The following email comes from George, a Morgellons Watch reader:
I am not a Morgellons sufferer, although I have closely followed the debate since 2005. What I have to say here is not meant to be inflammatory to either side of this issue. What I do have to say is important: If you go to a physician and they prescribe you a medication: YOU SHOULD TAKE IT. Just because *you* don’t think you have DOP and you’re prescribed ORAP-doesn’t mean you shouldn’t take it. Take the full course prescribed. If you don’t feel better after fully following your physician’s advice then return to him/her and say- I did what you told me to and I’m not better, what’s next? For people who have pseudomonas or MRSA if you don’t take your antibiotic medications these infections will eventually kill you. These are life threatening and extremely dangerous. MRSA is much more of a threat than “morgellons”. This prevalent attitude of “he gave me an anti-psychotic, therefore he thinks I’m crazy, so I just won’t listen to him” is not helping either the treating physician or the patient. This could be why physicians do not want to be involved in treating this disease.
Let me just give a personal, non-morgellons related antidote. I have had problems with mood swings and occasional depression my whole life. When physicians would suggest I was depressed I would get angry and not fill the prescriptions. It got to the point where I was occasionally contemplating suicide. I saw a psychiatrist finally and was put on an anticonvulsant that is also used for mood regulation. My life has changed. I could have continued locking myself in my room, ignoring work and my family, and I may have never known the difference. I was willing to trust this doctor’s opinion and it has made a change I wouldn’t have deemed possible.
My point is this: many of you are using horse wormer to try to get help. You have no idea what this may do to your overall health over time. This may actually worsen your health to the point that you are suffering from more than just “Morgellons”. The wormer may have ruined your liver, but you may believe the liver damage is caused by Morgellons. I think that if all of the patients went to their primary care physician, took whatever meds they prescribed no matter what their personal opinion on those meds is, and then went back to the SAME physician and told them, nope that didn’t work what can we try now? You have a better chance of returning to health than you do by dousing yourself in bleach, mosquito spray, lice treatments and the other non-prescribed ways you are trying to help yourself. Take the road with your physician all the way to the end and then if you still end up without relief, then and only then consider more non-traditional methodologies.
Lastly MANY medications are used for off label purposes. You may not know why the physician prescribed that medication because you are just looking at the typical patient information that is available to you. Seroquel is an atypical antipsychotic and can be used for primary sleep disorders. ASK the doc why they are prescribing it to you, it may not be for the reasons you assumed.