Sep 22 2006

Doctors & Patients

Published by Michael at 9:43 am under Media, Medical Professional

The problem of Morgellons is primarily one of a stark divide between the perceptions of the doctor on one hand, and the patient on the other.

The doctor sees a varied set of physical and mental symptoms that could be caused by one or more conditions. They see lesions on the patient’s body that often look like the patient has scratched themselves. They also see the patient pointing out things on their body, like lint, hair and specks of dirt, and they hear the patient say these things emerged from their body. They hear the patient insist they have a disease called “Morgellons” that has only recently been discovered.

The patient sees the doctor trying to “explain away” what are, to them, obvious symptoms. The patient thinks they feel the the fibers move, and emerge from their body. The patient is frustrated by the doctor’s suggestion that there might be an emotional component to their symptoms. The patient rejects the doctor’s diagnoses and substitutes their own.

In this post, I’m going to focus on the doctor’s perception of these patients. I feel what these fifteen doctors and professors say here really encapsulates and explains many of the problems, and answers many of the arguments surrounding “Morgellons”.

http://www.timesonline.co.uk/article/0,,18393-2188371.html

“This is not a mysterious disease,” says Dr Norman Levine, a Professor of Dermatology at the University of Arizona. “If you polled 10,000 dermatologists, everyone would agree with me.” He says he has seen 100 patients suffering from such symptoms, and they responded well to treatment, including a drug called Pimozide, which is used for chronic schizophrenia. According to Dr Levine, they are suffering from a monosymptomatic disorder in which they are absolutely convinced something is in their skin, a delusional parasitosis. He says he has studied the fibres his patients bring in by the bag-load and they are textile in nature.

http://www.livescience.com/humanbiology/060526_morgellons.html

Michael Girardi, a dermatologist at the Yale School of Medicine, had never heard of Morgellons but when its symptoms were described to him, he was reminded of another disorder that is well known to doctors. “They just renamed it,” Girardi told LiveScience. “We just call it delusions of parasitosis.”

“It’s basically when a patient thinks that there’s something coming out of their skin, a material or bug of some sort, when truthfully there’s nothing there,” said Stacy Beaty, a dermatologist at the Saint Louis University School of Medicine.
In medical schools, physicians learn to watch out for the “matchbox sign” of delusional parasitosis, when patients bring in hair, skin or clothing lint, sometimes in matchboxes, that they claim contain the insects or parasites responsible for their torment. However, when examined, the samples reveal no such thing. The lesions and scratches sometimes seen on patients with delusional parasitosis are usually self-inflicted, Beaty said.
“To rule out any infectious causes and also to put the patient’s mind at ease, a lot of times we’ll do skin biopsies,” Beaty said in a telephone interview. “If we feel that it’ll be helpful, we might also start different anti-psychotic or anti-anxiety medicines.”

In response to rising media coverage about the condition, the Los Angeles Department of Health Services recently issued a statement that said bluntly: “No credible medical or public health association has verified the existence or diagnosis of ‘Morgellons Disease.’ The current description of the disease is vague and covers many conditions.”

http://www.rgj.com/news/stories/html/2004/05/08/70309.php

“In many cases, (delusional parasitosis) is a mono-delusional problem,” Lynch [Dr. Peter Lynch, professor emeritus in dermatology at the University of California, Davis] said. “The patients are normal in every other way. It’s always hard to get such patients to believe it’s a psychological problem. Some patients are very convincing, and I’ve had psychiatrists call me about referrals I’ve made and ask if I’m absolutely sure there’s nothing organic going on here.”

He said in the 40 years he has been practicing medicine he hasn’t seen a delusional parasitosis patient with physical symptoms that can’t be explained. He said while it’s possible some cases may be wrongly diagnosed, it’s unlikely a large segment of patients is suffering from a physical illness.

“You can miss a case and of course that happens,” Lynch said. “But are many being missed? In a word, no.”

http://www.rgj.com/news/stories/html/2004/05/08/70307.php

When told of Dr. Bill Harvey’s successful treatment with antibiotics of Morgellons’ patients in Houston, Dr. Peter Lynch of the University of California, Davis said the “cures” are easily explained by the placebo effect. Patients treated with sugar pills, for example, often get well because they believe they are receiving medicine

Lynch said 80 percent of patients with delusions of parasites respond to psychotropic medication, an indication their illness is mental.

“Anecdotal evidence doesn’t carry much weight,” Lynch said. “There are many anecdotes of alien abductions, but that doesn’t mean they are true. And as for the pictures, you can see pictures of the Loch Ness Monster on the Internet, too.”

“If there were a peer-reviewed study, with 15 or 20 patients who have the same exact thing in their skins, then maybe I’d believe it,” Lynch said. “When fiberglass curtains first came out, many people with skin conditions were diagnosed with delusions of parasitosis (DOP). But studies showed these patients had tiny (fiberglass particles) in their skin.”

http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2006/06/02/MNGOJJ6JO51.DTL&hw=Morgellons&sn=001&sc=1000

“There are a huge number of people out there with (delusional parasitosis), and most of them are not getting adequate treatment because they have this fixed belief,” said Dr. Dan Eisen, a UC Davis dermatologist. “It’s probably just a group of patients who haven’t gotten the appropriate treatment, and they’re calling it Morgellons.”

http://www.popularmechanics.com/science/medicine/1662162.html

“Dermatologists are afraid to see these patients,” says Dr. Peter Lynch, professor emeritus of dermatology at the University of California, Davis. He says he has examined about 75 people with Morgellons-like symptoms in the past 35 years and believes they suffer from delusional parasitosis–literally, delusions of parasites in the skin. It’s a diagnosis people don’t like. One patient, threatening malpractice, convinced the state medical board to investigate Lynch. Another warned he had a pistol in the glove compartment of his truck, Lynch says. “He told me, ‘I’m going to shoot the next doctor who tells me it’s in my head.’”

Another prominent dermatologist, who insisted on anonymity out of concern for his safety, says he has diagnosed 50 or so Morgellons patients with cutaneous dysaesthesia–a neurological disorder that can result in the sensation of scuttling insects. And the spiny things? “In every case I’ve seen it’s a textile fiber, and it’s on the surface of the skin,” he says. He typically puts a cast over the lesions to prevent further irritation and after four weeks removes it. “Guess what?” he says. “The lesions are healed.”

http://www.dallasobserver.com/Issues/2006-07-20/news/feature_full.html

Part of the problem with a disease like Morgellons, [Tim Jones, an epidemiologist from the Tennessee Department of Health] says, is that its symptoms are both vague and varied. Before public health officials can investigate, there must be a clear definition of the disease. The Morgellons Research Foundation says they have that definition, but there is no one symptom, or even group of symptoms, that defines Morgellons. [...]
“Trying to do studies on a group like this becomes virtually impossible because you may have 10 percent of the people who meet a real strict definition and a whole bunch of other people who don’t,” Jones says. “If you go through 10 patients and one is having discolored sweat, another one’s having pieces of spaghetti stick out of his skin and another one’s having, I don’t know, heel pain, it’s really hard to think what would tie these things together”.

http://www.post-gazette.com/pg/06204/707970-85.stm

“They suffer terribly, but it’s psychiatric,” said Dr. Dirk Elston, a dermatologist in the Geisinger Medical System in Danville, Montour County. “The fact that there’s something online to cling to, it’s a difficult obstacle for us.”

“The moment you mention psychiatrists, these patients get extremely angry,” said psychiatrist Alistair Munro, author of “Delusional Disorder.” “They say there’s nothing wrong with their brain. They have all kinds of explanations.”

“I found no evidence of [anything suspicious] in Andrew,” Dr. Heldrich [Dr. Fred Heldrich, a Johns Hopkins pediatrician] wrote to Dr. Frac after the visit. Then he added: “Ms. Leitao would benefit from a psychiatric evaluation and support, whether Andrew has Morgellons disease or not. I hope she will cease to use her son in further exploring this problem.”

http://home.hamptonroads.com/stories/story.cfm?story=110940&ran=130308

“People don’t need the Internet as long as they’ve got the media,” said Edward Shorter, a professor of psychiatry and the history of medicine at the University of Toronto. Once the media reports come out about a new possible disease, even if it’s not real, some people see it, “and they say, ‘That’s what I’ve got. That’s my disease,’”

http://www.click2houston.com/health/4246515/detail.html

“I always feel that people should keep an open mind and I think there are scientific experiments, what we call evidence-based medicine, that can prove or disprove that an organism is causing this,” University of Texas Health Science Center at Houston dermatologist Dr. Stephen Tucker said.

http://seattletimes.nwsource.com/html/nationworld/2003152087_illness26.html

“In dermatology, we speak about something called an ‘outside job,’ which is a skin eruption made by the patient himself,” said Dr. Noah Scheinfeld, an assistant professor of dermatology at Columbia University in New York and an expert on the psychiatric origins of certain skin disorders. “When you look at the pictures of these Morgellons lesions, they are classic for that.”

