Is Schwartz a Quack?

Gillian says:

“Oh dear, what a mess” – best way to describe it I think.

This person had a kidney transplant and then took horse dewormer – this is so tragic.

What can I say, it is almost like someone has flicked a switch in my brain (I know they haven’t! – figure of speech)and I am no longer seeing the world through “foggy glasses”.

It is very sad that Dr Schwartz has a problem/addiction with narcotics. I believe Dr Schwartz would probably benefit from a good physical and mental health assessment. I am not a doctor nor do I pretend to know what I am talking about when it comes to medicine and science, I know enough to get by, like any lay person.

I had hundreds comming out each day. In just a few days I’ve gone from hundreds comming out each day to just a few today maybe 2. After the first “treatment” I was able to sleep without any creepy crawling… My sores are almost healing.

I have had some of the worms come out in my stool and the larval migrans are evacuating my skin.

Of course I’m vacuming like crazy, wash everything immediately after I wear it, mop the floors each day, wipe down the counters and even spray the walls. I bought some Neem oil, plant mite spray and use that on the walls as a mist and even on myself.

Would the above person be suffering maybe OCD (Obsessive Compulsive Disorder) and DOP? Given the fact they had a kidney transplant I would guess that there is a heck of a lot more going on also ie. underlying illness/disease??

As for the “larval migrans” I have no clue what this is, and don’t really want to know.

S Bione-Dunn says:

To clarify, I don’t think that a doctor making one bad decision or one mistake makes them an overall bad person. But, at the same time, I think the far-reaching corruption of his practice may suggest that his doctor’s practice was quack-like.

Smileykins says:

Hey, here, we had a doctor botching up people in surgeries a couple of years ago. It turned out he wasn’t even a doctor, let alone a surgeon. The hospital administration had not EVEN checked him out before they hired him, saying only that his resume had looked impressive, he was very personable, and that they’d had no reason to think that they needed to verify anything He went on the run, and was luckily arrested in a southern state a few weeks later. People need to always look out for themselves. There are plenty of freaks around.

Anyway, is Schwartz a quack? Well, is the pope catholic?

I remember reading, among other things, that Doc Schwartz had prescribed large amounts of narcotics for five patients with the same surname; I remember reading that one patient paid more than $6,500 in cash over a six month period; I remember reading that he even sometimes wrote checks, himself, to cover those prescriptions; but I either overlooked the below, or it just didn’t register with me at the time.

One patient, a woman who often picked up the medications for herself, her mother and brother, was once engaged to marry Schwartz.

This guy might not just be using morgie people, but he could really be deluded and hallucinating morgie varmits too, considering.

Schwartz’s intentions were always easy as heck to read, just like the MRF, and other “professionals” associated with stringing these innocent people along. Even after having it brought to light, it just doesn’t matter in the least to many. They continue to uphold the founder of “morgellons disease”, this twisted crack-pot quack, and really think that such types are deserving of respect. It is so sad that they’re so like babes in the woods, because of their illnesses. The general consensus of these patients is that legitimate physicians are quacks. So much of their thinking is just backwards from how things really are.

http://www.freenewmexican.com/news/41621.html

tallcotton says:

Is Dr. Schwartz a quack?

I think the answer to that question is obvious. My immediate reaction when I heard about his claim to have isolated the Morgellons pathogen was that the man is full of it. That opinion has changed. He claimed that the pathogen is Stenotrophomonas maltophilia, a bacteria that sometimes colonizes hospital cathaters. It’s certainly not a pathogen that can do all the tricks that is reported of the so-called Morgellons pathogen. The truth of the matter, of course, is that the “Morgellons” sufferers are suffering from a wide variety of both physical and mental disorders.

According to the first story that I heard, Dr. Schwartz had also received a phone call from a member of the French Underground who stated that he was involved in making genetically engineered changes to the organism. Dr. Schwartz allegedly claimed that the creepy crawley sensations that Morgellons sufferers were experiencing were caused by the movements of the bacteria’s flagella. I found that totally hilarious, due to their insignificant size, and I posted my opinions.

Apparently my opinions reached the doctor because more was then added to the story. The engineering project allegedly modified the flagella. This would have been required in order for a person to feel their movement, but I never heard of this until after I had told everyone that it would be impossible to feel the movement of the flagella due to their size. It seemed to me that he added to his story after giving more thought to the matter. I later heard that it was the CIA, as opposed to the French Underground. But that’s neither here nor there. I think it’s obvious that the man was lying.

Dr. Schwartz began treating “Morgies” in their motel rooms in Santa Fe, New Mexico. He prescribed Septra DS to kill the bacteria. As I understand it, the treatment didn’t work to eliminate the “Morgs”. The doctor put together a pamphlet with material that he obviously had gleaned from the message boards of the Morgellons Believers. It was ill prepared and filled with misspelled words. He called it a book and sold it for about twenty-five dollars. He later wrote a more comprehensive version, priced at one hundred twenty-five dollars.

As I understand it, he is now treating patients with a mixture of daitomacious earth and crushed sea shells. He’s treating some patients for worms. I definitely believe he is exploiting them for their money?
According to the story, a bio-engineered version of Stenotrophomonas maltophilia was acquired through French bottled water. Did it have worms in it too?

All you have to do to fool a Morgie, is tell him that you believe what he says. You could march him off a cliff and hold his wallet while he fell. Dr. Schwartz may have been a good doctor at one time, but his license was revoked in New Mexico. Rumor has it that he’s addicted to narcotics. I don’t know if that’s true, but in my opinion, that’s what his appearance and behavior suggests.

I heard that he is practicing medicine in Florida now. I suppose some of the Morgies will be taking a winter vacation. I hope the doctor leaves them with enough money to find their way back home. It’s a sad situation and it’s not getting better. So, is Dr. Schwartz a quack! Yeah, in my opinion, the man is definitely a quack!!

Tall Cotton

tallcotton says:

“Schwartz said he prescribes narcotics mostly for Morgellons disease patients who suffer from severe pain syndromes, cancer, migraine headaches or injuries.”

http://www.freenewmexican.com/news/36451.html

I don’t know whether it’s legal for Dr. Schwartz to practice medicine in Florida after having had his license revoked in New Mexico, but in my opinion, if it is legal, it shouldn’t be.

TC

Gillian says:

When I experienced my first bout of paranoia after taking Flagyl (200mg 3 times daily) I phoned my quack in a terrible state.

I was hoping he would have told me to stop taking it, or reduce the dose – something like that.

I said to him that I didn’t “trust” this “Morgellons” it didn’t feel right, I couldn’t understand “it” anymore and I was having terrible fearful thoughts.

Well he responded with a few all over the place comments such as;

“I seriously believe that what you have has an infectious agent/component to it”.

“Oh I think you can trust the Morgellons Research Foundation, they seem like very nice people to me”.

“Did you hear about Robert Beck he wrote “The Road Less Travelled”, well he was murdered recently and they belief the mafia did it”.

“It has been said for a while that the mafia are involved in the pharmaceutical companies”.

Verbatim and true. Do you think those comments calmed my mental state at all or just reinforced my delusions?

So back to the conversation with him : NO mention of the Flagyl or the effect it was having on me, nothing. He had been warned via Mary Leitao that Flagyl could bring on anxiety/paranoia in this particular group of people. I had to take Tetrex 250mg 2 capsules 3 times daily at the same time also. After a week and half of sheer horror I phoned my pharmacist for help he said : “Well Gill after what you have just told me and if it were me I would never take the Flagyl again, and I guess you want someone to validate that for you, so Gill don’t take them”.

The quack never really bothered when I told him, it was sort of brushed over.

It was an awful experience to say the least, I had never run around in circles literally fearing for my life. I could not trust anyone, not even my own dad, and that is just so stupid. But I could not explain what was happening to me.

