Aug 04 2006
Wymore breaks with MRF
This morning, (Aug 4th 2006), the Morgellons Research Foundation removed every single reference to Professor Randy Wymore from their web site: morgellons.org
As well as removing all mention of him as “Research Director”, they also removed the “Letter to Doctors“, the “OSU Rounds” article, and all his “Medical Updates”
His email address, along with the email address of the Chairman of the Board Charles Holman, and the Nurse Coordinator Cindy Casey, were removed from the “Contact” page. Leaving only Leitao, Buckner and Cowles.
The MRF contact for medical researchers has changed from morgellons@okstate.edu to morgellons@aol.com (although morgellons@okstate.edu is still valid for any researcher who wants to help the OSU research effort).
Dr Greg Smith and his wife have also been fully removed from the site.
[Update: Aug 5th - All seven nurses: Cindy Casey, Jo Ann Mangili, Judy Smith, Diane Gay, Kristen Seargeant, Patti Nash and Donna Doherty, have been removed from the site]
I have no interest in the politics here, but this is a significant event in the brief history of Morgellons. The involvement of Professor Wymore has been a major part of every single news story about Morgellons. His presence lent credibility to the story. Without Wymore, the MRF would never have been able to get the major coverage they have been able to. Without Wymore, the CNN, Today Show, GMA and Prime Time Medical Mysteries shows would never have happened.
Without Wymore’s participation in the publicity machine of the MRF, the public interest would have been greatly muted, and the CDC would not have been forced to start an investigation, which in turn led to even more publicity.
My position all along is that there has not been sufficient evidence to support Morgellons being a distinct disease where fibers emerge from the skin. I felt that the excessive publicity given to Morgellons, based on this limited and unscientific evidence, was damaging to the health of a vulnerable segment of the population.
I hope that these changes at the MRF will prompt the media to take a closer look at exactly what has been going on, and to temper their sensationalistic, entertainment based, health reporting.
I also hope that people who think they have Morgellons might be prompted to consider that perhaps there is some doubt in the matter, hence consider they might have something else, and hopefully seek appropriate treatment.
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Bravo.
Well said.
P.S. Wymore’s letter to doctors is still available at Lymebusters. I would urge people NOT to use that letter, unless and until Wymore confirms that he’s not retracted it.
Dr Smith’s letter is actually still there on the Contribution page, I’m sure that’s just an oversight though. They removed it from the front page. The changes were hastily done.
I don’t really plan to go back to Slimebusters - those people have helped me and they haven’t if you understand. I really honestly do feel used - both my partner and I do. ML knows my financial situation is so tight, she knows I can buy cheap phone cards over here - and she would talk for 2 hours easy.
She recently emailed me a photo of her and the kids, with a new aussie registration, but the registration had gone to her private email address and then to me - not via the MRF rego, which I believe is now through the OSU, and I tried to register with OSU the other day, but it wouldn’t accept it. I wanted to ring Dr Wymomre yesteday, to find some answers, but then I tell myself - I don’t think I want any answers - I just want to get well. I ground myself by saying - You have never met ML in person - you met her through the internet - my family have been with me my entire life - they love me - she doesn’t. A couple of phone calls back - ML got me to repeat after her “This is not my life” - I was on a public phone - so very scared and I was sobbing, I have never sobbed on the phone to her before - she actually made me feel worse, truth - but it did. I told her I had a new massive “blind pimple” right between my eyes (on the third eye charka). I said to her - what will happen if this thing bursts - because I refuse to squeeze it!! She said “Oh then you will see all”. That comment was enough for me to pile lots of calamine lotion on this pimple and wait for nature to take its course. It has gone now!!!
Let me try and be very clear here!
Just because a woman, who lost her Doctor husband to death, suddenly for no apparent recorded reason, and has children to support, who are ill with this disease, appears to have been a bad decision does not mean that this disease does not exist.
Mary has had trouble with anyone that ever disagreed with her and the sudden death of her husband did not help her mentally.
She did, however get us excellent press and for that we are thankful.
This disease exists. Mary did what she could. She does not have this disease. Her children do and they are without a father.
Please do not confuse the two, the person who started the MRF Foundation and the disease we suffer from.
We will carry on and I am willing to do that work.
We can not let this situation slow us down or make us give up this battle.
This is a REAL disease. No one is perfect. But we will continue this fight and get around this horrible event.
This event does not mean that this disease does not exist. It just means that a desperate woman may have used funds that she had no right to use.
But no one has any proof of any of that yet. Do they?
Randy B Yaskal
434-974-7128
cisfl2004@netzero.com
Anyone may contact me. I am willing to continue this battle and do whatever I have to to make sure we do not forfeit
any ground.
http://netmedvisit.com
http://thesherwoodforestgroup.com
http://unknownskindisease.com
Randy,
No nobody has proof that Mary did anything wrong.
But nobody has proof, or even solid evidence, that Morgellons is a distinct disease that makes multi-colored fibers grow out of the skin.
Lots of people are ill. Some have similar symptoms. This does not mean there is a new disease.
Take stock Randy. You personally are ill with something, you don’t know what. It could be a combination of things. You have self-diagnosed “this disease”.
The problem is that “this disease” seems increasingly to be based purely on the publicity of the MRF, a magnified version of what Mary invented for Andrew Leitao, several years ago. Andrew, as you remember, had NOTHING LIKE what you have. He had eczema, and a scuffed heel.
this is to the both of you and I speak from the heart and speak the truth…I just wrote a post on the last page of this blog….it pretty much sums up that I was a wee bit shaken at that time and now, I’m rather mad.
It said I had my own bog site but I have never announced it to anyone….b/c it was theraputic for me just to write there like a diary of sorts….
Point being? I had some revelations today, and I mean big ones….(if you read my post on the prior page of this blog you will see what I’m referencing to)
and the last thing…. I was not going to announce my blog…but if I did, it will tell you some stuff that I can back the hell up with documentation and it hell yes it says this disease is real. Thanks to my crash course in reading someone that I think is the best scientis that ever lived, Mae-Won-Ho. I was mild when I wrote it; in other words I did not name names until something happened at the very end of my day a few moments ago.
Randy, are you now running that biology-online site or just acting like it? I don’t mean that in a facetious tone either. This is criminal offense that I’m speaking of…and oh my god, did it not fit into the plan….. all upon an epiphany….i.e., I had just posted about a revelation on my blog site and when I finished, I went back to the http://www.biolgy-online message board to continue my corresponding to TamTam that was also online…and then it happened. It came across my screen and my head with clarity of pixels and clarity of thought. someone out there better be ready b/c this is a crime and I am going to get to the friggin bottom of it.
If you are not following this post, I’m sorry, you will maybe understand more if you go back and read my last post on the prior page of this blog. I think it is time that I post my blogsite. I’m sick of this horrible shit that has been done to me and to others.
and god-damn it I will say it here….Bell Labs better not have a damn thing to do with this but I think they do.
and Randy, you smart-elick like taunted me the other night; daring me to post what I have discovered… and all I can say is that I have proved you wrong over and over again….and you know what else? Nah, I’;m not goint to play that card yet…but yes, I have got other stuff on you and your translating business.
I have had it to hear with people like you,.I’d shut up and get the hell out of town if I were you. At least move before you get subpoenaed!! A crime has been committed and I would have never thought of it until the greatness of today….then, to have just discovered this and then….to immediately realize it was happening right before my very own eyes and right after I discovered the fact that it could be done…oh yeah, I’m pissed!
I’m going to chill before I decide to post the website or not.
Mary Leitao told me that TamTam was a poet and his funds for both videos were done with money from his uncle who owns a tulip farm??!! She said he arrived in USA and phoned her on a Sat. saying he was at the CDC - she told him - silly it is a Saturday no one is there. She laughed as usual. She has laughed at a lot of peoples misfortunes.
London - as for a crime being committed, well I will leave that one up to you - you seem to have covered heaps of stuff in your research - so if you are onto something - go for it - but look after yourself please.
I am so glad I am over in Aussie - but sometimes it feels lonely - but I hope I can shake it.
Mary Leitao - also gave me the real name of TallCotton (which I apologise about Tall in the past) she told me on the phone to put your name in public view. I am so sorry. She even gave me your mobile phone number, but no address. I have thrown out your number, or lost it - but either way I will bin it okay, so don;t worry Tall. She told me you were Schziophrenic - like I was meant to be scared of that. Well I have worked in Mental Health - my first job in fact - and I found all those people so lovely and very very intelligent, there were just stuck in a terrible place with so much medication in them. Those people never hurt me.
After suffering really bad mental symptoms the past couple of days, which I have fought to overcome I understand Schizophrenia so well now - and it is a terrible feeling. I will not let this get the better of me.
what do you mean look out for myself? that is exactly what I am GD doing. Am I scared of those f-ers???
put it this way,,,I;m dying of aids, what do you think???
London - I am sorry I meant LOOK AFTER YOURSELF - I hate the way my fingers hit the wrong keys when I am trying to keep a positive focus, there are some strong forces at work here - but they can get lost.
