneously appearing and self-generated, with intense itching.

    “Spontaneously”, as in coming into contact with an allergen; “self-generated” , as in a systemic condition.

    Everything is covered, naturally, and all perfectly explanable. (We all already know that this gets wilder, as it goes, but that number 1 in the made up case defintion is plenty outrageous!)

  99. Uh-oh. So, I can do this one again too…

    *Even when not self-generated, lesions often progress to open wounds that heal abnormally and usually incompletely. (e.g., heal very slowly with discolored epidermis or seal over with a thick gelatinous outer layer.)

    That can also be taken to mean, “self-generated”, as in, for instance, lets say, a systemic disease like lupus erythrematosis, occuring in someone who is also a diabetic. Their “self-generated” skin wounds would progress, and be difficult to heal, or slow to. Then, that second half of that statement would pertain to scab jackers.

    Mercy.

  100. Sorry y’all. Yes, I chewed on that way too much. OCD, ya know.
    HAHAHAHA (That wasn’t meant for you, Houston. Hi, there, though.)

  101. I still see another one….

    *Skin lesions, both spontaneously appearing and self-generated, with intense itching. The former may initially appear as “urticarial-like”, or as “pimple-like” with or without a white center. The latter appear as linear or “picking” excoriations.

    “Former” aka “spontaneously appearing” = “urticarial-like”, which would mean breaking out in hives

    “Self-generated” aka “the latter” can also be referring to the later part of that description = “pimple-like with or without a white center”, which is also “the latter”, that is involved in excoriations and self-inflicted skin injuries.

    The wording is designed just right to fit everyone perfectly, backwards and forwards, former and latter.

    RED FLAGS OUT THE YING-YANG. Good-night.

  102. Here is another link which I meant to put with the other link on cotton balls (sorry I forgot)

    http://www.cdc.gov/ncidod/EID/vol8no9/01-0535.htm

  103. I feel that introducing more and more “fabricated” psychiatric illnesses – is just another smoke screen to confuse the entire F@$# out of everyone.

    Why is the word F@$# made into a link for an email?? We all know what the word is don’t we?

  104. Sarah Bione-Dunn Says:

    September 8th, 2006 at 8:17 am
    Been thinking a little more about PMMD and about cross-cultural studies. Women in China do not report menstrual distress (cramping, bloating, emotional distress). Now I’m leaning toward PMMD being a Western construct, but then again, I’ve never seen Robert DeNiro in the mirror (yeegads!).These are all contraversial topics. Chronic Fatigue Syndrome, I found to my surprise, is still a contraversial disease.

    http://www.kidshealth.org/parent/system/ill/cfs.html

    The more I read about it, the more I read it has similarities with “Morgellons.” For example, it has no known cause, it is only a list of symptoms with few being common in all cases

    Sarah bioDUNG – if you got your face out of everyones business you could probably spend your time reading something worth while. You would then probably understand why woman in china do not report menstrual disease because if they did their damn husband would kill them, so they suicide in stead.

    So Sarah – funny name for a man don’t you think? Yes you do strke me as man a very controlling and manipulative man. No woman in her right mind would put her name to that document of yours on PMMD. That symptom list describes every person in this entire world male and famale. (leaving aside points of reference only relating to woman, I can’t be bothered re reading it at the monent).

    I think you have an over load of flagella in your brain. You are not immune from the Stenotrophomonas maltophilia bacteria because the water is full of it, even if you are a psychiatrist.

    Money hey – what people do for money – because they got a degree in Head manipulation/control/psychiatry they think this will give them all the answers, just doing the book work and there you go. You learn from a damn book when you are in training BUT you are still in damn training because the general public is and always has been your god damn guinea pigs. Making money for the likes of you. Lets add some psychiatric medication to the mix……Hell on wheels we got ourselves our real life walking talking robot, and research model.

    BUT then again you and your documents could also be a fabrication as to prove ot push the issue surrounding Morgellons. Then you have to bring MCS into it and then CFS chronic fatigure. Well bust ya cover why don’t ya. Chronic fatigue was put on the shelf until 2010 by the CDC. People really want to hurry things along. And lets just say USE people like myself to learn lots and lots more about diseases effecting humans with hormones gone a bit crazy and whatever else in the pot.

    So SarahbioDUNG take your psychiatric manual and go play on someone else, I have been sucked dry emotionally by the Psychiatric community.

  105. One more thing Mrs BioDung – Your somatoform disorders and factious diseases, and ya bdd and ya ocd and ya stick it up ya bum chum is only the cause of an UNDER LYING DISEASE.

    Oh also you want my theory on your Munchhausens syndrome via proxy – it really is a syndrome and yes it is involved in Morgellons BUT not the horrible, cruel way that is described in the rubbish I have read recently. This also has an UNDER LYING DISEASE.

    What causes my ma to fall under this category of yours and alike? The fact that she loves me, and I do know that she does have a disease and physical one which which feeds the anxiety in her. The body is one big ORGAN… The brain and organs communicate….

    So to break it down for you dumb ass woman get anxious and so do men. Anxiety is a pain which can not be described okay. What causes anxiety? No idea. BUT anxiety is connected to just about everything in life just like stress. What causes stress? No idea.

    Find the pathogen that causes stress and anxiety and then maybe you might have something to blow your horn about. All that I have read from you is nothing more than premature ejaculation. Time go see your pharmaceutical buddy to top up on the viagra, get him to give you some freebie post it notes and pens. You may have earned yourself enough frequent flyer points for a free holiday….congratulations.

    You know I wouldn’t feel quite right about a free holiday…knowing that I had given psychiatric medication to certain patients when I shouldn’t have done or maybe even pushed the boundaries a tinsy on the dosage just to see what happens hey>>

  106. See Mrs Sarah FungDung – you got me running around in circles now. I just walked into the bath room to jump into my bath, looked in the mirror and bang I remembered thing else to tell you.

    You Suck – good night.

  107. Michael – Why is it you once said “the path of Morgellons has already been set”.

    They are pretty powerful words don’t your think?

    Especially given the amount of time we spend doing this blogging.

    Please answer me this – Why is it that a document that was sent to my computer via the MRF from the CDC (Letter to CDC patients) – when I open this and click on print – in the print folder I can click on the document to print it BUT I can also print on about 250 something more and these documents are all websites that I may have visited, or documents I may have received with picture attachments. Is this normal? because I have never seen it before.

    Why should that document from the CDC have websites visited by myself in the print folder command?

  108. Sarah Bione-Dunn Says:

    September 8th, 2006 at 8:29 pm
    Hey Southcity,I’m *almost* a fan of “unidentified dermatitis syndrome.” That works. It doesn’t add a name, a history, and questionable background to an unknown physical condition.

    I still don’t think it exists as an independant condition, but I’d be satisfied with the UCS method of putting the horse before the cart.

    Mrs CowDung – since you are a shrink you really do make it so obvious that one of the major issues with Morgellons has been and still is the Dermatology and the Psychiatric community. Not the patient BUT YOU DAMN DOCTORS.

    *******************************8

    You say:

    I’m *almost* a fan of “unidentified dermatitis syndrome.” That works.

    In other words – you believe in something BUT not Morgellons.

    I still don’t think it exists as an independant condition, but I’d be satisfied with the UCS method of putting the horse before the cart.

    Who, What, Where, Why, When & How???? BIG NOSE!

  109. You know seeing the words RED FLAG being thrown about in that Case Deinition reminds me of Lymebusters.

    Did you catch all those RED FLAGS Mrs BIO BIG BUM. Does this correlate with all the other programming you and every one else has done here today??

    Won’t wash with me buddy.

    “Twenty-Five Ways To Suppress Truth” – and you call yourselves caring human beings.

  110. Time to start a Morgellons Protection Programme.

    Could we make it a nice tropical location, with everything thrown in for free?

  111. Artificial Emotions – “thick skinned” – well stop god damn stratching Michael and get to the doctor.

  112. Michael said…

    “Aherah, good to hear from you again. It’s a pity you can’t stay around and chat.”

    Tall Cotton asked…

    “Did anyone ever say that one man’s pity is another man’s party? If not, they should have. Pity Party!”

    Sarah Connor asked…

    “Is that what this blog site is all about then??”

    To Sarah Connor,

    As you can see, my comment, above, was in reference to Michael comment about Aherah’s absence. I was referring to nothing else.

    Tall Cotton

  113. Dear Sarah Conner,

    Nothing validates and justifies your concerns like name-calling and senseless, incomplete sentances, in my opinion. :) Good show. Your comments reminds me of a time I was volunteering with a five-year-old who wanted cookies, not fruit, for snack and called me a poo-poo-head.

    I’ve read your comments a few times through, and I can’t find what your complaint is with me. Instead, you seem to have problems with

    1) manipulative, controlling men
    2) negative, false concepts about Chinese women
    3) psychiatrists
    4) facts from textbooks

    Your comment about Chinese women is, except in rare occasions, wrong. I’m sorry you dislike facts. Furthermore, I am not a man, nor a psychiatrist. ;)

    If you’re angry, instead of acting like a child and lashing out at someone you have admitted you don’t know,

    “Mrs [Bione-Dunn] – since you are a [student of psychology] you really do make it so obvious that one of the major issues with Morgellons has been and still is the Dermatology and the [mental health] community. Not the patient BUT YOU DAMN DOCTORS.”

    I had to correct some basic errors in your comment to make it legitimate in the first place, but, the patients are very often the problem too. If they would accept a diagnosis, pursue treatment, and take care of themselves, instead of hating doctors and self-medicating with bleach on their skin or worse, they might actually get better.

    “Who, What, Where, Why, When & How???? BIG NOSE!”

    I want you to go back and read that post you wrote. Are you able to write it again so it makes a coherent statement? Or is this a statement against my Italian genes, that I have a big nose?

    I will continue with a new post….

  114. “Oh also you want my theory on your Munchhausens syndrome via proxy – it really is a syndrome and yes it is involved in Morgellons BUT not the horrible, cruel way that is described in the rubbish I have read recently. This also has an UNDER LYING DISEASE.”

    Munchausens syndrome by proxy– the process of lying, emotionally and physically abusing children– “yes it is involved in Morgellons”?? “But not in a horrible cruel way”?

    Munchausens syndrome by proxy is the falsification of physical symptoms for the cruel, premeditated abuse of children. MSBP often involves drugging children so that they vomit or become unconscious or have horrible headaches, so that the parent abuser can receive attention…. but this is NOT horrible and cruel?

    MSBP is also one of the most lethal forms of child abuse– but it is not horrible and cruel?!

    If this is true, SarahConner, steps must be taken to have every child and every person who is a parent registered to have Morgellons to have their children taken to safety. So tell me, is it true that Morgellons is linked to child abuse and you don’t think there’s anything wrong with that, yes or no?

  115. SarachConnor (abac68) Says:
    September 10th, 2006 at 4:45 am

    Michael – Why is it you once said “the path of Morgellons has already been set”.

    They are pretty powerful words don’t your think?

    What I said was:

    July 12th, 2006 at 7:14 pm e

    Well, the path of Morgellons is all planned out, and this is a document that is going to be released in 2016, to alleviate global panic.

    Or, it’s just the CDC case definition for CFS, with some search-and-replace.

    http://www.cdc.gov/cfs/cfsfullcasedefinition.htm

    It was my way of illustrating how silly some of the conspiracy theories are – I gave two explanations, you choose which one makes sense, then ask why you choose that one.

    The original post this was in (CDC Paper on Morgellons), was one where I had taken the most recent CDC position on Chronic Fatigue Syndrome, and replaced “CFS” with Morgellons. My intent there was to illustrate how similar CFS and Morgellons are, and also illustrate some of the problems in studying diseases with no diagnostic markers.

    If anyone missed that post, I recommend reading it, and the linked paper.

    http://morgellonswatch.wordpress.com/2006/07/12/cdc-paper-on-morgellons/

    http://morgellonswatch.wordpress.com/about/morgellons-disease-a-comprehensive-approach-to-its-definition-and-study/

  116. Smiley:

    That can also be taken to mean, “self-generated”, as in, for instance, lets say, a systemic disease like lupus erythrematosis, occuring in someone who is also a diabetic. Their “self-generated” skin wounds would progress, and be difficult to heal, or slow to. Then, that second half of that statement would pertain to scab jackers.

    I always thought they meant “self-generated” as in “scratched out by the patient”, rather than the product of a systemic condition, since they say:

    1. Skin lesions, both spontaneously appearing and self-generated, with intense itching. The former may initially appear as “urticarial-like”, or as “pimple-like” with or without a white center. The latter appear as linear or “picking” excoriations.

  117. SarachConnor,

    So Michael – do you choose the topic of the day so to speak ie. “Occams Menopause” etc etc in other words do you google the topic and take it from there??

    I don’t do a topic every day, I just write something when it occurs to me, or when there is “news” (like the ABC thing). And yes, I basically just Google, and write my thoughts.

    I am aware SB gave you those two topics and asked for them to be posted. Why do you think that is??

    She’s interested in the subject, because she studies things like Munchausen and DOP, which is often associated with Morgellons.

    Michael – Your computer programming skills are starting to urk me a little.Ad-ware?? Do you not think that most intelligent people with a pc try to protect their computer from hackers??

    Most people do not. I was just trying to help.

    Why is the word F@$# made into a link for an email?? We all know what the word is don’t we?

    It’s because it has an ‘@’ in it, any bunch of characters would do the same, you@seewhatImean?

    Why should that document from the CDC have websites visited by myself in the print folder command?

    Things go wrong with computers all the time. Occam would say it’s just your computer messing up, since that’s the simple explanation. Of course you could say it’s all part of a conspiracy, or that angels did it, but that’s introducing extra entities. The explanation that does not introduce new entities should be picked as the most likely, all other things being equal.

    Artificial Emotions – “thick skinned” – well stop god damn stratching Michael and get to the doctor.

    The “25 ways” document you are referring to can be applied to EVERYONE if you use your imagination. You could look at your own posts, and it would apply to you. It’s a bit like a horoscope.

  118. Michael – you throw that bait and I come a running don’t I. We are not more suspicious. I live in a house with someone who couldn’t give a rats bum about Morgellons and he has told me that this has happened via msn hotmail, I said – thank you I thought it was me going mad!!

    I am not a computer genius at all, I can move a mouse and work a keyboard, anything more goes over my head.

    Sarach, I have never even been to a Morgellon’s site before today, and I had the dramatic increase in spam emails a few weeks ago. The spammers are getting more devious. They are targeting EVERYONE, not just you. It is apparent that you have some sort of paranoia, as you interpret every subtle action as an attempt against you personally. I hope you are able to get help for your mental condition.

  119. Sarah Connor,

    Hang in there. Everything’s gonna be okay. It takes a while, and you’ve already come a long ways.

    Tall Cotton

  120. Sarach, maybe if you could just try to consider that any type of dysfunctionings in living things is not always going to tie in to being the sole result of a pathogen, that could help you a great deal.

    Michael, yeah, when I’d looked at that one last time, I’d realized that “the former”, was just for the “spontaneously appearing skin lesions”, which are either hives or zits (which could be systemic, or from skin contact with allergens), with “the latter” being only scratch wounds and excoriations, that a person does to themselves.

    It’s totally ludicrous, covering everybody with any type of skin condition. There is not a living soul that wouldn’t fit into that number one skin category. However, people are supposed to exercise control, one way or another, over the urge to scratch, and people aren’t ever supposed to pick on, or play around with, sores to keep them from healing.

    If they aren’t healing on their own, some blood work needs to be done to see why. Broken skin is naturally gooey, and since it is, it just so happens to attracts things to stick to it, like fibers, that we all pick up from everywhere. That’s the only thing “morgellons disease” started out being, with little Drew’s eczema, back in 2002.

  121. Another thing, Sarach. You have courage. Jeezelousie had mentioned it to you previously. You’re doing fantastic, and we’re very proud of you, too. You’ll continue discovering more of who you truly are, and that having been a member of a group, who cannot help allowing utter chaos to reign supreme over them, will not help you in your personal life. You grabbed onto the lifeline yourself. Do not let anybody put you down and try to drag you back into their misery.

    Twenty-Five Rules of Disinformation

    1. Hear no evil, see no evil, speak no evil
    2. Become incredulous and indignant
    3. Create rumor mongers
    4. Use a straw man
    5. Sidetrack opponents with name calling, ridicule
    6. Hit and Run
    7. Question motives
    8. Invoke authority
    9. Play Dumb
    10. Associate opponent charges with old news
    11. Establish and rely upon fall-back positions
    12. Enigmas have no solution
    13. Alice in Wonderland Logic
    14. Demand complete solutions
    15. Fit the facts to alternate conclusions
    16. Vanish evidence and witnesses
    17. Change the subject
    18. Emotionalize, Antagonize, and Goad
    19. Ignore facts, demand impossible proofs
    20. False evidence
    21. Call a Grand Jury, Special Prosecutor
    22. Manufacture a new truth
    23. Create bigger distractions
    24. Silence critics
    25. Vanish

  122. Sarah Bione-Dunn Says:

    September 10th, 2006 at 8:31 am Nothing validates and justifies your concerns like name-calling and senseless, incomplete sentances, in my opinion. Good show. Your comments reminds me of a time I was volunteering with a five-year-old who wanted cookies, not fruit, for snack and called me a poo-poo-head.

    I am a poo-poo-head.

    *****************************************

    I’ve read your comments a few times through, and I can’t find what your complaint is with me. Instead, you seem to have problems with1) manipulative, controlling men
    2) negative, false concepts about Chinese women
    3) psychiatrists
    4) facts from textbooks

    Your comment about Chinese women is, except in rare occasions, wrong. I’m sorry you dislike facts. Furthermore, I am not a man, nor a psychiatrist.

    If you’re angry, instead of acting like a child and lashing out at someone you have admitted you don’t know,

    1. I don’t warm to anyone that is manipulative and controlling.
    2. I read a story about a chinese lady who tried to kill herself by drinking poison. I found it very sad.
    3. Psychiatrists – yes they annoy me.
    4. I didn’t pop out of a textbook

    I do like the facts, so please pull me up when I am wrong.

    Yes of course I am angry, so would you be in my shoes. Nothing wrong with lashing out better than bottling it up inside me. I will always admit when I am wrong, I just need people to point it out that is all.

    **************************************************

    “Who, What, Where, Why, When & How???? BIG NOSE!”

    I want you to go back and read that post you wrote. Are you able to write it again so it makes a coherent statement? Or is this a statement against my Italian genes, that I have a big nose

    Okay – I wanted to know what you meant by the statement below. Big Nose? A figure of speech, like meaning powerful, supreme, big noter, I know more than you do etc etc.

