Randy Wymore is an associate professor of pharmacology and physiology at Oklahoma State University Center for Health Sciences. He is also the Director of the OSU-CHS Center for the Investigation of Morgellons Disease, a newly formed organization that has grown out of Wymore’s work investigating what is know as “Morgellons”. The CIMD has the following vision statement:
Which says in part (emphasis mine):
Morgellons is a multi-system disease of unknown etiology
Morgellons disease is discounted by many public health officials and physicians
Physical and neurological symptoms are often dismissed or ignored
Sufferers are labeled with delusions of parasites or neurotic excoriations
OSU-CHS physicians/researchers have physical evidence of Morgellons Disease
Morgellons is not psychiatric in origin
Morgellons is an emergent disease
The Center for the Investigation of Morgellons Disease will facilitate successful research,
treatment and an eventual cure for Morgellons Disease.
and then goes on to list the ways in which Morgellons will be researched, treated and cured.
Wymore has also released a much longer personal position statement, dated Jun 19, 2007:
Which confirms what was said in the vision statement:
6. There is no clear and simple diagnostic test yet to confirm or rule out
Morgellons. Still, 100% of the patients, that were felt to genuinely have
Morgellons Disease [about 29 patients], have large microscopic-to small macroscopic fibers visible
under their outer layer of skin. These fibers are not associated with scabs or
open lesions, nor are they under scarred tissue. The idea that Morgellons fibers
are mere fuzz and lint, simply sticking to the lesions and scabs, is not possible
based on the observations that were just described. These fibers are under
“normal-appearing” areas of skin. In contrast, such fibers have never been
observed in even one person who does not claim to have Morgellons. Clearly,
there is something different in the skin of purported Morgellons sufferers
compared to the non-Morgellons population.
That seems at first glance to actually be a “clear and simple diagnostic test”. 100% of Morgellons patients had fibers, 0% of non-Morgellons patients had fibers. With a 100% success rate, even 29 samples gives you a high degree of certainty. What’s the problem here? Patient sampling is often an issue, so where did these patients come from? Wymore says earlier:
Of the thirty or so patients claiming to have Morgellons disease, that clinical faculty have examined in facilities associated with OSU, only one patient likely did not have Morgellons.
That’s quite an impressive set of statistics. 97% of all patients that claimed to have Morgellons, and were examined by OSU, were found to have visible fibers under unbroken skin, and these fibers have never been observed in people who did not think they had Morgellons. How is this not a “clear and simple diagnostic test”?
Unfortunately, we can’t say, because Wymore will produce no evidence. What do these fibers look like? If they are visible under unbroken skin, then why are there not 29 photographs of fibers under unbroken skin? Why not even one photo? Have these visible fibers actually been examined visually by a dermatologist to make sure it’s not just ingrown hairs, or blood vessels, or nerve fibers, or some symptom of one of the thousands of dermatological conditions with which Wymore is not familiar? Patients who claim to have Morgellons will scratch themselves. Perhaps the scratching results in the fibers becoming embedded in the “unbroken” skin? Or perhaps scratching results in the existing fibers in the skin (hairs, blood vessels, etc) becoming visible. If these fibers are as easily found as has been suggested, then why, after more than a year, has there been no clue released as to their chemical makeup? Not one test result? What is the background of the patients? How were the patients selected? How long have they been scratching themselves? What diagnosis does a dermatologist make of these patients after being presented with the Morgellons evidence?
Wymore might say this lack of evidence is because “The writing of manuscripts, for submission to scientific and medical journals, detailing our observations is a work in progress.” But that’s misleading. Wymore has already published his conclusions. He shouts from the rooftops that “Morgellons is an emergent disease”, and “Morgellons is a multi-system disease of unknown etiology” and “Morgellons Disease is real physical pathology of unknown cause.” He announces these conclusions without evidence. He goes on television to announce these conclusions. He releases “vision statements” and “position statements” that clearly state these conclusions. All without a shred of evidence. After over a year of research, still no evidence.