I had my first “twilight zone” experience, nothing like pink poodles hanging off ceiling fans – mine was a simple tube of cream in a box “Antiparasitic cream” white box and green writing. But this tube of cream was in my bedroom at my parents place, I had never seen it before, I even picked it up. There were other strange things on the dressing table also, but I just don’t want to repeat them. This same tube/box of cream was at my Grandma’s bedside that very night when I visited her in hospital. I picked up that box also, I was so scared and paranoid I could barely talk. I hate to say this but my dad was really strange too, I tried to put this down to the fact that my mum was in hospital at the very same time (different hospital to my grandma though)and he was on his own missing mum, but it wasn’t that, he was strange/different.

I tried to figure it out – What events had happened prior to this particular incident?

My dad had recently been in hospital and had had more cancer lasered from his tongue.

Also he had recently renovated his ensuite bathroom – as in a total rebuild, stripped the floors, walls, loo, shower, vanity, replaced the entire lot with all brand new fittings and then repainted the walls and ceiling. But my dad had done this his entire life, didn’t make sense.

I was really concerned about him. He was like that for two days, and then bang – back to normal. He said weird things to me such as: “you need to read the adromeda (sp?) strain and prey by Michael Crichton”. He said “it will help you to understand things more”. Well I didn’t and I haven’t. This just wasn’t my dad, that is all I can say.

Michael – I have done it again I know, please tell me to go away or shut up or whatever if you think I should. It’s just that sometimes I think I’m going to burst because as you know, this has been so awful for so many of us.

London says:

I think he helped invent this pscho fungus, lipid fibre mess. One thing is for sure…..he hit the nail on the head when he claimed Stenotrophomonas maltophilia….that’s a fact Jack!

Now how in the hell did he know if it was not he and Mary in the doughnut shop in Oklahoma cooking it up…..probably had those skateboarding train riding angels right there with them too.

Hey, I have not been here in about 2 or 3 months now. Michael, I thought you said people were not allowed to post anymore….

Hmmm….maybe it was a while back that that happened, maybe it was just me…….

Anyhoo, Yes, he sure did know that Stenotrophomonas maltophilia was involved…..

Hey, is anyone else that is truly ill with fibres protruding from them also bein followed around by a helluva lot of white AT&T trucks? Just wandering…..and no, I’m not having delusions…..unless my photos of this and the one videotape I have of this taking place is delusional as well…cuz, it is happening…..

tallcotton says:

That must be one sneaky little parasite, since out of the thousands of Morgie pics, no one has photographed one yet. It does so many other tricks, I’ll bet it can make itself invisible. The bio-engineers probably made it a cloaking device. Yeah, that’s probably it. I think it might be a robotic spider, with a cloaking device, and it’s trying to wire everybody up into a world wide web. Yeah, and it emits optical fiber from its spinnerets. Oh, and I think it’s a jumping spider too. Of course, it is the source of the creepy-crawleys, while it’s cloaked. I’m glad I figured it out.

Smileykins says:

When people this mixed up lay it all out here on the web (and seriously, I don’t think they even realize it), dag-gone-it, anyone who reads their posts can come along and screw around with them. The GDMFSOBs.

Gillian says:

The GDMFSOBs.

I am absolutely dying to know what that means Smiley!

Well I think I have been a fine example of laying it all out on the Web, don’t you?!!

And you’re right – I didn’t and sometimes still don’t realise I am doing it. Thank goodness we are on moderation and those little elvs are ever so helpful at times.

And the “Bad People” have tried to screw around with me, well I said it before, and my OCD will say it again, “I am on my own”. Yes I have Delusions of Parasitosis and I am proud of it!!

My little mate Al Pal said to me on the phone yesterday, “I don’t know why you bother with that lot at Morgellons Watch, have you read the latest at Morgellons Support Group?”

I told Al I am not interested in reading about “cosmic waves” and “UFO’s”, I said it is dangerous stuff for my fragile mind, it will tip me over into paranoia if I allow it, and I WON’T.

I said: “Al, you and me both have DOP, as well as an underlying illness of some type, we don’t have the same thing.”

I come to this blog because it helps ME, and I hope it helps you guys. No you don’t lie, and you provide links to “real” diseases and illnesses, you have helped me realise this entire situation.

I know I have driven you all to near insanity because I just did not understand the dynamics of DOP, and yes I was very embarrassed to even think I was DOP. But now I understand and I thank you.

So if otber people in the Morgellons Believers Community think that I am a “brown noser” well good for you, I don’t care, because you all need to listen up and see the truth for what it is, we are all DOP and we all have our own individual diseases/illnesses.

Smileykins says:

Bravo, Gillian. When I was a member of LB, a few times, when people brought up some really serious issues of the real diseases they’d said they had, I’d tried to steer them onto taking the matter seriously, and treating it through a real doctor. I didn’t allude to DOP, but I’d said, rather, to try to help them understand, that the underlying condition was what caused “morgellons” to manifest.

But, nope, even though they knew what they had, lord have mercy, they didn’t know! Everybody is convinced that a mysterious new pathogen has caused everything that anyone’s got. It would be so nice if all morgie people were able to do their “research” into their real illnesses, and, then, into DOP, to see how it ties together, and how it came about for them to think such unusual things. Imagine how nice it would be.

Well, back to reality now…

You’re totally right about that far out kind of stuff being dangerous for fragile minds. Oh yeah. I suppose since they are seeing such inexplicable things, they think those weird discussions are going to lead them somewhere. It won’t, except to spiral them further into an abyss. It is a joyous thing to see that you know it’s unhealthy. That group think is never going to go anywhere. People need to stand on their own two feet and face the music. (And, dance, dance, dance.)

Oh. That string of letters I put up there earlier stands for some bad things. I was overcome by emotion, and had a little hissy-fit. Hahaha!!! Sorry. But, actually, morgie people will call each other down and label each other as being crazy sounding, and say that if anyone would happen to look in on them, they’d make the entire lot look bad. Really, I didn’t have you in mind, at all, Gillian. I’d meant that on message boards they seem to think they’re in an obscured, secluded, place where nobody knows what they discuss. That’s what I’d meant about how they lay it all out there on the web. That’s exactly how come predators know how to play them so well!!!

Gillian says:

Smileykins Says:
November 17th, 2006 at 11:01 pm
I care about all morgie people.

And that is the TRUTH and thanks guys I feel real chuffed.

Michael says:

Mainstream quackery:

http://www.msnbc.msn.com/id/15791227/site/newsweek/

Michael says:

Quackery has been around for a while, and is not going away.
One sad problem is that anyone with a Ph.D. in any subject can call themselves “Doctor”, which has such an air of authority to most people. People like Hulda Clark and Trevor Marshal. They are not medical doctors, yet they essentially diagnose unproven diseases and prescribe very unusual treatments, and they make a living doing it.

Gillian says:

My quack was dabbling big time in the “Marshall Protocol”. I know he was following Marshall’s vitamin D theory.

He had my vitamin D levels checked. Funny thing though when I phoned the hospital pathology department to check my results, the gentleman told me that the tests my doctor had ordered were something the hospital did not recognise, therefore they weren’t going to have a bar of it.

Anyway, my quack told me my vitamin D levels were elevated, but not evelated enough to cause all of the symptoms I had from A-Z, but enough to cause maybe the inflammation of the skin.

So… he couldn’t give me the Benicar because my blood pressure was already 90/50, and he said the Benicar could possibly help the “bug” grow in me. He told me to avoid fish, eggs, milk, butter, etc. Wear my sunglasses in the house, avoid natural and artifical light and cover my body with clothes from head to toe.

Just to bring things up to the present day. My current doctor tested my vitamin D levels after I told her my doctor said I was allergic to vitamin D.

Well you guessed it! He was wrong, I am deficient in vitamin D and I now have to take a supplement.

quack, quack…

Jace says:

I’m quite offended by the “anyone with a PhD” comment. Where do you think all drugs and treatments for legitimate diseases come from? Who is working on cures for cancer and numerous other diseases? For the most part it is PhD’s. Physicians (MD’s and DO’s) see patients and run the clinical side of research but the majority of them do not spend their days in a lab. Physiologists and other PhD’s are the people who do the hands on lab work. This board is here to tell patients to listen to their doctors, that most doctors are not quacks, etc. I agree. But it is also true that most people who go to school for 7+ years to receive their PhD do NOT spend that enormous expenditure of money or time to fool people into buying pretend cures.