    “I still don’t think it exists as an independant condition, but I’d be satisfied with the UCS method of putting the horse before the cart.”

  123. Sarah Bione-Dunn Says:
    September 10th, 2006 at 8:45 am
    Munchausens syndrome by proxy is the falsification of physical symptoms for the cruel, premeditated abuse of children. MSBP often involves drugging children so that they vomit or become unconscious or have horrible headaches, so that the parent abuser can receive attention…. but this is NOT horrible and cruel?

    MSBP is also one of the most lethal forms of child abuse– but it is not horrible and cruel?!

    If this is true, SarahConner, steps must be taken to have every child and every person who is a parent registered to have Morgellons to have their children taken to safety. So tell me, is it true that Morgellons is linked to child abuse and you don’t think there’s anything wrong with that, yes or no?

    **********************************************

    There is NO evidence to date that Morgellons is linked to child abuse.

    Show me some evidence and then we can discuss it.

    I never have and never will agree with child abuse.

  124. Michael Says:
    September 10th, 2006 at 9:08 am
    It was my way of illustrating how silly some of the conspiracy theories are – I gave two explanations, you choose which one makes sense, then ask why you choose that one.

    The original post this was in (CDC Paper on Morgellons), was one where I had taken the most recent CDC position on Chronic Fatigue Syndrome, and replaced “CFS” with Morgellons. My intent there was to illustrate how similar CFS and Morgellons are, and also illustrate some of the problems in studying diseases with no diagnostic markers.

    Michael – Conspiracy theories confuse me, but sometimes I think there is a lot of truth in some of them. CFS has been around for quite sometime – I think it is a major problem to society, just look around – the evidence speaks for itself.

    Post traumatic stress syndrome – very similar in some ways to CFS and Morgellons.

    Did I answer your question correctly?

  125. Michael Says:

    September 10th, 2006 at 9:54 am
    The “25 ways” document you are referring to can be applied to EVERYONE if you use your imagination. You could look at your own posts, and it would apply to you. It’s a bit like a horoscope.

    Yes I do find some of my posts rather funny when I read back. I call it an “online tantrum”.

    The “25 ways” that apply to me is purely for the truth.

  126. Emily Says:

    September 10th, 2006 at 10:34 am
    “Michael – you throw that bait and I come a running don’t I. We are not more suspicious. I live in a house with someone who couldn’t give a rats bum about Morgellons and he has told me that this has happened via msn hotmail, I said – thank you I thought it was me going mad!!I am not a computer genius at all, I can move a mouse and work a keyboard, anything more goes over my head.”

    Sarach, I have never even been to a Morgellon’s site before today, and I had the dramatic increase in spam emails a few weeks ago. The spammers are getting more devious. They are targeting EVERYONE, not just you. It is apparent that you have some sort of paranoia, as you interpret every subtle action as an attempt against you personally. I hope you are able to get help for your mental condition.

    Emily – you are NOT a genius. A one day crash course in Morgellons and you determine a “mental condition” as the cause. Your use of the term “mental” concerns me. You know in the early 1900′s the term was “lunatic”.

    Please come back and discuss some more.

  127. Michael Says:

    September 10th, 2006 at 9:54 am

    “Why should that document from the CDC have websites visited by myself in the print folder command?”

    Things go wrong with computers all the time. Occam would say it’s just your computer messing up, since that’s the simple explanation. Of course you could say it’s all part of a conspiracy, or that angels did it, but that’s introducing extra entities. The explanation that does not introduce new entities should be picked as the most likely, all other things being equal.

    ***** Okay Michael – Dolly did it!!

  128. Sarah Conner says: “Yes of course I am angry, so would you be in my shoes. Nothing wrong with lashing out better than bottling it up inside me. I will always admit when I am wrong, I just need people to point it out that is all.”

    There is nothing wrong with lashing out– when you actually have a beef with someone. So, let me tell you, that you are wrong. You have yet to show me why in god’s name you are lashing out at me.

    “Big Nose? A figure of speech, like meaning powerful, supreme, big noter, I know more than you do etc etc.”

    If you want to ask a question or make a comment, then use a complete sentence the first time, rather than random words.

    “I never have and never will agree with child abuse.”

    Then why did you say that MSBP is linked to “Morgellons” as an underlying factor, and that it is not horrible? MSBP is child abuse, and you said it is linked to Morgellons, and is not bad.

    You need to do the following things:

    1) Address why you are lashing out at me with for no reason
    2) Make a personal committment to use complete sentences so that you can communicate effectively
    3) Explain why you think that MSBP (child abuse) is linked to “Morgellons,” and why MSBP is not horrible, and why saying MSBP is horrible is “rubbish.”

  129. Michael – Did you have a read of this link? It is really interesting hey?

    http://www.cdc.gov/ncidod/EID/vol8no9/01-0535.htm

  130. Since the topic is “Controversial Diseases” this link points out lots of them.

    http://en.wikipedia.org/wiki/Special:Search?search=controversial+diseases+in+history

  131. Before I found the Morgellons Research Foundation website, my research began with these, purely because of my symptoms.

    http://en.wikipedia.org/wiki/Smallpox

    http://en.wikipedia.org/wiki/Syphilis

    http://en.wikipedia.org/wiki/Vaccination

  132. Sarah Bione-Dunn Says:

    September 10th, 2006 at 4:40 pm
    1) Address why you are lashing out at me with for no reason
    2) Make a personal committment to use complete sentences so that you can communicate effectively
    3) Explain why you think that MSBP (child abuse) is linked to “Morgellons,” and why MSBP is not horrible, and why saying MSBP is horrible is “rubbish.”

    1. Since you came on this blog we seem to be losing focus. Morgellons – skin symptoms is the issue.
    2. I try very hard to do all of them.
    3. MSBP linked to Morgellons – Mary Leitao told me that the docs were trying to pin this on her long ago. If I wanted to use myself as a victim of MSBP I would say emotional abuse. And then to add my mum into that she suffered emotional abuse from her mum.

    To be honest MSBP is something that scares me. Whenever I had counselling in the past naturally the therapist would want to go back to my childhood, no problem with that. Funny thing though, my mum was always an issue with every therapist.

    Sarah Bione-Dunn – Why should I blame my mum entirely for where I am today? Society moulds a child into an adult in some ways, with the addition of hereditary genes and copied characteristics from both parents. I am an individual and my reactions to things such as MSBP are based purely on my own experience. I have only read a couple of documents, one was enough to confirm feelings and emotions in me that have been there my entire life.

    MSBP – seems to me to be a number of factors involved, do you not think so?

  133. Michael – You may find this interesting.

    http://members4.boardhost.com/Kritters/msg/2046.html

  134. Michael – Why is it that I can not post a link with reference to the Elliot’s Disease interview with a doctor from 2002?

  135. I have tried to do this about 6 times under a different heading on this blog also, and it will not let me do it. Then when I tried to just put the link in on its own, a message from word press said – duplicate – I think you have already said that. Can you look into this problem please.

    Thank you.

  136. It got marked as spam, I have unspammed it, and removed the duplicates.

    It would be helpful if you could put a <blockquote> at the start of a quoted section, and a </blockquote> at the end, as that would make it into a nice “quote”, so we can see who is talking. I will try to fix the posts you have already made.

  137. When I saw the Dermatologist and told him about my doctor being able to pluck fine hairs that where deep in the dermis, I also mentioned that I had had Erysipelas as a baby. I thought by mentioning this it was away of applying logic to my skin symptoms.

    He blew off both issues.

    Fine hairs growing in breast lesion – He placed a piece of gauze type tape over it and said leave that on until it falls off and it will be okay.

    Erysipelas – Nothing to do with what you are experiencing now.

    *********************************

    Welll that piece of gauze fell off as soon as I got home from that appointment. I have always had a lot of trouble during this syndrome to keep sticky bandaids or anything similar on my skin.

    Erysipelas – well I think it could have a lot to do with what I am experiencing. Chemical exposure is known to bring something out of dormancy. I feel after my exposure to toxic fumes this is quite likely, is it not?

  138. Michael – How do I apply the “blockquote”? Which keys do I press?

  139. Okay then – he is the link which has the interview with the Doctor.

    http://members4.boardhost.com/Kritters/msg/2046.html

  140. You have to type it in.

    <blockquote> Somethings someone said </blockquote>

    turns into

    Somethings someone said

  141. SarahConner said:

    1. Since you came on this blog we seem to be losing focus. Morgellons – skin symptoms is the issue.

    Show me evidence of this. I, on the other hand, would consider long ramblings of “you suck” to be losing focus.

    3. MSBP linked to Morgellons – Mary Leitao told me that the docs were trying to pin this on her long ago. If I wanted to use myself as a victim of MSBP I would say emotional abuse. And then to add my mum into that she suffered emotional abuse from her mum.

    You’re still avoiding what you said. I’ll remind you of what you said:

    “Oh also you want my theory on your Munchhausens syndrome via proxy – it really is a syndrome and yes it is involved in Morgellons BUT not the horrible, cruel way that is described in the rubbish I have read recently. This also has an UNDER LYING DISEASE.”

    You’re saying MSBP is involved in “morgellons” but MSBP is not the horrible, cruel thing I described. Now, MSBP is child abuse. Do you or do you not acknowledge that you said this, that “Morgellons” is linked to MSBP (child abuse) and that you do not just say here that child abuse is not horrible or cruel? These are yes or no answers.

  142. Michael,

    Why didn’t it blockquote where you first typed it?

    Tall Cotton

  143. I know, you killed it with another character, then deleted it out.

  144. No, that wouldn’t work would it?

  145. To Sarah Bio-Nedunn – When you arrived on this blog it was under the heading of “Coming Attractions”.

    You arrived on the blog at post number 9, then 29 and 37. I came in at post 31.

    So the reason why I have probably come across in an attacking fashion is that I felt as though you appearing on the blog was stepping on me so to speak.

    Why could you have not choosen a different user name altogether, that is all I was getting at. You may call me suspicious, but that is fine, because we are all suspicious – part of life.

  146. Sarah Bio-Nedun said: You’re saying MSBP is involved in “morgellons” but MSBP is not the horrible, cruel thing I described. Now, MSBP is child abuse. Do you or do you not acknowledge that you said this, that “Morgellons” is linked to MSBP (child abuse) and that you do not just say here that child abuse is not horrible or cruel? These are yes or no answers.

    Why is it my stomach gets butterflies when I read your posts. I really do feel quite threatened by you.

    I applied the MSBP document I read to my life experience, then my experience with Morgellons Syndrome.

    Yes MSBP is involved in Morgellons Syndrome. I feel is plays on the psyche and chi energy. I can not really explain it on a blog site in words, this is what I have felt inside me.

  147. Michael – That link I was trying to put in for the Elliot’s Disease interview with a Doctor back in 2002 still could not do it. I have lost the link, user error I think, I have been distracted by my nose whistle today!!!!!!!!!

    Not to worry anyway, I’m sure someone has the document somewhere and then can pass onto you. I think if you were to read it, it could help you in understanding the Morgellons argument a little more.

  148. To Sarah Bio-Nedunn – With regards to MSBP and my experience.

    I had Erysipelas as a baby (20 months), I caught this infectious disease from a child in a doctors waiting room, he had school sores on his face. We were touching and reading the same books together. Within I think 3 days I had the first signs, a little blister on my left index finger (my ET phone home finger)!! Apparently after that the thing what haywire in me. In the Manchester Skin Hospital for 2 weeks.

    Don’t worry I gave the medical staff a hard time back then. I insisted on wearing my nice new black shoes in bed. The nurses told my parents I was really distressed when my shoes were removed and kept saying “shoes,shoes,shoes”. My folks laughed saying they had just bought me new shoes and I loved them.

  149. I think we all might need to try even harder to define MSBP in some sort of more precise, clear cut, fashion. It isn’t just about a controlling parent. Yes, that is a gigantic part of it, but millions of parents are controllers. Not all controllers who become parents create injuries and illnesses in their healthy children. It takes a really, really, really, really sick person to do this. They do it to reap gratification from all the attention. I never knew this was a factor in the equation of “morgellons disease”, until just about a month or so ago. I had thought it was all about somebody with a mixed up mind, seeing things the wrong way, misinterpretting them, becoming insulted, and then starting off on a mission to regain lost dignity, through a really wild way of doing it, and involving a lot of very misfortunate others, in a deluded attempt of hoping to make a name for herself as discovering a new disease. (skooze me. otay. take a breath, there, smellycan.)

  150. Wonder why then as I kid I hated to have my hair washed and I loved to keep things nice and clean. I had a lovely three wheel bicycle and after every ride I would wipe it down to make sure no stones were stuck in the tyres because I just loved it to look new and shiney, it was a lovely shiney red.

    My new black shoes were also shiney.

  151. Smileykins – Thank you for stepping up the plate.

    Parents need to be controllers. Why?

    Because they love their children and want to protect them from harm, nothing wrong with that.

    If I ever have the opportunity to have my own children I would do exactly the same. This does not mean to say I would hyjack their spirit, just love and protect.

    If I apply that rule to the animal kingdom and use a kitten or pup for an example : it has been said to be for years by vets. When a kitten or pup likes to play you must understand what they like, BUT do not do things that will spoil their temperament.

  152. Oh yeah, to add a footnote to number 1 in the made-up case definition she concocted. Uh, hello. Everybody who thinks they have her disease messes around with their lesions, because we view all the crap they post pictures of. They can’t possibly heal as long as she instructs all of her followers to use those microscopes to look at the material from their skin wounds!! Ya know?

  153. Smileyklns – Are you saying then that Mary Leitao has been very much misunderstand by a lot of people?? Since all she was really doing was taking Drew to the doctors because there was a problem, she loved him, his dad loved him, and they wanted him better.

    Mary and her husband both intelligent people, Mary biology background – microscope came to her like second nature. Her husband was a doctor – damn good combination I think to help their son.

  154. Morgellons victims can if they want to purchase a microscope. What they put under it and when they do it is their decision.

    Personally I think it is a waste of time, because I wouldn’t have a damn clue what I am looking at or what I am looking for??

    Oh I remember – the illusive pathogen.

  155. Sarah Connor,

    Hijacking one’s spirit is not MSBP. Munchhausen Syndrome By Proxy is when deliberate harm is caused to the child, by a parent, so that the parent can get the sympathy or attention that others give the parent of a sick child. Sometimes they lie about the child’s symptoms, but they also deliberately make them sick, and sometimes, they even cause their death. What you are referring to is not MSBY. Nor is Mary L’s behavior toward you, because you are not her child.

  156. Correction. I meant, MSBP.

  157. smileykins Says:
    September 10th, 2006 at 7:46 pm
    Oh yeah, to add a footnote to number 1 in the made-up case definition she concocted. Uh, hello. Everybody who thinks they have her disease messes around with their lesions, because we view all the crap they post pictures of. They can’t possibly heal as long as she instructs all of her followers to use those microscopes to look at the material from their skin wounds!! Ya know?

    I have witnessed over the years men watching tv and without realising it, slowly picking at a scab that was annoying them. These men were usually labourers of some sort. You know cuts from doing wood work etc. So lots of hand cuts or stratchs.

    The best thing really for scabs is lots of moisture. The body produes a scab naturally to help the healing process. The moisture should be a nice soothing cream, like a menthol in aqueous base. The more they become soft the easier they just wash away in the shower.

    Same applies to a blood blister, never pop it. The blister will break when the new skin beneath has grown.

    See people the human body does know what it is doing.

  158. tallcotton Says:
    September 10th, 2006 at 7:56 pm
    Sarah Connor,

    Hijacking one’s spirit is not MSBP. Munchhausen Syndrome By Proxy is when deliberate harm is caused to the child, by a parent, so that the parent can get the sympathy or attention that others give the parent of a sick child. Sometimes they lie about the child’s symptoms, but they also deliberately make them sick, and sometimes, they even cause their death. What you are referring to is not MSBY. Nor is Mary L’s behavior toward you, because you are not her child.

    Crikey I am confusing sometimes aren’t I. Hyjacking my spirit is something that I have felt recently. I guess the Morgellons experience has made me feel like a lost soul with no one to talk. Currently I feel like I am in Limbo.

    Does that help at all?

  159. Michael – sorry for that – I am still on my “L” plates.

  160. Tallcotton – you know I can apply the MSBP to my gran even. She phoned me the other week when I was really sick with my bad cold, I told her the truth when she asked questions. One of her comments was “well I hope the doctors find out what is going on with you after these blood tests, and not before time”.

    She made a call to my mum that night. She told mum I was fine, sounded fine to me. Mum got angry and said, she is very very ill.

    Nasty tug of war isn’t it.

  161. Wounds with scabs are supposed to be kept dry, Sarach, so they can complete the healing process. I don’t know, but I seriously doubt that I could change your opinion, with my opinion, of what Mary Leitao has done, and why she has done it. A person’s level of intelligence has absolutely no bearing, whatsoever, on mental illness. This is something that is commonly mentioned within the morgellons’ community, and they are all so very entirely wrong about it.

    Concerning regular parenting, some parents are just entirely too controlling, and often don’t even want their offspring to have differing views from theirs. Control is never a good thing in the way I am meaning “controllers”.

  162. Yes. I just wanted to remind you that there are other forms of child abuse, and MSBP is specific to those conditions I described above.

    Sickness can be like a roller coaster ride, both physically and emotionally. When people are giving you are a hard time, it makes it even more difficult.

    You are doing quite well. Making sure you have good doctors, not ones that tell you what you want to hear, and following their recommendations is important.

    When things are questionable, get a second opinion from another good doctor. Don’t expect complete wellness to come suddenly.

    I’m sure you already know these things.

    Tall Cotton

  163. You know my Gran was told by a fortune teller years back in UK that when my gran dies she will not go straight to heaven she will be in limbo for awhile.

    She ain’t dead yet at 90, fighting fit in fact – then the other day I say to myself – I feel like I am in Limbo!!!

    Weird Uhh?

  164. Many people are often in states of limbo, for a lot of reasons, and it is a time for reflection, and of deciding upon a course for the future.

  165. Tallcotton – You are doing quite well. Making sure you have good doctors, not ones that tell you what you want to hear, and following their recommendations is important.

    If the doctor had of told me what I wanted to hear perhaps I would not be here now. For example – I didn’t ask for antidepressants. I didn’t ask for Rickettsia or Lyme. I just have always asked for help, a diagnosis, and some treatment.