Wymore is a big fan of the academic process. He spends the largest section of his position paper in mocking “debunkers”, such as myself, calling them “amateurs”, “not scientific” and “laughable”. He decries my web site as “at the very least, a waste of valuable time and at the worst, hurtful”, because I’m not going to talk anyone out of their delusion. Now I’ve had a lot of praise for my web site from individuals, journalists and scientists, and I’ve even had several emails from itchy people who did in fact find lint on their skin, and though they had Morgellons, and only realized what it actually was after finding my web site. Of course, if someone is chronically deluded then nobody can talk them out of it. I have no illusions there, and it should be obvious that that is not what this web site is about.
It seems a little odd to me that Wymore should spend a page devoted to pointing out how non-academic internet debunkers are, and how their amateur efforts will hurt rather than help, and then on the next page says:
I applaud the many
physicians and nurses who ARE attempting to treat Morgellons Disease by trying
different strategies. It will be wonderful if one of them stumbles onto a complete
cure for the disease. In an academic or medical school setting that approach is
not workable. Before human subjects can be used or so-called clinical trial
established, there must be an arguable rationale for the treatment.
So, it’s fine for Stricker and Savely to sell expensive long term antibiotic treatments to people who think they have Morgellons? Treatments have have NO SCIENTIFIC EVIDENCE of efficacy. Treatments that are based on a theory that Morgellons is related to chronic Lyme, and treatments that are so far out of the mainstream that Savely was forced out of her Texas practice for prescribing them? It’s fine for Wymore’s friends to do things that even he says are not workable in an academic setting? Why? Because they care?
Professor Wymore cares a lot about the suffering. I suspect Stricker and Savely care a lot too. The patients desperately want to be believed. By believing them, Wymore makes them feel a lot better, and they are very grateful to him. By believing them and giving them “treatments”, Stricker and Savely also make them feel better, and they are grateful to them (but poorer).
I care a lot. I care for the patients. I care for the people who are sick. I want the people who are sick to get better. I want people who are not so sick to not get worse. I want them to get appropriate medical treatment. I want them not to waste time and money with quack remedies for a disease for which there is not evidence of existence.
What I want, perhaps most of all, is for people to realize that “disease or delusion” is a false choice. When I say that “Morgellons is not a distinct disease”, or even if I were to say “Morgellons is not real”, it does not mean “you are delusional”. If you are sick, I don’t know what is wrong with you. I don’t know if you are delusional or not. I don’t know what is wrong with your skin. I don’t know why you itch. There are thousands of possible reasons for your symptoms, and I don’t know what is behind your particular symptoms. All I know is that nobody has ever produced any evidence that Morgellons is a distinct disease or a “real physical pathology”. Nobody has produced any evidence that the fibers are in any way involved. Yet they continue to talk and act as if they have. They need to put up or shut up. It’s the ultimate in bad science to announce your conclusions with 100% certainty, and then expect people to make health-care choices (and even prescribe treatment) based on those conclusions, without offering any evidence.
On the other hand, there is plenty of evidence that Morgellons is NOT a distinct disease, not a syndrome, and not a health condition of any kind. There is also plenty of evidence that many of the Morgies are delusional in a variety of ways, and that they believe some of the most ridiculous things. Most of the Morgies are in need of mental help. That’s not just my opinion. It’s the opinion of many of their doctors.
DOP can be treated, but in order to be helped, the Morgies need to want help more than they want to be right. They need to quit telling their doctors they have Morgellons, and listen to, and act upon, what their doctors say about their health.
I think TC hit the nail on the head
“They need to quit telling their doctors they have Morgellons, and listen to, and act upon, what their doctors say about their health.”
There is very much against me against the mainstream medical establishment attitude in the morgellons community. I thinks this hinders treatment greatly.
Another good point. Where is Wymore pics of these fibers. Its time for him to talk the talk and walk the walk. So far he is just talking.
I guess the longer he keeps this going with no research the more money he can get donated (thus supporting himself with) and keep his ego all bloated w/ many people who call him “the good dr.” Again folks, this guy is not a MD, a PhD. Doctorate of philosophy. I am getting one, but I am not about to start acting that I know a lot about medical terms just because there is a Dr. in front of my name.
