This morning, (Aug 4th 2006), the Morgellons Research Foundation removed every single reference to Professor Randy Wymore from their web site: morgellons.org

As well as removing all mention of him as “Research Director”, they also removed the “Letter to Doctors“, the “OSU Rounds” article, and all his “Medical Updates

His email address, along with the email address of the Chairman of the Board Charles Holman, and the Nurse Coordinator Cindy Casey, were removed from the “Contact” page. Leaving only Leitao, Buckner and Cowles.

The MRF contact for medical researchers has changed from morgellons@okstate.edu to morgellons@aol.com (although morgellons@okstate.edu is still valid for any researcher who wants to help the OSU research effort).

Dr Greg Smith and his wife have also been fully removed from the site.

[Update:  Aug 5th - All seven nurses: Cindy Casey, Jo Ann Mangili, Judy Smith, Diane Gay, Kristen Seargeant, Patti Nash and Donna Doherty,  have been removed from the site]

I have no interest in the politics here, but this is a significant event in the brief history of Morgellons. The involvement of Professor Wymore has been a major part of every single news story about Morgellons. His presence lent credibility to the story. Without Wymore, the MRF would never have been able to get the major coverage they have been able to. Without Wymore, the CNN, Today Show, GMA and Prime Time Medical Mysteries shows would never have happened.

Without Wymore’s participation in the publicity machine of the MRF, the public interest would have been greatly muted, and the CDC would not have been forced to start an investigation, which in turn led to even more publicity.

My position all along is that there has not been sufficient evidence to support Morgellons being a distinct disease where fibers emerge from the skin. I felt that the excessive publicity given to Morgellons, based on this limited and unscientific evidence, was damaging to the health of a vulnerable segment of the population.

I hope that these changes at the MRF will prompt the media to take a closer look at exactly what has been going on, and to temper their sensationalistic, entertainment based, health reporting.

I also hope that people who think they have Morgellons might be prompted to consider that perhaps there is some doubt in the matter, hence consider they might have something else, and hopefully seek appropriate treatment.

485 Responses to “Wymore breaks with MRF”

  1. Bravo.

    Well said.

  2. P.S. Wymore’s letter to doctors is still available at Lymebusters. I would urge people NOT to use that letter, unless and until Wymore confirms that he’s not retracted it.

  3. Dr Smith’s letter is actually still there on the Contribution page, I’m sure that’s just an oversight though. They removed it from the front page. The changes were hastily done.

  4. I don’t really plan to go back to Slimebusters – those people have helped me and they haven’t if you understand. I really honestly do feel used – both my partner and I do. ML knows my financial situation is so tight, she knows I can buy cheap phone cards over here – and she would talk for 2 hours easy.

    She recently emailed me a photo of her and the kids, with a new aussie registration, but the registration had gone to her private email address and then to me – not via the MRF rego, which I believe is now through the OSU, and I tried to register with OSU the other day, but it wouldn’t accept it. I wanted to ring Dr Wymomre yesteday, to find some answers, but then I tell myself – I don’t think I want any answers – I just want to get well. I ground myself by saying – You have never met ML in person – you met her through the internet – my family have been with me my entire life – they love me – she doesn’t. A couple of phone calls back – ML got me to repeat after her “This is not my life” – I was on a public phone – so very scared and I was sobbing, I have never sobbed on the phone to her before – she actually made me feel worse, truth – but it did. I told her I had a new massive “blind pimple” right between my eyes (on the third eye charka). I said to her – what will happen if this thing bursts – because I refuse to squeeze it!! She said “Oh then you will see all”. That comment was enough for me to pile lots of calamine lotion on this pimple and wait for nature to take its course. It has gone now!!!

  5. Let me try and be very clear here!

    Just because a woman, who lost her Doctor husband to death, suddenly for no apparent recorded reason, and has children to support, who are ill with this disease, appears to have been a bad decision does not mean that this disease does not exist.

    Mary has had trouble with anyone that ever disagreed with her and the sudden death of her husband did not help her mentally.

    She did, however get us excellent press and for that we are thankful.

    This disease exists. Mary did what she could. She does not have this disease. Her children do and they are without a father.

    Please do not confuse the two, the person who started the MRF Foundation and the disease we suffer from.

    We will carry on and I am willing to do that work.

    We can not let this situation slow us down or make us give up this battle.

    This is a REAL disease. No one is perfect. But we will continue this fight and get around this horrible event.

    This event does not mean that this disease does not exist. It just means that a desperate woman may have used funds that she had no right to use.

    But no one has any proof of any of that yet. Do they?

    Randy B Yaskal
    434-974-7128
    cisfl2004@netzero.com

    Anyone may contact me. I am willing to continue this battle and do whatever I have to to make sure we do not forfeit
    any ground.

    http://netmedvisit.com
    http://thesherwoodforestgroup.com
    http://unknownskindisease.com

  6. Randy,

    No nobody has proof that Mary did anything wrong.

    But nobody has proof, or even solid evidence, that Morgellons is a distinct disease that makes multi-colored fibers grow out of the skin.

    Lots of people are ill. Some have similar symptoms. This does not mean there is a new disease.

    Take stock Randy. You personally are ill with something, you don’t know what. It could be a combination of things. You have self-diagnosed “this disease”.

    The problem is that “this disease” seems increasingly to be based purely on the publicity of the MRF, a magnified version of what Mary invented for Andrew Leitao, several years ago. Andrew, as you remember, had NOTHING LIKE what you have. He had eczema, and a scuffed heel.

  7. this is to the both of you and I speak from the heart and speak the truth…I just wrote a post on the last page of this blog….it pretty much sums up that I was a wee bit shaken at that time and now, I’m rather mad.

    It said I had my own bog site but I have never announced it to anyone….b/c it was theraputic for me just to write there like a diary of sorts….

    Point being? I had some revelations today, and I mean big ones….(if you read my post on the prior page of this blog you will see what I’m referencing to)

    and the last thing…. I was not going to announce my blog…but if I did, it will tell you some stuff that I can back the hell up with documentation and it hell yes it says this disease is real. Thanks to my crash course in reading someone that I think is the best scientis that ever lived, Mae-Won-Ho. I was mild when I wrote it; in other words I did not name names until something happened at the very end of my day a few moments ago.

    Randy, are you now running that biology-online site or just acting like it? I don’t mean that in a facetious tone either. This is criminal offense that I’m speaking of…and oh my god, did it not fit into the plan….. all upon an epiphany….i.e., I had just posted about a revelation on my blog site and when I finished, I went back to the http://www.biolgy-online message board to continue my corresponding to TamTam that was also online…and then it happened. It came across my screen and my head with clarity of pixels and clarity of thought. someone out there better be ready b/c this is a crime and I am going to get to the friggin bottom of it.

    If you are not following this post, I’m sorry, you will maybe understand more if you go back and read my last post on the prior page of this blog. I think it is time that I post my blogsite. I’m sick of this horrible shit that has been done to me and to others.

    and god-damn it I will say it here….Bell Labs better not have a damn thing to do with this but I think they do.

    and Randy, you smart-elick like taunted me the other night; daring me to post what I have discovered… and all I can say is that I have proved you wrong over and over again….and you know what else? Nah, I’;m not goint to play that card yet…but yes, I have got other stuff on you and your translating business.

    I have had it to hear with people like you,.I’d shut up and get the hell out of town if I were you. At least move before you get subpoenaed!! A crime has been committed and I would have never thought of it until the greatness of today….then, to have just discovered this and then….to immediately realize it was happening right before my very own eyes and right after I discovered the fact that it could be done…oh yeah, I’m pissed!

    I’m going to chill before I decide to post the website or not.

  8. Mary Leitao told me that TamTam was a poet and his funds for both videos were done with money from his uncle who owns a tulip farm??!! She said he arrived in USA and phoned her on a Sat. saying he was at the CDC – she told him – silly it is a Saturday no one is there. She laughed as usual. She has laughed at a lot of peoples misfortunes.

    London – as for a crime being committed, well I will leave that one up to you – you seem to have covered heaps of stuff in your research – so if you are onto something – go for it – but look after yourself please.

    I am so glad I am over in Aussie – but sometimes it feels lonely – but I hope I can shake it.

    Mary Leitao – also gave me the real name of TallCotton (which I apologise about Tall in the past) she told me on the phone to put your name in public view. I am so sorry. She even gave me your mobile phone number, but no address. I have thrown out your number, or lost it – but either way I will bin it okay, so don;t worry Tall. She told me you were Schziophrenic – like I was meant to be scared of that. Well I have worked in Mental Health – my first job in fact – and I found all those people so lovely and very very intelligent, there were just stuck in a terrible place with so much medication in them. Those people never hurt me.

    After suffering really bad mental symptoms the past couple of days, which I have fought to overcome I understand Schizophrenia so well now – and it is a terrible feeling. I will not let this get the better of me.

  9. what do you mean look out for myself? that is exactly what I am GD doing. Am I scared of those f-ers???

    put it this way,,,I;m dying of aids, what do you think???

  10. London – I am sorry I meant LOOK AFTER YOURSELF – I hate the way my fingers hit the wrong keys when I am trying to keep a positive focus, there are some strong forces at work here – but they can get lost.

    You know AIDS – Autoimmune Disease isn’t it. I tell myself I am not dieing and I refuse to die. I thought I was dying the other day, angels with wings??!!! that is scary.

    London the brain is the most powerful tool you have – my brain is a very powerful tool – but I am doing this for the RIGHT reason. Mary L has hurt me, why else would I be here and in this mess. Hang tough London – do not be fearful – I am saying this to billions of people on the internet, I have nothing to hide and WE both have nothing to fear.

  11. You can email me any personal thoughts London – but heck we have nothing to hide, so if talking here helps we can – or we can do both. Let me know about your website and how I get there. Maybe send me the link if you can.

  12. London – the other thought on dying – if we are going to die I say what will be will be. I met a very special doctor when I was a little girl – he was a very kind man – always told me “To follow my spiritual path” he died young, the old saying goes, only the good die young. My cousin died in 1996 from a massive brain tumour – she was being treated for sinus problems and then maybe migraine, this was over an 8 week period. She really needed a cat scan – but because the doc only looked from the outside – and of course she was a gorgeous looking woman, he thought she looked great. Anyway he finally decided to give her a referral for a cat scan, but she died suddenly in hospital a week before her appointment. Since she died I have suffered greatly and this thing kicked right into me, but it really hit my skin bad in 1998 when I was living in rented property. I was exposed to a leaky wall heater – so for 2 years I had chronic CO exposure, which made me very very sick.

  13. I have this plague.

    London, I will not address you on this forum. Period.

    I know I have something which no one can analyze. ( I have been to over 30 doctors and some see the fibers but have no idea what they are. I even have that statement in my medical records.)

    I know that we all have these microscopic fibers that are not fomr clothing. I know what I know and no one can shake me from it and I will meet face to face with anyone about it.

    No matter how hard those who have the agenda to tell us that we do not have a new disease spew their venom, I challenge any of them to tell me what I do have and not that it is in my head or that I am doing this to myself because, although that hurt me at first, I know the truth. Tell me medically what I have…since doctors can not and you seem to be experts with your clothing fiber pictures.

    One day everyone will know the truth and realize that we who have this contagious disease are only trying to save the rest of you from getting it. You will get it..very soon most likely and then you will apologize for your uneducated mean spririted words.

    We need help. You are all like parents who do not believe that thier child is telling them that their uncle just raped them. That is exactly who you are like.

    I pray for you. You have to do the rest.

    Randy
    434-974-7128

    As for Tam…he is a non-entity in this fight for recognition and belief and a cure.

    This just may be the end times plague people and believe me you are on the wrong side of G-d if you are not helping us find out what this is. It will spread and you will get it. It is contagious. This is the honest truth. Help us and save yourself and your friends and family. This is not a joke.

  14. I don’t mean for this to be any form of ridicule. Patients need to deal in fact-based medicine.

    Randy, you have Sarcoidosis.

    Abaca68, you have Rickettsiosis.

    London, did you not say, recently, you have the RA factor? Also, you mentioned on the fiber disease forum that you’d accepted a small settlement over a health-related issue, not too long ago.

    These are all legitimate, serious, reasons for your symptoms.

  15. Yes Randy – Plague is the right word.

    What I can not understand why do people close to me turn against me. They have never done this before. I refuse to fill their heads with this disease. I think talking about the disease called Morgellons itself will perpetuate it, do you hear what I am saying. Lets put names aside, lets fight for the real TRUTH. Mary and her friends supposedly chose that name, yes you have fibers so do I and lots of other horrible things, but WE DO NOT WANT what Mary wants, we want good things Randy. I have no hidden agenda other than – normality.

    Mary told me once on the phone about a little dog this is what she told me – Billy Koch’s wife had bought a little dog for a sick friend with cancer, he couldn;t keep it – he had children and was sick and couldn’t care for it. Mary said she would bye it for Drew, then she made jokes. I said how cute a little dog, you could bath him in the kitchen sink. Then she said she would attach it to a wooden pole and wash the floor with it.

    Randy that story above is the TRUTH. I have never met Mary L and I do not plan to meet this woman. Please take on board that I am telling you the TRUTH. We can all make tongue in cheek jokes, but when I reflect on that joke mary made about the dog – I don;t think it was a joke somehow now.

  16. Smileykins – Yes I do have Rickettsiosis – but as my family said, rickettsia should be long gone by now. I tell my brain I will be better. My brain will get me better. I don’t need no damn doc to get me better. I can heal myself and I will, the spiritual way.

  17. Smileykins – Another thing I am very sick, but my blood work isn’t. Whatever this thing is it hides from the immune system – I don’t understand that one. Just think about that okay.

  18. ABAC, god, you sounded like that flowerchild chick up there…..I’m getting off line and going to do some eye exercises….I have watched my curser turn to many damn colors today gracias to rhodes colleg and the biology-online site….that is an evil place and I hope people heed the warning. And Yes, someone, was right here beside me when it happened and my neighbor was staning about a foot away and thought he saw the flash in his periphial too……

    It would not surprise me a bit if this was not all staged to self-destruct. I don’t think that is what happened, but one never knows…..

    I will share this though…thru my research…okalahoma state has been given millions already to study this disease,,,,if you do not believe that then check the vet.school…..i’m sick of all the lies. every damn single one of them., I will be back later to post my stupid lil diaryblog….don’t worry, it’s not that bad.

  19. I’m sorry, Abac68. As I already know from my past walk with people who believe in this, there’s nothing anyone can say or do to change anything you believe.

    Randy, on July 27, 2004. Mary Leitai’s husband, Edward, age 54, reportedly died of cardiac arrhythmia.

  20. Smileykins – I don’t need a label anyway when it comes to a disease – I am ME. I don;t think talking about sickness with a stranger at a party is good social communication, do you hear from I am saying.

    We don’t want to talk about other diseases and what name we will call what we have. I have a name the name I was given at birth. We don’t want people on their own hidden agenda for fame or fortune or whatever, good health, good friends and family and hey paying bills and even ya tax. I have paid my taxes, but I have messed up because I haven;t submitted a tax return for 2 years because I have been so sick. Well billions of people can read this you know and if the tax man comes knocking on my door on monday morning – so be it. The government does take out tax from my pension every month, but I just have to submit my forms. I never get money back anyway, I just do it coz it is law, and that is one law I broke, but I do feel better for airing that sin on the internet. I said I have nothing to hide.

  21. London – I don’t want to sound like flowerchild – I want this thing to stop. Tell me what to do London to stop it and I will. I just need help here please. Good help – no evil shit. I’m on your side.

  22. and where does nurse ginger stand in all of this???

    does anyone know…?

    I’m beginning to really question all of this…and I can read em pretty damn good.

    Randy, go to you know where. It really makes me ill to see your name anywhere. I told you to stop but you kept on running your mouth and thank the lord you had enough since to finally shut up today….go on and runback to your lil site. I am so glad you did not address me. this will be the last I address of you to-unless that is, I have to see you in court.But I can guarrantee you this…(to all others: TAmTAm is not Danilel van EEden.

    this is a fact and this is what they want you to think.

    and you all remember when I posted that picture of Danile Van Eeden on LB??? (that is when I thought he was the vaneedden guy) guess who sent me that photo???

    Just guess, well it was
    Greema, Jan smith of all people….so now….go figure!

    I said I’m tired of this f-ing game playing and I meant it.

  23. Randy – please stay over at biology on line please – we don;t want to know about the biology crap. We want the TRUTH. People here have helped me and London to see the TRUTH. You can talk with people over there, please do not upset what we are trying to do and that is help one another.

  24. I didn’t mean “you”, personally. Abac68, and I wish people could learn about what they have been diagnosed with, and what to expect from such diseases and disorders as they’ve been proven to have. I want you all well.

  25. Okay I’m sorry I posted that meme link.

    A “meme” is just an idea, like “let’s wear yellow wristbands for cancer”. It gets spread via communication – talking, media, and increasingly the internet.

    A “virus of the mind” is just a particularly successful idea.

    It is not a real virus, it has nothing to do with physical sickness. It’s just another way of saying “a catchy idea”.

    Nor is “parasitic computing” anything. It’s just an amusing little computer hack, not even a really harmful one.

    London, you may read on a higher level, but you don’t seem to be understanding it.

    Try reading slower.

  26. London – Mary referred to TamTam as someone called – “Per” – I think.

    You know I have often wonder about some of the names these people have – lets just break down the name of “Dr Randy Wymore” – London you will get this – “Randy Why? MORE?” – he has to be the mad scientist doesn’t he???!!

    Mary has made crude jokes on the phone before – saying things like – check out Garth Nicholson and mycoplasma and i thought she meant Garth Brookes the singer, and she said “Oh how you would like to have your legs up in stirups girl”!!

  27. London – as I share this stuff with you that Mary L has said to me on many many long phone conversations I feel really in control and free. Can you understand that or what I am trying to tell you. She is bad news that woman.

  28. London – you are on the right track okay, don;t let anyone sway you, stay with me please, come on. I TRUST you London

  29. Randy,

    No nobody has proof that Mary did anything wrong.

    Innocent until proven guilty. This is America.

    But nobody has proof, or even solid evidence, that Morgellons is a distinct disease that makes multi-colored fibers grow out of the skin.

    I have proof. I am a walking, talking, not afraid to give out my address and telephone number proof. Disprove me. I dare you. I do. You know I have $100.00 that says you can not! Willing ot take that challenge in person!

    No one had proof of AIDS either in the beginning. You are not making any sense here.

    Lots of people are ill. Some have similar symptoms. This does not mean there is a new disease.

    There is a new disease. Like it or not. I understand your fear. But you can not deny that there is a new disease. You have never met anyone with it or talked to any doctors who have seen patients and you refused to talk to the Chicago Tribune about what you think you know and you claim that you know we do not have a new disease. That is truly amazing. How do you do that? Fomr never meeting with anyone or looking at anyone sick. Just from pictures on the internet of fibers? Be real.

    Take stock Randy. You personally are ill with something, you don’t know what. It could be a combination of things. You have self-diagnosed “this disease”.

    Yeh,like they self diagnosed AIDS..Common now..what a nieve thing to say.

    I have been to every doctor and had every test and it is not a combination of things. I have medical records to prove that. Would you like to meet me and review them? You talk big but are small when it comes to facing and seeing for yourself what we are talking about.

    The problem is that “this disease” seems increasingly to be based purely on the publicity of the MRF, a magnified version of what Mary invented for Andrew Leitao, several years ago. Andrew, as you remember, had NOTHING LIKE what you have. He had eczema, and a scuffed heel.

    BS. This disease and the Morgellons foundation rose from the need of people with similar symptoms and no help from the medical communiity to search the internet for any answer they can find and they found eachother. Know your facts. MDF happened AFTER not BEFORE. The MDF is not even ten years old and I and
    others have had this for 14 years. The press about it is new but we were alone for amny years suffering with this not knowing what we had.

    I have the same fibers on Mary’s site that Andrew has. Understand that simple point too. The fibers are what this disease is all about. I do not care what you say..until you have seenthem in our skin, mucous, feces, teeth that fall out, finger nail clippings etc..you have no right to talk about what you do not know about. You have not got a real clue. Sorry to say that but I speak the truth here.

    My Sarcoid, diagnosed by a lymp node biopsy, which showed non caseating granuloms..which can be found in many immune supressed diseases as can cell wall deficient bacterias etc etc…gave me a sarcoid diagnosis BUT I do not have pulmonary involvement and have normal ACE and D levels telling me that I really do not have Sarcoidosis but something causing non caseating granuloms. Most likely an autoimmune disease of unknown origin.

    So understand that too.

    OK?

    Randy 434-974-7128

  30. Randy please take your “Dis -ease” dialogue away, we want to help each other. We don;t want to talk about MARY LEITAO, OKAY??

  31. And hear this people – NATIONAL INSTRUMENTS IN TEXAS IS NOT A SMALL COMPUTER SOFTWARE COMPANY – THEY ARE WORLDWIDE AND I HAAVE MY SUSPICION – I COULD BE TOTALLY OFF THE MARK – BUT I WANT TO SHARE THAT WITH YOU BECAUSE I WANT THIS INSANITY TO STOP OKAY?

  32. I will share this though…thru my research…okalahoma state has been given millions already to study this disease,,,,if you do not believe that then check the vet.school…..i’m sick of all the lies. every damn single one of them., I will be back later to post my stupid lil diaryblog….don’t worry, it’s not that bad.

    This is a lie. London and Sarah are queens of disinformation. They are not on our side. (Sufferers.) I will not say anthre word or stoop to their level. Cilla, London, Tam..all disinformations specialists. The truth always shows itself. I do not need to say anything more. We have a goal..a diagnosis, a treatment, a cure. That isall. Anything else is a waste of time.

  33. Can someone over there do me a favour and phone that company and ask them about this disease. Do they have any employees with this disease. They are in Texas and they are a big firm – don’t you think it is worth looking at???

  34. A post by London on Biology-Online.

    The United States Department of Agriculture has approved field release of GM pink bollworm this summer, which are made with a mobile genetic element that can jump many species. This is tantamount to giving wings to the most aggressive genome invaders. Dr. Mae-Wan Ho exposes evidence of instability in these GM insects, and warns of rampant horizontal gene transfer and recombination, should such GM insects become released.

    did I not say two nights ago when addressing Canalon and sky that I think the parasites can jump species???

    yeah, I’m really crazy. Maybe I should just publically announce my diaryblog…

    I think the horizontal tranfer is where the scientist do not understand is so risky/ dangerous
    **********************************

    TamTam, you asked

    Since when do commensal resembling micro organisms replicate a series multi cellular organisms?

    I think you are referring to the genetically modified microorganisms to other organisms. … The fungal kingdom is composed of a diverse group of different uni- or multi-cellular …i.e., from one to the other (multi) right.?

    as in the sponges or coral reefs, the mats….? yeah?

  35. Randy – I am an innocent person caught in this insanity, and someone and something has done it to us. My life changed when I met the person I now live with. My symptoms started when I met him at 19. I didn’t see him for about four years or speak and then bang he is back in my life and destroys my life, but he doesn;t understand why because he has always loved me since the day he met me. We both love each other dearly, but we can become enemies under the one roof and we do not understand why. Now someone has hurt us both. We are both well grounded human beings and the company National Instruments f’d us both over. We both moved on from that and tried to get a life, but something stopped us and that is this stupid disease. So folks take your pens and paper and figure out what the hell is going on please!

  36. And with a name like Randy Yaskel – you are certainly another person I would definitely not TRUST. I think you idiots have just exposed your little EXPERIMENT, so people pull the pin on these IDIOTS PLEASE!!!!

  37. The problem with shake-outs in the leadership of any group is that chaos nearly always ensues in the rank and file.

    Wow.

  38. What do you mean about that Jeezelouise? I am just telling it the way I see it from Australia okay. Or maybe I am just paranoid again I don’t know. I just know that I am not CRAZY

  39. Where do I stand in the rank of File?

  40. Exclusive and consistent video footage of a novel thought human pathogen at:

    Check: http://www.silentsuperbug.com

  41. And with a name like Randy Yaskel – you are certainly another person I would definitely not TRUST.

    What the hell does this mean..are you an anti-semite?

  42. Bell – I have looked at those – I don;t want to look again. I don;t want to be drawn into insanity. You will not drive me crazy. People please put your brains together and figure this out for me please.

  43. Exclusive and consistent video footage of a novel thought human pathogen at:

    Check: http://www.silentsuperbug.com

    Ask any REAL scientist their opinon of these videos and you will find out what I have found out that Tams videos are ficticious and have no real meaning. But DO NOT take my word..ask a scientist. Then report back here. I have asked over 40…and they all tell me the same thing.

  44. I don;t want to do that shit Randy. Go away with that talk please.

  45. You lot can figure this out please I have done my bit – I do not want to get any sicker. So yes GO BLOW!!!

  46. What do I do call the police for protection – am i safe – or is this just a bloody joke – can we stop this please.

  47. I phoned legal aid yesterday and told them about this situation and my situation. I tried to ring the number she gave me, but my partner has changed the phone so I can not ring certain numbers. One starts to feel a bit lonely!! But we do have financial strain, so we are trying to way things up.

    I feel as though we are sometimes the ones being framed for something. We are both feeling the strain, why would he want to hurt me personally I have not done anything wrong to him and vice versus.

  48. Can someone give a clue on what is going on please?

  49. As we are all probably aware of, some patients, seeking some form of help in understanding what has happened to them, branched off into forming their own message boards. Some were former NUSPA members, some, former members of MRF/Lymebusters. Many remained on Lymebusters, after signing onto the belief in “morgellons disease”, and that they have it, even while disagreeing with the name of the disease they chose as their own. And, to each his own, as it continues moving forward. Such people are compelled by a gripping fear, into looking into things they have no conceptual understanding of, yet they think they do, and that all the rest of us need enlightened. If we were to all play along, pretending to be nervous wrecks to appease them, is that helping them any? Trying to guide them into the right course of action has an adverse effect. The majority seems to want left alone. We’re not going to their forums and bothering them. Hopefully, some that are wishing to bring clarity into their lives can come to a point, one day, that they tire of it and decide to re-assess things. I know it can’t happen for a lot of people, and that they spiral downward.

    My initial opinion of Tam-Tam was that he liked playing games. My initial opinion of Cliff was that he liked playing games. It looks like a lot of people are into playing games, games that are based on lies, fear, and misconceptions, pretending that they understand them. Too many look up to such people. I don’t think that they are playing games, at all, though. I think it might even be sheer misery for them. Cliff recently posted about relying on prescription and illicit drugs to try getting energy to fight the “disease”:

    http://www.rense.com/general72/crug.htm

    Greema posted scabs from excoriations, illustrating what “The Callus” is:

    http://www.rense.com/general72/callus.htm
    Tam-Tam’s SuperSilentBug video is outrageous beyond words.

    The less grounded in reality, the more attractive for some. I find it real hard to tell if it’s misery, or whether it’s a form of pleasure-seeking activity, but I fail seeing how any of us are infringing on their rights to do what they want. They seem pretty free to me.

  50. If anyone honestly wants to know the truth about this disease call me on my personal line..434-974-7128. Anyone who wants to meet a real person that has this..you have to come see me in Virginia. Anyone else can e-mail me on my personal e-mail cisfl2004@netzero.com

    Sarah sounds a bit weak and paranoid and on the verge of a nervous breakdown so I will not address her or her rediculous comments but she does not seem mentally well.

    London I know is Manic and I am not saying anything that anyone does not know plus she is paranoid too..so I will not address her either..she is very bad for our cause becomes we have to prove our sanity. That is why I think she is a phoney some times..just trying to make us look bad..but who knows..I do not.

    I have not a clue what Tams story really is..but his video is bogus. And I am waiting to hear the real story about the Morgellons money loss.

    The only thing I do know is that there is a disease of unknown origin and it is spreading like wildfire around our world. That is the truth no matter how much it scares you. Think how we, that have it feel. We are only trying to prevent the spread to your children and love ones and try to find the cure for
    ourselves.

    You do what you must..time will tell..and those that have not helped but have hindered..they will, if they are good people..apologize to all of us that you have hurt.

    Goodby for now..I have said what needed to be said.

    Randy

    I am a good example…I do not drink, do drugs, smoke. I won a company, work two toerh jobs and have a raelther high IQ and have tests that show I have no mental problems. That is why I put myself out front where this disease is concerned. I am best equipped to talk about it because I have had it the longest..other than a few othres and I speak the truth and will call you on a lie.

    So call me if you want to know the truth and do what you will. But if you want ot be on the side of good..help do not hinder our research..it will one day effect you. And I am not trying to scare you..I am trying to warn you in advance. This is the truth.

