Jul 25 2006
It’s the fibers, stupid!
I sometimes compare Morgellons with Chronic Fatigue Syndrome, since they share many of the same symptoms.
CFS took a while to be recognized as a disease (and there is still much debate), since it’s just a collection of common symptoms that the sufferers feel. There is no real physical manifestation of the disease, which makes it hard to test for, since you just have to rely on verbal reports from the patient.
In this respect, Morgellons has a vast advantage over CFS when it comes to being recognized as a disease. Not only do sufferers have lesions on their skin, but most importantly, they have something entirely new to science, something so unusual that finding it immediately settles the diagnosis, since only Morgellons has this symptom.
It’s the fibers.
That’s really all that makes this proposed disease special. The fibers are the key to the whole matter. That is ALL that is needed to establish this as a new disease - you can work out the details of the other symptoms later, but if you simply establish that people are producing fibers, then you’ve proven your case.
The OSU team claim they could see fibers under the skin within 45 seconds. What exactly is the problem here. Can’t they just take a video and show us what they see? Why did they not do this when CNN was there for two days?
It’s very easy. All this talk about Morgellons vs. Delusions is a red herring. Fibers are real objective evidence, nothing to do with delusions. Just show the fibers coming out of the skin and you’ve made your case.
Wymore says he’s personally convinced, but he can’t get enough interest to persue it effectivly as other people think the patients are delusional.
Well, there’s a very simple way of proving that something new to science is going on, which is sure to get people excited.
It’s the fibers, stupid!
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The Morgellons Research Foundation
That’s an excellent article, Smileykins. And, as you know, if an individual is “seeing” parasites that aren’t really there, the name of their medical condition isn’t Delusions of Parasitosis. It then becomes Illusions of Parasitosis.
I agree with the information on Michael new topic, as long as the fibers they are seeing aren’t really muscle fibers, nerve fibers, fibroblasts, or some other normal part of the body. Of course we know that most of them look just like clothing fibers.
You strike me as being intelligent and a member of the medical community. Your postings make a lot of sense. But when you call people who disagree with you, “stupid,” it speaks to your blind arrogance. This does not surprise me in an era when physician-patient relationships have been reduced to two-minute provider-client spots in the name of saving money on health-care costs.
Michael has said, a number of times, that he’s not a member of the medical community.
Cutmeabreak,
It’s obvious that your reading comprehension isn’t very good. Michael states that the Morgellons Case Definition is similar to that of CFS. And the implied question is, what makes the alleged Morgellons Disease different? It’s the fibers, stupid! Now, that doesn’t seem to me to be directed at a Morgie. If it were directed at anyone, it would be directed at someone that doesn’t know about the alleged “growing” Morgellons Fibers. I don’t think that would be a “Morgellons” patient. Get a grip!
Now, let’s not take Michael’ topic title out of context. Cutmeabreak, your views of the medical community are tainted. They aren’t the gods morgie people think they should be. They’re people with jobs, just like everyone else.
This is plain STUPID though. Unless you have something the matter with you and can’t face it.
In that article Michael posted the link to yesterday…
“See, the people who don’t want to discuss this, they just say, ‘We don’t grow red and blue fibers.’ To a certain extent, it’s a little bit of that Earth-is-flat mentality,” Dr. Wymore said. “But how many people are open to self-change? [Morgellons] is almost as difficult to wrap your mind around as trying to convince someone to change religious views. Think about it: How often does that work?”
Unless a person is really screwed in the head, they should not be obsessing over fibers on, or in, the skin. I don’t care where they are, what color they are, where they came from, what size they are, if they’re in lesions, if they’re “sprouting”, or whether they’re embedded in the stratem corneu…there is nothing wrong with that.
That PhD who’s working on it and the entire rest of the MRF is a messed up, mixed up, crew!!!
People’s states of mental health are exploited and this is making them a lot worse.
m
Whoops. I had a sentence saying to add that lone “m” up there to the above typo, with an arrow pointing to it, and the sentence disappeared just like magic.
Cutmeabreak, I’m sorry you misunderstood. In American vernacular, there is a usage referred to as “comma stupid”, which is not actually intended to call someone stupid, but instead to draw attention to the obviousness of what should be the sole focus of attention. This usage was popularized by Bill Clinton in 1992 with his famous “It’s the economy, stupid!” slogan, and has recently been revived by his wife with “It’s the American dream, stupid”.
So, I’m not calling anyone stupid, it’s just a figure of speech.
I’m not a member of the medical community either. I’m a retired computer programmer.
Really, though, Cutmeabreak?
“This does not surprise me in an era when physician-patient relationships have been reduced to two-minute provider-client spots in the name of saving money on health-care costs.”
Are you exaggerating that, “two-minutes”? I’m on Medicare, myself.
I asked a question of logic, and the section called “this” where I posted was dropped. This means that the blogger does not want to deal with questions that demonstrate his stupidity. The next step is that I will be barred from this blog. they will say that they don’t want disparaging comments in these threads. Yet the whole blog disparages uwe victims, because it accuses us of effectively making this disease up.
David, you misunderstand how the blog works. The front page only shows the most recent 10 posts, the others drop off the bottom and can be found in the archives (see left sidebar).
The “this” post you refer too is still there, with your question answered, at:
http://morgellonswatch.wordpress.com/2006/07/04/this-disease/
If you click on the title of a post you can get a direct link to it. Otherwise you can find it via search, or by looking in the archives. There are currently 62 posts, and 2,395 comments.
You also don’t have to post the same thing in multiple places. I will see it wherever you post.
David, you are mistaken. No on-topic posts have been deleted from this blog, they are all available to anyone who cares to look for them. There was a spate of personal attacks (involving people on both sides of the issue) which was deleted, but that was quite long ago and was irrelevant to the topic of this site.
Further, to my knowledge, no one has ever been banned from this blog, not even for the deliberate deception of using multiple ID’s to stage a “debate”.
Quoting Michael:
This usage was popularized by Bill Clinton in 1992 with his famous “It’s the economy, stupid!” slogan
Just to expand on that …
George H. Bush was stumping on everything BUT the economy, in one so-called Town Hall meetings, when he was directly asked by a woman in the audience about the poor people in this country, he replied (paraphrased) “I don’t understand the question.”
That was when Clinton started using the “It’s the economy, stupid!” slogan.
It has since become part of the American vernacular, meaning “Let’s focus on what matters”.
In that context, which was how Michael intended it to be taken, it is perfectly applicable here.
Michael has been incredibly even-handed and patient managing this site. If you do not believe that, then please have a look at all the archived threads with all the irrational attacks on his character, none of which have been deleted.
Smileykins Says:
July 25th, 2006 at 9:05 pm
Whoops. I had a sentence saying to add that lone “m” up there to the above typo, with an arrow pointing to it, and the sentence disappeared just like magic.
Don’t use arrows. I have just figured that out myself
David, I’ve deleted the eight or so duplicate comments you added to other threads, since this is the only really active thread, and I understand you just did it in anger, thinking your post had been deleted.
I do not delete comments, unless they are spam, unintentional duplicates, or contain unusually violent personal attacks.
I’ve never banned anyone.
Thanks, JeezeLouise.
David, a while back someone on Lymebusters message board said that Michael had deleted a couple of their posts. That wasn’t true. They’re intact, right where they were, as well as re-posted on Lymebusters
Michael said:
If you click on the title of a post you can get a direct link to it. Otherwise you can find it via search, or by looking in the archives. There are currently 62 posts, and 2,395 comments.
Just for the record, it’s quite easy to find the original blog posts, but I don’t think the search function indexes the comments. I have tried a few times to search for specific phrases that I know I have posted, and got no results. However, if I take the time to look for the post I commented under, it is there.
So anyone searching for a specific comment needs to start first at the originating blog post. Don’t assume a comment has been deleted just because you can’t find it.
Morgies tend to jump to conclusions, and believe other Morgies who have done the same thing. When one false belief is rejected, several others often fall with it.
