Controversial Diseases

Sarah Bione-Dunn says:

I would reckon that PMMD is part of a stress-diathesis model. People with a predisposition to neurdermatisis, emotional hypersensitivity, fatigue, confusion, paranoia, are pushed into PMMD from the change in hormones and accompanying symptoms that often accompany menstruation.

Smileykins says:

I had a lot of whiplash, in the past. That’s how I developed bone spurs that almost paralyzed me, I used to get PMMD, once in a while, and I’d see actor Gary Busey looking back at me when I’d look in the mirror. I look nothing like him. My daughter occasionally gets it too, and she swears she looks just like Robert DeNiro. No, she doesn’t. My mom laughed at us, until she later confessed she used to do the same. She’d thought she looked like Morley Safer, from CBS. Hahahahaha!!!

SarachConnor (abac68) says:

Michael – “I think I love”!!!! LOL! Been waiting for this one!!

I have been saying for 6 years I have “Multiple Chemical Sensitivity” BUT no I was wrong …. NOT!!!

I haven’t read all the links yet, but can’t wait, coz I got some real funny stuff to share, a bit of goss so to speak. Nothing sinister to do with Morgellons, just about me and my past experiences which are relevant on this topic.

I just got so excitted after a quick read I had to reply. Well done.

SarachConnor (abac68) says:

WOW!! PMMD – can I sign up to be a volunteer for further research!!!

Amazing stuff – do you know this is a medical break through – in my eyes anyway.

You know I can remember hearing stories from others – what it must have been like for females many years ago. Things like, not being able to wash your hair during mensturation, can’t think of any others at the moment, but I know it was a lot of “old wives” tales type stuff, but it must have been horrific for some woman, with no one to talk to or turn.

SarachConnor (abac68) says:

Premenstrual dysphoric disorder (PMMD) – Back in 1992 I travelled overseas, spent 3 months back in the UK. I actually went back to my old home town and visited the doctors surgery I visited when I was a kid. Calm down – I was not doctor shopping!! I had seen a gynaecologist at the Women’s Health Clinic in Melbourne (public/medicare)for my check up. I had started with a couple of unusual symptoms, one of them being hyperpigmentation on my face, my skin was perfect (babies bum stuff), but this damn pigmentation was awful. The folk I worked with at the time thought I was pregnant because I had the “mask” of pregnancy.

Anyway on with the story – this doctor suggested that when I go on my overseas trip visit a doctor and get a prescription for Dianne 35ED, I think it was called, contraceptive pill, because it was so much cheaper to buy in the UK. At that time “Dianne” had not been on the market that long in Aust. so it was very expensive. This is exactly what I did, BUT the really good thing for me was that I got it FREE!!!! In the UK the Contraceptive Pill was free, purely because it was recognised as a “necessity”. Also Dental was covered by the NHS when I lived in the UK. Not sure if this is still in place in the UK. I tried to have a read about it on Wikipedia but it was too heavy a read for me, boring!!

Talking about Dental – that was also free in New Zealand when I was at school. Sounds great hey?? – NOT!! we used to get pulled from the class – not sure whether it was alphabetical, or maybe “who did they want to torture that day” (I don’t like to say it too loud, but I often think it was because I was English)!!! What a friggin nightmare…. they did not use anaethestic!!! The drill sound…the pressure on my tooth, I can still remember – I was 6 and 7, how awful hey. BUT on the flip side, when I was back in NZ in 1985 I had to go to the Dental Hospital in Dunedin and have a wisdom tooth out, which had grown into my cheek!!! I was attended to by a really nice young male Dental Student. He did a fantastic job, and it cost me $10!!!!!

TexasRose says:

Professor Michael,

Can I add PMMD and MSC to my degree from the Universaty of Morgellons Watch? Think I “aced” these courses, please check for me, thank Professor.

LOLOLOLOLOL

Michael says:

The illness formerly known as neurasthenia?

ajcann says:

Chronic fatigue syndrome? Sure, some case are due to Epstein barr virus, but not all. Psychosomatic?

smileykins says:

I’m sorry, but, to me, this is an odd/amusing statement, from that Wikipedia article on CFS (CFIDS, or whatever):

Other cases have a very slow, gradual onset, sometimes spread over years. People with gradual onsets may not realize there is anything wrong for quite some time.

Fight, fight, fight, or else, let it getcha, I think.

smileykins says:

That link worked for me, TC.

“There really are physical symptoms that occur in people who are not crazy, although once they have it, it usually makes them pretty crazy,” said San Francisco Lyme disease specialist Dr. Raphael Stricker, who has seen several patients with Morgellons symptoms. Stricker and a handful of other doctors believe Morgellons is somehow related to Lyme disease because so many patients have already been diagnosed with Lyme disease.

http://www.sfgate.com/cgi-bin/article.cgi?file=/c/a/2006/06/02/MNGOJJ6JO51.DTL

There is no such thing as “morgellons disease”, and so what, if people who have Lyme disease seem to have it? People with a whole lot of other diseases “seem-to-have-it” too. Seem to have what? Silly, but extremely dangerous delusions that fibers have overtaken their bodies. That delusion has been instilled, implanted, reinforced, and heavily nourished, by the people who are behind this scam, convincing the poor people who think like that, that there is an undiscovered pathogen to blame for it. That ain’t right, and that ain’t normal. Sure, fibers, though, are very much present in people, and I wouldn’t dare deny that. It’s the inability of understanding how they got there, and the complete and utter disregard of knowing anything about human skin properties. Ill people, naturally, will be led by anyone claiming to be present for them, when nobody else seems to be. It’s wrong. It’s wrong as hell. The true conditions they have are what’s causing all of it, for them, and the freakin fibers are nothing to fear, they’re just incidental environmental fibers. Unless, a person has a nervous condition and they’re pulling out their own fibrous tissues.

Michael says:

The link elves fixed it.

southcity says:

Ok so call it “UNIDENTIFIED DERMATOSIS SYNDROME” Per the state of Georgia. I could care less what the hell its called as long as people pull their heads out of ass and get busy working on this problem.

http://health.state.ga.us/pdfs/hazards/UDS_SURVEILLANCE_DATABASE.pdf#search=%22unidentified%20dermatosis%20syndrome%22

NEW SURVEILLANCE DATABASE
“UNIDENTIFIED DERMATOSIS SYNDROME”
Abstract: There have been reports to state and local public health agencies from residents
throughout Georgia of thread-like skin parasites in their skin, and a related set of symptoms.
In response, the Unidentified Dermatosis Syndrome (UDS) Surveillance Database was
developed and is maintained by the Chemical Hazards Program, Environmental Health Section,
Georgia Division of Public Health. It is intended to build and maintain self-reported symptom
surveillance capacity.
Definition
The Chemical Hazards Program defines “Unidentified Dermatosis Syndrome” as reports of tiny
bugs that look like black specks, or thread-like parasites in the skin; or of “something” biting,
stinging, or crawling in the skin, and an accompanying set of symptoms including itching, visible
sores, and fatigue.
Hypothesis
The Chemical Hazards Program will examine whether:
1. parasites may be causing the symptoms, and
2. individuals may share hypersensitivity to toxins produced by certain fungi/molds present
in soil causing specific neurotoxic effects.
CURRENT ACTIVITIES: PHASE I
Surveillance Database and Initial Survey
Beginning March 1, 2006 we will administer a survey to collect data from individuals reporting
specific symptoms of UDS. Chemical Hazards Program staff is contacting Georgia residents
following referral from various state, district, and local public health agencies, health care
providers, other professionals, and individuals for voluntary participation in the survey.
Beginning September 1, 2006 Chemical Hazards Program staff will analyze the results of the
survey and decide which health education activities, networking strategies, referral resources,
environmental sampling, or medical interventions will best meet the needs of the survey
participants. Reports generated will contain grouped information only, and will not contain any
personal identifiers such as name or address.
The results of the data analyses are expected to be available to the public in late fall 2006. The
UDS surveillance database will remain in place and continue to gather information about cases in
Georgia.
Survey
The UDS survey requests basic demographic information: age, gender, race/ethnicity and
education level. Questions about their home environment and daily activities, including length of
residency, soil conditions, outdoor hobbies, employment history, and allergy history are
included. Respondents will be asked in detail about their symptoms, doctor visits, current
medications, health status of other family members and pets, and attempted and/or successful
treatments and symptom relief.
Data Management and Entry
CHP staff will collect, manage, enter, and analyze all data from completed surveys. Survey data
will be entered into an Access database and cross checked for validity, reliability, and accuracy
by random verification of entered data and other accepted methods.
Data Analyses
Access 2000 database software will be used for data analyses. Survey questions will be analyzed
and compared using analytic techniques appropriate for community survey design. Univariate
analyses will generate descriptive statistics to characterize data from the survey. Bivariate and
multivariate analyses will assess whether trends and relationships exist among survey responses.
ArcView 9.0 software will be used to map/illustrate any trends and relationships.
If trends and relationships are found to exist and are determined to potentially be a result of
parasites and/or exposure to specific fungi present in soil, medical intervention and/or soil
sampling recommendations will provided to appropriate agencies. For more information, to refer
individuals, or to be considered for participation in the survey, please contact:
Jane M. Perry, Director
Chemical Hazards Program
Georgia Division of Public Health
Atlanta, Georgia
(404) 657-6534

smileykins says:

I’m sorry. That wasn’t nice, and I didn’t mean that. Please forgive me.

tallcotton says:

For those who don’t know, you can click on the photographs above, and get other stories. The third picture offers a repeat of “Some PMMD Symptoms”, but the first two have different information.

tallcotton says:

Uh-oh, the boss did it too.

Sarah Bione-Dunn says:

Hey Southcity,

I’m *almost* a fan of “unidentified dermatitis syndrome.” That works. It doesn’t add a name, a history, and questionable background to an unknown physical condition.

I still don’t think it exists as an independant condition, but I’d be satisfied with the UCS method of putting the horse before the cart.

texastar says:

hey buggzy, heard from bb lately?

smileykins says:

Texastar, I’d asked you something, twice, under the Factitious Disorders topic, that I would still like to know, please.

When you’d said to Michael:

Several doctors have seen and reported in the media events as to seeing the fibers. quit reading off of last months menu and present some meat and potatoes instead of your unfounded spun, selfserving verbage.

I’d commented:

We know of Drs. Casey & Wymore, and Smith (”victim”, also) from televsion-land. Elsewhere, who, other than, Harvey, Stricker, Smith (again), all in on it, and Squirts (sorry, Schwartz), and Bev Drotter (”victim”, also).

Do you mean “several doctors”, other than them? They hardly qualify.

Michael says:

Texastar, readers care what Sarah thinks because she expresses her ideas in an intelligent, polite and thoughtful manner, with clear exposition, and sound reasoning. This is independent of her credentials. If you wish to be taken seriously, then I suggest you try to emulate her communication style.

Personal attacks are pointless. If you wish to argue, then argue for or against a point, or for the veracity of some claim, or the promotion of another. To do otherwise is simply noise, and can only damage your cause.

texastar says:

hey michael,

you are the one who put so much emphasis on credientials….”a doctor or scientist.”

you consider anyone credible as long as they are saying what you want everyone to hear, reguardless of their lack of intregrity or expertness.

you should practice what you preach concerning attacking and discrediting people.

do unto others as you would have them do unto you….bozo.

Sarah Bione-Dunn says:

“you are the one who put so much emphasis on credientials….”a doctor or scientist.” ….you should practice what you preach concerning attacking and discrediting people. do unto others as you would have them do unto you…”

Funny, first my undergraduate wasn’t enough, and now that THAT’s thwarted, you’re stuffing my grad work.

I am all ears to hear your credentials (do unto others, right?).

Sarah Bione-Dunn says:

I’ve been introduced to this term:

http://en.wikipedia.org/wiki/Internet_troll

“A troll is someone who comes into an established community such as an online discussion forum, and posts inflammatory, rude, repetitive or offensive messages designed intentionally to annoy or antagonize the existing members….”

tallcotton says:

The worse they are, the less they seem to offer to help their “professed” cause.

MAFer says:

I’ve been introduced to this term:

http://en.wikipedia.org/wiki/Internet_troll

“A troll is someone who comes into an established community such as an online discussion forum, and posts inflammatory, rude, repetitive or offensive messages designed intentionally to annoy or antagonize the existing members….”

you’re pretty bright for a stupid bitch…

now let’s take a look at what you ass clowns do here… refute this all you want fuckers… but here is where your true credentials lie… not in medicine or science…

1) Avoidance. They never actually discuss issues head-on or provide constructive input, generally avoiding citation of references or credentials. Rather, they merely imply this, that, and the other. Virtually everything about their presentation implies their authority and expert knowledge in the matter without any further justification for credibility.

2) Selectivity. They tend to pick and choose opponents carefully, either applying the hit-and-run approach against mere commentators supportive of opponents, or focusing heavier attacks on key opponents who are known to directly address issues. Should a commentator become argumentative with any success, the focus will shift to include the commentator as well.

3) Coincidental. They tend to surface suddenly and somewhat coincidentally with a new controversial topic with no clear prior record of participation in general discussions in the particular public arena involved. They likewise tend to vanish once the topic is no longer of general concern. They were likely directed or elected to be there for a reason, and vanish with the reason.

4) Teamwork. They tend to operate in self-congratulatory and complementary packs or teams. Of course, this can happen naturally in any public forum, but there will likely be an ongoing pattern of frequent exchanges of this sort where professionals are involved. Sometimes one of the players will infiltrate the opponent camp to become a source for straw man or other tactics designed to dilute opponent presentation strength.

5) Anti-conspiratorial. They almost always have disdain for ‘conspiracy theorists’ and, usually, for those who in any way believe JFK was not killed by LHO. Ask yourself why, if they hold such disdain for conspiracy theorists, do they focus on defending a single topic discussed in a NG focusing on conspiracies? One might think they would either be trying to make fools of everyone on every topic, or simply ignore the group they hold in such disdain. Or, one might more rightly conclude they have an ulterior motive for their actions in going out of their way to focus as they do.

