Over on the incredibly long biology-online thread, someone was going into great detail on his experiences with tea-tree oil. He posted a link to a photo album:
http://morgellons.shutterfly.com/action/
I’d expect a lot of fiber photos, but was surprised to find most of the photos were of things that looked like blobs of some kind of gelatinous stuff, like this:
(lots more on the site, check it out).
Intrigued, I read that all he did was rub tea tree oil on his arm, and the fibers appeared. Fibers? He must include these blobs as some kind of compressed fiber.
Anyway, I got some tea tree oil and rubbed it onto my arm – smelly stuff!
Nothing seemed to be happening for a while, I notice the small hairs stuck to the skin, maybe that’s what people were seeing. Hmm, or maybe as the oil drys, the hairs pop up?
Nothing really going on, I stared at my arm, shining a flashlight, wishing I had a magnifying glass. Then suddenly I noticed a tiny little speck at the base of one hair. Whoa! I’m infected! I pinch the skin, and gently scrape it off with a sharp knife, and transfer it under the microscope, x200.
Hey, that looks familiar – it’s a “fiber” thing. I have Morgellons!
Zoom out a little:
It’s about 1mm long, 0.25 mm wide. Not sure where that fiber came from.
Okay, so I’m not itching. I probably don’t have Morgellons. So what is this thing?
It’s a sebum plug.
Hair on your arms is rooted in little pits called follicles. Sebaceous glands in the follicle secrete an oil substance called sebum. The follicles can become blocked (both with or without a hair growing from them). A plug of sebum forms in the follicle and can harden.
Tea tree oil dissolves the material (skin and hardened sebum) blocking the top of the follicle, and allows the sebum plug to emerge. Tea tree oil is a well-known treatment for blocked pores.
Tiny fibers could quite easily become trapped in the follicle and become part of the sebum plug. Not many of the photos actually have fibers though.
Shutterfly guy – you are collecting sebum plugs.
He also has a video of a sebum plug dissoving in some alcohol. It’s quite an energetic dissolution – titled “supernova”. Sebum is fat, alcohol dissoves fat. Fat is semi-soil and dissolving it is a naturally violent reaction due to localized changes in surface tension and density.
Here’s another sebum plug (60x)
You can see how people might think it was some kind of fibrous organism.
What a complete jerk you are. You can sure tell us what we do not have, yet you sure as hell can not tell us what we do have. By the way, since you do not think you are doing anything offensive to those of us that suffer, why do you choose to write anonymously?
Do you not have any heart? We have little children that are dealing with this wicked disease.
I’d like to meet you one day- you know, to spread the love….
I’ve no idea what you have. I was just identifying some photos of sebum plugs.
Excellent, except you see, nothing of any reason can penetrate their group. They all have the same “disease”, remember. You’re doing a good service, here, and not being a jerk, as you well know. Anyone else can see that you are. Their doctors haven’t taken the time to explain everything in detail, like you are. They probably assume that their patients know their own bodily functions. Some may wake up to your message, if they’ll allow thesmselves to, although, it’s a fact that many can’t. Imagine having such hopes of validation and vindication, and how strong that motivating force is.
It’s commonplace for them to go apeshit on anyone that tries showing them any trace of sound logic. They even perceive that as a threat rather than attempts to assist.
Oh, I’m not too worried about convincing people like London. She’s just a useful source of links that help set the framework. She herself is not going to agree with me on anything.
I’m more concerned with the more marginal people, who have not yet fully slipped into the seductive abyss of circular irrationality.
Several of the “Morgies” have reported hair loss. This can be caused by excessive sebum. Excessive sebum can also take the pigment out of hair, giving it a transparent appearance. It can also flatten hairs.
http://www.folica.com/Causes_of_Hair__d1282.html
Some of the “Morgies” have reported a “thickening of the skin”. Excessive sebum can spread and dry into layers that look like skin. As fresh layers are deposited, and older, deeper layers dry into fine powder, the “skin” is thickened. Some individuals have misidentified the dehydrated layer as an “egg layer”.