You know AIDS - Autoimmune Disease isn’t it. I tell myself I am not dieing and I refuse to die. I thought I was dying the other day, angels with wings??!!! that is scary.
London the brain is the most powerful tool you have - my brain is a very powerful tool - but I am doing this for the RIGHT reason. Mary L has hurt me, why else would I be here and in this mess. Hang tough London - do not be fearful - I am saying this to billions of people on the internet, I have nothing to hide and WE both have nothing to fear.
You can email me any personal thoughts London - but heck we have nothing to hide, so if talking here helps we can - or we can do both. Let me know about your website and how I get there. Maybe send me the link if you can.
London - the other thought on dying - if we are going to die I say what will be will be. I met a very special doctor when I was a little girl - he was a very kind man - always told me “To follow my spiritual path” he died young, the old saying goes, only the good die young. My cousin died in 1996 from a massive brain tumour - she was being treated for sinus problems and then maybe migraine, this was over an 8 week period. She really needed a cat scan - but because the doc only looked from the outside - and of course she was a gorgeous looking woman, he thought she looked great. Anyway he finally decided to give her a referral for a cat scan, but she died suddenly in hospital a week before her appointment. Since she died I have suffered greatly and this thing kicked right into me, but it really hit my skin bad in 1998 when I was living in rented property. I was exposed to a leaky wall heater - so for 2 years I had chronic CO exposure, which made me very very sick.
I have this plague.
London, I will not address you on this forum. Period.
I know I have something which no one can analyze. ( I have been to over 30 doctors and some see the fibers but have no idea what they are. I even have that statement in my medical records.)
I know that we all have these microscopic fibers that are not fomr clothing. I know what I know and no one can shake me from it and I will meet face to face with anyone about it.
No matter how hard those who have the agenda to tell us that we do not have a new disease spew their venom, I challenge any of them to tell me what I do have and not that it is in my head or that I am doing this to myself because, although that hurt me at first, I know the truth. Tell me medically what I have…since doctors can not and you seem to be experts with your clothing fiber pictures.
One day everyone will know the truth and realize that we who have this contagious disease are only trying to save the rest of you from getting it. You will get it..very soon most likely and then you will apologize for your uneducated mean spririted words.
We need help. You are all like parents who do not believe that thier child is telling them that their uncle just raped them. That is exactly who you are like.
I pray for you. You have to do the rest.
Randy
434-974-7128
As for Tam…he is a non-entity in this fight for recognition and belief and a cure.
This just may be the end times plague people and believe me you are on the wrong side of G-d if you are not helping us find out what this is. It will spread and you will get it. It is contagious. This is the honest truth. Help us and save yourself and your friends and family. This is not a joke.
I don’t mean for this to be any form of ridicule. Patients need to deal in fact-based medicine.
Randy, you have Sarcoidosis.
Abaca68, you have Rickettsiosis.
London, did you not say, recently, you have the RA factor? Also, you mentioned on the fiber disease forum that you’d accepted a small settlement over a health-related issue, not too long ago.
These are all legitimate, serious, reasons for your symptoms.
Yes Randy - Plague is the right word.
What I can not understand why do people close to me turn against me. They have never done this before. I refuse to fill their heads with this disease. I think talking about the disease called Morgellons itself will perpetuate it, do you hear what I am saying. Lets put names aside, lets fight for the real TRUTH. Mary and her friends supposedly chose that name, yes you have fibers so do I and lots of other horrible things, but WE DO NOT WANT what Mary wants, we want good things Randy. I have no hidden agenda other than - normality.
Mary told me once on the phone about a little dog this is what she told me - Billy Koch’s wife had bought a little dog for a sick friend with cancer, he couldn;t keep it - he had children and was sick and couldn’t care for it. Mary said she would bye it for Drew, then she made jokes. I said how cute a little dog, you could bath him in the kitchen sink. Then she said she would attach it to a wooden pole and wash the floor with it.
Randy that story above is the TRUTH. I have never met Mary L and I do not plan to meet this woman. Please take on board that I am telling you the TRUTH. We can all make tongue in cheek jokes, but when I reflect on that joke mary made about the dog - I don;t think it was a joke somehow now.
Smileykins - Yes I do have Rickettsiosis - but as my family said, rickettsia should be long gone by now. I tell my brain I will be better. My brain will get me better. I don’t need no damn doc to get me better. I can heal myself and I will, the spiritual way.
Smileykins - Another thing I am very sick, but my blood work isn’t. Whatever this thing is it hides from the immune system - I don’t understand that one. Just think about that okay.
ABAC, god, you sounded like that flowerchild chick up there…..I’m getting off line and going to do some eye exercises….I have watched my curser turn to many damn colors today gracias to rhodes colleg and the biology-online site….that is an evil place and I hope people heed the warning. And Yes, someone, was right here beside me when it happened and my neighbor was staning about a foot away and thought he saw the flash in his periphial too……
It would not surprise me a bit if this was not all staged to self-destruct. I don’t think that is what happened, but one never knows…..
I will share this though…thru my research…okalahoma state has been given millions already to study this disease,,,,if you do not believe that then check the vet.school…..i’m sick of all the lies. every damn single one of them., I will be back later to post my stupid lil diaryblog….don’t worry, it’s not that bad.
I’m sorry, Abac68. As I already know from my past walk with people who believe in this, there’s nothing anyone can say or do to change anything you believe.
Randy, on July 27, 2004. Mary Leitai’s husband, Edward, age 54, reportedly died of cardiac arrhythmia.
Smileykins - I don’t need a label anyway when it comes to a disease - I am ME. I don;t think talking about sickness with a stranger at a party is good social communication, do you hear from I am saying.
We don’t want to talk about other diseases and what name we will call what we have. I have a name the name I was given at birth. We don’t want people on their own hidden agenda for fame or fortune or whatever, good health, good friends and family and hey paying bills and even ya tax. I have paid my taxes, but I have messed up because I haven;t submitted a tax return for 2 years because I have been so sick. Well billions of people can read this you know and if the tax man comes knocking on my door on monday morning - so be it. The government does take out tax from my pension every month, but I just have to submit my forms. I never get money back anyway, I just do it coz it is law, and that is one law I broke, but I do feel better for airing that sin on the internet. I said I have nothing to hide.
London - I don’t want to sound like flowerchild - I want this thing to stop. Tell me what to do London to stop it and I will. I just need help here please. Good help - no evil shit. I’m on your side.
and where does nurse ginger stand in all of this???
does anyone know…?
I’m beginning to really question all of this…and I can read em pretty damn good.
Randy, go to you know where. It really makes me ill to see your name anywhere. I told you to stop but you kept on running your mouth and thank the lord you had enough since to finally shut up today….go on and runback to your lil site. I am so glad you did not address me. this will be the last I address of you to-unless that is, I have to see you in court.But I can guarrantee you this…(to all others: TAmTAm is not Danilel van EEden.
this is a fact and this is what they want you to think.
and you all remember when I posted that picture of Danile Van Eeden on LB??? (that is when I thought he was the vaneedden guy) guess who sent me that photo???
Just guess, well it was
Greema, Jan smith of all people….so now….go figure!
I said I’m tired of this f-ing game playing and I meant it.
Randy - please stay over at biology on line please - we don;t want to know about the biology crap. We want the TRUTH. People here have helped me and London to see the TRUTH. You can talk with people over there, please do not upset what we are trying to do and that is help one another.
I didn’t mean “you”, personally. Abac68, and I wish people could learn about what they have been diagnosed with, and what to expect from such diseases and disorders as they’ve been proven to have. I want you all well.
Okay I’m sorry I posted that meme link.
A “meme” is just an idea, like “let’s wear yellow wristbands for cancer”. It gets spread via communication - talking, media, and increasingly the internet.
A “virus of the mind” is just a particularly successful idea.
It is not a real virus, it has nothing to do with physical sickness. It’s just another way of saying “a catchy idea”.
Nor is “parasitic computing” anything. It’s just an amusing little computer hack, not even a really harmful one.
London, you may read on a higher level, but you don’t seem to be understanding it.
Try reading slower.
London - Mary referred to TamTam as someone called - “Per” - I think.
You know I have often wonder about some of the names these people have - lets just break down the name of “Dr Randy Wymore” - London you will get this - “Randy Why? MORE?” - he has to be the mad scientist doesn’t he???!!
Mary has made crude jokes on the phone before - saying things like - check out Garth Nicholson and mycoplasma and i thought she meant Garth Brookes the singer, and she said “Oh how you would like to have your legs up in stirups girl”!!
London - as I share this stuff with you that Mary L has said to me on many many long phone conversations I feel really in control and free. Can you understand that or what I am trying to tell you. She is bad news that woman.
London - you are on the right track okay, don;t let anyone sway you, stay with me please, come on. I TRUST you London
Randy,
No nobody has proof that Mary did anything wrong.
Innocent until proven guilty. This is America.