    Don’t ya remember playing doctors and nurses as a kid, I certainly do. I even had a little nurses out fit (only 6 at the time). I would ask my friends what was the problem, they would tell me, then I would try to help. With of course imaginery medical equipment etc etc etc. you know kids stuff.

  166. Smileykins – It was actually my dad who told me about moisture on scabs, this was years ago, well before Morgellons was an issue. It is very hard to diagnose a scab on the internet. I just know myself when it is the right time to change from calamine lotion to moisture that is all.

    This is all advice my dad has been given me in the past after surgery for mouth cancer. He was given ointment to put on the scar after surgery, this had become so infected, it flaired up as soon as he got home from hospital. Oozing green stuff. So he had to go straight back in, it was awful for him.

    My dads specialist and surgeon has always given him good about ear, nose and throat issues. Comes in handy at times. As we have said before symptoms need to be treated individually.

  167. TC and I collect our medical records when we see doctors and have tests. It’s a practice I always recommend to anybody with ongoing health problems. Read them. Learn what they mean. The information is right here at all our fingertips. It used to be, we had to go to the local library. This is the way to develop communication with doctors about what the best course of action is.

  168. Michael,

    Why didn’t it blockquote where you first typed it?

    Tall Cotton

    You can use HTML escape sequences, so for the < and > use &lt;  and &gt;

    And for an unescaped & use &amp;

    And for and unescaped &amp; I had to edit the comment using the rich text editor, although you could probably use UTF or something.

  169. Sarach, bless your heart, you’re working through so many issues. I don’t know if it’s totally correct, though, to assume that your mother and grandmother have MSBP. Unless (and I sure hope she didn’t) your mother gave you something to make you sick when you were young, or injured you, to make it look like there was a physical condition that needed treatment, with a cycle of taking you to doctors, and always being told there was nothing the matter, when she insisted, you may not be applying this to her fairly. My parents used to think I was sick just from looking at me, and seemed to have wanted me to be, but they were just like broken records, not even knowing they were saying it. That wasn’t MSBP. Oh, yes, they were controllers, but not MSBP parents. I hope you can work through this, and I suppose only you know.

  170. I’m sorry. I meant to say “or” there was a cycle of taking you to doctors, and always being told there was nothing the matter, when she insisted

  171. THESE PEOPLE ARE DELETING POSTS THAT DO NOT SUPPORT THEIR POSITION. THEY ARE BEHIND THE CAUSE.

  172. EAT SHIT AND DIE PUNK MOTHER FUCKERS

  173. What post did I delete?

  174. KARMA, KARMA, KARMA,

    YOU WILL GET YOURS IN THE END

  175. STUPID ASS COMMENTS, THATS ALL

    SCREW YOU AND EVERYONE THAT LOOKS LIKE YOU

  176. Sarach said

    Emily – you are NOT a genius. A one day crash course in Morgellons and you determine a “mental condition” as the cause. Your use of the term “mental” concerns me. You know in the early 1900’s the term was “lunatic”.

    Please come back and discuss some more.

    I do not mean that in a negative way. Do you understand that most of the “symptoms” you mention are completely normal?

    It is NORMAL to have occasional lesions on your skin.
    It is NORMAL for those lesions to not heal when they’re being picked at and disturbed.
    It is NORMAL to occasionally find a hair growing from one.
    It is NORMAL to receive enormous amounts of spam emails.
    Unusual squiggly hairs, weird textured hairs interspersed with the normal ones? Totally common. That is not a symptom. It is NORMAL.
    You will not find medical documents on these “symptoms” because they are not symptoms. They are normal parts of the human condition. (Well, except the email one..)

  177. Oh my. What is going on here?

  178. Somebody didn’t get a prize in their Cracker Jacks.

  179. ThisSiteSUX is trying to twist this around, as so many poor people are thinking, or trying to convince themselves of, that we, here, are the conspirators that are behind their “morgellons disease”, and that we developed what they think is the matter with them, I suppose. But, really, that is a need that some people have to have, I am sure. Facing the real truth is far too difficult, and that’s horrifically terrible. Too many people have been led way too far.

  180. Why could you have not choosen a different user name altogether, that is all I was getting at. You may call me suspicious, but that is fine, because we are all suspicious – part of life.

    I did not choose a different name because I didn’t want to hide under an pseudonym. I’m Sarah Bione-Dunn. I didn’t want to give someone the phony satisfaction of “finding out who I really am.” Please explain why this means you like to yell at me.

    Yes MSBP is involved in Morgellons Syndrome. I feel is plays on the psyche and chi energy. I can not really explain it on a blog site in words, this is what I have felt inside me.

    SarahConner, did you read the initial post? And then you complain that I am off topic? Please read the topic. MSBP is CHILD ABUSE. It is inducing or feigning illness in children. Children are often drugged, then brought to doctor after doctor and forced to suffer completely unecessary tests and surgeries. It’s deadly. It’s horrible.

    And then you say it is not horrible, that it is not cruel, and you have said again that MSBP is linked to “Morgellons.” Therefore, steps must be taken to remove children from the homes of “Morgellons” sufferers so that they will not be abused. Since you are the one who has informed us that MSBP is indeed linked to “Morgellons,” surely you agree?

  181. I think we all might need to try even harder to define MSBP in some sort of more precise, clear cut, fashion.

    I disagree entirely, Smileykins. MSBP is defined in the very post which brought up the topic:

    http://morgellonswatch.wordpress.com/2006/08/31/factitious-disorders/

    It is formally defined as the falsification or induction of physical and/or emotional illness by a caretaker of a dependent person. In most cases, the perpetrator is a mother and the victim is her own child.”

  182. Sarah Conner read the original post, but “seemed” to be confused. That’s why Smileykins was trying to help her understand it better. I think you need to cut everyone a little bit of slack. You’re supposed to be a professional, but you don’t seem to understand that we need to be patient. Sarah Connor is doing a lot better. You need to cut her a little bit of slack, and come down off that high-horse you’re on.

    Tall Cotton

  183. I’m sorry for the misunderstandings, but we’d had prior conversation with our lil gal Sarach before the excellent post you brought the topic up on, on August 31st, Sarah.

    Beginning on August 26th, Sarach had some difficulties undertanding what MSBP is. She had tried relating it to her treating physician, as well as to Mary Leitao’s relationship with her. More things followed, and I’d tried, then, to make it more clear to her. I’m not sure if she has a full grasp of it yet, but I know that she will work it out. Regardless, there are still others who have great difficulties understanding many things.

    It began with this excerpt from a comment under “Wymore Breaks With MRF”…

    within comment #398, I’d said:

    I know this situation can’t be dismissed. Listen to them. The CDC has been saying this is not a disease, for how long now, until they’ve had to do more. A very mentally disturbed mother who’s publicly admitted she’s suspected of having Munchausen-by-Proxy syndrome, programmed all these vulnerable followers of hers, driving them to promote her ridiculous 400 year old disease. Look at how relentlessly they search, and search, and search, for something outside-of-the-box. Look at how they torturously examine crud that needs washed down the drain and thrown into the trash, but instead, they colorfully describe it, and post pictures of it on the internet.

    And then…

    #399 SarachConnor (abac68) Says:
    August 26th, 2006 at 9:09 am

    Can I just say that these last posts have given me the complete creeps. I feel as though the registrations have gone from 5,000 to 2,500 to what feels like 15.

    I haven’t read alot about the Munhunson Syndromy via Proxy (

    #400 Michael Says:
    August 26th, 2006 at 9:24 am

    Here’s a good simple article on MBP:

    http://www.kidshealth.org/parent/system/ill/munchausen.html

    #401 SarachConnor (abac68) Says:
    August 26th, 2006 at 4:34 pm

    Michael – I read the document. Did you want me to comment on it? It strikes a nerve – not just with ML either..

    #402 Michael Says:
    August 26th, 2006 at 6:43 pm

    SarachConnor, I’m always happy to hear what you have to say.

    Then, later on…

    #459 Smileykins Says:
    August 28th, 2006 at 10:54 pm

    SarachConnor (abac68) Says:
    August 28th, 2006 at 8:12 pm

    After I read your link about the disease. I said yes rings true can relate it to my life. BUT is that diagnosis just another lie and diversion that we can add to this.
    ___________________________________________

    (I’d tried explaining)

    Sarach, MBPS is ONLY a mental illness that a parent may have, typically a mother, in which they cause physical harm to their otherwise healthy offspring in order to get some sort of fulfillment for themselves out of it. It isn’t about them controlling other people, although they do. Many people have controlling personalities, though, who do not have that particular, limiting, mental illness.

    And then…

    #460 SarachConnor (abac68) Says:
    August 29th, 2006 at 2:34 am

    Michael – My mum never hurt me. They love me all my family do.

    Sarach, like I’d mentioned earlier, lil lady, you’ve got courage, and it is very admirable. Just like “Weezie” had said to you…

    Topic: Occam’s Menopause

    #101jeeezelouise Says:
    August 28th, 2006 at 7:34 pm

    Sarach, I do not doubt for a minute that you are frightened. Fear is not weakness. The important thing is that you *are* going to get up everyday and do whatever it takes, for as long as it takes, to get well. And you’re going to do that because people care about you.

    And that’s called courage.

    Courage does not mean never feeling fearful. Courage is about what you do, in spite of being scared.

    Wonderful words from the “The Weeze” Cheers!!
    Hey “Weezie”, how are things going with your father?

  184. Sarah Bio-Nedunn said:
    I did not choose a different name because I didn’t want to hide under an pseudonym. I’m Sarah Bione-Dunn. I didn’t want to give someone the phony satisfaction of “finding out who I really am.” Please explain why this means you like to yell at me

    Yes I yelled at you. Not that a LIKE to, but that I had to and needed to. You remind me of someone. To help my recovery I have always applied my suffering of this syndrome to everything, not anyone elses experience MY OWN. That is why we probably don’t see eye to eye okay, I felt you were trying to mould me under the sub heading of yet another hormonal, psychological, or female only type disease dah dah.

    You know you have to appreciate things from my side of the damn fence. This has not been a bloody picnic you know.

    Tall Cotton made a comment to you about you being on your horse high. I am glad he said this because this is what I felt through your postings, very clinical. If you want to learn from a patient you need to come down to their level. What I mean by that is their level of pain, stress, anxiety, depression, etc etc. Example for you: when tallking to a little child never tower above them – stand over them, crouch down, be at their eye level, you know little people!

  185. Sarah Bio-nedunn said:
    SarahConner, did you read the initial post? And then you complain that I am off topic? Please read the topic. MSBP is CHILD ABUSE. It is inducing or feigning illness in children. Children are often drugged, then brought to doctor after doctor and forced to suffer completely unecessary tests and surgeries. It’s deadly. It’s horrible.

    And then you say it is not horrible, that it is not cruel, and you have said again that MSBP is linked to “Morgellons.” Therefore, steps must be taken to remove children from the homes of “Morgellons” sufferers so that they will not be abused. Since you are the one who has informed us that MSBP is indeed linked to “Morgellons,” surely you agree?

    Okay okay I hear you – can you not see by my reply that you are applying at little pressure on the issue. I am a victim of a syndrome. I don’t spend my time reading every damn link. I understand what I can, ask questions, and apply to myself when necessary.

    Morgellons has nothing to do with CHILD ABUSE.

    Morgellons has a lot to do with loving your child and caring for your child the best you can, and when something is not right you ask the doctor.

    My issues as a child that had my mum taking me to the doctors was just a kid being a damn kid. Before I left UK I got all the vaccination jabs for overseas. Then when in NZ I started with terrible hayfever, the worse kind, it would debilitate me and this all started at 6 years old. When I look back it must have been so hard for my mum talking me to a new doctor in a strange new country with her little girl because she had an itch. My mum thought maybe I jumped off the loo to quick to get back to the TV and ended up with like a nappy rash type itch, because my mum thought surely not thrush at her age! Anyway that is what is was, and it continued for a big big part of my life. Well that is what the doctor said anyway.

    And just to finish it off in case you were wondering, I was never ever abused as a child.

  186. Courage does not mean never feeling fearful. Courage is about what you do, in spite of being scared.

    Tell me about it and thanks.

  187. I just dropped in for a minute. Sarach, sugar, there are so many things that you’d said yesterday, and so many questions that you raised. I have taken notes, to try not to miss all of them, but replying will require some time. Others may be trying to do the same for you, but I just want you to know that you weren’t being ignored.

    I’m sorry to say this, but, in my familiarity with “morgellons disease”, child neglect, and abuse, also, has been spoken of very openly on LB, as well as pet neglect, allowing pets to reach the point of death. You had previously had an understanding of ML, but I know this is beyond difficult for you.

    I understand there are way too many things that you’re trying to sort out, and that you are trying to do it all at once. It will be all right. Try to slow down, clear your mind, and relax if you can.

  188. smileykins Says:

    “TC and I collect our medical records when we see doctors and have tests. It’s a practice I always recommend to anybody with ongoing health problems. Read them. Learn what they mean. The information is right here at all our fingertips. It used to be, we had to go to the local library. This is the way to develop communication with doctors about what the best course of action is.”

    This is the best advice in this thread.

    Each of us is in charge of our own health. When you go to see a doctor, be as specific and detailed about what brings you there as you can. Doctors are not gods; they are people. Ask questions if you don’t understand something. If you want to know how the reached their diagnosis, ask. If you feel that something was not considered in the diagnosis, raise the question. If you don’t, then don’t complain about it later as medical mistreatment. After the appointment follow the doctor’s directions to the letter- stopping a medication or other treatment mid-way through is one of the very worst things that you can do. Always feel free to get a second opinion, and feel free to let your doctor know that you are going to do so. A true medical professional will not be threatened or insulted by this action. Always remember that your goal is to get well; it is NOT to find a doctor who agrees with you. And as Skileykins suggests, always get a copy of your medical records before you leave the doctor’s office.

  189. Thank you, Robert. I hope you’re having a nice day. I’ve tried so hard to impress the importance of patient/doctor communication skills, but a very incorrect mindset is deeply ingrained within the morgie community.

    Sarach, there are a few things here, you may wish to look at sometime…

    Topic: Morgellons and Neurotic Excoriations

    #62Michael Says:
    July 24th, 2006 at 6:43 pm

    http://www.post-gazette.com/pg/06204/707970-85.stm

    “An anonymous blogger maintains an anti-Morgellons Web site rife with personal attacks”

    ____________________________________________

    #68 Smileykins Says:
    July 24th, 2006 at 9:25 pm

    I run so hot-and-cold over it. It’s just so pitiful and so new to experience all this, but…

    In The Land of Morg, people make you whatever they want you to be. If they say you’re a toad, well, now, by gosh, they done told ya you were, so shut up already. Be a toad. Michael, TC, and I were practically conjoined triplets, there for a while, not too long ago.

    Now, listen here…

    “It is June 2006. Drew now sleeps with his eyes half-open, a neurological abnormality that worries Ms. Leitao. Drew can’t play baseball this season, because he sweats profusely in sunshine and sweat triggers his skin irritations. So instead, Ms. Leitao pitches to him in the yard.

    If Drew has a “neurological abnormality that worries Ms. Leitao”, get the child to a f–king neurologist. How could any kid grow up with that and survive it? (Well, they often don’t.) Damn, if somebody could’ve just gotten her some BIG-TIME help before she took herself mainstream. I feel for her, but hells-fire & damnation. Look what’s she’s done.

    Mainstream munchausen-by-proxy and getting by with it, with a movement to promote madness. Yeah, basically that’s what it is. They’re like, “Oh you awful people. We don’t want to get our heads back on straight. No, we wanna screw everyone elses’ up with our disease”. (I’m sorry.)

    (We’d discussed this a little bit more, after those comments, including some things about LB.)

  190. BTW, that isn’t “morgellons disease” causing sunshine and perspiration to irritate Drew’s skin, and I am, 1,000,000 times over, positive of this. Also, sleeping with his eyes partially opened is not abnormal either. That occurs during deep, rapid eye movement (REM) sleep, when we dream.

  191. Or if you have mild genetic facioscapulohumeral muscular dystrophy, or something else that is real. Poor kid.

  192. Well, she didn’t say that Drew wasn’t allowed to play baseball due to any movement difficulties, and he looks fine on the gym set, in the picture in the link below. Sarach told us, recently, that Chas had told her that Drew was somewhere running around, pretty much sounding like he was having a rather good time doing it. Poor kid, yes.

    http://www.rgj.com/news/stories/html/2004/05/08/70307.php

  193. I’m sorry. The day I’d written what I’d said, was my upon my initial shock of discovering that she has been told that she has such a different, and unique mental problem, than what I had originally thought. I was being facetious, since she has been accused of, and apparently seems to have MSBP. When I see people (and all of my pets) sleeping with their eyes half opened, I don’t get alarmed over it. I think that’s more than likely just her illness speaking. But, I also allowed my kid to go on and play in Little League Softball, when the sun and sweat broke her out, and she wouldn’t have wanted it any other way. In my personal opinion, I don’t hardly think a boy would choose his mom pitching ball to him in the back yard, but maybe so. Ya just never know.

  194. Golly, I’m going to agree with Smileykins twice in one morning!

    My treatment for whatever this is that’s causing my body to react in interesting ways (I won’t use the term “Morgellon’s Disease nor Syndrome” for the simple reason that the medical community has yet to come up with official diagnostic criteria. If there aren’t diagnostic criteria then that diagnosis can’t be made.)has focused on working with a number of specialist to manage the symptoms that correlate with their fields. My dermatologist told me that when I had a bad flare up of sores to spend as much time in the sun as possible- it helps the sores/lesions dry and heal much more rapidly. Sunlight also helps our bodies process various vitamins and minerals that are essential for overall good health. Natural sunlight and excercise also frequently prescribed for people with depression because from the stimulate the production of endorphins and dopamine which help the brain itself fight the depressive illnesses.

    Good health and healing very rarely rely on simply taking a pill. Frequently lifestyle changes and working on cognitive processing are equally important as a trip to the pharmacy.

  195. Smiley, dare I say “miracle” again??

    I took Dad up to the National Cemetery to do some work with me on Saturday. Five hours later I was collapsed under a tree in the shade, and he was still happily polishing and photographing gravemarkers.

    He’s also running his own errands. Only a couple of weeks ago, we never let him leave the house alone for fear he would not find his way back.

    Life is good .. thanks for asking! :)

  196. Oh, wow, Jeezelouise. Thank you, for the wonderful news. How utterly divine. That makes me feel so happy.

    Robert, according to everything I’ve read, Drew was diagnosed with eczema, but since he was only 2 at the time, and described his sensation, in the best possible way of, “bugs, mommy”, and she saw fibers stuck in it, she freaked. Of course, the rest is history.