That is a generalization about morgies, TC, and an accurate one, based on all the written evidence on the internet. (I just added that, given the fact that some of them take generalizations personally.) Other than looking at their situations as to how it all started, you’ve just given another piece of excelllent advice to anyone that doesn’t have a total errosion in their thinking processes. That won’t help a die-hard morgie, as you well know.
There is no such thing as “morgellons disease”, but the manifestations of people’s other physical illnesses make it seem like their bodies are invaded. Their “specimens” look similar because all those waste materials are, in reality, similar.
It’s too obvious that the very essence of morgies’ existence is to accept everything wrong and reject everything else. There is a lot more going on with such people other than just believing in our topic of discussion What got them to the point that they’re trapped inside this horrifically false belief of “morgellons disease” is an idividual matter for each one of them, regardless of all the strong similarities to other people. They ought to know that, but they don’t know it on the right level of thinking that can help them. Fear, pain, hatred, lies, rejection, and all sorts of negativity reigns supreme in their lives. Whether they even realize it, they have to put the blame for all of that somewhere. They’re only looking at this on a superficial level and running off into the wrong directions with wild ideas. Listen to how many say they’d like to know what they did to deserve this. Notice how many say that they’re owed so much, from others, due to it.
That’s delusional thinking, right there, not to mention obsessive-compulsive.
And that’s an observation of my obsession with it, and not a diagnosis. Hehehe.
Sometimes people who disagree with us are stupid! Sometimes they’re just confused.
Anyone know of any published spectroscopy? A Raman spectrum would be pretty nice, and could likely be done with little sample prep, even in situ in a patient. The “fingerprint” spectra of any common industrial fibers would be pretty well conclusive. Also, chemical signatures of biological molecules would stand out in the spectra if the fibers were biological.
Regarding spectroscopy: the old news is:
pre 2006 Morgellons.org, and on current “symptoms” page.
Slightly more recent:
Science Update April 17 2006
And the latest news:
Sunday July 23rd, 2006, Chico Harlan, Pittsburgh Post-Gazette
Extra, Extra, Read ALL About It
Red and blue ones, too, and not industrial ones.
Well, maybe Blue Legs Aherah will enjoy hearing about that. They only turn blue when I rub them. Well… Quit rubbing them.
I’ve mentioned Morphea’s association with Late-Stage Lyme Disease before, too, but have a look at this woman, and read the entire article. I have seen quite a few morgie photos that look just her.
http://www.mf.uni-lj.si/acta-apa/acta-apa-00-4/melato.html
Whoops, “like” her.
Did you read the editorial note - interesting the different diagnoses between different doctors.
Oh yes. Hey, “Doc” Buckner was just on Coast To Coast. Did you notice in the “…Read ALL About It”?…..
Reactive perforating collagenosis is a rare genodermatosis with lesions appearing early in life after trauma, arthropod bites, folliculitis, or cold exposure. Acquired reactive perforating collagenosis occurs in adults and was first described in association with the renal disease of diabetic nephropathy. All forms of reactive perforating collagenosis share severe pruritus as a feature, and it is possible that the transepidermal elimination of collagen is simply a reaction pattern due to chronic rubbing or scratching in a subset of pruritic patients. Lesions have resolved when the pruritus was controlled.
Our patient is interesting in that he had a pruritic, erythematous eruption that predated the development of lesions consistent with acquired reactive perforating collagenosis, and there were numerous eosinophils in the biopsy specimen. His current medications are unlikely culprits. The pruritus and scratching may have lead to the acquired reactive perforating collagenosis.
(Blue Legs)
Excerpt from one of Smileykin’s posts.
Acquired reactive perforating collagenosis has been seen in association with multiple disorders, which include diabetes mellitus, renal failure, hyperparathyroidism, liver disease, neurodermatitis, IgA nephropathy, periampullary carcinoma with jaundice, adenocarcinoma, and liver neoplasms. It is unclear whether acquired reactive perforating collagenosis is primary in these cases or is a reaction to scratching. Transepidermal elimination of collagen also has been reported in granuloma annulare, pseudoxanthoma elasticum, and chondrodermatitis nodularis helicis.
http://dermatology.cdlib.org/DOJvol8num2/NYUcases/2/2.html
“Acquired” Reactive Perforating Collagenosis (not the rare genetic form), sounds like THE ONLY ALREADY KNOWN ABOUT DISEASE that this thing Wacky-Wymore and everyone is obsessing over and calling “morgellons disease”.
“The underlying cause is not known with certainty, but it is thought to be an abnormal response to superficial trauma, such as scratching. Papules have been reported following scratches, acne spots, and insect bites. Lesions of reactive perforating collagenosis have been experimentally induced in susceptible skin by scratching.”
“The childhood form is inherited. A number of affected families have been reported. The mode of inheritance is not clear. Reports of affected families reveal autosomal dominant and autosomal recessive inheritance as well as sporadic cases.”
Medical Care: Treatment of the lesions is often unsatisfactory; in many cases the lesions are self-healing, but usually recurrent.
* Anecdotal reports describe successful therapy with isotretinoin, allopurinol, doxycycline, UVB, and psoralen ultraviolet light A. Phototherapy is a good choice in patients with coexistent renal disease and associated pruritus.
* Topical steroids are usually not helpful.
* Emollients and systemic antihistamines seem helpful in controlling pruritus.
Complications:
* The inherited form is not associated with any systemic complications.
* The acquired form occurs in patients with multiple medical problems, but whether the development of the lesions implies a poorer prognosis is unclear.
We all know that there is no link to the various skin disorders that caused a bunch of people to receive DOP diagnoses, to that dumb case definition Mary Leitao constructed and made her disease get larger with. (Did I say that right? Oh, ya’ll know what I mean.) All right, how long can “PhD” Wymore obsess over these red and blue collagen bundles (that he, and all the rest of MRF just don’t know about, for some odd reason), I wonder, before he finally figures them out? Then what? He’s going to move into researching an “already known skin disease”, Acquired Reactive Perforating Collagenosis?
http://www.emedicine.com/derm/topic370.htm
I am sorry, Michael, I know you’d cautioned the other day when I’d posted a comment on EPS, which is another collagenosis, but if any person could be receptive to this, and to the fact that they aren’t carrying a ridiculous, made-up disease, I think it could only serve to help by knowing about it, and that there are red and blue fibers. The black ones are collagen also, of course. The people who have their minds made up, I know can’t give this any thouight, anyway.
I think it’s important that the Morgies understand that there are alternate explanations for what is taking place in their bodies. If they will open up to the possibilities, maybe they will give credence to what their doctors say, and understand that no one disease has to cover all of their symptoms. There are also alternate explanations to the presence of colored fibers besides theories that implicate these as pathogens.
Hey stupid, It’s your loving Ex poster here. Do not Fret; Do not be scared. For I have not come to do this. Behold what I quest for…..
What I really want to say is that I’m so stupid I can’t find on the MRF website the new and comment by Dr. wymore….can you please give me the hyperlink stupids?
Love you too.
I’m dubious about the ’sulfur signal’ if they claim it is detected by FTIR. Maybe, but S would be more readily detected otherwise. But after having looked, I am interested to see more data. My scientific ’spidey sense’ gets set off when there are more claims than data. Plenty of anecdotes exist, but at this point, a lot is claimed that isn’t carefully documented or measured.
Probably a cat’s whisker… Or, maybe sulfur that was used as a pesticide.It shouldn’t be hard to find sulfur in a Morgie’s skin.
A good question in the context of spectroscopy is “what contaminants has this sample been in contact with”.
The most common clothing fiber is cotton. Cotton is made of cellulose. The most common cotton dye is a sulfur dye.
So, the tests so far point to the fibers being sulfur dyed cotton.
Sulfur dyes are also used for cellulose based fabrics like linen and jute.
Many fibers can be quite absorbent, particularly cellulose based fibers such as kleenex tissue, and natural fibers like cotton. Artificial fibers like polyester can easily get coated in contaminants such as lotions, salts, antiseptics, or serus fluid.