When I was a member of lymebusters’ message board, regardless of my announcing, in advance, in some of my comments, things like, “this is just pertaining to ‘morgellons disease’, and not meant for anyone who has real worms, or for anyone who has lyme disease”, it was next to impossible to not incite anger, somehow, without ever meaning to.
The “researchers” and the “doctors” who support “morgellons disease” need to address the fact that a large portion of the people on “morgellons disease” message boards are discussing worms and bugs, and a lot of dangerous ways of ridding themselves of them. Very explicitly described, out of the ordinary, types of things are discussed, and some patients report seeing “holograms”, too. They’re calling it all, “morgellons disease”, and nobody tells them that it isn’t.
I would think that they would want to separate people who have what they consider to be “morgellons disease” — you know, the new mysterious disease involving fibers in a person’s epidermis — from those who have DOP, if they really feel they need to prove something. Such people as that, have blurred the lines, really, really, badly, for “morgellons disease”.
In my opinion, a “morgellons disease” authority figure really needed to have spoken up, a long time ago, and directed such people to start their own DOP forum, rather than to mess up “morgellons disease”, for everyone else, that way.
I just smacked myself, and I am going to go sit in the corner, now.
Also, an assitant who used to post on here said the fibers were cellulose and now they are not. Hmmm….buying more time to get that one last big grant before the CDC shows this to be a hoax.
Oh, they’ll all still get their victims’ money, for as long as time goes on and they all stay on the never-ending-quest-outside-of-the-box, unless any family members can finally step up and bust some of their quack asses.
I think that, aside from how he “talks-the-talk”, Wymore (like all of the other patients), can not get his mind around the simple fact that it is not unusual CONSIDERING THAT THE PUBLIC WAS ALERTED TO THE EXISTENCE OF A HORRIFYING NEW DISEASE, *A PLAGUE, NO LESS*, to have an interest in finding out what’s behind it all, and to spend time deconstructing the words, comments and images of people who claim that we’re all going to get it. I really feel that it would be perfectly natural, also, that any physicians in attendance of a conference presentation on “morgellons disease” would naturally be very surprised, puzzled, and quite concerned upon witnessing it, and know better than to try talking those giving such a presentation out of it.
Notice they call in dermopathy and not morgellons. I will comment later. There is also something else going on there that involves some humor. Later
Lymebusters is going crazy over this whole CDC thing not realizing this does not make morgellons a true disease. It just serves as something to recommend people to if they call them(the cdc)persitently bugging them about the status of the investigation. This does not give morgellons any credibility.
If so, how come it doesnt mention the symptoms like spiders coming out of ones head, worms coming out the nose, drop foot, and all the other things added to morgellons vague symptomatic list.
I apologize for the length of this comment.
Here is a poll for “morgellons disease”, that was started in November 2006, in hopes of finding some common patterns among the many answers:
I don’t see that there have been any results posted, yet, so, I decided to narrow the 24 Q & A down to the most relevant ones:
Out of approximately 40-50 participants, here is a random sample of 21 patients. (Please note, that these are not “confidential medical records”.)
15.Kidney Disease, Parathyroid removal, Dialysis, Shingles at time of onset.
16.Smoked pot 22 years, quit 1 year before acquired morgellons.
17.Prednisone, Tacromilus, Cellcept, Labatelol, Clonodine, Zoloft, Parasite Cleanse, Salt / vitamine C. Praziquantel / invermicin
23.Brain Fog, Vision disturbances, headache, ringing in ears, traveling arthritis, hip hurt, fatigue.
24.Scabies, Purigo Nodulalis, DOP.. Dr. Schwartz Morgellons
15.stomach operation and 17 blood tranfusions
16.I smoke 10 a day
17.salt/vit c (woodworm/cloves/blackwalnut when I can )
23.weight loss fatique nausea vision disturbance brain fog teeth hurt,hearing sore joints ,headaches
24.scabies,ezcma,DOP,poor diet ,depression ,various allergies
15.Kidney Cancer (left removed), Hypo-Thyroid, Heart Attack, pre-cancerous colong polyps last 3 years, allergies including dust, mold.