Michael says:

Jace, my point is that a PhD (in any subject, which can include math or archeology) does not qualify you to diagnose illnesses, nor to prescribe treatment. Sure lots of people with PhDs make valuable contribution in their fields – it just annoys me when quacks like Hulda use the “Doctor” honorific to justify their quackery.

tallcotton says:

I don’t like it when a doctor of philosophy tells people that Morgellons is a real disease, and helps to reinforce the delusions of vulnerable people, i.e. Doctor Wacky Wymore.

Tall Cotton

Gillian says:

Jace, my point is that a PhD does not qualify you to diagnose illnesses, nor to prescribe treatment.

I couldn’t agree more. Trevor Marshall was qualified as an Electrical Engineer before he did his PhD. I have no idea how long a PhD takes to complete, before they can put “Dr” in front on their name.

So..would I be wrong in saying that he had no medical background whatsoever?

And quacks are buying Marshall’s theories via the internet and then treating patients?

**************************************************

A Biting Anger
As they fight Lyme disease, its victims say they must also battle the attitudes of health-care providers. Health-care issues percolate under the Jefferson City dome

By GREG MILLER of the Tribune’s staff
Published Sunday, May 21, 2006
http://www.columbiatribune.com/2006/May/20060521Show001.asp

Smileykins says:

As you just said, Michael,

…lots of people with PhDs make valuable contribution in their fields

Key words: IN THEIR FIELDS

Like I’d said, before,

A scientist almost invariably winds up doing pseudoscience when he moves out of a field in which he is knowledgeable and competent, and plunges into another field of which he is quite ignorant. A physicist who claims to have found a new principle of biology…or a biologist who claims to have found a new principle of physics…is almost invariably doing pseudoscience. A scientist becomes a pseudoscientist when he defends an idea when all evidence and experiment is against it, because he is emotionally or ideologically committed to it. I give you any “professional” attached to “morgellons disease”. Mercy, especially Randy Wymore in with the NMO…The Morgellons Have Landed.

A scientist who forges data, or suppresses data which doesn’t agree with his preconceptions, or refuses to let others see his data for independent evaluation, has become a pseudoscientist. Whether this is going on, or will, I don’t know. Science is a high peak of intellectual integrity, fairness, and rationality. To carry the analogy further, the peak is slippery and smooth. It requires a tremendous effort to remain near it. But any slacking of effort carries one away, and into pseudoscience.

Being wrong or mistaken is unavoidable. We are all human, and we all commit errors and blunders. A scientist, however, is alert to the possibility that he might blunder, and is quick to correct mistakes, since these mistakes are fatal to future studies which he might undertake if they are not found and rooted out. A scientist, in short, when shown that he is mistaken by his associates, will abandon his mistaken ideas. A pseudoscientist will not. In fact, a short definition of pseudoscience is that it is a method for protecting and rationalizing obviously incorrect and mistaken concepts about man and nature…for excusing, defending and preserving errors.

It is, unfortunately, vital for everyone to learn to distinguish carefully between science and pseudoscience. I know that the people I have familiarized myself with, who think that they have “morgellons disease”, have serious situations on their hands. They have made how they’ve gotten there public knowledge, as well as to have told where it often leads. There may be some people who aren’t “delusional”, but they’re not on the internet letting it be known that they think they’ve been overtaken by a new disease called “morgellons”, are they?

My ability to discern what’s going on with these poor people is intact.

Gillian says:

The following risks are believed to exist from doing the MarshallProtocol.com for persons with Chronic Fatigue Syndrome, Lyme, Gulf War Illness / Sickness [GWI / GWS], Fibromyalgia [FM], Irritable Bowel Disease [IBS IBD], Irritable Gut Syndrome [IGS]. Please follow link.
http://lassesen.com/cfids/MarshallProtocolRisks.htm

tallcotton says:

I like the way my Grandma doctored me. She’d tie a big white cloth around my big toe, leaving two big ears like a rabbit’s on top. And she’d douse it with something she called Annie Pain Oil. I hopped around like a one legged rabbit and it was really easy to see that I was wounded in action. I miss my Grandma.

Gillian says:

I believe that article on the Herx Reaction and Antibiotic Therapy makes the whole thing sound rather like a picnic. How far it is from the truth!!

Living in a herx reaction is nothing more than sheer hell. I know this only too well.

I live in a constant herx, now is that normal?

Michael says:

Gillian – what makes you think it’s herxing? Herxing is a temporary reaction that follows the initial doses of antibiotics, and does not last more than a few days.

I know you are ill, but why do you attribute your pains to herxing rather than something like Toxoplasmosis?

Gillian says:

Of course, “feeling really bad” is not a good indication that your treatment is working. It could equally mean that the treatment is NOT working, or that it’s making your condition worse, or subjecting you to side-effects.

Remember, just because a treatment makes you sick, does not mean it’s making you well.

oh dear…Michael would you like to repeat that to the “duck” down the road from me?

Didn’t you know…”You’re meant to feel sicker before you feel better”….that was the moto I had drilled into my swollen head.

Gillian says:

I do apologise I did not explain myself correctly; post 50 was not my idea, it was the ducks.

Gillian says:

I know you are ill, but why do you attribute your pains to herxing rather than something like Toxoplasmosis?

Okay flip side here:

What little I know about Toxoplasmosis, I could attribute my symptoms to this, and if human to human transmission is possible, or has taken place, that could quite possibly explain the change in mental behaviour in people close to me.

Keep in mind Michael I do have a vivid imagination so I really do “analyse” things at times, but to me it is a reasonable and logical explanation for this entire mystery so far.

Gillian says:

I currently have these symptoms.

* Malaise
* Muscle pains
* Enlarged lymph nodes
* Enlarged glands
* Anemia (**previous)
* Low blood pressure
* Eye inflammation
* Fever – continually in the past
* Chills – not recently
* Skin rash – not really a rash, put pimple spot things.
(Look similar to chicken pox at times)
* Lung symptoms (tight chest,shortness of breath)
* Heart symptoms (palpitations)
* Kidney symptoms (frequency at times and stress/urge incontinence)
* Brain symptoms – self explanatory I think.
* Encephalitis – my head has changed shape many times?
* Headache – yes
* One-sided muscle weakness – right side, similar to a stroke at times
* Tremor – had severely 2 years, appeared like a full blown “Parkinsons”
* Vision problems
* Hearing problems – severe ringing and humming
* Confusion – oh really, I wouldn’t have thought that for a minute!!

jace says:

Believe me, Marg I understand what you’re saying. I spend a lot of time simply explaining to people the difference between a physician and a PhD. Many people hear doctor and assume physician. But I don’t believe that simply because a researcher is working on something they’ve never worked on before that they are practicing “pseudoscience”. If no one ever endeavored to take on something new no progress would ever be made. It’s ludicrous to say that anyone who does research should only stick to one thing. Physiology covers a whole heck of a lot of ground (like every single body function), so if you have a background in physiology you know way more than what you wrote your thesis on because you are required to take a lot of classes, many of which are not thesis related. People who don’t understand how this whole process works should not be making their own assumptions. And Michael, while I understand what you’re saying I just felt you presented a very one sided view, and I wanted to explain there is more to research than that.

jace says:

Gotcha. Actually I read your links and was just dumbfounded at what those two did. I just don’t want all PhD’s judged in the same manner that the morgies are judging their doctors. There bad physicians and bad PhD’s, but for the most part I think most people have good intentions.

Smileykins says:

You’re sounding so much better Gillian, and I am so thankful. It is hard as heck, I know. Ya gots guts, gal. Wowee.

