Morgellons Cure?

southcity says:

What these articles do not explain is How I can pinpoint the time, the place and the likely vector concerning when all these symptoms began. No history of any type of mental disorder, college graduate, successful career and credible witness. (I have never been sick other than the common cold, am very active, and cant stand the thought of being ill or god forbid dependant on anyone).

so your articles linked are a not applicable to those who are unfortunate enough to also have what I have, and I personally do not want it, at all and would have never even thought for a second about something like this ever happening to me. Until it did.

These articles do not explain how practicing physicians who are infected, nor a researcher who is also a University professor of medicine/biology State Clearly that there is a physical disorder here. No Question. So again, I ask what it is that you stand to gain from your repeated position that this is a mental disorder? From my perspective there are two outcomes to this problem as related to you. A.) You get to gloat and say I told you so(extremely unlikely) B.) You eat crow and simply disappear to not be heard from again (HIGHLY LIKELY)

So again, what do you stand to gain from your position?

Michael says:

South, I don’t stand to gain anything, except perhaps a little satisfaction from helping people get the medical care that is right for them as individuals.

My position is NOT that “this is a mental disorder”. My position is clearly stated at the top of the left column on every page on this site, under “The evidence indicates:”

1. The fibers are environmental and unrelated to any illness
2. Morgellons is not a distinct disease
3. “Sufferers” have a mixed variety of physical and/or mental illnesses.

tallcotton says:

People who “simply mistakenly believe they have Morgellons, since they find some fibers on their skin” are DOP if they can’t be shaken from that belief. The belief is unfounded and totally illogical. The sooner thes people accept that fact, the sooner they can be on the road to restored health.

Michael says:

Tall, I think you are looking at a bit of a skewed sample. LB&BO get the more “imaginative” people.

jace says:

I said I wouldn’t come back here, but I feel that a statement made above deserves correction. Dr Wymore has never felt that the fibers are alive, as I’ve said before there is no cell stucture, not to mention melting/boiling points that could not possibly be organic. I’m not sure where the people on this blog got the idea that our research indicates that the fibers are alive in any way. I believe we must have gotten confused with some other entity or group. Dr Wymore is keeping a completely open mind as to the possible causes for morgellons. I’ve even asked him what he feels is the most likely scenario and he believes that for us to focus on one possible cause at this point will keep us from finding what it truly is (or isn’t- we know there is a possibility this isn’t a true disease, but we still feel that it is) So, please, when you make statements concerning our livelyhood, make sure they’re accurate. We do this for a living, not recreation and I will (if no one minds) make occasional corrections to statements that directly concern my job.

Michael says:

Jace, what is Professor Wymore investigating?

tallcotton says:

A Mystery Ailment Gets Under Skin
Chicago Tribune July 25, 2006

“When dermatologists say these patients are either intentionally scratching themselves or it’s just fuzz from their clothing, well, there’s no way that would be visible under unbroken skin,” Wymore said. “Do I have any clue what’s actually going on here? Absolutely none. But there’s no question about the fibers: They are not just environmental contaminants.”

———-

hwitt@tribune.com
Copyright © 2006, Chicago Tribune

jace says:

By environmental contaminants he means fibers that would be found normally in our environment- including industrial fibers (carpet, cotton, thread, etc). Industrial fibers would show up on the mass spec and gas chromatography and those types of fibers are definitely not shown on the databases we’ve looked at. We simply don’t know what the fibers are composed of. It could potentially be something new (or at the very least undiscovered), because the basic “environmental” fibers have been ruled out by testing. Even though we don’t know what the fibers are, I think saying they have to be either organic or industrial is ignoring the fact that it could be something new, or something that has been altered within the body. Right now we are still culturing from patient samples, but nothing definitive has shown up (other than normal skin contaminants) Once we’re allowed to do human studies I think it’ll be much easier to determine whether there is a novel process going on. I’ve been thinking alot about all this lately (yep, Michael, I’m open to many suggestions, and am constantly brainstorming what else could be the cause and how we can help). So to answer your questions as for what we’re doing now- we’re doing epidemiological studies and culturing patient submitted fibers. The ones you’ve seen on the shows were extracted from under the patients skin. I was present on these occasions and saw it with my own eyes- these are the ones we’re testing. Dr Wymore and I got lint samples from our own houses and yes, the majority of it is red and blue (which surprised both Dr Wymore and myself), but I have taken that lint and it disintegrates immediately in a butane flame. In my humble opinion this lint is not what patients are finding in their lesions, because the “fibers” aren’t even being changed at those high temps. And Smiley, unfortunately I don’t know what to say to your comment- your point is valid, and one that I struggle with daily. Since we do believe some sort of neurotoxin is causing the mental issues with these patients, combined with the fact that some of them are not sleeping for days at a time- their belief that the fibers are alive could come from either sleep deprivation, or neurotoxins. It’s really very sad. Can you imagine not sleeping for days? I spend a lot of my time talking to patients and their stories are all very similar. I try to find a common denominator between them. I tell them to keep all doctor’s appointments, and to follow all treatments. There are many who have told me they HAVE tried the antipsychotics and it does no good. Not all of the people who believe they have this are ignoring their doctor’s advice- a lot of them are following exactly what their doctors prescribe and still get no relief. This must mean something. But what? I really wish we knew.

Smileykins says:

Pardon me, Jace. I see you’ve returned.

jace says:

Smiley- I just took a long time to think out that last post so I didn’t make any errors. What I meant is from what I’ve been reading on this site, many people here believe that Dr Wymore and our lab has said these fibers are alive. We have never made that claim. I don’t know what “entity” it is that said that, but it was not us. That’s all I was referring to in that sentence, sorry for any confusion.

jeeezelouise says:

Can you imagine not sleeping for days?

I attended every single day of the US Festival. I can completely relate to sleep deprivation. A few hundred thousand people thought Steve Wozniack was a god, back then.

jace says:

I know you’re not trying to argue. I really appreciate your insight as I’ve been reading through past blogs. Dr Wymore did not start this as a “grad project”- when he first started looking into it he didn’t have any grad students. I don’t like vulnerable people being taken for a ride either, and the snake oil people etc, REALLY bother me. And, just so you know- I’m not doing my graduate project with Wymore, this is something that can not possibly be completed in the 1.5 years I have left. I want you to know that I respect your, Michael, and tall cotton’s (when he’s not being mean to me) ideas. You have questions that need to be asked and answered- so do we, and I believe they are pretty much the same questions for us all.

tallcotton says:

Wymore said…
“They are not just environmental contaminants.”

Jace said…
“By environmental contaminants he means fibers that would be found normally in our environment- including industrial fibers (carpet, cotton, thread, etc).”

Is it true that organic materials cannot survive the temperature these fibers were exposed to, and remain intact?

If the answer to that question is yes, wouldn’t that mean that the contamination would have to be environmental?

The fibers may not be fiberglass, carbon, ceramic, or modified rock wool, but those are some examples that can survive these extreme temperatures, although organic materials cannot.

Why not take a sample of the liquid that oozes from the lesions and see if this material fireproofs cotton? Why not coat some fiberglass fibers with the substance and see if it alters the signature of the gas chromatograph?

jeeezelouise says:

Jace, well, I didn’t get so delusional that I thought Van Halen’s show was good that last night 😉

I wasn’t taking any stimulants, so I confess to catnapping during the event. But you do get so tired that you are very prone to ‘seeing’ what the people around you claim to ‘see’. Also, a bit of paranoia and ‘seeing’ movement in peripheral vision.

I had the added benefits of being in a very large crowd in very hot weather (dehydration). In stressful situations – and even though this was a major concert event that everyone actually WANTED to attend, it was stressful – large groups of people tend to take on a mind of their own. When someone said that some shady government agency had contaminated the water cannons with some unknown substance that was going to do some unknown thing to everyone it touched, within minutes that was common knowledge and accepted as fact. So a huge crowd of very hot, dehydrated people did the most illogical thing, and moved AWAY from the water cannons that were intended to provide relief from the heat.

Sleep deprivation has been well studied, and is known to cause delusions and hallucinations. Sleep deprivation + group hysteria, I don’t know of any research on those conditions, but I am sure it must exist.

regards

Smileykins says:

Jace, also..

Since we do believe some sort of neurotoxin is causing the mental issues with these patients, combined with the fact that some of them are not sleeping for days at a time- their belief that the fibers are alive could come from either sleep deprivation, or neurotoxins.

You’re working from Mary Leitao’s bogus case defintion, and, since you said that some of these patients are treating with physicians, are they not asking for sleep aids, which would also help to alleviate their itching? The mindset of most of the people, on line, that I’m familiar with, is that they want no drugs of any sort, other than antibiotics. They say that the medical community is doing a grave disservice to us all in masking diseases with drugs, rather than curing them. Yep, that is what most all of them, that I am aware of, truly believe.

I know I have a big mouth and strong opinions, but I have followed these people, here, on the internet, not knowing any of them outside of here, long enough to know what they think and say. I know you’re not at fault for any involvement you have, too, Jace. This doesn’t look good, though, at all, to me.

Michael says:

Jace, what I don’t understand is, if you’ve done all this testing, FTIR, etc, then why can’t you say anything about the chemical composition of the fiber?

You say you know that it’s not fiberglass, rock wool, etc, since those would show up. That means you’ve got a distinct enough signature to eliminate them.

What is that signature. What were the peaks?

And, are you sure fiberglass would show up? Some spectroscopic tests require special handling for fiberglass, since the normal tests involve sandwiching the sample between glass slides, then subtracting the glass signature. But with fiberglass being glass, this leaves an indeterminate result unless you mount the sample in some other way.

See Bartick, page 3,
http://ed.bartick.net/42.pdf

Most other fiber types studied were found identifiable
by Raman analysis. An exception is glass fibers on microscope
mounts. Glass fibers produce the same fluorescence
response in their spectra as the glass coverslips. No
other features are observable to identify them as glass
fibers.

tingtongR.N. says:

hey I just discovered this website!…. I’m a little perplexed.
Why are you trying to “debunk” the Morgellons disease? Why do you think its not real
when its barely been studied? I assure you, no one’s trying to trick anyone about this.
My own health problems is the most boring subject on earth for me to talk about, but I felt compelled to make a website about my morgellons problems because I thought it was a danger. But I’m afraid to put its address here in case you use parts of it for ridicule – which you might because this disease is so strange, weird, and unlike anything we’ve ever known.

If a flying saucer from outer space landed in your neighbor’s yard, would you go over and take a look – or would you stay in your house start a website to debunk the ufo nuts????

You’re invited to spend a few days and nights at my side, as intimately as we can tolerate, so you have a chance to learn. I’ll check back here in a few days for an answer

p.s. why are people feeling a need to say untrue stuff like “the one that ate his eyeball”? I thought you scientific analysis types like to stick to accurate facts.

Michael says:

Tingtong, if your evidence is so compelling, then why can’t your doctors see it?

Smileykins says:

Tingtong said, “If a flying saucer from outer space landed in your neighbor’s yard, would you go over and take a look – or would you stay in your house start a website to debunk the ufo nuts????”

If the flying saucer was there, and I could see it, yes, I’d go and have an up close look. If my neighbor was trying to convince me of something only they could see, I’d try coaxing them into taking a little drive with me. If my neighbor tried to spread the idea to a lot of other people that they had an invisible flying saucer in their yard, I would hope they couldn’t convince others to believe it too, just on their word, alone, and I would try to discourage it if I thought it was damaging to them. If they all had a good time, and nobody was getting hurt, I suppose I wouldn’t mind it.

tallcotton says:

How do we know that you don’t have non-morgellons blood bourne pathogens.

tingtongR.N. says:

Well, the symptoms don’t match up with stuff they know or can test for. Many, maybe most people who get this spend huge amounts of time searching the internet trying to find something that matches what they see and experience. That would be a wonderful thing to find! (maybe not Ebola)

tingtongR.N. says:

Smileykins ,
I wonder whose words you mean? Crustylesion the clown? ha ha
A few doctors are treating – we all know what drugs, and can get them ourselves, but they don’t know what “it” is, or why or how the drugs help. Garrannteee

Smileykins says:

Oh, that was one of Randy Wymore’s funny quotes. I guarantee I know that what you’re saying is true.
If your symptoms are subtle, and you can hold off seeing a doctor, what are your symptoms, and how ill are you?

tallcotton says:

Eczema is only one common skin disorder, but it causes lesions, and those lesions are sometimes very slow healing, particularly if they are scratched or picked at. Eczematous lesions contain colored fibers, particularly red, blue, transparent, and black ones. As the body attempts to expel these fibers, they appear to be sprouting from the lesion. Fibers also traverse within and between layers of skin, to other locations. These things are also true with other skin disorders.