    Randy

  51. Scuze the typos..I also am dyslexic.

  52. OK, I’ve tried to remian level headed and fair to all as I commended Michael for doing so last night….but the line has fucking been crossed. Let’s break it down here so ya’ll who seem to have mental issueS with information processing are VERY clear about what I’m saying,
    1. You fuck with Dr. Randy Wymore…You are fucking with ME…so bring it on bitch! How the fuck dare you dis this man who has given so much of himself to the science of studying this disease process? Only to get to the truth, not for money, fame, fortune but TRUE HUMAN COMPASSION! What part of that do you NOT understand! He has ruled NOTHING out. Nor has he ever said the “fibers” were the “cause” of the disease process! Folks, go back and read your damn literature, A by-product? Possibly. NOTHING is conclusive at this point,
    2, Mary Leitao IS FUCKING SICK, I heard it from her own sick, venomous mouth! Where’d her beautiful flowing auburn hair go? She used to be overweight folks. I could blow her over and she’s nearly 6 feet tall. She’s sick and I would bet my damn life on it!
    3. I have only ONE diagnosis. ONE !!! And that is through 3 different physicians. The disorder currently known as Morgellons. I have NEVER had health problems until the onset of this disease! Yes, I was on the Primtetime filming and the CNN filming and fibers were removed from UNBROKEN SKIN…INCHES FORM ANY LESION OR OPEN SORE. I even had a hard time believing it but it was there for the world to see on the damn dermatoscope screens and my “fibers” are under analysis at this moment.
    4. TC and Smiley…..you KNOW who I am. Don’t fuck with me! Got it! Don’t even fuck with me! I’ll bring your world crashing down around you and if you think I can’t you are sadly underestimating EXACTLY who and what I am.
    5. TC and Smiley….DID YOU FOR ONCE, JUST ONCE EVER STOP TO THINK YOU NEVER HAD MORGELLONS…OH YES, YOU DID THINK OF THAT! BUT THAT DOESN’T MEAN THERE AREN’T THOUSANDS IF NOT TENS OR HUNDREDS OF THOUSANDS THAT DO????!!!!! That’s what I don’t get about you two. You get cured from drugs and DOP and I HAve congratulated you on that and I MEAN IT! But DAMMIT this is a real disorder and I agree with Randy Yaskel….YOU PROVE I DON’T !!!! Nobody else seems to be able to…. not one physician!!! What are your doctorates in TC and Smiley….methmaking????
    6. Dr. Wymore (who is a REAL person you stupid fucking idiot! What’s with the “it’s all in the name thing?” You got a problem with Wymore and Yaskel…THAT’S CRAZY FOR YOU?!!!! That’s what they call paranoid schizophrenia…go get some fucking help!) RESIGNED his position at the MRF voluntarily as to not have the scientific work destroyed by the misdeeds of a few and I say a few because there are more than one in on the misconduct at the MRF, sick, greedy fucks at that Foundation! He will work purely through OSU/CHS and he will continue his work as he has said. He is at work today as any other day. He will be at work Monday and Tuesday and every day thereafter, along with ALL of his staff and the work will continue. Because he has resigned from a position from a politically and legally dangerous foundation shows nothing but common sense and good judgment on his part. Nothing to hide there.
    7. WOULD YOU LIKE TO HEAR FROM THE MAN HIMSELF? HE’LL BE MORE THAN GLAD TO GIVE YOU HIS OPINION ON ALL OF THIS AND I’M NOT GOING TO SAY YOU ALL WILL LIKE WHAT YOU HAVE TO SWALLOW. But I keep saying and no one is listening, but you’d better straight up listen and listen good. DO NOT FUCK WITH THIS MAN! yOU SORRY ASSES HAVE NO CLUE AS TO WHAT HE HAS DONE FOR FOLKS SUFFERING FROM THIS HIDEOUS DISEASE, NONE!!!!!! And if you’d FRIGGING LISTEN to his interviews he said he WAS a skeptic, set out to prove Morgellons didn’t exist. Well the proof as TO IT’S EXISTENCE IS OVERWHELMING !!!!! And Michael, if you’re not a doctor and my personal positioN is you are a writer and I believe I know which one,,,am I wrong?????? What doctorate do you hold to make you such a decisive expert on the disease??????
    8. You all can talk shit here all you want if it makes you feel better, you can make your snide remarks against ONE ANOTHER???? You can rip each other to shreds and I will reiterate…..TC and Smiley, becaue YOU had a different diagnosis…be fucking thankful, because I wouldn’t wish this on you as much as you “bug” the SHIT outta me. That doesn’t mean thousands of other people and many, many experts who certainly outrank a couple of backwood Okie Methheads, ARE WRONG!!!!!!!!!! THAT’S INSANITY !!! You’ve simply changed your obsession from having the disease to proving it doesn’t exist and you don’t have a shred of evidence……..well bring it on! Bring on a team of experts. I’ll submmit to ANYONE’S inspection. And I’ll put up more than a hundred on it. What’s your salary….I’ll match it for a fucking year!
    9. LAST WARNING….YOU CAN FUCK WITH EACH OTHER, YOU CAN DIS EACH OTHER’S BOARDS AND BLOGS, BUT YOU FUCK WITH DA MAN AND I WILL FUCK YOU OVER !!!

  53. What happened? Did I scare you off ’cause you all know darn well I know who you are and your histories and have all the dirt and skinny on you backed up? I asked you….bring it on! Prove me wrong. But you prove ME wrong. keepin messing with the Doc and I’ll shut this site down with the tap of the send button and if you think I can’t do it, there are plenty of others that have the info. to do it for me. I’m not a combative person unless you cross the line and Michael, you let ‘em cross it. I’ve primarily used this site as a place for amusement. I do not find this line of staggering, blubbering idiocy amusing at all.
    You asked last night…Where’d the Lymies go? Where’d the Watchers go? Surely someone has something to say. Never saw y’all shut up for this long before. Catscratch got your tongue???????

  54. Long-term infection with parasitic worms is generally associated with an immunological phenotype that is Th2-like and anti-inflammatory. This phenotype is probably an unintentional consequence of molecular characteristics of worms (as free-living worms also express polarising molecules) in combination with deliberate attempts by the parasites, via molecular secretions, to modulate the phenotype. This review is concerned with the identity of immunomodulatory worm products, the receptors that they interact with and the signal transduction pathways that they activate. It hopes to indicate how knowledge of these factors can explain the changes in gene expression that result in the characteristic worm-induced immunological phenotype.

    and here is another one Michael:

    Future technological trends and their likely effects on human society, … 2003 May 27 Tuesday. Shock Waves In Photonic Crystals Shift Light Frequency …

    and uhh….

    What’s missing is the sense of continuity between early computing history and the widget design for next week’s release. And that is what we are working on …

    I wont bother you with posting the long articles Michael. Man, for a brief minute there , you sounded just like John Kern, you know he too is a retired computer programmer.

    But when you wrote me that day you were so sweet and I really started to respect you. What happenend? Like earlier today you made another wise comment something about i must prove the science and no where in my post above your post did I say anything about a disease. Unless, of course, you are speaking of the ted nugent chriade (sp?)

    Why would you even care if you do not have anything to hide. I am not being ugly and I think you know me by now and can read me. Just curious…or don’t write back, granted, it’s been a long day on everyone, it has.

  55. Quit scratching and get a job.

  56. and I meant to say this up there…(this is the last post from me tonight, I swear)

    ABAC, I got off the computer for a couple of hours and just came back here and read your post and I have to tell you that I am laughing so hard I’m nearly in tears.

    You are a hoot! and that dog on a wooden stick used as a mop,,,HAHAHAHA that was a good one! thanks, I think you might be okay afterall.

    and this is just a question to whomever- who was it that said that the MRF is being investigated by the IRS?

    Can they prove this to us with a scan of a document or something? It sure would help us.

    Thank you-

    London

  57. Doublecreek, it is, after all, Friday evening. As for myself, I was out to dinner with my spouse. Still, having read your post, I’m not sure what response you are looking for?

    London, shouldn’t you be in bed? ;)

  58. London, it was Dr Gregory Smith, Charles Holman, Cindy Casey (all from MRF) and Cliff Mickelson who posted to LB about the accounting/IRS issues.

    As for a scanned document, I have not seen one. But the changes at MRF today tend to verify that some really-not-very-good stuff are happening at the foundation.

  59. Get a Life………Unless you know what the Hell you’re talking about and it’s obvious you don’t as I, for one, among many others, have never felt crawling, bugs, itching, nor do I scratch myself so it sounds to me like you have absolutely NO business even being on this site…..what IS your interest by the way? And YOU DESPERATELY need to get a fucking life if this is the best you can do and you have nothing ELSE to do but harass very ill individuals of whose disease you know nothing about! I personally DO have a life and worked since I was 14 years old….again..what’s your profession and salary you self righteous son of a bitch? You wanta put up that money bet? I don’t see any takers………Good work London….again.

  60. Dear Jeez:

    My message was not meant for you or anyone else personally only the particular poster who questioned Dr. Wymore’s existence, credibility or genuineness. That is ONE thing I will defend and defend to the extreme, so no offense meant to you personally. You know who you are. Don’t even think about going there. And again to Mr./ Ms. Doesn’t Have a Life….I don’t recall there EVER being a discussion about Itchy and Sratchy on this blog. Not from these quarters, If so, please do me the honor, in your great wisdom, of refreshing me.
    MICHAEL….Are you checking for double ISPs and posers? I smell a skunk and if it smells like a skunk, it usually IS one.

  61. Alright then, Doublecreek ;)

    Since we’re on speaking terms (typing terms?) I will say that I had my suspicions about Wymore’s motives early on, and posted as much here. If you care to slog through the archives, you’ll find it.

    After a bit of research into his background and credentials, I changed my mind and no longer believed he was “in it” for the money, and posted as much here. Again, if you feel like slogging, you’ll find it ;)

    Earlier today, when the MRF site was purged of all mention of Wymore, I actually had good things to say about that. Don’t bother slogging for those remarks, though, they were not posted here ;)

    Whatever I think about the direction of his research, or his qualifications to be undertaking such research, I applaud his break with the MRF.

    I do not have to agree with someone, in order to respect their ethics.

  62. I have a reporter from the Times Union in Albany that may want to do a story. Anyone from the Albany area please contact me at once.

    cisfl2004@netzero.com

    Thank you

    Randy

  63. P.S. Doublecreek, since you asked, I would in fact like to hear from Wymore. The whole “business as usual” feel at the MRF site and LB today is, frankly, a bit weird. A public statement needs to be made by someone, especially since the LB posts suggesting donations be made to OSU rather than the MRF have been deleted.

    So, yes, I’d like a statement.

  64. Well strangest thing….I just went to the morgellons.org web site and Dr. Wymore is still there; so to Greg Smith and his letter. It is 12:01 CDT Aug.5, 2006…DUH!!!!
    You people are so STUPID!!!

  65. LadyJ, please clear your cache and try again. Wymore, Smith and Holman are NOT there anymore.

    Web browsers store copies of websites you have visited on your computer so that when you go there again, they load much faster. However, often what you see is NOT the current version of that site.

    If you need help figuring out how to clear your cache/history in order to see the current MRF website, please ask here. I’d be glad to help.

  66. Wymore has received no money from the MRF as of yet. He wrote this to me in an e-mail.

    Cindy whose husband designed the site and is a nurse and has this, collected $15,000 that was suppose to be ear marked for Wymore and he never got it.

    So they all asked Mary to reveal her accounting records which are public information with a non-profit and the request was denied. All money was suppose to go to research and Wymore never got anything.

    When challenged Mary had a hissy fit and everyone jumped ship rather then go down with it since they could no longer trust the Captain.

    I she misused the money given for research and it is all true…nothing has been proven yet. She could be looking at jail time and high tax penalties from the IRS.

    With some corporations..board of directors sometimes are counted as responsible parties..so when they found out what was going on …they had to leave. They could not in good conscious stay with an organization that was collecting money for one thing and using it for another.

  67. Doublecreek, thank you for your feedback. I agree Wymore is better off away from the MRF – he can probably concentrate more on the science now. I look forward to his student’s epidemiology study.

    I also look forward to the Prime Time show, starring you. I hear there is going to be some new evidence revealed on this show – can you give us a clue?

    I’m actually very interested in your case. Fibers in lesions are one thing, but fibers that appear to come from under the skin are quite another. What’s going on here? Quite an interesting question.

    The question of if the fibers have anything to do with your illness is really a separate issue. How many people have the fibers just like you do? Do they all have the same symptoms? These are the things the epidemiologist need to look into.

    I think Wymore was a bit hasty with his “100 percent certain Morgellons is a real disease pathology”, but he generally seem to try to be a good scientist – eventually some good science may come of him.

    And Doublecreek, there’s no need to threaten people – it’s not going to help anything. This site is going to steam merrily along no matter what you do. Maybe better to engage in some civilized discourse and try to arrive at some things?

    What are the basic facts in dispute? What are the bones of contention?

  68. Randy, the only thing you said in your post that surprised me was “$15,000″. On the one hand, that’s a lot more than I thought was involved, on the other hand that’s a pretty paltry sum to risk jail-time.

  69. London, your heart is in the right place – you just need to explain a bit more about what you are thinking when you post links to articles. It’s not always clear why you posted them. You need to join the dots for people who can’t immediately make the same connections you can. Just slow down your thinking to the level of the average reader, and you’ll get your point across better.

  70. London – My partner and I took some human all wormer at lunch time, I am not taking the antibiotics and I feel GOOD. More grounded.

  71. Folk, this is not a board for discussing remedies – you don’t even know if you have the same thing. Something that might make one person feel better, might make another sick.

    Work with your doctor – first you need to find out what you have.

  72. Good to see you back, Michael ;)

  73. Wow this blog is actually getting fun again! Hi Randy, I’ve also had this ittybitty nightmare for 14 years. I’m actually proud of how well I’ve dealt with it…but then I had kids…they have this now too. What a dilemma. Oh, I’m actually GLAD you’re a Semite; at least you won’t wave around “being saved” as if it were a get-out-of-jail-free card. Maybe Mary L. is also saved. She should be in good shape then no matter what the outcome–right Smiles?

    I emailed Cindy Casey today. She assured me that Dr. Wymore is just as committed as ever. I don’t know what silly stuff is going on with the MRF, and I not ready to pass judgment on anyone without hearing the whole story. No matter what, I will always be grateful that Mary Leito took up the torch. She showed me that I am not alone. For me, that was big, really big. I always thought that the Morgies expected too much of her, perhaps because she wanted to be/do “it all” to/for everyone. That’s just unrealistic. This turn of events (if true)is unfortunate, but will probably inspire more people to take leadership roles in this fight. She was the first, but she won’t be the last. Michael, you’ll have plenty more to blog about in days to come–I’m sure of it. Ya know, I’m quite a fighter myself; combat trained even.

    Hey London, whaddya say we hook-up with skytroll and start our own Morgie Army. Since Bugs Alive–I mean Tall Cotton is so hung up on semantics (“Morgellons is not a real disease…yadda, yadda”) we might want to change the name.

    AHERAH!

  74. >>Work with your doctor – first you need to find out what you have.

    I would add to that, let your doctor know anything and everything you have been using to medicate yourself, no matter how embarassing. Suck it up, and be honest.

    For some, that might mean a period of detox – no pills, no lotions, no vet meds and maybe even no Internet. There is no shame in that, and for sure it’s only fair to give your doc a clean system to work with.

    And finally, give it time to work. Rome was not built, nor destroyed, in a day.

  75. Aherah, what’s going on with the MRF is hardly “silly stuff”.

  76. Ya know what I like about you lately Louise? I like that you are beginning to sound compassionate. While I don’t expect you to care what I think, I still appreciate that.

    ah

  77. Perhaps it’s easier to see when you are not attacking me, Aherah.

  78. Louise, right now it is all just speculation (aka “silly stuff”). I am not mitigating the enormity of what this could be, I’m just not ready to have an opinion without proof. Certainly you guys know about not believing something until you are presented with proof? Right? Maybe they have a video or something.

    ah

  79. Aherah, a 2005 form 990 would do nicely.

  80. Speaking of compassion – some people tend to equate compassion with being supportive and non-threatening.

    It’s quite possible to be compassionate, and still disagree with someone.

    I disagree with the scientific beliefs of a lot of people, but I still have a great deal of sympathy for them.

    I even have a lot of sympathy for Mary Leitao, she’s going through a lot of pain right now (and has for years). I obviously disagree with her science, but I’m very sorry she is in the situation she is in.

  81. Michael, absolutely. “Compassion” and “condone” are entirely different matters.

    Several years ago, I sat on a jury that finally handed down a death sentence. It was deserved, by rule of law. But I still sometimes wake up during the night, feeling a great deal of sadness for the convict and everyone who loves him. Whatever he’d done, he’s still a human being in a dreadful situation, and I am haunted by the verdict.

    Still, people were killed and lives shattered and that cannot be erased, no matter how many nights I wake with a start.

    ML is in a dreadful situation, but there are consequences for everything we do.

    Compassion is not absolution. But, you are right, disapproving of someone’s actions is not the same as hating that person. Not at all.

  82. Michael, I haven’t overlooked the times you sounded mildly human. I also don’t necessarily dislike people who don’t agree with me, as long as they don’t sling mud or tell half-truths. When I first encountered this blog (I believe you pointed it out to me on Lymebusters), I read about how delusional and twisted the Morgies are. Yes, such talk offends, especially when there are times when that is all that is ever said. For me, compassion is also largely about understanding, oh yea, and treating people RESPECTFULLY too. Right now, Louise understands that some people are going to feel lost. Rather than wallow in the vision of the falling house of cards, she’s shown that she is concerned for the legitimately sick (though we disagree about the sickness) souls who might panic. Your alleged concern for Mary is interesting. If you want me to believe that you are concerned as you claim to be, then you need to be able to verbally recognize the problems that many a Morgie has faced that is unjust. You have to show us that you understand our predicament by pointing fingers where they sometimes rightfully belong at a messed-up medical system, the one that prefers diagnosis of psychosomatic in a matter of minutes rather than do the scientific work of determining if the cause is indeed a mental one. You see, you only ever talk about the errors the sick people make; you never acknowledge the issues that might lead one to making those errors. People who are being compassionately treated by their doctors don’t choose instead to bathe in bleach. They might only choose that after having been thoroughly humiliated, frustrated, and desperate. If you are compassionate, you need to acknowledge both sides of the coin.

    ah

  83. Aherah, I am very concerned for all of the patients who cannot help but be affected by the apparent collapse of the MRF. Politics and finances should not be their concern, but in this case, it is inevitable.

    I can assure you that Michael is equally concerned.

  84. From LB -

    “Is the infamous “Blogsspot MorgellonsWatch” a Pawn and Front by the Medical Establishments or somebody Powerfull???
    to scatter us all, to fragment us, to discourage us, to cause inner strife, to break us up, to discourage us to give us, to break up, to cause us to argue, to hate each other and split up, SHUT DOWN AND CLOSE ALL OF OUR WEBSIGHTS!!!”

    ———————-

    Nah, I’m pretty sure he’s an ordinary guy who doesn’t even own a black helicopter. Maybe, just maybe, Michael is on your side and you don’t even know it.

  85. Michael – I said I was going to say it for the last time, but since it’s not ‘getting through’, what will get my dander up is attacking Dr. Randy Wymore. Otherwise, have you ever overtly seen me be hostile on this site? THAT was the issue. And I apologize for losing my temper, but anyone that knows me knows that. I believe I’ve made that very clear here as well. I’ll listen to, lurk and even comment on some of the silliest fusses and fights on these blogs but when I said I’d cover that man’s back, I meant it. He is the most decent, selfless human being I have ever known and to hear b.s. pouring out of the mouths/keyboards of folks who have no idea about the man or his work is a little more than irritating. It’s irresponsible. You ask me not to threaten, although I’ll never make empty threats, I ask for those that have no knowledge or proof of certain subjects, or ANY subject for that matter to keep their paranoid ideation to themselves.
    I do not know of any upcoming “revelations”. Sorry to disappoint, but then again the filming was fractured over a series of filmings and interviews and I am certainly not privy to every “exclusive”. I will certainly be no “star” in this one and was offended by the previous insinuation on LB, that I thought I was “a star” on the CNN piece. Being seen half naked in a state of ill health by many thousands of people, I don’t personally find flattering. My part in the Primetime filming is very minimal and if it was not edited, I don’t even appear to be the same person due to the progression of my Morgellons illness.
    I will not post or speak for Dr. Wymore on any given topic EXCEPT for his efforts and credentials but do know he was intending to address this board prior to the MRF issues. I imagine his answer to this board may require some expansion of his thoughts. I will contact the Dr. tomorrow and request that he do so if you would like to “hear it from the horses mouth”, so to speak. He may take much time and consideration in his reply. He certainly recognizes the hostility that many hold for him here and the issues surrounding the dissolving of the MRF are of particular sensitivity. I don’t believe that he has any discomfort in addressing his reasoning, but he does, I believe, feel an allegience to the patient group for which he works so dilligently.
    As for “fibers” being removed from unbroken skin, that is quite common, if not the norm, then certainly the majority. Initially, even the doctor and I had difficulties with semantics in describing these objects. I personally, have never felt comfortable with the word “fiber”. I do not have fibers or what one would think of as a fiber (meaning a textile, thread or any such fibrous material) growing out of my body. What I damn well know I DO have are red, blue, brown, white and transparent tubular or hyphae looking objects that are growing subdermally under intact skin, along with MANY others and that is why the word ‘fiber’ even nearly disqualified me as being a part of the patient group. In my view, I did not have ‘fibers’. Semantics. And I think the use of the word…and the “thread disease” have been somewhat misleading. I, for one, do not pull threads or objects like you produced yourself, from my body. But I do indeed have these growths both in and under lesions and under intact skin quite a distance from any lesion or in areas where there are no lesions at all. This is NOT abnormal or unusual in this patient group and they are not any known fungal hyphae. I am hoping that ABC will cover the less sensationalistic, but more serious components of the illness, being neurodegeneration, significant joint involvement (my orthopedic specialist actually making the statement that it looked as if something had been eating the bone from the back or underside of my patellas). Yes, it feels like being eaten alive but for me, not the itchy, creepy, crawlies. But then again, I have a more systemic type disorder. There is no system of the body that I’ve seen as being immune from this. Be it lymphatic, synovial, lungs, heart, digestive, brain, etc. I will contact Dr. Wymore and ask that he speaks to this issue. I’m sure he has prepared statements for other such entities but I would imagine he may approach this board and it’s skepticism with a slightly different angle. Again, I do not know, I will not speak for the man, but I will defend him to the nth degree. I will post back to you upon a response from the very good Dr. and let you know his feelings regarding this matter. To say that some of the very wreckless and probably more importantly hurtful and thoughtless posts made here have annoyed him would be quite an understatement.
    Respectfully,
    Doublecreek

  86. >>I will contact Dr. Wymore and ask that he speaks to this issue. I’m sure he has prepared statements for other such entities but I would imagine he may approach this board and it’s skepticism with a slightly different angle.

    Doublecreek, I really don’t care where Wymore decides to make a statement. But there are a lot of very ill people who need to know what the heck is happening with the MRF, so someone needs to make a statement, like, yesterday.

    The MRF site says nothing, and LB came back up with no explanation but that there had been some “challenging” circumstances.

    (Would you like grape or cherry Kool-Aid to wash that down?)

    Someone needs to say something.

    I’m just sayin’

    regards

  87. What a nice exchange of ideas and opinions. I am very impressed.

    Honest.

    Whatever happens, this event is not a good one. We had a face and now it has mud on it. That hurts.

    I wish the best for all..I do….but if the Foundation crumbles we must take up where they left off.

    We have no choice but to do that. And we will get ribbed about this incident..but we have to pick ourselves up and go forward a get funding for research and finding doctors that will open their minds and their hearts and examine patients and have a network where they talk to one another and compare notes.

    1) Please if you are in Albany..I have a reporter wanting to talk to you. Contact me cisfl2004@netzero.com
    2) If you know a doc that wants to help have him sign up for free at http://netmedvisit.com
    3)If the Foundation crumbles I can start up my non active non profit and go for 501(3) C status. I just can not do this alone. http://thesherwoodforestgroup.com

    Let us all pull through this possible downfall and rise from these possible ashes.

    Randy

  88. JeezLouise!
    Why do you have to be so facetious about EVERY comment made? It just shows a lack of intelligence. You have nothing better to say. Nothing that makes any logical sense! That’s why I normally just let y’all alone to your own game playing. But this IS a serious matter. I HAVE contacted Dr. Wymore on this board’s behalf, as I said I would. This just happened yesterday for God’s sake and why do you all forget that this man is a full time teaching professor. He HAS a REAL job and it’s NOT Morgellons research. That is gratis work for public concern. So on top of his full time job, his work on the Morgellons program, trying to have a life just like the rest of us, which, I imagine has suffered greatly due to his absence, you can’t give the guy even 24 hours to prepare a response to the public? Who’s the sick one here? I’m saying I’ve GOT Morgellons and I’VE got more common sense than that!
    And Randy, I was hoping you were being facetious because I STILL don’t see anything NICE about this! I’ve never seen such a bunch of smart asses!
    Now I have done as I said I would do. I don’t b.s. I don’t play games and I don’t like snide game playing. Why are you quoting me Jeez…my post is right above you, do you think these people can’t even READ for God’s sake?
    YES, Doc probably WILL consider an address to this group much more carefully. Look at how you behave! Examine the demands you are placing on a person that despite what you may think is suffering from trauma from this event himself. HE didn’t cause it, he’s reacting and protecting himself from the descpicable actions of others.
    Ya know, when I come here as I say, it’s usually for amusement because this group only strengthens the patients in the ridiculous behavior that abounds. So I find it a stress reliever, a break from the day, to see what idiotic assumption has been made lately. But lady, you are just too much! ASK LB why they have no explanations. I’m no fan of theirs either. Why are you blaming Dr. Randy Wymore for Lymebusters and the Morgellons Research Foundation’s lack of responsibility to their patient group???? HE”S DOING HIS JOB!!!!! He was VOLUNTARY Director of Research. He was not a voting Board Member, he didn’t have much direct contact. He assisted and provided SCIENTIFIC information which was up to the FOUNDATION to disseminate. The man is a SCIENTIST not a damn spinmaster!
    Do you think you can get a more direct answer……ask LB……ask Mary, I never claimed to have any relationships with either of those entities, or respect, so YOU ask them Louise, and Randy Wymore really doesn’t owe you all here, who have done nothing but try and make a mockery of the man, who could spin circles around all of you intellectually, morally and ethically, a damn thing! Is he thinking about the patients at this very moment you’d damn well better believe it! He NEVER stops thinking about the patients. But WHY ON EARTH does he need to explain a damn thing to Ms. jeezlouise?
    Did you ever stop for one unselfish moment to think that these people who have invested years of their lives to supporting that foundation aren’t doing a little hurting of their own? That they’ve been as shocked and surprised by Her Highnesses actions as much as anyone?
    Another reoccuring theme I have with you folks……..where is your compassion…certainly you must have SOME….SOMEWHERE? Don’t you have careers, families, loved ones, things that you have vested your lives into that if in one fell swoop it were taken from you, you wouldn’t need to stop and grieve a little bit? Consider a bit how your words might affect those that are ALSO hurting? WTF is WRONG with you? These folks are working as quickly as they can to right wrongs that THEY did not create.
    You contact LB or MRF JEEZ or MICHAEL, you never seem to be on together and since you’re so damn chummy
    >>Maybe, just maybe HE (oh Mr. Kerns is a HE) might be on your side. Wash that down with your fucking kook-aid, I don’t drink sugar, I’m really sweet enough as I am. I think your flavor might be more like lemonaid…kinda makes you pucker and wish you hadn’t have swallowed it in the first place because NONE of your nonsense is palatable.
    Again, I have done as I said I would do. I have asked Dr. Wymore if he would like to comment on this site. This site in PARTICULAR. As for the MRF and LB, you’re barking up the wrong tree lady. Every person connected with the MRF that had ethics has done the most righteous thing they could do given the situation, RESIGN. You want to take on the she-devil Mary Leitao…go for it Jeez…ask her yourself. You want an explanation for Lymebuster’s abandonment of the patients….ask em Jeez, I wouldn’t piss on a one of them if they were on fire.
    Now given that these folks are locked off of these sites, just HOW do you propose within 24 hours that they ‘announce to the world’ their personal situations and by what rights do you here think you are OWED an explanation by people you have only criticized? The whole concept is an oxymoron! You’re asking for explanations for the behaviors of two entities, LB and the MRF that neither Dr. Wymore or the several other wonderful medical professionals were driven from, due to a single or several persons irresponsible actions, from the very victims of the instigators of the potentially unethical behavior…you want THEM to explain???? I’d say you’d better think about this a while lady while you drink yourself a gallon of kool-aid.

  89. And Randy……don’t email me again. I’ve blocked your address.
    Thank you,
    DC

  90. And Jeez, Louise….just what are these really ill people sick with? I thought this was all about bashing LB and saying everybody eat healthy, be happy, take psychos and all this bad illness will simply evaporate?
    You’ve insisted for months…there IS no illness, so why are you suddenly so concerned? Who knows? You keep tellin em to get off the computers, go see their doctors, (psychs) or in some cases drug clinics….so in essence this, according to YOUR theory should help cure these poor confused souls should it not? You’d better add a slug of Vodka to that kool-aid! Get real, make up your mind…you can’t have it both ways…very ill people, imagine that!

  91. I call Wymore Wacky Wymore because I think he’s wacky. He’s looking for a pathogen that doesn’t exist, for a disease that doesn’t exist, and he is, or was working with the MRF, which are also Wacky. Now I havn’t called any of you crazy in a few days, but if I want to voice my opinion about someone not asociated with this blog, I will, and quite franky, I don’t give a flying fuck how many Morgies it pisses off. How about those apples, Ms. Double Creek.

  92. P.S.I hope that Lymebusters never reopens, and I hope the MRF follows suit.That would be the best thing for this non-entity called Morgellons.

  93. You’ll be eating some rotten apples soon Mr. tall cotton, I promise you that. The jig is up on you man and the shit is nearing the fan!

  94. Randy Yaskel:

    Please, please accept my deepest apologies. I was incorrect in my assumptions I jumped to about you and I am the first to admit it. I was wrong and I am deeply regretful. I DO want to work with you. I’ll tell you the truth. You had such a “take control” attitude that it reminded me of Her Highness Leitao so much, I panicked. I flat panicked. I am publicly apologizing and I will privately apologize. I spoke to Chas a moment ago and a few other trusted friends and they assured me I was almost understandably (because they commended you for your take charge attitude) frightened. Nothing puts the fear of the devil in me more than Mary Leitao and simply because of your urgency and firmness in your belief, it felt like my initial contact with Mary, which was positive but extremey assertive and quickly turned to venemous spewing of things I shall not discuss on a public forum especially this forum. If you can please forgive me, I will email you in a moment and explain. We MUST pull together, we MUST and Chas has assured me, and I trust him wholeheartedly that this IS the right thing to do. I only want to be ON the right side of RIGHT. Forgive me my fear. These are stressful times and I am not trying to make excuses, I am asking for your forgiveness, I misjudged your intentions and for that I am terribly sorry.
    DC

  95. Doublecreek said:

    What I damn well know I DO have are red, blue, brown, white and transparent tubular or hyphae looking objects that are growing subdermally under intact skin, along with MANY others and that is why the word ‘fiber’ even nearly disqualified me as being a part of the patient group. In my view, I did not have ‘fibers’. Semantics.

    I’ve probably said this before, but I don’t pretend to have any idea as to what illnesses you have or do not have. You sound very physically sick, and that’s a reality.

    But, it’s the fibers, stupid. Sorry, but that’s really the crux of the matter. If you just had some auto-immune/wasting disease, then that would just be another of medicine’s long line of currently unexplained cases. But you have fibers under your skin, in a manner new to science.