Back to the PhD in physiology, though. He is researching fibers that DOP patients have always (since DOP has been around), thought were something of a parasitic nature. Uh, the dude has collected fibers obsessively, himself, from all over, as reported in the news. His “research” is very detrimental, serving to take such patients deeper and deeper inside of their problem, causing them to continue to fail seeking treatment for what all ails them. There is something wrong with that, and with a professional person going public with all the comments that he’s made, such as saying that these patients are not delusional, and that there really are fibers that are visible to others in their skin. Good Lord, everyone knows that! The ill-conceived belief about the source of those fibers (as well as all the other components of internal and external wastes, infectious processes, as well as wound healing processes), plus, patients relating them to their other symptoms of being sick, which is exactly what is taking place in these patients…

is the illness (of DOP), and the cause for that-illness-to-manifest, is due to various-underlying-ill-states-of-health that each separate patient has, as an individual.

I could argue till the cows come home, but people have too much invested in their fixations and beliefs, and too much false hope attached to it all, thanks to the “morgellons movement”, they have fallen much further into the abyss. Remember the spider (people, in what looks like, to morgies, authoritative positions) and the fly (the morgie people, themselves).

Gillian says:

Smileykins said:

There are some major players in the morgie scene, and some have always had the lingering odor of a rat, to me.

Anyone can see, that the more bizarre their tales, the larger the following they develop. It has always made me wonder about the possibility of an ulterior motive to reel more of these sad patients in, for someone lurking back in the shadows to step forward with unsubstantiated claims of being able to assist them.

Morgellons: Mystery Disease, Delusion, or the Next Global Pandemic?
http://www.morgellons-disease-information.com/

This book is a fine example of the “swarms” which “prey” on the “morgies”.

Do you know the book hasn’t been written yet?
The author will however phone you once you have emailed all your details to her. She will even include you in her book.

NO thanks lady, I can write my own.

Gillian says:

P.S. I will be glad to get that scan over and done with tonight.

Gillian says:

I haven’t included him as someone that’s treating patients, although some morgie people were of the mistaken opinion that, what was it(?), dewormer and uppers were being administered at OSU, quite a few months ago.

Fenbendazole (Panacur)
http://www.veterinarypartner.com/Content.plx?P=A&C=301&A=1596&S=1

Ritalin
http://en.wikipedia.org/wiki/Methylphenidate

These were the drugs being used, but I have no idea who was administering them. I was told to keep my mouth shut about this, whoops I’m sorry it just fell open!

Gillian says:

The “Bottled Water Of France” Myth
According to Jim Mortellaro bottled water from France is the reason for the outbreak of Morgellons
http://www.morgellons.eu/news-2-the-bottled-water-of-france-myth.html

This is good! I have only just stumbled across it. I guess that sums up Schwartz being a quack.

Gillian says:

Jace Says:
November 20th, 2006 at 8:19 am
Believe me, Marg I understand what you’re saying. I spend a lot of time simply explaining to people the difference between a physician and a PhD. Many people hear doctor and assume physician. But I don’t believe that simply because a researcher is working on something they’ve never worked on before that they are practicing “pseudoscience”.

Cloning of a mammalian elk potassium channel gene and EAG mRNA distribution in rat sympathetic ganglia
http://www.blackwell-synergy.com/links/doi/10.1111/j.1469-7793.1998.675bg.x/full/

Would you call “cloning” pseudoscience?

Smileykins says:

I think in time he will recognize this to a small degree, and modify his position.

Oh, I sure hope so. I think if he weren’t so swept up in fibers, that maybe he could have been able to recognize that “callus” thingys, too, are what the rest of the world calls “scabs”, and that they need to be left in place, and can be expected to be uncomfortable, and itch, sometimes, as patients’ skin is healing. (hehe) He used that “world is not flat” talk too, in an article, and said that getting people to believe in this was about like expecting someone to change their religion. (I sorry. He seems “unwell” to me.)

Starlink says:

Hi Gill-

I do not agree with the DOP prognosis. There is more to this. (what causes DOP?) It is uncommon.

Regards

Smileykins says:

Hello, Norman. DOP has come out of obscurity now. That’s all. The majority of “morgellons” patients (perhaps, minus some of the newcomers) have made no secret that they have received numerous, repeated, diagnoses of DOP.

Have you not been reading anything here? Please do. A woman misinterpretted her child’s eczema and thought that fibers in his skin was a new disease. She has continued picking at her child to this day, and has admitted that she was told by doctors that she is mentally ill with Munchausen By Proxy Syndrome.

She found a name of ancient misunderstanding about clogged skin pores. She adopted the name and started a web site. Other people who could identify with what she said on her site, joined up to her belief. Most all of them had been to many doctors, and were told they had DOP, scared to pieces that they had something else. Well, yeah they had skin symptoms with stuff in them. The very hallmark of DOP is denial. Why? Because it’s impossible for a person to know when their mind is messing with them like that. Doctors have been following the correct protocol. The uncooperative patients have resisted addressing this condition.

They registered on her site, specifying their pre-existing, concurrent, medical conditions as part of the registration process. She deliberately cultivated her movement, on a mission to raise awareness of what she has thought was a new disease, receiving reinforcement, herself, along the way. The case definition was composed from the list of previously diagnosed illnesses that people registered to become members of the Morgellons Research Foundation. As a result of the entire, ongoing, scenario, more vulnerably susceptible people have fallen under the belief, and continue having it dangerously reinforced. Thanks to the fervor of one woman, her movement has resulted in raising the world’s awareness of a set of terribly misled people, with DOP, from many different causes, begging the government, no, forcing the government, to step in to help them.

Norman, I have posted it so many times. Nobody wants to learn what DOP is about, because they have all been offended at the diagnosis. They should not be, my gosh. Look at what not treating it has been doing to people.

Their underlying conditions are what causes DOP to happen. A doctor can’t very well treat a patient, for anything, when all they are fixated on is what they have found coming out of their skin.

1. Primary Psychotic DOP is the sole psychological disturbance, and patients otherwise behave normally, and reason in a rational manner

2. Secondary Functional DOP has an underlying psychiatric condition causing it, including: depression, anxiety disorders, paranoia, OCD, schizophrenia

3. Secondary Organic DOP is caused from an underlying physical illness,including: neurological disorders, cerebrovascular disease, cancer, tuberculosis, hypothyroidism, diabetes, drug/alcohol abuse, nutritional deficiencies such as vitamin B12, thiamine, or niacin, and a whole lot of conditions

People can’t take care of their underlying problem(s) until they treat the DOP, first, to realign their brain chemistry so they can perceive things correctly.

This story is so similar to what people have done with “morgellons disease”. Please, I beg you to just read it, and you will see for yourself.

http://www.ahealthyme.com/topic/parasitosis

Michael says:

DOP is uncommon, but still thousands of people have it. It’s been recognized for over a hundred years. It often has a physical trigger.

The CDC is investigating why there seems to be an increase in the number of people reporting symptoms that look like DOP. Maybe there is an actual increase in cases due to some environmental cause (like pollution or fiberglass) or infectious agent (like MRSA), or it’s just a demographic shift with baby boomers hitting menopause, or maybe it’s an illusory increase, focussed by the media’s coverage of Morgellons, or maybe it’s magnified by the internet’s villagification of the world. Maybe a combination.

Smileykins says:

The CDC is investigating why there seems to be an increase in the number of people reporting symptoms that look like DOP. Maybe there is an actual increase in cases due to some environmental cause (like pollution or fiberglass) or infectious agent (like MRSA), or it’s just a demographic shift with baby boomers hitting menopause, or maybe it’s an illusory increase, focussed by the media’s coverage of Morgellons, or maybe it’s magnified by the internet’s villagification of the world. Maybe a combination.

Oh, that is SO well worth repeating.

Gillian says:

Michael – Do you know that my family and I see this “delusional” behaviour in my Grandma’s doctor.

My Gran has COAD, Rheumatoid arthritis, and osteoporosis, probably some other things, but I have given up trying to remember!

Anyway, her chest and breathing can get bad at times. My Gran is so self consumed with her own health and panics over the smallest symptoms. Her doctor keeps giving her antibiotics when her chest gets a bit bad. So she is on yet another course of them.