6) Artificial Emotions. An odd kind of ‘artificial’ emotionalism and an unusually thick skin — an ability to persevere and persist even in the face of overwhelming criticism and unacceptance. This likely stems from intelligence community training that, no matter how condemning the evidence, deny everything, and never become emotionally involved or reactive. The net result for a disinfo artist is that emotions can seem artificial. Most people, if responding in anger, for instance, will express their animosity throughout their rebuttal. But disinfo types usually have trouble maintaining the ‘image’ and are hot and cold with respect to pretended emotions and their usually more calm or unemotional communications style. It’s just a job, and they often seem unable to ‘act their role in character’ as well in a communications medium as they might be able in a real face-to-face conversation/confrontation. You might have outright rage and indignation one moment, ho-hum the next, and more anger later — an emotional yo-yo. With respect to being thick-skinned, no amount of criticism will deter them from doing their job, and they will generally continue their old disinfo patterns without any adjustments to criticisms of how obvious it is that they play that game — where a more rational individual who truly cares what others think might seek to improve their communications style, substance, and so forth, or simply give up.

7) Inconsistent. There is also a tendency to make mistakes which betray their true self/motives. This may stem from not really knowing their topic, or it may be somewhat ‘freudian’, so to speak, in that perhaps they really root for the side of truth deep within. I have noted that often, they will simply cite contradictory information which neutralizes itself and the author. For instance, one such player claimed to be a Navy pilot, but blamed his poor communicating skills (spelling, grammar, incoherent style) on having only a grade-school education. I’m not aware of too many Navy pilots who don’t have a college degree. Another claimed no knowledge of a particular topic/situation but later claimed first-hand knowledge of it.

8) BONUS TRAIT: Time Constant. Recently discovered, with respect to News Groups, is the response time factor. There are three ways this can be seen to work, especially when the government or other empowered player is involved in a cover up operation: 1) ANY NG posting by a targeted proponent for truth can result in an IMMEDIATE response. The government and other empowered players can afford to pay people to sit there and watch for an opportunity to do some damage. SINCE DISINFO IN A NG ONLY WORKS IF THE READER SEES IT – FAST RESPONSE IS CALLED FOR, or the visitor may be swayed towards truth. 2) When dealing in more direct ways with a disinformationalist, such as email, DELAY IS CALLED FOR – there will usually be a minimum of a 48-72 hour delay. This allows a sit-down team discussion on response strategy for best effect, and even enough time to ‘get permission’ or instruction from a formal chain of command. 3) In the NG example 1) above, it will often ALSO be seen that bigger guns are drawn and fired after the same 48-72 hours delay – the team approach in play. This is especially true when the targeted truth seeker or their comments are considered more important with respect to potential to reveal truth. Thus, a serious truth sayer will be attacked twice for the same sin.

smileykins says:

You sure do lack reading comprehension. Ya know, that certainly isn’t your only deficit, either, MAFer.

I’d like to see your credentials, if you don’t mind, TC.

All kidding aside, though, like I’ve said before, morgie people are so suspicious of the motives of others, and always seem to be really big on this “credential thing”. They aren’t concerned, at all, over the credentials of the ones they should be concerned over. The Golden Rule should not be ridiculously ordered around so much, by one not applying it, either, especially, without basis for it, in the first place.

Texastar, can you please respond to what I’ve asked, twice before, in comment number 35? Thank you.

smileykins says:

He’s got to be here, the same as anyone else who thinks that they have “morgellons disease”, because he is seeking help. MAFer, how can we assist you? Please tell us, and we will be delighted to do what we can. That’s what I have been attempting to get to, with you, and others who are here, but you will not address the history of what you have, personally, and how come you are convinced that you have “morgellons disease”.

MAFer says:

margarette… i suppose that everytime you or one of your clowns post something, i could footnote it with an index number corresponding to that list… that would be pretty easy to do other than the time constaint… unlike you clowns here, most of us have real full-time jobs elsewhere…

your last post for example… #1, second sencence… your new topics (and sbd’s too)… #2… most all of tc’s posts… #7… most all of sk’s posts… #6… and of course all of you exhibit #4 and #8 consistently with a smattering of #5 thrown in for good measure… your readers as well as yourselves… and this entire website for that matter… #3…

you have left out many cutaneous disorders to be considered… for example, the entire family of trichotic diseases… many have similarities to morgellons lesions… you also refused to start a topic on cutaneous pathogens that due the their etiology/current treatment regimens, would require mechanical/surgical debridement… much easier for tc the fuckhead to make fun of scab picking instead… that would be a #2 btw…

the question here really is not what have you ommitted?… but what have you really included?… very little obviously…

you fuckers are either diluted, are liars, or both… plain and simple…

paranoid internet poster?… me?… nah… i am just somebody who knows better… much better…

MAFer says:

tallcotton Says:
September 9th, 2006 at 1:49 pm
MAFer,

Click on your name. I think your snake-oil store is closed at this site.

Tall Cotton

hey meathbreath… aka tallcotton… when you click on my name, you are seeing a parked page… the advertisers on that parked page are placed there by the page parking company… and, everytime you click on one of those adverstiser/merchants/snake-oil saleman/whatever, you are simply advancing my click rates… thanks dumbass…

here is a great link for you einstein… you are such a fucking moron…

http://www.amazon.com/Internet-Dummies-John-R-Levine/dp/0764506749

is it bothering you?… that i own several domain names… make me an offer and they could be all yours num-nuts…

tallcotton says:

Ass Wiper,

You wouldn’t know the truth if it jumped out of a bush and bit you on the ass. Your a fool!!

Too bad your links are working now. How much money have you bilked out of Morgellons patients today?

Tall Cotton

MAFer says:

you’re right… sk has a bush… but i didn’t get any truth out of it… but i did get a bite on the ass for the trouble… thanks sk… loved it!…

not really my links there moron… again, internet for dummies… dummy…

tallcotton says:

Ass Wiper,

You’re still helping to promote their products. You’re helping them to bilk money from the Morgies. You’re all low lifes, and if there’s an idiot around here, you have proven it to be you. You’re just too stupid to realize how you come across to normal people. And, yeah, i do know. Fool!!

Tall Cotton

smileykins says:

Really, Michael, I had thought that some of the links you’d included on your blog, back in the spring, actually led to some of the things that MAFer says that you haven’t included. Bossy, isn’t he? I think the lack of control over what he has ailing him, is making him act out in ways that he wouldn’t otherwise. I wish he could explain some of what is going on. He did slam down a few words on it, a couple of weeks ago, but he’s not trying to obtain any understanding from us. We’re getting a lot, though, just as many of the morgie people provide to us, here . It isn’t helping matters for them, though, and about all it really says, is that they just don’t like people very much.

SarachConnor (abac68) says:

Michael – Very interesting the link on “trolling”.

I used to see the term “newbie” at Lymebusters – which I thought was good at the time, so people could recognise someone new and needing support. I would like to think this was true. I could not see any harm from postings to a newbie back then, all looked okay and legite to me. I guess the experts on recognising trolling would have a better idea.

Scarey stuff to be honest. You know I still to this day carry so much guilt for coming to MorgellonsWatch to fight Mary Leitaos battle by attacking Smileykins and Tallcotton.

I have never ever been this sort of person in my entire life. When I was directed to Morgellonswatch I had no idea about blogging and was rather fearful, but my “programmer” thought I was doing a fine job!!! NOT

So once again SK & TC I do hope I am forgiven for this. I never wish any harm on either of you okay, or you Michael.

SarachConnor (abac68) says:

Thanks TC – that does make me feel better. You have said in the past that you suffer I think Schziophrenia (sorry bout speling). Well my experience with these people in the past in my personal life has been nothing more than positive. I have always found them to be most interesting and highly intelligent. My great gran apparently suffered this disease, and from what I have been told, it was very hard and very sad for her. She basically became a prisoner in her home, and tended not to communicate with anyone.

It is good to see that Mental Health has come a very long way since then and people with a mental illness without an underlying physical ailment, are receiving the appropriate treatment and RESPECT.

SarachConnor (abac68) says:

Very good story.

I have and still do follow through on all the advice given to me by my treating physicians. I feel what created a “rift” for me with the medical community was when I first found the MRF website and was taking this information, as well as a letter from Leitao.

Looking back I wish those medical people had of given me their “personal” opinion on the situation. You know tried to make me see what could really be happening. BUT they chose not to.

Mary had programmed me to be rather aggressive to a couple of medical doctors, which has never been my approach before. These people were not upset with me, I could see that they felt sorry for me and my distress. (Especially given the fact that I had worked with them in the past).

Even though I had given a couple of medical folk MRF info I had also added that I found the info. by Dr John Martin interesting, and said that maybe I had some type of stealth virus, and also gave them his information. So at least when I was under the infectious disease unit and dermatology psychiatry at a Melb Hospital, they took me seriously to try to figure this out. Of course at the time my blood work showed Rickettsiosis and elevated CRP & ESR, chest x-ray clear. Because I had not responded to one course of Doxycycline for the Rickettsia I was given a second cause reluctantly. The hospital could do no more for me. I did the Psychiatric inpatient stay for 3 days, and their final conclusioin was a physical illness as the underlying cause – but could not determine what is was. But they also felt that I was being severely effected by the Lexapro and that my dose of 40mg daily was very questionable, they did point this out to my treating shrink, but nothing changed.

You see Rickettsia in Aussie is treated purely with one course of Doxycycline, end of story. This is not a reportable disease, and I could not find any info. within aussie on the internet as to a different treatment regimen for a person suffering chronic rickettsiosis of the spotted fever group which has gone untreated or detected for many many years.

I carry all of these little buggers : R. australis (Queensland tick typus), R. honei (Flinders Island spotted fever), R.conorii (Meditarranean spotted fever), R. sibirica (North Asian tick typhus), R. rickettsii (Rocky Mountain Spotted Fever), R. akari (Rickettsial pox). Positive titre reading March 2005 was 512 for all and further tests July 2005 showed positive titre 256 for all.

Had I continued with the MRF rubbish and not looked after me health first I think I would be dead by now. Hence to say I did put my health issues first but still carried on the MRF rubbish, which has definitely added to further worsening of all of my symptoms.

SarachConnor (abac68) says:

Sarah Bione-Dunn Says:

September 8th, 2006 at 8:17 am
Been thinking a little more about PMMD and about cross-cultural studies. Women in China do not report menstrual distress (cramping, bloating, emotional distress). Now I’m leaning toward PMMD being a Western construct, but then again, I’ve never seen Robert DeNiro in the mirror (yeegads!).

These are all contraversial topics. Chronic Fatigue Syndrome, I found to my surprise, is still a contraversial disease.

http://www.kidshealth.org/parent/system/ill/cfs.html

The more I read about it, the more I read it has similarities with “Morgellons.” For example, it has no known cause, it is only a list of symptoms with few being common in all cases

Dear Sarah – Do you know the local health centre in my area now has new pamphlets on CFS – the only thing missing is lesions and fibers.

Don’t know a great deal about Chinese culture and women, but the little I do know – they seem to have a really hard life, and a lot of women commit suicide by 30 yrs of age. We really are very lucky in comparison.

Michael says:

Texastar was not really trolling with the binary/code comment above, he was just trying to use a clever analogy that did not really fit.

And thank you for your kind words. I genuinely do want to help people, and I am who I say I am.

I’m glad you are continuing to do well with your health.

Aherah says:

“And thank you for your kind words. I genuinely do want to help people, and I am who I say I am.”

I thought you were just having fun, Michael, like you said (a hobbie?). You thought maybe you might help the “marginal” ones, right? Sarach, do you have a combination of symptoms described on the MRF website including fibers that come out of skin/lesions? How is it that all these people are “programming” you? You do realize that Michael is a computer programmer. Apparently HIS programming techiques work pretty good on you too.

Who are you? Who Who. Who Who. (sing it with me now!) Who are you? Who Who. Who Who. Now if you were Dan, I’d be pissed that you were spending so much time here and not working!!!! Ya know, there has been a tremendous amount of B.S. landing on your blog lately. Yes, S.B. espouses some serious B.S. Apparently she goes to a school in which postmodern thought is NOT taught. She sure seems to believe in her ability to diagnose thousands of people she has never met and then package them in some profoundly unflattering labels. She has earned the title of Queen of B.S. We’ll forgo that argument for another day though; I’m too busy to play these days. Just checking in Michael.

ah

SarachConnor (abac68) says:

I am in no position to comment on SB – that does not mean to say I agree with all her articles. I can joke and have fun about it, but I ain’t giving myself a title of any of them, I don’t need a damn label.

Aherah – Maybe Michael could be just another extention of the MRF working under the radar??? Lots of good stuff has been discussed on here – which will in turn fill the back pockets of lots of ‘experts’ with their fabricated psychiatric illnesses.

I may be a victim of Mary Leitaos insane Morgellons Disease but I am not completely blind, just act that way at times.

SarachConnor (abac68) says:

So Michael – Can I ask you is this “Morgellonswatch” a case of “Good cop versus Bad cop”.

I am all for not using the term Morgellons Disease. We all have lots of fibers in our body, which is the commenality which has brought us together.

The fibers distress me no end, especially the way in which the pathogen in my body and skin – will utilise these fibers in such a way to hold the skin in a particular position, twist the skin into a circle and so on.

I have never found a medical document to date that describes exactly my physical symptoms nor has any doctor I have seen. Hypothetically, if I were the only person in the world with these symptoms, it certainly is something new to the medical establishment in this part of the world.

SarachConnor (abac68) says:

By the way I did register with Medscape – good website. I had to slightly change my user name of SarahConnor because it had already been taken. I would much prefer that it was spelt “Sarah” rather than “Sarach” which is what comes up on this blog site. Especially since the arrival of the new “Sarah” and not forgetting her timing also, becomes confusing at times for readers I guess.

SarachConnor (abac68) says:

The following websites trouble me – Morgellons Research Foundation, Lymebusters, Morgellons Group, Biology Online – are you all collaborating?? Sure has felt that way in the past, and at times still does.

If this is a way to get the word out to the CDC to enable them to take action – GOOD!!! If it isn’t then I would say we have some seriously “cult” issues on message boards and websites regarding Morgellons Disease.

SarachConnor (abac68) says:

Smileykins said:

He’s been an enigma, himself, with me having wondered if he’s a true person convinced that he has “morgellons disease”, or whether he’s just another plant to draw more vulnerable people in on it. But, that is the thing with this, of course, because both alternatives pretty much equal the same.

Well on that note Smileykins I think the sooner someone tells us what this “Morgellons” is the better off we will all be.

Michael says:

Nope, I’m all alone here SarahConnor, except for those two articles SB wrote. I’m just a retired computer programmer doing this alone.