    My child and I both have eczema too, which has been in remission, for both of us, for years. We’re both like ML says Drew is, and sun, as well as perspiration, bothers our skin. Back when my daughter was playing on a softball team, that was no big deal, and not worth missing out on the fun of being a kid. She used prescribed topical medication for her eczema problems. It has to be treated with round the clock, every day, for years on end, sometimes, as was our case with it.

    Here is something else:

    http://emedicine.com/derm/topic108.htm

    Drug-induced photosensitivity refers to the development of cutaneous disease as a result of the combined effects of a chemical and light. Exposure to either the chemical or the light alone is not sufficient to induce the disease; however, when photoactivation of the chemical occurs, one or more cutaneous manifestations may arise. These include phototoxic and photoallergic reactions, a planus lichenoides reaction, pseudoporphyria, and subacute cutaneous lupus erythematosus. Photosensitivity reactions may result from systemic medications and topically applied compounds.

    It is all a matter of individuality, same as with everything. With something such as lupus, there’s no way can a person be exposed to the sun without detrimental effects.

    Note this nonsense from listeners’ questions in an interview to promote “morgellons disease”, with Nurse Ginger Savely, back in May, this year:

    Question from leanne in San Antonio: My symptoms are bumps all over my head and parts of my body with painful sores, headaches, sore muscles, and itching. Being in the heat really makes the parasite swarm. Sores can last for months and itching is uncontrollable. Are these symptoms being felt by others?? The doctors can’t seem to fix the problem.

    Ginger Savely: Yes, these are all classic symptoms.
    ______________________________________

    Question from Blanca Rueda in San Antonio: How come doctors do not know about it? Can I get my money back from the doctors that I have seen? How do chlorine, heat, water, and sun affect it?

    Ginger Savely: Doctors aren’t aware yet because the disease is not even recognized by the Centers for Disease Control and Prevention (CDC). Usually they have to recognize and investigate a disease first before the medical world starts to know about it. Get your money back from the doctors? Hmmm, good question. Sounds like one for an attorney, and not for me! (But lots of patients would like to know what you find out!)

    Also, sun usually makes it worse and so does heat.

    That’s despicable.

    Anyway, many people with eczema do improve with sun exposure, especially those with certain forms of atopic eczema. However, sun exposure may worsen and even trigger other forms of eczema.

    http://www.mayoclinic.com/health/eczema-treatment/AN01352

  197. That above link doesn’t appear to work anymore.

    http://www.emedicine.com/DERM/topic84.htm

    Sarach, are you still treating with predisone?

  198. Smiley, your link had a spurious period at the end, I fixed it.

  199. Jeeezelouise,

    That’s great news about your da. I hope he doesn’t work you too hard.

    Tall Cotton

  200. Jeeez,

    Did you say that your da had been niacin deficient? In case that’s the mineral that he had to start taking, I thought I would let you know that Niacin overdose causes the creepy crawlies. Don’t let him turn into a Morgie.

    Tall Cotton

  201. Oh, I see ya got those those lil link elves right on it. Tanky, MG.

  202. Thanks, TC. It is, in fact, a thiamine (B1) deficiency called “dry beriberi”

    http://www.nlm.nih.gov/medlineplus/ency/article/000339.htm

    My Da does not drink, which is probably why the diagnosis was missed.

    Thanks again :)

  203. Sorry about that mixup. I wasn’t sure. Thanks for the info.

  204. Good morning campers – what a lovely day we have here – going to be 21C and the sun is a shining!

    Just had a quick read through the posts, haven’t read any links yet. Some interesting stuff so far. I am feeling really good you know and looking so much better. Been putting in the hard yards.

    Smileykins – Prednisolone – yes I am still on 5mg a day. I have been addressing this actually for months, I guess I used to sound like a broken record, I would always right it on my list for the doc whenever I wrote down my herx reaction, to be put in my history. You know I like to save time, help my doc to help me.

    When I see the lady doc on Friday morn. I will discuss this with her, I am desperate to come off it. After the correction of my immune system I have felt a change, and I still feel it, so I do know that my own immune system is well and truely at work. My outwward signs are very much a clear indication of this. I guess it is hard to prove, but given the amount of antibiotic IV I really do think the NAET made the difference, which was only done back in February. And I am sure also that NAET is what helped softened the blow when I came off the psych.meds. Look it was hell coming off them, but I hung in there, and my god was it worth it. My dose of Seroquel had climbed to 300mg & Lexapro was 40mg, so you can imagine what it was like for me.

  205. When I was at the chemist warehouse yesterday buying my goodies, I asked the young pharmacist a question. I was curious about taking a tonic to assist my recovery, it was full of minerals and good stuff, and in particular Ginseng. I said is this sort of thing good for someone like me who has chronic rickettsiosis and lyme. He said NO!!! Ginseng is designed to keep the natural balance of the body balanced. It should never be taken if the body has an infection present, if you do, it will make the infection stay, ie. balance the body keeping it bad.

    Well I was gob smacked, I could have kissed him.

    Two years ago my parents took me to Cairns (actually 2 years this month), I really thought I had kicked this thing (kinda), I still looked pretty screwed up in the face. Anyway, I had a test at the chemist for candida, it was positive. So the lovely young lady Naturopath made me a tonic, it also had Ginseng in it. It really did make me feel good. Then within two days of being home from my holiday, BANG my symptoms were back.

    My symptoms never really disappeared whilst on that holiday, just lessened slightly, due to fact I was doing lots more exercise, you know rock climbing on the beach!! Distractions are always good when one has really annoying symptoms.

  206. Oh one more bit of trivia – The National Geographic Channel last night, I just caught it before going to bed. It was about FEAR. The man was saying that fear is a genetic thing. And it has been proven by scientists that fear in a person with an underlying problem can kill them, ie. heart problem – heart attack if the fear is enough to tip someone over the edge. He said some other good stuff too but I can’t remember just at the minute. I think I need my morning lemon juice.

    I really can relate to the fear. When my palpitations would kick in of late, especially lying in bed and feeling like I had just done a marathon was very scary. I do have a heart murmur – it is a soft systolic one.

    Heart palpitations became a major issue for me at the age of 23, just out of the blew. I was working at a hospital then, and the lovely staff doc was rather puzzled. Told me stay off caffeine, I said well I do – I don’t drink it, apart from my cuppa tea. So I even stopped the tea for awhile. I had been through some stress with the breakup of my first marriage and I put it down to that, in a way, but I knew it wasn’t normal. Anyway that is when they did a test, which showed I had the arrhythmia (sorry I can not spell that today for the life of me). Just to make up for it – “salpingo oophorectomy”!!!!… (I used to love typing that word really fast when I was doing medical dicta typing, has a good ring to it)!!….. Makes me realise that my memory is still pretty damn good.

  207. Do you do much Excercise now Sarach? A reasonable amount of exercise is good for what ails you. Jogging is very good, if your joints are up to it.

  208. Although if you have heart problems you should probably get your doctor to recommend appropriate exercises, not me :)

  209. Oh that Pharmacist I was talking to yesterday, the young one, he was Chinese!!

    Michael – The honest answer to that is – No. Look I have through out my iv treatment and afterwards walked about 30 minutes a day. In the past 3 months I have not, and I feel guilty. The psychological distress was becoming too much, and also with winter it was much harder to motivate. Where I live at the moment, it is very hilly, and when I did go out and do the “hills” a bit ago I did my calves in, I felt like I had been kicked by a horse. So I tend to drive to a park and then walk. I could make 10 million excuses for not exercising these past 3 months, some of my excuses are really valid, given the fact I have been pushed into a corner suffering a weird illness, but I am over the hump now and there is no stopping me.

    Jogging?? Always been a runner, very athletic majority of my life. I am really strict when it comes to jogging, never jog on the foot paths bad news for the joints. When I did run or jog I used to go to a running track and do my laps. If people do not jog on the correct surface and wear the right shoes – they are looking for trouble, sorry but that is the facts.

    I herniated my lumber spine at 16, L3-4, it is an anterolateral herniation I think, it is picked up on a plain x-ray, which is really odd also. But I have taken care of my back since this happened so I have been used to living with a back ailment, treat it good and it won’t give ya too much grief.

    Yes Michael – thanks for the heads up, I would rather not exercise through “Michael World Gym” could do myself an injustice!!

  210. Smileykins said: I understand there are way too many things that you’re trying to sort out, and that you are trying to do it all at once. It will be all right. Try to slow down, clear your mind, and relax if you can.

    Well you know this is my choice, and I have been the one setting the pace for myself. I think you guys realise why I was in a bit of a hurry. I have had the chance to put somethings in place whilst my folks have been off and resting. I had to do this to see how I would feel emotionally, I felt the time was right. It has been worth it, it has proved to me what I was feeling. Which is – controlled and manipulated. My mum worries so much about me, and she is so sweet I love her to death. I just wish she could put a lid on her anxiety, and maybe just zip up her mouth for a bit. I try to say in a nice way “we are all individuals, and each and everyone of us is entitled to our own opinions dah dah dah”. Yes I know she says – as she continues to try to structure my life for me.

    What do I say to her? Ma 2 husbands down, how many more do you think I should try??!!! Every single man in my life to this day could strangle Alexander Bell for inventing that telephone. I do get cauliflower ears you know when talking to her for nothing less than an hour of course!! Even if I was honest and said – “Ma I should go because my fingers keep going numb holding the phone, I keep changing hands, but it is really awful”. Okay she would say, and they continue with another damn story or complaining about my gran!!!

  211. Smileykins said: I’m sorry to say this, but, in my familiarity with “morgellons disease”, child neglect, and abuse, also, has been spoken of very openly on LB, as well as pet neglect, allowing pets to reach the point of death. You had previously had an understanding of ML, but I know this is beyond difficult for you.

    I was guilty of letting Sally’s vaccines,worming etc to get behind. My dad did help me out though. My folks looked after her a couple of years back after xmas, I went to the country for a week. He took her for her jabs and paid, which was really lovely. My folks never pay my way, but dad wanted to pay for Sally. It broke my heart that I had not been able to do this, I was so much in a deep hole. She was never close to death, she just got run down on top of stressing her little heart out over me.

    I know she has forgiven me, she told me! I told my vet I was convinced she had Morgies too, because her coat was not looking good. He agreed she was looking “scanky”, losing lots of fur. I mentioned my concern since I had lost my other little girl at 6 yrs old from feline aids, but she had been exposed to the toxic heater also. God it breaks my heart remembering that day she could not walk and kept falling down, off to the vet, bang she was dead the next morning. Enough of that!

    My vet was great back then about Sally anne, he read the Morgies stuff, and he put her on a big long dose of antibiotics. Took some blood from her neck, so gave this area a shave first. I had her tested for HIV. Everything came back clear, and he was so kind to call me one evening and discuss everything to calm me down. I took his advise and got Sal a felliway diffuser which is a natural form of pheromones which make an animal feel happy. Well this thing was amazing, she was back to rubbing the corner of the coffee table etc. I did that for a couple of months. Now that little girl is just high on life and love, and looks so damn pretty, takes after her ma!!

    I do still worry for her because Sally was also exposed to the heater as a little baby for about 12 months, so she really is quite amazing also.

    When it comes to ML I try to think good thoughts, I have put her in the back of my mind, she did help me in lots of ways. Remember what I said, what I did inbetween our phones calls and so on was my choice. If this lady has done wrong I will wait until this is made official. Innocent until proven guilty basically. I believe in my heart she is not guilty of anything, other than loving her children. As I said I can not judge or comment since I have not met her face to face. I will not be coerced either by other people at this point in my life. I have cut myself off from everyone else associated with MRF or whatever. If I want to regain my health I have to do this on my own, which is what I am doing, and it does feel good.

  212. I do realise you are not ignoring me okay. I will check back with you guys later. I want to get out and amongst it today!! The weather is just gorgeous, I want to sniff that lovely air and feel that sunshine on my body. So if you have any questions for me, please ask away and I will try to answer them later.

    Oh also, I have embarked on organising some volunteer work at the local lost doggies and pussy cats home. I will be visiting them soon to have a look around. You know when I made the phone call to them I was so damn nervous. I said I want to do volunteer work because I am on the disability pension, still young with a chronic illness. I explained that I am not reliable in the way of paid employment, ie. I can not arrive at 9am and leave at 5pm. I have to do my illness management. She said, okay I understand. So I think I would like to do some real simple stuff at the shelter ie. grooming the animals etc. I will stay away from the cleaning of the kennels etc. I need to get my immune system in tip top condition first. But I thought to myself I could not think of a better way to break myself back in slowly into the public arena kinda of thing. At least I will be surrounded by tail waggers and little purring fluffy things that will help me along and give me unconditional love also.

    Not really looking forward to the end of the week, yes I have my docs appointment, but my “you know who” will be back and this is playing on my mind. I will have to take things real slow. At least I have worded my sis up, she understands, but whether she can help me out is another thing, coz her hubby prefers me to be delusional, that way I stay well away from my nephews and her.

    I noticed the discussion about Thiamine and B’s. My recent bloods for B12 & folate are all normal, so this is good news for me.

    Anyway – got some chores to do, will catch ya later.

  213. TC says: You’re supposed to be a professional, but you don’t seem to understand that we need to be patient. Sarah Connor is doing a lot better. You need to cut her a little bit of slack, and come down off that high-horse you’re on.

    A professional… what? I’m a person. I’m a student.

    Regardless of profession, everyone should treat others with respect. No one is chastizing Sarahconner for name-calling and lambasting me for no reason, but when I call her on it, suddenly it is suggested that I am being unprofessional.

    I don’t appreciate people lashing out at me and calling me names needlessly. Sarahconner requested to be told when she’s wrong, and I oblidged, because her actions were indeed wrong.

  214. JeezeL, I’m so happy to hear that. Congratulations on your father’s improvement! I hope you guys can cherish that memory in the cemetary together.

  215. Sarachconner said: Yes I yelled at you. Not that a LIKE to, but that I had to and needed to. You remind me of someone.

    The thing is, Sarach, I’m not that person. That you had to and needed to is not true. If I’m mad at someone who looks like Nicole Kidman, do I write Nicole Kidman a nasty letter? No.

    May I suggest that you either talk to your therapist or to the person? I’m only a stranger on the internet whose posts somehow remind you of someone else. I’m not licensed to give you therapy, I’m not a doctor, I’m not whoever you’re thinking of. I can’t help you. I’m not even the object of your angst. So please, refrain from giving that angst to me.

    I felt you were trying to mould me under the sub heading of yet another hormonal, psychological, or female only type disease dah dah.

    Please show me it what ways the things I said seemed that I was trying to shape you into this type of person, and we can address it together.

    You know you have to appreciate things from my side of the damn fence. This has not been a bloody picnic you know.

    Neither for me, when strangers call me names and yell at me.

    Tall Cotton made a comment to you about you being on your horse high. I am glad he said this because this is what I felt through your postings, very clinical.

    It’s true, it’s clinical. That’s because I like to talk facts. How you perceive that is your own business; I will not pry.

  216. Sarah Bione Dunn,

    There’s a difference between Sarah C. and most of the other patients that have come to this site. That difference is that she is trying to make a transition from the Morgellons world to this world. I stand by what I said. You may not be a professional yet, but you are in training, and you certainly aren’t remembering who is sick and who is well. In my opinion, you act like you are the patient.

  217. TC Says: There’s a difference between Sarah C. and most of the other patients that have come to this site. That difference is that she is trying to make a transition from the Morgellons world to this world. I stand by what I said. You may not be a professional yet, but you are in training, and you certainly aren’t remembering who is sick and who is well. In my opinion, you act like you are the patient.

    I am not SarachConner’s therapist, I will never be. I do not share your opinion that “professionals” (again, professionals in what? Professionals in sales? Professional bartenders?) should be held to a higher standard than others. This is a blog.

    While I admire and commend your dedication to her transition and situation, I choose to be a bystander. So, when nasty, mean-spirited comments come my way, and the person who said these things requests to be told when they are wrong, I will oblige. Surely, it cannot be helpful to her situation to be mean and say untrue things about strangers, can we not agree on this point? Can we also not agree that people should equally be treated with respect?

  218. What profession? You know very well what profession I am referring to. You just want to argue and humiliate others. Before Sarah, it was London. You have a whole lot of growing up to do and it’s very apparent.

  219. LETS TALK HUMILIATION. TALKING ABOUT SYMPTOMS IS ABSOLUTELY FRUITLESS ON THIS SITE. LETS DISCUSS THAT QUITE FRANKLY. SHOW US THE AVERAGES AND NUMBERS OF THE POSTERS. PLEASE

  220. I’m sorry, I just peeped in here, and see that nobody has replied. I’m opened to discuss humiliation with you, if you don’t want to discuss symptoms. Frank discussion is key to solving most all problems. I’ve never been very good in math, but I don’t know the relevance of your last sentence.

  221. Well, I may have checked in too late. I’m closed to discussion, for now. So sorry. Check back tomorrow, or leave something, at your leisure, and I’m sure anyone here will be more than happy to accomodate you with open and frank communication.

  222. To Sarah Bio-nedunn -I am sorry for saying this, but I am finding your postings and questions rather taxing on me.

    I never used to have an angry nature. Chronic illness, undiagnosed, misdiagnosed and untreated for a long time has caused me a great deal of pscyhological distress. Unfortunately for you this is something which is very hard for you to understand in your position as a student/professional. At the same time I wouldn’t ever want you to feel the way I have felt.

    No you are not my therapist, I have a shrink. He speaks very concisely and straight to the point with me, and he doesn’t pressure me in the same way you have. You have no idea who I was thinking of.

    I said I had to get angry and needed to you – you told me this was “untrue”. I do apologise in advance here but you are wrong. That is showing no respect for my feelings whatsoever. You have no idea what stirred my anger and outburst, but I do. I need to vent my anger, I think a blog site is a good start. I spent too long a years zipping up my moutn when I should have said something.

    Neither for me, when strangers call me names and yell at me.

    Well then maybe you need to debrief on this one with me?? I have been called names all my life, people were always jealous of me, but they never really new what went on inside of me, they preferred to assume and presume.

    A professional… what? I’m a person. I’m a student.

    Make ya mind up please.

    Regardless of profession, everyone should treat others with respect. No one is chastizing Sarahconner for name-calling and lambasting me for no reason, but when I call her on it, suddenly it is suggested that I am being unprofessional.

    I don’t appreciate people lashing out at me and calling me names needlessly. Sarahconner requested to be told when she’s wrong, and I oblidged, because her actions were indeed wrong.