    The word “fibers” covers what you describe quite well. I know there are associations with clothing fibers, and the ludicrous “strings” and “threads” of some TV reports. But nerve fibers, blood fibers, muscle fibers, collagen fibers, hyphae and even tiny veins are all still “fibers”.

    Fibromyalgia and CFS were difficult diseases to establish, as they had no biomarkers, no lab tests that could be done. Morgellons seems like it should be a lot easier, since you have fibers. The fact that it is so hard to find a doctor who can see the connection with the fibers is an indication to me that there is some suspicion as to their involvement in “this disease”.

    Sure, there are some bad doctors out there. Lots of quacks too. And the insurance system in the US is not good for poor patients. But are they ALL bad? I think a significant portion of doctors are good people, who want to help. Most Morgellons believers go to a LOT of doctors, 10-20 or more. Are they that unlucky that they never find a good doctor. Can Brandi Koch, who has millions of dollars, and an entire infected family, not find a doctor who will investigate?

  96. Tallcotton, unfortunate Lymebusters is back, a place where people can have their delusions reinforced:

    A Lymebuster says:

    What appears superficially in a facial pore (meaning) from only looking at the skin in the mirror it appears the pores are plugged with some type of white larvae in each and every pore, when actually is a very long “thread” or a white looking cord, almost as fine as a hair, but a bit thicker, and actually is rotted deep into the tissue.

    I literally dug around it with a needle, “which I’m going to need to have a specialist cut and close the hole I’ve made now…but…nonetheless, I needed to really see what IS going on, because I really kept thinking I had some kind of “protozoa” larvae in my pores because they have an appendage that seemed to hold them in, like a hook at the end that’s deep in the pore, but now I believe that is the root, that will keep growing deeper and deeper, till it’s really anchored so deeply into the tissue.
    [...]
    This one “white cord” that I followed about 1/2 inch into my skin kept going deeper, I don’t know to where, I’m sure alot deeper than I can get to, so I applied salicylic acid into the “hole” I made and was then able to pick out more of this long long white cord looking fungi. The salicylic literally loosened it as it burned it.

    Someone has blackheads, pores with excessive sebum in them, which people used to call “flesh worms”. She digs a half inch deep hole in her face with a needle, and pours exfoliating acid in the hole.

    And nobody thinks there is anything wrong with this.

  97. Oh my, Dblcrk, I have looked, but I can’t find what happened that made you spin out and stripped your gears, defending Dr. Randy Wymore, like you’ve claimed. Could you have just seen the name “Randy”, when Randy Yaskal entered into participating here yesterday, and you’d thought that since the doctor’s name is mentioned in this topic’s title that someone was saying something bad about Dr. Randy Wymore? Please copy & paste where you are referring to a person attacking him, here, yesterday, that caused this to happen to you.

    Also, I’d missed this, until today…

    Randy Yaskal Says:
    August 4th, 2006 at 3:56 pm

    I will share this though…thru my research…okalahoma state has been given millions already to study this disease,,,,if you do not believe that then check the vet.school…..i’m sick of all the lies.

    Randy Yaskal Says:
    August 4th, 2006 at 10:39 pm

    Wymore has received no money from the MRF as of yet. He wrote this to me in an e-mail.

    Cindy whose husband designed the site and is a nurse and has this, collected $15,000 that was suppose to be ear marked for Wymore and he never got it.

    So they all asked Mary to reveal her accounting records which are public information with a non-profit and the request was denied. All money was suppose to go to research and Wymore never got anything.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    If there are millions of research dollars, OSU’s Dr. Wymore hardly need $15,000

  98. All the nurses are gone from morgellons.org. I guess Cindy took them.

  99. Doublecreek said…

    “You’ll be eating some rotten apples soon Mr. tall cotton, I promise you that. The jig is up on you man and the shit is nearing the fan!”

    Doublecreek, you seem to bounce back and forth from threat to apology.You would save yourself some time and embarassment if you would think before you open your mouth.

    I’m 57 years old. My God, do you think for one second that I give a shit about your threats. Now, get a grip on yourself for a change.

  100. Dblcrk, I saw that you’d told JeezeLouise, you’d meant nothing personal with your spin-out. The things that you, and others like you, say, are about the same to me anymore, anyway, as saying, “Hi there, how are you doing today? Nice weather we’re having.” For anyone who might stumble across your misinterpretation of our true-life accounts in our blog:

    SIMPLIFIED…

    Neither of us had “morgellons disease”, and we’re both clear on our stand on matters concerning it.

    Smileykins: heat exhaustion + high fever + kidney stones = weird occurrences, like many morgies have

    Tall Cotton: meth = weird occurrences, like many morgies have

    Neither one of us received a diagnosis. It wasn’t necessary

    When I got healthy: it stopped (illness induced)

    When TC kicked meth: it stopped (drug induced)

    That equals: we’d both had delusions of parasitosis

    Neither of us had a pre-existing problem causing it, so we got over it easily. I would normally think that anyone would want over it, regardless of the cause.

    I’ve never used meth, TC is a recovered former user, neither of us has schizophrenia, or anything to do with drugs, in any way, shape, or form.

  101. Randy Yaskel is tired of the lies. That’s funny. I’m tired of the Morgellons lie. Absolutely NOTHING has been accomplished by the Morgellons Research Foundation, or any of the people supporting Morgellons Disease. Nothing has been accomplished by the many citizen scientists, like those that post on the believers forums. In fact, there’s nothing to accomplish, except laying the Morgellons myth to rest permanently. Morgellons Disease is a lie!! I know what I’m talking about.

  102. I’ve stated on here before why I find this issue is so disturbing. I see no solution.

  103. A little warm in here, don’t ya think? Just a note that the “Register” button on the MRF site is supposed to be going to a secure link (https). It doesn’t.

    Any webmaster would want to know this, and I wrote to tell him. Not only did I receive no response, the link still isn’t secure.

    There have also been other things there that didn’t sit quite right, although it may all be unconnected and innocent.

  104. And I wrote a month ago.

  105. Glowie Huntress,

    You showed up just at the right time. I’ve already used up my quota of words that anger Morgies, for today.

  106. Doublecreek, that was quite a rant. I hope you feel better today.

    Michael, also at MRF, the link to “Foundation News” is gone.

  107. Only gone from the front page – I think they forget it was on all the other pages as well.

  108. TC & Smiley – Part of what I find so amusing about your attempts at condescending speeches is you never get your facts straight and I don’t consider myself to be part of a group of “others”. That is pure bigotry! I did not spin-out (is that a Meth term? Since I’m not a user and I’ve never heard the term, I was just curious) on Jeez, she came in the middle of the topic and misunderstood at whom the statement was directed. My conversation with Randy Y. was a private email to which I was apologizing for something that was not even discussed on this board, I felt it would be courteous to apologize both publicly and privately, not knowing whether she was on board here or at her personal email. I, unlike “others” around here am not afraid to admit when I’ve erred. I’m human. You speak of Morgellons patients as if we are another race or species. We are ALL human beings, you and I. sharing the same space, the same planet and I do not understand why respect is so hard to find around here. Typically when respect is lacking it shows a history of lack of self-respect.
    Let’s go back and clarify. London mentioned monies being given to OSU VeT, not Randy Yaskel. Randy mentioned Cindy’s legitimate loss of monies to the MRF. You all seem to always blame everything on a “spin out” and you’re not even reading your own damn blog.
    No, I don’t like either one of you. I am entitled to MY opinion. But I’m still sitting with discs of hatemail from sweet smiley and years of archives of TCs rantings. Hatemail received uninvited as an assault on my home computer. I’ve even got some sweet pics of you folks. And I will REITERATE because you came out of YOUR tailspins and did not have Morgellons…more power to you ….God Bless You…but we ALL didn’t do Meth or have Kidney problems or any other kind of health problem. Just because you don’t have AIDS or SARS does not mean it doesn’t exist. Do you not see how ridiculous your argument is???? And because a disease is not yet fully understood it can’t possibly exist because a very small….and I mean VERY small handfull of you yokels recovered from abusing your bodies and didn’t have a new and emerging disease? Look back at AIDS and put yourself there and then add a few years of research and if you’d of blogged and dissed sick patients about it, would you not be horrified with yourselves?
    And the remark about Dr. Wymore came on post 26 by abac68 (which by the way is a component made by NASA for space warfare if you wanna get into name delusions) and Smiley? Did you not backpedal and apologize in post #24? Is apologizing a sin on this site….I thought you and Rick were Christians now. Well you are the most unbecoming Christians I have EVER seen and would make me ashamed to say I WAS one if this is an example of Christian behaviour. I am not in a “tail spin”, I don’t appreciate labels and judgments and if I remember my biblical teachings correctly that is left for one and one alone and unless Rick’s cowboy saviors have turned him into Christ himself I’d say you are WAAAAY outa line passing judgements on individuals, much less lumping them into groups of “them” and “those” and “others”. Christians? Nope. That is not Christian behavior. You might as well be using the “N” word, but you replace your hate and venom with the “M” word. Saved? by delusions in photographs! And ‘ya know what else I just realized. I think we’re related. Lotsa Groves in Shawnee. My greatgrandpa was the schoolmaster in your town and started the Grove school. He had 15 children. My parents were born there. Are you dissin’ your own kin? That kinda makes me feel a little ill. But addiction DID run in the family, fortunately it bypassed me.
    I said many times on this board…fuck with ME all you want but Doc Wymore…Rick…you have the heuvos to call a double PhD researcher wacky? What’s your education and professional background after you got outa cookin’. You think YOU compare in any way in intellect or as a humanist to Randy Wymore? THAT is more than wacky that leads me to believe you need to go back into the hospital there in Shawnee for a little more treatment.
    Now Mary, what part of this do YOU not understand? Do you want your hatemail posted all over every blog on the web? Do you want people to see what a truly obsessive bitch you CAN be and threatening? You threatened me in my HOME. I’m in no tailspin dear, I told you I’d take you on head to head on any IQ, psychological, neurological, whatever test known to man and come out on top. I’ve asked you all…put up or shut up….YOU prove I DON’T have Morgellons. We find a physician of mutual agreement, I’ll even pay the bill and it must be a doctor that can afford minimally at least a small scope and I haven’t found one yet that hasn’t seen the “so called” fibers UNDER my skin. I don’t itch, scratch or pick. I was in the prime of my life, neither a druggie, in ill health, nor had I ever been. And remember Mary, we talked about growing our own food and I told you that besides being a highpowered businesswoman I owned an organic vegetable and fruit farm and sweated out there ’til midnight with my crops at times. Mainly contributing them to homeless and women’s shelters and folks in need? Is it coming back to you now???? My entire medical history was 4 pages long. I loved my life and was very involved in my church and community and (this IS a commonality BTW Michael, since you seem to be the only one with a lick of sense around here) I was extremely successful, robustly healthy and happy with my life. I’d never even HEARD of Morgellons when my physician found irregularities in my skin and neurological insufficiencies which thank God I have overcome. But by every criteria and description available (based on empirical science, not TamTam’s joke of a video) I have Morgellons Disease (no, I don’t like the name either)! And I’m not ashamed to say so and I’m not disturbed by your typical….Oh “your spinning off you poor dear, bullshit”. You two never STOPPED spinning and found the ONLY place on the internet that would HAVE you.
    Michael……..Do you have ANY idea of who these two are???? They’re so friggin crazy they’ve been ostracized from every website they’ve touched and in REALITY they are two nasty sons of bitches. At least with me, what you see is what you get. If I’m pissed, I’ll tell ya, if you’re kind, I’ll thank ya, if I’m wrong, I’ll apologize, but these two are raving lunatics and I’ve got proof. What do you have on me cousin? Can’t take me up on the bet ’cause you don’t MAKE a living? What’s the deal? No takers? Prove me wrong or spare me your “spin out bullshit”. And save your druggie language for your own kind. Speedfreaks are the scourge of the earth, not patients afflicted with a newly discovered disease.
    Have I addressed all of your questions Mary? I’m an open book. Just ask away and if you think you’re even beginning to ruffle a feather, you’re dead wrong. I’m beginning to find your incomprehensible rants a highlight of my day. You’re a living joke!

  109. Doublecreek, you really do have a bee under your bonnet. “Spin out” is perfectly normal American vernacular, derived from both flying and driving, where one may spin out of control, and, when flying, enter a “tail spin”.

    You really should consider what you are saying, re-read it after a while – you come across as a self-righteous egomaniac, which I don’t imagine is your intent. I’m frankly puzzled and disappointed by your continually threatening to reveal some old emails that someone sent you when they were sick. Do you actually think this will stop people being critical of Prof. Wymore? What are you trying to do here?

    Why don’t we put the unproductive bitching aside for a while, and try to focus on what the facts are, what are the unknowns, what are the areas of dispute, and how might we move forward?

  110. You need to be imprisoned.

  111. Doublecreek,

    The letters you claim to have received from Smileykins is a bald faced lie. You are talking crazy. That never happened. Smileykins has never used meth, not once. You’ve been told that over and over, and keep lying and saying that the did. Spinout is not a drug term. It’s a term that describes your inability to control your hostilities. Now you know, as well as I do, that I was quite crazy in the past. I do not hide that fact. I’ve written some crazy shit. So what. You’re still writing crazy shit. You have nothing on me or Smileykins, except lies. I had one picture of me, long ago in my yahoo photo album. If you are not talking about that picture, then you’re lying, flat out.Your post was literally filled with lies. You could not possibly believe that nonsense. If you do, you are worse off that I thought. And believe me, I thought you were already bonkers. In fact, this is something you have proven over and over. There’s a very big difference in “having been” crazy and “still being” crazy. My old posts don’t hurt my credibility in the least. That’s past tense. You got nothing on me, so stop with your childish threats. You are guilty at this point already, of blackmail, even though you don’t have what you threaten to expose. It’s all in black and white, and it is a serious crime. Piss me off and I will file charges. I have the proof of your guilt. Don’t give me that bullshit about your neurological problems being over. My Lord, what a joke!

  112. Doblecreek said:

    Look back at AIDS and put yourself there and then add a few years of research and if you’d of blogged and dissed sick patients about it, would you not be horrified with yourselves?

    What exactly were those sick and dying men claiming that I might blog about? Did they make unusual claims regarding their disease? Did their sarcomas seem to be self inflicted? No, the early AIDS patients were sick men with real and obvious diseases, and a rather puzzling immune system response (or lack thereof).

    “Look back at AIDS” is excellent advice for anyone who want to see how a mysterious new disease might progress. One might study the timeline to try to identify where on that timeline Morgellons might be.

    Here’s an excellent resource:
    http://aidshistory.nih.gov/first_encounters/index.html

    Read the CDC memos and the oral histories before you continue to diss the doctors.

  113. Here’s an interview with the director of the CDC from 1981:

    http://archives.cbc.ca/400d.asp?id=1-70-413-2374

    Back when there were “dozens” of cases of “something”.

    What the difference here? It’s the quality of the evidence.

  114. Well i gotta admit i’m deeply disappointed. i splatter 5 ‘proverbs for paranoids’ on this forum for the deranged and dont even get one bite! not even from London! London: what about If they can get you asking the wrong questions, they don’t have to worry about answers.” didn’t even that one strike a chord! I thought that would initiate much skittish discussion of fifth columnists or the like.

    Michael: how is your objectivity going, starting to get caught up in the madness yet? Here is something for you to review. check out all the discussion boards, this one, lymebusters, fiber disease, nuspa (if you can find an archive), scabies-no seeums, elliots disease and the rest. look for similarities, every message board, including this one, got clogged with bickering, internal dissent and fairly brazen obfuscation. all resulting in an unreadable, unfathomable, unbelievable outpouring of irrelevant drivel, increasing to a cresendo before the respective boards disappear. can you isolate the human failing that have caused this to happen?

    the most logical take i have on it is that many of the contributors to the discussion have mental illnessses and issues of co-dependency. No matter what side of the fence, they need each other to sustain each other. sort of like coca cola does; morgellons ‘adds life’ – where there isnt any! this applies even to you Michael, after all, whats happening in your life that allows you devote several hours each day reading and responding to speculative nonsense from a group of maybe a dozen people.

    I still hold with the theory there is an odd medical phenomenon emerging in the eaves, but any progress is not going to come from we lay persons efforts via the internet.

    I hate to be the bearer of cruel realism, but DoP is not the inevitable diagnois for this condition, I have seen at least a dozen doctors and each has given me a different and plausible explanation for my symptoms, none have given me a DoP diagnosis. People who evolve a theory, incompatible with the available evidence and then have the audacity to argue its case despite accepted medical explanations offer little recourse to a treating physician then to diagnose a fixed delusion. the more rational course is to follow through on each diagnosis, thus discounting each inaccurate one and, by a process of elimination, isolate the true cause. Patience and reason, are our only recourse.

    Presumably the CDC will continue on with its task force to investigate Morgellons. Irrespective of the financial accountablity of MRF or some of its executive, this should not influence that investigation.

    One would think that the CDC will be required to report the findings of the task force and on the basis of those findings there should be some foundation on which to build the investigation. So far there has been no published scientific investigation whatsoever. As I believe that this condition is real I am confident that the CDC will note enough anomalies to provide some validation. One would hope also that OSU would continue to investigate and eventually publish the results of its researches.

    As this information comes to light it should allow a legitimate group to coalesce and be able to provide genuine support.

    “For those who understand no explanation is needed, …For those who don’t none will do”. – Jerry Lewis

  115. My objectivity is fine from my point of view :)

    The difference between MorgellonsWatch and those boards you mentioned is that this is not a discussion board. It’s my blog, where I post articles. People also discuss those articles, and some use the comments page as a forum for debating other things. But really it’s all about the articles.

    I try not to get drawn into the bickering, and keep a neutral tone in my top posts. I think MorgellonsWatch will survive for a while.

    I think the CDC will find that there is no evidence of a new disease. I think also questions will be asked as to how the CDC got sucked into this in the first place. I imagine there will be a report at some stage on how to handle such things in the future. It might be a defining point in the history of internet driven disease advocacy.

  116. It’s not up to the patient to decide which diagnoses are valid. That’s what second opinions are for. According to the MRF, Ninety-five percent of the people who believe they have morgellons have been diagnosed with DOP. Did these people get a second opinion, besides their own? Yes, they did. They were reportedly diagnosed with DOP ten to forty times. People complain about their DOP diagnoses, stating that they are wrong. But the truth of the matter is that very few of these people even know what Delusional Parasitosis is. One of the three catagories of DOP is for people who have very real physical medical problems, but are delusional in their thinking. A doctor doesn’t have to touch these people or run tests of any kind to determine that the person has lost touch with reality. He could do it over the phone. We’ll see, hopefully, when the CDC concludes their investigation, as to who is delusional. I have no doubts, whatsoever, what that investigation will yield. The problem with this scenario is that it seems doubtful that the Morgies will accept their determination. They’re so distrustful of agencies such a the CDC. Wymore isn’t going to prove this to be a disease either. He’s wasting his time and the Universities money. The reason for that is because there is no Morgellons Disease.

  117. Just FYI- Wymore does not use the university’s money. He uses money from his start-up pkg for this research. Also any allegations that grant money given to the vet college is going for ANYthing involved at the center for health sciences is completely ridiculous. The two entities aren’t even in the same city. OSU-CHS is for HUMAN disease, not animal. I don’t even know where people get these ideas.

  118. And, how can the sufferings, then, ever be stopped? Not only for the victims’ illness(es), but the sufferings of those whom they’re responsible for taking care of?

  119. Well, that’s still the university’s money – just money that he has discretion over. Of course he’s free to spend it however he sees fit, and I’m all for an amount of unrestricted research.

  120. Well, Thank you Michael! I got a lil frather down than when you wrote to me….actually, to the post where Aherah mentions something about hooking up with Skytroll, and I wanted to write really fast before I get off line.

    Guess I will have to catch up on all of the rest of the lovely post tomorrow.

    I just wanted to say to Aherah: Hi to you too. I have been hooked up with Skytroll for the longest time. Talked to her on the phone for quite a while last night. She is well aware of the things I know. She also has my blogsite if you happen to be interested. It’s not that good but yet it is. Does that make since? I hope you are doing okay.

    ABAC: NOW,NOW,NOW…behave.

    And the last stupid comment I will make is I do not believe any of the fallout of the MRF until I see it in the newspaper myself.

    Or some thing of the same…..it could just be a big scam to get a bunch of people off the hooks….and…if anyone is interested, no names here….to see that Okalahoma State Grant Money, well, it’s listed all on my blog site. The only thing…it has got the documents web addresses listed but they are not hyperlinks…I did not know that until I finished and quite frankly, I can’t be bothered fixing it until Monday.

    oh, hey Hugh, Yes I saw your comment last week, could’nt be bothered at the time? How’s your website coming along? So how long have you been at Lucent and Bell Labs? I heard about that Ireland Junction…all about it…hell, I even blogged about it.
    you know, since I’m so f-ing crazy….well, I thought I’d just prove everyone right!

    Have a good one….all of you

    London

  121. Well, he’s wasting money, and this aspect of the research isn’t from his own pocket. And, as far as I’m concerned, that’s still money that came for research through OSU. I haven’t heard anything about any misappropriations, other than that of the MRF. I don’t think anybody got those ideas that you brought up. Anyway, it’s a ridiculous undertaking. Why don’t they use the money to investigate something that the CDC isn’t already investigating, like the mating habits of C. elegans

  122. Yes,Jace,you’re absolutely right, and we all know that. But, when a particular type of self-appointed authority on things is used to telling lots of variabilities to people who don’t question their authority, lots of falsities are believed as truths, by quite a few.
    .

  123. I am willing to put my money where my mouth is . I will bet $100.00 to anyone willing to take up my challenge that the CDC, if they are sincere in their research and are open about what they are doing to find out about this diseae will find that it is a new disease.So wh is willing to put their money where their mouth is. I am. Any takers? I have asked Mr Blog woner and he has declined. Not even willing to risk a mere $100.00 to put his money where his mouth is!

    Unless you have this you have no ability to sya what you think it is. If you ahve nto met any of us you or looked into a microscope you have no right.

    I challenge another thing. I will sleep in a hotel room for two days. Then I challenge any of you… I will pay for you to sleep in that same hotel bed. They can even change the sheets..I am human! Any takers? Why not! Because in your heart you do believe and you are just trying to be smart asses. Come on.,.who will take the challenge! Cowards and big mouths.

    Anyone up for the challenge? I will pay for it. Mr Blog man.. you willing to take the risk of catching this? How about a send you a smaple of a scab filled with these fibers and you get it analyzed…afraid to touch it….Why? It is not contagious according to you!

    See no takers.. all cowards with big mouths and no backbones.

    Thank the good Lord you do not have this you would not have the guts to endure it. It takes someone of high spirit and a stong foundation to put up with all of you uneduacted and heartless
    nay sayer cowards..

    Sorry just venting and showing the world the truth. All talk..no guts..no actions.

    Randy

    Randy

  124. Hiyas, Michael

    I absolutely agree that unrestricted research, in any field, is important. That’s exactly what has allowed mankind to “break the bonds of earth”.

    I just wanted to add to your comment that “unrestricted research” is not the same as “unrestricted funding”.

    Universities and legit research foundations have oversight committees. If you are not getting anywhere on your line of of research, you’re not getting any more money. Otherwise, I could have happily spent my entire life observing the formation of dust bunnies, on a grant of public funds ;)

    I have no problem with Wymore continuing his research on University funds. At least someone knows where the money is going, and if it appears that the research is going nowhere, someone will stop signing the checks.

    MRF funds weren’t poorly regulated, they were not regulated at all. And that is wrong.

  125. Randy, given the number of hateful threats made against the participants on this blog, does it not seem reasonable to you that no one is interested in taking up any challenge that requires revealing personal information?

  126. I am willing to put my money where my mouth is.

    I will bet $100.00 to anyone willing to take up my challenge that the CDC, if they are sincere in their research and are open about what they are doing to find out about this disease, will find that it is a new disease.

    So who is willing to put their money where their mouth is? I am. Any takers? I have asked Mr Blog owner and he has declined. Not even willing to risk a mere $100.00 to put his money where his mouth is!

    Unless you have this you have no right to shurt other human beings that are sick by saying they do noth ave something unless you know. That is wrong. First you have to prove they are wrong by knowing one of them. Seeing a lesion up close and personal. This I think I know because I have read things on the internet and can download pictures..is just plain ego driven and in my opinion…stupid and heartess.

    Remember the sydrome came first and the internet came second. This is one thing you seem to forget while spewing non-knowledge.
    It did not happen the other way around.

    If you have never met any of us you or looked into a microscope you have no right. Meet with one of us, see for yourself then you have a right to talk. Blogs are fine but they should have wisdom and knowledge of what it is about and you do not. Not even a little itsy bitsy clue since you have never met one of us.

    I challenge another thing. I will sleep in a hotel room for two days. Then I challenge any of you… I will pay for you to sleep in that same hotel bed. They can even change the sheets..I am human! Any takers? Why not! Because in your heart you do believe and you are just trying to be smart asses. Come on! Who will take the challenge! Cowards and big mouths. All cowards.

    Anyone up for the challenge? I will pay for it. Mr Blog man.. you willing to take the risk of catching this?

    How about a send you a sample of a scab filled with these fibers and you get it analyzed…afraid to touch it….Why? It is not contagious according to you! Cowards and big mouths.

    See no takers.. all cowards with big mouths and no backbones. Anyone?

    Thank the good Lord you nay sayers do not have this. You would not have the guts to endure it. It takes someone of high spirit and a stong foundation to put up with all of you uneducated and heartless nay sayer cowards. It is also a same that this is what humaoity is these days. Never help those in need only hinder. Remember what goes around buddy comes around. And that comes from a great power than I.

    Sorry just venting and showing the world the truth. All talk..no guts..no actions.

    Randy

    Excuse typos ..dyslexia, ya know…..Oh no..I do not have that either…oops..I am wrong again. Poor me.

  127. Ah yes, to “break the bonds of earth and touch the surly face of God”.

    Ha – Studying dust bunnies!

    http://www.sfgate.com/cgi-bin/article.cgi?file=/c/a/2005/03/23/MNGGABTGDT1.DTL

  128. Yaskel, you’re not making sensible, feasible, challenges. Stick to playing games with those you can get to play them with you.

  129. Dammit! Someone DID get funding to study dust bunnies!

  130. NO that does not not make any sense to me. I have revealed all my personal information and I have had threats made to me..daily.

    No ..makes no sense at all.

    Cowards..you can throw stones at innocent sick people while you wear masks that cover your faces.

    If you want to throw stones…reveal yourselves.

    What is this the KKK revised now used against sick people who are suffering?

    Cowards and Bully’s. Afriad to show yourselves.

    That is all you are. I call it as I see it.

    And this vision is clear.

    Cowards and Bully’s. We have met you all in HS. In fact we may even be talking to some HS students..that is how you act. Grow up and show who you are….for shame ..hiding in the shadows like government agents….he he or Cold Spring Harbor Labs employees. For Shame!

    Randy

  131. No hiding like dermatologists….that is more like it. All knowing dermatologists with a blog……the easiest medical degree to get. No after hours.And you can call everyone crazy. If you do not have a clue..you call people crazy and feel valid in doing so. Now that would be funny..derms with a blog!

    What are you afriad of? Honest. Most of us are too sick to hurt anyone. Really..Paranoid are we?

    Randy

  132. Randy, who is throwing stones?

  133. Raskal, you wouldn’t know the truth if it jumped from a bush and bit you on the ass. That’s is a fact.

  134. I am, absolutely and for certain, not a dermatologist and I have not called anyone crazy.

  135. Smiley…that was a challenge for a real man or woman not afraid of their own shadow and not hiding in it either…it was not for you. Sorry you misunderstood.

    Randy

  136. What am I afraid of? Ask Dr. Wymore. I’m sure he rues the day he became the public face of Morgellons. Not that I’m a doctor, but ask Dr. Steere.

    http://www.vaccinationnews.com/DailyNews/June2001/StalkDocSteereReLymeDis.htm

    Ask Dr. Peter Lynch
    http://www.popularmechanics.com/science/medicine/1662162.html?page=1&c=y

  137. I’m not one who’s misunderstanding anything. Mark my word.

  138. Tail: If a truth rabbit like yourself jumped out of a bush and bit me in the ass,I would get a rabbies shot. Your truth is poison.

    I have this you do not. I do not drink or do drugs or smoke..can you say you do not do thsoe things…I bet ya can’t!

    I also have been checked out by a Psych just to get that stupid DOP out of the way and I am 100% fine with a high IQ..So please…you have no idea what the truth is..gonna take a challenge or are you another coward hiding in the shadows? BUG!

  139. Whoa.

  140. No one who has ever defended a cause and fought for turth has ever had an easy time of it.

    It takes a real man or woman to put ego aside and fight for what is right.

    Some have it, some don’t. I do.

    And I do not care what anyone thinks of that statement unless they have the ability and guts to come out of hiding into the light and face me like someone who is not afriad of being revealed. AKA:Coward

    Watch me get banned for this and my posts deleted. Am I too tough on ya?

    Randy

  141. You’re supposed to be honest when you consult a doctor of psychiatry or psychology. How many people have gone to them and zipped up tight about what they are experiencing? That’s like shooting yourself in the foot. IQ levels have nothing to do with mental illness, Raskel. If you had a high IQ, how come you’re unable to use it? That doesn’t tell you something, right there, if you would even so happen to be telling the truth, this time?

  142. Who is throwing stones?? Who decided to take a serious new disease and say it does not exist after those suffering with it for years have told you time and time again that it does. Hello…those ain’t pebbles baby!

  143. Randy, to my knowledge, no one has ever been banned from this blog and the only posts ever deleted were those involved in a really ugly personal confrontation that revealed real names.

  144. Randy, I have never said Morgellons does not exist. I have said .. show me. You are asking the world to believe with no evidence.

    Asking for evidence is not throwing stones.

  145. Smiley..why do I feel I am dealig with Leslie again… Your statements made no sense. I own a business where I use my IQ every day…you have no idea how mcuh I use it. I have to dummy down here. Talking and making logical sense doe snot work on this site since everyone is guessing and no one knows except those of us that have this. So why waste the brain cells?