I don’t think any of the websites you mentioned are really collaborating. But there are probably some individuals who post to two or more of them.

What people say on the internet is meaningless in itself. Look at the evidence, and see for yourself what is right.

Aherah, good to hear from you again. It’s a pity you can’t stay around and chat.

SarachConnor (abac68) says:

Michael said: What people say on the internet is meaningless in itself. Look at the evidence, and see for yourself what is right.

*********************************************************************

You are not wrong on that one Michael.

*********************************************************************

Why is it that alot of people reporting to have Morgellons (victims) are having a lot of computer issues?? ie. internet users attaching themselves to msn hotmail contact lists, as well as a massive increase in junk emails that never go to the “junk” box but the “inbox”. All I receive in the way of emails these days is rubbish, I just don’t seem to get what I used to get.

Skype had to be installed on this computer not because Cliff Michelson told me on the phone to do so, BUT because the person who owns this damn computer needs it for his job, his boss asked him to put it on.

And already today – someone has intercepted and come online asking for Tony by his full name during my blogging here. He was not happy about it at all.

So far for the month of September – 15,370 hacker attempts on this pc in one week – already today there has been some 340 attempts.

dedicated66.thehideout.net has been trying its guts out for a long time to hack into this computer ping trace, Melb – USA sunnyville, new york.

Taking a chain saw to this computer is looking pretty good I think!!!!

SarachConnor (abac68) says:

Michael Says:

September 10th, 2006 at 12:13 am
Nope, I’m all alone here SarahConnor, except for those two articles SB wrote. I’m just a retired computer programmer doing this alone.

So Michael – do you choose the topic of the day so to speak ie. “Occams Menopause” etc etc in other words do you google the topic and take it from there??

I am aware SB gave you those two topics and asked for them to be posted. Why do you think that is??

I feel that introducing more and more “fabricated” psychiatric illnesses – is just another smoke screen to confuse the entire F@$# out of everyone.

Why keep adding fuel to an already controversial issue?? Post away SB as long as you understand that your topics are purely to give us something to talk about, inbetween dealing with real issues.

I have said it from the word go – Why the hell does our body suck in environmental fibers??

SarachConnor (abac68) says:

Michael Says:

September 10th, 2006 at 12:45 am
You should try running something like ad-aware:http://www.lavasoftusa.com/software/adaware/

I don’t think Morgellons victims get more spyware than average. Perhaps they are just a tad more suspicious.

Michael – you throw that bait and I come a running don’t I. We are not more suspicious. I live in a house with someone who couldn’t give a rats bum about Morgellons and he has told me that this has happened via msn hotmail, I said – thank you I thought it was me going mad!!

I am not a computer genius at all, I can move a mouse and work a keyboard, anything more goes over my head.

SarachConnor (abac68) says:

Michael – Your computer programming skills are starting to urk me a little.

Ad-ware?? Do you not think that most intelligent people with a pc try to protect their computer from hackers??

I don’t think even the chain saw would stop the majority of them. Scratch my back and I’ll scratch yours – is certainly something that has come to light with Morgellons. All the parasites have been unearthed and in attack mode. We are not alone – my god the aliens have landed!!

smileykins says:

Skooze me, I got my “former & latter” mixed up:

*The former may initially appear as “urticarial-like”, or as “pimple-like” with or without a white center.

CORRECTION: That means the spontaneuosly appearing lesions, are initially just hives, or zits.

So? RED FLAG

smileykins says:

Uh-oh. So, I can do this one again too…

*Even when not self-generated, lesions often progress to open wounds that heal abnormally and usually incompletely. (e.g., heal very slowly with discolored epidermis or seal over with a thick gelatinous outer layer.)

That can also be taken to mean, “self-generated”, as in, for instance, lets say, a systemic disease like lupus erythrematosis, occuring in someone who is also a diabetic. Their “self-generated” skin wounds would progress, and be difficult to heal, or slow to. Then, that second half of that statement would pertain to scab jackers.

Mercy.

smileykins says:

I still see another one….

*Skin lesions, both spontaneously appearing and self-generated, with intense itching. The former may initially appear as “urticarial-like”, or as “pimple-like” with or without a white center. The latter appear as linear or “picking” excoriations.

“Former” aka “spontaneously appearing” = “urticarial-like”, which would mean breaking out in hives

“Self-generated” aka “the latter” can also be referring to the later part of that description = “pimple-like with or without a white center”, which is also “the latter”, that is involved in excoriations and self-inflicted skin injuries.

The wording is designed just right to fit everyone perfectly, backwards and forwards, former and latter.

RED FLAGS OUT THE YING-YANG. Good-night.

SarachConnor (abac68) says:

I feel that introducing more and more “fabricated” psychiatric illnesses – is just another smoke screen to confuse the entire F@$# out of everyone.

Why is the word F@$# made into a link for an email?? We all know what the word is don’t we?

SarachConnor (abac68) says:

One more thing Mrs BioDung – Your somatoform disorders and factious diseases, and ya bdd and ya ocd and ya stick it up ya bum chum is only the cause of an UNDER LYING DISEASE.

Oh also you want my theory on your Munchhausens syndrome via proxy – it really is a syndrome and yes it is involved in Morgellons BUT not the horrible, cruel way that is described in the rubbish I have read recently. This also has an UNDER LYING DISEASE.

What causes my ma to fall under this category of yours and alike? The fact that she loves me, and I do know that she does have a disease and physical one which which feeds the anxiety in her. The body is one big ORGAN… The brain and organs communicate….

So to break it down for you dumb ass woman get anxious and so do men. Anxiety is a pain which can not be described okay. What causes anxiety? No idea. BUT anxiety is connected to just about everything in life just like stress. What causes stress? No idea.

Find the pathogen that causes stress and anxiety and then maybe you might have something to blow your horn about. All that I have read from you is nothing more than premature ejaculation. Time go see your pharmaceutical buddy to top up on the viagra, get him to give you some freebie post it notes and pens. You may have earned yourself enough frequent flyer points for a free holiday….congratulations.

You know I wouldn’t feel quite right about a free holiday…knowing that I had given psychiatric medication to certain patients when I shouldn’t have done or maybe even pushed the boundaries a tinsy on the dosage just to see what happens hey>>

SarachConnor (abac68) says:

Michael – Why is it you once said “the path of Morgellons has already been set”.

They are pretty powerful words don’t your think?

Especially given the amount of time we spend doing this blogging.

Please answer me this – Why is it that a document that was sent to my computer via the MRF from the CDC (Letter to CDC patients) – when I open this and click on print – in the print folder I can click on the document to print it BUT I can also print on about 250 something more and these documents are all websites that I may have visited, or documents I may have received with picture attachments. Is this normal? because I have never seen it before.

Why should that document from the CDC have websites visited by myself in the print folder command?

SarachConnor (abac68) says:

You know seeing the words RED FLAG being thrown about in that Case Deinition reminds me of Lymebusters.

Did you catch all those RED FLAGS Mrs BIO BIG BUM. Does this correlate with all the other programming you and every one else has done here today??

Won’t wash with me buddy.

“Twenty-Five Ways To Suppress Truth” – and you call yourselves caring human beings.

SarachConnor (abac68) says:

Artificial Emotions – “thick skinned” – well stop god damn stratching Michael and get to the doctor.

Sarah Bione-Dunn says:

Dear Sarah Conner,

Nothing validates and justifies your concerns like name-calling and senseless, incomplete sentances, in my opinion. 🙂 Good show. Your comments reminds me of a time I was volunteering with a five-year-old who wanted cookies, not fruit, for snack and called me a poo-poo-head.

I’ve read your comments a few times through, and I can’t find what your complaint is with me. Instead, you seem to have problems with

1) manipulative, controlling men
2) negative, false concepts about Chinese women
3) psychiatrists
4) facts from textbooks

Your comment about Chinese women is, except in rare occasions, wrong. I’m sorry you dislike facts. Furthermore, I am not a man, nor a psychiatrist. 😉

If you’re angry, instead of acting like a child and lashing out at someone you have admitted you don’t know,

“Mrs [Bione-Dunn] – since you are a [student of psychology] you really do make it so obvious that one of the major issues with Morgellons has been and still is the Dermatology and the [mental health] community. Not the patient BUT YOU DAMN DOCTORS.”

I had to correct some basic errors in your comment to make it legitimate in the first place, but, the patients are very often the problem too. If they would accept a diagnosis, pursue treatment, and take care of themselves, instead of hating doctors and self-medicating with bleach on their skin or worse, they might actually get better.

“Who, What, Where, Why, When & How???? BIG NOSE!”

I want you to go back and read that post you wrote. Are you able to write it again so it makes a coherent statement? Or is this a statement against my Italian genes, that I have a big nose?

I will continue with a new post….

Michael says:

SarachConnor (abac68) Says:
September 10th, 2006 at 4:45 am

Michael – Why is it you once said “the path of Morgellons has already been set”.

They are pretty powerful words don’t your think?

What I said was:

July 12th, 2006 at 7:14 pm e

Well, the path of Morgellons is all planned out, and this is a document that is going to be released in 2016, to alleviate global panic.

Or, it’s just the CDC case definition for CFS, with some search-and-replace.

http://www.cdc.gov/cfs/cfsfullcasedefinition.htm

It was my way of illustrating how silly some of the conspiracy theories are – I gave two explanations, you choose which one makes sense, then ask why you choose that one.

The original post this was in (CDC Paper on Morgellons), was one where I had taken the most recent CDC position on Chronic Fatigue Syndrome, and replaced “CFS” with Morgellons. My intent there was to illustrate how similar CFS and Morgellons are, and also illustrate some of the problems in studying diseases with no diagnostic markers.

If anyone missed that post, I recommend reading it, and the linked paper.

http://morgellonswatch.wordpress.com/2006/07/12/cdc-paper-on-morgellons/

http://morgellonswatch.wordpress.com/about/morgellons-disease-a-comprehensive-approach-to-its-definition-and-study/

Michael says:

SarachConnor,

So Michael – do you choose the topic of the day so to speak ie. “Occams Menopause” etc etc in other words do you google the topic and take it from there??

I don’t do a topic every day, I just write something when it occurs to me, or when there is “news” (like the ABC thing). And yes, I basically just Google, and write my thoughts.

I am aware SB gave you those two topics and asked for them to be posted. Why do you think that is??

She’s interested in the subject, because she studies things like Munchausen and DOP, which is often associated with Morgellons.

Michael – Your computer programming skills are starting to urk me a little.Ad-ware?? Do you not think that most intelligent people with a pc try to protect their computer from hackers??

Most people do not. I was just trying to help.

Why is the word F@$# made into a link for an email?? We all know what the word is don’t we?

It’s because it has an ‘@’ in it, any bunch of characters would do the same, you@seewhatImean?

Why should that document from the CDC have websites visited by myself in the print folder command?

Things go wrong with computers all the time. Occam would say it’s just your computer messing up, since that’s the simple explanation. Of course you could say it’s all part of a conspiracy, or that angels did it, but that’s introducing extra entities. The explanation that does not introduce new entities should be picked as the most likely, all other things being equal.

Artificial Emotions – “thick skinned” – well stop god damn stratching Michael and get to the doctor.

The “25 ways” document you are referring to can be applied to EVERYONE if you use your imagination. You could look at your own posts, and it would apply to you. It’s a bit like a horoscope.

tallcotton says:

Sarah Connor,

Hang in there. Everything’s gonna be okay. It takes a while, and you’ve already come a long ways.

Tall Cotton

smileykins says:

Another thing, Sarach. You have courage. Jeezelousie had mentioned it to you previously. You’re doing fantastic, and we’re very proud of you, too. You’ll continue discovering more of who you truly are, and that having been a member of a group, who cannot help allowing utter chaos to reign supreme over them, will not help you in your personal life. You grabbed onto the lifeline yourself. Do not let anybody put you down and try to drag you back into their misery.

Twenty-Five Rules of Disinformation

1. Hear no evil, see no evil, speak no evil
2. Become incredulous and indignant
3. Create rumor mongers
4. Use a straw man
5. Sidetrack opponents with name calling, ridicule
6. Hit and Run
7. Question motives
8. Invoke authority
9. Play Dumb
10. Associate opponent charges with old news
11. Establish and rely upon fall-back positions
12. Enigmas have no solution
13. Alice in Wonderland Logic
14. Demand complete solutions
15. Fit the facts to alternate conclusions
16. Vanish evidence and witnesses
17. Change the subject
18. Emotionalize, Antagonize, and Goad
19. Ignore facts, demand impossible proofs
20. False evidence
21. Call a Grand Jury, Special Prosecutor
22. Manufacture a new truth
23. Create bigger distractions
24. Silence critics
25. Vanish

SarachConnor (abac68) says:

Sarah Bione-Dunn Says:
September 10th, 2006 at 8:45 am
Munchausens syndrome by proxy is the falsification of physical symptoms for the cruel, premeditated abuse of children. MSBP often involves drugging children so that they vomit or become unconscious or have horrible headaches, so that the parent abuser can receive attention…. but this is NOT horrible and cruel?

MSBP is also one of the most lethal forms of child abuse– but it is not horrible and cruel?!

If this is true, SarahConner, steps must be taken to have every child and every person who is a parent registered to have Morgellons to have their children taken to safety. So tell me, is it true that Morgellons is linked to child abuse and you don’t think there’s anything wrong with that, yes or no?

**********************************************

There is NO evidence to date that Morgellons is linked to child abuse.

Show me some evidence and then we can discuss it.

I never have and never will agree with child abuse.

SarachConnor (abac68) says:

Michael Says:

September 10th, 2006 at 9:54 am
The “25 ways” document you are referring to can be applied to EVERYONE if you use your imagination. You could look at your own posts, and it would apply to you. It’s a bit like a horoscope.

Yes I do find some of my posts rather funny when I read back. I call it an “online tantrum”.

The “25 ways” that apply to me is purely for the truth.

SarachConnor (abac68) says:

Michael Says:

September 10th, 2006 at 9:54 am

“Why should that document from the CDC have websites visited by myself in the print folder command?”

Things go wrong with computers all the time. Occam would say it’s just your computer messing up, since that’s the simple explanation. Of course you could say it’s all part of a conspiracy, or that angels did it, but that’s introducing extra entities. The explanation that does not introduce new entities should be picked as the most likely, all other things being equal.