http://www.ent.uga.edu/publications/delusory.pdf

Self-excoriation is a common feature of delusory parasitosis, despite the individuals’ protestations that they do not scratch. Scratching may produce papular eruptions. Any repeated skin irritation produces a friction blister. Repeated rubbing of an area often produces a bleb (small blister) which, when ruptured, yields an open sore that may become infected. Once the sore begins oozing plasma and a scab forms, hairs and cloth fibers become entrapped in the sticky fluid. These flecks are dislodged and called mites or insects because they look like they have “antennae” and “legs”. Hair follicles often are pulled out; the follicle accompanied by the associated sebaceous gland looks like a worm. - Nancy C.Hinkle, Professor of Entomology, University of Georgia.

http://www.emedicine.com/derm/topic941.htm

Patients pick at areas until they can pull material from the skin. This may be referred to as “pulling a thread from the skin.” - Dr. Noah Scheinfeld,

http://www.rangelmd.com/2006/08/there-are-these-little-fibers-coming.htm

Logically, any credible study of Morgellons should have tried to explain the connection between the fibers and the symptoms. It’s not a good sign that no one has bothered to offer a formal starting theory on Morgellons fibers and that the [Morgellons Research] Foundation criticizes physicians for not looking for signs of Morgellons when they don’t really know what to look for themselves. - Dr. Chris Rangel, MD.

http://www.nature.com/news/2006/060828/full/nm0906-982a.html

Noah Scheinfeld, assistant clinical professor of dermatology at Columbia University, says patients sometimes come in with pieces of their skin mixed with other materials in a box or a piece of Saran Wrap. “Such patients are a challenge to help and to treat,” he says. “They want to be believed above all and tend to be socially isolated.” Scheinfeld says the Internet has helped those with parasitic delusions to band together and reinforce each others’ beliefs.

“There really is no scientific basis at this point to believe that [Morgellons] is real,” says Stephen Stone, president of the American Academy of Dermatology.

Print This Post Print This Post

« Hystorical Context | Home | Whither Morgellons? »

793 Responses to “Doctors & Patients”

  1. Smileykinson 22 Sep 2006 at 12:08 pm

    I KNOW.

    This may not be completely relevant, and yet, it sort of is. I’d like to share an interesting article concerning new clinical guidelines for pediatricians facing a common condition that’s been previously mishandled, dated June 29, 2006…

    http://www.medpagetoday.com/Dermatology/GeneralDermatology/tb/3655

  2. alon 22 Sep 2006 at 2:44 pm

    lead the way smilykins
    im sure u can spot relevance a mile off
    thanks for bringing my head out of my arse

  3. patrickevinon 22 Sep 2006 at 3:06 pm

    BOYCOTT RESPONDING

    MAfer, al, sterlink and others who want some truth and BALANCE - - i applaude you for not standing down to these people. But you are enabling the continuance of this ridiculous site. the very best thing anyone could do is to boycott posting comments, with the exception of asking others to do the same. just sit back and observe their demise. how long do you think they would go on with just each other commenting?

    ladies and gentlemen, you will never out do these cut and paste queens. they are not medical profsssionals. their information is forwarded via weblinks and pasted articles.

    do not respond to their offensive remarks. do not respond to their yellow paper literature.

    boycott commenting. do not give them reason to carry on. let them comment to each other.

    boycott commenting on this site and warn others of the misinformation they give.

  4. alon 22 Sep 2006 at 3:27 pm

    i had thought the same but i intend to cut their bullshit down using whatever means i can
    shame smilykins
    shame tc
    shame to all those who decry this condition
    lets shut this site down from within i say
    or have this site as a tool for sufferers…
    not a vehicle for tools
    ….yes smilykins, go on

  5. alon 22 Sep 2006 at 3:30 pm

    oh yeah
    “tool” is an aussie expression for wanker…
    read tc

  6. SarachConnor (abac68)on 22 Sep 2006 at 3:32 pm

    Morning - I see you have had your “wheaties” this morning Al? Go Aussie go!

  7. alon 22 Sep 2006 at 3:37 pm

    well u know we need the last word for a week or so
    i think poor ole smilykins is demoralized
    ole tc?….well hes
    still cutting eye holes in his sheets
    how r ya sarah?
    go the diggers

  8. SarachConnor (abac68)on 22 Sep 2006 at 3:38 pm

    I’m good thanks, still wiping the sleep from my eyes, but having my cuppa and yourself?

  9. alon 22 Sep 2006 at 3:40 pm

    im gonna go cut some fiewood today
    keep up the fight to these pricks n if they r odious n rude
    keep it short n sweet
    but make sure one of you ALWAYS has the last word
    remember…
    we are suffering…
    the question is then?
    what r smkns , tc, etc doing making our recovery harder?
    huh?
    and why?

  10. Michaelon 22 Sep 2006 at 3:41 pm

    Trying to shut down my blog by posting mocking comments is like trying to help your team win by shouting at the ref.

    You are just making noise.

    Don’t you think it would be better to actually engage in some constructive debate? Maybe you could take issue with some of the above quotes?

  11. alon 22 Sep 2006 at 3:43 pm

    sarah, i think we overcame a great hurdle by speaking yesterday
    and i think we need a well thought out approach
    lets make this site a haven for the sufferers, not a blanching post of theses corrupt few

  12. tallcottonon 22 Sep 2006 at 3:46 pm

    Patrickevin, Al,

    You two dumbasses picked a good thread to flaunt your mental illness.

    Tall Cotton

  13. alon 22 Sep 2006 at 3:46 pm

    read the blogs morgs ole mate
    its called groundswell support…
    i have got it in spades
    so, as i say..
    no quarter
    bring me your best
    u fool
    u self aggrandising twat
    i got called a hero dude
    cant u read
    let me pray right thru u pal
    can ya feel it?
    im beamin it thru u dude

  14. SarachConnor (abac68)on 22 Sep 2006 at 3:47 pm

    Well you know Al I don’t like to step on anyones toes, never had. Take the stage if you like. The above quotes? Oh I am still waking up, not much to say, other than - dah dah dah, de da de da dah dah you know…

  15. alon 22 Sep 2006 at 3:48 pm

    agape love
    look it up

  16. tallcottonon 22 Sep 2006 at 3:48 pm

    Al,

    You’re insane!

    Tall Cotton

  17. SarachConnor (abac68)on 22 Sep 2006 at 3:50 pm

    I’m not insane! Just enlightened.

  18. alon 22 Sep 2006 at 3:50 pm

    well were all awake at least
    tc ur boring
    u r as exciting to read as recycled paper
    get a thesaurus…at least
    or start off with noddy

  19. SarachConnor (abac68)on 22 Sep 2006 at 3:51 pm

    I know you were talking to Al TC, but wanted to comment anyway.

  20. SarachConnor (abac68)on 22 Sep 2006 at 3:53 pm

    The topic of doctors & patients….boring really. Now playing doctors and nurses used to fun! I loved Noddy though.

  21. alon 22 Sep 2006 at 3:54 pm

    im just trying to annoy these dudes sarah. it annoys me that people get brow beaten by these bullies
    tc …did u ever sell ur ass for meth dude?

  22. Smileykinson 22 Sep 2006 at 3:56 pm

    “Constructive debate”?

    Oh, MG made a funny.

  23. alon 22 Sep 2006 at 3:57 pm

    now doctors and nurses
    i like the sound of that
    i gotta go cut some wood
    sarah
    u have the best day and dont give anything of your soul to these vampires

  24. alon 22 Sep 2006 at 3:59 pm

    that is the shortest post yet smellypits
    i surround you with a host of gods angles
    i bind your toungue
    in the name of christ…
    i really must dash,,
    y’all have a good day now y’hear?

  25. SarachConnor (abac68)on 22 Sep 2006 at 4:04 pm

    Haha vampires - never had anytime for em anyway..

  26. alon 22 Sep 2006 at 4:04 pm

    as a parting gesture of my goodwill..
    i suggest ephesians as a really gripping yarn

  27. tallcottonon 22 Sep 2006 at 4:07 pm

    I guess the devil is going to quote scripture for us again to night.

  28. Smileykinson 22 Sep 2006 at 4:09 pm

    It is sad that any morgie would even be looking on a “debunking” blog, knowing it will bother them. Then, all the lies and outlandishly immature behavior helps prove the entire situation. But the thing is, that they aren’t even remotely aware of it. I have been warning of it as much as I’ve been able to, of what they’re doing to themselves, and how it is not helping to support their cause, whatsover. I have been warning that stress is bad for anyone. What can be done to assist you morgie people, when you’re coming here purposely to be upset?. I even try considering that you want to understand your conditions, and that’s why you’re here reading. But no! You’re just out of control.

  29. SarachConnor (abac68)on 22 Sep 2006 at 4:12 pm

    Smileykins - “Out of Control” - I guess you could look at that a couple of different ways.

    I feel “In Control” of myself, which feels great for me, time alone has been great for my soul. I don’t look at this site as debunking either, I just pop in to say ‘Hi’!