17.Zoloft, Prempro, Levothyroxin, Keraflex
23.Some fatigue, brain fog – although that seem to be in some type of cycle and only lasts a day – perhaps maybe one day a month. Pain and pressure under healed skin over lesions that become inflamed again.
24.Munchausens. Delusional Parasitosis, Picker’s Nodule.
15.no diagnosis/labtest yet
17.treatment regimine/cumin digest gold wormwood tabs
23.lesions stinging biting crawling skin orifaces, word switching, chronic fatigue, weight loss, lack of appetite, eye infections ear infections,abdominal pain,sometimes nil sex drive,mood swings,jointpain,swollen feet hands,diharrea,occasional vomiting
15.Thoracic Aortic Dissection (2) – Aortic Aneurysms, Connective Tissue Disease-Collagen Disorder, Hypertension, Fibromalgia, Hypokalemia (Potassium electrolyte deficiency), Fibromuscular Dysplasia (Renal Arteries), Acid Reflux, Rheumatoid Arthritis, Asthma, Post Traumatic Stress Disorder, Depression
16.At onset – Yes…Currently – No
17.Welbutrin, Sonata, Norvasc, Atenolol, Enalapril, Prednisone, Atarax, Prevacid, various anti-depressants
23.Short-term Memory Loss – Fatigue, Mental Concentration, Depression, Lesions on Face, Muscle Weakness, short term memory loss, trouble swallowing.
24.folliculitis, picking at face due to nerves & stress.
15.Before I had tachycardia and mitri valve prolaspe. Since the disease, I’ve been diagnosed with fibromyalgia, chronic fatigue, shingles, folicilitis, possible scabies, arthritis, borderline sugar imbalance, low b12, “siezures”, doctor said jokingly, I was a mess. I say I had a systemic disorder.
17.Tenormin,Ativan,Bactrim DS, Advil
23.fatigue,skin sores, fibers, other odd things come out of skin, pin pricks, weight gain in the beginning, low grade fever, diminished mental capacity (recall, short term, decision making, confusion, comprehension) vision going downhill, hair is getting thinner, vomiting, stomach pain, cysts on parts of body that get larger and smaller. Just to many to list them all
24.fibromalgia, Chronic fatigue, scabies, folliculitis, shingles, dementia, then psychotic or depression. The emergency room doctors never knew what I had, at least that was honest.
15.Doctors (incl eye) labeled my systems as stange. I have Parkinsons, high blood sugar, high cholesterol
16.Yes 10-17 a day
17.Actos, Ditropan, Mirapex, Aziect, Sinamet
23.Cysts on the body that get larger and smaller. I saw a CAT Scan and my insides were loaded with cysts, especially around the Liver, muscle pain and spasms, hands wrinkle up and turn black, hair loss, ringing in the ears, a smell that change every so often, difficulty walking, many more
24. Parasitic Infection, Fungal Infection, Delusional parasite, Parkinsons Disease, Fibromalgia
15.no med.roblems before this
16.do not smoke
17.took amitriptylinne for depression for many tears
23.brain fog,nausea, lots of mucus in nose and mouth,50 lb.weight loss in 1 year,vision problems,itching and crawling sensations, difficult. sleeping
15.thyroid dz, Fibromyalgia, Depression, IBS, Gastro reflux, Herniated discs
17.Meds: Synthroid, Nexium, Zelnorm, Cymbalta, Oxycodone liquid, and recemtly on risperdal that my psych put me on for the bugs(antipsychotic) which I am not going back for…quack…the list of meds from past is too lengthy to list or remember
23.extreme fatigue, nausea, neuromuscular problems (shakes, tremors), brain fog, vision disturbances, emotional upset, memory loss is worse, itching/crawling/biting feelings, even if no bites
24.previous diagnoses: DOP, but one biopsy showed chronic folliculitis…I believed scabies.demodicosis…don’t know now what I beieve, except I have not been evaluated properly after taking specimen bottles in with me…they refused to do bloodwork, scrapings, etc, and still gave me meds and said that should have done it…
15.Poss, lyme. Liver abnormal
16.quit 6 mos ago
17.rather not say yet
23.brain fog, loss of control of emotions, no appetite, depression, crawly feeling, lack of motivation, panick attacks, rapid heart beat for no reason, sensitivities to things never before, constant and never ending puritus, non tollerance to alcohol
24.Possilbe Mastocytosis, indolent
15.I HAVE HEP. C. WHICH HAS TURNED INTO LIVER CANCER.