These dehydrated particles contain enzymes and when they are dusted onto sensitive skin, they sometimes cause a burning sensation. This can easily be mistaken for the bite of an arthropod. Stress is one of the primary causes of excessive sebum.
Blue Dog
Thank you, Blue Dog. Yes, many believers report hairloss. Some might even have more hair if they didn’t pull it out and perform experiments on it, soaking it in alcohol and looking at it under magnification.
Although it comes as no surprise, I hadn’t known about any of the believers complaining of a thickening of their skin. So, after seeing this, I just wanted to also add that the upper layers of the skin respond to trauma, such as chronic scratching, by thickening up and taking on a leathery texture, and that it’s referred to as lichenification. Too much tea tree oil can even do it.
Seborrhea and psoriasis are such distinct possibilities, also, in this vast and unique land of the morg. Will any believers look into that? Of course not.
The National Institute of Health estimates that 15 million people in the United States have some form of eczema. About 10 to 20 percent of all infants have eczema, however, in nearly half of those children, the disease will improve greatly by the time they are between 5 and 15 years of age.
That could be why little Andrew Leitao is so much better. I had improved around age 5-6 years, but when you’ve got eczema, you’ve got it for life. Remissions are wonderful times. I also had prickly heat, known as miliaria, too. Wonder how many morgies have that? Milia too, I wonder. Endless possibilites.
Anyway, of course, there is no cure for eczema, and far too many people are resistant to learn what a bitch it is to have. Its nature is sort of like it just has a mind of its own. Treating it is a constant, and things have to be eliminated in your life that everyone else takes for granted.
It’s quite astounding, that believers in morgellons, even though it’s unrecognized in the real world, believe that they’re right on the brink of: “exposing the cause”, who is responsible for “giving it to them”, and they think that “a cure is close at hand”.
That’s so special. Why can’t other people have such hope, instead of, oh, someone like pessimistic me, without a cure for my eczema, and nobody but my own genes to blame it on.
For those who don’t get me, that was supposed to be funny, and I have permission to be.
Smileykins: “Their doctors haven’t taken the time to explain everything in detail.”
Oh yes this is very true, unfortunately “our doctors” also haven’t taken the time to accutually look at the fibers in question, or examine them, or even have a any lab attempt to identify them! As soon as you try to show them anything, they say it is insignificant before even taking a close look. If you attempt to insist that they take a closer look at what you can clearly see, they start down the path of a D.O.P diagnosis. This is the standard operating procedure for these doctors. It’s been the same for so long now, they can make these diagnoses in their sleep.
Anonomus:
Your type of “sound logic” is no threat, it is a just a distraction. The real research will be done, the real facts will come out. What is being, and will be uncovered now, is however, a threat to your “sound logic”. How about triing to mix some facts or evidence with your sound logic.
To this Site: All of your skepticism & opinions and your desire to resolve the issue mean nothing until you or someone uncovers the basic needed facts. People with Morgellons and the M.R.F. are trying to get the fact(s). What are you guys trying to do? To have the answer at this point, it all boils down to two questions: What’s the composition of the fibers found under the skin? and how did they get there?
It you can’t imagine what you haven’t experienced yourself (or even give the benefit of doubt), than you truly have a small mind. Feel free to skip over the parts that may make you uncomfortable (I don’t expect to change your habits). By the way, you seem to be skipping over the ongoing research at O.S.U. and facts provided thus far.
First let me ask you “skeptics” a question, before our (U.S.) invasion of Iraq were you guys absolutely sure there WAS the big stockpiles of modern WMD’s there? Or were you absolutely sure there WAS NOT the big WMD’s that were claimed to be there? I’m sure it had to be one or the other because there seems to be no middle ground for you.
Professional opinions and experience are not always the best sources for current facts. I use the word “professional” loosely when referring to Dermatologists, they are one of the most disrespected group of doctors anyway, and for good reason; they are lazy. Experienced professional doctors have a proper place for skepticism in their duties. But like most, people get set in their ways, and for the most part these people are often the last to acknowledge new facts that disagree with their previous beliefs. An objective scientist or researcher (and colleges) will believe the facts as they are uncovered and proved. Experienced professional doctors believe the facts when they can no longer get around them.