***** Okay Michael – Dolly did it!!

SarachConnor (abac68) says:

Michael – Did you have a read of this link? It is really interesting hey?

http://www.cdc.gov/ncidod/EID/vol8no9/01-0535.htm

SarachConnor (abac68) says:

Before I found the Morgellons Research Foundation website, my research began with these, purely because of my symptoms.

http://en.wikipedia.org/wiki/Smallpox

http://en.wikipedia.org/wiki/Syphilis

http://en.wikipedia.org/wiki/Vaccination

SarachConnor (abac68) says:

Michael – You may find this interesting.

http://members4.boardhost.com/Kritters/msg/2046.html

SarachConnor (abac68) says:

I have tried to do this about 6 times under a different heading on this blog also, and it will not let me do it. Then when I tried to just put the link in on its own, a message from word press said – duplicate – I think you have already said that. Can you look into this problem please.

Thank you.

SarachConnor (abac68) says:

When I saw the Dermatologist and told him about my doctor being able to pluck fine hairs that where deep in the dermis, I also mentioned that I had had Erysipelas as a baby. I thought by mentioning this it was away of applying logic to my skin symptoms.

He blew off both issues.

Fine hairs growing in breast lesion – He placed a piece of gauze type tape over it and said leave that on until it falls off and it will be okay.

Erysipelas – Nothing to do with what you are experiencing now.

*********************************

Welll that piece of gauze fell off as soon as I got home from that appointment. I have always had a lot of trouble during this syndrome to keep sticky bandaids or anything similar on my skin.

Erysipelas – well I think it could have a lot to do with what I am experiencing. Chemical exposure is known to bring something out of dormancy. I feel after my exposure to toxic fumes this is quite likely, is it not?

SarachConnor (abac68) says:

Okay then – he is the link which has the interview with the Doctor.

http://members4.boardhost.com/Kritters/msg/2046.html

Sarah Bione-Dunn says:

SarahConner said:

1. Since you came on this blog we seem to be losing focus. Morgellons – skin symptoms is the issue.

Show me evidence of this. I, on the other hand, would consider long ramblings of “you suck” to be losing focus.

3. MSBP linked to Morgellons – Mary Leitao told me that the docs were trying to pin this on her long ago. If I wanted to use myself as a victim of MSBP I would say emotional abuse. And then to add my mum into that she suffered emotional abuse from her mum.

You’re still avoiding what you said. I’ll remind you of what you said:

“Oh also you want my theory on your Munchhausens syndrome via proxy – it really is a syndrome and yes it is involved in Morgellons BUT not the horrible, cruel way that is described in the rubbish I have read recently. This also has an UNDER LYING DISEASE.”

You’re saying MSBP is involved in “morgellons” but MSBP is not the horrible, cruel thing I described. Now, MSBP is child abuse. Do you or do you not acknowledge that you said this, that “Morgellons” is linked to MSBP (child abuse) and that you do not just say here that child abuse is not horrible or cruel? These are yes or no answers.

tallcotton says:

I know, you killed it with another character, then deleted it out.

SarachConnor (abac68) says:

To Sarah Bio-Nedunn – When you arrived on this blog it was under the heading of “Coming Attractions”.

You arrived on the blog at post number 9, then 29 and 37. I came in at post 31.

So the reason why I have probably come across in an attacking fashion is that I felt as though you appearing on the blog was stepping on me so to speak.

Why could you have not choosen a different user name altogether, that is all I was getting at. You may call me suspicious, but that is fine, because we are all suspicious – part of life.

SarachConnor (abac68) says:

Michael – That link I was trying to put in for the Elliot’s Disease interview with a Doctor back in 2002 still could not do it. I have lost the link, user error I think, I have been distracted by my nose whistle today!!!!!!!!!

Not to worry anyway, I’m sure someone has the document somewhere and then can pass onto you. I think if you were to read it, it could help you in understanding the Morgellons argument a little more.

smileykins says:

I think we all might need to try even harder to define MSBP in some sort of more precise, clear cut, fashion. It isn’t just about a controlling parent. Yes, that is a gigantic part of it, but millions of parents are controllers. Not all controllers who become parents create injuries and illnesses in their healthy children. It takes a really, really, really, really sick person to do this. They do it to reap gratification from all the attention. I never knew this was a factor in the equation of “morgellons disease”, until just about a month or so ago. I had thought it was all about somebody with a mixed up mind, seeing things the wrong way, misinterpretting them, becoming insulted, and then starting off on a mission to regain lost dignity, through a really wild way of doing it, and involving a lot of very misfortunate others, in a deluded attempt of hoping to make a name for herself as discovering a new disease. (skooze me. otay. take a breath, there, smellycan.)

SarachConnor (abac68) says:

Smileykins – Thank you for stepping up the plate.

Parents need to be controllers. Why?

Because they love their children and want to protect them from harm, nothing wrong with that.

If I ever have the opportunity to have my own children I would do exactly the same. This does not mean to say I would hyjack their spirit, just love and protect.

If I apply that rule to the animal kingdom and use a kitten or pup for an example : it has been said to be for years by vets. When a kitten or pup likes to play you must understand what they like, BUT do not do things that will spoil their temperament.

SarachConnor (abac68) says:

Smileyklns – Are you saying then that Mary Leitao has been very much misunderstand by a lot of people?? Since all she was really doing was taking Drew to the doctors because there was a problem, she loved him, his dad loved him, and they wanted him better.

Mary and her husband both intelligent people, Mary biology background – microscope came to her like second nature. Her husband was a doctor – damn good combination I think to help their son.

tallcotton says:

Sarah Connor,

Hijacking one’s spirit is not MSBP. Munchhausen Syndrome By Proxy is when deliberate harm is caused to the child, by a parent, so that the parent can get the sympathy or attention that others give the parent of a sick child. Sometimes they lie about the child’s symptoms, but they also deliberately make them sick, and sometimes, they even cause their death. What you are referring to is not MSBY. Nor is Mary L’s behavior toward you, because you are not her child.

SarachConnor (abac68) says:

smileykins Says:
September 10th, 2006 at 7:46 pm
Oh yeah, to add a footnote to number 1 in the made-up case definition she concocted. Uh, hello. Everybody who thinks they have her disease messes around with their lesions, because we view all the crap they post pictures of. They can’t possibly heal as long as she instructs all of her followers to use those microscopes to look at the material from their skin wounds!! Ya know?

I have witnessed over the years men watching tv and without realising it, slowly picking at a scab that was annoying them. These men were usually labourers of some sort. You know cuts from doing wood work etc. So lots of hand cuts or stratchs.

The best thing really for scabs is lots of moisture. The body produes a scab naturally to help the healing process. The moisture should be a nice soothing cream, like a menthol in aqueous base. The more they become soft the easier they just wash away in the shower.

Same applies to a blood blister, never pop it. The blister will break when the new skin beneath has grown.

See people the human body does know what it is doing.

SarachConnor (abac68) says:

Michael – sorry for that – I am still on my “L” plates.

smileykins says:

Wounds with scabs are supposed to be kept dry, Sarach, so they can complete the healing process. I don’t know, but I seriously doubt that I could change your opinion, with my opinion, of what Mary Leitao has done, and why she has done it. A person’s level of intelligence has absolutely no bearing, whatsoever, on mental illness. This is something that is commonly mentioned within the morgellons’ community, and they are all so very entirely wrong about it.

Concerning regular parenting, some parents are just entirely too controlling, and often don’t even want their offspring to have differing views from theirs. Control is never a good thing in the way I am meaning “controllers”.

SarachConnor (abac68) says:

You know my Gran was told by a fortune teller years back in UK that when my gran dies she will not go straight to heaven she will be in limbo for awhile.

She ain’t dead yet at 90, fighting fit in fact – then the other day I say to myself – I feel like I am in Limbo!!!

Weird Uhh?

SarachConnor (abac68) says:

Tallcotton – You are doing quite well. Making sure you have good doctors, not ones that tell you what you want to hear, and following their recommendations is important.

If the doctor had of told me what I wanted to hear perhaps I would not be here now. For example – I didn’t ask for antidepressants. I didn’t ask for Rickettsia or Lyme. I just have always asked for help, a diagnosis, and some treatment.

Don’t ya remember playing doctors and nurses as a kid, I certainly do. I even had a little nurses out fit (only 6 at the time). I would ask my friends what was the problem, they would tell me, then I would try to help. With of course imaginery medical equipment etc etc etc. you know kids stuff.

smileykins says:

TC and I collect our medical records when we see doctors and have tests. It’s a practice I always recommend to anybody with ongoing health problems. Read them. Learn what they mean. The information is right here at all our fingertips. It used to be, we had to go to the local library. This is the way to develop communication with doctors about what the best course of action is.

smileykins says:

Sarach, bless your heart, you’re working through so many issues. I don’t know if it’s totally correct, though, to assume that your mother and grandmother have MSBP. Unless (and I sure hope she didn’t) your mother gave you something to make you sick when you were young, or injured you, to make it look like there was a physical condition that needed treatment, with a cycle of taking you to doctors, and always being told there was nothing the matter, when she insisted, you may not be applying this to her fairly. My parents used to think I was sick just from looking at me, and seemed to have wanted me to be, but they were just like broken records, not even knowing they were saying it. That wasn’t MSBP. Oh, yes, they were controllers, but not MSBP parents. I hope you can work through this, and I suppose only you know.

ThisSiteIsStupid says:

THESE PEOPLE ARE DELETING POSTS THAT DO NOT SUPPORT THEIR POSITION. THEY ARE BEHIND THE CAUSE.

Michael says:

What post did I delete?

ThisSiteSUX says:

KARMA, KARMA, KARMA,

YOU WILL GET YOURS IN THE END

Emily says:

Sarach said

Emily – you are NOT a genius. A one day crash course in Morgellons and you determine a “mental condition” as the cause. Your use of the term “mental” concerns me. You know in the early 1900’s the term was “lunatic”.

Please come back and discuss some more.

I do not mean that in a negative way. Do you understand that most of the “symptoms” you mention are completely normal?

It is NORMAL to have occasional lesions on your skin.
It is NORMAL for those lesions to not heal when they’re being picked at and disturbed.
It is NORMAL to occasionally find a hair growing from one.
It is NORMAL to receive enormous amounts of spam emails.
Unusual squiggly hairs, weird textured hairs interspersed with the normal ones? Totally common. That is not a symptom. It is NORMAL.
You will not find medical documents on these “symptoms” because they are not symptoms. They are normal parts of the human condition. (Well, except the email one..)

tallcotton says:

Somebody didn’t get a prize in their Cracker Jacks.

Sarah Bione-Dunn says:

Why could you have not choosen a different user name altogether, that is all I was getting at. You may call me suspicious, but that is fine, because we are all suspicious – part of life.

I did not choose a different name because I didn’t want to hide under an pseudonym. I’m Sarah Bione-Dunn. I didn’t want to give someone the phony satisfaction of “finding out who I really am.” Please explain why this means you like to yell at me.

Yes MSBP is involved in Morgellons Syndrome. I feel is plays on the psyche and chi energy. I can not really explain it on a blog site in words, this is what I have felt inside me.

SarahConner, did you read the initial post? And then you complain that I am off topic? Please read the topic. MSBP is CHILD ABUSE. It is inducing or feigning illness in children. Children are often drugged, then brought to doctor after doctor and forced to suffer completely unecessary tests and surgeries. It’s deadly. It’s horrible.

And then you say it is not horrible, that it is not cruel, and you have said again that MSBP is linked to “Morgellons.” Therefore, steps must be taken to remove children from the homes of “Morgellons” sufferers so that they will not be abused. Since you are the one who has informed us that MSBP is indeed linked to “Morgellons,” surely you agree?

tallcotton says:

Sarah Conner read the original post, but “seemed” to be confused. That’s why Smileykins was trying to help her understand it better. I think you need to cut everyone a little bit of slack. You’re supposed to be a professional, but you don’t seem to understand that we need to be patient. Sarah Connor is doing a lot better. You need to cut her a little bit of slack, and come down off that high-horse you’re on.

Tall Cotton

SarachConnor (abac68) says:

Sarah Bio-Nedunn said:
I did not choose a different name because I didn’t want to hide under an pseudonym. I’m Sarah Bione-Dunn. I didn’t want to give someone the phony satisfaction of “finding out who I really am.” Please explain why this means you like to yell at me

Yes I yelled at you. Not that a LIKE to, but that I had to and needed to. You remind me of someone. To help my recovery I have always applied my suffering of this syndrome to everything, not anyone elses experience MY OWN. That is why we probably don’t see eye to eye okay, I felt you were trying to mould me under the sub heading of yet another hormonal, psychological, or female only type disease dah dah.

You know you have to appreciate things from my side of the damn fence. This has not been a bloody picnic you know.

Tall Cotton made a comment to you about you being on your horse high. I am glad he said this because this is what I felt through your postings, very clinical. If you want to learn from a patient you need to come down to their level. What I mean by that is their level of pain, stress, anxiety, depression, etc etc. Example for you: when tallking to a little child never tower above them – stand over them, crouch down, be at their eye level, you know little people!

SarachConnor (abac68) says:

Courage does not mean never feeling fearful. Courage is about what you do, in spite of being scared.

Tell me about it and thanks.

RobertW says:

smileykins Says:

“TC and I collect our medical records when we see doctors and have tests. It’s a practice I always recommend to anybody with ongoing health problems. Read them. Learn what they mean. The information is right here at all our fingertips. It used to be, we had to go to the local library. This is the way to develop communication with doctors about what the best course of action is.”

This is the best advice in this thread.

Each of us is in charge of our own health. When you go to see a doctor, be as specific and detailed about what brings you there as you can. Doctors are not gods; they are people. Ask questions if you don’t understand something. If you want to know how the reached their diagnosis, ask. If you feel that something was not considered in the diagnosis, raise the question. If you don’t, then don’t complain about it later as medical mistreatment. After the appointment follow the doctor’s directions to the letter- stopping a medication or other treatment mid-way through is one of the very worst things that you can do. Always feel free to get a second opinion, and feel free to let your doctor know that you are going to do so. A true medical professional will not be threatened or insulted by this action. Always remember that your goal is to get well; it is NOT to find a doctor who agrees with you. And as Skileykins suggests, always get a copy of your medical records before you leave the doctor’s office.

smileykins says:

BTW, that isn’t “morgellons disease” causing sunshine and perspiration to irritate Drew’s skin, and I am, 1,000,000 times over, positive of this. Also, sleeping with his eyes partially opened is not abnormal either. That occurs during deep, rapid eye movement (REM) sleep, when we dream.

smileykins says:

Well, she didn’t say that Drew wasn’t allowed to play baseball due to any movement difficulties, and he looks fine on the gym set, in the picture in the link below. Sarach told us, recently, that Chas had told her that Drew was somewhere running around, pretty much sounding like he was having a rather good time doing it. Poor kid, yes.

http://www.rgj.com/news/stories/html/2004/05/08/70307.php

RobertW says:

Golly, I’m going to agree with Smileykins twice in one morning!