16.YES. AT LEAST A PACK A DAY.
17.NO PRESCRIBED MEDS. AS HARD AS IVE TRIED TO QUIT I STILL CONTINUE TO USE METH. IN SMALL DOSES. ITS THE ONLY WAY I HAVE ANY ENERGY WHATSOEVER. WITHOUT THIS SUBSTANCE I’D BE BED RIDDEN FOR A FACT AND THE PAIN IN MALL MY JOINTS WOULD BE OH SO PREVALENT. SO PLEASE DO NOT JUDGE ME!!!!! i BELIEVE THERE IS SOPME KIND OF DIRECT LINK BETWEEN THE TWO.
23.I STILL GET THE LEISIONS, ITCHING , CRAWLING, FUZZY FUZZ FEELINGS ALL OVER AND I WITNESS THE LITTLE BEAST COME OUT OF MY PORES LIKE LITTLE FUZZ BALLS AT TIMES, OTHER TIMES BLACK FLECKS, OTHERS LIKE VERY MINUTE PIEACES OF DIRT, SOMTIMES WORMEY CREATURES AND THEN THERES THE BLACK, BROWN AND WHITE HAIRS WITH HORRIBLE CRITTERS AT THE TIP OF THE HAIRS. THEY HAVE TAKEN OVER MY WHOLE HEAD OF HAIR. MY JOINTS HURTS SO BAD ON THE RIGHT SIDE, ESPECIALLY MY RIGHT ELBOW AND WRIST AND LEFT AND RIGHT PALMS. SO FATIGUED AT ALL TIMES, FLU TYPE SYPMTOMS. MY SKIN LOOKS DIFFERENT AND THICKER AND SCARRED FROM THE SORES. NAUSEA, LOSS OF SHORT TERM MEMORY, LOSS OF SELF-ESTEEM AND YES WEIGHT GAIN, ABOUT 20 PONDS FOR NO REASON AT ALL. ALSO WHEN EVER I GET A SCATCH OR CUT IT TURNS INTO A MAJOR INFECTION, WHICH PENCILLIAN IS THE ONLY ANTIBIOTIC THAT WILL CLEAR THE INFECTION UP. I BUY THEM BLACK-MARKET. i NOW KNOW WHAT IT MEANS TO BE OBSESSIVE/COMPULSE. I NON STOP CLEAN IN HOPE THAT THEY WONT SPREAD ANY FURTHER, BUT TO NO AVAIL AS ALL OF MY FRIENDS HAVE IT TOO. SOME AS AS BAD AS MYSELF, OTHERS NOT AS BAD.
24.WHEN I FIRST CONTACTED THIS I WAS TURNED AWAY FROM THE THREE EMERGIE CARE HOSPITALS IN VANCOUVER, WA. AND THE COUNTY HEALTH DEPT IN WASHINGTON STATE. SO WHY BOTHER TO SEEK A DOCTOR OPIONION HERE IN PORTLAND AAS THERE A PART OF THIS CONSIRICY ALONG WITH PHARMACUTICAL CARTELS.
15.Perfect health 2 1/2 years ago check up
16.1/2 pack a day
17.birth control pills and vitamins
23.brain fog, loss of control of emotions, no appetite, depression, crawly
feeling, lack of motivation, panic attacks, rapid heart beat for no
reason, sensitivities to things never before
15.Had 2 c sections, had gastric bypass in 2001 (stomach stapling), and had an undiagnosed pain attack in my lower back kidney area (definately not shingles)- but all tests never show anything.. spent a week in the hospital on some severe pain medication
17.I am suppose to take a variety of supplements for my gastric bypass, but the only 1 am good about taking is my b12 injection. In the past I have taken different antiboitics (mostly z-packs), different pain meds for back and surgery related pains
23.itching at night on both forearms, terrible memory issues, very low b12, iron deficient
15.Very healthy until all this happened to my skin.