  30. SarachConnor (abac68)on 22 Sep 2006 at 4:21 pm

    “A successful person is one who can lay a firm foundation with the bricks that others throw” - David Brinkley.

  31. alon 22 Sep 2006 at 4:23 pm

    im outta control
    i hate being in ur heads
    but its SO much better than u guys being in ours
    tall cotton you are simply so abusive that its probably fitting that you, i say you call him up,
    interesting
    see y’all at the crossroads
    u evil
    pithfork
    lynchers

  32. alon 22 Sep 2006 at 4:25 pm

    now, thats better
    is this scientific for ya margs?
    kick me out please….
    i need u guys
    my fibres wont talk to me no more

  33. alon 22 Sep 2006 at 4:26 pm

    cmon fibres
    say something
    cmon smellypits
    help me
    cmon tc
    how bout sum deliverance?
    im sure u know how

  34. alon 22 Sep 2006 at 4:28 pm

    cmon guys im lonely
    my last fibres ran away today

  35. Smileykinson 22 Sep 2006 at 4:28 pm

    Your aussie female counterpart, Al, is the one who’s been displaying evil and even bragging about it, over the past several days. You know what most people do when something bothers them? They steer clear of whatever it is. You particular morgie people are drawn to it, like a moth to a flame, though.

  36. alon 22 Sep 2006 at 4:31 pm

    lovie
    i read everything sarah is understandably concerned, as i am, about our respective ailments
    put simply smilykins
    i adjure you
    i command the prostrate thyself before god and confess
    pretty simple
    can ya leave this shit alone and have a
    GOOD
    HARD
    LOOK
    AT YOU
    fuck, now i sound like dr phil

  37. Smileykinson 22 Sep 2006 at 4:32 pm

    Tell me what you think I need to be looking at myself for, Al.

  38. alon 22 Sep 2006 at 4:34 pm

    ummm
    have u put a raincheck on ur soul?
    or did ya just sell it outright?

  39. alon 22 Sep 2006 at 4:34 pm

    im waiting
    fucktard

  40. Smileykinson 22 Sep 2006 at 4:36 pm

    Are you able to elucidate on that for me? My soul is very much intact. What am I guilty of Al?

  41. alon 22 Sep 2006 at 4:38 pm

    ummm is your comprehension ok?
    what the fuck are people accusing you of?
    u judge yourself hun
    i dont care
    thats altruism for ya
    get it?
    al truism
    go pray babe
    he’s waiting

  42. SarachConnor (abac68)on 22 Sep 2006 at 4:44 pm

    Smileykins Says:
    September 22nd, 2006 at 4:28 pm
    Your aussie female counterpart, Al, is the one who’s been displaying evil and even bragging about it, over the past several days.

    Bragging???? I don’t think so. Displaying evil??? Not so.

    I did actually drop back Smileykins to let you know that Sally is doing great. I thought you would be interested because we both love animals. The vet is amazed with her pick up, and so he gave her another injection of antibiotic and an anti-inflammatory. She looks really good. Makes me happy.

    Anyway - I have learnt to not talk politics or religion. For one I don’t understand politics and don’t wish too, and two religion is a personal thing. I don’t believe it is something that should be shared with others, my opinion anyway.

  43. alon 22 Sep 2006 at 4:47 pm

    i agree one shouldnt cast pearls before swine
    however, in this case, just coz it hurts like anything,coupled with the bizarre nature
    anything goes
    this is not religion sarah
    its spiritual warfare
    there is a real difference

  44. Smileykinson 22 Sep 2006 at 4:50 pm

    My comprehension is very good, Al. Sure, I don’t completely understand all the many intricate facets involved with, and surrounding, people who think they have “morgellons disease”, so, I don’t know what you’re referring to, entirely.

    But I think you want me to search my soul, and judge myself, from either one of two things:

    1. I’ve said something here that you mistakenly thought was about you, personally, which I know I haven’t
    2. You feel that I have detracted from, or in some way tried to diminish the existence of your illness

    Tell me how I have violated you, and I will try to make ammends, Al. I don’t set out to harm people. I always try to help them.

  45. alon 22 Sep 2006 at 4:54 pm

    babe
    u havent violated me sweets
    ya just make me puke with your verbose
    repetative spin
    no, no violation,
    you make me sick, is all

  46. alon 22 Sep 2006 at 4:55 pm

    but hey
    i like you

  47. Smileykinson 22 Sep 2006 at 4:56 pm

    Then, when you see the name “Smileykins”…..move on past it, Al.

  48. alon 22 Sep 2006 at 4:57 pm

    violate
    yeah hun thats what you n tc do
    but hey
    thats ok too

  49. tallcottonon 22 Sep 2006 at 4:58 pm

    You’ve been sick a long time, Al. Do you have any physical problems, or are you just a nut.

  50. alon 22 Sep 2006 at 4:59 pm

    smilykins this is a public domain
    every time is see ur name
    im gonna read ur drivel… then refute it
    as usual
    ad infinitum
    leave it lass

  51. alon 22 Sep 2006 at 4:59 pm

    just a nut klucker
    n u?

  52. alon 22 Sep 2006 at 5:01 pm

    hey margs ole mate
    good blog

  53. Smileykinson 22 Sep 2006 at 5:02 pm

    Fine, Al, refute my drivel, if it helps you. Go on my blog and tear it up.

  54. tallcottonon 22 Sep 2006 at 5:02 pm

    You’re really scoring big for your team, all. You’re just helping to prove what we’ve been saying all along.

  55. alon 22 Sep 2006 at 5:02 pm

    VERY ERUDITE, ENTIRELY FACTUOUS, REPREHENSIBLE

    DROOL

    THANKS GUYS

  56. alon 22 Sep 2006 at 5:03 pm

    PEOPLE ARE SILENTLY APPLAUDING ME
    U IDIOT
    GO WANK ON A CAM

  57. Smileykinson 22 Sep 2006 at 5:04 pm

    Can you try to help yourself, Al?

  58. tallcottonon 22 Sep 2006 at 5:05 pm

    You’re a FOOL, AL.

  59. Smileykinson 22 Sep 2006 at 5:06 pm

    #56al Says:
    September 22nd, 2006 at 5:03 pm

    PEOPLE ARE SILENTLY APPLAUDING ME

    Now, we’re getting somewhere. “People”. Al, screw people. What about “YOU”?

  60. alon 22 Sep 2006 at 5:07 pm

    im hanging on the edge………
    i need pills…..
    i need a blanket…
    aaaaaagh
    the agony of existance…..
    u guys are real to me now…..
    u r the only ones to help me….
    aaaaaaaaaagggghhh
    i need u tc…..
    i need u smoulderbot
    im lonely…..
    my fibres wont play….

    ok tell us of your credentials smilykins

    one more time…………

  61. alon 22 Sep 2006 at 5:09 pm

    am i still funny to you smily?

  62. alon 22 Sep 2006 at 5:10 pm

    i am me

  63. Smileykinson 22 Sep 2006 at 5:11 pm

    Okay, I’m a caring human being, Al. What credentials, other than that, do you need from me?

  64. alon 22 Sep 2006 at 5:14 pm

    what gives you the right to dispute peoples aggrieved suffering?
    you are a sanctomonious preening self righteous git
    so tell me,
    tell us all,
    what gives you and that dumbass fucktard Tall cotton; the right to judge?
    no fuking links, no disinformation u so blatantly speal off, just the salient facts…

    just remember karma
    u self righteous clowns

  65. Smileykinson 22 Sep 2006 at 5:15 pm

    No, Al, not lately, you haven’t been funny. The first time I communicated with you here, you were, though.

  66. Smileykinson 22 Sep 2006 at 5:16 pm

    Tell me who I have judged, by name, and I’ll address it with you.

  67. Smileykinson 22 Sep 2006 at 5:20 pm

    All right. This will take some time, so excuse me. I’ll be back. I have a lot of difficulty using my hands to type, so it will be quite a while, I imagine, before I state my thoughts to you, on the matter here, Al. Unless, you dont want me to. Tell me, now, and I’ll gladly refrain.

  68. tallcottonon 22 Sep 2006 at 5:20 pm

    Al,

    We don’t deny that you are suffering. We can tell that you’re suffering by the way you conduct yourself. But all you are demonstrating is your emotional pain. We don’t deny that you have some physical ailment either, if you say so, but it’s not morgellons, and you don’t have what everyone else has. The morgies are suffering from a wide variety of illnesses, and there’s no reason to think that any of them are anything new. Morgellons is not a disease, not a syndrome, not a health condition of any kind. It’s made up bullshit, a lie. It has no pathogen, and hopelfully the cdc will soon make an announcement to that effect. Morgellons is nothing.

    Tall Cotton

  69. alon 22 Sep 2006 at 5:21 pm

    u refute the truth ala path reports, peer articles, there Are 3 salient documents, on the web , to prove morgellons, fuck u smartass….go find em, i did, so have others…you? all you do is go on like a fuking parrot

  70. tallcottonon 22 Sep 2006 at 5:24 pm

    There’s no such proof. That’s a lie, Al. Morgellons is nothing.