Her doctor said after the second course if there is no improvement, he wants her to have a chest x-ray. Well my mum is just so over this, she said he did this last time, and the time before that. Mum said the x-rays just show that she has COAD and some heart problems due to her age. We believe my Gran’s doctor is just reinforcing her own “delusion”.

My Gran is not what you would consider senile in anyway, she will be 91 in a couple of months, and we know she can’t wait!! She has always been one to be very self consumed, and very selfish. She has compared her health with mine for a long time now, and as you can understand this drives my parents crazy!!

The doctor that treats my Gran is the very same doctor that turned down treating my condition when the Psychiatric Hospital contacted him after my inpatient stay. He said that taking on my case was “too complicated”. I was really shocked to be honest. I used to see this guy when I was 17yrs. At the time he was trialling some new theory he had on penicillin treating severe cold sores. He used to give me injections in my backside every month, to try to reduce the size and frequency of the cold sores.

The lengths this doctor has gone to with my Grandma’s health is totally obsurd. She is as fit as a fiddle and still lives alone, and her home is immaculate. My dad gets so damn angry with him. The tests that my Grandma has had in the past ie.CT scans,x-rays you name it, as well as lots of inpatient hospital stays, and the entire time she is treated like a queen. The very same hospital I could not get past the ER without them bringing in the psych.team, and this was on 3 occasions you know, and the last time I was showing signs of a stroke!

My parents say that it seems a lot of doctors today really take care of the elderly, maybe it is good practice for them or something, because they certainly can not figure out WHY their daughter can not get any willing doctor to perform a bunch of tests and nail down what is wrong with her, when it is so obvious how sick I am.

Anyway Michael, the scan was done last night, and I am off to have an EEG this morning. Oh and of course I am driving myself, the crazy behaviour in people around me just continues. When I stand up my legs just want to buckle beneath me, and then I have to struggle with the overwhelming nausea, meanwhile I am swaying because my balance is so bad.

I am not feeling sorry for myself or whinging, I just want to point out the insanity of this entire situation. I blame the quack with his misleading information, and his damn theory that Rickettsia causes “everything”! Well I just don’t know about that. You know I told him 8 months ago that I have had a collapsed right nostril for over 2 years, he said “Oh Rickettsia can cause that”! And not to mention his theory of “you must feel sicker before you feel better”. He gave me a prognosis of a 70% chance of a full recovery in 18 months to 2 years (that was July 2005).

I have explained DOP to my parents, but you know I think maybe it is just too late for them to understand anymore. My mum makes me feel like I am just not helping myself. She doesn’t visit me (nothing new really, she never has), she doesn’t treat me like I am ill is what I am trying to say. It really hurts me.

tallcotton says:

I can’t remember whether or not one of us already posted this link. It’s to an Oklahoma Gazette article on Morgellons. It also has a place to comment. There’s some comments there that were made by a couple of people we all know.

http://www.okgazette.com/news/templates/news.asp?articleid=925&zoneid=3

Gillian says:

Well I couldn’t keep my mouth shut once again, I just made a comment on the okgazette website.

People have got to stop playing with such fragile minds, these people are really sick and so vulnerable.

tallcotton says:

Gillian said…

I said: “Al, you and me both have DOP, as well as an underlying illness of some type, we don’t have the same thing.”

Gillian, if you know that you had DOP, you don’t have it now. It’s kinda like catch 22.

Tall Cotton

Gillian says:

What did your EEG machine look like two years ago?

Very hard to say really. The machine was across the other side of the room, and the guy was sat behind the machine thing. I was in a chair, but I didn’t wear the cap on my head. It was totally different than today.

More importantly, when do you get results from your current round of tests?

The test results will be given to the Neurologist, and he said he would phone me asap to let me know if he needs to see me again.

Gillian, if you know that you had DOP, you don’t have it now. It’s kinda like catch 22.

Wow! That is good news!

Gillian says:

Just to clarify what Morphborgs are meant to be – “A Bioengineered Plague”.

Gillian says:

I do have a real burning question that has nothing to do with the current topic, but I have to ask;

What on earth has happened to Cliff Michelson?? Has he been abducted by Aliens?

tallcotton says:

I don’t know where Cliff went, but I know that the man’s ideas about Morgellons are nothing but pure nonsense. The same is true for Jan’s ideas. They’ve both obviously lost touch with reality.

TC

tallcotton says:

Gillian,

Do you have any lesions at the present time?

TC

Gillian says:

Do you have any lesions at the present time?

No, not one.

Gillian says:

Do you have any lesions at the present time?

No, not one.

Just to clarify for you – my skin is not the major issue here at all.

Gillian says:

I agree Michael, BUT (I always have a “but”) what is one meant to do when it appears that half or more than half of the medical community are deluded, and even delusional?

As Al would say; “They stand out like dogs gonads”.

Smileykins says:

You’ve said that you have a good doctor now, Gillian, which that is a relief to know. I don’t know what kind of doctors you’ve been to. One delusional-acting doctor is too many, but over half that you’ve seen, is mind boggling. If they were licensed and accredited by the medical board that could not, or should not, be happening. If they haven’t been, and they’ve been quacks, instead, well, that’s altogether different.

I know that we are oftentimes weakened by injury and illness, but NEVER allow a doctor, if anyone finds themselves in the presence of one whose behavior is questionable, to subject us to anything we are in the least bit weary of. Gosh, I mean, I know that the conditions we’re there for can render us quite powerless at times, but still, if a doctor seems strange, I hope there would be something left inside a person to know better than to subject themselves to anything unusual.

I am aware of some rare sicko doctors, having heard reports of female patients being somehow developmentally challenged in their thinking that they had to subject themselves to criminal behavior. Such women, as the ones I am aware of, have brought national attention to this from banding together, as fellow patients, and suing these types of doctors. However, they were rarely even weakened by illness, and were active participants in the act of violation, all because, they’d claimed, they looked upon doctors as figures of authority and thought they had to subject themselves to something they knew was dead wrong!! Go figure.

If past bad experiences have occurred, to anyone, like that, and nothing can be done now about it now, take another person along to appointments, or, if nobody else is present, yell for a nurse if they are acting weird. Get out, never go back, and report them.

I have dealt with a lot of doctors over many years. I came across two or three with less than impeccable bedside manners, but I have no complaints, at all, concerning their professionalism. I think our doctors do an excellent job assisting us. Sometimes, we also have to assist them, because they can’t read our minds. (Hehe, that was a personal note, cuz some people I know in my life, seem to think that they can.)

Gillian says:

BIG PROMISES FROM THE MAIN POLITICAL PARTIES ON VICTORIA’S TROUBLED HEALTH SYSTEM (Stateline Victoria: 17/11/2006)
http://www.abc.net.au/stateline/vic/content/2006/s1791434.htm
http://www.abc.net.au/stateline/vic/content/2006/s1791436.htm

See..it’s not just me complaining.

Gillian says:

Thanks Smileykins for that info. Well I have learnt something new about Fibromyalgia, I wasn’t aware that the chiari malformation came into. I had researched chiari a while back which seemed quite fitting for some of my symptoms.

Fibromyalgia seems to get brushed under the table in this country, maybe because it seems to be mainly women suffering.

So if your a homosexual male in this country, ya get the best help and medical treatment, I have witnessed it with my own eyes.

Smileykins says:

You’re welcome, Gillian. There truly are tons of health problems that are far more serious than fibromyalgia. If you have the chiari malformation it will show up on the MRI you had, and can be addressed. But fibromyalgia is basically just a non-threatening chronic pain and fatigue condition of connective tissues. There’s nothing infectious involved, and no risks to our major organs or anything like that. Some people are depressed with it, and the treatment for fibromyalgia is through antidepressants. They supposedly help a few people with both of those conditions. My rheumatologist insisted I that I try klonopin for restorative sleep, and I had a go at it for a month or two. Weighing the risks, I chose to not refill the prescription. Plus, I’d already been living with fibromyalgia for over twenty years, so I was pretty used to it by the time it was detected in a second, routine, diagnosis.