My treatment for whatever this is that’s causing my body to react in interesting ways (I won’t use the term “Morgellon’s Disease nor Syndrome” for the simple reason that the medical community has yet to come up with official diagnostic criteria. If there aren’t diagnostic criteria then that diagnosis can’t be made.)has focused on working with a number of specialist to manage the symptoms that correlate with their fields. My dermatologist told me that when I had a bad flare up of sores to spend as much time in the sun as possible- it helps the sores/lesions dry and heal much more rapidly. Sunlight also helps our bodies process various vitamins and minerals that are essential for overall good health. Natural sunlight and excercise also frequently prescribed for people with depression because from the stimulate the production of endorphins and dopamine which help the brain itself fight the depressive illnesses.

Good health and healing very rarely rely on simply taking a pill. Frequently lifestyle changes and working on cognitive processing are equally important as a trip to the pharmacy.

smileykins says:

Oh, wow, Jeezelouise. Thank you, for the wonderful news. How utterly divine. That makes me feel so happy.

Robert, according to everything I’ve read, Drew was diagnosed with eczema, but since he was only 2 at the time, and described his sensation, in the best possible way of, “bugs, mommy”, and she saw fibers stuck in it, she freaked. Of course, the rest is history.

My child and I both have eczema too, which has been in remission, for both of us, for years. We’re both like ML says Drew is, and sun, as well as perspiration, bothers our skin. Back when my daughter was playing on a softball team, that was no big deal, and not worth missing out on the fun of being a kid. She used prescribed topical medication for her eczema problems. It has to be treated with round the clock, every day, for years on end, sometimes, as was our case with it.

Here is something else:

http://emedicine.com/derm/topic108.htm

Drug-induced photosensitivity refers to the development of cutaneous disease as a result of the combined effects of a chemical and light. Exposure to either the chemical or the light alone is not sufficient to induce the disease; however, when photoactivation of the chemical occurs, one or more cutaneous manifestations may arise. These include phototoxic and photoallergic reactions, a planus lichenoides reaction, pseudoporphyria, and subacute cutaneous lupus erythematosus. Photosensitivity reactions may result from systemic medications and topically applied compounds.

It is all a matter of individuality, same as with everything. With something such as lupus, there’s no way can a person be exposed to the sun without detrimental effects.

Note this nonsense from listeners’ questions in an interview to promote “morgellons disease”, with Nurse Ginger Savely, back in May, this year:

Question from leanne in San Antonio: My symptoms are bumps all over my head and parts of my body with painful sores, headaches, sore muscles, and itching. Being in the heat really makes the parasite swarm. Sores can last for months and itching is uncontrollable. Are these symptoms being felt by others?? The doctors can’t seem to fix the problem.

Ginger Savely: Yes, these are all classic symptoms.
______________________________________

Question from Blanca Rueda in San Antonio: How come doctors do not know about it? Can I get my money back from the doctors that I have seen? How do chlorine, heat, water, and sun affect it?

Ginger Savely: Doctors aren’t aware yet because the disease is not even recognized by the Centers for Disease Control and Prevention (CDC). Usually they have to recognize and investigate a disease first before the medical world starts to know about it. Get your money back from the doctors? Hmmm, good question. Sounds like one for an attorney, and not for me! (But lots of patients would like to know what you find out!)

Also, sun usually makes it worse and so does heat.

That’s despicable.

Anyway, many people with eczema do improve with sun exposure, especially those with certain forms of atopic eczema. However, sun exposure may worsen and even trigger other forms of eczema.

http://www.mayoclinic.com/health/eczema-treatment/AN01352

Michael says:

Smiley, your link had a spurious period at the end, I fixed it.

tallcotton says:

Jeeez,

Did you say that your da had been niacin deficient? In case that’s the mineral that he had to start taking, I thought I would let you know that Niacin overdose causes the creepy crawlies. Don’t let him turn into a Morgie.

Tall Cotton

Jeeezelouise says:

Thanks, TC. It is, in fact, a thiamine (B1) deficiency called “dry beriberi”

http://www.nlm.nih.gov/medlineplus/ency/article/000339.htm

My Da does not drink, which is probably why the diagnosis was missed.

Thanks again 🙂

SarachConnor (abac68) says:

Good morning campers – what a lovely day we have here – going to be 21C and the sun is a shining!

Just had a quick read through the posts, haven’t read any links yet. Some interesting stuff so far. I am feeling really good you know and looking so much better. Been putting in the hard yards.

Smileykins – Prednisolone – yes I am still on 5mg a day. I have been addressing this actually for months, I guess I used to sound like a broken record, I would always right it on my list for the doc whenever I wrote down my herx reaction, to be put in my history. You know I like to save time, help my doc to help me.

When I see the lady doc on Friday morn. I will discuss this with her, I am desperate to come off it. After the correction of my immune system I have felt a change, and I still feel it, so I do know that my own immune system is well and truely at work. My outwward signs are very much a clear indication of this. I guess it is hard to prove, but given the amount of antibiotic IV I really do think the NAET made the difference, which was only done back in February. And I am sure also that NAET is what helped softened the blow when I came off the psych.meds. Look it was hell coming off them, but I hung in there, and my god was it worth it. My dose of Seroquel had climbed to 300mg & Lexapro was 40mg, so you can imagine what it was like for me.

SarachConnor (abac68) says:

Oh one more bit of trivia – The National Geographic Channel last night, I just caught it before going to bed. It was about FEAR. The man was saying that fear is a genetic thing. And it has been proven by scientists that fear in a person with an underlying problem can kill them, ie. heart problem – heart attack if the fear is enough to tip someone over the edge. He said some other good stuff too but I can’t remember just at the minute. I think I need my morning lemon juice.

I really can relate to the fear. When my palpitations would kick in of late, especially lying in bed and feeling like I had just done a marathon was very scary. I do have a heart murmur – it is a soft systolic one.

Heart palpitations became a major issue for me at the age of 23, just out of the blew. I was working at a hospital then, and the lovely staff doc was rather puzzled. Told me stay off caffeine, I said well I do – I don’t drink it, apart from my cuppa tea. So I even stopped the tea for awhile. I had been through some stress with the breakup of my first marriage and I put it down to that, in a way, but I knew it wasn’t normal. Anyway that is when they did a test, which showed I had the arrhythmia (sorry I can not spell that today for the life of me). Just to make up for it – “salpingo oophorectomy”!!!!… (I used to love typing that word really fast when I was doing medical dicta typing, has a good ring to it)!!….. Makes me realise that my memory is still pretty damn good.

Michael says:

Although if you have heart problems you should probably get your doctor to recommend appropriate exercises, not me 🙂

SarachConnor (abac68) says:

Smileykins said: I understand there are way too many things that you’re trying to sort out, and that you are trying to do it all at once. It will be all right. Try to slow down, clear your mind, and relax if you can.

Well you know this is my choice, and I have been the one setting the pace for myself. I think you guys realise why I was in a bit of a hurry. I have had the chance to put somethings in place whilst my folks have been off and resting. I had to do this to see how I would feel emotionally, I felt the time was right. It has been worth it, it has proved to me what I was feeling. Which is – controlled and manipulated. My mum worries so much about me, and she is so sweet I love her to death. I just wish she could put a lid on her anxiety, and maybe just zip up her mouth for a bit. I try to say in a nice way “we are all individuals, and each and everyone of us is entitled to our own opinions dah dah dah”. Yes I know she says – as she continues to try to structure my life for me.

What do I say to her? Ma 2 husbands down, how many more do you think I should try??!!! Every single man in my life to this day could strangle Alexander Bell for inventing that telephone. I do get cauliflower ears you know when talking to her for nothing less than an hour of course!! Even if I was honest and said – “Ma I should go because my fingers keep going numb holding the phone, I keep changing hands, but it is really awful”. Okay she would say, and they continue with another damn story or complaining about my gran!!!

SarachConnor (abac68) says:

I do realise you are not ignoring me okay. I will check back with you guys later. I want to get out and amongst it today!! The weather is just gorgeous, I want to sniff that lovely air and feel that sunshine on my body. So if you have any questions for me, please ask away and I will try to answer them later.

Oh also, I have embarked on organising some volunteer work at the local lost doggies and pussy cats home. I will be visiting them soon to have a look around. You know when I made the phone call to them I was so damn nervous. I said I want to do volunteer work because I am on the disability pension, still young with a chronic illness. I explained that I am not reliable in the way of paid employment, ie. I can not arrive at 9am and leave at 5pm. I have to do my illness management. She said, okay I understand. So I think I would like to do some real simple stuff at the shelter ie. grooming the animals etc. I will stay away from the cleaning of the kennels etc. I need to get my immune system in tip top condition first. But I thought to myself I could not think of a better way to break myself back in slowly into the public arena kinda of thing. At least I will be surrounded by tail waggers and little purring fluffy things that will help me along and give me unconditional love also.

Not really looking forward to the end of the week, yes I have my docs appointment, but my “you know who” will be back and this is playing on my mind. I will have to take things real slow. At least I have worded my sis up, she understands, but whether she can help me out is another thing, coz her hubby prefers me to be delusional, that way I stay well away from my nephews and her.

I noticed the discussion about Thiamine and B’s. My recent bloods for B12 & folate are all normal, so this is good news for me.

Anyway – got some chores to do, will catch ya later.

Sarah Bione-Dunn says:

JeezeL, I’m so happy to hear that. Congratulations on your father’s improvement! I hope you guys can cherish that memory in the cemetary together.

tallcotton says:

Sarah Bione Dunn,

There’s a difference between Sarah C. and most of the other patients that have come to this site. That difference is that she is trying to make a transition from the Morgellons world to this world. I stand by what I said. You may not be a professional yet, but you are in training, and you certainly aren’t remembering who is sick and who is well. In my opinion, you act like you are the patient.

tallcotton says:

What profession? You know very well what profession I am referring to. You just want to argue and humiliate others. Before Sarah, it was London. You have a whole lot of growing up to do and it’s very apparent.

smileykins says:

I’m sorry, I just peeped in here, and see that nobody has replied. I’m opened to discuss humiliation with you, if you don’t want to discuss symptoms. Frank discussion is key to solving most all problems. I’ve never been very good in math, but I don’t know the relevance of your last sentence.

SarachConnor (abac68) says:

To Sarah Bio-nedunn -I am sorry for saying this, but I am finding your postings and questions rather taxing on me.

I never used to have an angry nature. Chronic illness, undiagnosed, misdiagnosed and untreated for a long time has caused me a great deal of pscyhological distress. Unfortunately for you this is something which is very hard for you to understand in your position as a student/professional. At the same time I wouldn’t ever want you to feel the way I have felt.

No you are not my therapist, I have a shrink. He speaks very concisely and straight to the point with me, and he doesn’t pressure me in the same way you have. You have no idea who I was thinking of.

I said I had to get angry and needed to you – you told me this was “untrue”. I do apologise in advance here but you are wrong. That is showing no respect for my feelings whatsoever. You have no idea what stirred my anger and outburst, but I do. I need to vent my anger, I think a blog site is a good start. I spent too long a years zipping up my moutn when I should have said something.

Neither for me, when strangers call me names and yell at me.

Well then maybe you need to debrief on this one with me?? I have been called names all my life, people were always jealous of me, but they never really new what went on inside of me, they preferred to assume and presume.

A professional… what? I’m a person. I’m a student.

Make ya mind up please.

Regardless of profession, everyone should treat others with respect. No one is chastizing Sarahconner for name-calling and lambasting me for no reason, but when I call her on it, suddenly it is suggested that I am being unprofessional.

I don’t appreciate people lashing out at me and calling me names needlessly. Sarahconner requested to be told when she’s wrong, and I oblidged, because her actions were indeed wrong.

Respect – I wouldn’t be on this blog site today if I had been shown some respect from the medical professsion. If you want to be a professional you better get used to name calling. My shrink thinks I’m crazy!!! But nice crazy! I have sent him some rather nasty emails you know, with a lot of gutter language, which was never me, but it has been of late with this. I am sure I give him a hell of good laugh, but he never comes back at me or gets upset. I know he understands this has and still is very very hard for me.

Okay my actions were wrong, I was just standing up for myself and venting my anger. I think you have carried it on quite long enough, don’t you? The more I read your posts the more you do sound like a student, and you need to damn well chill out please.

SarachConnor (abac68) says:

To ThisSiteSux – If you don’t like this site then why did you come here??

Are you looking for a support forum for Morgellons victims?? I don’t know of any myself, what about you?

smileykins says:

I’m guilty of assuming too much, myself, considering Sarah’s background in behavioral neuroendocrinology and psychopathology, plus her future plans to become a rehabilitation therapist for violent sex offenders. But, it’s true, like she’d said to Tall Cotton, she isn’t anyone’s therapist. She’s a student, right now. None of us are anybody’s therapists. Besides, Sarah doesn’t share TC’s opinion that “professionals” ought to be held to a higher standard than others, anyway. Perhaps, I think, she means that in the context of posting comments on blogs.

I’m still working on those “averages and numbers of the posters”, that ThisSiteSUX politely requested being shown. The numbers of posters who average something in common? See, this hurts my head to think about it.
Could you please explain, ThisSiteSUX? Thank you.

MAFer says:

hey sarahconner… that sbd is a real bitch dontcha know… she is teamed up here with the other ass clowns to make you look crazy unless you agree with and tolerate all aspects of what they preach…

this website is fucking awesome… much cheaper than a real doctor appointment and just as useless… but yet somehow you feel that this is the only morgellons support site?… that’s pretty fucked up… that’s like saying your husband is the only man that loves you… after he beats the shit out of you…

tell me sc… did you once suffer from battered wife syndrome?… because the more i read your blogs, the more i am thinking so… i am so sorry for you… it must have been terrible…

smileykins says:

I’ll even beat ya to the punch, MAFer, and tell myself, “no shit, Sherlock”. Yes, it has to do with your immune system’s response, but not because of anything non-existent, called, “morgellons disease”. What you do have, is something totally real, and you have to uncover what *that* is.