Skepticism is always an integral part of any new scientific discovery; it must be there as motive to confirm discoveries, which then leads to acceptance of the facts (one way or the other) by the scientific community. Your web site is not just healthy skepticism as you claim, it contains conjecture poisonus to the truth. From what I’ve read on your site, your “logical” conclusions are not backed by ANY solid evidence (only some “professional” opinions and their conclusions based on experience), but mosly pulled out of your buttox. I also dare say that the concept behind your web site has arisen from flawed logic: You cannot imagine what sufferers like me describe, therefore if you can’t imagine it (that it can be real), then when people (who are suffering greatly) try to describe there symptoms in the only terms they know how to, you conclude that what they are describing is not real. Then you base your further conclusions about “these people” based on your previous assumptions. There is no factual analysis anywhere in the process.
Who is delusional here?, I submit that anybody who states confidently that Morgellons is not real are deluding themselves. This would be (is) the delusional belief that you have the ability to come to factual conclusions without the need to examine all the evidence. (We know that Sadaam has stockpiles of WMD’s and we know where they are!!!) Until the facts come in, some skeptics (or fanatics) like you always know they are right. Of course even if you were wrong, you weren’t really wrong – you just didn’t have all the facts, right?
Maybe there is a new disease – I just don’t think there is enough evidence to remotely support asserting that there is, and certainly not enough to offer specific treatments. I also think that blaming all your ills on an unproven disease is going to be harmful to the health of a lot of people. I’m in favor of health.
If there are any specific mistakes or lies on my site you would like me to address, then please tell me what page they are on, and I will either fix the page, or answer your criticism.
I’m actually against dogmatic certainty. One of my favorite quotes is “beware of people who know they are right”. I’m always happy to admit it when I’m wrong. I actually enjoy admitting I’m wrong. Just tell me where I’m wrong.
>I’m always happy to admit it when I’m wrong. I actually enjoy admitting I’m wrong. Just tell me where I’m wrong.
>From what I’ve read on your site, your “logical” conclusions are not backed by ANY solid evidence (only some “professional” opinions and their conclusions based on experience), but mosly pulled out of your buttox.
The same could be said about the Morg’s board at LB. Where is the solid evidence?
JeeezeLouise
Misconceptions are everywhere, on both sides of the issue and on every web site and blog. It’s not fair or logical to think that poeple who are suffering are triing to mislead people, we are only trying to get help after the “doctors” have let us down. Most sufferers have misconceptions at the least (only do to the vacuum of missing facts and unanswered questions) and of-couse they WILL lay them down on blogs. I didn’t and don’t say anthing different about the Morg’s board at LB.
The only clearly recognizable difference is, WHO is really doing credible scientific research (and really trying to get others do scientific research), and who is just bloging away. The M.R.F. is doing the real research at OSU to get the solid evidence we all ask for. WHO ELSE IS? If they had more funding they would have more answers!
Igi Ydgi
Michael:
“New disease – I just don’t think there is enough evidence to remotely support asserting that there is.”
You are correct, thats why OSU is doing the research. I never stated that it’s a New disease, nor has the Morgellons Research Foundation. But if you have been really sick for 10 years and seen dozens of doctors over the years, only to end up with doctors (the best you can find) who say “I see that you have an illness but I don’t know how to diagnose it.” Then you see reports of thousands of other people who are complaining of the same and bizzare set of symptoms. And a “cluster” of them live in the palce where you got sick. In the absence of ANY other facts, I suggest that you might think that there is a just a little more going on here than just a coincidence.
You also said:
“I also think that blaming all your ills on an unproven disease is going to be harmful to the health of a lot of people. I’m in favor of health.”
I’m in favor of health also, especially my own. My history with this and doctors exactly as I stated here. Please tell me then, where should my blame go? Blaming the Dermatologists is like blaming a brick wall, indeed, they have in-fact created a wall by default that keeps poeple like me shut-out.