Smileykins says:

# Gillian Says:
November 23rd, 2006 at 2:53 pm

(Smileykins’ quote) I’m real sorry things are the ways that they are, too, but that bureaucracy has nothing to do with “morgellons disease”, though. As the story has it, people, over here, have apparently had no trouble being seen by doctors, and a very large number of doctors, too.

So what the hell is wrong with the medical community in Australia then?

Bureaucracy has nothing to do with “morgellons disease”? Do I laugh or cry?

I certainly have no idea, Gillian. But, on the average, MRF says that patients have seen as many as ten to forty doctors. That happens to be a stupendous amount (not to mention an unthinkable waste of money), considering the facts of the matter. Most people can’t imagine anybody going to that many physicians, receiving the same diagnosis, and thinking there’s no trace of a hint to the patient what’s up. For most people, when in doubt, a second opinion is all that is necessary. For certain matters, I think a third opinion is not unreasonable.

You seem to have a whole lot of health problems, and speak as though you have seen a lot of doctors, too. Still, though, whether you’ve had trouble in getting a doctor, or whether you’ve had to wait for extended periods of time on bureaucrats to authorize a procedure, I’m sorry, but either way, that has nothing to do with anything known as “morgellons disease”. That is why I’d said that it doesn’t apply.

Gillian says:

Ashton H.
Protracted Withdrawal Syndromes from Benzodiazepines.
Journal of Substance Abuse Treatment 1991; 8: 19-28.
” Even with long-acting benzodiazepines such as diazepam, there is usually a history in long-term users of steadily increasing anxiety, with the development over the years of new symptoms such as agoraphobia, often with perceptual distortions and depersonalisation, despite continued usage of these supposedly anxiolytic drugs. ” [p. 22]

” Depression can be caused or aggravated by chronic benzodiazepine use, yet it also appears to be a feature of the withdrawal syndrome. It may be severe enough to qualify as a major depressive disorder and may persist for some months. (—) It is not clear whether protracted depressive symptoms are more common in patients with a previous history of depression or whether it recurs in subsequent years after withdrawal. [p. 25]

” Tinnitus is a common symptom of benzodiazepine withdrawal and may initially result from the characteristic general hypersensitivity to sensory stimuli. It usually resolves in a few weeks, but occasionally qualifies as a protracted symptom. Busto et al. (1988) describe two cases in which tinnitus persisted for 6 and 12 months after withdrawal and mention a third patient who was unable to withdraw from benzodiazepines because of severe tinnitus at each attempt. Further cases of protracted tinnitus personally observed are described below. ” [p. 25]

” Tinnitus is fairly common in the general population, and the apparent relation to benzodiazepine use may be incidental, but these cases raise the suspicion that benzodiazepines may occasionally cause permanent or only slowly reversible brain damage. ” [p. 25]

” Formication is also common during benzodiazepine withdrawal, and many patients temporarily complain of a feeling of insects crawling on the skin or of lice or nits in the hair. Occasionally, more bizarre sensations are reported, such as a feeling of slime or water running over the body, a sense of inner vibration, or a feeling of “trembling inside”, and these symptoms may be protracted. [p. 26]

” Occasionally muscle jerking persist for a year or more after withdrawal and the clinical picture may suggest myoclonus, tics, or exaggerated startle reactions. (—) Restless legs syndrome may also be protracted. [p. 26]

” Gastrointestinal symptoms are extremely common during chronic benzodiazepine use and in withdrawal. Many chronic benzodiazepine users have been investigated by gastroenterologists and found to have “irritable bowel syndrome.” [p. 26]

[Key words Valium, diazepam, withdrawal, anxiety, depression, tinnitus, depersonalization, long-term effects]

tallcotton says:

Medical research is advancing with leaps and bounds, but the medical community doesn’t have all the answers. They never will. Sometimes we have to learn to live with medical problems until cures and treatments are discovered. Most Morgies, however, have been told what’s wrong with them, but they reject their diagnoses and blame all of their problems on an imaginary disease. They then go farther and blame the imaginary disease on the government, the pharmacheutical industry, or technology. They never consider anything to be their own fault.

TC

tallcotton says:

Gillian,

Who’s fault is it when someone has it in their head that they have a disease that doesn’t exist? Who’s fault is it when they won’t listen to reason? Who’s fault is it when they repeat the same behavior, over and over, expecting different results? Who’s fault is it that they throw away new clothes and burn their couches? It’s certainly not the fault of the medical community, the pharmacheutical industry, or the government. It may not be the Morgie’s fault that they are mentally incompetent, but they blame other people for their own shortcomings. And they do that while they’re refusing to take their damned medicine. What are you supposed to do with people that are harming themselves, each other, their children, and their pets?

TC

tallcotton says:

When are people with mental illnesses responsible for symptomatic behavior?

http://plato.stanford.edu/entries/mental-illness/#3

Gillian says:

Chemtrails, Nanotech, and Morgellons
Chemtrails, Nano-Tech and Morgellons – Warning this information can change whirled views. You thought you’d seen it all?
http://blog.myspace.com/index.cfm?fuseaction=blog.view&friendID=119374778&blogID=197142828

Berkeley considering need for nano safety
Rick DelVecchio, Chronicle Staff Writer
Friday, November 24, 2006
http://sfgate.com/cgi-bin/article.cgi?file=/c/a/2006/11/24/MNGP9MJ4KI1.DTL

Gillian says:

Irresponsible Article In Discover: Vital Signs: Bugs Are Crawling In My Skin
http://discover.com/issues/dec-06/departments/vital-signs-sore-mystery/

Gillian says:

His opinions should not dissuade, or deter, anyone who needs mental health assistance. There are many good psychiatrists who closely monitor their patients. Patients have to report side effects. Some will subside, in time, just as it is with many prescription medications. If they don’t, and the side effects are bothersome, the patient has to say so, and a good doctor will try something else.

Very true.

But in all honesty,it is not the treating Psychiatrist who is at fault, if the prescribed pharmaceutical drug doesn’t work?

Especially if one has tried about 10 different brands, and still suffered terrible side effects.

james says:

Posted this on another thread, not sure if I am doing this correct but anyway

Hello my name is James In Austin Texas

Janruary of 2006 I was in vegas for 2 days, after drinking wine for
several days and nights and sleeping little and then walking to the
airport my heartrate went to 180 bps where it stayed there for 6
hours, I was taken by ambulance to the hospital where they checked me
for cardiac problems which showed to be “grossly negotive” but found
leisons on my liver. I returned to Austin and started flushing, or
puritus that would not stop, or would only happen when I drank
alcohol. Does anyone have such a problem with Alcohol???

Scans of the liver again showed 3 leisons in Feb 2006. I started
support for liver and checked into carciniod cancer info and then
mastocytosis information.

The flushing would usually only happen after a little wine, In March
no more wine or alcohol, but still puritus and the creepy crawly
felling, almost and electrical sensation on my skin, itching etc. I
fasted 2 times did liver cleanses, colon cleanses and by June the
liver spots had resolved were gone.

When I use valium I have no flushing or puritus at all. Now a small
red spot on my lower left side, doctor said it was H Zoster, that was
4 months ago, it never itched, but hurt at first. Still red, a couple
of other smaller ones, but no sensation at all, no fibers at all.

Biggest problem is with the rapid heartbeat after eating, or with heat
this I had before the valium.

Allergist put me on testosterone cream, then I found small white fatty
like globules on my scalp, which he said was subasus debris from the
testosterone,,, Hmmm

Looking for Virginia Savel, but cannot find her. Dr Swartz says he can
cure me, but how can he know for sure what this is. I was thinking
Mastocytosis before, and some call him a quack, and to me that means a
doctor that is willing to thinkoutside the box and not fall in line
with big pharma/

Also pain in left shoulder, left ear itching contantly inside sometimes more than other times, sometimes unbearable

Anyway, got to take out the dog for a walk, need a doctor in Austin
asap. Any one can help?? Thanks,

James in Austin

Gillian says:

Smileykins Says:
November 24th, 2006 at 9:07 pm
Well, but, Gillian, there is a difference in being on medication that’s prescribed and monitored by a physician, as opposed to becoming addicted, and abusing benzodiazepine. If you had such a problem, were you treated for withdrawal?