But nobody has proof, or even solid evidence, that Morgellons is a distinct disease that makes multi-colored fibers grow out of the skin.
I have proof. I am a walking, talking, not afraid to give out my address and telephone number proof. Disprove me. I dare you. I do. You know I have $100.00 that says you can not! Willing ot take that challenge in person!
No one had proof of AIDS either in the beginning. You are not making any sense here.
Lots of people are ill. Some have similar symptoms. This does not mean there is a new disease.
There is a new disease. Like it or not. I understand your fear. But you can not deny that there is a new disease. You have never met anyone with it or talked to any doctors who have seen patients and you refused to talk to the Chicago Tribune about what you think you know and you claim that you know we do not have a new disease. That is truly amazing. How do you do that? Fomr never meeting with anyone or looking at anyone sick. Just from pictures on the internet of fibers? Be real.
Take stock Randy. You personally are ill with something, you don’t know what. It could be a combination of things. You have self-diagnosed “this disease”.
Yeh,like they self diagnosed AIDS..Common now..what a nieve thing to say.
I have been to every doctor and had every test and it is not a combination of things. I have medical records to prove that. Would you like to meet me and review them? You talk big but are small when it comes to facing and seeing for yourself what we are talking about.
The problem is that “this disease” seems increasingly to be based purely on the publicity of the MRF, a magnified version of what Mary invented for Andrew Leitao, several years ago. Andrew, as you remember, had NOTHING LIKE what you have. He had eczema, and a scuffed heel.
BS. This disease and the Morgellons foundation rose from the need of people with similar symptoms and no help from the medical communiity to search the internet for any answer they can find and they found eachother. Know your facts. MDF happened AFTER not BEFORE. The MDF is not even ten years old and I and
others have had this for 14 years. The press about it is new but we were alone for amny years suffering with this not knowing what we had.
I have the same fibers on Mary’s site that Andrew has. Understand that simple point too. The fibers are what this disease is all about. I do not care what you say..until you have seenthem in our skin, mucous, feces, teeth that fall out, finger nail clippings etc..you have no right to talk about what you do not know about. You have not got a real clue. Sorry to say that but I speak the truth here.
My Sarcoid, diagnosed by a lymp node biopsy, which showed non caseating granuloms..which can be found in many immune supressed diseases as can cell wall deficient bacterias etc etc…gave me a sarcoid diagnosis BUT I do not have pulmonary involvement and have normal ACE and D levels telling me that I really do not have Sarcoidosis but something causing non caseating granuloms. Most likely an autoimmune disease of unknown origin.
So understand that too.
OK?
Randy 434-974-7128
Randy please take your “Dis -ease” dialogue away, we want to help each other. We don;t want to talk about MARY LEITAO, OKAY??
And hear this people - NATIONAL INSTRUMENTS IN TEXAS IS NOT A SMALL COMPUTER SOFTWARE COMPANY - THEY ARE WORLDWIDE AND I HAAVE MY SUSPICION - I COULD BE TOTALLY OFF THE MARK - BUT I WANT TO SHARE THAT WITH YOU BECAUSE I WANT THIS INSANITY TO STOP OKAY?
I will share this though…thru my research…okalahoma state has been given millions already to study this disease,,,,if you do not believe that then check the vet.school…..i’m sick of all the lies. every damn single one of them., I will be back later to post my stupid lil diaryblog….don’t worry, it’s not that bad.
This is a lie. London and Sarah are queens of disinformation. They are not on our side. (Sufferers.) I will not say anthre word or stoop to their level. Cilla, London, Tam..all disinformations specialists. The truth always shows itself. I do not need to say anything more. We have a goal..a diagnosis, a treatment, a cure. That isall. Anything else is a waste of time.
Can someone over there do me a favour and phone that company and ask them about this disease. Do they have any employees with this disease. They are in Texas and they are a big firm - don’t you think it is worth looking at???
A post by London on Biology-Online.
The United States Department of Agriculture has approved field release of GM pink bollworm this summer, which are made with a mobile genetic element that can jump many species. This is tantamount to giving wings to the most aggressive genome invaders. Dr. Mae-Wan Ho exposes evidence of instability in these GM insects, and warns of rampant horizontal gene transfer and recombination, should such GM insects become released.
did I not say two nights ago when addressing Canalon and sky that I think the parasites can jump species???
yeah, I’m really crazy. Maybe I should just publically announce my diaryblog…
I think the horizontal tranfer is where the scientist do not understand is so risky/ dangerous
**********************************
TamTam, you asked
Since when do commensal resembling micro organisms replicate a series multi cellular organisms?
I think you are referring to the genetically modified microorganisms to other organisms. … The fungal kingdom is composed of a diverse group of different uni- or multi-cellular …i.e., from one to the other (multi) right.?
as in the sponges or coral reefs, the mats….? yeah?
Randy - I am an innocent person caught in this insanity, and someone and something has done it to us. My life changed when I met the person I now live with. My symptoms started when I met him at 19. I didn’t see him for about four years or speak and then bang he is back in my life and destroys my life, but he doesn;t understand why because he has always loved me since the day he met me. We both love each other dearly, but we can become enemies under the one roof and we do not understand why. Now someone has hurt us both. We are both well grounded human beings and the company National Instruments f’d us both over. We both moved on from that and tried to get a life, but something stopped us and that is this stupid disease. So folks take your pens and paper and figure out what the hell is going on please!
And with a name like Randy Yaskel - you are certainly another person I would definitely not TRUST. I think you idiots have just exposed your little EXPERIMENT, so people pull the pin on these IDIOTS PLEASE!!!!
The problem with shake-outs in the leadership of any group is that chaos nearly always ensues in the rank and file.
Wow.
What do you mean about that Jeezelouise? I am just telling it the way I see it from Australia okay. Or maybe I am just paranoid again I don’t know. I just know that I am not CRAZY
Where do I stand in the rank of File?
Exclusive and consistent video footage of a novel thought human pathogen at:
Check: http://www.silentsuperbug.com
And with a name like Randy Yaskel - you are certainly another person I would definitely not TRUST.
What the hell does this mean..are you an anti-semite?
Bell - I have looked at those - I don;t want to look again. I don;t want to be drawn into insanity. You will not drive me crazy. People please put your brains together and figure this out for me please.
Exclusive and consistent video footage of a novel thought human pathogen at:
Check: http://www.silentsuperbug.com
Ask any REAL scientist their opinon of these videos and you will find out what I have found out that Tams videos are ficticious and have no real meaning. But DO NOT take my word..ask a scientist. Then report back here. I have asked over 40…and they all tell me the same thing.
I don;t want to do that shit Randy. Go away with that talk please.
You lot can figure this out please I have done my bit - I do not want to get any sicker. So yes GO BLOW!!!
What do I do call the police for protection - am i safe - or is this just a bloody joke - can we stop this please.
I phoned legal aid yesterday and told them about this situation and my situation. I tried to ring the number she gave me, but my partner has changed the phone so I can not ring certain numbers. One starts to feel a bit lonely!! But we do have financial strain, so we are trying to way things up.
I feel as though we are sometimes the ones being framed for something. We are both feeling the strain, why would he want to hurt me personally I have not done anything wrong to him and vice versus.
Can someone give a clue on what is going on please?
As we are all probably aware of, some patients, seeking some form of help in understanding what has happened to them, branched off into forming their own message boards. Some were former NUSPA members, some, former members of MRF/Lymebusters. Many remained on Lymebusters, after signing onto the belief in “morgellons disease”, and that they have it, even while disagreeing with the name of the disease they chose as their own. And, to each his own, as it continues moving forward. Such people are compelled by a gripping fear, into looking into things they have no conceptual understanding of, yet they think they do, and that all the rest of us need enlightened. If we were to all play along, pretending to be nervous wrecks to appease them, is that helping them any? Trying to guide them into the right course of action has an adverse effect. The majority seems to want left alone. We’re not going to their forums and bothering them. Hopefully, some that are wishing to bring clarity into their lives can come to a point, one day, that they tire of it and decide to re-assess things. I know it can’t happen for a lot of people, and that they spiral downward.
My initial opinion of Tam-Tam was that he liked playing games. My initial opinion of Cliff was that he liked playing games. It looks like a lot of people are into playing games, games that are based on lies, fear, and misconceptions, pretending that they understand them. Too many look up to such people. I don’t think that they are playing games, at all, though. I think it might even be sheer misery for them. Cliff recently posted about relying on prescription and illicit drugs to try getting energy to fight the “disease”:
http://www.rense.com/general72/crug.htm
Greema posted scabs from excoriations, illustrating what “The Callus” is:
http://www.rense.com/general72/callus.htm
Tam-Tam’s SuperSilentBug video is outrageous beyond words.
The less grounded in reality, the more attractive for some. I find it real hard to tell if it’s misery, or whether it’s a form of pleasure-seeking activity, but I fail seeing how any of us are infringing on their rights to do what they want. They seem pretty free to me.