Sarah Bione-Dunn says:

Smileykins,

Yes, you’re right. In my opinion, I don’t think one person should be held to a different standard than another, rather, we all should make personal dedications to ourselves to treat others politely. Regardless if a person is a psychiatrist or a computer salesperson or a burger-flipper.

I think TC and my disagreement stems from our agendas for being here. Mine is purely for discussion, and TC’s is for discussion plus helping people in whose shoes he has been. I commend that and admire that, but personally, I don’t have the time or the interest to even begin to delve into such a feat. Would you agree, TC?

SarachConnor (abac68) says:

Where is London by the way, anyone heard from her?

smileykins says:

When I’d entered the blog the other day, and I’d commented that I thought we needed to clarify MSBP a little bit more, once again, I didn’t realize that I was interupting an ongoing spat between anybody. Later, I saw that Sarah was defending herself against a very fragile person. For those of us familiar with this blog, we have witnessed, and we understand, that Sarach is going through a very difficult, ongoing, transitional period in her life.

I had commented in #149 about trying to bring more clarity into defining MSBP, because of the comments I had seen Sarach making in reference to some things, again. TC tried explaining it better, in comments #155 and #162, and I tried, in comment #169.

Sarach has so many things that she is trying her level best to sort through, that it’s hardly fair to throw more things at her, with demands, like in comment #128, and all the other challenging remarks. Sure, you’re free to do so, Sarah, but then, you had claimed, to TC, in comment #218, that you’re just a bystander.

I don’t hardly think you genuinely expect any of us to think that you view yourself in that light, citing the reasons for using your full name on this blog, in comment #181, as well as taking offense at my comment pertaining to MSBP needing explained a bit more, in comment #182. We had discussed it before your arrival, dear.

I hope you grow into those britches well before you counsel violent sex offenders.

smileykins says:

I guess I may understand where you’re coming from, Sarah, when you’d said, “I don’t think one person should be held to a different standard than another, rather, we all should make personal dedications to ourselves to treat others politely. Regardless if a person is a psychiatrist or a computer salesperson or a burger-flipper.”, but, however, that’s not realistic as to how the world operates. Those perpetrators of violent sex crimes aren’t going to treat you with the respect that you may be expecting from them. You’re young, and you will continue to learn. That’s what living is for.

SarachConnor (abac68) says:

SK & TC – Thanks for helping out.

Sally is not well at all. I have been to the vet, she is having an operation to drain an abscess from under her chin. The vet shaved under her chin and she had 2 puncture type holes. Apparently she must have been bitten by another cat. It has all happened so fast this morning. She looked so ill, and in pain & crying. Her temp was 40C when the vet checked. I have been sobbing my heart out. They will make her better, I know they will.

This is the awful thing when an animal is unwell, if they could tell us early that something didn’t feel right.

MAFer says:

see, that’s the part you don’t get tc… you are not qualified to expose morgellons or to help people… junkies really aren’t qualified to do much of anything… your testimony wouldn’t even hold up in a small claims court, let alone here on this blogsite where you have absolutely no credentials… i think the only person you might be helping is yourself… and that is a fucking margin call at best…

tallcotton says:

MAFer,

I’ve gone 2 years without illicit drugs. Quitting drugs wasn’t an easy task for me, and most people addicted as badly as I was, aren’t able to make it. That may mean nothing to you, but it does mean something to me. Not only am I an ex-addict, I’m an ex-morgie. What are you but a foul mouthed fool?

Tall Cotton

MAFer says:

i don’t need credentials to be a morgellons victim sleezylouizy… but tc said it himself… some opinions need debunked, some reinforced… according to his god damned will?… or his fucked up opinion?… or both?… without credentials, that sounds more like brainwashing…

you can lead a horse to water, but you can’t make him drink… i suppose that is because the water here tastes like shit… about 4 or 5 of you here trying to bag a prize when someone surfs here searching for answers… kind of like an ambush… the stupid ones are much easier to brainwash… says alot about your small cult of morgellons watchers here doesn’t it?…

if you 4 or 5 clowns here had the credentials, thus the answers, you would have a much larger census than you do… but you obviously don’t… only a few of the weak ones hang… it’s this, it’s that, it’s the other… it’s anything but morgellons…

well tc… i have gone a lifetime without illicit drugs… bfd… why get addicted in the first place?… and the criminal released on parol wants a fucking medal for not committing any further crimes… whatever douche-bag… i have a new and emerging disease currently being called morgellons… as such, i am a victim… the direct opposite of physical evidence is no evidence at all… myself and others have the physical evidence… you on the other hand, have nothing… science will use this evidence to solve this crime… your efforts to debunk this will not make it go away… only treatment towards cure will do that… you are the one that is truly the fool…

Michael says:

MAFer, I think you have a failure of perspective here.

People don’t read Morgellons Watch for the comments.

They read it for the articles.

I’ve got nearly 100,000 unique page views, the vast majority of those are not people who want to wade through these comments, they are just looking for a bit of information. They do a search, they find a link to one of my pages, they read the article. It helps some of them.

Fell free to keep posting, ask questions, whatever. But you are reaching perhaps 0.1% of my audience down here in the depths of the comments. I just wanted to make sure you understood that, so you don’t waste your time.

tallcotton says:

MAFer, you’re delusional, and that’s a fact!

Michael says:

Brain fog?

Michael says:

But seriously, JL, you raise a good point. Take a look at the Cheers and Jeers section of QuackWatch. (link below takes you to the “jeers” section, where I image MAFer and NoLoc would post)

http://www.quackwatch.org/00AboutQuackwatch/comments.html#jeers

jeeezelouise says:

Gosh, I’m sure impressed. That should be enough to convince anyone to donate to Morgellons research, for sure.

*yawn*

G’night, all.

tallcotton says:

Smileykins said…

Dear MAF:

Where have you gotten the idea that anybody is a junkie? I, as well as anyone, AM qualified to say that “morgellons disease” does not exist. A mother with probable Munchausen Syndrome by Proxy is still using her little boy, and her older kids, to a lesser extent, since the death of her husband. Anyone who sees nothing wrong with that, for the sake of needing to hold on to their beliefs in “her disease” that she gave to them, is more far gone than I care to consider.

Aside from the obvious, she came forth with the fact that she is mentally ill, in the Pittsburgh Post-Gazette story, recently, as well as on ABC, showing the letter from the doctor at Johns Hopkins University Hospital. She us in denial of just how ill she truly is, even though she tells of what her existence is like, in the article.

http://www.post-gazette.com/pg/06204/707970-85.stm

People who have fallen for the belief that they have her “morgellons disease” never wanted to know anything about her. All that people who think they have “her disease” ever wanted, and all that they were ever concerned about, was that someone finally believed them. Of course, such people lack the capacity to realize it. I’m sure they wouldn’t want to, anyway.

She obsesses. Maybe she’d even hallucinated, since she’d thought, and is still convinced (?) that Drew’s having fibers stuck in his eczematous skin, when he was 2 years old, is some sort of new, yet 400 year old, disease, since he’d mentioned bugs. She won’t allow his skin to heal, still pulling his own skin cells out, on national television, from a sore that is 4-5 years old, and putting it underneath her microscope, like so many others.

A lot of people, doing similar things, misinterpreting their skin, and being overly involved with it, saw their doctors in the past, and were diagnosed with DOP, and many refused to treat for it. If this scenario doesn’t fit anyone reading this, then, don’t let it bother you. It’s been stated clearly, and factually, all along, since the beginning of this heinous crime against a population of people unable to take care of themselves properly.

I haven’t referred to those doctors that are affiliated with “morgellons disease” as quacks. I have said that they “are in on it”. Crooks is a more fitting word. Dr. Schartz was easy enough to see through, same as the rest. You’re all too ill to know any better. Those of you speaking out against anyone who sees what is being done, illustrate how badly you need help. Lots of dishonesty is all we see out of many of you.

So true!!!!

MAFer says:

neither of you are qualified to say that morgellons disease is not real… go tell sarahconner… she will believe you… the other 99,995 (and counting), know you are full of shit… maybe the 4 + 1 of you should purchase some national network time… do a little mass brainwashing… that’s gonna take alot of kool-aid isn’t it?

ThisSiteSUX says:

TALKING ABOUT SYMPTOMS IS ABSOLUTELY FRUITLESS ON THIS SITE. SHOW US THE AVERAGES AND NUMBERS OF THE POSTERS. WE ARE SCREWED. LOOK AT BIO-FOOD.

ThisSiteSUX says:

BIO-FOOD = WORLD WIDE FAMINE

tallcotton says:

MAFer,

You tremble in your tracks of the truth, but the lies are much worse news. You talk about Sarah Connor, but she has much more sense than you and NoLoc put together. She also shows far more courage. We all know, MAFer, that you have alterior motives for being here. When Morgellons is declared a non-disease, non-syndrome, your websites won’t be worth a dime. If you weren’t afraid of what’s being said on this blog, you wouldn’t be here.

Tall Cotton

MAFer says:

yeah sk… that is what i said… so how about those answers?… c’mon, you can do it… guess my illness…

what real answers are you possibly capable of giving here?… pure speculation and guesswork… you want to run through every possible illness which can cause those findings?… you want to come to a conclusion huh?… well that should be easy… you want to say that all persons presenting with acute perivascular infiltrates and a slightly elevated immunoglobulin M in their cbc with all other tests either being negative, normal, or non-reactive absolutely has to have disease a, but not disease b, c, or d… and they certainly do not have morgellons disease… period…

let me know what you come up with… can’t fucking wait…

ThisSiteSUX says:

FUCK YOU TURN OFF YOUR DUMBASS COMMENTS

smileykins says:

Thank you, ThisSiteSUX. MAFer, do you have your medical records? I’d need all the information from them, to look up what they say, on line, and then, to look up all the differentials, separately, to narrow it down. Then, you could discuss your suspicions with your doctor, like some of us do, to get to the bottom of your health problems. Do you seem to have a granulomatous reaction in your skin, aside from fibers? I’m not trying to be funny.

smileykins says:

Didn’t mommy & daddy let you children express yourselves, through nasty talk, enough when you were younger, This SiteSUX & MAFer?

tallcotton says:

MAFer, TSS,

Why are you boys so angry at yourselves?

Tall Cotton

ThisSiteSUX says:

FUCK YOU PAL

ThisSiteSUX says:

you are are stupid

fuck you

have a nice day and avoid your meth

Sarah Bione-Dunn says:

I have a typo! :(. I meant to type, “The part of my bran that didn’t turn to mush,” not much. It actually turned into something with a similar consistency of tapioca pudding. Talk about brain fog….

MAFer says:

i are are stupid?… no… you is is stupid…

smileykins says:

Wow. It is incredible, to need to hang on to a fake disease, for whatever it is that you’re deriving from the experience, rather than wanting to get healthier, and treat whatever you have.

Michael says:

I hope nobody will accuse me of being too draconian if I put these two into moderation for a while?

Michael says:

Alright, MAFer and ThisSiteSUX are in timeout for now. I’ve cleaned up a few of their last comments, which were devoid of meaningful content.

Michael says:

I like the full definition, as it contains a lot of very relevent discussion:

http://www.cdc.gov/cfs/cfsfullcasedefinition.htm

patrickevin says:

i just read ‘tall cotton’s’ story. i found it well written, insightful and disturbing. i have only been privy to this site for a few days. i am fascinated by the obvious disdain tall cotton and smileykins seem to have for people who apparently unlike them, actually do suffer from morgellons. the personal mental illnesse at the time of their ordeal proved to be just exactly what they are trying to pawn off on current members in the morg community.
readers – do not pay attention to the man behind the curtain, or in this case, do not pay attention to their output of incessant banter. they are not qualified to make judgement or decision regarding anyone’s person’s health. they have a post recovery hangover from their own personal psychotic activities as listed in the story. their self professed backgrounds makes for a less than favorable resume if considering applicants for quality role models for the youth of our society. would you allow your children to follow the advice of a tweaker, supposedly clean, but less than two years? his damage is done. once a tweaker always a tweaker – – user or not.
and his bride to be, – – did i read her posting to say she is on disability? OK, now there is someone with time on her hands. please, do not misunderstand me. i have a tremendous respect for our country’s ability to take care of those not quite able to make it on their own due to a physical or mental weakness.
i came to this site to hopefully find reasonable info on my current situation with morgellons. my symptoms recently came on strong and clear. they have usurped much energy. i am an upper level management exec who has no time to peruse such worthless internet banter. i know with confidence, and my doctor, friends and colleagues know with confidence, that i am not mentally impaired or delusional. i suffer from no mental illness. but i am suffering from something. in desperation, we are searching for help. in fervor, they are ridiculing us. their comments towards morgellon sufferers are offensive. they help to create an atmosphere of acceptance for this small group of haters.
i look to the day when we discover the real source of this gross disorder referred to as morgellons. i look to the day when these two not so real ‘experts’ disappear into a honeymoon of obscurity.

(no offense to you, moderator. your page is well put together and easity navigated albeit somewhat slanted towards antimorgs)

smileykins says:

Before I begin my plans, I need to add, Patrick, that you are a victim of yourself. Try chewing on that for a while, and examine it for yourself. Did your parents rear you to be that way, were you influenced by peer presssure, or just what have the circumstances been, in your life, to cause you to feel the way you do? Let go of all those hangups and free yourself.

SarachConnor (abac68) says:

Evening folks – wow! bit a stuff been happening hey. My little sal is doing great. Operation went well, she has a nice blue bandanna around her neck! Just need to give her some antibiotics over the next few days, keep her indoors and also give her lots of cuddles. Thanks for the support guys.

smileykins says:

You have not disturbed my delicate pysche. if you knew me smiles, you would understand that i am not a rash person. your dimestore riddles of generalism mean nothing to me or to most likely anybody else. my statement of ‘please do not misunderstand me’, was entered in the context so as not to be rude regarding my disdain for your inability to work and our country taking up your slack.

….except for losing friends and family members to drugs, i have had, and will continue to have a charmed life. i’ve worked hard, and the payoff has been more than stellar. i know, i know – ‘whatever that means’.