Now just back up a bit please, I never had an addiction to benzodiazepines neither did I abuse them. I absolutely hated Xanax when I was first put on them. I’ve never been a pill popper.

I took the smallest dose they could give me, and it made me feel awful, to the point, I took an overdose of Xanax about 6 months after I had been put on them.

And guess what….

I was taken to the local “quack” hospital, and they never pumped my stomach, and they never gave me charcoal, and they even let me discharge myself in the middle of the night in a totally delerious state.

When I arrived at my apartment I realised I had no keys to get in, I had really no memory of what had happened, and to be honest I had no idea who I was, or what I was doing.

So I got a lift back to the hospital and asked if I could please “go back to bed” in the ER, because I couldn’t get in my own home.

They said; No, on ya way. Bye.

I recall they didn’t even remove my clothes nor did they put me in a hospital gown, they just cut holes in the sleeves of my shirt to get an IV line in. God only nows what the hospital staff said to my parents, because the only feed back I got from my folks via the medical staff was “she is very dehydrated”. My family know me very well, better than that damn hospital. All I have ever really drunk in my life is water, and lots of it, I was brought up that way.

Don’t believe me???? Ha – you’d want to because it was all very true. The story don’t stop there, it just gets worse.

I was not treated for withdrawals from Xanax after that overdose. The female doctor who prescribed them in the first place just acted like nothing had happened and the Xanax was never mentioned again.

Following this horrific event I started with the most severe anxiety attacks, I had never suffered one in my life before.

Gillian says:

To James – I am sorry, but what the heck are you talking about?

To answer your question on Alcohol – NO!!! I don’t drink the stuff, and if I ran this damn country I would ban Alcohol completely.

Is it just me, or did his post not make any sense at all?

Maybe I’m just sick of reading tripe.

Smileykins says:

James, I’m glad you’re here. Please abandon thinking you have “morgellons disease”, if you want to survive. If a doctor diagnosed you with herpes zoster, did this doctor also know of your liver condition? I hope you know that you have to centralize your care with one primary care physician, and not jump from one doctor to another, like so many of the “morgellons” patients do.

Do you have your liver enzymes monitored regularly? Also, do you know whether you’re diabetic, and do you know your blood pressure, cholesterol and trigylceride levels? If not, request testing.

When testosterone cream is applied, there are some side effects that can occur. In most cases the side effects are mild; yet they can grow more severe if untreated. These side effects can include:

* Depression, anxiety, and possible mood disorders.
* Indigestion and other stomach disorders.
* High blood pressure due to fluid retention.
* Headaches and dizziness.
* Prostate problems. (Keep in mind that men who already have prostate problems won’t be able to use testosterone cream or any other type of testosterone therapy.) Note: If you are a male, ask for a PSA blood test
* Skin irritation where the testosterone cream is applied.

Please read from the below links, James, and tell your primary care doctor to give you a referral to a cardio-vasucular specialist. This is your life, and not the time to be trapped within the throes of entertaining a fantasy disease. You really are ill with things that seriously need attended to properly. The left shoulder blade pain could very easily be referred pain from your heart. I think your heart is where your MAIN focus should be.

http://en.wikipedia.org/wiki/Cardiovascular_disease

http://en.wikipedia.org/wiki/Tachycardia

http://en.wikipedia.org/wiki/Angina_pectoris

http://en.wikipedia.org/wiki/Cirrhosis

http://simple.wikipedia.org/wiki/Diabetes_mellitus

http://en.wikipedia.org/wiki/Shingles

You definitely DO NOT NEED Ginger Savely, and, as you also said, “Dr Schwartz says he can cure me, but how can he know for sure what this is?” Forget this “morgellons disease”, James. There is no such thing!!!

But, if you could pass some important things onto others, since they’ll listen to you, one of the persons you have communicated with on a morgellons message board, awakens with bluish tinted finger nails. Please try persuading this person to read that it is due to cyanosis. They may also need a cardio-vascular referral.

http://en.wikipedia.org/wiki/Cyanosis

Someone mentioned that the symptoms of mastocytosis were nearly identical to “morgellons disease”. NO, there is no “morgellons disease”.

http://en.wikipedia.org/wiki/Mastocytosis

Many people have no understanding of their bodies, whatsoever, including what our liver is for. A non-existing “morgellons disease” has not made the ones with liver problems ill.

http://simple.wikipedia.org/wiki/Liver

And last, but not least, many such patients discuss, and display, feelings of rage. Please pass this along.

http://en.wikipedia.org/wiki/Mood_disorder

Believers in “morgellons disease” need to read things of true value, like Michael’ blog topics, and they all need to look into the conditions they have really been diagnosed with, and/or symptoms that can account for lots of things known to mankind, and discuss it with their doctors. If people have to hang onto the false belief of “morgellons disease”, I would like to know what, exactly, they are hoping for. I would love to see a “patients’ wish list” started somewhere on line.

To answer Gillian’s,

But in all honesty,it is not the treating Psychiatrist who is at fault, if the prescribed pharmaceutical drug doesn’t work? Especially if one has tried about 10 different brands, and still suffered terrible side effects.

I’m sorry, but I have said, numerous times, that if a patient is unable to be responsible for themselves, which includes effectively communicating with their physician(s), that they need a health care advocate who can do it for them.

I also think that people who don’t know any better are the “we”, in the excerpt you provided, who stereotype drug addiction. There are good doctors, and there are bad doctors. If a patient is not savvy enough to know the difference, for whatever reason, yes, sometimes they will end up suffering consequences. Everything falls back to personal responsibility for ourselves. It is truly misfortunate that living in the world presents so many difficulties for some people, especially when they are vulnerable, and have no one watching out for them. It’s extremely sad.

Drug abuse is one of the causes for secondary organic delusional parasitosis, as I have stated them all, many times. Read this man’s double-edged sword, if you think differently. There is NO “morgellons disease”. It is much more appealing to toss blame everywhere, here, there , and yon, for those unable to deal with themselves. That still won’t make a non-existing disease become real to the rest of society.

http://www.rense.com/general72/crug.htm

People are ill, from a variety of causes, all, creating similar experiences for them.

tallcotton says:

P. S. Belly laugh that, Gillian!!

TC

tallcotton says:

Gillian said…

To James – I am sorry, but what the heck are you talking about?

To answer your question on Alcohol – NO!!! I don’t drink the stuff, and if I ran this damn country I would ban Alcohol completely.

Is it just me, or did his post not make any sense at all?

Maybe I’m just sick of reading tripe.

Yes, Gillian, it’s just you. His post made perfect sense. Why is James’ health information tripe, and your’s not tripe? Havn’t we talked enough about Gillian to suit you?

I don’t guess you remember prohibition, but surely you’ve read about it. If you were to outlaw alcohol, you would have very big problems with bootlegging, lots of violence, gang wars, deaths, and still , people would be getting drunk, just like always.

Tall Cotton

tallcotton says:

Gillian,

You told us that Morgellons is not a disease. You tell the people a different story on the Morgellons Believer’s forum. What’s wrong with playing both sides of the fence. That’s called being two-faced.

We have nothing to hide, and our story, entitled, “The Lie of Morgellons”, is nothing but the truth. It’s our experience, Gillian. It’s not supposed to be anyone else’s experience but ours. If it doesn’t help you in any way, ignore it. I think you need to read up on hypochondriasis. That’s obviously the problem you have.

Tall Cotton

tallcotton says:

Gillian,

You don’t make one lick of sense. There is no Morgellons. There is no Morgellons pathogen. There is no conspiracy. These truths are a good place to begin with your recovery. But you are bouncing back and forth from believing these things, to believing the opposite. No one is going to pay for anything. There’s nothing to be paid for. If doctors have wronged you, that’s a personal problem. It doesn’t have anything to do with Morgellons. There is no Morgellons, period!