    And I pat myself on the back for being the most honest person I know..and any good shrink would know I was not telling the truth…and I am Jewish darling….our shrinks are our Priests..you do not lie to them when you are paying $110.00 an hour. That would be a sin. You have to be Jewish to undersatnd that concept.

  146. >>Talking and making logical sense doe snot work on this site

    One must wonder, then, why you come here.

  147. How can I show you when you will not meet with me? Even a doctor has to see it in person in order to make a judgement. But you will not reveal yourself.

    Now are you seeing what I am saying?

    Randy

  148. I come here because others do and I do not want this venom to spread. It is poison and lies and I have a duty to fight for the truth.

    I am a venom put-er out-er.

  149. I wish you realized how you’re showing what your disease is.

  150. Take your evidence to a doctor, who will then contact the CDC, which in turn will decide whether or not it is valid. The process is very simple, and does not require individuals to reveal their personal information.

    Why do you care what I think?

    Really.

  151. I have deleted posts for housekeeping reasons, duplicate posts and suchlike. I’ve also deleted a few posts that the poster them self asked me to delete. I have occasionally edited out personal information. I have also changed the names of the posters, when it was revealed that someone else did the posting, or a post was anonymous by mistake.

    I do not delete posts just because I disagree with them or find them stupid. I did once (two or three months ago) remove most of a very stupid argument that degenerated into name calling. But I probably won’t do that again unless it’s obliterating other comments.

    I don’t like to play the role of censor. So Randy, you and your posts can continue unhindered.

  152. Ok…gonna quit for a while. I have to go to my weekend job to try and gather up the savings I spent going to doctors that had no idea what I had but could see the fibers and the lesions and prescribed anti fungals, parasitics and biotics to try and see if they could help cure something that they had no idea what it was.

    I spent over $10,000.00

    Of course..someone would do that if the were the kind of person that never went to a doctor most of their lives…coming from a medical family..especially if they had been basically macrobiotic and holistic most of their lives. That makes sense.
    Ah huh. Yeah. You guys do not have a clue. Gonna spend my life savings on an idea of a disease..yeh…right.

    Randy

  153. Rascal, It’s obvious that you are very sick. How can I say that, when I havn’t ever seen you? I’ll give you a hint. I’m not referring to physical illness. You probably have that too.

    Even though, there is no such thing as Morgellons, I believe that most of the Morgies do have a variety of physical and mental illensses. Despite the fact that you don’t have Morgellons, it quite possible that you have something much worse.

    Because of the other real illnesses that the Morgies have, a well person would be aweful foolish to to sleep in a Morgies bed. I’m immune to Morgellons. I was a Morgie 3 years. I CANNOT GET THAT PHONEY DISEASE AGAIN.

    I’m forever immune to Morgellons, but I’m not necessarily immune to the diseases you Morgies really have. By the way, no one is as fearful as the typical Morgie. They are afraid of their own shadows. They think something is lurking around every corner.

    I’ve been there, like you, but I came out of it. And believe me, Raskal, once you do, you will laugh at yourself for trusting your sanity. You are in a black hole, and you are blinder than a bat.

  154. JeeezeLouise Says:
    August 4th, 2006 at 10:01 pm
    LadyJ, please clear your cache and try again. Wymore, Smith and Holman are NOT there anymore.

    Web browsers store copies of websites you have visited on your computer so that when you go there again, they load much faster. However, often what you see is NOT the current version of that site.

    If you need help figuring out how to clear your cache/history in order to see the current MRF website, please ask here. I’d be glad to help.

    DUH! I went there directly.
    What is this?????
    http://www.morgellons.org/science.html

  155. It is cleared!!!!!

    DUH! I went there directly.
    What is this?????
    http://www.morgellons.org/science.html

  156. Go back there.

    Press F5 (the key between F4 and F6 at the top of your keyboard).

    http://www.morgellons.org/science.html

    If you are a basic or clinical scientist/epidemiologist…
    …and are interested in conducting research into the etiology of Morgellons disease please contact:

    Doug Buckner, Ph.D.
    Associate Director
    Morgellons Research Foundation

    Email: dbuckner@morgellons.org

  157. Try this

    http://www.morgellons.org/rwupdate.html

    Did you send them a big check, Lady J?

  158. Tallcotton- this is the talk of misappropriations that I was referencing

    London Says:
    August 4th, 2006 at 3:32 pm

    I will share this though…thru my research…okalahoma state has been given millions already to study this disease,,,,if you do not believe that then check the vet.school…..i’m sick of all the lies. every damn single one of them., I will be back later to post my stupid lil diaryblog….don’t worry, it’s not that bad.

    And Smileykins, who are you talking about in this statement?

    Yes,Jace,you’re absolutely right, and we all know that. But, when a particular type of self-appointed authority on things is used to telling lots of variabilities to people who don’t question their authority, lots of falsities are believed as truths, by quite a few.

    I’m sorry, but I’m just not sure who you are referencing.

  159. LadyJ, you are looking at an old version of the MRF website. Do this -

    On your web browser, up at the top, click on Tools.

    Then click on Internet Options.

    In the middle of the window that opens next, you’ll find “temporary internet files”.

    Click on “delete files”, close your browser, open it back up, and then go to MRF.

    You will now be seeing the current site.

    Amd thanks in advance for never calling me “stupid” again.

  160. Thanks Michael for not deleting….off to work..I can type from there…just a heads up for any sufferers watching..get a night audit job at a Suites hotel..no one has to see your lesions..your risk of infecting people is at a minimunm..there is no stress and you really do not have to be a math brain and the pay is good and you can sleep during the hot days of summer which effects us more than most.

    Many of us have trouble finding and keeping jobs due to not wanting to infect people and not wanting to be seen by others when teh lesions break out and also getting very tired for no reason. This type of job solves most of those problems.

    many of us are almost homeless..this type of job can save the day and there are many hotel and motels that need night auditors and if you clean up your area with lysol after work..your risk of infecting anyone else is minimum.

    Randy

  161. Jace,

    I apologize. I thought you were referring to something else. Thanks for clearing that up.

  162. Tall cotton..Have we become a scientologist?

    If you are better frm this then you never had it.

    Truth!

    Or you have an agenda.

    Not user what your game is. But if you are well.. I wish yu the best.

    Try healing your attitude now.

    With love

    Randy

  163. One more response before I go…doctors will not take to the CDC or local health dept what they do not know. They will only take to the local health department what they know something is. There lies the rub. If it has not yet been discovered you get no where and no one is willing to stick out their neck and say I DO NOT KNOW but IO will give up my practice, house payments, vacation, and family life to research this for you.

    Randy

    I am in touch with the secretary of health and human services for the commonwealth of virginia along with Sen Allen. We have discussed this hole in the system already.

  164. Thank you, Jace. Upon reviewing, I see I made an error in thinking that Randy had said the millions of dollars comment in #32, when she was picking on London for having said it in #18. If you just look on some morgie message boards for a while, or here, things will fall into place concerning the comment I made.

  165. Randy,

    You got most of that right, but you didn’t understand the meaning. First, no, I’m not a scientologist. Next, you’re absolutely right that I didn’t have Morgellons Disease. Neither do you!! No one does.

    When you can get that through your head and treat your real illnesses, you have a chance for recovery. The Morgies have a wide variety of very real disorders, but they ignore the diagnoses, like sarcoidosis, rickettsia, lyme disease, diabetes, Krohn’s Syndrome, and yes eczema, like Drew Lietao had before it went into remission.

    What you people do not understand is that many diseases manifest in the skin. There’s only a certain number of things the skin can do. So, sometimes, several different diseases will cause the same symptoms. Mary Leitao’s case definition includes several diseases.

    I believe that this was orchestrated to make it look like a lot of people have Morgellons, so she could move the hand of the CDC. Well, she and her help finally did! And D-day is close at hand, reasonably so.

    But you mark my words. I think a lot of the Morgellons believers will accuse the CDC of a coverup. There is no conspiracy, no cover-up, no Morgellons Disease.

    Now, when you get cured of your version of “Morgellons”, you will hopefully realize that it was something else.

    Believe it or not, we are both trying to help other people. You believe that Morgellons awareness is beneficial. I believe that it’s good that the matter is going to the CDC, so they can tell everone it’s a bunch of hogwash.

    Other than that, I sincerely believe that the MRF and the forums of the Morgellons believers, are doing a whole lot of very serious harm to a very vulnerable group of people.

    So, you’re right, I never actually had Mortellons, but don’t forget, you don’t either, and you’re still caught up in the delusion that your symptoms are caused by a made-up disease.

    You help people your way, and I’ll help them my way. I don’t need your approval any more than yuo need mine.

  166. I have an agenda. I want to speak out against this in hopes that anyone who falls victim to it, has some tools to assist them. Perhaps they may have concerned family members who can find some way of coaxing them into the right direction. Be thankful I’m disabled, and can only do a small part, here.

  167. At work..Ok …I have been to every doctor out there..$10,000 dollars worth before I got medical coverage.
    No one knows what this is and the ones that are honest have admitted that. I have had every test you could imagine and the fibers which have shown in a biopsy and have been cultured do not grow enough to get a decent sample.

    Of course we have other diseases..it is an autoimmune disease.

    I have been diagnose with sarcoid but that does not explain, as my Sasrcoid doctor has told me the reason why I have these non-healing skin lesions that have fibers in them.(Plus the unexplained perfect D and Ace levels and no pulmonary involvement.)

    Nor does it explain why my stool sample has the same fibers and why mucous from my eyes..that stuff you wake up with sometimes, and mucous in my nose also has these fibers.

    I had this quite a few years back and I pumised my face like mad..although my dematologist to be buddy was aghast..and it did go away for 10 years and then it came back for 5.

    So although you may have had Lyme or something else or may be in remission I can not say..but if you had the fibers and the non healing skin lesions and they just went away and you never found out what you had then do not sleep so soundly. I was free for 10 years..and then under a stressful situation the first lesion showed up and since they look very very different from regular pimples, I knew the moment I saw it what it was and I sat down and cried..knowing it was back.

    So whatever you say..it will not take me away from what I know to be true.

    No matter what anyone wants to say I know that this condition has non-healing skin lesions and fibers of an unknown origin that travel via the blood.

    The itching, the biting, the fungus, the parasites the bacteria build up happens to those with autoimmune disease cuz our bodies and their cytokines are just not doing thier jobs and things that build up and are usually expelled..build up and are not expelled.

    But we have these fibers of unknown origin and when you can honestly tell me what they are by taking them out of a lesion (or any other place) and giving me a DNA read out and an analysis I will listen to you but no one has done that.

    Now conerning Mary. I have no clue how she got into this 14 year old battle in 2002. I believed it was to help her son who had an unknown skin disease with fibers and I do believe that is the truth. Her ego and agenda got in the way. She named a disease without discovering it first and she connected it to lyme and then placed it in CA, FL and TX. Her mistake not mine or any of the sufferers.

    But I admire her for taking a very difficult lead and getting the press and awareness we so lacked in years before.

    Her foundation or her story has nothing to do with all of us that have this unknown syndrome.

    If it was something else in the medical books doctors would have discovered that by now.

    Many who have this are bi-polar..again not my problem..I am not.
    Many that have this have other conditions but when AIDS came out they thought it was a cancer.This syndrome breaks down your immune system…that can lead to various other conditions. Again..the conditions follow the disease and not the ohter way around. Like Mary followed the disease not created it. Morgellons 2002 yet most have had this for 14 years.

    It is also a syndrome of white women between ages 30- 60. For some reason people of color do not have this. Men are a minority for some reason. That is what a syndrome is about….you put all these unknowns together and it becomes something that already exists or something new. We are in the middle of that discovery. So far..it is nothing that exists..yet.

    This syndrome is an autoimmune disease of an unknown etimology..I am not sure if that is the correct word….that is a fact.

    I have this and I know. I am secure in this conviction for many many reasons.

    I will fight for the recognition of this disease and for research and for a cure.

    Perhaps many that have this do not have this and have gotten on this bandwagon for whatever reason but there are many of us that do have this and we will not let anyone tell us we do not and we will find out what it is and a cure for it and it does not matter what anyone does or states to the contrary.

    And I have never been nor will I ever be a MORGIE. I have an unknown skin disease which is at this point in time a syndrome in need of research.

    My only agenda is discovery and a cure so that it does not become a pandemic.

    Randy

    Randy

  168. But, what exactly is “this”?

  169. Nobody here is trying to take it away from you, Randy. It’s obvious that it isn’t conducive to your state of well being, at all, to be viewing anything here, let alone upsetting yourself and having to “dummy down” to try communicating with any of us. On your forum, and the fiber disease forum, is where you seem to be happiest, and nobody is telling you you can’t enjoy that freedom.

  170. Find me someone who will tell me. That is the point. My this is this

    1)Non-healing skin lesions that when healed have removed my pigment which never returns.
    2)Unknown fibers found in feces, mucous and all lesions and all scabs.

    Other than that the other symptoms are symptoms of any autoimmune disease:

    Fatigue (I was bed ridden for two years.) It almost feels like chronic fatigue or mono or Epstein Barr.. it hurt to try and stay awake. I was tested for mono..negative. And it had nothing to do with your white or red blood cell count.They couldnot figure it out) I took three months of (I am not a doc and I am not giving medical advice) an anti-fungal, then three months of an antibiotic and then three months of an antiparasitic then the Schwartz protocol one and two and finally I was able to get out of bed without sweating and feeling like I had to go back to bed because I was tired.

    Now the tired hits me sometimes and I have learned to listen to my body and if can and it hits I will sleep for 18 hours and when I get up I feel fine.

    This is not depression. I am very in touch with my emotions. My cat just died.. I was depressed.I know the difference.

    Brain fog (forgetting easy things)This is not a normal aging thing I can sometimes forget how to structure sentences. It used to bother me..now I just know it will pass and I do not get scared when it happens.

    I never had the itching or biting but I think that is because those that do seem to drink alcohol or use a lot of sugar..I do not know why that is.It is an unknown.

    Some have their hair fall out. Some have lesions on their legs and back some on their arms and face. I do not know why “it” picks an area and seems to stay in that area.

    I feel “it” is systemic. There is something, I do not know what that is connected with the hair follicle..I have no idea if this is via a blood vessle or protein.

    We need research and to be believed and to be researched..so many things that you find..”it” goes through stages…..first you get the fiber balls that come out of your skin when you add a lotion to it… very weird, very scary..but true. Then you settle into only having lesions and fibers in them and the other places I have mentioned.

    But the worse part os not being believed and no doctor being able to tell you what you have and that they have a cure for it. You expect to go to a doctor and get a cure. Instead you go and get a doctor too proud ot say he does not know and then he calls you crazy. It is a sin.

    And then these sites pop up full of people who have never seen you or anyone that has this making judgements about something they know nothing about.

    It is a nightmare.

  171. The Morgellons Believers had best be planning on how they are going to handle the situation, emotionally, when the CDC reveals that Morgellons is not a disease. The Believers may continue to believe, but it’s not likely that the matter will ever get any research money after that. Heither will the newspapers be interested in the story any longer. The matter will never be investigated again, ever. They can start dealing with it now, or they can wait until it comes crashing down on them, but they are going to have to deal with it. That’s also the only way to get well. Good Luck. You’re gonna need it.

  172. When the disinformation stops on this forum I will not monitor it anymore. Now that is up to all of you, not me.

  173. Unless you work for the CDC your statements are bogus. Do you want ot bet me that $100.00 and put your money where your mouth is?

    No takers as of yet..wonder why! I am serious..I will pay you $100.00 if the CDC finds nothing. But you will pay me if they do.

    Any takers?

  174. And there, Randy, is the problem. There are so many ‘symptoms’ that pretty much everyone who does not feel well can fall within the spectrum. The only thing that makes “this” different is the fibers, but no one seems to have videotaped these fibers emerging from unbroken flesh, let alone doing any of the really bizarre things “Morgies” describe.

    I am sleepy all the time. I also have generalized itching, all the time. But I do not have Morgellons. I have contact allergies and idiopathic hypersomnia. I can’t tell you how close I was, not so long ago, to self-diagnosing Morgellons.

    And I would have, had a voice of reason not come up on my Google search.

    For this, I thank Michael.

    I am still hypersomniac, but hey, who doesn’t want to sleep anyway? ;)

  175. I think we can all agree that it appears to be a horrific nightmare for most of the people who think they have a mysterious new disease, Randy. I think it will remain that way, too, with some managing to hang on, despite of it, and sadly, there will continue to be the others who won’t make it, just as there always has been.

    What grounds have you, against people on this blog, accusing us of not having seen any of you in person, so therefore, we have no basis for our opinions? When has there been a convention for all the believers to come together face to face to see each other in person? How can you say you all have the same thing? This is not as complicated as the people who are trapped inside of it think it is. If you could get out of it, I know everyone would, though, Therein, lies the problem, and I do not believe there is a solution.

  176. Well, we are going to continue telling others what we believe. So, you had best get used to it. You are being silly if you think you can tell us what we can say or not say. I don’t feel that my position on Morgellons is threatened by the testimony of any Morgellons believer. I sincerely believe that the more they say, the less they are believed. Debunking is our affair, but you guys do most of it for us.

  177. What? >>> “When the disinformation stops on this forum I will not monitor it anymore. Now that is up to all of you, not me.”

    Well, Randy. We aren’t interferring with you, or your rights. That’s an apparent part of the symptomatology of the illness that you do all have in common. Demands and commands, ordering others into doing what will please you, telling us all how to serve you better. I noticed you said something earlier, on here, somewhere, about defending yourself, too. Nobody had done anything to you. I hope you stay here, so you can feed some good sense to yourself. Welcome onboard.

  178. I would never analyse anothers situation without seeing that person in person.

    Without the fibers you do not have that disease and please stop calling people with this Morgies. I was banned at lymebusters since day one.

    I am not a MORGIE. I am a person that has a syndrome of non-healing skin lesions with fibers and fibers of unknown origin in the area already mentioned that need not be mentioned again.

    And there are many of us as there are people who have other disease and those that do not but wish they did and those that just want attention by having anything. It is a big world with lots of people. That does not invalidate those that have this syndrome. Understand that concept?

    But you can not dismiss something that exists just because you do not have it or some people that thought they had it don’t now.

    You also can not self diagnose something that has not yet been figured out. If you had itching and biting and no fibers you did not have this. I am not sure how you were saved by finding this site…cuz there is not treatment for this yet..but if this site helped you and lead you to get medical help for a condition that has a name..that is great!

    I have nothing “with” the people of this site if they have proof.

    I have proof. I am living proof.If you want ot meet wiht me you will then see proof.

    But do not say what I and others have is this and that when you have not even seen one of us.

    That is just crazy. Sit down with one of us..look in the microscope, look at our lesions, our skin see what you see and you will be a believer or you are blind. I got my $100.00 riding on that one.

    But until then…keep your uneducated guesses as what they are; uneducated guesses about something you know nothing about.

    And as long as you guys want to pretend you are experts about something you ahve never even seen, I will keep my eye on you.

    I hate people who lie..and I will prevent lies about this syndrome from happening until we have a daignosis and a cure.

    That is my point.

    I have no idea who any of you are, what your agendas are and why you would commnet on something you have never seen ..but that is your problem or your job.

    To be an expert..you have to have had an experience at least once and all of you have never even met one of us…that to me is just…funny… and quite dumb and mean spirited.

    It is like hearing about a cow with mad cows disease and saying it is drunk. That there is no such thing. When something can not walk it must be drunk. You saw a video of the cow stumbling. There is no such thing as mad cows disease. That is what you are doing here. No knowledge, never saw a person with this, saw a vdeo or ociture or two.. but yet you are the experts that it does not eixst.

    Gotta love it!

  179. Smiley .. you just do not get it.I am defending the disease so we can get research. It is not about me or you.

  180. Ok, Randy, let’s up the ante. I’ve got $1,000. But first, define the wager.

  181. Smiley .. you just do not get it.I am defending the disease so we can get research. It is not about me or you.
    And as long as some site tries to disinform so that the possibility of research may be hurt by this information I will be here.

    If you ever had a disease like this you would undersatnd so I forgive you for your ignorance where having a heart, morals, ethics and compassion in concerned. Try being human.

  182. Randy, don’t you pick at your lesions? That’s probably why they leave light colored scars.

  183. The CDC must reveal their subjects and the tests done.

    If they find fibers that they have no idea where they come from or what they are..I win..if they find a new disease or syndrome, I win. If they find nothing it is a tie. If they find another disease that already exists you win.

    Nothing is not an acceptible outcome. It justt proves they did not use anyone or anybody. I have had unremarkable on many of my tests.

    But how they do the research and who they use and what tests they do have to be sufficient..they could try and wipe this under the table. And without working for them.I have no way to define those perimeters.
    So they will have to be a variable that we will have to decide upon after the outcome is revealed.

    You want to add or negotiate the contract. I will take you up on your offer of $1,000.00.

    Randy

  184. Randy, first off, the CDC does not conduct clinical trials.

  185. Don’t misunderstand me, Randy. I understand too well. The more you show us, here, outside your own forum(s), the more assistance you will lend to others in understanding this.

  186. Rats.

    I meant to say, hell yeah, I’ll take your $1,000.00 wager on CDC trial results.

  187. dammit

  188. They are not scars. They are skin that is fine, perfect, soft just like the rest of my skin but without pigment. There is no scar material.

    Picking..oh yes…the fight between those that have this and the dermatology community thinking they know about ths particular syndrome.

    They tell you not to pick..which is what is learned in school…I understand this….so when I have listened to them..I almost lost an arm. Now if they tell me this I tell them..let us sign a contract. If you want to place a cast on my arm, if I lose my arm or the situation gets worse after the cast is removed, you a re responsible to get me back to where I was before you placed in on ther..you pay for your error..this is a real scenario. No way..they will not take the responsibility for their actions.

    The fibers are within the lesions. The scabs attach to some of them and by pulling off the scab you pull out some of the fibers. Once all the fibers have been removed the scab heals. You are then void of pigment in that area.

    I have found that Gold Bond medicated Powder made into a elmers glue like paste and applied after a shower and allowed to dry overnight dries out the lesions and pulls tons of fibers out of it. It is a cheapo way to heal fast.(You can pumise them out too but that hurts.)

    Now find me a way to get all the fibers out and have the scab heal without by pulling the scabs off and I will be happy for life!

    The way to check how close you are to healing is to use the microscope
    (Radio Shack 100X,hand-held) and look into the lesion after after you have pulled the scab off (which if you look at is usually filled with microscopic fibers)and see how many fibers are left. Wipe briskly with an alcohol patch, so it is semi-sterile and look again. When the fibers are gone the lesion heals. Anyone who has this knows this already. This is not new NEWS.

    Any other questions?

  189. >>The way to check how close you are to healing is to use the microscope
    (Radio Shack 100X,hand-held) and look into the lesion after after you have pulled the scab off.

    >>Any other questions?

    Nope.

  190. So how will they be able to figure this out without clinical trials?

    That is just bizarre. That is funny to me…. they will not see patients that have this…they will run no tests..they will do no lab work and they will make a diagnosis from what?

    You might as well call this site the CDC test ground.

    Are your serious? Then the CDC looking into this is a joke!

    Are you sure?

    Randy

  191. Gosh, Randy >>> “I have no idea who any of you are, what your agendas are and why you would commnet on something you have never seen ..but that is your problem or your job.”

    “To be an expert..you have to have had an experience at least once and all of you have never even met one of us…that to me is just…funny… and quite dumb and mean spirited.”

    Really, I mean, gosh. We’ve told you our agenda, tonight. I don’t recall anyone saying we were experts. Morgie people tell us all what we are, what we think, what we do, and who we are, though. That’s more of the symptomatology.

    Come on, now…tell us all how many of such sufferers, as yourself, that you have met up with.

  192. I am absolutely certain that the CDC does not conduct clinical trials.

    Still want that $1,000 wager?

  193. You don’t have to be in a morgie’s presence to make a clear and accurate diagnosis of a quite a few mental disorders. And it’s certainly not needed to diagnose DOP. You think you don’t have it, but you fit the description perfectly. It is obvious that you also have a personality disorder and an anger problem. You aren’t a bit more credible than i was when I was on drugs. I told Michaellloms I would try not to talk about your insanity, but you came here causing trouble and spreading your insanity for the world to see. Now, Raskal, that’s the truth, but I don’t expect you to see it. If you want to see an end to the disinformation you’ll have to correct the lies that you and the other morgies have told. The Morgies are the ones that are telling the lies. And, yes, Raskal, you are a Morgie, whether you like that title or not. Sorry Michael. I’ll try harder next time, but they make it hard.

  194. >>The way to check how close you are to healing is to use the microscope
    (Radio Shack 100X,hand-held) and look into the lesion after after you have pulled the scab off.

    To see if there of any more fibers in the lesion.

    This is a fact which I can show you and have showed doctors and I have that fact in my medical records as they doctor stating he has seen this and has no idea what the fibers are and can not remove them with vigirous rubbing with a sterile pad.

    Fact…I felt your NOPE was a high horse smug know it all remark of a dermatologist type personna. Correct me if I am wrong here.

  195. Tallcotton,

    You were a drug user.. no wonder the attitude.

    You are wrong..period. I will not discuss this with you. You have your agenda. Drug users peel at their skin. I am not you.

  196. And paranoid about morgies ewwww, Morgies…they are after me …….I am guessing a skitz too.

    I have nothing more to say to you. I am not a morgie I am a 4400.

    Jeesh!

    Randy

  197. Randy, the problem all of you are having with the CDC, is that you expect things that the CDC does NOT do.

    The CDC is an information clearinghouse. They do not conduct trials for anything (although they do fund research) But all of this anger against the CDC is misplaced.

    The CDC collects information and looks for patterns. That is all they do. They merely process information.

    You believe that you have a new, emerging disease. Many other people believe the same. But your efforts are wasted, assailing the CDC. You have to understand the process, and if there is a failure in the system, it is your doctors who are not bringing the matter to the highest levels.

    I apologize for my earlier curtness.

  198. Can I still have the $1,000.00?

    (Just playing now!)

  199. No but you can stick your thumb up your ass which is basically your contribution to this problem.

  200. There you have it, once again. Another prejudice attack against someone who is concerned about this population of people. None of us has ever witnessed this, since it’s gone mainstream. As I found when I first learned the shock of this “morgellons disease”, and have continued observing and learning, it really appears that most of these people don’t want anyone to care about them. They’d rather live inside their world of how they perceive everything to be,and feel disgusted over it not being the way they want it to be,instead of dealing with anything resembling reality. Oh, they can’t be any other way, that’s obvious. I know they can’t help it. They prove that every time they say anything.

    That many doctors are not mistaken. What’s part of the diagnosis of delusional parasitosis? D-e-n-i-a-l. “Denial”. Why they cannot save themselves all the money, pain, heartache, and misery, by just obeying their many doctors, is not the fault of anyone. I know not everyone thinks this is synonymous with DOP, but if you do the math, it is. As long as people want to be stuck inside it, and trapped, they’ll keep right on until everything is lost forever, too. This problem is not going to go away. This is not anything new and mysterious.

    Anxiety meds could stop the ones who are compelled to injure themselves. Listen to all the fear. Why don’t they want it to end? They cannot help it. That’s why. Listen to all the ones who get exacerbations from sugar. Hell, diabetic wounds are slow healing, and yet, some of them swear they don’t have it, they have “morgellons disease”.

    Now, I think everyone realizes I’m not talking about some innocent person who just happens to hear of this crap nonsense in the news, and is confused, and wondering whether they might qualify as having it. No, it isn’t too hard to see the resistance to follow doctors orders, and why they haven’t. Then, “morgellons disease” catches all the blame for everything. People needed to believe the first doctor they saw and take their advice. I know many would have gotten their heads cleared and could take care of their other issues then.
    I’m sorry this bothers me. I care a lot about helpless people.

  201. >>Scruyou Says:
    August 5th, 2006 at 11:40 pm

    My mistake. I thought I was dealing with honorable people.

  202. I may not come across that way, so what’s the alternative? Like I have been told before,”leave us alone, we know what we’re doing”. It’s okay to disobey a doctor and hurt yourself? Okay, do I want this to be a real disease that Wymore can find the cause and cure for? Oh, do I ever!! If not, look where this leaves everyone, and think of the children and pets, paying the heavy price.

  203. All bets, evidently, are off.

    Please do not challenge me again, for ten bucks, a hundred, or a thousand. When you lose, you lose.

    I thought I was being kind, I don’t really want your money.

    But do NOT post ugly, hateful words to me when you lose.

  204. Randy, you can make that $1,000 check out to Brushes for Vincent.

    Thanks

  205. You guys have to figure something to..it take a very strong foundation when you have an illness that no one believes you have..those that are not so strong or do not have a support group tend to crack a bit at the seams…you have no idea how hard it is to have this.

    You can not go outside without sleeves covering your arms in 100 plus degree temps because people look at you as if you are a leper..if a break out is on your face you have to hide, miss work, maybe get fired.

    If you have a moral cneter you do not want to infect people so if you are a nurse, in F&B, retail you quit your job. You tell freinds not to come over, you do not see their new babies, you stop dating you stop hugging.

    If you are bedridden you may lose your home, most do not have insurance, the medical bills pile up while no one knows what you have.

    Your family may not at first believe you, until they see for themselves and the whole world seems to be against you..like sites like this…..not being human, not being sympathetic and you realize what a cruel unpassionate non empatheitc world it truly is. So please excuse my fellow sufferers when they jump all over you.

    The first year is the hardest. You pray that a doctor knows what you have..and they do not and they also lack compassion. You wonder what has happened to this world that people can be so cruel so heartless. So bear with the turet type comments you may get. You are not as sick and hurt an injured and sick and tired or being sick and tired as we are. Have empathy..please.

    Now..I know about no understanding the CDC. I did think they could finance clinical trials. What a joke, our health care system.

    The dance is this… you go to what used ot be called a man of medicine, a doctor House…or so you thought.

    He/She has a huge ego and what he can not diagnose in 5 minutes he sends you packing. He/she does not want to get involved with something he has not seen before.

    If he is honest he tells you that he has not got a clue. If he is an ego maniac and he can not name that tune in 5 minutes, he tells you to go to a shrink.