Yes, Patrickevin, I have VERY MUCH disturbed your *extremely delicate pysche*. Read your comments in #299. My existence, and my comments, very much mean something to you. You are loaded full of prejudices, and I feel that just might be a lot of what’s caused your conceived illness. It is a very common trait among people who think they have “morgellons disease”.

May better health come to you, someday, and a brand new awakening of your spirit. I’m sorry that you’ve lost friends and family members to drugs, and that you have that common trait, of needing to announce so much of your background to bring validity to yourself. Thank you for sharing.

Noloc says:

What happened Michael? You didnt like me pointing out that the only person here that regularly posts is Sarahconnor?

Where did that post go saying that you have 100,000 visits? You can’t count each time sarah logs in.

MAFer says:

post 305… after just a couple of posts from patrick… sk has basically diagnosed him crazy… his illness is only perceived, not real… then, she accuses him of anouncing his backround only to lend validity to himself… yet her life story is linked to her name… tc’s too… i guess some stories are important and some are not… so glad you and tc have found validity in your lives by publishing your life stories…

and you want to know more about me don’t you sk?… that’s funny, and not going to happen… are you starting to get the picture yet?… there are only 5 of you here… why is that?… no one is signing up for your cult are they?… you are certainly better at meth than you are at math…

if this site has gotten 100,000 page hits, that’s great… i can only imagine what a quality morgellons website with a great domain name would do… thanks for the insight Michael… really appreciate it…

MAFer says:

whatever…

smileykins says:

How To Choose A Doctor:

http://www.medicinenet.com/script/main/art.asp?articlekey=47649

Getting The Most From Your Doctor Appointment:

http://www.medicinenet.com/script/main/art.asp?articlekey=47165

Checklist to Take To Your Doctor’s Appointment:

http://www.medicinenet.com/script/main/art.asp?articlekey=50586

tallcotton says:

Patrickevin said…

i just read ‘tall cotton’s’ story. i found it well written, insightful and disturbing.

you have not disturbed my delicate pysche.

Well, Patrickevin, make up your mind!

Patrickevin said…

in the meantime, and i am not telling you what to do either, but lighten up, have some fun and leave these poor morgies alone.

You’re not going to, but…

Patrick, you sound like a typical morgie. You continually contradict yourself. Your delusions are also very apparent.

You need some help, and by the sounds of it, so do your friends and your doctor.

Tall Cotton

TexasRose says:

Ok just read the last WEEK of posts and gee here are my thoughts:

Smileykins your “Twenty-Five Rules of Disinformation” sounds more like my teenagers thinking 🙂

Tallcotton “Somebody didn’t get a prize in their Cracker Jacks” LMAO !!!!!!!!!!!!!! Good one!!!!

Jeeezelouise and TC – MAFer is only in 7th grade and doesn’t have the mental development yet to know that mature people doesn’t cuss to make a point. it looks like he has his best friend posting here now too.

Finally – the TWO SARAH’S – As I told him kids years ago “KNOCK IT OFF” If you have nothing good to say about somone – then don’t say anything at all!!!! It will save everybody else from reading longggggggg post that have no meaning to the topic.
See everybody next week – doesn’t take long to get up to speed, same thing different day.

Oh before I go folks over at NMO have updated their pets tab – WAY TO FUNNY!!!!!!!!! and hear they will have a CDC tab soon – now that should be good!!

http://www.cherokeechas.com

Oh yeah – got my packet in the mail the other day from OSU for when I registered there. before everybody get wacky – I just registered to see what OSU sends people – SO here is the cool part in that Packet they had NMO Help Tab print off of the website!!!!!!! only thing about MRF was their letter to the CDC. LOLOLOLOLOL

Next week folks

hujo says:

I will be back to do a copy and paste job this evening on the rest of the questions brought up, in the meantime, have you guys heard this theory about morgellons yet?

http://www.headlice.org/news/2005/august/tiny_bugs_wreak_havoc.htm

Could it be that either our changing climate or perhaps over use of antibacterial products are attracting these ancient bugs to us as parasites?

Or is the npa in on the conspiracy and merely pushing propaganda?

The theory seams pretty sound to me, do you consider this crazy propaganda from a delusional organization? If so why?

hujo says:

They perpetually “molt” their exoskeletons (perhaps the specks of sand?), and the collophore, the organ that gives them their name collembola “glue bolt” is not fully understood, first thought to excrete a adhesive liquid to stabilize them after a jump, it is now thought to help moisturize them, yet one study observes one species gluing itself to the “substrate”.
http://i20.photobucket.com/albums/b247/hujo9000/bugs.jpg http://webs.lander.edu/rsfox/invertebrates/collembola.html

The males mate by producing a fibrous stalk on which a spermataphore is placed and the stalk is attached to the substrate.

http://i20.photobucket.com/albums/b247/hujo9000/stalk.jpg
http://www.cals.ncsu.edu:8050/course/ent425/text02/hexapods.html

the fibers?

Also, I am currently in contact with a number of professors and entomology heads, interestingly, none that have gotten back to me can tell me, the strength, texture, or color of the collembolans spermatophore stalk or if the stalk would contain collembola dna or if they are known to eat borrelia. Apparently the cryptosphere is understudied compared to other insect “areas”. I will update.

SarachConnor (abac68) says:

All fair and well talking collembola people. The CDC need to make a decision, how many more years do THEY need, you have already had 6 plus years.

At least victims like myself could possibly be treated with a bit of respect.

I have a lovely little letter in my possession which was sent to Mr Dan Rutz, which reminded him to go talk to his mommy, while he new very well that a man with this affliction was dying in hospital on chritmas eve from respitory distress. I did not write that letter.

Well my mommy don’t want to bury her daughter, and she wishes her daughter were crazy – but she ain’t!!!!

Don’t you dare go trying to push myself or Mary Leitao into corners saying we have menopause, or anxiety, or worry too much, or that Mary digs out fibers, come on get real. Mary didn’t have to start a website to ask for Mental Health Assistance for herself. She had to start a website because no government official would listen to her or her husband or anyone in the USA for that matter. Given what the USA Government has allowed those poor victims of Hurricane Katrina to suffer I am not surprised this is all happening – it is a down right disgrace. Human cull. If anyone is wearing tea towels on their heads, its the US Government.

Since you have all tried so very hard to throw me off track all over the internet you failed on one thing, you could not read my mind, you may think you can control it – but the truth is the truth is the truth!!!!

hujo says:

So if you can’t mock it you ignore it?

hujo says:

How can you say that when there is no scale present? Also some species are iridescent, they can only be seen in the right light, as well the method for implanting this stalk is unknown, do they push it into the soil?/skin or just place it on the skin. And I mean spiders dude, their webs are like 500 times the size of the bug that made them. Quite frankly in my experience, entomologists don’t know shit about these bugs other than the plainly observable. I will update.

To answer your other questions I don’t see how my age is relevant, but I had only heard of morgellons two days before I posted here.

As far as the gulf war sickness, you are right there is a whole host of reasons 2 out of 5 soldiers that served in the gulf war are sick, just not one specific reason, therefore thru a cop-out, a matter of syntax insurance companies and the military have weaseled out of compensating these soldiers for their various illness, they were exposed to while defending your country, they remain unsupported and suffering.

The reason why I say you may be involved with insurance co. is for these same reasons you seem to want morgellons to be 1000 different things, anything but an actual parasite or one specific illness? Why? So insurance co wont have to pay and people remain unsupported and suffering?

hujo says:

http://www.headlice.org/news/collembolosis/microimages.htm

I don’t think the species that could be responsible is visible, your reasoning about the size in the pic is sound. What if the pic only shows the tip of the ice burg? I don’t know how they are attached yet, is it adhesively or pushed into the substrate?

“But the evidence simply does not indicate that.”

I think the problem with this (collembola) theory is lack of evidence caused by no study into collembola as parasites.

So we have a bug found on 18 of 20 morgellons suffers skin a bug that is hardly studied and whose very organs aren’t fully understood and you don’t think this alone is suggestive of anything?

Do you have superior knowledge about the study of these bugs that I have missed, why so quick to write ‘em off?

Michael says:

Here’s an entomologist’s opinion of that study, so you don’t have to go by mine:

http://delusion.ucdavis.edu/others.html

There are suggestions that two groups, Collembola and Strepsiptera are parasitic. However, these groups are not capable of parasitizing humans. Strepsiptera are exclusively parasites of insects. There is no evidence that they parasitize anything else. Collembola lack the structures necessary to enter human skin, either to feed or to lay eggs. The authors of the single publication proposing to have found Collembola in human skin (2004. New York Entomological Society) manipulated photographs in Adobe Photoshop to supposedly show the presence of Collembola and their eggs. The quality of the photographs and the quality of objects in the photographs was so poor that it is quite possible to see almost any kind of animal in them. The journal should be embarrassed for having published this work.

Smileykins says:

I have something to say. Someone named James said he can’t take anything I say as being serious, due to my user name. When he reappears and assigns one to me that will better serve him, all right. Until then, I’m Smileykins, just because it reflects my nature. I’m sorry it has offended.

Many are probably familiar with this patient’s account, and the excerpt from the page in this link:

http://www.dpref.com/science.html

No scientific investigation into the basis for primary delusional parasitosis has ever demonstrated its cause–or, in fact, its actual existence. Every well-documented case of persistent delusions of parasitosis, for which sensitive and precise testing for parasites has proven negative, has turned out to have been associated with some other physical or mental condition. Only one study published so far has actually examined the skin of individuals with delusions of parasitosis in comparison to controls. This study found over 300 anomalies in the skin of 20 individuals with DOP, compared to none in the controls. The anomalies, which occurred in every single subject, included fungus, nematodes, algae, pollen, cellular debris, and what appeared to be insect eggs, larvae, or embryos. Image enhancement eventually showed evidence of collembola, or springtails, primitive insect-like creatures recently separated by taxonomists from true insects, in 18 of the 20 subjects.24 There have been occasional documented reports of springtails infecting humans published during the last several decades.24,25 The dermatologists are not impressed or swayed by the evidence of these studies.

Also, many are familiar with excerpts from this link:

http://www.rgj.com/news/stories/html/2004/05/08/70309.php

From Dr.Jay Adams, a Carson City dermatologist who is president of the Northern Nevada Dermatological Association…

“Everybody has fibers and foreign objects on their skin, even things that live on them although we don’t usually like to think about it,” Adams said. “For the most part people don’t obsess about that. There definitely are a group of patients who have focused on the idea that things are crawling under their skins and will take extreme measures to prove that to you. It can take over their lives.”

Adams said it’s possible some patients may be misdiagnosed with delusions when they actually may have a physical cause for their symptoms. But he said that’s rare.

“I think that patients with (delusions) are a far more common answer than any of the patients who may really have parasites. Delusions of parasitosis is real. Most of the patients are delusional.”

(There are physical causes for DOP, for certain.)

From Dr. Harvey, whom we are all familiar with…

“The patient told me some strange stories about things that were living on her skin so I, too, wondered if her illness was psychologically based,” he said.

He looked at the lesions and saw “tiny colored threads” in the wounds. He sent several specimens to a mold expert for analysis. The fibers were put in culture dishes to grow, but only a fungus called candida tropicalis was found.

Harvey also found tiny worms on a patient’s scalp that later proved to be the nymph form of a feline parasite — a tapeworm that preys on cats and shouldn’t be found on humans. Other patients were infested with forms of algae, other plant pathogens, or candida tropicalis, the fungus found in the laboratory culture of the “fibers”.

Providing that these patients have seen a general practitioner, and not previously been diagnosed with a any of the physical conditions that would attribute to their being convinced that they’re harboring parasites, there are still reasons for them to think that they are.

Dr. Harvey even acknowledges…

“Once I started taking these patients seriously, I saw the variety and number of unusual and unexpected skin occupants was real, they were unequivocally there,” Harvey said. “I still don’t know what some of these things are, but my theory is that the symptoms are a phenomenon of a much larger process that has rendered their skin immunity ineffective.”

It requires very little thinking, to know their skin immunity has become compromised. Also, look at that list, again, of things that Dr. Harvey found on the patients he reportedly examined…

1. Tiny worms on a patient’s scalp that later proved to be the nymph form of a feline parasite — a tapeworm that preys on cats and shouldn’t be found on humans
2. Forms of algae, other plant pathogens, or candida tropicalis, the fungus found in the laboratory culture of the “fibers”

And, in reference to that Collembola study, again, the anomalies mentioned…

Fungus, nematodes, algae, pollen, cellular debris, and what appeared to be insect eggs, larvae, or embryos. Image enhancement eventually showed evidence of collembola, or springtails, primitive insect-like creatures recently separated by taxonomists from true insects, in 18 of the 20 subjects.

But that is not what people have been led into believing is something called “morgellons disease”. No, wait a minute. Oh yes, it is. Practically anything that’s been adhered to lesions, or entrapped within the epidermal’s protective layer (consisting of up to 30 layers of stratified squamous epithelium), is what this is precisely about, to many people, aside from environmental fibers. Right?

It’s also, apparently, about their own skin having any vascular malformations, such as generalized essential telangiectasia, which has been noted to improve with the administration of tetracycline, oral acyclovir, and ketoconazole, sometimes, often helps.

http://www.emedicine.com/derm/topic164.htm

Also, it obviously involves the extrusion of their own collagen and elastin fibers, due to scratching their skin. It even encompasses those who dig into their skin and pull out connective tissues, glands, nerves, and venous structures. Also, it involves people who pull off scabs.

There are numerous explanations for people to have environmental fibers, as well as to produce fibers from their own bodies. There is no undiscovered pathogen at play known as “morgellons disease”.

Please notice the picture of the womans’s thighs in the Reno news article link. The heat from my laptop caused my legs do that and I just exfoliated it away, over time. Regular skin stimulation, and gentle exfoliation, will remove anything that is suffocating the skin. Why some people have a buildup of dead cells, and, debris of all sorts entrapped inside their skin, is something only they should be able to figure out, for themelves. They’re not, though.

Their skin is sluggish, there is no doubt about it, and, more than likely, they are too. I mean, chronic fatigue, afterall, seems to be prevalent within this group of patients. Vitamin B12 is in short supply of all people as they age, commonly resulting in anemia. What does anemia do? It makes ya tired, and not get enough oxygen to your cells. Our skin just naturally slows down as part of the normal aging process, too. Those two things are facts, existing among people with nothing else the matter with them, but it can lead to other things, though. Proper nutrition, adequate hydration, exercise, regular exfoliation, and proper rest, results in better health for everyone. When there is an imbalance, it will show up in the skin.