    Respect – I wouldn’t be on this blog site today if I had been shown some respect from the medical professsion. If you want to be a professional you better get used to name calling. My shrink thinks I’m crazy!!! But nice crazy! I have sent him some rather nasty emails you know, with a lot of gutter language, which was never me, but it has been of late with this. I am sure I give him a hell of good laugh, but he never comes back at me or gets upset. I know he understands this has and still is very very hard for me.

    Okay my actions were wrong, I was just standing up for myself and venting my anger. I think you have carried it on quite long enough, don’t you? The more I read your posts the more you do sound like a student, and you need to damn well chill out please.

  223. ThisSiteSUX Says:
    September 11th, 2006 at 10:02 pm
    LETS TALK HUMILIATION. TALKING ABOUT SYMPTOMS IS ABSOLUTELY FRUITLESS ON THIS SITE. LETS DISCUSS THAT QUITE FRANKLY. SHOW US THE AVERAGES AND NUMBERS OF THE POSTERS. PLEASE

    Well come on down – lets talk humiliation then.

  224. To ThisSiteSux – If you don’t like this site then why did you come here??

    Are you looking for a support forum for Morgellons victims?? I don’t know of any myself, what about you?

  225. To ThisSiteSux – That is why I came to this blog site, I needed support, there is none around, apart from here.

    So you either get with the programme or bugger off, simple.

  226. I’m guilty of assuming too much, myself, considering Sarah’s background in behavioral neuroendocrinology and psychopathology, plus her future plans to become a rehabilitation therapist for violent sex offenders. But, it’s true, like she’d said to Tall Cotton, she isn’t anyone’s therapist. She’s a student, right now. None of us are anybody’s therapists. Besides, Sarah doesn’t share TC’s opinion that “professionals” ought to be held to a higher standard than others, anyway. Perhaps, I think, she means that in the context of posting comments on blogs.

    I’m still working on those “averages and numbers of the posters”, that ThisSiteSUX politely requested being shown. The numbers of posters who average something in common? See, this hurts my head to think about it.
    Could you please explain, ThisSiteSUX? Thank you.

  227. I’m still working on those “averages and numbers of the posters”, that ThisSiteSUX politely requested being shown. The numbers of posters who average something in common? See, this hurts my head to think about it.
    Could you please explain, ThisSiteSUX? Thank you.

    I hope he’s not asking for our bowling averages. Mine is really bad.

  228. hey sarahconner… that sbd is a real bitch dontcha know… she is teamed up here with the other ass clowns to make you look crazy unless you agree with and tolerate all aspects of what they preach…

    this website is fucking awesome… much cheaper than a real doctor appointment and just as useless… but yet somehow you feel that this is the only morgellons support site?… that’s pretty fucked up… that’s like saying your husband is the only man that loves you… after he beats the shit out of you…

    tell me sc… did you once suffer from battered wife syndrome?… because the more i read your blogs, the more i am thinking so… i am so sorry for you… it must have been terrible…

  229. Golly, I don’t know what kind of averages I have, with anything, Jeezelouise, but this sounds like fun, as well as a new learning experience, once we find out what it is. Oh, my boyfriend’s back. Hi ya, sweetie, MAFer. (I didn’t leave a bruise when I bit ya the other day, did I? I sure hope not.) Tell me again, what you think that slightly elevated IgM meant, if you wouldn’t mind, please. I’d like to know the rest of the what you’d said that you didn’t consider a diagnosis, too, that you’d ended, with, “blah, blah, blah”, that one time. That actually is significant, MAFer, in tracing something down, that’s going on, immunologically, with you. Please, don’t tease Sarach.

  230. I’ll even beat ya to the punch, MAFer, and tell myself, “no shit, Sherlock”. Yes, it has to do with your immune system’s response, but not because of anything non-existent, called, “morgellons disease”. What you do have, is something totally real, and you have to uncover what *that* is.

  231. Hey, if ya go to the morgie festival next month, I’ll be the one dressed in my ass clown get up. Ya can’t miss me.

  232. Smileykins,

    Yes, you’re right. In my opinion, I don’t think one person should be held to a different standard than another, rather, we all should make personal dedications to ourselves to treat others politely. Regardless if a person is a psychiatrist or a computer salesperson or a burger-flipper.

    I think TC and my disagreement stems from our agendas for being here. Mine is purely for discussion, and TC’s is for discussion plus helping people in whose shoes he has been. I commend that and admire that, but personally, I don’t have the time or the interest to even begin to delve into such a feat. Would you agree, TC?

  233. MAFer said:
    hey sarahconner… that sbd is a real bitch dontcha know… she is teamed up here with the other ass clowns to make you look crazy unless you agree with and tolerate all aspects of what they preach…

    I don’t agree with SBD, I think she is really messed up herself. Certainly got something stuck up her arse. I read the posts she had with London, not nice.

  234. Where is London by the way, anyone heard from her?

  235. Battered wife syndrome?? Do ya have a long list of symptoms for that one too???

  236. When I’d entered the blog the other day, and I’d commented that I thought we needed to clarify MSBP a little bit more, once again, I didn’t realize that I was interupting an ongoing spat between anybody. Later, I saw that Sarah was defending herself against a very fragile person. For those of us familiar with this blog, we have witnessed, and we understand, that Sarach is going through a very difficult, ongoing, transitional period in her life.

    I had commented in #149 about trying to bring more clarity into defining MSBP, because of the comments I had seen Sarach making in reference to some things, again. TC tried explaining it better, in comments #155 and #162, and I tried, in comment #169.

    Sarach has so many things that she is trying her level best to sort through, that it’s hardly fair to throw more things at her, with demands, like in comment #128, and all the other challenging remarks. Sure, you’re free to do so, Sarah, but then, you had claimed, to TC, in comment #218, that you’re just a bystander.

    I don’t hardly think you genuinely expect any of us to think that you view yourself in that light, citing the reasons for using your full name on this blog, in comment #181, as well as taking offense at my comment pertaining to MSBP needing explained a bit more, in comment #182. We had discussed it before your arrival, dear.

    I hope you grow into those britches well before you counsel violent sex offenders.

  237. Excuse me, you’d followed up in saying that you’re here, purely for discussion, in commnet #233.

  238. I guess I may understand where you’re coming from, Sarah, when you’d said, “I don’t think one person should be held to a different standard than another, rather, we all should make personal dedications to ourselves to treat others politely. Regardless if a person is a psychiatrist or a computer salesperson or a burger-flipper.”, but, however, that’s not realistic as to how the world operates. Those perpetrators of violent sex crimes aren’t going to treat you with the respect that you may be expecting from them. You’re young, and you will continue to learn. That’s what living is for.

  239. Sarah Bione-Dunn said…

    Smileykins,

    Yes, you’re right. In my opinion, I don’t think one person should be held to a different standard than another, rather, we all should make personal dedications to ourselves to treat others politely. Regardless if a person is a psychiatrist or a computer salesperson or a burger-flipper.

    No, I don’t agree with you. I believe that we are dealing with individuals, and that we should deal with them as individuals. I don’t have much patients with people that come here to disrupt the blog, but I believe that sick people that come here for help should be treated with consideration for the difficulties they are experiencing. We need to exercise more patience with them than we otherwise would. You are living a normal life. You need to put yourself in their shoes. In short, I believe you need to grow up.

    Sarah Bione-Dunn said…

    I think TC and my disagreement stems from our agendas for being here. Mine is purely for discussion, and TC’s is for discussion plus helping people in whose shoes he has been. I commend that and admire that, but personally, I don’t have the time or the interest to even begin to delve into such a feat. Would you agree, TC?

    My purpose here is helping people, period. That requires discussion. It also requires exposing Morgellons and its founder for what and who they are. It requires debunking some opinions and reinforcing others. It also requires compassion for those who are seeking help. And last, but not least, it requires letting some things and some people be who they are, as long as they aren’t causing trouble, and letting them debunk themselves.

    Tall Cotton

  240. SK & TC – Thanks for helping out.

    Sally is not well at all. I have been to the vet, she is having an operation to drain an abscess from under her chin. The vet shaved under her chin and she had 2 puncture type holes. Apparently she must have been bitten by another cat. It has all happened so fast this morning. She looked so ill, and in pain & crying. Her temp was 40C when the vet checked. I have been sobbing my heart out. They will make her better, I know they will.

    This is the awful thing when an animal is unwell, if they could tell us early that something didn’t feel right.

  241. Sarah C.,

    Cat’s are really tough. Follow the vet’s instructions and she will probably make it just fine. Good Luck with her.

    Tall Cotton

  242. see, that’s the part you don’t get tc… you are not qualified to expose morgellons or to help people… junkies really aren’t qualified to do much of anything… your testimony wouldn’t even hold up in a small claims court, let alone here on this blogsite where you have absolutely no credentials… i think the only person you might be helping is yourself… and that is a fucking margin call at best…

  243. see, that’s the part you don’t get tc… you are not qualified to expose morgellons or to help people… junkies really aren’t qualified to do much of anything… your testimony wouldn’t even hold up in a small claims court, let alone here on this blogsite where you have absolutely no credentials…

    I think all of us are waiting to hear your credentials, MAF. Got any?

  244. MAFer,

    I’ve gone 2 years without illicit drugs. Quitting drugs wasn’t an easy task for me, and most people addicted as badly as I was, aren’t able to make it. That may mean nothing to you, but it does mean something to me. Not only am I an ex-addict, I’m an ex-morgie. What are you but a foul mouthed fool?

    Tall Cotton

  245. Wow guys, your still at it?

    May I please make one suggestion? You should change the name of your site to SARAH CONNOR WATCH.

    HAAHAHAHHHHHAAAHAHAHHA

    4 + 1 = 5

  246. i don’t need credentials to be a morgellons victim sleezylouizy… but tc said it himself… some opinions need debunked, some reinforced… according to his god damned will?… or his fucked up opinion?… or both?… without credentials, that sounds more like brainwashing…

    you can lead a horse to water, but you can’t make him drink… i suppose that is because the water here tastes like shit… about 4 or 5 of you here trying to bag a prize when someone surfs here searching for answers… kind of like an ambush… the stupid ones are much easier to brainwash… says alot about your small cult of morgellons watchers here doesn’t it?…

    if you 4 or 5 clowns here had the credentials, thus the answers, you would have a much larger census than you do… but you obviously don’t… only a few of the weak ones hang… it’s this, it’s that, it’s the other… it’s anything but morgellons…

    well tc… i have gone a lifetime without illicit drugs… bfd… why get addicted in the first place?… and the criminal released on parol wants a fucking medal for not committing any further crimes… whatever douche-bag… i have a new and emerging disease currently being called morgellons… as such, i am a victim… the direct opposite of physical evidence is no evidence at all… myself and others have the physical evidence… you on the other hand, have nothing… science will use this evidence to solve this crime… your efforts to debunk this will not make it go away… only treatment towards cure will do that… you are the one that is truly the fool…

  247. hey noloc… still at it my man… how have you been?… did you have a good golf game the other day?… 4 + 1 = 5… lmfao… that kills me man…

    maybe after sc’s brainwashing is complete, the census will go up and will be better expressed by the equation 5 + 1 = 6… holy shit!… that’s alot… even though smellytits isn’t very good at math, the others here have credentials to handle it… especially margarette, she knows everything…

    c ya later noloc… and remember, if you can’t bag your clubs, you can always bag your wife…. hahahahahaha…

  248. MAFer, I think you have a failure of perspective here.

    People don’t read Morgellons Watch for the comments.

    They read it for the articles.

    I’ve got nearly 100,000 unique page views, the vast majority of those are not people who want to wade through these comments, they are just looking for a bit of information. They do a search, they find a link to one of my pages, they read the article. It helps some of them.

    Fell free to keep posting, ask questions, whatever. But you are reaching perhaps 0.1% of my audience down here in the depths of the comments. I just wanted to make sure you understood that, so you don’t waste your time.

  249. Where is the evidence that it has helped anyone. People read this to see what assholes you are. 4+1=5

    Welcome to Sarahconnorwatch. If you think you have morgellons, watch how we turn a neurotoxic morgellons sufferer into a true believer.

    next episode. . . the real research of SBD. Tune in folks you don’t want to miss it.

    Mafer- #247 you hit the nail on the head – Hey keep my wife outta this.

  250. MAFer, you’re delusional, and that’s a fact!

  251. Why is it that none of Mary’s drones are capable of intelligent debate?

  252. But seriously, JL, you raise a good point. Take a look at the Cheers and Jeers section of QuackWatch. (link below takes you to the “jeers” section, where I image MAFer and NoLoc would post)

    http://www.quackwatch.org/00AboutQuackwatch/comments.html#jeers

  253. well thanks for setting me straight on that Michael… i had no idea…

    100,000 is a pretty big number… so they read morgellons watch for the articles that you write, then move on silently, taking what they will from the articles?…

    the discussion is just for the regulars + misguided souls + dilusionals like myself… ok… i understand…

    well thanks for the invitation to stay here Michael… i think it will suffice until i have a home of my own… getting kind of cozy down here in the depths of all these comments…

    tc… quit fucking around… everyone knows that you are not aware of any facts…

    mary had a little drone, little drone, little drone… mary had a little drone who didn’t know how to debate…

    mary had to target them, target them, target them…
    mary had to target them that didn’t know how to relate…

    everybody now…

    mary had a little drone, little drone, little drone… mary had a little drone who didn’t know how to debate…

    mary had to target them, target them, target them…
    mary had to target them that didn’t know how to relate…

    great tune huh sleezy?…

  254. Gosh, I’m sure impressed. That should be enough to convince anyone to donate to Morgellons research, for sure.

    *yawn*

    G’night, all.

  255. never been there. I wont click your link either. 4+1=5 You are reading sarahconnerwatch. 100,000 – 5 = 99,995.

    Where are those 99,995 people????????

    hahahhahahhahahahhaaaaa

  256. Smileykins said…

    Dear MAF:

    Where have you gotten the idea that anybody is a junkie? I, as well as anyone, AM qualified to say that “morgellons disease” does not exist. A mother with probable Munchausen Syndrome by Proxy is still using her little boy, and her older kids, to a lesser extent, since the death of her husband. Anyone who sees nothing wrong with that, for the sake of needing to hold on to their beliefs in “her disease” that she gave to them, is more far gone than I care to consider.

    Aside from the obvious, she came forth with the fact that she is mentally ill, in the Pittsburgh Post-Gazette story, recently, as well as on ABC, showing the letter from the doctor at Johns Hopkins University Hospital. She us in denial of just how ill she truly is, even though she tells of what her existence is like, in the article.

    http://www.post-gazette.com/pg/06204/707970-85.stm

    People who have fallen for the belief that they have her “morgellons disease” never wanted to know anything about her. All that people who think they have “her disease” ever wanted, and all that they were ever concerned about, was that someone finally believed them. Of course, such people lack the capacity to realize it. I’m sure they wouldn’t want to, anyway.

    She obsesses. Maybe she’d even hallucinated, since she’d thought, and is still convinced (?) that Drew’s having fibers stuck in his eczematous skin, when he was 2 years old, is some sort of new, yet 400 year old, disease, since he’d mentioned bugs. She won’t allow his skin to heal, still pulling his own skin cells out, on national television, from a sore that is 4-5 years old, and putting it underneath her microscope, like so many others.

    A lot of people, doing similar things, misinterpreting their skin, and being overly involved with it, saw their doctors in the past, and were diagnosed with DOP, and many refused to treat for it. If this scenario doesn’t fit anyone reading this, then, don’t let it bother you. It’s been stated clearly, and factually, all along, since the beginning of this heinous crime against a population of people unable to take care of themselves properly.

    I haven’t referred to those doctors that are affiliated with “morgellons disease” as quacks. I have said that they “are in on it”. Crooks is a more fitting word. Dr. Schartz was easy enough to see through, same as the rest. You’re all too ill to know any better. Those of you speaking out against anyone who sees what is being done, illustrate how badly you need help. Lots of dishonesty is all we see out of many of you.

    So true!!!!

  257. MAF, posted to you in #145 underneath Occam’s Hot Tub, by accident. It’s clear that mere brain fog is not the problem. It’s untreated mental illness, ya’ll. I’m not candy coating it. People just don’t behave the ways too many of these people who think that they have “morgellons disease” do.

  258. neither of you are qualified to say that morgellons disease is not real… go tell sarahconner… she will believe you… the other 99,995 (and counting), know you are full of shit… maybe the 4 + 1 of you should purchase some national network time… do a little mass brainwashing… that’s gonna take alot of kool-aid isn’t it?

  259. well, what if i am just fucking with ya’ll?… would you be able to tell the difference?… probably not…

  260. TALKING ABOUT SYMPTOMS IS ABSOLUTELY FRUITLESS ON THIS SITE. SHOW US THE AVERAGES AND NUMBERS OF THE POSTERS. WE ARE SCREWED. LOOK AT BIO-FOOD.

  261. Oh yes, anybody is fully qualified, MAFer, to say “morgellons disease” is not real. Now, tell us, again, what you did say earlier, about the diagnosis that you’d ended in, “blah, blah, blah”, please. It was something about acute perivascular infiltrates, I believe, wasn’t it, and a slightly elevated immunoglobulin M? What are you here for, if you aren’t wanting some real answers as to what is the matter?

  262. BIO-FOOD = WORLD WIDE FAMINE

  263. ThisSiteSUX, what do you want to know exactly, about the numbers of posters who average something in common? MAFer, listen, you want to argue all the time, but what about? You’d once said that “point/counterpoint” wasn’t my forte. Ya damn right it isn’t. I just would like to know why you aren’t treating for what you have, and why you think it’s something non-existent, since you’re here.

  264. MAFer,

    You tremble in your tracks of the truth, but the lies are much worse news. You talk about Sarah Connor, but she has much more sense than you and NoLoc put together. She also shows far more courage. We all know, MAFer, that you have alterior motives for being here. When Morgellons is declared a non-disease, non-syndrome, your websites won’t be worth a dime. If you weren’t afraid of what’s being said on this blog, you wouldn’t be here.

    Tall Cotton

  265. ThisSiteSUX, you need treatment for severe paranoia. What type, exactly, only a doctor could diagnose you. Surely, you have to know that you need some help with it.