    The NIH gives out money. You have to apply for a grant through a University willing to take on the project once you know what it is.
    (And you should see what it takes to apply for a grant! Jeeeeeeesh!) Theres the rub again..you do not know what it is.

    The CDC get reports from the doctor going to the local health department stating he knows what you have,(he will never put his rep on saying that he does not know what you have) Thus another rub…..then that doc goes to the state health and they take what they have found to the CDC who puts out a NEW DISEASE Bulletin.

    A great hole in the system for terrorist to come in and wipe us all out. Unless you have people dying left and right no one will listen. That is really scary to me.

    But alas the system is flawed and you can see why. It has a huge hole in it.

    No diagnosticians worth a damn..no doc willing to say he does not know what it is but it is something and no University..except Wymore and Oklahoma State willing to investigate anything.

    There is no system in place to investigate a new disease. NONE.

    And here we are with this disfiguring disease that no one thinks we have.

    You do the math. It breaks down most people.

    I know of 15 people with this. Five spent time at my home or with me on vacation (1) and for that my guilt will never ever end.

    You guys have no idea how hard this is. I use to entertain, I am a Taurus…and not a Ford one..hehe..and now my house is a morgue. Until I know what this is..I will not allow anyone to get infected by being in my home. It could make you cry..if ya have a heart.

    Scuze the typos..getting tired. Got 5 more hours of work.

    Randy

  206. JL:

    I have no idea what you are talking about… in post 205 or 206….traveling tonight on a train?

    Was 205 to me? It was kinda off base.

    One day this will be found that it exist….the bet can be on for that day. One day we will get a real research grant with some people on this full time.

  207. Brushes for Vincent:

    http://www.cheapjoes.com/artist_community/brushes_for_vincent/index.asp

    Thanks, Randy. $1,000 will go a long way.

  208. I thought the bet was on CDC trial results? There won’t be any, the CDC does not conduct trials.

    Thanks so much for your contribution to Brushes for Vincent.

  209. Smiles:

    I come from a medical family. Doctor do not know what is right all the time..they PRACTICE medicine ..our use to now they just are robots due to their medical insurance they are stuck in a box and can not think out of it.

    No one is equipped to deal with something new or created.

    That is where a terrorist or an error in creating a herbicide or pesticide that has genetic mutations in it that may have possibly gotten into good crops and into people has the right of way.(Who knows….I preder that thought over Aliens or Chemtrails….you pray for it to be SOMETHING!)

    We have broken open the key to the genome. That is great were cures are concerned but bad where newly undiagnosed or undiscovered new diseases can crop up due engineering for industry or just things that will develope due to global warming.

    This is a cry out for change in our system. Maybe that is why this has happened to us…..so that fact can be realized. I hope every day that my suffering will not go in vain.

  210. Raskal, aren’t you assuming the entire rest of the world has things easy compared to morgies?

  211. EARLIER…

    #165 Randy Yaskal Says:
    August 5th, 2006 at 7:48 pm

    One more response before I go…doctors will not take to the CDC or local health dept what they do not know. They will only take to the local health department what they know something is. There lies the rub. If it has not yet been discovered you get no where and no one is willing to stick out their neck and say I DO NOT KNOW but IO will give up my practice, house payments, vacation, and family life to research this for you.

    You are not dealing in reality, Randy. Those are not practical, normal expectations to have. Nothing you say is.

  212. No. My brother is a diabetic since age three, they are thinking of removing his leg… my mom just got diagnosed with breast cancer…I have two friends with MS…. and that is just who I know. So NO to your quesiton.

    I HATE THE NAME MORGIES. There is not a disease named Morgellons only a foundation. We, that have this, have an unknown skin disease or syndrome or Fiber Disease or syndrome. Got it…or I will start making up a name to call you. OK?

    Ya wanna call those that have lyme and this Morgies fine! Or those that follow Mary….fine… But I DO NOT HAVE LYME nor to I follow the MDF! AHHHH! I hate that name and am no fan of the foundation either.

    Sorry…that is a button.

  213. I expect doctors to do no harm and to remember they are suppose to be curious,investigative, compassionate and healers..not just drug pushers with boats to pay for.

    But I understand…I had to…..I got attacked at Passover by family about not understanding the medical practice insurance thing.

  214. I have an artist friend in Delaware and a friend who has this in DC who is quite well known..but has to keep this fact hidden for now.

    I will let them know about this foundation.

    Donations I make go to the Diabetes and Breast Cancer Society for the onbvious above reasons.

  215. How did you come into learning that others appeared to have the same thing that you think you have, Randy? Did you have a microscope beforehand?

  216. Microscope before hand..no again.

    One friends… went out dancing and it was really hot in the place… he said for me to take off my sweater..the lesions were really bad that year….I told him no and he asked why. I told him I had non -healing skin lesions..I did not have a microscope at that time or know about Mary’s site.

    He pulled me outside and siad…after taking off his long sleeved shirt..do they look like this?

    I almost plotzed. We left the place and went for coffee and talked about the condition and compared notes.

    We had lived together for a while and he moved out of country. So we still do not know who gave what to whom or if we developed it seperately.

    I got the hand held microscope about 6 months later and he got it about a year later and we were amazed at the fibers.

    He is a MIT grad.

    He also went to a shrink to dismiss the DOP so it would be in his medical records too.

    He jokes and states, “I was cleared of any DOP but if I would have known I could talk to someone confidentially about so many things that concerned me about my childhood, I would have gone years ago.” He is not Jewish, of course.

  217. The biggest hole in your discussion about the problems involved in getting Morgellons recognized as a disease, is the fact that it’s not a disease, and it’s not a syndrome. Someone very dear to my heart suffers a tremendous amount of pain, all the time. It’s more pain than any Morgie has suffured from their symptoms. I can’t prove that, but I firmly believe it. Yet, I have never once found her on a pity pot, looking for sympathy.

  218. You are projecting.

    I am not on a pity pot and if she is not finding the origin of her pain and looking for relief from her suffering and you are not helping her in that quest then you are no friend and she needs to help herself.

    Would you tell her..just suffer..and BTW…stop faking it you are not in pain?

    I am looking for the origin of my suffering and a way to cure it.

    I am also relating the truth about what we go through..if you felt pity..then maybe I have under estimated your abilty to care.

    For that I apologize.

  219. I said it was a syndrome, BTW.

  220. Excerpt from comment #29

    Randy Yaskal Says:
    August 4th, 2006 at 3:48 pm

    BS. This disease and the Morgellons foundation rose from the need of people with similar symptoms and no help from the medical communiity to search the internet for any answer they can find and they found eachother. Know your facts. MDF happened AFTER not BEFORE. The MDF is not even ten years old and I and
    others have had this for 14 years. The press about it is new but we were alone for amny years suffering with this not knowing what we had.

    I have the same fibers on Mary’s site that Andrew has. Understand that simple point too. The fibers are what this disease is all about. I do not care what you say..until you have seenthem in our skin, mucous, feces, teeth that fall out, finger nail clippings etc..you have no right to talk about what you do not know about. You have not got a real clue. Sorry to say that but I speak the truth here.

    My Sarcoid, diagnosed by a lymp node biopsy, which showed non caseating granuloms..which can be found in many immune supressed diseases as can cell wall deficient bacterias etc etc…gave me a sarcoid diagnosis BUT I do not have pulmonary involvement and have normal ACE and D levels telling me that I really do not have Sarcoidosis but something causing non caseating granuloms. Most likely an autoimmune disease of unknown origin.

    So understand that too.

    OK?

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    Okay. Explain to me “why”, EVEN THOUGH you were diagnosed-with-Sarcoidosis-by-a-doctor, you “CHOOSE” to say that you don’t have it? So what, if your ACE and D levels were normal, and you, thank God, don’t have it in your lungs?

  221. I read your test results, I saw your complaint of a sarcoid in yoyr earlobe, and your comment that you’d had it since 2004, and nobody had done anything about it yet. Make them so something about it. Get off this “mystery disease”, and treat that, and treat for severe depression. I didn’t say anything about seeing a mental health specialist and “lying”, Randy…I said zipping up, and “withholding”…there is a huge difference.

  222. Make them do something about it. Ask them to.

  223. I am not saying I do not have Sarcoid.
    I thank G-d every day that I have no pulmonary problems. I was praying that the lesions were sarcoid related but he doc told me they are not.

    Also non caseating granuloms can be a few things..the doc can not understand the reason for the ..actually low..D levels or the ACE readings.

    And on the Sarocid site….more people have been diagnsoed by lymph nodes biopsies and have lesions that are not sarcoid related with no pulmonary involvement than I have ever seen since I have joined the site.

    But I have not told them about this disease or how it can be connected. No need to scare anyone.

    But my every three month CT still shows swollen lymph nodes, very high c-reactive protein and very high platlet count and has for 4 years.

  224. Those fibers in Drew Leitao’s pictures are clothing fibers until someone proves otherwise. That’s because that’s the most logical source. Therefore that is the most probable origin. Your’s nay be too. You don’t know. And you don’t have any idea how much we know about this falsely so-called mystery. I’m certain of one thing. We know a whole lot more about this made disease than you do. You’re as lost as a goose in a hailstorm.

  225. So ….

    You’re not going to make good on our wager?

  226. I read your test results, I saw your complaint of a sarcoid in yoyr earlobe, and your comment that you’d had it since 2004, and nobody had done anything about it yet. Make them so something about it. Get off this “mystery disease”, and treat that, and treat for severe depression. I didn’t say anything about seeing a mental health specialist and “lying”, Randy…I said zipping up, and “withholding”…there is a huge difference.

    Have no idea what you are talking about…earlobe?????? I am under a sarcoid docs care and a GP’s care for tests, never had any earlobe anything…am not depressed….was last week when my cat of 17 years died but I am better..still a bit sad….what are you talking about?

  227. Gosh, Randy. Keep on the path you so desire. Goodnight & take care.

  228. Again..when you pay good money to see a shrink..and you are Jewish..you do not withold anything…maybe you do..I do not. And my sarcoid doc had a 6 month wait before he would see me so maybe you are looking at old notes that I need to change on my site.

    But the skin biopsy showed no sarcoid, to my dismay.

  229. See comments in your post number 207, if you think you’re not severely depressed. Nighty-night.

  230. JL:

    Funny. When they do get some real research..and get real results….I will hold up my end..whoever it is that will do the research and get the peer review etc.

    Randy

  231. I am a realist…. if whatI said there makes you feel depressed,,,ok.. but I can be sad without being depressed. Emotions are healthy. Not all sadness for loss is depression.

  232. Uhm, Randy .. the wager was on CDC trials, remember? You threw down, I upped the ante. What’s the problem?

  233. You said the CDC does not do trials….did I miss something?
    NO trials, no bet..it was for results and it was honest. If you are betting on the fact that I did not know a fact and you still bet on that..that is ..strange and unfriendly. This is not a joke to me.

    I am only betting on results since this site states there is no new disease.

  234. Right. I let you define the rules of the wager, which you did with great gusto, and still you welch.

    No worries, I do have $1,000 that I will donate to Brushes for Vincent on your behalf.

    But I will remind you of this every time you come to this site demanding that anyone “put their money where their mouth is”.

  235. Reading these posts would make most people assume the majority here are mental.

  236. Hey London,

    You made a couple of very salient points in your response and you can rest assured all connections mentioned have been severed. The intricasies of the Junction of course are not for public consumption and your cleverness has been noted.

    I applaud your tenacity and suggets you review your material as several symbiotic associations contribute to the novelty.

    Enjoy the chase, as we enjoy the pursuit.

    This may help:

    “The saga of the Irish Junction, where are Js5-7? Is a section of N6 included in the actual M6 classification?”

  237. London:

    We demonstrate how the precise three-dimensional (3D) assembly characteristics of biomineralizing micro-organisms may be combined with synthetic chemical processing to generate photoluminescent microparticles with specific 3D shapes and tailored chemistries. Silica-based microshells with a rich variety of controlled shapes are assembled by a type of unicellular algal phytoplankton known as diatoms (Bacillariophyceae).

  238. Hugh,

    So sorry, but I only have a second here but I will be back strong tomorrow……but off the top of my head….uhhh, certainly you are not into the 8th dimention of Illuminati, are ya :) let’s see,,,,well you could be talking about the abiotic factors of the spheres and how light, coal, blah and blah collect in the resevoirs and the cycles they go thru (you did mention the diatoms…..hmmmm

    i think this is going to have something to do with cold fusion, electromagnetic and vacuum type entities, lithium, nef protiens
    and that f-ing cell phone! forgot to throw in the moon as well….but I know about the sheer films Hugh, I just do not see how the hell they relate to the superparasitoid, you know…

    But since Randy mentioned venom, I must admit that it does play a role somehow/somewhere….

    oh Hugh, you must be from the electrochemical society…..

    how’s this?

    Photoluminescence in solid inorganic materials excluding elemental, II-VI and III-V semiconductors and alkali halides

    I really have to run, I do hope you will keep in touch with me

    So sincere,

    Para

  239. damn I’m in a hurry but Hugh, your talking magnetic semiconductors, huh? right? and that light you guys just long for….the firefly!

    really leaving, please keep me posted Hugh!

    PS: You’re much better than TamTam. He got confused a lot.

    Nota Bene!

  240. I never bet on IF the CDC were doing trials. They said they were investigating the syndrome. I bet on the results not IF they were doing trials. How else do you investigate a synrome if not by clinical trials? Who knew?

    Sneaky is not clever….it is just sneaky. Boarders on dishonest. I made an honest bet and it still stands.

    Off to bed..night all.

  241. Hi friends!
    Just popping in for my daily ‘dose’! Michael – I think you are relating egomania to high self esteem and sel-confidence! Couldn’t catch up on all the reading….sorry, I have a life to live…so don’t wanna offend anyone by misinterpreting something by not having read topic. Not fair to anyone. Go Randy Y. I’m with ya. I’ll wear my clothes for one day and mail them to you if you will put them on, go out in the sun for the day and call me in 6 months for a “clear health” appt. with your doctor! 100 bucks on that one!
    I’m not concerned about the media and my media contacts are not concerned about financial problems at a foundation that do not directly affect the scientific research.
    Mary, think again about how mad you got when a gal in Tahlequah somehow knew your Ma’an! Think hard now. Memory problems? Oh God, it’s one of the signs!!!! Are we cousins TC? Huh, huh…are we? I’m really curious to know. Having my mom work on the Grove geneology. And kudos to the fellow that posted last night with common sense. Yes, the existence of this site is a sickness. Why do you care? If you don’t believe Michael, TC, Smiles…why in the world will you bother, I find Andreas being your Webmaster quite an amusing coincidence! You all know I don’t come here often, this topic and Michaels use of a person I know’s private photographs WITH names,,,what’d you just say above about deleting names? It’s kept me coming back for more. I truly do find the farce amusing! TC I swear there is a distinct family resemblance!
    Now to my today’s business ’cause frankly, I don’t give a shit about Morgwatch’s agenda, Smiles…how do you know so much about what WE have? What’s my physical diagnosis? Dont smart ass me with crazy crap. Been cleared there by three very high authorities. So what do I have, what illness that keeps you concerned about us poor sufferers?
    Sorry about spin-in lack of knowlege. Don’t hang with the type that know that vernacular either. Guess I don’t spin-out much because I’ve never heard of it. Anyone that knows me knows that.
    Stand up for my beliefs and principles….you’damn well better believe it and that’s one of those funny coincedences with this group………so would all of you! Amazing isn’t it that the most polarized folks can find something in common! Amazing!

  242. Oh, BTW, I won’t be back to read any smartass remakrks claiming there’s something crazy in what I just wrote, for at least a day so BOLD EM if you really want to insult me. I really do have a life to live and it’s one of the first things I tell New Morgies. Live your friggin life..get off microscopes and websites and make the right connections, talk to your local and federal government and go out and live as much life as you possibly can. Those are good health principles for ANYBODY. So I’ve gottan go take care of my hygiene as all us good Morgies know is important…. and go live as much life as I can! I suggest y’aLL try it…won’t cure u but you’ll feel a Hell of a lot better…even if you feel you can’t get outta bed…go sit in the sun…have someone drive you to the park…get the fuck away from examining things and LIVE !!!!

  243. Morgellons Watch is powered by WordPress.com | Design by Andreas Viklund | Ported by Ainslie Johnson

    © 2006 Morgellons Research Foundation | Design by Andreas Viklund

    Now this is interesting. Andreas Viklund designed both site? Hummmmmm

  244. From Adapted
    March 2, 2005 12:12am
    Thread Title: Mary Mary Quite Contrary part 3

    “Adhering strictly to the sole topic of fibers, I have finely branched, white or nearly colorless, prolifererous filaments. They are separate from the many colored fibers and threads and hairs. However, something inhabits the other many colored fibers, threads and hairs. I have not been able to make the connection to them being inhabited by the filaments, but they are inhabited by something. The filaments proliferate and form a mucuosy substance upon occasion, so I can’t rule that out. These things have been the very least of my problems.”

    Smiley..Tall recognize this? Raise your hand..who wrote this?
    Let us stop playing games with th elives of people..OK. This is not a joke so stop being clowns.

  245. This is real. I have seen the fibers moving and wrapping around each other in unbroken skin. I cannot understand why anyone would spend so much time and effort in trying to debunk this. If you don’t have this, good for you. I would recommend that you spend your energy on something that helps people.

  246. Jeeze-

    I apologize for the dumbass comment. I am just frustrated to the point that i will piss people off to get them to take this problem seriously. It is not funny, it is not something to be taken lightly. If your knew anyone with this crap, you would be absolutely fighting mad. Threads that have a head and move around looking for a host are not normal.

  247. Tall: Remember these words…..they are yours.

    It was ecstasy, ecstasy, ecstasy, endlessly, ecstacme, ecstacme, I’ll ecstaceeyou too. It was ecstacy, ecstasy, ecstasy, you and me, endlessly, ecstasy, ecstasy, in the lofts of Aydelotte Street. Bugs Alive, hung out his window, and he spoke with four or five spirits, and many came to see him, especially after they heard. Yeah, we heard, because he told us. Whe heard a man tell a story. He knew it was true. Absolutely he knew… It’s true. He’s the first man ever to understand that we are thirsty, and the thirst couldn’t be quenched. Then Leah said, but Bugsy did it, shish, Leah. Bugs Alive brought water and he cried as we drank it, and it ran right through us, and splashed on the floor. He said this is harsh. He said we aren’t believed, but few even believe the Shadow people live. He chained us in darkness. We are in darkness. No one can see us.

    We DO NOT, I repeat DO NOT have the same probelm. YOu had a drug problem with skin complications and delusions I do not take drugs, or have delusions just an unknown skin condition so let us be very clear about this. OK?

    Thank you.

    Randy

  248. Here is my spin on everything with MRF. I have been following it for 18 months now with the help of an inside person of MRF. So I heard it ALLLLLL. MRF was a nothing but a website on the internet – then Holman and Casey found the website per a news station in california. Holman dives in to MRF because he wants a cure!! Mary asks Holman to be Chairman of Board – Holman RUNS with it – “trying” to get the news out about MRF, funding, research scientist, and making MRF right with the IRS (which he assisted in filing all papers to make it a legal non-profit). But one little thing keeps blocking Holman – Mr. Idiot Cowles because with my research into Mr. Cowles ” I ” don’t think he is a media guy – just wants to be. Plus he doesn’t even have Morgellons or anybody in his family has it. Ok so Holman and Casey start getting word out with the help of Ginger in Austin then EVERYTHING snow balls with media. Rut row Cowles don’t know what the hell to do. So he does nothing really but try to look good on camera. So with all the media stuff I have watched, read, etc – it always has the same three people – Casey, Holman and Wymore. DUH doesn’t take a rocket scientist to figure out it was HOLMAN and not Cowles.

    In the back ground Casey is running support emails, lining up nurses, getting thousands of dollars in donations to MRF while her own fight of morgellons. About this time is when Wymore was snooping around the internet and found Holman’s Diary at http://www.cherokeechas.com/. Now they had the scientist – WOOHOO. Everybody do you see it? HOLMAN AGAIN!!!

    Ok from my research into Mr. Holman he looks to be a VERY business type of fellow. Honest, a straight shooter and working for all members that has morgellons. Well – since he looks to be one smart cookie – he wanted MRF to go by the book on EVERYTHING – but rut row again ML is losing control of “poor me” because now MRF has out grown her story and BECAME MANY – which was totally awesome to see others come together to help each other. So how does ML handle it? Mary Keeps “resigning” from MRF – lost track of how many emails she sent on her resigning. I would say “she wakes up to a new day – but really she wakes up to a new planet” because, the next day or week she was back at work. Which is weird but anyway.

    So were was I? Ok so now they have an awesome board, medical staff, etc. Well – here is were the fun began or the start of it. OSU set up a news piece, mean while Casey/Holman have pulled in thousands of dollars in donations, well here is the million dollar question for ya – who needed to have “their” plane ticket purchased by the MRF? COWLES!! So ML pays something like $1,400 for a stupid plane ticket. Ok what a slap in the people that donated to MRF to know the donation went to a frig’n plane ticket for cowles!!! when everybody else that went to OSU paid their own way!!!! so Cowles is not a volunteer or supporter of morgellons – he wants money which brings me to my next info – ML made a deal with Cowles that MRF would pay him when they started getting donation – RUT ROW ML DIDN’T TELL ANYBODY until Cowles wanted another $2,000 for expiences. Wow in less then 6 months or about Cowles has gotten $3,400 of donation money. Well half the Board members were so ticked off about this – that was the nail in the coffin for many at MRF.

    These are the High lights of some things that has happened but the ONE thing that has always been the push – Holman chap. So were did everybody go from MRF? Go back to were it all begain: http://www.cherokeechas.com/

    MRF will always be around – will they go anywhere now that the true workings that had the “heart” of all people that has Morgellons have gone? Probably not to fast anymore – because everybody needs to stop focusing on the ‘soap opera’ and start supporting OSU – lets get the donations to the true research so we can find a cure ASAP. We can all support each other – good days and bad with the true believers that has morgellons at cherokeechas!!!!

    TexasRose

  249. Amen to that one. Please also note that Wymore has not gotten any funding from the donations of the MRF. So all money is a going to promote the name Morgellons so that Mary and the group can be famous and nothing is going to the cure of it.

    Randy

  250. So you guys are doing some good. All donations must go to OSU. Lets get the word out.

    Thanks

  251. Randy, I wasn’t “playing games” in that old post. I’d meant “proliferous”, and your accusation, confusing “my life” and “my experience” as being anything resembling “playing games with the lives of other people”, is what, exactly? Is Mary Leitao manipulating you, also, like Abac68 said she’d done to her? Since you’re unfamiliar with me, and I kind of like you, because seem like a pretty cool person, I’ll try explaining things to you. Even though I stayed up all night talking with you, the other night, concerned for your not fulling accepting that you have sarcoidosis, because it’s not at all uncommon to have low ACE & D readings, no lung involvement, and, yes, it does too have cutaneous symptoms, do you really perceive me as being somebody who would play games with the lives of other people? I think you could be an extremely nice person if you’d just let yourself. People will understandably, sometimes, have a difficult time offering any support and compassion to people who have no such traits, themselves.

    I was recounting things back then, but certainly not the worst of what my 2002 experience was like. As of that date, March 2, 2005, I’d been on Lymebusters for exactly two weeks. I attempted to describe everything, trying to piece it together chronologically, while I was there. Unless someone were to go through such an experience as I’d had, and come out of it, you can’t appreciate the difficulty involved in coming to terms with it and trying to talk about it, let alone, doing it in any way that could possibly resemble any form of normalcy, Randy. That experience I’d had was anything but normal, and I’d almost left this world, back then. Tc almost did too, lying in a coma. I think most everyone else can understand what a strain remembering that time could pose, though. There were others besides us, on Lymebusters, who were also okay now, and had gotten back into reality before going on there to say it was possible.

    Due to the circumstances, on that message board, my comments had to be weighed very carefully, cautiously, and be meticulously worded in a certain kind of way, by that second week, to try to achieve understanding, and avoid upsets at the same time. I had to try finding a way to say things, by prefacing nearly everything ahead of time, before posting it. It was goofy sounding, I know that, but I’d never encountered such communication struggles before in my entire life. Talking about delusions isn’t what most people every day. Well, I’d never actually been on a message board, before, either. What a way to start. People often assumed there, that I was talking to them, or about them, when I wasn’t, at all. Eventually, I’d pressed onward to arrive at the appropriate point in time, to explain that those branching filaments were cellulose fibers. They’re a component of regular house dust, that comes out of upholstered furniture stuffing as it disintegrates, and I’m real allergic to them when they contact my skin. They burn like fire. I’m allergic to a lot of things, but they’re exceptionally bad.

    Since you’re not familiar with me, I’ll give you the benefit of doubt, that you have a different way of wanting to try to understand things. So, click onto my name, “Smileykins”. Although the accounts of Tall Cotton’s and my past experiences are actually very brief, there, (considering everything), it is a rather long and tedious read, that has proven to be too hard for some people to decipher and digest. If you have the time, and need to understand, I think you’re actually smart enough to, and I really did enjoy communicating with you the other night.

    You’d really had to have been at Lymebusters from the time I’d first arrived, and followed my posts, fully, to know what I was trying to explain, and how I was attempting to go about it, so that it could be understood by others. No, actually, that isn’t true. Some claimed that they’d religiously followed me, up to the point I’d stopped short, a few times, and they didn’t understand anything. It’s a real hard place to have communication, on so many unusual levels, anyway, given what so much of the “unhealthy focus” is devoted to.

    You see, I’d been ill three years before then, with some very strange occurrences during a two month timespan. On February 14th, 2005, my adult child had awakened me with a phone call in the middle of the night, telling me to turn the radio on and try to find Coast To Coast’s talk show. They were discussing something that sounded just like what I’d gone through, back then, describing it as something called “morgellons disease”, and saying that a lot of people had it.

    At the end of the show, they gave a web address to go to, and so I proceeded to go share what my experiences were like, on Lymebusters’ message board. I’d certainly thought I’d figured out what had been the matter with me, and put it behind me, as much as I could, having never shared everything I’d gone through with another living soul. Before I began my journey back into trying to remember it all, that night, I was told that I had figured it out all wrong, because everyone on that message board had what I’d had. Well, okay, it did sound like it, at first, according to that radio program I’d just heard, and what this person communicating with me had shared, when I’d explained myself briefly.

    In those first days, after being convinced I was in the right place to finally share it with someone, there was a lot of pandemonium that broke loose as I began to. I was fine, and only telling of my experience, but all of a sudden, I had no idea what was happening. Let me say it again, and imagine this, if you’re able…”I had been assured that everyone there had the same thing I’d gone through, so I was led to believe that I was free to finally tell someone”. Plus, I really wanted to help, and let people know that if I got through my experience, all hope was not lost. You can’t imagine the feeling I’d had, or what it was like, trying to calm people down and realizing that something was terribly, terribly, wrong with the picture. Some people called me a damned freak, and this certainly didn’t make any sense, at all, since “we all had the same thing”, remember, and, it was a support message board, so it threw me for a loop in several very unique ways.

    In a rushed effort to calm people (with myself, in quite a state of shock, that would only worsen in a short time as I learned more about this group, and their practices), I told everyone that just because I’d had that happen to me, it didn’t mean they and their children were going to get like that. Besides, I was over it. I tried encouraging people, Randy, and, just for them, certainly not for myself, I strained my brain so hard, and went all the way back to my early childhood, from age one, all the way up to the present, saying that I never thought that having fibers on, or in, my skin was anything out of the ordinary, because it just wasn’t, for me. I recounted nearly every nick, scrape, bug bite, allergy, bee sting, and infection, I’d ever had, to let them know I was still alive and kicking, and they weren’t all gonna die. Things were quite different those two months I’d been sick, though. Innocent fibers seemed like they did some very strange things during that time. But anyway, intrigued, naturally, I wanted to see just why I was told that everyone had the same thing, when they so obviously didn’t. Some seemed to, some didn’t, and yet, it was said that “everyone there had this new disease”. Then, I started seeing the letters, “DOP”, as having been given out as repeated diagnoses to the majority of people, and that they’d all been opposed to it. I noticed a lot of things.

    That was a most unusual, and difficult, walk I took, seeing all that I saw on that message board, and being unable to reach most of the people there. I had thought it was a “health support” forum. I really didn’t try to offer any support, after I was made acutely aware of what I was in the middle of. I couldn’t do any good there, and neither could TC. I’d mistakenly thought that most anyone who’s ill, and literally begging for help, would actually be interested in getting support information from others who had been through what seemed like a fairly identical phenomenon. I was real mistaken about that. Things concerning this issue aren’t that simple, and no matter what way a person tries to break through, the message just can’t be received. You know that, and it’s very well understood on this end. Just talking about “this new disease”, here, won’t diminish its authenticity, nor will it deter, or detract, anything from it. For those who have a firm faith in it, you really do just need to relax. As many have stated, so often, already, “wait on the science”. If you could try to consider living your own lives instead of trying to live anyone’s else’s, for them, in the meantime, I think that might help ease the waiting period a little. Really, though, nobody can’t alter a disease with mere words.

    Randy, I’d never joke about such a serious thing. I enjoy the presence of all the people here, other than the upset brought on to those choosing to view this blog, if they already know ahead of time it will bother them. It’s a fact that stress makes any condition worse.

    If you like, choose one for me that pleases you

    In 2002…

    A. I’d had “morgellons disease” and recovered
    B. I’d had “morgellons disease” and just thought I’d recovered
    C. I’d had DOP, without needing a doctor to diagnose it

    Or, even if you want, since I’ve always acknowledged fibers on, and even in, my skin…

    D. I’ve had “morgellons disease” all my life

  252. “Mary has had trouble with anyone that ever disagreed with her and the sudden death of her husband did not help her mentally. ”

    So Randy Wynemore and the other doctors do not agree with her, and suddenly they are kicked out.

    Is this not like Munchausen’s Syndrome? To flee from doctor to doctor looking for someone to tell you what you want to hear is wrong with you? To desire invasive, expensive, horrible tests, and bark and be angry when “nothing is wrong,” because you’re still convinced?

  253. “Mary Leitao – also gave me the real name of TallCotton (which I apologise about Tall in the past) she told me on the phone to put your name in public view. I am so sorry. She even gave me your mobile phone number, but no address. I have thrown out your number, or lost it – but either way I will bin it okay, so don;t worry Tall. She told me you were Schziophrenic – like I was meant to be scared of that.”