17.Clonazepam occasionally for sleep but will be running out soon. Past meds that didn’t help: Zyrtec, Doxepin, Fluconazole, Ciprofloxacin.
23.Fatigue, occasional stomach cramping, attention problems
24.Scabies without scraping by general MD, sun damage, erythemic skin and DOP by dermatologist, skin scraping by P.A. resulting in yeast.
15.NO PROBLEMS BEFORE THIS
23.FATIGUE,BRAIN FOG,VISION,DETERATION OF TEETH,RECEDING GUMS,DEPRESSION,ANEXITY,EXTREME MOOD CHANGES,BLOATED,WEIGHT GAIN,DISCHARGE,STRANGE SMELL,DARK URINE,FORGETFULNESS,MUSCLE TWICHES,LEG CRAMPS,
15.Otherwise very healthy
23.red moles (LOTS), brown “sun spots”, Vision deterioration, fatigue
24.Found what I had very early; have never told a doctor for fear of losing my doctors
* Frequent county mosquito sprays in my area (by street and by air)
* First outbreak followed poison ivy infection. Poison ivy came to my yard in bark delivered this spring.
* Live in area of lots of chemical plants
23.crawling sensations, burning pain, tiny red pin-prick like markings, black pepper like substance and white fibers coming out of skin
17.estrgen, anti-depressant , High blood pressure pills, zopliclone
15.BI-POLAR BEING VERY MANAGED
17.ZOLOFT,WELLBUTRIN, DEPAKOTE (PAST) MINOCIN (ACNE), PROVIGAL AND TRAZADONE FOR PAST 6 MONTHS. CURRENTLY,
STROMECTOL,DOXYCYCLINE FOR RECENT RAPID DETERIORATING HEALTH.
23.20 LBS LOST IN A MONTH, BRAIN FOG, RECENT VISION ISSUES ESPECIALLY AT NIGHT – IT’S AS IF i WERE SWIMMING ALL DAY AND THE LIGHTS HAVE A BIG HAZY RING AROUND THEM, HAIR LOSS, NAIL AND TOENAILS PEELING, HANDS AND FACE KEEP PEELING LIKE ATHLETES FOOT
24.SOME MITE AND LYME (TEST RESULTS WERE NEGATIVE DUE TO SELF MEDICATING FROM THE FEED STORE)
15.irregular heart beat
16.quit 6 years ago
17.antibiotics now/ blood thinners before
23.brain fog–occasional; vision disturbances occasional cloudiness, occasional recent reaction to strong sunlight; fatigue, stinging itching, biting
24.Scabies, hinted at DOP neurodermatitis
15.All since lesions: CF/FM, Hypothyroid, Auto-Imm., Chronic Abd. pain, Chronic Resp. Inf., Sleep Apnea, Myalgia,Alopecia
17.Many courses Prednisone, many antibiotics, Provigil, Armour Thyroid, Zanaflex (prn), Effexor, Iron, Hydroxyzine, Albuterol (prn), Oxycodone, numerous rx creams, numerous supplements
23.blurred vision, floaters, night blindness, ears full, popping, ringing chronic runny nose, brain fog, passing out, nausea/vomiting 1xmo., ankle swelling, facial swelling, hair loss, athletes foot, vag. discharge, sore throat, jt/mm pain & spasms, fatigue, memory loss, last yr. lost 50 lbs/5 mo.,loss libido, low temp./low grade fevers, night sweats, eye drng.,cough/wheezing, tooth pain, swollen tongue, mouth sores, yellow stuff on skin, increased sweating, new moles, strange lumps/bumps/tracks/tunnels, blood, saliva, eyes: slippery texture, no appetite
24.Sweets Syndrome, Impetego, folliculitis, DOP, anxiety disorder, depression,
Wasn’t there someone on this site by the name of Jace who worked with Wymore? Didnt she post things about tests done on the fiber finding them made of cellulose and not organic. Do you have the links to any of her comments, i am interested in reading them. Thanks.