I’m gad to hear that you have an open mind, just please try to open it a little further. I try to get back with you on “mistakes or lies” subject later, thank you. Right now, I’m done-for.
Igi Ydgi
Michael:
You said:
“New disease – I just don’t think there is enough evidence to remotely support asserting that there is.”
You are correct, thats why OSU is doing the research. I never stated that it’s a NEW disease, nor has the Morgellons Research Foundation. Nobody knows what it is, but if you have been really sick for 10+ years and seen dozens of doctors over the years, only to end up with doctors (the best you can find) who say “I see that you have an illness but I don’t know how to diagnose it.” Then you see reports of thousands of other people who are complaining of the same and bizzare set of symptoms. And a “cluster” of them live in the palce where you got sick. In the absence of ANY other facts, I suggest that you might think that there is a just a little more going-on here than just a coincidence.
You also said:
“I also think that blaming all your ills on an unproven disease is going to be harmful to the health of a lot of people. I’m in favor of health.”
Yes it’s an “unproven disease”, and how long are we to sit idle, waiting, suffering, until facts are proven? Five years, 10 years, 20, until we are dead?
Please consider the flipside – if there is something to it. And there is! If more poeple become aware of the problem, more people can look into it & know about it, the sooner the definite answers will come. The health of a lot of people could be helped by this sooner, at least the moral support could help. More people can network and provide support to each other.
People who are suffering from this NEED support. Just before I found out that others are suffering, really suffering the same symptoms just like me, and that people are working trying to get answers, I was ready to take my own life! There are others in this same position.
I’m in favor of health also, especially my own. My history with this and doctors exactly as I stated here. Please tell me then, where should my blame go? Blaming the Dermatologists is like blaming a brick wall, indeed, they have in-fact created a wall by default that keeps poeple like me shut-out.
I’m gad to hear that you have an open mind, just please try to open it a little further. I try to get back with you on “mistakes or lies” subject later, thank you. Right now, I’m done-for.
Igi Ydgi
The MRF site says: “Researching an emerging infectious disease”, is there a difference between an “emerging” disease, and a “new” disease?
Obviously you do have an undiagnosed skin problem. Millions of people do. Millions of cases of unexplained itching and eczema happen every year. Some of them are chronic, a large portion of them are never explained, many go away, some stay for years.
The position of the MRF is causing people to take “Morgellons” seriously, which causes them to distrust their doctor, and then try their own remedies, like horse medicine. I think this is harmful, and that the MRF is in part culpable.
When you do post the mistakes you find, please do it in the top post, so everyone can see them. They get hidden away if you just comment on the older posts. The top post is currently:
http://morgellonswatch.wordpress.com/2006/07/17/wymore-casey-morgellons-letter-to-doctors/
Igi Ydgi Says:
July 17th, 2006 at 10:16 pm
Smileykins: “Their doctors haven’t taken the time to explain everything in detail.”
Oh yes this is very true, unfortunately “our doctors” also haven’t taken the time to accutually look at the fibers in question, or examine them, or even have a any lab attempt to identify them! As soon as you try to show them anything, they say it is insignificant before even taking a close look. If you attempt to insist that they take a closer look at what you can clearly see, they start down the path of a D.O.P diagnosis. This is the standard operating procedure for these doctors. It’s been the same for so long now, they can make these diagnoses in their sleep.
Doctors are not dummies, and they aren’t practicing medicine outside of the norm, is how I meant that.
“BLAME” isn’t anything that should even be entering into the picture, but it is a very common thing to hear from morgies. It’s not right to feel that way. Where does it come from? From going against doctors’ diagnoses?
smilykins
can i ask u nicely
TO SHUT THE FUCK UP
love from oz
I went with the Doctors diagnosis – that is why I am as sick as I am.
DOP seems to me to be a diagnosis which was pinned on Drug Abusers in the past, and also on Alzheimer’s sufferers.
I believe DOP to be the most fabricated diagnosis of all time. No one in their right mind would want to spend their time preoccupied with the belief of being infested with something. Please just think about that one long and hard.