    So we have a woman who is slandering other people, threatening their identity confidentiality and acually pushing to have it revealed, to use as a weapon, and she is still to be trusted? Am I wrong in this impression?

  254. WOW Elizabeth looks like your light bulb went on with your statement: Mary Leitao – also gave me the real name of TallCotton…..So we have a woman who is slandering other people, threatening their identity confidentiality and acually pushing to have it revealed, to use as a weapon, and she is still to be trusted? Am I wrong in this impression?
    and So Randy Wynemore and the other doctors do not agree with her, and suddenly they are kicked out.

    Are you wrong? NO NO NO NO NO you are NOT WRONG – BUT 100% CORRECT. Nobody needs to trust her or MRF. Scroll up to post 250 that I did – it explains EVERYTHING!!

    Also My eyes were opened this morning go to http://www.cherokeechas.com click on the Media link – Scroll all the way to the bottom – See the first entry at the bottom – That is were Holman found out about MRF and became Chairman – and SLOWLY SCROLL back to the top – all the Media stuff that happened after Holman came on board, BECAUSE OF HIM. NOTHING IS before the first one. So Cowles and Mary are DO NOTHING, Sit back people and RACK in the rewards. Which is totally wrong.
    I pray everybody supports OSU and the Cherokeechas website, everybody needs to support the Wymore, Holman, Dr. Smith, everybody on Cherokeechas website – THEY were the people that was getting the job DONE!! MRF in a few months will be a memory on the internet.

    TexasRose

  255. Smiles,

    I hate no one. I am only defending a real unknown disease since I know that there are some people on this site that bragged about bringing down any blog or site that talked about this disease..and that is his agenda and we know who he is.

    Mary and I have never gotten along from day one. Anyone that knows me, knows this to be a fact. I had her pegged from the beginning and thought she was damaging to this fight for recognition.
    I got beat up for that belief and it has come to pass that I was right.

    There is a great difference from those that had this and then the site was created from those that have something else and fit their symptomolgy into this disease and then get caught up in the craziness of the web sites.

    I do not deny my sarcoid. I had a skin biopsy of my lesions and they are not related to sarcoid…this fact is in my medical records.

    I have gone to doctor after doctor to try and blame my condition on something already established other than nothing or something that is unknown.

    I have failed at this attempt and have a binder 12 inches thick of all my medical records and tests including a Psych evaluation and an IQ test.

    I tell everyone..if you think you have a fungus get every test you can to detect fungus and take some lamisil, same with bacteria(erithromycin) and parasites,(flagyl).

    If the test if available get it so you can rule it out. The only way to figure out what this is, is to figure out what it is not.

    You DO NOT figure this out by going to web sites. You go to doctors and you have them tell you what it IS NOT.

    Because they will not be able to tell you what this is if it has yet not be discovered. So ..do not expect them to do that. They can only tell you what it IS NOT.

    If they tell you to go to a shrink..go and get that out of the way too..so you know it is not in your head so you can then find out what it is and where it resides.

    Science is trial and error. Discovering what you ahve is not searchng the internet and reading articles you can not understand and trying to figure out what you have when you do not have all your bloodwork and you do not have all your senses because you are so upset with not knowing what you have.

    That is not science, that is just crazy.
    If the doctors do not kwow what you have and you have gone to many of them..you may have this..but rule out everything else first.

    So do not be upset when they tell you to see a shrink or that they have no idea or to go somewhere else, that gets you closer to having this and if they find out something else, GREAT! you then do not have this. How great is that!

    Do you get my point here?

    And claiming that someone does not have something when you have not met them or reviewed their medical records or spoken to their doctors is just plain crazy and mean spirited too. I do not deny my sarcoid but this condition is not that and my sarcoid doctor told me this and it is in my medical records.

    So get every test you can afford and rule out what it is NOT. Then take what is left over and join a group that is not going crazy and scared out of their minds but logical and scientific and with all medical records in hand and then try to figure out with the help of a research scientist and doctors what is actually IS.

    That is my point. Nothing more and nothing less.

    And Mary… well no one i sperfect but just becasue she could not stand up to the pressure of being a leader for this disease it does not mean that the combination of logical, intelligent minds can not take her place.

    My fondest apologies for upsetting you.

    Randy

  256. Randy,

    I’ve already told everyone that I had lost touch with reality. I was drug induced. I told everyone that also. I did have a whole lot of real skin problems along with a delusional way of interpreting what was going on. The main point in mine and Smileykins blog was to illustrate the fact that Morgellons symptoms can be produced in variety of ways. Her’s had nothing to do with drugs, mine did. We both arrived at the same place, a place called Morgellons. Many of the so-called Morgellons sufferers have done the same thing. I believe that this applies to everyone with that self-diagnosis. It’s not that I don’t believe they are sick. That’s my opinion, but it’s a very strong opinion. You are entitled to your’s.

  257. Fair enough Bugs.

    Randy

  258. Whoops. I feel I’d better clarify this previous statement…

    Or, even if you want, since I’ve always acknowledged fibers on, and even in, my skin…

    D. I’ve had “morgellons disease” all my life

    Oh heavens, I didn’t mean that to sound the way it “might” be taken. Knowing that I can’t assume that anyone who doesn’t know better, or is unfamiliar with me, could easily take that the wrong way, I did not mean I’ve obsessed over this common fact as being anything out of the ordinary. It’s nothing unusual, was how I’d meant that to read.

  259. Very good point. I will give anyone of the ney sayers $100 to sleep in a hotel room for two nights previously occupied by a “Morgie”. Dallas or Houston, I’ll pay for the room.

  260. That is a ridiculous bet. Consider that there are about 1 million HIV positive cases in the united states. That’s 1 in 300 of the US population. Consider that a hotel bed probably sees at least 100 people a year, then it’s practically certain that when you sleep in a hotel bed, that someone with HIV has slept in it recently, and a 1 in 300 chance that a HIV positive person slept there the previous night. Yet nobody minds that.

    If Morgellons was so contagious that you could catch it by sleeping in a hotel bed the day after someone else, then the entire country would have been infected several years ago.

  261. Just as ridiculous as the other “bets” I’ve seen ..

    “I’ll come live in your house for a week, bet you $100 you won’t do that!!”

    No kidding. I can’t think of any time in my entire life that I’ve invited a complete stranger to spend a week in my home.

  262. Michael, Jeeze

    So you guys are not taking the offer?

  263. HIV and living w/ us were not part of the proposal.

  264. What offer? You’ll pay for two nights in a hotel room in Dallas or Houston?

    What about my time off work? What about my airline fare? Those costs, too?

    And a whopping $100 on top?

  265. Gosh, whatever will I do with that $100?

  266. Make a reasonable offer, and I’ll take it.

    $100 is a joke.

  267. OK so your obviously not willing to possibly expose yourself. Hmmmmm.

  268. Don’t be ridiculous. At least offer my base wages and air fare.

  269. I just checked. Airfare, cheapest is $504.

  270. And my base wage is $23/hr. 48 hours not including travel time and not even calculating overtime is $1,100.

  271. So, I am to bear $1600 in costs (not including meals or tips) for the opportunity to win a $100 bet?

    Right.

  272. Whoops. Forgot cab fare.

  273. Don’t forget that the people who have come to believe that they have Morgellons, also have cognitive difficulties. It’s in the case definition. They say that the “disease” caused it, but I think that that the reasoning difficulties caused them to fall for the myth of Morgellons.

  274. Wow- So you want me to completely pay all your expenses, plus pay for the room for four nights and $100? Where is your wager in all of these accounting fees?

  275. Frustrated, I don’t think anyone is going to take your bet. Why don’t you drop it. You may claim victory if you wish. Let’s move on.

  276. Wow, why on earth would I bear $1,600 in costs for the chance to make $100?

    My wager? You bet the $100, right?

    Don’t you see how ludicrous that is? You are asking me to bear at least $1,600 in costs, and if I don’t want to do that you are saying hmmmmmmmmm.

    Get a grip. Why should I have to pay for anything? You are the one posing the challenge?

    Yeah, you need to bear the costs. Allow me to quote:

    Frustrated Says:
    August 8th, 2006 at 9:57 pm
    OK so your obviously not willing to possibly expose yourself. Hmmmmm.

    I’ll gladly “expose” myself to Morgellons. But I’m not paying more than $1600 to do so.

    Don’t be ridiculous.

  277. My apologies, Michael.

    That $100 bet thing just ticks me off ;)

  278. Jeeze,

    Talk is cheap. Just keep talking. If you come to Texas, let me know. I will gladly hook you up with a room.

  279. Do you have bigger germs in Texas?

  280. Frustrated,

    Why on earth would I spend $1600 for the chance to win $100?

  281. And yes, Frustrated, talk is very very cheap.

    My time is not.

  282. OK lets arrange the same thing in your area.

  283. Two nights free! What could possibly go wrong?

  284. Every one of you poor people come into this forum thinking of proving something with the things you say, and guess what? Unfortunately, every single one of you do, without even being aware of it.

  285. I shouldn’t have said that. I’m sorry.

  286. For sure, two nights in my area. Remember, I make $23/hr, so 48 hours is $1,100.

  287. I can stay two nights free in my own bed.

  288. He thinks he has a communicable disease, and he’s willing to give it to a non-believer, just to prove he can.
    There is no Morgellons, but he doesn’t know that. He’s ready to set you up, and if he’s serious, that’s about as low as you can go. What a jerk!!!

  289. I charge $37.5 an hour so what is your point.
    Are you in this challenge or against it?

  290. If you make 37.50 an hour, a $100 bet is not a “challenge”.

    Get real.

  291. What is it with the Morgies and their $100 wagers, anyway?

  292. Frustrated:

    Fly to her home town and stay in a hotel room and have her sleep in the same bed, they can even change the sheets..just make sure she sits in the chairs etc.

    I am sure with computers and cell phones she will not be missing any work that way or just meet her for coffee and site next to her for a few hours and when she atarts to scratch she will understand.

    How much someone makes and hour obviously is more important than finding out the truth about something they claim they think they know without ever meeting ayone who has this or being too scared to talk to the Chicago Tribune or come out of hiding beihing the great curtain while playing with the knobs….. oh Wizard of OZ.

    Not believing that this exists is being in OZ and we do have wizards behind the curtains here, do we not?

    They call up the press that are covering our story and they try to debunk us for whatever cruel reason..just not busy enough making those big buck per hour I guess…and then they hide when asked to reveal themselves.

    Sick little game thay are playing with the lives of very physically ill people….but then there is evil in the world and it is allowed to continue when good people do nothing..therfore this post.

    Randy

    randy

  293. Randy, if people could be infected by sitting in a chair that you sat in a day ago, then the entire would would be infected by now.

    Do the math. Let’s say there is a 1 in 100 chance of infection if you come into contact with something a Morgie touched. Now, your average person touched a lot of things, at home, at work, while shopping, but let’s be conservative, and say you just have about 10 spots in the world you’ve touched that can infect someone (like that chair you sat in yesterday), that someone else also touches.

    So, per day, there is a 1 in 10 chance that you will infect someone. That means you WILL infect someone on average every ten days.

    Since this applies to everyone with Morgellons, this means that the number of cases would double every ten days.

    After 100 days, that’s 1024 times as many cases. After 200 days that’s over a million, and in less than a year everyone in the world will be infected.

    So, you ask, if I believe this, then why don’t I take your bet?

    Besides the obvious reasons of great inconvenience, and loss of anonymity (which should be enough in themselves), and the risk of catching your scabies, tinea or lice, the bet would prove nothing regarding Morgellons. Either it’s infectious or not.

    If it is infectious, then by the above math, I already have it.
    If it’s not infectious, I don’t have it, and won’t get it.

    But, as you well know, this is not actually about doing some kind of experiment. This is a ridiculous challenge that you have set up simply so you can say “they won’t risk infection, so they must believe it is real!”

    Well, go ahead and say that. If you want to use such backwards logic, it’s not helping your case.

  294. Michael, what if there was an incubation period? People may be “infected” but not show signs of it until much, much later. I believe this is the case since I, as well as others, have such a difficult time pinpointing the exact time/location/incident that caused our illness. I have a long list of possibilities, but I can’t confirm any. Since we don’t know what this thing is, how can we know how we got it? How can we know if we didn’t just get it from being sneezed on by our hairdresser, it just took ten more years until we became noticeably ill?

    Even if it were an entirely delusional illness, shouldn’t there be a catalyst? Some sort of psychological event to trigger a delusional episode?

    ah

  295. If there’s an incubation period, then by the time I show symptoms, it will be impossible to know if I got it from the chair, or some other trivial contact in the next N years. So again, it proves nothing.

    When you ask “shouldn’t there be a catalyst”, that seems to imply everyone has the same thing, so either there is a catalyst or there is not. I’ve always maintained that there is no evidence that everyone has the same thing, so everyone has different causes and triggers for their symptoms. Some people have real physical problems like eczema, some have problems like compulsive skin picking, some have psychiatric problems such as delusional disorder. The etiology of delusional disorder is unknown, but a “catalyst” is not required, or even thought to be common.

    http://www.emedicine.com/med/topic3351.htm

  296. Randy, yesterday…

    Randy Yaskal Says:
    August 8th, 2006 at 10:06 am
    Smiles,

    I hate no one. I am only defending a real unknown disease since I know that there are some people on this site that bragged about bringing down any blog or site that talked about this disease..and that is his agenda and we know who he is.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    I implore you to show us, in print, on this blog, where anyone has ever “bragged” within this forum about “bringing down any blog or site that talked about this disease”. Yes, what I am requesting you to do, is to deal in the world of reality. We simply disapprove of the fact that there have been no other places for anyone to turn to, that may have similar problems to yours, and Michael’ blog’s intention is for those who are capable of receiving an alternative, feasible, explanation of what they may fall under the belief of. While you’re looking for the entry (or entries) where this “bragging” occurred, tell us where the interference has been, that whomever “bragged” accomplished “bringing down” such sites, and inform us of the ones you’re referring to that have been brought down.

    I’ve spoken of being against feeding into people’s fears and that I wish such forums didn’t exist. We’ve spoken of being against “the disease” and what it does to people, but not about anybody on a personal level, other than the woman behind it, and “the team of experts” involved with it. There have been only generalizations, not unfounded ones, either, about people with this illness, and what it does to them. There were never any bad words to any victims with direct, personal, attacks of any sort. Randy, that practice has only been done by you, and a few other people who have the same illness, or a similar one, like what you have. You, yourselves, are revealing it to us all, outside of your regular forums, and helping to show viewers, here, what the scope of the matter is.

    The other night, you’d said…

    Randy Yaskal Says:
    August 4th, 2006 at 3:16 pm

    I have this plague.

    I know I have something which no one can analyze. ( I have been to over 30 doctors and some see the fibers but have no idea what they are. I even have that statement in my medical records.)

    I know that we all have these microscopic fibers that are not fomr clothing. I know what I know and no one can shake me from it and I will meet face to face with anyone about it.

    No matter how hard those who have the agenda to tell us that we do not have a new disease spew their venom, I challenge any of them to tell me what I do have and not that it is in my head or that I am doing this to myself because, although that hurt me at first, I know the truth. Tell me medically what I have…since doctors can not and you seem to be experts with your clothing fiber pictures.

    One day everyone will know the truth and realize that we who have this contagious disease are only trying to save the rest of you from getting it. You will get it..very soon most likely and then you will apologize for your uneducated mean spririted words.

    Randy Yaskal Says:

    August 4th, 2006 at 6:17 pm

    If anyone honestly wants to know the truth about this disease call me on my personal line..434-974-7128. Anyone who wants to meet a real person that has this..you have to come see me in Virginia. Anyone else can e-mail me on my personal e-mail cisfl2004@netzero.com

    Randy Yaskal Says:

    August 5th, 2006 at 11:13 pm

    And paranoid about morgies ewwww, Morgies…they are after me …….I am guessing a skitz too.

    I have nothing more to say to you. I am not a morgie I am a 4400.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    You don’t know how sorry we all are that you’re all so ill, but while you’re at it, reason out to us how you’re “only defending a real unknown disease” through any of your actions. You’d even said you came here the other day, because you were a venom-putter-outter. What a double-entredre. I had to look up what a 4400 is.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    Sick little game, playing with the lives of very physically ill people, you say? You and your cohorts, who demand sympathy, understanding, compassion, and caring, from others, being incapable of grasping that you have each been very ugly in making fun of Tall Cotton and me for almost dying, might want to think about whether you’re that way with people in your daily lives, too. We are doing our small part to help people, and I was extremely moved when I got up this morning and saw in the comments section, that TC’s & my blog has been helpful to someone. People need to retrace their steps, back to where it all began. It’s that simple, as complicated as it may be, for some.

    The Sci-Fi theories spread inside your forums can be real detrimental to some people who happen to come across them. The world is full of people who aren’t capable of thinking for themselves, and the power of suggestion can easily sway them into any direction. From all I have ever read, the most that you people care about, in order to bring any validity to the discovery of your “disease” is to increase the numbers. Don’t tell us that we’re doing any sick game playing with the lives of very physically ill people.

  297. If people want to quote things so they stand out, then they can use the blockquote tag, example:

    <blockquote>Someone said:
    This is what I said!</blockquote>

    will look like:

    Someone said:
    This is what I said!

    I’ve edited smileykins post above by adding these tags, for readability.   The content of the post has not changed,just the formatting.

  298. Thanks, Michael.

    (Psst! Well,you could have corrected my typos while you were at it. Haha.)

  299. I’ll correct typos if someone asks specifically. But I don’t want to be editing people’s posts, as I might accidentally change the intended meaning. One man’s typo is another man’s vernacular.

  300. A forensic scientist matched the “Morgellons” fibers to every known fiber in their database and they found that none of them were a match. They have NO IDEA what these fiber are!!!!!!!!!

    BoooYA!

    You guys going to apologize or just look like total idiots!

    Where is my $100.00? You gonna admit you are wrong or are you gonna just look like jerks!

    You need to apologize big time baby!

    Randy

  301. Michael:

    Most of us do not go out. I wear the same 7 outfits and all my other clothes are in space bags. No no one comes over my house and I have a job where I fabreeze the seat I sit at work and wipe down the area after I leave with Clorox wipes.

    If you have this and you have a conscious, you make sure that you try and not leave anything behind. I do nothug people anymore..I was always a kiss-kiss-hug person (right cheek, left cheek and a hug hello and goodbye)now I keep both arms crossed and nod.

    So be real. This show proved you all wrong. These fibers are like nothing anyone has ever seen before. So my day at this site is over because anyone who thinks we have something that has already been discovered after todays show..is living in the dark!

    Randy

  302. Yay!!! That proves it’s really disease!!! Randy, come on. Do you think a fiber would be identifiable after being exposed to all the biochemical processes inside someone’s skin, not to mention outside factors, given all the things people use?

  303. Rascal,

    Nobody bet you about what a forensic expert might or might not determine about the fibers. We knew about that determination before the show ever aired. I think the bet was about what the CDC might determie in clinical trials that they don’t conduct. Why does anyone owe you an apology for stating their opinion?

    Tall Cotton

  304. We already knew they had some unidentified fibers. What does that prove? What were the fibers made from? What would be interesting would be if they had identified the fiber as trichocytic keratin or something. Anything other than “nope, can’t tell what that is”

    (Disclaimer: I’ve not seen the show yet, I’m on the West coast).

  305. OH please..how about yout dumb comparison to clothing fibers…and

    Do you think a fiber would be identifiable after being exposed to all the biochemical processes inside someone’s skin, not to mention outside factors, given all the things people use?

    YES! The answer to that question is YES!Hate to say but that is a dumb question if you know anything at all about science.

    You guys have egg on your face. This site is now a laughing stock. Face the truth and apologize or look realy really immmature and stupid. You have lost this fight of trying to make it look like we have clothing fibers on us. Admit defeat or show your immaturity! Sore losers…just plain ole sore losers with a HUGE capital L.

    Boooya again!

    Randy

  306. OH..wait till you see it…..you will hang yor head in shame. He was basically freaked out and you can bet your bottom dollar that they tested that damn fiber thousands of times before going onto TV and stating that they had no idea what it was made of. Never seen anything like it before.

    Just wait….man it feels good to have proof!

    Randy

  307. Randy, glad you are sticking around. But we already knew that they had an unidentified fiber. That’s what they have been saying for years. Not being able to identify a fiber tells you nothing about if it’s part of a disease, or if a disease actually has a “distinct pathology”.

    How many people had these “unidentified fibers” extracted from them? What symptoms did they have in common?

    One unidentified fiber does not a disease make.

  308. Except for Anne Dill, the adults on that show looked like retards. That show on hurt your cause, and it didn’t prove one thing. It was a totally wasted effort, like all the previous episodes about this fake disease.

  309. Now gentlemen, admit defeat. 4400s know what they’re talking about.

  310. OK YOU WANT REAL? HERES REAL. PEOPLE ARE SUFFERING AND YOU ARE AN ASSHOLE. I ALMOST WISH YOU COULD STAND IN THEIR SHOES.

  311. Well, they say that they are suffering, although they don’t usually look like they are. Nevertheless, they are increasing the suffering for others by reinforcing the Myth of Morgellons.

  312. Drew is suffering at the hands of his mentally ill mother. Others have come to believe that they are dying because of of her lies.

  313. Frustrated, I know of a lot of people who wouldn’t be suffering if they could have accepted their diagnoses. They didn’t, they couldn’t, they wouldn’t, so what are we all to think of people that do such things? Yes, they are suffering from themselves and do not even realize it.

    There can not possibly be a greater suffering than that.

  314. I always see the “I want to give my doctor a great big hug,” so that the Morgie can pass along the fibers and infect them. Well, if you want to come give me a great big hug, I’ll accept. You have to fly out here or drive here on your own dime, though.

  315. I am leaving this site becuase I can not communicate with people who are blind to reality and those that can not apologize and admit they were wrong.

    So adios to all of those that have nothing better to do with their time then try and prove something, that has already been proven to be true, to be wrong.

    We have unidentified fibers causing an unidentified and yet unknown skin disease and that was proven last night. There is not arguing this FACT. If yo have these fbers and you know if you do or not…then they are the same fibers. PERIOD!

    I thought you would apologize but I am now dealing with narcassists with an agenda. The wizards of OZ hiding in the curtains trying to disprove what a forensic lab could not prove to be common fibers like your site has been claiming all along.

    Our disease has nothing to do with Mary.

    Hang on to your sinking ship people. I say good-bye to this TITANIC of a web site.

    Randy

  316. Bye Randy. If you do come back, can you say why you think there is some connection between the fibers and your other symptoms? Has there been a correlation shown?

  317. She’s a 4400. Larger problems beckon.

  318. Unidentified fibers do not necessarily equal disease.

  319. Something that I took notice of with morgie people, is that very many of them are frightened by anything in a medical report that mentions “of unknown origin”. That’s nothing to be alarmed over. Lots of conditions are idiopathic, but they think that it means something is devastingly wrong, and “mysteriously unknown”.

  320. correction: “devastatingly”

  321. TallCotton-

    You sir are a total jackass. If you had a life or an ounce of sympathy in your worthless carcus (which obviously you dont since you monitor this site and make stupid ass comments continuously) you would concentrate your and your boys efforts to helping people, not creating humor about others suffering. Think of a smart-ass remark to that asshole. PMF

  322. You’d better call him sir, thank you. Leave his boys out of this, assuming you mean his children. (That’s all I can derive from that ignorant comment, although you must have a hidden meaning inside your head, that only you are aware of.) You haven’t the fogginess notion of this man and his selflessness. Now, go get your mental illness treated like you were told to do, in the first place. How many times were you told, and you were too stubborn and prideful to think that you didn’t need to?

  323. I read these sad letters and I am astounded at how cruel some people can be when they’re afraid to face reality and these morgellon’s ARE real – I hate to tell you but it is true.

    I’m not surprised at the skepticism though – after all – wasn’t Louis Pasteur nearly laughed out of the medical profession when he discovered germs? What? Little critters on my skin and in my food and water and the air I breathe? You can only see them when you look through a little glass thing?

    You’re crazy. Now get away from me before you give it to me too.
    :) ~

  324. People often bring up the defense that great scientists were always laughed at before they were believed.

    Bad scientists were also laughed at.

    You don’t get laughed at for suggesting something outrageous, you get laughed at for suggesting something outrageous with no evidence.

  325. Don’t waste your time on morgellonswatch.com. This website is being paid for by the people responsible for spreading this disease/parasite/bacteria, whatever it is.

    Factual information can be found at:
    http://biology-online.org/biology-forum/about1958-3324.html (note that you scroll through the posts on the biology website by using the “GoTo Page…” in the upper right hand corner.

    Also see:
    http://www.cdc.gov/ncidod/EID/vol9no2/02-0222.htm and here is more:

    http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=2768446&dopt=Abstract
    I just found out it is from the tobacco hornworm! This is the insect that the parasitoid wasp does a number on!!

    http://www.sciencedaily.com/releases/2004/10/041025120719.htm

    I have been trying to tell you guys about the ricsettsia diseases, in which they now call all of them the Bartonellas:

    http://www.sciencedaily.com/releases/2005/12/051219084711.htm

    Lice Join Ticks As Possible Disease Carriers
    http://www.sciencedaily.com/releases/2005/03/050328182844.htm

  326. There’s a big difference between fluorescence and bioluminescence.

  327. Also, where is the yellow pigment production. You better jump on some other theory before they all get taken.

  328. IF YOU WANT TO HELP, SEND YOUR CONTRIBUTIONS TO OSU-MORGELLONS.

  329. Hey Smiley-

    What is your interest in this subject?

  330. Hey Smiley-

    What is your interest in this subject? Do you have a loved one affected?

  331. Smiley

    Get a life. Why are you protecting others posts? If your brain was working at all you would try to be helping people.

  332. You talkin’ to me? Are you talking to me? You talkin’ to me? (Haha, DeNiro in Cab Driver) Well, I’m interested for obvious reasons, HAHAHAHA, that so many people are resistant to, and I don’t particularly like seeing what they’re doing to themselves, to their spouses, to their children, to their pets, their families and their friends, or seeing what the end results are for so many. There’s nothing I can do as far as helping anybody who wants to believe they have “morgellons disease”. You all need strong health care advocates. I’d never throw good money away on OSU. Anyway, I barely get enough SSD to survive on each month. People who want to believe they have “morgellons disease” should be the ones to wake up and snap out of it (but I know you can’t, or won’t), and understand that they have lives, because I know I have one. I help people every chance I get, too. You’re a fine one, aren’t you, posting that childish nonsense up above to TC. Now, try to jumpstart what’s inside your cranium and realize that you can click onto words that are highlighted, and click onto either Tall Cotton’s or my name, if you need to know anymore about me.

  333. Lord have mercy, HAHAHAHA, why not read down through this topic, even, before shooting your mouth off?

  334. HAHAHAHA! Change that movie title, to “Taxi Driver”. (Fibromyalgia, brain-fog, ya know. Nah, I’m just a ditz.)

  335. Taxi Driver has nothing to do with the subject. Quit changing the subject. I have no interest in you at all. My interest is to get to the bottom of this problem.

    Get w/ the program. Thousands are experiencing a new allergic reaction or similar problem. You cant explain away the wide-spread suffering that has to be somehow related. The only one shooting their mouth off is you. PLEASE CONTRIBUTE TO OSU. IT IS TAX DEDUCTIBLE.

  336. Get w/ the program. Thousands are experiencing a new allergic reaction or similar problem. You cant explain away the wide-spread suffering that has to be somehow related. The only one shooting their mouth off is you. PLEASE CONTRIBUTE TO OSU. IT IS TAX DEDUCTIBLE.

    Undisguised hostility is not generally an effective tactic for soliciting charitable donations.

  337. If you or a loved one are affected by this yet-diagnosed problem, please send a contribution to OSU. Please find below the links required to access the OSU Morgellons registraion page and the OSU Morgellons donations page.

    TO DONATE:

    http://morgellons.okstate.edu/donate.cfm

    TO REGISTER:

    http://morgellons.okstate.edu/registration.cfm

    I feel that it is important for all those who suspect they may be afflicted with this disease to register with OSU whether or not a previous registration was recorded with the old MRF organization.

    Thanks!

  338. I feel that if a lot of people hadn’t been resistant to their doctors’ diagnoses, and suggested courses of treatment, they’d have never fallen for this made up “morgellons disease” in the first place. It’s real obvious how “victims” lead one another into very unhealthy practices they “somehow” consider to be helpful advice. I wouldn’t suggest that anyone throw their much needed money away on OSU, any more than I’d condone any of those home remedies that serve to exacerbate an already bad state, assuring to prolong, and worsen, it. None of you, “apparently”, know what’s going on, obviously, or you’d have never found yourselves to be in the positions you’re in. I know people are suffering, and that was the perfect recipe for this whole scenario. Can you stop it? Nope, I guess you geniunely can’t.

  339. HAHAHAHA? In comment #337, you said you have no interest in me at all.

    Well good grief, don’t ask me questions, then, such as you did, in comments #331, #332, & #333.

  340. Smiley-

    I will not glorify your remarks. Get some help w/ your denial.

  341. I wish I could deny the truth, as sad, and as wrong, as it is all is, HAHAHAHA.

  342. Morgellons Sufferers. I have no doubt that the experience you are undergoing is very distressing for you.

    For me, (and probably most others) it will be the findings of the CDC that will decide this issue once and for all.

    I appreciate that it must be very frustrating for people to dispute something that is obviously very real to you, and I will not (unlike certain others of note) make disparaging assumptions about your cognitive ability or dismiss you as deluded.

    What I would say is this: It is admirable that sufferers wish to alert the general public to a threat that they consider to be very real. However, the evidence (photographs, blurry videos, microscopic images) is badly composed.

    Why not purchase a reasonable camera (which isn’t very costly these days) and record decent quality video footage of the more remarkable aspects of this illness? Visible fibers under the skin, fibers emerging from the skin, a lesion discharging fibers, this ‘nemotode’ worm? Decent resolution video footage of these phenomena is very much lacking -links could be posted here and would do much to support the sufferers’ cause.