TC

S Bione-Dunn says:

http://en.wikipedia.org/wiki/Ideas_of_reference

Smileykins says:

Topic: Morgellons-and-Neurotic-Excoriations

Excerpt from johnboy’s comment #14:

July 22nd, 2006 at 10:58 pm

I would like to quote from an article I just read which I think pertains to the seemingly futile efforts of some of our more compassionate bloggers to try and help the sufferers: “you can’t reason people out of something that they didn’t arrive at reasonably in the first place”.

Gillian says:

http://www.youtube.com/watch?v=El9RZvbXIj4

Get a LIFE Tallcotton!!

Gillian says:

Smileykins Says:
November 28th, 2006 at 1:53 pm
Gillian, you’d said that you were in withdrawal and had solved your mystery, or so I’d thought.

I am not in withdrawal. I was merely pointing out that my symptoms could well be related to useless psychiatric drugs I should never have been put on in the first place.

I’m sorry, but I have said, numerous times, that if a patient is unable to be responsible for themselves, which includes effectively communicating with their physician(s), that they need a health care advocate who can do it for them.

Here we go again. You love to dictate don’t ya Smiley. Stop sucking up the arses of the medical profession ok. Patients, including myself are not at fault. I have never had trouble communicating my needs to doctors. Tell me then, how do you teach a doctor to get his head from up his arse hey??

I also think that people who don’t know any better are the “we”, in the excerpt you provided, who stereotype drug addiction. There are good doctors, and there are bad doctors. If a patient is not savvy enough to know the difference, for whatever reason, yes, sometimes they will end up suffering consequences. Everything falls back to personal responsibility for ourselves. It is truly misfortunate that living in the world presents so many difficulties for some people, especially when they are vulnerable, and have no one watching out for them. It’s extremely sad.

Savvy??!! Smiley you make a doctors visit sound like going out to war! Do you think we are all as stupid as TC??

And a complete “know all” like yourself??

Let me think now hmmm, who would go to such great lengths to want to debunk Morgellons Disease??

Maybe the person who invited it? Just a thought.

Let me tell you right here and now, you ain’t going to make me look a fool on this side of the world.

I have been USED and ABUSED since learning of Morgellons.

Is that why you are so concerned with me “wanting to get even”??

Don’t panic love, I am not that sort of person.

People are ill, from a variety of causes, all, creating similar experiences for them.

I could have told you that 2 years ago, but someone kept talking bloody fibers to me all the time.

Smelly go back to the box you just crawled out of please. Yes I am defensive, and angry. You try living with a selfish alcoholic, and dealing with a deluded medical system. Not much left you know when one has lost just about everything thanks to the birth of Morgellons.

Smileykins says:

I know, we can have a trials & tribulations contest!!! If you can’t grow up, stop complaining.

tallcotton says:

Gillian,

No one is making you look like a fool, but you, and that’s because you are a fool. You’re also mentally ill. Everyone but Morgies can see that, and that’s because they are mentally ill too. You people are totally transparent to everyone from the CDC on down. You had better reinforce your delusions some more. If you don’t, the CDC’s report will bring your world of fantasy crashing to the ground.

TC

tallcotton says:

James,

If you’re whole household is delusional, I’m very sorry. That must be rough on the neighbors.

You said that you are a scientist, and yet, you indicate that you are also a Morgie. Don’t you realize that it is impossible to be both Morgie and “Morgellons” scientist. The two are mutually exclusive.

Scientists form logical conclusions based on evidence. Morgies do not! Anyone can be a Morgie, simply by believing they have Morgellons. A Morgie that thinks he’s a scientist is delusional.

Of course, Morgies are already delusional about a lot of things. Well, so much for the here and now.

As far as the hereafter is concerned, I suggest that you worry about how you fare on Judgement Day, and not be concerned about how things turn out for Smileykins.

You may depend on luck, but she isn’t. By the way, she’ a Miss, not a Mister. She’s also one heck of a fine woman.

Good luck with your problems.

Tall Cotton

Smileykins says:

Oh, James, I’m sorry. That wise crack up there about the trials & tribulations contest was not aimed at you. Rather than being someone who has a need to share my life history, on here, I’d said that in response to:

Smelly go back to the box you just crawled out of please. Yes I am defensive, and angry. You try living with a selfish alcoholic, and dealing with a deluded medical system. Not much left you know when one has lost just about everything thanks to the birth of Morgellons.

tallcotton says:

The CDC is not investigating the Morgellons issue because it’s a disease. They are investigating it in an attempt to put the Morgellons nonsense to rest, once and for all. The members of the CDC didn’t just fall off the pumpkin wagon. They know exactly what is going on. I’m done trying to get anything into that hard head of your’s, Gillian. You don’t want to get well, and that’s obvious. Anything else you hear from me is for the benefit of others.

TC

Gillian says:

Tallcotton said: Yes, Gillian, it’s just you. His post made perfect sense. Why is James’ health information tripe, and your’s not tripe? Havn’t we talked enough about Gillian to suit you?

Dear James, upon going back and reading your post #131, I would like to apologise for saying that your health information was “tripe”. Bottom line to be honest, reading about the alcohol is what set me off and made me angry, and as I read on through your post I could not absorb anything. I could not help but think about my own frustration upon living with an alcoholic. James I am sorry if I hurt your feelings, I did not mean any harm to you whatsoever, and I do hope your health improves. Good luck.

Gillian says:

Smileykins said:

This is a movement of misled, disturbed, patients who followed a self-admitted, suspected by doctors, MSBP mother (she later came forth, stating) to force the CDC into investigating why these particularly “unique” patients are the ways they are. It could have all been prevented, if anyone had the capacity to know better.

Yes, and thank goodness fot the CDC. The report about Hulda Clark is a very shocking read. The autorities are the only people that can sort this mess out once and fall all. I’m so glad the CDC stepped in.

Michael says:

“Disinfo” is a useful tool for one who relies on conspiracy theories to support their world view. It allows you to dismiss any fact that hurts your belief as simply a lie, which then strengthens your belief.

How sad it must be, to live in a world where there are no facts, where nobody is to be trusted, where every little thing is suspicious, where millions of people are conspiring against you, and where there is nothing you can do about it.

What’s saddest is that after living like that for years, how can you possibly admit you were wrong? Are you doomed to be a conspiracy theorist forever? I can see young people growing out of it as they become more aware of the world – but older people? They will live in irrational fear forever, wasting their lives.

Gillian says:

Liz said:

This disease is for real and is a biological UN/NATO weapon that is sanctioned by NASA, the EPA, the AF, FBI, etc. With all those agencies making such a strong effort to attack any and all activists who attempt to shed light on this subject, it’s pretty easy to see through the fog.

Hello Liz,
I am sorry to hear that you see things the way you do. I hope things improve for you. Take care.

Gillian

tallcotton says:

Liz said…

Anyone who bothers to spend this much time nitpicking about this disease is so obviously disinfo I’m tempted to laugh outloud.

I’m glad that you realize that the information put out by the Morgellons Believers is bogus. Yes, they do spend a lot of time obsessing over a disease that really doesn’t exist.

I’m soory that you having trouble with your computer’s security logs. The Morgies go to great lengths to keep the truth from being known. I’m glad that you realize that the disease isn’t real.

Tall Cotton

Smileykins says:

Dan Rutz shouldn’t be able to recall anyone named Tam-tam, either. Not in the real world we all live in.

Smileykins says:

I wholeheartedly agree. And, the fact that so many fell for, and have shared, the carefully devised videos, too, and believe that this man should recall them, is even more proof of the severity of some of the cognitive deficits morgies have. The real world can’t be a world of science fiction just due to their beliefs, and firmly protesting that it is.

tallcotton says:

Something moving. Is that your proof? The video is so out of focus, I’m not even sure if I was looking at the right thing. I’d be embarassed to show that video to anyone, much less use it as evidence of anything.