And where do these fibers come from? Wymore says a lot of people send him fibers through the mail. Who knows what they have been through before getting to him.
I’m not against testing fibers, and the the results may well be indicative of something (like sulfur dyed cotton), but the contamination problem makes any results suspect.
Really what needs to be established first is: are these fibers coming out of the body? Then: are they being generated inside the body? That just needs some controlled observation.
Those observations would prove Wymore wrong, so he isn’t likely to make them. He isn’t trying to conduct scientific research. He’s trying to prove a ridiculous point. That can only be done with half-truths and lies. Deception is what this whole movement is about.
Exactamundo!!! Think how long PhD Wymore can keep obsessing and looking at fibers. I thought I’d fall out in the floor, when CNN showed him in that thrift shop collecting them with tape. Morgies think he’s the man, though.
The CDC has spoken, how many times, already, and told people who think they have such a thing, to go to their local health care providers? It seems problematic, to me, at least, that without patient data, the task force has nothing to go on. Again, just as morgies ignored their doctors, they’re also ignoring those instructions directly from the CDC, aren’t they?
Maybe, like with everything else, they need it spelled out more clearly? If the CDC is still in the organizing stages of an investigation, of course, I don’t know how they do such things, but it would seem that the best route to take would be through epidemiological studies through the believers’ local health departments. Wouldn’t they have to go to their doctors first, though, as instructed? We bascially know what such studies would yield, if such a step were to be taken, unnecessarily, not to mention the waste of money that is lacking to begin with throughout the country.
What am I missing? This hurts my head.
I know what I’m missing……”imagination”.
Imagineering
Well, buddy, you said a mouthful just then, didn’t ya.
If these are collagen fibers, why don’t they burn? Stick a butane torch to these fibers for several minutes and they do not burn, or even change color.
Greta, applying heat to fibers is a good test, one commonly used to get some gross metrics regarding a sample.
So those fibers you heated with a butane torch are not human matter of any kind, since a butane torch (even a cook’s torch) burns at at least 1000 degrees F, and can be up to 2800 F, (500-1500 celsius).
What fibers could withstand that? Asbestos. Some fiberglass. Carbon fiber. Silica fibers, some metals wires, ceramic fibers.
I don;t think there is a natural fiber (or any organically produced substance) that could withstand 1000 degrees for three minutes without change. This suggests it’s a man-made fiber of some kind.
Again - the real challenge is to prove that it came from inside your body. Its chemical composition is open to interpretation. Emerging from your body would be much more convincing and specific evidence.
Carbon would burn.
Diatoms make silica shells. Some scientist believe there is a possibility that there are even silica-based life forms in outer-space. Maybe some have landed.
My doctor recently found fibers partially embeded in my skin and removed them himself. He is saving them for the testing. He also will have be go to the lab for on-site fiber removal and testing. So the chain of evidence will be very tight.
Carbon fiber would not burn, nor would a ceramic fiber like Nextel.
http://www.technica.net/NF/NF2/efibreinorganiche.htm
Sounds like you got a bunch of fiber embedded in your skin, and transfered some to the doctor.
Fiberglass is likely. Nextel also has similar irritant properties.
What length, diameter, color were they?
Greta, from the written report of the fiber analyis you’d had done a couple of months ago, you’d had:
black wool fibers, red wool fibers, blue wool fibers, colorless wool fibers
colorless polyester fibers, a blue polyester fiber
colorless cotton fibers, blue cotton fibers
a pink acrylic fiber, and a green acrylic fiber
Do you have some other kind of fiber, now?
If what you’d tried to ignite was wool, it wouldn’t burn. Wool is a natural protein fiber that grows from the follicles of the sheep’s skin. It’s like human hair in that it’s composed of keratin-type protein. Chemically these proteins contain 5 elements: carbon, hydrogen, oxygen, nitrogen, and sulfur. These 5 elements are combined into 19 amino acids linked together in ladder-like polypeptide chains. Because wool contains moisture in each fiber, it resists flame without chemical treatment. Instead of burning freely when touched by flame, wool chars and stops burning when it is removed from the source of fire. Wool is self-extinguishing. It will not support combustion; this is why wool blankets are recommended for use in extinguishing small fires.
I’m sorry, Greta. I had missed that you’d kept the flame to it for several minutes with no change.
The fiber “analysis” was a visual identification only. These fibers were returned to me. I have not opened the package containing them. I could try to burn those exact fibers which were identified as: black wool fibers, red wool fibers, blue wool fibers, colorless wool fibers
colorless polyester fibers, a blue polyester fiber
colorless cotton fibers, blue cotton fibers
a pink acrylic fiber, and a green acrylic fiber.
Just because one person identified them visually, does not mean that is conclusivley what they are.
The thing that would rule out fiberglass and nextel fibers is the fact that the fibers under my skin DID NOT cause ANY inflammatory response! At all! Even after being in the same place for five days. If it was a forgien body, my body would have reacted with an inflammatory response. This was the most astonishing feature to my doctor. He kept saying, “this just makes no sense.” Do some research - any forgien body causes an inflammatory response. The fibers growing in my skin do not!
He said this both times he viewed the fibers growing in my skin:
“growing” was my doctor’s word. He said this because: he found some fibers under my unbroken skin on my thumb; he examined them with a 20x and 40x microscope lens; he made detailed notes and drawings of the fibers; carefully examined the area around the twisted bunch of fibers; then he taped up my whole thumb securely with many layers; had me return a couple of days later; removed the tape; examined the area and found several more fibers under the skin, in the area around the initial bunch, which was also still there, but appeared to be bigger. So, unless the fibers penetrated the many layers of tape, and my skin, without leaving a puncture wound, my doctor concluded that the fibers certainly appeared to be growing in my skin. He looked at me seriously and for the first time said, “Well, Greta, you do have fibers growing in your skin.”
This scared me because up to this point he had always said he had no reason to believe that the fibers were growing in my skin, he had always suspected that they were environmental fibers. I had always found comfort in his prior insistance that this was an illusion that the fibrs were coming out of me.
That’s certainly not a good thing to hear, that a psychiatrist alarmed their very own patient. I’m sorry he did that. Do you have any symptoms other than fibers embedded in your skin, Greta? Are the fibers in your epidermis, or are they in your dermis?
I was not really alarmed, as I had been telling him this since the begining. I was just taken aback that he confirmed it.
They appear to be just under the the very top layer of the skin.
I said the fibers do not burn, based on what other people said and posted pictures of. This was a mistake, as I know it inferred that I had personal knowledge of this. I did not say that I held a torch to the the fibers, but I let you believe I did by neglecting to quickly correct Smileykins statement that i had, “kept the flame to it for several minutes with no change.”
Tonight, I experimented with my own fibers, and contrary to my prior statement, they do seem to burn.
I apologize for misleading.
Greta, check out this site:
http://www.parish-supply.com/fiber_id.htm
In order to get some kind of clue as to what your fiber might be composed of, you could see what it most closely matches in the first table there, note the: Action,Color,Special Note and Odor as in the table, and see what fiber is closest. That will tell you something out the underlying chemistry of the fiber.
Thank you, Greta, and not that it matters, now, but you’d neglected to “quickly correct” my statement?
Well, you totally missed that Michael had replied right underneath what you’d said about the burning of the fibers, or you would have corrected him quickly, and, then, I would have avoided having said anything at all.
He’d said:
Greta, applying heat to fibers is a good test, one commonly used to get some gross metrics regarding a sample.
So those fibers you heated with a butane torch…
It’s cool, and cleared up now, though, and that’s what communication’s all about.
Apparently there are a lot of theories circulating about this disease.
I have this disease and am very familiar with it.
I have examined these extracted fibers for years.
I can tell you my theory is very reasonable as to who caused this problem.
Its not lyme disease.
It has to do with the Textile industry. Although these fibers are non textile in origin.