I have read case studies of DOP sufferers and read actual letters written by sufferers to doctors. From those few letters I read (dated early to late 1990’s) I stand by those people and say they were not DOP. Their description of what came from their skin gave me chills, it was not a delusion, not in the way those people described.
For Example: A DOP sufferer will produce ‘worms’ from their garden and give to their doctor, claming the worms came out of their ears.
The Morgellons Pathogen raised its ugly head years ago when it first surfaced in the drug community. I guess this then led some Medical Professionals & the Government to invent Delusions of Parasitosis. They new this group of people would “flip their lid” and start screaming “cover up” and “conspiracy”. They weren’t threatened they believed it was only a pack of “Druggies” after all.
Many many years have passed, our world and environment has changed, and not for the better. The healthy lay person now in todays society is being pinned with DOP but in fact they could have Lyme or Morgellons. I am not discrediting drug users at all. People have their own personal reasons for turning to illicit drugs and I do not believe it is a healthy thing for another human being to be judgemental of others, especially if we have never walked in their shoes.
You’re not serious, Al.
Smileykins – I think Al is serious, and he did say “nicely”.
Thanks, Sarach. Al will be accountable to me, and we’ll see if we can work out the meaning of what he’s saying to me lately.
SarachConnor said:
So, no one in their right mind could be delusional?
People who are delusional don’t know they are delusional.
Remember, itching is a symptom, not a delusion. Fatigue is a symptom, not a delusion. A lesion is a symptom, not a delusion. Fibers are physical objects, not delusions.
A delusion is a false belief. If someone believes they have parasites in their skin, and they beleive they can see them, but nobody else can see them, then that’s a delusion.
It’s still possible to be deluded, yet have a very real illness. Just because someone gets a diagnosis of DOP does not mean that they are not also sick with some physical illness. DOP can have physical causes and contrubuting factors, or there could be something else unrelated to the DOP.
Your body, your mind and your health are all very complex. Problems with them may have complex causes, and complex solutions.
So what I am saying Michael is that DOP is quite possibly Morgellons. Doctors don’t take the time to look or even send the fibers off to a lab, why is this? Because they believe through their brain washing and training days that anyone who presents to a doctor with fibers or a matchbox is DOP, diagnosis across the desk, take these pills and goodbye.
Maybe you should ask these two questions to Mr Dan Rutz and the others at the CDC. They do appear to be caught up in their own delusions maybe that is caused by the Pharmaceutical Companies hey? They are pretty friendly you know the CDC and the Pharmaceutical companies. They have to be you know. The CDC invent the diseases and the Pharma companies make the drugs to fit, and they all go home happy with big fat wallets.
Do you believe that? Why?
H, Well you have proven to all of us that suffer from Morgellons that we don’t need to try tea-tree on our skin…
That is a relief!
I don’t have to put anyting on my skin to see my fibers!
I bet you don’t have the painful, bleeding lesions either!
Betsy,
It sounds like the fibers are painful when they emerge from your skin. Do you have a video camera, or a cheap digital camera like mine which takes up to four minutes of video? It seems it would be easy to make a video for evidence so that we could see it happening too.
sarah,
the burden of proof is no longer on us. we have research to support our claims. do you have a video camera? why don’t you videotape actual ongoing research to support your claims. maybe because you can’t video tape what isn’t happening? step off or get run over by the truth. what have you got to lose? perhaps your professional reputation when the truth comes out. i assure you that i never forget those that try to do me harm. when your motives are revealed ,all who cross your path will hear of the harm you caused with your corrupt and perverse campaign to silence the truth. you can take that to the bank my dear. it’s just a matter of time now sarah.i can’t wait!
You’re too fresh to the scene, ppy. The truth has always been out, about “morgellons disease”. Dare to go back to all the old news stories on it, and read every page of the MRF archives. Go beyond that time, back to 1984, when the Ladies Home Journal’s article on lindane poisonings was published, and patients flooded the NPA with calls, reporting poisonings. Go back to how the NPA president decided to change her mind, and handle things for them another way. Go back Elliot’s Disease. Go back to when Dr. Amin came into the picture. Watch it all unfold.