Gringo says:

BEWARE-

THIS SITE IS PLANTING THINGS ON YOUR COMPUTER LIKE COOKIES AND VIRUSES. SCAN YOUR PC AND DECIDE FOR YOURSELF.

tallcotton says:

Cookies are for your benefit, dummy. And there are no viruses on this blog, regardless of what you may think. Don’t you get tired of spouting off the same nonsense all the time. No one believes your lies. All you’re accomplishing is showing everybody just how stupid you really are.

Tall Cotton

Sarah Bione-Dunn says:

Hujo Says:Fair, I still think, it could be a parisite, perhaps a new unknown one, ask an entamologist how many new insects are discovered every year, i just worry about the attitude “if we dont already know about, it cant exist” It is a dangerous attitude for the medical community to have.

I see where people are coming from when they say that because something is unknown doesn’t mean it doesn’t exist. However, that is not how entomology works.

An insect is a visible object, whether to the naked eye or under a microscope. Discerning an insect from other objects, such as fuzz, debris, grass, hair, is quite simple even to an untrained eye, especially under a microscope. One has form and structure, the other, well, doesn’t, or if it does, it is certainly not an insect.

So, an unknown insect is still visible. An entomologist merely has to peer through their eyes or through a microscope and see that it is or isn’t an insect and make distinctions about the body structure of the organism (does it have six legs? eight? thorax? cephalothorax?).

Then, if the criteria for being an insect are met, taxonomy occurs to determine what kind of insect it is. If it is unknown, any entomologist would be thrilled, as they can publish about the discovery.

Michael says:

Indeed, why would I want to disable people’s computers? Surely I’d actually want them to keep coming here and reading my posts? I’d just scare them away if I was planing a virus on their computer.

I’m sure this punding is making you feel better. But it’s starting to get a little sad for everyone else.

Gringo says:

And so what if you dont like my position. I do it to spite you. Just like you, I do it like that.

Smileykins says:

I wish we knew something, of how ill Houston’s mother actually is, having a son displaying such traits, all for her sake.

hujo says:

Michael, there is a flaw in this logic, it seems only one study was ever published on “dop” patients that actually examined their skin, that study (discredited in your eyes) revealed skin anomalies and possible collembola as parisites.

My question; has there ever been a study done by skeptics trying to disprove morgellons that actually examined the skin of dop patients, that is to say what proof is there that skeptics are not just writing it off? I find nothing to indicate the dissenters have given the matter any study or ever published the methods they use to come up with “dop” diagnosis. Their titles and authority are their only proof

If the CDC only publishes a statement that says “it does not exist” without actually studying the skin or revealing the methods used to come to that conclusion, how can you be satisfied it is dop?

hujo says:

I think that the fibers may not be true but that people with morgellons have

Neurocutaneous Syndrome

http://tinyurl.com/f7flt

The neurological aspects of NCS are
characterized by pin-prick and/or creeping,
painful and irritating movement sensations,
often interpreted as parasite movements
subcutaneously or in various body tissues or
cavities including the head. In the latter case,
movement sensations are either unipolar or
bipolar and may proceed horizontally or
vertically. They may manifest as readily
observable variably shaped bruises or waves
of elevated ripples or channels. In no case
was the movement sensation related to
parasites which were always found absent.
1
Neurological symptoms may also include loss
of memory, brain fog, lack of concentration
and control of voluntary movements.
The cutaneous aspects include small
itchy sores (Fig.1), inflamed often elevated
pimples (Figs.2,3) and painful and fully open/
amorphous mucoid lesions that often enlarge
and coalese (Fig.4). Histopathological
sections of lesions (Fig.5) in nine biopsied
patients show superficial and deep
perivascular infiltrate of lymphocytes,
accompanied by interstitial deposits of
granular mucin material. Eosonophils are
usually present within the inflammatory
infiltrate and foci of epidermolytic
hypokeratosis are often identified within the
epidermis (Fig.5). Lesions may also be on the
scalp where they may be associated with
infestation of springtails (Collembola).
1
In
many cases, lesions are associated with
edematous reactions usually in the arms and
legs (Fig.6). Blood vessels may also become
enlarged and elevated, and the head may
become hot and turn red. The gum tissue and
the teeth may turn gray and become
compromised first and stay compromised the
longest. Mucoid secretions from gum and
other tissues may also turn gray. No
parasites were ever detected from these, or
any other compromised sites.

Got to be.

So its not morgellons just this one specific thing right?

Smileykins says:

This is the topic of “morgellons disease”, though, not neurocutaneous syndrome, which is also controversial. Why so many patients who refused and ignored their doctors’ (reportedly, on the average of 10-40) diagnoses, of DOP, Hujo? Read this little article, and notice the similarities.

http://www.ahealthyme.com/topic/parasitosis

Smileykins says:

I hope it continues to help you to believe that way, Sarach.

hujo says:

Smilykins

Lets say morgellons is discovered and it’s ncs. We would have people without dop being diagnosed dop simply because it’s unknown and their symptom of crawling skin makes them think its bugs when it could be toxins, this explains the absence of parasites. This would also lead the doc to believe it dop. If specs and fibers are a symptom of tiny anthropoids being attracted to the infected skin, taking this evidence to your doctor would seem like the right thing to do. But instead it would convincr the doc you are dop.

But a social side effect of this is you would also have people with dop believing their delusion is ncs or morgellons. Does not disprove one or the other it just might be a disease that causes the sensation of parasites, like ncs, and the average doc is not aware of it.

al says:

smilykins the sage
marg like manna
leaves u tc…
well ur just a rude fking
wanker

al says:

sarah i could use some aussie contacts if u can help

Smileykins says:

Sarach/Gillian, concerning what you’d said:

I know very little about DOP, but have had a crash course in the past two months.

A clear cut DOP is delusional, they are also people who can not be trusted, because they do not trust either.

Hey, now. People with DOP are delusional, but they are NOT all like that, because it manifests in people for a variety of different reasons!!!

*With Primary DOP, it’s the sole psychological disturbance in a person who otherwise behaves normally and can reason in a rational manner. Based on what people say, on line, and in media reports, that would probably exclude quite a few “morgellons disease” believers, aside for the fact that they’re not rational in thinking that they have “morgellons disease”, because there is no such thing, and they’ve preferred to swap DOP out in favor of it.

*Then, there is Secondary DOP, which could cover your opinion concerning people not being able to trust, or to be trusted, because this form of DOP is due to an underlying psychiatric illness, such as schizophrenia, paranoia, depression, anxiety disorders, and obsessional states. This seems to prevail, on line, in many morgie people. Look at all the displays of anger, fear, and beliefs in conspiracies.
______________________________________

So now, please refer to the MRF case defintion for “morgellons disease”.

Under the first section:

5. Behavioral effects are common in many patients. Many have been or will be diagnosed as Attention Deficit Disorder, Attention Deficit Hyperactivity Disorder, Bipolar Disorder, or Obsessive-Compulsive Disorder. A minority do not show this pattern. Almost all, if previously seen by well-read physicians without prolonged observation, will have been labeled as “Delusional Parasitosis”. Temporal relationship to skin lesion onset is not known.

Under the second section:

4. Neuropsychiatric symptoms and signs, ranging from mood or personality changes to diagnosed disorders including Attention Deficit Disorder, Bipolar Disorder, Obsessive Compulsive Disorder and occasionally frank psychosis. Temporal relationship to skin lesion onset is not known.

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And last, there is Secondary Organic Delusional Parasitosis, resulting from an underlying physical illness, of which there can be many That includes certain nutritional deficiencies, prescription drug side effects, illicit drugs and/or alcohol abuse, and quite a lot of ill states of physical health. Now, consider all the “previously diagnosed by a physician conditions” that people report as part of the registration process for “morgellons disease”.

The case defintion for “morgellons disease” covers all the reasons for DOP. When I’d first heard of it and couldn’t get through to anyone how I’d gotten over their “morgellons disease” (of course, I couldn’t mention it was DOP, after I’d learned what it was), little did I know, at the time, that it isn’t that simply solved for many people. If it is due to mental dysfunctionings, mental health treatment is necessary. But, if people are not taking care of their underlying physical health problems, they will not get over it, either. When people need to obsess so much over getting other people to believe them, that it wrecks their relationships with their loved ones, hell-bells, that is some serious shit!!! That, to me, is a mental-related condition of the worst type, and sad as hell to read about.

Gillian says:

No wonder DOP has been a “medical mystery” for many years. It has taken me 2 years to figure it all out!!!! I will not pretend that I understand DOP fully, because I don’t. BUT I do understand it enough to be able to relate to what has happened to myself.

Would I be wrong in saying that there is a certain “stigma” attached to DOP amongst the medical profession??

And that this stigma of DOP is that it is purely delusional thinking and nothing more?? (ie. no underlying physical disease).

And/Or there are a lot of doctors that really don’t fully understand DOP?

After my experience I will answer “Yes” to the above 3 questions, but let me know if I am incorrect please.

You will remember I have told you many times before (but I like to repeat myself also!), my psychiatrist kept saying “you have something physically wrong with you” – but I was piggy in the middle and the other doctors wouldn’t listen to him (sorry correction: they wouldn’t communicate with him on my behalf), what is he meant to do, hit them over the head?! (don’t worry he doesn’t carry a handbag!).

I do know there are a lot of people out there (including other doctors of medicine) that don’t have a good word to say about Psychiatrists,(personally I think they are either threatened or jealous). Well I guess I was lucky, I’ve got one of the best Psychiatrists (or had). I haven’t seen him for a while, and given the amount of crap and abuse I have thrown at him, I don’t blame him if he doesn’t speak to me again. Look I’m sure he will (I hope) – I am just so embarrased and ashamed, after all he is the only doctor who really stuck his neck out for me and my family. Also it is not his fault if the psychiatric medication doesn’t work for me, all we could do was try, which we did. Anyway I do feel so much better off the psych. meds.

If you were to ask my parents about my situation they would tell you I went down hill about 9 years ago after being put on antidepressants by a general practitioner. I had been tried on several different antidepressants due to severe side effects every time.

Personally I feel antidepressants should only be prescribed by a psychiatrist, but I know this is not a perfect world.

If a general practitioner/family doctor etc. is going to continue prescribing psychiatric medication to patients things need to change.

By that I mean – don’t hand them out like lollies, especially if no routine tests or physical examination have been done to establish whether there is a physical cause/illness that has brought about the onset of depression.

I realise I am a little “fish” in this big wide world of medicine, just another “patient” having a whinge, but without the patient where would you doctors be??

Smileykins says:

Where I’d said, “the stigma exists within the minds of the patients who are diagnosed with DOP, due to their own bias towards mental illness. The suggestion that they need some help in that area offends them.” I’m sorry, I am just basing that from what I know of “morgellons disease /DOP diagnosed” patients, and what they say on the internet.

AnnaR.Key says:

I do not know what I have, nor do the 20 plus doctors I have seen at Kaiser Hospital(s) in Contra Costa County over the past 2-1/2 years.

I know that I am very sick and getting sicker. I am a 40 year old married female with an 8 year old daughter and a 10 year old dog. Doctors have tested me upside down and inside out. They found a normal amount of oral yeast, so I got Diflucan for 14 days, and an elevated Rhuematoid Factor to which the follow up said I had an irregular possitive test result and that my autoimmune system was maybe responding to something slight at the time.

With Kaiser, I was feeling ‘put off’ after having 50+ plus, 5 minute bullshit appointments in which the Dr. then shuffles me to another department. Derm., Internal Adult Med., Immune, Infectious Disease Dept., OBGYN for ‘my’ change of life at 40 (?) disease, yet I am still having regular periods and I have always been a bitch. That was 2 years ago, and the appointment circle started again. Back to Derm and main Doctor or ‘Care Provider’ (?) ok, to start all over with the shuffle.

My sickness was and still is up to me, all I can say is that when I type in my symptoms, I get a thousand million diseases.. . . . BUT. . . . .when I type in my symptoms, one by one, adding each one after each search on Google’s Search within results, it comes up with Morgellons.

With that information and the new article about the CDC giving Kaiser $$$$ I asked every Doctor, 8 total, from Feb. 08 on, “Is this it?” NONE, NOT ONE of the Doctors even heard of Morgellons as of May 2008 at Kaiser in Martinez, CO CO County, where Kaiser is heading up the research for Morgellons paid for by the CDC.

Then I began going to the Admin. office after every visit asking, “If they, the Dr.’s don’t know or have answers can you please direct me to someone that does?” So, I just walk in circles around the parking lot because I get better answers and it’s less frustrating.

In June, Kaiser sent me a packet by mail responding to my letters and request to go to UCSF for answers. Kaiser’s packet explained QUOTE, “That the Chair of Chiefs reviewed your medical care related to your condition and she indicates that you have been diagnosed with Morgellon’s disease, which has symptomology identical to delusions of parasistosis.” Bla, bla,bla. . . Request denied, if you choose to seek medical attention or advise from UCSF you do so at your own cost.

The next day, I get another packet. Only this time it had signatures that I could read and names for the Chiefs and the Chairs and the tables too. It was a very nicely written kiss ass letter that included a purchase order for me to go to UCSF and have a private Doctor paid for by Kaiser.

Yeah, if you got excited you must not know Kaiser. I knew it was a jerk job and that they are stalling me. This letter came 4 weeks ago. I faxed everything they requested the same day. Called to confirm they had it. Still no appointment as of yet, July 13th.

KAISER Doctor’s are following someone’s proto-call-memo, because they all say exactly the same thing, nothing and “I don’t know that isn’t really my department.”

CO CO COUNTY is the hot spot for Morgellons. We are not all tweeks and the ones that are have been for a lot longer then they have had this disease.

Is it that someone is trying to avoid a wide spread panic via the internet. People must be aware that one third of Co Co County’s tax payers have Morgellons and they all aren’t kissing cousins.

* It has to be spreading via: air, food, or water. *

Oh, and I am delusional. I sometimes look like Pam Anderson and dance around naked in The San Jose Shark’s locker room. So fine, I am crazy, but I don’t do bugs and pain in my delusions. Well, not my pain.

If I am delusional, psychotic, mental, skitz-so then I am sick, so please help me before I go postal and take out several of the mean judgemental types.