They are comprised of cellulose, they are highly genetically modified fibers. They have genetically manipulated e-coli bacteria, nemotodes, chemicals, proteins and plant DNA and have developed ways to incorporate large amounts of these “high performance” bio active fibers into clothing and genetically modified the cotton plant many times over.
This research done at a handful of Universities then sold the technology to textile manufacturers here and abroad. These textiles can then be sold back to the United States from countries like China etc.
What you will read in this article is shocking to know what they were doing in the textile business. This was all done by consent of the Government via the National Textile Center, part of the United States Department of Agriculture.
Article#1 “Developement of bioactive fabric” use search box. http://www.ntcresearch.or/pdfrpts/AnRp00/m00-d03pdf
University of Dartmouth
Article#2 “Cotton fiber groth in Planta and in vitro. Models for plant cell elongationand cell wall biogenisis”. Hee jin kim and Barbara Triplet.
View second image box toward bottom in this article. View picture of fiber root in picture “A” and Trichrome picture “E”. Return to morgellons and compare fiber images. The trichrome is interesting as this is the same odd structure with three prongs protuding that is also removed from the body.
Between morgellons and what you will read in reference material you notice the following:
Both fibers from morgellons and from the agricultural labs have striking simalarities.
Both fibers are comprised of cellulose.
Both fibers have a helical coil type tendencies, this is a genetically modified trait that they admit to.
Both fibers autoflouresce as can easily be seen on both the morgellons site and on picture box #2 from the usda referrence image given. The autoflourescence is a genetically modified trait as well and can be seen in several colors.
This is due to genetically altered e-coli bacteria with flourescent componets spliced from nemotodes and other creatures that autoflouresce.
You read how GFP, (green flourescent protiens) were genetically spliced to accomplish this. As well as other autoflourescent colors.
The usda referrence article states clearly the fuzz ball growth problems in engineering as well as their lack of understanding how these fibers stop growing at certain lengths.
My theory is that this is a bio engineering mistake that has gone wrong and the full impact was not realized before sold to textile manufacturers.
These people had no idea what they were creating in these labs and the impact of those consequences on the public.
In my reading from the documents from the University of Dartmouth I found absolutly no trial testing of these fabrics on humans. The goal seemed to be to obtain funding, develope technology and then provide this technology to manufacturers.
I theorize the mode of transmission is via micro abrasion of clothing articles, particularly cotton to innoculate these bio active fibers into the body or via protien and oil digestive bacteria that were altered to perform that function, yet may be able to use this protien and oil breakdown to gain access passed the defences of the skin.
In my case I have noticed the majority of lesions are concentrated around the stitching on the inside of the fabrics like cotton t-shirts where the pieces are sewn together, that rope-like stitching. Also on clothing “wear points” like the shoulder blades and shoulders.
That is how I noticed the abrasion effect and the resulting innoculation of these fibers. Yet these lesions are not limited to the stitching ropes as sitting back in a chair can abrade these into the skin without you feeling it. Tight fitting levis do the same thing to the outer thighs.
Since they have admitted engineering lysine deficient e-coli bacteria for the purpose of controlling its growth once embedded in textiles and clothing this does not stop these bacteria/fibers from taking advantage of a non-stop supply of lysine in the human body if innoculated by abrasion or protien breakdown. Lysine is an essential amino acid of the body.
Here is just one shocking quote you will read:
Bio lab, University of Dartmouth.
“Clothing materials are generally biofriendly and sources of heat, moisture and even NUTRIENTS for cellular microdevices and all ARE AVAILABLE FROM THE HUMAN BODY”.
“Our goal is to develope fabrics that contain micro fabricated bio environments and biologically activated fibers”
I can go on and on with this. It will shock you no doubt.
I hearby name:
The National Textile Center, a division of the United States Department of Agriculture.
and
The Universities listed on the National Textile Center website involved with bio active fabrics, particularly the University of Dartmouth bio lab, year 2000 team group. As well as other Universities sharing this technology before and after this date.
AS THE ONES WHO ARE RESPONSIBLE FOR THE CREATION OF THIS BIO ENGINEERED MISTAKE AND ITS RECKLESS MARKETING INTO THE PUBLIC WHICH HAS NOW CREATED THE DISEASE CALLED MORGELLONS.
Contact your state Senator.
That is shocking. Thank you for not going any further with it. Now that we’ve all be warned, is it your hope that we can live in the same kind of fear that has you engulfed? Is that the message we are to receive from your comments?
I am sixty one years old and I believe it is quite simple to PROVE Morgellons IS alive in some sense of the word at least. How to prove it?
ALL Speed or Cocaine freaks know about this stuff. It has a name in the drug addict world - it’s called “Speed or Cokebugs.” Everyone who takes stimulants has either experienced or knows someone who experienced morgellons attacks.
But anyway - to PROVE it once and for all that morgellons is alive - simply take a stereotactic microscope - focus it on a lesion - then let the person shoot Speed and watch what happens. You won’t believe it.
I will warn you - when someone is loaded on speed, sometimes the fibers move so quickly they cannot be seen but what you WILL see is EVIDENCE OF THEIR EXISTENCE. Like when a mole tunnels under the ground - you don’t see the mole but you sure do see the earth being disturbed. I have watched lesions start to peel and sink in the middle and swell around the sides after I took Speed or Cocaine.
William Burroughs (Naked Lunch) wrote about it as his wife Anne suffered with it. Herbert Hunke (Guilty of Everything) wrote about it too. He didn’t call it morgellons but he describes it perfectly.
I am astonished to learn that straight people who are not addicts suffer with this also. I always believed it was an addict problem and that was why I couldn’t get anybody to care about it.
By the way - to the best of my knowledge - it appears that these things can’t even be burned. They will curl up in flame and turn into a dot of black - then later, unravel back to a hair.
Anyway, I have so much to say and think about all this. I guess this will do for now.
As for being crazy and imagining all this? I assure you - I would never be so lucky as to discover this was simply my imagination.
I only wish.
Take a video while you are on speed, and watch it later, that will provide the evidence you need.
oh by the way - just thought I’d mention that I’ve been clean twelve years now and rarely have an outbreak although I find about one or two lesions every couple of months. They seen to be mainly around my ankles. But anyway, compared to how I used to suffer - this is mild and I can deal with it.
One other very odd thing. I noticed that for some reason, the more one pays attention to these critters, the more active they become.
Perhaps it is the result of a small amount of adrenalin being released by the body or some other chemical messages that perhaps contain something that also effects the morgellons.
Don’t waste your time on morgellonswatch.com. This website is being paid for by the people responsible for spreading this disease/parasite/bacteria, whatever it is.
Factual information can be found at:
http://biology-online.org/biology-forum/about1958-3324.html (note that you scroll through the posts on the biology website by using the “GoTo Page…” in the upper right hand corner.
Also see:
http://www.cdc.gov/ncidod/EID/vol9no2/02-0222.htm and here is more:
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=2768446&dopt=Abstract
I just found out it is from the tobacco hornworm! This is the insect that the parasitoid wasp does a number on!!
http://www.sciencedaily.com/releases/2004/10/041025120719.htm
I have been trying to tell you guys about the ricsettsia diseases, in which they now call all of them the Bartonellas:
http://www.sciencedaily.com/releases/2005/12/051219084711.htm
Lice Join Ticks As Possible Disease Carriers
http://www.sciencedaily.com/releases/2005/03/050328182844.htm
Scarred4life, congratulations, on your 12 year sobriety! You’d mentioned…
If you’re tuned into it, you’ll see that there’s an overabundance of prejudices existing within this group of “straight people” sufferers. I’ve yet to encounter any, in the past, who aren’t consumed with negativity, despite their efforts to deny it. How it all happened, to each, only they know. Would you mind viewing this link I’m providing, please (other than the fact that the things you have are “active”), and seeing whether any of it seems, at all, related to what you have? Thank you.
http://www.disability.vic.gov.au/dsonline/dsarticles.nsf/pages/Erythema_nodosum?OpenDocument
Michael, how did you initially become familliar with Morgellons?
ah
I was just browsing through Wikipedia, and found the Morgellons page, which had a link to the MRF page.