I’m not a Morgie, and I don’t believe that Morgellons is a distinct disease. But, I do have some of the symptoms in Mary Leitao’s overly broad case definition for Morgellons. I have memory problems. I also feel disoriented sometimes. So, I guess one could say that I have brain-fog. My eyesight is deteorating. These things are a part of aging. I don’t have lesions, but if I did, they would collect colored fibers from my environment. They would sometimes become statically charged, and seem to move on their own accord. They would appear to sprout from the lesions. Oh, I also experience hair loss. I don’t have any reason to itch, thank God, but if I had healing lesions, they would itch, and if I had a skin disorder that caused lesions, they would itch. Itching can be a sign of healing. Morgies talk about scabs. Scabs are also an indication of healing, if one will leave them alone.

tingtongR.N. says:

Tailcotton People who think they have Morgellons usually share a lot of unique/unusual symptoms, like the black specks, etc etc. Way more than just colored fibers in lesions.
There are a lot of websites to learn more from. It takes a lot of words to describe it, but there is a vast sense of relief when you discover your problem has a name, and there are others who understand you.
#46:I worked midnight to 8am for many years, but slept in the daytime. We used coffee and sometimes pseudafed for sleepiness. I didn’t know where to get amphetamines so I wasn’t tempted. I haven’t worked since before I got this.
Whatever I think might be weird, illusions, or hallucinations I try to photograph,
but I think this disease can sometimes cause weird vision things, in me for one. Maybe I shouldn’t have taken the LSD in 1969, after all. As a nurse I think I’m less likely to have the faith and hope toward doctors that most people have, but the omnipotence of doctors is such a common delusion that its not considered a delusion.
But seriously, now, what is a delusional disorder? I don’t have much experience with psychiatry. Do you mean like schizophrenia? I’m probably too old to get that.
I feel a new paradigm will be required because this disease does not make any sense at all no matter how long you spend trying to figure it out.This isn’t just new, its very different. I think the puzzle pieces don’t fit together because we’re working in 3 dimensions but need to think in at least 4 dimensions. (Does anyone yet know how?) This is my own thinking that I’ve previously kept to myself because it sounds kooky.
But you guys seem interested, which is like a treat compared to the people I know here.

Smileykins says:

Tingtong, are you completely cognizant of how “morgellons disease” came into existence, through Mary Leitao? Do you know how, and why, she did it, and what transpired along the way, for her, and for persons such as yourself, to arrive at your conclusions? I ask, because for many people, who were confused, they weren’t the least bit concerned about her background, only being drawn into this because someone “finally understood & believed”. Now, I can empathize, but that doesn’t make this thing a good thing, as it appears to be, for all the believers in it. I don’t think anybody should have unrealistic expectations of doctors, but it seems that most people who think they have this, did, including Mary Leitao, and that also helped to solidify this. When people have apprehensions about going to a doctor, they should ask someone they know, someone they can trust, to go with them. Another set of ears and another mouth can be quite handy in doctors’ offices. Do you have Lyme Disease, Tingtong?

Yvonster says:

This is for all those “Morgellons Bashers” out there, do any of you (Smileykins and Tall Cotton) have any of these symptoms? If you do, why not put energy into finding a cure, not a reason. And if you don’t, why don’t you pick on something other than an unknown, devastating disease. You are irritating like flys buzzing around your head on a hot day,

London says:

Michael,

I must admit; I just saw your new blog today and only read 11 of the replies so far ( I’m late for work at the moment) but I must say that I have only gotten joy out of your blogs until I read this current one.

Yep, I’m actually pissed. Not at you; but at this lame-ass excuse…tell you what….the CDC or NIH or the National Science Foundation had better find some new material and post the results by August 31st or I’m dropping names. Not that that is a threat; or that it will do anything detrimental to those sick organizations, but I’m sure in the HELL going to fgive it my best shot.

Watchout now Communications Industry…..

Plasma, LED, Photons, Molecular, fiber optics, fibers from the sea, RNA clones, Biotech bubbles, Pea Aphids, Synthentic Vitreous Fibers, Carbon fibers,Glass wool fibers….,Magnets, laptops….., Molecular parasites, Scalpel, electrostatic, quantum cloning and….HAVE I ALREADY SAID THE COMMUNICATIONS INDUSTRY??????????????????

I’ll stop here, and no offense to you Michael, but they need to hurry the hell up. Looks like they have about 7 days….

tallcotton says:

Jace,
If I understand correctly, the fibers were put into various solvents and the colors did not leech out. But the Gas Chromatograph, in heating the fibers up enough to get a gas signature, left the red and blue fibers black. It seems to me that this would mean that the fibers were soaked in solvents before being placed into the gas chromatograph. Question: Due to the penetrating and dissolving properties of the solvents, would the chromatography signatures of the fibers be altered? I assume that the fibers were not melted or boiled away, since the were only blackened, and since they were later placed in acid, where they fragmented, then dissolved. This would, of course, mean that these particular fibers can no longer be tested, since they no longer exist. Can you also tell me which template from the data base was used in the photograph on this discussion topic? Thank You.
Tall Cotton

Michael says:

Jace said:

We’ve had people sending us journals dating back to 1998 before Mary started the foundation, stating the same sort of symptoms that are now all over the internet. If someone can show me where, on the internet there was any talk of this in 1998- I’d like to see it.

Jace, I’d like to see what you are talking about there. without seeing the articles I can’t really judge, but are you saying nobody had formication and neurotic excoriations before 1998? Nobody had ALS and DOP at the same time? Nobody had weird stuff emerging from their skin? Of course all the symptoms were there before, for the same slew of reasons, just nobody thought to make a new disease.

http://groups.google.com/group/alt.support.crohns-colitis/browse_thread/thread/87e5050966eafb05/f7b7c73698d3c84b?tvc=2

Date: Thurs, Jan 30 1997 12:00 am
My sister, a 26 year sufferer of Crohns has had the experience of having
small wood fibers come directly out of her skin. This gave her the feeling
of being stung by bees. It happened to various parts of her body. It was
very nerve wracking because she wouldn’t know when they were going to
appear next. She experienced her last episode four years ago while in the
hospital being treated for Crohns. Her Dr. observed this happening and had
no explanation. She is visiting me this weekend and I told her about this
site and she asked me to ask if anyone has ever experienced this or heard
about it

Michael says:

And on a different note, here’s someone literally covered with fibers, who claims to have Morgellons, although I suspect pet hairs might be more likely:

http://cherokeechas.com/petinfo.htm

Sadly, this does not seem to be a joke. At least Quigleyetta is Morgellons free for now, as far as we can tell.

Michael says:

Well, I agree with your point (the fibers are not common fibers), and my point is STILL (back from May, when I asked Wymore about it), that if you look at enough environmental fibers, you will find some uncommon fibers.

Your red and blue fibers don’t even chemically match each other. Which fiber is the “Morgellons” fiber?

TexasRose says:

LOVE IT!!!!!!!!!

THANK MICHAELLLONS for showing the Pet tab at cherokeechas’s website!!!!!!!!!

Quigleyetta looks to be a WONDERFUL moderator for the page!!

Something POSITIVE and FUN to boot when you check the website.

Jace – KEEP UP THE GREAT WORK that ya’ll are doing at OSU!!!!!!!! Your time and energy is awesome to have!!

jace says:

2 that I personally watched them removed, I think between 10-20 when I was gone and 20+ that have been mailed to us.

Why is that logic wrong? It’s just one more anomaly amongst many. If theoretically we were to believe all the morgellons patients, and they all have red, blue, clear and black fibers- why would you assume they would all be chemically the same? That seems illogical to me.

Michael says:

Okay, I see what you are saying, that different colors fibers would be chemically different.

I’m saying that you can get different colors (of, say, cotton), without significantly chemically altering the material. The fact that these two fibers are of fundamentally different chemical makeup seems to me to indicate they had different origins. The chances of there being some new undiscovered entity that produces two DIFFERENT kinds of indestructible fibers just seems so insanely unlikely when compared to a much simple explanation of environmental contamination.

Of your 30-40 fibers, what is the criteria for sameness that you use?

And if you have time, a very quick question, how did you heat the fibers to 1400F? I tried some clothing fibers in a kiln at 1400F for 20 minutes, and it vaporized them. I need to find me some fiberglass.

Michael says:

http://www.neuraltherapy.com/

jace says:

I don’t know how they heated the fibers. It was not done here on campus- that was done at the police lab. “criteria for sameness?” Again, I’m not the one doing the off campus studies, but my guess would be same width and color based on what I’ve seen, also there are some internal landmarks seen at high magnification. Length could be varied too easily to make it a criterion. I think both scenarios (yours and mine) are pretty equally unlikely. And I have never said the chemical composition was fundamentally different- I have not seen the graphs myself.

jace says:

I totally understand Smiley. I just wanted to make sure you weren’t blaming someone here. We are not making ANY profit from research and we truly do just want to do what is best.

Smileykins says:

Jace, I don’t mean to be drillin you. I know only Dr. Wymore could give his reasons for why he got involved.

Michael says:

The basic point here is that you THINK there is some correlation between the finding of particular fibers under the skin of a person and the incidence of neuropathy related symptoms.

The evidence is all anecdotal, yet millions of people get to watch a TV show that presents this as the next big plague, with sober doctors in white coats and FBI scientists weighing in on the wierdness of it all.

Yet you KNOW, Jace, that a very large percentage of the people who think they have Morgellons are either mistaken, or simply delusional. You have corresponded with these people.

I know it’s not your job, so I’m just asking your opinion here, but don’t you think OSU has a responsibility not to propogate myths and fear-mongering? You web site says “you can help by […] Spreading accurate information and combatting ignorance about the disease“, yet on the same page you spout the MRF bullshit statistics like “There are clusters of the disease in specific geographic regions of California and Texas”

So now I get emails like:

The Morgellon issue was presented to me by a friend who is concerned about an upcoming church camping trip. It seems he caught the paranoia from a friend of his explaining that Texas has “alot of cases” and he fears the group will become “infected” My advice was to do a little research first before telling everyone.

Maybe the OSU should fess up and say, no, they actually don’t have any evidence that it’s more prevalent in one area than another, and that practically everything on the OSU Morgellons page is unfounded nonsense.

http://morgellons.okstate.edu/index.cfm

It’s unfounded fear-mongering, plain and simple. It is hurting people.

MAFer says:

Michael… why don’t you just shut up for like, even a day… do you listen to yourself ever?… you may run this website, but you don’t run osu or anything else for that matter…

snake-oilry happens everywhere all the time in every dicipline… get over it… why so passionate about morgellon’s snake-oilry?… protected, vested interest?…

jace… why entertain these clowns with answers they only intend to pick apart anyway?… you have current and future science on your side, they only have a criminal’s interest at heart…

shittykins… derms are morons… why don’t you whomp yourself upside the head instead… get it on video and post it… that would be funny…

people should be concerned about where they are travelling to… the world, including the u.s., are not without hazardous diseases… biggest mistake anyone could make is asking you michael about where it is safe and where it isn’t…

so your advice to your texas friend was to do a little research first?… where?… this website?… or somewhere else?… i am curious how you would advise someone in that situation… fill us all in dr. Michael…

damn… your blog comments just get stupider everyday…

Smileykins says:

People can find these doctors & clinics all over the place, anyway, and do. I can’t say that if something happened to render me into a position of despair over the wisdom of conventional medicine, that I might not even, one of these days, fall victim to circumstance. I firmly believe in working with doctors, though, rather than turning my back on them. Not everyone can do that, but too many patients don’t even know anything about the conditions they have, and what to expect from them. It’s all right at their disposal, to access their medical records, and to research all there is to know, but they just don’t do it, for whatever their various reasons are. People that can’t be in charge of themselves are susceptible to anything, and especially when they need others, they think, more than they need themselves.

tallcotton says:

“shittykins… derms are morons… why don’t you whomp yourself upside the head instead… get it on video and post it… that would be funny…”

MAF’er, why don’t you kiss my ass, you idiot.

Aherah, there may not be any proof that God exists, but you’re living proof that the devil does.

Tall Cotton

Aherah says:

Gosh TC, I’m the devil? Funny, most who know me wouldn’t think so. Why do you? Are we back to your “being saved” as a method to rid yourself of Morgellons?

Smileykins says:

I wasn’t referring to religion, up above, I was referring to thought processes.

tallcotton says:

I was referring to Aherah’s statement, saying that there is no evidence that God exists. There may not be a way to prove it in this life, but there certainly is a lot of evidence. Yes, I am saved. I was save long before I ever heard of Morgellons. Christians can get sick like anyone else. Why do I say that you are proof that there is a devil. Well, let’s leave it this. I think you are evil, and I think you demonstrate it every time you come to this blog.

Smileykins says:

My point was that the world is a scary place with or without Morgellons. It sounds like they needed to be reminded of that. In addition, I think it is obvious that there are some very strongly held beliefs in this world that science has yet to verify.