If anyone honestly wants to know the truth about this disease call me on my personal line..434-974-7128. Anyone who wants to meet a real person that has this..you have to come see me in Virginia. Anyone else can e-mail me on my personal e-mail cisfl2004@netzero.com
Sarah sounds a bit weak and paranoid and on the verge of a nervous breakdown so I will not address her or her rediculous comments but she does not seem mentally well.
London I know is Manic and I am not saying anything that anyone does not know plus she is paranoid too..so I will not address her either..she is very bad for our cause becomes we have to prove our sanity. That is why I think she is a phoney some times..just trying to make us look bad..but who knows..I do not.
I have not a clue what Tams story really is..but his video is bogus. And I am waiting to hear the real story about the Morgellons money loss.
The only thing I do know is that there is a disease of unknown origin and it is spreading like wildfire around our world. That is the truth no matter how much it scares you. Think how we, that have it feel. We are only trying to prevent the spread to your children and love ones and try to find the cure for
ourselves.
You do what you must..time will tell..and those that have not helped but have hindered..they will, if they are good people..apologize to all of us that you have hurt.
Goodby for now..I have said what needed to be said.
Randy
I am a good example…I do not drink, do drugs, smoke. I won a company, work two toerh jobs and have a raelther high IQ and have tests that show I have no mental problems. That is why I put myself out front where this disease is concerned. I am best equipped to talk about it because I have had it the longest..other than a few othres and I speak the truth and will call you on a lie.
So call me if you want to know the truth and do what you will. But if you want ot be on the side of good..help do not hinder our research..it will one day effect you. And I am not trying to scare you..I am trying to warn you in advance. This is the truth.
Randy
Scuze the typos..I also am dyslexic.
OK, I’ve tried to remian level headed and fair to all as I commended Michael for doing so last night….but the line has fucking been crossed. Let’s break it down here so ya’ll who seem to have mental issueS with information processing are VERY clear about what I’m saying,
1. You fuck with Dr. Randy Wymore…You are fucking with ME…so bring it on bitch! How the fuck dare you dis this man who has given so much of himself to the science of studying this disease process? Only to get to the truth, not for money, fame, fortune but TRUE HUMAN COMPASSION! What part of that do you NOT understand! He has ruled NOTHING out. Nor has he ever said the “fibers” were the “cause” of the disease process! Folks, go back and read your damn literature, A by-product? Possibly. NOTHING is conclusive at this point,
2, Mary Leitao IS FUCKING SICK, I heard it from her own sick, venomous mouth! Where’d her beautiful flowing auburn hair go? She used to be overweight folks. I could blow her over and she’s nearly 6 feet tall. She’s sick and I would bet my damn life on it!
3. I have only ONE diagnosis. ONE !!! And that is through 3 different physicians. The disorder currently known as Morgellons. I have NEVER had health problems until the onset of this disease! Yes, I was on the Primtetime filming and the CNN filming and fibers were removed from UNBROKEN SKIN…INCHES FORM ANY LESION OR OPEN SORE. I even had a hard time believing it but it was there for the world to see on the damn dermatoscope screens and my “fibers” are under analysis at this moment.
4. TC and Smiley…..you KNOW who I am. Don’t fuck with me! Got it! Don’t even fuck with me! I’ll bring your world crashing down around you and if you think I can’t you are sadly underestimating EXACTLY who and what I am.
5. TC and Smiley….DID YOU FOR ONCE, JUST ONCE EVER STOP TO THINK YOU NEVER HAD MORGELLONS…OH YES, YOU DID THINK OF THAT! BUT THAT DOESN’T MEAN THERE AREN’T THOUSANDS IF NOT TENS OR HUNDREDS OF THOUSANDS THAT DO????!!!!! That’s what I don’t get about you two. You get cured from drugs and DOP and I HAve congratulated you on that and I MEAN IT! But DAMMIT this is a real disorder and I agree with Randy Yaskel….YOU PROVE I DON’T !!!! Nobody else seems to be able to…. not one physician!!! What are your doctorates in TC and Smiley….methmaking????
6. Dr. Wymore (who is a REAL person you stupid fucking idiot! What’s with the “it’s all in the name thing?” You got a problem with Wymore and Yaskel…THAT’S CRAZY FOR YOU?!!!! That’s what they call paranoid schizophrenia…go get some fucking help!) RESIGNED his position at the MRF voluntarily as to not have the scientific work destroyed by the misdeeds of a few and I say a few because there are more than one in on the misconduct at the MRF, sick, greedy fucks at that Foundation! He will work purely through OSU/CHS and he will continue his work as he has said. He is at work today as any other day. He will be at work Monday and Tuesday and every day thereafter, along with ALL of his staff and the work will continue. Because he has resigned from a position from a politically and legally dangerous foundation shows nothing but common sense and good judgment on his part. Nothing to hide there.
7. WOULD YOU LIKE TO HEAR FROM THE MAN HIMSELF? HE’LL BE MORE THAN GLAD TO GIVE YOU HIS OPINION ON ALL OF THIS AND I’M NOT GOING TO SAY YOU ALL WILL LIKE WHAT YOU HAVE TO SWALLOW. But I keep saying and no one is listening, but you’d better straight up listen and listen good. DO NOT FUCK WITH THIS MAN! yOU SORRY ASSES HAVE NO CLUE AS TO WHAT HE HAS DONE FOR FOLKS SUFFERING FROM THIS HIDEOUS DISEASE, NONE!!!!!! And if you’d FRIGGING LISTEN to his interviews he said he WAS a skeptic, set out to prove Morgellons didn’t exist. Well the proof as TO IT’S EXISTENCE IS OVERWHELMING !!!!! And Michael, if you’re not a doctor and my personal positioN is you are a writer and I believe I know which one,,,am I wrong?????? What doctorate do you hold to make you such a decisive expert on the disease??????
8. You all can talk shit here all you want if it makes you feel better, you can make your snide remarks against ONE ANOTHER???? You can rip each other to shreds and I will reiterate…..TC and Smiley, becaue YOU had a different diagnosis…be fucking thankful, because I wouldn’t wish this on you as much as you “bug” the SHIT outta me. That doesn’t mean thousands of other people and many, many experts who certainly outrank a couple of backwood Okie Methheads, ARE WRONG!!!!!!!!!! THAT’S INSANITY !!! You’ve simply changed your obsession from having the disease to proving it doesn’t exist and you don’t have a shred of evidence……..well bring it on! Bring on a team of experts. I’ll submmit to ANYONE’S inspection. And I’ll put up more than a hundred on it. What’s your salary….I’ll match it for a fucking year!
9. LAST WARNING….YOU CAN FUCK WITH EACH OTHER, YOU CAN DIS EACH OTHER’S BOARDS AND BLOGS, BUT YOU FUCK WITH DA MAN AND I WILL FUCK YOU OVER !!!
What happened? Did I scare you off ’cause you all know darn well I know who you are and your histories and have all the dirt and skinny on you backed up? I asked you….bring it on! Prove me wrong. But you prove ME wrong. keepin messing with the Doc and I’ll shut this site down with the tap of the send button and if you think I can’t do it, there are plenty of others that have the info. to do it for me. I’m not a combative person unless you cross the line and Michael, you let ‘em cross it. I’ve primarily used this site as a place for amusement. I do not find this line of staggering, blubbering idiocy amusing at all.
You asked last night…Where’d the Lymies go? Where’d the Watchers go? Surely someone has something to say. Never saw y’all shut up for this long before. Catscratch got your tongue???????
Long-term infection with parasitic worms is generally associated with an immunological phenotype that is Th2-like and anti-inflammatory. This phenotype is probably an unintentional consequence of molecular characteristics of worms (as free-living worms also express polarising molecules) in combination with deliberate attempts by the parasites, via molecular secretions, to modulate the phenotype. This review is concerned with the identity of immunomodulatory worm products, the receptors that they interact with and the signal transduction pathways that they activate. It hopes to indicate how knowledge of these factors can explain the changes in gene expression that result in the characteristic worm-induced immunological phenotype.
and here is another one Michael:
Future technological trends and their likely effects on human society, … 2003 May 27 Tuesday. Shock Waves In Photonic Crystals Shift Light Frequency …
and uhh….
What’s missing is the sense of continuity between early computing history and the widget design for next week’s release. And that is what we are working on …
I wont bother you with posting the long articles Michael. Man, for a brief minute there , you sounded just like John Kern, you know he too is a retired computer programmer.
But when you wrote me that day you were so sweet and I really started to respect you. What happenend? Like earlier today you made another wise comment something about i must prove the science and no where in my post above your post did I say anything about a disease. Unless, of course, you are speaking of the ted nugent chriade (sp?)
Why would you even care if you do not have anything to hide. I am not being ugly and I think you know me by now and can read me. Just curious…or don’t write back, granted, it’s been a long day on everyone, it has.
Quit scratching and get a job.
and I meant to say this up there…(this is the last post from me tonight, I swear)
ABAC, I got off the computer for a couple of hours and just came back here and read your post and I have to tell you that I am laughing so hard I’m nearly in tears.