How about you?
My son, then three, had been having stomach issues (black watery diarrhea, stopped eating dinner said “can’t feel good” often, pallor w/dark circles under eyes, lethargic, behavior problems in preschool). He looked and acted very sick. I had been back and forth to the pediatrician. Doc did a parasite test–neg. I thought maybe he was having food allergies???? I gave him an enzyme supplement made for kids (kidzyme). That night he broke out in an itchy rash all over his body. He was having an allergic reaction to something (enzyme?). Days later his rash had become bumpy. He would wake me at 3 - 4 am to “scratch his itchy back.” Hydrocortisone did not help. Then, I tried applying oil so that I did not damage his skin. As I scratched his back, the oil turned blue, and I was collecting blue fuzz under my nails. I freaked-out, but I never let him or anyone else know. I feverishly searched the Internet. When I Googled “fibers” and “parasites,” I found NUSPA. More searching and I found the MRF. My blue-fuzz legs incident occurred months later, but it was just like what I saw on his back. Judging from the manner in which my son presented this illness, it certainly looks as if it could actually be a parasite.
Wow, all this interest in a disease you only ever learned of from an incidental browsing of Wikipedia. And you, a “computer scientist” with all this interest in other people’s medical conditions, found debunking this illness 24/7 a productive and rewarding hobby. Now that’s weird.
ah
Yes, it’s very suspicious. Obviously I must be working for someone, or perhaps I’m a dermatologist with a grudge? It’s quite inconceivable that some retired guy with leet googling skills and nothing better to do might happen to fall into doing this as a hobby for a few months.
I didn’t say “suspicious,” I said weird. One would think that you’d adopt a hobby in your area of expertise. Perhaps you’re not just a computer scientist? You are intentionally vague.
ah
I’m a retired computer programmer. I’ve been programming computers for decades. I like investigating Morgellons in part because it’s different. I am vague only in areas involving my privacy, in all other areas I strive to be accurate and precise. I welcome corrections or request for clarification.
When I retire, the LAST thing I’ll want is a hobby related to my area of expertise.
I come in peace Marige. I just know that skeptics aren’t neutral. You have to “believe” something to be a skeptic. For one, you would have to believe any number of things other than the possibility that my son and I have some strange fiber-producing illness. You have to “believe” that I am one of those things that I said I am not. In this way, your beliefs are insulting to me. You believe in things of which you have no proof either. You just choose to believe in the lunacy of people rather than the adaptiveness of infectious organisms.
Take Care,
Aherah
Aherah, as I’ve said many times, I’ve no idea what is wrong with you (or your son).
I believe in evidence based medicine. I believe in the science method. I believe that people should get appropriate health care.
I would be delighted if someone discovered a strange new fiber-causing disease, since it would mean the people who had that disease could be treated, and science would have something incredibly interesting to study. I’ve just not seen any evidence for the existence of such a disease. I’ve also seen a lot of evidence that suggests most people who claim to have “this” disease, actually have a variety of other problems.
At this time, science can’t answer all of the questions or else the Theory of Evolution would be known as the Fact of Evolution.
Many of us beleive that behind “the variety of other problems” lies the culprit, Morgellons, much in the way that they now know HHV6 causes cervical cancer. Among a number of authors, bioevolutionist Paul Ewald has written on this subject. In Sacramento, I know of one doctor who is successfully treating his arthritus patients with antibiotics.
ah
But HHV6 does not cause ALL cervical cancer.
Absolutely Lousie, it does not. For those of us who know that Morgellons is real, how can we know that our other illnesses are not somehow being caused by it? This is a type of paranoia that accompanies the fear of the unknown. We know we have something; we just don’t know what it is doing to us. We feel as if it is behind the other medical conditions that our doctors are equally perplexed about.
ah
Aherah, you believe that Morgellons (a new disease that produces) is the culprit behind a wide variety of symptoms, the problem is there is no evidence that supports this belief.
Aherah, did you apply oil and scratch your son’s back before he complained of itching?
If not, then what suggests the emerging fibers were in any way connected with his itching or other symptoms?
Michael, we’ve talked about this before too. Why is there no evidence? Because there has been NO RESEARCH.
ah
No Michael, I absolutly cross-my-heart did NOT APPLY OIL BEFORE THE ITCHING. Rashes and itching came first, desparate attempts to relieve him came second. Over the course of two weeks, they helped. As I stated before, I’m not stupid. Stomach issues—diarrhea—rashes—fibers emerging. Gosh Michael, when you actually get your hands dirty, the evidence is pretty compelling. I have to go to Chuck E Cheese now or my kids will behead me for talking to you any longer.
ah
I was not suggesting that the oil caused the itching. I was suggesting that the oil and the scratching were what produced the fibers.
I’m suggesting that the fibers may be benign, and would have emerged if you applied oil and scratched the same, even if your son was not sick.
I got interested in Morgellons from the Today Show and have been researching it. To those who are interested in learning things (like Michael) than why would this be a weird thing to turn into a hobby. I spend lots of time browsing the web pages of this blog. I have a full time job, internship, and school work to get done, yet it is fun to investigage new things. Especially a new “disease” cause by chemtrails, Evian water, and robotic wasps.
Greta Said:
“Growing was my doctor’s word. He said this because: he found some fibers under my unbroken skin on my thumb; he examined them with a 20x and 40x microscope lens; he made detailed notes and drawings of the fibers; carefully examined the area around the twisted bunch of fibers; then he taped up my whole thumb securely with many layers; had me return a couple of days later; removed the tape; examined the area and found several more fibers under the skin, in the area around the initial bunch, which was also still there, but appeared to be bigger. So, unless the fibers penetrated the many layers of tape, and my skin, without leaving a puncture wound, my doctor concluded that the fibers certainly appeared to be growing in my skin. He looked at me seriously and for the first time said, “Well, Greta, you do have fibers growing in your skin.”
Michael, what’s your opinion on this. Do you believe that the professional that examined Greta was incorrect when he told her that she had ‘fibers growing in her skin’, or is it that Greta is lying to you?
That was Greta’s pro-bono psychiatrist speaking. Who knows what he saw, or what he intended by saying that?
People do have fibers growing in their skin, all kinds of them:
- Hair
- Nerves
- Veins
- Fungal hyphae
- Collagen
Greta also mentions in an earlier post that the doctor seemed baffled by the symptoms.
I didn’t notice her actually qualify that he was a psychiatrist, but if so, it is interesting that he did not draw an immediate conclusion of delusional parasitosis, given that this is his speciality.
Your point about fibers is taken -yet I don’t have fibers of the sort these sufferers are describing in MY skin. I’ll reserve judgement until the CDC conclude their investigation, rather than label these people outright deluded or self-harming. The news reports I have seen suggest something rather more substantial is going on here.
Yes, the news reports do suggest something more substantial is going on, and I think that’s part of the problem. People see those reports, and they self-diagnose, and they self-treat. All the while there is no evidence that “this” is what is causing their problems, and their real physical and mental problems go untreated.
If Greemas psychiatrist was a good psychiatrist, and he thought she had delusions, then he may have decided it was not the best approach to confront her with that diagnosis, perscribe meds, and send her on her way.
See:
http://www.emedicine.com/derm/topic939.htm
“While one should not say anything to confirm the delusion, it is usually not helpful to forcefully confront patients with DP.”
http://delusion.ucdavis.edu/treatment.html
“It is pointless to argue with the sufferer as there is no way to sway them.”
You seem to be implying that if the doctor says it is delusional, then it actually is, but if the doctor says it isn’t delusional, then it actually is anyway.
I’m not implying anything. I’m saying things.
I’m saying that if her doctor thought she was delusional, then he might not tell her.
That does not imply anything else. I’ve no idea what is wrong with Greta.
I’ll say this, and I’ll say it without any reservation, that if a patient goes to a doctor presenting in such a way that the doctor’s diagnosis has been delusiona of parasitosis, and they’d thought the doctor was wrong….