You just come across as someone who is real tormented, that’s all, Aherah. It almost seems to defy logic, with your claims that you and your kids are doing so well, currently, with your morgie skin symptoms. You’ve gone from seeming to be a bewidered, scared, and confused, wife and mother, who couldn’t understand anything about what was happening, and who didn’t even seem to want to, back when I first encountered you, into one of the meanest persons there was on Lymebusters message board, when I used to look back in there. Nobody can change things for you, and you don’t need to be treated for depression, you have said. I’m sure you probably wouldn’t consider an anxiety problem might need some looking into, either. Maybe if you became Pumpkin you’ll feel better. I hope you do.

Michael says:

MAF, could you stick with one user name. It would save confusion. Thanks.

911 says:

You wasting your time trying to explain stuff to delusional people. The internet has made morgellons real to them and has worsened their lives. They don’t even realize they spend ridiculous amounts of time looking at lint with microscopes and depending on a PHD (not even a real med doctor) to look into this. Not only that, but his research shows nothings that we didnt already know (fibers arent organic). I stopped argueing with these people long ago. Just like I stopped arguing with my schizo friend who beleive he has “bad blood” (long story). If they don’t want help, why bother?

911 says:

Uh, I am a 23 year old college student with a degree in psychology and getting a degreein business finance. Not working for the gov to cover the up the bottled water and chemtrails accidents

southcity says:

broken records. Once again, Michael, for your consideration and comments

PRETORIA, South Africa — Daan Goosen’s calling card to the FBI was a vial of bacteria he had freeze-dried and hidden inside a toothpaste tube for secret passage to the United States.
From among hundreds of flasks in his Pretoria lab, the South African scientist picked a man-made strain that was sure to impress: a microbial Frankenstein that fused the genes of a common intestinal bug with DNA from the pathogen that causes the deadly illness gas gangrene.
“This will show the Americans what we are capable of,” Goosen said at the time.

http://www.16beavergroup.org/mtarchive/archives/000057.php

very eye opening as to the world we live in today. the US turned these scientists away. I do wonder how they support their families today though? And if their employers are friendly to The US. and yes, I’ve been to several physicians, from my primary( who is stumped, but does not doubt the reality of these symptoms) to referred derms to environmental medicine specialists. All stumped but are working towards answers all while using “shotgun” techniques concerning treatments and the establishment of a suseptability pattern. But because of industry ways and work load, can only give so much time to me.

so come on, attack me some more as I am sure you three have really started to dislike me and the way I upset the predictability of your analysis. And even though this is somewhat comical to me, I still would rather be doing and thinking anything else instead of this illness and you 3 goons.

Smileykins says:

Oh, now, just listen to you, South. What do mean “attack you some more”, and that you’re sure the three of us don’t like you? All you have done is ignore me, when I have expressed concern to you. We haven’t been attacking you. South, I appreciate what your mission is, in some way, feeling that you’re helping to make us aware of the dangers we have in the world today. I do think that is really all that you’re hopeful of doing, isn’t it? How are your symptoms, now, and your girlfreind’s?

London says:

okay, finally got to finish reading this blog slot….just thinking….maybe Dr.Wymore knows what this is???? HUH???? Yeah, right and maybe the FBI are liers to? They’d be the last f-sticks I’d trust with my life…..(Not the good Doc, but the Feds…arg!)

People, somone is lying out their GD arse! I hightly suspect it is the USDA and the DOE……

am I slamming the US Gov’t? You had better believe it…lyings sacs of poop! Hate em’

Now, why is it that no one ever says anything about Cliff and Greema and TAmTam?? Please, answer me that.
Is it b/c they too are in w. the biotech communications industrry?

These are my thoughts and I am free to to think and say them…..so I am.

I mean come friggin on people! You can not tell me you believe these lying people….so no one in the world has a damn clue what the fibers are?

One word….you should memorize this too: BULLSHIT.

Smileykins says:

Well, I can only say from my own experience that when I was sick for a couple of months, my own mind was who was lying its arse off to me. If I’d stayed in that state and found MRF, I’d be a morgie, myself. I couldn’t stay there, though. It wasn’t a constant, for me. I used to attempt explaining it to morgies, using the terms, “acute morgellons” and “chronic morgellons”, haha, just as a way of trying to break through. It can’t be done. A sick body can make a sick mind, or a sick mind can make a sick body. That may sound like hogwash, but proper balance is the key to health.

Oh, I’d love to know whether Dr. Wymore knew what this was before he decided to get himself involved. Um-hmm, um-hmm. Either way, it’s a creepy, creepy thought.

tallcotton says:

Terrapin Therapy!!!! OMG!!! Another Snake-oil Salesman!!

MAFer says:

Sean0w2… how do you figure the clowns here have the truth… there version of the truth is only opinion as well… there is no evidence that can prove the existence of morgellons?…

well… there is no evidence that can prove morgellons does not exist…

pick a side then… but writing blogs favoring their agenda will not make the fibers and lesions go away… if it would, then one might be able to say that reading here is a form of therapy… this website is going to straighten us all out and bring us back from the depths of morgie hell?…

like i said, pick a side… personally i have had this long enough to know better… would you like a dose of it?…

Michael says:

Systemic said:

If my fuXXing dog can get hook worms, and cattle can get liver fluke what makes you think for a second that us, Mammals, could not contract similar parasitic infections? For what reason do you believe that biological weapons research is not real?

Systemic, I do think humans get similar parasitic infections. I also know that the government conducts biological weapons research. There is just no evidence to suggest that either of those things is in any significant way related to the 5000+ people who registered with the MRF. Nor is there any evidence that people are producing fibers.

People are, however, obviously ill, with a variety of symptoms, which have a variety of causes. They deserve appropriate medical care, and that’s all I ask.

I am sorry you feel I am spreading ignorance, since that is the opposite of what I am trying to do. If you think there are errors or omissions on my site, I would be grateful if you could point them out so I can address them.

Sean0w2 says:

Mafer,
I personnally know two people who claim to have this Morgellons. I have seen what they call evidence, I have been there when they claim Fibers are comming out of them. And everything I have seen this past 6 months is complete bullshit. They are completely dellusional, despeatly seeking other prognosis other the one they have been given. Do get more personal, one is my mother. I am not saying all cases are the same, because I only know two of these people. She also claims that her two dogs have it, but there is absolutly nothing wrong with them.
I have chosen a side, not yours. How many doctors have you seen? How many diagnosis have you disagreed?

TO Systematic,
First off, I am no where near rich. 2) I come from a blue collar neighborhood in Philly. 3) You can take your guns and shove them up your ass!!!! You obviously have some serious mental problems and need help to talk like that. If it wasn’t for this site, I would have lost my mind about what I am going through. I make this point clear. If this was some goddamn pandemic, contagious, infestation, then don’t you think it would take the CDC just a bit shorter to get to the bottom of this?

Systemic says:

Don’t forget it was guns that founded this country and it is guns that have protected your complacent ass. And wether you realize it or not in comparison to the rest of the world we are rich.
So smart ass, why is the cdc now addressing this issue? because it is delusion. right. wake up. I find it disturbing that you don’t believe your own mother. that must be really hard for her, and further more if, let’s just say it is delusion. There is still an underlying cause. Or are you saying that delusion is causeing delusion, because if so it is you that needs mental help.
do yourself and everyone who is trying to help a favor. go fuck yourself.

911 says:

MAFER, I have studied and interned at a mental health practice. People that I and a supervisor helped counsol those with somatic illnesses. 2 of these folks had morgellons (they didnt know that is what it is “called”) and would bring in all types of specimens for me to look at it. All of this stuff was lint, dead skin, and dead bugs. I was supervised by an MD who would prescribe an anti psychotic and/or depressions/anxiety meds. You would see some slight improvment with meds, but meds dont solve anything. The best thing was behaviorial therapy and stop them from obsessing about thier skin. I beleive this disease to be somatic and the best cure is taking care of emotional issues and stop obsessing over your skin by looking at everything with a microscope and reinforcing the condition by talking to unhealthy people on the net who share similar delusions. The CDC and many doctors offices are having thier time and money wasted investigating a fake disease.

MAFer says:

systemic… i can relate… i was once a drummer, but the fatigue and lesions got the best of me… you’re way sick man… i say drop the fucking hammer…

these clowns are disinformationalists… most of their own sentences and fragments thereof reveal that…

Michael… as far as errors and omissions… this whole site is an error in that it’s sole purpose is to help cover up a crime… omissions you ask?… yeah, no omissions here bozo… your content is only a subset of the whole… everything else is an omission…

smileykins… ok, you got me… several of my friends have always told me how easy it is to start a relationship and/or fall in love on the internet… well after some careful consideration, i think i love you too sweety!… i just hope you are not a fatty because i really don’t like fat chicks… and i hope you don’t have too many scars and scabs all over your skin… don’t really care for that either… kinda grosses me out you know… hope you are not one of them real skinny bitches either… you know, the ones with the boney chicken frame, big nasty camel toe, narrow cheek bones, caved in eyes, and bad teeth… i would probably need a whole case of viagra if i had to deal with that…

ahhh… the joys of being in love… i just want to shout…

HEY WORLD!… I’M IN LOVE!… I SCREAM YOU SCREAM WE ALL SCREAM FOR MY ICEQUEEN!!!

Sean0w2 says:

You know what Systemic, I am comming to the conclusion that you are just some fucked up dude, with serious mental problems. Steve Case, yeah right, and I am having lunch with Bill Gates tomorrow.
The CDC has to investigate this, that is what they do.
About my mother, read my post in the Nancy Hinkle blog. She is just plain Crazy, and is doing nothing more than searching around to prove she is right. She has been told by three doctors, and her psyciatrist that she is dellusional. Oh, she also has a long history of depression, and has been on many anti-depressants for years. She is also an alcoholic, who drinks while taking her medication. But I guess that would have nothing to do with what she is suggesting she has.
I am doing a favor for the people who are trying to help, I am spreading the word about this website, so people can be properly informed of the truth, and not listen to redneck whackjobs who want to threaten to kill people because they don’t believe them.

SarachConnor (abac68) says:

Systemic Says:
August 24th, 2006 at 9:58 am
Your error is not understanding the very nature of this disease. It disables it’s host methodically. And by the time people are able to say “hey I think I’m sick, the symptoms are to severe for them to appear rational. I pose to you…Open your mind and consider other alternatives other than it’s in their head. How could so many people have normal lives and then wham…lesions….memory loss…..rashes…..

That is absolutely spot on. Well said.

Sean0w2 Says:
August 24th, 2006 at 10:09 am
All Michael is trying to do, is put out there that not all people are suffering from the same thing, and none of this is connected. People are self-diagnosing, and hurting themselves more by not listening to thier practioners.

Don’t you think the CDC need to be the judge of that?? After all Mr Dan Rutz has been quoted to say in the newspaper that they are taking this seriously.

And also – I for one do NOT obsess over my skin, what am I to do shower in a damn rain coat, just so I save myself from actually having to see the damn fibers coming out of places they shouldn’t???!!

I agree that a lot of us my not have the same symptoms, BUT you obviously ain’t no scientist or doctor like me, so statements like —oh these people are just obsessing over their skin —is not helping to sort out this problem really is it??

Systemic says:

Actually yes, The last two people that lived with me in the same house have contracted the same symptoms, even though we no longer live in the same state and are no longer in direct contact. So have their girlfriends. The only thing in common was residence. Look I like any other descent human being do not want to hurt anyone. but guns hurt people and they are real, so why is this not? because you say so. I don’t think so. Not that simple. and that’s my point. Yes people are getting infected at an alarming rate. Biotech release 3600 gentically altered parasites in pheonix arizona on a goverment owned facility for testing. Fact. And have you stopped to think about how you would feel if your mother wasn’t crazy? Either way it’s your mom, and I am no redneck. If I was god help you. I know a few though. I am sure the cow breeding, beef providing portion of this nation would love to know how you feel about them. Rednecks that is.
assumptions and sterotypes are the exact problem here.

SarachConnor (abac68) says:

Systemic – when were the 3600 genetically altered parasites released? Do they fit into this ie. the years from 1996 onwards then 1998 etc etc. I do know that GM contamination stated in 1996 and we have heaps of it in Australia. Is there any evidence to say when this GM contamination will die off or disappear, or is it here to stay?

SarachConnor (abac68) says:

If people have evidence of such things taking place ie. release of GA altered parasites – then give your evidence to the government. Wouldn’t that alone be a start at least, to me it sounds awfully wrong and human lives would be at risk no doubt?

Once again – who do you blame? Who can draw that conclusion – the CDC I feel.

Michael says:

Sarah, here’s what Systemic might have been referring to:
http://www.villagevoice.com/news/0126,kick,25988,1.html

It’s inevitable that GM parasites will become commonplace as replacements for pesticides.
http://nematodes.com/

GM has been in use for decades, with no ill effects detected.

But this is all off track – there’s no evidence of anything connecting GM parasites to Morgellons. If there were parasites, there would be microscopic evidence.

SarachConnor (abac68) says:

SeanOW2 – Ok I believe you when you say these two people are delusional – yes it happens – I guess we will always have people in life who think they have something when they haven’t. Some people need a ‘label’ in life to feel safe I guess.