You are a hoot! and that dog on a wooden stick used as a mop,,,HAHAHAHA that was a good one! thanks, I think you might be okay afterall.
and this is just a question to whomever- who was it that said that the MRF is being investigated by the IRS?
Can they prove this to us with a scan of a document or something? It sure would help us.
Thank you-
London
Doublecreek, it is, after all, Friday evening. As for myself, I was out to dinner with my spouse. Still, having read your post, I’m not sure what response you are looking for?
London, shouldn’t you be in bed?
London, it was Dr Gregory Smith, Charles Holman, Cindy Casey (all from MRF) and Cliff Mickelson who posted to LB about the accounting/IRS issues.
As for a scanned document, I have not seen one. But the changes at MRF today tend to verify that some really-not-very-good stuff are happening at the foundation.
Get a Life………Unless you know what the Hell you’re talking about and it’s obvious you don’t as I, for one, among many others, have never felt crawling, bugs, itching, nor do I scratch myself so it sounds to me like you have absolutely NO business even being on this site…..what IS your interest by the way? And YOU DESPERATELY need to get a fucking life if this is the best you can do and you have nothing ELSE to do but harass very ill individuals of whose disease you know nothing about! I personally DO have a life and worked since I was 14 years old….again..what’s your profession and salary you self righteous son of a bitch? You wanta put up that money bet? I don’t see any takers………Good work London….again.
Dear Jeez:
My message was not meant for you or anyone else personally only the particular poster who questioned Dr. Wymore’s existence, credibility or genuineness. That is ONE thing I will defend and defend to the extreme, so no offense meant to you personally. You know who you are. Don’t even think about going there. And again to Mr./ Ms. Doesn’t Have a Life….I don’t recall there EVER being a discussion about Itchy and Sratchy on this blog. Not from these quarters, If so, please do me the honor, in your great wisdom, of refreshing me.
MICHAEL….Are you checking for double ISPs and posers? I smell a skunk and if it smells like a skunk, it usually IS one.
Alright then, Doublecreek
Since we’re on speaking terms (typing terms?) I will say that I had my suspicions about Wymore’s motives early on, and posted as much here. If you care to slog through the archives, you’ll find it.
After a bit of research into his background and credentials, I changed my mind and no longer believed he was “in it” for the money, and posted as much here. Again, if you feel like slogging, you’ll find it
Earlier today, when the MRF site was purged of all mention of Wymore, I actually had good things to say about that. Don’t bother slogging for those remarks, though, they were not posted here
Whatever I think about the direction of his research, or his qualifications to be undertaking such research, I applaud his break with the MRF.
I do not have to agree with someone, in order to respect their ethics.
I have a reporter from the Times Union in Albany that may want to do a story. Anyone from the Albany area please contact me at once.
cisfl2004@netzero.com
Thank you
Randy
P.S. Doublecreek, since you asked, I would in fact like to hear from Wymore. The whole “business as usual” feel at the MRF site and LB today is, frankly, a bit weird. A public statement needs to be made by someone, especially since the LB posts suggesting donations be made to OSU rather than the MRF have been deleted.
So, yes, I’d like a statement.
Well strangest thing….I just went to the morgellons.org web site and Dr. Wymore is still there; so to Greg Smith and his letter. It is 12:01 CDT Aug.5, 2006…DUH!!!!
You people are so STUPID!!!
LadyJ, please clear your cache and try again. Wymore, Smith and Holman are NOT there anymore.
Web browsers store copies of websites you have visited on your computer so that when you go there again, they load much faster. However, often what you see is NOT the current version of that site.
If you need help figuring out how to clear your cache/history in order to see the current MRF website, please ask here. I’d be glad to help.
Wymore has received no money from the MRF as of yet. He wrote this to me in an e-mail.
Cindy whose husband designed the site and is a nurse and has this, collected $15,000 that was suppose to be ear marked for Wymore and he never got it.
So they all asked Mary to reveal her accounting records which are public information with a non-profit and the request was denied. All money was suppose to go to research and Wymore never got anything.
When challenged Mary had a hissy fit and everyone jumped ship rather then go down with it since they could no longer trust the Captain.
I she misused the money given for research and it is all true…nothing has been proven yet. She could be looking at jail time and high tax penalties from the IRS.
With some corporations..board of directors sometimes are counted as responsible parties..so when they found out what was going on …they had to leave. They could not in good conscious stay with an organization that was collecting money for one thing and using it for another.
Doublecreek, thank you for your feedback. I agree Wymore is better off away from the MRF - he can probably concentrate more on the science now. I look forward to his student’s epidemiology study.
I also look forward to the Prime Time show, starring you. I hear there is going to be some new evidence revealed on this show - can you give us a clue?
I’m actually very interested in your case. Fibers in lesions are one thing, but fibers that appear to come from under the skin are quite another. What’s going on here? Quite an interesting question.
The question of if the fibers have anything to do with your illness is really a separate issue. How many people have the fibers just like you do? Do they all have the same symptoms? These are the things the epidemiologist need to look into.
I think Wymore was a bit hasty with his “100 percent certain Morgellons is a real disease pathology”, but he generally seem to try to be a good scientist - eventually some good science may come of him.
And Doublecreek, there’s no need to threaten people - it’s not going to help anything. This site is going to steam merrily along no matter what you do. Maybe better to engage in some civilized discourse and try to arrive at some things?
What are the basic facts in dispute? What are the bones of contention?
Randy, the only thing you said in your post that surprised me was “$15,000″. On the one hand, that’s a lot more than I thought was involved, on the other hand that’s a pretty paltry sum to risk jail-time.
London, your heart is in the right place - you just need to explain a bit more about what you are thinking when you post links to articles. It’s not always clear why you posted them. You need to join the dots for people who can’t immediately make the same connections you can. Just slow down your thinking to the level of the average reader, and you’ll get your point across better.
London - My partner and I took some human all wormer at lunch time, I am not taking the antibiotics and I feel GOOD. More grounded.
Folk, this is not a board for discussing remedies - you don’t even know if you have the same thing. Something that might make one person feel better, might make another sick.
Work with your doctor - first you need to find out what you have.
Good to see you back, Michael
Wow this blog is actually getting fun again! Hi Randy, I’ve also had this ittybitty nightmare for 14 years. I’m actually proud of how well I’ve dealt with it…but then I had kids…they have this now too. What a dilemma. Oh, I’m actually GLAD you’re a Semite; at least you won’t wave around “being saved” as if it were a get-out-of-jail-free card. Maybe Mary L. is also saved. She should be in good shape then no matter what the outcome–right Smiles?
I emailed Cindy Casey today. She assured me that Dr. Wymore is just as committed as ever. I don’t know what silly stuff is going on with the MRF, and I not ready to pass judgment on anyone without hearing the whole story. No matter what, I will always be grateful that Mary Leito took up the torch. She showed me that I am not alone. For me, that was big, really big. I always thought that the Morgies expected too much of her, perhaps because she wanted to be/do “it all” to/for everyone. That’s just unrealistic. This turn of events (if true)is unfortunate, but will probably inspire more people to take leadership roles in this fight. She was the first, but she won’t be the last. Michael, you’ll have plenty more to blog about in days to come–I’m sure of it. Ya know, I’m quite a fighter myself; combat trained even.
Hey London, whaddya say we hook-up with skytroll and start our own Morgie Army. Since Bugs Alive–I mean Tall Cotton is so hung up on semantics (”Morgellons is not a real disease…yadda, yadda”) we might want to change the name.
AHERAH!
>>Work with your doctor - first you need to find out what you have.
I would add to that, let your doctor know anything and everything you have been using to medicate yourself, no matter how embarassing. Suck it up, and be honest.
For some, that might mean a period of detox - no pills, no lotions, no vet meds and maybe even no Internet. There is no shame in that, and for sure it’s only fair to give your doc a clean system to work with.
And finally, give it time to work. Rome was not built, nor destroyed, in a day.
Aherah, what’s going on with the MRF is hardly “silly stuff”.
Ya know what I like about you lately Louise? I like that you are beginning to sound compassionate. While I don’t expect you to care what I think, I still appreciate that.
ah
Perhaps it’s easier to see when you are not attacking me, Aherah.
Louise, right now it is all just speculation (aka “silly stuff”). I am not mitigating the enormity of what this could be, I’m just not ready to have an opinion without proof. Certainly you guys know about not believing something until you are presented with proof? Right? Maybe they have a video or something.
ah
Aherah, a 2005 form 990 would do nicely.
Speaking of compassion - some people tend to equate compassion with being supportive and non-threatening.
It’s quite possible to be compassionate, and still disagree with someone.
I disagree with the scientific beliefs of a lot of people, but I still have a great deal of sympathy for them.
I even have a lot of sympathy for Mary Leitao, she’s going through a lot of pain right now (and has for years). I obviously disagree with her science, but I’m very sorry she is in the situation she is in.
Michael, absolutely. “Compassion” and “condone” are entirely different matters.