The cellulose thing comes from the MRF claims back in 2003
Which is partly what led me to write one of my earlier posts:
I don’t think Wymore, or anyone from his lab, said they were cellulose, although that still gets mentioned a lot, particularly when people try to tie in agrobacterium, like (MRF again):
I asked Vitaly Citovsky about this, and he said:
In other words, the agrobacterium is not creating cellulose (although Citovsky did not discount the possibility), it’s just infecting the tissue via existing cellulose. Meaning the fibers were there before the agrobacterium.
I think the MRF clinging to their “cellulose” story is a little desperate. Cellulose is what perhaps 50% of all environmental household fibers are made from. The original “cellulose fibers” were from a child’s lip, and look exactly like kleenex fibers (made from cellulose). It’s just a mistake that has propagated.
After petting a cat..rubbed eye..20m drive..flushed eye..5 years of..itchy red eyes and inner nose,stringy mucus threads,lesions on forearms from sneezing/coughing,looks and acts like ringworm/tinea but all test negative, visual disturbances, pin prick/crawling sensations,sharp pains at upper/lower stomach sphincters.. all allergy tests negative, betadine cures the skin lesions in 2 treatments, triclosan mouthwash keeps throat at bay, smoking never, alcohol, diabetes..no, minimal on infrequent occasions..occupation RN..tiny blisters on eye sclera that have become a cavity, it tracks along lymph, axillary pin/prick/ache..symptoms alleviate with nizoral and doxycyline, return once off AB’s..boyfriend developed tracking across his forehead where my eye wept and they keep trying to tell me it’s an allergy! I wondered if in some way related to my teeth? ANd just came across article for NCS-Neurocutaneous Syndrome..blood tests borderline for rickettsia..It’s very bizarre, and has negatively affected my work and relationships. I am a Registered Nurse.
I’m sorry you’re ill, and having such problems. I’m allergic to cats, also, and must wash my hands immediately after handling. Losing fluids, through watering eyes and a runny nose, can quickly cause dehydration, and mucous secretions will eventually thicken up and can become stringy. Replacing lost fluids is essential, because retaining those thickened mucous secretions creates the perfect breeding ground for bacteria, and then, you will develop an infection. Of course, dehydration leads to many other serious health conditions, too, which, as a registered nurse, you should know.
I’m afraid that I’ve had some trouble following what you’ve said, but, concerning the remark about having blisters in your eyes that have become cavities, have you not gone to an eye doctor over that? Have you seen anyone over your stomach problems? Also, concerning wondering as to whether something is related to your oral health, have you considered getting an appointment with a dentist?
Thank you, Smileykins
i do not understand whats going on i suffer from morgellons with really no one to talk to about it
it seems to me most morgellon sufferers worked around trees,did gardening, bred birds ,on vacation,as a sufferer for 9 mths now it seems like noone is taking this seriously i persannaly would like to be a part of my grandchilds life but my symtoms started bcuz of a birdnest and everything was perfectly fine until then .i just wish the cdc or whoever could find out what a person did or was doing around the time this all started and see if their are any simularities.
Sandra, I’m sorry that a health issue has created whatever type of situation you have that is allowing separation from your grandchild. Have you been seen by a doctor, asked questions, and understood the diagnosis, and treatment, and done follow up?
From my own experience, I think that bird mites are pretty easy to get rid of. As a child, I handled birds’ nests, and baby birds, a lot, and I’d often get my hands and arms covered in mites. A nearby mud puddle was all it ever took to wash them away, within seconds, and I followed up with soap and water.
“Morgellons Disease” is a big deception, and a far greater number of people know that, than the number of people that have registered, believing Morgellons is a real disease, an that they, or someone in their circle has it. Your problem is that you are associating with the wrong people. Please get a good doctor and try to find out what you really have wrong with you. What are your symptoms?
CAN SOMEONE WITH ACTUAL EXPERIENCE DESCRIBE THE EXACT BODY REACTIONS OF A PERSON WITH A MICROFILARIAL PARASITIC INFECTION WHO WAS TREATED WITH MENBENDAZOLE? ( eg.LENGTH OF TIME FROM WHEN MEDICATION WAS TAKEN COMPARED TO THE EVENTUAL EXIT OF WORMS VIA TRACHEA OR ESOPHAGUS ).NO WORMS IN STOOL.—HYPERINFECTION???