I have had my treatment for chronic rickettsiosis, and I do hope my recovery will continue (positive mind focus). I just to hell wish that I could find some written evidence that rickettsia could cause this manifestation to the skin, and all the hitchhikers in my skin – because that would be enough for me. I don’t need a new name like Morgellons to help me move on. I think a plain old simple explanation or validation to explain a symptom which even doctors can see. Come on – it really isn’t too much to ask for. I for one, like others are saying – we should not have this stuff inside of us. That is why we have an outer layer – SKIN, it protects us. Maybe blame it on the ozone depletion – that would suit me, environmental disease, 21st centuary disease. Why is this happening to me NOW and others NOW. It never used to.

Sean0w2 says:

Sara,
I wish that more people had your thiking process about this. My opnion is that most people are just clinging to an answer other than what they want to hear. You are trying to deal with and treat what your doctors have said you have. I hope you all the best.
One thing people still have to realize, is that Morgellons is still not a recognized disease, and leagally can not be a diagnosis. So, until,if ever, the CDC, and the medical community claim this to be a diesease, none of you have Morgellons.

SarachConnor (abac68) says:

Systemic – Silentsuperbug. I can not be foolish enough to believe that I am sorry but I need much more evidence than avideo through the internet. Is he a scientist? give me his credentials? Mary said he was a poet! If I was to send that to my shrink (who by the way is an Associate Professor of Psychiatry you would know his name – well renowned in the USA and worldwide) he would for certain say to me how can you believe that, you need proof, and maybe you should take a pill.

Sean0W2- Thank you – and yes I agree we do not have Morgellons, but if we want to describe and put a name to a symptom not yet in a medical text book – call it Morgellons. Personally I hate the word. My ma calls them doobies – she said it like a damn plant growing in you.

Morgellons is not a documented disease or is it as yet proven as a real disease – BUT WHY do fibers come out of the skin and everything else??? Just someone please explain why this can happen, and how?

Sean0w2 says:

Sarah,
this is what I believe Michael has been saying all along.

“People are also clinging for an answer because SOMEONE kept promising them that they would get an ANSWER. This really is unfair to promise things to the sick and vulnerable.”

Mary L, the MRF, and Wynmore have been giving false hope to people who need real help. They are the reason my mother still hangs on to this delusion. Like I said before, I don’t know what other people are going through, but my personal experience’s have been that Morgellons is not real. I truly do believe that there are people out there experincing all types of things. Shit, that medical mysteries program had a goddamn wearwolf on it.

Sean0w2 says:

Systemic has a problem expressing his opinons with a thought process. He has been quick to rant, threat, but has backed away when confronted with his thoughts. I would like to see a well thought, easygoing response to some of the questions brought to his attention.

Sean0w2 says:

I just don’t understand why Mary L, and some of the “morgies” want to discredit logical thinking. Are they so determined to prove their cause, that they can’t listen to anyone else’s opnion? I will bet all the money in the bank, that they are Democratic Liberals, who do not want people to make their own decisions or conclusions to this unless it is non-bias to thiers.

Sean0w2 says:

I am going to assume that Mary L, and the rest of the MRF, and the people affliated with them are looking at this blog. Why don’t they just show themselves and directly answer some of the questions. Stop hiding behind closed doors, and let the public know what your reasons are. I am seriously worried not just about the people in my life, but all of the people out there hurting themselves, and others by not listening to reason. I am not going to say that some people are not suffering from somethig, but where is the proof? What has OSU and the CDC found thus far? Stop rambeling about a mysterious disease, and show the hard facts! There are people out there who are suffering, and just hanging on to your answers that have not yet come!

SarachConnor (abac68) says:

Can the CDC maybe step up and make an annoucement to perhaps calm down the situation a bit?

Even if they don’t have any real answers, but at least recognition that this is really taking place and the people who started it all (MRF) perhaps need to be investigated as to are they who they say they are, evidence please, what is the geograph for the rest of the world. We can not just continue to trust one persons take on this, ie. we have evidence of it in every country in this world, apart from the Antartic. My goodness if this is just all a bit of a side show, someone has to come un stuck sooner or later. It is just getting more and more off the planet.

I was not referring to the fact that I am infected by Aliens either okay, but you know anything is possible. I can’t decide you know, do I wanna wear a space suit, or do I wonna be a morg monster…. gee I just can’t decide.

Systemic says:

backed away, hardly. Rant. that’s what a blog is for. threat, why are you guilty? I just don’t have time to sit here on the internet and entertain your delusion. as I said, I do know that most of these people are suffering from REAL SYMPTOMS and if Morgellon is the name for now so be it. We will know soon enough what the underlying cause is. Then I will return, until then you are just wasting your breath, and infinatly more important, my time. I have better things to do, like talk to people who are working the scientific end of this problem.
Just because you know a couple of people who are nuts doesn’t mean that thousands of people in all 50 states sharing identical symptoms are.
You are the one that should get your facts straight before ranting.
I guess some people would like to cling on to the world as it used to be, as they need it to be, because the reality of the ladder is just to hard for them to accept or understand. nevertheless reality is reality.

One final note. Have any of you taken the time to look at the EPA report on Premethrin, which is found in a lot of household products, like flea killer for your dog? Might check that out before you go on blogs telling people they are delusional. I bet you have a loved one that has this stuff in their house right now. or maybe you already new this and that is your reason for being here.
anyway, good luck to all of you suffering.

LeanneDeniseHendley says:

http://groups.aol.com/moregellons

“If you are sane enough to know they think you’re crazy,your crazy if you let them tell you -that you are insane..think about it!!”- LeanneDenise(c)2006

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~*~

2Jo 1:6 And this is love, that we walk after his commandments. This is the commandment, That, as ye have heard from the beginning, ye should walk in it.
love in Jesus, Leanne
http://WWW.GODSpeople.inJesus.com

jace says:

Hi Smiley

I’m not sure exactly what you’re asking me. Did you need me to read through all those articles or was your main question about the GM stuff? “Has Dr. Wymore got it into his head, like many of the morgie people have, that they have neurotoxicities from being infested with biogenetically engineered cotton, or other synthesized fiber?” I can honestly say that we have never seriously discussed anything bioengineered or synthesized as a cause. And just FYI for people who are reading and wondering why there hasn’t been much forward movement on our research: first, we are still (patiently?!) awaiting IRB approval so that we can do our experiments with skin or biopsies that have been aseptically removed by a doctor. We all have bacteria on us every day, so most of the cultures I’ve grown in the last 9 months have been normal skin contaminants. We really won’t get very far until we know who, what and where these samples are coming from. Secondly there are only three of us working on this. Three people dealing with media, patient calls and emails, etc. There just isn’t a lot of time for hard core research which is what we so desparately want to be doing. I can’t tell you how hard it is to call people and tell them that essentially we don’t know anything about what they’re dealing with. It’s hard. If it turns out that there is no such thing as morgellons, I don’t think that we lose any credibility- we are looking for common denominators. If there are none- than at least a full study has been done to determine that. I think the addition of our epidemiologist is finally going to get us some data to analyze. And I believe someone asked me the other day where the CDC is at in their investigation- I don’t know. Hopefully soon we’ll all know something and all this sniping and rudeness on websites such as this will stop. I just don’t understand all the ugliness- it accomplishes nothing. I was really beginning to enjoy reading this blog and then I see statements from the people we are trying so hard to help that they plan on shooting people. I’m sorry, but that thought just makes me sick. Yes, we disagree, but I think it’s been shown that we can disagree nicely- much more is accomplished that way. Please angry people, think about what you say and how it makes you look before you say it. Seriously, I’m on your side and those statements make it easier for me to understand why people might not believe you.

Sorry that was kinda rambly.

Michael says:

Sarah, you are obviously very physically ill, and in no way would I ever want to belittle that. But it really does not seem like there is much evidence that what you have is the same as what other people have. I’m glad that you are working well with your doctors, and that is the best course of action for anyone who thinks they have a novel disease.

If there IS a new disease that some people have, then diagnosis and treatments will only come after clinical and epidemiological studies by people like Wymore, and the CDC. That will take some time. In the meantime, people need to work with their doctors to best treat their individual symptoms.

I feel there is not enough evidence to even merit these preliminary studies by the CDC, and they are doing it mostly for PR reasons (and to stop people bugging them). But that’s a moot point now, and I await the results with great interest.

I don’t think you mean smallpox, that’s been around for thousands of years, and is mainly interesting for it’s role in the development of inoculation and vaccination. Look to AIDS or SARS for a better analogy.

SarachConnor (abac68) says:

Systemic – you didn’t offend me – I don’t see who you could even blow my head off through the computer screen if you tried or wanted to (only joking), I read between the lines, that this is purely a written expresion of your frustration just like mine. And I am more than happy for people to point out if I am wrong about things, this is how I learn anyway by my mistakes. So no need to apologise on my behalf, hope you feel better soon.

Smileykins says:

Jace, you said, in your closing remarks, “Seriously, I’m on your side and those statements make it easier for me to understand why people might not believe you.”

That has everything to do with why I’ve been stunned that Dr. Wymore jumped into this, head first, with blinders on. From the beginning of his involvement, I have had questions concerning “his” sanity. Ginger Savely, Dr. Stricker, Dr. Schartz, and anyone making a profit off of these people, well, sure, anybody can see their motivations. I know you defend this as “not” being a project he’d chosen for graduate studies, but I could swallow it somewhat easier thinking that was the case.

Smileykins says:

Yes, Tall Cotton was known as Bugs Alive, and, I, Smileykins, am the former, Adapted.

Tell all of us the point you are trying to convey, Texastar.

tallcotton says:

Texastar,

We’ve told everybody that already. It’s no secret. By the way, what name did you use? Oh yes, I still have my sword!

Tall Cotton

idahocreek says:

I’ve had problems with ‘fibers’ since I was a child although I didn’t
know that was the problem at the time. The airing of Primetime was like a new ray of hope!
It is my belief, based on the medical problems I’ve had throughout my life
and where/what I was doing at the time that these fibers are asbestos and fiberglass.
I know many people suffering from this ailment that don’t even know they have it yet. I see the same effects on their bodies and skin as I have seen
in my own. Ear aches, back aches, legs that ache or RLS.
I began having problems in grade school, an old old school and we know the schools were full of asbestos. I had chronic ear infections, passing out spells, dizziness, sore throats and basic allergy symptoms. After leaving grade school and entering jr. high, a relatively new school, most of my medical problems seemed to occur less and less. I still had and always have had severe reactions to skin irritation such as bug bites and weeds, etc. I didn’t have near the constant headaches etc until we moved and I was again placed in a old old school. There, not only did all the other symptoms come back but I began having lower back problems. On entering high school, another nearly new school, I still had some skin irritation but the majority of the back aches etc. were again getting less.
After marriage, I had bouts off and on the first 2 years and then got steadily better, again. The first 2 yrs my husband worked in construction on the job, after that, he was in the office. Second hand exposure to fiberglass?
I can now go back through my life and detail every time I experienced the same symptoms and without fail, I was somehow exposed to either fiberglass or asbestos. I was a bookkeeper for various business over 25 yrs. Places I became ill again or had some new symptom included an old airplane hanger, a gravel pit and a new building where the drop ceiling hid exposed fiberglass. Finally, we built our own home. I was the clean up crew. I still had not put 2 and 2 together and all the doctors I had seen thought I was ‘nuts’ or on drugs. I was told IF there was something in my skin, it would be absorbed or kicked out. It was not! I got much much worse.
I am a potter now and had set up my studio in our unfinished basement. After 2 yrs of working there I became more ill than ever before. I was diagnosed with TMJ, fibromyalgia, arthritis, herniated disks, allergies and the list went on and on. My health continue to fail miserably. I had 2 operations on my jaws, 2 for bladder problems and steroid injections in my jaws every year.
My husband can be credited with coming up with the first clue as there was exposed fiberglass near my hot tub, on talking to him about how I felt, he said that couldn’t be helping. It has been a long but positive journey since. I am now feeling a little better everyday.
I was told by someone that emu oil would help with the tmj pain. On using this oil for a couple of weeks,
I noticed ‘something’ coming out of my skin. I now use emu oil several times a day and through trial and error, have found that applying it after a
hot bath will flush out the some of fibers. I also mix epsom salts with the emu oil and rub this into my skin. I’ve found the pain is the worst just as the fibers are surfacing. Knowing this just makes the pain a bit easier to deal with.
My skin feels better and better everyday and the swelling and infection caused by the fibers is greatly relieved by the use of the emu oil.
Is it possible that these fibers are indeed asbestos and fiberglass or some other fibers in our environment? Before asbestos and fiberglass, they used ‘rock wool’. This I found is just mining slag and therefore, would include asbestos.
I never thought I was alone as I have friends who also suffer from this but seeing the program on Primetime gave my family and those who have
doubted what I have said, something to think about.
I’ll watch this site and any others for more information. I’ve also found a site for “Victims of Fiberglass” http://www.sustainableenterprises.com/fin/victims.htm
I hope this post will at least give some people a chance at some relief if not the cure it has been for me.
Additionally, my pets, dogs and cats have been exposed and shown reactions to fiberglass. The worst being ear infections. Emu oil works for them too.