  71. Smileykinson 22 Sep 2006 at 5:25 pm

    No, Al, you post them here, for me. I doubt there’s much I haven’t read on the matter, but it is your place to do that, not for me to go “find them”. Let’s be mature and reasonable about it.

  72. alon 22 Sep 2006 at 5:26 pm

    well then, cuntie, stop abusing every one and shooting peoples concerns down in flames….

    ok?

    mate… i got nothing to prove to u dude

  73. tallcottonon 22 Sep 2006 at 5:27 pm

    It CANNOT be proved that Morgellons is a disease, and if any reports say otherwise, they are false. It can’t be proved, because it doesn’t exist, except in the minds of a lot of delusional people.

  74. alon 22 Sep 2006 at 5:28 pm

    bullshit cockhead
    just wait n see hey?

  75. tallcottonon 22 Sep 2006 at 5:29 pm

    You don’t have any proof, and we know that for a FACT!

  76. Smileykinson 22 Sep 2006 at 5:30 pm

    Al, what in the world are you talking about “abusing everyone and shooting peoples concerns down in flames”? Spit it out.

  77. Smileykinson 22 Sep 2006 at 5:45 pm

    I don’t like it, that so many people are like they are, Al. I wish there were something that could be done about it. It seems pretty grim, and rather unlikely to happen, that quite a lot of people who think that they have “morgellons disease” can ever change their beliefs. It won’t matter to a hill of beans, to a lot of people, when the CDC issues their word. People have needed it, and wanted it, for themselves, in some cases. I know it isn’t that way in all the situations, but this thing is in the way of the truth, and a whole lot of people have been blinded by it. They can’t help it, either. Too many people have given up their power, and/or never known of it to begin with. That is why they all act like they’re fighting something big and mysterious for each other. Their battle needs to be fought for themselves, and by each individual, alone. Using “morgellons disease” for everything makes the road that lies ahead guaranteed to be a long and treacherous one.

  78. SarachConnor (abac68)on 22 Sep 2006 at 6:07 pm

    I do like what you write Smileykins - especially the long and treacherous road comment. I do know which road I prefer to take. How’s the weather down your way? Things are picking up here in Melbourne, spring is a lovely time of year. I am so looking forward to getting away after Christmas to the country.

  79. Anonymouson 22 Sep 2006 at 7:16 pm

    Al,

    Forget this place. Two idiots do 80% of the posts, and old druggie and his christmas greeting.

  80. tallcottonon 22 Sep 2006 at 7:47 pm

    Al,

    You don’t count so well, do you. This is my 11th post on this thread, but you’ve posted 35 times. Out of 80 posts you’ve almost post half of them, all by yourself. I just wanted to point out to everyone that you’re a liar. I think people can tell by reading what you’ve written that your butter has slid plumb off your toast.

    Tall Cotton

  81. tallcottonon 22 Sep 2006 at 7:50 pm

    Oh, I’m sorry, Al, if you aren’t the anonymous poster. I readdress the above post to him/her.

    Tall Cotton

  82. tallcottonon 22 Sep 2006 at 7:53 pm

    Al made 35 posts. Excuse me again. I think you know what I’m trying to say.

  83. Smileykinson 22 Sep 2006 at 9:01 pm

    Al, you asked something of me, and I don’t want to ignore you. In comment #64, you called me a “sanctomonious preening self righteous git”, and told me to tell you, and everyone else, what you interpret as TC’s and my “right to judge”. You’d refused telling me why you’d called me a coward, as well as some other accusations, earlier. I’ve asked what you’ve meant by all of these comments, but you won’t get to the point. As most angry morgie people always do, you warned of us of karma. There is no way I can make sense out of this, but I’ll at least have a go at it. You’re seeing truth as something bad, though, and running with, and enjoying lies.

    All right, then, you must be mad because you need to believe in “morgellons disease”. Not knowing your situation, I don’t know why you need to believe in it. Maybe it fills a need, maybe you see things that are playing tricks with your mind. I have absolutely no idea. It’s very hard to get a straight story from anyone who thinks that they have “morgellons disease”. The reasons why are obvious, but maybe to those of you who cling to it so tightly, you honestly, actually, don’t know. I’m assuming you don’t, or that even maybe some of you can’t.

    It is no secret that it is delusional parasitosis. Some morgies even admit that they’re wanting to try getting rid of those words and to try to replace it with the words “morgellons disease” or “fiber disease”. It is no secret how such people as this think. Since the birth of “morgellons disease” came along on the internet, and so many people with the inability to accept, and treat, their diagnoses of DOP joined up to this false belief, and ML got them to list all their other symptoms and conditions, her disease grew. People with everything under the sun can have it if they want to, and many do, for many reasons. It has replaced their real health concerns, both physical, and mental. There is an incorrect thinking going on in anyone’s mind who thinks that they all have the same symptoms. Getting people, of a particular mindset, to follow this has been very easily accomplished, having “fibers” as the one thing to get everyone to relate to.

    Some people seem to have a particular dislike for Tall Cotton and me, because we talk so open and honestly about our experiences with what seemed like “morgellons disease”. Why, or how, could it have seemed like it? I’d never heard of it when I was ill, but he had, and thought that he’d had it, too. Years later, when I first heard of it, I went to MRF web site, and Lymebusters’ message board. People there tried to convince me I’d not only had it, but that I’d never gotten over it. What TC and I had both had was the same thing that many of them have, which was DOP. I didn’t know what DOP was until I saw it mentioned there.

    Some people who think they have “morgellons disease” now, say things like, “Oh, well yes, THEY were both DOP, because he was on meth and she’s just plain crazy”. There have been many various, quite ugly, falsehoods brought to Michael blog about us, and they’re being spat out regularly, by some people. We know, as do most all other people, where these feelings come from. They’re completely fear based, and such people tell lies to try helping their own lies stand up against our truth. We’ve done absolutely nothing to these people.

    We know with a firsthand knowledge, that when one is in a delusional state, that’s it…it is reality. What you think is real, is, and what you see as being real, is. Luckily, his was triggered by drug use back then, and luckily, mine was triggered by illness. Morgie people are sick for reasons that only they know, or they “should” know. TC is a smart man, and I’m not real dumb myself. Truth doesn’t scare us like it does most people. Maybe it’s because I’ve had several near death experiences over my lifetime. TC was way too close to losing his life too, a couple of years ago. I don’t care who doesn’t want to try and help themselves. People are free to remain as they are. I don’t think we’ve judged anyone, though, Al. We speak out against wrong things, though, me especially, but only our Creator can judge.

  84. Starlinkon 22 Sep 2006 at 9:37 pm

    So why does Tall and smiley have access to the log records if they are not the same administrator?. Are you really counting posts manually? That seems rather peculiar and obsessive. Maybe you are experiencing excessesive compulsive behavior. The last posts are dominated by “Tall and Smiley”. Strange behavior indeed.

  85. Starlinkon 22 Sep 2006 at 9:38 pm

    Idiotic behavior. Boys we may have a new disease. IB

  86. Starlinkon 22 Sep 2006 at 9:39 pm

    IBWatch. There is a new compulsion for you freak-a-zoid.

  87. Starlinkon 22 Sep 2006 at 9:50 pm

    Oh no wait a minute, it cant be IB, IB Does not exist.

  88. Smileykinson 22 Sep 2006 at 10:20 pm

    Norman, TC & I don’t have access to any log records for Michael’ blog. Whomever “Anonymous” is, said:

    #79# Anonymous Says:
    September 22nd, 2006 at 7:16 pm

    Al,

    Forget this place. Two idiots do 80% of the posts, and old druggie and his christmas greeting.

    Is TC’s #80 comment not self explanatory? He was referring to this topic threads comments. We don’t work for Michael’. Michael doesn’t work for anyone. None of us are part of an organization, nor are we associated with anybody or anything. Morgie people THINK whatever they think, all the time. Ya’ll just blow our minds with it.

  89. alon 22 Sep 2006 at 10:20 pm

    guys
    im back
    lordy tallcotton, gee u must have your thinking cap on today
    “well done, noddy,
    see spot run”
    starlink ur a dude man
    get well soon
    smilykins…didnt read ur tripe…
    never do…
    hi sarah, hows melb?
    good solid debate here margs….
    v. scientific
    IB?
    idiotic behavior

  90. Starlinkon 22 Sep 2006 at 10:21 pm

    This site is not only stupid, it has no purpose other than to say morgellons doesnt exist. Lets examine that point.

    1) What does it prove? NOTHING

    2) What does it disprove? NOTHING

    3) How does it help anyone? IT DOESNT

    4) What is its purpose? TO THROW SMOKE AT THE SUBJECT……..pause……..