Several years ago, I sat on a jury that finally handed down a death sentence. It was deserved, by rule of law. But I still sometimes wake up during the night, feeling a great deal of sadness for the convict and everyone who loves him. Whatever he’d done, he’s still a human being in a dreadful situation, and I am haunted by the verdict.
Still, people were killed and lives shattered and that cannot be erased, no matter how many nights I wake with a start.
ML is in a dreadful situation, but there are consequences for everything we do.
Compassion is not absolution. But, you are right, disapproving of someone’s actions is not the same as hating that person. Not at all.
Michael, I haven’t overlooked the times you sounded mildly human. I also don’t necessarily dislike people who don’t agree with me, as long as they don’t sling mud or tell half-truths. When I first encountered this blog (I believe you pointed it out to me on Lymebusters), I read about how delusional and twisted the Morgies are. Yes, such talk offends, especially when there are times when that is all that is ever said. For me, compassion is also largely about understanding, oh yea, and treating people RESPECTFULLY too. Right now, Louise understands that some people are going to feel lost. Rather than wallow in the vision of the falling house of cards, she’s shown that she is concerned for the legitimately sick (though we disagree about the sickness) souls who might panic. Your alleged concern for Mary is interesting. If you want me to believe that you are concerned as you claim to be, then you need to be able to verbally recognize the problems that many a Morgie has faced that is unjust. You have to show us that you understand our predicament by pointing fingers where they sometimes rightfully belong at a messed-up medical system, the one that prefers diagnosis of psychosomatic in a matter of minutes rather than do the scientific work of determining if the cause is indeed a mental one. You see, you only ever talk about the errors the sick people make; you never acknowledge the issues that might lead one to making those errors. People who are being compassionately treated by their doctors don’t choose instead to bathe in bleach. They might only choose that after having been thoroughly humiliated, frustrated, and desperate. If you are compassionate, you need to acknowledge both sides of the coin.
ah
Aherah, I am very concerned for all of the patients who cannot help but be affected by the apparent collapse of the MRF. Politics and finances should not be their concern, but in this case, it is inevitable.
I can assure you that Michael is equally concerned.
From LB -
“Is the infamous “Blogsspot MorgellonsWatch” a Pawn and Front by the Medical Establishments or somebody Powerfull???
to scatter us all, to fragment us, to discourage us, to cause inner strife, to break us up, to discourage us to give us, to break up, to cause us to argue, to hate each other and split up, SHUT DOWN AND CLOSE ALL OF OUR WEBSIGHTS!!!”
———————-
Nah, I’m pretty sure he’s an ordinary guy who doesn’t even own a black helicopter. Maybe, just maybe, Michael is on your side and you don’t even know it.
Michael - I said I was going to say it for the last time, but since it’s not ‘getting through’, what will get my dander up is attacking Dr. Randy Wymore. Otherwise, have you ever overtly seen me be hostile on this site? THAT was the issue. And I apologize for losing my temper, but anyone that knows me knows that. I believe I’ve made that very clear here as well. I’ll listen to, lurk and even comment on some of the silliest fusses and fights on these blogs but when I said I’d cover that man’s back, I meant it. He is the most decent, selfless human being I have ever known and to hear b.s. pouring out of the mouths/keyboards of folks who have no idea about the man or his work is a little more than irritating. It’s irresponsible. You ask me not to threaten, although I’ll never make empty threats, I ask for those that have no knowledge or proof of certain subjects, or ANY subject for that matter to keep their paranoid ideation to themselves.
I do not know of any upcoming “revelations”. Sorry to disappoint, but then again the filming was fractured over a series of filmings and interviews and I am certainly not privy to every “exclusive”. I will certainly be no “star” in this one and was offended by the previous insinuation on LB, that I thought I was “a star” on the CNN piece. Being seen half naked in a state of ill health by many thousands of people, I don’t personally find flattering. My part in the Primetime filming is very minimal and if it was not edited, I don’t even appear to be the same person due to the progression of my Morgellons illness.
I will not post or speak for Dr. Wymore on any given topic EXCEPT for his efforts and credentials but do know he was intending to address this board prior to the MRF issues. I imagine his answer to this board may require some expansion of his thoughts. I will contact the Dr. tomorrow and request that he do so if you would like to “hear it from the horses mouth”, so to speak. He may take much time and consideration in his reply. He certainly recognizes the hostility that many hold for him here and the issues surrounding the dissolving of the MRF are of particular sensitivity. I don’t believe that he has any discomfort in addressing his reasoning, but he does, I believe, feel an allegience to the patient group for which he works so dilligently.
As for “fibers” being removed from unbroken skin, that is quite common, if not the norm, then certainly the majority. Initially, even the doctor and I had difficulties with semantics in describing these objects. I personally, have never felt comfortable with the word “fiber”. I do not have fibers or what one would think of as a fiber (meaning a textile, thread or any such fibrous material) growing out of my body. What I damn well know I DO have are red, blue, brown, white and transparent tubular or hyphae looking objects that are growing subdermally under intact skin, along with MANY others and that is why the word ‘fiber’ even nearly disqualified me as being a part of the patient group. In my view, I did not have ‘fibers’. Semantics. And I think the use of the word…and the “thread disease” have been somewhat misleading. I, for one, do not pull threads or objects like you produced yourself, from my body. But I do indeed have these growths both in and under lesions and under intact skin quite a distance from any lesion or in areas where there are no lesions at all. This is NOT abnormal or unusual in this patient group and they are not any known fungal hyphae. I am hoping that ABC will cover the less sensationalistic, but more serious components of the illness, being neurodegeneration, significant joint involvement (my orthopedic specialist actually making the statement that it looked as if something had been eating the bone from the back or underside of my patellas). Yes, it feels like being eaten alive but for me, not the itchy, creepy, crawlies. But then again, I have a more systemic type disorder. There is no system of the body that I’ve seen as being immune from this. Be it lymphatic, synovial, lungs, heart, digestive, brain, etc. I will contact Dr. Wymore and ask that he speaks to this issue. I’m sure he has prepared statements for other such entities but I would imagine he may approach this board and it’s skepticism with a slightly different angle. Again, I do not know, I will not speak for the man, but I will defend him to the nth degree. I will post back to you upon a response from the very good Dr. and let you know his feelings regarding this matter. To say that some of the very wreckless and probably more importantly hurtful and thoughtless posts made here have annoyed him would be quite an understatement.
Respectfully,
Doublecreek
>>I will contact Dr. Wymore and ask that he speaks to this issue. I’m sure he has prepared statements for other such entities but I would imagine he may approach this board and it’s skepticism with a slightly different angle.
Doublecreek, I really don’t care where Wymore decides to make a statement. But there are a lot of very ill people who need to know what the heck is happening with the MRF, so someone needs to make a statement, like, yesterday.
The MRF site says nothing, and LB came back up with no explanation but that there had been some “challenging” circumstances.
(Would you like grape or cherry Kool-Aid to wash that down?)
Someone needs to say something.
I’m just sayin’
regards
What a nice exchange of ideas and opinions. I am very impressed.
Honest.
Whatever happens, this event is not a good one. We had a face and now it has mud on it. That hurts.
I wish the best for all..I do….but if the Foundation crumbles we must take up where they left off.
We have no choice but to do that. And we will get ribbed about this incident..but we have to pick ourselves up and go forward a get funding for research and finding doctors that will open their minds and their hearts and examine patients and have a network where they talk to one another and compare notes.
1) Please if you are in Albany..I have a reporter wanting to talk to you. Contact me cisfl2004@netzero.com
2) If you know a doc that wants to help have him sign up for free at http://netmedvisit.com
3)If the Foundation crumbles I can start up my non active non profit and go for 501(3) C status. I just can not do this alone. http://thesherwoodforestgroup.com
Let us all pull through this possible downfall and rise from these possible ashes.
Randy
JeezLouise!
Why do you have to be so facetious about EVERY comment made? It just shows a lack of intelligence. You have nothing better to say. Nothing that makes any logical sense! That’s why I normally just let y’all alone to your own game playing. But this IS a serious matter. I HAVE contacted Dr. Wymore on this board’s behalf, as I said I would. This just happened yesterday for God’s sake and why do you all forget that this man is a full time teaching professor. He HAS a REAL job and it’s NOT Morgellons research. That is gratis work for public concern. So on top of his full time job, his work on the Morgellons program, trying to have a life just like the rest of us, which, I imagine has suffered greatly due to his absence, you can’t give the guy even 24 hours to prepare a response to the public? Who’s the sick one here? I’m saying I’ve GOT Morgellons and I’VE got more common sense than that!
And Randy, I was hoping you were being facetious because I STILL don’t see anything NICE about this! I’ve never seen such a bunch of smart asses!
Now I have done as I said I would do. I don’t b.s. I don’t play games and I don’t like snide game playing. Why are you quoting me Jeez…my post is right above you, do you think these people can’t even READ for God’s sake?