Smileykins says:

Thank you, Jace. I didn’t expect you to know Dr. Wymore’s private thoughts and motivations, so my questions persist for obvious reasons. In the meantime, Jace…

Do you have any idea what the picture in this link is, with the caption, “Microscopic view of a dry, membranous-like material formed over an open skin lesion of the type associated with what a small group of people call Morgellons disease.”?

http://www.post-gazette.com/pg/06204/707970-85.stm

Do you know what this same thing is, that’s pictured and described at other developmental stages of interference?

http://www.rense.com/general72/callus.htm

911 says:

And if I do have DOP what is the current treatment available? -Sarah Connoer

Sarah, there are plenty of treatments available for DOP. I interned with a psychiatrist who treated DOP/Somatic mental health issues. It is basically a combo treatment of many things (medicine, therapy, excercise, nutrition, etc). Anti anxiety meds (valium, xanex, Ativan) can help you with short term anxiety while starting therapy. The next step is a combo of anti depression/anti psychotic meds. Take all pills as prescribed. The biggest reason people dont get better is not taking their meds. In therapy ask about conginitive and behaviorial therapies that can help change the way your brain thinks and behaves (trust me, you will learn a lot and realize how amazing and complicated the brain is from this). Try relaxation and meditation to help you relax, this will help you not depend on meds so much (xanex, antivan, valium, the body adjusts to these meds and have potential for abuse, all though not that often). Excercise (weight lifting, running, or even walking if the others are too hard on your body). Don’t over push yourself with the excersice either. If you do even just a little bit and feel tired, stop and rest. Remember, baby steps. Eat a good diet, lean meats, lots of veggies and fruits, keep sugar intake low, eat complex carbs, lots and lots of water (I recommend sports drinks too like gatorade and powerade that replenish your electolytes). Work hard in therapy on issues that bother you in life. Feel comfortable with your therapist and find a good one. Also, make sure that you have been tested for any physical disease or problems that could cause your symptoms, if you have had all those test before, just go a head and start therapy. A support group like family will help also. It will take time to get better and give yourself that time and you will very gradually notice improments so dont give up just because things are better in 3 months. It takes a while, and I have witness very unhealthy people with chronic DOP/Somatic illnesses get better and symptoms resolve (it is amazing!!!). Good luck and feel free to ask me any question. I want you to feel better & I am glad your are taking the steps to getting there:):):)

Cheers,
911

Smileykins says:

Idahocreek, with all of your TMJ trouble, am I correct to assume that your herniated disks are in your cervical spine, and have you had an MRI?

SarachConnor (abac68) says:

To 911 – Thank you very much for going to all that trouble with your post.

I believe I am not DOP – otherwise the “good doc” would not have taken me off the meds and said I was a misdiagnosis of psych. some years ago. It is upsetting that I have been misdiagnosed over the years, but it has to happen to someone I guess. Feel much better off the meds, I think I could have a touch of the serotonin syndrome, but that will right its self with time. I am not upset with my shrink for giving me those pills, because they really got me through a bad time of suffering, and he didn’t hold my mouth open and push them in did he!!!

London!!!! Get back in your box girl – you very funny lady – ok I will let you make fun of my anxious movements, in fact I think some of my anxious rantings are very amusing, they make ME laugh.

idahocreek says:

Smileykins,
Yes, I’ve had an mri, it showed a very mild case of disc damage however, getting the fibers and resulting infection out of my spine and back has stopped the backaches completely and I do believe it was the swelling and infection caused by the fibers that created the majority of the pain. Of course this only after nearly 3 yrs of having the stuff come out of my skin from the top of my head to my toes.
The tmj pain has also nearly gone away although with all the damage in there, it will no doubt be something I just live with. Still, any improvement is a plus. I was nearly bed ridden before I discovered emu oil.
I believe fermaldahyde coatings on nearly everything we buy adds to all of this. Additionally, these fibers float around collecting all kinds of grime and pollen/grit/smoke/smog. Is it any wonder they cause infection?
The only doctor I’ve had that would even consider what I said is my Facial surgeon and he is a true healer. He spent an hour pulling fibers out of my elbow after I had a bad fall. He and my dentist have seen the massive improvement in my jaw and teeth and I’ve not had to have steroid injections in over 2 years! YIPEE, those were MISERABLE
Again, I can only assume, based on what has happened to me, what caused my illness but I do know what has made me heal and that is the ultimate goal.
Well, that and getting folks to realize we are killing our children with new houses offgassing and the fiberglass floating around, getting stepped on and crushed and then floating a bit more. With OSB being 50% glue (fermaldahyde), fiberglass insulation, tyvec and vinyl siding, the offgassing has only one place to go, indoors. I’m not sure what the effects of fermaldahyde on skin is but I’d bet it is part of all the problems I’ve had. I wonder what a survey of ailments in folks living in these new houses might show? I’m glad to say, my home has a minimum of OSB, although the plywood has some glue too, and no tyvec or vinyl so the offgassing took a little less time. We also built our home to ‘breath’ as my husband has been involved in a ‘sick building’ before.
Man, a person can go on and on once you’ve found someone to actually listen! It has all just been so logical.
Back to the original question, in all my x-rays and the mri, ‘shadows’ the doctors did not have any explanation for, showed up. I wonder if those shadows would be gone now?

Systemic says:

Proof enough for me.

http://www.scoop.co.nz/stories/SC0605/S00022.htm
http://www.scoop.co.nz/stories/SC0605/S00022.htm
http://www.scoop.co.nz/stories/SC0605/S00022.htm
http://www.scoop.co.nz/stories/SC0605/S00022.htm

tallcotton says:

Thanks, Michael, for shedding some light on this.

Michael says:

SarachConnor, you can discuss whatever you like. But really your dermatologist is best qualified to recommend what you put on your skin. If you want to ask someone for a second opinion, you should ask another doctor. Nobody here has any real idea as to what is going on with your skin.

How confident do you feel about your dermatologist? Are they prone to recommending controversial remedies, like homeopathics?

SarachConnor (abac68) says:

How confident do I feel about Dermatologists? After that citech roll thing test patch on my left cheek – NO THANK YOU!!!!!!!!!!!!!!!!

Oh get this for a bit a dirt – After that procedure I became very much sicker. I forgot to pay his bill. I then had to pay the bill through a solicitor. My dad had to take over for me in the end, because they were just making me feel worse – stressing me out. The solicitor was useless, I think her name was Mrs curry or something a long indian name. Sounded like she worked out of her shed!!

SarachConnor (abac68) says:

Michael – Ding Dong!! I had a LOOK at that document – I only got as far as the first paragraph.

My doc WOULD NOT let me have the flu shot – he said that in his experience of treating chronic rickettsiosis the flu shot has been found to make people much much worse for months afterwards.

I have had the flu shot before – but because I was so brain dead last year I couldn’t say whether it was the flu shot, the illness or just everyone pissing in my pocket.

Funny though – my grans doc gave her the flu shot and the pneumonia shot, that same doc actually turned down taking on treating me. The Psych Hospital I was in phoned him and asked, since he used to treat our family occasionally years ago when our doc was on holidays or anything like that. He said my case was to complicated.

Michael says:

Systemic, diseases and medical conditions can arise for all kinds of reasons. If your accusations about the chemical industry and the bio-engineering industries are entirely true, then it makes the world a less healthy place, with greater potential for illness.

However, what does this have to do with demonstrating that Morgellons is a distinct disease that produces fibers, itching and lesions? All you are doing is making some claims, that, if true, make it more likely for people to be sick.

What does this have to do with Morgellons?

Michael says:

IF ((The environment is messed up) AND (GMOs are on the loose)) THEN (Morgellons is real)

Computers generally deal in predicate logic, binary possibilities. It’s a mistake to take a multivariate, underspecified, fuzzy problem, and try to apply boolean logic to it.

Michael says:

South,

Your specks are moving because of surface tension. If you scraped it from your skin or under your fingernails, it probably had a tiny speck of soap mixed in on one side. The uneven disruption of the surface tension of the water causes it to move like that.

Here’s an explanation, with video:

http://www.cmste.uregina.ca/Quickstarts/soappoweredboat.html

And lots of other examples:

http://images.google.com/images?q=soap%20powered%20boat

southcity says:

not the case at all. often when a sudden itch happens, once you scratch your nails will have become blackened by whatever this stuff is. surface tension-jeez you guys are too much

Michael says:

So, you use soap to clean your nails, but you can’t accept that when your nails are dirty, they might still have a speck of soap under them?

When you bath, you use soap, some of it invariably remain on your skin, when you scratch, the collected dermal debris will include some soap.

texastar says:

just wrote an example sub routine. was not going to write the whole program….notice it began on 101. Butt, you get the message. If the field of view is too narrow you miss what is on the fringe. Speaking of which, do you have your hotel reservations for the Morg Jam infestival, or do you have reservations?

tallcotton says:

OMG!! Wake up Occam. Get him out here.

Michael says:

Systemic, you are looking for the cause of something before you have determined if it exists. What evidence do you have that lots of people are suffering from the same disease, one that creates fibers, itching and lesions?

It’s quite possible that aliens are re-wiring our DNA via mediated emergent protein folding combinatorics, with side effects of extruded fibers which are the sloughed prion skeletal assembly frameworks. All things are possible, but you’ve got to give us some evidence that Morgellons IS real, not evidence that it’s possible.

Systemic says:

You are right.
My Doc says that due to Hurricane Katrina and the Stress that this event has caused; has placed me in a vulnerable, delusional state.
Please forgive me all for my posts as I am now recieving proper medical care.

SarachConnor (abac68) says:

I am glad someone is receiving proper care because I haven’t.

I am so angry that my doctor believed Mary. No one can blame me, don’t shot the messenger.

I am a Victim remember that pleaase.

He said he believes there is an infectious agent involved in what I have, so I do not know what to make of that statement.

Why the hell should I continue to give him information about my illness, he has not taken notice of my real pain and suffering, if he had I would have had more tests.

Maybe if he had done a physical examination on my first appointment with him July 2005 he may have a better idea. If he had of believed me on my first visit that I look nothing like I should, maybe I would not feel like I am dying.

Then you get idiots involved in this that say “Morgellons Disease mimics everything” well yes is does in a sense, controlling etc they did that to me. But how can a persons mind tell them something. I can not figure this out. I felt this way back in Jan 2005 like I was dying, then that thought went, I found my current doctor, had the IV infusions and the feeling and thoughts of dying came again during my last IV’s.

I told my doctor if you are trying to get an idea of the herx reactin taking me close to death, well you have managed that. I don’t want to ever feel like this again. The most horrible experience I have had and still is.

Do you really think this is fair on me? I have never known such cruelity in my entire life. I just exist at the moment. Nothing is making my suffering go away. I was hoping my blogging on here would help someone listen to me. I hope they are and I hope they will move in this like their arse is on fire.

SarachConnor (abac68) says:

I am fucked I think – I phoned the CDC – told them my health department won’t help me. I tried to get into a doctor today the one my pharmacist put me onto. He has closed the surgery – wholistic medicine. The surgery will reopen after Sept 7 and only selling wholistic medicine. I need a hospital, or a doctor and I am too scared to know what to do.

SarachConnor (abac68) says:

I am not with the NMO either, I want too get well – not play with the media.

Smileykins says:

Sarach, of course, this is hard to do all these continents apart, and especially, not even knowing the details.
On my gut feeling, if I were there with you, I would go to an emergency room, tell them you have rickettsiosis from the RMSF group, and request a spinal tap. Can you do that?

Smileykins says:

Texastar, I previously posted this about Cliff:

# Smileykins Says:
August 1st, 2006 at 12:16 pm

Long ago, when I partcipated in lymebuster’s message board and first saw the guy’s name and tried to dissuade morgie people from visiting the link he’d provided, I’d concluded some things about him. Apparently, I may have been wrong, and he is the-way-he-is due to another factor I’d been unaware of, at the time, until recently.

http://www.rense.com/general72/crug.htm

Based on that link, with his claimimg that some morgie people have to use stimulants to obtain energy to fight “morgellons disease”, but that the drawback is, that it makes the “morgellons disease” get worse, says it ALL, for him. Poor man.

Smileykins says:

Please refer to my comment, #205, yesterday, and note some of the content from one of Jace’s, in comment #54.

jace Says:
August 23rd, 2006 at 7:16 am

Hi Smiley- Please don’t think I’m ignorant, but I have no idea what you’re asking me. Does it matter whether it’s industrial, organic or environmental? My point is that all of these common sources of “fibers” would be in the FBI database, because all the ones you (and I) have named are common and would show up as such. As for the patient’s skin- it was completely unbroken in that area, the physician had to scrape the epidermis away to grab the fibers. I was the one holding the dermatoscope which magnifies the area and you could see that there was no disturbance of the skin anywhere around the fiber.