    5)If it had one ounce of creditabilty , it might get some media attention. ITS NOT

    6) Tall-Smiley-Morg-Jeeze are the same person. OBVIOUS

    7) They/(HE) wish to remain anynomous. WHY
    8) Everything about this site is anynomous, host, author, admin. WHY

    9) Definatively stating morgellons does not exist is rather assumptious and self serving. NO NEED FOR WHY HERE

    10) You pretend to have medical knowledge, but do wish to disclose your credentials. THATS OBVIOUS TOO

    11) Cookies and viruses are being planted by this site WHATS UP WITH THAT

    12) They like to pick on honest people trying to post their views. THATS NOT ONLY WRONG BUT SICK

    Ok, we will review points 13-25 tomorrow.

  91. alon 22 Sep 2006 at 10:22 pm

    now…. what shit you got on your next masterpiece smily?
    i’ll go see
    i’ll be right back y’all

  92. alon 22 Sep 2006 at 10:23 pm

    well put old chap

  93. SarachConnor (abac68)on 22 Sep 2006 at 10:26 pm

    I had to have a look - well it is just way to funny, that is all I can say. I think a little lie down is in order for me, bit of hayfever today.

  94. alon 22 Sep 2006 at 10:29 pm

    take 5 sarah
    yes it is very amusing
    im sorry
    started a riot against these 2 do gooders
    {or 3, or 1}
    do we have multiple personality disorder, nurse ratchett?

  95. alon 22 Sep 2006 at 10:33 pm

    what a ripper site
    scintillating
    {that means ripper TC)
    im cured
    awwwww…..shucks you guys
    y’all in bed now?

    i love a debate

  96. Starlinkon 22 Sep 2006 at 10:35 pm

    http://www.dangerousmedicine.com/viewtopic.php?t=187&highlight=morgellons

    for your review

  97. alon 22 Sep 2006 at 10:37 pm

    margypoos?
    are you censoring me?
    you really are a little fascist now arent you?
    do you embrace my meaning herr pig?
    my comments dont come up on the main page no more
    help me TC
    help me smilykins
    im sorry margypig
    peristroika i say

  98. Michaelon 22 Sep 2006 at 10:37 pm

    Starlink, I think the posts stand by themselves. It does not matter who wrote them, either way they say has validity or it does not. Your other points are, well, pointless.
    Perhaps you could address some of the actual issues that have been raised. Like the similarity of Morgellons to CFS and Menopause? Or the similarities between Neurotic Excoriations and the Morgellons Lesions?

  99. alon 22 Sep 2006 at 10:39 pm

    thought police

  100. Smileykinson 22 Sep 2006 at 10:40 pm

    We don’t often pretend here, other than just to humor you once in a while. Morgie people only want-to-believe and to-be-believed, so when you like doing the thing of accusing four or five of us as being the same person, and/or that all of us work for the CIA, the FBI, Big Pharma, Big Brother, Monsanto, George Michael, Barbara Walters, or that we’re doctors or med students, whatever, and whomever, if you refuse to believe us, what do you want us to do for you? If you really think these kinds of things, see a doctor about it. It’s really not too normal, and it’s definitely completely unwise, and often very unsafe, to “just believe” with no reasoning behind it.

  101. Michaelon 22 Sep 2006 at 10:41 pm

    That’s a lot to review. Perhaps you could make a point? Mycoplasm?

  102. alon 22 Sep 2006 at 10:42 pm

    well im being censored now u fascists

  103. alon 22 Sep 2006 at 10:47 pm

    play fair america
    if you can

  104. Michaelon 22 Sep 2006 at 10:48 pm

    Al, perhaps you too would like to contribute? Is there a particular post you have a problem with? Or do you just dislike the comments?

  105. alon 22 Sep 2006 at 10:50 pm

    i dont appreciated being censored you facile prick:)

  106. Smileykinson 22 Sep 2006 at 10:51 pm

    #50# al Says:
    September 22nd, 2006 at 4:59 pm

    smilykins this is a public domain
    every time is see ur name
    im gonna read ur drivel… then refute it
    as usual
    ad infinitum
    leave it lass

    Remember that, now, Al. You’d complained just prior to that of being sick of reading my comments, and I told you to skip past the name when you came across “Smileykins”. I advise people that come here to get upset, fairly regularly, to stop the behavior.

  107. alon 22 Sep 2006 at 10:53 pm

    no hun im not sick of reading them…
    i dont read them…
    i just make the safe assumption you are talking shit
    and i jump in….
    there thats honest

  108. Smileykinson 22 Sep 2006 at 11:01 pm

    Al, can you tell us what happened to you, and how long you’ve been back home?

  109. Michaelon 22 Sep 2006 at 11:10 pm

    I’m going to try an experiment.

    98% of the visitors to this site do not read the comments.

    99.9% of them do not post comments.

    So, I’m going to turn on comment moderation. This means that your comments will be held until I approve them.

    This is not censorship, I will approve all comments.

    I just means that the pace of conversation will be slowed to a few times per day. This will allow people to formulate more reasonable arguments and responses, and cut down on the noise. It will also allow new visitors a more proportionate voice.

    If you really want to argue in real time, especially with TC and Smiley, then go here:

    http://www.of-morgellons.blogspot.com/

    Otherwise, chillax, and bring some reason to the table. Just be prepared to wait until the morning for your comments to show up.

  110. alon 22 Sep 2006 at 11:17 pm

    ciao dudes

  111. alon 22 Sep 2006 at 11:22 pm

    my work here is done
    thank you Michael

  112. Starlinkon 22 Sep 2006 at 11:57 pm

    better do something dude, we aint leaving HAHAHAHA

  113. Starlinkon 22 Sep 2006 at 11:59 pm

    moderate this HAHAHAHA.

    there goes your audience.

    HAHAHAHA

  114. Starlinkon 23 Sep 2006 at 12:04 am

    g’night al

  115. Starlinkon 23 Sep 2006 at 12:08 am

    I just means this (a meaningful comment) Dude, use spell check if you want to sound authoritive.

    Starlink Says:
    September 22nd, 2006 at 10:21 pm
    This site is not only stupid, it has no purpose other than to say morgellons doesnt exist. Lets examine that point.

    1) What does it prove? NOTHING

    2) What does it disprove? NOTHING

    3) How does it help anyone? IT DOESNT

    4) What is its purpose? TO THROW SMOKE AT THE SUBJECT……..pause……..

    5)If it had one ounce of creditabilty , it might get some media attention. ITS NOT

    6) Tall-Smiley-Morg-Jeeze are the same person. OBVIOUS

    7) They/(HE) wish to remain anynomous. WHY
    8) Everything about this site is anynomous, host, author, admin. WHY

    9) Definatively stating morgellons does not exist is rather assumptious and self serving. NO NEED FOR WHY HERE

    10) You pretend to have medical knowledge, but do wish to disclose your credentials. THATS OBVIOUS TOO

    11) Cookies and viruses are being planted by this site WHATS UP WITH THAT

    12) They like to pick on honest people trying to post their views. THATS NOT ONLY WRONG BUT SICK

  116. Starlinkon 23 Sep 2006 at 12:10 am

    Cool -

    Well be around when you turn it off.

    See ya later

  117. Starlinkon 23 Sep 2006 at 12:38 am

    good altering. now your comment makes more sense.

  118. Starlinkon 23 Sep 2006 at 12:43 am

    98% dont read the comments?? HAH what are they reading? 99.9 dont leave comments, that leaves a total of 0 to 2% max. Dude you really should get off the meth, no-one is buying your crap. My boys at the newspapers are having a laugh at you.

    See ya later

  119. jeeezelouiseon 23 Sep 2006 at 12:48 am

    Good for you, Michael. I was wondering how you could possibly handle the highjacking of your comments section without censoring, editing/deleting or banning participants.

    Are you related to Solomon?

  120. Starlinkon 23 Sep 2006 at 12:59 am

    I want a little rat on my comments too.

  121. Starlinkon 23 Sep 2006 at 1:01 am

    that would be the gazette in pittsburg and the chronicle in houston

  122. jeeezelouiseon 23 Sep 2006 at 1:09 am

    al Says:
    September 22nd, 2006 at 10:37 pm
    margypoos?
    are you censoring me?

    There is no censorship on this blog. No deleting, no banning. If you are unclear on the concept, please go to Lymebusters and ask what caused the MRF implosion.

    You will very quickly learn all about censorship.

  123. Sarah Bione-Dunnon 23 Sep 2006 at 3:11 am

    12) They like to pick on honest people trying to post their views. THATS NOT ONLY WRONG BUT SICK

    What’s wrong with engaging in conversation about these topics? Even heated debate? If “Morgellons” is real, then it won’t be hard to knock down any criticism.

    There’s a funny balance here. Be taken seriously, discuss, debate, or call names, pout, and swamp the board with these two things. Which one encourages the cause of “Morgellons”?

  124. SarachConnor (abac68)on 23 Sep 2006 at 3:17 am

    I followed the link “Starlink” posted and had a read about the Mycoplasma. Very interesting, scarey stuff hey? My friend actually has mycoplasma in his blood. I am not surprised really because he has been to the USA over 40 times! But it don’t help his symptoms because he drinks the alcohol, which would make anyone feel crap if they were to live on it. One glass of the red wine these days and I am bit tipsy!