  343. Hello, Intrigued.

    I appreciate that it must be very frustrating for people to dispute something that is obviously very real to you, and I will not (unlike certain others of note) make disparaging assumptions about your cognitive ability or dismiss you as deluded.

    (“Toot-toot”?)

    I disagree with the below comment, but you’re entitled to think what you will:

    It is admirable that sufferers wish to alert the general public to a threat that they consider to be very real.

    Maybe if you had more knowledge of this, you wouldn’t think it’s “admirable” (not even in the least), to spread fear & panic to heavily influence other like-minded, susceptible, people. That’s not even half of it.

    So stick around, stay intrigued, and get way more familiarized with everything.

    Way, way, more.

  344. Maybe if you had more knowledge of this, you wouldn’t think it’s “admirable” (not even in the least), to spread fear & panic to heavily influence other like-minded, susceptible, people. That’s not even half of it.

    Smileykins, my point of view takes into account that from the perspective of the sufferers, the disease is real, and is being systematically ignored by the medical community. Real or not, it is real to the sufferers.

    With that in mind, it’s ethical for them to try to warn people, and understandable for them to attempt to convince others of their reality. If you’re right, and they are really under a delusion or lack the mental capacity to critically evaluate their experiences, even the most destructive of the responses are reasonable from a moral perspective.

  345. Intrigued, if a person mistakenly believes the crowded theater they are in is on fire, then from their point of view the ethical thing to do is to yell “FIRE!” as loud as possible.

    Unfortunately, there is no smoke, no flames, no smell of fire. Just a bunch of people yelling, and other people hearing, panicking, and getting hurt.

  346. Thank you intrigued. You make more sense than any other voice on this site thus far.

    Michael, smoke and flames are easier to demonstrate to others than fibers in skin. In addition, most people already beleive that smoke and flames can happen.

  347. If you’re right, and they are really under a delusion or lack the mental capacity to critically evaluate their experiences, even the most destructive of the responses are reasonable from a moral perspective.

    Oh, that plain makes my head hurt. In my opinion, I just don’t believe there is ever going to be a solution to this particular, longstanding, situation, Intrigued. I say, “longstanding”, because if you familiarize yourself well enough, you’ll find this has gone on for many years for quite a few people. Now, just what “this is”, exactly, is what none of us can be sure of. Many readily own the “brain-fog” symptoms they all seem to have, but not any of the other mental effects (except maybe, depression), even with them being reported, upon their registration with MRF, and used to make up the broad case definition of “morgellons disease” . Many dangerous practices are shared among this group of people, and some of them have spiralled downward into thinking that their solution was suicide. This is really bad stuff we’re witnessing.

  348. Michael, Smiley, Tall.

    Do you know anyone of your friends or family that are experiencing this?

  349. I know lots and lots of Morgies. None of them are my relatives, to my knowledge. I have communicated with many them over the past 4 years. I only know of one person that knows more about Morgies than I do. (And you aren’t that person.”

  350. So thats a NO the long way

  351. Please research Monsanto’s Cry9c bio-engineered crops. This could be the largest class-action law suit ever.

  352. Forgot to mention its called Starlink

  353. Morgellons is not a disease, a syndrome, or even a condition. Most, if not all, of its subscribers are delusional. No one is responsible for starting Morgellons as a physical illness.

    The guilty parties are those who spread this non-sense and perpetuate the hysteria. Of course, those who are using Morgellons as as a money making racket are also guilty.

  354. There is no money in this for me. It is absurd to make a such a blanket statement. We are getting close to the answer and you cant do anything about it.

  355. Smileykins

    Oh, that plain makes my head hurt. In my opinion, I just don’t believe there is ever going to be a solution to this particular, longstanding, situation, Intrigued.

    I agree that there will never be a resolution to the problem of people claiming illnesses they don’t have. That’s just an unfortunate fact of human behaviour.

    However, there are many people who are deluded into believing they have diseases -but those diseases really DO exist. So if this situation was the case, and Morgellons was a rare, but real illness -then it would follow that some of the complainants are definitely deluded but some really do have the symptoms they claim -and of that group, some have become psychologically erratic as a result of their condition.

    Now, just what “this is”, exactly, is what none of us can be sure of.
    That’s the problem, and why the CDC will be the decider here. You sometimes post as if you are certain that this is pure delusion, but here also admit that you can’t be sure. You’re right not to be sure here -it has clearly not been properly investigated.

    Many dangerous practices are shared among this group of people, and some of them have spiralled downward into thinking that their solution was suicide. This is really bad stuff we’re witnessing.
    Yes it is, but a conclusion of delusional parasitosis should only be made by exclusion. There are numerous accounts of the medical community dismissing these symptoms out of hand, without properly investigating. This seems to be out of awareness that some sufferers are just deluded. It does not logically follow that they all are, however, for reasons stated above.

    An in-patient evaluation of a number of these people would be the best way to ascertain what is going on -is there any record of this having taken place? As far as I can see, this illness might have been around for a good number of years, but it has not been properly investigated. With that in mind, I see no reason to dismiss ALL of these accounts as delusion.

  356. Michael,

    Intrigued, if a person mistakenly believes the crowded theater they are in is on fire, then from their point of view the ethical thing to do is to yell “FIRE!” as loud as possible.

    Yes, that’s the ethical thing to do.

    Unfortunately, there is no smoke, no flames, no smell of fire. Just a bunch of people yelling, and other people hearing, panicking, and getting hurt.

    You don’t know that. When you can quote a reputable medical study into the phenomenon that involves a full investigation of this condition, then you can make that analogy. Your assumption is that there is quite definitely ‘no fire’, but to these people there is a clear and present danger.

    This absolute conclusion of yours is flawed though. Until the medical community have properly observed these people under closed conditions, it is wrong to simply dismiss it.

  357. HAHAHA,
    I did not make a statement. I named specific groups of people.
    Tall Cotton

  358. HAHAHAHA!
    You’re not getting closer to the answer! You’re not even going in the right direction!!
    Tall Cotton

  359. This is more the way it happened.

    A crazy woman approached one of the ushers, saying, “There’s a fire in the theatre.”

    “No,” said the usher, “There’s no fire. You just need a psychiatric examination.”

    And the crazy woman approached another usher, saying, “There’s a fire in the theatre.”

    “No,” said the usher, “There’s no fire. You just need to settle down, and listen to your doctor.”

    And the crazy womman…..

    Tall Cotton

  360. The important part of your analogy is missing:

    Would you agree that the usher will at least conduct a proper search of the theatre to be sure, or does he just dismiss the suggestion outright without looking properly for the fire?

  361. “can you show me the fire?”, said the usher.
    The woman pointed to the side exit, “there, it is, you see it moving!”
    “That’s the exit light”, said the usher, nervously.
    “No, it’s fire, you must go examine it”
    “but, it’s just a light”
    “throw water on it”
    “ma’ma, it’s just the exit sign, please sit down”
    “you think I’m crazy, but I’m not, you all think I’m crazy”
    “ma’am, I’m going to have to ask you to leave”
    “FIRE!”
    “ma’am, please be quiet”
    “FIRE! THERE’S A FIRE, EVERYONE RUN”
    “ma’am, please”
    “see, everyone is running, there must be a fire!”

  362. That’s pretty funny.

  363. I would like to add to the recent posts that the media have done an excellent job – but wouldn’t the sick and innocent people caught up in this so far …. benefiited more from media focused on a pley for government help and assistance, rather than the medical community as a whole are completely ignorant.

    I am being the devils advocate here because I have been treated poorly by some docs also – like something stuck to the bottom of ya shoe – but it is unfortunate that some docs have got a really bad problem with communicating with some patients, and yes they really need to change their attitude, but you know doctors can only help the patient as much as the health department will allow them. I have worked in the government health system, it really is quite miserable, folk become really negative and bitter.

    I got really angry and yelled at the doc in a melbourne hospital, infectious diseases specialists, really nice man, but I could see in that mans eyes – that he knew what I was saying was all true and he saw my pain and said YES you have physical and psychiatric symptoms – BUT what it is I DO NOT know BECAUSE (my dad as my witness) RICKETTSIA does not do that to the SKIN (he was pointing to some new massive lesions on my face). He was honest. I respect that. Also he was kinda convinced within him self (to the point of showing me on the internet) Seretonin syndrome from Lexapro antidepressant, he said your symptoms fit. So what do you, one doc says one thing, then one says the other. I have always looked up to the medial community, it is only since this MRF came about that my mind completely changed, a new docs could be arseholes, so can checkout chicks in the supermarket though.

  364. Tall, Smiley Michael.

    Drop the denial bit. The only mental illness here are you guys desperately trying to prove this is all imaginary. Think about it. Thousands of people are experiencing some kind of reaction (disease, whatever) and experiencing very similar symptoms. And I can tell you from first hand knowledge (not me), the symptoms are real. I will ask you again, do you know any of your friends or family that have this?

    The only plausible explanation for your argument is that thousands have been exposed to the same kind of mind altering agent (and it is not the internet, thats silly. The internet will likely expedite finding the solution to this problem)

    Research the possible side effects of GM foods please then tell me nothing is wrong with these people that are suffering from physical ailments. (Tall, how do you know we are going in the wrong direction? Do you know more than you are revealing? Do you have a degree in anything related to psycology) In my opinion, you are a modern day Nero playing the violin while Rome burns.

  365. Intrigued, how long have you known about “morgellons disease”? How much do you know about how it came to be, and why we even know of such a thing? How many so-called victim accounts have you read? How much correspondence have you done with people who think they have such a thing? How much experimentation have you done in getting fibers embedded within your epidermis, in undisturbed, unbroken, skin? How much experience do you have with delusional illnesses?

    HAHAHAHA, I’m sorry if TC & I seemed to evade your question, but I’d thought we’d given assistance to you in telling you to click onto either of our names, to answer that when you’d asked before. I’m also sorry that your reasoning doesn’t make sense to me, or have any relevance to “morgellons disease”.

  366. Hahahaha,

    I’m looking for verifiable evidence that Morgellons is a distinct disease. Personal testimonies mean absolutely nothing.

    I’ve heard it all, seen it all, and said most of it. Should one believe his own eyes? Hell, no, not until his head is straightened out.

    I’m through looking for causes of a disease that has never been proven to exist. Miserable, itchy lesions mean nothing, as far as new diseases are concerned. There’s too many things that can cause them.

    The junk that is expelled from the skin doesn’t necessarily mean that there’s a new disease. It can be caused by a lot of different things, bad livers, bad kidneys, dehydration, malnutrition, vitamin deficiency. No doubt these bodies are toxic, but that doesn’t mean there’s a new disease.

    Everyone needs to communicate with their personal physician and treat their conditions on an individual basis. People need to get over the hangup of being called DOP. Treat it, and quit obcessing over Morgellons.

    If physical problems persist “after” treating the mental aspects of this experience, and “after” having counselled about the obcessive behaviors, then get a physician that will work with you with the physical aspects of your condition.

    Tall Cotton

  367. Hahahah, so you know two or three people who think they have Morgellons. Their descriptions sound similar to what exactly?

    How do you know these people have the same thing as the thousands of other people who filled in the the MRF survey? There’s no criteria for being counted, and the survey listed a whole bunch of symptoms that anyone might have.

    What makes you think that your friends have “the same thing” as the people who filled in the survey? What symptoms have you observed, and what online description of other people does this match?

    Are there people who claim to have Morgellons who have different symptoms from your friends? Who has “real” Morgellons?

  368. Smoke and mirrors guys, that is all you are producing.

    1. Do you know anyone w/ this.
    2. Have you researched the effects of GM food.
    3. What do you want to gain from your position? How does it help? Do you really want all these folks to just go away as mental? That ain’t happening.

    Can you provide 1 single case of a “morgie” that is mental?

  369. Intrigued, are you Dr.Wymore? (Hehehe, sorry just gotta ask.)

  370. Hahahaha,

    1) No I don’t know anyone, I’m basing my conclusions on the presented evidence.

    2) http://www.cqs.com/50harm.htm – but even if all these health problem are correct (which I strongly doubt) what has this to do with a new disease? New diseases crop up all the time, do you have ANY indication that this is anything to do with GM food?

    3) I have nothing to gain. I’m a retired computer programmer, doing this to pass the time, and because I feel it is helping people. I don’t think everyone is “mental”, I think there are a lot of physical causes of these symptoms, but I believe delusion is a factor in many cases.

    According to the MRF, 95% of people who think they have Morgellons have been diagnosed as delusional. While I don’t think it’s quite that high, I think it’s highly unlikely that every single diagnosis by thousands of doctors is wrong.

  371. HAHAHAHA asked…

    “Can you provide 1 single case of a “morgie” that is mental?”

    This would be a better question. Can you provide 1 single case of a “morgie” that is NOT mental?

  372. In their investigation, the CDC established that 28 of the people who filed adverse event reports (AERs) with the CDC after eating corn products containing the Cry9C protein had experienced a true allergic reaction, unrelated to any other medical condition. The human allergic response produces IgE antibodies to the offending antigen, which can be detected in blood serum; consequently, the CDC initially developed an ELISA test for Cry9C-specific IgE antibodies. Coded serum samples were analyzed from three groups of people: the 28 individuals who reported experiencing an allergic reaction to StarLink; people reported to be highly sensitive to a large variety of allergens; and historically banked serum samples collected before Cry9C entered the food supply.

  373. Tall-

    Your a funny guy. What is your goal in this?

  374. Smoke and mirrors guys, that is all you are producing.

    What? How have you arrived at that conclusion, and, what are the people who think they have this producing?
    Answer: Skin damage, scabs, granulomas, skin cells, necrotic debris, perhaps mineral deposits, fibers, lint, hair

    1. Do you know anyone w/ this.
    Answer: That stuff I listed, sure, a lot of people have that
    2. Have you researched the effects of GM food.
    Answer: I’ve read a whole lot about, yeah. “Researched”, no, but I probably know more about it than you
    3. What do you want to gain from your position?
    Answer: To diffuse this fear
    How does it help?
    Answer: Oh, fear “helps”?
    Do you really want all these folks to just go away as mental? That ain’t happening.
    Answer: Hey, it ain’t my choice, and I’m not in anyone’s life to be an active participant in their health care
    Can you provide 1 single case of a “morgie” that is mental?
    Answer: A “single case”? No, nor multiple cases, but it sure appears that far too many people need assistance. Anybody in their personal lives that haven’t gotten involved, okay, wait, let me just say this…..

    How many doctors have you ever been to, in your lifetime, so far?

  375. Tall-

    Yes I can produce 1 morgie that has more sense in her toe-nail than you have in your entire body

  376. HA? You see that last part of that old report, where you stopped off at?

    Coded serum samples were analyzed from three groups of people: the 28 individuals who reported experiencing an allergic reaction to StarLink;

    people reported to be highly sensitive to a large variety of allergens; and historically banked serum samples collected before Cry9C entered the food supply. Their study could not confirm a link between Cry9C and the production of detectable amounts of Cry9C-specific IgE.

    However, the CDC report provided a carefully worded conclusion, stating, “Although our results do not provide any evidence that the allergic reactions experienced by the people who filed AERs were associated with hypersensitivity to Cry9C protein, we cannot completely rule out this possibility, in part because food allergies may occur without detectable serum IgE to the allergens.”

    In summary, the CDC did not exhaustively resolve the issue of allergenicity to Cry9C. The CDC’s guarded conclusions still leave the EPA with the responsibility to decide how to regulate GMOs containing the Cry9C protein and related compounds, and the wary public to decide, once again, whether to feel reassured or apprehensive about eating GM food.

    Sources

    1. Centers for Disease Control. 2001. Investigation of human health effects associated with potential exposure to genetically modified corn. A report to the US Food and Drug Administration from the Centers for Disease Control and Prevention. http://www.cdc.gov/nceh/ehhe/Cry9CReport/executivesummary.htm

    WHAT’S THAT GOT TO DO WITH “MORGELLONS DISEASE”?

  377. There is no “Ha” to it. I asked you to do your own research and you requested some info from me.

  378. Hey, listen, HAHAHAHA. If you have someone in your life that knows they have food allergies, why in the hell aren’t they avoiding the triggers, as well as adequately working with their doctor to treat them? Huh?

  379. and quoting your post

    “However, the CDC report provided a carefully worded conclusion, stating, “Although our results do not provide any evidence that the allergic reactions experienced by the people who filed AERs were associated with hypersensitivity to Cry9C protein, we cannot completely rule out this possibility, in part because food allergies may occur without detectable serum IgE to the allergens.”

    In summary, the CDC did not exhaustively resolve the issue of allergenicity to Cry9C. The CDC’s guarded conclusions still leave the EPA with the responsibility to decide how to regulate GMOs containing the Cry9C protein and related compounds, and the wary public to decide, once again, whether to feel reassured or apprehensive about eating GM food.”

  380. My boys dont have allergies to anything except this crap.

  381. Okay, I won’t shorten your name anymore, HAHAHAHA. Maybe you’re replying to someone else, but all I had asked, was how many doctors you’ve been to, in your lifetime, so far. I’ll ask now, since you have someone with what you think is “morgellons disease” (apparently), in your life, how many doctors “they’ve” been to, and have you ever attended an appointment with them?

    What do you want me to “research” about GM foods, anyway? What do you need to know?

  382. HAHAHAHA,

    Your friend must be pretty smart.

  383. # HAHAHAHA Says:
    August 24th, 2006 at 10:12 pm

    Tall-

    Yes I can produce 1 morgie that has more sense in her toe-nail than you have in your entire body

    # Smileykins Says:
    August 24th, 2006 at 10:26 pm

    Hey, listen, HAHAHAHA. If you have someone in your life that knows they have food allergies, why in the hell aren’t they avoiding the triggers, as well as adequately working with their doctor to treat them? Huh?

    # HAHAHAHA Says:
    August 24th, 2006 at 10:29 pm

    My boys dont have allergies to anything except this crap.

    What we have here is failure to communicate. You have a female morgie in your life, plus we’re discussing “your boys” being allergic to GM corn, only, or all GM foods? What point are you trying to make?

  384. Uh-oh. I just reviewed from a couple of days ago…

    # HAHAHAHA Says:
    August 23rd, 2006 at 8:48 pm

    Please research Monsanto’s Cry9c bio-engineered crops. This could be the largest class-action law suit ever.

    Please don’t delude yourself into believing that. There is OBVIOUSLY a whole lot you need to learn, and if you’re that interested in it, what’s holding you back from learning more about it?

  385. My boys is Houston lingo to someone very dear to me. Sorry if you dont understand.

  386. I get it! Your boys are just one allergic person, and you know a morgie with a sensible female toenail.

  387. no allergies here. thanks for the concern

  388. Starlink Cry9c Look it up between your posts

  389. I have done alot of research on that subject. Have You?

  390. HAHAHAHA, I could only surmise from your comments, that you were inferring that GM corn is related to what’s called “morgellons disease”. I’d thought that a female morgie that you know personally, has allergies, at first, and that you & she are saying it’s “morgellons disease”, instead. Then, it seemed that you dropped talking about her, and without knowing your “private lingo” I thought you were then saying that you have children with allergies to GM corn. I’m sorry I’m having trouble understanding you.

  391. I personally disapprove of using the word, “research”. I have “read” extensively on biogenetic crop engineering, and I live where many of the major chemical companies behind the science are located. I disapprove of the word, “research”, because I found it to be very misleading, to me, even, when I first heard the words, “morgellons disease”, and entered into message board conversations on it. Anyone new to the topic, when reading about so many people peering into microscopes, and “researching”, may take that the wrong way.

  392. Ok, everyone has the right to their own opinion. Our opinions are different. You have a point, lets not make false hope. However, Morgellons or whatever you chose to call it is a major problem. Lets work together to find its cause. It is not imaginary. I am providing the best ideas I can come up with. Simply dismissing it isnt an option. There are too many people w/ the same symptoms. Lets stop the personal attacks, OK?

  393. Ok, everyone has the right to their own opinion. Our opinions are different. You have a point, lets not make false hope. However, Morgellons or whatever you chose to call it is a major problem. Lets work together to find its cause. It is not imaginary. I am providing the best ideas I can come up with. Simply dismissing it isnt an option. There are too many people w/ the same symptoms. Lets stop the personal attacks, OK?

    Cool. What theories do you have, that are not personal attacks?

  394. You might wish to do away with the HAHAHAHAHA moniker.

  395. See, what I am getting here is that it’s okay to call me a frelling idiot because I am a “Non-Believer” but when a “Believer” wants to make nice, all is forgiven.

    That’s a tad rude.

  396. If it weren’t for Mary Leitao’s refusal to get evaluated and treated, rather than having done what she’s done, none of us would be here, and I wouldn’t be making any personal attacks on her, or saying anything about Ginger Savely, Dr. Stricker, Dr. Harvey, Dr. Schwartz, Dr. Smith, Dr. Casey, Dr. Wymore, any nurses, any other doctors, Chaz, Cindy, or whomever it is that you mean, HAHAHAHA.

    I do feel bad for that woman (as hard as it is to believe), but not as bad as I feel for her children, and surely not as bad as I feel for all of her followers. Any professional person who really and truly is deluded into the belief in this, I feel equally sorry for, and if they’re that ill, they all need time off from their jobs and treatment for it. They’re in the way of really messed up sick people, exploiting them to such an extent as this, so far, and God only knows, but I think it’s going to end up just as tragic for some people, maybe moreso, than if they had never signed onto her false belief.

    This is a major problem, and it needs taken care of, by each person, individually. Michael, nor anyone I am aware of, here, has “simply dismissed” anything. He is bringing clarification to this, proving things like nobody else has done. Do you not understand what this blog is for, HAHAHAHA? I think you belong on a “morgellons disease believers’ forum”, if you were meaning to post ideas for what you think is causing such a thing. You’re welcome here, of course, I just think you may be a little bit confused. Also, you popped in here and began getting personal, so I don’t entirely understand what you’re talking about, again, telling anyone to stop the personal attacks.

    #323 HAHAHAHA Says:
    August 11th, 2006 at 1:20 am

    TallCotton-

    You sir are a total jackass. If you had a life or an ounce of sympathy in your worthless carcus (which obviously you dont since you monitor this site and make stupid ass comments continuously) you would concentrate your and your boys efforts to helping people, not creating humor about others suffering. Think of a smart-ass remark to that asshole. PMF

    I think we’re all more than clear on not thinking this is imaginary. I’m too aware of the fact that plenty of people have needed someone with them to help at their doctors’ appointments, and that they’ve helplessly run from one doctor to another, without anyone there to guide them, and help them follow through on treatment recommendations. I’m appalled, disgusted, and in shock and disbelief, that people have not gone on to to get to the root of their causes for being so ill. It is beyond anything that anyone has ever witnessed, that many people have this notion so deeply implanted, that anything they do have, and are aware of, they really aren’t aware of, because they believe it’s all entirely due to a non-existing “morgellons disease pathogen”.

    I know this situation can’t be dismissed. Listen to them. The CDC has been saying this is not a disease, for how long now, until they’ve had to do more. A very mentally disturbed mother who’s publicly admitted she’s suspected of having Munchausen-by-Proxy syndrome, programmed all these vulnerable followers of hers, driving them to promote her ridiculous 400 year old disease. Look at how relentlessly they search, and search, and search, for something outside-of-the-box. Look at how they torturously examine crud that needs washed down the drain and thrown into the trash, but instead, they colorfully describe it, and post pictures of it on the internet.

    Look at how they’ve all followed her, but how many of these people have followed the CDC’s instructions? From what I can tell, too many have ignored what they’ve directed them to do, just the same as they ignored how many doctors? They’ve utterly lost themselves. What were all the people who’ve fallen for Leitao’s concocted “disease” doing, or planning on doing, with the rest of their lives before they signed onto this? They need help. This false belief is anything but help. She’s easily programmed people, telling them to buy their microscopes and woods lamps, and write those letters, and obsess, and obsess, spreading her style of madness to the masses. There is no such thing as “morgellons disease”, and when you keep on looking for something that doesn’t exist, that’s a lifetime guarantee of remaining stuck, forever, in a fitful search outside-of-the-box, rather than dealing with the simpler task of what’s there on the inside.

    If you don’t see it for what it is, don’t fool yourself, you’re a morgie too, HAHAHAHA. All it takes to be one is to believe in it. If it benefits you, well, then, I think that’s great.

  397. Can I just say that these last posts have given me the complete creeps. I feel as though the registrations have gone from 5,000 to 2,500 to what feels like 15.

    I haven’t read alot about the Munhunson Syndromy via Proxy (

  398. Michael – I read the document. Did you want me to comment on it? It strikes a nerve – not just with ML either..

  399. SarachConnor, I’m always happy to hear what you have to say.

  400. I felt a bit upset about something for the past week and a bit. My ma said to me on the phone that her and da reckon I put weight on. This was just prior to the full moon and my cycle. I was as pissed off as hell. I said ma I am feeling so damn blotted.

    Really I just want to scream, I have tried with all my heart to address these stupid ‘issues’ with ma all my friggin life.

  401. Cant help but notice that your are deleting your own sarcastic remarks and leaving others on the post, only to “try” to one up them intellectually them at your convenience. You are not convincing anyone that your IQ is in the stratosphere. When this many people are suffering similar symptoms, it is not imaginary. That said, lets discuss possible causes besides mass hysteria. That does not make sense. Some sort of reaction to the food, water or air supply makes total sense. AIDS wasnt a disease either years ago.

  402. HAHAHAHA – Stratosphere and IQ?? I do know what an IQ is yes. I have no idea what stratosphere means. I don’t have friggin AIDS. You need a bandAID on your mouth.

  403. HAHAHAHA – Could you please define for me ‘This many people”? and I guess with your last post you were referring to Michael – well sorry but I just could’t resist and I guess I type faster than you………………

  404. Sarach-

    My last post was not directed towards you (it was directed towards the guys suggesting my mothers suffering was like their hampster) The last estimate heard was 5,000 with symptoms generally described as Morgellons. GM something is at work here. IMO

  405. Tell us about your mother, HAHAHAHA. Not the rest of the “5,000 with symptoms”, just her, and what she has going on, please.

  406. HAHAHAHA – I am sorry BUT I have not got a clue what you are talking about.

    This entire situation is a complete rape and hyjack of my spirit, whatever the hell it is – that is my word for the past few days. Some dick wads had me thinking rape of MY DNA by aliens.

    Please tell me what you mean by GM & IMO???
    This little duck can’t cope with secrets and lies anymore. Does anyone really understand what it feels like to live your life being completely honest and loving to everyone BUT yourself, to the point where you feel like everyone is trying to kill you??

    Sounds F,,,, crazy yes indeed. The Munchi Crunchi syndrome just sets the wheels in motion, it really starts to speed up with all the stress, like a domino effect…..

    oh yes and that is when the higher power, the “lord moving in mysterious ways” is felt within your soul….this gave me a guilt trip because I had not prayed for years, I turned my back on my faith, it hurts me to tears. BUT shit my grandad has gotta be helping me I just know it I asked him to please be my guide…and he is.

    MARY LEITAO – You are really one very very sick lady. I have to tell you this. I type this from me to you.

    WHY did you do it?

    Kerry from SLIMEEEEEEEEBUSTERS sent me an email – full of not nice things – telling me this (suffering Morgellons Disease)was not just about me, lots of people ARE suffering. NOT VERY CLEVER MARY – This IS ABOUT ME BITCH.

    You have had 3 children, how selfish of you, I have not had one, I have my cat though, but your kids are allergic to cats. I find that bizarre. – my opinion (Mrs puppy dog on a stick lady!)

    I told you Mary to go and get your kids fixed for allergies so did Tony. We said Mary NATE do it, get the kids well, we were so excited. BUT YOU sounded disappoointed, WELL don’t you think that scared the living crap out of me. I was thinkin my good doc was trying to KILL me by reversing my immune system to attacks itself. See how I am a thinker, not crazy poison lady like you

    I was trying to see through this insanity – BUT YOU just kept on perpetuating it, because your friggin child had fibers/fluff/hair/snot/sandwich/and your wet smoochy kisses hanging off his lip which was meant to be eczema right….

    Looks more like someone DUG something out that little LIP. I could be wrong crazy lady – may have to check that picture again, but you know I had eczema at 19.

    So if I am wrong about you digging something out of DREWS LIP to put under your friggin MICROSOOPE – you know what —

    I DO NOT CARE!!!! BECAUSE you DO NOT DESERVE AN APOLOGY FROM ME. You can ROT IN HELL!

  407. HAHAHAHA, Michael does not delete posts. This is not Lymebusters.

  408. Yay, Sarach. I was flipped out when I first learned of this whole thing. I mean, as it unfolded itself to me, just from looking at MRF’s old website, in February ’05.

    Then, when I realized the state of mind many of her followers were/are in, and saw how they used to praise the mention of her name, I was always so stunned inside, like, “WTF?” I didn’t go looking into anything, but as I was on my way out, exiting another morgie message board, I had to leave by saying something about how wrong the picture was. Nobody cared, though.

    Morgies jumped me anytime I’d simply wonder about Drew’s condition, yelling to me that Drew was suffering from lyme disease, and how dare I, and blah, blah, blah, just for merely asking if anyone knew anything on how he was!! I’ve never seen that he had lyme mentioned anywhere, ever. You know how they are, though. But anyway, I just asked for an update, and thought it should have been strange to everyone else too, but no, it wasn’t, and where the lyme disease story came from, well, you know how they are confused about so many things.

    Anyway, when I made my final exit on that other morgie board, I did it by saying how extraordinary it was to have founded an organization due to her child’s ill health from this so called disease that she named, and that not a single update was ever given on his condition in all those years. All there ever was, were those same old pictures.

    A new, updated MRF website appeared. An update on Drew, too, and he suddenly wasn’t a little bitty toddler anymore, and picture captioning said that he was recovering from what his doctor’s had diagnosed as eczema. And then, and then, and then….

    I knew all along the woman was out of her tree, but I thought she was really doing it to make a name for herself. I didn’t know she is mentally ill, until she came out with it herself in the news recently. I’d thought she was just a predator, before then. She sure has spawned one helluva mess.

  409. Excuse me. I didn’t edit, and I see that I seem like I went on the blink there, with the lyme disease segment. Sorry.