Naturally, I know that Jace is innocent of her involvement in this. I didn’t even ask for this comment though, and I don’t think it was necessary to say it, in reference to my commnent #137.

#167 jace Says:
August 25th, 2006 at 5:35 am

Hi again Smiley-

I believe that is the exact reason that Dr Wymore has taken on this “cause”. He saw that there were people (all the above named, plus the multiple snake oil sellers) that were taking advantage of suffering people.

My comment being referenced, had been:

#88Smileykins Says:
August 23rd, 2006 at 2:24 pm

Let’s talk some about credibility and credentials. Those are two GIGANTIC issues that morgies bring up a lot. Some food for thought, just for starters, morgie people…

Mary Leitao
Ginger Savely
Dr, Schwartz
Dr. Wymore

Well, Jace, feeling the need to comment that “you believe the exact reason” for Dr. Wymore’s “having taken on this ’cause’, was because, “he saw that there were people (all the above named, plus the multiple snake oil sellers) that were taking advantage of suffering people.”, just does not compute. Why would he have joined up with MRF, if he thought Mary Leitao and Ginger Savely were doing that? (Think. No, nevermind.)

Later, I’d commented:

#170 Smileykins Says:
August 25th, 2006 at 9:43 am

Thank you, Jace. I didn’t expect you to know Dr. Wymore’s private thoughts and motivations, so my questions persist for obvious reasons. In the meantime, Jace…

Do you have any idea what the picture in this link is, with the caption, “Microscopic view of a dry, membranous-like material formed over an open skin lesion of the type associated with what a small group of people call Morgellons disease.”?

http://www.post-gazette.com/pg/06204/707970-85.stm

Do you know what this same thing is, that’s pictured and described at other developmental stages of interference?

http://www.rense.com/general72/callus.htm

I’d like to request that nobody else answer, please. I’d still like to hear your reply, Jace. I know you aren’t “the enemy” like you mentioned the other day, and I don’t see you in that light at all!!!

Smileykins says:

Idahocreek Says:
August 29th, 2006 at 9:43 am
I believe after nearly 3 yrs of exfoliation, emu oil and lots of hot baths/showers and my hot tub twice a day, I am nearly well. The problem now is staying well. Since the ‘fibers’ are everywhere it’s hard to know what to do.

BRAVO!!! Regular, gentle exfoliation is madatary for people who have various causes for slow skin cell turnover rate. I never have been able to get a morgie to want to understand that, but you have the key to the whole “morgellons disease” fiber mystery too. YAY!!!

jace says:

Smiley- I’m going to have to stop posting on this blog due to “conflict of interest” I wish only the best for everyone here.

SarachConnor (abac68) says:

Well folks I am not going to post on this blog anymore either. This journey has been way too painful for me and I can not go on anymore. I have to do what is right for me. I know I am very sick anyway and just want it to end, and I will end it for me the way I see fit. I wish everyone well, love you to all and take care. Maybe see you some other day in nicer places.

Burn, PhD says:

Are these fibers really just filarial (or other parasitic) worms? Have I missed this discussion? (Just see http://www.dpd.cdc.gov/dpdx/HTML/Dracunculiasis.htm to get grossed out as to how bad it ‘could be’ if one got the wrong parasite). I’m a 3rd generation victim, yet the hairs have been so minor aa part that they have been ignored *(yet under the right conditions they ‘bite’).* Also, don’t whipworms, thread(strongy)worms, etc. exit the skin in hyperinfections? (they certainly enter to cause an infection…

Methyl salicylate (Oil of wintergreen) TOPICAL-DROPWISE-DAILY- I have found to generally heal skin lesions.
***DANGER TOXIC in mL quantity-READ MSDS***

http://physchem.ox.ac.uk/MSDS/ME/methyl_salicylate.html OR http://www.cumberlandswan.com/wgoil.pdf#search=%22Methyl%20salicylate%20(Oil%20of%20wintergreen)%20%20msds%22

Michael says:

Well, that nicely illustrate the dangers of home remedies and self-diagnosis. Perhaps you should ask a doctor what would be best for your lesions.

Here’s a better MSDS link for Methyl Salicylate:

http://www.sciencestuff.com/msds/C2129.html

May be fatal if inhaled, swallowed or absorbed thru the skin Avoid all contact. Use with adequate ventilation. Wash thoroughly after use. Keep container closed.
VAPORS ARE HAZARDOUS!! Eyes/skin:wash affected area for at least 15 min with large amounts of water. Inhal: remove person to fresh air give cpr/oxygen if needed.ingest: wash out mouth with large amounts of water providing person is conscious. In all cases seek medical attention. Conditions aggravated/target organs.persons with pre-existing eye.skin or respiratory conditions may be more susceptible.

Of course, that’s for the strong stuff. But PhD did not specify. You’d probably want to use 2%

Ask your doctor if salicylic acid is right for you.

Smileykins says:

I don’t mean to sound insensitive. It isn’t easy to accept that people are in such situations as they are, and it’s very difficult to try understanding the thought processing involved. The suspicion, that some people have, for instance, that a government conspiracy is to blame for what is wrong with them, is particularly troubling. Given that fact, how is it that such people can simultaneously be looking to their government for help over it? All the complaining that somebody had better come forth and admit what they’ve done and take care of everyone, makes one realize just how bad it is for some people. They desperately need help, and, yet, it’s help that they’re unable to realize for themselves.

unomi says:

It seems that the basic principle of the original beam was to send out the right frequencies to render certain cells useless.
You know how a microwave works?
in laymans terms frequencies make the water (and others but less so)molecules vibrate and generate heat.

Also think of the singer hitting the resonance frequency for, and shattering, crystal.

The new thing thats come out of russia purports to build on that, but the only thing i could find on it was on rense.com so.. google his name and you will find it there.

The thing is ofcourse that to find the destructive resonance frequency and energy you need to know what you are targetting, and it needs to not share its resonance freq with other desirable cells. according to rense its undergoing trials in georgia for treating hep-c

unomi

unomi says:

There is only one article i could find on the latest round of rife tech. its the same one reproduced on rense credited to
Ken Welch
ken_welch@bigfoot.com
8-31-99

so 7 years old and hep-c is still among us, so either its a hoax or impractical or a coverup =)
should you find out more please let me know

unomi says:

eureka, those videos are not made to prove anything, they are gimmicky and seem to be running some kind of hypnosis track, whats the point of all those noises? sounds disturbingly like Hypno-Peripheral Processing and/or Hemi-sync.
I would think there would be better ways of disseminating information than passing on overproduced and undersourced vids.?
unomi

TheDebunke2 says:

There is a serious underlying reason behind this site. Check your pc. They decided to change their screen names for a reason.

Eureka says:

and a little 7 year mental patient will reply with ???

Eureka says:

Ha-

Look at all the Universities visiting silent superbug. com. It is scary.

Eureka says:

A need to speak against Morgellons shows a prejudice against the fact. Wonder what your motivation is.

Eureka says:

“A quote within the above mentioned Extraordinary Popular delusions and the Madness of Crowds is of twisted”

Does this make sense to anyone?

Got to get a smiley out of that reasoning.

SarachConnor (abac68) says:

My personal opinion is that Michael, Tallcotton and Smilyekins are individual people.

My opinion on the purpose of this website – Dan Rutz was quoted to say the word “debunk” and “Morgellons Disease” in a newspaper article. I believe Michael is a retired computer programmer (wearing a cap with “CIA” printed on it!!!joke) hired by the Government. This way the public are once again doing the work for the Government.

It is nothing new that society is “used” by the Government, it has been happening for centuries. The difference with Morgellons is that this group of people are severely ill and dying. If the CDC keep the public waiting any longer I would hate to imagine what some desperate people might do.

After the lies and cover up over the death of JFK no wonder guns are still legal in the USA. In my research of Morgellons I have heard the word ‘gun’, ‘shoot’, government and morgellons all in the one paragraph. People are anger, very very angry and rightly so.

SarachConnor (abac68) says:

Eureka Says:
September 20th, 2006 at 11:10 pm
Sorry Boy-

there is a new website in town and it makes this irrevlant.

Which website would that be?

I do hope you are not referring to the “Morgellons Group” website by Cliff Mickelson.

This man could not possibly be suffering from this disease. How do I know this? Because I have this disease. If he actually has this he has the very early stages.

Cliff is fixated on the nematode and the cotton. I am not discrediting his theories or research in anyway, I believe he speaks a lot of truth with regards to the cotton. I just don’t think he really cuts it in the area of support, my opinion here. Nice guy to talk to, spoke to him once on the phone. I just don’t think his website is for Morgellons sufferers support in anyway, I feel it is merely to polish his ego, and very sick people like me get caught in the cross fire of website ‘mind games’.

al says:

thanks for ur honest account
try a bath with lots of epsom salts
get some silver spoons, whatever
boil them in milk and honey
from cold
add oregano oil, leaves to milk
tea tree oil in bath
garlic ingested, also in bath
add boiled milk and honey AND silver to bath, make it as hot as u can stand, as deep to cover u
immerse yourself
this is an effective way of shifting the fibres; remember they transmit electrons
watch as the fuzz balls materialize in the water
its a very effective non aggressive treatment; if you are in pain like me u will soon appreciate the benefits

silver is a transmutative element, it imparts energy
silver is also a holy metal; remmber “all that glitters is not gold”
boiling silver in water, or milk, imparts some charged electrons from the silver
this cure is based on the best remedial agents against evil
remember we are dealing with a quorum sensing electron capacitive biologically active fibre= evil
i call it 21st century vampirism
try the bath sarah

Michael says:

Al, I rather fear you are serious with your silver spoon solution.

But it’s pseudo-scientific nonsense. A “quorum sensing electron capacitive biologically active fibre” is just a bundle of words, signifying nothing.

al says:

OK GUYS TO THE NEXT LEVEL
ill just start throwing biblical texts at yas
lets call in the HEAVY HORSES
the long bows have all been drawn
in the name of the father the son and the holy ghost and st peter whoo slew simon magi, i call on alll the saints, i call on all redeemed souls to cry to the lord as one in mute resolute conviction
to bring to light the evil works of man
amen
now guys
lets see ur ivory towers crumble
i adjure the, old serpent of the deep, begone , u have been exposed as a cheat and a liar from old
salve me Redemptor Mundi

al says:

im in tassie
sarah that above is an excorsism rite…
to wake these fucktards up… to make them aware the game is up…
how do u think u got this shit?

SarachConnor (abac68) says:

Al – I have no idea how I got this shit. Did you write to Mary Leitao, I think I got your registration – do you call yourself Laurnie Guy also?

I am very wary these days of certain “people” who hide behind the “God” smoke screen and “Bible Bashing”. This is not about you Al. My doc was a perfect example of this. After one consulation with him and me tellling him of my terrible pain, and numbness through my body, handing him papers and research I had done on Lyme etc etc etc. I had waited to see him for over an hour as usual. And the consultation ended with him saying “We need to Pray”!!! And I paid him for that shit.

I am standing firm, I do not have children, but I have two young nephews, I want them to both have a successful and happy life. I will do whatever I can to protect them.

SarachConnor (abac68) says:

No you haven’t scared me Al, it’s ok. I kinda see where you are coming from.

tallcotton says:

Al, you’re a fruitcake!!

Brian says:

Have any of you ever considered that this illness is due to the oil well fires from Iraq? It was reported that the Iraqi army was dumping, or rather (pumping) chemicals into the wells before torching them. The heat from the fires could have carried the residue high into the atmosphere. But (Gulf War Syndrome) isn’t a real condition either—is it?

Michael says:

Why would oil well fires in Iraq cause middle aged women in Texas to start extruding fibers? And why is this somehow a more likely cause than, say, The Three Gorges Dam, or any other random environmental event.

Sarah Bione-Dunn says:

The supersilentbug video is one of the singularly most nonsensical things I have ever witnessed. I wrote them repeatedly asking for a transcript, or some sort of explanation, and they wrote back saying “Sure you’ll send you a transcript.”

That was six months ago…. and I have nothing. Is there a language barrier there?

smileykins says:

His words read like one, way before the film release, but many morgie people can’t see it, and claim to have actually sent that video to the CDC and health care providers.

ann smith says:

forgot to say peroxide salt mixture if to be put in full bathtub to just below drain valve below faucet lotsa water. and for joint pain ibuprofin is good but make sure eat something before taking even have prescription strengh. make sure you guys that dont feel good make yourself EAT something do not starve very bad try to nibble one something at least a few times a day. if tummy upset peppermint tea nice and calming. thanks, and been very interesting to read all posts and opinions on this forum. hagd

smileykins says:

What would, or could, be “used against” anybody, Norman? Do you mean as in “reporting” something to someone, somewhere, later? That is utter nonsense! Morgie people don’t know a feiend from a foe. The thinking all backwards. If Al were more forthcoming, although no morgie ever is, I could pinpoint his situation, and tell him exactly what he needs to do for his health. All I have had to go on, is what tiny amount of information he has shared. Do you even have any idea what you think, Norman, and why you think it?