They have delusions of parasitosis.
I base my opinion on the facts of the matter, and from reading too many accounts of such patients, as these, who think they have “morgellons disease”, I’d had a completely unbiased mind when I first delved into it, too, and have continued to be stunned. I became aware of something very much wrong in their thinking, long “before” ever learning the words “delusions of parasitosis” and seeing so many of them repeating the diagnoses they’d been given, and were angered by, all repeating the initials “DOP”.
If I am offensive, I’m sorry.
A lot of the Morgies have additional mental problems besides DOP. Some have DOP, BDD, OCD, MBP, ADD, ADHD, Schizophrenia, Depression, Anxiety, and/or various other letters of the alphabet. In addition to that, many of the Morgies have a heaping portion of the dumb ass.
In all fairness, I think due to the state-of-mind they’re in, that it “seems” as though they’re less than average in their cognitive abilities (but that, and such already previously-diagnosed-illnesses, which are relevant, has always been part of the made up “case definition”). This illness, the same as any other one, does not discriminate. It can happen to anyone, regardless of their level of intelligence. The things they believe, and their defense of so many of the hazardous customs they regularly engage in, and all the rest that we’re acutely aware of, all stemming from thinking that they’ve been “abandoned” by the medical community, is evidential to the condition they have in common.
Tallcotton says:
“…many of the Morgies have a heaping portion of the dumb ass.”
Tallcotton, a lot of what you post here is right on the mark, but when you say stuff like this it totally blows any credibility you might have. How is it any different from our lovely friend MAF or any of the other offensive things “believers” say?
I realize you’ve had your “issues” with various Morgies and “morgellons” in general, so there’s a history there. However, if you toned down some of your insults a bit (or better, omitted them altogether) your words would have a hell of a lot more meaning.
Well, it happens to be true. I didn’t come here to be liked, and I didn’t say all Morgies are dumb asses. I did say many, and in my opinion that’s the truth. If the shoe doesn’t fit, leave it for someone else.
MHKS, with your having said that you didn’t know to describe dizziness to a doctor, stuggling with thinking you’d need to word it in some way that a doctor would understand, stating that you were certain that a lot of specific tests would be done if you mentioned it, may speak to some as a credibilty challenging comment on your behalf, as well
If it isn’t apparent that there are definitive deficits in the cognition of these patients, spend time on their many message boards and try to communicate with them.
It’s not about being liked, it’s about getting your message across. Why waste that message (which is a good one, in my opinion) by throwing in phrases like “dumb ass” which automatically cause people (both believers *and* non-believers) to close their minds?
But hey, it’s your message, not mine. Feel free to waste it.
Smileykins says”
“MHKS, with your having said that you didn’t know to describe dizziness to a doctor, stuggling with thinking you’d need to word it in some way that a doctor would understand, stating that you were certain that a lot of specific tests would be done if you mentioned it, may speak to some as a credibilty challenging comment on your behalf, as well”
I suppose it comes down to communication styles. My preference in trying to get stuff across to people is to not offend them by calling them names and maybe even adding in a little empathy. Furthermore, the dizziness post was an example I used to explain that sometimes people lack the words to describe their symptoms and subsequently feel frustration when they feel they’re not “listened” to. I know that a lot of these people have a history with their doctor(s) that speaks to the fact that much more is going on than just lack of the correct words, but that doesn’t change the validity of the post (especially since it was just one small point in reference to one of your posts). Sometimes it *is* hard to describe how one is feeling, both physically and mentally and in some cases, that might be *part* of the problem.
Hell, my credibility is certainly in question. I’m not a doctor, nor have I ever met anyone with “morgellons disease” in person (and that would be impossible, wouldn’t it, because I don’t believe it exists). That doesn’t preclude me from posting about what I observe here, and believe me, I can see the cognitive problems and “mental blocks” that exist here…on *both* sides of the issue.
Your bossiness upset me, MHKS, and then my dial up service got disconnected. Who gives a care about credibility issues, and calling anyone down on them, other than you? Opinions are opinions, and as far
as credibility goes, anyone believing that harmless little fibers pose a worldwide threat sort of says it all. Minds ought to be closed to that, but look at how they aren’t. It’s not very funny having this crisis on our hands, caring about people on such a downward spiral from not doing as their doctors advised. Many get so absorbed with it that they lose everything they ever held near and dear, as well as their own lives. They get on message boards and do outrageous things to their children, making them much worse, and don’t take them to a doctor. Michael’ credibility is well established on his blog, and anything said by anyone else is nothing more than their opinions.
I meant “definite”, not “definitive”, in that above comment.
Everyone is free to express themselves however they see fit. But you might want to consider what you are posting here for in the first place. Personally I’m trying to get balanced information out to people, and to raise reasonable questions about Morgellons. I want to help people, both sick people, and the people who live with them or care for them.
I think the best way of conveying this information, and raising these questions, is to be polite. It’s always possible to get an opinion accross without insulting people.
Politeness is the lubricant of dialogue.
Hey Smileykins, 9 times out of 10 I agree with both you and Tallcotton, regardless of your or my credibility. And that 10th time I don’t agree with you I would never dream of calling you a name and most of the time I wouldn’t even post unless it was something I felt important to point out.
But if everything you say about how awful morgellons is for people is true (and I really believe it is) then credibility (maybe for lack of a better word) *is* an issue. All it takes is a quick browse through this blog to see that morgellons sufferers are just looking for a chance to discredit the “non-morgellons” camp. And they are the ones we want to help, right? If the overall message is “go see your doctor and listen to what he says” (I’m simplifying it for the sake of time)and we say “go see your doctor, DUMB ASS, and listen to what he says” then aren’t we tarnishing the real, important message by risking someone writing us all off as at best mean and at worst, ignorant and mean-spirited? I’m sorry, but I think it does.
If I came off as bossy that wasn’t my intention but I can see why it might’ve sounded that way. And that isn’t a way to get my *own* message across.
No, I definitely didn’t come here to help any morgies. We’ve been there, we’ve done that, and we were overly sensitive to them. TC and I were very sickeningly sweet mannerly, handling them with kid gloves because you had to, to try reaching any possible way of communicating. Many such people will jump you without any provocation whatsoever. We went out of our ways to try being assistive, and Patti, one of the moderators from Lymebusters, unless time has gotten to her, could vouch for that. She often thanked us. I recently learned that another moderator, Ant, while being wonderful to me online, suspected that I was a drug user. I’m disabled, nearly paralyzed, and spend a lot of sleepless nights, in pain. They’ll make you lose your own mind after awhile, like the one that came here shortly after we did just to stir things up. That one, I’d really tried to help, once upon a time, mother-tp-mother. It all fell on deaf ears, blind eyes, whatever. When I first arrived in here in April, morgies weren’t the intended audience, and trying to change their minds was understood. I posted here hoping to reach those in a decisional stage, only. Things have evolved since then. Excuse me, immensely.
TC had said, ” many have heaping portion of the dumb ass”.
You translated into “your own thing”, MHKS, of “go see your doctor, DUMB ASS, and listen to what he says.” and say you weren’t bossy, too, if that makes you feel better.
“They’ll make you lose your own mind after awhile, like the one that came here shortly after we did just to stir things up. That one, I’d really tried to help, once upon a time, mother-tp-mother. It all fell on deaf ears, blind eyes, whatever.”
Smiles, are you talking about me? If so, I think you should manage your memories better. I once respected you, but I never sought-out your advice. If you look back at the lymebusters’ old posts, you’ll notice that I refrained from becoming involved where you were. You see, I knew early on that you really wanted people to do what/believe all you said, and, as I stated before, I follow no one, never have. I suspect that the problem you really had with lymebusters was the fact that eveyone wasn’t deferring to you as the sort of queen matriarch you so wanted to be. I can see you don’t take thoughtful, respectful, criticism here well either. That’s too bad. I did try to help you understand.
I’m sorry you “lost your mind.”