ORIG. POSS. DX SCABIES? TRMT UNSUCCESSFULL THEN INFECTION MOVED ABOVE NECK. POSS. DX. LARVA MIGRANS-CUT. BUT THEN PROGRESSING TO OCULAR.
EVER HEAR ABOUT THE VETERINARIAN WHO FOUND FILIARIFORM OF HOOK HANGING OUT ON A DOGS HAIR INSTEAD OF LURKING IN THE GROUND?? JUST ONE LICK.
MTASCP I SEE MICROSCOPICALLY WHAT I SEE AND FEEL WHAT I FEEL SO IF SOMEONE WHO KNOWS CAN DESCRIBE THEIR PTS OR OWN MENBENDAZOL EXP. AND ALSO UNDERSTANDS THE STAGES OF THIS WORM, IT WOULD GREATLY BE APPRECIATED .
PLEASE HAVE KNOWLEDGE OF THE FACT THAT IVERMECTIN CAN BE USED AGAINST LICE/MITES SO POSS. OTHER RX TOO.
SIGNED, SELF-DX ING BECAUSE LACK OF HELP
AT THIS TIME I WOULD APPRECIATE ONLY ANSWERS TO MY SPECIFIC QUESTIONS SO I CAN USE IT TO VERIFY OR ELIMINATE THE MYSTERIES IN MY INVESTIGATION. I HAVE ALREADY ASKED AND ANSWERED THE MOST OBVIOUS QUESTIONS I HAVE READ HERE .
walk in my shoes, if you are self diagnosing, what else and by whom have you been diagnosed with?
I AM A MTASCP WITH EXP. IN MICRO, PARASIT., MYCOLOGY AND SEROLOGY. WHAT I I SEE MICROSCOPICALLY WHAT I SEE AND FEEL WHAT I FEEL .
(BETTER SAID, WHEN I WAS PRECRIBED THIS MED BY A QUAL. M.D. WAS,
MY RX A TYPICAL REACTION FOR THAT STAGE OF WORM.
SO, IF YOU MUST KNOW, I PUKED AND HACKED 5 HOURS 3 DAYS AFTER FIRST DOSE AND ON THE 4TH DAY PUKED AND HACKED FOR 15 HOURS ABOUT EVERY 5 MINUTES. IF IT EXITED THRU DIG SYS, I WOULD BURP AND FEEL IT CRAWL UP MY ESOPHAGUS. BUT IF IT EXITED VIA LUNGS, I WOULD FIRST FEEL CHEST PING AND THEN IT WOULD CRAWL UP MY TRACHEA. I COULD FEEL EACH ONE AS THEY RELEASED FROM ALL AREAS OF BODY AND COULD EVEN FEEL THEM GO THROUGH MY EYES AT TIMES. AFTER I WAS THROUGH, MY UVULA WAS SO ENLARGED THATT THE ROUND PART LAY FLAT ON MY TONGUE AND I KEPT CHOKING. AFTER 2ND DOSE MY SX RETURNED.
“i was only asking AND I ONLY WANT THE INFO I WAS ASKING”
IF SOMEONE WHO KNOWS and CAN DESCRIBE THEIR PTS OR THEIR OWN MENBENDAZOL EXP. AND ALSO UNDERSTANDS THE STAGES OF THIS WORM, IT WOULD GREATLY BE APPRECIATED but if you are not qualified please dont reply. i am simply looking for educated info. for my own understanding and have not found any detailed reports in this area. so, unless you are the (pre- fda approval)pharmacological researcher on this drug or a PT w/ the blood born stage of this parasite and experienced the wonderful feeling of its exit from the human body then obviously my ques. was not answered. what is your expertise, if i may ask?
Hi. Shoes. I’m unable to understand anyone who thinks they have “morgellons disease”, mostly due to their not wanting to engage in conversation. I realize that you’re real up front about that, yourself, but could you consider answering one minor question that I have? When you refer to this wonderful feeling obtained through the terrible sounding description of becoming so ill, is that an attempt at sarcasm, or, do you, literally, feel a sense of success that gives you a wonderful feeling?
Thank you, Smileykins.