Not one single person has the same thing the matter with them. To put it gently, everyone is confused. Therefore, it is not even an issue to anyone who thinks they have “morgellons disease” to ask qustions of others who think that they have it. People swap ridiculously stupid home remedies back and forth. There is a complete disregard for taking anything into consideration, due to the “confused state” people are in.

With all due respect, peroxide is fine for initial wound cleansing, but it kills white blood cells. We need white blood cells to fight infection. As long as people keep on killing them off, their immune cells can’t destroy the infection. Salt would tend to toughen up a person’s hide, after a while. See a doctor, and see a counselor is excellent advice for anyone that is overly involved with hygenic measures, and take a level-headed person along to help communicate things.

ann smith says:

i wasnt talking about drinking the peroxide in contast to the dilution of bath water its not that strong just bubbles a little and if folks are concerned about this they can put less inn but i really dont believe that gargling with half water half peroxide is not harmful or they would not recommend that particular use on the bottle and sell it to the public. just dont swallow like you would do with toothpaste, common sense. most of the things i mentioned are actually gentle. over time one can do this maybye oce a week or not at all. furthermore i respect your opinion as mine should be also. we can agree to disagree. i was also talking to folks with other skin condtions like the fiberglass and such. i just dont have a hard line like you do , i have found physicians quit helpful. my father is a pshychitric rn and has no problem with the idea of things my mother also was a nurse. my grandfather was a pharmasist and had his own drugstore. fortunately not all psyicians hold the view that this site does……..hmm take a bath or go on medicines i dont need . hmm..pretty easy answer. remember from history that spyphillus was considered to be purely phycological also they would let you have your sanity melt away when all it needed was a shot of penicillian. science changes on a daily basis remember that just because something is hard to classify does not mean it cant be. the fibers if one has them i consider to be more of an irritant could be enviromental, like thorns on a catus or thistle may be. or fiberglass for that matter. i do not advise people to not go to a doctor just find a good one. if you feel depressed get counselling and meds. i feel pretty good at the moment . having relief is what matters to me and others. in some cases can be apppropriate for medication. some folks can also have allergies. having compassion for people should be priority number one . what harm is there in taking a bath i feel that is quite normal. i like to be clean but i do not dig myself or scratch or scrub myself to death i just do what feels nice. and that is all that matters. i respect your opinion but feel like things such as this should be reviewed on a case by case basis. as you said the symptoms vary and that should be taken into consideration with any patient. i am just one of those people that goes to a doctor for checkups and when i need to. when taking antibiotics i only do so when very sick and doctor tells me to. and i take them all. its not so much as black and white but is more a matter of striking a balance. 🙂

ann smith says:

one further note peroxide can dry skin why i recommended washing off with selsum blue. selsum blue is good for sebhorrea of the scalp and dandruff and is soothing. why it has been around for so long.

tallcotton says:

Morgies demand sympathy. That isn’t healthy. They would probably get more sympathy if they would try to get well. That effort should begin with them facing reality and quit harming others by spreading the Morgellons hysteria. There is no such thing as Morgellons, other than DOP. It is synonymous with DOP. EVERY Morgie I’ve ever encountered is delusional. Some are no longer delusional, but they are no longer Morgies either.

TC

smileykins says:

Ann Smith,

I think there has been some confusion. This is a debunking “morgellons disease” blog, not an advice on treatment, for people who think they have it, blog. It’s apparent that adding peroxide to bath water, not peroxide ingestion, was what I’d addressed, and, I’m sorry, because I didn’t intend to elicit ill feelings when I did so. It is a fact that hydrogen peroxide, as well as any disinfecting agent, for that matter, destroys immune cells. They really are necessary to fight infections.

Many morgie people, if not all, exacerbate, and perpetuate, their skin problems solely because of their obsessions, and through generally not being too wise, in general, about what they’re doing to themselves. People who think they have “morgellons disease” should not over-cleanse their skin, and destroy its innate immune properties. That’s a fact, and I know of many ways they do it.

If you’re content, and comfortable, with the habits you employ, then you have no problem. People are individuals, though, with their own unique body chemistries, their own unique problems, and, for the most part, many morgie people don’t seem to have the capacity to take that into consideration, anymore than they’re able to reason anything out. I’m sure that is not the case with you, but it is with many people.

furthermore i respect your opinion as mine should be also. we can agree to disagree. i was also talking to folks with other skin condtions like the fiberglass and such. i just dont have a hard line like you do

Excuse me, it wasn’t clear who you had been addressing, and I had begun my statement, up above, “with all due respect”, and I didn’t actually go into anything else.

If you wish to learn more about what “morgellons disease” is, please read the topics’ content at the top of each page, beginning with the April archives, through to the present. The comments’ sections get pretty ridiculous, at times, but read & learn from the topic content, and click onto the hi-lighted links contained therein.

smileykins says:

Ann Smith, you’re not Norman’s mom, are you???

HAHAHAHA!!!

tallcotton says:

Oops, I missed this part.

Ann Smith said…

all humans derseverve compassion not labels. morgs morgies well . thats all fine and good but how can i even be delusional when i speak not of paracites but an irritant there is a difference. like the lady with the fiberglass allergy. like how hitler put a six pointed star on jews lableing in lump group as morgs.

Morgies are living in denial of their mental problems. I doubt that hearing the truth will help any of them, but maybe some would be newby will be able to see what he or she is about to get into if we don’t call a spade a spade.

If you think your skin problems are because of “Morgellons Disease”, despite the fact that there is no such thing, and you refuse to listen to reason, you’re delusional. Maybe you aren’t a true Morgie. Did you ever think of that?

I know some things about Morgies. There’s a little bit of variation, but they’re extremely predictable. I don’t approve of Hitler. It’s pretty stupid to compare me to hitler. Think about it.

TC

ann smith says:

i just wanted the counter the claim of taking abath in peroxide and much water and epsom salts as much as it is diluted it does not lower white bloodcell count just covering the epidermis. to adress the person who said that this is a site that ddebunks morgellons disease well………if this forum is closed to other opinions then how will you learn as fart as debinking i think your site is what needs to be debunked. as professional and courteous as i have tried to be your constuents have been in four categories #1 negative spiteful closedminded people who only care for their own opinion and have no desire to learn more and twist fact to their own use, as you say#4 “suffers who except in a few isolated cases suffer just the same even on drugs, people dissolusined because they have sought incorrect avenues to find help.#nd people w ho have their own private agendas because of personal experience or what not. although your site does claim that some people could possibly have physical problems resulting in ther complaints mosty say ALL are delusinal on this forum . shame on you i pray you are proven wrong and that you all eat crow. if not tthere could be more cases and more frustrated people that turn the medical profession on its side over time.you remind me of those who said that syphillus was merely a mental condition and now we know different. scientic minds that are closed to new possibilities and variables eventually fail. i have just as much a rifght to post as everyone else and respect we disagree. this is a forum for “debunking morgellons saying it is mass dillusion but WHAT if you are WRONG what will happen to this precious site? what i know about the treatment plan i posted is that it truly does help. when posting intelligent rhetoric i have mostly come oupon hostility and insult and labels. I am not depressed but trying to recover and very sane ty. but my question is what if at some pont in history will happen if you are proven wrong? what then? still insist the world is flat? your forum may focus on one tired topic but if not receptive to other opinions then is truly stagnant like diseased water.

smileykins says:

I don’t know where it has ever been said that anyone isn’t welcome here. Many morgie people just haven’t grasped the concept of this blog, and I regularly advise that if viewing here upsets them, that it isn’t good for them to look at anything here and they would feel more comfortable in “morgellons disease” forums.. If they could read here, and learn to apply reason to their situation, it would be grand, but too many people can’t. So, it is typical for some of those people to come here with personal attacks, after reading generalizations that have been made about this group of people who have fallen prey to this belief, and to lash out at certain individuals in as many varied ways as they can. Otherwise, things would be peaceful here.

Many morgie people like to think (incuding Wacky Wymore, and all the other players, who should know better) , that unless you believe in “morgellons disease” people are close-minded. No, wise people look at all possibilities, and search for the answers to resolve problems. Un-wise people are lost, without a clue, and looking anywhere, and everywhere, for answers that will never be found. Clueless searching that leads absolutely nowhere, but into a darker hole of oblivion, is not akin to outside-of-the-box-thinking, that problem solvers do, at all. However, that is guaranteed to keep the myth in perpetual motion for the ones who stand to gain from it.

ann smith says:

snmileykins You need to be debunked otherwise peroxide woulnd not be recommended to putm on wounds unless too deep my sores have shrunk to half their size with no itching. the bath i recommended is so dilutd what you say is pure bunk. as long as not overused. and remembber syphillus was thought of the same way. i am not thinking as negative like the constituents thinking all need depression meds. i dont pick at sores just make sure they are cleaning. i hope cdc proves you wrong and even 9if it doesnt because of pharmacutical kickbacks thyen thaere will be many agry people debunking you myth. the mtyh of a closed mind. i measn if your site gives step by step directions on hoew to at first seem sympathetic towards victims and then take your view than i take it you are just as bad as the communist machine but geared to turning awy patients or giving drugs like a band aid. the goaql is trying to find a cure for the many but not the few. you may remain sceptical but continue to think the world is falt and that shphillus is purely psycological too peroxide does heal wounds and even with my compromised immune system does help hel me and many others. your retoric is the echo of partanoia.

smileykins says:

You said, it Weezie. Whoa.

Starlink says:

Tall-

You are wrong. Karma is coming.

smileykins says:

How’s this?

Karma is NOW

tallcotton says:

Norman,

If you think I’m wrong, try to prove me wrong.

TC

Starlink says:

You are wrong. You will see in time.

tallcotton says:

Bssst! Time’s up!! NORMAN!

Starlink says:

Ok.

tallcotton says:

Starlink,

If anyone was ever right or ever wrong, you’d be the last to realize it.

TC

al says:

🙂

ann smith says:

psychiatric tech

Joe Concerned says:

There are many different views on what is, and isn’t a disease; and what is real or imagined.

Sometimes years or decades will pass before an adequate acceptance due to an over preponderance of evidence surfaces that does reveal the truth, and a better series of treatment protocols are created, developed, and placed into use.

There was a time in our history that anyone with epilepsy, was simply locked away in a mental institution because they were thought to be possessed.

It turns out damage or alterations to the hippocampus can cause cognitive disorders, epilepsy, and mental illness.

Discovery of Novel Nerve Cell Modulator Offers Potential for Mood Disorders, Epilepsy Treatments:

http://www.sciencedaily.com/releases/2007/08/070805161035.htm

What about what actually causes of peptic ulcers?

http://en.wikipedia.org/wiki/Peptic_ulcer

For many years, excess acid was believed to be the major cause of ulcer disease. Accordingly, treatment emphasis was on neutralizing and inhibiting the secretion of stomach acid.

While acid is still considered significant in ulcer formation, the leading cause of ulcer disease is currently believed to be infection of the stomach by a bacteria called “Helicobacter pyloridus” (H. pylori).

Ironically, when the H. pylori bacteria was first suggested as the culprit by respected professionals in medicine, did these early explorers attempting to qualify and isolate this condition receive an extreme amount of unjust, and unfair negative treatment at the hands of those in multiple areas of academia and medicine.

Another major cause of ulcers is the chronic use of anti-inflammatory medications, commonly referred to as NSAIDs (nonsteroidal anti-inflammatory drugs), including aspirin. Cigarette smoking is also an important cause of ulcer formation and ulcer treatment failure.

H. pylori bacteria is very common, infecting more than a billion people worldwide. It is estimated that half of the United States population older than age 60 has been infected with H. pylori.

Infection usually persists for many years, leading to ulcer disease in 10 % to 15% of those infected. H. pylori is found in more than 80% of patients with gastric and duodenal ulcers.

While the mechanism of how H. pylori causes ulcers is not well understood, elimination of this bacteria by antibiotics has clearly been shown to heal ulcers and prevent ulcer recurrence.

So too is the mechanism of how morgellens inhabits and affects the human body with a range of conditions and symptoms is being treated by mainstream medicine.

It’s not well understood, but with any condition affecting us in a negative way, what becomes important is identifying the full range of trigger mechanisms which exist to create this condition.

Then will a series of adequate treatment protocols be developed that are able to successfully reduce and eliminate this condition .

While arguments will continue if this condition is mental or physical in nature, what is important to realize is that treatment protocols do exist now with some having better results than others.

As with anything that affects us, there will be one or more trigger mechanism patterns at work. Being able to reveal what they are will be best in addressing the condition.

For myself, I’m fascinated with the human body and how resilient and amazing it truly is.

Real or imagined; I’ll remain open minded to the fact that there are a growing number of individuals out there who suffer at different levels.

Accepting that a small segment of the general population goes through a horrible ordeal that most of us don’t, is a start in the right direction.

Identifying and isolating trigger mechanisms appear to be a positive direction to go in to ultimately addressing this area for those affected.