YES, Doc probably WILL consider an address to this group much more carefully. Look at how you behave! Examine the demands you are placing on a person that despite what you may think is suffering from trauma from this event himself. HE didn’t cause it, he’s reacting and protecting himself from the descpicable actions of others.
Ya know, when I come here as I say, it’s usually for amusement because this group only strengthens the patients in the ridiculous behavior that abounds. So I find it a stress reliever, a break from the day, to see what idiotic assumption has been made lately. But lady, you are just too much! ASK LB why they have no explanations. I’m no fan of theirs either. Why are you blaming Dr. Randy Wymore for Lymebusters and the Morgellons Research Foundation’s lack of responsibility to their patient group???? HE”S DOING HIS JOB!!!!! He was VOLUNTARY Director of Research. He was not a voting Board Member, he didn’t have much direct contact. He assisted and provided SCIENTIFIC information which was up to the FOUNDATION to disseminate. The man is a SCIENTIST not a damn spinmaster!
Do you think you can get a more direct answer……ask LB……ask Mary, I never claimed to have any relationships with either of those entities, or respect, so YOU ask them Louise, and Randy Wymore really doesn’t owe you all here, who have done nothing but try and make a mockery of the man, who could spin circles around all of you intellectually, morally and ethically, a damn thing! Is he thinking about the patients at this very moment you’d damn well better believe it! He NEVER stops thinking about the patients. But WHY ON EARTH does he need to explain a damn thing to Ms. jeezlouise?
Did you ever stop for one unselfish moment to think that these people who have invested years of their lives to supporting that foundation aren’t doing a little hurting of their own? That they’ve been as shocked and surprised by Her Highnesses actions as much as anyone?
Another reoccuring theme I have with you folks……..where is your compassion…certainly you must have SOME….SOMEWHERE? Don’t you have careers, families, loved ones, things that you have vested your lives into that if in one fell swoop it were taken from you, you wouldn’t need to stop and grieve a little bit? Consider a bit how your words might affect those that are ALSO hurting? WTF is WRONG with you? These folks are working as quickly as they can to right wrongs that THEY did not create.
You contact LB or MRF JEEZ or MICHAEL, you never seem to be on together and since you’re so damn chummy
>>Maybe, just maybe HE (oh Mr. Kerns is a HE) might be on your side. Wash that down with your fucking kook-aid, I don’t drink sugar, I’m really sweet enough as I am. I think your flavor might be more like lemonaid…kinda makes you pucker and wish you hadn’t have swallowed it in the first place because NONE of your nonsense is palatable.
Again, I have done as I said I would do. I have asked Dr. Wymore if he would like to comment on this site. This site in PARTICULAR. As for the MRF and LB, you’re barking up the wrong tree lady. Every person connected with the MRF that had ethics has done the most righteous thing they could do given the situation, RESIGN. You want to take on the she-devil Mary Leitao…go for it Jeez…ask her yourself. You want an explanation for Lymebuster’s abandonment of the patients….ask em Jeez, I wouldn’t piss on a one of them if they were on fire.
Now given that these folks are locked off of these sites, just HOW do you propose within 24 hours that they ‘announce to the world’ their personal situations and by what rights do you here think you are OWED an explanation by people you have only criticized? The whole concept is an oxymoron! You’re asking for explanations for the behaviors of two entities, LB and the MRF that neither Dr. Wymore or the several other wonderful medical professionals were driven from, due to a single or several persons irresponsible actions, from the very victims of the instigators of the potentially unethical behavior…you want THEM to explain???? I’d say you’d better think about this a while lady while you drink yourself a gallon of kool-aid.
And Randy……don’t email me again. I’ve blocked your address.
Thank you,
DC
And Jeez, Louise….just what are these really ill people sick with? I thought this was all about bashing LB and saying everybody eat healthy, be happy, take psychos and all this bad illness will simply evaporate?
You’ve insisted for months…there IS no illness, so why are you suddenly so concerned? Who knows? You keep tellin em to get off the computers, go see their doctors, (psychs) or in some cases drug clinics….so in essence this, according to YOUR theory should help cure these poor confused souls should it not? You’d better add a slug of Vodka to that kool-aid! Get real, make up your mind…you can’t have it both ways…very ill people, imagine that!
I call Wymore Wacky Wymore because I think he’s wacky. He’s looking for a pathogen that doesn’t exist, for a disease that doesn’t exist, and he is, or was working with the MRF, which are also Wacky. Now I havn’t called any of you crazy in a few days, but if I want to voice my opinion about someone not asociated with this blog, I will, and quite franky, I don’t give a flying fuck how many Morgies it pisses off. How about those apples, Ms. Double Creek.
P.S.I hope that Lymebusters never reopens, and I hope the MRF follows suit.That would be the best thing for this non-entity called Morgellons.
You’ll be eating some rotten apples soon Mr. tall cotton, I promise you that. The jig is up on you man and the shit is nearing the fan!
Randy Yaskel:
Please, please accept my deepest apologies. I was incorrect in my assumptions I jumped to about you and I am the first to admit it. I was wrong and I am deeply regretful. I DO want to work with you. I’ll tell you the truth. You had such a “take control” attitude that it reminded me of Her Highness Leitao so much, I panicked. I flat panicked. I am publicly apologizing and I will privately apologize. I spoke to Chas a moment ago and a few other trusted friends and they assured me I was almost understandably (because they commended you for your take charge attitude) frightened. Nothing puts the fear of the devil in me more than Mary Leitao and simply because of your urgency and firmness in your belief, it felt like my initial contact with Mary, which was positive but extremey assertive and quickly turned to venemous spewing of things I shall not discuss on a public forum especially this forum. If you can please forgive me, I will email you in a moment and explain. We MUST pull together, we MUST and Chas has assured me, and I trust him wholeheartedly that this IS the right thing to do. I only want to be ON the right side of RIGHT. Forgive me my fear. These are stressful times and I am not trying to make excuses, I am asking for your forgiveness, I misjudged your intentions and for that I am terribly sorry.
DC
Doublecreek said:
I’ve probably said this before, but I don’t pretend to have any idea as to what illnesses you have or do not have. You sound very physically sick, and that’s a reality.
But, it’s the fibers, stupid. Sorry, but that’s really the crux of the matter. If you just had some auto-immune/wasting disease, then that would just be another of medicine’s long line of currently unexplained cases. But you have fibers under your skin, in a manner new to science.
The word “fibers” covers what you describe quite well. I know there are associations with clothing fibers, and the ludicrous “strings” and “threads” of some TV reports. But nerve fibers, blood fibers, muscle fibers, collagen fibers, hyphae and even tiny veins are all still “fibers”.
Fibromyalgia and CFS were difficult diseases to establish, as they had no biomarkers, no lab tests that could be done. Morgellons seems like it should be a lot easier, since you have fibers. The fact that it is so hard to find a doctor who can see the connection with the fibers is an indication to me that there is some suspicion as to their involvement in “this disease”.
Sure, there are some bad doctors out there. Lots of quacks too. And the insurance system in the US is not good for poor patients. But are they ALL bad? I think a significant portion of doctors are good people, who want to help. Most Morgellons believers go to a LOT of doctors, 10-20 or more. Are they that unlucky that they never find a good doctor. Can Brandi Koch, who has millions of dollars, and an entire infected family, not find a doctor who will investigate?
Tallcotton, unfortunate Lymebusters is back, a place where people can have their delusions reinforced:
A Lymebuster says:
Someone has blackheads, pores with excessive sebum in them, which people used to call “flesh worms”. She digs a half inch deep hole in her face with a needle, and pours exfoliating acid in the hole.
And nobody thinks there is anything wrong with this.
Oh my, Dblcrk, I have looked, but I can’t find what happened that made you spin out and stripped your gears, defending Dr. Randy Wymore, like you’ve claimed. Could you have just seen the name “Randy”, when Randy Yaskal entered into participating here yesterday, and you’d thought that since the doctor’s name is mentioned in this topic’s title that someone was saying something bad about Dr. Randy Wymore? Please copy & paste where you are referring to a person attacking him, here, yesterday, that caused this to happen to you.
Also, I’d missed this, until today…
Randy Yaskal Says:
August 4th, 2006 at 3:56 pm
I will share this though…thru my research…okalahoma state has been given millions already to study this disease,,,,if you do not believe that then check the vet.school…..i’m sick of all the lies.
Randy Yaskal Says:
August 4th, 2006 at 10:39 pm
Wymore has received no money from the MRF as of yet. He wrote this to me in an e-mail.
Cindy whose husband designed the site and is a nurse and has this, collected $15,000 that was suppose to be ear marked for Wymore and he never got it.
So they all asked Mary to reveal her accounting records which are public information with a non-profit and the request was denied. All money was suppose to go to research and Wymore never got anything.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
If there are millions of research dollars, OSU’s Dr. Wymore hardly need $15,000
All the nurses are gone from morgellons.org. I guess Cindy took them.
Doublecreek said…
“You’ll be eating some rotten apples soon Mr. tall cotton, I promise you that. The jig is up on you man and the shit is nearing the fan!”