    Michael - I like your experiment idea.

    I have lived the past two years believing I had a disease called “Morgellons”. I can tell you that to think you have this disease will bring misery. To believe you don’t have this disease will bring enlightenment. Just my opinion here on my own experience. For me to move on and live I need to apply this.

    I have said before I would not want to be a doctor for love nor money. Not these days anyway. What a position to be in. They are not God, I remember my sis telling me this. But they are human and can not know it all, and get sick just like I did. I have noticed that the Doctors in Australia are really under the pump from the Government, it is like a “point” system I think. Having to submit papers and documents etc, what a nightmare that would be. Inbetween trying to treat patients, have a life with their family etc.

    After all my research and not being a doctor I have seen so much similiarity between “Morgellons” and other diseases. Like Michael said CFS many similiarities apart from the skin lesions.

    I take the opinion that I am an individual and illness, viruses, and infections will effect me differently to someone else. I can not have the same thing as a man for example, just because of obvious reasons! ie. hormones. I read once that MCS Multiple Chemical Sensitivity will effect men and women very differently because of our hormones. For example it said that a woman would show more outward signs effecting her skin because she has ostrogen. For a man the outward signs would not be the same, may not get skin problems because they have testerone. But the damage is still happening on the inside. I found that really interesting when I read it, because I think it speaks the truth.

  125. SarachConnor (abac68)on 23 Sep 2006 at 3:20 am

    Typo - “Testosterone” is what I meant to say. Sorry bout that - I got foot in mouth disease, oh crikey! Just joshin.

  126. texastaron 23 Sep 2006 at 5:40 am

    John,

    Are you getting tired of reading all of Ricky’s crap and the non issues that go on and on. Maybe you are now understanding how sick bugs and adapted really are.

  127. Michaelon 23 Sep 2006 at 7:32 am

    98% dont read the comments?? HAH what are they reading? 99.9 dont leave comments, that leaves a total of 0 to 2% max. Dude you really should get off the meth, no-one is buying your crap. My boys at the newspapers are having a laugh at you.

    They read the articles. See “Categories” in the right column.

  128. Michaelon 23 Sep 2006 at 8:44 am

    1) What does it prove? NOTHING

    2) What does it disprove? NOTHING

    Both true. But you misunderstand “proof”. In science you have theories that fit observations. Some theories fit better than others. Some theories predict results better than others. There is no absolute proof, so you can always deny anything you like.

    3) How does it help anyone? IT DOESNT

    4) What is its purpose? TO THROW SMOKE AT THE SUBJECT……..pause……..

    It’s purpose is to provide accurate information, and to analyse the claims and evidence surrounding the subject of Morgellons. It helps people by providing a rational counterpoint to the unscientific advocacy of the MRF and the NMO.

    5)If it had one ounce of creditabilty , it might get some media attention. ITS NOT

    Media attention is not my intent. It’s more to provide a resource for those investigating Morgellons, so they can form their own opinions on balanced information. To that end I’ve been contacted by numerous researchers and reporters, including the Associated Press, Nature, CNN, and several local media outlets. They talk to Mary, they talk to dermatologists and psychologists, and they talk to me. Then they write their articles.

    6) Tall-Smiley-Morg-Jeeze are the same person. OBVIOUS

    No, those are four different people.

    7) They/(HE) wish to remain anynomous. WHY
    8) Everything about this site is anonymous, host, author, admin. WHY

    Because of this:
    http://www.vaccinationnews.com/DailyNews/June2001/StalkDocSteereReLymeDis.htm

    9) Definatively stating morgellons does not exist is rather assumptious and self serving. NO NEED FOR WHY HERE

    That’s not exactly what I say. Look at the top of the left column here. “The Evidence Indicates ….”

    10) You pretend to have medical knowledge, but do wish to disclose your credentials. THATS OBVIOUS TOO

    I don’t pretend anything. I’m a retired computer programmer. I know general science. I have leet Google skills.

    11) Cookies and viruses are being planted by this site WHATS UP WITH THAT

    This site is just a free blog hosted on Wordpress.org. I could not add a virus even if I wanted to. The cookies are there for your benefit, to remember your log-in name. I don’t control those either.

    12) They like to pick on honest people trying to post their views. THATS NOT ONLY WRONG BUT SICK

    I like to debate evidence and theories. I do not question your honesty, just your science.

  129. texastaron 23 Sep 2006 at 12:54 pm

    as dandy don would say, “turn out the light. the party ’s over.” Even howard would agree with that call.

  130. Smileykinson 23 Sep 2006 at 1:09 pm

    There is no need to question the honesty of people who think that they have “morgellons disease”, anyway. They excel at revealing their level of integrity.

  131. SarachConnor (abac68)on 23 Sep 2006 at 1:12 pm

    “Stalking Dr.Steere Over Lyme Disease” - what a chilling account, a very sad story.

  132. Smileykinson 23 Sep 2006 at 1:21 pm

    And to you, Texastar, you and whomever “John” is, will now *give us an issue*, after making your comment #126. We’ll be beyond thrilled to *finally get to discuss any issue* that you can come up with, relating to “morgellons disease”. I’ve yet to see anyone, claiming to have it, not profess to have such a high level of intelliegence. It’s past time for you to show it to us all. Let’s debate it now. Don’t make me beg.

  133. jaceon 23 Sep 2006 at 1:43 pm

    “I always feel that people should keep an open mind and I think there are scientific experiments, what we call evidence-based medicine, that can prove or disprove that an organism is causing this,” University of Texas Health Science Center at Houston dermatologist Dr. Stephen Tucker said.

    I like this guy. And the experiments are being done right now.

  134. SarachConnor (abac68)on 23 Sep 2006 at 1:48 pm

    texastar Says:
    September 23rd, 2006 at 5:40 am
    John,

    Are you getting tired of reading all of Ricky’s crap and the non issues that go on and on. Maybe you are now understanding how sick bugs and adapted really are.

    Smileykins Says:
    September 23rd, 2006 at 1:21 pm
    And to you, Texastar, you and whomever “John” is, will now *give us an issue*, after making your comment #126. We’ll be beyond thrilled to *finally get to discuss any issue* that you can come up with, relating to “morgellons disease”. I’ve yet to see anyone, claiming to have it, not profess to have such a high level of intelliegence. It’s past time for you to show it to us all. Let’s debate it now. Don’t make me beg.

    Yep - those two comments got me going too. Just thinkin that’s all.

  135. Smileykinson 23 Sep 2006 at 1:59 pm

    Texastar, what opinion do you have concerning some people who think that they have “morgellons disease”, also thinking that they have either…

    1. Had avian flu (even some of them have said “a MILD case of it”)
    2. Those who think that due to their having “morgellons disease”, it has made them immune to bird flu

    Does anyone have an opinion on this, and care to discuss it?

  136. Smileykinson 23 Sep 2006 at 2:15 pm

    Hello, Jace. Would you mind addressing this excerpt from a previous comment? Thank you.

    Topic: Hystorical Context

    #453SarachConnor (abac68) Says:
    September 21st, 2006 at 7:18 pm

    I was told by Mary Leitao some 12 months back when Dr Wymore came on the seen they had found the following from patient specimens:

    Cyanobacteria, barbs like in tapeworms, hookworm, anthrax, leprosy.

  137. SarachConnor (abac68)on 23 Sep 2006 at 2:45 pm

    Golly gee - the “Bird Flu” - Have read too many conflicting reports on the bird flu. I like to put my faith and trust in the WHO (World Health Organisation). Myself I have never had avian flu. Mind you my dad had the avian flu I think back in the 50’s, or whatever they called it then. He said he completely lost 3 weeks of his life, confined to bed the whole nine yards etc, could not really remember, but he said his mum really took care of him, and thank God he got through and came good.

    All my family have bad viruses at the moment, so I am trying to stay clear given my own ailments. My folks put it down to the plane flight, after their holiday. I also mentioned that Queensland Australia has been known to be the best place in Aussie to live if you suffer severe allergies, and Melbourne is the worst place to live for this. So I said to them, since you both get allergies and had close to 3 weeks break from it, then hop on a plane to come back home, exposure to germs in an aircraft happens, and if you happen to be a little compromised in the immune system - catch a cold, and then allergies on top anything can happen.

  138. SarachConnor (abac68)on 23 Sep 2006 at 5:48 pm

    Michael - I had a read about Avian Flu on the WHO website. I was shocked. I had no idea about the number of cases/death etc. This is the lastest link I read.

    http://www.who.int/csr/don/2006_09_19/en/index.html

    Also, has there been cases of Avian Flu “mild” cases in the Morgellons group? OR Was is it that they were just “thinking” this?

  139. Michaelon 23 Sep 2006 at 5:59 pm

    It’s not THAT many - 144 deaths over the last three years. That’s about a tenth of the number of people killed by lightning worldwide.

    It’s only a danger if it mutates to a human transmissable form, which might happen in a few years, or might never happen. Right now it’s not something I worry about.