Unless someone has a compromise to their capacity to reason, they aren’t able to piece what’s occurred, together for themselves. Nobody seems to care that a mother brought things all together for them, with “morgellons disease” to get her concocted and mysterious illness acknowledged…a mother who was told to get evaluated for munchausen syndrome by proxy, out of her own mouth. Right is wrong to everyone who thinks they have her illness, and wrong is all right.
You have all played right into it, because you only see what you can see, blind to all the rest, a-fussin’ and a-fightin’ all the way. Patients have progressively worsened since I became aware of this, ppy, and here lately, due to how ill some of them are, they’ve messed up a lot of others who have problems.
People who exhibit such behaviors need distanced from others doing the same, to have a time out, and to be treated for what their underlying illnesses are. That’s what’s going to come out in the end, but people that ill will only be able to keep lying to themselves about everything.
PPy says: the burden of proof is no longer on us. we have research to support our claims.
Please give me the references of the peer-reviewed publications of the research you have to support your claims. I clearly have missed these, and apologize in advance.
sara beyond- dumb,
are you familiar with the term google it? you see i don’t have the patience to post information that you are fully aware of and have been for some time. i provided you with the key words if you really must “refresh” your memory but we both know it’s not hard to find if you really want to know the truth. it’s been fun watching you tap dance around my very specific questions though sarah.i am not so easily distracted as to notice that you have nothing to offer in your defence. as i said the burden of proof is no longer on us. you have no valid or rational way to explain your position. its kind of a let down actually. like a magic show using smoke and mirrors to decieve the audience, its all too obvious once the lights come on.
Ppy, how many doctors have you been to, and what have you been diagnosed with? When did you first hear about “morgellons disease”, and why do you think that you have it?
q tip,
i had morgellons before i knew its name. i didn’t find out till months into this nightmare that others suffered with it too. imagine typing the words non healing lesions, fibers hairs and fatigue into a search engine as you frantically search for information as to what is happening to your body. i read about morgellons and i learned some helpful hints. one of those tips suggested getting tested for lyme . understand that i was very unfamiliar with lyme disease at the time and had no reason to suspect i might be infected . imagine my surprise when my western blot came back positive by cdc reporting standards. wow lyme disease, maybe i should learn more about it. after doing a little research i found that i have exhabited signs of lyme since i was a toddeler. i was diagnosed with juvenile RA at 3 years old. my parents were told that i would not walk again.i was seen by specialist in that field from all over the world. the childrens hospital i was in happened to be hosting some event to teach new treatment methods to dr from around the world and asked my parents if they could have these drs examine me. they all agreed on my diagnosis . guess what? it went away. i walked, i ran, i kicked ass in any sport i played cause i was a damn good athlete. i suffered from grand mal seizures at times but drs could not find any reason for them so they wrote it off to stress. how can a 5 year old be stressed? seizures are a symptom of lyme. and more recently, about 7 months before i began getting the lesions, i lost a drastic amount of weight in a short period of time, had chest pains, shortness of breath and felt light headed after light activity. again, major lyme symptoms. however i would have never suspected this if not for the MRF. what a coincidence. the delusional disease i found on the internet knew that i likely had lyme disease. ironic ain’t it Q Tip. thank god for my delusions or i would have never realized that i was sick. by the dip stick, i already read all the info available on elliots disease, dr amir has an interesting theory regarding the fillings in our teeth but i don’t think it causes morgellons. it probably doesn’t help though. and i didn’t play right into marys hands cause i didn’t know of mary till months after i became ill with morgellons. next………..
q tip,
lets make this short ok. i have lyme disease. i have lesions on my brain. i have morgellons disease. i have been diagnosed with mild to moderate impairment of all memory function. more cognative impairement but can’t remember the specifics. maybe because my brain is turning to oatmeal. fun to feel like an alzheimers patient while still in your 30s. as far as how i found out about morgellons and your other ridiculous questions pleasr refer to my previous post. but don’t ask me to explain myself to you q tip if you refuse to logically consider the answers. and we both know you can’t do that cause it proves you wrong.
sorry for the typos. what can i say? i’m a sick puppy
Ppy says: sara beyond- dumb, are you familiar with the term google it? you see i don’t have the patience to post information that you are fully aware of and have been for some time.