Doublecreek, you seem to bounce back and forth from threat to apology.You would save yourself some time and embarassment if you would think before you open your mouth.
I’m 57 years old. My God, do you think for one second that I give a shit about your threats. Now, get a grip on yourself for a change.
Dblcrk, I saw that you’d told JeezeLouise, you’d meant nothing personal with your spin-out. The things that you, and others like you, say, are about the same to me anymore, anyway, as saying, “Hi there, how are you doing today? Nice weather we’re having.” For anyone who might stumble across your misinterpretation of our true-life accounts in our blog:
SIMPLIFIED…
Neither of us had “morgellons disease”, and we’re both clear on our stand on matters concerning it.
Smileykins: heat exhaustion + high fever + kidney stones = weird occurrences, like many morgies have
Tall Cotton: meth = weird occurrences, like many morgies have
Neither one of us received a diagnosis. It wasn’t necessary
When I got healthy: it stopped (illness induced)
When TC kicked meth: it stopped (drug induced)
That equals: we’d both had delusions of parasitosis
Neither of us had a pre-existing problem causing it, so we got over it easily. I would normally think that anyone would want over it, regardless of the cause.
I’ve never used meth, TC is a recovered former user, neither of us has schizophrenia, or anything to do with drugs, in any way, shape, or form.
Randy Yaskel is tired of the lies. That’s funny. I’m tired of the Morgellons lie. Absolutely NOTHING has been accomplished by the Morgellons Research Foundation, or any of the people supporting Morgellons Disease. Nothing has been accomplished by the many citizen scientists, like those that post on the believers forums. In fact, there’s nothing to accomplish, except laying the Morgellons myth to rest permanently. Morgellons Disease is a lie!! I know what I’m talking about.
I’ve stated on here before why I find this issue is so disturbing. I see no solution.
A little warm in here, don’t ya think? Just a note that the “Register” button on the MRF site is supposed to be going to a secure link (https). It doesn’t.
Any webmaster would want to know this, and I wrote to tell him. Not only did I receive no response, the link still isn’t secure.
There have also been other things there that didn’t sit quite right, although it may all be unconnected and innocent.
And I wrote a month ago.
Glowie Huntress,
You showed up just at the right time. I’ve already used up my quota of words that anger Morgies, for today.
Doublecreek, that was quite a rant. I hope you feel better today.
Michael, also at MRF, the link to “Foundation News” is gone.
Only gone from the front page - I think they forget it was on all the other pages as well.
TC & Smiley - Part of what I find so amusing about your attempts at condescending speeches is you never get your facts straight and I don’t consider myself to be part of a group of “others”. That is pure bigotry! I did not spin-out (is that a Meth term? Since I’m not a user and I’ve never heard the term, I was just curious) on Jeez, she came in the middle of the topic and misunderstood at whom the statement was directed. My conversation with Randy Y. was a private email to which I was apologizing for something that was not even discussed on this board, I felt it would be courteous to apologize both publicly and privately, not knowing whether she was on board here or at her personal email. I, unlike “others” around here am not afraid to admit when I’ve erred. I’m human. You speak of Morgellons patients as if we are another race or species. We are ALL human beings, you and I. sharing the same space, the same planet and I do not understand why respect is so hard to find around here. Typically when respect is lacking it shows a history of lack of self-respect.
Let’s go back and clarify. London mentioned monies being given to OSU VeT, not Randy Yaskel. Randy mentioned Cindy’s legitimate loss of monies to the MRF. You all seem to always blame everything on a “spin out” and you’re not even reading your own damn blog.
No, I don’t like either one of you. I am entitled to MY opinion. But I’m still sitting with discs of hatemail from sweet smiley and years of archives of TCs rantings. Hatemail received uninvited as an assault on my home computer. I’ve even got some sweet pics of you folks. And I will REITERATE because you came out of YOUR tailspins and did not have Morgellons…more power to you ….God Bless You…but we ALL didn’t do Meth or have Kidney problems or any other kind of health problem. Just because you don’t have AIDS or SARS does not mean it doesn’t exist. Do you not see how ridiculous your argument is???? And because a disease is not yet fully understood it can’t possibly exist because a very small….and I mean VERY small handfull of you yokels recovered from abusing your bodies and didn’t have a new and emerging disease? Look back at AIDS and put yourself there and then add a few years of research and if you’d of blogged and dissed sick patients about it, would you not be horrified with yourselves?
And the remark about Dr. Wymore came on post 26 by abac68 (which by the way is a component made by NASA for space warfare if you wanna get into name delusions) and Smiley? Did you not backpedal and apologize in post #24? Is apologizing a sin on this site….I thought you and Rick were Christians now. Well you are the most unbecoming Christians I have EVER seen and would make me ashamed to say I WAS one if this is an example of Christian behaviour. I am not in a “tail spin”, I don’t appreciate labels and judgments and if I remember my biblical teachings correctly that is left for one and one alone and unless Rick’s cowboy saviors have turned him into Christ himself I’d say you are WAAAAY outa line passing judgements on individuals, much less lumping them into groups of “them” and “those” and “others”. Christians? Nope. That is not Christian behavior. You might as well be using the “N” word, but you replace your hate and venom with the “M” word. Saved? by delusions in photographs! And ‘ya know what else I just realized. I think we’re related. Lotsa Groves in Shawnee. My greatgrandpa was the schoolmaster in your town and started the Grove school. He had 15 children. My parents were born there. Are you dissin’ your own kin? That kinda makes me feel a little ill. But addiction DID run in the family, fortunately it bypassed me.
I said many times on this board…fuck with ME all you want but Doc Wymore…Rick…you have the heuvos to call a double PhD researcher wacky? What’s your education and professional background after you got outa cookin’. You think YOU compare in any way in intellect or as a humanist to Randy Wymore? THAT is more than wacky that leads me to believe you need to go back into the hospital there in Shawnee for a little more treatment.
Now Mary, what part of this do YOU not understand? Do you want your hatemail posted all over every blog on the web? Do you want people to see what a truly obsessive bitch you CAN be and threatening? You threatened me in my HOME. I’m in no tailspin dear, I told you I’d take you on head to head on any IQ, psychological, neurological, whatever test known to man and come out on top. I’ve asked you all…put up or shut up….YOU prove I DON’T have Morgellons. We find a physician of mutual agreement, I’ll even pay the bill and it must be a doctor that can afford minimally at least a small scope and I haven’t found one yet that hasn’t seen the “so called” fibers UNDER my skin. I don’t itch, scratch or pick. I was in the prime of my life, neither a druggie, in ill health, nor had I ever been. And remember Mary, we talked about growing our own food and I told you that besides being a highpowered businesswoman I owned an organic vegetable and fruit farm and sweated out there ’til midnight with my crops at times. Mainly contributing them to homeless and women’s shelters and folks in need? Is it coming back to you now???? My entire medical history was 4 pages long. I loved my life and was very involved in my church and community and (this IS a commonality BTW Michael, since you seem to be the only one with a lick of sense around here) I was extremely successful, robustly healthy and happy with my life. I’d never even HEARD of Morgellons when my physician found irregularities in my skin and neurological insufficiencies which thank God I have overcome. But by every criteria and description available (based on empirical science, not TamTam’s joke of a video) I have Morgellons Disease (no, I don’t like the name either)! And I’m not ashamed to say so and I’m not disturbed by your typical….Oh “your spinning off you poor dear, bullshit”. You two never STOPPED spinning and found the ONLY place on the internet that would HAVE you.
Michael……..Do you have ANY idea of who these two are???? They’re so friggin crazy they’ve been ostracized from every website they’ve touched and in REALITY they are two nasty sons of bitches. At least with me, what you see is what you get. If I’m pissed, I’ll tell ya, if you’re kind, I’ll thank ya, if I’m wrong, I’ll apologize, but these two are raving lunatics and I’ve got proof. What do you have on me cousin? Can’t take me up on the bet ’cause you don’t MAKE a living? What’s the deal? No takers? Prove me wrong or spare me your “spin out bullshit”. And save your druggie language for your own kind. Speedfreaks are the scourge of the earth, not patients afflicted with a newly discovered disease.
Have I addressed all of your questions Mary? I’m an open book. Just ask away and if you think you’re even beginning to ruffle a feather, you’re dead wrong. I’m beginning to find your incomprehensible rants a highlight of my day. You’re a living joke!
Doublecreek, you really do have a bee under your bonnet. “Spin out” is perfectly normal American vernacular, derived from both flying and driving, where one may spin out of control, and, when flying, enter a “tail spin”.
You really should consider what you are saying, re-read it after a while - you come across as a self-righteous egomaniac, which I don’t imagine is your intent. I’m frankly puzzled and disappointed by your continually threatening to reveal some old emails that someone sent you when they were sick. Do you actually think this will stop people being critical of Prof. Wymore? What are you trying to do here?
Why don’t we put the unproductive bitching aside for a while, and try to focus on what the facts are, what are the unknowns, what are the areas of dispute, and how might we move forward?