Pumpkin
They know who they are, anyway. the ones reading here, “with the heaping portions”. This is more important to them than maintaining loving relationships, and I think TC and I have counseled way too many of them on it, too. The very idea, being so resistant, so consumed, so driven, that the “only” thing that matters is
getting someone to believe they’re infested with fibers & morgie creatures. If their spouses try to suggest getting help, oftentimes, well, there goes the marriage, right down the tubes. Kids are removed from the home, jobs are lost, pets are neglected to the point of death, and then, they bemoan about “morgellons disease” having caused those poor animals’ deaths. It causes everything. Many of these people lose it all, according to them, because of “morgellons disease”. I’ve never said anything here, as I don’t think TC has, either, looking for any recognition of our credibility. It’s been those morgies that have not wanted “their disease” exposed, that have come here to try to attack us, after we’d left that cult. We’d tried to help, there, and that was the only reason for our membership. These horror stories are all available for viewing, at anyone’s leisure. I don’t need anyone to take my word for it.
I’m not playing with you anymore.
On Lymebusters:
Antidepressants as antimorgellons
« Thread Started on Jun 6, 2005, 1:03am »
« Reply #14 on Jun 9, 2005, 11:26am »
Anyone else that you can get to can.
The End.
I think it is important for the people who are still on the fence with respect to believing in Morgellons, to have a clear understanding that the Morgies have lost it. I think everyone knows what “lost it” means, and I don’t say things I can’t back up. I was told when I came here that the confirmed Morgellons believers were not the designated target, due to the fact that it’s next to impossible to talk one out of his foolish beliefs. If someone decided to change the mission statement of this blog, I’m just now hearing about it. People usually don’t like to be a part of a group of people that are Considered to be dumb or crazy. I think the prospective Morgellons believers have a right to the unvarnished truth, and it is true. For the most part Morgellons believers are both dumb and crazy. If they don’t like for people to believe it, then they need to get their shit together. Please don’t misunderstand me. If there are rules or administration policies, I’ll try to abide by them, and if I get tired of it, I’ll take my smart ass somewhere else. And Aherah, you’re not telling the truth. You’re pretty bad about that.
There are no rules here, you can say whatever you like. But name calling is not “the unvarnished truth”. It’s a simplification that can easily be misunderstood as rancor.
“And Aherah, you’re not telling the truth.”
Look here, Smiles said:
“We’d tried to help, there, and that was the only reason for our membership.”
Bugs Alive (tall cotton) was an avid member of NUSPA and lymebusters posting frequently over the course of years. It always looked to me as if he was seeking the help, not providing it. Whom did you attempt to help TC?
I guess we all have our own interpretations of “truth.” I happen to believe that I’m not the one lying here. Actually, you have never explained what you think I am lying about. It’s just easier to call people names and make blanket accusations and then run away, isn’t it?
ah
Right here, Aherah. Thee following statements, in quotes are lies.
“I never sought-out your advice. If you look back at the lymebusters’ old posts, you’ll notice that I refrained from becoming involved where you were.”
Another thing, I “never” thought I had Morgellons while I was a member of Lymebusters. I havn’t believed that in almost four years. I tried to understand what I had experienced, but I certainly didn’t think it was Morgellons.
How did I try to help people? I’ll tell you exactly how I tried. I tried to encourage them to boost their immune systems, and I outlined the steps to follow, over and over and over.
I also tried to help them understand that Morgellons IS NOT a disease. I never once asked for any help from any one of them concerning Morgellons. But I encouraged them to quit abusing their skin with harsh chemicals.
I also attempted to supply them with a bit of humor, to lighten the load. I’ve received letters from people testifying about how my words helped them.
But, as you well know, or should, Morgies do not want to hear about how to take proper care of their skins immunity, or their health in general. So, no, I didn’t very far with any practical advice to them.
People started claiming that Smileykins and I couldn’t have had what they have, or else we wouldn’t have gotten well. Well, very few of us had the same thing wrong with us, but we were sick and near dying, and we made it back.
You can have the last word, but I don’t care to communicate with you any more. There isn’t a single thing about you that I like, or can respect, and I suppose the feeling is mutual.
Tall Cotton
I had specifically said nothing about when TC was ill and on NUSPA’s message board. People with this “thing” are living in an “Alice In Wonderland” existence, so to speak. Sure, of course it “is reality”….”to them”. Nobody can change that, and furthermore, they don’t want to. They just do not want to.
“Mental Block”? Yes, MHKS, and one can read (and only imagine) what their families must go through with them. One would have to give up and go along, and just try finding a way of living with it. What would the alternative be? One may read plenty enough about those various alternatives, too, all the while, with the “vicitim” of “morgellons disease” clinging tightly to their beliefs, and losing everything they used to care about.
“You can have the last word, but I don’t care to communicate with you any more. There isn’t a single thing about you that I like, or can respect, and I suppose the feeling is mutual.”
You annoy me, but I don’t hate so easily. I don’t really care what you or anyone else thinks of me on this board; I can’t say I hold all of you in high ethical regard either. Still, you think you know me, but you don’t. In this respect, you are absolutely 100% delusional. What you have gleaned from my personality was a reaction to your silly, poorly thought-out ploys at mischaracterizing a group a legitimately ill people. I’m only Aherah when I need to be; the rest of the time I’m just Linda, the loving mother, the veteran (like you), the writer, the teacher, the good friend, the hopeful agnostic searching for meaning in life. You don’t know her because you’re incapable of knowing her.
What is sad it that you say you are so glad to be rid of “Morgellons,” then you write about it incessantly here. You’ll never be rid of it even if you aren’t physically sick. You’ve put yourself in a Sartrian hell a la Morgellons. Now that’s a situation I would never wish on anybody. Honestly, I hope you manage to find peace in life, but it won’t happen as long as you’re here.
Take Care,
Aherah
We know the definition of peace, and you don’t fit into it, for either of us. You came to this forum, speaking of your plans ahead of time, as though lymebusters’ forum had you shrouded behind a cloak of secrecy, setting out on a mission to be nothing but a purposeful menace to us here. Congratulations, on that. Abac68 confessed what caused it in her, and she is doing better as a result. London is an absolute dear. All morgies have to know what the big words at the top of the page, “Morgellons Watch Resources for Morgellons investigators. Skeptical analysis and debunking.”, mean, I would think. So, since you’re here, that means you want help. If not, play the game however it brings satisfaction to you.
Out of Dr. Stricker’s own mouth, in June:
“There really are physical symptoms that occur in people who are not crazy, although once they have it, it usually makes them pretty crazy.”
http://www.sfgate.com/cgi-bin/article.cgi?file=/c/a/2006/06/02/MNGOJJ6JO51.DTL
Some people might be debunking here, but you are not.
gossip
n 1: light informal conversation for social occasions [syn: chitchat,
small talk, gab, gabfest, tittle-tattle, chin-wag,
chin-wagging, causerie]
2: a report (often malicious) about the behavior of other
people; “the divorce caused much gossip” [syn: comment,
scuttlebutt]
3: a person given to gossiping and divulging personal
information about others [syn: gossiper, rumormonger,
rumourmonger, newsmonger]
v 1: wag one’s tongue; speak about others and reveal secrets or
intimacies
2: chew the fat; shoot the breeze [syn: chat, confabulate,
confab, chitchat, chatter, chaffer, natter, jaw,
claver, visit]
That definition suits your behavior to a T, and TC.
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This IS the internet, TC, hehe, but I’d thought I was keeping pretty good tabs on you, on this blog. Aside from speaking out against Mary Leitao (although, not as badly as me), and others who are associated with this “morgellons” scam, why not just save me the energy and come clean, so I don’t have to do a search to see where you gosspied, and violated someone’s privacy. All this time, I thought you were doing the same as me, stating your opinions in the form of generalizations about “morgellons victims”, which can be readily viewed on their message boards.