Smileykins says:

Hi, Nancy

What did you have done at that posh salon on that particular day? Did many of their other clients get heavily infested with parasites, like you? Do you have a primary care physician? How are you treating this prolonged condition? Is the salon still in operation?

Thank you, Smileykins

joe says:

Morgellons is real. I have it. It is tricky. It is initially caused by some mite probably a scabielike entity which gets onto a person from another. This mite envelops the person. The mite can be killed off by the usual mite killers. What happens next is the kicker. The person while rid of the mite continues to suffer from stinging and itching. This current set of symptoms are caused by exposure to other sufferers or their own residual droppings or their clothing and cloth type materials which have captured these droppings; computer generated entities which are emitted by the computer and either activate already existing droppings or actually generate droppings. The uninitiated sufferer believes he/she has an illness that causes the symptoms. It is not an illness but now it has become a totally external attack. The sufferer’s environment has enough residual stinging entities to cause the sufferer to believe it is an internal ailment. This of course can rob the mind of sanity and hope. The morgellons foundation and other organizations are attempting to eliminate it as a disease but there is no visible disease only residual entities in their environment. The computer plays an enormous role in this scenario as does clothing, cloth rugs and furniture and any other weaved object which can hold the droppings. All this discussion is great because it is through it all and reading much on the subject that I have removed all but newly introduced specimens from my personal environment. I have also found a cleansing agent which does the same from the cloth mentioned above. Most importantly, my believe in Jesus Christ sustained my sanity throughout the entire ordeal (3 years). Knowing that He loved me and all mankind gave me strength to beat back this grueling life sapping ordeal. When you are ready for answers let me know.

Niecy says:

Jo, I am new here, and this site doesn’t seem to be all that active. I hope there is someone who read your post that will, as you say, get their hands dirty. I only wish I had the education and means to do so. I seriously doubt that there are very many “professional” skeptics on this blog though. I truly wonder where one would go to get the education needed to be a professional skeptic? There are only opinionated people on this, and most other blogs, that are skeptical. I have wondered where a couple of people who call everyone on here crazy got their degree also, although I have my suspicions. Let me say, to anyone reading, I am not a professional anything, except mother and grandmother. I am on the other hand not an idiot. I see alot of things being posted that if I had the time, or the desire to, I would be able to blow out of the water. I suffer, and have for going on three years now, from many terrible symptoms as many others who post here and on other blogs do. There is no need in going into all the specifics, we all know what they are. There are many of us that also know what they are not. I try to find as much info as I can about the SYMPTOMS that we are suffering, not morgellons. That is not to say that I don’t read up on morgellons also. But I find something new everyday that is just too coincidental to be delusional. I again won’t go into any of that, except to say if you have any positive information, not theories, about this, I would like to contact you. I went to the site you posted above and found some very interesting FACTS associated with whatever this is. I have actually tested POSITIVE for one virus, and know I would for another. The lady who started this blog is a science skeptic, not a professional skeptic. She said to me that she got interested in the debate and it became a hobby for her. I agree with some of the things she says, and I disagree with others. I do feel like she tries to be as fair as possible with her judgements. I also know that she might feel alot differently if she had this, delusional or not. I challenge the skeptics on this blog to prove that EVERYONE who posts here is delusional. Boy that would cost a ton of money, don’t you think? When someone calls someone else crazy or delusional without scientific evidence, they are speaking their opinion, not a fact. I wonder if people are angry because what they had was delusional and not physical, and that is why they attack others. I have been treated for DOP for quite some time, I wonder why their treatment cured them, and the same darn treatment won’t cure me? I have not on the other hand even been evaluated by an infectious disease doctor to see if what is wrong with me is in fact physical. I’m sorry guys, I have been paying attention, and taking notes for quite some time, and I am VERY positive that in my circle of professionals, there is alot of covering someone elses – – – going on. I don’t know about the states everyone else lives in, but mine has the largest percentile of malpractice in the country, which makes their liability insurance do what???? That is what is happening with me, that and my private insurance doesn’t want to pay for anymore tests. There has only been one doc to diagnose DOP, and he proudly informed my husband and I that lovely afternoon, that HE DIAGNOSES 40 to45 CASES A YEAR!!!!!!! I might add that this is a small town. I know he had no business diagnosing me with it, I just wonder how many patients of his had any kind of procedure at all done before being diagnosed themselves???? I would bet large amounts of gold that if I asked him he would tell me to speak to his lawyer!!!! I am having serious vision problems, I have stated on other posts, that I am already blind from a childhood accident. I am not looking for unprofessional help, or advice, but I pray that God sends me some help and I don’t go BLIND!!!! They don’t have a clue what they are talking about. If the CDC or NIH had produced any COLD HARD evidence that everyone that is suffering these horrible symptoms was delusional, I’d find me a large bottle of tranquelizers and just go my tail to bed. But the FACTS are that NO ONE has produced any facts yet. If there is anyway that I can help the research that you are doing Jo, please let me know!!! My email is v.mattie2@gmail.com, or deniece@teltech.ws. Just so all of you skeptics know, just because someone acts like an authority on something doesn’t make them be. No one has proven anything publicly yet, have they?? If you think that everyone is so darn crazy, you should be contacting some government agency and telling them to get around 100,000 new rooms ready somewhere, cause if your theory is correct, then that’s where we will all need to go, cause you will never, ever, convince the ones who are not delusional that they are. Your argument is that delusional people can’t accept it. My question to you is this, if you were diagnosed with DOP without some test of some sort to rule out physical illness, would you believe it?? And should I say that you are, with that being about the strongest evidence that I have to prove it??? Unless, of course, you were on meth or some other delusional drug when you were having your delusions, and when you got off of the drug and cleaned your system out your delusions vanished. Would that make me an authority on anything? Or would it just piss you off? The real question is, if you weren’t delusional, and even your doctors agreed, except for one(and a half, personal doc is still in limbo, although he has treated me for it and I took the meds just like the pyschiatrist said to, and am worse now than then) how would you feel?? You would feel abandoned by everything you ever knew in your heart was true. In America we do not expect to be treated as we are being treated and we are truly hurt. I pray that alot of the theories on the morgellons side are WRONG!!!!! I would love to believe that our government can be trusted to do this research with every intent on finding and telling the truth, and not covering things up. I hope alot of other things aren’t true also, but if that one is true then I guess we are all headed down a one way road. If the truth is covered up and it is a real illness, the debunkers will be thrilled to know that they indeed were right. But they won’t be, if the truth is that there was a real illness and it was covered up. I only wish that as Americans, and other nationalities alike, we could all come together and put some pressure on the powers that be to quit stalling, and do their freaking research, and put an end to the whole thing. I see alot of hatefullness on these forums and blogs. I know that there are some quacks out there that are either delusional or just plain mean. But I also know that there is people out there that are SICK!! REALLY sick, and it is a shame that we are even finding out about this debate the way it is. It SHOULD NOT HAPPEN in this day of modern science and technology, not in our country!!! What the hell is wrong with all of us??!! Please just stop the criticism and let’s all pull together and make our leaders give us an answer. I have always heard that the only way to look like a bigger fool is to argue with a fool. Does that not hit home??? If you people that think everyone who has these symptoms is delusional, then why don’t you do the right thing and tell your leaders that there is an epidemic of major proportions and it is a mental one!!! If they really believe it I promise that would make them get off their butts and do something!! Crazy people do crazy things, you folks don’t seem to think that there is any real danger involved in being delusional. I don’t know if I would agree or not, but I know if we are not, there is some serious danger floating around out here. If it is real, and not delusional, then it came from somewhere and NOBODY knows where, and guess what, the way things are looking no one will, because they are NOT INVESTIGATING!!!!!!!

Kandy Griffin says:

Has anyone heard of Nexia? They are a corp out of Canada who allegedly attempted to cross a cotton plant with a silk worm in attempts to make the cotton plant more resistant to the damage of the silk worm.

Some believe, in essence, that they created a parasite that lives in cotton fabrics.

It is anaerobic (does not require oxygen to function)
It is also heat/cold resistant.

I have suffered the effects of Morgellon’s for 14 years.
I am a nurse with no history of psychological disorders.

This is very real and anyone who thinks it isn’t should just continue to keep their head in the sand.

For years, many claimed that lyme disease was not real.
Then it was Chronic Fatigue Syndrome and Fibromyalgia (both of which I have a diagnosis of) that noone believed(believes) in
and now it is Morgellon’s.

anyone else seeing a pattern here?

Take care and God Bless you all…….K.

sandra says:

where is the cure? is anyone out there.

we are curing ourselves with prayer and peroxide baths 35%

ambermoon says:

hey my sister is dieing from this chit im here trying to look for a cure.shes 48 and is only 93 pounds the chit is eating her alive

joe says:

since my submission on dec 31 i have had a great reduction in morgs. i don’t know if my cure is worse than the disease itself but i know it is working. this is a very complex syndrome and cannot be cured conventionally at least not without an environmental scouring. if you want the treatment i am using email me at paulson1985@yahoo.com.
due to legal issues i will not publish the treatment. i am not a scientist just a victim. i am suffering no ill effect initially from this treatment but i do not know the long term effects. i cannot in good conscience keep it from those suffering like i was. i do not intend to make any money from this but i don’t want to be sued either. put morgellons in the subject line because i delete all unknown emails. may God Bless all of you sufferers and your families.

sarah says:

Pat,

I would strongly warn against self-diagnosis from internet websites. Morgellons is not a recognized condition by the vast majority of medical professionals, for the reasons delineated on this website (symptoms are widely varying, symptoms are caused by common contaminants such as lint, etc). Going to an MD or a dermatologist IS an excellent idea, though, to seek help for your friend’s condition, whatever it may be.

Jenn says:

It is simply amazing to me how ignorant some people can be. Sufferers of this disease are all showing the same real physical symptoms. All these people at one point were living normal productive lives and all of the sudden their whole life has been turned upside down with no hope in sight because of ignorant people and an ignorant medical community. The body is a holistic organism where every part works together to great a harmonious environment, pathogens in the body can affect everything from mental to physical, this does not mean that someone is crazy. I have just recently contracted this disease. I was staying in a hotel room with a friend where I was very sick at the time with a cold so I spent most of the evening laying in the bed. At one point I said to my friend, “I don’t know if I’m losing it, but I feel like there are things crawling on me in this bed.” we laughed it off like it was nothing, however the next day I woke up with a very itch head, thinking I was having an allergic reaction to something I just brushed it off. As symptoms became worse I went to the doctor and got cream for scabies which did not help. At one point I thought I must be losing my mind so I would try to focus on other things, it wasn’t until my cat starting having similar symptoms that I realized something was seriously wrong. I wish this on no one, but if you have not had this disease and do not know someone who does, do not judge others, you have no idea what kind of true suffering we are going through!

lp says:

it wasn’t until my cat starting having similar symptoms that I realized something was seriously wrong. Your cat was having the same symptons ?????I’m sorry you have to explain this one into depth on how your cat has the morgellons symptons of fibres and such..

Gillian - Australia says:

It really is sad our own Primister, Mr Kevin Rudd, hasn’t to date, replied to letters sent to him from Morgellons sufferers in Aussie.

I really do like Mr Kevin Rudd. Surely if he new even half the truth he would be absolutely devasted.

That article from Australian Doctor almost makes me feel ashamed to be an Australian Citizen.

Gillian - Australia says:

http://www.brainaustralia.org.au/AZ_of_Brain_Disorders/peripheral_neuropathy

sounds liike Morgellons.

Jenn says:

Dear Sarah and lp, by saying my cat was having symptoms I meant that she starting itching, as I was and nothing could help her. The similar symptoms that sufferers with this disease have are blisters on the skin, fibers, black specs, depression, problems with short-term memory and a feeling that something is crawling on you. Also those suffering from this disease have found help in things like nutrasilver. I am sure Sarah that you have a great medical background for you to be making your “sound judgments” and for you to really even know what it is your are talking about or “judging”. Just for your information I do have a medical background and understand the symptoms of parasite infestation which includes not only physical changes but mental as well. Understanding science and medicine, just as bacteria and viruses can mutate so can other types of parasites. What this is, is a mutated parasite that is resistant to normal pesticides just as some bacteria have become resistant to antibiotics. Did you know that pest control companies have created a new form or pest control by keeping things like flees in larva stage so that they can multiply. well it is everything’s natural instinct to survive, therefore, if it can not survive in one way ultimately it will mutate to survive in other ways. Do you remember when AIDS came out? Doctors had no idea what it was, and if people were not dying we might be having the same discussion with AIDS victims today as you are with those suffering from Morgellons. God bless you all, may those who are suffering be cured and may those who are not, never know what it is like to have this disease.

Gillian - Australia says:

Hi Michael,

I have peripheral neuropathy & pneumonia at the moment, so I’m feeling pretty yuk.

http://answers.yahoo.com/question/index?qid=20080613082531AAAQzKY

http://en.wikipedia.org/wiki/ASIO_File