  140. SarachConnor (abac68)on 23 Sep 2006 at 6:46 pm

    Michael said: It’s only a danger if it mutates to a human transmissable form, which might happen in a few years, or might never happen. Right now it’s not something I worry about.

    Well if you’re not worried, neither am I. Thanks,

  141. Starlinkon 23 Sep 2006 at 7:07 pm

    Michael Says:
    September 22nd, 2006 at 11:10 pm
    I’m going to try an experiment.

    98% of the visitors to this site do not read the comments.

    99.9% of them do not post comments.

  142. alon 23 Sep 2006 at 7:30 pm

    i’m not even here
    …i think….

  143. alon 23 Sep 2006 at 7:48 pm

    just saw this
    talcotton you are a disgusting person
    http://www.classicalvalues.com/archives/003622.html#013697

    Tall Cotton,
    My heart hurts for your closed mind. Please read what you wrote.
    No one knows what Morgellons is so how can you say no one has it.
    You need to pray big time that CDC finds out fast.
    I watched my child suffer for 6 months, unable to move, stuck in a bed with a horror disease.
    For you or anyone to say this is DOP is a slap in his face. If you were in front of me right now i’d have a hard time restraining my anger.
    HOW DARE YOU.
    You sound very young and I know my beautiful son would tell me, mom he/she’s not worth it.
    You just remember this pal.
    If this horror disease ever hits you, deep in the night when you can’t sleep because of the itching, stinging, crawling feeling all over your skin.
    And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them.
    Just remember today pal when you slapped my 23 year old son in the face that I can’t forgive you.
    It’s not that you find this disease to unreal to believe, had I heard of it before we got it, I’d find it very hard to believe.
    That’s not enough for you. You are looking for ways to be ugly and unkind to your fellow man.
    My son was only 23. He wanted so bad to live, love, work, play. HE’S DEAD, did that make your day?
    posted by: Joshua’s mom, Sue L on 06.09.06 at 07:04 PM [permalink]

    [Edited by Michael to clarify what is quoted, and provide link]

  144. alon 23 Sep 2006 at 8:03 pm

    what can i say?
    that is from classicalvalues website
    http://www.classicalvalues.com
    tall cotton it prooves u to be a scoundral
    a cad and worse
    i might be crazy dude…
    of course i am…
    i have morgellons
    …what more do i need to say?

  145. tallcottonon 23 Sep 2006 at 8:08 pm

    Joshua died of a brain tumor, not morgellons. Joshua did not have Morgellons. There are many people with many different medical problems, but no one has Morgellons. That’s a fact!!

    Tall Cotton

  146. Michaelon 23 Sep 2006 at 8:16 pm

    Al, you posted the entire ClassicValues thread in one post. I have deleted that, and added a link to the thread in your original post.

    Please use links where you cannot use a short excerpt.

  147. alon 23 Sep 2006 at 8:16 pm

    u sad little man
    go to hell

  148. alon 23 Sep 2006 at 8:18 pm

    i posted it in its entirety so people could understand the typical high handed stand this dude so cruelly, unethically and spuriously takes
    i condemn him and ask you put the link back on
    it is relevant as it proves complicity, methodolgy and his sheer belligerent hatred

  149. Starlinkon 23 Sep 2006 at 8:37 pm

    What is it with your hangup about the word Morgellons. We all know this can be a catagory, not a specific thing. Ok, lets call it the M-catagory. Get over it.

  150. Starlinkon 23 Sep 2006 at 8:41 pm

    Tall Cotton,
    My heart hurts for your closed mind. Please read what you wrote.

    No one knows what Morgellons is so how can you say no one has it.
    You need to pray big time that CDC finds out fast.
    I watched my child suffer for 6 months, unable to move, stuck in a bed with a horror disease.
    For you or anyone to say this is DOP is a slap in his face. If you were in front of me right now i’d have a hard time restraining my anger.
    HOW DARE YOU.
    You sound very young and I know my beautiful son would tell me, mom he/she’s not worth it.
    You just remember this pal.
    If this horror disease ever hits you, deep in the night when you can’t sleep because of the itching, stinging, crawling feeling all over your skin.
    And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them.
    Just remember today pal when you slapped my 23 year old son in the face that I can’t forgive you.
    It’s not that you find this disease to unreal to believe, had I heard of it before we got it, I’d find it very hard to believe.
    That’s not enough for you. You are looking for ways to be ugly and unkind to your fellow man.
    My son was only 23. He wanted so bad to live, love, work, play. HE’S DEAD, did that make your day?
    posted by: Joshua’s mom, Sue L on 06.09.06 at 07:04 PM [permalink]

    Thanks alot guys. Point well made.

  151. Starlinkon 23 Sep 2006 at 8:44 pm

    it will probably be someone you care about next

  152. Smileykinson 23 Sep 2006 at 8:45 pm

    My point about the H5N1 virus, is that there are actually morgie people who’ve said that they have HAD IT!!!! There are also morgie people who’ve said that due to their having “morgellons disease” that they believe that they are immune to avian influenza. I wondered if anyone sees anything amiss with thinking like that.
    Al, did you follow Sue, upon her arrival at lymebusters’ and read her posts as they unfolded there? Well, I did, and I encourage you to go there and do a search for them. It’s should be there, all in print, from day one. It was an amazing thing to see happening as it did, too.

  153. alon 23 Sep 2006 at 9:05 pm

    more verbose garbage
    gotta run
    keep it real

  154. Starlinkon 23 Sep 2006 at 9:12 pm

    That last post is a spinner. First, did Al follow Sue upon her arrival at Lymebusters, and read her posts, I did, and looked. It shoulda been there, amazing as is it happened, too?? Does this really relate to Morgellons?

  155. Michaelon 23 Sep 2006 at 9:18 pm

    I read Sue’s posts. She says her son died of brain cancer, but she thinks that Morgellons caused it.

    Which definition of Morgellons are you using?

    What IS Morgellons, to you, Starlink.

  156. Smileykinson 23 Sep 2006 at 9:22 pm

    Since posts aren’t accepted on the link you provided for us, anymore Al, here was what I was planning to say there….

    I wouldn’t be posting here if it weren’t for a disturbed lad named Al, who, in order to “defend” what he thinks is “morgellons disease” posted a link to this spot on morgellonswatch today.

    More than several restless people who are in fear of someone endangering their disease, continuously reveal their illnesses outside of the usual “morgellons disease” forums.

    I fail to see what the point that oldimeybioman is wanting to make, but didn’t, in his message of condolence to Sue L. It is terribly sad that she lost her son, and nobody can deny that it’s the greatest tragedy that a person could ever endure.

    I read all of Sue’s posts from the day she first arrived with her story on Lymebusters, and told about her son’s cancerous brain tumor. At first, it wasn’t clear to everyone how old he was, and some thought that he was a small child.

    She even told the type of specific tumor that he had, and I looked it up. As time unfolded, as is quite often the case on Lymebusters forum, Sue became more convinced that “morgellons disease” was what her son was dying of. She claimed that they both had it.

    She even said, later on, near the end, that one of his nurses told her that “morgellon disease” was what he was succumbing to, and not the tumor. I know it would be a nearly impossible thing to have to cope with, and maybe that is the only way she can, somehow.

    However, if a skin infection caused his demise, Sue knows what his medical records have in them. It was not “morgellons disease”, but maybe it was MRSA. Only she knows the truth, but she is unable to face it.

    But is it right to allow people to spread fear that “morgellons disease”, which doesn’t even exist, is lethal? No, it is not.

    People who think they have it, surely have something, though., but their minds are unable to accept the truth.

    Who. again, Al, are we judging?

  157. Starlinkon 23 Sep 2006 at 9:24 pm

    you can’t function regularly or sleep because of the itching, stinging, crawling feeling all over your skin. And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them. No stamina, brain fog.

  158. Starlinkon 23 Sep 2006 at 9:26 pm

    simple things like that

  159. Michaelon 23 Sep 2006 at 9:31 pm

    you can’t function regularly or sleep because of the itching, stinging, crawling feeling all over your skin. And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them. No stamina, brain fog.

    No, those are YOUR symptoms of what YOU have got. Lots of other people have different symptoms. Some don’t itch. Some don’t have lesions.

    What I’m asking is: how can you tell if someone has Morgellons?

    What’s the case definition, or diagnositic criteria, for Morgellons?

    I found fibers in my lesion two months ago. Did I have Morgellons?

    What IS Morgellons?

  160. Starlinkon 23 Sep 2006 at 9:33 pm

    http://www.dangerousmedicine.com/viewtopic.php?t=187&highlight=morgellons
    has an explanation to your question

  161. Starlinkon 23 Sep 2006 at 9:33 pm

    http://www.dangerousmedicine.com/viewtopic.php?t=187&highlight=morgellons
    has an explanation to your question

    I posted it yesterday, but it seemed to disappear.

  162. tallcottonon 23 Sep 2006 at 9:36 pm

    Sue told everyone he had a brain tumor, then later she blamed his death on morgellons. That’s bullshit. She may find my statement to be a slap in the face to her son, but I find her statement a slap in the face to truth, and I personally don’t give a fuck wherther anyone likes it or not.