  410. Too late to be admitting to a mental/emotional/physical health issue at this stage.

    Personally I don’t give a shit what drove that woman MARY LEITAO to do what she did, she WAS SUPPOSED TO HAVE the ‘brains’, ‘education’ blah blah to ASK for some HELP long ago. I did. When I didn’t feel well I went and told the doctor, that is what you do, they give you a diagnosis and on your way. Well that is how it was in the good old days, I still have smoke coming out my ears – so I am still a bit bitter about that.

    Drew never had Lyme – BUT she made sure that she sent me email, which TONY was to get me to read whilst I was on that friggin IV for 10 months, – to let me know that little Drewsy had a really bad asthma attack and he nearly died. She was playing the games, I felt guilt do not know why….. GUILT??? – Mary you better get used to that word, because that is now your best friend.

  411. Morgies jumped me anytime I’d simply wonder about Drew’s condition, yelling to me that Drew was suffering from lyme disease, and how dare I, and blah, blah, blah, just for merely asking if anyone knew anything on how he was!!

    Heaven forbid that you ever suggest Travis Wilson didn’t die of Morgellons. Even his own mother now believes otherwise, but by golly, the Morgies have a martyr and they are not about to give that up!

  412. I know. And Josh died of a brain tumor, but they’re convinced that his death was caused by Morgellons. They’ll use anyone’s death they can, in order to further their cause.

  413. SICKOS THE LOT OF THEM

  414. Too many are unaware that they go in and out of changing their tales on things, and that their words have been left behind to show it.

  415. I would like to kick their arse – because from where I stand at the moment, I am at fault – coz my mum is not going to enjoy her holiday now because she tried it on me again, and I coped the shit from Dad also – they don’t want to hear from me when they are on holiday (not about my sickness anyway, fuckin lovely). And Tony – well thats obvious – he is displaying his lovely demented look

    Some of the wonna be experts amongst us may call that – “sitting and having a quiet drink in front of the TV” snobs

    I guess you want me to spill my guts about receiving emails from the other dickheads involved in this mess. I hope you people are doing this for the right reasons, because I am overtime and you are milking me on my fear and this it not fair.

    My parents think I am crazy – I said Mum the doc is treating me for DOP – why else would he treat me the way he does and especially give me treatment (or no treatment???) for Morgellons which has proved to be nothing than abuse so far. “What, what – I don’t understand”.

    This is TRUE – She made me take in a container what came out of my skin (by the way it did). It was the only specimen I kept, purely because it was a horrible experience, my skin was ill. I was trying to think ahead, just in case anyone ever asked. I didn’t WANT TO DO THAT – and I will never forget that night in the appointment with my parents and they were cyring – I was so distressed and in physical pain after the IV and coming off the medication. Then the next day I end up at my shrinks my parents drive me in, it was so degrading – I collapsed (fainted) in the foyer of the psych. ward where my shrink works, they thought I was a friggin nut. How many times do you have to fall down – I never ever fainted in my life until I went on psych medication, I was told it was just a bit of anxiety. Yes I know I really enjoyed my first Xanax attack fun!!! not to mention – I will try to kill myself now, I don’t quite know why but it just seems to thing to do this evening!!!!!!! (1st attempt on life, stopped after the 2nd)

    Good start to a so called first date, after my marriage broke up – I fainted whilst entertaining my male guest – I woke up in the shower (cold) in just my nickers – he was trying to bring me round, great thanks!! Then I vomitted then I had the runs. And that was when the abuse in my life really set in.

    The male guest – he got in my life, my home, brought his friends over & I think even sold tickets – then they gave me a date rape drug and the rest …????????????????”>/?????????????????????????????????……..2006

    I don’t want to do this anymore.

  416. Sarach. Do you need Tony?

  417. Mary Leitao – I will email you my CV just so you can frame it next to Dr Wymore’s and I can do the same from this end. I will frame mine and wipe my arse with Wymores – sound good?

    What else am I to think Mary – he was ya best buddy at the start – then last phone call we had, you couldn’t give a shit.

    You remember I asked how he was, and extending my THANKS THANKS THANKS THANKS THANKS THANKS THANKS yet again.

    I bet you are loving the fact that you are bringing the gutter mouth out in me hey???? Thought as much.

    Good – you belong in the gutter : I am just expressing my anger through freedom of SPEECH!

    After what you have done to ME and MY famly – I feel at this point in “MY LIFE BITCH” that is all I have left.

  418. Smiley – I need a roof over my head – does that answer your question.

  419. Just to add further salt to my wounds – Tony says : “my personal opinion of your shrink – he doesn’t give a rats arse”

    I was hanging on to the real hope that he was helping me. I shall ashame mushroom position (Marshall protocol).

  420. Heck, that IS him you’re talking about. Sarach, your mom tried to break you when you were a tiny thing so she could control and dominate you forever. Thanks to her doing that, you have had it ingrained inside of you all of your life that you are powerless over situations. You can break free. You can. You have to start with her, because she is the one who did this. You can’t let your guard down thinking it’s ever going to change with her. Change can only come from your end, not from her. You have a brilliant spirit, Sarach, and you know it as well as I do. There is too much shit hitting you all at once, but you’re on the right track now. This is only the beginning, and you have to go slow, and methodically, conscious of each step along the way to unlocking you, and your potential, so that you can be free!

  421. I misunderstood, thinking you’d said he came into your life, and your home. I don’t know, Sarach. But, of course he’d put your shrink down, that’s typical of controllers. You know that, and if you were hanging onto the hope he was helping you, YOU ought to have known it, NOT Tony. Dang it. Did you stop, to keep the peace? He was just like your mom, afraid he was going to be talked about. You need therapy, and you NEED to not tell those two a damned thing about it. Now, I know it’s only natural to want to share things with the people in your life who are closest to you, Sarach, but come on, love does not hurt!!!

  422. Smileykins – YOU got it wrong. Tony has been my friend for 19 years. This was a man who asked me on a date.

    I might not have a diploma on my wall with letters FRACP crap ….OR come on in dear, take my pills and we will fuck you over!!!

    Christ all mighty – what the hell is the reward going to be at the end of this. Every body is doing THEIR best(which is questionable) to find a mold to put ME in. If you want to research me I guess I will have to ask Michael to hook up a bank account wire for you to send your money to Australia. THIS does not have to be a slow process, I did NOT pop out of a text book – my name is not DSV-kiss ya arse. The Medical Community & Drug Companies – what a great topic for the ABC Radio here in Melbourne. Because I have had enough -I have decided on my story thanks and that is what I am going to tell the media – I have been ABUSED by the wanking medical community/drug companies/research Unis and all the other maggotts and parasites that come along for the ride.

    I have run myself into the ground doing this – do you have any idea how ill I feel and terrible I look (NO you don’t because it was the medical community that did this to ME in the first place – then I met HELL —- the Pharmaceutical industry) You are all Munchy Monosters or is that Morge Monsters – “Doctors abuse patients to threat their own DOP”…. I like the sound of that – wonder think “EXPERTS”.

  423. EXPERT

    EX – is an unknown quantity

    SPERT – is a drip under pressure

  424. Nice typo isn’t it?

    Should read – What do you think EXPERTS!!

    Stupid question really – the so called experts I have met don’t think………just dictate and label.

  425. If “MARY LEITAO” is a real person – she needs help (kick in the head first) – fits the description of Mrs MUNSTER HOUSIN, given you don’t disagree/argue/change your mind etc on a different diagnosis before tomorrow morning.

  426. Sarach, all I can do is apologize for my mistake, and hope to learn from it. I didn’t know you weren’t wanting anyone to try to understand and comment back to you, and I meant no offense. From #418, at the end of the paragraph just preceding the criminal acts, and from the statement at the bottom of that comment, I couldn’t tell that you weren’t meaning Tony. Again, I’m sorry.

  427. Hi Smileykins – Sorry if I confused you yesterday, but I was sooo tired after my night shift duty! Have a bit of a cold – but I will get over it.

    The person who did the criminal act was a second hand car salesman, horrible man – it is really horrible how all this still kinda haunts me, even though it took me years to remember what really happened.

    I try to forget and move on.

    Tony – well – he is struggling with the alcohol big time. This just sent me down hill on the weekend, and after the arguments it has caused with my parents, oh boy – not good at all. This is not fair on my dad he has cancer and I don’t want to lose him.

  428. Today is also hard for me because he has a day off – car needed a service, it broke down the other day.

    So I am wandering around a bit lost. I keep walking around the back garden, but it is such a mess, all over grown the plants are up the brick work.

    Sad – I spent so much time working on the house and garden before I got really sick.

    The stress for us both has been tremendous – and we just do not know what to do.

    I will just keep on keeping on hey?..

  429. Smiley-

    I tried telling you about my mothers case, but was ridiculed. Mom is a classic “morgie” She has constant scalp crawling, brain fog, and produced a specimen from her face that wriggeld around like an octupuss antanea under a cheap microscope. Please dont make fun about this. I saw it and I do not have the symptoms.

  430. Sarach

    GM means genetically motified
    IOM means in my opinion
    Stratosphere means something way up there.

    GM crops are cotton, corn (Cry9c), potatos, etc. that have been geneticaly engineered to the point they are not longer natural. It is not beyond the realm of possiblity that this could be the problem.

  431. please excuse the spelling

  432. Jeeze-

    If you dont delete posts, where is the remark about the hampster foaming at the mouth?

  433. HAHAHAA – So sorry to hear you are feeling so down, please try to be positive, be strong for your mum. She is in pain, and she does need professional help.

    Well with the description you have given me above, I guess now would be the best time for me to start my NEW business.

    “Space Suits with matching Accessories”

    These will include: Designer suits, boots and hats. Helmets with adjustable straps etc etc.

    Ladies you have to check this one out: I will also colour code your MAKE-UP to blend in with your suit!!!

    Things are looking up people.

  434. There ya go. An un-realistic response to someone who cares.

  435. Ok, you are obviously the same folks,

    Why not shove a rocket up your ass and fly to the moon. You could collect rock samples while you are there.

  436. HAHAHA – I don’t think we need to collect rock samples, seems to be enough of it in our atmosphere, with global warming and all.

    I do care – otherwise I would NOT be doing this.

    My comments were purely to help lift our spirits – this is very hard on me and all around me, if I can help make anyone have a laugh along the way I will. That joke was not at your expense at all, just my silly sense of humour. Is that okay?

    Too much doom and gloom in the world, this no way for us to live.

  437. 438 posts and no help what so ever. This website is sponsered by……..

  438. What has the sponsor of the website got to do with debunking Morgellons Disease? – which in fact HAHAHA is NOT real?

    Your Mom has another sickness, and she really needs some help. You have lots of doctor friends, can you not ask them to help you?

    Children should not take on the responsibility of their parents worries OR sickness. Please try to tell someone she needs help.

    Take care

  439. HAHAHAHA,

    I’m the person that made a comment about my hamster. I don’t recall anyone else commenting about a hamster, except me. I’ve looked for that comment so I could see if I said anything comparing my hamster to your mother. I don’t remember doing that or remember talking to you about it at all. I may have made fun of all morgies. Now that is possible. You need to get over it. Besides, this is not a Morgellons support forum. Get a grip.

    Tall Cotton

  440. HAHAHAHA, from what you’ve said, I’d thought that you had to be the former, “Houston”.

    Under the topic heading, “CDC Paper on Morgellons”, you’ll find that nothing has been deleted. We don’t know your mom. I only make fun of people I know, but not when they’re sick. (Well, but you know, it depends on what they’re doing. They might do something funny.)

  441. Houston, please try to decide what you want from us. I’m not going to call you “HAHAHAHA” anymore, because I think every time you see it, you think you’re “being ridiculed”. I’m sorry that you and your mom think she has “morgellons disease”. How long has she had the symptoms you mentioned, do you live with her, and what’s it like to be around her?

  442. Hamster/hampster comment:

    http://morgellonswatch.wordpress.com/2006/07/12/cdc-paper-on-morgellons/#comment-2914

    Like I’ve said before, I only delete housekeeping stuff now, like spam and double posts, and requests for corrections. I would delete someone’s post if they asked me, and there was good reason (like they accidentally posted their phone number).

  443. Michael – sorry mate – your are lying. Why did you or someone delete my whole written post when I was admitting that Mary Leitao was a Munchhansen Syndrome via proxy.

    This DID happen and do NOT TELL ME OTHERWISE. You know I do not lie to you in my emails. I have told you everything what more do want my bank account details, well you might as well go for your life – I don’t have much money anyway. But I wouldn’t do that coz I ain’t that STUPID

  444. I don’t delete posts, and nobody else can. It was probably a post in a different thread, probably this one:

    http://morgellonswatch.wordpress.com/2006/08/25/occams-menopause/#comment-5131

  445. No Michael – go back and find the one I said Mary Munchhunson shit, it just ended badly I always use a full stop at the end of sentence. I am a friggin fast 100wpm typist. Do you think I would do that. Fuck off idiot.

  446. It seems that WordPress can be quirky sometimes. Every now and then I’ll see new items on the “Recent Comments” list, but they do not appear when I click on them, and also now and then posts that I have submitted do not appear straight away. Usually waiting a few minutes and then refreshing the page does the trick. But I can see how it might appear that things are being deleted, even though they are not.

  447. After I read your link about the diseasae. I said yes rings true can relate it to my life. BUT is that diagnosis just another lie and diversion that we can add to this. Go find that fucking post please, I do remember I told Tony what happened, no one is fucking listening to me. I am going to break this fucking keyboard, if I bang it any harder.

    Internet dick wads can you feel how hard I am banging the keys. I will come and bang on your fucking head.

  448. Shit is happening to this computer all the time. Tony is a computer whiz!! That is what scares me, I feel as though I am surrounded by people who are creating more loose boundaries and putting me MORE and MORE AT risk. He let the virus software renewal lapse, he never did shit like that. We have a firewall but he tells me people have got in through MSN hotmail, well how the fuck did they do that. Gee Thanks McAavee firewall. The hack attempts on this computer, is in the thousands upon thousands every day. I have tried to track them, they ping all over the place. When I checked that out during my first paranoid moment scared the living shit out of me. Tony even fed more into my paranoia because he had been drinking, but why would he hurt me he has been my life long friend. It just doesn’t add up. He is a human being for christ sake. I hate it when I hurt him by saying that. I end up feeling sicker. If I have a bit of energy I start raging and yelling I never ever did this. I have always been calm and concise.

    Michael. you say slow down and read, and don’t ramble in our email, is this to give you the upper hand on typing. Funny your name is Michael that is the name of Tony’s brother. I told you that yesterday in an email. I said to Tony are you and your brother that fucked up that you are having fun at my expense. See how crazy this gets and then I will locked away.

    I wonder why?

  449. Yeah, WordPress get confused sometime, some kind of server-side cache I think.

    Anyway, SarachConnor, I have not deleted any posts in the last three months, except for spam, etc. If you want I can email you every post you ever made here, and you can see if anything is missing.

  450. Go for it – when I have nothing better to do maybe I will read them.

  451. Hi, Sarach. I had you on my mind as I just sat down with a cuppa tea. Cheers. How are you feeling? You mentioned having a cold, the other day, and I wondered if that’s gotten any better.

  452. My cold is crap. I don’t feel well at all.

  453. Oh, I’m so sorry. Is it a head cold, or do you have it in your chest? Have a cuppa tea with me. Cheers!

  454. Sarach, after I had mentioned Munchausen-By-Proxy in my comment, you’d said that you hadn’t read a lot about it, which led to this…

    #399 SarachConnor (abac68) Says:
    August 26th, 2006 at 9:09 am

    Can I just say that these last posts have given me the complete creeps. I feel as though the registrations have gone from 5,000 to 2,500 to what feels like 15.

    I haven’t read alot about the Munhunson Syndromy via Proxy (

    #400 Michael Says:
    August 26th, 2006 at 9:24 am

    Here’s a good simple article on MBP:

    http://www.kidshealth.org/parent/system/ill/munchausen.html

    #401 SarachConnor (abac68) Says:
    August 26th, 2006 at 4:34 pm

    Michael – I read the document. Did you want me to comment on it? It strikes a nerve – not just with ML either..

    #402 Michael Says:
    August 26th, 2006 at 6:43 pm

    SarachConnor, I’m always happy to hear what you have to say.

    Is comment number 409 the one you’re looking for?

  455. I sent SarachConnor all her comments, and I believe she found the one she was looking for. She also asked me to delete one, which I did.

  456. SarachConnor (abac68) Says:
    August 28th, 2006 at 8:12 pm

    After I read your link about the diseasae. I said yes rings true can relate it to my life. BUT is that diagnosis just another lie and diversion that we can add to this.

    Sarach, MBPS is ONLY a mental illness that a parent may have, typically a mother, in which they cause physical harm to their otherwise healthy offspring in order to get some sort of fulfillment for themselves out of it. It isn’t about them controlling other people, although they do. Many people have controlling personalities, though, who do not have that particular, limiting, mental illness.

  457. Michael – My mum never hurt me. They love me all my family do.

  458. People can become infected with West Nile virus when they are bitten by a mosquito that has previously bitten an infected bird. The virus was first found in the United States in 1999. In 2003, there were more than 9,000 human cases of West Nile virus–related disease, including 264 deaths.

    Most people infected with West Nile virus have no symptoms. However, approximately 20 percent of patients will develop a flu-like illness called West Nile fever. Up to 1 percent may develop more severe diseases such as meningitis or encephalitis.

    Lead author Paul Carson, MD, of MeritCare Health System and the University of North Dakota School of Medicine and Health Science, said, “We were seeing patients coming back long after having had West Nile fever saying they had ongoing problems. People would say things like ‘I’m not myself, I’m more fatigued, I have more trouble with my memory.’”

  459. What does West Nile have to do with Morgellons?

  460. What Jeezelousie asked is a very good question. There are some other people with family, and friends, who think they have “morgellons disease”, that have come to this blog. You differ from them, because you believe, with your mother, that she has it, and you’re grasping at anything, and everything, that has nothing to do with what is wrong. If she has GM food allergies, she must avoid the foods triggering them, and/or see an allergy specialist, or an immunologist. If she has West Nile Virus, that needs to be treated, also. You previously said,

    Mom is a classic “morgie” She has constant scalp crawling, brain fog, and produced a specimen from her face that wriggeld around like an octupuss antanea under a cheap microscope. Please dont make fun about this. I saw it and I do not have the symptoms.

    It’s not funny that your mom is having problems with her health, and that you, and she, both, believe that it’s because of “morgellons disease, Houston. If I continue to use the name you’d chosen from your misinterpretation of London’s laughing, when you’d first posted on this blog, I would be saying this,

    It’s not funny that your mom is having problems with her health, and that you, and she, both, believe that it’s because of “morgellons disease, HAHAHAHA

    You came here misinterpretting some things, because you already had a pattern of it, before you arrived on this blog. You feel persecuted, to begin with, and you’re self-sabotaging by adopting that name with the negative connotations it already held for you. Using it, rather than Houston, serves to further guarantee you more psychological upset.

    How long has your mom been ill with the symptoms you mentioned above? How old is she, do you live with her, and do you have any siblings? Thank you.

  461. Information about 10

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  467. I wouldn’t click on any of the above posts from # 464 down, if you do your computer will be put at security risk. You wankers!

  468. Doctors Slow To Recognize Mysterious Disease

    http://www.charlotte.com/mld/observer/news/opinion/16423815.htm

    Posted on Wed, Jan. 10, 2007
    Doctors slow to recognize mysterious disease
    Victims of Morgellons suffer real symptoms but accused of delusions
    JACK CALAWAY
    Special to the
    Charlotte Observer
    In 1979 Charlotte businessman Marc Iverson fell ill from a mysterious, debilitating ailment. Many doctors didn’t believe his symptoms were real, much less the herald of a new disease.

    Because symptoms didn’t fit any established medical models, physicians couldn’t make a definite diagnosis. That was a crushing blow for Iverson, a corporate vice president crippled at age 28.

    But he persevered in seeking research, diagnosis and treatment of what became known as Chronic Fatigue and Immune Dysfunction Syndrome. This led to his Charlotte founding of the CFIDS Association of America. Hundreds of thousands of sufferers have since been diagnosed

    A few years earlier, Connecticut housewife Polly Murray had complained to health authorities that her family was suffering from an unknown ailment. Persistence got her labeled a hypochondriac. She eventually convinced Yale researchers to investigate, and that led to the identification of the bacteria that had infected her and others with what is now commonly called Lyme disease.

    So, will a new malady that has stigmatized a North Carolina woman and thousands of other Americans win similar acceptance in 2007, or will the allegation that they suffer from nothing but delusions cause Morgellons Disease to simmer on the medical back burner?

    Debbie Drake — not her real name — of Cleveland County hadn’t heard of Morgellons when she turned off the bedroom light one night last March and husband Jerry asked why she had blue glitter on her face. She turned the light back on and went to a mirror, but saw nothing unusual. A short while later Debbie felt something biting her legs and face. Pulling back the covers, she expected to find fleas. Instead she saw tiny black specks on her side of the sheets. Strange, she thought, that whatever it was had left Jerry alone. But the biting and crawling sensation continued throughout the night.

    Just a case of scabies?

    That was the start of an affliction for which her regular physicians can provide no satisfying diagnosis. Her symptoms include severe fatigue, memory loss and especially the intense, itchy lesions in which strange fibers and granules — auto-fluorescent in some cases — appear on her skin.When hair started falling out in clumps, she went to a dermatologist who said she had scabies, an allergic reaction to skin mites. It produces itchy rashes when female mites burrow into the skin and lay eggs. Males roam atop the skin, creating a crawling sensation. Since these symptoms matched a few of Debbie’s, the doctor prescribed a regimen of topical medications.

    But after weeks and weeks of head-to-toe coatings, Debbie’s situation had not improved. “I thought I was going to die. The itching was terrible. I reached the point where I hated to go to bed at night.” Drake recalled. “I took leave from my job for a short time and was embarrassed to leave the house because of the welts and lesions on my body.”

    Like Iverson and Murray, she felt she was being treated with skepticism instead of with serious medical attention. “My family doctor didn’t come right out and say it, but I got the impression she thought I was experiencing some sort of mental problems,” said Drake.

    Later she learned that many dermatologists claim the skin fibers and the sensation of parasites crawling under the skin are the effect of a psychosis called “Delusional Parasitosis.” Not so, say Drake and other activists.

    It appears that the Morgellons equivalent of a Marc Iverson or Polly Murray is biologist Mary Leitao, who in 2002 founded the Morgellons Research Foundation, now based in Maryland. Leitao got involved when fibers appeared on her 2-year-old son. She named the disease after a medical reference to a similar symptom displayed by 17th-century French children called “morgellons.”

    At least 5 cases in Charlotte

    “The number of cases reported to us by persons with the symptoms has doubled in the past year,” noted Leitao. “Nearly a quarter of those are from California. Texas and Florida also rank high. So far I know of at least five in Charlotte, and about 70 elsewhere in North Carolina.”

    Leitao’s nonprofit advocacy group has cooperated with medical researchers at Oklahoma State University and funded some of their work. Debbie Drake attended a Morgellons conference there last summer and was relieved to meet folks with similar symptoms.

    MRF and online advocacy groups have pressured the Centers for Disease Control and Prevention to escalate a long-delayed examination of Morgellons. That study is scheduled to focus on the California outbreak and will begin the first quarter of this year.

    Meanwhile, Debbie Drake holds her head high, and hopes.

    Jack

    Calaway

  469. From that article:

    So, will a new malady that has stigmatized a North Carolina woman and thousands of other Americans win similar acceptance in 2007, or will the allegation that they suffer from nothing but delusions cause Morgellons Disease to simmer on the medical back burner?

    That article is pretty full of patooey. “Nothing BUT delusions”? Jack Calaway doesn’t read morgie message boards!! The investigation should bring about a much needed change, to serve the minority that has always needed someone to help. When people can’t help themselves, and their lives result in ruin, the government needs to act accordingly.

  470. “Because symptoms didn’t fit any established medical models, physicians couldn’t make a definite diagnosis.”

    Couldn’t fit a medical MODEL? Nonsensical, akin to Southcity’s science-word-soup. It couldn’t fit a non-mental-health-related diagnosis. Sigh.

    “Later she learned that many dermatologists claim the skin fibers and the sensation of parasites crawling under the skin are the effect of a psychosis called “Delusional Parasitosis.” Not so, say Drake and other activists.”

    So, they received an appropriate diagnosis after a proper investigation and refused it. Typical of DP.

    “It appears that the Morgellons equivalent of a Marc Iverson or Polly Murray is biologist Mary Leitao…”

    ….A bachelor’s doesn’t make you a biologist….

    “… who in 2002 founded the Morgellons Research Foundation, now based in Maryland. Leitao got involved when fibers appeared on her 2-year-old son”

    After he was diagnosed repeatedly with eczema.

    “That study is scheduled to focus on the California outbreak and will begin the first quarter of this year.”

    Oh? I don’t see that anywhere in description of the project.

    Usual, ignorant swill, IMO, Jack.

  471. Those journalists should all be ashamed of themselves. But, getting the propaganda out, as bad as it is for influencing other vulnerably susceptible people, is, I think, what finally got the action they all desired. I hope good things result from it, but it’s hard to take such a sad thing and make anything good come out of it. It’s hard for me to try putting what I’m thinking into words right now, but morgie people are apparently in such a state of being duped by their own sensibilities, that they assume everyone else is in error for not also being in a state of psychosis, with them.

  472. Smileykins,

    As you know, some journalists have a bad habit of writing about things they havn’t investigated, sometimes deliberately excluding less sensational facts. It’s bad journalism, and there’s a lot of it.

    I know what you’re thinking. I have the same concern. Morgies don’t understand that this may fit the old saying, “Be careful what you’re praying for, you just might get it.”

    Psychosis is a very strange thing. I know what it’s like, though mine was drug induced. I don’t know what caused their’s, but they’re showing its symptoms.

    TC

  473. Hey Small and your sidekick smelly.

    It appears as usual you have no clue about the subject.

    What are your credentials please?

  474. Ok, you are obviously the same folks,

    Why not shove a rocket up your ass and fly to the moon. You could collect rock samples while you are there.

  475. Dude, enlighten us, then. Please. Okay?

  476. Dude,

    I’ll tell you what my credentials are, and they don’t get much better. I’m an ex-morgie, but I’m not an exmorgie that believes he was healed from a physical disease called Morgellons. There’s two or three people in that catagory, and they aren’t well at all. I came to the realization that I had had DOP/Morgellons. That’s the main problem that the other Morgies have. That’s the only Morgellons Disease. The only other person I know, with credentials just as good, is Smileykins. I could care less how things appear to you!

    Tall Cotton

  477. Oh, my credentials? Dude, you’re probably not going to find too many people who have had DOP, and overcome it. I know what “morgellons disease” is like, because it is synonymous with it. Neither TC nor I had as multifaceted a situation as morgie people do, though. In the psychotic state that I was in for two months, five years ago, I could reason to an extent. I was very ill, and many strange things took place, but my personality didn’t change. My skin was a mess, but not from me damaging it. I didn’t become mean. I wasn’t paranoid. I didn’t want sympathy. Morgie people absolutely can’t help what they are doing, I’m positive, because if they could, they would make a attempt, even a feeble one, to reason things out. They can’t figure out any of it. It’s incredible for it to have such a stronghold that they refuse to consider that they’re deceived by their own minds, and, rather, insist that physicians are in need of further education. They say they feel like they’re losing their minds, even, and that other people who know them notice it too. They have to be getting some result that they like from it, because if they were as miserable as they claim to be, they would want to get out of that state of existence by taking a simple step to do it. When I used to try explaining what I had gone through, to them, on lymebusters’ message board, of course, I had to use the correct terminology, but I said that I had what was more like an acute state of “morgellons” where what they have is a chronic form. Well, Dude, it was because the psychosis that I’d had was from an underlying physical illness I wasn’t aware of at the time. I just knew I was getting sicker by the minute. I healed my body, and my perception returned to normal. The morgie people have some underlying mental problems causing their chronic states. They are rendered helpless over it, and it is destroying their lives. Society has never seen such a thing as this before, and it is very sad.

  478. I must clarify that last remark. DOP is not anything new to society. Having it go mainstream is. Hopefully, another way of treating it can result some day. How, is the thing.

  479. This is obvious to many, but: the internet is the perfect refuge for people suffering delusions -what’s new about Morgellons is that it seems to be providing a defining structure for the delusionary state. I think the Morgellons Phenomenon anchors the varied and nebulous beliefs of DoP sufferers onto something meaningful and consistent, giving them shape. It also seems to provide a sense of community and a ‘you are not alone’ feeling that normalises the horrific experience of being psychologically tormented by invisible bugs. On the whole, as an online event it’s overall effect on sufferers is similar to the ‘My friend Ana’ and ‘Mia’ thing, except that those eating disorders definitely do exist.

    Maybe the CDC will help prevent this spreading any further (but my guess is that, on announcing that there is no consisent pathogen involved, they will merely become absorbed into the Morgellons Mythos as another conspiring authority).

  480. Morgellons/DOP/Internet has something to offer the patients of so many types of mental illness particularly the delusory states. I agree that it gives the Morgies a sense of community. Many of them believe that they are the chosen ones, chosen to bring new information into the world, and even to teach the doctors. It also promises them eventual validation of their beliefs, and vendication for the actions they’ve taken and the losses they’ve suffered. These promises, however, are false, and they will never be fulfilled. They are very different, in their own eyes, than what reality suggests. They receive unending sympathy, from each other, and of course, they reinforce each other’s delusions via the internet. They trust no one, but those who believe them, and unfortunately those who came to exploit them. But they are abusing themselves and others. What will the CDC do about it, now that it cannot turn a blind eye? That’s a good question, and I don’t know the answer to it. The Morgies have never trusted the CDC, or any other government group, but they are beginning to focus on that distrust, and ask themselves that same question. I wish they would wise up, and get the treatment that they need, with a real effort to overcome the mental problems. It’s a very serious and grim situation.

    Tall Cotton

  481. Tallcotton,do you have that word on your car? Saw who you were. I found the parasite in this illness and it is real.Under the skin. Husband has also.Go lok up HIV patient with co-infections and find out for yourself how infested they are with parasites! The CDC even knows it. Ask them yourself.

  482. Misty,

    Everyone has parasites. But, are the parasites fibers or worms that grow out of their skin?

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