  266. yeah sk… that is what i said… so how about those answers?… c’mon, you can do it… guess my illness…

    what real answers are you possibly capable of giving here?… pure speculation and guesswork… you want to run through every possible illness which can cause those findings?… you want to come to a conclusion huh?… well that should be easy… you want to say that all persons presenting with acute perivascular infiltrates and a slightly elevated immunoglobulin M in their cbc with all other tests either being negative, normal, or non-reactive absolutely has to have disease a, but not disease b, c, or d… and they certainly do not have morgellons disease… period…

    let me know what you come up with… can’t fucking wait…

  267. LET ME REPEAT, FUCK YOU

  268. FUCK YOU TURN OFF YOUR DUMBASS COMMENTS

  269. HEY HEY

  270. Thank you, ThisSiteSUX. MAFer, do you have your medical records? I’d need all the information from them, to look up what they say, on line, and then, to look up all the differentials, separately, to narrow it down. Then, you could discuss your suspicions with your doctor, like some of us do, to get to the bottom of your health problems. Do you seem to have a granulomatous reaction in your skin, aside from fibers? I’m not trying to be funny.

  271. GO WACK YOURSELF I AINT HEARING IT.

  272. Didn’t mommy & daddy let you children express yourselves, through nasty talk, enough when you were younger, This SiteSUX & MAFer?

  273. SarachConner sez: Sally is not well at all. I have been to the vet, she is having an operation to drain an abscess from under her chin. The vet shaved under her chin and she had 2 puncture type holes. Apparently she must have been bitten by another cat. It has all happened so fast this morning. She looked so ill, and in pain & crying. Her temp was 40C when the vet checked. I have been sobbing my heart out. They will make her better, I know they will.

    This is the awful thing when an animal is unwell, if they could tell us early that something didn’t feel right.

    Oh, wow. That is heartbreaking. In my opinion, pets are family, and even more troubling when pets are ill because they do not understand why they are hurting. Keep us posted, eh?

    Which brings me to a blog-related question. Is it just what I selectively remember, or does anyone else think that “Morgellons” sufferers often say their pets suffer too?

  274. MAFer, TSS,

    Why are you boys so angry at yourselves?

    Tall Cotton

  275. hey thissitesux… you talkin’ to me?… are you… talkin’ to me?…

    if so, would that be a weedwacker or a fiberwacker?… maybe a bushwacker maybe?… maybe just a good ‘ole weenywacker?… is that what your talkin’ ’bout?… a good ‘ole weenywacker?… ya gotta be more clear here cause these clowns see… they like details see… they gotta be all up in your ass ’bout everything see… ya gotta just speak up there see…

    WHAT KIND OF GODDAMN MOTHER FUCKING PIECE OF SHIT CUNT SUCKING FUCKED UP FUCKING WHACKER ARE YOU FUCKING TALKING ABOUT PUNK?

    yeah, mom never let us cuss at home… fuck you mom…

  276. FUCK YOU PAL

  277. well tc… for me, it is because i didn’t grow up to be just like you… for tss, it’s because he was born without a penis… surely you can relate… and understand… appreciate the concern…

    sbd… yes, you are selectively remembering… but that is what you do best…

    tss.. well alrighty then… you must be talkin’ to me… how’s your sister been doin?… good i hope…

  278. you are are stupid

    fuck you

    have a nice day and avoid your meth

  279. Wow. Talk about a downward spiral on the comments section, eh?

    Here’s something I heard today, I wonder what other people think? Today I suffered through a 3.5 hour class on psychodynamic theory. The part of my brain that didn’t turn to much during that ordeal discussed Freud’s case of Elizabeth R. and how she couldn’t walk because her father died and she was in love with her brother-in-law.

    Personal opinions aside about the validity of psychodynamic theory, my professor chatted about how he felt fibromyalgia and chronic fatigue syndrome were the last recognized purely psychologically-based physical disorders.

    I’ve been googling a bit this evening, and my google skills are admittedly pathetic, but I can’t find any definite causes or pathogens of these conditions. Could my teacher be right?

  280. I have a typo! :( . I meant to type, “The part of my bran that didn’t turn to mush,” not much. It actually turned into something with a similar consistency of tapioca pudding. Talk about brain fog….

  281. We like details see? We gotta be all up in your ass ’bout everything see? Ya gotta just speak up there see?

    And you know why, too, see? It’s called facing truth, MAFer, and cutting out the bullshit. You people did come here, see? So let’s deal, see?

  282. i are are stupid?… no… you is is stupid…

  283. MAFer & ThisSiteSUX, you really do not know that you both come across as being off your rockers. Is that correct?

  284. Wow. It is incredible, to need to hang on to a fake disease, for whatever it is that you’re deriving from the experience, rather than wanting to get healthier, and treat whatever you have.

  285. SBD, CFS is still open to debate, but there is certainly no known pathogen (lots of whack theories though). But I’m not sure what you are asking?

    Everyone might want to consider reading this book:

    http://www.amazon.com/exec/obidos/tg/detail/-/0231104596?v=glance

    It’s old (1997), but the first chapter and the chapter on CFS ring a lot of bells. There is also lots of (actually readable) stuff on the coevolution of psychoanalysis and the manifestations and interpretations of silence in feminist literary theory, if you like that kind of thing.

  286. I hope nobody will accuse me of being too draconian if I put these two into moderation for a while?

  287. going to bed anyways Michael… have at it…

  288. Alright, MAFer and ThisSiteSUX are in timeout for now. I’ve cleaned up a few of their last comments, which were devoid of meaningful content.

  289. I like the full definition, as it contains a lot of very relevent discussion:

    http://www.cdc.gov/cfs/cfsfullcasedefinition.htm

  290. I wish morgie people were actually into reading, and asking for specific tests that are relative to their possible symptoms, so they’d get off this nonsense, and treat their real conditions. They’re so bent on “morgellons disease” they can’t entertain anything else, while they continue to worsen. It’s such a shame to be so blinded by something.

  291. i just read ‘tall cotton’s’ story. i found it well written, insightful and disturbing. i have only been privy to this site for a few days. i am fascinated by the obvious disdain tall cotton and smileykins seem to have for people who apparently unlike them, actually do suffer from morgellons. the personal mental illnesse at the time of their ordeal proved to be just exactly what they are trying to pawn off on current members in the morg community.
    readers – do not pay attention to the man behind the curtain, or in this case, do not pay attention to their output of incessant banter. they are not qualified to make judgement or decision regarding anyone’s person’s health. they have a post recovery hangover from their own personal psychotic activities as listed in the story. their self professed backgrounds makes for a less than favorable resume if considering applicants for quality role models for the youth of our society. would you allow your children to follow the advice of a tweaker, supposedly clean, but less than two years? his damage is done. once a tweaker always a tweaker – - user or not.
    and his bride to be, – - did i read her posting to say she is on disability? OK, now there is someone with time on her hands. please, do not misunderstand me. i have a tremendous respect for our country’s ability to take care of those not quite able to make it on their own due to a physical or mental weakness.
    i came to this site to hopefully find reasonable info on my current situation with morgellons. my symptoms recently came on strong and clear. they have usurped much energy. i am an upper level management exec who has no time to peruse such worthless internet banter. i know with confidence, and my doctor, friends and colleagues know with confidence, that i am not mentally impaired or delusional. i suffer from no mental illness. but i am suffering from something. in desperation, we are searching for help. in fervor, they are ridiculing us. their comments towards morgellon sufferers are offensive. they help to create an atmosphere of acceptance for this small group of haters.
    i look to the day when we discover the real source of this gross disorder referred to as morgellons. i look to the day when these two not so real ‘experts’ disappear into a honeymoon of obscurity.

    (no offense to you, moderator. your page is well put together and easity navigated albeit somewhat slanted towards antimorgs)

  292. Patrickevin, you poor man. I haven’t meant to cause such a disturbance to your delicate psyche. “Please, do not misunderstand me”, you said. I assure you, I don’t. It’s apparent that you need counselling, and adequate health care. I hope that you’ll get it one of these days. Your typical talk is quite commonplace and well understood. I’ll begin making myself more clear, from now on. Thank you for your input.

  293. Before I begin my plans, I need to add, Patrick, that you are a victim of yourself. Try chewing on that for a while, and examine it for yourself. Did your parents rear you to be that way, were you influenced by peer presssure, or just what have the circumstances been, in your life, to cause you to feel the way you do? Let go of all those hangups and free yourself.

  294. thank you for the 10 cent eval smiles. and i assure you, i have some of the best health care available and i am very versed in the managed health care arena. as you said in an earlier posting, you came to this site with a lot of baggage. i came with none but the things coming out of my skin. and i don’t mean tweezing or pinching out of my skin, i mean practically oozing out sometimes. i met with a colleague who is a very respected psychiatrist on the west coast thinking maybe the stress of my position was getting to me. but he, and other colleagues have witnessed the the emergence of those fluffy white fuzz things. i will not debate its reality with you because it happens. and that’s that. you have not disturbed my delicate pysche. if you knew me smiles, you would understand that i am not a rash person. your dimestore riddles of generalism mean nothing to me or to most likely anybody else. my statement of ‘please do not misunderstand me’, was entered in the context so as not to be rude regarding my disdain for your inability to work and our country taking up your slack.
    except for losing friends and family members to drugs, i have had, and will continue to have a charmed life. i’ve worked hard, and the payoff has been more than stellar. i know, i know – ‘whatever that means’.

    the only peer pressure i ever succomb to is keeping up with my peers on superficial materialism. but i accept that fault and enjoy it. this is so cal after all. i can not speak for my parents as to how or why they reared me the way they did. i only know they love me and i love them. they gave me a story book childhood and for that i am very grateful.

    i am serious about finding some answers, and i mean real answers to this enigma. it is clear that there is no balance for that purpose on this site. i will keep looking. in the meantime, and i am not telling you what to do either, but lighten up, have some fun and leave these poor morgies alone. if you care so much about people, give of your time, not of your mouth. good luck with your marriage, and have a nice life smiles…

  295. Evening folks – wow! bit a stuff been happening hey. My little sal is doing great. Operation went well, she has a nice blue bandanna around her neck! Just need to give her some antibiotics over the next few days, keep her indoors and also give her lots of cuddles. Thanks for the support guys.

  296. To anyone that is passing through and reading, it does feel really good when you do understand, learn and realise – there is no such thing as Morgellons Disease.

    Just needed to add that – after all it is SarahConnorwatch isn’t it?! hehe..

  297. You have not disturbed my delicate pysche. if you knew me smiles, you would understand that i am not a rash person. your dimestore riddles of generalism mean nothing to me or to most likely anybody else. my statement of ‘please do not misunderstand me’, was entered in the context so as not to be rude regarding my disdain for your inability to work and our country taking up your slack.

    ….except for losing friends and family members to drugs, i have had, and will continue to have a charmed life. i’ve worked hard, and the payoff has been more than stellar. i know, i know – ‘whatever that means’.

    Yes, Patrickevin, I have VERY MUCH disturbed your *extremely delicate pysche*. Read your comments in #299. My existence, and my comments, very much mean something to you. You are loaded full of prejudices, and I feel that just might be a lot of what’s caused your conceived illness. It is a very common trait among people who think they have “morgellons disease”.

    May better health come to you, someday, and a brand new awakening of your spirit. I’m sorry that you’ve lost friends and family members to drugs, and that you have that common trait, of needing to announce so much of your background to bring validity to yourself. Thank you for sharing.

  298. Typical: “…if you care so much about people, give of your time, not of your mouth. good luck with your marriage, and have a nice life smiles”

    Hey, I missed that. Patrickevin, save your fake sentiments for some sucker.

  299. What happened Michael? You didnt like me pointing out that the only person here that regularly posts is Sarahconnor?

    Where did that post go saying that you have 100,000 visits? You can’t count each time sarah logs in.

  300. Oh my apologies. I did not see that the four of you left like sixty more posts of NOTHING. Having fun?

  301. post 305… after just a couple of posts from patrick… sk has basically diagnosed him crazy… his illness is only perceived, not real… then, she accuses him of anouncing his backround only to lend validity to himself… yet her life story is linked to her name… tc’s too… i guess some stories are important and some are not… so glad you and tc have found validity in your lives by publishing your life stories…

    and you want to know more about me don’t you sk?… that’s funny, and not going to happen… are you starting to get the picture yet?… there are only 5 of you here… why is that?… no one is signing up for your cult are they?… you are certainly better at meth than you are at math…

    if this site has gotten 100,000 page hits, that’s great… i can only imagine what a quality morgellons website with a great domain name would do… thanks for the insight Michael… really appreciate it…

  302. MAFer, you, as well as other disruptive morgie people, have proven it to be fultile to try and assist you with some of your cognitive deficits. I’m not here to argue, and you know that only a doctor can diagnose patients. Patrickevin was very upset, and I didn’t say that he is crazy. The content of his first comment, #299, is self-explanatory, and he made it, I am assuming, as all other morgie people have, under the guise of saying that TC and I have caused him a lot of personal grief. He states what he thinks, and believes, we have done, infringing upon him, and violating him, personally, in terrible ways. Patrickevin even thinks that we’re also doing it to other morgie people. The man is disturbed, and it isn’t pleasant to see that the poor defenseless fellow thinks TC and I did it to him. Maybe if I list most of his false claims, that will help you understand better:

    1. obvious disdain tall cotton and smileykins seem to have for people who apparently unlike them, actually do suffer from morgellons. —- (We like everybody. Morgie people can’t handle their own health matters.)
    2. the personal mental illnesse at the time of their ordeal proved to be just exactly what they are trying to pawn off on current members in the morg community. —- (Smiley thinks he needs to scratch his head on that one)
    3. they have a post recovery hangover from their own personal psychotic activities as listed in the story.
    —- (“post recovery hangover”. cool.)
    4. their self professed backgrounds makes for a less than favorable resume if considering applicants for quality role models for the youth of our society. would you allow your children to follow the advice of a tweaker, supposedly clean, but less than two years? his damage is done. once a tweaker always a tweaker – - user or not.
    —- (He out-did himself on that one, as you can see. Note in post # 302 that he, unfortunately, has personal experiences tarnishing his beliefs)
    5. i am an upper level management exec who has no time to peruse such worthless internet banter.
    —- (Oh, we all respect, and believe, him, now. Yes, sir.)
    6. i know with confidence, and my doctor, friends and colleagues know with confidence, that i am not mentally impaired or delusional. i suffer from no mental illness. but i am suffering from something. in desperation, we are searching for help. in fervor, they are ridiculing us. their comments towards morgellon sufferers are offensive. they help to create an atmosphere of acceptance for this small group of haters.
    i look to the day when we discover the real source of this gross disorder referred to as morgellons. i look to the day when these two not so real ‘experts’ disappear into a honeymoon of obscurity.
    — (more of the typical commonalities)

    Those things that have Patrick so upset aren’t true. He is in a bad situation due to those misconceptions, whether you see it, or not, MAFer. He clarified the last ill conceived belief he has, which has permeated into his mind and bothered him to the extent it has:

    7. my statement of ‘please do not misunderstand me’, was entered in the context so as not to be rude regarding my disdain for your inability to work and our country taking up your slack.
    — (I’m not taking his, nor anyone’s, money, I assure you.)

    Isaid I was sorry for disturbing his delicate psyche, but that I think he had one to begin with. That’s not “diagnosing him as crazy”.

    Now, to address you, baby..

    then, she accuses him of anouncing his backround only to lend validity to himself… yet her life story is linked to her name… tc’s too… i guess some stories are important and some are not… so glad you and tc have found validity in your lives by publishing your life stories…

    and you want to know more about me don’t you sk?… that’s funny, and not going to happen… are you starting to get the picture yet?

    I was referring to Patrick’s having done the “typical thing” that morgies do, of providing his background status, as though that information will cause us all to respect him and think that makes him immune to mental illness. The man just proved how bad off he is, coming here, so hurt, and saying what he did, for pity sakes.

    I don’t expect someone in fhe same position, such as you, MAFer to be anything less than what they’re being. Tall Cotton and I aren’t afraid of truth. Morgies run and hide rather than discuss it. We know it can’t be helped, and we wish it could. I get the picture, yes, loud-and-clear….always have.

  303. Okay, I don’t want to know anything more about you, MAFer, if you feel that you need to protect something. Just going on the tiny clue of a slightly elevated IgM and acute perivascular infiltrate, read this, if you ever decide that you need to help yourself. It’s a good start…

    Palisading granulomatous (necrobiotic) dermatitis associated with small vessel neutrophilic vasculitis

    can be seen in both PSV such as WG and Churg-Strauss Syndrome (CSS) as well as CTD such as rheumatoid

    arthritis and lupus erythematosus (Fig. 15).(50–54) Extravascular granulomas exhibiting eosinophilic

    debris around degenerated collagen bundles due to tissue eosinophilia and flame figures (so-called red

    granuloma) are found in CSS,(55) whereas extravascular granulomas with basophilic debris (‘‘blue’’

    granuloma due to mucin, neutrophilic nuclear dust) are found in WG and rheumatoid vasculitis.(56)

    The site specificity and persistence of vasculitis may, in part, be also related to localized endothelial dysfunction mediated by interactions between stromal cells and endothelium.(118) For instance, smooth muscle cells and pericytes might activate endothelium, amplifying its response to pro-inflammatory agents such as tissue necrosis factor (TNF)-alpha resulting in leukocyte recruitment and fibrin deposition resulting in and enhancing vasculitis. In turn, this localized vessel wall inflammation can have systemic effects by eliciting diffuse endothelial dysfunction in distant vascular beds via release of secondary mediators such as TNF and CRP directly into the blood stream.(119,120) In fact, systemic vasculitis has been found to be associated with arterial stiffness, a marker of diffuse endothelial dysfunction, which directly correlates with the degree of inflammation and disease activity.(121) Anti-TNF-alpha therapy can reverse this endothelial dysfunction highlighting its role in the pathogenesis of vasculitis and its accompanying diffuse endothelial dysfunction.

    http://www.vgrd.org/archive/cases/2006/CME%20vasculitis/cme%20vasculitis%20text.htm

    Note: If no obvious cause or diagnosis is apparent, the evaluation should be completed with tests for rheumatoid factor, antinuclear antibodies, anti-dsDNA antibodies, antiprecipitin antibodies (Ro, La, RNP, and Sm), CH50, C3 and C4 levels, cryoglobulins, and ANCA’s, as well as performing a chest X-ray and serum and urine electrophoresis. In addition, monitoring of levels of certain cytokines (IL-6, TNF-?), c-ANCA, acute phase reactants (CRP), activated coagulation markers (thrombin-anti-thrombin III complexes), or markers of endothelial function (endothelial microparticles, thrombomodulin) can potentially measure disease activity and response to therapy

    BTW, silly boy, TC and I didn’t provide our “life histories” in our blog stories. I really want everyone to be well.