    There is no M-catagory. If you want one designated, it would have to be a form of mental illness, moreso than anything else. You silly people don’t even have the same things wrong with you.

    Tall Cotton

  163. Starlinkon 23 Sep 2006 at 9:36 pm

    No you are incorrect. I do not have these symptoms. I and I will am sure you you dont have any family or friends that do. So how can you be such a Judge of this subject if you have no first hand experience at all?

  164. Starlinkon 23 Sep 2006 at 9:37 pm

    No you are incorrect. I do not have these symptoms. I am sure you you dont have any family or friends that do have them. So how can you be such a judge of this subject if you have no first hand experience at all?

  165. Smileykinson 23 Sep 2006 at 9:41 pm

    Norman, is your mother who seems to think she has “morgellons disease”, or do you and she both seem to have it? Just about anyone I know could say that they have it, but why on earth would they, when there are logical explanations for the things you described?

  166. Starlinkon 23 Sep 2006 at 9:44 pm

    You are laughing in the face of disaster

  167. Starlinkon 23 Sep 2006 at 9:50 pm

    again

    you can’t function regularly or sleep because of the itching, stinging, crawling feeling all over your skin. And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them. No stamina, brain fog.

    Starlink Says:
    September 23rd, 2006 at 9:26 pm
    simple things like that

  168. Starlinkon 23 Sep 2006 at 9:51 pm

    and in case you delete it again

    you can’t function regularly or sleep because of the itching, stinging, crawling feeling all over your skin. And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them. No stamina, brain fog.

    Starlink Says:
    September 23rd, 2006 at 9:26 pm
    simple things like that

  169. Starlinkon 23 Sep 2006 at 9:58 pm

    Maybe you should create an “Adopt A Morgie” program to educate yourself and others since you have so many questions. You could really get inside their minds and maybe even catch whats ailing them.

  170. Smileykinson 23 Sep 2006 at 10:14 pm

    Comment #144 al Says:
    September 23rd, 2006 at 8:03 pm

    (excerpts)

    what can i say? i might be crazy dude…of course i am…i have morgellons what more do i need to say?

    Al, but is that really the best that you can come up with, though? Because we regularly see the state of mind people are in, who think they have “morgellons disease”, yet not many will say what it is really like, and reveal their symptoms. They usually get mad at anyone asking. When I was on Lymebusters message board, newcomers would show up and people would start right in, telling them what to do, with their home remedies, and not question what the person’s symptoms were. Nobody ever seemed to care to, and people would join in. Can you just tell what it’s like, in specifics? Norman, would you mind attempting to do the same, please? Thank you.

  171. SarachConnor (abac68)on 23 Sep 2006 at 10:18 pm

    On the topic of “Doctor & Patient” too bad it’s Sunday!! I will get there…

    http://www.seeklyrics.com/lyrics/Sting/Let-Your-Soul-Be-Your-Pilot.html

  172. Michaelon 23 Sep 2006 at 10:35 pm

    Starlink, nothing is being deleted. Comment moderation has been enabled, so comments may take a while to show up. I will approve all comments, I’m just slowing down the pace a bit. This gives people a chance to better formulate their questions and responses. It already seems much more civilized.

  173. alon 23 Sep 2006 at 10:37 pm

    hi smilykins
    hold your ground
    but you are slipping in your own
    bile

  174. alon 23 Sep 2006 at 10:42 pm

    heres another one
    who ever is running this website is also deleting anything they may help all who have been infected and all who don’t even know they have been infected because your body is not allergic to the microorganisms, (hybrids–biologist who cross genes of two different species, and the lipids, lipids lay eggs and are used in many prescriptions that we use and makeup and shampoos,
    there are liposomes and crystals that send signals look up liquid crystals and hydrogels, look up photosensitizing agents, you will find they are chemotherapy agents, retinoids are chem. agents and they are being used in many skin products. they cling to the helix of the dna and rna look of the patents 4877808 4603146 4423041 in a prescription cream called renova made by johnson johnson, telling women it will prevent wrinkles, they don’t tell you about the microorganis and that this cream contains chemo agents, that blurr your vision, cause dry eyes, dry mouth and dry mucous membranes and sores in your mouth as well as the propene a toxic gas. they don’t tell you that the benzoic acid in this product that causes aromatic rings cause leukemia and non hodgkins and lymphoma. they don’t tell you that lipids come from insects, silkmoths, and spiders as well as bird eggs. they created something biological and they can’t control it, they sold it to millions around the world and they created a biological organism that spins the films that are on these patients and then they will tell you that you have dry eyes and it makes you see cobwebs called floaters, the chemicals and gases cause neuro peripheal problems likea add and odd, and brain fog, they won’t tell you that the chemicals partition the membranes and allowing a host of bacteria and other infestations to come into the open pores and sores. you probable won’t get to read this because whose ever website it belongs to will delete this like it did the other two blogs. they don’t won’t you to know the truth. the fda and cdc have had knowledge for at least 5 yrs of patients complaints and refused to investigate and now the patents show what they did, and how they used innocent people as human guinea pigs and created a creature that travels in toxic gases and thrives on the sun lights and anything electrical for strength. Look up nano tech and nano tunneling as these chemical were once nano scale until a stupid physician gave a predizone shot that nade it multiply and mutate. Look up self assembly bacteria, crystals, lipids. Look up micelles and head groups and tails, spinning in hydrogen vapors. look up spin electric and and dieelectri and you will not believe how far science has gone, look chimera, look up photomask.
    before you make comments and belittle people who know they are sick and know they are being suffocated by a horrible organism, does it take the plaque and for you to be effected or a family member before you wise up and stop the immature and stupid remarks going on on this website. I printed out my last remarks, before this website deleted them, proving this site was created only for wise remarks and to make fun of people who are suffering, the sad day will come when it is too late and your stupid remarks and the stupidity of this website prevented a cure from being developed because physicians and pharmaceutical corp. prevented people from being dx. because they created it. No doctor gets rich from a healthy pt. st lukes knew what this product did, they knew all the side effects from the chemicals in this product. as i called each drug and chemical up and have 2 ft. of documentation on each chemical, and got alot of them from their website such as accutane, yet their dermatologist state on tv it is delusional.
    I thnik grown people know if something is moving on them, especially a person who never suffered before and wasn’t someone who went to the doctors every time they didn’t feel well. ignorance is bliss but for how long. physicians thought they were safe by standing back away from their pts.,
    they didn’t know how infectious this was. photos will show you if you are infected, the camera picks up the crystals and metals used and the optic fibers. Prof photographer states put negaives on a film projector and it will show you what you have covering you. call mr keith hilley from garden state pest control, 128 Claire crt. turnersville nj 08012, he seen them, he took samples to a lab, but they won’t let him report the results, he’s too scare to talk, and will allow innocent children and people and animals to suffer, because he is too scared to talk. I will print this before it gets deleted so later you will all know that this is not about the truth or about the search for a cure or is there really an epidemic out?

  175. tallcottonon 23 Sep 2006 at 10:50 pm

    Starlink said…

    you can’t function regularly or sleep because of the itching, stinging, crawling feeling all over your skin. And in the day light when you can no longer work because of sever pain, go out in public because you look like a monster or hold someone you love in your arms for fear that you’ll infect them. No stamina, brain fog.

    It sounds to me like you are trying to put a curse on me, Starlink. It won’t work, I assure you.

    Starlink said…

    You are laughing in the face of disaster

    No, Starlink, I’m not laughing, not at your medical problems. Sometimes it’s hard not to laugh at your lack of logic and common sense, that’s all. But, if I were, how would it be “in the face of disaster”? I have absolutely NO FEAR of Morgellons, and I sure don’t have any of you.

    Tall Cotton

  176. Starlinkon 23 Sep 2006 at 11:10 pm

    When I was on Lymebusters message board, newcomers would show up and people would start right in, telling them what to do, with their home remedies, and not question what the person’s symptoms were. Nobody ever seemed to care to, and people

    We dont care about the Lymebusters.
    are you seeing the words I am typing?

  177. Smileykinson 23 Sep 2006 at 11:12 pm

    Norman, now listen here. What is it PRECISELY that you are trying to warn us all about, and shaming us over? Damn, mister. “Laughing in the face of danger”? “Get inside their minds”?

    *Tell us*

    I’d had delusional parasitosis for a couple of months back in 2002, and I’ll be darned if I wasn’t inside the same minds as quite a few people who think that they have “morgellons disease”. Some of these people said that I had “morgellons disease” and that I still have it, only thinking that I’d gotten over it, and that the fibers only went inside. They said they’re consuming me internally which is worse than knowing about it. That idea varied, though, depending on which person of expertise was speaking. You know, you’re not supposed to ever recover from “their disease”.

    I couldn’t openly speak my mind on Lymebusters and say that what I’d had was what so many of them said they were diagnosed with, which is no secret, and was DOP. I didn’t even know what DOP was until I looked it up, after seeing