Of course, then somebody, forgetting that this IS the internet, and that they weren’t secluded in secrecy, made plans to come to this blog to defend herself. That person was not even being spoken about, but she certainly needed some attention, and I obliged her. I don’t think this one is working for Mary Leitao, like the one who’d confessed was, though, but nevertheless, it just doesn’t quite add up. Maybe they all work for her, since it doesn’t add up.
To anyone with children, please, never scratch a child when they have any skin problems that cause them to itch; ringworm, eczema, or otherwise. Until you can get them to a doctor for treatment, look on line at good advice, and please stay away from hazardous message board tips.
http://www.rainbowbabies.org/Home/HealthyLiving/Infections/tabid/366/newsid/21940/Default.aspx
I apologize, TC, I am accused also. I misread.
I have fibers within the first layer of my skin. They seem to be just underneath or around my hair folicles. What happens usually is a hair folicle becomes agitated like an ingrown hair or a pimple after I pop it or agitate it. Then I would rip out the little white head which has hair coming out of it. I think the white head which is round is the hair folicle. Then underneath that is where the fibers are on my skin. After I dig out the white head their becomes a small crater in my skin that the fibers can be picked out with a needle and tweezers. My fibers seem to lay in a horizontal strand that cross the crater. I can pick out single fibers in different colors (red,White,blue) only after dig the needle into the center of the strand and pull almost as hard as i can (very painfull) to break a fiber in half out of the buch thats stranded together. Then I use the tweezers to try and pull the fiber on both sides of the crater. This almost always leaves a scar in a crater like fashion. I always thought that it was just small ingrown hairs. Until I dug deep and saw them with my own eyes. You can bareley just see them without a microscope.
I also have very sensitive skin that results in itchy hives, at random, everyday. Antihistamines hardly help. I need do see and allergist when I can afford it to run a series of tests. I’ve alrealdy tried diet changes to eliminate some of the possibilities for the cause of my hives. But the fibers are different.
I am curious if other people have hives or sensitive skin like me, who also have fibers in their skin. Maybe there is a corralation. A controlled environment is needed to test whether or not the human body, the nervous system, parasites, pollution, cotton, or new-age genetic engineering, is causing this phenomenon.
Kirby, I hope you can see an allergist soon. I have eczema, which has been in remission for nearly 20 years. I have many skin allergies, and have, my entire life. Allergists are helpful to some people, but rather than having the one I saw mix me up a special set of shots to administer to myself on a daily basis, I opted for learning to live my life through restricting exposures to triggers.
They’re all around, but I manage real well. It hasn’t been an easy journey, and it is something I encounter, and deal with, every day. That’s just the way someone with skin sensitivities lives. Yes, there are environmental fibers in our air, which are unavoidable of coming into contact with. That’s just a simple fact of our existence. Please try to refrain from bothering your skin as much as you possibly can. Until you get that appointment with an allergist, rather than letting “morgellons disease” poison your mind, please, read about the our skin’s anatomy, and its innate immune properties, and learn all that you can about skin allergies. Good luck.
Thankyou. I will not let “morgellons disease” effect me negatively. This is not a life threatening disease. Its just a pain in the ass or if you will ” an itch of the skin”. However, I’m willing to “donate” my fiber samples if someone knew what to do with them. I know the fibers are different and unusual and I fear that maybe more people have it than we think. I am another person coming out of the blue today on record with my condition. Tally me up. I would also agree that drugs from past experience tends to affect or speed up the process of the fibers or just make them worse. Maybe we could electricute the fibers or use a dipilitory to disolve them. Burning them is out of the question (apparently}. Anyways thankyou for the post and responce. Good luck to you too and everyone else.
Victim Kirby,
You say “I would also agree that drugs from past experience tends to affect or speed up the process of the fibers or just make them worse.”
Questions: Were the drugs topical? Did they stop or improve the itch even though as you say, the “fiber production” got worse? Did you continue picking or itching while taking or applying these drugs?
I understand that if you have an itch, it can become unbearable not to scratch it–which is part of the problem with lesions not healing. But for god’s sake, quit digging into them with needles. I guarantee that’s not going to help!
Thanks for your time.
Kirby, you’re welcome, and thank you for the good luck wishes. I appreciate that. Having endured bouts with eczema, and heatrash, as a tiny child, as well as later in life, I was accustomed to fibers becoming adhered to my skin when it was oozing. I never thought that people having fibers in, or on, their skin was ever anything to be concerned about. However, I encountered a different situation with fibers about four years ago. Is there a way that you can describe for us how you know that these particular fibers you’re referring to are different and unusual? Thank you.
I never noticed the fibers at first. It was only after I saw a t.v program, I think (20/20), that i explored my infected follicles or in-grown hairs and discovered the fibers underneath. I found tiny red white and blue fibers like the ones the people in the program described. I knew they were unusual because they were smaller than hair strands. Almost microscopic but still visible with the naked eye. Also I noticed the integrity of the fibers. Unbelievably strong. They were stronger and smaller than hair fibers and were different colors than any hair that grew on my body. This is how I know that these fibers were of foreign nature or just new and hardly discovered in the medical world as explained in the (20/20) television program. The program also stated that only around 1000 people have this condition. Is that true? Does anybody know? Can any body tell me the name, or if they saw the special too?
Kirby, how did you determine that the fibers were “unbelievably strong”?
How do they compare to cotton?
I assume you are referring to the ABC Primetime Medical Mysteries show, not 20/20. It was about Morgellons. Nobody has ever been diagnosed with Morgellons, nor is it recognized as a “condition”. Lots of people claim to have it though.
What I meant about the fibers being strong was that they were strongly attached to my body. The fibers were hard to get a hold of, but when I did they would only break off in smaller pieces. The longest one I got was about 1/8 of an inch. I think they go down into the deepest layers of my skin. Thats where I stopped digging. But like I said before there seemed to be a major strand of the red white and blue fibers woven together in a bigger strand, wich I would have to pick open first with the needle. I did this so I could seperate each fiber, and thats when I really noticed the different colors of the fibers. They seemed to be stronger than cotton because I took two pairs of tweezers and ripped one of the fibers in half with the tweezers at each end of the 1/8 fiber. I’ve done that with cotton, hair, wool, silk, spider webs,ect. For there size in diameter they seem to be really strong. I
Victim Kirby,
I’m sorry. You suffer from a condition known as delusions of parasitosis. Never mind what you saw on T.V.; it’s just a show trying to wow people so that they can get sponsors to fatten their wallets. You can’t possibly be seeing what you think you see. It’s just not logical. You must be confusing these fibers in your flesh with ordinary dust. You do have dust in your environment I assume? If you could videotape the fibers in your skin, then we could better demonstrate how wrong you are.
BTW one of the goals of this blog is to enlighten people like you to your foolish naiveté so you don’t ever begin to believe in the non-existent illness some refer to as Morgellons.
Oh yea, Michael, I’m way overdue for a raise, don’t you think?
Aherah, I wonder why you are back to using your “Pumpkin” persona? Don’t you feel that’s a tad deceptive?
No. It’s not as if ya’ll don’t know me. Around here, it’s kind of nice to be referred to with a term of endearment. So call me Pumpkin, OK? I’m going to guess you use a name other than Jeezelouise at home. Today I feel like Pumpkin. Tomorrow Aherah. When I resume my quest for eternal life, I’ll be Upnapishtim. I play how I want to play. I mean no offense Louise, I’m just being honest.
As far as I know (I’m sure Michael can clarify) you are the only person posting to this blog under multiple identities. I have to wonder what your motivation is?
Jeezelouise, who were you at Lymebusters? Thunderations? No, that was TC. Concerned? Concerned2? Had we corresponded before and you just never wanted to admit to it? Now you be honest.
Well, yes, *we* know you, but newcomers to this site do not know that you use at least three identities here. And since you are addressing newcomers using multiple identities, again, I wonder why.
Louise, my motivation is to participate in the discussion. That’s all. Perhaps my different personas have different opinions.
If nothing else, at least Pumpkin is forthright about the opinions and agendas of this blog, and she didn’t even have to reso