  304. Thanks for those links SK, reminds me I need to write my notes before my next appointment. I want to make sure she is aware of everything I am currently taking ie. supplements such as fish oil. I don’t want to leave any stone unturned, if she doesn’t know what is happening with me or what I am taking how can she help me. Good thinkin 99!

  305. Patrickevin said…

    i just read ‘tall cotton’s’ story. i found it well written, insightful and disturbing.

    you have not disturbed my delicate pysche.

    Well, Patrickevin, make up your mind!

    Patrickevin said…

    in the meantime, and i am not telling you what to do either, but lighten up, have some fun and leave these poor morgies alone.

    You’re not going to, but…

    Patrick, you sound like a typical morgie. You continually contradict yourself. Your delusions are also very apparent.

    You need some help, and by the sounds of it, so do your friends and your doctor.

    Tall Cotton

  306. MAFer,

    Without the profanity you seem to be at a loss for words.

    Tall Cotton

  307. Ok just read the last WEEK of posts and gee here are my thoughts:

    Smileykins your “Twenty-Five Rules of Disinformation” sounds more like my teenagers thinking :-)

    Tallcotton “Somebody didn’t get a prize in their Cracker Jacks” LMAO !!!!!!!!!!!!!! Good one!!!!

    Jeeezelouise and TC – MAFer is only in 7th grade and doesn’t have the mental development yet to know that mature people doesn’t cuss to make a point. it looks like he has his best friend posting here now too.

    Finally – the TWO SARAH’S – As I told him kids years ago “KNOCK IT OFF” If you have nothing good to say about somone – then don’t say anything at all!!!! It will save everybody else from reading longggggggg post that have no meaning to the topic.
    See everybody next week – doesn’t take long to get up to speed, same thing different day.

    Oh before I go folks over at NMO have updated their pets tab – WAY TO FUNNY!!!!!!!!! and hear they will have a CDC tab soon – now that should be good!!

    http://www.cherokeechas.com

    Oh yeah – got my packet in the mail the other day from OSU for when I registered there. before everybody get wacky – I just registered to see what OSU sends people – SO here is the cool part in that Packet they had NMO Help Tab print off of the website!!!!!!! only thing about MRF was their letter to the CDC. LOLOLOLOLOL

    Next week folks

  308. TexasRose, I hadn’t known what Sarach was referring to in comment #109′s “Twenty-Five Ways To Suppress Truth”, and, so, I looked it up and printed it out, just in case I wasn’t the only person who was unfamiliar with it.

  309. I will be back to do a copy and paste job this evening on the rest of the questions brought up, in the meantime, have you guys heard this theory about morgellons yet?

    http://www.headlice.org/news/2005/august/tiny_bugs_wreak_havoc.htm

    Could it be that either our changing climate or perhaps over use of antibacterial products are attracting these ancient bugs to us as parasites?

    Or is the npa in on the conspiracy and merely pushing propaganda?

    The theory seams pretty sound to me, do you consider this crazy propaganda from a delusional organization? If so why?

  310. Wymore has attempted to amplify the DNA of Collembola in samples from Morgellons patients, and found nothing.

    http://www.morgellons.org/updates.html

    When used in the PCR reaction, these primers are expected to amplify a 690 base pair fragment of DNA. Thus far, no DNA fragment has been amplified from the Morgellons samples. This suggests one of two likely scenarios: 1) that the samples contain no Collembola DNA for this gene, or 2) that the PCR is not working properly. To examine the 2nd possibility, PCR from a sample of old leaves, and a bit of soil has yielded an (approximately) 700 bp fragment of DNA as expected. This fragment of DNA will be sequenced in the near future. If it is a Collembolan species, then the PCR is working and it suggests that the samples isolated from Morgellons patients, thus far, do not contain Collembola DNA, and hence, these Morgellons patients symptoms are not from Collembola. More unrelated tissue samples from other patients will be assayed for Collembola DNA in the future

  311. They perpetually “molt” their exoskeletons (perhaps the specks of sand?), and the collophore, the organ that gives them their name collembola “glue bolt” is not fully understood, first thought to excrete a adhesive liquid to stabilize them after a jump, it is now thought to help moisturize them, yet one study observes one species gluing itself to the “substrate”.
    http://i20.photobucket.com/albums/b247/hujo9000/bugs.jpg http://webs.lander.edu/rsfox/invertebrates/collembola.html

    The males mate by producing a fibrous stalk on which a spermataphore is placed and the stalk is attached to the substrate.

    http://i20.photobucket.com/albums/b247/hujo9000/stalk.jpg
    http://www.cals.ncsu.edu:8050/course/ent425/text02/hexapods.html

    the fibers?

    Also, I am currently in contact with a number of professors and entomology heads, interestingly, none that have gotten back to me can tell me, the strength, texture, or color of the collembolans spermatophore stalk or if the stalk would contain collembola dna or if they are known to eat borrelia. Apparently the cryptosphere is understudied compared to other insect “areas”. I will update.

  312. P.S. If you decide to phone please ask for Gillian. Just do a google on the X-Zone radio show, you will see my name, I am the aussie girl. Good bye.

  313. All fair and well talking collembola people. The CDC need to make a decision, how many more years do THEY need, you have already had 6 plus years.

    At least victims like myself could possibly be treated with a bit of respect.

    I have a lovely little letter in my possession which was sent to Mr Dan Rutz, which reminded him to go talk to his mommy, while he new very well that a man with this affliction was dying in hospital on chritmas eve from respitory distress. I did not write that letter.

    Well my mommy don’t want to bury her daughter, and she wishes her daughter were crazy – but she ain’t!!!!

    Don’t you dare go trying to push myself or Mary Leitao into corners saying we have menopause, or anxiety, or worry too much, or that Mary digs out fibers, come on get real. Mary didn’t have to start a website to ask for Mental Health Assistance for herself. She had to start a website because no government official would listen to her or her husband or anyone in the USA for that matter. Given what the USA Government has allowed those poor victims of Hurricane Katrina to suffer I am not surprised this is all happening – it is a down right disgrace. Human cull. If anyone is wearing tea towels on their heads, its the US Government.

    Since you have all tried so very hard to throw me off track all over the internet you failed on one thing, you could not read my mind, you may think you can control it – but the truth is the truth is the truth!!!!

  314. Michael has the conection between the spemataphore stalk
    and the fibers been made yet? What do you think?

  315. So if you can’t mock it you ignore it?

  316. Sorry, I’m was unclear what you were asking. “Has the connection been made?” – well, you just suggested the connection, so yes, it’s been made. Any evidence? No.

    I think if you had that many visible stalks, judging by your picture, there is no way you’d not see the things that are making them, unless the collembola can produce fifty times their bodyweight in sperm.

  317. How can you say that when there is no scale present? Also some species are iridescent, they can only be seen in the right light, as well the method for implanting this stalk is unknown, do they push it into the soil?/skin or just place it on the skin. And I mean spiders dude, their webs are like 500 times the size of the bug that made them. Quite frankly in my experience, entomologists don’t know shit about these bugs other than the plainly observable. I will update.

    To answer your other questions I don’t see how my age is relevant, but I had only heard of morgellons two days before I posted here.

    As far as the gulf war sickness, you are right there is a whole host of reasons 2 out of 5 soldiers that served in the gulf war are sick, just not one specific reason, therefore thru a cop-out, a matter of syntax insurance companies and the military have weaseled out of compensating these soldiers for their various illness, they were exposed to while defending your country, they remain unsupported and suffering.

    The reason why I say you may be involved with insurance co. is for these same reasons you seem to want morgellons to be 1000 different things, anything but an actual parasite or one specific illness? Why? So insurance co wont have to pay and people remain unsupported and suffering?

  318. A spider’s web is about 1/100th the mass of the spider. Look at your photo:

    http://i20.photobucket.com/albums/b247/hujo9000/stalk.jpg

    If that stalk is visible, then the drop on the end has to be visible. The thing that produced the drop has to be of larger mass than than the drop, meaning it is larger than the drop, meaning it would be visible.
    I don’t want Morgellons to be anything. I’d be happy either way. I’d be more happy if it were a new disease, as that would be scientifically very interesting. But the evidence simply does not indicate that.

  319. http://www.headlice.org/news/collembolosis/microimages.htm

    I don’t think the species that could be responsible is visible, your reasoning about the size in the pic is sound. What if the pic only shows the tip of the ice burg? I don’t know how they are attached yet, is it adhesively or pushed into the substrate?

    “But the evidence simply does not indicate that.”

    I think the problem with this (collembola) theory is lack of evidence caused by no study into collembola as parasites.

    So we have a bug found on 18 of 20 morgellons suffers skin a bug that is hardly studied and whose very organs aren’t fully understood and you don’t think this alone is suggestive of anything?

    Do you have superior knowledge about the study of these bugs that I have missed, why so quick to write ‘em off?

  320. Those were not “morgellons sufferes”, they were people who were diagnosed with DOP, and that study has been widely discredited – all it did was look at still photos, and you can see youself that it takes a lot of imagination to see the bugs there.

    I’m not writing them off. I’m just saying there is no more evidence of Collembolla than anything else.

  321. Here’s an entomologist’s opinion of that study, so you don’t have to go by mine:

    http://delusion.ucdavis.edu/others.html

    There are suggestions that two groups, Collembola and Strepsiptera are parasitic. However, these groups are not capable of parasitizing humans. Strepsiptera are exclusively parasites of insects. There is no evidence that they parasitize anything else. Collembola lack the structures necessary to enter human skin, either to feed or to lay eggs. The authors of the single publication proposing to have found Collembola in human skin (2004. New York Entomological Society) manipulated photographs in Adobe Photoshop to supposedly show the presence of Collembola and their eggs. The quality of the photographs and the quality of objects in the photographs was so poor that it is quite possible to see almost any kind of animal in them. The journal should be embarrassed for having published this work.

  322. Fair, I still think, it could be a parisite, perhaps a new unknown one, ask an entamologist how many new insects are discovered every year, i just worry about the attitude “if we dont already know about, it cant exist” It is a dangerous attitude for the medical community to have.

    One last question, is the cdc publishing their findings and methods for the new investigation going on right now?

  323. I have something to say. Someone named James said he can’t take anything I say as being serious, due to my user name. When he reappears and assigns one to me that will better serve him, all right. Until then, I’m Smileykins, just because it reflects my nature. I’m sorry it has offended.

    Many are probably familiar with this patient’s account, and the excerpt from the page in this link:

    http://www.dpref.com/science.html

    No scientific investigation into the basis for primary delusional parasitosis has ever demonstrated its cause–or, in fact, its actual existence. Every well-documented case of persistent delusions of parasitosis, for which sensitive and precise testing for parasites has proven negative, has turned out to have been associated with some other physical or mental condition. Only one study published so far has actually examined the skin of individuals with delusions of parasitosis in comparison to controls. This study found over 300 anomalies in the skin of 20 individuals with DOP, compared to none in the controls. The anomalies, which occurred in every single subject, included fungus, nematodes, algae, pollen, cellular debris, and what appeared to be insect eggs, larvae, or embryos. Image enhancement eventually showed evidence of collembola, or springtails, primitive insect-like creatures recently separated by taxonomists from true insects, in 18 of the 20 subjects.24 There have been occasional documented reports of springtails infecting humans published during the last several decades.24,25 The dermatologists are not impressed or swayed by the evidence of these studies.

    Also, many are familiar with excerpts from this link:

    http://www.rgj.com/news/stories/html/2004/05/08/70309.php

    From Dr.Jay Adams, a Carson City dermatologist who is president of the Northern Nevada Dermatological Association…

    “Everybody has fibers and foreign objects on their skin, even things that live on them although we don’t usually like to think about it,” Adams said. “For the most part people don’t obsess about that. There definitely are a group of patients who have focused on the idea that things are crawling under their skins and will take extreme measures to prove that to you. It can take over their lives.”

    Adams said it’s possible some patients may be misdiagnosed with delusions when they actually may have a physical cause for their symptoms. But he said that’s rare.

    “I think that patients with (delusions) are a far more common answer than any of the patients who may really have parasites. Delusions of parasitosis is real. Most of the patients are delusional.”

    (There are physical causes for DOP, for certain.)

    From Dr. Harvey, whom we are all familiar with…

    “The patient told me some strange stories about things that were living on her skin so I, too, wondered if her illness was psychologically based,” he said.

    He looked at the lesions and saw “tiny colored threads” in the wounds. He sent several specimens to a mold expert for analysis. The fibers were put in culture dishes to grow, but only a fungus called candida tropicalis was found.

    Harvey also found tiny worms on a patient’s scalp that later proved to be the nymph form of a feline parasite — a tapeworm that preys on cats and shouldn’t be found on humans. Other patients were infested with forms of algae, other plant pathogens, or candida tropicalis, the fungus found in the laboratory culture of the “fibers”.

    Providing that these patients have seen a general practitioner, and not previously been diagnosed with a any of the physical conditions that would attribute to their being convinced that they’re harboring parasites, there are still reasons for them to think that they are.

    Dr. Harvey even acknowledges…

    “Once I started taking these patients seriously, I saw the variety and number of unusual and unexpected skin occupants was real, they were unequivocally there,” Harvey said. “I still don’t know what some of these things are, but my theory is that the symptoms are a phenomenon of a much larger process that has rendered their skin immunity ineffective.”

    It requires very little thinking, to know their skin immunity has become compromised. Also, look at that list, again, of things that Dr. Harvey found on the patients he reportedly examined…

    1. Tiny worms on a patient’s scalp that later proved to be the nymph form of a feline parasite — a tapeworm that preys on cats and shouldn’t be found on humans
    2. Forms of algae, other plant pathogens, or candida tropicalis, the fungus found in the laboratory culture of the “fibers”

    And, in reference to that Collembola study, again, the anomalies mentioned…

    Fungus, nematodes, algae, pollen, cellular debris, and what appeared to be insect eggs, larvae, or embryos. Image enhancement eventually showed evidence of collembola, or springtails, primitive insect-like creatures recently separated by taxonomists from true insects, in 18 of the 20 subjects.

    But that is not what people have been led into believing is something called “morgellons disease”. No, wait a minute. Oh yes, it is. Practically anything that’s been adhered to lesions, or entrapped within the epidermal’s protective layer (consisting of up to 30 layers of stratified squamous epithelium), is what this is precisely about, to many people, aside from environmental fibers. Right?

    It’s also, apparently, about their own skin having any vascular malformations, such as generalized essential telangiectasia, which has been noted to improve with the administration of tetracycline, oral acyclovir, and ketoconazole, sometimes, often helps.

    http://www.emedicine.com/derm/topic164.htm

    Also, it obviously involves the extrusion of their own collagen and elastin fibers, due to scratching their skin. It even encompasses those who dig into their skin and pull out connective tissues, glands, nerves, and venous structures. Also, it involves people who pull off scabs.

    There are numerous explanations for people to have environmental fibers, as well as to produce fibers from their own bodies. There is no undiscovered pathogen at play known as “morgellons disease”.

    Please notice the picture of the womans’s thighs in the Reno news article link. The heat from my laptop caused my legs do that and I just exfoliated it away, over time. Regular skin stimulation, and gentle exfoliation, will remove anything that is suffocating the skin. Why some people have a buildup of dead cells, and, debris of all sorts entrapped inside their skin, is something only they should be able to figure out, for themelves. They’re not, though.

    Their skin is sluggish, there is no doubt about it, and, more than likely, they are too. I mean, chronic fatigue, afterall, seems to be prevalent within this group of patients. Vitamin B12 is in short supply of all people as they age, commonly resulting in anemia. What does anemia do? It makes ya tired, and not get enough oxygen to your cells. Our skin just naturally slows down as part of the normal aging process, too. Those two things are facts, existing among people with nothing else the matter with them, but it can lead to other things, though. Proper nutrition, adequate hydration, exercise, regular exfoliation, and proper rest, results in better health for everyone. When there is an imbalance, it will show up in the skin.

  324. smilykins…..where do u get the time?

  325. BEWARE-

    THIS SITE IS PLANTING THINGS ON YOUR COMPUTER LIKE COOKIES AND VIRUSES. SCAN YOUR PC AND DECIDE FOR YOURSELF.

  326. Gringo/Houston, if you think that’s a problem, then why keep coming back?

    And why keep changing your user name – that’s about ten now?

  327. Cookies are for your benefit, dummy. And there are no viruses on this blog, regardless of what you may think. Don’t you get tired of spouting off the same nonsense all the time. No one believes your lies. All you’re accomplishing is showing everybody just how stupid you really are.

    Tall Cotton

  328. Where do I get the time? It’s just here, Al. I can’t work anymore, and haven’t in years. Gringo/Houston, how are you even hoping to spread your unreasonable fears to anybody, when you’re always here, in the very place that you pretend to harbor these fears over?

  329. Hujo Says:Fair, I still think, it could be a parisite, perhaps a new unknown one, ask an entamologist how many new insects are discovered every year, i just worry about the attitude “if we dont already know about, it cant exist” It is a dangerous attitude for the medical community to have.

    I see where people are coming from when they say that because something is unknown doesn’t mean it doesn’t exist. However, that is not how entomology works.

    An insect is a visible object, whether to the naked eye or under a microscope. Discerning an insect from other objects, such as fuzz, debris, grass, hair, is quite simple even to an untrained eye, especially under a microscope. One has form and structure, the other, well, doesn’t, or if it does, it is certainly not an insect.

    So, an unknown insect is still visible. An entomologist merely has to peer through their eyes or through a microscope and see that it is or isn’t an insect and make distinctions about the body structure of the organism (does it have six legs? eight? thorax? cephalothorax?).

    Then, if the criteria for being an insect are met, taxonomy occurs to determine what kind of insect it is. If it is unknown, any entomologist would be thrilled, as they can publish about the discovery.

  330. Tall-Smiley-Morg and jeeze are the same person. Why do you spew at the mouth and say nothing. Blah, Blah, Blah. Cookies are used to track people and viruses are used to disable computers. Why would you do that?

    Your feable attempts to tell everybody they are dilusional dont cut the mustard. This is a new disease and you are not convincing anyone that is isnt. You are obviously trying to cover up something. What is your purpose of debunking? Your argument is? Who do you work for? You expect us to believe you would spend your retirement doing this?

    Smiley has the time because he is Morg, the retired programmer guy (yea right) and gets paid nothing for this (yea right again).
    and no one paid for this site and no one pays for its maintenance.

    THIS SITE IS PLANTING VIRUSES AND COOKIES. DO A SCAN AND DECIDE FOR YOURSELF.