Excellent name. Quite clever.
I have googled Morgellons. No peer-reviewed literature on research on the topic. I must be missing something. Help me out. Just reply with in the authors and the year, I can work from there.
Ppy, am I “q tip”? Well, at any rate, although you didn’t answer just four simple little things I’d asked in comment #34, I appreciate your own way of explaining your reasons for adopting “morgellons disease”, and I’m very sorry that you’re ill, and that you’re not being treated. Where you said:
I don’t need to imagine that, because I did my own searching, once upon a time, when I was way too sick to think clearly, and I vaguely recalled this illness called “morgellons disease” being discussed on a message board. I’d read a few comments, determined that I had clicked onto an online sci-fi game, and left. That was even during a time of being so ill that I was having hallucinations, and, in my opinion, delusions are far more dangerous. When something like that has a sudden onset, there’s some underlying health reason that’s causing it, of which there are many.
Good luck.
q tip,
please stop trying to act simple like sara beyond-dumb. i found out about my lyme because it was listed as a possability for those who have morgellons. now i know you seem to have a problem understanding this part so i’m gonna go real slow for you ok. i visited my primary care doctor and several derms here in atlanta to discover what was causing lesions to appear over various parts of my body. no physical trauma or injury was causing them and no matter what i treated them with they would not go away. i was put on several different antibiotics and was instructed to treat topically with rx steroid creams and such. i was advised to change my soap, laundry detergent, lotion etc. also advised to keep a diary of my meals to see if a source could be identified. lets be clear here…..I did all those things and they didn’t work! i was not diagnosed as dop, nor were my lesions deemed self inflicted. in fact the derms remarked at the characteristics of the lesions as they were unusual. now see here’s the thing tip, the doctors were as confused as i was about this stuff. i did not have the luxury of giving up however. another point of note, i noticed the fibers before i learned about morgellons also. the thing is, i didn’t associate them with my illness. i have many fibers in my environment that are very motile and have many strange behaviors not normally associated with a hair or fiber. not going into all that cause you already know what i am saying. but i assumed that my condo must have some sort of mite or insect problem. i had just moved in when i began noticing them so assumed that it was a pre existing situation . i don’t know why i am bothering…..you know the truth already and i am simply irritating myself because of my poor typing skills. but to continue, the lesions and fibers started within 2 weeks of each other i believe. but i may have missed the earl clues due to lack of attention and being extremly busy with moving and the holiday season being in full swing. so you follow so far. my symptoms sent me to the to help, followed by my searching for on the net. actually i never used the computer before this. my roommate is the one who found the MRF online. she was trying to help me because i was so distraught. i did not know anything about using a computer till she found that site. so again, my symptoms were used to search for a potential dx. morgellons matched the symptoms i was having. on their advice i was tested for lyme and bloodwok confirmed a lyme infection. this is more than enough reason for me to say that i have morgellons. lets add them up strange and unfamiliar symptoms dr could not identify, a disease that list many of my symptoms and provides information that suggest i may have a co infection of lyme which proved to be true and no explanation for the fibers in my skin and my environment. hmmmm, i think i’ll stick with morgellons till they prove me wrong. and really thats all they have to do. tell me what i do have instead of referring me to specialist after specialist that have no answers but still bill ya that 200 per office visit. but why do you care q tip? do you feel the need to save me from my delusions? how bout this, you save yourself first. from where i’m standing you are the one who needs it
I see, Ppy. And I know it’s all right for you to call other people names, as well as telling us to stop acting simple. It hasn’t been fun watching you tap dance around my very specific questions, and I didn’t state anything about wanting to save you from your delusions. Can you tell me what the things that look like “curly q’s” are in your photo album? Are they homemade tatoos, and wire?