    IF YOU OR A LOVED ONE ARE AFFECTED BY THIS, PLEASE SEND A CONTRIBUTIONS TO OSU. IT IS TAX DEDUCTIBLE.

    SEE YA LATER, TALL-SMILEY-MORG-JEEZE.
    Infect my machine again, dont care, I know how to defeat it.

  331. Indeed, why would I want to disable people’s computers? Surely I’d actually want them to keep coming here and reading my posts? I’d just scare them away if I was planing a virus on their computer.

    I’m sure this punding is making you feel better. But it’s starting to get a little sad for everyone else.

  332. this entire site is sad indeed. Get a charitable cause.

  333. And so what if you dont like my position. I do it to spite you. Just like you, I do it like that.

  334. Houston,

    Does your Mother know that you are playing on the computer again?

    Tall Cotton

  335. I wish we knew something, of how ill Houston’s mother actually is, having a son displaying such traits, all for her sake.

  336. Houston may be the sick Mother!

  337. Michael, there is a flaw in this logic, it seems only one study was ever published on “dop” patients that actually examined their skin, that study (discredited in your eyes) revealed skin anomalies and possible collembola as parisites.

    My question; has there ever been a study done by skeptics trying to disprove morgellons that actually examined the skin of dop patients, that is to say what proof is there that skeptics are not just writing it off? I find nothing to indicate the dissenters have given the matter any study or ever published the methods they use to come up with “dop” diagnosis. Their titles and authority are their only proof

    If the CDC only publishes a statement that says “it does not exist” without actually studying the skin or revealing the methods used to come to that conclusion, how can you be satisfied it is dop?

  338. In oder to give a diagnosis of DOP, the doctor first has to examine the skin to make sure there is no real infestation.

    So people diagnosed with DOP have already had their skin examined, and usually by several doctors. They did not find any parasites.

  339. I think that the fibers may not be true but that people with morgellons have

    Neurocutaneous Syndrome

    http://tinyurl.com/f7flt

    The neurological aspects of NCS are
    characterized by pin-prick and/or creeping,
    painful and irritating movement sensations,
    often interpreted as parasite movements
    subcutaneously or in various body tissues or
    cavities including the head. In the latter case,
    movement sensations are either unipolar or
    bipolar and may proceed horizontally or
    vertically. They may manifest as readily
    observable variably shaped bruises or waves
    of elevated ripples or channels. In no case
    was the movement sensation related to
    parasites which were always found absent.
    1
    Neurological symptoms may also include loss
    of memory, brain fog, lack of concentration
    and control of voluntary movements.
    The cutaneous aspects include small
    itchy sores (Fig.1), inflamed often elevated
    pimples (Figs.2,3) and painful and fully open/
    amorphous mucoid lesions that often enlarge
    and coalese (Fig.4). Histopathological
    sections of lesions (Fig.5) in nine biopsied
    patients show superficial and deep
    perivascular infiltrate of lymphocytes,
    accompanied by interstitial deposits of
    granular mucin material. Eosonophils are
    usually present within the inflammatory
    infiltrate and foci of epidermolytic
    hypokeratosis are often identified within the
    epidermis (Fig.5). Lesions may also be on the
    scalp where they may be associated with
    infestation of springtails (Collembola).
    1
    In
    many cases, lesions are associated with
    edematous reactions usually in the arms and
    legs (Fig.6). Blood vessels may also become
    enlarged and elevated, and the head may
    become hot and turn red. The gum tissue and
    the teeth may turn gray and become
    compromised first and stay compromised the
    longest. Mucoid secretions from gum and
    other tissues may also turn gray. No
    parasites were ever detected from these, or
    any other compromised sites.

    Got to be.

    So its not morgellons just this one specific thing right?

  340. Michael
    “In oder to give a diagnosis of DOP, the doctor first has to examine the skin to make sure there is no real infestation.

    So people diagnosed with DOP have already had their skin examined, and usually by several doctors. They did not find any parasites.”

    You have no study, no proof of an absence of disease. Were skin scrapings were taken, examined under microscope? No record of the methodology behind the examinations? By doctors you mean general practitioners? Lets say it is a new parasite, would the gp’s examination not just be a check list of symptoms/evidance of known parasites, failing to match this, it’s DOP if they keep complaining and especially if they try to bring proof/evidence? (matchbox sign)

    Doctors aren’t perfect is crazier than the possibility of a new parasite? Outside of the fibers I mean.

    Ncs puts it all together a known toxic reaction that causes neurological and skin distress, leaves he skins immunity down to attract spring tails, other infestations leaving the specks possibly the fibers, gp’s aren’t the ones that discover new diseases, I don’t find it hard to believe that they hand out dop diagnosis to freely, I mean they hand out anti-depressants and anti-biotics like it’s candy.

  341. This is the topic of “morgellons disease”, though, not neurocutaneous syndrome, which is also controversial. Why so many patients who refused and ignored their doctors’ (reportedly, on the average of 10-40) diagnoses, of DOP, Hujo? Read this little article, and notice the similarities.

    http://www.ahealthyme.com/topic/parasitosis

  342. I have often wondered about Alzheimer’s sufferers who have been given a diagnosis of DOP, especially if the patient were 80 – 100 years of age.

    I believe they are NOT delusion at all. I believe these people to be suffering Morgellons Disease.

  343. I hope it continues to help you to believe that way, Sarach.

  344. I think it does, my late Grandad had a lot of strange symptoms for way too many years, I seem to be mimicking a lot of his symptoms. I do know he suffered greatly. I now feel the pain he felt.

  345. Smilykins

    Lets say morgellons is discovered and it’s ncs. We would have people without dop being diagnosed dop simply because it’s unknown and their symptom of crawling skin makes them think its bugs when it could be toxins, this explains the absence of parasites. This would also lead the doc to believe it dop. If specs and fibers are a symptom of tiny anthropoids being attracted to the infected skin, taking this evidence to your doctor would seem like the right thing to do. But instead it would convincr the doc you are dop.

    But a social side effect of this is you would also have people with dop believing their delusion is ncs or morgellons. Does not disprove one or the other it just might be a disease that causes the sensation of parasites, like ncs, and the average doc is not aware of it.

  346. The “average” doctor does know what they’re doing. The resistance to the diagnosis is even more indicative of it being what it is, when a person is diagnosed with delusional parasitosis. There is a wealth of information on the topic, and all one has to do is read it. Not everyone who thinks they have “morgellons disease”, necessarily, though, previously received that common diagnosis. Many people have hopped onto the “morgellons” bandwagon, though, and that’s apparent. They have their own various reasons for it, which appear to be obvious, for those who write about it, and provide pictures, web pages, and videos.

  347. smilykins the sage
    marg like manna
    leaves u tc…
    well ur just a rude fking
    wanker

  348. I know very little about DOP, but have had a crash course in the past two months.

    A clear cut DOP is delusional, they are also people who can not be trusted, because they do not trust either.

    I found the Neurocutaneous Syndrome Article during my research of Morgellons. It didn’t help me to get the doctor to listen though. He just asked me how to spell collembola and springtail and then punched it into his computer. End of consultation. Obviously he decided across the desk that I was DOP, since I had been diagnosed with BDD and was on Lexapro at the time. Maybe if he had of taken a look hey. But he just told me that the stuff coming out of the soles of my feet and hands was dirt. Funny that I never noticed this ‘dirt’ before.

    My friend who I live with phoned that Dr Amin in the USA and emailed him also, asking for his advise and help with my current situation. Yet again we are still waiting and this was 2 years ago. Even I phoned his number, but was too afraid to leave a message.

    Once again NCS was another distraction to discredit the existence of Morgellons Disease. Besides – antibiotic therapy does not cure Morgellons Disease.

  349. sarah i could use some aussie contacts if u can help

  350. I do have the list of registrations which were supplied to me via the MRF. I would be happy to share with you.

  351. Sarach/Gillian, concerning what you’d said:

    I know very little about DOP, but have had a crash course in the past two months.

    A clear cut DOP is delusional, they are also people who can not be trusted, because they do not trust either.

    Hey, now. People with DOP are delusional, but they are NOT all like that, because it manifests in people for a variety of different reasons!!!

    *With Primary DOP, it’s the sole psychological disturbance in a person who otherwise behaves normally and can reason in a rational manner. Based on what people say, on line, and in media reports, that would probably exclude quite a few “morgellons disease” believers, aside for the fact that they’re not rational in thinking that they have “morgellons disease”, because there is no such thing, and they’ve preferred to swap DOP out in favor of it.

    *Then, there is Secondary DOP, which could cover your opinion concerning people not being able to trust, or to be trusted, because this form of DOP is due to an underlying psychiatric illness, such as schizophrenia, paranoia, depression, anxiety disorders, and obsessional states. This seems to prevail, on line, in many morgie people. Look at all the displays of anger, fear, and beliefs in conspiracies.
    ______________________________________

    So now, please refer to the MRF case defintion for “morgellons disease”.

    Under the first section:

    5. Behavioral effects are common in many patients. Many have been or will be diagnosed as Attention Deficit Disorder, Attention Deficit Hyperactivity Disorder, Bipolar Disorder, or Obsessive-Compulsive Disorder. A minority do not show this pattern. Almost all, if previously seen by well-read physicians without prolonged observation, will have been labeled as “Delusional Parasitosis”. Temporal relationship to skin lesion onset is not known.

    Under the second section:

    4. Neuropsychiatric symptoms and signs, ranging from mood or personality changes to diagnosed disorders including Attention Deficit Disorder, Bipolar Disorder, Obsessive Compulsive Disorder and occasionally frank psychosis. Temporal relationship to skin lesion onset is not known.

    ____________________

    And last, there is Secondary Organic Delusional Parasitosis, resulting from an underlying physical illness, of which there can be many That includes certain nutritional deficiencies, prescription drug side effects, illicit drugs and/or alcohol abuse, and quite a lot of ill states of physical health. Now, consider all the “previously diagnosed by a physician conditions” that people report as part of the registration process for “morgellons disease”.

    The case defintion for “morgellons disease” covers all the reasons for DOP. When I’d first heard of it and couldn’t get through to anyone how I’d gotten over their “morgellons disease” (of course, I couldn’t mention it was DOP, after I’d learned what it was), little did I know, at the time, that it isn’t that simply solved for many people. If it is due to mental dysfunctionings, mental health treatment is necessary. But, if people are not taking care of their underlying physical health problems, they will not get over it, either. When people need to obsess so much over getting other people to believe them, that it wrecks their relationships with their loved ones, hell-bells, that is some serious shit!!! That, to me, is a mental-related condition of the worst type, and sad as hell to read about.

  352. I’m sorry, I left out a few words. I’d meant to say that the first type is “Primary Psychotic DOP”, and the second kind is “Secondary Functional DOP”.

  353. No wonder DOP has been a “medical mystery” for many years. It has taken me 2 years to figure it all out!!!! I will not pretend that I understand DOP fully, because I don’t. BUT I do understand it enough to be able to relate to what has happened to myself.

    Would I be wrong in saying that there is a certain “stigma” attached to DOP amongst the medical profession??

    And that this stigma of DOP is that it is purely delusional thinking and nothing more?? (ie. no underlying physical disease).

    And/Or there are a lot of doctors that really don’t fully understand DOP?

    After my experience I will answer “Yes” to the above 3 questions, but let me know if I am incorrect please.

    You will remember I have told you many times before (but I like to repeat myself also!), my psychiatrist kept saying “you have something physically wrong with you” – but I was piggy in the middle and the other doctors wouldn’t listen to him (sorry correction: they wouldn’t communicate with him on my behalf), what is he meant to do, hit them over the head?! (don’t worry he doesn’t carry a handbag!).

    I do know there are a lot of people out there (including other doctors of medicine) that don’t have a good word to say about Psychiatrists,(personally I think they are either threatened or jealous). Well I guess I was lucky, I’ve got one of the best Psychiatrists (or had). I haven’t seen him for a while, and given the amount of crap and abuse I have thrown at him, I don’t blame him if he doesn’t speak to me again. Look I’m sure he will (I hope) – I am just so embarrased and ashamed, after all he is the only doctor who really stuck his neck out for me and my family. Also it is not his fault if the psychiatric medication doesn’t work for me, all we could do was try, which we did. Anyway I do feel so much better off the psych. meds.

    If you were to ask my parents about my situation they would tell you I went down hill about 9 years ago after being put on antidepressants by a general practitioner. I had been tried on several different antidepressants due to severe side effects every time.

    Personally I feel antidepressants should only be prescribed by a psychiatrist, but I know this is not a perfect world.

    If a general practitioner/family doctor etc. is going to continue prescribing psychiatric medication to patients things need to change.

    By that I mean – don’t hand them out like lollies, especially if no routine tests or physical examination have been done to establish whether there is a physical cause/illness that has brought about the onset of depression.

    I realise I am a little “fish” in this big wide world of medicine, just another “patient” having a whinge, but without the patient where would you doctors be??

  354. I’d come to this topic to post something new on CFS, but I’d like to say that patient perspective of DOP, Gillian, is the only place where the “medical mystery” is, not within the medical community. As far as the stigmas you’ve brought up, it’s well known that the stigma exists within the minds of the patients who are diagnosed with DOP, due to their own bias towards mental illness. The suggestion that they need some help in that area offends them. That is their hangup, it doesn’t belong to others. And, some doctors have had their lives threatened by patients who have refused to treat DOP. Doctors are only human, and it is easy to imagine the challenge they’re faced with, wondering if they might be the last straw. If DOP stems from an underlying physical health problem, a patient needs their mind back in good working order to proceed in addressing it. If DOP stems solely from a mental health condition, it needs to be treated. Either way, DOP has to be treated, before it will subside.

    http://patients.uptodate.com/topic.asp?file=psychiat/12488&title=Hyperthyroidism

    This movement has blown a wind of change. Now, what I wanted to post about the latest on CFS.

    I’d missed this, a couple of weeks ago.

    Press Release

    For Immediate Release:
    November 3, 2006

    CDC Launches “Get Informed. Get Diagnosed. Get Help.” Campaign

    Campaign promotes greater awareness of Chronic Fatigue Syndrome

    http://www.cdc.gov/od/oc/media/pressrel/r061103.htm

    Here is the telebriefing transcript…

    THE CHRONIC FATIGUE AND IMMUNE DYSFUNCTION SYNDROME ASSOCIATION OF AMERICA AND THE CENTERS FOR DISEASE CONTROL AND PREVENTION PRESS CONFERENCE AT THE NATIONAL PRESS CLUB TO LAUNCH A CHRONIC FATIGUE SYNDROME AWARENESS CAMPAIGN

    http://www.cdc.gov/od/oc/media/transcripts/t061103.htm?id=36410

    More than 1 million Americans suffer from Chronic Fatigue Syndrome (CFS). Information is available to help identify treatment strategies.

    http://www.cdc.gov/cfs/

  355. Where I’d said, “the stigma exists within the minds of the patients who are diagnosed with DOP, due to their own bias towards mental illness. The suggestion that they need some help in that area offends them.” I’m sorry, I am just basing that from what I know of “morgellons disease /DOP diagnosed” patients, and what they say on the internet.

  356. Hi! Very nice site! Thanks you very much! ikpdCT4oo0y4i

  357. I do not know what I have, nor do the 20 plus doctors I have seen at Kaiser Hospital(s) in Contra Costa County over the past 2-1/2 years.

    I know that I am very sick and getting sicker. I am a 40 year old married female with an 8 year old daughter and a 10 year old dog. Doctors have tested me upside down and inside out. They found a normal amount of oral yeast, so I got Diflucan for 14 days, and an elevated Rhuematoid Factor to which the follow up said I had an irregular possitive test result and that my autoimmune system was maybe responding to something slight at the time.

    With Kaiser, I was feeling ‘put off’ after having 50+ plus, 5 minute bullshit appointments in which the Dr. then shuffles me to another department. Derm., Internal Adult Med., Immune, Infectious Disease Dept., OBGYN for ‘my’ change of life at 40 (?) disease, yet I am still having regular periods and I have always been a bitch. That was 2 years ago, and the appointment circle started again. Back to Derm and main Doctor or ‘Care Provider’ (?) ok, to start all over with the shuffle.

    My sickness was and still is up to me, all I can say is that when I type in my symptoms, I get a thousand million diseases.. . . . BUT. . . . .when I type in my symptoms, one by one, adding each one after each search on Google’s Search within results, it comes up with Morgellons.

    With that information and the new article about the CDC giving Kaiser $$$$ I asked every Doctor, 8 total, from Feb. 08 on, “Is this it?” NONE, NOT ONE of the Doctors even heard of Morgellons as of May 2008 at Kaiser in Martinez, CO CO County, where Kaiser is heading up the research for Morgellons paid for by the CDC.

    Then I began going to the Admin. office after every visit asking, “If they, the Dr.’s don’t know or have answers can you please direct me to someone that does?” So, I just walk in circles around the parking lot because I get better answers and it’s less frustrating.

    In June, Kaiser sent me a packet by mail responding to my letters and request to go to UCSF for answers. Kaiser’s packet explained QUOTE, “That the Chair of Chiefs reviewed your medical care related to your condition and she indicates that you have been diagnosed with Morgellon’s disease, which has symptomology identical to delusions of parasistosis.” Bla, bla,bla. . . Request denied, if you choose to seek medical attention or advise from UCSF you do so at your own cost.

    The next day, I get another packet. Only this time it had signatures that I could read and names for the Chiefs and the Chairs and the tables too. It was a very nicely written kiss ass letter that included a purchase order for me to go to UCSF and have a private Doctor paid for by Kaiser.

    Yeah, if you got excited you must not know Kaiser. I knew it was a jerk job and that they are stalling me. This letter came 4 weeks ago. I faxed everything they requested the same day. Called to confirm they had it. Still no appointment as of yet, July 13th.

    KAISER Doctor’s are following someone’s proto-call-memo, because they all say exactly the same thing, nothing and “I don’t know that isn’t really my department.”

    CO CO COUNTY is the hot spot for Morgellons. We are not all tweeks and the ones that are have been for a lot longer then they have had this disease.

    Is it that someone is trying to avoid a wide spread panic via the internet. People must be aware that one third of Co Co County’s tax payers have Morgellons and they all aren’t kissing cousins.

    * It has to be spreading via: air, food, or water. *

    Oh, and I am delusional. I sometimes look like Pam Anderson and dance around naked in The San Jose Shark’s locker room. So fine, I am crazy, but I don’t do bugs and pain in my delusions. Well, not my pain.

    If I am delusional, psychotic, mental, skitz-so then I am sick, so please help me before I go postal and take out several of the mean judgemental types.

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